Houston Urban Indian Health - Native American Health Coalition
Transcription
Houston Urban Indian Health - Native American Health Coalition
2011 Houston Urban Indian Health: A story of Unmet Need Native American Health Coalition – Houston 4407 Rose Street, Houston TX 77007 www.nativeamericanhealthcoalition.org Houston Urban Indian Health A Story of Unmet Need Acknowledgements Our appreciation and thanks go out to the many organizations and their staffs who offered assistance and support throughout our needs assessment process. Alabama-Coushatta Tribe Alabama-Coushatta Workforce & Training Program Asian American Health Coalition Cherokee Nation Citizen Band Potawatomi City of Houston Health Department Gulf Coast TiaPiah Gourd Dance Society Houston Traders’ Village Powwow Legacy Community Health Centers Native American Methodist Church Native American Chamber of Commerce National Council of Urban Indian Health United Southern and Eastern Tribes More specifically, our thanks go out to: Walter Celestine Patrick Courtney Beverly Gor Chad Smith Bob White Finally, we acknowledge our dedicated volunteer members who worked tirelessly to spread the word, staff powwow booths, maintain websites, conduct data entry and analysis, visit city officials, and generally promote the needs of Urban American Indian/Alaska Natives in Southeast Texas. Walter Celestine, Cheryl Downing, Anna and Jim Edwards, Maggie Heagy, Larry Laufman, Ken Masters, Deborah Scott 2 Table of Contents Executive Summary Houston Urban Indian Health: A Story of Unmet Need Background American Indian/Alaska Natives in Texas Medicaid Rates for AIAN & Identity Indian Health Service in Texas Population Comparisons in Texas Population Comparisons across Urban Areas with IHS Clinics The Native American Health Coalition Accomplishments Local Needs Assessment Results Summary of Needs Assessment Findings Concluding Arguments Resources 4 5 4 8 9 9 9 10 10 14 14 19 20 22 Tables 1. 2. 3. 4. 5. 6. 7. 7 8 9 14 15 16 17 Harris County Consolidated Metropolitan Area Harris County Comparison Census Urban IHS Clinic Sites Household Size Income Characteristics of Insured versus Uninsured Healthcare Providers Charts 1. Total January 2011 Medicaid Enrolled – AIAN 8 Appendices History of NAHC Activities Comparison with Other Urban Centers Letters of Support 21 23 24 3 Executive Summary This report describes the background and health care needs of Native Americans in the Greater Houston Metroplex and the results of a local needs assessment. Houston is the fourth largest city in the United States, and is the regional center of the largest population of American Indians/Alaska Natives (totaling over 65,000), without an Indian Health Service facility. Since 1997, the Native American Health Coalition, a 501c3 organization with a 100% American Indian/Alaska Native (AI/AN) board of directors, has worked to improve the health conditions of AI/AN living in the Greater Houston area. As part of our mission, we initiated the needs assessment in order to strengthen the request for Houston to be selected as an IHS urban site. This is a summary of the results of 304 AI/ANs who completed the survey, either online or during outreach efforts such as powwows and community gatherings. Greatest percentage lives in two-person households; many are elders on limited income. 16.4% meet federal poverty level guidelines; over 70% earn $50,000 or less. 56% are employed full-time or part-time. Education attainment is much higher than national norms; however, job descriptions indicate many AI/AN in the community are underemployed. Percentage of disabled AI/ANs is half the national average, suggesting that persons with disabilities are likely to relocate away from Houston, possibly to be nearer available/affordable healthcare. Profiles of the insured versus the uninsured are very different. The uninsured are typically younger, more likely to be unemployed, more likely to live in poverty, more likely to have no health home, and much less likely to see a physician. Additionally, when they do see a healthcare provider, the distance traveled is much greater, indicating travel to places where healthcare is available, e.g. Dallas Urban Indian Center or an IHS clinic in Oklahoma. People also travel great distances to obtain prescription medications from IHS clinics, where medications are free. Primary causes for medical care are: diabetes; heart disease; influenza; cancer, blood pressure; mental health care; or musculoskeletal problems. The prevalence of cancer within the study population was an unanticipated finding. Of those reporting cancer, 53% were uninsured and 43% were insured. Primary barriers to accessing healthcare are costs and lack of insurance. The cost of prescription medications is also a significant barrier (as reported in the town hall meeting). Barriers unrelated to cost or insurance are: lack of AI/AN providers; lack of awareness about available services or knowing where to go to access services; and perception that healthcare providers don’t understand the needs of AI/AN. 4 Houston Urban Indian Health: A Story of Unmet Need Background American Indians/Alaska Natives in Texas: A Chronology Pre-1800 Many tribes traversed the area of present day Southeast Texas. Two tribes called the area home—the Atakapa-Ishak and the Karankawa. Remnants of the Atakapa-Ishak can be found today in coastal East Texas and at Grand Bayou, Louisiana. 