CanChild: Research Making a Difference

Transcription

CanChild:ResearchMakinga
Difference
Overviewof
CanChildProductivityin2014
Preparedfor
Dr.StephenCollins,AssociateDeanResearch
Dr.JohnKelton,Dean,FacultyofHealthSciences
Dr.PattySolomon,AssociateDeanSchoolofRehabilitationScience
Dr.LennoxHuang,Chair,DepartmentofPediatrics
SubmittedonbehalfofCanChildby
JanWillemGorter,Director
July30,2015
Table of Contents Highlightsfrom2014:.............................................................................................................................................2
ProgrammesofResearch......................................................................................................................................6
AutismSpectrumDisorder..............................................................................................................................6
CerebralPalsy.......................................................................................................................................................6
DevelopmentalCoordinationDisorder......................................................................................................7
Epilepsy....................................................................................................................................................................9
FamilyCentredCare........................................................................................................................................10
KnowledgeTranslation..................................................................................................................................10
MildTraumaticBrainInjury........................................................................................................................11
Participation.......................................................................................................................................................12
TransitiontoAdulthood................................................................................................................................13
OurTeam...................................................................................................................................................................15
Scientists,ResearchAssociates,&InternationalCollaborators...................................................15
CanChildResearchandKnowledgeTranslationSupport................................................................17
Publicationsin2014:...........................................................................................................................................18
Published..............................................................................................................................................................18
Books......................................................................................................................................................................40
BookChapters....................................................................................................................................................40
CanChildGrantFunding......................................................................................................................................42
NewFundingfor2014:..................................................................................................................................42
CurrentOngoingProjectsLocatedatCanChild....................................................................................50
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Highlights from 2014: People:
OurTeamisgrowing!
 Drs.BrianoDiRezzeandWenonahCampbellwereofferedFacultypositionswithinthe
SchoolofRehabilitationScience.Dr.MarkFerrowasofferedajointFacultypositioninthe
departmentsofPsychiatryandBehaviouralNeurosciencesandPediatrics.Allbecame
ScientistswithCanChildin2014.
 Dr.SandraHodgettsfromtheUniversityofAlbertabecameaCanChildResearchAssociatein
2014!Drs.LisaChiarello,LynnJeffries,AlyssaLaFormeFiss,andSallyWestcottMcCoy
becameInternationalCollaboratorswithCanChild.
Publications:
 CanChildmembershavepublishedover220articlesinpeer‐reviewedjournalsintheareas
ofchildhealth,childhooddisability,measurementandknowledgetranslation(in2014).
ResearchFunding:
 Atotalof69grantswerefundedtoCanChildmembers(aseitherPIorco‐I)in2014netting
morethan$9milliondollarsinnewgrantfunding.
Awards/Recognition:
Students
 CoraLeeMcLarenwasafinalistatthe2014HollandBloorviewPursuitAwardsinToronto.
 MichellePhoenix,CanChildPhDstudentunderthesupervisionofDr.PeterRosenbaum,
receivedtheawardfor‘outstandingposterpresentation’inthePhD/Fellowscategoryatthe
ChildHealthResearchDayatMcMaster.
 TramNguyen(CanChildPhDstudentunderthesupervisionofDr.JanWillemGorter)and
AndreaCross(CanChildPhDstudentunderthesupervisionofDr.PeterRosenbaum)were
bothawardedaspecialtrainingopportunityinintegratedKnowledgeTranslation(iKT)
throughtheCanadianChildHealthClinicianScientistTrainingProgram(CCHCSP)andthe
CouncilforCanadianChildHealthResearch(CCCHR).Thistrainingopportunitytookplace
inVancouveronJune6‐8th2014.
 Dr.KeikoShikako‐Thomas,CanChildPost‐DocFellow,wasawardedtravelscholarships
throughCIHRandAACPDM.
CanChildInternationalCollaborators
 Dr.LisaChiarellowasawardedtheCatherineWorthinghamawardthroughtheAmerican
PhysicalTherapyAssociation.
CanChildResearchAssociates
 Dr.DanaAnabywasawardedaNewInvestigatorCareerAward:Junior1ResearchScholars
throughtheFondsderechercheduQuébec‐Santé(FRQS)
 Dr.GillianKingwasawardedaTier1CanadaResearchChairinOptimalCareforChildren
withDisabilities.
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


Dr.SandraHodgettsandAutismResearchteam(40members)wereawardedthe
President’sExcellenceAwardforOutstandingAchievementsinResearchfromtheAlberta
HealthServices.ShealsoreceivedateachingawardthroughtheRehabilitationMedicine
Students’Association.
Dr.SheilaBennettwasawardedtheExcellenceinPublicEducationAward,District8OSSTF
AvonMaitland.
Dr.DarcyFehlingswaspromotedtoProfessor,DepartmentofPaediatricsattheUniversity
ofToronto.
CanChildScientists
 Dr.MaryLawwasnamedInnovatoroftheYearatthe2014InnovationShowcaseat
McMasteronNovember12.Thisawardrecognizesherinitiativesoverthelastyeartore‐
vamptheCanChildwebsiteandcreaterevenuestreamsthroughexistingmeasuresandnew
serviceofferings.ItwasacknowledgedthatthiswasateameffortfromtheentireCanChild
group!
 CanChildCo‐FounderandCP‐NETExecutiveCommitteeMemberDr.PeterRosenbaum
receivedtheLifetimeAchievementAwardattheAmericanAcademyforCerebralPalsyand
DevelopmentalMedicine(AACPDM)onSeptember11,2014!Thisawardacknowledges
Peter's"creativecontributionsofoutstandingsignificancetothefieldofmedicineandfor
thebenefitofpatientswithcerebralpalsyandotherchildhood‐onsetdisabilities."Dr.Darcy
Fehlings,ScientificDirector/LeadofCP‐NETandFirstVice‐Presidentofthe68thAnnual
MeetingoftheAACPDM,presentedtheaward.
 Dr.CherylMissiunawasawardedtheJohnandMargaretLillieChairinChildhoodDisability
Research.
 Dr.EyalCohenwasthewinneroftheJuniorFacultyAwardforClinicalExcellencein
PaediatricMedicalCarethroughtheDepartmentofPaediatrics,UniversityofToronto,
HospitalforSickChildren.HealsoreceivedtheVisitingInnovatorAward,CenterforChild
HealthPolicyatStanfordUniversity.
 Dr.MarkFerrowasawardedtheBrainStarAwardthroughtheInstituteofNeurosciences,
MentalHealthandAddictionatCIHR.HealsoreceivedtheW.E.NoonanFellowship,
ResearchEarlyCareerAwardthroughtheHamiltonHealthSciencesFoundation.
 Dr.VirginiaWrightwasawardedtheCircleofHonourAward2014forOutcomesResearch
andClinicalCollaborationfromHollandBloorviewKidsRehabilitationHospital.
 Dr.MaryLawwasawardedtheLifetimeMembershipAwardthroughboththeOntario
SocietyofOccupationalTherapistsaswellastheCanadianAssociationofOccupational
Therapists
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McMaster/CommunityInvolvement


OnJune23rd,2014,CanChild
launchedits25thAnniversary
Celebrations!McMaster
leaders,CanChildfriends,families
andsupportersgathered
tocongratulatetheteam!Aspart
oftheevent,CanChildunveiled
theredesignof
theCanChildhomepage
(www.CanChild.ca),thenew
communicationsroom,andthe
winnersoftheArtContest.
InlateSeptember,CanChildmembersparticipatedintheClimb‐a‐thonandAccessibleSport
ShowcasewhichwasrunbytheHamiltonAccessibleSportsCouncil

OnSaturdayNovember22,2014familiesofchildrenwithdisabilities,serviceproviders,
researchersandCanChildstaffgatheredtogetherforacelebratoryFamilyEngagementday
‐CanChild:Whatwe"CAN"dotogetherontheMcMasterCampus.Activitiesincluded
liveentertainment,food,family/youthpanel,"hottopic"roundtables,postersand
networking.Thedaywasco‐fundedbyMcMasterChildren’sHospitalFoundation,Holland
BoorviewResearchInstitute,theOntariofederationforCerebralPalsy(OFCP)andan
AwardfromNeuroDevNet,CentreofExcellenceinneurodevelopmentaldisabilities.The
daywassharedonline(live‐stream)andrecorded:(www.canchild.ca)
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Commercialization
 In2014,revenuesfromthesaleofCanChildmeasuresnettedapproximately$37,000.
 CanChildwasexcitedtoannouncethelaunchofitsnewMeasurementandAnalysisService
earlierin2014.Thisservice,beginningwiththeMeasureofProcessesofCare‐20(MPOC‐
20),providesconsultation,electronicdatacollection,analysisandreportingto
organizationsforafee.Thenewservicebenefitsfamiliesbyassistingorganizationsto
provideservicesthataremorefamily‐centred,abestpracticeinpediatricrehabilitation.
 CanChildwasalsodelightedtoofficiallyopentheeStoreinlateAugustof2014!Proceeds
fromtheStorehelpsupportourknowledgetranslationactivitiestoimprovethelivesof
childrenandfamilies.
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Programmes of Research Thefollowingpagesoutlineourprogrammesofresearchandourprogressthrough2014.
Autism Spectrum Disorder  RosenbaumPL(PI),DiRezzeB,CooleyHideckerMJ,LawM,
StratfordP,SzatmariP,ZwaigenbaumL.Developmentofthe
AutismClassificationSystemofFunctioning:Social
Communication.CIHR,$374,666.2011‐2014.
 RosenbaumPL(PI),DiRezzeB(co‐PI),GeorgiadesS,
ZwaigenbaumL,CooleyHideckerMJ,GentlesS,DukuEK.
TowardsaFunctionalClassificationSystemforPreschool
ChildrenwithAutismSpectrumDisorder:AProspective
ExaminationtoClassifySocialCommunicationAbilities.
HAHSO,$192,833.2015‐2017.
Childrenwithautismspectrumdisorder(ASD)facechallengesinthedevelopmentofsocial
communicationabilities—oneofthehallmarkfeaturesofthedisorder.Thereis,however,
ambiguityandalackofaconsensusdefinitionfortheconceptof“socialcommunication.”Working
collaborativelywithparentsandprofessionals,wehavedevelopedanovel,strengths‐focused
classificationtool,theAutismClassificationSystemofFunctioning:SocialCommunication
(ACSF:SC).TheACSF:SCempowersparentswiththetypeofinformationtheyvaluemost–namely,
meaningfulinsightsintotheirchild’sfunctioning.Parentscanusesuchinformationasthey
participatewithprofessionalstoputappropriatesupportsinplacefortheirchild.
Thistoolhasbeenunderdevelopmentforthepast3yearswithCIHRgrantfunding.Thestudyteam
startedoffbydevelopingthecontentoftheACSF:SCandfieldtestingittoensurethatitclearly
describespreschoolagedchildrenwithASD.Since2013,theteamalsotestedthereliabilityofthe
ACSF:SCandisnowintheprocessofexaminingitsvalidity.Weaimtohavetheparticipationfrom
50parentsand100professionals(educatorsandclinicians)atthisfinaldevelopmentstage.Our
goalhasbeen,andcontinuestobe,toaddressthismajorpracticalchallengeinthefieldofASD–the
needforprecisionandconsistencyinhowwediscussandcategorizethefunctionalmanifestations
andimpactsofASDfromastrengths‐focusedview.
Cerebral Palsy Cerebralpalsy(CP)affects2‐3childrenper1000inthewesternworld(andmanymoreinthe
developingworld).CPisdefinedinpartas“…agroupofpermanentdisordersofthedevelopmentof
movementandposture,causingactivitylimitation,thatareattributedtonon‐progressive
disturbancesthatoccurredinthedevelopingfetalorinfantbrain.”1(Rosenbaum,2008)
In2011,theOntarioBrainInstitutefundedtheChildhoodCerebralPalsy
IntegratedNeuroscienceDiscoveryNetwork(CP‐NET).Thenetwork
consistsofleadingCPresearchersfromacrossOntarioincluding5
CanChildinvestigators.Thepurposeofthisprogramistofurtherour
understandingofCPthroughpartnershipsbetweenresearchers,
industryandpatientadvocacygroups.In2013,theprojectwasapproved
for5yearsofadditionalfunding.
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Theprojectconsistsof6platforms:ClinicalRiskFactors(collectsinformationonriskvariables
fromneonatalandmaternalhealthrecords);NeuroimagingPlatform(analyzesneuroimaging
records);GenomicsPlatform(collectssalivasampletoanalyzeDNA);.Neurodevelopmental
Platform(assesseschildrenusingstandardizeddevelopmentaloutcomemeasuresincludinga
neurologicalexam);PsychoSocial/ParticipationPlatform(assessmentsofmentalhealthand
well‐beingofchildrenandfamilies);andtheKnowledgeTranslationPlatform(bringtogether
researchers,industry,patientadvocacygroupsandfamiliestoguidethedirectionoftheproject).
CanChildhasbeenleadingtheKnowledgeTranslationactivitiessincetheinceptionoftheproject.In
2014,weheldthreeParentAdvisoryMeetings,developedKnowledgeTranslationpiecestohelp
peopleunderstandhowclinicalresearchworks,developedaCP‐NETnewsletterandorganizeda
CP‐NETFamilyandSciencedayinconjunctionwithWorldCPDay.
ThenewAdolescentandYoungAdultproject(fundedinPhase2oftheproject)isledbyDr.Jan
WillemGorterandisinvestigating:thecourseofphysicalhealth(fatigue,pain),mentalhealth
(anxietyanddepression)andwell‐beingamongadolescentsandyoungadults(AYA)withCP;
explorebrain‐behaviourconnections(emotionalregulationandexecutivefunction);andthe
mechanismsofimpairedhealthandwell‐being–andinparticulartheroleofchronicstress–on
brainfunctioninganddevelopment. To date,fifteenparticipantshaveconsentedtotakingpartin
thefMRIbrainbehaviourprotocol.Thesewillbescheduledinmid‐to‐late2015.
CanChild/McMasterisalsoplayingakeyroleinrecruitingandassessingchildrenfromMcMaster
Children’sHospitalfortheotherplatforms.Todate,28patientswhofittheinclusioncriteriahave
beenidentifiedandapproachedaboutthestudy.
DevelopmentalCoordinationDisorder

Missiuna,C.(PI),Pollock,N.,Bennett,S.,**Camden,C.,
**Campbell,W.,McCauley,D.,Gaines,R.,Cairney,J.
ImplementationandevaluationofPartneringforChange,an
innovativemodelthatwilltransformhealthserviceprovision
forschool‐agedchildrenwithdevelopmentalcoordination
disorder.MinistryofHealthandLongTermCare.$994,600,
2013‐2015.
InOntario,interventionforchildrenwithDCDistypicallyprovidedby
occupationaltherapists(OT)inschoolsettingsandinvolvesone‐on‐
oneassessmentfollowedbyintervention(mostofteninvolving
withdrawalofthechildfromtheclassroom)totryandchangechildren’sunderlyingmotor
impairment.WaitlistsinOntarioareextremelylongfor“SchoolHealthSupportServices”(SHSS)
andwait‐timesof18‐24monthsforanOTaretypical.Infact,childrenwithcoordinationdifficulties
arethelargestsingleusergroupreferredtotheOntariohomecaresystemacrossallpaediatric
andadultpopulations.
In2008/09,CanChildbroughttogetherover60stakeholders,includingschoolboard
administrators,teachers,specialeducators,governmentpolicyanalystsfromMOHLTC,MEDU,
MCYS,healthcaredecision‐makers,healthcareprovidersandfamiliestoshareideasaboutwhat
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typeofhealthservicewasactuallyneededtosupportthesechildreninschoolsettings.Theprogram
ofservicesthatresulted,PartneringforChange,isevidence‐driven(Missiunaetal.,2012a).OTs
buildcapacitythroughcollaborationandcoachingwiththeschoolbecomingthe"client",rather
thananyindividualstudent.Thiscomprehensiveprogramofservicesisdeliveredinschoolsettings
tomeettheneedsofchildrenwithDCD.
In2013,CanChildinvestigatorsreceivedfundingfromtheMinistryofHealthandLongTermCareto
continuethisworkandtoevaluatethismodelwithmoreCCACsandschoolboardsintheprovince.
Thisprojectwillcollectimportantinformationthatwillguidestrategicplanningandhopefully
widespreadimplementationacrossOntario.
TheobjectivesofthecurrentPartneringforChangeprojectareto:
•facilitateearlieridentificationofchildrenwithDCD;
•buildcapacityofeducatorsandparentstomanagetheneedsofthesechildren;
•improvechildren'sabilitytoparticipatesuccessfullyinschoolandhomeenvironments;
•facilitatefamilymanagementtopreventsecondarydisability.
