HEADLINER - Brain Injury Alliance of Oregon

HEADLINER
Spring 2013
Vol. XX Issue 2
The Newsletter of the Brain Injury Alliance of Oregon
What’s
Inside?
Pioneer Awards
Dinner
Page 2
2013 Pioneer Awards for work on
behalf of individuals with Brain
Injuries over the last thirty years
Board of Directors
Page 2
Advocacy Award: In recognition of a team uniting to pass Max’s Law: 2009
Professional & FY
2012-13 Members
Page 3-5
What Happens When
You Have a BI from
16-19 years old
Page 5
The Lawyer’s Desk
Page 6
Potential Affects of
Severe TBI
Page 7
BIAOR Calendar
Page 7
Conference
Overview In Pictures
Page 8 - 12
Sherry Stock, Representative Vic Gilliam, Bob Joondeph, JD, Ralph & Joy Conradt, David Kracke, JD, James Chesnutt,
MD, Commissioner Tootie Smith (Not Pictured: Senator Bill Morrisette, Max Conradt, Michael Koester, MD)
Outstanding
Academic & Clinical
Research: McKay
Moore Sohlberg
Outstanding Medical
Doctor &
Community
Rehabilitation
Program in Portland
Danielle Erb, MD
Outstanding NeuroOptometrist:
Dr. Bruce
Wojciechowski
Outstanding
Media
Awareness:
Elizabeth Hovde
Fact of the Matter
Page 13-14
Training for
Caregiving Staff
Page 15
Spring Dance
Page 16
Journey for Thought
Page 17
Being a Mother & a
Brain Injury Survivor
Page 18
Outstanding Community
Rehabilitation Program
Salem
Eugene
Steve Paysinger
Jan Johnson
Outstanding
Day Program:
Carol Altman
Outstanding
Foster Home:
Karen
Campbell
Lifetime Achievement:
Muriel D. Lezak
5th Annual Camping,
Rafting, Hiking Trip
Page 19
Resources
Page 22-25
Support Groups
Page 26-27
The Headliner
Spring 2013
page 1
Brain Injury Alliance of Oregon
Board of Directors
Ralph Wiser, JD/President…......Lake Oswego
Chuck McGilvary, Vice Pres..…...Central Point
Carol Altman, Treasurer…...………...Hillsboro
Jeri Cohen, JD. Secretary…………...Creswell
Paul Cordo, PhD ……….......……...…Portland
Lisa Cunningham……………………...Portland
David Dubats ……………….…………Waldport
Nancy Irey Holmes, PsyD, CBIS …..Redmond
Craig Nichols, JD……………………..Portland
Rep Vic Gilliam, Ex-Officio……...…...Silverton
Advisory Board
Kristin Custer, QLI………..…….….Omaha, NE
Wayne Eklund, RN.……………………..Salem
Danielle Erb, MD..............….........…...Portland
Dr. Herbert Gross ………….……….. California
Andrea Karl, MD …….…….…....….Clackamas
Dave Kracke, JD.………….….....……Portland
Col. Daniel Thompson…………....……..Salem
Bruce Wojciechowski, OD…….......Clackamas
Staff
Sherry Stock, MS CBIST Executive Director
Joyce Phelps, Program Coordinator
John Botterman, Editor
Becki Sparre, SG Facilitator, Admin, Trainer
Brain Injury Alliance of Oregon
PO Box 549
Molalla, Oregon 97038-0549
800-544-5243 • Fax: 503-961-8730
www.biaoregon.org
[email protected]
501 (c)(3): Fed. ID 93-0900797
Issue
Spring
Summer
Fall
Winter
Headliner DEADLINES
Deadline
April 15
July 15
October 15
January 15
Publication
May 1
August 1
November 1
February 1
Editor: Sherry Stock, John Botterman
Co-Editor: Jeri Cohen, 503-704-6122
BIAOR 30th Anniversary Dinner &
Pioneer Awards
Friday, March 8, BIAOR celebrated its
concussion during a game. With no medical
30th Anniversary with an
confirmation that his first concussion
awards dinner. Music was
had cleared, Max started in the next
provided throughout the
game. He collapsed at halftime due to
evening by Thom Dudley on
massive bleeding in his brain even
the guitar and vocals and
though no remarkable hits were
Eddie Parente on the violin.
observed. Three critical brain
Ken Boddie, Koin News
surgeries saved his life, but he
Anchor, was Master of
continued in a coma for three months.
Ceremonies. BIAOR was
Once he became physically stable,
honored to give out a
Max began a long period of
Ken Boddie
number of Pioneer Awards
rehabilitation in several institutions.
to individuals for the work they have done He now lives in a group home for individuals
on behalf of individuals with Brain Injury
with brain injuries in Salem. Seeing the need
over the last thirty years.
for sports concussion legislation BIAOR
talked to Senator Bill Morrisette, who was in
The recipients were:
the Oregon Legislature for 22 years, retiring in
2011, and Representative Vic Gilliam.
Lifetime Achievement: Dr. Muriel D.
Together they jointly sponsored SB348.
Lezak, PhD, an American
Coming together, a number of individuals
neuropsychologist best known for her
worked together alongside Ralph and Max
book Neuropsychological Assessment,
Conradt, and were instrumental in getting
and widely accepted as the standard in
Max’s Law passed in 2009: James Chesnutt,
the field.
MD, OHSU Sports Medicine medical director,
is the Co-Director of the Oregon Concussion
Advocacy Award: In recognition of a
Awareness and Management Program
team uniting to pass Max’s Law: the first (OCAMP); Robert C. Joondeph, JD,
Concussion Legislation passed in Oregon Executive Director, Disability Rights Oregon,
in 2009: In the fall of 2001, high-school
Portland; Michael Koester, MD, specializing in
quarterback Max Conradt, 17, sustained a
(Pioneer Awards Continued on page 21)
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Policy
The material in this newsletter is provided for
education and information purposes only. The Brain
Injury Alliance of Oregon does not support, endorse or
recommend any method, treatment, facility, product or
firm mentioned in this newsletter. Always seek
medical, legal or other professional advice as
appropriate. We invite contributions and comments
regarding brain injury matters and articles included in
The Headliner.
page 2
Music by Eddie Perente (left) and Thom Dudley
Spring 2013
The Headliner
When looking for a professional, look for someone who knows and understands
brain injuries. The following are supporting professional members of BIAOR.
Attorneys
Oregon
Bend
† Dwyer Williams Potter Attorney’s LLC, Bend, 541617-0555 www.RoyDwyer.com
John Warren West, Law Offices of John Warren
West, Bend, 541-382-1955
Eugene.
Thomas Cary, Cary Wing Edmunson, PC, Eugene,
541-485-0203 WC
Don Corson, Corson & Johnson Law Firm, Eugene,
541-484-2525
Charles Duncan, Eugene, 800-347-4269
† Derek Johnson, Johnson, Clifton, Larson &
Schaller, P.C., Eugene 541 484-2434
Tina Stupasky, Jensen, Elmore & Stupasky, PC,
Eugene, 541-342-1141, Sisters, 541-549-1617
Portland
William Berkshire, Portland 503-233-6507 PI
Mark Bocci, Portland, 503-607-0222 PI
Jeffrey Bowersox, Lake Oswego, 503-452-5858 PI
Tom D'Amore, D'Amore & Associates, Portland 503222-6333
Aaron DeShaw, Portland 503-227-1233
D’Autremont, Bostwick, Carter & Krier, Portland, 503224-3550
¥ Lori Deveny, Portland, PI 503-225-0440
Jerry Doblie, Doblie & Associates, Portland, 503-226
-2300
Wm. Keith Dozier, Portland 503-594-0333
† R. Brendan Dummigan, Portland 503-223-7770
Peggy Foraker, Portland 503-232-3753
Sam Friedenberg, Nay & Friedenberg, 503-245-0894
€ Bill Gaylord, Gaylord Eyerman Bradley,PC,
Portland 503-222-3526
Timothy Grabe, Portland, 503-282-5223
Julia Greenfield, Disability Rights Oregon, Portland
503-243-2081
James R. Jennings, PC, Gresham 503-669-3406 PI
David Kracke, Nichols & Associates, Portland 503224-3018 PI
Sharon Maynard, Bennett, Hartman, Morris &
Kaplan, Portland 503-227-4600, SSI/SSD
Jeff Merrick, Lake Oswego 503-665-4234
Jeffrey Mutnick, Portland 503 595-1033
Robert Neuberger, Portland 503-228-1221
Craig Allen Nichols, Nichols & Associates,
Portland 503-224-3018
‡ Paulson Coletti, John Coletti, Jane Paulson
Portland, 503.226.6361 www.paulsoncoletti.com
Stephen Piucci, Piucci & Dozier, Portland 503-2287385
Charles Robinowitz, Portland, 503-226-1464
J. William Savage, Portland 503-222-0200
Joshua Shulman, Shulman DuBois, LLC, Portland,
503-222-4411
€ Richard A. Sly, Portland 503-224-0436, SSI/SSD/
PI
Steve Smucker, Portland 503-224-5077
¥ Tichenor& Dziuba Law Offices, Portland 503-2243333,
The Headliner
Uffelman, John, Adams & Uffleman LLP, Beaverton,
503-644-2146
Richard Vangelisti, Vangelisti Law Offices PC,
Portland 503-595-4131
Ralph Wiser III, Wiser & Associates, Inc., Lake
Oswego 503 620-5577, PI & SSI/SSDI
Salem
Adams, Hill & Hess, Salem, 503-399-2667
Richard Walsh, Walch & Associates, PC Keizer, 503304-4886 www.walshlawfirm.net
Roseburg
Samuel Hornreich, Roseburg, 541-677-7102
Washington Bremerton Seattle
Bremerton
Kenneth Friedman, Friedman Rubin, Bremerton, 360782-4300
Seattle
Richard Adler, Adler Giersch, Seattle, WA
206.682.0300
‡ Kevin Coluccio, Stritmatter Kessler Whelan
Coluccio, Seattle, WA 206-448-1777
www.stritmatteer.com
Joana Olaru, Alpine House, Beaverton, 503-646-9068
† Oregon Rehabilitation Center, Sacred Heart Medical
Center, Director: Katie Vendrsco, 541-228-2396
Quality Living Inc (QLI), Kristin Custer, Nebraska, 402573-3777
† Ridgeview Assisted Living Facility, Jolene White,
Medford, 541-779-2208
† Sharon Slaughter, Windsor Place, Inc., Salem, 503581-0393 Supported Apt
Melissa Taber, Oregon DHS, 503-947-5169
Uhlhorn Program, Eugene, 541 345-4244 Supported
Apt
Chiropractic/Massage Therapists
Carol Ford, Portland Cranial Sacral Therapy, Portland,
503-608-2372
Gretchen Blyss, DC, Portland, 503-222-0551
Thomas Kelly, DC, Chiropractic Neurologist, Kelly
Chiropractic, PS, Vancouver, WA, 360-882-0767
Garreth MacDonald, DC, Eugene, 541-343-4343
Bradley Pfeiffer, Bend 541-383-4585
Cognitive Rehabilitation Centers/ Rehab Therapists/
Specialists
† Gentiva Rehab Without Walls, Mountlake Terrace,
WA 425-672-9219
Caregiver & Support Services
† Progressive Rehabilitation Associates—BIRC,
Micki Carrier, Owner, Caregiver ConnectionPortland, 503-292-0765
specializing in 24 hr care, Portland, 503-246-4672 Marie Eckert, RN/CRRN, Legacy HealthCare, RIO
Cy Osborne, Pegasus Social Services, an Oregon
Admissions, Portland, 503-413-7801
Home Care Services Co, Portland, 503.380.4443
Lynne Williams, Lynne Williams Cognitive Rehab.