1805 Approximately 1,000 Alabamas came to Tyler County’s Peach Tree Village. The Coushattas were already in East Texas, having arrived in the area sometime after 1795.1 During the early 1800’s, other tribal groups, including the Cherokees, Choctaws, Shawnees, Kickapoos, and Natchez sought refuge in Mexican-held southeast and east Texas and settled near the Alabamas and Coushattas. 1837 Houston became the first capital of the new Republic of Texas. Numerous tribal delegations from all over Texas, including Tonkawas, Comanches, Cherokees, and Kickapoo traveled to Houston to air grievances and to seek the assistance of the sympathetic first president, Sam Houston. 1840 Mirabeau Lamar, Sam Houston’s successor, saw the immigrant Indians as unauthorized intruders. In fact, Indian removal was a prime directive of the second President, and he removed them, sometimes by force, from Texas.2 Pockets of tribal people remained, Alabamas and Coushattas in the east Texas forests, Kickapoos in the southwest, and Tigua of Ysleta el Sur Pueblo in the west. 1 Alabama-Coushatta Tribe of Texas, http://www.actribe.com/ac/index.php?option=com_content&task=view&id=24&Itemid=133, accessed January 30, 2011. 2 The Handbook of Texas. "CHEROKEE WAR," www.tshaonline.org/handbook/online/articles/qdc01), accessed January 30, 2011 5 1848 In 1848 the Tigua of Ysleta el Sur Pueblo became part of the United States as a result of the war with Mexico. Over the years, the land holdings were illegally seized, but the group continued to hold Tribal Council meetings and maintain their cultural ties. In 1967 the state recognized the Tigua Indians of El Paso as a Texas Indian tribe. 1930 In 1930, the Texas State Board of Control began making appropriations for the Alabama-Coushatta reservation. In 1950 this responsibility was transferred to the newly-created Texas Board for State Hospitals and Special Schools. The federal government relinquished federal control over the tribe in 1955. In 1965, the Board was abolished and all responsibilities for the Alabama-Coushatta Indians were transferred to the Commission for Indian Affairs (now defunct). 1950 In the 1950s, the Eisenhower Administration adapted a “termination” policy to move Native people from reservations to urban areas to provide economic opportunity. This is the genesis of the “urban Indian.” Dallas/Fort Worth was a termination site and now has the largest concentration of Native people in the state. Other spots of higher Native population density include Houston, Austin, and El Paso. According to the 2010 US Census there are now 315, 264 American Indians/Alaska Natives (AI/AN) (self-reported as either of single or of mixed racial background) living in Texas. 1977 The Kickapoo Tribe of Texas was granted recognition in 1977. This was challenged by the State of Texas and was rescinded in 1979. The Kickapoos then worked through sister tribes in Kansas and Oklahoma and in 1982 they were recognized as an official sub-group of the Oklahoma Kickapoo Indian Tribe, enabling them to acquire their own reservation, under control of the Bureau of Indian Affairs instead of the state of Texas. 1970-1980 Native people came to Texas, and to Houston, attracted by jobs in the oil and gas industries and the low cost of living. During this time, AI/AN began to organize in various communities such as the Dallas Inter-Tribal Council (now the Dallas Urban Indian Center, and the Inter-Tribal Council of Houston (now defunct). The Dallas Urban Inter-Tribal Center now serves Collin, Dallas, Denton, Ellis, Hood, Johnson, Kaufman, Parker, Rockwall, Tarrant and Wise counties. 6 1980 The tribes began a move in the mid 1980s to have their trust responsibilities transferred back to federal control. The federal government passed a law on August 18, 1987, reassuming responsibility for the Texas Indian tribes. This eventually contributed to the demise of the Texas Indian Commission. After the State of Texas eliminated the Commission on Indian Affairs in the late 1980’s, there was no means for officially communicating or establishing networks between American Indian organizations or learning what others were doing to access or improve health conditions. 1997 The Native American Health Coalition was formed to begin to address the needs of Urban AI/ANs living in Houston and the surrounding areas. 2000 The population of AI/AN in the Houston Consolidated Metropolitan Service Area (CMSA) was 39,631.3 2010 The population of AI/ANs in the Houston CMSA increased over 57% from 39,631 in 2000 to 68, 736 in 2010.4 About 4.6% of AI/ANs received Medicaid, with Fort Bend and Waller counties having the highest rates per hundred people. Harris County Consolidated Metropolitan Area 2000 US Census Harris County Montgomery County Fort Bend County Galveston County Brazoria County Liberty County Waller County Chambers County Totals Table 1. 