annual report 2014-15 - Beyond Batten Disease Foundation

Transcription

ANNUAL REPORT 2 014 -15
DEAR FRIENDS,
WHAT AN AMAZING CONCEPT to be able to put a question mark
after impossible. When Beyond Batten Disease Foundation was founded
seven years ago, the task of finding a cure or treatments for juvenile Batten
disease seemed daunting and improbable. Now more than ever before,
eradicating Batten disease is a real possibility. And that is all because of
your collective effort. You are making the impossible possible!
FAMILY, FRIENDS AND COMMUNITY
respond instinctively to a child in need.
$15.5 MILLION
over the last seven years has been
Francis of Assisi said, “Start by doing what is necessary; then do what
is possible; and suddenly you are doing the impossible.” This quote
perfectly illustrates our success story at Beyond Batten Disease Foundation. When you heard about a child affected by this devastating disease, you did not stand idly by
and accept the prognosis. Instead you did what was necessary, responding to families in need of hope,
support and a cure. Because of the resounding response to do the necessary and in turn the possible,
collectively we are on the brink of the impossible. Every small action from a lemonade stand to a Facebook post has played an integral role in getting us where we are today. Over the last seven years, you
have enabled over $15.5 million in funding for juvenile Batten disease research. Your support has led
to six potential drug compounds, resulting in two lead candidates, as well as many new and promising
avenues for treatment.
invested in research by leveraging donations, co-funding
and partnerships, leading to new avenues to a cure and
SIX POTENTIAL
drug compounds for treatment.
See our STRATEGY FOR A CURE
on page 25. Today, we have more treatment
options than ever before!
This report represents the encouraging progress we have made over the last twelve months and
highlights some exciting things happening in the upcoming year. Because you did what was necessary
and possible, we have come a very long way in a short time. We are so grateful for your efforts to
further our mission and know none of this would be possible without you. Please take a minute to read
our report and don’t hesitate to ask questions. With so many exciting advances happening at BBDF,
I would love to share the good news and get your input. Thank you for continuing to give us hope.
While we have made great strides, our fight is not over until we have a cure for Batten disease.
We are on our way to making the impossible possible!
With gratitude,
Mary Beth Kiser
President and CEO
WWW.BEYONDBATTEN.ORG
BEYOND BATTEN DISEASE FOUNDATION
2014-15 ANNUAL REPORT
1
BOARD OF DIRECTORS
T. Craig Benson
Founder and Chair
ON THE COVER:
Christiane Benson and Grace Meinzer cross the
finish line at the Run to the Sun 2K, held in April 2015.
Mark Chandler, PhD
Founding Director
Kyle Janek, MD
Founding Director
CONTENTS
Board Member
Necessary
Jeff Hunt
Board Member
Cherie Flores
Will Murphy
Board Member
Leadership............................................................ 4
Development Board........................................ 5
Youth Leadership Committee................... 7
STAFF
Mary Beth Kiser
Events...................................................................... 8
The Will Herndon Fund................................. 10
Third Party Events............................................ 14
President and CEO
Danielle M. Kerkovich, PhD
Principal Scientist
Berkley Kingman
Possible
Communications Manager
Carolyn Donovan
Research................................................................. 19
Development Manager
of The Will Herndon Fund
Impossible
Strategy.................................................................. 25
Mother’s Story..................................................... 26
[email protected]
Donors..................................................................... 29
2
LEADERSHIP
DEVELOPMENT BOARD
2014-15 DEVELOPMENT BOARD
TWO YEARS AGO, Beyond Batten Disease Foundation created
the Development Board out of the necessity to sustain our
momentum. Over the past two years, the Development Board
has been integral to the fundraising success of the foundation.
These active volunteers and community leaders are doing
CHARLOTTE AND CRAIG BENSON established Beyond Batten Disease Foundation
in August 2008 after their then five-year-old daughter, CHRISTIANE, was diagnosed with
juvenile Batten disease. With hundreds of families affected by Batten disease and supporters
who share their hope and resolve, they are working tirelessly to create a brighter
future for Christiane and all children with Batten disease.
Following the diagnosis of their son, WILL, in 2009, MISSY AND WAYNE HERNDON
joined Beyond Batten Disease Foundation to create The Will Herndon Fund for Research
(HOPE). With The Woodlands community, they are determined to find treatments
or a cure for Will and the many children affected by Batten disease.
, helping us grow and accomplish our
what’s
mission by extending the reach of our community and raising
awareness and research funds to find a cure or treatment for
juvenile Batten disease. In its second year, this dedicated
group was led by President Kelley Daniel.
Mr. and Mrs. Jamil Alam
Dr. and Mrs. Andy Hooper
Mr. and Mrs. Wick Alexander
Ms. Diane Humphreys
Mr. and Mrs. Jarrett Anderson
Mr. and Mrs. Jeff Hunt
Mr. and Mrs. Chad Auler
Dr. and Mrs. Kyle Janek
Dr. and Mrs. Mark Auler
Mr. and Mrs. Ross Jessup
Mr. and Mrs. Craig Benson
Mr. and Mrs. Dean Jett
Mr. and Mrs. Paul Benson
Mr. and Mrs. Pat Jones
Mr. and Mrs. Danner Bethel
Mr. Albert Koehler
Ms. Lynn Boswell and
Mr. and Mrs. Kam Kronenberg
Mr. Burton Baldridge
Mr. and Mrs. Derek Lewis
Mr. and Mrs. Jay Brown
Mr. and Mrs. Rob Looney
Ms. Sheri Bryant
Ms. Lisa Magids
Mr. Bruce E. Butler
Mr. and Mrs. Christopher Martin
Mr. and Mrs. Stephen Butter
Mr. and Mrs. Mark McKnight
Mr. and Mrs. Chris Carrigee
Mr. and Mrs. Neal Meinzer
Dr. and Mrs. Mark Chandler
Mr. and Mrs. David Middleton
Mr. and Mrs. Randy Chupik
Mr. and Mrs. Kevin Nater
Ms. Katy Copley
Mr. and Mrs. John Nelson
Ms. Ashley Crider
Mr. and Mrs. Chris Newton
Ms. Emily Cunningham and
Mr. and Mrs. Charles Pace
Mr. Larry Chauvin
Mr. and Mrs. David Phillips
Mr. and Mrs. Tom Daniel
Mr. and Mrs. Eric Price
Mr. and Mrs. Bill Davenport
Mr. and Mrs. David Putman
Mr. and Mrs. John Daves
Mr. and Mrs. Reagan Reaud
Mr. and Mrs. Scott Daves
Mr. and Mrs. Dan Sharplin
Mr. and Mrs. Colby Denison
Mr. and Mrs. Rich Smalling
Ms. Darby Denison
Mr. and Mrs. Lathrop Smith
Mr. and Mrs. John Donovan
Mr. and Mrs. Bruce Staples
Mr. and Mrs. Kelly Dowell
Mr. and Mrs. Charles Stephens
Mr. and Mrs. Marshall Durrett
Mr. and Mrs. Marty Sunde
Dr. and Mrs. Drake Fason
Mr. and Mrs. Lance Thompson
Mr. and Mrs. Bill Fowler
The Honorable and Mrs. Mike Toomey
Mr. and Mrs. Will Fowler
Mr. and Mrs. Todd Wallace
Mr. and Mrs. William Geisler
Mr. and Mrs. W.H. Trey Watson
Mr. and Mrs. Ben Hanson
Ms. Elissa Watts
Mr. and Mrs. Reg Hargrove
Mr. and Mrs. Jamey Whitlock
Mr. and Mrs. Charlie Hill IV
Mr. and Mrs. James Windham
Ashley Crider, Kelley Daniel, Charlotte Benson
Christopher Martin, Lance Thompson
Mr. and Mrs. Richard Hojel
Amber Meinzer, Laurel Hooper, Ashley Putman
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5
DEVELOPMENT BOARD
YOUTH LEADERSHIP COMMITTEE
2014-15 DEVELOPMENT BOARD
RECOGNIZING THE MANY young philanthropists in our community,
Beyond Batten Disease Foundation took the
step to create
the Youth Leadership Committee in October 2014. In their inaugural year,
they helped us grow and get closer to finding a cure for Batten disease by
hosting two exchange station and creating three teams, which raised
$13,725 for Run to the Sun.
Andy and Laurel Hooper, Craig Benson
Julia Sunde, Mary Beth Kiser, Jimmy Windham
Stacy Toomey, Pam Staples
Mills Alexander
Mary Frances Kocurek
Clay Anderson
Will Kocurek
Chris Ault
Cal Long
Caleb Barton
Susie McCartt
Ellie Brumley
Sophia Menyhert
Joe Bryant
Carter Pace
Ellen Campbell
John Schneider
Catherine Carrigee
Kathryn Sharplin
Sarah Carrigee
Will Snell
Katie Chandler
Cameron Thompson
Grayson Clifton
Michael Toomey
Francis Copley
Walker Weedon
George Copley
Hannah Windham
Steven Crider
Jack Windham
Keaton Cruzcosa
Anne Newton, Anna Hargrove
Travis Daves
Carlisle Dunnam
Lawson Fish
Larry Chauvin, Emily Cunningham, Sheri Bryant
June Chandler, Kristin Alexander
Merritt Fish
Claire Gill
Grace Gilmour
Max Keliehor
36 KIDS FROM 7 SCHOOLS
RAISED $13,725
Jimmy Windham, Wick Alexander
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Darby Denison, Clary Auler
Kristin Fason, Ann Hojel
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EVENTS
RUN TO THE SUN
RUN TO THE SUN
ON APRIL 11-12, over 200 runners and 250 volunteers stayed up
through the night to raise awareness and funds for juvenile Batten
disease research. Our community came together in strength and
numbers. More than ever before, the 5TH AND FINAL RUN TO
THE SUN RELAY showed the importance and fortitude of our
community. With participants representing seven Batten families, their communities and pharmaceutical company BioMarin,
the event illustrated the power of partnership and team work.
Runners were cheered on by the 16 exchange stations along the
way, which ranged from a fiesta to a Cajun cookout. The 90-mile
relay ended with a sunrise celebration and 2K at Camp Mabry.
Over 100 2K runners joined in the morning to show their support
by participating in the carnival and run. Together, we raised over
$1.6 million in the five years of Run to the Sun.
Jimmy and Jack Windham
Bailey Cartwright
Team Live Like Ross
Team Maroon
Mark and Shelby Auler with Crawford Rogers
250 VOLUNTEERS + 200 RUNNERS + 1324 DONORS
IN 5 YEARS
$1.6 MILLION
RAISED
Mike Rosenthal readies the start line at the kids’ 2K Fun Run.
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THE WILL HERNDON FUND
HOPE
HOPE UNDER THE STARS
HOPE COMMITTEE
SIX YEARS AGO, over 80 women came together,
pledging their
support to the Herndon
family in the wake of Will’s devastating juvenile Batten
disease diagnosis. They planned the first HOPE Under
the Stars with a zero dollar budget, collecting all
donations from everyone they could ask.
That event generated $220,000 and set The Will Herndon
Fund into motion. Since then, this group of women has
grown to well over 100 members and is responsible for
the planning, development and execution of three annual
events as well as raising awareness in The Woodlands
community and beyond. They are the heart of HOPE and
one of the main reasons Will wakes up each morning
with a smile.
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Christen Argueta
Haley Garcia
Gina Lattimer
Pat Sanders
Amy Atnipp
Angela Gibbs
Michelle Leavitt
Stacey Schexnaildre
Charla Balette
Emily Gogineni
Kristi LeBlanc
Tammy Schroder
Angela Banzhaf
Natalie Greene
Kim LeBlanc
Jennifer Seeger
Darcy Bass
Jennifer Grigsby
Amy LeCrone
Cheryl Sevin
Carey Bell
DeAnn Guidry
Kimberley Lee
Jennifer Sieracki
Inger Berger
Dina Hafley
Nancy Decker Lent
Audra Simpson
Angie Blake
Paige Halberdier
Julia Lile
Jenni Skipper
Ashley Boudreaux
Tracy Halverson
Denise Lipar
Melissa Stanosheck
Pam Bryan
Kecia Haseman
Kelly Lunn
Tricha Stilley
Bridget Buck
Alison Henderson
Coco Mahoney
Iram Taylor
Jennifer Bulovas
Michelle Hewgley
Alicia May
Amy Thedinger
Jessica Catani
Jennifer Hiser
Jena McCrann
Amy Torres
Marilou Catani
Audra Hoegemeyer
Jennifer McDonald
Honey Tucker
Elvira Cauthen
Rachel Honeyman
Marissa Mettauer
Misty Twellman
Misty Clow
Colbie Hubenak
Bobbi Jo Miller
Stevi Venable
Julie Comeaux
Jennie Hughes
Christy Miller
Theresa Wagaman
Krista Cook
Polly Hunt
Shannon Mills
Sarah Watson
Jennifer Coyle
Lauren Hunter
Stephanie Milstead
Heather Webster
Kathy Croom
Noelle Jahncke
Whitney Montgomery
Yvette Williams
Alexa Currie
Janine Jones
Natalie Moon
Cheri Young
Mary-Kathryn D’Agostino
Alison Judge
Stacey Morcos
Amy Young
Nikki De Boer
Teresa Keating-Walker
Emily Morgan
Julia Dell
Wendy Kemp
Shea Muehsler
Colleen Dippel
Jessica Kemp Park
Nicole Murphy
Carol Durkee
Melissa King
Sarah Nanick
Johnna Edone
Martha Klie
Emily O`Shaughnessy
Chrissie Elmendorf
Beth Landgraf
Claire Orewiler
Arlene English
Kelli Laney
Julie Perugini
IN SEPTEMBER 2014, HOPE Under the Stars raised over
$575,000 for Batten research. With 850 in attendance, the
6th annual event was the most successful night to date. Missy
Herndon provided a comprehensive research update, allowing
supporters to see first-hand what they made
.
Scott Young, Will Murphy, Corey Gibbs, Chris D’Agostino
Missy, Will and Wayne Herndon
From Texas Hold ‘Em to music by the Bucktown All-Stars, the
event had entertainment galore. Most importantly, all in attendance
were provided with HOPE and supported our
efforts to find a cure for Will, Christiane and hundreds of children
affected by Batten disease.
Meredith Sipko, Heather Weiss, Tara Wheeler, Julie Warrington, Tiffany McClurb
Wayne and Missy Herndon, Dr. Antonella Pignata , Dr. Marco Sardiello, Charlotte and Craig Benson
850 ATTENDEES + 50 SPONSORS
$575,000 IN REVENUE
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THE WILL HERNDON FUND
HOPE
HOPE ON THE GREEN
THE WOODLANDS MARATHON
ON APRIL 20TH, The Will Herndon Fund hosted its 6th annual golf
tournament, HOPE on the Green, at The Woodlands Country Club
Palmer Course. With 52 sponsors, 210 players and 50 volunteers,
HOPE had its most successful tournament to date, helping make
THE WILL HERNDON RESEARCH FUND at Beyond Batten
Disease Foundation was chosen as a spotlight charity of The Woodlands Marathon Series by Fleet Feet Sports. Training began at the
Warrior Run & Rally in January, sponsored by Jo Anne Johnson &
Associates. On race day, Warriors participated in the Family 2k,
the
. With a helicopter ball drop and
an outfit competition, the event was filled with spirit and HOPE
and raised over $125,000.
5k, half and full marathons, raising over $14,000 in honor of Will.
As part of her quest to run a race in all 50 states raising awareness
of Batten disease, special guest Laura King Edwards of Taylor’s
Tale ran the half marathon for Will and her sister, Taylor. Thank
you for RUNNING on WILL POWER!
Missy Herndon, Lindsey Perkins of Fleet Feet Sports, Will Herndon and Jo Anne Johnson
of Jo Anne Johnson & Associates
Jake Lile and Steele Herndon
Hope Ladies and Will Herndon
52 SPONSORS + 210 GOLFERS + 50 VOLUNTEERS
$125,000 IN REVENUE
HOPE supporters gather at The Warrior Run and Rally
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THIRD PARTY EVENTS
ADVOCATES
THIRD PARTY EVENTS
BBDF’S ADVOCATES span the globe. We are grateful for the many supporters who take it upon themselves
to do what’s
, hosting events in their communities and raising funds for research. Using their talents
and integrating Batten disease awareness into their runs, parties and more, they are helping us accomplish
our mission of curing Batten disease.
CASIS FOR CHRISTIANE
PARENTS AND TEACHERS from Casis Elementary have done what’s
to provide support and encourage Christiane by
creating new learning opportunities for her to thrive. Over the last
seven years, they have spread awareness and raised funds for juvenile
Batten disease research. In preparation for Run to the Sun, Team Casis
for Christiane hosted a party at Tom’s in South Austin. The team has
participated all five years, hosting events leading up to the relay and
RAISING OVER $109,600.