Inthefallof2013,thePartneringforChangemodelofservicedeliverywasimplementedin40
schoolswithinthreeschoolboards:PeelDistrictSchoolBoard,HaltonDistrictSchoolBoardandthe
HamiltonWentworthCatholicDistrictSchoolBoard.
Inthefirstschoolyear(November2013–June2014),15occupationaltherapists(OTs)provided
serviceoneday/weekin40schoolsandoffered:
 385teacherin‐services(formalandinformal)tobuildcapacity
 704universaldesignforlearningactivitiesatawholeclasslevel;reachingover17,600
children(basedonavg.classsize)
 2980opportunitiestoscreensmallgroupsofchildren,trialdifferentiatedinstructionand
sharefindingswitheducatorsandparents
 3,329individualaccommodationsuggestionsfor592childrenandsharedthatknowledge
witheducatorsandfamilies
Threehundredandninetytwoofthe592childrenreceivingP4Cserviceswerealsorecruitedinto
thestudy.Measurementofchild,familyandeducatoroutcomesisunderwayusingeducatorand
parentpre‐andpost‐standardizedmeasuresincluding:theSchoolFunctionAssessment(SFA),
ChildandFamilyDemographics,DCD‐Questionnaire,StrengthsandDifficultiesQuestionnaire,
KnowledgeQuestionnaires,ParticipationandEnvironmentMeasure.
In2014,qualitativeinterviewswerecompletedwithkeystakeholdersincluding14schoolboard
managers,principals,andspecialeducators;12healthcarecoordinatorsandmanagers;5OTsand
3researchteammembersafterYear1.FocusgroupsalsowerecompletedwithallOTsinYear1.
Additionalinterviewsandfocusgroupsaretakingplaceinthespringof2015.
Researchtodatehasshown:thatthisnewmodelisrelevantforchildrenwhohavesignificantdaily
motor,self‐care,andacademicchallenges;facilitatesequalaccesstoservices,eliminateswaitlists,
andserveslargenumbersofchildrenwithadiversearrayofspecialneeds.Moreover,themany
stakeholdersinvolvedintheresearchandimplementationofthisservicemodelhaveindicatedthat
thecoreprinciplesandfeaturesofP4Carerelevanttoallhealthprofessionalsandeducators
seekinganintegratedframeworkforrehabilitationserviceprovisioninOntario.
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Epilepsy  RonenG,BoyleM,CunninghamC,LachL,RosenbaumP,&
StreinerD.Qualityoflifeinchildrenwithepilepsy:Whatfactorsare
important?CIHR,$795,485,2008‐2013
ThisHealthRelatedQualityofLife(HRQL)projectisamulti‐sitelongitudinalstudywithsubjects
enrolledfrompediatricshospitalsacrossCanada,involvingfamiliesfromBritishColumbia,Alberta,
Manitoba,Saskatchewan,Ontario,andQuebec.Atotalof506participantsandtheirfamiliesfrom
acrossthese6provinceswereberecruited.Throughthisstudyweproposetoquantifytheroleof
specificbiomedicalandpsychosocialchildandfamilyvariablesthatwebelieveunderliehealth
outcomesthatrelatetothechild’spsychosocialadjustment,participation,andhealth‐related
qualityoflife.Thisstudyusesamultivariatelongitudinaldesigntoexaminesimultaneouslyseveral
determinantsofoutcomesinchildhoodepilepsy.
Byconductingthisstudy,wehopetoidentifythevariablesthatareempiricallyassociatedwith
outcomesinchildrenandyouthwithepilepsy,aswellastherelativeimportanceoftheseoutcomes
overtime.Weanticipatebeingabletoidentifymoderatingandmediatingfactors,includingthose
potentiallyamenabletointervention.Thesefindingswillhelpclinicianstoidentifytargetsfor
futureinterventionstudies.Thisinturn,willbetterenablepeopletorecognizeandacton
opportunitiesforprimaryandsecondarypreventionoftheconsequencesofchildhoodepilepsy,in
ordertomanagechildhoodepilepsymoreeffectivelyandholistically.0
Overthepastyear,wehavecompletedstudyrecruitment,aswellasthefirstthreesetsoffollow‐up
visits.Wearenowfocusedonfollowingparticipantsfortheirremainingtwovisits.Wepublished
ourmethodspaperinAugust,2014.
 RonenGM,StreinerDL,BoyleMH,CunninghamCE,LachL,VerheyLH,FayedN,ChenK,
RosenbaumPL,andtheQUALITÉGroup:(ConnollyM,Bello‐EspinosaLE,RafayMF,
AppendinoJP,ShevellM,CarmantL).Outcomestrajectoriesinchildrenwithepilepsy:
hypothesesandmethodologyofaCanadianlongitudinalobservationalstudy.Pediatric
Neurology.2014:50:38‐48.
********
 RonenG,RosenbaumP,BrayS,TimmonsB,&StreinerD.Enhanced
PhysicalActivityinChildrenandYouthwithEpilepsy:Exploring
Evidenceoftheimpactsonhealth,functioning,psychologicalwellbeing
andqualityoflife.HAHSO:$179,570,2012‐2014.
 RonenG,RosenbaumP,BrayS,TimmonsB,&StreinerD.Physical
ActivityinChildrenandYouthwithEpilepsy:ExploringEvidenceofthe
impactsonhealth,functioning,psychologicalwellbeingandqualityof
life.OBI:$25,000,2014‐2018.
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This project explores the relationship between increased physical activity (PA), epilepsy and co‐
morbidityfactors,qualityoflifeandpsychologicalwell‐beinginapedometer‐monitoredenhanced
walkingprogramcombinedwithmotivationalstrategies.
Weplanto(i)undertakeaprospectiverandomizedcontroltrialtoevaluatetheeffectsofincreasing
PA levels through a modern pedometer‐measured walking program, and (ii) follow this by
assessment of the sustainability of the program. Results from the enhanced PA group will be
comparedtoresultsfromtheexistingPAlevelofthecontrolgroup.
WehypothesizethatamotivationalprogramtoincreasethelevelsofPAover6monthswillresultin
sustainablyenhancedPA.Inturn,thiswillpositivelyandsimultaneouslyinfluencebrain‐healthand
reduce co‐morbidities in children with epilepsy, leading to improved health and life quality in
childhood,potentiallycontinuingintoadulthood.
Evidencefromthisstudycouldinformsignificantchangesinclinicalcareinthenearfutureleading
tosomenon‐pharmacologicalnewstandardsofcare.Thesenewstandardscouldleadtoa
reductionincurrentandfutureco‐morbiditiesand,atnoextracosttotheProvincialGovernment.
Family Centred Care In2014,weannouncedtheMeasurementandAnalysisServicefortheMeasureofProcessesofCare
(MPOC‐20).Thisserviceincludesconsultation,implementationofanevaluationusingtheMPOC,
dataanalysis,interpretationandreporting.TheMinistryofChildrenandYouthServicescontacted
uswitharequestforCanChildtoconductanevaluationoftheAppliedBehaviouralAnalysis(ABA)‐
basedServicesandSupportsprogramacrossOntario.Overthefall,weengagedincontract
negotiationswiththeministrywithafinalcontractsignedinearly2015.
Knowledge Translation InpartnershipwithBloorviewResearchInstitute,welaunchedacallforajointCanChild–
BloorviewPostdoctoralFellowship(2014‐2016).InDecember2013,Dr.CoraleeMcLarenwas
selectedastheinauguralrecipientofthisaward.Dr.McLarenhasabackgroundinbothnursingand
dance,aswellasadoctoraldegreeinrehabilitationscience.SheissupervisedbyDrs.Cheryl
MissiunaandBarbaraGibson,Corawillconductherownveryexcitingresearchprojectlookingat
environments,fromallperspectives,forchildrenwithdisabilitiesinschoolsettings.Infact,in
Januaryof2014shewasgrantedaCIHROperatingGranttoinvestigatehowchildrenwithdiverse
dis/abilitiesrespondtodance‐playevents.
CanChildhasalsoimplementedstrategiestoincreasepartnershipswithfamiliesandyouth.Dr.
DianneRussellworkedinclosecollaborationwithaparentofthreechildren,oneofwhomhasa
disability,aswellasayoungadultlivingwithadisabilitytoincreaseawarenessofCanChild
research.ThispartnershiphasresultedinthedevelopmentoftheParentsParticipatinginResearch
Facebookpage.Thepurposeofthisgroupistoprovideinputonprojectplanning,research
direction,inputonthecurrentstateofspecialneedsparenting,supportsandservicesaswellas
howtotranslateresearchknowledgetobestserveparentsandyouthlivingwithdisability.
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Mild Traumatic Brain Injury Thegoalofthisprojectwastodevelopevidence‐basedtoolstodiagnoseandmanagechildrenwith
concussion/mildtraumaticbraininjuryinhopesofpreventingfurtherinjuryandreturning
children/youthtoactivitysafely.Inordertofacilitaterapiduptake,aKnowledgeBrokerworkedin
partnershipwith39familyphysicians,pediatriciansandalliedhealthprofessionalstoimplement
thesetoolsintopractice.
AspartofthisprojectascopingreviewwascompletetogatherevidenceaboutmTBIanddetermine
whatmanagementstrategiesarecurrentlyinplace,andanarticleoutliningthedevelopmentof
ReturntoActivityGuidelineswasalsopublished.TheReturntoSchoolGuidelinesarticlewasalso
submittedin2014(andsubsequentlypublishedin2015).
 DeMatteo,C.,McCauley,D.,Stazyk,K.,Adamich,J.,Randall,S.,Missiuna,C.(2014).Post‐
concussionReturntoPlayandReturntoSchoolguidelinesforchildrenandyouth:Ascoping
methodology.Disability&Rehabilitation.Aug21:1‐6.
 DeMatteo,C.,Stazyk,K.,Singh,S.,Giglia,L.,Mahoney,W.,Hollenberg,R.,Malcolmson,C.,
Harper,J.,Missiuna,C.,Law,M.,McCauley,D.(2014)Returntoactivityprotocolfor
childrenafterCONCUSSION:Aconservativeapproach.ClinicalPediatricsearlyonline
http://cpj.sagepub.com/content/early/2014/11/21/0009922814558256
****
 DeMatteo,C.(PI),Bock,N.;Connolly,J;Cupido,C.;Giglia,L.;Hall,G.;Mazurek,M.;
Noseworthy,M.;Singh,S.;Thabane,L.;Timmons,B.SafelyReturningChildrenandYouthto
ActivityAfterConcussion.CanadianInstitutesofHealthResearch.$591,518,2014‐2017.
ThedecisionregardingreturntoactivityfollowingMild
TraumaticBrainInjury(MTBI)/concussionisoneofthe
mostdifficultandcontroversialareasinconcussion
managementforadultsandevenmorecomplicatedfor
childrenandyouth.ChildrenwhosustainaMTBIarebeing
providedwithmanagementstrategiesandreturnto
activityguidelinesthathavebeendesignedforadult
athletes.Thispopulationisathighriskforrepeatinjuries
withinashortperiodoftimeaswellasprolonged
symptomsaffectingtheirschoolandleisureparticipation
andsuccess.InJanuary2014,wereceivedfundingfromCIHRtoevaluateinnovativeReturnto
SchoolandReturntoActivityguidelinesthatwererecentlydevelopedaspartofanotherCanChild
KTproject.Thestudyiscurrentlyattheactiverecruitmentphase.
****
 Gagnon,I.(PI);Friedman,D.;Beauchamp,M.H.;Christie,B.R.;DeMatteo,C.A.;Fait,P.;
Hung,R.;Juncker,D.;Keightley,M.;Marcoux,J.;McFadyn,B.J.;Mok,E.;Mrazik,M.;Pelland,
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L.C.;Ptito,A.;Singh,S.K.;Sirois,K.;Stroman,P.W.;Swaine,B.R.;Taneja,C.;Tator,C.;Zabjek,
K.;Zemek,R.GeneratingInnovationthroughtheuseofcommondata:improvingthediagnosis
andtreatmentofchildandadolescentMTBIinCanada.CanadianInstitutesofHealth
Research,TeamGrant:MildTraumaticBrainInjuryinChildren&Youth‐FondsderechQC,
$766,895,2013‐2018.
ThegoalofthisTeamGrantistocreateacultureofnationalcollaboration,datacollectionandrapid
clinicaluptakeofinnovationindiscovery.Ouroverallgoalistoenhanceourabilitytoconduct
multi‐centreresearchandprovideevidence‐basedcareacrossCanadathatwillassistindiagnoses
andtreatmentofpediatricMTBI.Twosub‐studiesarecurrentlyunderwayandCanChildfunctions
asaresearchsitecollaboratingwithothercentresacrossCanada.Thefirststudyentitled
“GeneratingInnovationthroughtheuseofcommondata:improvingthediagnosisandtreatmentof
childandadolescentMTBIinCanada”aimstoestablishthefeasibility,andutilityofcollecting
commondataelementsforchildrenandadolescentsin7pediatricmTBIfollow‐upprogramsacross
Canada.Thesecondstudyentitled“ComparingApproachestoRehabilitationforChildrenandYouth
withPersistingSymptomsFollowingConcussion”focusesonchildrenandyouthwithpersisting
concussionsymptoms.Bothstudiesarepresentlyattheactiverecruitmentphase.
Participation In2014,CanChild’sParticipationresearchteamsengagedinanumberofknowledgetranslation
activitiesrelatedtopreviousresearchgrants.
TheParticipationandEnvironmentMeasureteamfocusedonactivitiestoincreaseawarenessof
andaccesstotheParticipationandEnvironmentMeasureforChildrenandYouth(PEM‐CY).The
PEM‐CYUser’sGuidewasfinalizedandthemeasurewasaddedtotheCanChilde‐store.Workhas
continuedonPEM‐CYtranslations,with11completedtodate.Theteamiscollaboratingwitha
programmertodevelopanelectronicversionofthePEM‐CYforuseinresearchandprogram
evaluation.Thisversion,whichisbasedonthesuccessfulparentversion,willbeavailablein2015.
Inaddition,theteamconsultedwithagroupfromtheCanadianAssociationofPediatricHealth
Centres(CAPHC)aboutincludingthePEM‐CYinanationaldatabaseforchildrenandyouthwith
chronicconditions.
MembersoftheParticipationandEnvironmentMeasureteamarenowworkingondevelopingan
appforparentsbasedonthePEM‐CY’scompanionmeasureforyoungchildren–theYoung
Children’sParticipationandEnvironmentMeasure.Thisappwillenableparentstosetparticipation
goalsfortheirchildanddevelopplanstoputthegoalsintoaction.
TheParticipationInterventionStudyteamcompleteddataanalysisandpublishedthefindingsof
theirstudyinvolvingyouthwithphysicaldisabilities.Inthisstudy,youthsetparticipationgoalsand
workedwithanoccupationaltherapisttodevelopstrategiesthatfocusedonchangingthe
environmentandthetasktoenablethemtomeetthesegoals.Thisteamiscurrentlyworkingona
manualtodescribethissuccessfultherapyapproach.
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Transition to Adulthood 
GorterJW(PI),PunthakeeZ(Co‐PI),BrillH,Don‐WauchopeA,GrantC,StewartD,
RosenbaumP.ExtensionGrant:Theutilization,utilityandimpactofaTransition
CoordinatorandtheYouthKit©amongadolescentswithchronichealthconditionsasthey
transitiontoadulthood.Apilotstudy.FundedbyAFPInnovationGrant.$196,493.2011‐2013
LedbyDr.JanWillemGorter([CanChild/Pediatrics]),ourresearchteamcompletedafour‐year
prospectivecohortstudythatfollowedyouthwithavarietyofchronichealthconditionsasthey
transitionedfrompediatrictoadulthealthcare.TRACE(TransitiontoAdulthoodwithCyberguide
Evaluation)wasdesignedtoempoweryouththroughtheuseoftwonoveltransitioninterventions:
theYouthK.I.T.(KeepingItTogether),whichisanorganizationaltoolforyouth,andanonline
transitionmentor.Insodoing,thestudyrespondedtotheestablishedneedsforimproving
transitionprocess(duetothewidelyreportedadversehealthoutcomes)andforevaluating
effectivenessoftransitioninterventions.
Onehundredandthirtystudyvisitswith50participants
werecompletedattwosites(theMcMasterChildren’s
HospitalinHamiltonandtheHospitalforSickChildrenin
Toronto).NinepediatricclinicsinHamiltonand5clinicsin
Torontowereinvolvedinthestudy.With20chronic
conditionsbeingrepresented,thisstudyusedarather
uniquecross‐condition,non‐categoricalapproach.Data
collectionwascompleteinOctober2013.Resultsofthestudy
werewrittenupanddisseminationactivitieswerecarried
outthrough2014andamanuscriptwassubmittedtoBMJ‐
OpeninDecember2014,whichwasacceptedandpublished
in2015:
GorterJW,StewartD,CohenE,HlyvaO,MorrisonA,GaluppiB,NguyenT,AmariaK,
PunthakeeZ;TRACEStudygroup.Aretwoyouth‐focusedinterventions
sufficienttoempoweryouthwithchronichealthconditionsintheirtransitionto
adulthealthcare:amixed‐methodslongitudinalprospectivecohortstudy.BMJ
Open.

