headliner - Brain Injury Alliance of Oregon
Transcription
headliner - Brain Injury Alliance of Oregon
the HEADLINER Summer 2011 Vol. XIII Issue 3 The Newsletter of the Brain Injury Association of Oregon What’s Inside? Pediatric Brain Injury: Best Practices October 28, 2011, Portland OR Professional Members Page 2-3 The Brain Injury Association of Oregon will present its first Pediatric Brain Injury Conference Board of Directors on October 28, 2011, at the Sheraton Portland Airport Hotel. The bad news is that the number Page 2 of children who sustain brain injuries is The Lawyer’s Desk increasing; the good news is that awareness of Page 4 symptoms and knowledge about treatment and strategies to help children learn effectively is also BIAOR Calendar growing. Join us if you want to learn how to Page 5 diagnose a brain injury, the best practices used in Work Supports teaching students and children with brain injuries Page 6 and talk with professionals working in the field Brain & Spinal Cord about the latest treatments and research. Our Injury Conference keynote speaker, Dr. James C. Chesnutt, MD, Page 7 Medical Director, OHSU Sports Medicine; Pediatric Conference Medical Director, OHSU March Wellness and Fitness Center, will discuss sports concussions. Registration The conference will feature three tracks: Page 9 Returning to School - training educators how to Joey Harringtonhelp students with brain injury; Medical Why Wear a Helmet highlighting recent research and current support Page 10 systems; and Family/Survivor - featuring a survivor/parent panel and training on how to Idaho Update enroll a child in the state support system to obtain Page 12 assistance in meeting his or her future needs. CBIRT Update Page 12 Head injury is a broad term that refers to the vast Fact of the Matter array of injuries to the scalp, skull and brain and Page 15-16 the underlying tissue and blood vessels in the Stem Cell Research head. Injury to the brain could be as mild as a bump or bruise or as severe as a concussion or Page 18 fractured skull. Depending upon the extent of the Family Building trauma, a head injury may be referred to as a Blocks brain injury or traumatic brain injury (TBI). Page 19 and bicycle accidents, sports-related trauma and child abuse • The risk of brain injury varies with the severity of the trauma • Incidents that have a higher risk of brain injury include: • High speed motor vehicle accidents • Falls from great heights • Being hit by a high speed, heavy or sharp object (e.g., baseball bat, golf club, bullet, knife) • Inflicted injury (abuse), such as vigorous shaking, typically causes severe injury • According to two studies published by the American Psychological Association, children who suffer traumatic brain injuries can experience lasting or late-appearing neuropsychological problems, emphasizing the need for careful monitoring over time. In the United States, trauma is a leading cause of death in children older than one year, and 80% or more of those deaths are the result of head trauma. Approximately 5% of head trauma cases result in death at the accident site. Head trauma produces high emotional, psychosocial and economic consequences because these patients often have comparatively long hospital stays, and 5-10% of them require discharge to a long-term care facility. • • Anger Management Facts you should know: • Head injury is common in children and Page 21-21 adolescents 9th Annual • Head injuries occur twice as frequently in Conference online males than in females CME’s • Studies indicate that head injuries are more Page 18 common in spring and summer months when • children are most active outdoors riding bikes, Books to Order skateboarding and engaging in other activities Page 23 • Head injuries are most common in the late • Resources afternoon to early evening and on weekends Page 24-25 • Falls are the most common cause of minor head injuries among children and adolescents, • Support Groups followed by motor vehicle crashes, pedestrian Page 26-27 The Headliner Summer 2011 Data reported by studies conducted in trauma centers provide evidence that head injury represents 75-97% of pediatric trauma deaths Short-term memory problems and delayed response times (neurologic deficits) are reported in 10-20% of children with moderate-to-severe head injury (GCS of 6-8), especially if the child is in a coma longer than three weeks, and permanent neurologic deficits are experienced among more than half of children with GCS of 35 Black adolescent boys account for most of the firearms-related central nervous system injuries in the pediatric population Males are twice as likely to sustain head injuries as females, and their risk of incurring a fatal trauma is four times that of females The distribution of head trauma is relatively (Pediatric Conference Continued on page 8) page 1 Brain Injury Association of Oregon Board of Directors Tootie Smith/President…………..…......Molalla Chuck McGilvary, Vice Pres..…..Central Point Carol Altman, Secretary/Treasurer….Hillsboro Curtis Brown…………….….…...…….Cheshire Coleen Carney, RN…………….……..Portland Paul Cordo, PhD ……….......……...…Portland Cheryl Coon, JD ……………………...Portland Rep. Vic Gilliam …….…...…………...Silverton Tony Marx ………………..……………...Salem Ralph Wiser, JD………..……….Lake Oswego Advisory Board Kristin Custer, QLI…………….….Omaha, NE Wayne Eklund, RN,……………………..Salem Danielle Erb, MD..............….........…...Portland Dr. Herbert Gross ………….……….. California Andrea Karl, MD …….…….…....….Clackamas Dave Kracke, JD.………….….....……Portland Amy Ream, MD..………..….………....Portland Aleyna Reed, PsyD …………...………...Keiser Col. Daniel Thompson…………....……..Salem Bruce Wojciechowski, OD…….......Clackamas Staff Sherry Stock, MS CBIST Executive Director Jeri Cohen, JD Associate Director When looking for a professional, look for someone who knows and understands brain injuries. The following are supporting professional members of BIAOR. Attorneys Oregon Bend † Dwyer Williams Potter Attorney’s LLC, Bend, 541-617-0555 www.RoyDwyer.com John Warren West, Law Offices of John Warren West, Bend, 541-382-1955 Eugene Area Thomas Cary, Cary Wing Edmunson, PC, Eugene, 541-485-0203 WC Don Corson, Corson & Johnson Law Firm, Eugene, 541-484-2525 Charles Duncan, Eugene, 800-347-4269 † Derek Johnson, Johnson, Clifton, Larson & Schaller, P.C., Eugene 541 484-2434 Tina Stupasky, Jensen, Elmore & Stupasky, PC, Eugene, 541-342-1141, Sisters, 541-549-1617 Portland Area William Berkshire, Portland 503-233-6507 PI Mark Bocci, Portland, 503-607-0222 Brain Injury Association of Oregon ‡ John Coletti, Paulson Coletti, Portland, 503.226.6361 PO Box 549 www.paulsoncoletti.com Molalla, Oregon 97038-0549 ‡ Cheryl Coon, Swanson, Thomas & Coon, Portland, 503-228-5222 www.stc-law.com 503-740-3155 • Fax: 503-961-8730 Toll Free in Oregon 1-800-544-5243 James Coon, Swanson, Thomas & Coon, Portland, 503-228-5222 Website: www.biaoregon.org Tom D'Amore, D'Amore & Associates, Portland 503-222Email: [email protected] 6333 501 (c)(3): Fed. ID 93-0900797 ¥ Lori Deveny, Portland, PI 503-225-0440 Headliner DEADLINES Wm. Keith Dozier, Portland 503-594-0333 Issue Deadline Publication † R. Brendan Dummigan, Portland 503-223-7770 Spring April 15 May 1 Chris Frost, Swanson, Thomas & Coon, Portland, Summer July 15 August 1 503-228-5222 Fall October 15 November 1 Peggy Foraker, Portland 503-232-3753 Winter January 15 February 1 Sam Friedenberg, Nay & Friedenberyg, 503-245-0894 € Bill Gaylord, Gaylord Eyerman Bradley,PC, Portland Editor: Sherry Stock, 503-740-3155 503-222-3526 Co-Editors: Jeri Cohen, David Krake Timothy Grabe, Portland, 503-282-5223 Email: [email protected] James R. Jennings, PC, Gresham 503-669-3406 Advertising in Headliner David Kracke, Nichols & Associates, Portland 503-224-3018 Rate Schedule Issue Annual/4 Sharon Maynard, Bennett, Hartman, Morris & Kaplan, Issues Portland 503-227-4600, SSI/SSD A: Business Card $100 $ 350 Jeff Merrick, Lake Oswego 503-665-4234 Jeffrey Mutnick, Portland 503 595-1033 B: 1/4 Page $200 $ 700 Robert Neuberger, Portland 503-228-1221 PI C: 1/2 Page $300 $ 1,000 Cynthia Newton, Swanson, Thomas & Coon, Portland, 503-228-5222 PI/Medical Malpractice D: Full Page $600 $ 2,000 Craig Allen Nichols, Nichols & Associates, Portland 503-224-3018 Advertising on BIAOR Website: Stephen Piucci, Piucci & Dozier, Portland 503-228-7385 $10,000 for Banner on every page Charles Robinowitz, Portland, 503-226-1464 $5000/year for Home Page $250 for active link Pro.Members page € Richard A. Sly, Portland 503-224-0436, SSI/SSD/PI Steve Smucker, Portland 503-224-5077 Ray Thomas, Swanson, Thomas & Coon, Portland, Policy The material in this newsletter is provided for 503-228-5222 education and information purposes only. The ¥ Tichenor& Dziuba Law Offices, Portland 503-224-3333, Brain Injury Association of Oregon does not Uffelman, John, Adams & Uffleman LLP, Beaverton, support, endorse or recommend any method, 503-644-2146 treatment, facility, product or firm mentioned in this Richard Vangelisti, Vangelisti Law Offices PC, Portland newsletter. Always seek medical, legal or other 503-595-4131 professional advice as appropriate. We invite contributions and comments Ralph Wiser III, Wiser & Associates, Inc., Lake Oswego 503 620-5577, PI & SSI/SSD regarding brain injury matters and articles included Lawrence Wobbrock, Portland, 503-228-6600 Salem Area Vance Day, Adams, Day & Hill, Salem, 503 399-2667 Daniel Hill, Adams, Day & Hill, Salem, 503-399-2667 Roseburg Samuel Hornreich, Roseburg, 541-677-7102 Washington Seattle Richard Adler, Adler Giersch, Seattle, WA 206.682.0300 Kevin Coluccio, Stritmatter Kessler Whelan Coluccio, Seattle, WA 206-448-1777 CareGiver & Support Services Micki Carrier, Caregiver Connection, Portland, 503-246-4672 Cy Osborne, Pegasus Social Services, an Oregon Home Care Services Co, Portland, 503.380.4443 Che Walker, PCL Service-Res & Emp Support, Monmouth, 503400-8565 Care Facilities/TBI Housing (subacute, community based, inpatient, outpatient, nursing care, supervised-living, behavior, coma management, driver evaluation, hearing impairment, visual impairment, counseling, pediatric) Carol Altman, Homeward Bound, Hillsboro 503-640-0818 Ann Swader Angvick, Uhlhorn Program, Eugene, 541 345-4244 Ashland View Manor-WestWind Enhanced Care, Dan Gregory, Medford, 541-857-0700 Linda Beasley, LPN CBIS, Autumn House, Beaverton, 503-941-5908 Karen Campbell, Highland Height Home Care, Inc, Gresham & Portland, 971-227-4350 or 503-618-0089 £ Casa Colina Centers for Rehabilitation, Pomona, CA, 800-926-5462 Melissa Taber, Long Term Care TBI Coordinator, DHS, State of Oregon 503-947-5169 Kampfe Management Services, Pam Griffith, Portland, 503-788-3266 Learning Services, Northern CA & CO, 888-419-9955 Joana Olaru, Alpine House, Beaverton, 503-646-9068 † Oregon Rehabilitation Center, Sacred Heart Medical Center, Director: Katie Vendrsco, 541-228-2396 Quality Living Inc (QLI), Kristin Custer, Nebraska, 402-573-3777 † Ridgeview Assisted Living Facility, Jolene Hermant, Medford, 541-779-2208 Fabiola Ruiz, All Season’s Care, Salem, 503-588-7470 † Sharon Slaughter, Windsor Place, Inc., Salem, 503-581-0393 Wally & Donna Walsh, Delta Foundation/Snohomish Chalet, Snohomish, WA 360-568-2168 Chiropractic Thomas Kelly, DC, Chiropractic Neurologist, Kelly Chiropractic, PS, Vancouver, WA, 360-882-0767 Garreth MacDonald, DC, Eugene, 541-343-4343 Lawrence Nelson, Wilsonville, 503-722-7733 Bradley Pfeiffer, Bend 541-383-4585 Robert Pfeiffer, DC, DABCO, Pendleton 541-276-2550 George Siegfried, DCPC, Dunn Chiropractic, McMinnville/ Portland 503-977-0055 Cognitive Rehabilitation Centers/ Rehab Therapists/ Specialists Jane Conboy, certified TAT Trainer, Portland 503-703-3703 † Gentiva Rehab Without Walls, Mountlake Terrace, WA 425-672 -9219 local contact: Local Contact: Lisa Stember, MS CCCSLP 503-250-0685 in The Headliner. page 2 Summer 2011 The Headliner † Progressive Rehabilitation Associates—BIRC, Portland, 503-292-0765 Lynne Williams, Lynne Williams Cognitive Rehab. Therapy, Central Point 541-655-5925 Counseling Legislators Vic Gilliam, Representative, 503-986-1418 Long Term TBI Rehab /Day Program’s/Support Programs Carol Altman, Bridges to Independence Day Program, Sharon Evers, Face in the Mirror Counseling, Art Portland/Hillsboro, 503-640-0818 Therapy, Lake Oswego 503-201-0337 £ ElderHealth Northwest, Patti Dahlman, Seattle WA Donald W. Ford, MA, LMFT, LPC, Portland, 503-297206-467-7033 2413 Medical Litigation Funding Joyce Kerley (503) 281-4682 Dr. Ihan Rodriguez, Co-Funder, Medical Funding Kate Robinson, MA, CRC, Portland, 503-318-5878 Consultants, LLC, 407-448-8988 Dentists Medical Professionals Dr. Nicklis C. Simpson, Adult Dental Care LLC, Gerry Aster, RN, MS, South Pasadena CA, 541-896-3001 Gleneden Beach 541-764-3113 Dan Thompson, DMD, Lake Oswego 503-675-6776 Diana Barron, MD, Brownsville, (541) 451-6930 clinic Marie Ekkert, RN/CRRN, Legacy HealthCare, Portland, 503-413-7918 Educators/Researchers Kristin Lougee, CBIS, 503-860-8215-cell Diana Allen, Linn Benton Lincoln ESD, Albany Carol Marusich, OD, Neuro-optometrist, Lifetime Eye Paul Cordo, PhD, Senior Researcher, OHSU, Care, Eugene, 541-342-3100 503-223-3442 Aleyna Reed, RN, PsyD, Nurse Practitioner, Salem, 503Sandra Crews, Southern Oregon ESD, Medford, 508-8118 541-776-8555 † Kayle Sandberg-Lewis, LMT,MA, Neurofeedback, Laurie Ehlhardt Powell, CBIRT, Eugene, 541-346Portland, 503-234-2733 0572 Sharon Stapleton, RN, BSN, CCRN, Retired Portland Penny Jordan, TBI Team Liaison, Portland, Dorothy Strasser, VA Medical Center, Rehab, Portland, 503-260-4958 503-285-6356 ± McKay Moore-Sohlberg, University of Oregon, Bruce Wojciechowski, OD, Clackamas, NeuroEugene 541-346-2586 optometrist, Northwest EyeCare Professionals, Lisa Myers, Portland Community College 503-657-0321 Expert Testimony Janet Mott, PhD, CRC, CCM, CLCP, Life Care Physicians Planner, Loss of Earning Capacity Evaluator, 425- Sharon Anderson, MD, West Linn 503-650-1363 778-3707 Bryan Andresen, Rehabilitation Medicine Associates of Eugene-Springfield, 541-683-4242 Financial Services Kayla Aalberg Eklund, Structured Settlement Broker, Eilis Boudreau MD, Neurologist, OHSU Portland Jeffrey Brown, MD, Neurology, Portland 503-282-0943 Oregon, 503-869-6518 James Chesnutt, MD, OHSU, Portland 503-503-494-4000 Life Care Planners/Case Manager/Social Workers Janice Cockrell MD, Pediatric Development & Gerry Aster, RN, MS, Nurse Case Manager, Vida, Rehabilitation-Emanuel Children’s Hospital, Portland 541-896-3001 503-413-4418 Priscilla Atkin, Providence Medford Medical Center, Maurice Collada, Jr, MD, PC, Neurosurgeon, 503-581-5517 Medford, 541.732.5676 Danielle L. Erb, M.D., Brain Injury Rehabilitation Center, Rebecca Bellerive, Rebecca Bellerive, RN, Inc, Portland 503 296-0918 Gig Harbor WA 253-649-0314 John French, MD, Salem Rehabilitation Associates, Salem Coleen Carney, RN, Carney Smith & Associates, 503-561-5976 Beaverton 503-680-2355 Wayne Eklund, Wayne Eklund RN CNLCP Salem M. Sean Green, MD, Neurology, OHSU Steve Janselewitz, MD, Legacy Emanuel, Pediatric 888-300-5206 Physiatrist, 503-413-4505 Michele Lorenz, BSN, MPH, CCM, CHPN, CLCP, Andrea Karl, MD, Director, Center for Polytrauma Care Lorenz & Associates, Medford, 541-538-9401 Unit, Portland, VA Hospital 1-800-949-1004 x 34029 Vince Morrison, MSW, PC, Astoria, 503-325-8438 503-220-8262 x 34029 Simon B. Paquette, LICSW, LCSW, Vancouver WA Michael Koester, MD, Slocum Center, Eugene, 360 903-4385 541-359-5936 Thomas Weiford, Weiford Case Management & ± Oregon Rehabilitation Medicine, P.C., Portland, Consultation, Voc Rehab Planning, Portland 503-230-2833 503-245-5494 Francisco Soldevilla, MD, Neurosurgeon, Northwest Karen Yates, Yates Nursing Consulting, Wilsonville, Neurosurgical Associates, Tualatin, 503-885-8845 503-580-8422 Thomas P. Welch, MD, Psychiatry, Portland Legal Assistance/Advocacy/Non-Profit 503-292-4382 Brain Injury Support Community, Pat Murray, ED, Gil Winkelman, ND, MS, Alternative Medicine, 503-224-9069 Neurobiofeedback, Counseling, Portland, 503-501-5001 £ Deborah Crawley, ED, Brain Injury Association of Psychologists/ Neuropsychologists Washington, 253-238-6085 or 877-824-1766 Tom Boyd, PhD, Sacred Heart Medical Center, Eugene £ Disability Rights Oregon, Portland, 503-243-2081 541-686-6355 Independent Living Resources (ILR), Portland, James E. Bryan, PhD, Portland 503.284.8558 503-232-7411 ThinkFirst Oregon, (503) 494-7801 *Caleb Burns, Portland Psychology Clinic, Portland, 503-288-4558 Patricia S. Camplair, Ph. D., OHSU Dept of Neurology, Portland, 503-827-5135 Elaine Greif, PhD, Portland 503-260-7275 Jacek Haciak, PsyD, Oregon State Hospital, Salem, 503-945-2800 Nancy Holmes, PsyD, CBIS, Portland 503-235-2466 Sharon M Labs PhD, Portland 503-224-3393 Ruth Leibowitz, PhD, Salem Rehab, 503-814-1203 Michael Leland, Psy.D, CRC, Director, NW Occupational Medicine Center, Inc., Portland, 503-684-7246 Will Levin, PhD, Eugene, 541-302-1892 Kate Morris, PhD, Salem Rehab Hospital, Salem Wendy Newton, PsyD, Portland, 503.869.9092 Margaret Sutko, PhD, Pediatrics, Portland, 503-413-2880 Jennifer Simon-Thomas, PhD CBIS, Kalispell, MT 406-253-7745 Speech and Language Channa Beckman, Harbor Speech Pathology, WA 253-549-7780 John E. Holing, Glide 541-440-8688 ± Jan Johnson, Community Rehab Services of Oregon, Inc., Eugene, 541-342-1980 Sandra Knapp, SLP, David Douglas School District Rik Lemoncello, Ph.D., CCC-SLP, PSU, Portland Linda Lorig, Springfield, 541-726-5444 Anne Parrott, Legacy Emanuel Hospital Warren 503-397-6431 State of Oregon Dave Cooley, Oregon Department of Veterans Affairs, Salem, Technology/Assistive Devices Second Step, David Dubats, Eugene, 877-299-STEP Video/Filming NuVideo Productions, LLC, specializing in “day of the life” films Bend, 541-312-8398 Vocational Rehabilitation/Rehabilitation/Workers Comp † Marty Johnson, Community Rehab Services of Oregon, Inc., Eugene, 541-342-1980 ‡ Paula Fitch, Oregon Completive Employment Project, Salem 503-947-5469 www.win-oregon.com Bruce McLean, Vocational Resource Consultants, Ashland, 541-482-8888 † SAIF, Salem Kadie Wellington, OVRS, Salem, 503-378-3607 Patrons/Professional Members Carol Berger, Talent OR Laurie Burke, TN Bruce Buchanan William Griffiths, West Linn Debby Hessick, Aloha Linda Longstreet, Bend Craig Ness, Wasilla Alaska ± Bill Olson, Salem Meg Rawlings & Russ Rudometkin, Medford Charlene Sparlin, Roseburg Lynnette & Don Zimmer,, Canby Names in bold are BIAOR Board members † Corporate Member ‡ Gold Member € Silver Member ± Bronze Member ¥ Sustaining Member £ Non-Profit ∆ Platinum * Support Group Facilitator p. 26-27 To become a supporting professional member of BIAOR see page 23 or contact BIAOR, [email protected]. The Headliner Summer 2011 page 3 The Lawyer’s Desk: A Look at TBI Legal Representation By David Kracke, Attorney at Law Nichols & Associates, Portland, Oregon Due to some recent tragic bike/ automobile collisions, bikes and bike helmets have been in the news lately and as a result certain perspectives are being vocalized both for and against helmet use by bicyclists. As if I need to state my position after this many years of writing this column, not to mention being an active supporter of the Brain Injury Association of Oregon, I encourage anyone who rides a bike to wear a helmet whenever and wherever they do so. No surprise there. regarding bike helmet use. It is entitled “Joey Harrington Crash in Portland Shows Benefit of Wearing Bike Helmets, but Some Riders Aren’t Persuaded.” Rose writes that “On July 31, no one was paying the 33-year-old former quarterback millions to wear his bike helmet. No league required it. It was just sensible, grownup – something role models do. And it might have saved his life.” wear a helmet and includes the following statements: Firstly, I am not anti-helmet. I don’t hate people who wear helmets, or think they are stupid, or childish. I think many of them make a perfectly rational decision to wear a helmet at least some of the time they are on a bike, and I believe that is their free choice, and I trust them to make a decision based on their own set of circumstances, as I would expect them to do for me. Rose cites data from the Insurance Institute for Highway Safety which shows that 10,998 bike riders were killed on the One of the most widely reported nation’s roads between 1994 and 2008, incidents involved one of our local sports and that a whopping 93% of those stars. When ex-Oregon Duck deceased riders were not wearing quarterback Joey Harrington stepped helmets. He also quotes Harrington’s onto the gridiron for any game, he always OHSU trauma surgeon, Dr. John (Helmets) are unlikely to substantially did so with a helmet strapped to his Mayberry, who states that “I’m certain that help in an impact with a car, especially head, a requirement in any competitive he would have been brought in here with since you are then more likely to have football league. On July 31, 2011, severe head injuries” if Harrington had not multiple impacts (with the car, and then Harrington made a similar decision when been wearing his helmet. the ground, for instance). Because of he jumped on his bike and began his ride this, I don’t feel the need to wear a which eventually had him riding up SE Rose explains how he, Joseph Rose, helmet to protect my head in case of a Foster Road where he was hit by a crashed his bike in college, without a collision with an automobile, as, given negligent motorist. Harrington ended up helmet, while riding his bike at high the forces involved, even if I were to hit in the hospital with serious injuries, but speeds, and that he lost consciousness, my head, it seems to me that the helmet he credits wearing his helmet with saving bled and lost part of his memory for would be unlikely to make a significant his life. several hours. It is this personal difference. In the case I were to get hit experience, at least in part, that led Rose by a car, I am at least as likely to suffer Other recent stories can be found where to support helmet use for all bike riders. from broken bones, internal injuries, and riders have also credited their helmets (Lawyer’s Desk Continued on page 5) This experience caused him to “decide” to with saving their lives. Unfortunately, support helmet other stories are available where the use for bike rider who was not wearing a helmet died riders. But if you of head trauma. think this is how everyone has In my household, I take these stories as “decided” with an opportunity to discuss the benefits of regard to the wearing a helmet with my young issue of helmet daughters. It is a parental duty, I feel, to use you’d be give them information that I hope leads to dead wrong. their better decision making, and with the hope that they will incorporate this Mr. Rose’s article Dr. Siegfried, Chiropractor information into their own decisions when directed readers Nasal Specific treatment has helped they are adults. to the Portlandize thousands of brain injured patients since blog of “local bike And it is the word “decide” (as in what activist Dave 1945. Dr. Siegfried has been using this “decision” did the cyclist make with Feucht” who technique over 30 years. regard to helmet use) that has caused a posted a blog minor controversy among Portland’s entry entitled cycling community. “Why I don’t Wear a Helmet.” On August 12, 2011 an Oregonian Mr. Feucht writes www.siegfriedchiropractic.com Portland 503-977-0055 reporter named Joseph Rose wrote an about his McMinnville 503-472-6550 article, or almost an opinion piece, decision not to Traumatic Brain Injury New Treatment Approach FREE CONSULATION page 4 Summer 2011 The Headliner 2011-12 BIAOR Calendar of Events (Lawyers Desk Continued from page 4) lacerations over my body anyway. For updated information, please go to www.biaoregon.org Call the office with any questions or requests A helmet only does any good if you crash, go down hard, and hit your head. I think a big part of the decision for me is that, yes, a helmet will probably reduce your overall likelihood of injury – but the likelihood of any kind of major injury (speaking with regard to my own personal case specifically) is so small in the first place, it doesn’t make that much difference. It would be like wearing a helmet while walking up and down stairs. Will it reduce your chances of a head injury, if you fall down the stairs? Almost certainly. What are the chances of you falling down the stairs and hitting your head hard enough to give yourself a major head injury? Not all that high. Low enough that most of us choose not to wear a helmet while climbing or descending stairs. It does happen, yes. But it is not risky