Qualitative Formative Research Findings Dadu District
Transcription
Qualitative Formative Research Findings Dadu District
Volume 1: Qualitative Formative Research Findings - Summary Volume 2: Qualitative Formative Research Findings DG Khan District, Punjab Volume 3: Qualitative Formative Research Findings Khanewal District, Punjab Volume 4: Qualitative Formative Research Findings Rawalpindi District, Punjab Volume 5: Qualitative Formative Research Findings Buner District, NWFP Volume 6: Qualitative Formative Research Findings Jafferabad District, Balochistan Volume 7: Qualitative Formative Research Findings Sukkur District, Sindh Volume 8: Qualitative Formative Research Findings Dadu District, Sindh Volume 9: Qualitative Formative Research Findings Study II Volume-8 Qualitative Formative Research Findings - Dadu July 2006 PAIMAN project is funded by the United States Agency for International Development and implemented by JSI Research & Training Institute Inc. in conjunction with Aga Khan University, PAVHNA, Contech International, Save the Children US, Population Council, Johns Hopkins University/CCP, and Greenstar Social Marketing. SUNRISE DIGITAL 051-2278515 Center for Communication Programs The Pakistan Initiative for Mothers and Newborns (PAIMAN) is a five-year United States Agency for International Development (USAID) funded project designed to reduce country's maternal and neonatal mortality by making sure women have access to skilled birth attendants during childbirth and through out the postpartum period. PAIMAN works at national, provincial and district levels to strengthen the capacity of public and private health care providers and improve health care system infrastructure. The PAIMAN Program is jointly implemented by John Snow Inc (JSI), the Johns Hopkins Center for Communication programs (JHU/CCP), Agha Khan University, Contech International, Greenstar Social Marketing, Population Council and Pakistan Voluntary Health and Nutrition Association (PAVHNA) . Copyright © 2006 by JHU/CCP. All rights reserved. Published by: PAIMAN House 6, Street 5, F-8/3, Islamabad, Pakistan. Author: Dr. Arjumand Faisel Arjumand and Associates Editor: Daniela Lewy Cover Design, Layout & Printed: Sunrise Digital, Islamabad, Pakistan. Inquiries should be directed to: Fayyaz Ahmed Khan Team Leader BCC Johns Hopkins Bloomberg School of Public Health Center for Communication Programs PAIMAN Office House 6, Street 5 F-8/3, Islamabad, Pakistan E-mail: [email protected] Suruchi Sood, Ph.D. Senior Program Evaluation Officer Johns Hopkins Bloomberg School of Public Health Center for Communication Programs 111 Market Place Suite # 310 Baltimore, MD 21202 E-mail: [email protected] Disclaimer: This study/report is made possible by the generous support of the American people through the United States Agency for International Development (USAID). The contents are the responsibility of JSI Research & Training Institute, Inc. and do not necessarily reflect the views of USAID or the United States Government. contents 8.1. District profile 8.2. Participants Characteristics 8.3. Current Maternal Health Seeking Behaviors and the Key Factors that Facilitate or Hinder Health Seeking Practices 8.3.1 Recognition of and reaction to pregnancy 8.3.2 Health seeking behavior adopted at home 8.3.3 Perception of required health services in pregnancy, delivery and postpartum 8.3.4 Availability of services to women and their utilization 8.3.5 Health seeking from skilled providers during current/last pregnancy, last delivery and last postpartum 8.3.6 Knowledge about life threatening complications 8.3.7 Actions taken during obstetric emergency 8.3.8 Assistance of husbands, family members, health care providers and community in emergency situations 8.3.9 Conclusions 8.4. Current Health Seeking Behavior for Newborns and the Key Factors that Facilitate or Hinder these Health Seeking Practices 8.4.1 Perception of required health services for newborn 8.4.2 Availability of services for newborn and their utilization 8.4.3 Steps to ensure health of the newborn 8.4.4 Knowledge about life threatening complication in newborn 8.4.5 Actions taken for threat to life of newborn 8.4.6 Conclusions 8.5. Current Birth Preparedness and Complications Readiness Behaviors and the Key Facilitating and Hindering Factors 8.5.1 Preparations made for birth by woman, husband and family members 8.5.2 Hindrances in BPCR 8.5.3 Conclusions 8.6. Religious and Cultural Practices Surrounding Maternal and Neonatal Health 8.6.1 Religious/Cultural ceremonies 8.6.2 Preferred and forbidden food items for breastfeeding mothers 8.6.3 Precautions taken during postpartum to ensure safety of mother and newborn 8.6.4 Feeding of newborn 8.6.5 Bathing patterns 8.6.6 Presence and effects of Nazar (evil-eye) Conclusions 6 7 7 8 9 13 14 18 20 22 23 25 26 26 27 28 29 30 31 32 32 34 36 36 36 40 42 44 45 45 47 Qualitative Formative Research Findings - Dadu Qualitative Formative Research Findings - Dadu ACKNOWLEDGMENTS Arjumand and Associates (Management Team) Dr. Arjumand Faisel Dr. Narjis Rizvi Dr. Naveed-I-Rahat Wasiq Mehmood Khan Sabeena Kausar Satti Dr. Fauzia Waqar Johns Hopkins Bloomberg School of Public Health (Baltimore) Dr. Suruchi Sood Anne Palmer Dr. Corinne Shefner-Rogers Daniela Lewy Margaret Edwards Johns Hopkins Bloomberg School of Public Health (Pakistan) Fayyaz Ahmed Khan Dr. Zaeem Ul Haq Shereen Rahmat Minhas John Snow Inc. Dr. Theo Lippiveld Dr. Nabeela Ali Dr. Tahir Nadeem Dr. Nuzhat Rafique Dr. Iftikhar Mallah Dr. Syed Hassan Mehdi Zaidi Local Government Health Department Staff EDO Health, District Coordinator LHW Program LHWs National Program for Family Planning and Primary Health Care Dr. Haroon Jahangir Khan A special thank you for all the individuals who graciously participated in this formative research Study 1: From Pregnancy to Newborn Care: Health Seeking, Birth Preparedness/Complication Readiness, Religious and Cultural Practices Report - Study 1 (Volume 8) Findings: Dadu, Sindh In-depth Interviews (IDIs) with Married Women, Husbands and Family Members 04 Qualitative Formative Research Findings - Dadu 8. Findings District Dadu (Sindh) 8.1 District Profile Qualitative Formative Research Findings - Dadu 8.2 Participants Characteristics A total of 40 interviews were conducted with the distribution given in Table 8.1: District Dadu is administratively divided into 4 talukas which include Dadu, Mehar, Johi and Khair Pur Nathan Shah (known as K N Shah). According to 1998 Census, the population of the district was 1,688,811 with 53% males and 1 47% females and an annual growth rate of 2.65%. The medical coverage provided by the public health sector in the district consists of 1 District Headquarters Hospital (DHQH), 3 Taluka Headquarters Hospital (THQH), 3 Rural Health Centres (RHCs), 44 Basic Health Units (BHUs) and 2 Maternal & Child Health Centres (MCHCs). Table 8.1: Distribution of In-depth Interviews Area Number of Interviews Currently Women with Husbands Pregnant Live Birth Women CP* LB* Mukhi Street Purano Dero Makhdoum Bilawal Phulji Village Total 3 3 3 3 12 3 3 3 3 12 1 1 1 1 4 1 1 1 1 4 Family Members Male Female 1 1 1 1 4 1 1 1 1 4 Figure 1: Map of District Dadu with Sampled Areas Note: CP= currently pregnant, LB= woman with live birth 2 1 3 4 Sampled Areas: 1. 2. 3. 4. Mukhi Street (urban) Purano Dero (rural) Makhdoum Bilawal (rural) Phulji Village (rural) The ages of participants were: women from 20 to 40 years with the mean of 27.85 years, husbands 26 to 46 years with mean of 33.5 years, and family members 33 to 70 years with mean of 57.25 years. The living children of women and husband participants ranged from 0 to 10; the number of sons ranged from 0 to 7, and the number of daughters ranged from 0 to 5. The age range of the youngest child of women participants was 4 months to 4 years and of the husbands' from 1 month to 4 years. Several women (16 out of 24) had no schooling, few (6 out of 24) completed grades ranging from 1 to 10, with one woman reported having completed high school (12th grade) and another who had done graduation. One of the husbands interviewed had no schooling while 3 had education from primary to grade 10. Three of them had completed up to 12th grade while one had done masters. Several (5 out of 8) of the family members had no schooling and some (3 out of 8) had attended school up to the 10th grade. The husbands reported working in the following occupations: teacher, shopkeeper, agriculture, policeman, laborer and government servant. Male family members worked in agriculture, business or retired. Among the participants, 82% (33 out of 40) spoke Sindhi language, 17% (7) spoke Saraiki language whereas one reported speaking Marwahri language. 8.3 Current Maternal Health Seeking Behaviors and the Key Factors that Facilitate or Hinder Maternal Health Seeking Practices. Health seeking behavior and practices of an individual or family is influenced by several factors, such as the stage at which the condition/illness is recognized, importance given to it, whether the condition can be shared with others or not, severity of symptoms, access to health services, behavior of and confidence in the staff, availability of financial resources, etc. The behaviors recorded in Dadu 1. Population Census 1998, Report 06 07 Qualitative Formative Research Findings - Dadu district, and the factors that influence them are presented below. Qualitative Formative Research Findings - Dadu pregnancy care, to get supplements and for asking her to accompany them to the hospital. 8.3.1 Recognition of and reaction to pregnancy In general, the recognition of pregnancy is early by the women, both in urban and rural areas. Most of the women presume that they are pregnant when their menses are over due, especially if they have one or more associated symptoms such as nausea, vomiting, giddiness, weakness, lethargy, headache, body ache, lack of desire to have food, increased appetite, irritability and feeling of sinking of heart. Some (11 out of 24) women diagnosed it mainly on the basis of symptoms, while more than half (13 out of 24) sought help from the health care providers for confirmation. Many of those who sought help from health care providers for confirmation (9 out of 13) saw a doctor or got a lab test, while only one went to the dai and others did not mention the provider. All the urban women got a urine test to confirm their pregnancy. A woman with live birth in Makhdoum Bilawal while describing recognition of pregnancy stated: “First (I) got nausea, then vomiting and my menses were over due with these symptoms I became suspicious (of pregnancy) and told my husband who got (my) urine test done” (Sab sey pehley dil kee ajeeb kafiat shoroo ho jatee hey yanee dil matlaney lagta hey, ultian shoroo ho jatee hen or mahwaree naheen atee, is tarha kee alamat sey mujhey kuch shak paida hua to phir meney apney shoher ko bataya to unhoon ney paishab test karwaya”. Discussing the subject, a currently pregnant woman with two children in Mukhi Street said: “(I) was vomiting, had no desire to eat anything hence went to a doctor who got the urine test which was positive and I learnt that I was pregnant” (Ulti lagney lage thein, kuch khaney ko dil naheen karta tha to phir meney doctor ko dekhaya, doctor ney paishab test karwaya to who positive tha, to pata chala ke men hamal sey hoon”. Almost all (22 out of 24) of the women stated that they shared this news first with their husband, with similar pattern in urban and rural areas, indicating that the level of spousal communication is high in Dadu, both in urban and rural areas. A currently pregnant woman in Mukhi Street said: “I told my husband as he is my life partner and it is his right (to know)” (Meney apney shoher ko bataya kion ke who humsafar hey or us ka haq hey). The remaining two women shared the news with their mothers. Next, the mother-in-law, other female members of the house (sister-in-law, aunt), mother, sister, father-in-law, female cousins were informed. The reasons for informing other family members were mainly due to their position in the household (for mother-in- law especially) and for advice and care during pregnancy. In Purano Dero, a father-in- law stated: “My daughter-in-law told her husband and her mother-in-law about her pregnancy. She told her husband as it is his right (to know) and to my wife as she is a woman and an elderly member of the house” (Apney shoher or meree bevi ko meree bahu ney apney hamal ke barey men bataya tha, shoher ko is liye ke wo us ka haq hey or meree bivi ko is liye ke who aurat hey or ghar kee baree hey, is liye). Two women also informed the LHWs with the purpose for seeking advice for the 08 Almost all of the interviewed participants including women, husbands and family members (except two women) reported happiness on learning about the pregnancy; and they (women, husbands) had 0 to 10 children before the occurrence of the current/last pregnancy. In Phulji Village, a husband who had 10 living children reported his happiness in these words: “I felt happy when I learnt about the pregnancy of my wife. There is lot of happiness on first pregnancy and gradually the intensity of happiness decreases but one does feel happy” (Khushi hui thee mujhey jab mujhey meree bivi kay hamal ka pata chala tha, pehlee martaba khushi buhat hotee hey phir ahista ahista khushi kee shidat men kame a jatee hey magar khushi hotee hey). A mother-in-law of Makhdoum Bilawal stating her happiness said: “(I) felt very happy, it is evident that we will feel happy as our generation will increase” (Buhat ziada khushi hui thee, humaree nasal barhey gee to zahir hey ke khushi to ho gee). The two women who expressed unhappiness on learning about the current or last pregnancy had 7 to 10 living children. The reason for unhappiness mentioned by one was having too many children. She belonged to Phulji Village and said: “Did not like it at all, this is my eleventh pregnancy and I do not have any strength