28,501 2,821 2009 US Census American Community Survey 32,363 4,642 2,287 2.246 2,530 716 296 234 39,631 4,384 3,272 3,006 894 541 307 49,409 3 4 2010 US Census Number & Percent All Medicaid Enrollment Medicaid Rates per 100 48,518 6,164 2,408 (0.41%) 156 (0.39%) 8.67 4.66 5,151 3,495 3,537 878 581 412 68,736 318 (0.81%) 115 (0.37%) 128 (0.43%) 32 (0.27%) 19 (0.34%) 3 (0.11%) 13.81 6.58 7.23 7.44 13.48 1.37 2000 US Census 2010 US Census 7 MEDICAID RATES FOR AMERICAN INDIAN/ALASKA NATIVES & IDENTITY The University of Texas, Health Sciences Center conducted an analysis of Medicaid utilization during an 8-month enrollment period.5 Distinctions between race and ethnicity are problematic in that many AI/AN in East Texas are reported as Hispanic. Many are in fact of mixed race, others self identify as Hispanic to maintain confidentiality, while still others are classified by reporting staff based upon appearance.6 The 2010 Census totals for Harris County, for example, show that American Indians are disproportionately classified as Hispanic. Harris County Comparison Census White Black American Indian/Alaska Native All Table 2. Non-Hispanic Hispanic 1,349,646 968,810 754,258 21,234 8,150 19,613 2,420,919 1,671,540 For both AI/AN and Hispanic populations, most Medicaid recipients lived in the southwestern quadrant of Harris County. Chart 1. 5 Texas Health and Human Services Commission, Texas Medicaid Historical (8-Month) Enrollment File. 6 Community comments during town hall meeting on June 21, 2011. 8 Indian Health Service in Texas There are 12 IHS Regions nationally and each of the three federally recognized tribes in Texas is under the jurisdiction of a different IHS region. The AlabamaCoushatta Tribe is under Nashville, TN; Tigua of Ysleta del Sur Pueblo reports to Albuquerque, NM; and the Kickapoo Tribe of Texas is under Oklahoma City, OK. The single urban Indian Health Center in Texas is in Dallas, and it also reports to the Oklahoma City Region of IHS. Thus, statewide health issues for American Indians living in Texas need to be negotiated across three IHS offices. Population Comparisons in Texas In Texas, a broad estimation of AI/AN living on or near federal reservations and accessing Indian Health Service clinics is about 3,000,7 or .09% of the total AI/AN population. The remaining 312,264 or 99% of AI/ANs in Texas live in rural or urban areas. This compares to national rates of about 60% of the AI population living off the reservation. Further, about half of these nonreservations AI/ANs (151,902) live near the two largest cities in the state--Houston (45%; 68,736) or Dallas (55%; 83,166). Population Comparisons across Urban Areas with IHS Clinics In comparison to the nine largest urban areas with an Indian Health Service clinic, Houston places fourth, with an AI/AN population of 68,736 and has more than double the AI/AN population of most other locations. Urban IHS Clinic Sites Boston Minneapolis Seattle Albuquerque Chicago Denver 2010 AI/AN Population 26,587 30,373 39,117 40,444 45,040 53,496 Houston 68,736 Dallas 83,166 Phoenix New York *Source: 2010 US Census 107,271 111,749 Counties in Service Area Essex, Middlesex, Norfolk, Plymouth, Suffolk Hennepin, Ramsey King Bernalillo Cook Adams, Arapahoe, Boulder, Broomfield, Denver, Douglas, Gilpin, Jefferson Brazoria, Chambers, Fort Bend, Galveston, Harris, Liberty, Montgomery, Waller Collin, Dallas, Denton, Ellis, Hood, Johnson, Kaufman, Parker, Rockwall, Tarrant Maricopa Bronx, Kings, New York, Queens, Richmond Total Population 4,184,036 1,661,065 4,931,249 662,564 5,194,675 2,789,669 5,891,999 6,602,468 3,817,117 8,175,133 Table 3. 7 Based on tribal counts, Alabama-Coushatta has 1200 members; Tigua of Ysleta del Sur Pueblo has about 1200 members; Kickapoo Traditional Tribe of Mexico has about 420 members. 9 THE NATIVE AMERICAN HEALTH COALITION The Native American Health Coalition (NAHC) was founded in 1997 as a community task force to aid the Area Health Education Center in representing the healthcare needs of minority communities in Houston. The organization was incorporated as a 501c3, non-profit in 2000 with the mission of increasing access to health care resources and information for American Indians/Alaska Natives living in Southeast Texas. The board is 100% AI/AN, and membership is made up of Native Americans, healthcare providers, and representatives of local social service agencies. Membership is free and open to all individuals or organizations interested in helping achieve organization goals. GOALS In collaboration with community partners, members are dedicated to combining resources and knowledge to make health services more accessible to all AI/AIs. We strive to: Provide health promotion, education and information/referral services, Ensure culturally sensitive resources for health professionals and the community, Advocate on the behalf of American Indians for essential health provision. ACCOMPLISHMENTS NAHC Conferences and Community Outreach (See Appendix for expanded descriptions) Our first event was a Wellness Conference in 1999, with subsequent conferences in 2002, 2007, 2009, and 2011. Each of these day-long events brought speakers and new information to community providers about the needs of AI/AN living in Texas. In 2009, the group received funding from St. Luke’s Episcopal Charities to provide quarterly health promotion/education programming activities. Quarterly, NAHC conducted “Dine with the Doc” meetings to foster community access to medical information. In these gatherings, NAHC member physicians presented a variety of topics, including sessions on colon cancer, breast cancer, 10 depression and heart disease. Each meeting concluded with informal questions and answers, allowing community members to gain medical insight regarding areas of concern. Currently, NAHC is partnering with TMF, Inc., and the Centers for Medicare and Medicaid to increase diabetes self management education classes