enough to be worth taking precautions, over and above paying attention to where you are walking. So, I’ve kind of come to an “eh, whatever” stance regarding helmets. I would rather just not talk about them at all, to be honest. Anyway, all I’m trying to say here, is inform yourself, and then make a decision based on what you are comfortable with. October 28, 2011 1st Annual Pacific Northwest Pediatric Brain Injury Conference Sheraton Portland Airport Hotel Call for Presenters: www.biaoregon.org/presentationsPeds.htm or online at: October 27, 2011 CBIS Training– to Register call Sherry 800-544-5243 Must be pre-registered & paid to attend www.biaoregon.org/CBIS-Training.htm March 1-3, Annual Pacific Northwest Regional 2012 Conference 2012: Living with Brain & Spinal Cord Injury and Disease: Striving for Excellence Call for Presenters & Posters: www.biaoregon.org/posters.htm Hotel Registration online at http://www.starwoodmeeting.com/Book/BIAOR I have informed myself, as Mr. Feucht suggests, but my conclusions are almost opposite of his. I do not have an “eh, whatever” stance regarding helmets probably because I know too well the devastating effects of a traumatic brain injury and the effectiveness of helmets in preventing those injuries. While I hope that I won’t fall from my bike and hit my head (again), I won’t assume that I never will. When I place this information on the imaginary scale in my mind, it falls to the side of being better safe than sorry, especially when the “sorry” part of the scale is living with, or dying from a TBI. And after what happened to him on Foster Road, I have a strong suspicion that Joey Harrington would agree with me on this point as well. A clear conscience is a sure sign of a bad memory. — Unknown David Kracke is an attorney with the law firm of Nichols & Associates in Portland. Nichols & Associates has been representing brain injured individuals for over twenty two years. Mr. Kracke is available for consultation at (503) 224-3018. Fabiola Ruiz — All Seasons Care, LLC — 940 Fairview Ave SE Salem, OR 97302 (503) 588-7470 JENSEN, ELMORE & STUPASKY, P.C. A T T O R N E Y S A T L A W DAVID JENSEN, OF COUNSEL [email protected] Caring for People in “All Seasons” of Life. The Headliner EUGENE OFFICE SISTERS OFFICE 199 EAST FIFTH AVE., SUITE 24 EUGENE, OREGON 97401 (541) 342-1141 220 N. PINE • P.O. BOX 1408 SISTERS, OREGON 97759-1408 (541) 549-1617 Summer 2011 page 5 Work Supports: An Overview By Michele Mejia An acquired or traumatic brain injury often changes a person's ability to work or may affect the type of job he or she can perform, but it does not have to make gainful employment impossible. Many people who have brain injuries successfully return to work after their injury with the use of work supports. "Work supports" refers to a variety of strategies or modifications incorporated into the workplace that assist a person with a disability to remain successfully employed. Just as no two employees with disabilities are exactly alike, work supports are individualized to fit the specific needs of each employee, the job setting, and the required tasks. Depending on the needs of the employee, work supports may be incorporated into the daily routine, occur periodically, or be used only during the initial training period. Work supports can take many forms and typically involve input from the employee, the vocational counselor, and the employer. One of the most commonly used work supports is job coaching, which refers to a rehabilitation service provider being at the worksite to guide, train, or assist the disabled employee. A job coach may work with the employee continuously, or may gradually fade back and maintain periodic contact with the employee and employer as needed. In addition, job coaches provide advice and feedback to vocational specialists and employers. Other examples of work supports include (but are not limited to) task restructuring, modifications of the physical environment, adaptive technology, written or recorded instructions, or work schedule adjustments. In some work settings, other employees can also be trained to provide certain types of support to their disabled coworker. Implementing work supports is part of the vocational rehabilitation (VR) process, which begins with a thorough assessment by a rehabilitation counselor of each client’s individual vocational strengths, skills, interests, and functional limitations. When the counselor and client have identified an appropriate job goal, they determine what type of work supports may be needed during the job placement process. A frequent challenge for people who have head injuries is coping with the “invisible” disabilities that often accompany a head injury. These include a variety of cognitive impairments that can have a significant effect on their performance, but are not readily apparent to other people. In these situations, face-toface contact between a 1450 Standard Plaza placement specialist, the 1100 SW Sixth Ave employee, and the Portland, OR 97204 worksite supervisor 1-888-883-1576 before the job begins or as soon as problems www.tdinjurylaw.com arise can greatly increase the chances of Protecting success. Prior consultation allows the the Rights placement specialist to explain the need for job of the modifications and how Injured they will assist in job performance. Personal Injury Practice Areas: Brain Injury Accidents Automobile Accidents Maritime Accidents Construction Accidents Trucking Accidents Medical Malpractice Wrongful Death page 6 Dangerous Premises Defective Products Bicycle Accidents Motorcycle Accidents Sexual Harassment/Abuse Aviation Accidents Legal Malpractice In addition, an advocate is beneficial when a head-injured person may not be able to articulate his or her needs or request appropriate Summer 2011 accommodations. Without support from a placement specialist or job coach, an employee who initially appears to be “normal” can be seen as unmotivated, unorganized, or uncooperative, and run a greater risk of being fired. Two examples of worksite supports include the following: A man named “James” who experienced a great deal of fatigue in the morning due to the side effects of his medication didn’t think he was employable. A placement specialist located a suitable job where the manager agreed to adjust James’ schedule so that he started later in the morning and stayed a little later in the afternoon. In this way, he could manage the medication side effects and perform his job duties adequately. Another young woman named “Carrie” was able to maintain her employment at a kennel through task restructuring. After her employer reported that Carrie was forgetting portions of her job, which included cleaning kennels and restocking supplies, a placement specialist recommended restructuring Carrie’s job so that she focused most of her time on cleaning kennels. Reducing the number of steps Carrie needed to recall as she worked accommodated her memory limitations, and because she was doing more of the cleaning, another employee had time to stock the shelves. Work supports are often paid for initially by the state VR agency as a part of the employment plan. If supports are needed on an ongoing basis, they can continue through a funding source such as a Social Security "Impairment Related Work Expense." Private or other community-based funding sources may also be available. Veterans may be able to receive funding for work supports through the Veterans' Administration VR program. Work supports are an integral part of vocational rehabilitation plans and allow people with disabilities to retain employment. More information about work supports and various vocational programs is also available online. Michele Mejia’s background is in vocational rehabilitation, [email protected] The Headliner The 10th Annual Pacific Northwest Regional Conference 2012: Living with Brain & Spinal Cord Injury and Disease: Striving for Excellence March 1-3, 2012 Traumatic Brain Injury (TBI) is a major cause of death and disability globally and is considered to be a serious public health problem. In the US, an estimated 1.7 million people sustain TBI’s every year, and over 30 percent of all reported injury-related deaths list TBI as a contributing factor. Moreover, mild TBI is the most common combatrelated injury and along with spinal cord injury (SCI). TBI accounts for nearly 25 percent of combat casualties. Every year, thousands of Americans sustain SCIs. These injuries can be devastating, causing physical and emotional distress, as well as lost wages. The following statistics give an overall picture of SCI in the United States. About 12,000 new cases of SCI occur each year, excluding people who die from a SCI before reaching the hospital. It is estimated that approximately 259,000 people in the U.S. living with a SCI, but this number could be as high as 306,000 or as low as 229,000. Average age at time of injury: 40.2 years. The average age of injury has increased steadily since the 1970s, do in part because the median age in the U.S. has risen over this period. Injury percentage by gender: 80.9 % males. Most SCIs occur in males; experts believe this is due in part to the fact that males are more likely to engage in risk-taking behavior. Treatment of TBI, and especially acute TBI, continues to represent a major unmet medical need. Therapies that proven to limit the damage done to the brain and improve clinical outcomes of patients of TBI will have a major impact on the global pharmaceutical market. Although past clinical trials for new therapies have ended in failure, there is indeed renewed interest in this field. With recent initiatives from both the US Congress and Department of Defense to improve treatment options for TBI patients, the time has come for a rethink the potential for pharmaceutical management of this condition. This conference has grown to be a relied upon avenue for individuals with brain injury seeking information about research, health and emerging treatment techniques. We are now adding SCI to our focus. Each year, conference coordinators strive to invite speakers who are experts in their fields to share their knowledge and expertise with our consumers. The 2012 BIAOR conference planning committee is developing an integrated educational program that promises to be of interest to researchers, clinicians, administrators and other brain and spinal cord injury professionals. The conference will be a three-day, multi-track event that will cover a wide range of brain injury topics including medical best practices, rehabilitation, research, life-long living, pediatrics and advocacy. This year, BIAOR is pleased to present a full-day pre-conference addressing Cognitive Rehabilitation as well as special sessions on Blast Injury. Also, ACBIS certification training will be offered onsite. As the agenda for this year’s conference takes shape, we are excited about the speakers and topics being offered. In addition to our speakers, we will once again provide opportunities for you to meet area vendors and community organizations who will be present during the conference. If you are a vendor or local non-profit community organization and would like to exhibit at this conference please, contact Sherry Stock at 800-544-5243. For more information see: www.biaoregon.org The Brain Injury Association of Oregon can deliver a range of trainings for your organization. These include: • CBIS Training (Certified Brain Injury Specialist) • Brain Injury 101 • Anger Management and TBI • Vocational Rehabilitation-working with clients • Methamphetamine and Brain Injury • ADA Awareness—including cognitive interactive simulation • Judicial and Police: Working with People with Brain Injury • Traumatic Brain Injury: A Guide for Educators • Native People and Brain Injury • Aging and TBI • How Brain Injury Affects Families • Brain Injury for Medical and Legal Professionals-What you need to know Caregiver Training Domestic Violence and TBI Dealing with Behavioral Issues Returning to Work After Brain Injury And more! • • • • For more information contact Sherry Stock, Executive Director, Brain Injury Association of Oregon at [email protected] 503-740-3155 or 800-544-5243 The Headliner Summer 2011 page 7 (Pediatric Conference Continued from page 1) stable throughout childhood. An increase