to give birth” (Bilkul acha naheen laga, ab ye mera gyarwahn pait hey, mujh men bachey paida karney kee bilkul himmat naheen hey). The other woman stated her bad health as the reason for unhappiness. From the above, it is clear that: Recognition of pregnancy is mostly early and its clinical confirmation is also sought by several women, both in urban and rural areas. Almost all of the women shared the news of pregnancy first with their husbands indicating that spousal communication is high, which reflects that women do perceive a role of husbands in the process. There is also sharing of the news with other family members in hope of getting their favor or support. Very few women reported unhappiness on learning about the pregnancy indicating some unmet need for family planning 8.3.2 Health-seeking behavior adopted at home The participants reported behavioral changes by women and her family on learning about the pregnancy. These are related to food intake, daily routine, rest, etc. Food intake: Almost all (22 out of 24) women mentioned that they increased their food intake during pregnancy. Besides, all of the husbands and family members had similar opinions irrespective to their rural or urban belonging. It was stated that this care was mainly initiated by husbands, self or female family members 09 Qualitative Formative Research Findings - Dadu especially mother-in-law and one even said that her father-in-law initiated the increase. The most commonly reported food items of increased intake mentioned by all groups were fish, fruit, milk and meat. Few participants mentioned vegetables, 2 while very few mentioned increase in chicken and roti. Rarely mentioned items 3 included pulses, yogurt, rice, eggs, tamarind, coconut, butter and desi ghee. The reason commonly mentioned for the increased intake of the preferred items was that they provide strength and produces blood. Table 8.2: Preferred Foods During Pregnancy Number of Participants mentioning Preferred Foods in Pregnancy 1 2 3 4 5 6 7 8 Qualitative Formative Research Findings - Dadu Only some (8 out of 24) women and two family members said that there is no forbidden food during pregnancy (none of the husbands expressed such views), while the remaining specified foods that were forbidden to maintain health of the6 mother or the fetus. The forbidden foods, predominantly mentioned were badi foods and included cauliflower, brinjal (eggplant), potato and spinach. This was 7 followed by difficult to digest foods (channay ki daal, peas) and vegetables including brinjal, ladyfinger and cauliflower. Fried items, sour items, stale food, rice and ghee were mentioned rarely by the participants. The reasons given were that foods that produced gas could cause abdominal pain and damage the fetus, difficult to digest and stale food, fried items could cause jaundice an Table 8.3: Forbidden Foods During Pregnancy 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 Fish Fruit Milk Meat Vegetable Roti Chicken Eggs Ghee Pulses Rice Yoghurt Soup Anis Seed Tamarind Apples, bananas and oranges were the most commonly consumed fruits, while a 4 5 few participants also mentioned eating pomegranate, narangi, cheekoo and plums. The frequency of intake of fruits and milk is stated to be daily and the increase ranged from one glass to two glasses per day, while of fish and meat was stated to be from daily to once a month. A currently pregnant woman in Purano Dero, while describing the increased intake said: “We cook fish or meat once a week. I drink a glass of milk and also eat orange and plums daily” (Gosht machlee khatey hen hum log jasey haftey men ek adh dafa pakta hey zaroor. Dhoodh ka ek glass rozana peetee hoon or fruit jasey narange or bair rozana khati hoon). In Mukhi Street, a husband of a currently pregnant woman said: I bring fruits for my wife daily since she is pregnant. I also bring fish and meat for her, which she eats once a day” (Meree bivi jab se hamla hay to us ke liye rozana ghar men fruit ata tha, men ghar walee ke liye gosht machlee bhee ley kar ata hoon, meree bivi rozana ek martaba khate hey). Only one woman reported decreased intake of food during pregnancy with the reason of lack of desire to have food. Also, another woman said that there was no change in her food intake with no specific reason for not changing the diet. 2. Roti: Jesus bread/flat bread made of wheat 3. Desi Ghee: clarified butter 4. Narangi: a variety of orange 5. Cheeko: a fruit 10 A woman with live birth in Purano Dero stated: “(she) should not eat potato and (other) gas producing items like cauliflower and brinjal as they can cause abdominal pain” (Aloo na khaye, badee cheezen jasey ghobee ya bangun wagera ke aurat ke pait men dard na ho jaye). A husband in Makhdoum Bilawal said: “(She) should not eat cauliflower and brinjal, these are gas producing items and should avoid fried items as they can cause jaundice” (Gobi or baingun na khaye, ye badee cheezen hen, tali hui cheezon sey parhez karey kion ke is sey yarqan honey ka khatra hota hey). A father in law in Mukhi Street said: “A woman can eat everything in pregnancy, except those that take longer to digest such as spinach, potato, cauliflower etc. She is advised to avoid these food items” (Aurat hamal men har cheez kha saktee hey siwaye asee cheezoon ke jo hazm der sey hotee hen maslan palak, aloo, ghobi wagera khaney sey aurat ko mana kia jata hey) Daily routine: Most (19 out of 24) of the women reported that they decreased their daily workload. All of the urban women (6 out of 6) decreased their daily workload as compared to rural women (13 out of 18). The initiation of decrease 6. Badi foods: foods believe to produce gas inside the body 7. Channay ki daal: pulse of gram 11 Qualitative Formative Research Findings - Dadu in work varied with only very few (3 out of 19) individuals reporting that they started decreasing their workload from the first trimester and gradually reduced it to minimum. The work decreased varied from individual to individual, but mostly reduction was in strenuous work such as lifting of animal fodder, water buckets, sweeping floors, washing clothes, washing dishes, cooking food, scaling heights (stairs) and lifting heavy weights etc. Interestingly, almost all of the women who reported decrease in the workload also said that their female family members supported them through sharing of household work. A currently pregnant woman in Makhdoum Bilawal stated: “During pregnancy I do not lift weight, do not do work related to buffaloes and if unwell, also do not do household chores. My sisters-in-law live with me and they do all the work” (Pait ke doran wazan bilkul naheen uthatee, bhains ka kam bilkul naheen kartee or ghar ke kam bhee agar tabiyat kharab ho to naheen kartee, meree nanden merey sath rehtee hen to wo sara kam kar letee hain). All husbands and family members reported that the workload has been/was decreased during pregnancy. A husband in Mukhi Street while commenting on this subject said: “I prohibited my wife from working when she became pregnant i.e. from washing clothes, taking clothes to the roof for drying, washing dishes, infact from all work and we hired a maid” (Jab meree bivi hamla hui to hum ney us ko ghar ke kam kaj sey mana kar diya, ghar ke kaprey dhoney sey, kaprey chat par le janey or sukhaney sey, bartan dhoney sey hata ke har kism ke kam karney sey mana kar diya or ghar ke kam ke liye ek masi rakh lee thee). From the information presented above, it can be concluded that: Positive changes in life style of pregnant women were reported by all groups of participants. Almost all of the women participants reported increase intake of some type of food, with major increase in foods rich in proteins, vitamins and calcium. Some food items, mostly vegetables are forbidden during this period, especially those believed to produce 'gas' or 'difficult to digest'. Only one woman reported decrease intake of food due to pregnancy associated symptoms such as nausea and vomiting. Most women were also able to decrease their workload, which included all women participants from urban areas. The participants from Dadu appear to be relatively well off since there is not only clear reduction in workload but reports of hiring a maid as well. Family communication appears to be strong in Dadu with women reporting that they informed their husbands and family members (specially mother-in-law) about their pregnancy, reports of family members (including in one case a father-in-law) playing a role in increased food intake during pregnancy, and reports of adequate and 12 Qualitative Formative Research Findings - Dadu appropriate family help on work related matters so that pregnant women can reduce their workload. 8.3.3 Perceptions of required health services in pregnancy, delivery, and postpartum Pregnancy: Most (34 out of 40) of the participants believed that check up should be done during normal pregnancy. Majority (32 out of 34) of them reported a preference for skilled providers namely the doctor/hospital/nurse, while rarely (2 out of 34) participants suggested seeking health services from dai. The various purposes identified for seeking health services included: check up of the status and position of the fetus (ultrasound), weight and blood pressure of the mother, identification of any abnormality in the mother or fetus, prescriptions or tablets for “strength” and tetanus toxoid vaccinations. A currently pregnant woman in Makhdoum Bilawal said: “One must get check up done to know the stage of pregnancy, the expected date of delivery, to assess if the fetus is healthy or if there is any other problem, and to get injections for strength” (Check up zaroor karwana chaye take pata chaley ke kitney maheeney ka bacha pait men hey or kitney maheeney ke bad ho ga or bacha sehat mand hey ya koi or masla to naheen or taqt ke injection lagwaney chayen). A mother-in-law in Phulji Village said: “(She) should take care of diet and rest, get check up done from a lady doctor because if anything is going wrong then she can handle it, and get vaccination done” (Aram or khaney ka khayal rakhey, doctornee sey check up karwana chaye ke ager koi masla ho jaye to doctornee sambhal letee hey or teekey lagwaney chaye). The frequency of visits for check up was suggested by very few (4 out of 34) and it ranged from 15 days to once in a trimester. Only some participants (16 out of 40) mentioned about the need for getting tetanus toxoid (TT) injections during pregnancy. Several of the participants (25 out of 40) emphasized the need for taking good diet during pregnancy for ensuring health of the mother and fetus. More than half (23 out of 40) participants were of the opinion that pregnant woman should take proper rest during this period. Delivery: Most (32 out of 40) of the participants stated that the services of a skilled provider (doctor/hospital/nurse) should be sought for delivery while very few (7 out of 40) preferred dai for such services as the first choice. All urban participants mentioned the need for seeking care from a skilled provider in delivery. A currently pregnant woman in Purano Dero said: “Delivery should be conducted at the hospital, (preferably) by lady doctor at Civil Hospital so that she can handle if there is any dangerous condition” (Delivery hospital men karwanee chaye, civil hospital men lady doctor sey take agar koi khatrey walee baat ho to doctornee sambhal ley). 13 Qualitative Formative Research Findings - Dadu An educated husband in Mukhi street said: “The woman should take care that all facilities should be available at the place where she wants the delivery to be conducted, and it is necessary that the health provider should be trained and experienced. Besides this, the place should have facilities for medicines and arrangement for oxygen and blood” (Zichgi ke waqt aurat ko sehat ke hawaley sey is baat ka khyal rakhna chaye ke jahan zichgee karwayee jaye wahan sehat kee tamam sahulat majood ho, zichgee karwaney walee tarbiyat yafta or tajruba kar honee zarooree hey, is ke elawa jahan zichgee ho rahee hey wahan dawyun kee sahulat majood ho, oxygen or khoon ka bandobast zarooree hey). All women, family members and almost all husbands who preferred dai as the first choice stated that in case she cannot handle then the woman should be taken to a doctor or hospital. In Phulji Village, a father-in-law said: “The family members will call the dai when time for delivery comes, and if she fails to deliver then the woman will be taken to hospital”(Jab bachey kee paidaish ka waqt aa chukka ho to ghar waley dai ko ley kar ayengey jo bacha paida karwaye gee agar dai sey baat barh jaye tab usey hospital ley kar jaya jaye ga). Postpartum: Very few (5 out of 40) participants said that there is a need to seek health services from skilled providers (doctor) during the postpartum period. Few (9 out of 40) of the participants mentioned that the services of dai are needed mainly for conducting massage in the postpartum period. Half of the participants were of the opinion that services of a skilled provider (doctor/hospital) should be sought in case of any complication. Inference drawn from above is that: Encouragingly, most of the participants believed that there is need for seeking skilled health care for normal pregnancy and delivery, and majority of them expressed the need for check up by a doctor. The perception regarding the need for TT vaccination is low Very few participants perceived that there is no need for seeking health care in case of a normal postpartum period. 