Therapy, Central Point 541-655-5925
Care Facilities/TBI Housing (subacute, community
based, inpatient, outpatient, nursing care, supervisedliving, behavior, coma management, driver evaluation,
hearing impairment, visual impairment, counseling,
pediatric)
Counseling
Heidi Dirkse-Graw, Dirkse Counceling & Consulting,
Inc. Beaverton, OR 503-672-9858
Sharon Evers, Face in the Mirror Counseling, Art
Carol Altman, Homeward Bound, Hillsboro 503-640
Therapy, Lake Oswego 503-201-0337
-0818
Donald W. Ford, MA, LMFT, LPC, Portland, 503-297Ashland View Manor-WestWind Enhanced Care, Dan
2413
Gregory, Medford, 541-857-0700
Joyce Kerley 503-281-4682
Linda Beasley, LPN CBIS, Autumn House, Beaverton, Jerry Ryan, MS, CRC, Oregon City, 503-348-6177
503-941-5908
Elizabeth VanWormer, LCSW, Portland, 503-297-3803
Karen Campbell, Highland Height Home Care, Inc,
Dentists
Gresham & Portland, 971-227-4350 or 503-618Dr. Nicklis C. Simpson, Adult Dental Care LLC,
0089 Medically Fragile
Gleneden Beach
£ Casa Colina Centers for Rehabilitation, Pomona,
CA, 800-926-5462
Educators/Therapy Programs
Wally & Donna Walsh, Delta Foundation/Snohomish
Diana Allen, Linn Benton Lincoln ESD, Albany
Chalet, Snohomish, WA 360-568-2168
Jon Pede, Hillsboro School District, Hillsboro, 503-844Care N Love AFH LLC, Corrie Lalangan, Vancouver
1500
WA 360-901-3378
Paul Cordo, PhD, Senior Researcher, OHSU, 503-223Maria Emy Dulva, Portland 503-781-1170
3442
Fe Gutierrez, Everlasting Adult Care Home,
Sandra Crews, Southern Oregon ESD, Medford, 541Milwaukie, 503-654-6559
776-8555
Deanna Gwin, Portland, 503-238-1406 Medically
Ruth Jenkins, Providence Portland
Fragile-Ventilators
Penny Jordan, TBI Team Liaison, Portland, 503-260Stephanie Brooks The Mentor Network, Portland 5034958
258-2440
± McKay Moore-Sohlberg, University of Oregon,
Kampfe Management Services, Pam Griffith, Portland,
Eugene 541-346-2586
503-788-3266 Apt
Lisa Myers, Portland Community College
Karin Keita, Afripath Care Home LLC, Adult Care
Laurie Ehlhardt Powell, CBIRT, Eugene, 541-346-0572
Home Portland 503-208-1787
Learning Services, Northern CA & CO, 888-419-9955
Spring 2013
page 3
Looking for an Expert? See our Professional Members here
Expert Testimony
Janet Mott, PhD, CRC, CCM, CLCP, Life Care
Planner, Loss of Earning Capacity Evaluator, 425778-3707
Life Care Planners/Case Manager/Social
Workers
Gerry Aster, RN, MS, Nurse Case Manager, Vida,
541-896-3001
Priscilla Atkin, Providence Medford Medical Center,
Medford, 541.732.5676
Rebecca Bellerive, Rebecca Bellerive, RN, Inc, Gig
Harbor WA 253-649-0314
Wayne Eklund, Wayne Eklund RN CNLCP Salem
888-300-5206
Michele Lorenz, BSN, MPH, CCM, CHPN, CLCP,
Lorenz & Associates, Medford, 541-538-9401
Vince Morrison, MSW, PC, Astoria, 503-3258438
Michelle Nielson, Medical Vocational Planning, LLC,
West Linn, 503-650-9327
Simon B. Paquette, LICSW, LCSW, Vancouver WA
360 903-4385
Thomas Weiford, Weiford Case Management &
Consultation, Voc Rehab Planning, Portland 503245-5494
Karen Yates, Yates Nursing Consulting, Wilsonville,
503-580-8422
Carol Marusich, OD, Neuro-optometrist, Lifetime Eye
Care, Eugene, 541-342-3100
† Kayle Sandberg-Lewis, LMT,MA, Neurofeedback,
Portland, 503-234-2733
Bruce Wojciechowski, OD, Clackamas, Neurooptometrist, Northwest EyeCare Professionals, 503
-657-0321
Physicians
Sharon Anderson, MD, West Linn 503-650-1363
Bryan Andresen, Rehabilitation Medicine Associates
of Eugene-Springfield, 541-683-4242
Diana Barron, MD. Barron-Giboney Family Medicine,
Brownsville, OR (541) 451-6930
Jeffrey Brown, MD, Neurology, Portland 503-2820943
James Chesnutt, MD, OHSU, Portland 503-503-4944000
Maurice Collada, Jr, MD, PC, Neurosurgeon, Salem
503-581-5517
Danielle L. Erb, M.D., Brain Rehabilitation Medicine,
LLC, Portland 503 296-0918
John French, MD, Salem Rehabilitation Associates,
Salem 503-561-5976
M. Sean Green, MD, Neurology, OHSU, (503) 6522487
Steve Janselewitz, MD, Pediatric Physiatrist, Pediatric
Development & Rehabilitation-Emanuel Children’s
Hospital, Portland Nurse: 503-413-4418 Dept:503Legal Assistance/Advocacy/Non-Profit
413-4505
¥ Deborah Crawley, ED, Brain Injury Association of
Andrea
Karl, MD, Director, Center for Polytrauma
Washington, 253-238-6085 or 877-824-1766
Care
Unit, Portland, VA Hospital 1-800-949-1004 x
£ Disability Rights Oregon, Portland, 503-243-2081
34029
Eastern Oregon Center for Independent Living
Michael Koester, MD, Slocum Center, Eugene, 541(EOCIL), Ontario 1-866-248-8369; Pendleton 1359-5936
877-771-1037; The Dalles 1-855-516-6273
±
Oregon
Rehabilitation Medicine, P.C., Portland, 503
£ Independent Living Resources (ILR), Portland,
-230-2833
503-232-7411
Francisco Soldevilla, MD, Neurosurgeon, Northwest
£ Jackson County Mental Health, Heather
Neurosurgical Associates, Tualatin, 503-885-8845
Thompson, Medford, (541) 774-8209
Gil Winkelman, ND, MS, Alternative Medicine,
£ ThinkFirst Oregon, (503) 494-7801
Neurobiofeedback, Counseling, Portland, 503-501Legislators
5001
Vic Gilliam, Representative, 503-986-1418
Psychologists/ Neuropsychologists
Long Term TBI Rehab/Day Program’s/Support
Tom Boyd, PhD, Sacred Heart Medical Center,
Programs
Eugene 541-686-6355
Carol Altman, Bridges to Independence Day
James E. Bryan, PhD, Portland 503.284.8558
Program, Portland/Hillsboro, 503-640-0818
*Caleb Burns, Portland Psychology Clinic, Portland,
Anat Baniel, Anat Baniel Method, CA 415-472-6622
503-288-4558
£ ElderHealth Northwest, Patti Dahlman, Seattle
Patricia S. Camplair, Ph. D., OHSU Dept of
WA 206-467-7033
Neurology, Portland, 503-827-5135
Benjamin Luskin, Luskin Empowerment Mentoring, Amee Gerrard-Morris, PhD, Pediatrics, Portland, 503Eugene, 541-999-1217
413-4506
Marydee Sklar, Executive Functioning Success,
Elaine Greif, PhD, Portland 503-260-7275
Portland, 503-473-7762
Jacek Haciak, PsyD, Oregon State Hospital, Salem,
503-945-2800
Medical Professionals
Nancy
Holmes, PsyD, CBIS, Portland 503-235-2466
Gerry Aster, RN, MS, South Pasadena CA, 541-896
Terry Isaacson, PhD, Roseburg Counseling Services,
-3001
Roseburg 541-957-1290
Diana Barron, MD, Brownsville, (541) 451-6930
Sharon
M Labs PhD, Portland 503-224-3393
Marsha Johnson, AnD, Oregon Tinnitus &
Ruth
Leibowitz,
PhD, Salem Rehab, 503-814-1203
Hyperacusis Treatment Center, Portland 503-234
Michael Leland, Psy.D, CRC, Director, NW
-1221
Occupational Medicine Center, Inc., Portland, 503Kristin Lougee, CBIS, 503-860-8215-cell
684-7246
Will Levin, PhD, Eugene, 541-302-1892
Susan Rosenzweig, PsyD, Center for Psychology &
Health, 503-206-8337
Recreational/Social Activities
Off the Couch Events, Shauna Perkins, ED, Portland
503-702-2394
Speech and Language
Channa Beckman, Harbor Speech Pathology, WA 253
-549-7780
John E. Holing, Glide 541-440-8688
± Jan Johnson, Community Rehab Services of
Oregon, Inc., Eugene, 541-342-1980
Sandra Knapp, SLP, David Douglas School District ,
Sandy 503-256-6500
Linda Lorig, Springfield, 541-726-5444
Anne Parrott, Legacy Emanuel Hospital Warren 503397-6431
State of Oregon
Dave Cooley, Oregon Department of Veterans Affairs,
Salem, 503-373-2000
Stephanie Parrish Taylor, State of Oregon, OVRS,
Salem , (503) 945-6201 www.oregon.gov/DHS/vr
Technology/Assistive Devices
Performance Mobility, Portland, OR, 503-243-2940
Second Step, David Dubats, Eugene, 877-299STEP
Video/Filming
NuVideo Productions, LLC, specializing in “day of the
life” films Bend, 541-312-8398
Veterans Support
Mary Kelly, Transition Assistance Advisor/Idaho
National Guard, 208-272-4408
Belle Landau, Returning Veterans Project, Portland,
503-933-4996
Vocational Rehabilitation/Rehabilitation/Workers
Comp
Arturo De La Cruz, OVRS, Beaverton, 503-277-2500
† Marty Johnson, Community Rehab Services of
Oregon, Inc., Eugene, 541-342-1980
Deborah Marino, Oregon Commission for Blind, Salem
503-378-6836
‡ Oregon Completive Employment Project, Salem 503
-947-5469 www.win-oregon.com
Ben Luskin, Launch Employment Mentoring, Eugene,
541-999-1217
Bruce McLean, Vocational Resource Consultants,
Ashland, 541-482-8888
† SAIF, Salem, 503-373-8000
Stephanie Parrish Taylor, State of Oregon, OVRS,
Salem, (503) 945-6201 www.oregon.gov/DHS/vr/
Kadie Wellington, OVRS, Salem, 503-378-3607
Ralph Wiser, Lake Oswego, OR
In Memory
Sandra Johnson in memory of Christopher & Dana
Reeve
Helen Mills in memory of Viola Kucera
Sharon Tesch in Memory of Lou Tesch
Tina Treasurer In Memory of Tom Treasurer
Carol Sherbenou in Memory of David Sherbenou
To become a supporting professional member of BIAOR see page 23 or contact BIAOR, [email protected].
page 4
Spring 2013
The Headliner
What Happens When You Have a Brain Injury at
16 to 19 Years
Normal Developmental Milestones
By the end of adolescence, children are able to
plan, organize, think about things in a complex way,
show good judgment, respond to changes in plans
with flexibility, and solve problems in a sophisticated
way.
have a relatively solid sense of who they
are, what they like to do, and what they are good at.