BATTLIN’ BATTEN IN BAFFIN
This year’s Battlin’ Batten in Baffin Fishing Tournament RAISED
OVER $30,000, bringing the total raised since 2009 to more
than $150,000. Thank you to Neal Meinzer, who has graciously
hosted this third party fundraiser for seven years. Pictured is this
year’s winning team: Jim Arnold, Kelly Dwyer, Baron Unbehagen,
and Len Wright.
WHOLE FOODS PREVIEW NIGHT
The Will Herndon Fund was honored at The Woodlands Whole
Foods Market Preview Party. Attendees visited the new store
while supporting HOPE, RAISING OVER $5,000.
David and Ali Phillips
BACKFLIPS
FOR BATTEN
In preparation for Run to the Sun,
Quincy Alam created her very own
FACULTY FOLLIES
fundraiser doing backflips for Batten
Mitchell Intermediate School produced their first ever Faculty Follies in support
of The Will Herndon Fund last spring. The event RAISED OVER $8,000 and
showcased the faculty, staff and students’ knack for comedic timing, as well
as their talented artistic skills and genuine love for their fellow Mustang, Will.
in her front yard. Not only did she
help raise awareness, she provided
hope to her friend, Christiane.
Team Casis for Christiane
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15
THIRD
LEADERSHIP
PARTY EVENTS
BIRDIES FOR BATTEN
Through the American Junior Golf Association’s
program Birdies for Charity, Austin High golfer
Will Ezell RAISED OVER $4000 for juvenile Batten
disease research. Birdies for Charity allows junior
golfers to pick a charity important to them. They
then secure one-time donations and pledges for
the amount of birdies they have in any tournament
where the USGA rules of golf apply. Will unselfishly
combines his passion for golf with giving back to
the community.
#BEATBATTEN CARNIVAL
In February, the HOSA club at Buchholz
High School in Gainesville, FL, hosted a
carnival to raise research funds for BBDF.
They were able to RAISE OVER $2,000
for our cause.
AUSTIN HIGH GLOBAL STUDIES
Austin High students Maddie Durrett, Sarah Wells,
and Drew Beathard chose to study Batten disease for
their Global Studies capstone project. Through meetings
with BBDF staff and doing their own research, they
were able to learn about the disease and help us
spread awareness. They also gathered their classmates
for a Run to the Sun exchange station. Thank you for
helping us envision a world beyond Batten.
MIGHTY LIKE A ROSE
Moved by the Benson’s story and the
foundation’s work, John Edson wanted
to help spread awareness. Turning to
what he knows best, music, John gathered
some of Austin’s finest musicans, including
Emily Gimble and Floyd Domino to
record his family’s favorite lullaby, “Mighty
Like a Rose” and made it available for
download on CD Baby, iTunes, and
Amazon. All sale proceeds benefit BBDF
and our efforts to find a cure. Thank you
John and Mary Ann Edson for sharing
your talents to help fight Batten disease!
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BRACELETS
FOR BATTEN
Marissa Gamel and Melanie
Kocurek made rainbow loom
bracelets and sold them to raise
money for Batten disease research.
They RAISED $32 and helped
spread awareness.
CUT FOR A CAUSE
In October, HairCrafters in South Bend,
Indiana, hosted their 18th Annual Cut
for a Cause. Choosing Team Tyler as the
beneficiary, the salon provided blue extensions, haircuts and braids in exchange
for a donation in honor of Tyler Allman.
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RESEARCH
RESEARCH
WHEN THE FOUNDATION was created, there
was little on the horizon to treat juvenile
Batten disease. Today, we are advancing
the development of six potential drug
compounds and have determined our
two lead candidates. To prepare for
clinical trial success, we are simultaDanielle Kerkovich, PhD
BBDF Principal Scientist
neously supporting the coordination
of international patient registries.
Additionally, we are providing Batten-specific resources
$1.8 MILLION
FOR BATTEN DISEASE
RESEARCH
We spent $1.1
MILLION on research in 2014-2015.
And, leveraged $698,000 more through partnerships
and cofunding. Totaling almost $1.8 MILLION
for Batten disease research this year.
Affected
Families
Other
Neurological
Disease
Groups
RESEARCH
STRATEGY
to individual investigators as well as to the Pharmaceutical
Industry to explore the potential of new discoveries to treat
juvenile Batten disease. Our research strategy brings together all
Like-minded
Foundations
stakeholders, including affected families, like-minded foundations,
and other neurodegenerative disease groups. BBDF Principal
Scientist Danielle Kerkovich, PhD, together with experts in all levels of drug discovery and approval,
continues to lead and manage our comprehensive research strategy to ensure that we stay on track.
With their
guidance and your support, we are doing the
and building a
structure that funnels promising findings into new medicine for clinical trials until we are suddenly
doing the
and curing juvenile Batten disease.
“Exciting novel approaches to drug discovery could mean that treatments for JNCL are just around
the corner.” – Liora Braiman-Wiksman, PhD, CEO of XoNovo Ltd, developer of small molecule drugs to treat JNCL
Over the past seven years $15.5
MILLION
has been invested in research by leveraging donations,
co-funding and partnerships. Leading to new avenues
for treatments or a cure and SIX
POTENTIAL
drug
compounds for treatment. With a comprehensive strategy
to advance all potential treatments and supporting
projects, we are preparing for clinical trial success.
$15.5 MILLION
FOR BATTEN DISEASE
RESEARCH
6
2
DRUG
COMPOUNDS
EVALUATED
LEAD
CANDIDATES
BBDF PARTNERS WITH EVOTEC TO
GET CLOSER TO FDA APPROVAL
BEYOND BATTEN DISEASE FOUNDATION funded Evotec,
a specialized contract research organization, to evaluate the
six potential drug compounds discovered at Texas Children’s
Hospital and they have identified TWO LEAD CANDIDATES
to advance to validation studies. They now have a two-year plan
to validate those compounds and, if successful, advance an
application to FDA for approval of clinical trials.
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RESEARCH
RESEARCH
BBDF HOST WORLD-RENOWNED SCIENTIFIC
EXPERTS TO FOCUS ON BATTEN
PATIENT REGISTRY –
PREPARING FOR CLINICAL TRIAL SUCCESS
BBDF RECEIVED A PEER AWARD from Genetic Alliance for
our registry efforts. PEER enables individuals to share health
information with researchers and each other on their own terms
to advance an understanding of health and disease and to
accelerate the development of criteria for clinical trials. A patient
registry is a collection of standardized information about a
group of patients who share a condition. Currently, there is not
one single, standardized registry for juvenile Batten disease;
instead, there are multiple registries around the globe. While
these programs have led to increased understanding of Batten
IN OCTOBER 2014, Beyond Batten Disease Foundation and
the New York Academy of Sciences brought together over 55
research leaders from multiple diseases, like Cancer, Parkinson’s
and Alzheimer’s, to collaborate and focus their efforts and
expertise on juvenile Batten disease. At the “Drug Targeting the
Lysosome Workshop,” which was held at the NYAS Conference
Center at the World Trade Center, both academic and pharmaceutical researchers discussed how to work together towards
common goals. There were many action items resulting from
the meeting as well as an accessible and educational podcast.
disease, each one records unique information associated with
only a small number of patients. There is a critical need for
cooperative infrastructure and standardized practices in measurements, recording and other practices. By standardizing and
coalescing available clinical information, researchers will accelerate
innovation, produce faster knowledge gains, and present
pharmaceutical companies with much-needed, high-impact,
statistically significant information. BBDF is coordinating information across multiple registries and clinical sites in support of
individual and group research efforts.
“Recent breakthroughs in treating the Late Infantile form of Batten disease give us experience,
tools and hope for developing treatments of other forms of Batten disease, including CLN3.”
– Chuck O’Neill, PhD, Vice President, Pharmacological Sciences, BioMarin Pharmaceutical Inc.
While
40% OF SCIENTIFIC PEER REVIEWED ARTICLES are never cited, by 2015
BBDF-funded research has been published
18 TIMES and cited 1500+ TIMES.
CRAIG JOINS THE NRI INTERNATIONAL
ADVISORY BOARD
Beyond Batten Disease Foundation is pleased to announce Craig Benson’s appointment to the
International Advisory Board at the Jan and Dan Duncan Neurological Research Institute (NRI) at
Texas Children’s Hospital. Consistent with BBDF’s strategy and goals to connect our research with
top-ranked institutions, Craig is eager to join the NRI in its mission.
Craig Benson
20
With the promising research happening not only in Batten disease but also other neurodegenerative
diseases, Craig is excited to serve in an advisory capacity at the NRI. Joining Nancy Chang, Albert
Chao, Robert Graham, Prisca Chen Marvin, Anthony Petrello, Charif Souki, and chair Michael Wilsey,
Craig will bring his experience and dedication to the board.
Attendees at the Drug Targeting the Lysosome Workshop.
55
REPRESENTING
WORLD RENOWNED
RESEARCHERS
9
COUNTRIES
CONNECTING
17
DISEASES
FOCUSED ON JUVENILE BATTEN DISEASE
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ONGOING RESEARCH PROJECTS
ONGOING RESEARCH PROJECTS
BEYOND BATTEN DISEASE FOUNDATION funds many
multi-year projects. At any given time, BBDF’s principal
scientist is managing over 35 projects at various stages on
the drug discovery pipeline from academic tools and scientific
resources for Batten research to advancing new discoveries.
BBDF HAS
38+
ONGOING
RESEARCH
PROJECTS
FURTHERING RESEARCH
AT TEXAS CHILDREN’S HOSPITAL
LAST YEAR, Beyond Batten Disease Foundation awarded a $1.75 MILLION GRANT
over three years to the Jan and Dan Duncan Neurological Research Institute at Texas
Children’s Hospital in Houston to explore whether the pharmacological activation of
TFEB can be used to activate the lysosomal system, promote cellular clearance and
slow disease progression. Building off the $2.5 million award from Cherie and Jim
Flores and Beyond Batten Disease Foundation in 2008, Drs. Ballabio and Sardiello
continue to make significant strides in juvenile Batten disease research. This research
led to our two leading drug compounds.
STEM CELLS
FOR RESEARCH
BEYOND BATTEN DISEASE
FOUNDATION is funding the
creation of the largest and most
genetically diverse collection of
induced pluripotent stem (iPS)
cells in juvenile Batten disease.
iPS cells are produced by reprogramming skin cells into brain
cells. In other words, iPS cells
will give researchers the first
opportunity to watch juvenile
Batten disease develop directly in
human brain cells. Beyond Batten
Disease Foundation collected the
samples needed to complete the
collection at the Batten Disease
Support and Research Association’s Annual Family Conference.
Garland and Christiane Benson visiting Dr. Marco Sardiello’s laboratory at NRI.
22
RESEARCH STRATEGY
RESEARCH STRATEGY
BECAUSE YOU have responded to what is
is
and done what
, we are positioning ourselves to accomplish the
.
Science is moving at an incredibly rapid pace, and BBDF is doing everything
it can to harness the potential of new discoveries and apply them to Batten
disease. Many of the things we thought were impossible seven years
ago have been accomplished. As we look forward, we see possibilities
where before there were none. Truly, scientific progress provides a
BBDF RESEARCH IMPACT
ONE YEAR AGO
3
drug compounds under consideration
TODAY
6
solid basis for our hope for the future.
“New technologies appearing in just the last 10 years may make the impossible, possible.”
– Michelle Hastings, PhD, creator of antisense and exon-skipping drugs for CLN3 disease,
is working with corporate and private sponsors to develop this approach as a treatment for JNCL.
drug compound options evaluated
by industry partner Evotec and 2 lead
candidates chosen for treatment
TO CONTINUE our quest to make the
0
0
1
pharmaceutical companies with
programs in Batten disease
large-scale, genetically-diverse Batten
human brain cell platform for discovery
and drug testing
promising approach to treatment for
juvenile Batten disease
3
1
4
pharmaceutical companies with active
programs or programs under development
, our strategy is to:
Discover new drug targets and medicines for
treating Batten
large-scale, genetically-diverse Batten
human brain cell platform for testing drug
safety and efficacy
Pursue new avenues of research with potential
for a cure
OUR FOCUS AND CRITICAL
FUNDING NEEDS OVER THE NEXT
12 MONTHS ARE:
•Validate two of six lead drug compounds and prepare for FDA approval to conduct clinical trials
•Develop tools, such as biomarkers and animal models for
continued understanding of juvenile Batten disease and
the identification of new medicines to treat the disease
Validate all existing and emerging discoveries
promising approaches for treatment and
possibly a cure
according to pharmaceutical industry standards
Establish resources, gather expertise and meet
the criteria necessary to receive permission from
the FDA to conduct clinical trials
•Complete development of the human brain cell
platform with NYSCF
•Coordinate international patient registries to prepare for clinical trials in Batten disease
•Advance newly discovered approaches to treating Batten
However, success comes at a price. As we move through these
steps collecting data needed to attract industry partners willing
to support clinical trials, the process will become more and
more expensive. Due to this, our need for funding is going
to increase.
We believe we can make the
. Stay with us as we bring you more exciting
news on our programs, as well as those of our colleagues
and partners.
25
A MOTHER’S STORY
A MOTHER’S STORY
A MOTHER’S STORY
by CHARLOTTE BENSON
What started as a response to do what is
has become a beautiful picture of what is
Have you ever wondered if you are relevant, significant, or if anything you do
really matters? Sometimes I get moving
so fast, occupied with my daily activities,
and whirling in a million directions, that I
wonder at the end of the day, if any of it
really mattered...does anything I do count?
I received a card in the mail the other
day from Whitney, a childhood friend, and
the cover read:
“Start by doing what’s necessary;
then do what’s possible; and suddenly
you are doing the impossible.”
– Saint Francis of Assisi
That gave me pause for reflection because
certainly Craig and I know that Beyond Batten Disease Foundation was created by a
“necessary” response to give hope to our
child, Christiane. What came next was the
“possible” with the creation of the foundation and the extraordinary contributions
of our friends and community. While our
destination is certainly to accomplish the
”impossible,” what’s striking to me is how
amplified that concept becomes when an
entire community is simultaneously contributing to that phenomena.
I never think of what I do in a day being
amplified by what someone else may be
doing while whirling through their day. I never
think about how my seemingly small accomplishments may be contributing to a bigger
picture and perhaps an incredible feat.
What a notion! When you have multiple
people doing what is necessary, then doing
what is possible, suddenly you have the
collective potential to do the impossible.
Not only has that been the case with
our foundation and its mission, but most
26
, and
now the child we thought would never learn to read has
accomplished what we once thought to be
recently, I have seen that same principle
manifest itself in the culture surrounding
Christiane. Batten disease is a neurodegenerative condition that causes seizures,
blindness, cognitive and physical decline
and is terminal by the late teens or early 20s.
There is currently no medical treatment or
cure. What could one person possibly do
to make that diagnosis better? You might
not think there is much, but when you see
the collective effort of individual people
responding simply to a necessity by doing
what is possible, you begin to then see what
is nothing short of a miracle.
A couple of weeks ago, we had Christiane’s annual visit with her ophthalmologist
to assess her vision and see what changes
have occurred. Last year, we received the
very good news that Christiane’s vision had
only decreased marginally in one eye and
this year her vision was virtually unchanged
since last year! This is more than we could
have possibly hoped for. When I told the
doctor about the nutritional supplements
we give Christiane, she said that she never sees this sort of stabilization in Batten
patients and then she asked who our nutritionist was. I could hardly wait to call Richard Abdo, our nutritionist, and tell him the
good news. He has done a phenomenal
job addressing the effects of Batten disease
through Christiane’s diet and supplementation. Richard has never had another patient
with Batten disease, but applies what he
does know about nutritional support for her
.
brain based on other neurodegenerative
conditions he has treated. Just by knowing
what is necessary and doing what is possible, he is making an indelible impact on
Christiane’s life by improving and extending
her quality of life.
In addition to the support Christiane is
getting nutritionally, she is surrounded by
an incredible Special Education team, family
friends, tutors and teachers of all sorts who
encourage her learning and create new opportunities for her to thrive, by simply doing
what they know to be possible. They are fluid
and flexible and willing to explore the impossible with every challenge Christiane faces.
As Christiane began losing her vision, my
dear friend Cherie sent her a Nook, which is
an audio device that reads books aloud. The
intent was for her to learn through reading
without having to struggle to see through
one spot in her left eye and be challenged
phonetically by every word. As her vision
declined, we removed the academic goal
through Special Education for her to read
in a conventional way and became solely
focused on her ability to learn. Two mothers
and a team of teachers responded by simply knowing what was necessary and then
doing what was possible. Once we allowed
all of her reading to be accessed audibly,
her learning skyrocketed. At the beginning
of this year, Christiane was assessed on a
4th grade level for vocabulary and reading
comprehension. Just last week she was reassessed and has now elevated to an 8th
grade level even though she is only in 6th
grade! What started as a response to do
what is necessary has become a beautiful
picture of what is possible, and now the
child we thought would never learn to read
has accomplished what we once thought
to be impossible.