8.3.4 Availability of services to women and their utilization The health services available to women within community for pregnancy care, delivery and postpartum care are given in Table 8.4. Table 8.4: Services Available in the Community for Maternal Care Purano Dero (rural) Dai LHW BHU 14 Makhdoum Bilawal (rural) Dai LHW BHU Paramedic Phulji Village (rural) Dai LHW BHU Paramedic Mukhi Street (urban) LHW Private Clinics Civil Hospital Qualitative Formative Research Findings - Dadu In Pregnancy: In rural areas, the commonly available health services for pregnant women within their community are those provided by Dai, LHWs and BHU. LHV was posted in BHUs at Purano Dero and Makhdoum Bilawal. While, participants from urban area mentioned availability of LHW, private clinics and Hospital in the area. Very few (4 out of 40) participants from rural areas mentioned utilizing the services of the dai during pregnancy for advice and massage. Although LHWs were available in all areas but only some (13 out of 40) participants reported utilizing their services for antenatal care (ANC). This included availing advice, vaccination and medicine. A currently pregnant woman of Purano Dero said: “LHW is available and she gives some advice, pain killers, blood cleaning tablets, and strength giving syrups” (LHW hey wo hee kuch mashwarey detee hey, dard kee golian, khoon saf karney walee golian aur taqat ke sharbat bhee detee hey). The utilization of BHU services for pregnancy was mentioned only by half of the participants in Purano Dero for TT vaccination and check up. A currently pregnant woman in Phulji Village stating the reason for not utilizing the services of BHU said: “This is a government facility but it has no nurse or doctor and our men do not allow us to go there” (Yeh sarkari hospital hey magar yahan par koi nurse ya doctornee naheen hey to humarey mard wahan naheen janey detey). A paramedic was also identified in Makhdoum Bilawal and is reportedly used for treatment of minor illnesses. In urban area, most of the participants reported utilizing the services of Civil Hospital and private clinics (run by lady doctors or male doctors). The reported use is for check up and lab tests (urine, blood test, x ray, ultrasound) and they said that these facilities are used because of availability of female staff, services (tests etc) and low cost (in case of civil hospital only). A currently pregnant woman in Mukhi Street said: “Most of the women of the area go to the Civil Hospital. One reason is that it has many female doctors and the other is that it is less expensive. Besides, all facilities for testing urine, blood, X-ray and ultrasound are available” (Yahan kee aurten ziada tar civil hospital jatee hen, ek to wahan buhat saree lady doctors hotee hen, dosra wahan kharcha bhee kam hota hey, aurtoon ke sarey test jasey paishab ka test, khoon, ultrasound, x ray sab kuch yahan ho jata hey). Delivery: In rural areas, dai was mentioned as the main available service provider for delivery by 13 out of 18 participants. In case of non-availability of dai/or any other provider, services of providers outside the community are sought in these areas. A currently pregnant woman in Makhdoum Bilawal said: “The dai of the area conduct most of the deliveries because she comes anytime on call, besides, she is the elder of the area” (Yahan kee dai he ziada tar deliverian karwatee hey kion ke who har waqt bulaney par aa jatee hey or phir mohley kee massi (bare) bhee wohee hey). 15 Qualitative Formative Research Findings - Dadu In urban areas, services of the Civil Hospital and private clinics are being utilized as mentioned by the urban participants. In Mukhi Street a currently pregnant woman opined: “All the women of the area, either rich or poor, get the delivery conducted by doctor and there is no question of availing the services of dai. Those who cannot afford private doctors go to the government facilities” (sab aurten chayehn who amir hoon ya gareeb, delivery doctor sey hee karwatee hen, dai ka yahan swal he naheen hey han jinko private ke gunjaesh naheen hotee who sarkaree men karwa letee hen). Postpartum: Several participants in rural areas mentioned the availability of the services of the dai for postpartum period. A Dai is mainly sought for check up, conducting oil massage and prescribing medicine in this period. In Phulji Village, a woman with live birth said: “Only one dai is available and she comes if there is any problem in postpartum period. No other facility is available in our area” (Sirf ek dai hey wo hee aa jatee hey chiley men agar masla ho to, aur koi sahulat naheen hey idhar). Qualitative Formative Research Findings - Dadu Participants mentioned that from Purano Dero, it takes 0.5 hour to reach Phulji Station and 1.5 hours to Dadu City. From Makhdoum Bilawal, Dadu City is at one hour travel distance. From Phulji Village, Phulji Station is 0.5 hour away and Dadu City about 1.5 2 hours. From Mukhi Street, it takes 10-15 mins to reach Dadu City, 3-4 hours to Hyderabad and Jamshoro. Participants from rural areas mentioned that services in the facilities outside the community are good and they are availed according to the need and affordability. Some mentioned that these are used even for normal pregnancy and delivery. Participants from urban area stated that they have almost all the facilities in Dadu City and seek help from other cities like Hyderabad, Jamshoro or Larkana only if a specific complication cannot be managed in Dadu City. The specific reasons mentioned for utilizing the services outside community are: Insufficient facilities within community. A currently pregnant woman from Purano Dero, while describing this reason said: “Only services at Phulji Station are available to us outside community. Several nurses, female and male doctors are available there and most of the women of our area go there as no doctor is available here” (Bus Phulji Station hay, wahan bahut sai nursain, doctornian aur doctor bhi hain, wahin jati hain yahan ki aurtain zyada tar, kyunke yahan to koi doctor hay nahin). It is evident that as no female skilled provider is available in the sampled Phulji area, women are forced to seek help from outside community. All types of facilities are available (all levels of doctors, operation theatre, laboratory, ultrasound, medical stores, etc.). A woman with live birth from Makhdoum Bilawal, while highlighting this reason said: “In Dadu City, about half an hour away from our area, government and private hospitals are present and they have all types of facilities. These hospitals have facilities of laboratories and medical stores and that is why many women go there” (Hamaray ilaqay se dour adhay ghantay kay faslay par Dadu mein sarkari aur private haspatal hain, aur wahan har tarah ki sahulat maujood hay, in haspatal mein laboratory aur medical store ki bhi sahuilat hay, is liyae bahut si aurtain wahan jati hain) Perceived good quality of care. A husband in Makhdoum Bilawal while praising the services of Civil Hospital in Dadu City said: “Treatment is initiated soon after arrival, good care is given, doctors and medicines are available 24-hours that is why women prefer it. We also have confidence in it and everybody goes to Civil Hospital” (Wahan pahonchtay hi ilaj shoro ho jata hay, dekh bhal achi hoti hay, wahan dawaiyon ki sahulat chobees ghantay maujood hay, doctor bhi chobees ghantay maujood hotay hain, is liyae aurtain unhi ko tarjih deiti hain, hum ko bhi un par bahut aitimad hay, Civil Haspatal hi sab jatay hain). Free Services. A father-in-law in Purano Dero mentioned that services outside community are sought, as they are free: “ Dadu City has a government hospital which provides free treatment” (Dadu shehar mein haspatal sarkari hay jahan muft ilaj hota hay). In urban areas, again, the services of Civil Hospital and private clinics of doctors are being utilized as mentioned by participants but mainly for complications. None of the participants mentioned utilizing the services of LHWs in postpartum and a husband in Makhdoum Bilawal commented about them in these words: “There is no benefit of LHW that is why women do not go to them, but they take advice if she comes to home. However, they do not provide any treatment” (Lady health worker sey koi faeda hey hee naheen to aurten un key han jatee bhee nahen hen, han agar who khud ghar par aa jaen to mashwar wagera ley letee hen magar elaj kee sahulat un sey hasal naheen hey). Participants in all areas stated that services outside the community are accessible and these are given in Table 8.5 Table 8.5: Services Available Outside Community for Maternal Care Purano Dero (rural) Private and government facilities at Phulji Station and Dadu City Makhdoum Bilawal (rural) Private and government facilities at Phulji Station and Dadu City Phulji Village (rural) Private and government facilities at Phulji Station and Dadu City Mukhi Street (urban) Public and private facilities in Dadu City, Hyderabad, Jamshoro and Larkana Despite the positive reasons for seeking services outside of their community mentioned by many participants, there were very few others who reported that 16 17 Qualitative Formative Research Findings - Dadu Qualitative Formative Research Findings - Dadu not all people utilize health services outside the community. Two mentioned poverty as the reason for not accessing services outside the community, while two women stated that their husbands do not allow them to go outside the community. mentioned LHW for ANC. The visits to the doctor ranged from fortnightly check up to three visits during a pregnancy. Among family members, 4 out of 8 mentioned that the women had ANC by doctor, while two stated that she was attended to by an LHW during pregnancy. In brief: According to women participants, half (12 out of 24) of them had deliveries conducted by a doctor or in hospital. All (6 out of 6) urban women reported this, while some rural women (6 out of 18) mentioned it. All of these were normal deliveries, however, one woman mentioned that her previous to last delivery was conducted by a Dai, who mismanaged the case and the newborn died. In rural areas, there is a distinct gap between the desired services for pregnancy and delivery and those being obtained. Most of the participants from rural areas perceive that care should be obtained from skilled providers (doctors) during pregnancy and delivery, however; only some are able to utilize them. Health services available to rural women within their community for pregnancy care are mainly by Dai, LHWs and BHUs. The use of LHWs by some for pregnancy care points to the utilization of the formal health system during pregnancy. This could serve as an entry point for strengthening programs designed to improve demand for MNH services. However, LHW services are not actively sought if and when the LHW visits individuals at home they use her for giving advice. Therefore, less than optimal utilization of LHWs is evident Non-availability of female skilled providers in BHU is a hindrance in seeking care from the facility. The dai is the main available provider for deliveries in rural areas and is most commonly utilized. The role of the dai extends from delivery to providing various medical and non-medical types of assistance in the postpartum period. Given this active and important role that the dai plays it is probably important to design interventions that utilize the services of the dai in appropriate ways rather than try to undercut her presence in the community. Participants presented a fairly positive picture related to the availability of services outside their community. This positive picture related both to the various types of services available as well as the quality of care available. The utilization of services outside the community however was restricted to those who can afford these services or in emergency situations. These findings are pertinent for messages that seek to promote local services. 8.3.5 Health seeking from skilled providers during current/last pregnancy, last delivery and last postpartum Participants were asked to report their personal experiences of seeking care beyond the level of dai during pregnancy, delivery and postpartum. A little more than half (13 out of 24) of the women participants reported seeking antenatal care from a doctor or a hospital during current or last pregnancy. This trend is higher in urban area (5 out of 6) as compared to rural areas (8 out of 18). A woman with live birth from Mukhi Street describing the antenatal check ups said: “I go to Dr. Zarina every month for check up, who works in Civil Hospital and also has her private clinic” (Mein doctor Zarina jo sarkari Civil Haspatal mein hoti hay aur us ka private clinic bhi hay, us kay pas har mahinay check up kay liyae jati thi). Many husbands (6 out of 8) reported that their wives visited a doctor, while one 18 A woman with live birth from Purano Dero, while explaining her preference for delivery by skilled provider said: “My delivery was conducted by Dr. Shehar Bano and it happened with ease. Delivery should not be conducted by dai, as doctor can handle if the fetus has breech presentation or gets stuck” (Meri delivery doctor Shehar Bano nay karwai thi aur delivery aasani se ho gait hi, dai se delivery nahi karwani chahiyae kyunke agar baccha ulta ya phansa hota hay tou doctorni sambhal leyti hay). A mother-in-law from Mukhi Street mentioning her preference for skilled providers said: “Dai spoils the case, hence delivery should not be conducted by her”(Dai case kharab kar deti hay, is liyae dai se delivery nahi karani chahiyae). Those who sought services from dai (12 out of 24 women and 2 out of 8 husbands) for delivery, preferred her care for different reasons: They did not have any other health provider in the area They did not have money to pay skilled providers and other expenses involved in delivery outside the community Family members do not like delivery to be conducted outside the home Dai conducts deliveries at home which is logistically convenient Dai is easily accessible 24 hours, while facilities outside community are 1-2 hours away Delivery was expected to be normal Have faith in the dai's competence A currently pregnant woman in Phulji Village while mentioning the reasons for the preference for Dai said: “Dadu City is faraway, it takes 1.5 to 2 hours to reach there and one has to wait for long to get the