for Native Americans across the state. Powwows – Another early event was collaboration with the Cherokee Cultural Society and the University of Houston, School of Optometry, to put on a Powwow for Health in conjunction with the University’s Frontier Days event in 1998. Since that time, we regularly and on an ongoing basis, staff booths at the Houston Traders’ Village Annual Powwow as well as powwows on the AlabamaCoushatta Reservation, the Tiapiah Gourd Dance Society, and the Rice University Native American Students Association. Expert Consultation – On numerous occasions, members of NAHC have been called upon to give presentations to medical personnel and community members about the health concerns and cultural norms of AI/AN in Houston and Texas. Some of these events include the Native American Initiative on Public Health Education (2003); Baylor College of Medicine (2004); Center for Research on Minority Health (2008); and the United Southeastern Tribes Bi-Annual Conference (2011). Members of NAHC represent the AI/AN community on state boards including the Center for Research on Minority Health and the Cancer Alliance of Texas. Research – Since the beginning, the organization has collaborated and partnered with many different entities. Our first activity was a needs assessment in partnership with the Texas Rehabilitation Commission. Over the years, NAHC has been a subcontractor for research about AI/AN living in the Harris County area. We wrote a collaborative grant with the Houston Regional HIV/AIDS Resource Group (2002) in order to conduct a needs assessment regarding HIV risk behaviors in AIAN males and interviewed over 100 men. We partnered with the Montrose Counseling Center on a Conference of Mayors funding opportunity (2005) and developed the NiKan Project – a case management and support group initiative for AIAN males at risk or living with HIV or AIDS. Over September, 2011, NAHC worked together with the three federally recognized tribes in Texas and with the Urban Intertribal Center of Texas (in 11 Dallas) to submit collaborative grant proposals to the National Institutes of Health and other funders. A recent application proposes to develop a cancer prevention services continuum of care for Native Americans in two urban communities (Houston and Dallas) and on the rural reservations of the AlabamaCoushatta Indians (East Texas), Kickapoo Indians (Eagle Pass along the Mexico Border), and Ysleta del Sur/Tigua Indians in El Paso). Specific Aims of the proposal are to: 1. Develop, implement, and evaluate a culturally sensitive patient navigation curriculum for cancer prevention among AI/ANs in Texas. 2. Implement and evaluate outreach and patient navigation for cancer prevention and cancer survivor support among AI/ANs in the targeted communities. 3. Provide cancer screening and prevention activities to AI/ANs living in each of the targeted communities. 4. Address sustainability of project activities by providing training in cancer related community based participatory research to the participating AI/AN organizations and tribes. For purposes of program evaluation, we propose to demonstrate the following statistically significant (p < .05) increases compared with baseline data: 1. Knowledge about breast, cervical, and colorectal cancers; their related risk factors; appropriate screening measures; and where to get screened. 2. Appropriate enrollment in Medicaid, Medicare, or other insurance for continued coverage of recommended screening during and after the period of grant funding. 3. Screening for breast, cervical, and colorectal cancers. 4. Numbers of diagnoses at earlier stages complemented by decreased numbers of diagnoses at later stages of disease. 5. Submission of new collaborative grant proposals developed by the participating AI/AN organizations and tribes. This initiative is an unprecedented effort both to work together and to impact AI/AN health care on a Statewide basis. 12 In 2010, we began a more aggressive data collection initiative in preparation for the national needs assessment mandated by the US Congress in hopes of locating an urban Indian health center in southeast Texas. More on our findings are reported herein. NOTE: The results of the needs assessment were presented to the community and local officials during a town hall meeting on June 21, 2011. During this meeting, we learned more about the gaps in services. The fundamental issue appears to be difficulty in getting prescription medications. Several community members reported on their personal stories of going with medications, “stretching” prescriptions by taking partial doses, and traveling great distances in order to get refills at a tribal clinic. The Houston community, AI/AN members, healthcare providers, and City of Houston officials were all responsive to the findings and validated the need for better AI/AN community access to care. In support of our petition to be considered as the next site for an Urban Indian Clinic, we have received letters from the following individuals: Annise Parker, Mayor of the City of Houston Ed Gonzalez, Houston City Councilor and Vice-Mayor Pro-Tem Melissa Noriega, Houston City Councilor At-Large Jolanda Jones, Houston City Councilor At-Large Mario Gallegos, Jr., Texas State Senator, District 6 Gene Green, U.S. Congressman Sheila Jackson Lee, U.S. Congresswoman Lovell A. Jones, PhD, Director of the Dorothy I. Height Center for Health Equity and Evaluation Research (formerly the Center for Minority Health Research) Ron Cookston, Executive Director of Gateway to Care, representing 167 area organizations. 