I always thought that playing the piano
would be a great tool and a natural place
for Christiane to explore through touch and
sound and have the opportunity to express
herself through music. We found the perfect
teacher, but after many lessons, Christiane
began to refuse practicing, digging her
heels in and absolutely refuting every attempt I made to try to help her learn her
assignments. I don’t quit easily, but I finally
surrendered with a phone call to her teacher
saying that I thought it was time to give up
on piano as all of my efforts to encourage
her to play seemed to be in vain.
To my surprise, her teacher, Mrs.
McHorse, so sweetly but firmly said, “Well,
we just need to try something else………
but she can’t quit.” Those words, “she can’t
quit” echoed like music to my ears and
I thought, “I love this woman; she’s got
gumption and a whole repertoire of possible.” For the next couple of weeks, Mrs.
McHorse came to our house to add an extra
lesson. Slowly, but surely, Christiane came
around and began enjoying playing the
piano and now takes pride in performing
for her grandparents.
I believe that music is wonderfully enriching for the brain and the combination of all
these activities are helping Christiane thrive
by staying engaged in a multitude of ways.
I am awed by how a simple collection of
people, doing simple every-day tasks, can
have a monumental collective effect on my
child. I wonder if any of them ever doubt at
the end of a hard day, if anything they do
matters or counts? I wonder if they ever get
lost in the mundane decisions, minutiae and
ordinary tasks of a day and ponder whether
or not they are significant or relevant. All
of these people contribute because they
recognize what is necessary for a child who
Christiane Benson
has special needs. Individually, a group of
people, who don’t even know each other,
simply do what they know to be possible
and are unknowingly making an impossible
difference in Christiane’s life.
I am inspired by their devotion, and now
remind myself that although my ordinary
daily routines at times seem fruitless, I must
continue to do what is necessary, no matter
how small, and do what is possible. There
is also a new appreciation that I am only a
small part of a much bigger picture, and
there is purpose to my seemingly routine
activities. After all, the simple act of a friend
sending a card has inspired and created a
new awareness for me, and perhaps now
also for you. And, what’s more, through
Christiane’s own belief in what is possible,
I find myself taken by her confidence and
belief that anything is possible.
Last month, Christiane came home from
school and pulled out a yellow sheet of
paper from her backpack announcing that
she was going to try out for cheerleader.
I wasn’t completely sure how that would
work out for a kid with very little vision,
but she had her sights firmly set on those
pom-poms and short skirt and absolutely
no interest in conversations about possible
disappointment should it not work out. She
never wavered in her decision, so despite
any reservations that I had, we encouraged
her to follow her dreams. For the next two
weeks, she spent every day after school
practicing her sideline chant and cheer.
She told me that the coach told her that
she could just clap in parts if she got stuck
during try outs and that was going to be
her trick to persevere through any difficulty.
The announcement day finally arrived and
Christiane had, in fact, made cheerleader.
The excitement in her twinkling eyes and her
contagious broadening smile as she heard
the good news will be treasured among my
favorite memories. We were delighted for
her of course, but mostly inspired by her
own belief in what was possible.
And, after it was all over, I couldn’t help but
ask: “Christiane, what would you have done if
you hadn’t made cheerleader?” She looked
up at me and dryly said “hmm……probably
golf. Have you ever seen me hit a 7 iron?”
27
DONORS
2014-15 DONORS
BEYOND BATTEN DISEASE FOUNDATION would like to recognize and thank those who supported us between July 1, 2014
and June 30, 2015. Because of your support, we are suddenly doing the
. BBDF makes every effort to ensure the
accuracy of your listing. Please email any changes or corrections to [email protected].
1379 Family Sports Shop
Ms. Carla Allen
Mr. Wayne Arnett
Ms. Stephanie Balian
Ms. Amy Abbonizio
Mr. Mark Allen
Mr. Kurt Arnst
Mr. Mark Ball
Mr. George Ables, Sr.
Mrs. Karen Allen
Mrs. Kathy Artino
Mr. Sam Ballard
Mr. Don Abston
Mr. David Alley
Mr. and Mrs. Keith Ashley
Dr. Brad Baltz
Mr. and Mrs. Michael D. Acuff
Dr. Jason Alison
Ms. Amy Ashmore
Mr. Michael Bame
Mr. and Mrs. David Adams
Mr. and Mrs. Royer Allman
Mr. and Mrs. Bob Askew
BancVue
Mr. John Adams
Ms. Karen Ally
Ms. Kimberley Aslanian
Mr. Bryan Banek
Ms. Brittany Adams
Mr. and Mrs. Michael Alston
Mr. Robert Aspinall
Miss Krista Bangs
Mr. Jason Adams
Mr. and Mrs. Charles Alvord
Mrs. Ariana Alter-Derr
Ms. Alexandra Bangs
Mr. Allen Adams
American Endowment Foundation
Mr. and Mrs. Marcus C. Atnipp
Bank of America Charitable
Mr. and Mrs. Reid Adler
Americanized Benefit Consultants
Mr. and Mrs. Jase Auby
Foundation
Mr. and Mrs. Randall Adoor
Mr. and Mrs. Larry Amos
Mr. and Mrs. Ed Auler
Mr. Jimmy Bankston
Mr. and Mrs. Richard Agnew
Ms. Karen Amundson
Dr. and Mrs. Mark Auler
Mr. Bill Bannerman
Ms. Linda Agnew
Mr. and Mrs. Jarrett Anderson
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Mr. Jason Anderson
Mr. Chris Ault
Ms. Donna Banzhaf
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Mr. Jon Aune
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Mr. and Mrs. O. Jamil Alam
Mr. and Mrs. Mike Anderson
Mr. Thomas Ausley
Ms. Judy Barbour
Ms. Nicole Alberico
Ms. Lissa Anderson
Ms. Kelly Ausley-Flores
Ms. Carrie Barchanowicz
Mr. Donald Albers
Mr. James Anderson
Austin Community Foundation
Mr. and Mrs. Ron Barclay
Mr and Mrs. Rob Albertson
Ms. Allison Anderson
Austin Ridge Riders
Mr. and Mrs. Fred Barclay
Mr. and Mrs. Lee Alcock
Mr. and Mrs. Jeffrey Anderson
Austin’s Automotive Specialists
Mr. and Mrs. Princeton Bardwell
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Mr. and Mrs. Jerry Andrus
Mr. and Mrs. Jeff Autrey
Mr. and Mrs. Matthew Barker
Mr. Molly Alcott
Mr. Rolando Ang
Mr. John Avery
Ms. Joy Baker
Mr. and Mrs. Dave Alcott
Mr. Rick Antona
Mr. Matthew Avila
Mr. Sean Barna
Mr. Heriberto Aleman
Mr. Grant Applegate
Mr. and Mrs. Michael Aviles
Ms. Connie Barna
Mr. and Mrs. Wick Alexander
Mr. Dean Appling
Mr. Pablo Aviles
Ms. Kelly Barna
Dr. and Mrs. C. Moody Alexander
Mr. Max Appling
Mr. and Mrs. Jason Baadsgaard
Ms. Patricia Barnes
Ms. Andrea Alexander
Mr. and Mrs. Gene Arant
Mrs. Amanda Badneck
Mrs. Heather Barnes
Mr. Larry Alexander
Mr. and Mrs. Michael Arendes
Mr. and Mrs. Rami Badran
Mr. Anthony Barnes
Ms. Carol C. Allbritton
Ms. Jennifer Argoe
Ms. Lisa Baeckel
Mr. and Mrs. Jeff Barnett
Mr. and Mrs. Lee Allbritton
Mr. and Mrs. David Argueta
Mr. and Mrs. Colin Bagwell
Mr. Ted Barnhill
Ms. Teil Allen
Mr. and Mrs. Brandon Armbruster
Mr. and Mrs. Christopher Bailey
Ms. Carolyn Barr
Mr. and Mrs. Jeffrey Allen
Mr. Ron Armbruster
Mr. J. Baker
Mr. Mark Barrett
Mr. and Mrs. Michael Allen
Armbruster Consulting
Mr. and Mrs. Danny Baker
Mr. and Mrs. David Barta
Ms. Ginna Allen
Mr. Joseph Armstrong
Mr. Allen Baker
Ms. Kelly Barthelemy
Mr. and Mrs. Ty Allen
Ms. T.I. Armstrong
Mr. Darryl Baker
Mr. Peter Bartlett
Ms. Janet Allen
Mrs. Kellie Armstrong
SNARF’S Sandwiches
Mr. and Mrs. Dan Bartlett
Mr. Dalton Allen
Ms. Susan Armstrong
Mr. Rick Bal
Mr. and Mrs. Chad Bass
Ms. Teri Allen
Mr. and Mrs. Keith Armstrong
Dr. and Mrs. Jason Balette
Mr. and Mrs. William M. Bass
29
DONORS
DONORS
Mr. and Mrs. Michael Bass
Ms. Kimberly Berriochoa
Mr. Noah Blakely
Ms. Kathleen Bosch
Mr. and Mrs. Adam P. Brown
Ms. Ginny Camp
Ms. Amy Chamberlain
Mr. and Mrs. David Clifton
Ms. Maudie Bate
Mr. and Mrs. Stephen Berry
Ms. Jennifer Blakely
Mr. Daniell Boss
Mr. and Mrs. Jay Brown
Ms. Leigh Camp
Mr. and Mrs. Thomas Champlin
Mr. Brian Clifton
Ms. Stacey Bates
Mr. Bob Berry
Mr. and Mrs. Steve Blanchard
Mr. and Mrs. Dennis Bossi
Ms. Erika Brown
Mr. Martin Camp
Ms. Laura Chandler
Mr. and Mrs. Mike Clinchard
Mr. and Mrs. Walter Batiansila
Mr. Greg Berry
Mr. and Mrs. Timothy Blanchard
Mr. Michael Bostick
Ms. Lindsey Brown
Mr. and Mrs. Eric Camp
Dr. and Mrs. Mark Chandler
Mr. and Mrs. Rodney Clinkenbeard
Mr. and Mrs. Brandon Batiansila
Mr. George Berry, Jr.
Mr. and Mrs. Robert Blanke
Ms. Lynn Boswell and
Ms. Kelly Bruno
Mr. Christopher J. Campana
Ms. Ermine Chandler
Mr. and Mrs. Joel Cloud
Baton Rouge Area Foundation
Ms. Stacy Berwick
Ms. Emily Bledsoe
Mr. Burton Baldridge
Mr. and Mrs. Joel Bryan
Ms. Robin Campana
Ms. Katy Chang
Mr. and Mrs. Jason Clow
Mr. Andrew Batterton
Mr. and Mrs. Mike Beshara
Mr. and Mrs. Fred Bleeke
Mr. and Mrs. Brent Boudreaux
Mr. David Bryant
Mr. and Mrs. Bryan Campbell
Mr. and Mrs. David Chao
Mr. Michael Coburn
Mr. Alan Baum
Mr. and Mrs. Paul Bessette
Mr. and Mrs. John Blitch
Ms. Betty Boudreaux
Mr. and Mrs. Scott Bryant
Ms. Roberta Campbell
Mr. and Mrs. Brent Chappell
Mr. and Mrs. Jeff Coburn
Mr. Nathan Baumeister
Mr. Clint Best
Ms. Janie Blum
Mr. Jason Boulette
Mr. Scott Bryant
Ms. Stefani Campbell
Ms. Marilyn Chapple
Ms. Danielle Cody
Ms. Elizabeth Bayer
Ms. Lynda Bethel
Ms. Maggie Bobileff
Mr. and Mrs. Kevin Bourbonnais
Ms. Ellen Bryant
Mr. Tim Cancila
Ms. Allison Chase
Ms. Sharon Cohn
Mr. and Mrs. Shane Bayless
Mr. and Mrs. Danner Bethel
Ms. Cyndi Bock
Mrs. Kathryn Bowers
Mr. and Mrs. Brandon Brydson
Mr. Steven Canner
Mr. and Mrs. Steve Chauffe
Ms. Deborah Coldwell
Mr. and Mrs. Barry Beacher
Ms. Yvonne Bezmalinovic
Ms. Jan Bock
Mr. and Mrs. Bill Bowles
Buchholz High School
Mr. Renee Cannon
Ms. Emily Cunningham and
Mrs. Christine Cole
Mr. and Mrs. Jon Beamesderfer
Mrs. Leela Bhuyan-Duncan
Ms. Laura Boelts
Mr. Jason Bowles
Mr. Roy Buchler
Mr. Brad Cantwell
Mr. Larry Chauvin
Mr. Sean Coleman
The Bear Media
Mr. Jon Bickerstaff
Mr. Matt Boles
Ms. Kathryn Bowser
Mr. and Mrs. Eric Buehler
Mr. Brad Carlson
Ms. Andi Cheatham
Mr. and Mrs. Mark Colerick
Ms. Stephanie Beard
Mr. Dale Biermann
Mr. and Mrs. Scott Bolin
Ms. Lindsay Boyce
Mr. Brian Buentellosrock
Mr. Keith Carlson
Mr. Pedro Checo
Mr. Scott Collier
Mrs. Louise Beard
Ms. Kathryn Boyd
Mr. and Mrs. Kevin Buffington
Mr. Micah Carlson
Ms. Stacy Cheregotis
Mr. and Mrs. Tim Collins
Ms. Cynthia Beardall
Mr. Padraic Boyle
Mr. Lewis Buillon
Mr. John Carly
Ms. Anu Cherukuri
Ms. Lesley Collins
Mr. Patrick Beathard
Mr. and Mrs. Lance Bozman
Dr. and Mrs. John Bulovas
Mr. Chris Carmouche
Mr. and Mrs. Bryan Chester
Mr. Andrew Collyer
Ms. Amy Brackett
Mr. and Mrs. Dick Bundy
Ms. Jenny Carney
Mrs. Aimee Chester
Mr. Gregg Colschen
Mr. Chris Bracksieck
Mrs. Danielle Burfield
Mr. Stephen Carney
Mrs. Lori Chibib
Dr. and Mrs. Ryan Comeaux
Mr. Forrest Bradley
Ms. Jennifer Burger
Ms. Charlotte Carothers Lowder
Mr. Richard Childers
Community Foundation of Mr. and Mrs. Owen J. Bradley
Mr. and Mrs. Burgett
Mr. and Mrs. Scott Carr
Mr. and Mrs. Cullen Childress
Acadania
Ms. Ann Dee Brahms
Ms. Gretchen Burkholder
Mr. Brett Carraway
Ms. Carlisle Childress
Ms. Lee Ann Concienne
Mr. and Mrs. Brandon Brame
Mr. Josh Burland
Mr. and Mrs. Chris Carrigee
Mr. and Mrs. Chuck Childress
Ms. Tara Condon
Mr. and Mrs. T.M. Branch
Ms. Susan Burland
Ms. Morgan Carriger
Mr. and Mrs. Brian Chimenti
Ms. Judy Conley
Mr. and Mrs. Ryan Brandt
Mr. and Mrs. Burmeister
Ms. Melinda Carroll
Ms. Leigh Chiu
Mr. Brendan Conley
Mr. Scott Brandt
Mr. Mike Burnett
Mr. Brian Carroll
Ms. Shiela Choffe
Ms. Michelle Connell
Mr. and Mrs. Chad Brandt
Ms. Phoebe Burns
Mr. and Mrs. Brent Carruth
Ms. Jasmine Choksi
Ms. Kara Connell
Braram Studios, LLC
Mr. Garrett Burris
Ms. Bess Carsner
Mr. and Mrs. Neelan Choksi
Mr. and Mrs. Greg Connor
Mr. and Mrs. Travis Brashear
Ms. Ruthie Burrus
Mr. and Mrs. Michael Carson
Mr. Aaron Christ
Ms. Madi Cook
Benevity Community Impact Fund
Mr. Brandon Brattlof
Mr. Bob Burton
Mr. Ed Carter
Mr. and Mrs. Joseph Christaldi
Mr. Gareth Cook
Ms. Angela Benkendorfer
Ms. Mary Braun
Mr. and Mrs. Devin Burton
Mr. Rick Carter
Chubb Federal Insurance
Mr. Casey Cook
MEMORIAL GIFTS
Mr. Jake Beck
Ms. Cindy Becker
TO HONOR his legacy,
Dr. L. Stayton Halberdier,
Jr.’s family partnered with
The Will Herndon Research
Fund at Beyond Batten
Disease Foundation (HOPE).
In lieu of flowers, contributions were made in his
memory to support Alzheimer’s and Batten disease
research projects. This enabled collaboration among
similar neurodegenerative diseases.