Gorter,JW.Teens Reaching Adulthood: Needs and Support for Improved Transitional
care In Ontario – TRANSITION Study. Ontario Child Health Support Unit - $77280,
2014-2016.
Thejourneyfromchildhoodtoadultlifeinvolvesreachingmilestones,aswellasassumingnew
rolesandresponsibilities.Fortherapidlygrowingpopulationofyouthwithchronichealth
conditions/disabilities,transitionintotheadulthealthcaresystemisanimportantdimensionof
thisjourney.Sadlypatientsandfamiliesoftendescribethetransferofcareas'fallingoffacliff'due
tothelackofsufficientpreparation,information,supports,andskillstofacilitatetheprocess.
13 of 51
Althoughmostprovidersencourageyouthwithchronichealthconditionstoassumeresponsibility
fortheirownhealth,fewdiscusstransfertoanadultproviderandputineffortstoensure
continuity.Moreover,ourcurrenthealthcaresystemisnotdesignedtopreventcomplicationsin
chronicconditionsinyouth,andhealthcareproviderslacktheknowledgeandinformationto
assureeffectiveclinicalmanagement,andtoeliminatehealthdisparities.Whenyouthtransitions
aremetwithbarriers/challenges,transitioningadolescentsareatincreasedriskforpoorhealth
outcomes,mostofwhicharepreventable,andfinancialcostsareoftenincurredbythe
patient/familyandthehealthcaresystem.
AmeetingwasheldonNovember14,2014,thatbroughttogetherover30stakeholders,including
patientsandparents,to:
 Identifytransition“gaps”inOntario;
 BuildanOntarioTransitionResearchAgenda;
 Developamethodologicalplatformtoaddressthemosturgentresearchquestions.
Thegroupunanimouslyagreedthatweneedtodevelop:
 anapproachtoimprovetransitionthatiscollaborativeandindividualizedbasedonpatient
need;
 amethodofriskstratificationtoensurethatoptimalcareisdelivered.
Movingforward,ourgroupplanstostartbuildingamethodofriskstratificationbyfirst
determiningwhotheadolescentsarethataretransitioningoutofpediatrichealthcaresystemand
determiningtheirtransitionneeds,anddefiningsuccessfulandunsuccessfultransitions.
14 of 51
Our Team Scientists, Research Associates, & International Collaborators McMasterUniversity
Name
JanWillemGorter
PeterRosenbaum
MaryLaw
JohnCairney
WenonahCampbell*
CarolDeMatteo
BrianoDiRezze*
MarkFerro*
Position
Director
Co‐Founder
Co‐Founder
Scientist
Scientist
Scientist
Scientist
Scientist
Department
Pediatrics
Pediatrics
SRS
FamilyMedicine
SRS
SRS
SRS
Psychiatryand
Behavioural
Neuroscience/
Pediatrics
CE&B
Pediatrics
SRS
SRS
SRS
Pediatrics
CE&B
Pediatrics
Pediatrics
Pediatrics
Discipline
Physiatry
DevelopmentalPediatrics
OccupationalTherapy
SocialPsychology
Speech&Language
OccupationalTherapy
OccupationalTherapy
Epidemiology
SteveHanna
Scientist
Biostatistics
AnneKlassen
Scientist
HealthServicesResearch
CherylMissiuna
Scientist
OccupationalTherapy
NancyPollock
Scientist
OccupationalTherapy
DebraStewart
Scientist
OccupationalTherapy
BrianTimmons
Scientist
Kinesiology
StephenWalter
ScientistEmeritus
Biostatistics
OlafKrausdeCamargo
ResearchAssociate
RonitMesterman
ResearchAssociate
GabrielRonen
ResearchAssociate
ChildNeurology
Universities&OrganizationsinCanada
Name
Position
Department
Discipline
DanaAnaby
Research
PhysicalandOccupational
OccupationalTherapy
Associate
Therapy,McGillUniversity
DoreenBartlett
Scientist
PhysicalTherapy,Western
PhysicalTherapy
Ontario
SheilaBennett
Research
TeacherEducation,Brock
SpecialEducation
Associate
University
JamieBrehaut
Research
ClinicalEpidemiologyand
CognitivePsychology
Associate
Biostatistics,Universityof
Ottawa
JanBurke‐Gaffney
Research
HamiltonFamilyNetwork
ParentAdvisor
Associate
EyalCohen
Scientist
HospitalforSickChildren
Hospitalist
JohannaDarrah
Research
PhysicalTherapy,Universityof PhysicalTherapy
Associate
Alberta
15 of 51
DarcyFehlings
RobinGaines
BarbaraGibson
SandraHodgetts*
MarilynKertoy
Research
Associate
Research
Associate
Research
Associate
Research
Associate
Scientist
GillianKing
Research
Associate
DafnaKohen
Research
Associate
LucynaLach
Research
Associate
SanjayMahant
Research
Associate
NancyThomas‐
Research
Stonell
Associate
VirginiaWright
Scientist
LonnieZwaigenbaum Research
Associate
JillZwicker
Research
Associate
UniversitiesOutsideCanada
Name
Position
RobertPalisano
Scientist
GaryBedell
LisaChiarello*
WendyCoster
AdrienneHarvey
ChristineImms
LynnJeffries*
MarianJongmans
MarjolijnKetelaar
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
BloorviewResearchInstitute
CHEOResearchInstitute
OccupationalTherapy,
UniversityofAlberta
CommunicationSciencesand
Disorders,WesternOntario
StatisticsCanada
PhysicalTherapy
OccupationalTherapy
Speech&Language
Pathology
SocialPsychology
SocialWork,McGillUniversity
SeniorResearch
Analyst
SocialWork
HospitalforSickChildren
Pediatrics
Speech&Language
Pediatrics,UniversityofAlberta
PhysicalTherapy
Pediatrics
OccupationalScienceand
UniversityofBritishColumbia
OccupationalTherapy
Department/University
PhysicalTherapy& Rehabilitation
DrexelUniversity,US
TuftsUniversity,US
PhysicalTherapy&Rehabilitation
DrexelUniversity,US
OccupationalTherapy
BostonUniversity,US
RoyalChildren’sHospital,
Australia
AustralianCatholicUniversity,
Australia
RehabilitationSciences,
UniversityofOklahoma,US
Socialand BehaviouralSciences,
UtrechtUniversity,Netherlands
UniversityMedicalCenterUtrecht,
Netherlands
16 of 51
Developmental
Pediatrics
Speech&Language
Discipline
PhysicalTherapy
OccupationalTherapy
PhysicalTherapy
OccupationalTherapy
PhysicalTherapy
OccupationalTherapy
PhysicalTherapy
HealthPsychology
Rehabilitation
Name
NiinaKolehmainen
LenaKrumlinde
Sundholme
AlyssaLaformeFiss*
LiviaMagalhaes
ChrisMorris
EvaNordmark
IonaNovak
OlafVerschuren
SarahWestcott
McCoy*
Position
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
International
Collaborator
Department/University
UniversityofAberdeen,Scotland
Discipline
OccupationalTherapy
KarolinskaInstitutet,Astrid
LindgrenChildren'sHospital,
Sweden
PhysicalTherapy,
MercerUniversity,US
FederalUniversityofMinasGerais,
Brazil
PeninsulaCerebraResearchUnit,
UniversityofExeter,UK
DepartmentofHealthSciences,
LundUniversity,Sweden
CerebralPalsyAlliance,Australia
OccupationalTherapy
RehabilitationCentre de
Hoogstraat,Netherlands
RehabilitationMedicine,
UniversityofWashington,US
PhysicalTherapy
OccupationalTherapy
Orthotics
Physiotherapy
OccupationalTherapy
Rehabilitation
Medicine
PhysicalTherapy
*Indicatednewmembersin2014.
CanChild Research and Knowledge Translation Support Permanent
Name
DayleMcCauley
NathanNash
RachelTeplicky
BettyYundt
Casual
Name
DianneRussell
MaryBeaudoin
AffafAhtisham
Position
ResearchCoordinator
BusinessDevelopment
KnowledgeTranslation/Business
Development
KnowledgeTranslationCoordinator
FTE
1.0
1.0(asofOct)
0.4(asofSept)
Position
Research&KnowledgeExchangeSpecialist
DevelopmentOfficer
ApplicationDeveloperandWebManager
FTE
0.4(untilDec)
0.4(untilAug)
0.8(untilAug)
17 of 51
0.2(untilNov)
Publications in 20141: Published 1. Aaron,C.,Chiarello,L.,Palisano,R.,Gracely,E.,O’Neil,M.,&Kolobe,T.(2014).
RelationshipsamongFamilyParticipation,TeamSupportandIntensityofEarly
InterventionServices.Physical&OccupationalTherapyinPediatrics,34(4),343‐
355.
2. Abdulsatar,F.,Walker,R.,Timmons,B.,&Choong,K.(2014).“Wii‐Hab”incritically
illchildren:Apilotstudy.JournalofPediatricRehabilitationMedicine,6(4),193‐
204.
3. Ahuja,B.,Klassen,A.,Satz,R.,Malhotra,N.,Tsangaris,E.,Ventresca,M.,&Fayed,N.
(2014).Areviewofpatient‐reportedoutcomesforchildrenandadolescentswith
obesity.QualityofLifeResearch,23(3),759‐70.
4. Allard,A.,Fellowes,A.,Shilling,V.,Janssens,A.,Beresford,B.,&Morris,
C.(2014).Keyhealthoutcomesforchildrenandyoungpeoplewithneurodisability:
qualitativeresearchwithyoungpeopleandparents.BMJOpen,4(4).
5. Almasri,N.,O’Neil,M.,&Palisano,R.(2014).PredictorsofNeedsFamiliesof
ChildrenwithCerebralPalsy.DisabilityandRehabilitation,36(3),210‐9.
6. Anaby,D.,Law,M.,Coster,W.,Bedel,G.,Khetani,M.,Avery,L.,&Teplicky,R.
(2014).Themediatingroleoftheenvironmentinexplainingparticipationof
childrenandyouthwithandwithoutdisabilitiesacrosshome,schooland
community.ArchivesofPhysicalMedicineandRehabilitation,5(95),908‐917.
7. Anagnostou,E.,Zwaigenbaum,L.,etal.(2014).Autismspectrumdisorder:
advancesinevidence‐basedpractice.CanadianMedicalAssociationJournal,186(7),
509‐19.
8. Arim,R.,Kohen,D.,Garner,R.,Lach,L.,Brehaut,J.,MacKenzie,M.,&Rosenbaum,
P.(2014).Psychosocialfunctioninginchildrenwithneurodevelopmentaldisorders
andexternalizingbehaviorproblems.DisabilityandRehabilitation,37(4),345‐54.
9. Axelsson,A.,Imms,C.,&Wilder,J.(2014).Strategiesthatfacilitateparticipationin
familyactivitiesofchildrenandadolescentswithprofoundintellectualandmultiple
disabilities:parents’andpersonalassistantsexperiences.Disabilityand
1Onlypublicationsthatarerelevanttochildhealth,childhooddisabilityorknowledgetranslationare
includedinthislist.
18 of 51
Rehabilitation,36(25),2169‐2177.
10. Bailey,S.,Boddy,K.,Briscoe,S.,&Morris,C.(2014).Involvingdisabledchildren
andyoungpeopleaspartnersinresearch:asystematicreview.Child:CareHealth
Development.Advancedonlinepublication.
11. Ballantyne,M.,Benzies,K.,Rosenbaum,P.,&Lodha,A.(2014).Mothers'andhealth
careproviders'perspectivesofthebarriersandfacilitatorstoattendanceat
Canadianneonatalfollow‐upprograms.Child:Care,Health&Development.
Advancedonlinepublication.
12. Ballantyne,M.,Stevens,B.,Guttmann,A.,Willan,A.,&Rosenbaum,P.(2014).
MaternalandinfantpredictorsofattendanceatNeonatalFollow‐Upprogrammes.
Child:Care,Health&Development,40(2),250‐8.
13. Bartlett,D.,Chiarello,L.,McCoy,S.,Palisano,R.,Jeffries,L.,Fiss,A.,
Rosenbaum,P.,&Wilk,P.(2014).DeterminantsofGrossMotorFunctionofYoung
ChildrenwithCerebralPalsy:AProspectiveCohortStudy.DevelopmentalMedicine
andChildNeurology,56(3),275‐82.
14. Bartlett,D.,Chiarello,L.,McCoy,S.,Palisano,R.,Jeffries,L.,Fiss,A.,Rosenbaum,
P.,&WilkP.(2014).Determinantsofself‐careparticipationofyoungchildrenwith
cerebralpalsy:aprospectivecohortstudy.DevelopmentalNeurorehabilitation,
17(6),403‐13.
15. Batey,C.,Missiuna,C.,Timmons,B.,Faught,B.,Hay,J.,&Cairney,J.(2014).Self‐
efficacytowardphysicalactivitybehaviourofchildrenwithandwithout
DevelopmentalCoordinationDisorder.HumanMovementScience,36,258‐71.
16. Batorowicz,B.,Campbell,F.,vonTetzchner,S.,King,G.,&Missiuna,C.(2014).
Socialparticipationofschool‐agedchildrenwhousecommunicationaids:theviews
ofchildrenandparents.AugmentativeandAlternativeCommunication,30(3),237‐
51.
17. Bennett,T.,Szatmari,P.,Georgiades,K.,Hanna,S.,Janus,M.,Georgiades,S.,Duku,
E.,Bryson,S.,Fombonne,E.,Smith,I.,Mirenda,P.,Volden,J.,Waddell,C.,Roberts,
W.,Vaillancourt,T.,Zwaigenbaum,L.,Elsabbagh,M.,Thompson,A.,andThe
PathwaysinASDStudyTeam.(2014).DoReciprocalAssociationsExistbetween
SocialandLanguagePathwaysinPreschoolerswithAutismSpectrumDisorders?
JournalofChildPsychologyandPsychiatry.Advancedonlinepublication.
18. Bennett,T.,Szatmari,P.,Georgiades,K.,Hanna,S.,Janus,M.,Georgiades,S.,Duku,E.,
Bryson,S.,Fombonne,E.,Smith,I.,Mirenda,P.,Volden,J.,Waddell,C.,Roberts,W.,
19 of 51
19.
20.
21.
22.
23.
24.
25.
26.
27.
Vaillancourt,T.,Zwaigenbaum,L.,Elsabbagh,M.,Thompson,A.,&ThePathwaysin
ASDStudyTeam.(2014).LanguageImpairmentandEarlySocialCompetencein
PreschoolerswithAutismSpectrumDisorders:AComparisonofDSM‐5Profiles.
JournalofAutismandDevelopmentalDisorders.Advancedonlinepublication.
Berry,J.,Hall,M.,Neff,J.,Goodman,D.,Cohen,E.,Agrawal,R.,Kuo,D.,&Feudtner,C.
(2014).ChildrenwithmedicalcomplexityandMedicaid:Spendingandcostsavings.
HealthAffairs,33(12),2199‐206.
Beveridge,B.,Feltracco,D.,Struyf,J,Strauss,E.,Dang,S.,Phelan,S.,Wright,V.,&
GibsonB.(2014).“Yougottatryitall”:Parents’experienceswithroboticgait
trainingfortheirchildren
withcerebralpalsy.Physical&OccupationalTherapyinPediatrics.Advancedonline
publication.
Bongers,B.,Werkman,M.,Blokland,D.,Eijsermans,M.,VanderTorre,P.,Bartels,B.,
Verschuren,O.,&Takken,T.(2014).ValidityofthePediatricRunning‐Based
AnaerobicSprintTesttoDetermineAnaerobicPerformanceinHealthyChildren.
PediatricExerciseScience.Advancedonlinepublication.
Bonnard,M.,&Anaby,D.(2014).Keyenablingskillsfordiversestudents:
Possibilitiesforschool‐basedoccupationaltherapy.OccupationalTherapyNOW,
16(2),28.
Bork,P.,Harwood,D.,&Bennett,S.(2014).UsingPlayasaKeytoUnlockingthe
SilenceforChildrenwithSelectiveMutism.CanadianChildren,39(3),24.
Breau,L.,Clark,B.,Scott,O.,Wiles,C.,Reynolds,S.,Ricci,F.,Sonnenberg,L.,
Zwaigenbaum,L.,Rashid,M.,&Goez,H.(2014).SocialCommunicationFeaturesin
ChildrenFollowingModeratetoSevereAcquiredBrainInjury:ACross‐Sectional
PilotStudy.JournalofChildNeurology,30(5),588‐94.