13 LOCAL NEEDS ASSESSMENT Methodology In October 2010, the NAHC initiated a grass roots needs assessment effort in response to the pending national needs assessment mandated by congress to identify potential sites for new urban Indian clinics. The purpose of the needs assessment was to identify and characterize the health concerns and needs of the AI/AN community in Texas and determine for ourselves, the needs of our community. A 22-question survey was developed and broadcasted via the internet, emails, and during social events such as powwows or community meetings from October, 2010 through August, 2011. Data was entered electronically via SurveyMonkey (an internet survey program), either by the participant, or by a volunteer entering information from paper surveys. A total of 304 persons submitted an assessment. Data was downloaded into Statistical Program for Social Sciences (SPSS) software for frequency analysis and reporting. Questions on the survey collected information about demographics, health provider experiences, and health concerns (instrument included in appendices). The limitations to the generalizability of the findings are that it was a convenience sampling, was self-administered, and completed anonymously, in most cases, via the internet. The survey was brief, and many questions remain unanswered. RESULTS (N=304) Tribally Affiliated - 81.6% (247). Ages - The age range of participants was 18 to 94 years and the median age was 51. Households - The greatest percentage live in two-person households (42% or 128), followed by single person households (17.8%; 54) then three person households (15.8%; 48). Household Size One person 2 People 3 People 4 People 5 People 6 People 7 People or more Percent 17.8% 42.1% 15.8% 11.5% 7.2% 3.0% 2.7% 14 Income – Income followed the Bell Curve, with 10% to 12% at each end of the spectrum. The greatest percentage (27.9%) earned up to $50,000. The current federal poverty (FPL) guidelines are set at $20,050 for a family of four and 16.4% (44) of our study population met FPL criteria. The characteristics of these respondents indicated they were either living alone or with one other person, so were likely to be elders and retired. Income $10,000 or less $10,000 to $19,999 $20,000 to $34,999 $35,000 to $49,999 $50,000 to $74,999 $75,000 or more annually Table 5. Percent 12.3% 10.8% 25.7% 27.9% 13.0% 10.4% Gender - Slightly more females than males completed the survey (54.9% versus 45.1%). Employment (N=277) While the majority of participants had employment, only 46% were employed fulltime. Of those employed, the majority (59%) worked in blue-collar jobs or in the service sector. The rate of unemployment was 9%, the same as for the City of Houston in June 2011. The percentage of retirees was higher than the national average of 12.9%8 and the Texas rate of 10.2%9 for all races. The percent of AI/AN who were disabled was about half the national average of 17.4%.10 46% were employed full-time 10% were employed part-time o 59% of those employed work in blue collar/service jobs o 17% of those employed work in technical/skilled labor o 12% of those employed work in white collar/administrative jobs o 10% of those employed work in white collar/administrative jobs 9% unemployed 16% retired 8% disabled 11% other (housewife, student, military) 8 2009 US Census, American Community Survey. Ibid. 10 US 2011 Census http://factfinder2.census.gov/faces/tableservices/jsf/pages/productview.xhtml?fpt=table 9 15 Education (N=284) Education attainment in Houston was much higher than the national estimates. Nationally, 19.5% of the AI/AN do not complete high school, compared to 6.3% of our study population; 28.5% complete high school, compared to 19.4% in Houston; 35% complete some college, similar to the rate in Houston of 36.3%; however, only 10.8% complete college and 6.1% go on to earn a graduate degree, compared to Houston, where 22.5% have completed college and another 15% have a graduate degree.11 6.3% completed some high school or vocational training 19.4% completed high school 36.3% completed some college or vocational training 22.5% graduated college 15% were post graduates or held a professional degree Insurance (N=304) Nationally, 47.5% of AI/AN had private health insurance, while 73% of AI/AN in our study had private insurance. Nationally, 24.2% have no insurance coverage compared to 27% of our study group.12 Socioeconomic Variables Between Insured and Uninsured (N=298) The profiles of the insured versus the uninsured are very different. The uninsured are typically younger, more likely to be unemployed, more likely to live in poverty, more likely to have no health home, and much less likely to see a physician. Additionally, when they do see a healthcare provider, the distance is much greater, suggesting travel to places where healthcare they either can afford or are comfortable with, is available, e.g. Dallas Urban Indian Center or an IHS clinic in Oklahoma or New Mexico. This also reflects comments heard during the town hall meeting, in that people were traveling great distances in order to obtain prescription medications. Characteristics Insured N=216 Median Age 54 Percent Unemployed 3.5% Average Distance to Doctor* 19.5 miles Percent NO Doctor Visits in Past Year 8.5% Percent Below $20,000 Household Income 15.2% Percent No Regular Healthcare Provider 1.9% Miles to a provider ranged from 2 miles to 600 miles. Table 6. 