Mrs. Susan Becker
Ms. Kimberly Beckham
Mr. and Mrs. Martin Beirne
Mr. Michael Beispel
Mr. and Mrs. Michael Bell
Bella Destino LLC
Mr. Timo Bello
Mr. Hugo Bello
Ms. Shelley Belvin
Mr. Andrew Benedict
30
Mr. Lloyd Benkendorfer
Mr. and Mrs. Pete Biesada
Ms. Leslie Bollier
Bravelets LLC
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Company
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Mr. and Mrs. Bennet
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Mr. Kyle Bollman
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Mr. Sheldon Busch
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Mr. and Mrs. G. Russel Cook
Mr. and Mrs. Kyndel Bennett
Ms. Tammy Biles
Mrs. Monica Bomkamp Enia
Mr. Curt Breaux
Mr. Philip Busker
Mr. and Mrs. Mark Cassidy
Mr. and Mrs. Chris Chuter
Mr. and Mrs. Chris Cool
Mrs. Robin Bennett
Mr. Tom Bilisoly
Mr. Carey Bond and
Mr. and Mrs. Kerry Brennan
Mr. Bruce E. Butler
Ms. Brianne Cassidy
Mr. Christopher Ciani
Mrs. Andrea Cooley
Ms. Deborah Bennun
Mr. and Mrs. Todd Binet
Mr. Henry Lambert
Mrs. Sharon and Mr. Wayne Breske
Mr. and Mrs. Stephen Butter
Ms. May Castro
Ms. Haley Cihock
Mr. and Mrs. Coombes
Mr. and Mrs. T. Craig Benson
Ms. Susan Binford and
Mr. Lucien Bone
Mr. Christopher Brewer
Mr. and Mrs. Steve Butter
Mr. and Mrs. Bob Catani
Ms. Sue Claar
Mr. and Mrs. Robert Cooper
Mr. Blaze Benson
Ms. Lynne Wiggins
Ms. Stephanie Bonifant
Mr. and Mrs. Lawson Brice
Mr. and Mrs. Zane Butter
Mr. and Mrs. Anthony Catania
Mr. and Mrs. Brad Clark
Mr. and Mrs. Andrew Cooper
Mr. Mark Bentley
Mrs. Kimberly Bini
Ms. Lois Bonifant
Brigham Family Foundation
Ms. Hillary Bynum
Mr. and Mrs. Robert Cauthen
Mr. John Clark
Mr. Jim Cooper
Mrs. Bette Benton
BioMarin Pharmaceutical, Inc.
Ms. Anna Bonner
Mr. Thomas Brimacombe
Mr. and Mrs. Jerry Byrd
Cavan Rock LLC
Mr. and Mrs. Terry Clark
Ms. Emily Cooper
Mr. and Mrs. Britt Benton
Ms. Shelley Black
Mr. and Mrs. Mark S. Bonney
Mr. Ted Briscoe
Ms. Kelsey Cahill
CAVU Media
Ms. Paige Clark
Ms. Katy Copley
Mr. Ben Bentzin
Mr. and Mrs. Bo Blackburn
Ms. Katy Booher
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Mr. and Mrs. Michael Cain
Mr. and Mrs. Gerard Cecci
Mr. Robert Clark
Ms. Krysti Corbett
Mr. and Mrs. Casey Berger
Mr. Tom Blackwell
Ms. Lois Booker
Mr. and Mrs. Vaughn Brock
Mr. Chuck Cain
Mr. and Mrs. Chad Cedotal
Mr. and Mrs. Matthew Clark
Ms. Suzanne Cordes
Ms. Pamela Bergeson
Mr. Dennis Blaine
Mr. Christopher Boone
Mrs. Elizabeth Brock
Mr. Adam Caldwell
Ms. Amy Cedrone
Ms. Joan Clark
Mr. Stephen Corley
Ms. Tabitha Bergman
Mr. and Mrs. Beau Blair
Ms. Pamela Booton
Mr. Bob Brooks
Mr. and Mrs. Paul Cameron
Mr. Jamie Celorio
Ms. Angel Clark
Dr. Angela Coscio and
Mr. John Bergquist
Mr. and Mrs. Jason Blake
Mr. Keith Bormann
Ms. Gail Brookshire
Ms. Tessa Cameron
CenterPoint Energy
Mr. and Mrs. Paul Clarke
Mr. Mark Coscio
Mr. Arnold Bergquist
Mr. and Mrs. Tom Blake
Mr. Al Bormann
Ms. Mary Broussard
Mr. and Mrs. Roy Camp
CenturyLink
Ms. Margaret Clarke
Mr. and Mrs. Sean Costa
Mr. Marcos Bermudez
Mr. Klayton Blakely
Ms. Margaret Borth
Mrs. Danielle Brown
Ms. Kay Camp
Ms. Maria Chacon
Ms. Susan Claunch
Ms. Mary Ann Costello
31
DONORS
DONORS
Ms. Joan Costello
D’Agostino
Mr. and Mrs. Oliver de Boer
Mr. and Mrs. Steven Didion
Mrs. Elena Duarte
Ms. Jessica Ellis
Mr. Carl Faetche
Mrs. Sondra Fish
Mr. James Cotter
Mr. Christopher D’Agostino
Mr. Gregory de Hart
Mr. and Mrs. Sammy Diesi
Mr. Wes Duff
Mr. and Mrs. Byron Ellis
Ms. Deborah Faitt-Esker
Mr. Mitchell Fish
Mr. James Cotton
Mr. Stephen D’Amico
Ms. Laura De La Garza
Ms. Nicole Dieste
Ms. Janice Duff
Mr. and Mrs. Jason Ellis
Ms. Cindy Falbo
Mr. and Mrs. Doug Fisher
Ms. Rachel Coulter
Mr. Dave D’Andrea
Mr. Martin De La Torre
Mr. and Mrs. Carey Dietert
Ms. Kay Duff
Dr. Stephanie Ellis
Mr. and Mrs. Troy Falterman
Dr. Ray Fitzgerald
Mr. Kevin Coupe
Mrs. Michelle Dabundo
Mr. Carlos de la Vega
Mr. John Dietz
Ms. Lisa Duffey
Ms. Emily Ellis
The Rabb Family
Mr. Brian Fitzgerald
Mr. and Mrs. Allen Cowden
Mr. and Mrs. Brian Dafferner
Mr. and Mrs. Herve
Mr. James Dietz
Mr. Terry Duffy
Mr. and Mrs. Corey Ellsworth
Cook/Thornton Family Reunion Mr. Mark Fitzgerald
Ms. Shawna Cox
Mr. and Mrs. Charles Dagenais
De Laage de Meux
Mr. and Mrs. Michael Dietz
Mr. and Mrs. Forrest Duke
Ms. Christine Elmendorf
2015
Ms. Jennifer Fitzgerald
Mr. and Mrs. Glenn Cox
Mr. and Mrs. Michael D’Alessandro
Mr. Henry de Montebello
Ms. Wanda Dinsmore
Mr. and Mrs. William Dunaway
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Family Sports, Inc.
Ms. Elizabeth Fitzsullivan
Mr. and Mrs. Wesley Coyle
Mr. and Mrs. Paul Damico
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Ms. Wendy Dipietro
Ms. Beverly Dunaway
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Ms. Nicole Farese
Ms. Barbara Flagella
CR Bard Foundation
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Ms. Pandora Deam
Ms. Colleen Dippel and
Mr. Nick Dunbar
Ms. Charley Ann Emshwiller
Mr. and Mrs. Bill Fargo
Mr. and Mrs. Michael Flagella
Craig Eiland Law Offices
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Mr. Greg Farrell
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Ms. Jessica Crecco
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Mr. and Mrs. Craig Deats
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Dr. and Mrs. J. Curtis Creed
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Mr. Richard Dupont
Mr. and Mrs. Gustavo Gomez
Mr. and Mrs. Christian Creed
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Mr. and Mrs. Todd Durkee
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Mr. and Mrs. Jason Cribbs
CORPORATE MATCHING
Mr. and Mrs. David Doggett
Mr. and Mrs. Marshall Durrett
Ms. Jaye Lynn Flowers
Mr. and Mrs. Patrick Doherty
Ms. Sandra Dwan
YOU MAY BE ABLE TO DOUBLE your donation to
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company matches employee contributions.
http://beyondbatten.org/donate/corporatematching-donations/
Mr. and Mrs. Doke
Mr. Brian Dwyer
Mr. Gary Dolch
Mr. and Mrs. Kelly Dwyer
Mrs. Astrid Domenik
Mr. Rod Dwyer
Mr. Darren Domilese
Mr. and Mrs. Kevin Dwyer
Mr. and Mrs.Charles G. Dominguez
Ms. Noel Dybdal
Mr. and Mrs. Charley Donaldson
Mr. and Mrs. Chet Dye
Ms. Carolyn Donovan
Mr. and Mrs. Merritt P. Dyke
Mr. Gene Foltyn
CT Concrete Construction
Mr. Kevin Donovan
Dynamic Analysis Group LLC
Mr. and Mrs. Bruce Forbes
Mr. and Mrs. Martin Cude
Mr. and Mrs. John Donovan
Mr. Bob Earl
Ms. Ashley Crider
Mr. Phil Crisp
Mr. and Mrs. William Croom
Mr. and Mrs. Holcombe Crosswell
Mr. Wayne Stephens
Mr. Lewis Crow
Ms. Allison Crutchfield
Crystal Beach Plaza LLC
32
”By utilizing my company’s
matching program, I am able
to make a larger impact and
provide hope for my friends
and neighbors, the Bensons.”
– Carolyn Bryant
Mr. and Mrs. Chris Flynn
Mr. Mark Flynn
Fog Break, Ltd.
Ms. Sarah Fogel
Ms. Angie Fogleman
Ms. Bridget Foley
Ms. Lauren Foley
Mr. and Mrs. Curtis Ford
Mr. and Mrs. Marty Cude
Mr. and Mrs. Robert Dascal
Ms. Brandi Decker
Mr. and Mrs. Mike Donovan
Ms. Martha Earle
Ms. Fran Ephgrave
Mrs. Amy Fast
Mrs. Courtney Fortney
Ms. Maggie Culbertson
Mr. and Mrs. Bill Davenport
Ms. Mollie Deegan
Mr. and Mrs. Peter Donovan
Mr. and Mrs. J. Hunter East
Mrs. Michael A. Epton
Ms. Nicole Faulk
Mr. Rob Fortunato
Mr. Aaron Cullers
Mr. and Mrs. John Daves
Ms. Heather Deiderick
Mrs. Laura Dooley
Mr. and Mrs. Brandon Easterling
Mr. and Mrs. Stephen Erickson
Mr. David Faust
Mr. Neal Foster
Mr. and Mrs. Michael Cummins
Ms. Linda Daves
Mr. Joseph Deitz
Ms. Lisa Doornik
Mr. and Mrs. Steve Eckel
Mr. and Mrs. Stan Erwin
Mr. and Mrs. Josh Fayle
Mr. and Mrs. Dan Foster
Mr. Tom Cunningham
Mr. and Mrs. Raymond Daves
Ms. Nicole Dejulio
The Honorable Frank Dorian
Ms. Suzanne Edmiston
Mr. and Mrs. Roberto Espinosa
Ms. Leigh Fedor
Mr. and Mrs. Kyle Foster
Dr. and Mrs. Kelly Cunningham
Mr. and Mrs. Harold Daves
Mr. and Mrs. Stephen Dell
Mr. Peter Dornsife
Mr. and Mrs. Ryan Edone
Ms. Susan Espinoza
Ms. Kim Fellows-Peake
Mr. Kyle Foster
Ms. Val Curl
Mr. and Mrs. Scott Daves
DEMO Partners
Ms. Carolyn Dorros
Mr. and Mrs. Johnny Edson
Ms. Carlotta Esposito
Mr. and Mrs. Torben Fenske
Ms. Betsy Foster
Ms. Jessica Curran
Mr. Thomas E. Davey
Ms. Darby Denison
Mr. John Doucet
Mr. and Mrs. Jeff Edwards
Mr. Roy Essakow
Ms. Stacey Fenton
Mr. and Mrs. Jay Foster
Mr. and Mrs. Brian Curran
Mr. Glenn Davis
Mr. and Mrs. Colby Denison
Ms. Jean Doughtie
Mr. and Mrs. Kevin Egan
Ms. Jill Essakow
Mr. and Mrs. David Ferdman
Mr. Roger Fowler
Mr. Tracy Curran
Ms. Angelique Davis
Mr. and Mrs. William P. Denison
Mr. and Mrs. Charlie Dovel
Mrs. Jena Ehlinger
Mr. Jeffrey Essakow
Ms. Frances Ferguson
Mr. and Mrs. Bill Fowler
Mr. and Mrs. Jason Currie
Mr. David Davis
Mr. and Mrs. Chris Denison
Mr. and Mrs. Kelly Dowell
Mr. John Ehrle
Ms. Becky Estes
Col. and Mrs. Charles H. Ferguson
Mr. Adrian Fowler
Ms. Kine Currier
Mr. and Mrs. Bradley Davis
Denison & Denison
Ms. Pam Downs
Mr. and Mrs. Mitch Eichelberger
Mr. Parker Estes
Ms. Angela Fernandez
Mr. and Mrs. William Fowler
Mr. Jay Curry
Mr. and Mrs. Mark Davis
Mr. James Depriest
Ms. Kristen Doyle
Mr. and Mrs. Brad Eichler
Mr. and Mrs. Brad Ethridge
Mr. and Mrs. Melvyn Fernandez
Mr. Nick Fox
Mr. and Mrs. Jeffrey H. Curtis
Mr. Bryan Davis
Ms. Lee Desadier
Mr. and Mrs. Richard Doyle
Ms. Jaclyn Eickenhorst
Ms. April Eubanks
Ms. Nicole Fernandez
Mr. and Mrs. Jon Foytlin
Mr. Jimmy Cusack
Mr. and Mrs. Bryan Davis
Mr. Bill Detamore
Ms. Susan Doyle
Dr. and Mrs. Dominic Eisinger
Mr. Norm Evans
Fidelity Charitable Gift Fund
Mr. David Frager
Ms. Joanne Cusack
Mr. Dallas Davis
Mr. and Mrs. Eric DeYoung
Mr. and Mrs. Robert Dozier
Mr. James Elam
Mr. and Mrs. Brian Evans
Ms. Elaine Field
Ms. Angie Franco
Mr. Brian Cussimanio
Mr. Steve Davis
Ms. Puneet Dhillon
Ms. Donna Dozier
Mr. David Elkin
Ms. Linda Evans
Fig Tree Cafe
Ms. JoAnne Franklin
CustomInk LLC
Dr. Sakina Davis
Ms. Rajal Dhruva
Mr. Cody Draper
Mr. Justin Ellerton
Ms. Courtney Ewing
Dr. and Mrs. Gerald Fincken
Mr. Brad Fraser
Mr. and Mrs. Joe Cutillo
Ms. Casey Davis
Mr. and Mrs. Tony Dicello
Mr. and Mrs. Chad Driskill
Mr. Caleb Ellington
Mr. and Mrs. Monte Ezell
Mr. and Mrs. John Findlay
Ms. Luz Frau
Mrs. Carolyn Czubinski
Mr. and Mrs. Dan Day
Mr. and Mrs. William Dick
Ms. Janette Dry
Ms. Judy Elliot
Mr. and Mrs. Mark Ezell
Mrs. Selme Finnie
Ms. Stephanie Frazee
Mr. and Mrs. Christopher
Mr. James Day
Ms. Pat Dickey
Mr. and Mrs. Kenny Dryden
Mr. Byron Ellis
Mr. and Mrs. John Fackler
Ms. Susan Fischer
Mr. and Mrs. Matthew Frazier
33
DONORS
DONORS
Mr. Ruenell Frazier
Mr. and Mrs. William Geisler
Mr. Matthew Goff
Greater Houston Community Mr. and Mrs. Steve Hall
Ms. Jennifer Haussler Garing
Ms. Elizabeth Held
Ms. Lori Hickman
Ms. Renee Frederick
Mr. Robert Geller
Mr. and Mrs. David Gogineni
Foundation
Mr. and Mrs. Jeff Hall
Mr. Kenny Hawsey
Mr. and Mrs. Richard Heleniak
Ms. Cozette Hicks
Ms. Latosha Fredericks
Mr. Dan Gentner
Ms. Jennifer Goin
Ms. Therese Green
Mr. Craig Hall
Ms. Melissa Hayden
Ms. Nina Rowan Heller
Ms. Debbie Hicks
Ms. Cuneeda Freeman
Ms. Laura Gentner
Mr. and Mrs. Rod Gold
Mr. Ken Greenberg
Mr. and Mrs. Curt Halverson
Mr. and Mrs. Spencer Hayes
Ms. Jessica Henderson
Mr. Woody Hiebert
Mr. and Mrs. Jeff French
Ms. Karen Gentner
Ms. Anna Goldsmith
Ms. Jennifer Greenblum
Ms. Ashley Hamada
Ms. Kyra Hayes
Mr. Stuart Henderson
Ms. Eleanor Hiebert
Mrs. Marie French
Ms. Elizabeth Gentner
Mr. and Mrs. Goldsmith
Mr. Roger Green
Mr. and Mrs. Max Hambly
Mr. Kenneth Hayman
Mr. and Mrs. Rich Henderson
Mr. Kevin Hiegel
Mr. and Mrs. Ben Frishman
Genzyme Corporation
Mr. and Mrs. Larry Goldsmith
Mr. William Greenlee
Mr. Ed Hamel
Mrs. CJ Haynes
Ms. Lisa Henke
Ms. Pamela Hight
Ms. Jo Ann Friudenberg
Mrs. Karin Gerdts
Mr. and Mrs. Jay Goldstein
Mr. and Mrs. James Greenway
Mr. David Hamilton
Mrs. Freda Haynes
Ms. Courtney Henry
Mr. and Mrs. Sam Hildebrand
Mr. and Mrs. Jeremy Fruge
Ms. Deana Germany
Mr. Shane Gollahon
Ms. Stacy Greer
Mr. and Mrs. Tom Hamm
Mr. and Mrs. William Hayes
Ms. Charlotte Henshaw
Mr. Griffin Hill
Ms. Anne Fry
Ms. Karen Gernstein
Ms. Stacy Gomez
Mr. and Mrs. Matt Greer
Dr. and Mrs. Matt Hammitt
Mr. Joe Heacker
Mr. John Henshaw
Ms. Kathleen Hill
Ms. Amanda Fuller
Ms. Melinda Gesuale
Ms. Lucy Gomez
Mrs. Alison Gregory
Mr. Waddy Hammond
Ms. Judy Healey
Mr. Joshua Henshaw
Ms. Rachel Hill
Mr. and Mrs. Chris Fuller
Mr. John Ghezzi
Ms. Yvonne Gonzalez
Mr. Joseph Gregory
Mr. and Mrs. Eric Hammonds
Ms. Courtney Heard
Mr. Curt Hepp
The Hillcrest Foundation
Dr. and Mrs. Trey Fyfe
Mr. and Mrs. Corey Gibbs
Mr. and Mrs. David Gonzalez
Mr. and Mrs. Mark Greiner
Ms. Joan Hanak
Ms. Lisa Heard
Ms. Jennifer Herd
Mr. Bill Hines
Mr. Paul Gaddis
Mr. Evan Gremont
Ms. Rita Hancock
Mr. and Mrs. Travis Hird
Ms. Gloria Gaddis
Ms. Julia Grieco
Mr. and Mrs. Michael Hancock
Mr. Trent Hirsch
Mr. John Gaffney
Mr. Daniel Grier
Mr. and Mrs. Trey Hancock
Mr. Ed Grier
Mr. Richard Hanlon
Ms. Meredith Hanna
Mr. Tom Gaffney
STOCK DONATIONS
Ms. Marie Gaffney
DONATING STOCK is a wonder-
Mr. Achim Griesel
Ms. Kristie Gaines
ful opportunity to support a charity
Mr. Mike Griffin
Ms. Renee Hanna
Mr. John Gallimore
you care deeply about. To inquire
Dr. and Mrs. Donald Griffith
Mr. Daniel Hansen
Ms. Kim Gallogly
about donating stock, please contact
Ms. Mercedes Grifno
Development Board member and
Mr. and Mrs. Karl Hansen
Mr. David Grigsby
Mrs. Kim Hanson
Mr. and Mrs. Eric Grimbert
Mr. Erik Hanson
Mr. Chad Grimes
Mr. and Mrs. Ben Hanson
Mr. John Gandy
Ms. Elizabeth Grimm
Mr. and Mrs. Pat Haragan
Ms. April Garcia
Ms. Patricia Grob
Mr. Richard Hardin
Mr. Scott Grossfeld
Mr. Ed Hardison
Galloway, Johnson, Tompkins,
Merrill Lynch Senior Financial Advisor
Burr & Smith
Pam Staples at 512-380-4911.