Older adolescents link their identity to these positive
attributes; they have “grown out of ” the reactionary
views of the younger teenager. At this stage, teens
are able to learn on their own, and most schoolwork
involves self-directed study.
to keep track of several things at once,
reasoning, and judgment abilities are usually
affected.
changes in thinking abilities are felt in
subtle changes in personality, responsibility,
and social behavior.
youngster may be
quieter, more “to himself,” more irritable with his
parents, peers, or family members, and
avoidant of social situations.
Usually, the older teenager is aware that his
thinking is not as sharp as it was previously. He
does not think well “on his feet;” he makes
errors, feels vulnerable, and is afraid of making
Adolescents are capable of true friendships, which
more mistakes in front of peers. He feels unsure
are grounded in shared values, rather than
of his ability to function independently, and
superficial appearances.
primary emotional and when people correct or try to help, he feels
psychological task of this period is to establish
humiliated and despondent.
independent identity related to the major roles of
adulthood: love and work. By the end of this stage,
safest course, he may feel, is to withdraw
the young adult has a clear sense of his sexual
from everyone, concentrate on schoolwork, and
identity, vocational plans, and social roles.
avoid social settings.
Older adolescents typically are employed, at least
during the summer months; they transport
themselves to and from appointments; and they
usually have developed goals and plans for the
future, at least in terms of whether they are headed
to college or not.
Typically, they are becoming more calm and
reflective; they have been gaining experience with
abstract reasoning and so are much less prone to
over-reacting and extremism in their thinking.
Effects of Brain Injury: 16 to 19 Years
When an older adolescent sustains a brain injury,
cognitive changes usually involve subtle
connections and “higher-order” abilities. Abstract
concept formation, organization, initiation, the ability
may require more supervision and
protection than is normally felt appropriate for
youngsters of this age.
often put
themselves in dangerous situations; for
example, a young woman may accept a date
with a male she does not know, without
hesitating to think about the potential risks.
Others may withdraw and avoid the dating
scene entirely, putting off intimate relationships
until later in adulthood.
devastating. Interestingly, adolescents rarely
realize that their thinking is slower than before;
rather, their experience is that they are confused, or
having a hard time understanding things as well as
before.
fall behind in lecture-type classes, feel
overwhelmed and confused, become easily
fatigued, and frustrated. Slow mental processing
can lead to the child spending a huge amount of
time on homework and trying to complete
unfinished class work.
do not have the reserve energy to think about
working on projects or to involve themselves in
extra-curricular activities, because they are
exhausted from their efforts on the basics of
schoolwork.
Older adolescents have a solid store of learning and
experiences, from which to draw following a brain
injury.
also have a solid sense of who they
are, their likes and dislikes, their goals and
aspirations.
have a history of friendships,
relationships, and involvement with others through
sports, hobbies, and school-related activities.
need to plan deliberately, the inability to resume
job and schoolwork immediately with success, and
concern about the meaning of this injury on the rest
of their lives, creates added stress and frustration.
are often unable to keep up with the pace of
former activities, and that of peers. Often the
adolescent is aware of the difference between
abilities before the accident and current status.
In school, academic problems typically come
from slow rates of mental processing. Even mild For this reason, the adolescent with a sustained
brain injuries drastically reduce the speed of
injury is at risk for serious depression,
mental processing. For bright teenagers, who
hopelessness and suicidal thinking.
are used to functioning at a very fast and
efficient pace, this aspect of brain injury is
Source: CO BI Manual for Educators 2013
Developmental Characteristics:
16 to 19 Years
Developmental Disruptions Following Brain Injury:
16 to 19 Years
Complex reasoning and judgment
New learning deficits (e.g., memory for numbers)
Ability to plan and execute complex projects over time
Mental processing speed deficits
Solid sense of own identity based on positive identifications
Inability to organize complex tasks
Social sophistication
Conflict between specific challenges and career goals
Capacity for altruism
Interference in developmental drive toward independence/separation
Social awkwardness
Fatigue
Defensiveness regarding emotional/cognitive problems
Depression
Body image/social image
The Headliner
Spring 2013
page 5
The Lawyer’s Desk: A Look at TBI Legal Representation
©
By David Kracke, Attorney at Law
Nichols & Associates, Portland, Oregon
There is an old saying that laws are like
sausages, it’s best not to see them being
made. Some people have even gone so far
as to say this adage is offensive to sausage
makers, and while in many cases this may
be an accurate description of the legislative
process, in other cases it couldn’t be more
wrong. Sometimes the legislative process
should be seen by everyone as it can provide
a window into the reasons behind a law, and
sometimes those reasons are powerful
reminders of our core values as a society.
In my last column I wrote about the
importance of building upon Max’s Law, the
pioneering concussion education law that
governor Kulongoski signed in 2009. Since
that column was written, many dedicated
individuals have seen to it that the next step
in that legislative process has taken place
and the result is a law that requires all youth
coaches, not just high school coaches, to
educate themselves about concussions. The
law is still in the process of being finalized,
but unlike the old adage, the process of
making this law is one that sheds light on the
benefits of that concussion education.
The new law is named after a wonderful
young woman from Sisters, Oregon named
Jenna Sneva. Jenna’s life was defined by
her passion and dedication to extreme
sports, most notably ski racing. She was a
national champion in skiercross, a relatively
new sport that combines the intensity of
racing through gates on a set ski course with
the immediate competition of something akin
to motocross. Four skiers start at once and
race down a snowy course over jumps and
turns that challenge the most accomplished
page 6
skiers. Jenna was a champion, but along the old.
way she suffered multiple concussions as a
The hearings in front of
result of her frequent crashes both during
the Senate Education
training and competition.
and Workforce
Unfortunately, no one in Jenna’s inner circle Development
of family or coaches knew about the serious Committee were nothing
effects of multiple concussions. Like second like the making of
sausage. Instead, they
impact syndrome, which results from
receiving two concussions in a short period were an education for everyone there as to the
importance of concussion education. Jenna
of time, the effects of multiple concussions
testified about how her life has changed, and
over an extended period of time can be
devastating as well. Jenna, however, didn’t Ronda Sneva, Jenna’s mom, testified about how
she wished she knew about concussions before
know this and she kept skiing, and kept
Jenna suffered her last concussion in 2010.
getting concussed, until a fateful race in
Written testimony from Jenna’s ski coach shed
Colorado in 2010. During this competition,
light on the coaches’ perspective especially
Jenna fell and slammed into the snow at a
regarding the limited knowledge they currently
high rate of speed. Her head hit hard and
have regarding concussions in general and how
thus started an avalanche of postconcussive symptoms that affect her to this receiving such education about concussions will
help protect future young athletes by educating
day.
the athletes, the coaches and the parents. Dr.
Chesnutt described his experiences with Jenna
But even after this last fall, when her vision
was blurry and her head was pounding like a and other young athletes with moving testimony
that explained the medical communities’ efforts
jackhammer, she still didn’t recognize what
to treat athletes such as Jenna. Joey Harrington
had happened to her. Thankfully, Dr. Jim
told the senators about his experiences from
Chesnutt at OHSU did.
youth leagues through the NFL relating to
Dr. Chesnutt, medical director of the Oregon concussions. All in all, the testimony galvanized
Health & Science Sports Medicine Program the conclusion that SB 721 is the right law at the
right time. If all goes well, the final version will
and one of this state’s finest doctors
regarding sports injuries, recognized Jenna’s reach the Governor’s desk for the final signature
condition immediately and began treating her before the bill becomes the law of the state.
for post-concussion syndrome. Today,
Jenna is doing better. She understands the All of us who support the BIAOR should be
limitations that she must adopt into her new proud of Sherry Stock and others within this
life and she works hard to lessen the effects organization who have looked to the future and
helped create a framework of laws that will result
of her multiple concussions.
in fewer people suffering the devastating effects
of second impact syndrome and post concussive
Jenna’s story inspired
syndrome. The creation of laws can be
Senator Elizabeth Steiner
Hayward to sponsor Senate described as sausage making, but it can also be
described as making a fine meal where excellent
Bill 721 which, if finalized,
ingredients mix together perfectly in a process
will require all coaches in
we all should see. Such is the case with
Oregon who coach our
Jenna’s Law.
young athletes to learn
about concussions and to
David Kracke is an attorney with the law firm of
act appropriately when a
concussion is suspected. It Nichols & Associates in Portland. Nichols &
will require similar education Associates has been representing brain injured
individuals for over twenty two years. Mr. Kracke
for referees, parents and
is available for consultation at (503) 224-3018.
athletes over twelve years
Spring 2013
The Headliner
2013 BIAOR Calendar of Events
For updated information, please go to
www.biaoregon.org
Call the office with any questions or requests
July 12 CBIS Training and Exam - call 800544-5243 for more information
July 27 BIAOR Wine and Dessert Fundraiser
- watch for information about
location
August Walk For Brain Injury
August Journey for Thought - Follow
-?
Christopher Hart and Jeff Rawley
on their cross country journey
www.journeyforthought.com
March
6-8,
2013
2014 12th Annual Pacific
Northwest Brain Injury
Conference, Portland OR
Spring Sudoku
The object is to insert the numbers in the boxes to satisfy
only one condition: each row, column and 3 x 3 box must
contain the digits 1 through 9 exactly once. (Answer on
page 15)
[email protected]
503-224-5077 fax: 503-299-6178
How many squares do you see?
(Answer on page 15)
The Headliner
Spring 2013
page 7
Sherry Stock, BIAOR Executive Director, and Deborah Crawley, BIAWA Executive
Director
page 8
Spring 2013
The 11th Annual
Pacific Northwest
Brain Injury
Conference 2013
Living with Brain
Injury: Focusing on
the Future
An Overview In
Pictures
The Headliner
Jonathan Gray
Dr. Larry Sherman
Eddie Black
2013 Exhibitors
Thank you for making this
conference possible
Rehab Without Walls® delivers services where patients need
them most: in their own surroundings—whether at home,
school, work or in their own community.
www.rehabwithoutwalls.com/ 877-497-1863
Growing Through It
Wholeistic Rehabilitation Through the Arts
Growing Through It® - Innovative
WHOLEistic services that promote
rehabilitation and personal growth to those
living with a Traumatic Brain Injury
(TBI). The Growing Through It process is
designed to compliment and augment
traditional treatments and therapies, while
providing a comfortable and holistic means for participants to
re-define their own identity.
www.growingthroughit.com
The Headliner
Spring 2013
page 9
2013 Exhibitors
Thank you for making this
conference possible
Ergonomic Risk Assessments,
Assistive Technology Evaluations,
and Technology Training Services.
solutions.
800-677-7512
www.accesstechnologiesinc.org/
Affordable fashion jewelry priced between $14-48. We offer
home, office and catalog shows. Fundraising is my specialty!
Alisha Rutherford 503-781-5006
www.cookielee.biz/alisharutherford
Disability Rights Oregon (DRO) promotes
Opportunity, Access and Choice for
individuals with disabilities. We assist people
with legal representation, advice and
information designed to help solve problems
directly related to their disabilities. All of our
services are confidential and free of charge.