Brian,J.,Roncadin,C.,Duku,E.,Bryson,S.,Smith,I.,Roberts,W.,Szatmari,P.,Drmic,
I.,&Zwaigenbaum,L.(2014).Emergingcognitiveprofilesinhigh‐riskinfantswith
andwithoutAutismSpectrumDisorder.ResearchinAutismSpectrumDisorders,
8(11),1557‐1566.
Bult,M.,Verschuren,O.,Lindeman,E.,Jongmans,M.,&Ketelaar,M.(2014).Do
childrenparticipateintheactivitiestheyprefer?Acomparisonofchildrenand
youthwithandwithoutphysicaldisabilities.ClinicalRehabilitation,28(4),388‐96.
Cairney,J.,Veldhuizen,S.,Kwan,M.,Hay,J.,&Faught,B.(2014).Biologicalageand
sex‐relateddeclinesinphysicalactivityduringadolescence.MedicineandSciencein
SportandExercise,46(4),730‐5.
20 of 51
28. Camden,C.,Léger,F.,Morel,J.,&Missiuna,C.(2014).Aservicedeliverymodelfor
childrenwithDCDbasedonprinciplesofbestpractice.PhysicalandOccupational
TherapyinPediatrics.Advancedonlinepublication.
29. Camden,C.,Shikako‐Thomas,K.,Nguyen,T.,Graham,E.,Thomas,A.,Sprung,J.,
Morris,C.,Russell,D.(2014).Engagingstakeholdersinrehabilitationresearch:a
scopingreviewofstrategiesusedinpartnershipsandevaluationofimpacts.
DisabilityandRehabilitation.Advancedonlinepublication.
30. Camden,C.,Wilson,B.,Kirby,A.,Sugden,D.,&Missiuna,C.(2014).Bestpractice
principlesinmanagementofchildrenwithdevelopmentalcoordinationdisorder:
Resultsofascopingreview.Child:Care,HealthandDevelopment,41(1),147‐59.
31. Chang,H.,Chiarello,L.,Palisano,R.,Orlin,M.,Bundy,A.,&Gacely,E.(2014).The
DeterminantsofSelf‐DeterminedBehaviorsofYoungChildrenwithCerebralPalsy.
ResearchinDevelopmentalDisabilities,35(1),99‐109.
32. Chawarska,K.,Shic,F.,Macari,S.,Campbell,D.,Brian,J.,Landa,R.,Hutman,T.,
33.
34.
35.
36.
Nelson,D.,Ozonoff,S.,Tager‐Flusberg,H.,Young,G.,Zwaigenbaum,L.,Cohen,I.,
Charman,T.,Messinger,D.,Klin,A.,Johnson,S.,&Bryson,S.(2014).18‐Month
PredictorsofLaterOutcomesinYoungerSiblingsofChildrenwithAutismSpectrum
Disorder:ABabySiblingsResearchConsortiumStudy.JournaloftheAmerican
AcademyofChildandAdolescentPsychiatry,53(12),1317‐1327.
Chiarello,L.,Palisano,R.,WestcottMcCoy,S.,Bartlett,D.,Wood,A.,Kang,L.,
Chang,H.,&Avery,L.(2014).ChildEngagementinDailyLife:AMeasureof
ParticipationforYoungChildrenwithCerebralPalsy.DisabilityandRehabilitation,
36(21),1804‐16.
Chirico,D.,Wade,T.,Cairney,J.,Klentrou,P.,&O'Leary,D.(2014).Evidenceofa
hyperkineticstateinchildrenwithelevatedbloodpressure.AnnalsofHuman
Biology.Advancedonlinepublication.
Claridge,E.,McPhee,P.,Timmons,B.,Ginis,K.,MacDonald,M.,&Gorter,J.W.
(2014).QuantificationofPhysicalActivityandSedentaryTimeinAdultswith
CerebralPalsy.MedicineandScienceinSportsandExercise.Advancedonline
publication.
Cohen,E.(2014).Glucocorticoidsforbronchiolitis‐shouldtheybeused?:...reducing
wasteinchildhealthoneinterventionatatime.Evidence‐basedChildHealth:a
CochraneReviewJournal,9(3),496‐7.
21 of 51
37. Cohen,E.,&Patel,H.(2014).Respondingtotherisingnumberofchildrenliving
withcomplexchronicconditions.CMAJ,186(16),1199‐200.
38. Constand,M.,MacDermid,J.,DalBello‐Haas,V.,&Law,M.(2014).Scopingreviewof
patient‐centeredcareapproachesinhealthcare.BMCHealthServicesResearch,
14(1),271.
39. Crompton,K.,Elwood,N.,Kirkland,M.,Clark,P.,Novak,I.,&Reddihough,D.(2014).
Feasibilityoftriallingcordbloodstemcelltreatmentsforcerebralpalsyin
Australia.JournalofPaediatricsandChildHealth,50(7),540‐4.
40. Cunningham,B.J.,&Rosenbaum,P.(2014).Measureofprocessesofcare:a
41.
42.
43.
44.
45.
46.
reviewof20yearsofresearch.DevelopmentalMedicine&ChildNeurology,56(5),
445‐52.
Darrah,J.,Bartlett,D.,Maguire,T.,Avison,W.,&Lacaze‐Masmonteil,T.(2014).
Haveinfantgrossmotorabilitieschangedin20years?Are‐evaluationofthe
AlbertaInfantMotorScalenormativevalues.DevelopmentalMedicineandChild
Neurology,56(9),877‐81.
Darrah,J.,Wiart,L.,Gorter,J.W.,&Law,M.(2014).Stabilityofserialrange‐of‐
motionmeasurementsofthelowerextremitiesinchildrenwithcerebralpalsy:can
wedobetter?PhysicalTherapy,94(7),987‐95
Darzins,S.,Imms,C.,DiStefano,M.,Taylor,N.,Pallant,J.(2014).Evaluationofthe
internalconstructvalidityofthePersonalCareParticipationandResourceTool
(PC‐PART).BMCHealthServicesResearch,14,543.
DeMatteo,C.,Gjertsen,D.,Bain,J.,&Harper,J.(2014).Wonderingandwaitingafter
ObstetricalBrachialplexusInjury:Areweunderestimatingtheeffectofthe
traumaticexperienceonthefamilies?CanadianJournalPlasticSurgery,22(3),183‐
187.
DeMatteo,C.,Greenspoon,D.,Levac,D.,Harper,J.A.,&Rubinoff,M.(2014).
EvaluatingtheNintendoWiiforassessingreturntoactivityreadinessinyouthwith
mildtraumaticbraininjury.Physical&OccupationalTherapyinPediatrics,34(3),
229‐244.
DeMatteo,C.,McCauley,D.,Stazyk,K.,Adamich,J.,Randall,S.,Missiuna,C.
(2014).Post‐concussionReturntoPlayandReturntoSchoolguidelinesforchildren
andyouth:Ascopingmethodology.Disability&Rehabilitation,37(12),1107‐12.
22 of 51
47. deRuiter,W.,Cairney,J.,Leatherdale,S.,&Faulkner,G.(2014).ALongitudinal
ExaminationoftheInterrelationshipofMultipleHealthBehaviours.American
JournalofPreventiveMedicine,47(3),283‐289.
48. Dhaliwal,J.,Noseworthy,N.,Holt,N.,Zwaigenbaum,L.,Avis,J.,Rasquinha,A.,&
Ball,G.(2014).AttritionandPediatricObesityManagement:AnIntegrativeReview.
ChildhoodObesity,10(6),461‐473.
49. Donald,K.,Kakooza,A.,Wammanda,R.,Mallewa,M.,Samisa,P.,Babakir,H.,
Bearden,D.,Majnemer,A.,Fehlings,D.,Shevell,M.,Chugani,H.,&Wilmhurst,J.
(2014).PediatricCerebralPalsyinAfrica:Wherearewe?JournalofChild
Neurology.Advancedonlinepublication.
50. Doralp,S.,&Bartlett,D.(2014).InfantMovementMotivationQuestionnaire:
Developmentofameasureevaluatinginfantcharacteristicsrelatingtomotor
developmentinthefirstyearoflife.InfantBehaviourandDevelopment,37(3),326‐
333.
51. Elison,J.,Wolff,J.,Reznick,J.,Botteron,K.,Estes,A.,Gu,H.,Hazlett,H.,Meadows,A.,
Paterson,S.,Zwaigenbaum,L.,Piven,J.(2014).RepetitiveBehaviorin12‐month‐
oldslaterClassifiedwithAutismSpectrumDisorder.JournaloftheAmerican
AcademyofChild&AdolescentPsychiatry,53(11),1216‐24.
52. Elsabbagh,M.,Yusuf,A.,Prasanna,S.,Shikako‐Thomas,K.,Ruff,C.,&Fehlings,M.
(2014).Communityengagementandknowledgetranslation:Progressand
challengeinautismresearch.Autism,18(7),771‐81.
53. Farhat,F.,Masmoudi,K.,Cairney,J.,Hsairi,I.,Triki,C.,&Moalla,W.(2014).
Assessmentofcardiorespiratoryandneuromotorfitnessinchildrenwith
developmentalcoordinationdisorder.ResearchinDevelopmentalDisabilities,
35(12),3554‐61.
54. FehlingsD.(2014).ToBoldlyGo.DevelopmentalMedicine&ChildNeurology,56(9),
800.
55. FehlingsD.(2014).Red,yellow,green:Canatrafficlightsystemhelpsystematic
reviews?DevelopmentalMedicineandChildNeurology,56(4),401‐2
56. Ferro,M.(2014).Adolescentsandyoungadultswithphysicalillness:acomparative
studyofpsychologicaldistress.ActaPaediatrica,103(1),32‐37.
57. Ferro,M.(2014).Missingdatainlongitudinalstudies:cross‐sectionalmultiple
imputationprovidessimilarestimatestofull‐informationmaximumlikelihood.
23 of 51
AnnalsofEpidemiology,24(1),75‐77.
58. Ferro,M.(2014).Riskfactorsforhealth‐relatedqualityoflifeinchildrenwith
epilepsy:ameta‐analysis.Epilepsia,55(11),1722‐1731.
59. Ferro,M.,Boyle,M.,Alati,R.,Scott,J.,&Dingle,K.(2014).Maternalpsychological
distresspartiallymediatesphysicianvisitsinapopulation‐basedsampleof
adolescentswithasthma.JournalofAsthma.Advancedonlinepublication.
60. Ferro,M.,Boyle,M.,Dingle,K.,&Scott,J.(2014).TheChildBehaviorChecklistand
YouthSelf‐Reportinadolescentswithepilepsy:testingmeasurementinvarianceof
theattentionandthoughtproblemssubscales.Epilepsy&Behavior,31,34‐42.
61. Ferro,M.,Chin,R.,Camfield,C.,Wiebe,S.,Levin,S.,&Speechley,K.(2014).
Convulsivestatusepilepticusandhealth‐relatedqualityoflifeinchildrenwith
epilepsy.Neurology,83(8),752‐757.
62. Filliter,J.,Longard,J.,Lawrence,M.,Zwaigenbaum,L.,Brian,J.,Garon,N.,Sith,I.,
Roncadin,C.,Roberts,W.,&Bryson,S.(2014).PositiveAffectinInfantSiblingsof
ChildrenDiagnosedwithAutismSpectrumDisorder.JournalofAbnormalChild
Psychology,43(3),567‐75.
63. Fiss,A.,Chiarello,L.,Bartlett,D.,Palisano,R.,Jeffries,L.,Almasri,N.,&Chang,H.
(2014).Familyecologyofyoungchildrenwithcerebralpalsy.ChildCareHealthand
Development,40(4),562‐571.
64. Freeman,M.,Stewart,D.,Shimmell,L.,Missiuna,C.,Burke‐Gaffney,J.,Jaffer,S.,
Law,M.(2014).DevelopmentandevaluationofTheKIT:KeepingItTogether™for
Youth(the'YouthKIT')toassistyouthwithdisabilitiesinmanaginginformation.
Child:Care,HealthandDevelopment,41(2),222‐9.
65. Galvão,B.,Veloso,M.,Carvalho,L.,&Magalhães,L.(2014).Perspectivadospais
sobreasconsequênciasfuncionaisdoTranstornodoDesenvolvimentoda
Coordenação(TDC):revisãodaliteratura.CadernosdeTerapiaOcupacionalda
UFSCar,22,187‐193.
66. Georgiades,S.,Boyle,M.,Szatmari,P.,Hanna,S.,Duku,E.,Zwaigenbaum,L.,
Bryson,S.,Fombonne,E.,Volden,J.,Mirenda,P.,Smith,I.,Roberts,W.,Vaillancourt,
T.,Waddell,C.,Bennett,T.,Elsabbagh,M.,Thompson,A.&PathwaysinASDStudy
Team.(2014).ModelingthePhenotypicArchitectureofAutismSymptomsfrom
TimeofDiagnosistoAge6.JournalofAutismandDevelopmentalDisorders,44(12),
3045‐55.
24 of 51
67. Germani,T.,Zwaigenbaum,L.,Bryson,S.,Brian,J.,Smith,I.,Roberts,W.,Szatmari,
68.
69.
70.
71.
72.
73.
P.,Roncadin,C.,Sacrey,L.,Garon,N.,&Vaillancourt,T.(2014).BriefReport:
AssessmentofEarlySensoryProcessinginInfantsatHigh‐RiskofAutismSpectrum
Disorder.JournalofAutismandDevelopmentalDisorders,44(12),3264‐70.
Gibson,B.(2014).Parallelsandproblemsofnormalizationinrehabilitationand
universaldesign:enablingconnectivities.DisabilityandRehabilitation,36(16),
1328‐33.
Gibson,B.,King,G.,Kingsnorth,S.,&McKeever,P.(2014).The‘placement’of
peoplewithprofoundimpairmentsacrossthelifespan:re‐thinkingagecriteria.
BMCMedicine,12(83).
Gibson,B.,Mistry,B.,Smith,B.,Yoshida,K.,Abbott,D.,Lindsay,S.,&Hamdani,Y.
(2014).Becomingmen:Gender,disability,andtransitioningtoadulthood.Health,
18(1),93‐112.
Glazebrook,C.,&Wright,V.(2014).FurtherdevelopmentoftheChallengeModule,
ameasureofadvancedmotorskillinchildrenwithcerebralpalsy.PediatricPhysical
Therapy,29(26),201‐213.
Glegg,S.,Hanna,S.,etal.(2014).Usingvirtualrealityinclinicalpractice:Amulti‐
siteexploratorystudy.NeuroRehabilitation, 35(3),563‐77.
Gorter,J.W.,Stewart,D.,WoodburySmith,M.,King,G.,Wright,M.,Nguyen,T.,
Freeman,M.,&Swinton,M.(2014).Pathwaystowardpositivepsychosocial
outcomesandmentalhealthforyouthwithdisabilities:Aknowledgesynthesisof
developmentaltrajectories.CanadianJournalofCommunityMentalHealth,33(1),
45‐61.
74. Gorter,J.W.,&Timmons,B.(2014).Measurementofhabitualphysicalactivityand
sedentarybehaviourofyouthwithcerebralpalsy:workinprogress.Developmental
MedicineandChildNeurology,56(9),911.
75. Granek,L.,Rosenberg‐Yunger,Z.,Dix,D.,Klassen,R.,Sung,L.,Cairney,J.,&
Klassen,A.(2014).Caregiving,singleparentsandcumulativestresseswhencaring
forachildwithacancer.Child:Care,Health&Development40(2),184‐94.
76. Gray,C.,Barnes,J.,CowieBonne,J.,Cameron,C.,Chaput,J.,Faulkner,G.,Janssen,I.,
Katzmarzyk,P.,Kolen,A.,Manske,S.,Salmon,A.,Spence,J.,Timmons,B.,&Tremblay,M.
(2014).ResultsfromCanada’s2014ReportCardonPhysicalActivityforChildrenand
Youth.JournalofPhysicalActivityandHealth.Advancedonlinepublication.
77. Gray,C.,Larouche,R.,Barnes,J.,Colley,R.,CowieBonne,J.,Arthur,M.,Cameron,C.,
Chaput,J.,Faulkner,G.,Janssen,I.,Kolen,A.,Manske,S.,Salmon,A.,Spence,J.,
Timmons,B.,&Tremblay,M.(2014).Arewedrivingourkidstounhealthyhabits?
25 of 51
ResultsoftheActiveHealthyKidsCanada2013ReportCardonPhysicalActivityfor
ChildrenandYouth.InternationalJournalofEnvironmentalResearchandPublic
Health,5(11),6009‐20.
78. Gulati,S.,Dix,D.,&Klassen,A.(2014).Demandsandrewardsofworkingwithin
multidisciplinaryteamsinpediatriconcology:TheexperiencesofCanadianhealth
careproviders.TheQualitativeReport,19(36),1‐15.