transport, and also lot of expenses are incurred. The men here do not care much for their wives, hence women get the delivery done at home” (Dadu shehar ka rasta bahut hay, dairh dou ghantay lagtay hain, sawari bhi dair se milti hay aur paisay bhi bahut kharch hotay hain, yahan kay mard apni biwiyon ka khyal bhi nahi rakhtay tou aurtain ghar par delivery karwati hain). A husband in Phulji said: “In our family all deliveries have been conducted by dai, we do not take the woman outside” (Hamaray yahan bachay dai nay paida karwai hain, hum bahar nahi lay kar jatay). None of the women mentioned seeking care in the normal postpartum, and some (9 out of 24) categorically stated that they had a normal postpartum hence there was no need. Only two women mentioned seeking care for complications. In brief: Most women from urban area and some of rural areas are seeking 19 Qualitative Formative Research Findings - Dadu care for ANC from skilled providers (doctors). Contrary to the desire for seeking skilled care during pregnancy, only some women from rural areas were able to obtain it for themselves, and even fewer women were able to obtain it for delivery. Most of the women from urban areas had deliveries by skilled providers. Cultural norms associated with the mobility of women appear to play a role in seeking care outside the community with skilled providers. Very few sought care from skilled providers for normal postpartum Qualitative Formative Research Findings - Dadu of the woman” (Aurat nay munasib khoorak nahi khai ya kam karnay mein kami nahi ki, ya araam nahi kya tou us ki zindagi ko khatra hota hay, Khoon ki kami aur kamzoori aurat ki maut ka sabab ban sakti hay). Delivery: Only two women and some husbands (3 out of 8) said that they do not know of any life threatening complications during delivery. Other participants mentioned 1 to 3 signs, and the most common was prolonged labor followed by bleeding as seen in Table 8.7. Table 8.7: Knowledge of Life Threatening Conditions During Delivery Among Different Groups of Participants 8.3.6 Knowledge about maternal life threatening complications Conditions Pregnancy: About 1 to 4 life threatening conditions were identified by almost all participants, as two husbands and 1 family member did not mention any. Bleeding was the most commonly mentioned sign as evident from Table 8.6 Table 8.6: Knowledge of Life Threatening Conditions During Pregnancy Among Different Groups of Participants Conditions Bleeding Weakness Deficiency of blood Abdominal Pain High/Low Blood Pressure Headache Swelling of hands and feet Bursting of water bag Fever Fits Death of Fetus Giddiness Insufficient diet Swelling of face Jaundice Diabetes Fear Stress Asthma Don’t know Woman (24) Husbands (8) Family Members (8) Total Participants (40) 14 10 6 6 6 2 3 4 4 4 0 2 0 0 0 0 0 0 1 0 2 2 1 0 0 0 0 0 0 0 2 0 2 0 1 0 1 1 0 2 5 0 2 2 1 3 2 0 0 0 1 0 0 1 0 1 0 0 0 1 21 12 9 8 7 5 5 4 4 4 3 2 2 1 1 1 1 1 1 3 A woman in Mukhi Street while describing life threatening conditions in pregnancy said: “A woman's life is in danger if she is bleeding heavily, has weakness, is discharging water (from vagina), has high blood pressure”(Khoon zyada aa raha ho, kamzoori ho rahi ho, pani aai, blood pressure ho to aurat ki jan ko khatra ho sakta hay). Prolonged Labor Bleeding Malpositioning of fetus High Blood Pressure Early bursting of water bag Delivery of placenta before fetus Retained Placenta Foul smelling discharge Dead fetus Deficiency of blood Fits Don’t know Woman (24) Husbands (8) Family Members (8) Total Participants (40) 21 12 5 2 2 2 3 3 0 1 0 0 4 7 3 0 1 0 28 22 8 3 3 2 1 0 0 0 1 2 0 1 2 1 0 3 1 1 0 0 0 2 2 2 1 1 5 A currently pregnant woman in Purano Dero said “The woman can die if the placenta comes out first, bleeding does not stop or the fetus gets stuck” (Agar anwal pehlay bahar a jay ya khoon band na ho, ya bacha phans jay to aurat mar sakti hai). A husband in Phulji Village said: “The woman's life is in danger if she bleeds heavily during delivery, for example 3 bottles (those that come from blood bank). If the fetus does not come out or dies in womb, then it is also a dangerous sign” (Zichgi kay waqt aurat ko agar khoon zyada aay to to us ki zindagi ko khatra hota hai andazay say bahar ho to wo zyada hota hai, andazan 3 botlain khoon ki ( blood bank wali). Bacha pait say bahar na aay ya wanhi pait main mar jay to yai bhi khatarnaak ilamat hai aurat ki zindagi kay liay). Postpartum: The predominant conditions mentioned by majority of participants were fever and bleeding. Women and family members mentioned 1-3 conditions, while husbands stated 1-2 conditions. Again, some (3 out of 8) husbands did not mention any life threatening complications. The details are given in Table 8.8 A husband, also from Mukhi Street, said: “The woman's life could be in danger if she has not maintained a proper diet or has not reduced the workload or does not take rest. Deficiency of blood and weakness could lead to the death 20 21 Qualitative Formative Research Findings - Dadu Table 8.8: Knowledge of Life Threatening Conditions During Postpartum Among Different Groups of Participants Conditions Fever Bleeding Body ache Abdominal Pain Jaundice Fits Weakness Swelling of genital tract Don’t know Woman (24) Husbands (8) Family Members (8) Total Participants (40) 16 14 4 3 0 1 0 0 0 0 2 0 0 1 1 0 1 3 4 3 1 0 2 1 2 1 0 20 19 5 3 3 3 2 2 3 Qualitative Formative Research Findings - Dadu A currently pregnant woman from Phulji Village said: “It is evident that family member will take me to a hospital in Dadu City if my conditions worsens” (Agar meri tabiyat bahut kharab ho jai gi tou zahir hay ghar walay haspatal lay kar jain gay Dadu shaher mein). Only 5 participants mentioned seeking care from a dai during an emergency and all of them were from rural areas. A husband in Phulji Village said: “We call dai and if she cannot handle and advise, then we take the woman to hospital or BHU” (dai ko bulwatay hain wo dekhti hay, agar us se baat barhi hoti hay to wo kehti hay to lay jatay hain haspatal ya BHU). In brief: A woman with live birth in Mukhi Street while explaining life threatening conditions said: “It is life threatening if a woman has fever of 101/102, or continuous bleeding more than half a cup per day”(Agar aurat ko bokhar ho 101/102 to yeh khatarnak hota hay, aur agar khoon band nahi ho raha hay, bahut zyada aa raha hay, rozana aadhay cup se zyada, tou aurat ki jan ko jhatra ho sakta hay). A husband in Purano Dero while admitting his ignorance said: “ Life and death is in the hands of God, I do not know what happens, the women must be know these things ”(Zindigi aur maot khuda kay hath mein hay, ab kya hota hay mujhey pata nahi, aurat ko hi pata ho ga). In emergency help is reportedly mainly sought from the doctors/hospital and it is important to note that doctor, not necessarily hospital is the first choice for many participants. Though a significant number of participants are seeking care from the skilled providers in emergency and are mentioning that they take the woman immediately on recognition of the complication but it is hard to infer that at what stage a complication is considered to be serious enough to take the woman to the doctor/hospital. Given the limited knowledge of danger signs and discussions by participants suggest that any decision in this regard is likely to be delayed. It could be concluded that: Knowledge of life threatening obstetric complications is limited Though varied signs were mentioned by participants, the knowledge of individual participants was low. Bleeding is the predominantly recognized sign for pregnancy, prolonged labor and bleeding for delivery, and fever and bleeding for postpartum. Postpartum appears to be a often neglected area. On the one hand fewer participants reported the need for skilled care during the postpartum and at the same time fewer life threatening conditions were mentioned for this period. There is some evidence of fatalism whereby life and death are considered to be based on the “Will of God” hence undercutting the desire and need to learn more about life threatening complications and efforts to combat these. 8.3.7 Actions taken during obstetric emergency Most of the participants (22 out of 24 women, 5 out of 8 husbands and 7 out of 8 family members mentioned that the woman is taken to a doctor/hospital for an obstetric complication. While some women (9 out of 24) categorically stated that the women is taken to the hospital for emergency during delivery. 22 8.3.8 Assistance of husbands, family members, health care providers and community in emergency situations Husband: All women stated that the husband plays an important role in emergency situations. Most (21 out of 24) stated that this assistance is given by taking the woman to the health facility, while half mentioned arranging money and some (10 out of 24) said that he arranges for transport. Rarely mentioned assistance was moral support (2 women) and praying (2 women). The assistance described by husbands in descending order were arrangement of money (6 out of 8), taking her to the health facility (4 out of 8), arrangement of transport (3 out of 8), arrangement of blood (2), and moral support (1 out of 8). One husband mentioned that he has no role and said: “The woman handles any problem or complication that arises herself and she herself finds the solution, we do not have to do anything” (Jab paraishani ya paicheedgi hoti hay to aurat us se khud nibat leiti hay aur us ka hul bhi wo khood hi nikal leiti hay, hamain kuch nahi karna parta hay). Family members mentioned that husband provides assistance by taking her to the facility (6 out of 8), arranging money (6 out of 8), arrangement of transport 23 Qualitative Formative Research Findings - Dadu (2 out of 8), moral support (1). Family Members: Several women mentioned that family members can accompany her to the health facility (14 out of 24) and pray for her (13 out of 24). Few stated that they can take her to the service provider (6 out of 24), arrange transport (5 out of 24) and money (5 out of 24). Very Few opined (3 out of 24) that moral support can be provided by the family members in this situation. One woman mentioned that they can bring medicines. Qualitative Formative Research Findings - Dadu 8.3.9 Conclusions There is more positive maternal health seeking behavior in urban area as compared to rural areas, both at home and health services level. The fact that several of the participants pointed to the role of the community as a whole in arranging for finances bodes well for the establishment of community financial and other schemes. Several (5 out of 8) husbands mentioned that family members take care of the woman; some stated that they give moral support (3 out of 8); and one mentioned that they can accompany to the hospital. The issue of moral support at the family and community level is an important one as it identifies an important albeit intangible role that can be carried out at a level beyond the spousal dyad. Family members, while describing their own role stated that they can accompany the woman (3 out of 8), pray for her (3 out of 8), look after her (2 out of 8), inform husband (2 out of 8). One each mentioned that they can bring dai at home or arrange transport. The lack of clear understanding of the overall and comprehensive responsibilities of health care providers bears consideration. Specific interventions are needed to establish their roles and responsibilities and communicate the same to both the providers and the beneficiaries. Health Care Providers: Most women (19 out of 24), husbands (7 out of 8) and family members (7 out of 8) mentioned provision of better care by health care providers through good medicines and treatment, as their assistance. Very few (6 out of 40) said that they could give good guidance about warning signs and the place to seek care from in case of complication. One family member expressed that health care providers give no assistance at all and they are only interested in their fee. The Table 8.9 summarizes the findings under theme 8.3 Community: Several of the women participants (13 out of 24) stated that members of the community can provide monetary assistance. Some said that they can assist in arranging for transport (8 out of 24), while few mentioned that they accompany the woman to the facility (6 out of 8) and pray for her (5 out of 24). Very few also mentioned that they can provide moral support (4 out of 24). In rare instances women said that they can advise about the doctor (2 out of 8) or arrange blood (1 out of 24). Arrangement of money was mentioned by many husbands (6 out of 8) and several of the family members (5 out of 8) as the assistance from community people. Several husbands (5 out of 8) and half of the family members thought that community can assist in an obstetric emergency through arrangement of transport. Some husbands (3 out of 8) and one family member mentioned arrangement of blood in case it is needed. One husband thought that community people can accompany the woman to the service provider. Few of the women, husbands (2 out of 8) and one family member said that no assistance is provided by the community. On specific questioning, 5 cases of obstetric emergencies were recalled by the participants from the rural areas and 1 from the urban area. In 5 of these (4 rural and 1 urban), assistance was provided by the community in the form of arrangement of money and transport, and accompanying the woman to the hospital. 