11 12 Uninsured N=82 43 25% 126 miles 33% 43% 37.5% ibid http://factfinder2.census.gov/faces/tableservices/jsf/pages/productview.xhtml?fpt=table 16 Type of Healthcare Provider (N=296) For the uninsured, 37.5% simply do not access care; 26.3% travel to an Indian Health Service clinic (Dallas Urban Indian Center or a clinic in Oklahoma); 25% pay a private physician out of pocket; and 11% use the emergency room. Healthcare Providers Private Physician Health Maintenance Organization Hospital Emergency Room* Indian Health Service Community Clinic Veterans’ Administration I do not get healthcare Traditional Healer County Health Department Clinic *Average cost of ER visit in Houston is $20,000.8 Table 7. Insured N=222 Uninsured N=82 65.7% 25.0% 22.2% 2.5% 8.8% 11.3% 8.8% 26.3% 5.6% 7.5% 3.7% 2.5% 1.9% 37.5% 1.9% 2.5% 1.8% 10.0% Primary Reasons for Doctors’ Visits in Past Year (N=260) (Multiple responses allowed) According to the Centers for Disease Control, the leading causes of death within AI/AN populations, in order, are: heart disease; cancer; unintentional injuries; diabetes; liver disease; stroke; chronic lower respiratory disease; suicide; nephritis; and influenza.13 For AI/AN in Houston, the primary causes for medical care are: diabetes; heart disease; influenza; cancer, blood pressure; mental health care; or musculoskeletal problems. The prevalence of cancer within the study population was an unanticipated finding. Of those reporting cancer, the uninsured reported cancer at a higher percentage than the insured, 53% versus 43%. It is also important to note that overall, 29.2% see health providers annually for general exams and screenings. 13 Diabetes Heart (heart attack, arrhythmia, congestive heart failure) Breathing (influenza, pneumonia, COPD, bronchitis) Cancer High Blood Pressure Mental Health (depression, counseling) Musculoskeletal (broken bones, muscle pain) Gastrointestinal (diarrhea, stomach) 37.7% 25.4% 17.3% 15.0% 13.8% 11.2% 10.4% 8.5% http://www.cdc.gov/omhd/populations/aian/aian.htm#Ten 17 Have not seen a healthcare provider Other reasons Annual Exams 6.5% 37.7% 29.2% Barriers to Accessing Healthcare (N=276)(Multiple responses allowed) The three primary barriers to accessing healthcare are cost (52.5%), lack of AI/AN providers (30.1%), and lack of health insurance (24.3%). It is important to note that 23.2% do not know about available services and another 9.1% do not know where to go for services (an aggregate of 32.1%). Cost (too expensive) 52.5% No/Too few Native American Providers 30.1% No health insurance 24.3% Don’t know what services are available 23.2% Don’t feel providers understand health needs of NA 18.8% Distance (too far to travel) 15.9% Don’t trust healthcare providers 13.8% Don’t know where to go 9.1% Lack of transportation 7.2% 18 SUMMARY OF NEEDS ASSESSMENT FINDINGS The results of the Native American Health Coalition needs assessment present a general profile of AI/AN living in Houston and southeast Texas. This profile represents in great part, an older population due to the characteristics of respondents and the recruitment channels of NAHC members. The greatest percentage live in two-person households and many are elders on limited income. 16.4% meet federal poverty level guidelines, and over 70% earn $50,000 or less annually. 56% are employed full-time or part-time. Education attainment is much higher than national norms; however, job descriptions are primarily for blue collar and service sector positions indicating many AI/AN in the community are underemployed. The percentages of disabled AI/AN in Houston are much lower than the national average, suggesting that persons with disabilities are likely to relocate away from Houston, possibly to be nearer available/affordable healthcare. A greater percentage of AI/AN in Houston report health insurance coverage than national norms, and also report slightly higher rates of no insurance. The profiles of the insured versus the uninsured are very different. The uninsured are typically younger, more likely to be unemployed, more likely to live in poverty, more likely to have no health home, and much less likely to see a physician. Additionally, when they do see a healthcare provider, the distance traveled is much greater, indicating travel to places where healthcare is available, e.g. Dallas Urban Indian Center or an IHS clinic in Oklahoma. As remarked above, people also travel great distances to obtain prescription medications from IHS clinics, where medications are free. For AI/AN in Houston, the primary causes for medical care are: diabetes; heart disease; influenza; cancer, blood pressure; mental health care; or musculoskeletal problems. The prevalence of cancer within the study 19 population was an unanticipated finding. Of those reporting cancer, 53% were uninsured and 43% were insured. Primary barriers to accessing healthcare are costs and lack of insurance. The cost of prescription medications is often more of a barrier than the cost of medical care (as reported in the town hall meeting). Barriers unrelated to cost or insurance are: lack of AI/AN providers; lack of awareness about available services or knowing where to go to access services; and