DISABILITY RIGHTS OREGON (formerly OAC)
620 SW Fifth Avenue, Suite 500
Portland, Oregon 97204-1420
(503) 243-2081 www.disabilityrightsoregon.org/
page 10
National College of Natural Medicine (NCNM) offers
neurofeedback training and naturopathic health care for
the many side effects of Traumatic Brain Injury (TBI) and
Post Concussive Syndrome. Survivors of TBI can benefit
from any forms of biofeedback; and NCMC has a
nationally certified provider of
Spring 2013
The Headliner
Jill Storms, OTR/L
Defense and Veterans Brain Injury
Center/ Defense Center of
Excellence for Psychological
Health and Traumatic Brain Injury
DVBIC/DCoE Palo Alto
Education Coordinator
VAPAHCS 640/117
3801 Miranda Ave
Palo Alto, CA 94304
650-493-5000 x65468
The Headliner
Fox Tower
805 SW Broadway, Suite 2540
Portland, OR 97205
503-277-1233
Spring 2013
866-843-3476
page 11
Lashing & Associates Publishing & Training Inc.
Leading source of information and training on brain injury and
PTSD in children, adolescents, adults and veterans.
www.lapublishing.com
Independent Living Resources is
the Independent Living Center in
the Portland area. ILR provides
activities such as orientation and
mobility, skills training, crafts,
and recreation as well as the four
core services of Advocacy,
Information and Referral, Peer
Counseling and Skills Training.
Casa Colina Centers for
Rehabilitation
Serving children and
adults from around the
world for over 70 years.
www.casacolina.org
1-800-926-5462
503-232-7411
At Windsor Place, we believe in promoting
the self-confidence and self-reliance of all
of our residents
Sharon Slaughter
Windsor Place, Inc.
3009 Windsor Ave. NE Salem Oregon 97301
www.windsorplacesalem.org
Executive Director
[email protected]
Phone: 503-581-0393
Fax: 503-581-4320
page 12
Spring 2013
The Headliner
The Headliner
Spring 2013
page 13
page 14
Spring 2013
The Headliner
Best Practices: Training For Caregiving Staff
Windsor Place, Inc. is a threehome adult foster care campus
nestled in a residential neighborhood
providing a warm, secure
environment for our residents to
thrive. Our mission is dedicated to
providing service and care to
traumatically brain injured adults
within a structured environment
where a comprehensive program is
individually tailored to each resident.
In order for the residents to
receive the maximum benefit from
their individual programs, we believe
that taking the time to educate the
caregivers about traumatic brain
injury is an investment in the
program. This program was designed
and launched at Windsor Place and
the twenty-nine parts are divided into
two sections, “basic and advanced”
training. From there it is further
broken down into (approximately) one
-hour training sessions which are
often one-on-one with the caregivers.
As the program progresses it
becomes more difficult as the subject
matter itself becomes more complex.
The subject matter is slanted towards
the residents at Windsor Place in an
effort to help the caregivers relate the
information to specific clients, what
part of the brain was affected by
where their brain injury occurred and
what potential issues or behaviors
might result. As has long been
known, information is more easily
retained when it is relatable and
useful in daily practice.
Spring Sudoku
2012
Awards
Party
In educating the caregivers, the
trainer works very closely with the
caregivers to ensure that they have a
full understanding of the material and
how it relates to each of the residents
under their care. All staff members
have exceeded the normal boundaries
of the routine caregiver job scope as
they now have training and access to
information that enables them to
understand and respond quickly and
efficiently to this unique, sometimes
demanding demographic of caregiving
and its intense needs.
Caregiving staff at Windsor Place,
Inc. is required to take and pass the
Basic portions of the training. While
the Advanced portion is optional,
many of the caregivers have elected
to continue on past the initial learning.
The advanced section goes into
greater detail about how the various
parts of the brain can be affected by
TBI. Although no brain injury is
exactly the same, the staff learns to
expect and adapt their responses to
certain types of behavioral, cognition
and social deficits when armed with
this crucial information. We feel the
training gives caregivers even more
insight into what and how restorative
care works and empowers them to
deal with traumatic brain injury.
Unsolicited testimonials/quotes
from staff:
“One of the important and helpful
things I’ve learned is knowing the
difference between symptoms of a
resident’s TBI and a behavior”
“It’s helpful to know which
problems we might have depending on
which part of the brain is injured”
“Now when I deal with a behavior it
gives me a better understanding of the
residents I take care of. Hopefully this
training will help with any future
residents and what they struggle
with.”
“When I encounter behaviors now ,
I know more about them and how to
handle my resident.”
“For me personally, the program
helps me to better understand each
person, their injury and their
rehabilitation.”
“I think it’s informative and
increases the staffs’ understanding of
the residents we work with.”
“I think it is awesome training.
We’re more aware of what we are
dealing with. Now I know more and
don’t have to rely on others for
information.”
(Answer from page 9)
7
1
5
4
9
6
1
2
3
9
9
8
1
7
2
3
5
4
8
2
6
4
9
5
8
6
1
3
4
6
7
9
4
6
5
1
8
8
2
5
7
1
7
4
7
8
7
6
2
9
5
How many squares do you see? 40
(Answer to page 9)
The Headliner
Center on Brain Injury Research and Training (CBIRT)
Update
The Center on Brain Injury Research and Training
(CBIRT) has a new, on-line, freely available
training module titled: Managing Behavior
Following Brain Injury: An Introduction for
Supported Living Community Staff (cbirt.org/
resources/interactive-learning-modules). This
module is an introduction to the topic of behavior
management following brain injury. While
designed for staff working in supported living
programs, the content is applicable to anyone
serving individuals with brain injury who struggle
with challenging behaviors. Future modules on
Spring 2013
this topic will focus on the needs of staff working in
vocational and probation-parole contexts.
Funding for the development and dissemination of
this module is from the U.S. Health Resources
and Services Administration—Maternal and Child
Health Bureau’s Traumatic Brain Injury
Implementation Programs – Project #
H21MC06769.
Please follow us on Facebook at CBIRT Online!
There is a direct link at the bottom of cbirt.org.
page 15
Bridges to Independence
Spring Dance
“I was nervous because I had never been to
a dance before, not even a school dance.
When I got there, guys wanted to dance with
me. The whole thing was awesome,”
reported Shanoa an attendee at the Spring
Dance sponsored by Bridge to
Independence Day Program and the Brian
Injury Alliance of Oregon. When Shanoa
was asked if she would attend the dance
again she replies, “Hell yeah!”
Each year participants attending Bridge to
Independence Day Program plan and host a
dance during the spring for individuals with
brain injuries and other disabilities and their
friends and family. Three years ago Randy,
one of the BTI day program participants,
suggested asking The Executives to play for
the dance. Randy had been the lead singer
in a band with many of the members of The
Executives and was sure they would agree.
They were delighted to come and have been
providing incredible live music for the last
three dances. When Randy was asked
what his favorite part
of this year’s dance
was, he said, “Being
the lead singer of the
band,” because each
year Randy gets on
stage with the band
and performs a song.
Brain injuries can
happen to anybody
and in the simplest
way; Randy received
his brain injury when
eating a peanut
The Executives with Randy (second from the left)
butter sandwich. His
Kevin was hesitant to attend by himself
brain was starved for oxygen after the
because he “didn’t like being the odd man
sandwich became stuck in his throat , he
out.” However, once he was at the dance he
couldn’t dislodge it on his own and there
liked meeting new people and had fun being
wasn’t anyone there to help him. Randy also
around people and dancing.
wants people to know that he is 100% better
now and he appreciates the support and help
Bridge to Independence Day Program
he has received.
participants will be planning another dance in
Another attendee Amanda said, “I didn’t want
to dance at all, but then I did. It was
cool, there was a lot of pizza, it was
well decorated, and there were a lot
of people.” Her favorite part was
seeing Randy on stage performing.
Brittany loves to have a good time
and stated, “It was a good dance. I
just love going and dancing with
friends, by myself, or in a group. I
don’t care what people think, I’m
there to have fun.” However,
sometimes it can be scary to attend.
page 16
Spring 2013
The Headliner
Journey for Thought
2 Young Men Making a Difference
The reason behind
the journey
We met in kindergarten and
became best friends in the third
grade and have been at each
other’s side for just about 15 years
now. Due to this, we’re often seen
as the duo, Jeff and Chris.
Through our close friendship, we
have been with each other through
everything, both good and bad.
Some of the trials of our lives have
only helped us strengthen our
bond as friends. Everything from
one mother’s battle with cancer to
hikes in Yellowstone National Park
and adventures in between, our
time together given us memories
and experiences to last a lifetime.
Time and reflection have granted
us the perspective to uncover how
a tragic event on December 31st,
2011 only solidified a bond that we
will share forever. Jeannie Rawley,
Jeffery’s mother, a third grade
teacher at Oregon Episcopal
School and mother of three
children, Nik, Sarah and Jeffery,
passed away from her second
brain aneurysm. Jeannie was an
Christopher Hart
The Headliner
amazing teacher and mother and one of the
kindest, most caring individuals one could ever
hope to get the chance to know. She was
fortunate enough to spend her last day with her
entire family, celebrating her eldest son’s
wedding rehearsal, and also skiing at her
beloved Mt. Hood. The overflowing church in
which Jeannie’s memorial service was held
perfectly symbolized the effect she had on the
lives she touched and the community she held
dear. Through our luck in coming across a story
of a young man who walked across the country
two years ago, we came to visualize an
opportunity in which we could honor Jeannie’s
spirit and help continue her legacy of positively
impacting the community and those we care
about.
As evident from all the tears, laughter and
recollections at Jeannie’s memorial service, she
was able to impact the lives of everyone she
met. As time has passed after Jeannie’s death,
we came to realize our current position and life
circumstances will allow us to do our best to
emulate Jeannie and
positively affect the
lives of others. We
have teamed up with
the Brain Injury
Alliance of Oregon, as
well as numerous,
generous sponsors, to
help make a bike and
walk across the
country possible and
to more importantly
help raise funds
through charitable
donations to promote
brain injury awareness
and prevention. Our
coast to coast journey
begins with biking from
Oregon to California,
then through Nevada,
Utah, Arizona, New
Mexico and into Dallas, Texas. Once in Dallas,
we will ship our bikes home and walk the
remainder of our journey through Louisiana,
Mississippi, Alabama and finally to our
destination, Savannah, Georgia. We will be
departing in late August and are planning to
finish up by early January, 2014. We couldn’t be
more excited about this remarkable journey and
will not be able to complete it without the support
of our friends, family and the community. We
encourage you to donate, support and help
spread awareness about traumatic brain injuries.
Spring 2013
We hope you can be a
part of our project and that
you join us as we embark
on one last journey for
Jeannie.
Chris & Jeff
Christopher Hart is a
Jeannie Rawley
recent graduate of the
1957-2011
University of Washington
with a B.S. in Biology. He
was born in San Mateo, California but moved to Portland when he
was just 6 weeks old and lived there until I departed for college in
Seattle, Washington. Chris attended elementary through high
school in Portland Public Schools system and got involved in his
community through sports, volunteering and mentoring. His
opportunities to work to help handicapped students develop
physical fitness skills as well as time spent mentoring high school
biology students, were his first chances to give back to my
community. He has a particular interest in marine biology with a
focus on ecology and conservation of sharks. Chris plans to further
explore his passion for marine life in graduate school in pursuit of a
PhD. He also has a strong love
of the outdoors, which is one of
Jeffery Rawley
the reasons this amazing
journey sounded like an
opportunity he just couldn’t pass
up.
Jeffery Rawley will be
graduating from Oregon State
University in June with a Biology
major and minor in Chemistry.