79. Hackett,K.,Newton,J.,Deane,K.,Rapley,T.,Deary,V.,Kolehmainen,N.,Lendrem,
D.,&Ng,W.(2014).Developingaserviceuserinformedinterventiontoimprove
participationandabilitytoperformdailyactivitiesinprimarySjögren'ssyndrome:
amixed‐methodsstudyprotocol.BMJOpen,4(8),6264.
80. Hajna,S.,Leblanc,P.,Faught,B.,Merchant,A.,Cairney,J.,Hay,J.,&Liu,J.(2014).
Associationsbetweenfamilyeatingbehavioursandbodycompositionmeasuresin
peri‐adolescence:resultsfromacommunity‐basedstudyofschool‐agedchildren.
CanadianJournalofPublicHealth,105(1),15‐21.
81. Hamdani,Y.,Mistry,B.,&Gibson,B.(2014).TransitioningtoAdulthoodwitha
ProgressiveCondition:BestPracticeAssumptionsandIndividualExperiencesof
YoungMenwithDuchenneMuscularDystrophy.DisabilityandRehabilitation.
82. Hines,M.,Swinburn,K.,McIntyre,S.,Novak,I.,&Badawi,N.(2014).Infantsatriskof
cerebralpalsy:AsystematicreviewofoutcomesusedinCochranestudiesofpregnancy,
childbirthandneonatology.JournalofMaternal‐Fetal&NeonatalMedicine,11,1‐13.
83. Hodgetts,S.,McConnell,D.,Zwaigenbaum,L.,&Nicholas,D.(2014).Theimpactof
AutismSupportsandServicesonMother’sOccupationalEngagement.OTJR:
Occupation,Participation&Health,34(2),81‐92.
84. Hodgetts,S.,Zwaigenbaum,L.,&Nicholas,D.(2014).ProfileandPredictorsof
ServiceNeedsforFamiliesofChildrenwithAutism.Autism.Advancedonline
publication.
85. Hoffman,A.,Matlow,A.,Schroff,M.,&Cohen,E.(2014).Factorsimpactingsame‐
daycancellationofoutpatientpediatricmagneticresonanceimagingunder
anesthesia.PediatricRadiology,45(1),99‐107.
86. Jachyra,P.,Atkinson,M.,&Gibson,B.(2014).Genderperformativityduring
interviewswithadolescentboys.QualitativeResearchinSport,ExerciseandHealth,
6(4),568‐582.
26 of 51
87. Jackman,M.,Novak,I.,&Lannin,N.(2014).Effectivenessoffunctionalhand
88.
89.
90.
91.
92.
93.
94.
splintingandthecognitiveorientationtooccupationalperformance(CO‐OP)
approachinchildrenwithcerebralpalsyandbraininjury:tworandomised
controlledtrialprotocols.BMCNeurology,14(1),144.
Jackman,M.,Novak,I.,LanninN.(2014).Effectivenessofhandsplintsinchildren
withcerebralpalsyandbraininjury:Systematicreviewwithmetaanalysis.
DevelopmentalMedicineandChildNeurology,56(2),138‐147.
Janssens,A.,Williams,J.,Tomlinson,R.,Logan,S.,&Morris,C.(2014).Health
outcomesforchildrenwithneurodisability:whatdoprofessionalsregardas
primarytargets?ArchivesofDiseaseinChildhood,99(10),927‐32.
Jarus,T.,Ghanouni,P.,Caswell,S.,Bickerton,L.,Abel,R.,Fomenoff,S.,Davidson,S.,
Lundberg,J.,&Zwicker,J.(2014).Effectofinternalversusexternalfocusof
attentiononimplicitmotorlearninginchildrenwithdevelopmentalcoordination
disorder.ResearchinDevelopmentalDisabilities,37,119‐126.
Jeevanantham,D.,Dyszuk,E.,&Bartlett,D.(2014).TheManualAbilities
ClassificationSystem:Ascopingreview.PediatricPhysicalTherapy.Advanced
onlinepublication.
Jivraj,J.,Sacrey,L.,Newton,A.,Nicholas,D.,&Zwaigenbaum,L.(2014).Assessing
theInfluenceofResearcher‐partnerInvolvementontheProcessandOutcomesof
ParticipatoryResearchinAutismSpectrumDisorderandNeurodevelopmental
Disorders:Ascopingreview.Autism,18(7),782‐93.
Kang,L.,Palisano,R.,King,G.,&Chiarello,L.(2014).UnderstandingOptimal
ParticipationofChildrenwithPhysicalDisabilities:AnInteractiveModel.Disability
andRehabilitation,36,1735‐1741.
Kelly,G.,Mobbs,S.,Pritkin,J.,Mayston,M.,Mather,M.,Rosenbaum,P.,Henderson,
R.,&Forsyth,R.(2014).GrossMotorFunctionMeasure‐66trajectoriesinchildren
recoveringaftersevereacquiredbraininjury.DevelopmentalMedicine&Child
Neurology.Advancedonlinepublication.
95. Ketelaar,M.,Gorter,J.W.,Westers,P.,Hanna,S.,&Verhoef,M.(2014).
Developmentaltrajectoriesofmobilityandself‐carecapabilitiesinyoungchildren
withcerebralpalsy.JournalofPediatrics,164(4),769‐774.
96. Khetani,M.,Cliff,A.,Schelly,C.,Daunhauer,L.,&Anaby,D.(2014).Decisional
SupportAlgorithmforCollaborativeCarePlanningusingtheParticipationand
EnvironmentMeasureforChildrenandYouth(PEM‐CY):AMixedMethodsStudy.
27 of 51
Physical&OccupationalTherapyinPediatrics.Advancedonlinepublication.
97. Killeen,H.,Shiel,A.,Law,M.,Segurado,R.,&O’Donovan,D.(2014).Theimpactof
pretermbirthonparticipationinchildhoodoccupation.EuropeanJournalof
Pediatrics,174(3),299‐306.
98. King,G.,Batorowicz,B.,Rigby,P.,McMain‐Klein,M.,Thompson,L.,&Pinto,M.
(2014).
Developmentofameasuretoassessyouthself‐reportedexperiencesofactivity
settings(SEAS).InternationalJournalofDisability,DevelopmentandEducation,
61(1),44‐66.
99. King,G.,&Chiarello,L.(2014).Family‐centeredcareforchildrenwithcerebral
palsy:Conceptualandpracticalconsiderationstoadvancecareandpractice.
JournalofChildNeurology,29(8),1046‐1054.
100. King,G.,Currie,M.,&Petersen,P.(2014).Parentandchildengagementinmental
healthservicestochildrenandfamilies:Amotivationalframework.Childand
AdolescentMentalHealth,19(1),2‐8.
101. King,G.,Desmarais,C.,Lindsay,S.,Piérart,G.,&Tétreault,S.(2014).Therolesof
effectivecommunicationandclientengagementindeliveringculturallysensitive
caretoimmigrantparentsofchildrenwithdisabilities.Disabilityand
Rehabilitation.Advancedonlinepublication.
102. King‐Dowling,S.,Missiuna,C.,Rodriguez,M.,Greenway,M.,&Cairney,J.(2014).
Co‐occurringmotor,languageandemotional‐behavioralproblemsinchildren3‐6
yearsofage.HumanMovementScience.Advancedonlinepublication.
103. King,G.,Gibson,B.,Mistry,B.,Pinto,M.,Goh,F.,Teachman,G.,&Thompson,L.
(2014).Anintegratedmethodsstudyoftheexperiencesofyouthwithsevere
disabilitiesinleisureactivitysettings:Theimportanceofbelonging,fun,and
controlandchoice.DisabilityandRehabilitation,36(19),1626‐1635.
104. King,G.,McPherson,A.,Kingsnorth,S.,Stewart,D.,Glencross‐Eimantas,T.,
Gorter,J.W.,Jones‐Galley,K.,Morrison,A.,&Isihi,A.(2014).Residential
immersivelifeskillsprogramsforyouthwithdisabilities:Serviceproviders’
perceptionsofexperientialbenefitsandkeyprogramfeatures.Disabilityand
105. King,G.,Rigby,P.,Batorowicz,B.,McMain‐Klein,M.,Petrenchik,T.,Thompson,L.,
&Gibson,M.(2014).DevelopmentofadirectobservationMeasureof
EnvironmentalQualitiesofActivitySettings.DevelopmentalMedicineandChild
Neurology,56,763‐769.
28 of 51
106. King,G.,etal.(2014).Developingauthenticclinicalsimulationsforeffective
listeningandcommunicationinpediatricrehabilitationservicedelivery.
DevelopmentalNeurorehabilitation.Advancedonlinepublication.
107. King,G.,Specht,J.,Petersen,P.,Servais,M.,Stewart,S.,Young,G.,&Brown,H.
(2014).Thedevelopmentofexpertiseinchildren’smentalhealththerapistsand
teachers:Changesinperspectiveandapproach.EducationalResearch,56(3),277‐
294.
108. Kingsnorth,S.,King,G.,McPherson,A.,&Jones‐Galley,K.(2014).Aretrospective
studyofpastgraduatesofaresidentiallifeskillsprogramforyouthwithphysical
disabilities.Child:Care,Health&Development.Advancedonlinepublication.
109. Klassen,A.,Grant,C.,Barr,R.,Brill,H.,KrausdeCamargo,O.,Ronan,G.,Samaan,
M.,Mondal,T.,Schlatman,A.,Tsangaris,E.,Athale,U.,Wickert,N.,&Gorter,J.W.
(2014).DevelopmentandValidationofaGenericScaleforuseinTransition
ProgramstoMeasureSelf‐ManagementSkillsinAdolescentswithChronicHealth
Conditions:TheTRANSITION‐Q.Child:Care,HealthandDevelopment.Advanced
onlinepublication.
110. Klassen,A.,Rosenberg‐Yunger,Z.,Syed,I.,D’Agostino,N.,Barr,R.,Greenberg,M.,
Granek,L.,&Nathan,P.(2014).Developingtransitionreadinessscalesfor
childhoodcancersurvivorstobetterpreparethemtotransitiontolong‐term
follow‐upcareasadults.HealthExpectations.Advancedonlinepublication.
111. Knights,S.,DatooN.,Kawamura,A.,Switzer,L.,&Fehlings,D.(2014).Further
evaluationofthescoring,reliability,andvalidityofthehypertoniaassessmenttool
(HAT).JournalofChildNeurology,29(4),500‐504.
112. Knights,S.,Graham,N.,Switzer,L.,Hernandez,H.,Ye,Z.,Findlay,B.,Xie,W.,
Wright,V.,&Fehlings,D.(2014).Aninnovativeexergamecyclingprogramto
promotecardiovascularfitnessandhealth‐relatedqualityoflifeinyouthwith
cerebralpalsy.Disability&Rehabilitation.Advancedonlinepublication.
113. Knight,S.,Harvey,A.,Towns,S.,Payne,D.,Lubitz,L.,Rowe,K.,Reveley,C.,Hennel,
S.,Hiscock,H.,&Scheinberg,A.(2014).HowisPaediatricMyalgic
Encephalomyelitis/ChronicFatigueSyndrome(ME/CFS)DiagnosedandManaged
byPaediatricians?AnAustralianPaediatricResearchNetworkStudy.Journalof
PaediatricsandChildHealth,50(12),1000‐7.
114. Kolehmainen,N.,&McAnuff,J.(2014)."IshouldhavedischargedhimbutIfelt
guilty":aqualitativeinvestigationofclinicians'emotionsinthecontextof
implementingoccupationaltherapy.ImplementationScience,9,141.
29 of 51
115. Kruijsen‐Terpstra,A.,Ketelaar,M.,Boeije,H.,JongmansM.,Gorter,J.W.,
Verheijden,J.,Lindeman,E.,&Verschuren,O.(2014).Parents’experienceswith
physicalandoccupationaltherapyfortheiryoungchildwithcerebralpalsy:a
mixedstudiesreview.Child:Care,HealthandDevelopment,40(6),787‐96.
116. Kruijsen‐Terpstra,A.,Ketelaar,M.,Verschuren,O.,Smits,D.,Jongmans,M.,&
Gorter,J.W.(2014).DeterminantsofDevelopmentalGaininDailyActivitiesin
YoungChildrenwithCerebralPalsy.Physical&OccupationalTherapyinPediatrics.
117. Kuo,D.,Goudie,A.,Cohen,E.,Houtrow,A.,Agrawal,R.,Carle,A.,&Wells,N.(2014).
Inequitiesinhealthcareneedsforchildrenwithmedicalcomplexity.HealthAffairs,
33(12),2190‐80.
118. Kuo,M.,Magill‐Evans,J.,&Zwaigenbaum,L.(2014).Parentalmediationof
televisionviewingandvideogamingofadolescentswithAutismSpectrumDisorder
andtheirsiblings.Autism.Advancedonlinepublication.
119. Lauzier,F.,Muscedere,J.,Deland,E.,Kusogiannis,D.,Jacka,M.,Heels‐Ansdell,D.,
Crowther,M.,Cartin‐Ceba,R.,Cox,M.,Zytaruk,N.,Foster,D.,Sinuff,T.,Clarke,F.,
Thompson,P.,Hanna,S.,&Cook,D.(2014).Thromboprophylaxispatternsand
determinantsincriticallyillpatients:amulticentreaudit.CriticalCare,18(2).
120. Law,M.,&Darrah,J.(2014).EmergingTherapyApproachesAnEmphasison
Function.JournalofChildNeurology,29(8),1101‐1107.
121. Law,M.,Hanna,S.,Anaby,D.,Kertoy,M.,King,G.,&Xu,L.(2014).Health‐related
qualityoflifeofchildrenwithphysicaldisabilities:Alongitudinalstudy.BMC
Pediatrics,14(26),1‐10.
122. LeGrow,K.,Hodnett,E.,Stremler,R.,&Cohen,E.(2014).Evaluatingthefeasibility
ofaparent‐briefinginterventioninapediatricacutecaresetting.Journalof
SpecialistsinPediatricNursing,19(3),219‐28.
123. Legrow,K.,Hodnett,E.,Stremler,R.,McKeever,P.,&Cohen,E.(2014).Bourdieuat
thebedside:briefingparentsinapediatrichospital.NursingInquiry,21(4),327‐35.
124. LeGrow,K.,Hodnett,E.,Stremler,R.,Cohen,E.,&Victor,C.(2014).Psychometric
testingofthefamilysatisfactionwithdecisionmakingsubscale(FS‐ICU/DM)inan
acutecarepediatrichospitalsetting.EuropeanJournalforPersonCentered
Healthcare,2(3).
125. LeRoy,K.,Boyd,K.,DeAsis,K.,Lee,R.,Martin,R.,Teachman,G.,&Gibson,B.
(2014).Balancinghopeandrealisminfamily‐centeredcare:Physicaltherapists’
dilemmasinnegotiatingwalkinggoalswithparentsofchildrenwithcerebralpalsy.
30 of 51
Physical&OccupationalTherapyinPediatrics.Advancedonlinepublication.
126. Levac,D.,Camden,C.,Glegg,S.,Rivard,L.,&Missiuna,C.(2014).BestPractice
RecommendationsfortheDevelopment,Implementation,andEvaluationofOnline
KnowledgeTranslationResourcesinRehabilitation.PhysicalTherapy.Advanced
onlinepublication.
127. Lewis,J.,Evans,A.,Pruett,J.,Botteron,K.,Zwaigenbaum,L.,Estes,A.,Gerig,G.,
Collins,L.,Kostopoulos,P.,McKinstry,R.,Dager,S.,Paterson,S.,Schultz,R.,Styner,
M.,Hazlett,H.,&Piven,J.(2014).NetworkInefficienciesinAutismSpectrum
Disorderat24months.TranslationalPsychiatry,4,388.
128. Li,M.,Mazhar,S.,Messina,S.,Moyse,J.,Kelly,W.,Cormier,I.,&Anaby,D.(2014).
ValidatingtheYouth‐ReportVersionoftheParticipationandEnvironment
MeasureforChildrenandYouth(PEM‐CY):PreliminaryFindings.REVUEerg‐GO,3,
30‐35.
129. Lindsay,S.,Tetreault,S.,DesmaraisC.,King,G.,&Pierart,G.(2014).Socialworkers
as‘culturalbrokers’inprovidingculturallysensitivecaretoimmigrantfamilies
raisingachildwithaphysicaldisability.HealthandSocialWork,39(2),10‐20.
130. Lindsay,S.,Tetreault,S.,Desmarais,C.,King,G.,&Pierart,G.(2014).Thecultural
brokerageworkofoccupationaltherapistsinprovidingculturallysensitivecare.
CanadianJournalofOccupationalTherapy,81(2),114‐123.
131. Lionel,A.,+41authors,Zwaigenbaum,L.,+40authors,&Scherer,S.(2014).
DisruptionoftheASTN2/TRIM32locusat9q33.1isariskfactorinmalesfor
autismspectrumdisorders,ADHDandotherneurodevelopmentalphenotypes.
HumanMolecularGenetics,23(10),2752‐68.