in the incidence of head trauma was identified in two age groups: • A dramatic increase occurs at age 15, primarily in males, and is related to involvement in sports and driving activities • Infants younger than one year of age have also been identified by several studies as being subject to an elevated incidence of head trauma attributable to falls and child abuse. of person-centered planning. Their hypothesis is supported by a systematic review of the effectiveness of mentoring relationships for at-risk youth (Tolan, Henry, Schoeny, & Bass, 2007). A longitudinal study sample of transitioning students with TBI demonstrated that their integration into the community was hampered by more severe injury, younger age at injury, inadequate high school programs and lack of teacher training in assisting students with brain injury. The TBI Team Transition Coaching Pilot Project [developed under a Health Resources and Services Administration The anatomical differences between a child's brain and that of an adult render a (HRSA) Maternal and Child Health Bureau (MCHB), U.S. Department of child’s brain more susceptible to certain Health and Human Services, TBI types of injuries following head trauma Program grant] incorporates ongoing than an adult brain. A child’s head is mentorship. The Oregon TBI Team is larger in proportion to the body surface structured to use a conversational area, and its stability is dependent on ligamentous, rather than bony, structure. coaching approach to support students with TBI during their transition from The pediatric brain has a higher water content, 88% versus 77% in adults, which school into the community. Students with TBI are assigned a coach from the makes the child’s brain softer and more Oregon TBI Team who works with them susceptible to acceleration-deceleration throughout the transition process. The injury. The water content is inversely related to the myelinization process. The coach works with the student, the school, unmyelinated child’s brain is more susceptible to shear injuries than an adult brain. Infants and young children tolerate intracranial pressure (ICP) increases better than adults due to the open sutures of a child’s brain. state and community partners and the student’s family as the student approaches transition for the purpose of supporting the student and his or her highly unique needs. The TBI Team was developed with grant funds in the late 1990’s and is now supported by the Oregon Department of Education. Join us to learn about these teams and much, much more at the October conference. If you are a vendor or local non-profit community organization and would like to exhibit at this conference please, contact Sherry Stock at 800-544-5243. For more information see: www.biaoregon.org Registration for the conference is on the next page. For more information please check www.biaoregon.org. References: Ylvisaker, M., & Feeney, T. (1998). Collaborative brain injury intervention: Positive everyday routines. Clifton Park, New York: Thomson Delmar Learning. Tolan, P., Henry, D, Schoeny, M. & Bass, A. (2008). Mentoring programs to affect juvenile delinquency and associated Problems. Campbell Systematic Reviews. Ylvisaker and Feeney (1998) observed that, due to the dynamic nature of the needs of students with TBI, an ongoing mentorship approach during a braininjured child’s transition from high school into the community increases the benefits page 8 Summer 2011 The Headliner Registration Form 1st Annual Pacific Northwest Pediatric Brain Injury Conference 2011 Pediatric Brain Injury: Best Practices Sheraton Portland Airport Hotel Please register before October 15, 2011 to assure admittance and facilitate check-in. (Note: A separate registration form is needed for each person attending. Please make extra copies of the form as needed for other attendees. Members of BIAWA, BIAOR, BIAID, VA and The Western Brain Injury Alliance receive member rates) First Name Last Name Badge Name Affiliation/Company Address City State Phone Fax Email Please check all that apply: ____ Zip I am interested in volunteering at the conference. Please call me. ___ Call me about sponsorship/exhibitor opportunities. Conference Registration Fees: Registration fees include: lunch & conference related materials. Meals not guaranteed for on-site registrations. There are no refunds, but registration is transferable. The following fees are per person: BIAOR Membership-Join and Save Money—see below Before Sept 30 After Sept 30 $475 NA $ __ Pre-Conference Workshop-Understanding and Working with BI Clients —October 27 $175 $200 $ ___ Professional Non-BIAOR Member $300 $375 $ ___ Professional BIAOR Member $200 $275 $ ___ Courtesy (Brain Injury Survivors with limited means-limited number) $25 $35 $ ___ Non-BIAOR Member Survivor/Family (no CEUs) $150 $200 $ ___ BIAOR Member Survivor/Family (no CEUs) $100 $175 $ ___ Brain Injury Specialist Training/Test for Certification—October 27 (includes 1 year Professional Membership and I year of The Journal of Head Injury Rehabilitation) Amount Pre-Registration is required-book and materials on CD included ___ Scholarship Contribution (donation to assist in covering the cost of survivors with limited funds) $ I want to become a BIAOR member NOW to receive the discounted registration fee: Survivor Courtesy-donation Student-$25 Basic-$35 Family-$50 Non-Profit-$75 Professional-$100 Sustaining-$250 Corporation-$300 Sponsorship Bronze-$300 Sponsorship Silver-$500 Sponsorship Gold-$1,000 Sponsorship Platinum-$2,000 Lifetime—$5,000 Sponsorships (1 day) and Exhibitors: Customized Sponsorship: Luncheon Diamond $5,000 Platinum $2,000 Copper $750 Vendor/Exhibitor $450 Breaks Keynote Speaker Credit Card Number _______-_______-________-_______ Gold $1,500 Silver $1,000 Oter:__________________________________________________ Exp Date ____/___ Sec code _____ Registration & Membership Total $ _________ Signature ______________________________ CC Address if different than above ______________________________________________________ (Please add totals from Registration Fee, Membership Fee and Scholarship Contribution for final total costs) Make Checks out to BIAOR—Mail to: BIAOR, PO Box 549, Molalla OR 97038 or fax: 503.961.8730 Phone: 503-740-3155 Agenda Continuing Credits: CLE, SLP, OT, CCRC, CDMS, CCMC. October 28: 7 hrs; 6.5 hours Hotel: Sheraton Portland Airport Hotel 8235 NE Airport Way Portland, OR 97220 503-281-2500 Discount rate is $113 per room per night Discount good until Oct 15, 2011. Rooms are limited. The Headliner This conference is designed for family members, survivors, doctors, nurses, medical and mental health professionals, attorneys, military, state employees, educators, vocational and rehabilitation counselors, and service providers. Summer 2011 October 27 8 am—4 pm October 28 7 am—8:30 am: 8:30 am - Noon: Noon - 1 pm: 1 pm - 4:30 pm: * Lunch is provided Pre-Conference Workshop Check In Keynote and Break–Outs Lunch and Networking Break-Outs page 9 Joey Harrington, Former UO & NFL Quarterback, Spared Head Injury by Wearing Bicycle Helmet Joey Harrington, a 33 year old former University of Oregon quarterback and National Football League quarterback, was struck from behind by a driver of an SUV while riding a bike. On Sunday, July 31st, 2011, Harrington was hospitalized at Oregon Health and Science University with non-life threatening injuries including a broken collarbone, a punctured lung, and a cut on his head. The crash caused Harrington to land on the vehicle. He was upside down when he skidded off and landed on his head and shoulder. Harrington was wearing a bicycle helmet which prevented much more serious injury If you think wearing a bicycle helmet is for wimps, think again. Here are some stories from survivors: Austin: "Hi! My name is Austin K. When I was in sixth grade, I was an honor student. I played on the All Star Little League Team as a pitcher and on a competition soccer team. I used to ride my bike but I didn't like to wear a bike helmet. My mother tried to persuade me to wear one but I thought helmets were uncomfortable and hot. None of my friends wore bike helmets and I didn't exactly want to look like a jerk. Let me tell you how really wrong I was..... "On September 12, 1994, I went bike riding with my brother and a friend. I took a left-hand turn and started pedaling up the street when I got hit by a pick-up truck. My head got whipped back and forth, damaging many parts of my brain. I was actually near death when the ambulance got me to the hospital. My mother was told to go in and kiss me good-bye because they didn't think I would live more than a few hours. I was hurt very badly and slipped into a coma. I suffered a traumatic brain injury all because I had not been wearing a bike helmet. A respirator did my breathing, a tube in my stomach fed me, and a bolt in my head monitored the swelling in my brain. "When I finally woke up I had to be taught to eat, walk, talk and think all over again. I spent months in a wheelchair and had to rely on everyone else to do things for me. I spent my days enduring painful physical therapy sessions and longed to be normal again. When I first got hit all my friends paid attention to me, but slowly they all disappeared. "It's been four years now since my accident. Although I have made a remarkable recovery, I am very different as a result of that accident. I will never pitch another baseball game because my right arm won't work. I have had to settle for managing the soccer team instead of playing because my balance and speed are impaired. I am in special education classes because my injured brain cannot keep up in the regular classes. I will never be able to ride a bike or even drive a car. I still endure painful physical therapy sessions every week. "I'd like to leave you with a very important message.... No kid should ever have to go through what I did and am still doing. All of this pain and trouble that I am forced to deal with now could have been avoided if I had only worn a bike helmet. My message is simple, 'Please wear a bike helmet...Because I said so!'" – Austin The following stories have very different endings from Austin's - "I was out riding my bike and I wasn't paying attention. I ran into a car mirror, and it knocked me off (my bike). I hit my head, and my helmet cracked and split in half, but all that happened was I had a broken finger. "I didn't want to wear my bike helmet. I didn't think it was cool. But my Mom said if I didn't wear it I would be grounded from riding my bike. I think it saved me maybe from brain damage. Would I recommend that other kids wear a bike helmet? Yes. And I'd recommend that I wear one." - Justin S., age 12, "When I flew nine feet through the air and hit the pavement head first, I broke my bike helmet instead of my head. If I hadn't been wearing a helmet, there is a good chance I would have been killed or injured too seriously to ever ride a bike again." - Payton B., age 12, Bethesda, MD St. Louis, MO page 10 Summer 2011 "Last Spring I was riding my bike up and down my block pedaling side to side. All of a sudden my bike made an unexpected turn and I crashed down toward the street. My bike helmet landed on a mound of asphalt. My helmet now has a large puncture, and my skinned knees have healed. Had my bike helmet not been on or properly secured, I would have hit my face or smashed my head." - Alison W., age 11, Bethesda, MD The Headliner When you work, you WIN, so call your local WIN staff TODAY! www.win-oregon.com CIL OREGON WORK INCENTIVES NETWORK (WIN) CONTACT LIST HASL (Independent Abilities Center) CORIL (Central Oregon Resources for Independent Living) EOCIL (Eastern Oregon Center for Independent Living) LILA (Lane Independent Living Alliance) LOCATION WORK INCENTIVE COORDINATORS COUNTIES SERVED NELSON FERGUSON [email protected] (541) 479-4275 Josephine, Jackson, DENYS HARTFIELD [email protected] (541) 479-4275 Curry, Coos , Douglas 20436 Clay Pigeon Court Bend, OR 97702 LEONARD PEACH [email protected] 1-541-388-8103 Crook, Deschutes, Jefferson 322 SW 3rd Suite 6 Pendleton, OR 97801 LINDA VALENTINE [email protected] (541) 276-1037 1-877-711-1037 (Toll Free) Gilliam,, Morrow, Umatilla, Union Wheeler 1021 SW 5th Avenue Ontario, OR 97914 JENNIFER BONNELL [email protected] (541) 889-3119 or 1-866-248-8369 