North`s Park`s
Transcription
North`s Park`s
North’s Park’s The newsletter of Parkinson’s Northland AUGUST 2015 Activities update: Support Groups in Northland Kerikeri- 3rd Thursday monthly WHAT’S ON IN THE NORTH 4 September 11am – 1pm th Whangarei Luncheon to be held at The Kamo Club Rooms, Meldrum Street, Kamo Guest Speaker; Christopher Hutchinson NDHB Kaitaia – 3rd Tuesday every 2nd month Whangarei – 1st Friday monthly Dargaville – 1st Thursday every 2nd month Waipu – 3rd Friday monthly Walking Group Every Monday @ 9.30am contact Margaret 09 435 6239 Physio – Every Tuesday 2 – 3pm @ Kensington Gym 17th September 11am – 1pm Keri Keri Luncheon – St Johns Ambulance Station Guest Speaker; To be advised Hydrotherapy - Water Based Exercises Whangarei- Every Thursday 2.15pm to 3p.m @ Whangarei Aquatic Centre. Kerikeri-Every Wednesday 11.30pm to 12.00pm @ Little Dippers Pool 18th September 10am - Noon Waipu Morning Tea to be held at Waipu Presbyterian Church Hall (Gold coin donation & morning tea will be provided) Susie Abraham (Committee Member) & Elizabeth Swift (Care Support) will attend this meeting due to Barbara being away on leave at this time Te Hana – Every Wednesday – Karen’s Aqua & Fitness Centre 11am to 12 noon, $8 per session. Pilates – Every Wednesday @ New Hope Church, cnr Princes & Nixon Streets Intro Class 12.30pm. 1.30pm start for other classes Tai Chi Classes – Coopers Beach - Every Thursday First Tulip in bloom in Judy Allen’s garden. Don’t forget to send me 11.00am @ Physiotherapy Clinic Coopers Beach Kerikeri – Every Tuesday 3.30-4pm @ Kingston House, Hone Heke Road photo’s of your tulips in bloom, email me @ All members and intending members are [email protected] encouraged and welcome to join in these activities. Trisha’s News Into August already. It w It will be Xmas before we k we know it!! Another month bites the dust, and what a busy month it has been. I visited the Whitton’s Garden with Judy Allen, Elizabeth Staats and Jillian Comer to get a feel of the place for our FUTURE DATES TO NOTE IN YOUR DIARIES 2nd October –Whangarei support meeting 20th October - Kaitaia support meeting 22nd October - Kerikeri support meeting 8th October – Dargaville support meeting 16th October –Waipu support meeting. Garden Ramble in November. What an amazing garden, so don’t forget to mark November 21st in your dairies. I have been busy designing posters and flyers for this event Thank you to Morris & Morris who are kindly printing them for us. Disability Swimwear Vicki, Barbara and I had a rushed training session in A lady called Sarah Selkirk has been in touch with Tiaho about some new products for disabilityswimwear. I thought I’d forward you the link so you can check it out in case it is handy for any of you involved in any water sports/activities. Point Following is a link to her website with more information on Rakaia. the swim shorts currently available, with further items to be Please bring a small plate. added in the near future. Auckland to learn our new fundraising system. Have been spending time finding our way around the new system. I have ordered two teardrop flags for our use at Expos etc. Have also order pens to be printed with our Name, Phone Number and email on it. Parkinson’s will sell these @ $2.00 a pen during our Awareness Week and at Expos etc. Have started receiving confirmations from various venues re our street appeal on 6th November. For Car Pooling ring http://www.swimspiration.co.nz/disability -swimElizabeth Swift; wear. htm 0691. 06 436 www.swimspiration.co.nz I have my pink & white tulips in bloom. Eagerly waiting for the rest to bloom Hope everyone else is having success with their bulbs. Until next month take care Trisha Ryan Coordinator Please feel free to contact me with any feedback or any articles you may wish to include in the newsletter by the 20th of each month – email [email protected] Phone 09 437 6878 Best contact time; Mon to Fri 8.30am to 4.30pm GARDEN RAMBLE – 21st November 2015 Whitt’s End Garden (Garden of Dr Alistair & Nadine Whitton) 149 Te Rongo Road, Parua Bay (turn off opposite Parua Bay Tavern Saturday 21st November 2015 10am to 3pm Singing Group Due to low attendance as from 11th August 2015 the Singing Group has been cancelled until further notice. Birthday Shout Outs for August Mary Artfield, Judy Blake, Annie Draffin, Nob Grinder, Leo Hill, Graeme Thompson, Sydney Thompson, Raewyn Ackers, Shirley Bedggood, Josephine Hayes, Phillip Hingston, Noreen McInnes, Gordon McIntyre, Jocelyn O’Connor, George Payne, John Robson, Jacqui Seymour, Bev Simmonds, Don Vicars, Trevor Webster. Please let me know if you are not on the list and I can add you to our Birthday diary Trisha Ryan Coordinator 09 437 6878 UPBEAT This group is for newly diagnosed and under 65 Parkinson Sufferers. This is a group who meet together from to time to time throughout the year for fun and fellowship. The following events have been organised for the coming months. Anyone is welcome to attend. (For inquiries please phone Lorraine Kokich @ 09 4346874 or 0211353919. Sunday 20th September Table Tennis at Kensington Table Tennis Centre: THANK YOU – JANE MANDER VILLAGE Date and time confirmed. It is proposed that we meet here at 10 am. Play table tennis and have a coffee at the Refuel Cafe afterwards. Wear light non marking shoes and $5 for racket hire. Please let me know if you intend to come. Sunday 8th November Morning tea at The Cafe Helena Bay at 11am. Please