His journey began in 1990 when
he was born in California. A
month later he moved to
Germany where he lived and
traveled across Europe as an
infant. Following this he moved
to Maryland where he stayed
until he was 5. Finally his family
settled in Portland, Oregon. As
Jeff grew up in Portland he
became very involved in Boy
Scouts and achieved his Eagle
Scout Award prior to his 18th birthday. Jeff has always taken pride
in helping others and has a passion in making a difference in
peoples lives. His hobbies include road biking, mountain biking,
hiking, rock climbing, and most other outdoor activities. Jeff
considers himself an outdoor enthusiast which is why he likes to
spend as much of his free time outside. Through his passion of the
outdoors and in honor of his mother, Jeff gained the inspiration to
partake on this journey.
Follow Chris and Jeff on their journey at their website:
www.journeyforthought.com. Donate to their cause through
BIAOR at http://donate.biaoregon.org/. Help them on their journey
to make a difference.
page 17
Being a Mother and a Brain Injury Survivor
Many, many months ago, I promised to write
an article for this newsletter about being a
traumatic brain injury survivor and a Mom for
the first time. Well, my daughter Ella is almost
two so, the first thing I have to say about
being a Mommy is that it is hard to find the
time to do everything I want to do! Some
things, unfortunately, get put on hold for long
stretches of time.
I love being a Mommy and I think my
daughter is just perfect (a bias many Moms
have, I’m guessing)! Ella is a very social little
girl and lots of fun to be around. Her Dad and
I have found every developmental stage to be
amazing. Her big developments now include
beginning to run and she is
trying, in her adorable toddler
way, to put words together such
as “I go” and “bad cat.”
Kate & Ella Robinson, 7 months
Other than possibly feeling more tired than
the average Mom, I don’t think there is
anything unique about being a Mom and
having a traumatic brain injury. Because my
brain injury was 21 years ago, I have learned
over time how to compensate for certain
deficits such as poor short -term memory and
poor balance. These challenges are just a
part of my daily life, which I have gotten used
to.
Because I work part time and spend my free
days with my daughter, I feel I have a full
plate. I have had to cut back on certain things
just to have time to breathe! Sadly, one of the May 18th and Saturday, June 15th will be the
final group that I lead. Amy and Kimberly will
things I have decided to cut from my life is
also be at the group that day.
running the Thrive Support
group. Three years ago I
Everyone in the brain injury community
started the Thrive Support
Group, which is a free monthly (survivors, family members, professionals,
Thrive “graduates”) is invited to join us for my
meeting for teenagers and
As the mother of a young child,
last Thrive group on June 15th from 12:30young adults with brain injury.
the challenges and frustrations
2:30. You will have the chance to meet the
Except for a few months of
I have faced are not unique to
maternity leave, I have devoted two new leaders Kimberley and Amy that day.
me. Like other parents, in the
Please join us for a couple hours of fun! There
one Saturday a month for the
beginning I struggled through
will be food, drinks, and treats.
past 3 years to this wonderful
sleep deprivation and I overgroup. I have met amazing and
analyzed every choice I made
Thank you all for helping me make the Thrive
inspiring survivors and have
about my daughter, making
group such a great experience. I hope to see
had a lot of fun watching the
sure it was the right one.
group grow and change. But, as you all for a farewell celebration on Saturday,
the saying goes, all good things June 15th.
Ella, Easter 2013
As a brain injury survivor, I
must come to an end.
think some of those new Mom
All my best,
challenges are exacerbated. I have always
Kate Robinson, MA, CRC
Because I want to spend more time with my
needed a full night’s sleep in order to most
family on weekends, I am
effectively function the next day. When Ella
“passing on” the Thrive
1450 Standard Plaza
was a newborn and only sleep for a few hours group to two new leaders,
1100 SW Sixth Ave
at a time, I was sometimes so tired the next
Amy and Kimberly. I also
Portland, OR 97204
day that I didn’t feel it was safe to drive.
feel the group will benefit
1-888-883-1576
Although she now sleeps a full 10-11 hours
from the fresh perspective
www.tdinjurylaw.com
through a night, chasing after Ella throughout of the new leaders. They
the day and doing activities with her often
are eager to learn from the
Protecting
zaps me of all my energy. In those cases, I
young brain injury
don’t have enough energy to get together with survivors.
the Rights
friends or cook dinner.
of the
Amy Werry has her
I know that many Moms of young children
Injured
Master’s degree in clinical
are often sleep deprived and in my case, I
neuropsychology and is in
think I feel more tired than the average Mom her first year at Pacific
Personal Injury Practice Areas:
because of my brain injury. I must say,
Univ. working on her
Dangerous Premises
Brain Injury Accidents
though, that I am very lucky to have a
doctorate. Kimberly
Defective Products
Automobile Accidents
husband who is an amazing father and
Skillcorn is a clinical
Bicycle Accidents
Maritime Accidents
Grandparents who live in town. They have all psychology student at
Motorcycle Accidents
Construction Accidents
played a huge part in helping to raise Ella.
Pacific Univ., also working
Sexual Harassment/Abuse
Trucking Accidents
Aviation Accidents
My husband John is the most fun and caring on her Doctorate degree.
Medical Malpractice
Legal Malpractice
Wrongful
Death
Dad any little girl could hope for!
Amy will lead the group on
page 18
Spring 2013
The Headliner
5th Annual Camping, Rafting, Hiking Trip
Please join us for our 5th annual Camping, Rafting, Hiking trip. This camp is for people with brain injuries to attend
with their friends and family. We only charge $25 per person then rely on donations to cover the rest of the cost. Price
includes camp sites, rafting, massage therapists, food and drinks. We have chefs to cook our food and massage
therapists to work out our aches and pains. If we have enough money left we then even reimburse up to $40 in gas (so
far we have been able to do this every year). Our mission is to offer a camp where people with brain injuries and their
support people can have a great adventure with little to no cost. You even have the opportunity to have your
registration cost reimbursed!
SOUTHERN OREGON
In
with
Brain Injury Alliance of
ANNUAL CAMPING,
HIKING T
We invite you to join us August 23rd, 24th and 25th, 2013. Open to individuals with brain injuries along with their family
and friends throughout Oregon and the Northwest. We will be camping on the Rogue River at Indian Mary Park off 1-5
Friday
After 3pm Check in and set
7pm Dinner: Chef
8:30 Campfire &
August
8-9 Breakfast and putting together
9:30 Leave for
2:30-3 Approx back from rafting
2:30-6 Free
4:30-5:30 chair
6pm Dinner: Chef
7:30
9 pm
Sunday August 25th
8-9 breakfast and putting together
lunches
10 checkout of campsites
10 leave for hike to Rainy falls on wild
& scenic part of Rogue River
I pm: Approx return time from Hike
and departure
There is a $25 registration fee up to $100 per family (if you have more than 4 and & are not sure if you qualify for
paying only $100 please contact to verify) which covers all costs including the cost of the camp site, rafting, life jackets and food for the weekend. If enough money is an issue, we will also reimburse up to $40 for gas per brain injured
individual who attends (limit 1 per car). The $25 is refundable for any individual who raises $100 for this event. Upon
your registration we will mail you a donation request letter which you can copy and give to doctors, businesses,
friends, family and so forth. If you do not have camping equipment such as tent or sleeping bag please let us know
Name ________________________________________Email _________________________ Age _________
Address________________________________ City ________________ State _____ Zip ________________
Phone Numbers: Home _______________________________ Cell __________________________________
Any Special Needs: ________________________________________________________________________
Please list each person’s full name and age
Name ________________________________________Email _________________________ Age _________
Name ________________________________________Email _________________________ Age _________
Name ________________________________________Email _________________________ Age _________
Name ________________________________________Email _________________________ Age _________
Name ________________________________________Email _________________________ Age _________
Make checks out to BIAOR (Brain Injury Alliance of Oregon). Mail this form along with your check to:
Southern Oregon Brainstormers, P.O. Box 1452, Medford OR 97501
If you have any questions please feel free to contact Lorita Cushman at 541-690-8003 after 1 pm or
Email: [email protected]
facebook -Oregon Brain Injury camping, rafting, hiking trip
The Headliner
Spring 2013
page 19
ARE YOU A
MEMBER?
The Brain Injury Alliance of Oregon relies on your
membership dues and donations to operate our special
projects and to assist families and survivors. Many of you
who receive this newsletter are not yet members of BIAOR.
If you have not yet joined, we urge you to do so. It is
important that people with brain injuries, their families and
the professionals in the field all work together to develop
and keep updated on appropriate services. Professionals:
become a member of our Neuro-Resource Referral Service.
Dues notices have been sent. Please remember that we
cannot do this without your help. Your membership is
vitally important when we are talking to our legislators. For
further information, please call 1-800-544-5243 or email
[email protected]. See page 23 to sign up.
page 20
Spring 2013
The Headliner
(Pioneer Awards Continued from page 2)
Pediatric & Adolescent Sports Medicine,
Musculoskeletal Injuries in Active Adults,
Sports Concussion Management, is a
member of National Athletic Trainers'
Association, Oregon Pediatric Society,
Oregon School Activities Association,
Medical Aspects of Sports Committee
Chair, National Federation of State High
School Associations, and Sports
Medicine Advisory Committee Chair;
David Kracke, JD, specializing TBI, past
BIAOR Board Member, and youth sports
coach; Commissioner Tootie Smith, was
elected to the Clackamas County Board
of Commissioners in November 2012 and
President of BIAOR from 2010-2011;
and Sherry Stock, Executive Director of
BIAOR. (See page 1)
Outstanding Community Rehabilitation
Programs:
Eugene: Jan Johnson, Community
Rehabilitation Services of Oregon, Inc. 19
years and has served on the Executive
and Advisory Boards of the Brain Injury
Association of Oregon, and is CRSO's
primary liaison with the client, family,
clinical team, insurer, physicians, and
adjunct professionals. As a speech
pathologist Jan's expertise has been
primarily in the area of managing cognitive
deficits resulting from acquired brain injury,
specifically memory and attentional
disorders. She has published innovative
instructional materials and worked across
all settings including acute care, medical
rehabilitation, schools, and community
reentry. She developed and coordinated
Outstanding Academic & Clinical
the Brain Injury Vocational Program at
Research: McKay Moore Sohlberg, PhD, Sacred Heart Medical Center and
a Nationally Recognized Leader in
coordinated the Vocational Program at
Academic & Clinical Research who is
CRSO. Her Brain Injury Assessment
widely known for her pioneering work in
Model was recently published in the
the field of cognitive rehabilitation. She
Journal of Head Trauma Rehabilitation.
has worked as a clinician, researcher,
(See page 1)
and administrator in the development of
programs to assist individuals with brain Portland: Dr. Danielle Erb, Community Re
injury to reintegrate into the community at -entry Services (CRS), established in 1986
maximal levels of independence. Her
as part of the Legacy Health System, 27
research focuses on the development
years ago and is now Brain Injury
and evaluation of methods to manage
Rehabilitation Center (BIRC) at
acquired deficits in attention, memory,
Progressive Rehabilitation Associates
and executive functions. (See page 1)
(PRA) which provides comprehensive,
Outstanding Medical Doctor:
Danielle Erb, MD, who is the only
Physical Medicine and
Rehabilitation Doctor Specializing
Exclusively Treating Individuals
with Brain Injury in Oregon. (See
page 1)
Outstanding Neuro-Optometrist:
Dr. Bruce Wojciechowski, has
been a name in the optometric
field for over 28 years since 1981,
specializing in optometric visual
therapy., used as a rehabilitative
measure due to a stroke or head
injury. (See page 1)
The Headliner
timely and cost effective rehabilitation
services for adults with acquired brain
injury. (See page 1)
Salem: Steve Paysinger, Salem
Hospital's Acute Rehabilitation Program
(SHARP), which for many years had an
outstanding rehab program for
individuals with brain injury. That
program has now been merged with
other rehab programs, but they continue
to have strong support groups. BIAOR
has had an office at Salem
Rehabilitation Center for three years
now. (See page 1)
Outstanding Brain Injury Foster
Home: Highland Heights, Karen
Campbell, 32 years ago opened a brain
injury specific foster home providing
outstanding care and support, utilizing
unique therapies for positive outcomes
for medically fragile brain injury
survivors.