Ms. Wilma Galvin
34
Mr. Charles Hirsch
”In order to maximize the
Ms. Jennifer Hiser
value of our gift, we chose
to donate stock instead of
cash to the Beyond Batten Disease Foundation.
An appreciated capital asset transferred directly to
a qualified charity is not
subject to capital gains
withholding and is simple
to convert into cash. All it took was a quick call to our
broker and we were able to give to a nonprofit organization that is close to our heart because of the Herndon
family and The Will Herndon Research Fund which
provides HOPE to Will and other children like him.”
Mr. Kai Ho
Mr. and Mrs. Kyle Hoegemeyer
Mr. Ryan Hoff
Ms. Shelly Hohmann
Hohmann, Taube & Summers, LLP
Mr. and Mrs. Richard Hojel
Ms. Katherine Holbrook
Mr. and Mrs. Chris Holland
Ms. Dee Holle
Mr. Rudy Garcia
Mr. Raynald Gignac
Ms. Jessica Gonzalez
Mr. and Mrs. Luis Garcia
Mr. Jake Gilbreath
Mr. Erick Gonzalez
Mr. Preston Grossling
Ms. Charlotte Hardwick
Ms. Tanya Gardner
Mr. and Mrs. Jag Gill
Ms. Kalli Gonzalez
Mr. Mark Guarino
Mr. and Mrs. Reg Hargrove
Ms. Maha Gargash
Mr. Newman Gill
Mr. Paul Gooch
Mr. and Mrs. Sean Guidry
Mr. Barry Harmon
Mr. Jay Garing
Ms. Drue Gillentine
Ms. Gail Goodman
Mr. and Mrs. Andre Guilbeau
Mr. Cole Harmonson
Mr. John Garland
Mrs. Norma Gillingwater
Mr. and Mrs. Sam Goodner
Ms. Donna L. Guinn
Mr. and Mrs. Richard Harper
Mr. and Mrs. Anthony Holt
Mr. and Mrs. Ron Garrett
Ms. Andrea Gillum
Mr. and Mrs. Keith Goodney
Gulf Coast Asphalt Company, LLC
Mr. and Mrs. Sam Harper
Ms. Natalie Holtgrefe
Ms. Ashley Garrett
Mr. and Mrs. Ferrante Gioioso
Ms. Jennifer Goodrum
Mr. Doug Guller
Mr. and Mrs. Robert Harrell
Mr. and Mrs. Paul Holubec
Mr. and Mrs. David Garrido
Mr. and Mrs. Francesco Gioioso
Mr. Grady Goodwin
Ms. Diana Gunnels
Mr. Andrew Harris
Mr. Tory Hearn
Heritage Title
Mr. Hans Holzmueller
Ms. Virginia Garrigos
P. Gioioso & Sons, Inc.
Mr. Aaron Googins
Mr. and Mrs. Robert Gunter
Mr. and Mrs. William Harris
Mr. Jason Hearnsberger
Mr. Anthony Hermans
Mr. and Mrs. BJ Honeyman
Ms. Nancy Garrison
Mr. and Mrs. Steve Gioioso
Mr. Kyle Gordley
Ms. Sarah Gutekunst
Ms. Stephanie Harris
Heartland Community Bank
Ms. Megan Hermis
Ms. Anna Hong
Mr. Daniel Garry
Mr. Nathan Glass
Mr. and Mrs. John Gordon
Mr. Bob Gutekunst
Mr. and Mrs. Brooks Harris
Heartland Foundation
Mr. and Mrs. Michael Hernadi
Mr. Kannon Hood
Mr. and Mrs. Randall Garver
Ms. Jill Glassco
Mr. Kevin Gorman
Ms. Carrie Gutekunst
Ms. Stacy Harris
Mr. Greg Heath
Mrs. Patricia Herndon
Mrs. Margaret Benson Hooder
Ms. Eva Garza-Nyer
Ms. Kelly Glavina
Ms. Nancy Gosnell
Mr. and Mrs. Kevin Guthrie
Mr. Marc Harrison
Ms. Melissa Heath
Mr. and Mrs. William Wayne
Mr. Jarrod Hooker
Mr. Terrell Gates
GlaxoSmithKline
Mr. George Grace
Mr. and Mrs. Jonathan Guttell
Mr. Kelly Hartmann
Ms. Meredith Heath
Herndon III
Dr. and Mrs. Andy Hooper
Mr. Kyle Gauthreaux
Mr. Steve Glazer
Mr. and Mrs. Thomas Graff
Ms. Mayme Hackett
Mrs. Erin Harwood
Mr. Brian Heath
Mr. and Mrs. Robert Herndon
Mr. and Mrs. Ryan Hopkins
Mr. Mike Gavigan
Ms. Sandra Glover
Ms. Trisha Grafton
Ms. Lorri Haden
Mrs. Kecia Haseman
H-E-B
Mr. and Mrs. Drew Herrick
Mr. Nathan Hoppens
Ms. Jen Gavin
Mrs. Lara Glynn
Mr. Kerry Graham
Ms. Cindy Haegelin
Ms. Shauneen Hatfield
Mr. Gale Hebert
Herring & Haggis
Mr. and Mrs. Randal Hoppens
Mr. and Mrs. William Gaw
Mr. Robin Glynn
Mr. and Mrs. Michael Grant
Mr. and Mrs. Byron Hailey
Mr. and Mrs. John C. Hathaway
Ms. Jayleen Hehman
Mr. Micah Herrmann
Mr. Jason Hopper
Mr. and Mrs. Charles Gay
Mrs. Kim Glyn-Williams
Mr. Robert Grant
Hair Crafters
Mr. David Hathaway
Mr. and Mrs. Clarke Heidrick
Mr. Steve Heston
Mr. Scott Horne
GE Foundation
Mr. and Mrs. Roger Goertz
Mr. Naylor Gray
Mr. and Mrs. Randy Hairr
Mr. Jeff Hathaway
Ms. Meghan Heiger
Mr. Brandon Hetherly
Mr. Michael Hotstream
Mr. and Mrs. Eric Geadelmann
Mr. Garrett Goeters
Greater Horizons
Mr. and Mrs. Trey Halberdier
Ms. Jeanne Hathaway
Mr. and Mrs. Craig Heiser
Mr. and Mrs. Todd Hewgley
Ms. Cynthia Houchin
Dr. and Mrs. Joe Geisinger
Ms. Dawn Goetzel
Mr. and Mrs. Jason Hall
Mr. Jim Hathaway
Mr. and Mrs. Kent Heitz
Mr. and Mrs. Tom Hibler
Mr. and Mrs. Keith Housley
– Deborah and Jeff Coburn, The Woodlands TX
Ms. Theresa Hollers
Mr. Scott Holley
Mr. and Mrs. John Hollie
Mr. Stephen Hollingsworth
Mr. John Hollyfield
35
DONORS
36
DONORS
Mr. and Mrs. Blake Houston
Mr. and Mrs. Glenn Jackson
Ms. Molly Johnson
Mr. Stath Karras
Dr. and Mrs. Thomas Kingman
Ms. Tonya Kurtz
Mr. and Mrs. Parky Laville
Ms. Julie Lee
Houston Northwest Medical
Mr. Peter Jackson
Mr. and Mrs. Sam Johnson
Mr. Stiliamos Kasselakis
Ms. Berkley Kingman
Mrs. Andrea Kuvshinikov
Mr. Daniel Lavis
Mr. and Mrs. Scott Lee
Center
Mr. and Mrs. Andy Jackson
Mr. and Mrs. Jim Johnson
Mr. Jay Kassing
Mr. and Mrs. Michael Kiolbassa
Mr. Don Kuykendall
Law Offices of Van Shaw
The Honorable Nathaniel Lee
Mr. and Mrs. Levon Hovnatanian
Mr. Austin Jackson
Ms. Emily Johnson
Ms. Christy Katler
Mr. Greg Kipfmiller
Mr. and Mrs. Maxcy Kuykendall
Ms. Erin Lawder
Mr. Michael Lees
Mr. Kenneth Howard
Ms. Ann Jackson
Dr. and Mrs. Keith Johnson
Mr. and Mrs. Barry Katz
Mr. and Mrs. David Kirby
Mr. and Mrs. Clint Labove
Mr. David Lawrence
Ms. Rebecca Lehmann
Mr. and Mrs. Randy Howard
Mr. and Mrs. William J. Jackson
Mr. Stormy Johnson
Mr. Martin Katz
Mr. and Mrs. Rick Kirksey
Dr. and Mrs. Sam LaBrie
Mrs. Hania Szrodt Lawrence
Capstar Lending
Mrs. Cathryn Howard
Mr. and Mrs. Brandon Jackson
Mr. and Mrs. Daniel Johnson
Mr. Josh Kaufmann
Mr. and Mrs. Donald Kiser
Mr. Ric Lacivita
Mr. Larry Lawrence
Mr. and Mrs. Robert Lent
Mr. and Mrs. Andrew Hrycushko
Mr. Jake Jacques
Mr. and Mrs. Troy Johnson
Mr. and Mrs. Bob Kay
Mr. and Mrs. Don Kiser, Jr.
Ms. Karen Laine
Mr. and Mrs. David Lawrence
Mr. and Mrs. Taran Lent
Mr. and Mrs. David Hubenak
Ms. Rachel Jaffray
Mrs. Jocelyn Johnson
Mr. and Mrs. Tony Kayser
Mr. and Mrs. Aaron Kizer
Mr. and Mrs. David Lake
Ms. Judy Lawton
Mr. Greg Lentz
Ms. Michelle Hubert
Mr. Suraj Jaganmohanan
Ms. Kristina Johnson
Ms. Kathleen Keahey
Mrs. Paula Klapesky
Ms. Jennifer Lamar
Ms. Casey Layfield
Mr. and Mrs. Geroge Leppert
Mrs. Megan Hudgeons
Mr. and Mrs. Davis Jahncke III
Mr. and Mrs. Richard Johnson
Ms. Carrie Keathley
Ms. Alicia Klehm
Mr. Jon Lambert
Laz Parking
Ms. Debbie Leschuck
Ms. Nikki Hudson
Jahncke Oil and Gas, LP
Ms. Nancy Johnson
Ms. Trina Keathley
Ms. Martha Klie
Ms. Tracye Lancaster
LCRA Employees’ United Charities
Mr. Ben Levy
Ms. Rebecca Hudson
Ms. Jan James
Dr. Keith Johnson
Ms. Jacqueline Keating
Mr. and Mrs. Bart Knaggs
Ms. Teri Lanciault
Mr. and Mrs. Patrick Lea
Mrs. Raymona Lewis
Ms. Kathy Huffaker
Mr. Nick James
Mr. Kirk Johnson
Mr. Benjamin Keator
Ms. Joyce Knapp
Mr. Brett Landes
Mr. and Mrs. Richard Lea
Mr. Paul Lewis
Ms. Deann Hughes
Mr. Kent James
Mr. and Mrs. Taylor Johnson
Ms. Madison Keeble
Mr. Harrison Knight
Mr. and Mrs. Derek Lewis
Ms. Cara Hughes
James A. Arthur Intermediate
Mr. and Mrs. Timothy R. Johnson
Mr. Patrick Keel
Ms. Margarette Knight
Mr. and Mrs. Kevin Lewis
Mr. Jay Hughes, Jr.
James W. Collins Family Mr. and Mrs. Terry Johnson
Mr. and Mrs. Keenan Keeling
Ms. Dawn Knight
Mr. Thomas Hughes
Foundation
Mr. and Mrs. Matt Johnston
Mr. and Mrs. Jayland Keeney
Mrs. Vanessa Knighton
FAMILY PHILANTHROPY
Mr. and Mrs. Scott Lile
Mr. Andrew Lim
Ms. Emily Hughes
Mr. Cliff Jamison
Ms. Elizabeth Johnson
Ms. Megan Kehoe
Mr. Bill Kochwelp
Mr. Felix Lin
Mr. and Mrs. Alex Hughes
Dr. and Mrs. Kyle Janek
Mr. and Mrs. Ray Joiner
Mr. Randy Keir
Mr. Brad Kocian
Ms. Jessi Lind
Mr. Mark Hulings
Ms. Carolyn Jarecki
Mrs. Amy Jones
Mr. Will Keliehor
Dr. Kara Kockelman
Mr. and Mrs. George Lindahl
Mr. and Mrs. Brady Hull
Ms. Georgia Jaros
Mr. and Mrs. David Jones
Mr. and Mrs. David Keliehor
Dr. and Mrs. Jeff Kocurek
Mr. Doug Lindauer
Mr. Thomas Hull
Mr. and Mrs. Tim Jarviss
Mr. and Mrs. Pat Jones
Mr. and Mrs. Kye Keliehor
Mr. and Mrs. Kelly Kocurek
Ms. Mary Lindblad
Mr. Hart Humble
Mr. William Jasper
Ms. Dawn Jones
Mr. and Mrs. Randall Kelley
Mr. Albert Koehler
Ms. Kelly Lindsay
Ms. Anna Humnicky
Mr. Kenny Jastrow
Mr. Matthew Jones
Mr. Eric Kelley
Mr. and Mrs. Bill Koen
Mr. Ian Lindsey
Mr. and Mrs. John Humphrey
Mr. and Mrs. Corby Jastrow
Mr. and Mrs. Edson Jones
Mr. and Mrs. William Kelly
Mr. and Mrs. Joseph Kolerich
Mr. and Mrs. Tom Link
Mr. and Mrs. Jason Kollatschny
Ms. Diane Lee Humphreys
Mr. and Mrs. Will Jaudes
Mr. Scott Jones
Mr. Brian Kelly
Mr. and Mrs. Dean Hunt
Mr. Roderick Jeffries
Mr. James Jones
Mr. and Mrs. Tom Kelly
Ms. Anne Kolodziej
Ms. Meta Hunt
Dr. Saima Jehangir
Mr. Tom Jones
Ms. Karen Kemme
Mr. Bill Kory
Mr. and Mrs. Jeff Hunt
Mr. Hunter Jenks
Ms. Shelley Jonietz
Mr. and Mrs. Brandon Kemp
Ms. Courtney Kosky
Mr. and Mrs. Scott Hunt
Mr. Kai Jensen
Ms. Janice Jordan
Mr. Derrick Kenjura
Mr. John Kosky
Mr. and Mrs. Kevin Hunter
Ms. Jacqueline Jensen-Valline
Ms. Leigh Ann Jordan
Mr. Fred Kennedy
Mrs. Parul Kotecha
Mr. Douglas Hunter
Mr. and Mrs. Ross Jessup
Mr. Sammie Joseph, Jr.