24 Table 8.9: Key Facilitating and Hindering Factors for Seeking Maternal Health Care Facilitating Factors Hindering Factors Early recognition of pregnancy Unmet need for family planning methods Sharing of the news with the husband and family members Lack of knowledge about proper diet Effort to improve diet of pregnant women Reliance on traditional beliefs about “gas producing” and “difficult to digest” foods Decreasing workload of pregnant women Desire to seek ANC Faith in LHWs for ANC Effort to seek care from skill provider Decreased intake of some foodstuffs during pregnancy Low levels of access to TT as well as low perceived importance of TT Reliance on dai for delivery Recommendations Link Maternal health with the Family Planning Program MNH program should include a nutrition component based on National Curriculum for Nutrition Focus on TT Maternal health needs to be contextualized in terms of pregnancy, delivery and postpartum care. At this time the postpartum aspect is often neglected Build on the positive desire of seeking skilled care during pregnancy and delivery to extend it for postpartum care 25 Qualitative Formative Research Findings - Dadu Free services in some facilities outside the community Perceived quality of care Evidence of community support Lack of focus on postpartum care Limited availability of skilled providers within community Non availability of 24-hour skilled care in rural areas Limited knowledge about warning signs of obstetric complications Apparent delay in decision making to seek medical care (D1) Inadequate transport arrangements or non availability (D2) Improve knowledge about obstetric life threatening conditions Incorporate dais in the program effectively by defining their responsibilities and educating the community people about their role Focus on designating roles and responsibilities at family and community level in obstetric emergencies Explore the possibility of harnessing community for establishing financial schemes 8.4 Current Health Seeking Behavior for Newborns and the Key Factors that Facilitate or Hinder these Health Seeking Practices 8.4.1 Perception of required health services for newborn Participants identified only three required services, while the other actions mentioned were home measures that are dealt in the next subsection. These services are: Vaccination, which was mentioned by 28 participants that included 23 women, 1 husband and 4 family members. A currently pregnant woman from Makhdoum Bilawal emphasizing these two measures for newborn said: “The newborn should be well fed, meaning that mothers milk should be given and get vaccinations done” (Bacchay ko acha khilain pilain, yani ma ka doodh pilana chahiyae, aur haspatal se hifazati teekay zaroor lagwana chahiyae). Seeking medical care from doctor for any illness was mentioned by 17 participants (10 women, 3 husbands and 4 family members) Very few participants (1 woman and 3 husbands) stated a need for check up by a doctor of an apparently normal newborn. 26 Qualitative Formative Research Findings - Dadu 8.4.2 Availability of services for newborn and their utilization In all rural areas, the services of LHWs and BHUs are available, while the participants of urban area also had access to Civil Hospital, and private clinics. The services available to the people in the sampled areas are mentioned in Table 8.10 Table 8.10: Services Available in the Community for Newborn Care Purano Dero (rural) LHW BHU Makhdoum Bilawal (rural) LHW BHU Phulji Village (rural) LHW BHU Mukhi Street (urban) LHW Private Clinics Civil Hospital LHWs appear to be somewhat active in all the four sampled areas, as only 1-2 participants in each area mentioned some service provided by them, which included vaccinations, polio drops, advice for the care of the newborn and treatment of minor illnesses. A husband in Makhdoum Bilawal while describing the services of LHWs said: In our area, no service is available for the newborn except LHW. She gives polio drops and vaccinates them, besides this, there is no other benefit from them.(Hamaray ilaqay mein nai paida honay walay bacchay kay liyae siwai LHW kay koi sahulat maujood nahi hay, LHW bacchon ko hifazati teekay lagati hay, polio kay qatray bhi pilati hay, is kay alawa un se aur kisi cheez ka faida nahi hay). It appears that the LHWs are playing some role for neonatal health, which needs to be enhanced. BHUs are being utilized for treatment of newborn illnesses in all the three areas. Private Clinics are being utilized for treatment of newborn illnesses in urban area. Participants from all rural areas mentioned that services outside their community are accessible to them, however, in Phulji Village it was expressed that these services are faraway and expensive, hence only used by few people. Two participants from Purano Dero also mentioned that seeking healthcare from outside the community is expensive and only those who can afford it avail these services. The services identified in each area are given Table 8.11 Table 8.11: Services Available Outside Community for Newborn Care Purano Dero (rural) Private and government facilities at Phulji Station and Dadu City Makhdoum Bilawal (rural) Private and government facilities at Dadu City and Phulji Station Phulji Village (rural) Private and government facilities at Phulji Station and Dadu City Mukhi Street (urban) Dadu City 27 Qualitative Formative Research Findings - Dadu Qualitative Formative Research Findings - Dadu The reasons mentioned for seeking care from outside the community: women, 3 out of 8 husbands and 7 out of 8 family members). inadequate services in their community. Keeping the newborn clean was stated by 23 participants (14 women, 4 husbands and 5 family members). poor quality of care in the BHUs located in the community. A mother8 Protection from extreme weather conditions was suggested by 19 in-law in Makhdoum Bilawal said: “We have government hospital (BHU) participants (12 women, 4 husbands and 3 family members). but it is useless (to go there), they just turn us back without anything or just check for fever and give tablets which have no effect. Importance Do not leave the newborn alone was mentioned by 7 participants (6 should be given to the newborn (Sarkari Haspatal hay magar wahan koi women and 1 family member) faida nahi hay, aisay hi tarkhatay hain ya bus bokhar dekh kar golian day deitay hain unka faida bhi nahi hota, chillay kay bacchay ko tou ahmiyat deni chahiyae). non availability of medicines in the BHUs. A father-in-law in Phulji Village said: “There is one government hospital (BHU) in Phulji village that has one doctor but the medicines are available irregularly”(Phulji gaon mein aik sarkari haspatal hay, us mein aik doctor hay, wahan bhi dawain kabhi hoti hain tou kabhi nahi hotein). all types of facilities are available outside, including child specialists. A currently pregnant woman from Mukhi Street commenting about facilities outside the community said: “Several hospitals are there where child specialist are available. Women take the newborn there as all facilities are available such as ultrasound, blood and urine test, and children's wards” (Bahut saray baray hospitals hain jahan bacchon kay doctor baithtay hain, aurtain wahan lay jati hain, kyunkay har sahulat maujood hay, jaisay ultrasound, khoon aur paishab test, aur bacchon kay wards). Giving gripe water 2-3 times daily was stated by 6 participants (4 husbands and 2 family members), while honey and home remedies, each were mentioned by 5 participants. Five participants (3 women and 2 family members) stated, “do not let the newborn cry” Three women participants suggested massage of the newborn A currently pregnant woman in Makhdoum Bilawal while describing steps to ensure health of the newborn said: We will protect the newborn from cold in winter and from heat in summer, give vaccinations, advise giving mothers' milk and also for oil massage daily after bath” (Sardi mein sardi se bachain gay, garmi mein garmi se bachain gay, aur teekay lagwain gay, ma ka doodh pilanay ko kahain gay, aur roz nehla kar tail ki malish karain gay). A husband from Mukhi Street while emphasizing breastfeeding as a measure to ensure heath said: “To keep the newborn healthy it is important to breastfeed, (as) mothers milk has lot of strength” (Bacchay ko sehatmand good quality of care is provided by facilities outside the community. A rakhnay kay liyae us ko ma ka doodh pilana bahut zaroori hay, ma kay doodh husband in Makhdoum Bilawal said: “We prefer Dadu as the doctors there are mein bahut taqat hoti hay). experienced and expert and treatment by them gives immediate and immense relief” (Hum Dadu ko hi tarjhi daitay hain kyunkay wahan kay doctor 8.4.4 Knowledge About Life Threatening Conditions in hazrat tajrabakar aur mahir hain, jinsay ilaj karwanay se bacchay ko bahut aur Newborn jald faida hota hay). Discussing personal experiences, several women (15 out of 24) and many husbands (6 out of 8) reported that they have sought health services for the newborn from a doctor. Most of them (14 women and 4 husbands) visited a doctor for seeking treatment of an illness. The problems for which health care was sought from the doctors for the newborn included fever, flu, cough, pneumonia, diarrhea, bleeding from umbilical cord, boils. Several participants mentioned 1 to 4 conditions that could threaten the life of newborn. Some of the participants (16 out of 40) did not mention any life threatening condition in newborn (however, there appears to be an interviewer error and it seems the discussion on this topic was missed as 10 out of 12 women with live birth did not mention any condition). Predominantly stated were high-grade fever and pneumonia/difficult breathing. The conditions mentioned are given in Table 8.12. 8.4.3 Steps to ensure the health of the newborn Almost all participants, except one family member, mentioned a few specific steps to ensure the health of the newborn. These were: Breastfeeding, which was mentioned by 33 participants (23 out of 24 8. Several village people refer to Basic Health Unit as Hospital 28 29 Qualitative Formative Research Findings - Dadu Table 8.12: Knowledge of Life Threatening Conditions of Newborn Among Different Groups of Participants Conditions Fever Pneumonia/difficult breathing Diarrhea Improper feeding Meningitis Cough Abdominal pain Infected cord Excessive crying Pain in ear Vomiting Turning Blue Measles Fits Weakness Not mentioned/Don’t know Woman (24) Husbands (8) Family Members (8) Total Participants (40) 6 7 4 1 4 2 14 10 3 1 0 1 1 1 2 1 1 1 1 1 1 12 3 1 2 1 0 0 0 0 0 0 0 0 0 2 2 1 0 0 1 1 0 0 0 0 0 0 0 0 8 3 2 2 2 2 2 1 1 1 1 1 1 14 A husband in Purano Dero while describing life threatening conditions said: “The newborn's life is threatened if s/he gets high fever or meningitis”(Bacchay ko Agarbokhar ho jai, tez ya gardan tor bokhar, tou us ki zindagi ko khatra hay). A currently pregnant woman in Mukhi Street said: “A newborn could die if not treated for abdominal or ear pain, or difficulty in breathing such as due to cold or pneumonia” (Agar bacchay ko pait mein kan mein dard ho ya chati band ho jai, jaisey zukam pneumonia, aur us ka ilaj na kya jai tou wo mar sakta hay). Despite the error in recording information, it can be concluded that the knowledge of life threatening conditions is limited among all groups of participants. Even the two major killer diseases i.e. diarrhea and pneumonia were mentioned by half or less than half of the currently pregnant women, husbands and family members and other important warning signs were either rarely mentioned or not mentioned. Qualitative Formative Research Findings - Dadu Among husbands, several (5 out of 8) mentioned that in such a situation the newborn is taken to a doctor or hospital, while one mentioned consulting LHW. One husband from Mukhi Street stated that home remedies will be tried: “It is necessary that the newborn is treated with home remedies instead of medicines, as s/he cannot tolerate strong medicines” (Bacchay kay liyae zaroori hay kay us ko dawaiyun se ilaj karwanay kay bajai us ko gharelo totkay say hi theek kya jai, kyunkay baccha bardasht nahi kar sakta dawaiyon ki taizee). One husband from Purano Dero expressed his ignorance and said: “What can I say, I don't know anything, and what is done at that time, how would I know” (Mein kya bataon, aik to mujhey kuch pata nahi hay, phir us waqt kya kartay hain, mujhey kya maloom). Many family members (6 out of 8) also stated that the newborn is taken to a doctor or hospital in case of such an emergency, except two who did not mention any action. Only two cases of newborn emergency were recalled by the women participants, and in one case assistance was provided by the community. This was in form of arranging transport and accompanying the family to the hospital. 