Outstanding Brain Injury Day
Program: Carol Altman, Bridges to
Independence, that works with college
students and their professors to provide
exceptional rehab therapy for individuals
with long term difficulties from their
injuries. (See page 1)
Media Awareness: Elizabeth Hovde, a
brain injury survivor and columnist for
the Oregonian who is
increasing the awareness of
brain injury through her weekly
columns. (See page 1)
Ralph Wiser, BIAOR President, and Deborah
Crowley, Executive Director, BIAWA
Winter 2013
Exceptional Partner: Brain
Injury Association of
Washington, Deborah Crowley,
Executive Director, and Richard
Adler, JD, past BIAWA board
chair, has been working and
collaborating with BIAOR for the
last eight years to jointly
improve the quality of life for
individuals living with brain
injury.
page 21
Why do men have more
brain injuries???
Oregon Centers for Independent Living
Contact List
CIL
ABILITREE
Director: Glenn Van Cise
EOCIL
(Eastern Oregon Center
for Independent Living)
Director: Kirt Toombs
page 22
LOCATION
20436 Clay Pigeon Court
Bend, OR 97702
1-541-388-8103
322 SW 3rd Suite 6
Pendleton, OR 97801
(541) 276-1037
1-877-711-1037 (Toll Free)
400 E Scenic Dr., Ste 2349
The Dalles, OR 97058
541-370-2810
1-855-516-6273
1021 SW 5th Avenue
Ontario, OR 97914
(541) 889-3119 or 1-866248-8369
COUNTIES SERVED
Crook, Deschutes,
Jefferson
Gilliam,, Morrow,
Umatilla,
Union, Wheeler
Columbia , Hood
River, Sherman,
Wasco
Baker, Grant, Harney,
Malheur , Wallowa
HASL
(Independent Abilities
Center)
Director: Randy
Samuelson
305 NE "E" St.
Grants Pass, OR 97526
(541) 479-4275
Josephine, Jackson,
Curry, Coos , Douglas
LILA
(Lane Independent
Living Alliance)
Director: Sheila Thomas
99 West 10th Ave#117
Eugene, OR 97401
(541) 607-7020
Lane, Marion, Polk,
Yamhill, Linn, Benton,
Lincoln
ILR
(Independent Living
Resources)
Director:
Barry Fox-Quamme
SPOKES UNLIMITED
Director:
Christina Fritschi
1839 NE Couch Street
Portland, OR 97232
(503) 232-7411
Clackamas,
Multnomah,
Washington
1006 Main Street
Klamath Falls, OR 97601
(541) 883-7547
Klamath, Lake
UVDN (Umpqua Valley
disAbilities Network)
Director: David Fricke
736 SE Jackson Street,
Roseburg, OR 97470 (541672-6336 (voice)
Douglas
Spring 2013
The Headliner
Understanding Mild Traumatic Brain
Injury (MTBI): An Insightful Guide to
Symptoms, Treatment and Redefining
Recovery
Understanding Mild Traumatic Brain Injury
(MTBI): An Insightful Guide to Symptoms,
Treatment and Redefining Recovery
Edited by Mary Ann Keatley, PhD and
Laura L. Whittemore $16.00
The Essential Brain injury Guide
The Essential Brain Injury Guide provides a wealth of vital
information about brain injury, its treatment and
rehabilitation. Written and edited by leading brain injury
experts in non-medical language, it’s easy to understand.
This thorough guide to brain injury covers topics including:
Understanding the Brain and Brain Injury; Brain Injury
Rehabilitation; Health, Medications and Medical
Management; Treatment of Functional Impacts of Brain
Injury; Children and Adolescents; Legal and Ethical
Issues; and MORE! Used as the primary brain injury reference by thousands of
professionals and para-professionals providing direct services to persons with
brain injury over the past 15 years. $60.00
Recovering from Mild Traumatic Brain Injury A handbook of hope for
military and their families. Edited by Mary Ann Keatley, PhD and Laura L.
Whittemore
This clear and concise handbook speaks to our Wounded Warriors and their
families and helps them navigate through the unknown territory of this often
misunderstood and unidentified injury. It provides an insightful guide to
understanding the symptoms, treatment options and redefines "Recovery" as
their new assignment. Most importantly, the intention of the authors is to inspire
hope that they will get better, they will learn to compensate and discover their
own resiliency and resourcefulness. $18.00
Ketchup on the Baseboard
Ketchup on the Baseboard tells the personal story of the
authors' family’s journey after her son, Tim, sustained a brain
injury. Chronicling his progress over more than 20 years, she
describes the many stages of his recovery along with the
complex emotions and changing dynamics of her family and
their expectations. More than a personal story, the book
contains a collection of articles written by Carolyn Rocchio as
a national columnist for newsletters and journals on brain
injury. $20
A Change of Mind
A Change of Mind by Janelle Breese Biagioni is a very
personal view of marriage and parenting by a wife with two
young children as she was thrust into the complex and
confusing world of brain injury. Gerry Breese, a husband,
father and constable in the Royal Canadian Mounted Police
was injured in a motorcycle crash while on duty. Janelle
traces the roller coaster of emotions, during her husband’s
hospital stay and return home. She takes you into their
home as they struggle to rebuild their relationship and life at home. $20
Fighting for David
Leone Nunley was told by doctors that her son David was in a
"persistent coma and vegetative state"--the same diagnosis
faced by Terri Schiavo's family. Fighting for David is the story
how Leone fought for David's life after a terrible motorcycle
crash. This story shows how David overcame many of his
disabilities with the help of his family. $15
The Caregiver's Tale: The True Story Of A Woman, Her
Husband Who Fell Off The Roof, And Traumatic Brain
Injury
From the Spousal Caregiver's, Marie Therese Gass, point
of view, this is the story of the first seven years after severe
Traumatic Brain Injury, as well as essays concerning the
problems of fixing things, or at least letting life operate
more smoothly. Humor and pathos, love and frustration,
rages and not knowing what to do--all these make up a
complete story of Traumatic Brain Injury. $15
The Headliner
Brain Injury Alliance of Oregon
New Member
Renewing Member
Name: ___________________________________________
Street Address: _____________________________________
City/State/Zip: ______________________________________
Phone: ___________________________________________
Email: _____________________________________________
Type of Membership
Survivor Courtesy $ 5 (Donations from those able to do so are appreciated)
Basic $35
Family $50
Students $25
Non Profit $75
Professional $100
Sustaining $200
Corporation $300
Lifetime $5000
Sponsorship
Bronze $300
Silver $500
Gold $1,000
Platinum $2,000
Additional Donation/Memorial: $________________
In memory of: ______________________________________
(Please print name)
Member is:
Individual with brain injury
Family Member
Other:_________
Professional. Field: _______________________________
Book Purchase ($2 per book for mailing):
The Caregiver’s Tale $15
Change of Mind $20
Fighting for David $15
Ketchup on the Baseboard $20
The Essential Brain Injury Guide $60
Recovering from MTBI $18
Understanding MTBI $16
Type of Payment
Check payable to BIAOR for $ ________________________
Charge my VISA/MC/Discover Card $ __________________
Card number: _________ __________ _________ __________
Expiration date: _____________ Security Code from back _________
Print Name on Card: __________________________________
Signature Approval: __________________________________
Date: ______________________________________________
Please mail to:
BIAOR PO Box 549
Molalla, OR 97038
800-544-5243 Fax: 503– 961-8730
www.biaoregon.org • [email protected]
501 (c)(3) Tax Exempt Fed. ID 93-0900797
Spring 2013
page 23
Resources
For Parents, Students,
Educators and
Professionals
Returning Veterans Project
Returning Veterans Project is a nonprofit organization comprised of politically unaffiliated and
independent health care practitioners who offer free counseling and other health services to
veterans of past and current Iraq and Afghanistan campaigns and their families. Our volunteers
The Oregon TBI Team
include mental health professionals, acupuncturists and other allied health care providers. We believe it
is our collective responsibility to offer education, support, and healing for the short and long-term
The Oregon TBI Team is a multidisciplinary group
repercussions of military combat on veterans and their families. For more information contact: Belle
of educators and school professionals trained in
Bennett Landau, Executive Director, 503-933-4996 www.returningveterans.org email:
pediatric brain injury. The Team provides in-service
[email protected]
training to support schools, educators and families
of students (ages 0-21) with TBI. For evidence
Center for Polytrauma Care-Oregon VA
based information and resources for supporting
Providing
rehabilitation
and care coordination for combat-injured OIF/OEF veterans and active duty
students with TBI, visit: www.tbied.org
service members.
For more information about Oregon’s TBI
Contact:
Ellen
Kessi,
LCSW
,
Polytrauma
Case Manager [email protected] 1-800-949-1004
www.cbirt.org/oregon-tbi-team/
x
34029
or
503-220-8262
x 34029
Melissa Nowatske 541-346-0597
[email protected] or [email protected]
“Brain Injury Partners: Navigating
the School System,” an interactive, multimedia intervention, is now available on-line free of
charge. The easy-to-use website is designed to
give parents of school-aged children with a brain
injury the skills they need to become successful
advocates. http://free.braininjurypartners.com/.
Parent Training and Information
A statewide parent training and information center
serving parents of children with disabilities.
1-888-988-FACT
Email: [email protected]
http://factoregon.org/?page_id=52
LEARNet
Provides educators and families with invaluable
information designed to improve the educational
outcomes for students with brain injury.
www.projectlearnet.org/index.html
FREE Brain Games to Sharpen Your
Memory and Mind
www.realage.com/HealthyYOUCenter/Games/
intro.aspx?gamenum=82
http://brainist.com/
Home-Based Cognitive Stimulation Program
http://main.uab.edu/tbi/show.asp?
durki=49377&site=2988&return=9505
Sam's Brainy Adventure
http://faculty.washington.edu/chudler/flash/
comic.html
Neurobic Exercise
www.neurobics.com/exercise.html
Brain Training Games from the Brain Center of
America
www.braincenteramerica.com/exercises_am.php
page 24
Washington TBI Resource Center
Providing Information & Referrals to individuals with brain injury, their caregivers, and loved ones
through the Resource Line. In-Person Resource Management is also available in a service area that
provides coverage where more than 90% of TBI Incidence occurs (including counties in Southwest
Washington.