Mr. Richard Kenner
Mr. Joe Kovach
Dr. Ross Hunter
Mr. and Mrs. Dean Jett
Mr. and Mrs. Robert Josey
Mr. and Mrs. Michael Kenney
Ms. Amanda Kovach
Mr. Robert Hunter
Ms. Alena Jimenez
Ms. Jayna Judd
Dr. Danielle Kerkovich
Mr. and Mrs. Jim Kovach
Ms. Heather Hurtig
Mr. Jordan Jimenze
Mr. and Mrs. Richard Judge
Ms. Soozi Graf and Mr. Andy Mr. and Mrs. Russ Kovin
Mr. and Mrs. Christopher D. Laney
Ms. Lyndra Lea
Ms. Betsy Loar
Mr. and Mrs. Peter Hutcheson
Jimmy Field Campaign, LLC
Mr. and Mrs. Cameron Judy
Kershner
Ms. Sara Krach
Ms. Lisa Langdon
Leadership Montgomery County
Mrs. Joanna Lochinger
Ms. Katie Hutcheson
Ms. Corinne Jirak
Junior League of The Woodlands
Mr. Scott Kessler
Ms. Christy Kranik
Mr. and Mrs. James Lank
Class of 2014
Ms. Jan Lochstedte
Ms. Carrie Hyman
Mrs. Jo Anne Johnson
Mr. Charlie Junke
Dr. and Mrs. Bill Kessler
Ms. Simone Krasan
Ms. Leslie Lara
Mr. Max Leaman
Mr. Paul Lock
Mr. David Ide
Ms. Virginie Joal
Juno International, Inc.
Mr. and Mrs. John G. Kester
Mr. and Mrs. Keith Kreeger
Mr. and Mrs. Lon Larsen
Mr. and Mrs. Robert Leander
Mr. Christopher Locke
Ms. Olga Ingels
Joanna’s House of Beauty
JustGive
Ms. Kasandra Keyes
Ms. Wendy Kriedler
Mr. Terry Larson
Mr. and Mrs. Bryan Leavitt
Locke Lord LLP
Mr. David Ingram
Mr. Andrew Johns
Ms. Joanna Kaftan
Mr. and Mrs. Mark Kielwasser
Mr. and Mrs. Kam Kronenberg
Mr. Anthony Lasita
Mr. and Mrs. Joel LeBlanc
Mr. and Mrs. Eric Loeffel
Mr. and Mrs. Adam Ingram-Eiser
Mrs. Jennifer Johnson
Mr. and Mrs. David Kahn
Mr. and Mrs. Kevin Kilkeary
Mr. and Mrs. George Kronenberg
Ms. Madelyn Lastella
Mr. and Mrs. Wit LeBlanc
Mrs. Lillian Loewenbaum
Inquest Resources
Ms. Joan Johnson
Mr. and Mrs. Streett Kaigler
Mr. and Mrs. Robert Killeen
Mr. Joseph Krothe
Mr. and Mrs. Joe Lattimer
Mr. and Mrs. Burton LeBlanc
Mr. Mark Logan
Mr. and Mrs. Raul Irizarry
The Honorable Mitch Johnson
Ms. Virginia Kalagorgevich
Mrs. Michelle Killinger
Mr. and Mrs. John Kubasko
Ms. Margaret Lauderback
Ms. Anne Leblanc
Mr. and Mrs. John H. Lollar
Dr. Brett Ironside
Mr. and Mrs. Doug Johnson
Ms. Keren Kang
Ms. Cindy Kim
Mr. Kyle Kuhlow
Mr. and Mrs. Patrick Laughlin
Mrs. Vance LeCrone
Mr. John Lomax
Ms. Karla Irvin
Mr. Kerry Johnson
Ms. Cyndy Kanning
Ms. Hyun Jong Kim
Mr. and Mrs. Henry Kulik
Ms. Denise Lavender
Mr. Randall Lee
Mr. Michael Lomonte
Mr. and Mrs. Ken Irwin
Mr. Cory Johnson
Ms. Elizabeth Kapsiak
Ms. Patti Kimmel
Mr. William Kunetka
Ms. Sharon Lavery
Mr. Dan Lee
LoneStar Logos & Signs
Mr. and Mrs. Gary Ivy
Mr. and Mrs. Matthew Johnson
Ms. Michele Karp
Kinder Family Foundation
Mr. Bryce Kurfees
Ms. Jules Lavigueur
Mr. and Mrs. Matthew Lee
Mr. Jake Long
Mr. and Mrs. Eric Lipar
The Windham family has come together to help us in
our mission to eradicate Batten disease. They all ran
in Run to the Sun and Jimmy graciously served as the
chair. Shannon participates on various Development
Board committees, while Hannah and Jack are part of
the Youth Leadership Committee.
Mr. and Mrs. Chris Lipari
Mr. and Mrs. Jerry Lippiatt
Mr. and Mrs. Jason Lippman
Ms. Sheri Lippman
Mr. and Mrs. George Lippman
Mr. and Mrs. T. Q. Litel
Mr. and Mrs. Lew Little
Mr. Felix Lloyd
37
DONORS
38
DONORS
Mrs. Lindsey Long
Ms. Dee Marik
Ms. Leslie McClanahan
Mr. and Mrs. John McMullan
Ms. Krista Miller
Morgan Stanley
Mr. and Mrs. Dennis Muehsler
Ms. Christine Napierkowski
Ms. Lori Long
Ms. Malissa Markey
Mr. and Mrs. Justin McClung
Mr. and Mrs. Dan McNamara
Mr. CT Miller
Mrs. Kristi Moriarty
Ms. Brittney Mueller
Mr. and Mrs. Michael Nasi
Mr. Chris Long
Mr. and Mrs. Dave Marks
Ms. Kristie McClure
Mr. and Mrs. Gregory McNelis
Mr. and Mrs. Craig Millikin
Mr. Scott Morledge
Mr. and Mrs. Mark Munoz
Mr. and Mrs. Kevin Nater
Mr. and Mrs. Rob Looney
Ms. Meredith Marks
Mr. Sam McClure
Mr. Spencer McNelis
Ms. Georgia Millikin
Mr. and Mrs. Lance Morris
Ms. Margarita Munoz
National Philanthropic Trust for
Mr. Cody Lott
Mr. and Mrs. John Marler
Mr. and Mrs. Clay McCollor
Mrs. McPhail
Mr. and Mrs. Jason M. Mills
Mr. Howard Morris
Mr. Hardy Murchison
the JPMorgan Charitable
Mr. Jeff Lovejoy
Ms. Janice Marroquin
Mr. Larry McCollum
Mr. and Mrs. Brian McPherson
Mr. Sean Mills
Ms. Laina Morris
Mr. William Murphy
Giving Program
Ms. Nancy Lowden
Ms. Jeannine Marshall
Mr. and Mrs. Jason McConnell
Mr. and Mrs. Steven McPike
Mr. and Mrs. Jason Mills
Mr. Bruce Morris
Ms. Susan Murphy
Mr. and Mrs. Michael Navarre
Mr. and Mrs. Steven Lowell
Mr. and Mrs. Lynn Marshall
Mr. Kevin McConnell
Mrs. Vicki McShan
Mr. Mark Milstead
Ms. Melanie Morrison
Mr. Daniel Murphy
Ms. Sarah Naylor
Ms. Krystal Lucero
Mr. and Mrs. Christopher Martin
Mr. and Mrs. Kit McConnico
Mr. James McSpadden
Mr. Stafano Minale
Mr. and Mrs. Charles Morrison
Mr. and Mrs. William H. Murphy
Mr. and Mrs. Dave Near
Ms. Erin Lucke
Mr. and Mrs. John C. Martin
Ms. Jamie Mccornack
MD Anderson Cancer Center
Mr. and Mrs. David Mines
Mr. and Mrs. Charles Hill Morrison
Mr. Patrick Murphy
Mr. and Mrs. Jason Near
Ms. Nicole Ludwig
Ms. Mary Martin
Ms. Molly McCoy
Mr. John Meadows
Mr. and Mrs. Narsimha Misra
Mr. and Mrs. Lloyd Morvant, Jr.
Mr. and Mrs. Ryan Murphy
Ms. Nancy Near
Mr. Carlos Lugo Cisneros
Mr. Wesley Martin
Mr. and Mrs. Justin W. McCrann
Mr. Wayne Mealhouse
Dr. Sandeep Mistry
Ms. Jeanne Nelson
Luke & Rachel Batten Foundation
Mr. and Mrs. Jason Martinez
Ms. Janet McCullar
Mrs. Sherry Meaux
Mr. Paul Mitchell
Mr. Douglas Nelson
Mr. and Mrs. Pete Lumpkin
Mr. Brian Maschler
Mr. Daniel McCutchen
Medical Aesthetics & Laser
Mr. and Mrs. Matthew Mitchell
Mr. and Mrs. Malcolm Lunn
Mr. and Mrs. Chris Mashburn
Mrs. Kristen McDaniel
Mr. and Mrs. Heinrich Meermann
Ms. Caroline Mitchell
Mr. Thomas Lyman
Mr. and Mrs. John Masley
Ms. Deborah McDermott
Meinig Family Foundation
Ms. Cerrone Mitchell
Mr. Nate Nelson
Ms. Kristen Lynam
Mr. Eric Massey
Mr. Mark McDermott
Mr. and Mrs. Neal Meinzer
Mitchell Intermediate School LC04
Mr. and Mrs. John W. Nelson
Mr. Samuel Lynaugh
Mr. and Mrs. Mark Massey
Mr. and Mrs. Amos McDonald
Mr. Andrew Melton
Mr. and Mrs. David Mitrani
Ms. Ellen Nemec
Ms. Robin Lynch
Mrs. Christi Massey
Mr. Shawn McDonald
Mr. and Mrs. Michael Melzer
Mr. and Mrs. Clarence Mitschke
Mr. and Mrs. Tom Nesbitt
Ms. Jodi Lyons
Ms. Tanya Mast
Ms. Susan McDonald
The Menagerie II, Inc.
Ms. Doris Mitschke
Mr. and Mrs. Bryan Neskora
Mr. and Mrs. Evin Macaluso
Mr. Matt Mathias
Mr. and Mrs. Jeff McDowell
Mrs. Tawn Merrill
Ms. Jarrene Mitschke
Ms. Morgan Nester
Ms. Mary Macaluso
Ms. Mary Ellen Mathis
Mr. and Mrs. Jay McEntire
Mr. Brett Merritt
Mr. and Mrs. Steven Miura
Network for Good
Ms. Carolyne Maclellan
Ms. Cheryl Mathis
Mr. Clint McFarland
Ms. Christine Merritt
Ms. Becca Mix
Ms. Sheila Neuenschwander
Mr. and Mrs. Randall Macon
Mr. James Mathis
Mr. Lance McFarland
Ms. Carlynn Messer
Mr. and Mrs. Christopher Mize
Mr. and Mrs. Mark Newberry
Ms. Jessica Madrid
Ms. Cristina Mathis
Mr. Howard McFarland
Ms. Patricia Messer
Ms. Tracey Moat
Ms. Susan Newberry
Mr. and Mrs. Andrew Maebius
Mr. and Mrs. Wesley Mathis
Ms. Ena McFarland
Mr. and Mrs. Will Metcalf
Ms. Lauren Moe
Ms. Linda Maegdlin
Mr. Michael Mattern
Mr. Michael McGibbony
Dr. and Mrs. Mark Mettauer
Mr. John Moellenberg
Mr. and Mrs. Jared Maerz
Mr. Alan Mattern
Mr. and Mrs. Matt McGinnis
Mr. Ryan Meyer
Dr. and Mrs. Travis Moffatt
Mr. and Mrs. Lawrence Maestri
Mr. Jay Mattern
Ms. Elena McGinnis
Ms. Lauren Meyer
Ms. Kelly Molak
Ms. Lisa Magids
Ms. Shannon Matthews
Mr. and Mrs. Christopher McGinniss
Mr. and Mrs. Charles Meyer
Mr. and Mrs. Michael Moline
Mr. Jimmy Mahaffey
Mr. John Matthews
Ms. Judy McGookey
Mr. Jim Michaels
Mr. Joshua Moller-Mara
Ms. Hazel Mahaffey
Mr. Michael Matthews
Ms. Liz McGuire
Mrs. Deedee Michaux
Dr. Kristin Mondy and
Mr. Russ Mahan
Ms. Colleen Matthews
Mrs. Carol and Mr. Paul McHorse
Mr. and Mrs. David Middleton
Mr. Mohan Balachandran
Ms. Mary Beth Maher
Dr. and Mrs. T. Fleming Mattox
Mr. and Mrs. Kirk McIntosh
Mr. Darren Mieskoski
Mrs. Merchanti Mongold
Mr. Daniel Maher
Mr. and Mrs. Nick Matzorkis
Ms. Rosellyn McIver
Mike Powell Insurance
Monica Mod Hair
Mr. David Mahn
Mr. Riggin Maxey
Ms. Arlene McKay
Ms. Sabrina Militello
Mr. Bryan Monroe
Mr. and Mrs. Kelly Mahoney
Mr. and Mrs. Randall D. May
Mr. Ryan McKay
Mrs. Carol Miller
Mr. and Mrs. Seth Montgomery
Ms. Lisa Malandro
Mr. and Mrs. Darrell May
Mr. Shawn McKee
Ms. Rebeca Miller
Mr. Gary Moody
Mr. Marsh Moseley
Mr. Dave Murray
Mr. and Mrs. Chris Noble
Mr. and Mrs. Adam Malden
Mr. Russell McBeth
Mr. and Mrs. Mike McKee
Mr. and Mrs. Brian Miller
Mr. and Mrs. Mickey Moon
Ms. Virginia Moseley
Ms. Susanna Murray
Ms. Berkeley Noblett
Ms. Melissa Maldonado
Mr. and Mrs. Jeffrey McBride
Mr. Keegan McKenna
Ms. Amy Miller
Ms. Malinda Moor
Ms. Rebecca Moses
Dr. Carrie Muzny and Mr. Victor Mr. and Mrs. Scott Norman
Mr. and Mrs. Trent Malik
Mr. and Mrs. David McBride
McKesson Foundation
Mr. and Mrs. Eric Miller
Ms. Colleen Moore
Ms. Katherine Mosley
Muzny
Ms. Susan Norman
Mr. and Mrs. Craig Malloy
Mr. and Mrs. Shain McCaig
Mr. and Mrs. John McKinnerney
Mr. and Mrs. Andrew Miller
Ms. Suzanne Moore
Mr. Robert Moss
Mrs. Debra Myers
Ms. Dina Northington
Ms. Anne Mancino
Ms. Shannon McCarroll
Mr. and Mrs. Mark McKnight
Mrs. Heidi Miller
Mr. and Mrs. Shawn Moore
Mr. Gary Moss
Ms. Sondra Myers
Mr. and Mrs. Robert Northway
Mr. and Mrs. Dominic Mandola
Miss Susie McCartt
Ms. Kimberley McLaren
Mrs. Hayden Miller
Ms. Isabel Morales
Ms. Tarissa Moss
Ms. Mona Myers
Ms. Gayle Nugent
Ms. Ashley Mangrum
Mr. and Mrs. J. McCartt
Ms. Shannon McLaughlin
Mr. and Mrs. Chad Miller
Mr. and Mrs. Mark Moran
Motorola Solutions Foundation
Mr. Robert Myers
Mr. Gerald Nutt
Mr. and Mrs. Patrick Manning
Mr. and Mrs. Scott McCauley
Ms. Michelle McLaughlin
Ms. Grace Miller
Mr. and Mrs. Samy Morcos
Ms. Lisa Mount
Ms. Beth Myler
Ms. Ava Nykaza
Ms. Kathleen Manning
Ms. Maggie McCauley
Mrs. Katherine McLean
Mr. William Miller
Ms. Emily Moreland
Mr. Mark Moze
Mr. Jatan Naik
Mr. and Mrs. Richard O’Brien
Mr. and Mrs. Adam Mareth
Ms. Nicole McCay
Mr. and Mrs. William McLean
Mr. and Mrs. Michael G. Miller
Mr. Anthony Morelli
Ms. Marcia Moze
Mr. and Mrs. Charles Nanick
Ms. Lori O’Donnell
Ms. Katharine Margiotta
Mr. Mark McClain
Mr. and Mrs. Chris McMahan
Ms. Melissa Miller
Mr. and Mrs. Frank Morgan
Mr. and Mrs. Jeff Mucci
Mr. and Mrs. Napierkowski
Mr. Val O’Hearn
Mr. and Mrs. Jack Nelson
FAMILY HONOREES
Mr. and Mrs. John C. Nelson
“God puts rainbows in the clouds so that each of us –
in the dreariest and most dreaded moments – can see
a possibility of hope.”– Maya Angelou. Thank you to
all of our wonderful friends and family. Your donations
are rainbows of hope.