Baker, Grant, Harney, Malheur , Wallowa 99 West 10th Ave#117 Eugene, OR 97401 EMMA LEVERT [email protected] (541) 607-7020 Lane 305 NE "E" St. Grants Pass, OR 97526 CHRISTIE RIEHL [email protected] 503-798-1971 LYNELLE WILCOX [email protected] 503-983-4711 JAIME HEAD [email protected] (503) 232-7411 PO Box 13758 Salem, OR 97301 PO Box 13758 Eugene, OR 97401 ILR (Independent Living Resources) 1839 NE Couch Street Portland, OR 97232 SPOKES UNLIMITED 415 Main Street Klamath Falls, OR 97601 MALIEA YAKYMI [email protected] 503-232-7411 Marion, Polk, Yamhill Linn, Benton, Lincoln Clackamas, Clatsop, Columbia Multnomah, Tillamook, Hood River, Multnomah, Sherman, Washington, Wasco JENNIFER KASPER [email protected] (541) 883-7547 Klamath, Lake Traumatic /Acquired Brain Injury PTSD (Posttraumatic Stress Disorder) Anxiety Biofeedback Trauma Nancy Irey Holmes, PsyD, CBIS Psychologist [email protected] 503-224-5077 fax 503-299-6178 The Headliner Office locations: 4511 SE 39th Ave Portland OR 97202 Phone: 503-335-2466 Fax: 503-200-5550 Summer 2011 Mailing Address 10824 SE Oak St #212 Milwaukie, OR 97222 page 11 Idaho Update By Russ Spearman, M.ED. The national Centers for Disease Control and Prevention estimates as many as 35,000 Idahoans may be living with a severe traumatic brain injury, yet Idaho has few community resources to assist TBI patients after they leave acute-care facilities and return home to live. Idaho State Universities Institute of Rural Health (ISU-IRH) is the lead agency for a Health Resources Services Administration - Maternal and Children's Health TBI Grant award from 2009-2013. Progress continues on the four project goals. Solidifying a sponsor and drafting trust fund legislation occurred during the past legislative session. Plans to introduce legislation were rescinded due to a budget shortfall. The TBI statewide advisory council now holds non-profit status. Idaho TBI project team has activated a monthly chat and blog feature for spouses of returning services members via the TBI virtual program center. The website is www.idahotbi.org. During the spring of 2011, over 1200 registrations and 600 attendees took part in a grant sponsored national TBI webinar series of continuing education. Participants came from 46 states and Calvary, Canada. The project team in collaboration with the Sarah Jane Brain Foundation facilitated a high school assembly involving five schools representing over 300 students who took part in an assembly to learn about concussion and pediatric brain injury. Idaho has a number of support groups listed on page 27 of this newsletter. Russell C. Spearman M.Ed. is the Project Director for Idaho's Traumatic Brain Injury Partnership Implementation grant from the Health Resources Services Administration, Maternal and Children's Health Bureau. Since August 2000, Russ has been employed by the Institute of Rural Health at Idaho State University- Boise. Prior to this Russ was responsible for developing and implementing all aspects related to Idaho's 1915 C Medicaid Home and Community Based Services Waiver for adults with a traumatic brain injury. He is the former Executive Director for Idaho's Governor's Council on Developmental Disabilities. He is the lead author of "The Use of Medicaid Waivers and Their Impact on Services". Have you had an insurance claim for cognitive therapy denied? If so call: Julia Greenfield, JD Staff Attorney Disability Rights Oregon 620 SW Fifth Avenue, Suite 500 Portland, OR 97204 Phone: (503) 243-2081 Fax: (503) 243 1738 [email protected] Center on Brain Injury Research and Training (CBIRT) Update Our first training module, Traumatic Brain Injury: An Overview, focuses on background information for professionals who work with individuals with brain injury. The module takes about 15 minutes to complete, contains a test, and provides a certificate of completion with an 80% passing score. There is no charge for the training. We encourage all agency and organization staff to complete the module (www.cbirt.org/resources/interactivelearning-modules). Future training modules will include specific evidence- page 12 based practices for working with individuals with brain injury. In June, CBIRT researchers presented their current research at the Federal Interagency Conference on Traumatic Brain Injury in Washington, D.C. The conference was attended by over 700 researchers and clinicians. Slides of the PowerPoint presentations from CBIRT staff are available on the CBIRT website; www.cbirt.org/publications-products. These include: Systematic Instruction of Assistive Technology for Cognition (ATC) Following Traumatic Brain Injury, Laurie Summer 2011 Ehlhardt Powell, PhD, CCC-SLP and Michelle Ranae Wild, MS; Transition Into Adulthood for Students with ABI, Bonnie Todis, PhD and Deborah Ettel, PhD; and Transitioning Students with TBI From High School Into The Community, Donald Hood. The popular Fact of the Matter research briefs, including the current issue, TBI and Post-Traumatic Stress Disorder: Overview and Resources, are available free of charge on the CBIRT website. The Headliner Physical Facts About the Brain Summer Sudoku The object is to insert the numbers in the boxes to satisfy only one condition: each row, column and 3 x 3 box must contain the digits 1 through 9 exactly once. (Answer on page 17) The adult human brain weights about 3 pounds and the cerebrum accounts for about 85% of the brain. The brain is composed of 40% gray and 60% white matter. The gray matter is made up of about 100 billion neurons that gather and transmit signals while the white matter is made of dendrites and axons that the neurons use to transmit signals. The brain is composed of about 75% water and is the fattiest organ in the body, consisting of a minimum of 60% fat. Humans have the largest brain to body ratio of any animal, and the blood vessels in the brain, if stretched end-to-end, would be about 100,000 miles long. The neocortex, or language center of the brain, which serves as the center for higher mental functions, comprises about 76% of the organ. RALPH E. WISER Attorney Representing Brain Injured Individuals Auto and other accidents Wrongful Death Sexual Abuse Elder Abuse Insurance issues and disputes Disability: ERISA and Non-ERISA, SSD, PERS One Centerpointe Drive, Suite 570 Lake Oswego, Oregon 97035 Phone: (503) 620-5577 Fax: (503) 670-7683 Email: [email protected] FREE INITIAL CONSULTATION Free Parking/Convenient Location The Headliner Summer 2011 page 13 Imagine What Your Gift Can Do. The most important achievements often start where they are least expected. That’s why BIAOR is the perfect place to give. It allows your money to go where it’s needed most, when it’s needed most. BIAOR provides information about brain injury, resources and services, awareness and prevention education, advocacy, support groups, and conferences and meetings throughout the state for professionals, survivors and family members. Your gift makes a difference at BIAOR. Name Please mail to: BIAOR PO Box 549 Molalla OR 97038 503-740-3155 800-544-5243 Fax: 503-961-8730 _________________________________________________________ Address ________________________________________________________________ ________________________________________________________________ City/State/Zip ____________________________________________________ Phone ________________________________________________________________ Email ________________________________________________________________ Type of Payment Check payable to BIAOR for $_______ Charge my VISA/MC/Discover Card $ _____ Card number: __________________________ Exp. date: ___ __________________________ Print Name on Card: _____________________ Signature Approval:______________________ Brain Function Brains use about 20% of the total blood and 20% of the total oxygen that is circulating through the body at any given time. If blood supply to the brain is cut off for more than 8 to 10 seconds, loss of consciousness will occur, yet the human brain can survive for between 4 and 6 minutes without any oxygen. The information processing speed of the human brain can reach up to 120 meters per second, and in a waking state can generate 10 - 23 watts of energy. David Dubats | CEO Second Step, Inc. | "Helping People Walk Again" P.O. Box 42121 | Eugene OR 97404 [email protected] | secondstepinc.com Toll Free: 877.299.STEP | Direct: 541.337.5790 | Fax: 866.596.0765 United Way Campaign As a 501(c)3 tax-exempt organization, the Brain Injury Association of Oregon is eligible to receive United Way funds. When donating to United Way, you can specify that all or part of the donation be directed to the Brain Injury Association of Oregon. On the donor form, check the "Specific Requests" box and include the sentence, "Send my gift to Brain Injury Association of Oregon, PO Box 549, Molalla OR 97038-0549, Tax ID # 93-0900797" If your employer has a policy of matching United Way donations, you can take advantage of that. BIAOR Tax ID #: 93-0900797 page 14 Summer 2011 The Headliner The Headliner Summer 2011 page 15 page 16 Summer 2011 The Headliner Jake Snakenberg Youth Sports Concussion Act Governor Hickenlooper signs the Jake Snakenberg Youth HANDICAP VEHICLES AND MOBILITY EQUIPMENT IN CO , OR & WA Performance Mobility is committed to providing the highest quality wheelchair accessible transportation to enhance quality of life for individuals and families. You'll find an informational, no-pressure approach and mountains of experience to meet your transportation needs. This hard-won piece of legislation will keep our youth athletes safe for the years to come. It requires that coaches get education on how to recognize a concussion, that a player is removed from play if a concussion is suspected and that the student athlete must be signed off by a medical professional before returning to play. 503-243-2940 www.performancemobility.com This was a proud day for those of us that have spent over a year meeting with stakeholders, creating a consensus and developing language so the bill works for the Colorado youth sports community. Colorado SB40 Bill. From the Brain Injury Alliance of Colorado None of us is as dumb as all of us. – Unknown Summer Sudoku (Answer from page 13) 4 2 5 9 1 4 9 1 7 5 5 1 8 6 5 The Headliner 5 7 7 7 2 2 4 6 5 9 6 7 5 3 2 2 5 8 9 4 1 3 3 6 3 6 1 1 4 7 Summer 2011 page 17 Stem Cell Research by NINDS The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research to (1) better understand central nervous system injury and the biological mechanisms underlying damage to the brain, (2) develop strategies and interventions to limit the primary and secondary brain damage that occurs within days of a head trauma and (3) devise therapies to treat brain injury and help in long-term recovery of function. NINDS investigators are looking at larger, tissue-specific changes within the brain after a TBI. It has been proven that trauma to the frontal lobes of the brain can cause damage to specific chemical messenger systems, specifically the dopaminergic system (i.e., the collection of neurons in the brain that uses the neurotransmitter dopamine). Dopamine is an important chemical messenger - for example, degeneration of dopamineproducing neurons is the primary cause of Parkinson's disease. NINDS researchers are studying how the dopaminergic system responds after a TBI and its relationship to neurodegeneration and Parkinson's disease. The use of stem cells to repair or replace damaged brain tissue is a new and exciting avenue of research. A neural stem cell is a special kind of cell that can multiply and page 18 give rise to other more specialized cell types. These cells are found in adult neural tissue and normally develop into several different cell types found within the central nervous system. NINDS researchers are investigating the ability of stem cells to develop into neurotransmitter-producing neurons, specifically dopamine-producing cells. Researchers are also looking at the power of stem cells to develop into oligodendrocytes, a type of brain cell that produces myelin (i.e., the fatty sheath that surrounds and insulates axons). One study in mice has shown that bone marrow stem cells can develop into neurons, demonstrating that neural stem cells are not the only type of stem cell that could be beneficial in the treatment of brain and nervous