For more information or assistance call: 1-877-824-1766 9 am –5 pm
www.BrainInjuryWA.org
Vancouver: Carla-Jo Whitson, MSW CBIS 360-699-4928 [email protected]
Legal Help
Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals with
disabilities. Assisting people with legal representation, advice and information designed to help solve
problems directly related to their disabilities. All services are confidential and free of charge. (503) 243
-2081 http://www.disabilityrightsoregon.org/
Legal Aid Services of Oregon serves people with low-income and seniors. If you qualify for food
stamps you may qualify for services. Areas covered are: consumer, education, family law,
farmworkers, government benefits, housing, individual rights, Native American issues, protection from
abuse, seniors, and tax issues for individuals. Multnomah County 1-888-610-8764 www.lawhelp.org
Lewis & Clark Legal Clinic is a civil practice clinic for the Northwestern School of Law of Lewis &
Clark College. Representing low-income individuals experiencing a cariety of civil and administrate
problems. 503-768-6500
Oregon Law Center Legal provides free legal services to low income individuals, living in Oregon,
who have a civil legal case and need legal help. Assistance is not for criminal matter or traffic tickets.
http://oregonlawhelp.org
Oregon State Bar Lawyer Referral Services refers to a lawyer who may be able to assist. 503-6843763 or 800-452-7636
The Oregon State Bar Military Assistance Panel program is designed to address legal concerns of
Oregon service members and their families immediately before, after, and during deployment. The
panel provides opportunities for Oregon attorneys to receive specialized training and offer pro bono
services to service members deployed overseas. 800-452-8260
St. Andrews Legal Clinic is a community non-profit that provides legal services to low income families
by providing legal advocacy for issues of adoption, child custody and support, protections orders,
guardianship, parenting time, and spousal support. 503-557-9800
Spring 2013
The Headliner
Affordable Naturopathic Clinic in Southeast
An affordable, natural medicine clinic is held
the second Saturday of each month. Dr.
Cristina Cooke, a naturopathic physician, will
offer a sliding-scale.
The clinic is located at:
Naturopaths see people with a range of health
concerns including allergies, diabetes, fatigue,
high blood-pressure, and issues from past
physical or emotional injuries.
For more information of to make an
appointment, please call:
Dr. Cooke, 503-984-5652
The Southeast Community Church of
the Nazarene
5535 SE Rhone, Portland.
Have you had an insurance claim
for cognitive therapy denied?
If so call:
Julia Greenfield, JD Staff Attorney
Disability Rights Oregon
620 SW Fifth Avenue, Ste 500, Portland, OR 97204
Phone: (503) 243-2081 Fax: (503) 243 1738
[email protected]
Financial Assistance
Tammy Greenspan
Head Injury Collection
A terrific collection of
books specific to brain
injury. You can borrow
these books through the
interlibrary loan system. A
reference librarian experienced in brain injury literature can help you find the
book to meet your needs.
516-249-9090
Long Term Care—Melissa Taber, Long Term Care TBI
Coordinator, DHS, State of Oregon 503-947-5169
The Low-Income Home Energy Assistance Program
(LIHEAP) is a federally-funded program that helps lowincome households pay their home heating and cooling
bills. It operates in every state and the District of Columbia,
as well as on most tribal reservations and U.S. territories.
The LIHEAP Clearinghouse is an information resource for
state, tribal and local LIHEAP providers, and others
interested in low-income energy issues. This site is a
supplement to the LIHEAP-related information the LIHEAP
Clearinghouse currently provides through its phone line 1800-453-5511 www.ohcs.oregon.gov/OHCS/
SOS_Low_Income_Energy_Assistance_Oregon.shtml
Food, Cash, Housing Help from Oregon Department of
Human Services 503-945-5600
http://www.oregon.gov/DHS/assistance/index.shtml
Housing
Various rental housing assistance programs for low
income households are administered by local community
action agencies, known as CAAs. Subsized housing, such
as Section 8 rental housing, is applied for through local
housing authorities. 503-986-2000 http://oregon.gov/
OHCS/CSS_Low_Income_Rental_Housing_
Assistance_Programs.shtml
Oregon Food Pantries http://www.foodpantries.org/st/
oregon
Central City Concern, Portland 503 294-1681
Central City Concern meets its mission through innovative
outcome based strategies which support personal and
community transformation providing:
• Direct access to housing which supports lifestyle change.
• Integrated healthcare services that are highly effective in
engaging people who are often alienated from
mainstream systems.
• The development of peer relationships that nurture and
support personal transformation and recovery.
• Attainment of income through employment or accessing
benefits.
The Headliner
Need Help with Health Care?
Oregon Health Connect: 855-999-3210
Oregonhealthconnect.org
Information about health care programs for people who need help.
Project Access Now 503-413-5746 Projectaccessnnow.org
Connects low-income, uninsured people to care donated by
providers in the metro area.
Health Advocacy Solutions - 888-755-5215 Hasolutions.org
Researches treatment options, charity care and billing issues for a
fee.
Coalition of Community Health Clinics 503-546-4991
Coalitionclinics.org
Connects low-income patients with donated free pharmaceuticals.
Oregon Prescription Drug Program 800-913-4146
Oregon.gov/OHA/pharmacy/OPDP/Pages/index.aspx
Helps the uninsured and underinsured obtain drug discounts.
Central City Concern, Old Town Clinic Portland 503 294-1681
Integrated healthcare services on a sliding scale.
Valuable Websites
www.BrainLine.org: a national multimedia project offering information and resources about
preventing, treating, and living with TBI; includes a series of webcasts, an electronic
newsletter, and an extensive outreach campaign in partnership with national organizations
concerned about traumatic brain injury.
www.iCaduceus.com: The Clinician's Alternative, web-based alternative medical resource.
www.oregon.gov/odva: Oregon Department of Veterans Affairs
http://fort-oregon.org/: information for current and former service members
www.idahotbi.org/: Idaho Traumatic Brain Injury Virtual Program Center-The program
includes a telehealth component that trains providers on TBI issues through videoconferencing and an online virtual program center.
www.headinjury.com/ - information for brain injury survivors and family members
http://activecoach.orcasinc.com Free concussion training for coaches ACTive: Athletic
Concussion Training™ using Interactive Video Education
www.braininjuryhelp.org Peer mentoring help for the TBI survivor in the Portland Metro/
Southern Washington area. 503-224-9069
www.phpnw.org If you, or someone you know needs help-contact: People Helping People
Sharon Bareis 503-875-6918
www.oregonpva.org - If you are a disabled veteran who needs help, peer mentors and
resources are available
http://oregonmilitarysupportnetwork.org - resource for current and former members of the
uniformed military of the United States of America and their families.
http://apps.usa.gov/national-resource-directory/National Resource Directory The National
Resource Directory is a mobile optimized website that connects wounded warriors, service
members, veterans, and their families with support. It provides access to services and
resources at the national, state and local levels to support recovery, rehabilitation and
community reintegration. (mobile website)
http://apps.usa.gov/ptsd-coach/PTSD Coach is for veterans and military service members
who have, or may have, post-traumatic stress disorder (PTSD). It provides information about
PTSD and care, a self-assessment for PTSD, opportunities to find support, and tools–from
relaxation skills and positive self-talk to anger management and other common self-help
strategies–to help manage the stresses of daily life with PTSD. (iPhone)
Spring 2013
page 25
Oregon Brain Injury Support Groups
Astoria
Astoria Support Group
3rd Tuesday 6-7:30
Pacific NW Occupational Therapy Clinic
1396 Duane St. Astoria OR 97103
Kendra Ward 1-888-503-7760
Bend
CENTRAL OREGON SUPPORT GROUP
2nd Saturday 10:30am to 12:00 noon
St. Charles Medical Center
2500 NE Neff Rd, Bend 97701
Rehab Conference Room, Lower Level
Joyce & Dave Accornero, 541 382 9451
[email protected]
Ablitree Thursday Support Group
Every Thursday 10:30 am-12pm
Fox Hollow Assisted Living Center
2599 NE Studio Rd, Bend OR 97701
Rich Zebrowski 541-388-8103 x 203
[email protected]
Corvallis
STROKE SUPPORT GROUP
1st Tuesday 1:30 to 3:00 pm
Church of the Good Samaritan Lng
333 NW 35th Street, Corvallis, OR 97330
Call for Specifics: Shawn Johnson, CCC-SLP
541-768-5157 [email protected]
BRAIN INJURY SUPPORT GROUP
2nd Tuesday of each month, 5:30-6:30 pm
Good Sam. Regional Medical Cntr, Ancillary Blg
3580 NW Samaritan Dr., Corvallis, OR 97330
Call for Specifics: Rebecca Veltri, PT
541-768-5157, [email protected]
Coos Bay (2)
Traumatic Brain Injury (TBI) Support Group
2nd Saturday August 9th 3:00pm – 5:00pm
Kaffe 101, 171 South Broadway
Coos Bay, OR 97420 [email protected]
Growing Through It- Healing Art Workshop
Wednesdays, 9-10:30am
The Nancy Devereux Center
1200 Newmark Avenue, Coos Bay, Oregon
Bittin Duggan, B.F.A., M.A.,
541-217-4095 [email protected]
Eugene (3)
Head Bangers
3rd Tuesday, Feb., Apr., June, July, Aug., Oct. Nov.
6:30 pm - 8:30 pm Potluck Social
Monte Loma Mobile Home Rec Center
2150 Laura St;, Springfield, OR 97477
Susie Chavez, (541) 342-1980
[email protected]
Community Rehabilitation Services of Oregon
3rd Tuesday, Jan., Mar., May, Sept. and Nov.
7:00 pm - 8:30 pm Support Group
St. Thomas Episcopal Church
1465 Coburg Rd.; Eugene, OR 97401
Jan Johnson, (541) 342-1980
[email protected]
page 26
BIG (BRAIN INJURY GROUP)
Tuesdays 11:00am-1pm
Hilyard Community Center
2580 Hilyard Avenue, Eugene, OR. 97401
Curtis Brown, (541) 998-3951 [email protected]
Hillsboro
Westside SUPPORT GROUP
3rd Monday 7-8 pm
For brain injury survivors, their families, caregivers
and professionals
Tuality Community Hospital
335 South East 8th Street, Hillsboro, OR 97123
Carol Altman, (503)640-0818
Klamath Falls
SPOKES UNLIMITED Brain Injury Support Group
2nd Tuesday 1:00pm to 2:30pm
1006 Main Street, Klamath Falls, OR 97601
Dawn Lytle 541-883-7547
[email protected]
SPOKES UNLIMITED BRAIN INJURY
RECREATION
4th Tuesday
Contact Dawn Lytle for additional information:
541-883-7547 [email protected]
Lebanon
BRAIN INJURY SUPPORT GROUP OF LEBANON
1st Thursday 6:30 pm
Lebanon Community Hospital, Conf Rm #6
525 North Santiam Hwy, Lebanon, OR 97355
Lisa Stoffey 541-752-0816 [email protected]
Medford
Southern Oregon Brainstormers Support &
Social Club
1st Tuesday 3:30 pm to 5:30 pm
751 Spring St., Medford, Or 97501
Lorita Cushman @ 541-621-9974
[email protected]
Portland (17)
Brain Injury Help Center
Call and meet with Brain Injury Advocate
Tuesdays & Thursdays: 10:00-12:00
Young BI Adult Technology & Game time
Wednesdays: 10:00-12:00
Family and Parent Coffee in café
Wednesdays: 10:00-12:00
“Living the Creative Life” Women’s Coffee
Fridays: 10:00 – 12:00
Technology Time-adaptive tutoring (5/10)
Fridays: 1:00-4:00
1220 SW Morrison #433 Portland, Oregon 97205
[email protected]
Call Pat @ 503-752-6065
BRAINSTORMERS I
2nd Saturday 10:00 - 11:30am
Women survivor's self-help group
Wilcox Building Conference Room A
2211 NW Marshall St., Portland 97210
Next to Good Samaritan Hospital
Jane Starbird, Ph.D., (503) 493-1221
[email protected]
BIRC Alumni Support Group - On hiatus
BRAINSTORMERS Il
3rd Saturday 10:00am-12:00noon
Survivor self-help group
Emanuel Hospital, Rm 4225
2801 N Gantenbein, Portland, 97227 503-816-2510
Steve Wright [email protected]
CROSSROADS (Brain Injury Discussion Group)
2nd and 4th Friday, 1-3 pm
Independent Living Resources
1839 NE Couch St, Portland, OR 97232
Sarah Gerth, 503-232-7411 [email protected]
Must Be Pre-Registered
FAMILY SUPPORT GROUP
3rd Saturday 1:00 pm-2:00 pm
Molalla
Self-help and support group
BRAIN INJURY SUPPORT GROUP OF MOLALLA Currently combined with
5:30 pm—7:00, Every Monday
PARENTS OF CHILDREN WITH BRAIN INJURY
Support group and Hydro-exercise - Molalla Pool
Emanuel Hospital, Rm 1035
Sherry Stock [email protected] 503-740-3155 2801 N Gantenbein, Portland, 97227
Must Be Pre-Registered
Joyce Kerley (503) 320-6092 [email protected]
Newport
BRAIN INJURY SUPPORT GROUP OF NEWPORT
2nd Saturday 2-4 pm
4909 S Coast Hwy Ste 340,
South Beach, OR 97366
(541) 867-4335 or [email protected]
www.progressive-options.org
Oregon City
3rd Friday 1-3 pm (on hiatus)
Clackamas Community College
Sonja Bolon, MA 503-816-1053
[email protected]
Spring 2013
FARADAY CLUB
Must be pre-registered 1st Saturday 1:00-2:30pm
Peer self-help group for professionals with BI
Emanuel Hospital, Rm. 1035
2801 N Gantenbein, Portland, 97227
Arvid Lonseth, (503) 680-2251 (pager)
[email protected]
HELP (Help Each Other Live Positively)
4th Saturday - 1:00-3:00 pm
TBI Survivor self-help group (Odd months)
TBI Family & Spouse (Even Months)
Cognitive Enhancement Center
604 SE Water Ave Portland 97214
Brad Loftis, (503) 760-0425 [email protected]
Please contact at least two days in advance
The Headliner
Brain Injury Support Groups provide face-to-face interaction among people whose lives have been affected by brain
injury, including Peer Support and Peer Mentoring.