– Amy, Eddie, Hudson and Grant Phillips
Ms. Marianne Newberry
Mr. Joseph Newcomb
Mr. and Mrs. Joseph Newcomb
Newfield Exploration Company
Mr. Mark Newman
Mr. and Mrs. Chris Newton
Mr. Justin Nichols
Friends and families often donate in honor of a child affected
by Batten disease, providing hope and supporting research.
Mr. Nate Nickerson
Mr. and Mrs. John Nicklos
Ms. Kathy Nicolson
Ms. Camille Nix
Ms. Lily Nixon
39
DONORS
DONORS
Ms. Angela O’Malley
Ms. Susan Palombo
Ms. Jessica Patterson
Mr. Dale Peters
Ms. Elena Pope
Mr. and Mrs. Edward Reese
Ms. Margaret Roddick
Ms. Charlene Sanchez
Ms. Mary Jo O’Neal and
Ms. Carrie Pannell
Mr. and Mrs. Bill Patterson
Mr. and Mrs. Rankin Peters
Mr. and Mrs. Jarvis Porter
Mr. and Mrs. Dan Reeves
Mr. Kyle Rodemacher
Mr. Tyler Sanchez
Mr. Stephen G. Harr
Mr. Steve Pannell
Mr. Graham Patterson
Mr. and Mrs. Ralph Peterson
Mr. and Mrs. Tod Potter
Mr. and Mrs. Justin Regan
Mr. Santiago Rodriguez
Ms. Veronica Sanchez Rodriguez
Mr. and Mrs. Coleman O’Toole
Mr. and Mrs. Claude Paquin
Mr. James Patton
Mrs. Lori Peterson
Mr. Blake Pounds
Ms. Jessica Reichart
Ms. Jennifer Rodriguez
Ms. Jill Sandal
Ms. Brandi Oakes
Mr. and Mrs. Jeff Paquin
Ms. Tracy Patton
Mr. and Mrs. Jeffrey Peterson
Mr. and Mrs. Mike Powell
Mr. and Mrs. Brendan Reid
Ms. Nancy Roesler
Mr. and Mrs. Edward Sanders
Dr. and Mrs. Ryan Oakley
Ms. Kay Pardee
Mr. Todd Patton
Mr. and Mrs. Jean Petillon
Mr. Randy Preskitt
Ms. Vera Reid
Ms. Edie Rogat
Mr. Rolland Sanders
Ms. Debby Oatman
Mr. and Mrs. Yves Parfait
Ms. Judy Paul
Mr. and Mrs. Nicolas Petit
Ms. Melissa Preston
Ms. Marianne Reigel
Mr. and Mrs. Anthony Rogers
Ms. Catherine Sanderson
Ms. Laura Odegaard
Mr. and Mrs. Greg Parham
Mr. and Mrs. Andrew Paur
Mr. and Mrs. Brian Petrauskas
Ms. Meghan Preuss
Ms. Alice Reinarz
Ms. Clara Rogers
Mr. and Mrs. Scott Sanderson
Ms. Stephanie Odell
Mr. Chris Parisi
Mrs. Leslie Pavlock
Mr. Jon and Julie Petrucelli
Mr. and Mrs. Eric Price
Ms. Elle Reinarz
Mr. and Mrs. Rob Rogers
Mr. and Mrs. John Sanderson
Mr. and Mrs. Stephen Oden
Mr. and Mrs. David Park
Mr. Kelly Payne
Mr. and Mrs. Jeff Petty
Ms. Vickie Price
Mr. and Mrs. Pierre Reinhardt
Mr. and Mrs. Raymond Rogers
Mr. and Mrs. Eddie Sankary
Mr. Clifton Odom
Drs. Frank and Stephanie Parke
Ms. Estelle Paysinger-Hill
Mr. Craig Peus
Ms. Aubrey Price
Ms. Heather Reisman
Ms. Tania Rohan
Mr. Gregory Sapochetti
Mr. and Mrs. Keith Odom
Dr. and Mrs. Brad Parker
Mr. Taylor Pearce
Ms. Kristen Pfaller
Price Wealth Management, Inc.
Mr. and Mrs. Allan Reitzer
Mr. and Mrs. Billy Rohrlich
Mr. Raymond Saucedo
Ms. Lori Odonnell
Ms. Kristen Parker
Mr. and Mrs. Matthew Pearson
Ms. Marcie Pfingsten
Ms. Tiffany Prior
Mr. and Mrs. Andreas Remy
Mr. and Mrs. Doug Rook
Mr. and Mrs. Ron Saucier
Mr. and Mrs. Larry Ohlenburger
Mr. and Mrs. Ray Parker
Ms. Cara Peck
Mr. and Mrs. Tuan Pham
Mr. Cassius Proler
Renaissance Charitable
Ms. Elizabeth Rookstool
Mr. Trevor Sauntry
Mr. Steve Ohlin
Mr. James Fallon
Ms. Amy Pedersen
Ms. Cindy Phan
Ms. Audrey Propst
Foundation
Mr. and Mrs. James Rorison
Mr. Mark Savrick
Mr. and Mrs. Paul Ohls
Ms. Tracy Phenes
Mrs. Wendy Propst
Mr. and Mrs. Michael Renna
Mr. Mark Rosenberg
Sawmill Trust Company
Ms. Ashley Ohls
Ms. Kristine Philbin
Prosales, Inc.
Mrs. Linea Renspie
Mr. Michael Ross
Ms. Gelena Scally
Mr. and Mrs. Larry Ohls
Mr. Donald Phillips
Mr. David Prost
Mr. Allan G. Restrepo
Mr. and Mrs. James Rotchford
Mr. Howard Schachat
Dr. and Mrs. Mike Phillips
Prudential Foundation Matching Ms. Cassandra Reyes
Mr. Robert Roth
Mr.and Mrs. John Schafer
Ms. Sonja C. Phillips
Gifts
Mr. Steve Reynolds
Mr. and Mrs. Jack Rouchaud
Mr. Nick Schatz
Ms. Cynthia Ann Phillips
Mr. David Purpora
Mr. and Mrs. Winston Rice
Mr. Colin Rowan
Mr. Noah Schatz
Mr. and Mrs. David Phillips
Mr. and Mrs. David Putman
Mr. Michael Richards
Royal Street
Mr. Dan Schatz
Mr. and Mrs. Chris Phillips
Mr. Palmer Quaroni
Ms. Jaclin Richey
Mr. Stuart Royalty
Mr. Nathan Schatz
Ms. Patsy Phillips
Ms. Jennifer Quigley
Mr. and Mrs. Steve Richie
RRK Orthopaedic Sales, Inc.
Ms. Sandra Schawe
Mr. and Mrs. Jay C. Phythian
Ms. Lila Quigley
Mr. and Mrs. Gordon Richter
Mr. Lawrence Rucinski
Mr. and Mrs. Karl Scheible
Mr. and Mrs. Tom Pickens
Mr. and Mrs. Michael Quinn
Mr. Evan Richter
Mr. Larry Ruff
Mr. and Mrs. Tony Schell
Ms. Saundra Orebaugh
Mr. and Mrs. David Pickett
Mr. Ben Quinton
Mr. Ryan Richter
Mr. and Mrs. Christopher Ruhman
Ms. Soledad Scherer
Mr. Michael Orlando
Ms. Mary Pickett
Mr. Jason Quitne
Mr. Aaron Rigby
Ms. Jill Runyon
Mr. and Mrs. Litton Schexnaildre
Mr. and Mrs. Warren S. Orlando
Mr. Chad Pierce
Ms. Irina Rachow
Ms. Carol Rigby
Mr. Pete Rush
Mr. Richard Schmidt
Mr. Lorenzo Orozco
Mr. and Mrs. Jonathan Pierce
Ms. Tamara Rains
Ms. Karen Rincon
Mr. Rober Russ
Mr. and Mrs. James R. Schneider
IN KIND DONATIONS
Ms. Lindsey Ohls
Mr. Derek Olander
Jen McDonald gives
HOPE from behind the
lens. Thank you Jen
for photographing our
events and helping us
spread HOPE.
Mr. Mark Olivani
Mrs. Elizabeth Olivas
Ms. Carra O’Neil
Oracle Corporation Matching
Gifts Program
Mr. Alan Orebaugh
40
Ms. Alice Orth
Mr. and Mrs. Kyle Parks
Mr. and Mrs. Robert Peeler
Ms. Tiffany Pierce
Ms. Sarah Raleigh
Mr. Eddie Rinehart
Mr. and Mrs. Risk Russell
Mr. Chuck Schoepflin
Mr. and Mrs. Sal Ortiz
Parlour in the Woods, Inc.
Mr. and Mrs. Robert Pelache
Mr. and Mrs. Pat Pierson
Dr. Sylvie Ramboz
Mr. Don Ringer
Mr. Will Russell
Mr. Jon Schoepflin
Mr. and Mrs. Ryan O’Shaughnessy
Mr. and Mrs. Martin Parrington
Ms. Connie Pell
Mr. and Mrs. Peter Pincoffs
Dr. and Mrs. Jaime Ramirez
Mr. Roy Rios
Russell Douglass Investments
Mr. Bob Schoepflin
Ms. Tiffany O’Shea
Ms. Wilde Parry
Mr. Gerald Pels
Mr. Jim Piper
Mr. Michael Rand
Mrs. Angie Risher
The Rutledge Family
Ms. Katherine Scholler
Mr. and Mrs. Billy Osherow
Mr. and Mrs. Chris Parsons
Mr. and Mrs. Walt Penn
Mr. Brian Pitman
Mr. and Mrs. Lance Raper
Mr. Brad Risner
Mr. Tom Ryan
Mr. David Schorlemer
Ms. Robyn Ostryniec
Party City North #320
Mr. Jonathan Penn
Mr. Mark Pitstick
Mr. Danny Ratliff
Mr. Brian Ritter
Mr. and Mrs. Chad Ryan
Ms. Toni Schraitle
Others First
Party City of Humble
Mr. Andy Peoples
Mr. and Mrs. Brian Pitstick
Mr. and Mrs. David Ray
Ms. Irene Rivers
Mr. and Mrs. Shane Ryan
Mr. and Mrs. Ben Schreiner
Mr. and Mrs. John Paul Otieno
Ms. Kay Paschall
Ms. Alison Pepper
Mrs. Barbara Pitstick
Mr. Brent Raymond
Mr. Adrian Rizo
Mr. Grassin Delyle Sabine
Mr. and Mrs. Danny Schroder
Mrs. Julie Oudin
Mr. Paul Pascoli
Mr. George Percefull
Mr. and Mrs. Will Pitts
RBF Port Neches LLC
Mr. Mark Rizzo
Safeway, Inc.
Mr. and Mrs. Stuart Schroeder
Mrs. Erin Overhold
Ms. Patricia Pascoli
Mr. John Perdew
Plains Capital Bank
Mr. and Mrs. William Reagan
Ms. Vickie Roan
Ms. Sujaya Sahu
Mr. and Mrs. Roger Schuelke
Ms. Liz Owen
Mr. and Mrs. Eric Pastor
Perdido Supply & Trading, LLC
Plains Marketing
Mr. and Mrs. William Baumeyer
Mr. Robbie Roberts
Mr. and Mrs. Ron Saikowski
Mr. and Mrs. Tim Schumacher
Mr. Carter Pace
Mr. Sam Pastor
Mr. and Mrs. Roger Perez
Mr. and Mrs. Philip Platt
Mr. and Mrs. Reagan Reaud
Ms. Shannon Roberts
Ms. Denise Saikowski
Mr. Frederick Schurr
Mr. and Mrs. Charles Pace
Ms. Donna Patane
Mr. and Mrs. David Perez
Ms. Susan Plengemeyer
Mr. Kurt Rechner
Ms. Mary Roberts
Ms. Cindy Saiter
Schwab Charitable Fund
Ms. Samantha Pace
Mr. Premal Patel
Ms. Wendy Perga
Mrs. Stephanie Polakowski
Red Media Group
Ms. Melissa Roberts
Mr. and Mrs. Ed Sajbel
Mr. Haydn Schwedland
Ms. Debbie Pacitti
Mr. Amit Patel and Ms. Shivani
Ms. Danielle Perico
Mr. Ian Polakowski
Mr. and Mrs. Scott Redding
Mr. Blaine D. Roberts
Miss Maisie Sajbel
Ms. Becky Schweighardt
Mr. and Mrs. Edward Paez
Tripathy
Ms. Ella Perry
Ms. Gaye B. Polan
Mr. and Mrs. Uttam Reddy
Ms. Ann Robertson
Ms. Joanna Salinas
Ms. Elizabeth Schweinsberg
Mr. Christopher Paldino
Mr. and Mrs. Ajay Patel
Ms. Christine Perry
Mr. and Mrs. Hayes Politz
Ms. Jane Reed
Mr. Eric Robertson
Ms. Amy Salinas
Ms. Dana Schwent
Ms. Jordan Palmer
Ms. Abby Patranella
Mr. Steve Perry
Mr. Jacob Poloskey
Mr. and Mrs. James J. Rees
Mr. and Mrs. Oscar Robinson
Mr. and Mrs. Brian Sallee
Mr. and Mrs. Brandon Schwertner
Mr. and Mrs. Robert Palmer
Mr. Christian Patrik
Mr. and Mrs. Patrick Perugini
Ms. Frida Parker Poloskey
Ms. Amy Reese
Mr. and Mrs. Mathew Robinson
Mrs. Cindy Samok
Ms. Kendra Scott
41
DONORS
DONORS
Mr. Kenneth Scott
Ms. Janis Shockley
Mr. David Smith
Ms. Lois Souza
Mr. and Mrs. Larry Stokes
Ms. Amy Tanjong
Mr. and Mrs. Ron Thompson
Mr. Jeff Traylor
Ms. Abigail Scott
Mr. Brent Shook
Mr. Richard Smith
Ms. Tiffany Speaks
Ms. Pamela Stone
Mr. and Mrs. Stephen Tarleton
Mr. and Mrs. Trey Thompson
Mr. and Mrs. Andrew Treutle
Ms. Virginia Seal
Dr. Edward E. Shubert
Mr. and Mrs. Glenn Smith
Mr. Robert Spiegel
Ms. Lisa Stone
Mr. and Mrs. Clay Tarro
Ms. Janet Reeves and
The Honorable and Mrs. James Mr. and Mrs. Patrick Seale
Dr. and Mrs. Justin Shults
Mr. and Mrs. Jerry Smith
Ms. Gina Sprehe
Mr. and Mrs. Richard Stone
Tarrytown Pharmacy
Mr. Mac Thompson
Trimble
Ms. Lindsey Secreet
Ms. Julie Shusko
Mr. Jeff Smith
Mr. Derek Springer
Ms. Dorothy Storm
Mr. and Mrs. Colby Tate
Thompson + Hanson
Trisun Healthcare
Ms. Kathy Secreet
Ms. Bea Sibille
Ms. Lori Smith
Mr. and Mrs. Russell Springmann
Ms. Kristi Stotts
Ms. Diana Taylor
Mrs. Juanita Thornton
Dr. and Mrs. Michael Trotter
Mr. and Mrs. Frank Secreet
Ms. Mary Sicola
Ms. Rachel Smith
Mr. Walter Springmeyer
Mr. and Mrs. Michael Stouse
Ms. Elisha Taylor
Mr. Terry Thornton
Mr. and Mrs. John Trube
Mr. and Mrs. Sam Secreet
Mr. Daniel Signorelli
Mr. and Mrs. Dennie Smith
Mr. Brian Spross
Mr. and Mrs. Rich Stoyko
Mr. and Mrs. Terry Taylor
Mr. Tim Thuell
Ms. Sarah Trusz
Mr. and Mrs. Tom Secreet
Mr. and Mrs. Daniel Signorelli
Mr. and Mrs. Shawn Smith
Mr. Benjamin Spruill
Ms. Ann Straessle
Mrs. Stephanie Taylor
Ms. Jenni Thurow
Ms. Laurie Tsuruda
Mr. and Mrs. Marko Dopudja
Silicon Valley Community Mr. Dennis Smith
Ms. Suzanne Spurlock
Mr. Nick Strakey
Mr. and Mrs. Chad Teague
Mr. and Mrs. Troy Tice
Mr. and Mrs. Rex Tucker
Mr. and Mrs. Peter Nutcher
Foundation
Mr. and Mrs. Lathrop Smith
St. David’s Foundation
Mr. and Mrs. Stephen Straus
Tecumseh Foundation
Mr. and Mrs. Patrick Tickle
Mr. Brent Tucker
Mr. and Mrs. Michael G. Seder
Mr. Berkley Simmons
Mr. and Mrs. Cole Smith
Community Fund
Mr. and Mrs. Ryan Street
Mr. and Mrs. Steven Teddy
Mr. and Mrs. Todd Tidmore
Ms. Sarah Tudor
Ms. Courtney Seel
Mr. Adam Simmons
Ms. Rebecca Smith
Mrs. Melissa St. Giles
Ms. Aleta Streett-Leavy
Mr. Charles Teeple
Mr. Justin Tipler
Mr. Edward Tull
Mr. Nikhil Sehgal
Mr. David Simpson
Ms. Virginia L. Smith
Mrs. Jeannie Stadler
Mr. Wayne Stribling
Mr. and Mrs. Bryan Teeple
Ms. Mary Tipps
Mr. and Mrs. Mark Turek
Mr. and Mrs. Mark Seibert
Ms. Stephanie Simpson
Mr. and Mrs. Ford Smith
Mr. Chris Tejada
Ms. Kimberly Tipton
Mr. and Mrs. Steven Turkaly
Ms. Katherine Staebel
Mr. and Mrs. Larry Strickland
Mr. Mark Seiler
Mr. Brent Stahl
Mr. Todd McGrath and
Mr. John Turner
Mr. and Mrs. Michael Seiler
Mr. John Stahl
Ms. Pamela Stringer
Mr. Travis Turner
Ms. Anna Sellers
ADVOCACY PAGES
Mr. and Mrs. Gil Staley
Mrs. Allison Stringfellow
Mr. Matt Turner
Mr. Glenn Stallop
Ms. Terry Stripling
BBDF’S ADVOCACY PAGES allow you to personalize your fundraising page and share why curing
Batten disease is important to you. It is a great way
to host third party events or raise awareness. Also, it
allows your supporters to pay with credit cards and
receive a gift acknowledgment from BBDF.