132. Lubetzky‐Vilnai,A.,Ciol,M.,&WestcottMcCoy,S.(2014).StatisticalAnalysisof
ClinicalPredictionRulesforPhysicalTherapyInterventions:CurrentStateofthe
Literature.ArchivesofPhysicalMedicineandRehabilitation,95(1),188‐196.
133. Mahon,A.,&Timmons,B.(2014).Applicationofstableisotopetracersinthestudy
ofexercisemetabolisminchildren.PediatricExerciseScience,26(1),3‐10.
134. Makepeace,E.,&Zwicker,J.(2014).Parentperspectivesofoccupationaltherapy
assessmentreports.BritishJournalofOccupationalTherapy,77,538‐545.
135. Magalhães,L.,Dunn,L.,&Mancini,M.(2014).InternalStructureoftheChildren
HelpingOut:Responsibilities,Expectations,andSupports(CHORES)Measure.The
AmericanJournalofOccupationalTherapy,68(3),286‐95.
31 of 51
136. Magalhães,L.,&Gontijo,B.(2014).AssessingGrossMotorDevelopmentof
BrazilianInfants.PediatricPhysicalTherapy,26(1),48‐55.
137. Maltais,D.,Wiart,L.,Fowler,E.,Verschuren,O.,&Damiano,D.(2014).Health‐
relatedphysicalfitnessforchildrenwithcerebralpalsy.JournalofChildNeurolgy,
29(8),1091‐100.
138. McAnuff,J.,Boyes,C.,&Kolehmainen,N.(2014).Family‐clinicianinteractionsin
children'shealthservices:asecondaryanalysisofoccupationaltherapists'practice
descriptions.HealthExpectations.Advancedonlinepublication.
139. McDougall,J.,Wright,V.,DeWitt,D.,&Miller,L.(2014).ICF‐BasedFunctional
ComponentsandContextualFactorsasCorrelatesofPerceivedQualityofLifefor
YouthwithChronicConditions.Disability&Rehabilitation,36(25),2143‐2151.
140. Missiuna,C.,Cairney,J.,Pollock,N.,Campbell,W.,Russell,D.,Macdonald,K.,
Schmidt,L.,Heath,N.,Veldhuizen,S.,&Cousins,M.(2014).Psychologicaldistress
inchildrenwithdevelopmentalcoordinationdisorderandattention‐deficit
hyperactivitydisorder.ResearchinDevelopmentalDisabilities,35(5),1198‐207.
141. Missiuna,C.,&Campbell,W.(2014).Psychologicalaspectsofdevelopmental
coordinationdisorder:Canweestablishcausality.CurrentDevelopmental
DisordersReports,1(2),125‐131.
142. Moreira,R.,Magalhães,L.,&Alves,C.(2014).Effectofpretermbirthonmotor
development,behavior,andschoolperformanceofschool‐agechildren:a
systematicreview.JornaldePediatria(Impresso),90(2),119‐134.
143. Moreira,R.,Magalhães,L.,Dourado,J.,Lemos,S.,&Alves,C.(2014).Factors
influencingthemotordevelopmentofprematurelybornschool‐agedchildrenin
Brazil.ResearchinDevelopmentalDisabilities,35(9),1941‐51.
144. Morgan,C.,Novak,I.,Dale,R.,Guzzetta,A.,&Badawi,N.(2014).GAME(Goals‐
Activity‐MotorEnrichment):protocolofasingleblindrandomisedcontrolledtrial
ofmotortraining,parenteducationandenvironmentalenrichmentforinfantsat
highriskofcerebralpalsy.BMCNeurology,14,203.
145. Morris,C.,etal.(2014).InformingtheNHSOutcomesFramework:evaluating
meaningfulhealthoutcomesforchildrenwithneurodisabilityusingmultiple
methodsincludingsystematicreview,qualitativeresearch,Delphisurveyand
consensusmeeting.HealthServicesandDeliveryResearch,15(2).
146. Muskat,B.,Burnham,R.,Nicholas,D.,Roberts,W.,Stoddart,K.,&Zwaigenbaum,L.
(2014).Autismcomestothehospital:Theexperiencesofpatientswithautism
spectrumdisorder,theirparentsandhealth‐careprovidersattwoCanadian
32 of 51
pediatrichospitals.Autism,19(4),482‐90.
147. Nguyen,T.,Baker,J.,Obeid,J.,Raha,S.,Parise,G.,Pedder,L.,&Timmons,B.(2014).
Theeffectsofrestingandexerciseserumfromchildrenwithcysticfibrosison
C2C12myoblastproliferationinvitro.PhysiologicalReports,2(6).
148. Nguyen,T.,Obeid,J.,Baker,J.,Takken,T.,Pedder,L.,Parise,G.,&Timmons,B.
(2014).Reducedfatoxidationratesduringsubmaximalexerciseinboyswithcystic
fibrosis.JournalofCysticFibrosis,13(1),92‐8.
149. Ni,L.,Fehlings,D.,&Biddiss,E.(2014).Designandevaluationofvirtualreality‐
basedtherapygameswiththerapeuticrelevanceanduserexperienceforchildren
withcerebralpalsy.GamesforHealth,3(3),162‐71.
150. Nicholas,D.,Attridge,M.,Zwaigenbaum,L.,&Clarke,M.(2014).Vocational
SupportApproachesinAutismSpectrumDisorder:AReviewofRecentLiterature.
Autism.Advancedonlinepublication.
151. Ninan,A.,Stewart,S.,Theall,L.,King,G.,Evans,R.,Baiden,P.,&Brown,A.(2014).
Psychotropicmedicationmonitoringchecklists:Useandutilityforchildrenin
residentialcare.JournaloftheCanadianAcademyofChildandAdolescent
Psychiatry,23(1),38‐47.
152. Nixon,S.,Cockburn,L.,Acheinegeh,R.,Bradley,K.,Cameron,D.,Mue,P.,Samuel,N.,
&Gibson,B.(2014).UsingPostcolonialPerspectivestoConsiderRehabilitation
withChildrenwithDisabilities:TheBamenda‐TorontoDialogue.Disabilityandthe
GlobalSouth:SpecialIssueon‘DisablingChildhoods’.InPress.
153. Njelesani,J.,Cameron,D.,Gibson,B.,Nixon,S.,&Polatajko,H.(2014).Acritical
occupationalapproach:Offeringinsightsonthesport‐for‐developmentplaying
field.SportinSociety:Cultures,Commerce,Media,Politics,17(6),790‐807.
154. Novak,I.(2014).Evidence‐baseddiagnosis,health‐careandrehabilitationfor
childrenwithcerebralpalsy.JournalofChildNeurology,29(8)1141‐1156.
155. Novak,I.(2014).Evidencetopracticecommentary:Newevidenceincoaching
interventions.Physical&OccupationalTherapyinPediatrics,34(2),132–137.
156. Novak,I.&Berry,J.(2014).Evidencetopracticecommentary:Homeprogram
effectivenessevidence.Physical&OccupationalTherapyinPediatrics.Advanced
onlinepublication.
157. Obeid,J.,Balemans,A.,Noorduyn,S.,Gorter,J.W.,&Timmons,B.Objectively
measuredsedentarytimeinyouthwithcerebralpalsycomparedwithage‐,sex‐,
andseason‐matchedyouthwhoaredevelopingtypically:Anexplorativestudy.
33 of 51
PhysicalTherapy,94(8),1163‐7.
158. Obeid,J.,Nguyen,T.,Walker,R.,Gillis,L.,&Timmons,B.(2014).Circulating
endothelialcellsinchildren:Roleoffitness,activityandadiposity.Medicineand
ScienceinSportsandExercise,46(10),194‐80.
159. Palisano,R.,Chiarello,L.,WestcottMcCoy,S.,Bartlett,D.,&An,M.(2014).Use
oftheChildEngagementinDailyLifeandEaseofCaregivingforChildrento
EvaluateChangeinYoungChildrenwithCerebralPalsy.Physical&Occupational
TherapyinPediatrics.Advancedonlinepublication.
160. Parmar,A.,Kwan,M.,Rodriguez,C.,Missiuna,C.,&Cairney,J.(2014).
PsychometricpropertiesoftheDCD‐Q‐07inchildrenagesto4‐6.Researchin
DevelopmentalDisabilities.Advancedonlinepublication.
161. Phelan,S.,Wright,V.,&Gibson,B.(2014).RepresentationsofDisabilityand
NormalityinRehabilitationTechnologyPromotionalMaterials.Disabilityand
162. Phoenix,M.,&Rosenbaum,P.(2014).Developmentandimplementationofa
paediatricrehabilitationcarepathforhard‐to‐reachfamilies:acasereport.Child:
Care,HealthandDevelopment.Advancedonlinepublication.
163. Pinto,D.,Delaby,E.,Merico,D.,Zwaigenbaum,L,.Szatmari,P.,Sutcliffe,J.,
Hallmayer,J.,Gill,M.,Cook,E.,Buxbaum,J.,Devlin,B.,Gallagher,L.,Betancur,C.,&
Scherer,S.(2014).ConvergenceofGenesandCellularPathwaysDysregulatedin
AutismSpectrumDisorders.AmericanJournalofHumanGenetics,94(5),677‐94.
164. Piškur,B.,Daniels,R.,Jongmans,M.,Ketelaar,M.,Smeets,R.,Norton,M.,&
Beurskens,A.(2014).Participationandsocialparticipation:aretheydistinct
concepts?ClinicalRehabilitation,28(3),211‐20.
165. Poulsen,A.,Ziviani,J.,Kotaniemi,K.,&Law,M.(2014).‘IthinkIcan’:measuring
confidenceingoalpursuit.BritishJournalofOccupationalTherapy,77(2),64‐66.
166. Prehn,J.,McEwen,I.,Jeffries,L.,Jones,M.,Daniels,T.,Goshorn,E.,&Marx,C.
(2014).Decreasingsoundandvibrationduringgroundtransportofinfantswith
verylowbirthweight.JournalofPerinatoloty,35(2),110‐4.
167. Quigley,L.,Lacombe‐Duncan,A.,Adams,S.,Hepburn,C.,&Cohen,E.(2014).A
qualitativeanalysisofinformationsharingforchildrenwithmedicalcomplexity
withinandacrosshealthcareorganizations.BMCHealthServicesResearch,14,283.
168. RadiaGeorge,C.,Imms,C.,&Taylor,N.(2014).Inter‐raterreliabilityandclinical
utilityofthePersonalCareParticipationAssessmentandResourceTool(PC‐
34 of 51
PART).AmericanJournalofOccupationalTherapy,68(3),334‐343.
169. Randall,K.,Bartlett,D.,&WestcottMcCoy,S.(2014).Head‐to‐headcomparison
oftheEarlyClinicalAssessmentofBalanceandthePediatricReachTestinYoung
ChildrenwithCerebralPalsy.PediatricPhysicalTherapy,26,332‐337.
170. Randall,K.,Bartlett,D.,&McCoy,S.(2014)MeasuringPosturalStabilityinYoung
ChildrenwithCerebralPalsy:AComparisonofTwoInstruments.PediatricPhysical
Therapy,26(3),332‐337.
171. Randall,M.,Imms,C.,Carey,L.,&Pallant,J.(2014).Raschanalysisofthe
MelbourneAssessmentofUnilateralUpperLimbFunction.DevelopmentalMedicine
andChildNeurology,56(7),665‐672.
172. Reinthaler,E.,etal.incl.RonenG.(2014).AnalysisofELP4,SRPX2andinteracting
genesintypicalandatypicalRolandicepilepsy.Epilepsia,55(8),89‐93.
173. Reinthaler,E.,etal.incl.RonenG.(2014).DuplicationsConferRiskforTypicaland
AtypicalRolandicEpilepsy.Epilepsia,55(8),89‐93.
174. Restall,G.,Cantin,N.,Law,M.,Montgomery,I.,Phelan,S.,Zwicker,J.,&Anaby,D.
(2014).TheKnowledgeTranslationCaféatthe2014CAOTConference:Closingthe
gapsbetweenpresentersandparticipants.OccupationalTherapyNOW,16(4),18‐
19.
175. Rivard,L.,Camden,C.,Pollock,N.,&Missiuna,C.(2014).Knowledgetopractice
indevelopmentalcoordinationdisorder:Utilityofanevidence‐basedonline
moduleforphysicaltherapists.PhysicalandOccupationalTherapyinPediatrics.
176. Rivard,L.,Camden,C.,Pollock,N.,&Missiuna,C.(2014).Workingwithphysical
therapiststodevelopandevaluateanevidence‐basedonlinemodulefor
developmentalcoordinationdisorder(DCD):Bridgingtheknowledge‐to‐practice
gap.PhysicalandOccupationalTherapyinPediatrics:SpecialIssueon
DevelopmentalCoordinationDisorder.Advancedonlinepublication.
177. Rivard,L.,Missiuna,C.,McCauley,D.,&Cairney,J.(2014).Descriptiveandfactor
analysisoftheDevelopmentalCoordinationDisorderQuestionnaire(DCDQ‘07)in
apopulation‐basedsampleofchildrenwithandwithoutDevelopmental
CoordinationDisorder.Child:Care,HealthandDevelopment,40(1),42‐49.
178. Rosenbaum,P.(2014).Identifyingcausation:theroleoftheclinicalexpert.
DevelopmentalMedicine&ChildNeurology,56(1),4.
35 of 51
179. Rosenbaum,P.(2014).Whatcausescerebralpalsy?BMJ,349,4514.
180. Rosenbaum,P.,&Camden,C.(2014).Recursosparafacilitarlapracticabasadaen
lasevidenciasenrehabilitaciónpediátrica(Resourcestofacilitateevidence‐based
practiceinpediatricrehabilitation).RevistaColombianadeMedicinaFisicay
Rehabilitación,24(1),68‐74.
181. Rosenbaum,P.,Eliasson,A.,Hidecker,M.,&Palisano,R.(2014).Classificationin
ChildhoodDisability:Focusingonfunctioninthe21stCentury.JournalofChild
Neurology,29(8),1036‐45.
182. Sabarre,C.,Rassekh,S.,&Zwicker,G.(2014).Vincristineandfinemotorfunction
ofchildrenwithacutelymphoblasticleukemia.CanadianJournalofOccupational
Therapy,81,256‐264.
183. Sacrey,L.,Armstrong,V.,Bryson,S.,&Zwaigenbaum,L.(2014).Impairmentsto
visualdisengagementinautismspectrumdisorder:Areviewofexperimental
studiesfrominfancytoadulthood.NeuroscienceandBiobehavioralReviews.
184. Sadeghi,S.,Fayed,N.,&Ronen,G.(2014).Patient‐reportedoutcomes(PRO)
measuresinpediatricepilepsy:AContentAnalysisusingWorldHealth
OrganizationDefinitions.Epilepsia,55(9),1431‐1437.
185. Schiariti,V.,Sauve,K.,Klassen,A.,O'Donnell,M.,Cieza,A.,&Mâsse,L.(2014).'He
doesnotseehimselfasbeingdifferent':theperspectivesofchildrenandcaregivers
onrelevantareasoffunctioningincerebralpalsy.DevelopmentalMedicineand
ChildNeurology,56(9),853‐61.
186. Schwellnus,H.,King,G.,&Thompson,L.(2014).Client‐centredcoachinginthe
pediatrichealthprofessions:acriticalreview.DisabilityandRehabilitation.
187. Sellers,D.,Mandy,A.,Pennington,L.,Hankins,M.,&Morris,
C.(2014).Developmentandreliabilityofasystemtoclassifytheeatingand
drinkingabilityofpeoplewithcerebralpalsy.DevelopmentalMedicineandChild
Neurology,56(3),245‐251.
188. Sharkey,S.,Lloyd,C.,Tomlinson,R.,Thomas,E.,Martin,A.,Logan,S.,&
Morris,C.(2014).Communicatingwithdisabledchildrenwheninpatients:
Barriersandfacilitatorsidentifiedbyparentsandprofessionalsinaqualitative
study.HealthExpectations.Advancedonlinepublication.
189. Shepherd,T.,King,G.,Servais,M.,Bolack,L.,&Willoughby,C.(2014).Clinical
scenariodiscussionsoflisteningininterprofessionalhealthcareteams.
36 of 51
InternationalJournalofListening,28(1),47‐63.
190. Shikako‐Thomas,K.(2014).Measuringenvironmentalqualities:aninnovative
approach.DevelopmentalMedicineandChildNeurology,56(8),708‐709.
191. Shikako‐Thomas,K.,Kolehmainen,N.,Ketelaar,M.,Bult,M.,&Law,M.(2014).
PromotingLeisureParticipationasPartofHealthandWell‐BeinginChildrenand
YouthwithCerebralPalsy.JournalofChildNeurology,29(8),1125‐1133.