system disorders. At the moment, stem cell research for TBI is in its infancy, but future research may lead to advances for treatment and rehabilitation. In addition to the basic research described above, NINDS scientists also conduct broader-based clinical research involving patients. One area of study focuses on the plasticity of the brain after injury. In the strictest sense, plasticity means the ability to be formed or molded. When speaking of the brain, plasticity means the ability of the brain to adapt to Summer 2011 deficits and injury. NINDS researchers are investigating the extent of brain plasticity after injury and developing therapies to enhance plasticity as a means of restoring function. The plasticity of the brain and the rewiring of neural connections make it possible for one part of the brain to assume the functions of a disabled part. Scientists have long known that the immature brain is generally more plastic than the mature brain, and that the brains of children are better able to adapt and recover from injury than the brains of adults. NINDS researchers are investigating the mechanisms underlying this difference and theorize that children have an overabundance of hard-wired neural networks, many of which naturally decrease through a process called pruning . When an injury destroys an important neural network in children, another less useful neural network that would have eventually died takes over the responsibilities of the damaged network. Some researchers are looking at the role of plasticity in memory, while others are using imaging technologies, such as functional MRI, to map regions of the brain and record evidence of plasticity. The Headliner Family Building Blocks Community Event On Saturday, August 6, over 1,100 children and parents attended the Riverfront Family Fest where they enjoyed interactive, hands-on activities while learning more about health and safety. BIAOR participated in the community event with an information table and by giving away nearly 100 bike and skateboard helmets to children and their parents. BIAOR was honored to be apart of this activity and to support this organization. Family Building Blocks serves families with infants and young children who are struggling with difficult life circumstances. Their goal is to provide early intervention that builds successful and resilient children, strengthens parents and preserves families through an array of comprehensive and integrated early childhood and therapeutic family support services. Thano and Becki Sparre As with all of our activities, attendance would not be possible without the help and assistance of our many volunteers. Becki Sparre, co-facilitator of the Molalla Support Group, her son Thano and Steve Morris helped us with this six hour event. Thano, a brain injury survivor, had his helmet on display. Many people were drawn to the helmet and Thano was asked to repeat his story many times. It was about midnight on May 27, 2001. Thano and his brother were returning to Denver, CO, from Boise, ID, on Thano's motorcycle. Thano was driving and started to take an off-ramp when he realized the off-ramp wasn't the freeway, so he tried to correct his error. The front tire hit an obstruction between the exit and the freeway, and the boys went flying off the motorcycle. Thano, was head injured and in a coma for 16 days, woke with aphasia and paralysis on his right side and had to learn to walk and talk again. Thano still has challenges due to his TBI. Thankfully, he has made much progress and continues to do so. He was married and has two young boys. He has a job at Molalla Safeway as a courtesy clerk and has been "employee-of-the-month" twice. He has an upbeat attitude and is very friendly. Thano’s helmet saved his life BIAOR wants to thank all of our volunteers, our members whose donations make it possible to give away helmets and our generous funder, Build A Bear Foundation, for making this possible. www.kampfemanagement.com The Headliner Summer 2011 page 19 Anger management: 10 tips to tame your temper Keeping your temper in check can be challenging. Use simple anger management tips — from taking a timeout to using "I" statements — to stay in control. Do you find yourself fuming when someone cuts you off in traffic? Does your blood pressure go through the roof when your child refuses to cooperate? Anger is a normal and even healthy emotion — but it's important to deal with it in a positive way. Uncontrolled anger can take a toll on both your health and your relationships. Ready to get your anger under control? Start by considering these 10 anger management tips. No. 1: Take a timeout Counting to 10 isn't just for kids. Before reacting to a tense situation, take a few moments to breathe deeply and count to 10. Slowing down can help defuse your temper. If necessary, take a break from the person or situation until your frustration subsides a bit. No. 2: Once you're calm, express your anger As soon as you're thinking clearly, express your frustration in an assertive but nonconfrontational way. State your concerns and needs clearly and directly, without hurting others or trying to control them. No. 3: Get some exercise Physical activity can provide an outlet for your emotions, especially if you're about to erupt. If you feel your anger escalating, go for a brisk walk or run, or spend some time doing other favorite physical activities. Physical activity stimulates various brain chemicals that can leave you feeling happier and more relaxed than you were before you worked out. No. 4: Think before you speak In the heat of the moment, it's easy to say something you'll later regret. Take a few moments to collect your thoughts before saying anything — and allow others involved in the situation to do the same. No. 5: Identify possible solutions Instead of focusing on what made you mad, work on resolving the issue at hand. Does your child's messy room drive you crazy? Close the door. Is your partner late for dinner every night? Schedule meals later in the evening — or agree to eat on your own a few times a week. Remind yourself that anger won't fix anything, and might only make it worse. No. 6: Stick with 'I' statements To avoid criticizing or placing blame — which might only increase tension — use "I" statements to describe the problem. Be respectful and specific. For example, say, "I'm upset that you left the table without offering to help with the dishes," instead of, "You never do any housework." No. 7: Don't hold a grudge Forgiveness is a powerful tool. If you allow anger and other negative feelings to crowd out positive feelings, you might find yourself swallowed up by your own bitterness or sense of injustice. But if you (Anger Continued on page 21) At Windsor Place, we believe in promoting the self-confidence and self-reliance of all of our residents Sharon Slaughter Windsor Place, Inc. 3009 Windsor Ave. NE Salem Oregon 97301 www.windsorplacesalem.org Executive Director [email protected] Phone: 503-581-0393 Fax: 503-581-4320 page 20 Summer 2011 The Headliner (Anger Continued from page 20) can forgive someone who angered you, you might both learn from the situation. It's unrealistic to expect everyone to behave exactly as you want at all times. No. 8: Use humor to release tension Lightening up can help diffuse tension. Don't use sarcasm, though — it can hurt feelings and make things worse. No. 9: Practice relaxation skills When your temper flares, put relaxation skills to work. Practice deep-breathing exercises, imagine a relaxing scene, or repeat a calming word or phrase, such as, "Take it easy." You might also listen to music, write in a journal or do a few yoga poses — whatever it takes to encourage relaxation. No. 10: Know when to seek help Learning to control anger is a challenge for everyone at times. Consider seeking help for anger issues if your anger seems out of control, causes you to do things you regret or hurts those around you. You might explore local anger management classes or anger management counseling. With professional help, you can: • Learn what anger is • Identify what triggers your anger • Recognize signs that you're becoming angry • Learn to respond to frustration and anger in a controlled, healthy way • Explore underlying feelings, such as sadness or depression Anger management classes and counseling can be done individually, with your partner or other family members, or in a group. Request a referral from your doctor to a counselor specializing in anger management, or ask family members, friends or other contacts for recommendations. Your health insurer, employee assistance program (EAP), clergy, or state or local agencies also might offer recommendations. Source: Mayo Clinic I am so clever that sometimes I don’t understand a single word of what I am saying. - Oscar Wilde The Headliner Summer 2011 page 21 Missed the Conference? You can now watch the presentations and receive CEU’s The 9th Annual Pacific Northwest Brain Injury Conference 2011. Living with Brain Injury: Thriving in Changing Times was video recorded and is now available for Continuing Education credit!! It was an incredibly successful conference with engaging speakers. Up to date information was shared regarding all areas of brain injury! We are offering a limited time early bird special discount of 40% off the original price for 16 continuing education credits. The original price was $525.00. You can purchase the course and watch it online at your convenience for just $299.00. (Less than $20 per contact hour!) The Physical Therapy Session is 7.4 CEs and available for a 50% savings from the original price of $375. For all 7.4 CEs, you pay just $199. For Speech Language Pathologists and OT's, you save 50% savings from the price of $450.00. You get .9 ASHA CEUs (for SLPs) and 9.6 contact hours for OTs for $229.00 You have at least one year to finish the courses...stop and start any time you want!! Follow the links below for more information on the early bird special and registration!! Enjoy watching, learning and earning your CEs from your computer! All sessions: http:// www.ahceducation.com/about-2/allcourses/living-with-brain-injury-thriving-inchanging-times PT sessions: http:// www.ahceducation.com/about-2/allcourses/living-with-brain-injury-thriving-inchanging-times-physical-therapist-track OT/SLP sessions: http:// www.ahceducation.com/about-2/allcourses/living-with-brain-injury-thriving-inchanging-times-slp-ot-track Please contact Darla Torkelsen at Advanced Healthcare Education for any questions about these courses. Phone: 503-970-3846. Email: Advanced HealthCare Education <[email protected]> The First Rule of Memory--write everything down in one spot (your daily planner). The Second Rule of Memory--write it down when it's fresh in your mind. page 22 Summer 2011 The Headliner ARE YOU A MEMBER? The Brain Injury Association of Oregon relies on your membership dues and donations to operate our special projects and to assist families and survivors. Many of you who receive this newsletter are not yet members of BIAOR. If you have not yet joined, we urge you to do so. It is important that people with brain injuries, their families and the professionals in the field all work together to develop and keep updated on appropriate services. Professionals: become a member of our Neuro-Resource Referral Service. Dues notices have been sent. Please remember that we cannot do this without your help. Your membership is vitally important when we are talking to our legislators. For further information, please call 1-800-544-5243 or email [email protected]. The Caregiver's Tale: The True Story Of A Woman, Her Husband Who Fell Off The Roof, And Traumatic Brain Injury From the Spousal Caregiver's, Marie Therese Gass, point of view, this is the story of the first seven years after severe Traumatic Brain Injury, as well as essays concerning the problems of fixing things, or at least letting life operate more smoothly. Humor and pathos, love and frustration, rages and not knowing what to do--all these make up a complete story of Traumatic Brain Injury. $15 A Change of Mind A Change of Mind by Janelle Breese Biagioni is a very personal view of marriage and parenting by a wife with two young children as she was thrust into the complex and confusing world of brain injury. Gerry Breese, a