let me know if you intend to come so I can confirm numbers on or before 25 of October. Looking forward to seeing you all at these events. Lorraine Kokich. Parkinson’s Northland would like to thank the staff and residents for the lovely lunch and time that was put on for our members and staff on the 7th August 2015. Everyone who attended had a wonderful time. A Warm Welcome to all New Members who have joined Vicki , Barbara and Wilma at the “Getting Out There” Parkinson’s recently (Doesn’t our new Tear drop Flag look great) Expo held at Forum North 14-15th August. VICKI’S CORNER A warm hello to everyone and welcome to the new members. Barbara and I attended the Annual Community Educator’s Conference in Wellington the last week of July. This year it was for 2 & ½ days-pretty full on 9am-5pm. I would like to thank the committee for funding this trip. It was great to network with all the Community Educators from around New Zealand, find out what happens in other areas. I do think we are quite fortunate in the north with the variety of groups on offer. Due to space constraints I thought I would talk about 4 of the presentations. Dr Louise Parr-Brownlee a Neurophysiologist from the Otago Brain Health Research Centre in Dunedin on her research on Optogenetics. This is a type of brain science of combining fibre optics and genetics. The research is currently been done on rats which was very interesting. Louise has been researching connections between the Basal Ganglia, Motor Thalmus and Motor Cortex for approximately 14yrs. We all did a Poster Presentation of which there were some great topics and really good presentations of which some will eventually be available as a resource for us all. I did support groups that are available in Northland for our clients highlighting the subsidized exercise groups available to all clients in Northland. Mark Simpson a Neurologist from Auckland Hospital spoke about the Apomine Treatment in conjunction with Pip Acock the Pharmacuetical Rep. This tends to help clients whose oral medications no longer manage their symptons, particularly on/off periods. Pip may attend one of our Whangarei Support Meetings later this year. It is good to learn about other treatments that could benefit people with Parkinson’s. Rachel Horwell a Physiotherapist from Wellington did a very interactive presentation on Dance for Parkinson’s Disease. She attended a 2 day workshop in New York and decided to set it up in Wellington. We did this while sitting so most people with Parkinson’s are able to do it. It was mainly based around big movements but done to music was quite entertaining and fun. Don’t forget to contact me for any advice or support. I am available Mon-Fri 9am-5pm Regards Vicki Sadgrove Community Educator Northland The monthly printing of this Newsletter and Fact Sheet are proudly sponsored by; FDANZ Ph: 09 – 4375799 ‘Here when you need us’ Life Members of Parkinson’s Northland Elizabeth Swift June Grove Merle Armiger WHEATBAG HELPERS This is a photo of my grandsons helping with the making of the wheatbags. They are very good at measuring the wheat and filling the bags. At the moment I have about 120 bags and linings cut out Speakers for Whangarei Support meetings October – Mary-Clare Tafts ready to sew. For this I am most grateful to my good friend Chris Health & Disability Advocate Cook who has helped from the beginning, teaching me how to November -To be advised make them. Chris now cuts out the bags and linings for me and Speaker for Waipu helps sew when I get overwhelmed. Group My sister Liz, who lives in Canada but spends 3-4 months of the year here to avoid the Canadian winter has also been involved October – Nola McCullough from the beginning and has kindly lent me her sewing machine to retired physio and long use. I am also grateful to Jeanette who spends most Monday's with term supporter. me and I put her to work filling and pinning and wrapping which makes it a lot easier with two people working. Patricia who is only a phone call away, helps when I get urgent orders. I would like to thank all the businesses who support us by selling our Wheatbags. They help us raise funds for the great work our Parkinson Group does. Judy Allen “Recipe Corner” Barbara’s Bits and Pieces Kia Ora, This year’s Parkinson’s Conference was 21 hours of Education and the Karla’s Cheating Brownie’s 150g butter ¾ cup cocoa 1 ¼ cup castor sugar 3 eggs 1 tsp Vanilla essence topics ranged over a broad spectrum .I will be discussing matters of ½ cup gluten free flour or wheat flour interest at support as time allows. Dr Louise Hotel Parr-Brownlie Marigold HotelMeetings Marigold Hotel Marigold Heat oven to 160c fan bake 2015 - Poster.pdf 2015 - Poster.pdf her 2015 - Poster.pdf spoke about her research on optogenetics; team have been using Line a 20cm by 20cm tin. blue light to stimulate dopamine in rats hoping that in the future this In a pot melt butter, sugar and cocoa could be used in humans. This could lead to another treatment option yearsMarigold to come. Hotel We also had Dr Mark Simpson talk about apomine 2015 - Poster.pdf together till melted but not boiling. infusions , another way of treating some people for whom oral drugs When cool slightly add eggs, one at the time may not be working well. On a less academic topic Rachel Horwell and mix well,add vanilla. Then add flour. demonstrated how dance could be a great form of exercise for our Bake for 20-25 min clients .She had a bubbly