192. Shilling,V.,Bailey,S.,Logan,S.,&Morris,C.(2014).Peersupportforparentsof
disabledchildrenpart1:perceivedoutcomesofaone‐to‐oneservice,aqualitative
study.Child:Care,HealthandDevelopment.Advancedonlinepublication.
193. Siller,M.,Morgan,L.,Turner‐Brown,L.,Baggett,K.,Baranek,G.,Brian,J.,Bryson,S.,
Carter,A.,Crais,E.,Estes,A.,Kasari,C.,Landa,R.,Lord,C.,Messinger,D.,Mundy,P.,
Odom,S.,Reznick,S.,Roberts,W.,Rogers,S.,Schertz,H.,Smith,I.,Stone,W.,
Watson,L.,Wetherby,A.,Yoder,P.,&Zwaigenbaum,L.(2014).DesigningStudies
toEvaluateParent‐MediatedInterventionsforToddlerswithAutismSpectrum
Disorder.JournalofEarlyIntervention.Advancedonlinepublication.
194. Smits,D.,Gorter,J.W.,vanSchie,P.,Dallmeijer,A.,Ketelaar,M,&PERRIN+study
group.(2014).Howdochangesinmotorcapacity,motorcapability,andmotor
performancerelateinchildrenandadolescentswithcerebralpalsy?Archivesof
PhysicalMedicineandRehabilitation,95(8),1577‐84.
195. Stewart,D.,Law,M.,Young,N.,Forhan,M.,Healy,H.,Burke‐Gaffney,J.,&
Freeman,M.(2014).Complexitiesduringtransitionstoadulthoodforyouthwith
disabilities:person‐environmentinteractions.DisabilityandRehabilitation,36(23),
1998‐2004.
196. Stone,N.,Obeid,J.,Dillenburg,R.,Milenkovic,J.,MacDonald,M.,&Timmons,B.
(2014).Objectively‐measuredphysicalactivitylevelsofyoungchildrenwith
congenitalheartdisease.CardiologyintheYoung,25(3),520‐5.
197. Tan,S.,vanMeeteren,J.,Ketelaar,M.,Schuengel,C.,Reinders‐Messelink,H.,Raat,
H.,Dallmeijer,A.,Roebroeck,M.,&PERRIN+studygroup.(2014).Long‐term
trajectoriesofhealth‐relatedqualityoflifeinindividualswithcerebralpalsy:a
multi‐centerlongitudinalstudy.ArchivesofPhysicalMedicineandRehabilitation,
95(11),2029‐39.
198. Tan,S.,Wiegerink,D.,Vos,R.,Smits,D.,Voorman,J.,Twisk,J.,Ketelaar,M.,
Roebroeck,M.&PERRIN+studygroup.(2014).Developmentaltrajectoriesof
socialparticipationinindividualswithcerebralpalsy:amulticentrelongitudinal
study.DevelopmentalMedicineandChildNeurology,56(4),370‐7.
37 of 51
199. Teachman,G.,&Gibson,B.(2014).CommunicativeCompetenceinthefieldof
AugmentativeandAlternativeCommunication;areviewandcritique.International
JournalofLanguage&CommunicationDisorders,49(1),1‐14.
200. Teachman,G.,Mistry,B.,&Gibson,B.(2014).Doingqualitativeresearchwith
peoplewhohavecommunicationimpairments.SAGEResearchMethodsCases.
201. Thomas,A.,&Law,M.(2014).Evidence‐basedpracticesupportsamongCanadian
occupationaltherapists.CanadianJournalofOccupationalTherapy,81(2),79‐92.
202. Thomson,L.,Fayed,N.,Sedarous,F.,&Ronen,G.(2014).Adolescentsand
emergingadultswithepilepsy:lifequalityandhealthstatusduringtheyearsof
transitions.Ascopingreview.DevelopmentalMedicineandChildNeurology,56(5),
421‐433.
203. Tonkin,B.,Ogilvie,B.,Greenwood,S.,Law,M.,&Anaby,D.(2014).The
participationofchildrenandyouthwithdisabilitiesinactivitiesoutsideofschool:
Ascopingreview.CanadianJournalofOccupationalTherapy,34(4),457‐470.
204. Veldhuizen,S.,Cairney,J.,Hay,J.,&Faught,B.(2014).Relativeageeffectsinfitness
testinginageneralschoolsample:Howrelativearethey?JournalofSportSciences,
33(2),109‐15.
205. Veldhuizen,S.,Wade,T.,Hay,J.,Faught,B.,&Cairney,J.(2014).Whenandfor
whomarerelativeageeffectsimportant?Evidencefromasimpletestof
cardiorespiratoryfitness.AmericanJournalofHumanBiology,26(4),476‐80.
206. Verschuren,O.,Darrah,J.,Novak,I.,Ketelaar,M.,&Wiart,L.(2014).Health‐
EnhancingPhysicalActivityinChildrenWithCerebralPalsy:MoreoftheSameIs
NotEnough.PhysicalTherapy,94(2),297‐305.
207. Verschuren,O.,Peterson,M.,Leferink,S.,&Darrah,J.(2014).Muscleactivation
andenergy‐requirementsforvaryingposturesinchildrenandadolescentswith
cerebralpalsy.TheJournalofPediatrics,165(5),1011‐6.
208. Verschuren,O.,&Takken,T.(2014).Themusclepowersprinttest.Journalof
Physiotherapy,60(4),239.
209. Ward,K.,Chiarello,L.,Bartlett,D.,Palisano,R.,WestcottMcCoy,S.,&Avery,L.
EaseofCaregivingforChildren:Ameasureofparentperceptionsofthephysical
demandsofcaregivingforyoungchildrenwithcerebralpalsy.Researchin
DevelopmentalDisabilities,35,3403‐3415.
38 of 51
210. Weeks,M.,Cairney,J.,Wild,T.,Ploubidis,G.,Naicker,K.,&Colman,I.(2014).Early‐
lifepredictorsofinternalizingsymptomtrajectoriesinCanadianchildren.
DepressionandAnxiety,31(7),608‐16.
211. Weeks,M.,Wild,T.,Ploubidis,G.,Naicker,K.,Cairney,J.,North,C.,&Colman,I.
(2014).Childhoodcognitiveabilityanditsrelationshipwithanxietyand
depressioninadolescence.JournalofAffectiveDisorders,152‐154,139‐45.
212. Weiss,T.,Tirosh,E.,&Fehlings,D.(2014).Roleofvirtualrealityforcerebralpalsy.
JournalofChildNeurology,29(8),1119‐1124.
213. Wolff.J.,Botteron,K.,Dager,S.,Elison,J.,Estes,A.,Gu,H.,Hazlett,H.,Pandey,J.,
Paterson,S.,Schultz,R.,Zwaigenbaum,L.,&Piven,J.(2014).Longitudinalpatterns
ofRepetitiveBehaviorinToddlerswithAutism.JournalofChildPsychologyand
Psychiatry,55(8),945‐53.
214. Wong,R.,McEwan,J.,Finlayson,D.,Chung,S.,Wan,L.,Salbach,N.,Kirkwood,G.,
Meschino,C.,&Wright,V.(2014).ReliabilityandValidityoftheAcquiredBrain
InjuryChallengeAssessment(ABI‐CA)inChildren.BrainInjury,28(13‐14),1734‐
1743.
215. Wright,V.,&Majnemer,A.(2014).Atoolboxofoutcomemeasuresforchildren
withcerebralpalsy:Why,what,andhowtouse?JournalofChildNeurology,29(8),
1055‐1065.
216. Wright,V.,Rosenbaum,P.,Fehlings,D.,Mesterman,R.,Breuer,U.,&Kim,M.
(2014).TheQualityFunctionMeasure:reliabilityanddiscriminantvalidityofa
newmeasureofqualityofgrossmotormovementinambulatorychildrenwith
cerebralpalsy.DevelopmentalMedicine&ChildNeurology,56(8),770‐8.
217. Zaidman‐Zait,A.,Mirenda,P.,Duku,E.,Szatmari,P.,Georgiades,S.,Volden,J.,
Zwaigenbaum,L.,Vaillancourt,T.,Bryson,S.,Smith,I.,Fombonne,E.,Roberts,W.,
Waddell,C.,Thompson,A.,&PathwaysinASDStudyTeam.(2014).Examinationof
BidirectionalRelationshipsbetweenParentStressandTwoTypesofProblem
BehaviorinChildrenwithAutismSpectrumDisorder.JournalofAutismand
DevelopmentalDisorders,44(9),1908‐17.
218. Zemek,R.,Eady,K.,Moreau,K.,Farion,K.,Solomon,B.,Weiser,M.,&DeMatteo,C.
(2014)Knowledgeofpediatricconcussionamongfront‐lineprimarycare
providers.PediatricsandChildHealth,19(9),475‐80.
219. Zhu,Y.,Wu,S.,Cairney,J.,Li,Y.,Chen,W.,&Chen,F.(2014).Highriskforobesity
inchildrenwithasubtypeofdevelopmentalcoordinationdisorder.Researchin
DevelopmentalDisabilities,35,1727‐1733.
39 of 51
220. Zwaigenbaum,L.,etal.(2014).EarlyHeadGrowthinInfantsatRiskofAutism:A
BabySiblingsResearchConsortiumStudy.JournaloftheAmericanAcademyof
ChildandAdolescentPsychiatry,53(10),1053‐62.
221. Zwicker,J.,Rehal,H.,Sodhi,S.,Karkling,M.,Paul,A.,Hilliard,M.,&Jarus,T.(2014).
Effectivenessofasummercampinterventionforchildrenwithdevelopmental
coordinationdisorder.PhysicalandOccupationalTherapyinPediatrics.Advanced
onlinepublication.
222. Zwinkels,M.,Verschuren,O.,Janssen,T.,Ketelaar,M.,&Takken,T.(2014).
Exercisetrainingprogramstoimprovehandrimwheelchairpropulsioncapacity:a
systematicreview.ClinicalRehabilitation,28(9),847‐61.
Books Law,M.&MacDermid,J.,editors(2014).Evidence‐basedrehabilitation:Aguidetopractice,3rd
edition.Thorofare,NJ:SlackIncorporated.
Book Chapters LachLM,RosenbaumP,BaileyS,BogossianA,MacCullochR.(2014)Chapter1.4.Parentinga
ChildwithCerebralPalsy:FamilyandSocialIssues.In:CerebralPalsy.(Eds)BernardDan,
MargaretMayston,NigelPaneth,LewisRosenbloom.London:MacKeithPress.
Majnemer,A.,Shikako‐Thomas,K.NovakI.etal.(2014)ConceptsofParticipationand
EnvironmentinRelationtoChildhoodDisability(Chapter5).NewYork:UNICEF(Inpress).
Majnemer,A.,Shikako‐Thomas,K.NovakI.etal.(2014)Assessingparticipationand
environmentinchildrenwithdisabilities(Chapter6).NewYork:UNICEF(Inpress).
RosenbaumP.(2014)Chapter1.2.CerebralPalsy:DefinitionandClinicalClassification.In:
CerebralPalsy.(Eds)BernardDan,MargaretMayston,NigelPaneth,LewisRosenbloom.
London:MacKeithPress.
RosenbaumPandMorrisC.(2014)Chapter3.8.ResourcesforFamilies.In:CerebralPalsy.
(Eds)BernardDan,MargaretMayston,NigelPaneth,LewisRosenbloom.London:MacKeith
Press.
RosenbaumP(2014)Chapter9Issuesinchildhooddisability:Aforty‐yearperspectiveona
changingfield.In:SaigalS(Ed.)PreemieVoices.Yongmenandwomenbornvery
prematurelydescribetheirlives,challengesandachievements.VitoriaBC:Friesen
Press.SteenbeekD,GorterJW,KetelaarM,GalamaK,LindemanE.(2014)GoalAttainment
Scalinginpaediatricrehabilitation.Chapter8.InRichardJSiegert,WilliamLevack.
RehabilitationGoalSetting:Theory,PracticeandEvidence(hardcover),Taylor&Francis
Group.Florida,US.July2014Cat/ISBN:K12930/9781439863299.P143‐160.
WiegerinkD,GorterJW,&RoebroeckM.(2014)Sexualdevelopment,sexualhealth,needs,
40 of 51
andlivedexperiences.Chapter38.In:CerebralPalsy.Editors:BernardDan,Margaret
Mayston,NigelPaneth,LewisRosenbloom.MacKeithPress,London,UKISBN:978‐1‐
909962‐38‐5September2014.
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CanChild Grant Funding2 New Funding for 2014: ProjectName
Feasibilityandacceptabilityofatelehealth
interventioninadolescentswithchronicfatigue
syndrome:Apilotrandomisedcontrolledtrial.
DevelopmentandValidationofDistress
ScreeningToolsforusebyCanadianAdolescent
andYoungAdult(AYA)CancerPatients&
Survivors
CanChild
Invest.
AH
FundingSource
MCRIEmergin
ResearcherGrant
Amount
Start
Date
$22,000 2014
(AUS)
Duration
1year
FundingHeldAt
AUS
AK
C17Research
Network
$149,554 2014
2year
McMaster
BG,
CMcL,
CM
CIHR
$180,000 2014
3years
Bloorview
AH
NHMRC
Not 2014
available
4years
AUS
BG,EC
NormanSaunders
ComplexCare
Initiative
$26,152 2014
1year
SickKids
BT
HeartandStroke
Foundationof
CanadaGrant‐in‐
Aid
$263,229 2014
2years
McMaster
MovingTogether:Choreographicmappingsof
childrenwithdiversedis/abilitiesandtheir
neurologicalresponsestoadance‐playevent.
NHMRCCentreofResearchExcellencein
CerebralPalsyledbyProfessorDinah
Reddihough
Exploringparent‐healthcareproviderdecision
makingpracticesforchildrenwithcomplex
healthcareneedsreceivinghomecareservices:
Apilotstudy.
CardiovascularHealthinchildrenwithchronic
inflAMatorycondition:roleofPhysicalactivity,
fItnessandinflammatiON:TheCHAMPION
Study
2Onlygrantfundingrelevanttochildhooddisability,childhealthorknowledgetranslationhasbeenincludedinthisreport.
42 of 51
ProjectName
CanChild
Invest.
FundingSource
Amount
Duration
FundingHeldAt
School‐ageKidshealthfromearlyinvestmentin
Physicalactivity:TheSKIPStudy
Safelyreturningchildrenandyouthtoactivity
afterconcussion.
Supportingphysicalactivityinthechildcare
environment:TheSPACEStudy.
ProgramevaluationofSpecialisterne
EmploymentModelforindividualswithASD
MildTraumaticBrainInjury–Concussionin
Children
BT,JC
CIHR
$769,424 2014
5years
McMaster
CDM,
BT
BT
CIHR
$591,519 2014
3years
CIHR
$342,801 3year
CanChild/
McMaster
Western
$390,000 2014
2years
York
$65,454 2014
2years
CHEO
Anovelassessmentmethodforcognitive
functioninconcussion
CDM
$8,946 2014
1year
McMaster
CommunityofPracticeonSocialParticipation
forChildrenandTeenagerswithDisabilities
(CommunautédepratiqueAxéesurla
ParticipationSocialedesEnfants‐Adolescents
(CAPSEA)ayantdesincapacités)
CP2:EngagingCommunityPartnersfor
Children’sParticipation(Engagerlespartenaires
communautairespourfavoriserlaparticipation
desenfantsquiontlaparalysiecérébrale)
CP2:EngagingCommunityPartnersfor
Children'sParticipation
CC
OntarioTrillium
Foundation
OntarioChild
HealthSupport
Unit(OCHSU)
ArtsResearch
Board(ARB),
Collab/Partnershi
psResearch‐ARB
MajorSeedProject
FRQSC
$52,742 2014
2years
Quebec
$35,000 2014
1year
Quebec(McGill)
$12,500 2014
1year
Quebec (McGill)
TowardasystemofEarlyIdentificationto
OptimizeChildDevelopment:Developmental
ScreeningandSurveillanceintheEarlyYears.
JC,CM,
WC
$609,628 2014
1year
McMaster
BDR
CDM
KST,
CC,LL
REPAR
KST,CC, CIHR
LL
OntarioMinistryof
ChildrenandYouth
Services
43 of 51
Start
Date
ProjectName
FundingSource
Invest.
DA,CC, FRQSC
CM,WC,
SB
Start
Date
$59,233 2014
Duration
FundingHeldAt
1year
Quebec(McGill)
$10,000 2014
1year
UofAlberta
£796,303 2014
5years
UK
$8,000 2014
(AUS)
1year
AUS
AT,DA, REPAR
KST
$20,000 2014
1year
Quebec(McGill)
SSHRC
$412,867 2014
4years
Bloorview
$24,515 2014
1year
SickKids
CanChild
Commentorganiserlesservicespourmieux
soutenirlesélèveshandicapésouendifficulté
d’adaptationoud’appretissage(HDDA):
Principesetstratégiesefficacies.