husband, father and constable in the Royal Canadian Mounted Police was injured in a motorcycle crash while on duty. Janelle traces the roller coaster of emotions, during her husband’s hospital stay and return home. She takes you into their home as they struggle to rebuild their relationship and life at home. $20 Fighting for David Leone Nunley was told by doctors that her son David was in a "persistent coma and vegetative state"--the same diagnosis faced by Terri Schiavo's family. Fighting for David is the story how Leone fought for David's life after a terrible motorcycle crash. This story shows how David overcame many of his disabilities with the help of his family. $15 Brain Injury Association of Oregon New Member Renewing Member Name: ___________________________________________ Street Address: _____________________________________ City/State/Zip: ______________________________________ Phone: ___________________________________________ Email: _____________________________________________ Type of Membership Survivor Courtesy $ 5 (Donations from those able to do so are appreciated) Basic $35 Family $50 Students $25 Non Profit $75 Professional $100 Sustaining $200 Corporation $300 Lifetime $5000 Sponsorship Bronze $300 Silver $500 Gold $1,000 Platinum $2,000 Additional Donation/Memorial: $________________ In memory of: ______________________________________ (Please print name) Member is: Individual with brain injury Family Member Other:__________ Professional. Field: _______________________________ Book Purchase (mailing included): The Caregiver’s Tale $15 Change of Mind $20 Ketchup on the Baseboard Ketchup on the Baseboard tells the personal story of the Fighting for David $15 Ketchup on the Baseboard $20 authors' family’s journey after her son, Tim, sustained a The Essential Brain Injury Guide $60 brain injury. Chronicling his progress over more than 20 years, she describes the many stages of his recovery along Type of Payment with the complex emotions and changing dynamics of her Check payable to BIAOR for $ ________________________ family and their expectations. More than a personal story, the book contains a collection of articles written by Carolyn Charge my VISA/MC/Discover Card $ __________________ Rocchio as a national columnist Card number: _________ __________ _________ __________ for newsletters and journals on brain injury. $20 Expiration date: _____________ Security Code from back _________ The Essential Brain injury Guide Print Name on Card: __________________________________ The Essential Brain Injury Guide provides a wealth of Signature Approval: __________________________________ vital information about brain injury, its treatment and Date: ______________________________________________ rehabilitation. Written and edited by leading brain injury experts in non-medical language, it’s easy to understand. This thorough guide to brain injury covers Please mail to: topics including: Understanding the Brain and Brain BIAOR PO Box 549 Injury; Brain Injury Rehabilitation; Health, Medications Molalla, OR 97038 and Medical Management; Treatment of Functional 800-544-5243 Fax: 503– 961-8730 Impacts of Brain Injury; Children and Adolescents; Legal and Ethical Issues; www.biaoregon.org • [email protected] and MORE! Used as the primary brain injury reference by thousands of professionals and para-professionals providing direct services to persons with 501 (c)(3) Tax Exempt Fed. ID 93-0900797 brain injury over the past 15 years. $60.00 The Headliner Summer 2011 page 23 Resources For Parents, Students, Educators and Professionals Returning Veterans Project Returning Veterans Project is a nonprofit organization comprised of politically unaffiliated and independent health care practitioners who offer free The Oregon TBI Team counseling and other health services to veterans of past and current The Oregon TBI Team is a multidisciplinary group Iraq and Afghanistan campaigns and their families. Our volunteers of educators and school professionals trained in include mental health professionals, acupuncturists and other allied health pediatric brain injury. The Team provides incare providers. We believe it is our collective responsibility to offer education, service training to support schools, educators and support, and healing for the short and long-term repercussions of military families of students (ages 0-21) with TBI. For combat on veterans and their families. For more information contact: Belle evidence based information and resources for Bennett Landau, Executive Director, 503-933-4996 supporting students with TBI, visit: www.tbied.org www.returningveterans.org email: [email protected] For more information about Oregon’s TBI www.cbirt.org/oregon-tbi-team/ [email protected] 1-877-872-7246 “Brain Injury Partners: Navigating the School System,” an interactive, multi-media intervention, is now available on-line free of charge. The easy-to-use website is designed to give parents of schoolaged children with a brain injury the skills they need to become successful advocates. http://free.braininjurypartners.com/. Washington TBI Resource Coordinator Services Washington Traumatic Brain Injury Resource Coordination Services provides resource coordination as a short-term intervention for TBI survivors & their families. This services is to help improve the quality of life for TBI survivors and their families by connecting them with services and supports. Carla-Jo Whitson, MSW CBIS 360-699-4928 [email protected] www. tbirc.org Oregon Parent Training and Information Center (OR PTI) Legal Help www.realage.com/HealthyYOUCenter/Games/ intro.aspx?gamenum=82 Oregon Law Center Legal provides free legal services to low income individuals, living in Oregon, who have a civil legal case and need legal help. Assistance is not for criminal matter or traffic tickets. http://oregonlawhelp.org Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals A statewide parent training and information center with disabilities. Assisting people with legal representation, advice and information designed serving parents of children with disabilities. 503to help solve problems directly related to their disabilities. All services are confidential and 581-8156 or 888-505-2673 [email protected] free of charge. (503) 243-2081 http://www.disabilityrightsoregon.org/ www.orpti.org Legal Aid Services of Oregon serves people with low-income and seniors. If you qualify for LEARNet food stamps you may qualify for services. Areas covered are: consumer, education, family Provides educators and families with invaluable law, farmworkers, government benefits, housing, individual rights, Native American issues, information designed to improve the educational protection from abuse, seniors, and tax issues for individuals. Multnomah County 1-888-610outcomes for students with brain injury. 8764 www.lawhelp.org www.projectlearnet.org/index.html Lewis & Clark Legal Clinic is a civil practice clinic for the Northwestern School of Law of FREE Brain Games to Sharpen Your Lewis & Clark College. Representing low-income individuals experiencing a cariety of civil and administrate problems. 503-768-6500 Memory and Mind http://brainist.com/ Home-Based Cognitive Stimulation Program http://main.uab.edu/tbi/show.asp? durki=49377&site=2988&return=9505 Sam's Brainy Adventure http://faculty.washington.edu/chudler/flash/ comic.html Neurobic Exercise www.neurobics.com/exercise.html Brain Training Games from the Brain Center of America www.braincenteramerica.com/exercises_am.php page 24 Oregon State Bar Lawyer Referral Services refers to a lawyer who may be able to assist. 503-684-3763 or 800-452-7636 The Oregon State Bar Military Assistance Panel program is designed to address legal concerns of Oregon service members and their families immediately before, after, and during deployment. The panel provides opportunities for Oregon attorneys to receive specialized training and offer pro bono services to service members deployed overseas. 800-452-8260 St. Andrews Legal Clinic is a community non-profit that provides legal services to low income families by providing legal advocacy for issues of adoption, child custody and support, protections orders, guardianship, parenting time, and spousal support. 503-557-9800 Summer 2011 The Headliner Center for Polytrauma Care-Oregon VA Providing rehabilitation and care coordination for combat-injured OIF/OEF veterans and active duty service members. Contact: Ellen Kessi, LCSW , Polytrauma Case Manager [email protected] 1-800-949-1004 x 34029 or 503-220-8262 x 34029 Financial Assistance The Low-Income Home Energy Assistance Program (LIHEAP) is a federally-funded program that helps low-income households pay their home heating and cooling bills. It operates in every state and the District of Columbia, as well as on most tribal reservations and U.S. territories. The LIHEAP Clearinghouse is an information resource for state, tribal and local LIHEAP providers, and others interested in low-income energy issues. This site is a supplement to the LIHEAP-related information the LIHEAP Clearinghouse currently provides through its phone line 1-800-453-5511 Website: www.ohcs.oregon.gov/OHCS/ SOS_Low_Income_Energy_Assistance_Oreg on.shtml Food, Cash, Housing Help from Oregon Department of Human Services 503-9455600 http://www.oregon.gov/DHS/assistance/ index.shtml Housing Various rental housing assistance programs for low income households are administered by local community action agencies, known as CAAs. Subsized housing, such as Section 8 rental housing, is applied for through local housing authorities. 503-986-2000 http://oregon.gov/ OHCS/ CSS_Low_Income_Rental_Housing_Assi stance_Programs.shtml Oregon Food Pantries http:// www.foodpantries.org/st/oregon Central City Concern, Portland 503 2941681 Central City Concern meets its mission through innovative outcome based strategies which support personal and community transformation providing: • Direct access to housing which supports lifestyle change. • Integrated healthcare services that are highly effective in engaging people who are often alienated from mainstream systems. • The development of peer relationships that nurture and support personal transformation and recovery. • Attainment of income through employment or accessing benefits. The Headliner Affordable Naturopathic Clinic in Southeast Portland An affordable, natural medicine clinic is held the second Saturday of each month. Dr. Cristina Cooke, a naturopathic physician, will offer a sliding-scale. The clinic is located at: The Southeast Community Church of the Nazarene 5535 SE Rhone, Portland. Naturopaths see people with a range of health For more information of to make an concerns including allergies, diabetes, fatigue, appointment, please call: high blood-pressure, and issues from past Dr. Cooke, 503-984-5652 physical or emotional injuries. Tammy Greenspan Head Injury Collection A terrific collection of books specific to brain injury. You can borrow these books through the interlibrary loan system. A reference librarian experienced in brain injury literature can help you find the book to meet your needs. 