perception that healthcare providers don’t understand the needs of AI/AN. These findings support the need for health navigators, specific to AI/AN, to increase the awareness of available resources. Racial misclassification occurs on an individual and systemic level. During the town hall meeting, AI/AN attendees reported first-hand experiences with racial misclassification. Systemically, data specific to AI/AN is hard to capture due to the data collection practices of local health departments and hospital systems. CONCLUDING ARGUMENTS Despite the wary relationship between the State of Texas and American Indian/Alaska Natives, the AI/AN population continues to increase, growing 57% between 2000 and 2010. Due to misclassification, these numbers may in fact be artificially low. Counter to the national population , over 99% of AI/AN in Texas live offreservation compared to the estimated 60%14 of AI/AN nationally, indicating a strong and consistent migratory pattern into the state, likely due to economic factors such as jobs; this, despite the fact that many AI/AN are underemployed. Jobs are also likely the reason AI/AN live in or near metropolitan areas. In this study, a relatively high population of retirees coincides with percentages living alone or in a two-person household and living in poverty, indicating many elders live on low incomes. Alternatively, the percentage of disabled individuals is much lower, indicating a likelihood that persons relocate away from Houston if they become disabled. They may, in fact, return to “home” communities or tribal lands where access to IHS social services is much easier. 14 http://www.census.gov/prod/2006pubs/censr-28.pdf 20 Cost and lack of insurance are barriers to accessing healthcare, but perhaps more importantly, cost is a primary barrier to accessing prescription medications. This may also be a factor in the great distances some participants travel to reach a health care provider, in that services at an IHS facility includes free medications. Many from Houston travel to Dallas for care at the IHS clinic, and others travel over 500 miles to Oklahoma or New Mexico, to get necessary healthcare. Of the 315, 264 AI/AN living in Texas, about half live near either Houston or Dallas. Dallas is a “termination” location and boasts the only Urban Indian Health Service Center in Texas that is available to any federally recognized AI/AN. Following Dallas, Houston has the greatest AI/AN population in the state and ranks higher than many other cities nationally that are currently receiving Indian Health Service healthcare. The Native American Health Coalition has a long history of conducting community-driven research and providing health promotion and education programming to AI/AN living in the Gulf Coast area. NAHC has long-standing relationships with other area service providers, and is one of the only organizations in Texas providing these types of services. 21 RESOURCES US Census Bureau. 2000 US Census. [Online] http://quickfacts.census.gov/qfd/states/48000lk.html 2. US Census Bureau. 2005-2009 American Community Survey 5-Year Estimates. American Community Survey. [Online] http://factfinder.census.gov/servlet/ACSSAFFFacts?_event=Search&_lang=en&_sse =on&geo_id=04000US48&_state=04000US48 Urban Indian Health Institute. 2009. [Online] www.uihi.org/urban-indian-healthorganization-profiles Alabama-Coushatta Tribe of Texas. 2011. Tribal History. [Online] http://www.actribe.com/ac/index.php?option=com_content&task=view&id=24&Itemid=133, accessed January 30, 2011. The Handbook of Texas Online. 2011. [Online] "CHEROKEE WAR," www.tshaonline.org/handbook/online/articles/qdc01), accessed January 30, 2011 Sage Associates, Inc. 2002. Great Houston Native America/Alaskan Native HIV Testing Survey. Unpublished. Presented to CDC HITS Survey Meeting. San Francisco, California. Native American Health Coalition. 2010. Native American Health Coalition Urban Indian Health Needs Assessment. Unpublished. Asim Shah, MD. 2011. Deputy Director, Ben Taub Hospital Department of Psychiatry, Harris County Hospital District. Associate Professor of Psychiatry, Baylor College of Medicine. In discussion of the average cost of one visit for all reasons, to the Ben Taub Hospital Emergency Center. Baylor College of Medicine Department of Psychiatry Grand Rounds. February 02, 2011. 22 APPENDICE - History of Activities Dates June, 1997 March, 1998 Types of Activities Community-based Needs Assessment Powwow for Health Partner or Location Texas Rehabilitation Commission Cherokee Cultural Society and University of Houston October 15, 1999 1999 Wellness Conference June, 2000 The NiKan Project: Houston/Harris County Native American Prevention Case Management Project Annual Texas Championship Indian Powwow Directory of Native American Resources in the Houston Area Greater Houston HIV Testing Initiative for AIAN males United Way of Southeast Texas Montrose Counseling Center November 14-15, 2000 2002 2002 2002 and ongoing Staffed health screening booth Distributed throughout Houston Centers for Disease Control and Houston Regional HIV/AIDS Resource Group Developed by NAHC M D Anderson Medical Center Traders’ Village – Houston 5/17/2008 Annual Texas Championship Indian Powwow Alabama-Coushatta Health Fair 2008 Health Disparities Conference July, 2008 Minority Tri-Caucus Conference January 23, 2009 NAHC Health Conference August 2009 – and