8.4.6 Conclusion The only required health service for a normal newborn identified by several participants was vaccination to prevent from several diseases. Home care measures were advocated as steps to ensure the health of the newborn and many mentioned breastfeeding, several suggested keeping the newborn clean, while almost half emphasized protection from extremes of weather. But the knowledge about life threatening conditions is limited, among all groups of participants and some did not mention taking the newborn to doctor or hospital even in emergency. The key facilitating and hindering factors in seeking health care for newborn are summarized in Table 8.13. Table 8.13: Key Facilitating and Hindering Factors in Health Seeking Behaviors for Newborn 8.4.5 Actions taken for threat to life of Newborn Facilitating Factors Several (14 out of 24) women participants mentioned that they prefer to take the newborn to a doctor or hospital in life threatening situation (however, nothing was mentioned by 9 women with live birth again and one currently pregnant woman, again indicating some interviewer error). A currently pregnant woman describing actions said: “(We will) get the newborn examined by the doctor, (and) call the doctor home as newborn is not taken out of the house in the initial 3-4 days; and still if there is no improvement then the newborn is taken to the doctor in Phulji Station hospital” (Usey doctor ko dekhain gay, ghar latay hain kyunkay bacchay ko shoru kay teen char din ghar se bahar nahi nikaltay, agar phir bhi theek na ho to phir Phulji lay jatay hain haspatal walay doctor kay pas) 30 Positive attitudes for seeking vaccinations Desire to seek treatment from skilled providers Seeking of treatment from skilled provider on appearance of symptoms by several Hindering Factors Recommendations Belief that child should not be taken out of home for first 40 days, and by few for 3-4 days Provide basic information on care necessary for a neonate immediately after birth and also in the first 40 days Lack of knowledge for check up from skilled provider immediately after birth 31 Qualitative Formative Research Findings - Dadu Accessible services outside community Reliance on formal health care system in the form of the LHWs by some Low knowledge about life threatening conditions of newborn Limited availability of skilled providers in rural areas Non availability of 24-hour skilled care in rural areas Provide information about warning signs in newborn Enhance the role of LHWs in neonatal care Work on improving the services of BHUs Less than optimal service utilization of BHUs Misconceptions about medicines and reliance on home remedies Qualitative Formative Research Findings - Dadu Those who had engaged in spousal communication mentioned that the issues discussed included amount of money required, place where delivery should take place, where to go in case of complications, who will accompany the woman, transportation arrangements, who will give blood and moral support. As evident from the above sentences of the participants, some preparations for birth and complication readiness are taking place in this district. Almost all participants (23 out of 24 women, 7 out of 8 husbands and 7 out of 8 family members) mentioned money arrangements as the primary preparation. The amount was mentioned by 7 women, 4 husbands and 1 family member and it ranged from Rs. 1500 to Rs. 35,000, with most mentioning from Rs. 5000 to Rs. 15,000. This indicates that the amount being collected is enough to meet the expenses of delivery by a skilled provider or take care of complications. Some participants mentioned that higher amounts are arranged if it is known earlier that the delivery will have to be conducted in a hospital. 8.5 Current Birth Preparedness and Complications Readiness Behaviors and the Key Facilitating or Hindering Factors A currently pregnant woman in Mukhi Street stated: “We have collected Rs. 30,000 to 35,000 as suddenly something could go wrong, hence, my husband has arranged money so that he does not have to ask anyone” (Hum logon ne tees se paintees hazar rupay ikhatay kiyae hain, pata nahi kay achanak koi garbar ho jai tou meray shohar nay paison ka intizam kar rakha hay takay kisey se mangnay na parain). 8.5.1 Preparations made for birth by woman, husband and family members As part of preparation, monetary arrangements are arranged mainly through 9 savings and committee. However, if additional is required in emergency situations, it is collected through selling of livestock and taking out loans. Spousal Communication: A mixed picture is seen about spousal communication and discussions regarding birth preparedness. Several women (16 out of 24) and only some husbands (3 out of 8) mentioned that they discussed issues related to delivery with their spouses. All the women (6 out of 6) from urban area mentioned that they have spousal communication and the 2 husband interviewed in the area also confirmed it. A woman with live birth from Mukhi Street said: “(I) spoke to my husband and he comforted me that there is nothing to worry as, God willing, delivery will happen without any problem. (I) had registered at the hospital and money was arranged beforehand” (Shohar se baat ki thi, us ne tasalli di thi kay paraishani ki koi baat nahi hay, Allah karey ga khairiat se delivery ho jai gi, haspatal mein naam pehlay se likha hua tha, aur rupay pehlay se hi alag kar kay rakhay huay thay). Several women (14 out of 24), some husbands (3 out of 8) and all of the family members reported that necessary clothes and bedding are prepared for the infant and few also mentioned these for the mother. Ten out of 18 rural women mentioned spousal communication while only 1 husband out of 6 from rural area mentioned it. A husband from Purano Dero justifying no spousal discussion on birth preparation said: “Elders are present in our family, hence in their presence we younger members do not discuss anything, whatever is discussed is discussed by them” (Hamaray ghar mein baray maujood hain tou unki maujoodgi mein hum chotay koi baat nahi kartay hain, jo kartay hain baray kartay hain). Nineteen participants, several women (14 out of 24), few husbands (2 out of 8) and some family members (3 out of 8) mentioned antenatal care as a preparation for birth. Most urban women (5 out of 6) mentioned it as compared to half of the rural women. Again, 19 participants, some women (8 out of 24), many husbands (6 out of 8) and several family members (5 out of 8) stated that the decision for the place of delivery is done in advance. Ten of the participants mentioned hospital as the choice, while the remaining 9 mentioned that it was decided that dai will be called at home. A currently pregnant woman in Mukhi Street said: “We have decided beforehand that my delivery will take place in the hospital and have registered (myself with the hospital)” (humne pehlay se tay kar liya hay kay meri delivery hospital mein ho gi aur naam bhi likhwaya hay). Six participants (3 women, 2 husbands and 1 family member) mentioned that in case of anticipated complications, the provider is discussed in advance and 9. Committee: a system of pooling a fixed amount of money every month in a group. Each month the pooled amount is given to a person either by a random draw or to the most in need at that time. 32 33 Qualitative Formative Research Findings - Dadu all of them mentioned doctor/hospital as the choice. Only 6 out 0f 24 women and none of the family members mentioned any arrangements for transportation. On the contrary, several husbands (5 out of 8) mentioned that arrangements for transport are made in advance but the vehicle was not identified. A husband while describing the arrangement said: “Many inform the transporter a day or two before or take his phone number and call him when the need arises” (aksar aik do din pehlay sawari walay ko bata deytay hain ya phir us ka phone number lay letain hain aur jab zaroorat hoti hay tou usay phone kar kay bula laytay hain). Only 5 husband participants mentioned prior discussions about arrangement of blood. These arrangements included identification of donors and also place for purchasing blood. A husband in Mukhi Street said: “(We) make arrangements for the blood also, the person whose group meets with that of the woman is made to stay at the hospital where delivery is taking place” (Khoon kay bandobast ki bhi tyari kartay hain, jis ka khoon aurat kay khoon se milta hay tou us ko us din zichgi ki jagah haspatal mein maujood rakhtay hain). Almost all (22 out of 24) of the women participants mentioned that service providers helped them in preparation for birth or complication readiness by providing good care and advice during pregnancy. The care and advice provided by them included guidance for ANC, diet and rest; medicines for gaining strength; information about date of delivery, warning signs of pregnancy, actions if complications occur and preparing clothes for the infant. Most of these providers were doctors. Two women expressed the opinion that service providers do not provide any help whatsoever. Several husbands (5 out of 8) and many family members (6 out of 8) stated that useful advice is given by doctor. It can be concluded that discussions about BPCR between wife and husband and with other family members is fairly good. The key activities taking place are collection of money, preparation of clothes and bedding for the infant, antenatal care, selection of place of delivery, arrangement of transport, and arrangement of blood. The extent to which such discussions can occur in a systematic and coordinated manner the more successful the BPCR practices among families would be. Qualitative Formative Research Findings - Dadu husbands and many (6 out of 8) family members mentioned money as the major hindering factor in undertaking BPCR practices. However, only some gave examples of desired actions in case they did have the money. These actions included: antenatal care from doctor, arrangement of transport, delivery by doctor or in a hospital and better diet. A currently pregnant woman from Mukhi Street said: “Everybody wants that there daughter-in-law or wife remains safe during pregnancy or delivery. That is why they take her to hospital, feed good food, but the shortage of money hinders these activities” (har koi chahta hay kay unki bahu ya biwi hamal kay doran ya delivery kay waqt mahfooz rahey, issey wajah se haspatal lay kar jatay hain, acha khana khilatain hain, magar paisay ki kami ye sub karnay se roak sakti hay). Only some women (11 out of 24) and half husbands and several family members (5 out of 8) mentioned the non availability of transport in their area, as a major hurdle at the time of delivery and dealing with the maternal or newborn emergency. These were mentioned both by urban and rural participants. A husband from Purano Dero said: “We face hurdles in arranging transport in our area, It is difficult to find the transport on time when the woman has to be taken to the city”(Hamaray ilaqay mein sawari kay bandobast mein rukawat paish aati hay, yahan se agar aurat ko shehar lay jaya jai to barwaqt sawari mushkil se milti hay). Some women participants (7 out of 24) and few family members (2 out of 8) mentioned non availability of the service provider at the facilities as a significant hindrance. A currently pregnant woman from Mukhi Street said: “If the doctor is not available at the place where the woman has registered than the case could get spoiled” (Jahan naam likhwaya hay wahan doctor maujood na ho tou phir case kharaab ho sakta hay). Few women (5 out of 24) and family members (2 out of 8) mentioned that distance from the closest health facility as a hindering factor. Very few women (3 out of 8), few husbands (2 out of 8) and one family member mentioned that arrangement of blood could become a hindrance. Very few women (4 out of 24) mentioned bad roads can also become a hindrance as it becomes difficult to reach to the health provider on time. The money being collected is mostly enough to meet the expenses of delivery by a skilled provider or meet expenditures for complications. Some of this might have to do with the fact that the participants in this specific sample appear to be relatively well off. Very few (3 out of 24) women and one family member referred the noncooperative attitude of husbands and family members as a hurdle in preparation. The help from service providers is sought for a variety of actions and is appreciated. Hence provider related roles and responsibilities can be further clarified and easily strengthened. Rarely mentioned hindrances are living in a nuclear family (2 out of 24 women) and absence of husband at the time of obstetric emergency (2 out of 24 women). One family member also expressed lack of knowledge as a hindering factor. 8.5.2 Hindrances in BPCR Almost all women (22 out of 24), many husbands (6 out of 8) and all family members pointed out hindrances in BPCR. Many women (18 out of 24), half 34 35 Qualitative Formative Research Findings - Dadu 8.5.3 Qualitative Formative Research Findings - Dadu family members and the participants are entertained with the lunch or dinner. Conclusions for BPCR: 10 The key facilitating and hindering factors for BPCR and the recommendations are summarized in Table 8.14 Table 8.14: Key Facilitating and Hindering Factors for BPCR Facilitating Factors Spousal communication as well as discussions with family members about birth preparation. Collection of money for delivery and complications Decision making for place of delivery and attending provider Efforts to make arrangement for transport Support from family members Good care in pregnancy by service providers Hindering Factors Recommendations Not enough money to prepare for BPCR Introduction at home level of specific topics that merit discussion at the spousal level Lack of perception that ANC is part of birth preparation by some Limited skilled female staff in rural areas Distance from the facilities, bad roads and non-availability of transport can cause delay. Non availability of service providers at the facilities Prior arrangements for blood by few Living in nuclear family Absence of husband Lack of knowledge about the required actions for BPCR Introduce innovative messages and materials that address the real and perceived issues related to the lack of money as a hindrance to BPCR Consider schemes related to making transport available at community level Advocacy at the policy level regarding provider staffing at the local level Clarify roles and responsibilities of HCPs and communicate the same to both the providers and beneficiaries 8.6 Religious and Cultural Practices Surrounding Maternal and Neonatal Health 8.6.1 Religious/cultural ceremonies Religious/cultural ceremonies and taboos during pregnancy: Most (21 out of 24) of the women participants (except one) mentioned that no cultural ceremonies are performed during pregnancy. The remaining three mentioned a ceremony named Ghoud Bharayi in the last trimester of the pregnancy. In this ceremony, people are invited; seven different fruit items are put in the lap of the pregnant woman; she is given beautiful, new clothes by her parents or 36 Few (5 out of 24) women stated that they take a vow (Mannat man'na) for safe delivery. For taking vow, they visit a shrine and if the delivery takes place 11 12 safely then a ceremony is held to fulfill the mannat. In this ceremony, Khatum of Holy Quran is held and sweets are distributed among children or send these to Mosque for people. In Phulji Village, a currently pregnant woman said: “The woman take mannat at the place of saints or shrines so that her delivery takes place safely, as due to the influence (of their blessings) she remains normal” (Aurat piroon mazaroon par mannat mantee hey take us kee delivery khariat sey ho jaye kion ke jis mazar ya pir kee mannat mane jatee hey to us pir kee waja sey aurat ka pait theek rehta hey). It should be noted that many are against visiting shrine and saints during pregnancy and in case a woman belonging to this group desire to make a mannat then she sends somebody 13 else in her place. Two women also mentioned the mannat of Das Bibiyan for safe delivery. In this ceremony, for seven Thursdays, a story is recited among the group of women and then on the seventh Thursday, sweets are distributed among the participants. Only two women said that they hold a religious ceremony of “Khatum” in which Holy Quran is read by the Moulvi of the mosque in 7th or 8th month of pregnancy, the Moulvi is asked for praying for the safety of woman and is given money so that he could buy sweets and distribute or keep this money for 14 the upkeep of mosque. Some (10 out of 24) women said that two Surah of the Holy Quran are recited during the period of pregnancy, which are Surah Yasin and Surah Marium for facilitation in delivery or having a normal delivery, and 15 Dum water of these Surah is taken by the women. Few (5 out of 24) of the women said that they recite the Holy Quran and say their prayers regularly during this period for the above stated reasons. In Makhdoum Bilawal, a woman with live birth said: “For nine months, the Holy Quran is read and 16 namaz is offered, and also the water with Dum of Surah Marium is drunk to facilitate delivery and for safety” (Quran Sharif parhtee hey or namaz or Surah Marium ka pane dum kar ke petee hey purey no maheeney tak take delivery men asanee ho or khariate rahey). 