516-249-9090 Valuable Websites www.BrainLine.org: a national multimedia project offering information and resources about preventing, treating, and living with TBI; includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury. www.iCaduceus.com: The Clinician's Alternative, the premiere web-based alternative medical resource. www.oregon.gov/odva: Oregon Department of Veterans Affairs http://fort-oregon.org/: information for current and former service members www.idahotbi.org/: Idaho Traumatic Brain Injury Virtual Program Center-The program includes a telehealth component that trains providers on TBI issues through video-conferencing and an online virtual program center. www.headinjury.com/ - information for brain injury survivors and family members http://activecoach.orcasinc.com Free concussion training for coaches ACTive: Athletic Concussion Training™ using Interactive Video Education www.braininjuryhelp.org Peer mentoring help for the TBI survivor in the Portland Metro/Southern Washington area. 503-224-9069 www.phpnw.org If you, or someone you know needs help-contact: People Helping People Sharon Bareis 503-875-6918 www.oregonpva.org - If you are a disabled veteran who needs help, peer mentors and resources are available http://oregonmilitarysupportnetwork.org - resource for current and former members of the uniformed military of the United States of America and their families. http://apps.usa.gov/national-resource-directory/National Resource Directory The National Resource Directory is a mobile optimized website that connects wounded warriors, service members, veterans, and their families with support. It provides access to services and resources at the national, state and local levels to support recovery, rehabilitation and community reintegration. (mobile website) http://apps.usa.gov/ptsd-coach/PTSD Coach is for veterans and military service members who have, or may have, post-traumatic stress disorder (PTSD). It provides information about PTSD and care, a self-assessment for PTSD, opportunities to find support, and tools–from relaxation skills and positive self-talk to anger management and other common self-help strategies–to help manage the stresses of daily life with PTSD. (iPhone) Summer 2011 page 25 Oregon Brain Injury Support Groups Bend CENTRAL OREGON SUPPORT GROUP 2nd Saturday 10:30am to 12:00 noon St. Charles Medical Center 2500 NE Neff Rd, Bend 97701 Rehab Conference Room, Lower Level Joyce & Dave Accornero, 541 382 9451 [email protected] CORIL Thursday Support Group Every Thursday 10:30 am-12pm Fox Hollow Assisted Living Center 2599 NE Studio Rd Bend OR 97701 Rich Zebrowski 541-388-8103 x 203 [email protected] Brookings BRAIN INJURY GROUP (BIG) To be announced 1-877-469-8844, 541-469-8887 Cottage Grove BIG II (Brain Injury Group II ) Thursdays 11 a.m. to 12:30 p.m. Jefferson Park Recreation Room 325 S. Fifth St, Cottage Grove For directions and information, Anna, 541-767-0845. Corvallis STROKE & BRAIN INJURY SUPPORT GROUP 1st Tuesday 1:30 to 3:00 pm Church of the Good Samaritan Lng 333 NW 35th Street, Corvallis, OR 97330 Call for Specifics: Shawn Johnson, CCC-SLP 541-768-5157 [email protected] Coos Bay Traumatic Brain Injury (TBI) Support Group 2nd Saturday August 9th 3:00pm – 5:00pm Kaffe 101, 171 South Broadway Coos Bay, OR 97420 [email protected] Eugene (2) COMMUNITY REHABILITATION SERVICE OF OREGON 3rd Tuesday 6:30-8:30 pm Potluck Social even month Support Group odd month Monta Loma Mobile Home Rec Center 2150 Laura St, Springfield, OR. 97477 Jan Johnson, (541) 342-1980 [email protected] BIG (BRAIN INJURY GROUP) Tuesdays 11:00am-1pm Hilyard Community Center 2580 Hilyard Avenue, Eugene, OR. 97401 Curtis Brown, (541) 998-3951 [email protected] page 26 Hillsboro Westside SUPPORT GROUP 1st Monday 7-8 pm For brain injury survivors, their families, caregivers and professionals Tuality Community Hospital 335 South East 8th Street, Hillsboro, OR 97123 Carol Altman, (503)640-0818 Klamath Falls SPOKES UNLIMITED BRAIN INJURY SUPPORT GROUP 2nd Tuesday 1:00pm to 2:30pm 415 Main Street, Klamath Falls, OR 97601 Dawn Lytle 541-883-7547 [email protected] SPOKES UNLIMITED BRAIN INJURY RECREATION 4th Tuesday Contact Dawn Lytle for additional information: 541-883-7547 [email protected] Lebanon BRAIN INJURY SUPPORT GROUP OF LEBANON 1st Thursday 6:30 pm Lebanon Community Hospital, Conf Rm #6 525 North Santiam Hwy, Lebanon, OR 97355 Lisa Stoffey 541-752-0816 [email protected] Madras Brain Injury Support Group Every other Thursday eve 5:30- 7:00 pm 125 SW C Street Madras OR 97741 Through BestCare Treatment Services Contact Dr. Nancy Holmes (617) 617-5366 Medford SOUTHERN OREGON BRAINSTORMERS SUPPORT AND SOCIAL CLUB 1st Tuesday 3:30 pm to 5:30 pm 751 Spring St., Medford, Or 97501 Lorita Cushman @ 541-621-9974 [email protected] Molalla BRAIN INJURY SUPPORT GROUP OF MOLALLA 5 pm—6:30, Every Monday Support group and Hydro-exercise - Molalla Pool For more information contact: Sherry Stock [email protected] or 503-740-3155 Newport BRAIN INJURY SUPPORT GROUP OF NEWPORT 2nd Saturday 2-4 pm 4909 S Coast Hwy Suite 340 South Beach, Oregon 97366 (541) 867-4335 or [email protected] www.progressive-options.org Oregon City 3rd Friday 1-3 pm Clackamas Community College McLoughlin Hall Rm #M226 (2nd floor) Sonja Bolon, MA 503-816-1053 [email protected] Summer 2011 Pendleton Inactive at this time. For more information contact: Joyce McFarland-Orr (541) 278-1194 [email protected] Portland (12) BRAINSTORMERS I 2nd Saturday 10:00 - 11:30am Women survivor's self-help group Wilcox Building Conference Room A 2211 NW Marshall St., Portland 97210 Next to Good Samaritan Hospital Northwest Portland Jane Starbird, Ph.D., (503) 493-1221 [email protected] BIRC Alumni Support Group On hiatis BRAINSTORMERS Il 3rd Saturday 10:00am-12:00noon Survivor self-help group Emanuel Hospital, M.O.B.-West 2801 N Gantenbein, Portland, 97227 Steve Wright [email protected] BIRRDsong Support Group 1st Saturday, 9:30-11 am Peer Support Group for Survivors & Family Wilcox Building Conference Room A 2211 NW Marshall St., Portland 97210 Next to Good Samaritan Hospital CROSSROADS (Brain Injury Discussion Group) 2nd and 4th Friday, 1-3 pm Independent Living Resources 1839 NE Couch St, Portland, OR 97232 Sarah Gerth, 503-232-7411 [email protected] FAMILY SUPPORT GROUP 3rd Saturday 1:00 pm-2:00 pm Self-help and support group Currently combined with PARENTS OF CHILDREN WITH BRAIN INJURY Emanuel Hospital, Rm 1035 2801 N Gantenbein, Portland, 97227 Joyce Kerley (503) 281-4682 [email protected] FARADAY CLUB Must be pre-registered 1st Saturday 1:00-2:30pm Peer self-help group for professionals with brain injury Emanuel Hospital, Rm. 1035 2801 N Gantenbein, Portland, 97227 Arvid Lonseth, (503) 680-2251 (pager) [email protected] HELP (Help Each Other Live Positively) 4th Saturday - 1:00-3:00 pm TBI Survivor self-help group (Odd months) TBI Family & Spouse (Even Months) Cognitive Enhancement Center 15705 S.E. Powell Blvd. Portland Or. Brad Loftis, (503) 760-0425 [email protected] Please contact at least two days in advance The Headliner Brain Injury Support Groups provide face-to-face interaction among people whose lives have been affected by brain injury. PARENTS OF CHILDREN WITH BRAIN INJURY 3rd Saturday 12:30 - 2:30 pm self-help support group. 12:30-1 pm Currently combined with THRIVE SUPPORT GROUP for Pizza then joins FAMILY SUPPORT GROUP Emanuel Hospital, Rm 1035 2801 N Gantenbein, Portland, 97227 Joyce Kerley (503) 281-4682 [email protected] Positive Brain Injury Support Group Must be pre-registered For career persons with brain injury Every other Monday 4:30- 6 pm 4511 SE 39th Ave., Portland, 97202 Call: Don Ford, (503) 297-2413 [email protected] Or Nancy Holmes, PsyD, (503) 235-2466 THRIVE SUPPORT GROUP 3rd Saturday 12:30 - 2:30 pm Teenage and Young adult Brain Injury Survivor support group Emanuel Hospital, 1075 2801 N Gantenbein, Portland, 97227 Northeast Portland Kate Robinson, 503-318-5878 SALEM COFFEE & CONVERSATION Fridays 11-12:30 pm Ike Box Café 299 Cottage St, Salem OR 97301 SALEM STROKE SURVIVORS & CAREGIVERS SUPPORT GROUP 2nd Friday 1 pm –3pm Salem Rehabilitation Center 2561 Center Street, Salem OR 97301 Scott Werdebaugh 503-838-6868 Ruby McEliroy 503-390-3372 VANCOUVER, WA *TBI Self-Development Workshop “reaching my own greatness” *For Veterans 2nd & 4th Tues. 11 am- 1 pm Spokane Downtown Library 900 W. Main Ave., Spokane, WA Craig Sicilia (509-218-7982; [email protected]) TBI Support Group 2nd and 4th Thursday 2pm to 3pm Legacy Salmon Creek Hospital 2211 NE 139th Street conference room B 3rd floor Vancouver WA 98686 Carla-Jo Whitson, MSW, CBIS [email protected] 360-991-4928 Spokane TBI Survivor Support Group 2nd Wednesday of each month 7 p.m. St. Luke's Rehab Institute, 711 S. Cowley, #LL1, Spokane, WA Craig Sicilia (509-218-7982; [email protected]) Michelle White (509-534-9380; [email protected]) Valerie Wooten (360-387-6428) IDAHO AND SURROUNDING TBI SUPPORT GROUPS Spokane Family & Care Giver BI Support Group 4th Wednesday of each month, 6 p.m. St. Luke's Rehab Institute, 711 S. Cowley, #LL1, Spokane, WA Melissa Gray ([email protected]) Craig Sicilia (509-218-7982; [email protected]) Michelle White (509-534-9380; [email protected]) TBI SOCIAL CLUB Location varies, call for times & locations Meets twice a month - days and times vary call for information Michael Flick, 503-775-1718 STARS/Treasure Valley BI Support Group 4th Thursday of each month 7-9 pm Idaho Elks Rehab Hosp, Sawtooth Room (4th Floor), Boise ID Kathy Smith (208-367-8962; [email protected]) Greg Meyer (208-489-4963; [email protected]) Greater Persons Toastmasters Club (for People with Brain Injury) 2nd Tuesday 6:00-7:00 pm Open to all including family members 2154 NE Broadway #110, Portland OR 97232 Caleb Burns, (503) 913-4517 Call in advance Southeastern Idaho TBI support group 2nd Wednesday of each month 12:30 p.m. LIFE, Inc., 640 Pershing Ste. A, Pocatello, ID Tracy Martin (208-232-2747) Clay Pierce (208-904-1208 or 208-417-0287; [email protected]) Greater Persons Toastmasters Club (for People with Brain Injury) Eastside Last Saturday of the month 10 am—11:30 am Open to all including family members Emanuel Hospital, M.O.B.-West 2801 N Gantenbein, Portland, 97227 Northeast Portland Caleb Burns, (503) 913-4517 Twin Falls TBI Support Group 3rd Tuesday of each month 6:30-8 p.m. St. Lukes’ Idaho Elks Rehab Hosp, Twin Falls, ID Keran Juker ([email protected]; 208-737-2126) Roseburg UMPQUA VALLEY DISABILITIES NETWORK For survivors of brain injury and family members or caregivers of survivors 2nd Monday 12 noon - 1:15pm 736 SE Jackson St, Roseburg, OR 97470 (541) 672-6336 [email protected] Salem (3) SALEM BRAIN INJURY SUPPORT GROUP 2nd & 4th Thursday 4pm-6pm Salem Rehabilitation Center, Conf Rm 2 A/B 2561 Center Street, Salem OR 97301 Megan Snider (503) 561-1974 [email protected] The Headliner Stevens County TBI Support Group 1st Tuesday of each Month 6-8 pm Mount Carmel Hospital, 982 E. Columbia, Colville, WA Craig Sicilia 509-218-7982; [email protected] Danny Holmes (509-680-4634) *Northern Idaho TBI Support Group *For Veterans 3rd Sat. of each month 1-3 pm Kootenai Med. Center, 2003 Lincoln Way Rm KMC 3 Coeur d’Alene, ID Sherry Hendrickson (208-666-3903, [email protected]) Craig Sicilia (509-218-7982; [email protected]) Ron Grigsby (208-659-5459) Quad Cities TBI Support Group Second Saturday of each month, 9 a.m. Tri State Memorial Hosp. 1221 Highland Ave, Clarkston, WA Deby Smith (509-758-9661; [email protected]) Summer 2011 Spokane County BI Support Group 4th Wednesday of each month 6:30 p.m.-8:30 p.m. 12004 E. Main, Spokane Valley WA Craig Sicilia (509-218-7982; [email protected]) Toby Brown (509-868-5388) Spokane County Disability/BI Advocacy Group 511 N. Argonne, Spokane WA Craig Sicilia (509-218-7982; [email protected]) Moses Lake TBI Support Group 2nd Wednesday of each month, 7 p.m. Samaritan Hospital 801 E. Wheeler Rd # 404, Moses Lake, WA Jenny McCarthy (509-766-1907) Pullman TBI Support Group 3rd Tuesday of each month, 7-9p.m. Pullman Regional Hospital, 835 SE Bishop Blvd, Conf Rm B Pullman, WA Alice Brown (509-338-4507) Pullman BI/Disability Advocacy Group 2nd Thursday of each month, 6:30-8:00p.m. Gladish Cultural Center, 115 NW State St., #213 Donna Lowry (509-725-8123) page 27 NON-PROFIT ORG U. S. Postage PAID PORTLAND, OR PERMIT NO. 3142 www.biaoregon.org/posters.htm March 1-3, 2012 Sheraton Portland Airport Hotel Portland, Oregon Living with Brain and Spinal Cord Injury & Disease: Striving for Excellence The 10th Annual Pacific NW Brain Injury Conference 2012 Calling for Presenters The Brain Injury Association of Oregon PO Box 549 Molalla OR 97038 Vehicle Donations How To Contact Us Brain Injury Association of Oregon (BIAOR) PO Box 549 Molalla, OR 97038 (503) 740-3155 Toll free: (800) 544-5243 Email: [email protected] Website: www.biaoregon .org Fax: 503-961-8730 BIAOR Open [email protected] BIAOR Advocacy Network [email protected] Through a partnership with VDAC (Vehicle Donations to Any Charity), The Brain Injury Association of Oregon, BIAOR, is now a part of a vehicle donation system. BIAOR can accept vehicles from anywhere in the country. VDAC will handle the towing, issue a charitable receipt to you, auction the vehicle, handle the transfer of title, etc. Donations can be accepted online, or call 1-866-332-1778. The online web site is http://www.v-dac.com/ org/?id=930900797 This newsletter was sponsored in part by cbirt.org. page 28 Thank you to all our contributors and advertisers. Summer 2011 The Headliner