ongoing August 2009 – September 2010 Cancer Alliance of Texas member Dine with the Doc Cancer Alliance of Texas September, 2009 Circles of Sisters Mammography Screening and Health Information Day Annual Texas Championship Indian Powwow Center for Research on Minority Health 2004 August, 2007 September 2007 October, 2007 November, 2007 November , 2009 Sub-contracted with Montrose Counseling Center to identify and provide case management to AIAN males at risk for HIV. Traders’ Village – Houston Center for Minority Health and Research – MD Anderson NAHC Conference Native American Initiative on Public Health Education and Careers Presentation on AIAN Health Needs American Indian/Alaska Native Working Meeting in Colorectal Cancer Colorectal Cancer Prevention Events Created two advisory committees (rural and urban) to inform community event NAHC Conference October, 2002 August 14-15, 2003 Activities of NAHC Assisted TRC with data collection regarding AIAN population in Houston Partnered with the Cherokee Cultural Society to put on a powwow with health vendors and screening opportunities Host organization for conference Subcontracted with the Houston Regional HIV/AIDS Resource Group to conduct needs assessment of 102 AIAN males and risk behaviors for HIV Represent AIAN as community board member Ysleta del Sur Pueblo, El Paso, TX Guest presenter Baylor College of Medicine, Houston Spirit of Eagles, Portland, OR Guest presenter Prevent Cancer Foundation Conducted two educational events—an evening dinner with Houston community and luncheon with Alabama-Coushatta community – Cancer prevention topic and testimonial from cancer survivor. Hosted IHS presenters from 3 regions to education about how services are administered in Texas Health screening booth United Way – Houston Alabama-Coushatta Reservation Center for Research on Minority Health Center for Research on Minority Health United Way St. Luke’s Episcopal Health Charities Traders’ Village – Houston Represented Texas in colorectal planning Health Information booth Conference Presenter Represented AIAN community and informed on health needs Coordinated local conference for healthcare providers Represent AIAN at quarterly meetings Conducted four quarterly dinners with AIAN community in Houston, featuring a different health concern at each dinner. Coordinated day of events and transported participants from Alabama-Coushatta Reservation Health screening booth 23 March, 2010 June 4, 2011 Circles of Sisters Mammography Screening and Health Information Day Began local needs assessment data collection Health for Life, Diabetes Self Management Education Program Annual Texas Championship Indian Powwow United Southeastern Tribes Conference Methodist Church Native American Day NAHC Conference June 21, 2011 Town Hall Meeting October, 2010 October, 2010 November, 2010 February 7-9, 2011 May, 2011 Center for Research on Minority Health Traders’ Village – Houston Coordinated day of events and transported participants from Alabama-Coushatta Reservation Data collection and reporting on needs of American Indians/Alaska Natives in Houston. Outreach to AIAN in rural and urban areas to recruit into diabetes self management education programs. Health screening booth Washington, DC Presentation on needs assessment findings Methodist Church Staffed information booth Alabama-Coushatta Reservation United Way of Greater Houston Coordinated local conference for providers and community members Presentation to community of needs assessment findings NAHC TMF, Inc., and JB Management Solutions 24 COMPARISON With OTHER URBAN CENTERS Urban Indian Centers Boston Counties/AIAN Pop. Essex – 6151 Middlesex – 7942 Norfolk – 3228 Plymouth – 3571 Suffolk - 7695 Counties/Total Pop. Essex 743159 Middlesex, 1503085 Norfolk, 670850 Plymouth, 494919 Suffolk, 772023 Minneapolis Hennepin – 21,106 Ramsey – 9,267 Bernalillo – 40,444 King – 39,117 Cook – 45,040 Adams – 10,957 Arapahoe – 10,264 Boulder – 3,987 Broomfield - 741 Denver – 14,995 Douglas – 2,937 Gilpin – 98 Jefferson – 9,517 Harris, 48518 Montgomery, 6164 Fort Bend County, 5151 Galveston County, 3495 Brazoria, 3537 Liberty, 878 Waller, 581 Chambers, 412 Totals 68,736 Collin – 9.503 Dallas – 30,403 Denton – 9,501 Ellis – 1,865 Hood - 702 Johnson – 2,108 Kaufman – 1,453 Parker – 1,880 Rockwall – 933 Tarrant – 23,858 Wise – 960 Totals 83,166 107,271 Bronx – 32,011 Kings – 26,571 New York – 19,415 Queens – 30,033 Richmond – 3,719 Alameda -26,089 Contra Costa – 17,327 Marin – 3,787 San Francisco – 10,873 San Mateo – 8,367 Hennepin, 1152425 Ramsey 508640 Bernalillo 662564 King 4931249 Cook 5194675 Adams, 441603 Arapahoe, 572003 Boulder, 294567 Broomfield, 55889 Denver, 600158 Douglas, 285465 Gilpin, 5441 Jefferson 534543 Harris, 4092459 Montgomery 455746 Chambers 35096 Fort Bend 585375 Galveston 291309 Brazoria 313166 Liberty 75643 Waller 43205 Los Angeles – 140,764 San Diego – 52,749 Los Angeles, 9818605 San Diego 3095313 Albuquerque Seattle Chicago Denver Houston Dallas Phoenix New York N. California S. California Collin, 782341 Dallas, 2368139 Denton, 662614 Ellis, 479610 Hood, 51182 Johnson, 150934 Kaufman, 103350 Parker, 116927 Rockwall, 78337 Tarrant, 1809034 Wise 59127 Maricopa 3817117 Bronx, 1385108 Kings, 2504700 New York, 1585873 Queens, 2230722 Richmond 468730 Alameda, 1510271 Contra Costa, 1049024 Marin, 252409 San Francisco, 805235 San Mateo 718451 25 27 28 29 30 31 32 33 34