Ms. Meredith Stanford
Mrs. Jade Strong
Mr. and Mrs. Eric Stanley
Mr. and Mrs. W. Royce Stroud
Mr. and Mrs. Kyle D. Stanosheck
Ms. Erica Stuart
Mr. and Mrs. David Stanton
Mr. Mick Stuart
Mr. and Mrs. Bruce Staples
Ms. Mellie Stuart
Ms. Stephanie Stark
Mr. Jason Styles
Mr. and Mrs. Troy Stark
Ms. Lakshmi Subramanian
Mr. Michael Selles
Ms. Rosemary Sepulveda
Ms. Catherine Sereni Mausset
Ms. Sherry Serio
Mr. and Mrs. D. A. Sevin
Mr. Jon Shafer
Mr. and Mrs. Phillip Shaffer
Shag Spa and Salons
Ms. Jennifer Shahry
42
”It was easy to set up an
online fundraising page and
reach out to my family and
friends, educating them
about Batten disease. I
raised over $1600 for a cause
that’s really important to me.”
– Susie McCartt
Mr. Robert Turner
Mr. Lawrence Turner
Ms. Meredith Turner
Ms. Nicole Tuttle
Mr. and Mrs. Brian Twellman
Twin Eagle Resource Management
TxOGA Insurance Agency, Inc.
Mr. and Mrs. Alex Tynberg
Mrs. Mimi Starkey
Mrs. Holly Sudduth
Mr. David Shanahan
Mr. and Mrs. Steven Simpson
Mr. Thomas Smith
Ms. Charles Starrett
Sue Sue Charitable Foundation
Ms. Robin Udstuen
Mrs. Rebecca Shannonhouse
Ms. Julie Simpson
Mr. Armand Smith
Mr. and Mrs. Jennings Steen
Mr. Jason Sullivan
Mr. and Mrs. Baron Unbehagen
Ms. Carolyn Shantz
Mr. Mike Sims
Dr. Steven Smith
Mr. and Mrs. Anthony Stegman
Mr. and Mrs. Marty Sunde
Mr. Theo Unbehagen
Ms. Carrie Shapiro
Mr. and Mrs. Rick Singleton
Mr. and Mrs. Stephen Smith
Mr. and Mrs. Robert Stegman
Mr. and Mrs. Aaron Surber
Mr. and Mrs. Lawrence Temple
Ms. Jocelyn Tison
Universal Field Services
Mr. and Mrs. Dan Sharplin
Ms. Victoria Singley
Mr. Stephen Smith
Ms. Anita Steigerwald
Ms. Susan Surratt
Ms. Jillian Terrell
Mr. and Mrs. Paul Tobias
University Presbyterian Church
Miss Kathryn Sharplin
Mr. Michael Singley
Mr. Glenn Smith
Ms. Patti Steiner
Mr. Gede Sutapa
Mr. and Mrs. Patrick Terry
Mr. Brent Todd
Mr. Eric Uresti
Mr. and Mrs. Art Sharplin
Ms. Meredith Sipko
Mr. and Mrs. Paul Smith
Ms. Sharon Steinhauer
Mr. and Mrs. William Swan
Texas Children’s Hospital
Todd Hughes Orthodontics
Ms. Becky Urhausen
Dr. George Shashoua
Mr. Shannon Siver
Mr. and Mrs. Allen Smith
Mr. and Mrs. Wayne Stephens
Swan Consulting Inc.
Mr. and Mrs. Isik Tezel
Mr. and Mrs. Edward Tomes
Mrs. Patricia Uribe
Ms. Dee Sheffer
Mr.and Mrs. Harold Skaggs
Mr. Mike Smith
Mr. and Mrs. Charles Stephens
Mr. Greg Swanson
The Woodlands Operating Mr. Dalton Tomlin
Mr. Oliver Ukeki
Ms. Christie Shelton
Ms. Susan Skaggs
Mr. and Mrs. Tom Smithyman
Mr. and Mrs. Robert Stephenson
Mr. John Swart
Company
Mr. Kevin Tonner
Ms. Jennifer Vail
Ms. Sascha Shelton
Mr. Sean Skelton
Mr. Ian Smulowitz
Ms. Stacey Stevens
Dr. Bryan Sweeney
Mr. and Mrs. Bart Thedinger
The Honorable and Mrs. Mike Ms. Rhonda Valdez
Mr. Brent Shepherd x
Ms. Jennifer Skipper
Mr. and Mrs. William Snell
Mr. William Stevens
Dr. and Mrs. Sean Sweeney
Mr. and Mrs. Jimmy Theiss
Toomey
Mrs. Jennifer Valentine
Mr. and Mrs. Gene Shepherd
Mr. and Mrs. Sean Slack
Mr. and Mrs. David Snowden
Ms. Ann Stevens
Ms. Julie Swett
Mr. Jason Thomas
Mr. Mark Toon
Mr. and Mrs. D. M. Valicevic
Ms. Molly Sherman
Mr. Matt Slakoff
Dr. Ann K. and Mr. Jerry Snyder
Ms. Sara Stevenson
Mr. Bill Swinney
Mr. and Mrs. Charles Thomas
Mr. and Mrs. Alan Topfer
Mr. Matt Valicevic
Mr. Wally Sherrod
Mr. Jack Slawson
Ms. Severine Soler
Mr. and Mrs. Robert Stewart
Mr. and Mrs. Jay Symcox
Ms. Katie Thomas
Mrs. Sally Toppe
Mr. and Mrs. Eddie Valverde
Mr. and Mrs. Taylor Sherwood
Mr. and Mrs. Gary Slay
Ms. Marci Solomon
Ms. Stephanie Stewart
Ms. Becky Szatkowski
Mr. and Mrs. Elmer Thomas
Mr. John Torres
Mr. Richard Van der Dys
Miss Ally Sherwood
Mr. and Mrs. Thomas Slocum
Mr. and Mrs. Robert G. Solomon
Mr. and Mrs. Mark Stewart
Mr. Troy Johnson
Mr. and Mrs. Philip Thomas
Mr. and Mrs. Anthony Torres
Dr. and Mrs. Mark Van Overbeek
Ms. Eileen Shihadeh
Miss Marina Smalling
Mr. Joe Soto
Ms. Anna Stewart
Mr. Eric Talbot
Mr. and Mrs. Robert Thomas
Mr. and Mrs. Bruce Tough
Ms. Autumn Van Treeck
Ms. Janie L. Shipley
Mr. and Mrs. Richard Smalling
Ms. Sarah South
Ms. Jennie Stewart
Ms. Denise Taliaferro
Mr. and Mrs. Chris Thomason
Ms. Ella Townsend
Mr. and Mrs. David Vance
Mr. and Mrs. Jeff Shipley
Mr. and Mrs. Dave Smallwood
Mr. Joseph South
Stewart’s Chapel Church
Ms. Tiffanny Tan
Mr. and Mrs. Lance Thompson
Ms. Jeanine Traag
Mr. and Mrs. Dean Vandergriff
Mr. George Shirk
Mr. and Mrs. JD Smart
Ms. Patricia South
Mr. and Mrs. Daryl Stilley
Mr. Sebastian Tanaka
Mr. and Mrs. Robin Thompson
Ms. Claudia Trainer
Mr. and Mrs. Nick Vanderpool
Ms. Shea Shockley
Mr. Bill Smith
Mr. Andrew Southern
Mr. and Mrs. John Stokes
Ms. Jill Tanaka
Mr. Michael Thompson
Mr. Norman Tran
Mr. Daniel Vantreeck
Ms. Erin Tyrrell
43
DONORS
44
Mrs. Krissie Vanyo
The Waterproof Foundation, Inc.
Ms. Jamie White
Ms. Jesse Womack
Mrs. Connie Varela
Mr. and Mrs. Sandy Watkins
White Rock Farms
Mr. and Mrs. John Wombwell
Mr. Stephen Varga
Mr. Randy Watson
Ms. Donna Whiting
Mr. and Mrs. David Woodall
Mrs. Barbie Vargo
Ms. Kelley Watson
Mr. and Mrs. James Whitlock
Ms. Mimi Woodard
Ms. Angela Vega
Mr. and Mrs. Sam Watson
Ms. Teresa Whorton
Ms. Caroline Woodham
Mr. and Mrs. John Venable
Mr. and Mrs. Kyle Watson
Mr. Reid Wick
The Woodlands Marathon
Mr. Leo Vercollone
Mr. and Mrs. W.H. Trey Watson
Mr. and Mrs. Steve Wideman
Mr. Mac Woodman
Mrs. Elaine Verrier
Ms. Donalda Watson
Mr. and Mrs. Wyeth Wiedeman
Mr. and Mrs. David Woodside
Mr. and Mrs. Thomas Vertin
Mr. and Mrs. James Michael Ms. Stacey Wilcox
Mr. and Mrs. William Worley
Mr. James Vess
Watson
Mr. and Mrs. Keith Wilcox
Mr. Greg Woyshner
Mr. John Vialon
Mr. Willie Watson
Ms. Harriett Dianne Wilcox
Mr. and Mrs. Eric Wright
Mr. and Mrs. Ross Vickers
Mr. Mark Watson
Mr. and Mrs. W. Paul Wilhelm
Mrs. Kristin Wright
Mr. and Mrs. Frank Vickers
Ms. Elissa Watts
Mr. Randall Wilhite
Mr. and Mrs. Chris Wright
Mr. and Mrs. Tray Vidaurri
Ms. Macy Weatherhead
Mr. Paul Wilke
Mrs. Kimberly Wright
Mr. and Mrs. Ryan Villarreal
Mr. and Mrs. Greg Weaver
Mr. Ben Wilke
Ms. Sarah Wrobel
Ms. Kelly Vining
Mr. and Mrs. Kyle Weaver
Mr. Bryant Wilkerson
Ms. Kathy Wyatt
Ms. Jeanette Virgil
Ms. Diane Weber and
Mrs. Courtney Wilkerson
Mr. J. Pat Wyche
Mr. Angelo Vitanza
Mr. Mark Gale
Ms. Angie Wilkerson
Ms. Carolyn Xander
Mr. Chris Vitanza
Ms. Hillary Weber-Gale
Mr. and Mrs. Darrin Willauer
Mr. and Mrs. Jason Yancer
Mr. David Vitanza
Mr. and Mrs. Ron Webster
Mr. and Mrs. Kent Willetts
Mr. and Mrs. Howard Yancy
Mr. Todd Vlasak
Ms. Heather Webster
Ms. Gail Williams
Ms. Jan Yardley
Mr. and Mrs. David Vlasaty
Mr. and Mrs. David Weeks
Mr. and Mrs. Rob Williams
Ms. Bethany Yates
Ms. Shanna Vojtko
Mr. and Mrs. John A. Weigant
Mr. Ed Williams
Ms. Carolyn Yates
Mr. and Mrs. David Vuong
Mr. and Mrs. Robert Wein
Mr. and Mrs. Michael D. Williams
Mr. and Mrs. Dustin Yates
Ms. Jillian Wade
Mr. and Mrs. David M. Weir
Mr. Christopher Williams
Ms. Christine Yonge
Ms. Lisa Wade
Mr. and Mrs. Stephen Weis
Mr. and Mrs. Kevin Williams
Ms. Kristen York
Mr. Drew Wagner
Mr. Frank Weissmann
Mr. Christopher Williamson
Mr. and Mrs. Michael Young
Dr. and Mrs. Troy Wagner
Mr. and Mrs. James Welch
Mr. and Mrs. Brad Willoughby
Ms. Melissa Young
Mr. Adam Wagner
Wells Fargo Bank, N.A.
Mr. Joe Wilson
Ms. Stacy Young
Mr. Bert Wagner
Mr. Greg Wempe
Ms. Linda Wilson
Mr. and Mrs. Scott Young
Ms. Theresa Wahrmund
Mr. and Mrs. Alfred Wendland
Mr. Brad Wilson
Mr. and Mrs. Nathan A. Young
Mr. James Wakefield
Mrs. Sherri West
Mr. and Mrs. Ermal Wilson
Dr. and Mrs. Scott Young
Mr. James Waldron
Mr. and Mrs. Barton West
Mr. Clark Wilson
Mr. and Mrs. Russell Young
Mr. and Mrs. Bradley Walker
Ms. Rachel Westgate
Ms. Laurette Wilson
Mr. Wes Youngblood
Mr. and Mrs. Michael Walker
Mr. and Mrs. Stuart Wetzel
Mr. and Mrs. Jim Wimberly
Mrs. Amy Younkman
Mr. and Mrs. Todd Wallace
Mr. and Mrs. Chris Weyand
Mr. and Mrs. Jimmy Windham
YourCause, LLC
Ms. Ceci Wallace
Ms. Cheryl Wheatley
Mr. Jack Windham
Ms. Alicia Zander
Ms. Melissa Wallace
Mr. and Mrs. Steve Wheeler
Miss Hannah Windham
Mr. Andy Zelenski
Ms. April Walter
Ms. Melissa Wheeler
Ms. Katherine Windham
Mrs. Christine Zicarelli
Mr. Chad Walterman
Ms. Anne Wheeler
Mr. Ash Wineinger
Mr. Mark Zimmerman
Mr. Milford Wampold III
Ms. Lauren Whelan
Mr. and Mrs. Brian Wing
Mr. Blake Zimmerman
Ms. Wenqing Wang
Mrs. Jennifer Wherry
Mr. Kyle Watson
Mr. and Mrs. Marc Zimmermann
Ms. Laura Ward Woelfel
Ms. Rebecca Whetten
Ms. Julia Winston
Zion Lutheran Church and School
Ms. Elizabeth Waring
Ms. Lizzie White
Mr. and Mrs. Reid Wittliff
Ms. Tara Zmyslo
Mr. and Mrs. Mark Warren
Mr. Jeff White
Mr. and Mrs. Greg Witz
Mr. Stephen Zoog
Mr. Ty Warren
Mr. and Mrs. Taylor White
Mr. and Mrs. Brian Wojehowski
Mr. and Mrs. Brian Zucker
Warren Charitable Foundation
Mr. Chad White
Mr. and Mrs. Dick Wolbers
Ms. Janna Zylman
Mr. and Mrs. Michael Warrington
Ms. Linda White
Mrs. Ann Wolford
Ms. Rosemary Washock
adWhite Marketing
Mr. Matt Womack
Non-Profit Org.
U.S. Postage
PAID
Austin, TX
Permit No. 1434
PO Box 50221 Austin, TX 78763
2014 -15 ANNUAL REPORT

annual report 2014-15 - Beyond Batten Disease Foundation

Transcription

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