17 Two women also mentioned that they recite Durood Sharif and Ayatul kursi during this period. Many (6 out of 8) of the husbands and all of the family members stated that no cultural or religious ceremonies are performed during pregnancy. Two 10. Mannat Man'na: People make a commitment at the shrine that if, by the blessings of the buried saint, their desire is fulfilled then they will make offerings. These offerings vary and could be, for example, feeding 100 people at the shrine or holding celebrations at home. 11. Mannat: Vow 12. Khatum of Holy Quran: A group of people gathers to recite different verses of the Holy Quran and hence read the entire Quran in one sitting. 13. Das Bibiyan: Ten pious women 14. Surah from Quran: Chapters from Quran 15. Dum water: Verses from Holy Quran are read and the breath blown over water in a container, which is then used for drinking. 16. Namaz: Prayer 17. Durood: Recitation of specific holy verses 37 Qualitative Formative Research Findings - Dadu husbands mentioned ceremony of Goud Bharayi (cultural ceremony) and Khatum of the Holy Quran (religious ceremony). None of the husbands and some (3 out of 8) family members pointed out that Surah from the Holy Quran are recited. These included Surah Marium, Surah Yasin, Alhamd sharif, and Names of Allah are also chanted. Among the family members who described various Surah, two said that Surah Marium is recited and Dum water is given to the pregnant woman in her ninth month for facilitation in delivery. Several taboos were mentioned by the participants during the discussions which included persons, places and occasions which pregnant women should strictly avoid. Some (11 out of 24) women pointed out various places that should not be visited during pregnancy, which included shrine, graveyard, walking under trees and deserted places. Some (11 out of 24) women mentioned occasions that a pregnant woman should not attend, and these were funerals and weddings. Very few (3 out of 24) women mentioned 18 19 persons should not be met during pregnancy and these were Pirs and Faqirs. The reason for applying all these inhibitions is that they have bad effect on 20 mother and fetus, could lead to miscarriage, she could be the victim of Saya or overpowered by evil spirits. Few (5 out of 24) women did not carry such beliefs. In Purano Dero, a woman with live birth stated: “Pregnant women is told not to go under a tree and to funerals so that they do not get any bad influence” (Darakht ke neecehy na jaye, mayyat men na jaye, pait walee aurat ko mana kartey hen ke aurat ya bachey ko kuch ho n ajye” A currently pregnant woman in Makhdoum Bilawal said: “Pregnant women are not allowed to go to the houses where death has taken place recently and also not visiting shrines, as it is believed that the fetus dries up in the womb” (Mayat waley gharoon mein hamal ko naheen janey detey or mazaroon par bhee naheen janey detey, kehtey hen ke bacha sookh jata hey, pait ke under). Many (6 out of 8) husbands also mentioned places that should not be visited, which included graveyard, shrines, and where blood of an animal has dropped. Two husbands also mentioned persons that should not be met during this period which included people who have already been over powered by the evil spirits. Three husbands stated that funeral ceremonies should be avoided by pregnant woman. The reasons for these inhibitions were mentioned as over powering of the woman by the evil spirits, miscarriage, weak baby and bad effects on fetus. Only one husband did not mention any such belief. Many (6 out of 8) family members also mentioned the need to avoid the persons listed above, half also mentioned the two occasions stated above and few gave similar responses about the places to be avoided. Around the time of delivery: Few (6 out of 24) women participants mentioned religious practices around the time of delivery while none among them pointed out any cultural ceremony at that time. All of the above women 18. Pir: Saint who have several hundred followers 19. Faqir: A person who is perceived to have given up all worldly things in pursuit of God 20. Saya: effect of evil spirits 38 Qualitative Formative Research Findings - Dadu mentioned Khatum (recitation of Holy Quran by family members or females of the community) of the Holy Quran at the time of taking the woman to the place of delivery. A currently pregnant woman in Mukhi Street stated: “Quran Khwani (recitation of the Holy Quran in a group) should be held in home at the time when woman goes in to labor. Women are called from the neighborhood to recite the Holy Quran and this leads to delivery without difficulty” (Jis waqt aurat delivery ke liye jaye to us waqt ghar men Quran Khwani karwayee jaye, mohaley sey aurtoon ko bulwaya jata hey Quran parheney ke liye to aurat kee delivery bager mushkil ke hotee hey). Only two husbands mentioned any religious practice at the time of delivery, 21 among them, one said they say nafal prayer while the other mentioned Khatum of the Holy Quran. Others did not mention any cultural or religious ceremony at this time. None of the family members mentioned any such ceremony or practice at the time of delivery. In postpartum: Many (17 out of 24) women, some (3 out of 8) family members but none of the husbands said that women in postpartum are not allowed to go outside of the house for a period of 7 to 21 days. Few (6 out of 24) women, some (3 out 8) of the husbands and two of the family members also identified places, occasions and persons that should be avoided by a woman during the postpartum period. These were similar to those mentioned for pregnancy except two husbands who mentioned that the woman in postpartum cannot go to her parents and people having contagious diseases. The reasons for such prohibitions included: she is napak (not clean), could be over powered by evil spirits, could get hawa and fall victim to Saya.22 A husband in Phulji Village while describing these prohibitions said: “It is a tradition among Baloch people that we do not allow the women to visit graveyard during pregnancy or in postpartum so that she may not get affected by any evil spirit; and also not to any saint's shrine so that she or the baby is 23 not affected by jinns. She is also prohibited to go to houses where death has occurred, where people have dangerous diseases that can be contracted” (Hum balochoon men ye rawaj hey ke aurat ko hamal ke waqt ya zichgi ke bad kabrustan men naheen janey detey hen is liye ke aurat par kisi badrooh ka asar na parey or na hee kisee buzurgane din ke mazaroon par janey detey hen ye is liye ke aurat ya bachey par jinnat ka asar na ho, aurat ko aisee jaga janey sey bhee mana kartey hen jahan mayyat ho gayee ho, aisey afrad jink o koi khatarnak bemaree ho gayee ho, lagney walee bemari” 21. Nafal Prayers: Namaz offered at will and not linked to the five daily Namaz which are mandatory. 22. Hawa: Air. Some believed that air drought?? Not sure what air drought means. is not good for women in postpartum and can cause harm. Various harmful effects are perceived such as getting pneumonia or even becoming mad. 23. Jinn: A spirit able to appear in human and animal forms and to posses' humans. Belief in bad effects of Jinn is part of religious faith. Holy Quran confirms their existence and informs the believer that they can give harm to them, which could include ill health 39 Qualitative Formative Research Findings - Dadu In Makhdoum Bilawal, a mother-in-law said: “A woman in postpartum is not allowed to go out of the house for 21 days either for any reason be it as happy or sad event or her illness. Doctor is called at home but she is not allowed to go” (Chiley walee aurat ko bilkul naheen nikleney detey 21 din tak chahey khushi ho ya ghume ya bemare ho jaey, doctor ko ghar bulawa letey hen magar baher naheen janey detey). Almost all women (23 out of 24), all husbands and family members mentioned the cultural ceremony of “Chatti” in postpartum period. Mostly this ceremony is held either on 6th or 7th day of the birth. In this ceremony, relatives and neighbors are invited for a feast in which a name is given to the newborn; newborn and mother wear new clothes; the newborn is given a gold ring or a black thread (to ward off evil eye); singing, drum beating and dancing is held; rice is cooked in large quantity mixed with the meat of a slaughtered goat and sweets (or sweet rice) are distributed. Several (27 out of 40) of the participants said that such ceremony is celebrated more on the birth of a male child instead of a girl child. Few (8 out of 40) said that no such difference is made while celebrating the birth of a male or female child while the rest (5 out of 40) did not mention anything in this regard. In Purano Dero, a currently pregnant woman said: “What celebration is to be done for a girl child, nobody feels happy on having a girl, as God gives us so we have to accept her” (bus larkion sey kia khushi karnee, wasey bhee yahan ke logoon ka pait bhara hota hey larkion sey (yanee yahan larkion par bilkul khushi naheen hotee) bus Allah dey dey to lenee partee hey). In summary, while there are few reported cultural and religious practices the recitation of specific verses from Holy Quran that correspond to specific times during the pregnancy and delivery appear to be popular. It is apparent that the delivery is given importance as Khatum is being arranged especially at that time. Women are also encouraged to avoid certain people, places and occasions, some of which has important program connotations. This underscores the need for using mass media where available and/or relying on individual interpersonal communication through the grass root workers who visits home, especially LHWs, as women are restricted to move out during postpartum. 8.6.2 Preferred and forbidden food items for breastfeeding mothers Qualitative Formative Research Findings - Dadu Table 8.15: Preferred Foods for Mothers During Postpartum Foods Number of Participants Who Specified Different Preferred Foods 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 30 Milk Ghee Fruit Meat Fish Roti Chicken Vegetable Lassi 24 Pulses Rice Dry Fruit Among forbidden foods, women participants mainly mentioned difficult to digest food items like channay ki daal, beef, potato, chickpeas, cauliflower, spinach and guava and badi foods (cauliflower, pulses, lady finger, potato). Very few women mentioned red chilies not to be taken by the breast feeding 25 woman followed by rarely mentioned items including garam foods, cold foods, sour items, rice and stale food. Most of the above stated items are believed to cause abdominal pain to the newborn that is being breastfed, could cause diarrhea or lead to the newborn falling ill. Among husbands, two mentioned badi food including cauliflower and brinjal while among others, two said that fried items should be avoided by breast feeding woman, one mentioned rice and another red chilies. Half of the husbands did not know of any such prohibitions and did not mention any such items. Some (3 out of 8) family members mentioned hard to digest food items including potato, cauliflower, channay ki daal, peas and spinach to be avoided by the breast-feeding woman because they could cause abdominal pain in her and the newborn. One said that eating red chilies could lead to jaundice. Others did not mention any such food items. The collective information given by all participants is given in Table 8.16. Milk was the predominant preferred food for mothers among participants, followed by desi ghee, fruit, meat, fish, roti, chicken and vegetables. Other items were also mentioned but rarely. The details are given in Table 8.15 24. Lassi: yoghurt based drink 25. Cold foods: foods that are believed to have cold effects in the body 40 41 Qualitative Formative Research Findings - Dadu Table 8.16: Forbidden Foods for Mothers During Postpartum Food Number of Participants Who Specified Different Forbidden Foods 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 Cauliflower Potato Pulses Red Chillies Beef Fried items Rice Brinjal Peas Lady