ImprovingSocialParticipationforChildrenwith SHod,
ASDinElementarySchool:Proposal
CM,LZ
Development.
Involvingfamiliesindevelopingideasfor
research,designingcollaborativestudies,
seekingresearchgrantsandproducingoutputs
directlyusefultofamilies.
Theuseofportableinertialmeasurement
sensorstomeasureupperlimbfunctionin
childrenwithcerebralpalsy:Avalidationand
reliabilitystudy.
QuébecKnowledgeTranslationinRehabilitation
StrategicInitiative
ChM
AlbertaCentrefor
Child,Familyand
Community
Research
Cerebra
CI
CurtinUniversity
Optimizinglifesuccessthroughresidential
immersivelifeskillsprogramsforyouthwith
disabilities
GK,
JWG,
DS
AnExplorationofCareMappingAmongFamilies EC,SM
ofChildrenwithMedicalComplexity.
Anexplorationofcaremappingamongfamilies
ofchildrenwithmedicalcomplexity(CMC).
Coresetofoutcomesforchildrenwithsevere
neuro‐disabilityandgastrostomytube
dependency:Atoolofstandardizedoutcomes
forclinicalresearchandpractice.
NormanSaunders
ComplexCare
Initiative
EC,SM
AssociatedMedical
Services
$20,000 2014
1year
SickKids
EC,SM
NormanSaunders
ComplexCare
ResearchGrant
Competition
$26,500 2014
1year
SickKids
44 of 51
Amount
ProjectName
CanChild
Theexperienceofcaregiversofchildrenwith
medicalcomplexityreceivingblenderizedtube
feeding:aqualitativestudy.
EC
TheEXPLORINGSLEEPStudy:AStudy
EXPLORINGtheExperiencesandPerceptionsof
End‐UsersintheDevelopmentofaSLEEP
PromotingInterventionamongFamily
CaregiversofChildrenwhoDependonMedical
Technology.
Thompsonfamilyfundraisingforpediatric
epilepsyresearch
Engagementinthepediatricrehabilitation
interventionprocess:Itsnature,measurement,
androleinthedeterminationofoutcomes
Solution‐focusedcoachinginpediatric
rehabilitation:Investigatingtransformative
experiencesforfamilies
EC
Invest.
FundingSource
Start
Date
Duration
FundingHeldAt
NormanSaunders
ComplexCare
ResearchGrant
Competition
NormanSaunders
ComplexCare
ResearchGrant
Competition
$11,730 2014
1year
SickKids
$10,949 2014
1year
SickKids
ThompsonFamily
FundRaiser
GK,
Canadian
VW,LC Institutesof
HealthResearch
GK
Instituteof
Coaching,McLean
Hospital,Harvard
MedicalSchool
Affiliate
Atrialofcoachingwithchildrenandyouthwith GK
Canadian
cerebralpalsyfocusedonenablingparticipation
Occupational
inrecreationandleisureactivities
Therapy
Foundation
“Ascopingreviewoftheroleofparentalhopein GK
SSHRC
thedeliveryofpediatricrehabilitationservices,”
Anarts‐mediatedprogramforchildrenwithand GK
Centrefor
withoutdisabilities:Serviceproviders’useof
Leadershipin
strategiestocreateaninclusionaryspace
Participationand
Inclusionwiththe
supportofthe
HollandBloorview
$50,000 2014
1year
McMaster
$616,110 2014
5years
Bloorview
$25,640 2014
1year
Bloorview
$5,000 2014
1year
Bloorview
$700 2014
1year
Bloorview
$5,000 2014
1year
Bloorview
GR
45 of 51
Amount
ProjectName
CanChild
Invest.
“Family‐orientedservicesforparentsofchildren GK
andyouthwithdisabilities:Ascopingreviewof
programsandservicestopromotecaregiver
wellnessandoptimizechildren’soutcomes,”
“Solution‐focusedcoachinginpediatric
rehabilitation:Investigatingtransformative
experiencesoffamiliesandserviceproviders,”
GK
Umbilicalcordbloodstemcellsfortreatmentof
cerebralpalsy
IN
REACH:RandomisedtrialofRehabilitationvery
EArlyinCongenitalHemiplegia
Makingadifferencetofamiliescaringfor
childrenwithneurodevelopmentaldisorders
(NDD)
IN
JWG,
DM
FundingSource
Kids
Rehabilitation
Hospital
Foundation
Centrefor
Leadershipin
Participationand
Inclusionwiththe
supportofthe
HollandBloorview
Kids
Rehabilitation
Hospital
Foundation
Centrefor
Leadershipin
Participationand
Inclusionwiththe
supportofthe
HollandBloorview
Kids
Rehabilitation
Hospital
Foundation
CellCare&
CerebralPalsy
Foundation|
NHMRCProject
Funding|
NeuroDevNet
46 of 51
Amount
Start
Date
Duration
FundingHeldAt
$4,500 2014
1year
Bloorview
$18,000 2014
1year
Bloorview
$872,351 2014
(AUS)
?
AUS
$939,038 2014
(AUS)
$29,448 2014
?
AUS
6months
CanChild
ProjectName
CanChild
TransitionResearch
JWG
IncreasingAwarenessandImprovingOutcomes
ofChildrenwithDevelopmentalCoordination
DisorderinBritishColumbia
JZ
PROMPTIdentificationofCerebralPalsy:
Primary‐careReferralOfMotor‐impaired
children:PhysicianTools
Policycourt:Whereparticipationandpoliciies
meetattheMALL(MallasaLivingLabof
Rehabilitation)
UnderstandingDeterminantsofParticipationin
LeisureandRecreationalActivitiesbyChildren
withPhysicalDisabilities
NeurologicalOutcomeofHypoglycemiain
NeonatalEncephalopathy
MappingtheBrainandImprovingOutcomesfor
ChildrenwithDevelopmentalCoordination
Disorder
Disclosingtheirchild’sdiagnosisofautism
spectrumdisordertoothers:Familyprocesses
andperceivedoutcomes
Invest.
Start
Date
Duration
FundingHeldAt
$76,608 2014
2years
CanChild
MichaelSmith
Foundationfor
HealthResearch
ScholarAward
DF,KST CIHR
$450,000 2014
5years
UBC
$330,576 2014
4years
McGill
6months
McGill
1year
Taiwan
$703,747 2014
5years
SickKids
KST
LC
Centrede
Recherche
Interdisciplinaire
enRéadaptation
(CRIR)
NationalScience
CouncilofTaiwan
$15,000 2014
26,100 2014
JZ
CIHR
JZ
CCHCSP
$25,000 2014
5years
UBC
LZ,SH
Womenand
Children’sHealth
ResearchInstitute
InnovationGrant
AlbertaCentrefor
Child,Family&
Community
Ressearch
(ACCFCR)
AutismSpeaks
$50,000 2014
2years
UofAlberta
$10,000 2014
1year
UofAlberta
$420,000 2014
US
3years
UofAlberta
LZ,SH
47 of 51
Amount
OCHSU
ImprovingSocialParticipationforChildrenwith SH,LZ
ASDinElementarySchool:Proposal
Development
AutismTreatmentNetwork:EdmontonSite
FundingSource
ProjectName
CanChild
Invest.
AnExploratoryExaminationoftheTransitionto LZ
AdulthoodinAutismSpectrumDisorder
DJFiero
MKet
FamilyNeeds
MKet
Impactofpediatricepilepsysurgeryonhealth‐
relatedqualityoflife
Mentalhealthofchildrenwithchronicillness,
MF
MF
Psychiatriccomorbidityinchildrenwithchronic MF,
illness:Apilotstudy
JWG
MultimorbidityInyouthreceivingmentalhealth MF,
services,Grant,HamiltonHealthSciences,
JWG
Research‐NewProject,$50,000.00
Depressivesymptomsinyouthwithphysical
illnessduringthattransitionfromadolescence
toadulthood,Grant,,$37,600.00
MF,
JWG
Clinictocommunityliaisoninchildepilepsy
care:Afeasibilitystudy
Functionalrecoveryincriticallyillchildren.
NF
JWG,
FundingSource
AlbertaCentrefor
Child,Family&
Community
Research
(ACCFCR)
DeHoogstraat
OnderzoeksFonds
RevalidatieFonds
DeHoogstraat
OnderzoeksFonds
CIHR
Psychiatryand
Behavioural
Neurosciences,
StartupGrant‐
McMaster
CIHR
HamiltonHealth
Sciences(HHS),
Personnel‐Career
Awards
HamiltonHealth
Sciences,Research
‐NewProject
HamiltonHealth
Sciences,Research
‐NewProject
OntarioBrain
Institute
HAHSO
48 of 51
Amount
Start
Date
Duration
FundingHeldAt
1year
UofAlberta
3000€ 2014
6months
Netherlands
21000€
3600€ 2014
6months
Netherlands
$697,290 2014
4years
SickKids
$60,000 2014
3years
McMaster
$118,656 2014
$50,000 2014
2years
1year
McMaster
$50,000 2014
2years
McMaster
$37,600 2014
1year
McMaster
$250,000 2014
5years
Western
$200,000 2014
2years
McMaster
$39,787 2014
ProjectName
CanChild
Invest.
FundingSource
Amount
Start
Date
Duration
FundingHeldAt
$2,456 2014
1year
Brock
$10,000 2014
1year
Brock
$873,105 2014
5years
Bloorview
NationalBank
Children’s
Foundation
SSHRC
$100,000 2014
3years
Bloorview
$74,133 2014
2years
Bloorview
MilosRaonic
Foundation;
GoodlifeKids
Foundation
SSHRC
$20,000 2014
2years
Bloorview
$75,000 2014
2years
Bloorview
OntarioSportand
RecreationFund–
Ontario
Government
$46,000 2014
1year
Bloorview
NF
Brock‐NiagaraAssistiveTechnologyInitiative
TheAvonMaitlandDistrictSchoolBoard
InclusionCoachingProject
Evaluationoftheeffectivenessofroboticgait
trainingandgait‐focusedphysicaltherapy
programsforchildrenwithcerebralpalsy:A
mixedmethodsRCT
IgnitingFitnessPossibilities:Aninclusive
community‐basedprogramforyouthwith
disabilitiesandtypicallydevelopingyouth.
Developingandpilot‐testinganinclusive
recreationalsportsprogramforpreadolescent
childrenwithphysicaldisabilities.
IgnitingFitnessPossibilities:Aseriesofpilot
implementationsofacommunity‐based
inclusivephysicalactivityprogramforyouth
SB
OntarioJob
Creation
Partnership;
Ministryof
Training,Colleges
andUniversities
SB,KW AvonMaitland
DistrictSchool
Board
VW,DF, CIHR
DL
VW
VW
VW
IgnitingFitnessPossibilities:Apilotstudyto
VW
developandtestthefeasibilityofacommunity‐
basedinclusivephysicalactivityprogramfor
youth‐implementationatUniversityofToronto
SportsCamps
IgnitingFitnessPossibilities:Apilot
VW
implementationatAbilitiesCentre(Whitby)ofa
community‐basedinclusivephysicalactivity
programforyouth
49 of 51
$10,000
ProjectName
CanChild
IgnitingFitnessPossibilities:Apilot
implementationatVarietyVillageofa
community‐basedinclusivephysicalactivity
programforyouth.
VW
DevelopmentoftheFamilyNeedsAssessment
PediatricVersion‐PhaseIforAcquiredBrain
Injury
Exploringavirtualrealitybasedvideogame
withhapticfeedbackforsensory‐motor
rehabilitationofyoungpeoplewithcerebral
palsy
Invest.
FundingSource
ChillinforKids‐
Bloorview
Childrens
Rehabiltation
Hospital
Foundation
VW
Bloorview
Childrens
Rehabiltation
Hospital
Foundation
VW,DF BRI‐CIRRIS
Amount
Start
Date
Duration
FundingHeldAt
$58,500 2014
1year
Bloorview
$6,100 2014
1year
Bloorview
$22,500 2014
1year
Bloorview
Totalgrantsfundedin2014byCanChildScientists,ResearchAssociatesorInternationalCollaborators
Totalnewgrantfundingin2014(CanChildmemberasPIorco‐I):69
$9,335,299(CAD);$420,000(US);$1,841,389(AUS);27,600(EURO);796,303(GBP)
Current Ongoing Projects Located at CanChild(fundedpriorto2014andongoingthrough2014):
Fehlings,D.(Lead),Ansari,D.,Biddiss,E.,Campbell,C.,Carter,M.,Chau,T.,Chen,R.,Cheyne,D.,DeVeber,G.,Fehlings,M.,Ferro,M.,Frid,P.,
Gorter,J.W.,Graham,N.,Hall,G.,Henkelman,M.,Hunt,C.,Kawamura,A.,Kim,M.,Kingsnorth,S.,McCormick,A.,Menon,R.,Mesterman,R.,
Miller,S.,Morshead,C.,Murray,S.,Palisano,R.,Paterson,A.,Pelland,L.,Raybaud,C.,Rosenbaum,P.,Samdup,D.,Scherer,S.,Scott,S.,
Segalowitz,S.,Shroff,M.,Strother,S.,Taylor,M.,vanderKooy,D.,Wintle,R.,Wright,V.,Young,N.,ChildhoodCerebralPalsyIntegrated
NeuroscienceDiscoveryNetwork«CP‐NET».FundedbytheOntarioBrainInstitute.$7,500,000.2013‐2018.
50 of 51
Bartlett,D.,Chiarello,L.,FissA.,Hanna,S.,Jeffries,L.,Palisano,R.,Westcott,S.,Gorter,J.W.Developmentaltrajectoriesofimpairments,
associatedhealthconditions,andparticipationofchildrenwithcerebralpalsy.FundedbytheCanadianInstitutesofHealthResearch.
$1,008,439,2012‐2017.
Gagnon,I.(PI);Friedman,D.;Beauchamp,M.H.;Christie,B.R.;DeMatteo,C.A.;Fait,P.;Hung,R.;Juncker,D.;Keightley,M.;Marcoux,J.;
McFadyn,B.J.;Mok,E.;Mrazik,M.;Pelland,L.C.;Ptito,A.;Singh,S.K.;Sirois,K.;Stroman,P.W.;Swaine,B.R.;Taneja,C.;Tator,C.;Zabjek,K.;
Zemek,R.GeneratingInnovationthroughtheuseofcommondata:improvingthediagnosisandtreatmentofchildandadolescentMTBIin
Canada.CanadianInstitutesofHealthResearch,TeamGrant:MildTraumaticBrainInjuryinChildren&Youth‐FondsderechQC,$766,895,
2013‐2018.
Gorter,J.W.,MacDonald,M.,Timmons,B.,Stay‐FIT20‐40years:Across‐sectionalstudytodeterminephysicalactivityandcardiovascular
healthinadults(aged20‐40years)withcerebralpalsy.FundedbytheOntarioFederationforCerebralPalsy.$46,134,2012‐2014.
Missiuna,C.,Pollock,N.,Bennett,S.,Camden,C.,Campbell,W.,McCauley,D.,Gaines,R.,Cairney,J.Implementationandevaluationof
PartneringforChange,aninnovativemodelthatwilltransformhealthserviceprovisionforschool‐agedchildrenwithdevelopmental
coordinationdisorder.FundedbytheOntarioMinistryofHealthandLongTermCare.$994,600,2013‐2015.
McCoy,S.,Bartlett,D.(co‐PIs),Chiarello,L.,Palisano,R.,Jeffries,L.,Fiss,A.,Hanna,S.andBjornson,K.DevelopmentalTrajectoriesof
Impairments,Health,andParticipationofChildrenwithCerebralPalsy.FundedbyPatient‐OrientedOutcomesResearchInstitute(PCORI)
contract.$1,906,955(directandindirect;$1,493,692direct).2013‐2016.
Ronen,G.M.(PI),Streiner,D.L.,Rosenbaum,P.,Cunningham,C.,Boyle,M.,&Lach,L.OutcomeTrajectoriesinChildrenwithEpilepsy:What
FactorsareImportant?amulti‐sitelongitudinalstudy.FundedbyCIHR.$153,497.00annually.2008‐2014.
Ronen,G.M.(PI),Timmons,B.,Bray,S.,Rosenbaum,P.,&Streiner,D.L.Enhancedphysicalactivityinchildrenwithepilepsy:potential
impactsonhealth,functioning,psychologicalwellbeingandqualityoflife.FundedbyOntarioBrainInstituteCollectiveintractableepilepsy
researchprogram.$99,900.00.2012‐2013.
Rosenbaum,P.,DiRezze,B.,Cooley‐Hidecker,M.J.,Law,M.,Stratford,P.,Szatmari,P.,&ZwaigenbaumL.Thedevelopmentofafunctional
classificationsystemforpreschoolagedchildrenwithAutismSpectrumDisorder.FundedbyCanadianInstitutesofHealthResearch
OperatingGrant.$391,601.Apr2011–Sept2014.
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CanChild: Research Making a Difference

Transcription

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