OHSU Sports Concussion Support Group
For Youth and Their Families who have been
affected by a head injury
3rd Tuesday, 7:00-8:30 pm
OHSU Center for Health and Healing
3303 SW Bond Ave, 3rd floor conference room
Portland, OR 97239
For more information or to RSVP contact
Jennifer Wilhelm 503-494-3151 [email protected]
Sponsored by OHSU Sports Medicine & Rehab
Salem (3)
SALEM BRAIN INJURY SUPPORT GROUP
4th Thursday 4pm-6pm
Salem Rehabilitation Center, Conf Rm 2 A/B
2561 Center Street, Salem OR 97301
Megan Snider (503) 561-1974
[email protected]
SALEM COFFEE & CONVERSATION
Fridays 11-12:30 pm
Ike Box Café, 299 Cottage St, Salem OR 97301
PARENTS OF CHILDREN WITH BRAIN INJURY
3rd Saturday 12:30 - 2:30 pm
self-help support group.
12:30-1 pm Currently combined with THRIVE
SUPPORT GROUP for Pizza then joins
FAMILY SUPPORT GROUP
Emanuel Hospital, Rm 1035
2801 N Gantenbein, Portland, 97227
Joyce Kerley (503) 281-4682 [email protected]
SALEM STROKE SURVIVORS & CAREGIVERS
SUPPORT GROUP
2nd Friday 1 pm –3pm
Salem Rehabilitation Center
2561 Center Street, Salem OR 97301
Scott Werdebaugh 503-838-6868
Ruby McEliroy 503-390-3372
Positive Brain Injury Support Group
(for career person's with a Brain Injury)
1st and 3rd Monday's 4:30- 6:00pm
4511 SE 39th Ave., Portland, 97202
Call: Nancy Holmes, PsyD, (503) 235-2466
MUST BE PRE-REGISTERED
THRIVE SUPPORT GROUP
3rd Saturday 12:30 - 2:30 pm
Brain Injury Survivor support group Ages 15-25
Emanuel Hospital, MOB West
Medical Office building West
Directly across from parking lot 2
501 N Graham, Portland, 97227
Kate Robinson, 503-318-5878
[email protected]
Starting in July: Amy Werry and Kimberly Skillicorn
be the facilitators
[email protected] or 817.602.8387
MUST BE PRE-REGISTERED
TBI Caregivers Support Group
4th Thursday 7-8:30 pm
8818 NE Everett St, Portland 97220
Karin Keita 503-208-1787
[email protected]
MUST BE PRE-REGISTERED
TBI SOCIAL CLUB
Location varies, call for times & locations
Meets twice a month - days and times vary
call for information Michael Flick, 503-775-1718
Greater Persons Toastmasters Club (for People
with Brain Injury) On Hiatus until further notice
Caleb Burns, (503) 913-4517
Roseburg
UMPQUA VALLEY DISABILITIES NETWORK
2nd Monday 12 noon - 1:15pm
736 SE Jackson St, Roseburg, OR 97470
(541) 672-6336 [email protected]
The Headliner
Redmond (1)
Positive Brain Injury Support Group
1st and 3rd Wednesday's 4:30- 6:00pm
St. Charles Redmond Medical Center
1253 NW Canal Blvd., Redmond, OR 97756
(in the cafeteria conference room)
Call Nancy Holmes, PsyD 541 330-4428 or Cheryl
Brown
Must be pre-registered
IDAHO & WASHINGTON TBI SUPPORT GROUPS
Quad Cities TBI Support Group
Second Saturday of each month, 9 a.m.
Tri State Memorial Hosp. 1221 Highland Ave,
Clarkston, WA
Deby Smith (509-758-9661;
[email protected])
Stevens County TBI Support Group
1st Tuesday of each Month 6-8 pm
Mt Carmel Hospital, 982 E. Columbia, Colville, WA
Craig Sicilia 509-218-7982; [email protected]
Danny Holmes (509-680-4634)
Moses Lake TBI Support Group
2nd Wednesday of each month, 7 p.m.
Samaritan Hospital
801 E. Wheeler Rd # 404, Moses Lake, WA
Jenny McCarthy (509-766-1907)
Pullman TBI Support Group
3rd Tuesday of each month, 7-9p.m.
Pullman Regional Hospital, 835 SE Bishop Blvd,
Conf Rm B, Pullman, WA
Alice Brown (509-338-4507)
Pullman BI/Disability Advocacy Group
2nd Thursday of each month, 6:30-8:00p.m.
Gladish Cultural Center, 115 NW State St., #213
Donna Lowry (509-725-8123)
SPOKANE, WA
Spokane TBI Survivor Support Group
2nd Wednesday of each month 7 p.m.
St.Luke's Rehab Institute, 711 S. Cowley, #LL1,
Craig Sicilia (509-218-7982; [email protected])
Michelle White (509-534-9380; [email protected])
Valerie Wooten (360-387-6428)
Spring 2013
Spokane Family & Care Giver BI Support Group
4th Wednesday of each month, 6 p.m.
St. Luke's Rehab Institute, 711 S. Cowley, #LL1,
Spokane, WA
Melissa Gray ([email protected])
Craig Sicilia (509-218-7982; [email protected])
Michelle White (509-534-9380; [email protected])
*TBI Self-Development Workshop
“reaching my own greatness” *For Veterans
2nd & 4th Tues. 11 am- 1 pm
Spokane Downtown Library 900 W. Main Ave.,
Spokane, WA
Craig Sicilia (509-218-7982; [email protected])
Spokane County BI Support Group
4th Wednesday of each month
6:30 p.m.-8:30 p.m.
12004 E. Main, Spokane Valley WA
Craig Sicilia (509-218-7982; [email protected])
Toby Brown (509-868-5388)
Spokane County Disability/BI Advocacy Group
511 N. Argonne, Spokane WA
Craig Sicilia (509-218-7982; [email protected])
VANCOUVER, WA
TBI Support Group
2nd and 4th Thursday 2pm to 3pm
Legacy Salmon Creek Hospital, 2211 NE 139th Street
conference room B 3rd floor Vancouver WA 98686
Carla-Jo Whitson, MSW, CBIS [email protected]
360-991-4928
IDAHO
STARS/Treasure Valley BI Support Group
4th Thursday of each month 7-9 pm
Idaho Elks Rehab Hosp,Sawtooth Room (4th Fl), Boise
Kathy Smith (208-367-8962; [email protected])
Greg Meyer (208-489-4963; [email protected])
Southeastern Idaho TBI support group
2nd Wednesday of each month 12:30 p.m.
LIFE, Inc., 640 Pershing Ste. A, Pocatello, ID
Tracy Martin (208-232-2747)
Clay Pierce (208-904-1208 or 208-417-0287;
[email protected])
Twin Falls TBI Support Group
3rd Tuesday of each month 6:30-8 p.m.
St. Lukes’ Idaho Elks Rehab Hosp, Twin Falls, ID
Keran Juker ([email protected]; 208-737-2126)
*Northern Idaho TBI Support Group
*For Veterans
3rd Sat. of each month 1-3 pm
Kootenai Med. Center, 2003 Lincoln Way Rm KMC 3
Coeur d’Alene, ID
Sherry Hendrickson (208-666-3903,
[email protected])
Craig Sicilia (509-218-7982; [email protected])
Ron Grigsby (208-659-5459)
page 27
NON-PROFIT ORG
U. S. Postage
PAID
PORTLAND, OR
PERMIT NO. 3142
The Brain Injury Alliance of Oregon
Formally the Brain Injury Association of Oregon
PO Box 549
Molalla OR 97038
RALPH E. WISER
Attorney
Representing
Brain Injured Individuals
Auto and other accidents
Wrongful Death
Sexual Abuse
Elder Abuse
Insurance issues and disputes
Disability: ERISA and Non-ERISA, SSD, PERS
One Centerpointe Drive, Suite 570
Lake Oswego, Oregon 97035
Phone: (503) 620-5577 Fax: (503) 670-7683
Email: [email protected]
HANDICAP VEHICLES AND MOBILITY EQUIPMENT IN CO , OR & WA
Performance Mobility is committed to providing the highest
quality wheelchair accessible transportation to enhance quality of
life for individuals and families. You'll find an informational, nopressure approach and mountains of experience to meet your
transportation needs.
FREE INITIAL CONSULTATION
Free Parking/Convenient Location
503-243-2940 www.performancemobility.com
Vehicle
Donations
How To Contact Us
Brain Injury Alliance of Oregon (BIAOR)
PO Box 549
Molalla, OR 97038
Toll free: (800) 544-5243
Email: [email protected]
Website: www.biaoregon.org
Fax: 503-961-8730
BIAOR Open biaor [email protected]
BIAOR Advocacy Network
[email protected]
Through a partnership with VDAC (Vehicle Donations to Any
Charity), The Brain Injury Alliance of Oregon, BIAOR, is now a part
of a vehicle donation system. BIAOR can accept vehicles from
anywhere in the country. VDAC will handle the towing, issue a
charitable receipt to you, auction the vehicle, handle the transfer of
title, etc. Donations can be accepted online, or call 1-866-3321778. The online web site is http://www.v-dac.com/org/?
id=930900797
This newsletter was sponsored in part by cbirt.org.
page 28
Thank you to all our contributors and advertisers.
Spring 2013
The Headliner