finger Spinach Radish Guava Cold items Stale food 8.6.3 Precautions taken during postpartum to ensure safety of mother and newborn Several precautions were mentioned by the participants and they are mentioned in Table 8.17 and 8.18 Qualitative Formative Research Findings - Dadu murghi ke shorbey men aslee ghee daal kar roti choori kar ke khilatey hen, garam dhoodh pilatey hein). A husband in Phulji Village said: “During postpartum, the woman is not allowed to work, (and) care is taken of her diet and rest so that she may not face any problem. In feeds, she is given soft and strength giving items, besides, dai is called everyday for oil massage on abdomen, while the newborn is massaged with kneaded flour and olive oil by the mother or any other elderly woman of the house. Besides this the newborn is kept warm by wrapping him/her in warm cloth, and the mother and newborn are prohibited from going out for 40 days” (waqt mein aurat ko kam karney sey mana kartey hen, us kee khorak or araam ka khayal rakhtey hen ta ke aurat ko koi takleef na ho, khorak men aurat ko naram or taqt walee cheezen khilatey hen, is ke ilawa dai ko har roz bulwatey hen, who aurat ko tail sey massage kartee hey pait par, jab ke bachey ko ma ya ghar kee koi baree atey ko gondh kar us men sarsoon ka tail mila key malish kee jatee hey, is ke ilawa bachey ko garam rakhney ke liye usey kisi garam kaprey men lapaita jata hey, ma or bachey par chalees din tak ghar sey baher nikalney par pabandee hey). Table 8.18: Precautions Taken To Ensure Safety of Newborn Precautions during postpartum for safety of newborn Table 8.17: Precautions Taken During Postpartum To Ensure Safety of Mother Women (12) Husbands (8) Family members (8) Total 40 Breastfeeding Do not take outside home (range 7 to 40 days) 13 8 5 4 4 7 22 19 Precautions during postpartum for safety of mother Women (12) Husbands (8) Family members (8) Total 40 Cleanliness Protect from hot & cold Don’t leave alone 11 8 8 1 3 0 2 1 2 13 12 10 Take good diet Do not go out (range 7 to 40 days) Take rest Don’t leave her alone Avoid much work/no work 14 6 6 4 6 5 26 15 Vaccination Place iron stuff with the newborn 2 5 2 0 4 1 8 6 0 0 5 3 0 4 2 2 1 13 10 9 Restriction in meeting a woman with periods 5 8 8 4 3 1 1 5 1 2 0 3 Protect from hot & cold Cleanliness Seek care from doctor in illness Arrangement of separate room 6 4 1 0 0 1 1 2 1 7 6 3 Oil massage (sometimes mixed with flour) Seek care from doctor in illness Tightly wrapped in clothes 0 0 2 2 1 0 0 1 2 0 1 3 Place black mark (til) on the newborn Restriction to meet a woman with periods or is pregnant 1 0 1 2 Massage by dai Take supplements Place iron stuff with her 0 0 1 1 1 0 1 0 0 2 1 1 A currently pregnant woman from Purano Dero stated: “Mother is given good food, for example clarified butter and pieces of roti are put in the chicken curry and fed and warm milk is given to drink” (Ma ko acha khana khilatey hen jasey 42 In Makhdoum Bilawal, a woman with live birth said: “Take care of the cleanliness of newborn, s/he should be immediately placed in a dry place (if becomes wet) by passing urine, mother should breastfeed and get vaccinations done, and should be immediately taken to a doctor, if God forbids, the newborn falls sick” (Bachey kee safayee ka khayal rakhna chaye agar paishab kardey to foran sookhe jaga par letaye, ma apna dhoodh pilaye or teekey lagwaye or bacha agar khuda na khawsta bemar ho jaye to doctor ke pass foran ley kar jana chaye). 43 Qualitative Formative Research Findings - Dadu 8.6.4 Feeding of newborn Almost all (36 out of 40) of the participants mentioned breast milk as the first item of the intake by the newborn while some (3 out of 8) husbands and one 26 family member mentioned “Duka”, a traditional food for the newborn as first 27 intake. Duka is stated to be composed of butter, cardamom, saunf, baree 28 elaichee (another type of cardamom) and ginger. The reason for giving Duka was mentioned as it cleans the stomach, avoids diarrhea and gives strength to 29 the newborn. This is something probably equivalent to “ghutti” as mentioned in other six districts, but it appears to be not a common practice. A currently pregnant woman in Makhdoum Bilawal, describing the first feed said: “Mother's milk is fed as advised by the lady doctor, but if the milk does not flow then other milk is given. There is no tradition of giving honey or ghutti” (Ma ka dhoodh hee pilatey hen, bus lady doctor ney kaha hey, han agar dhoodh na aye to phir ooper ka dhoodh pilatey hen, shehid ya ghutti ka rawaj naheen hey). Two women said that if mother's milk does not flow in time then either goat milk or formula milk is given to the newborn as the first intake. A husband stating the importance of mother's milk said in Mukhi Street: “The newborn is fed mother's milk as it has more energy then anything else” (Bachey ko ma ka dhoodh pilaya jata hey, is men sab cheezoon sey ziada taqt hotee hey). Besides breast milk, very few (5 out of 40) participants said that they give honey to the newborn as first intake because it cleans stomach, keeps the newborn warm and helps prevent flu and fever. Discussing the first feed of mother's milk, most women (20 out of 24), many family members (6 out of 8) and only one husband mentioned that it should be given within the first hour of birth. One each among women, husbands and family members said that it should be given within 2-4 hours. Two women and 2 husbands mentioned that it is given on third day. The main reason given for delayed initiation of breastfeeding is that milk flows from the breast after sometime. One husband and a woman did not give response. A currently pregnant woman in Purano Dero stated: “Mother's milk is fed within an hour and then 4-5 times within 24 hours” (Ghantey ke under pilatey hen ma ka dhoodh or phir 24 ghantoon men 4 sey 5 martaba pilatey hen). Once initiated, the feeding of breast milk has been mentioned frequently by most of the participants. Many (18 out of 24) of the women, family members (6 out of 8) and one of the husbands stated that the newborn should be fed on demand, while very few (4 out of 24) women, many husbands (6 out of 8) and two family members mentioned that feeding should be done 2-5 times a day. The remaining (one woman, one husband) said that it should be done 8-12 times a day. 26. Duka: a traditional food for the newborn as first intake composed of butter, cardamom, saunf, baree elaichee (another type of cardamom) and ginger 27. Saunf: Anis seed 28. Baree elaichee: a type of cardamom 29. Ghutti: mixture given as a ritual first food to newborn and later to soothe the infants 44 Qualitative Formative Research Findings - Dadu In conclusion, the initiation of breastfeeding, feeding of colostrums and feeding patterns are generally good. 8.6.5 Bathing patterns Almost all (23 out of 24) women, all family members and almost all husbands were in favor of giving a bath to the newborn immediately within the first hour after birth. The remaining woman felt that it should be done within 24 hours while one husband did not know about it. In the following days, the frequency of bathing for newborn was mostly stated to be daily by the three groups, especially in summer where very few thought that it should be done on every 2nd or third day. Most (20 out of 24) women and some (3 out of 8) family members were of the opinion that the mother should take her first bath on the sixth or seventh day. Three women and one husband mentioned that it should be within 24 hours. Some husbands (3 out of 8) and two family members mentioned that the woman should take her first bath after 21 days. While two husbands and two family members said that first bath should be taken by her on 8th day or after. Only one women and one family member said that it should be done on 3rd day. One husband even mentioned after 40 days. The frequency of bathing of women in postpartum was mentioned by several (15 out of 24) of the women and half of the family members said that the woman in postpartum then take bath whenever she desires. Few (6 out of 24) women, half of the husbands and some (3 out of 8) family members mentioned daily bath. Two woman said that first bath is taken on 6th day, then on 9th day and then on 11th day. One woman said that bath should be taken 2-3 times in the whole postpartum period while two husbands and one family member mentioned that it should be done twice a week. It is evident that the first bath of the mother is delayed and there is no clear cut patterns associated with frequency of bathing of the mother in the postpartum period. The neonate is often bathed fairly quickly post delivery. Given the worries associated with “cold” things it is possible that appropriate precautions are taken to ensure that an optimal body temperature for the neonate is maintained during the bath. However, what precautions are taken is not clear and merit further review. 8.6.6 Presence and effects of Nazar (evil-eye) Most (35 out of 40) of the participants from the three groups, both from urban and rural areas, believed that nazar exists. Among these participants, many (31 out of 40) said it affects pregnant woman and woman in postpartum while most mentioned (33 out of 40) mentioned nazar affecting the newborn negatively. Pregnant women: Most of the women (21 out of 24), several (5 out of 8) of the husbands and family members expressed that nazar has bad effects. The effect mentioned by all was some kind of illness or the lack of effectiveness of 45 Qualitative Formative Research Findings - Dadu medicines. Variable symptoms were reported that includes lethargy, headache, fever, and body ache. A woman with live birth in Purano Dero stated: “A pregnant women can get evil-eye if she is looking beautiful, then she fells sick, becomes lethargic (and) gets fever” (Nazar lag saktee hey pait walee ko bhee, agar aurat khubsurat lag rahee ho to nazar lag jatee hey to phir bemar ho jatee hey, susti ho jatee hey, bukhar ho jata hey). Women in postpartum: Many (17 out of 24) of the women, several husbands and family members (5 out of 8 each) stated that women could get illnesses as a result of nazar in postpartum. These participants mentioned different symptoms which include headache, fever, weakness, body aches, lethargy and no effects of medicine. A currently pregnant woman in Mukhi Street said: “A woman can get affect of evil-eye in postpartum if she looks healthy, then she will remain sick, headache will start and fever will not go away” (Agar aurat chiley men sehat mand lagey gee to usey nazar lag saktee hey, phir bemar rahey gee, sar men dard shoro ho jaye ga, bukhar naheen jaye ga). Newborn: All of the women (24 out of 24), half of the husbands and several family members (5 out of 8) believed that the newborn could be affected by the evil-eye. They said the newborn falls sick because of nazar. The symptoms mentioned were: newborn cries a lot, stops taking milk and becomes weak. Measures to protect mother and newborn from Nazar: The measures mentioned to protect mother and newborn from nazar are: 30 Putting tawiz in neck 31 Putting til mostly behind the ears, cheeks or neck The mother and newborn should not be left alone Placing a black thread in the neck Mother should avoid non-family members Keep a knife or iron item in the bed Recite Surah Yasin Measures to overcome Nazar in mothers and newborn: Some specific measures to overcome the effects of nazar were mentioned by all groups of participants: 32 Qualitative Formative Research Findings - Dadu and is later thrown out Money or chicken is rotated over the head of the affected and is given to a deserving or needy person Dum of Surah Yasin recited by mother-in-law 8.6.6 Conclusion Some cultural beliefs and practices have positive effects on health, others have negative effects, while some have neither. The Table 8.19 gives a summary. Table 8.19: Positive and Negative Cultural Practices Positive Practices Negative Practices Recommendations Surah of the Holy Quran is recited during pregnancy and delivery for gaining Allah's blessings. Hence give psychological comfort and strength Preferential treatment for male child Focus on nutrition as an intervention Early initiation of breastfeeding Milk is given to breastfeeding mothers and efforts to give good diet to mother during pregnancy and postpartum Forbidding mothers from healthy foods during pregnancy and postpartum The importance of giving newborn colostrums should be stressed Breastfeeding the infant, early initiation and frequent feeding Restricting the mother and newborn from going outside of the house during postpartum Might consider addressing preference for male children as an overarching social norm Protecting mother and newborn from the severity of weather Delayed and infrequent bathing of the mother in the postpartum Optimal and appropriate bathing patterns for mothers need to be promoted and established Restricting mother from undertaking heavy work Symptoms in mother like lethargy, headache, fever, body ache, etc are related to Nazar . This could lead to delayed medical intervention Work on highlighting that measures to overcome nazar should simultaneously be carried out with medical interventions 33 Dum from Moulvi Tawiz for the neck Collect soil from the path traversed by the person who inflicted nazar and burn it in fire Treat the affected with smoke of red chilies or salt Thread tied around a cup full of milk is burned. If the thread burns then it is believed that person is effected by nazar A thread is obtained from the one who inflicted nazar, this thread is taken to the Moulvi for dum and later it is worn by the woman or newborn Using Dum water Putting black mark A glass of water is rotated clock wise and anti clock wise for seven times Regular bathing of the newborn 30. Tawiz: amulet 31. Til: a black mark 32. Dum: verses from Holy Quran are read and then the breath air is blown over the individual or water, which is then used for drinking 33. Moulvi: Imam of the mosque 46 47