personality and I’m sure the classes she takes in North Wellington would be a hit .As you are aware Should still be slightly soft to touch when appropriate exercise is a great way to help maintain fitness and cooked as will firm up, as it cools, should be balance and have fun. Some of the presenters used case studies to nice and moist. aid our learning using a story to get us thinking about possible When cooled, sift icing sugar over the brownie. solutions to problems. It certainly made subjects such as medication Enjoy!! in PD thought provoking. Thank you to the committee for your support in funding us to attend. supplied by Elizabeth Staats The Sept Waipu Support Meeting will be hosted by Susie Abraham This corner is going to be a regular feature in [from our committee] and Elizabeth Swift [carer support]. In October the newsletter from now on, so if you have any Nola McCullough will be the guest speaker. She is a retired physio old tried and true family recipes please email and long term supporter. them to me @ [email protected] The October Dargaville Support Meeting will be held on Oct Trisha Ryan 8th,would usually be Oct 1st. I have a client who now has no need of her car, if you are interested in Pilates a Suzuki Swift I can pass on the contact info. Finally I now have 7 brand new books about PD available for you to read .More about this next time. There are places available at present on Wednesdays Bye for now if you are interested in joining please phone Vicki Barbara Sadgrove our Community Educator on 09 437 6876 or, contact; Sarah at 021 262 0079, or by email New Library Book Life in the Balance - [email protected] These classes are held every Wednesday @ the New Hope Church, cnr of Princes & Nixon Streets. 10 sessions for $45.00 by Thomas Graboys M.D. Intro Classes @ 12.30pm A powerful and poignant portrayal Pilate Classes @ 1.30pm of a physician who refuses to Anyone is welcome to come along to see if this form of have illness rob him of his dignity and joy. exercise will suit you. Walking Group Photos - Supplied by Sue Vercoe From Whareora Road to the Whangarei Falls. 3rd August 2015 Panui Nau mai, piki mai, kake mai Have you and your whānau experience barriers in accessing health and disability services? Be a part of a ground breaking piece of research: Are you the age of 18 years or over? Do you have a disability (hauātanga)? Would you and your whānau like to share your overall experiences and access to health and disability services? If you answered YES to any of these questions, you may be eligible to participate in this research. The purpose of this research is to look at the health and disability experiences of whānau hauā (Maori with disabilities) and their whānau (family)... All whānau hauā and their whānau are welcome. You may also enjoy the chance to meet with others who have had similar experiences to you when we do our feedback hui at the end of the research. For whānau interview, travel support, NZSL sign language interpreters and accessible venues will be provided for at the interviews. You and your whānau will also be compensated for your time. By doing this research I hope gain an insight and better understanding of barriers for whānau hauā and their whānau too accessing health and disability services. . If you would like to know more, you can contact me, Huhana Hickey at [email protected] or by text only at 0220597752 (I am hearing impaired and do not often hear my phone, but always look for texts). Contacts Chairman Wilma Davies-Colley 09 435 2625 Our Condolences to the families who have lost loved ones over the past months. Community Educator Northland North Shirley Price - Kerikeri 09 437 6876 Vicki Sadgrove [email protected] Community Educator Northland South Barbara Leslie 09 437 6881 [email protected] Coordinator Trisha Ryan 09 437 6878 Bequests Many families have requested that donations be made to the Northland Division of the Society in lieu of [email protected] Mailing Address P O Box 641 WHANGAREI 0140 flowers when one of our members pass away. We offer our thanks to all those who have made such CURRENT COMMITTEE contributions as a symbol of their friendship and Susie Abraham 09 438-9445 support. Judy Allen 09 437-5291 If any or you or someone you know would like to Joyce Armstrong 09 437-0374 make a bequest to the Northland Division in Marilyn Edwards 09 435-1341 your/their Will we now have , thanks to help received Elizabeth Staats 09 436 0819 from our Honorary Solicitor a brochure to help you Lorraine Kokich 09 434-6874 with your decision. Peter Garelja 09 430 8019 Please contact the Coordinator to request one. Jillian Comer 09 437 3577 THANK YOU Charities Commission Registration Parkinson’s Northland are extremely grateful for the Number: CC27392 valuable support they have received from organisations and the many donations received from members, friends and businesses. Sir John Logan Campbell Trust, , Oxford Trust, Tiaho Trust, Whangarei Croquet Club, IRD Book Club, Morris & Morris, COGs Whangarei, Lions & Rotary Clubs, LW Nelson Trust, a list of a few of our many sponsors and donators WEBSITE & FACEBOOK For information on Parkinson’s New Zealand go to; www.parkinsons.org.nz There is also a Facebook page under “Parkinson’s New Zealand" Disclaimer: The views and technical content in this newsletter are not necessarily those of the Society. Please do not interpret anything in this newsletter as medical advice – Always check with your doctor.