Document 6566226

What is CDKL5?
CDKL5 (Cyclin-Dependent Kinase-Like 5) disorder is a rare genetic condition that was first
identified in 2004. It is caused by mutations in
The International Foundation for CDKL5 Research (IFCR)
was formed in 2009 by a group of dedicated parents
whose children have CDKL5.
identified in boys, because of the location of the
IFCR is a 501(c)(3) non-profit, whose mission is to fund
global research efforts in search of a cure; to raise awareness of CDKL5 disorders; and to support families affected
by CDKL5 by providing information, education, and resources.
gene, this disorder mainly affects girls. The
For more information, please visit: www.cdkl5.com
the CDKL5 gene, which is found on the Xchromosome. Although many cases have been
cause of a CDKL5 mutation and the incidence
of CDKL5 disorder are not known at this time.
The CDKL5 gene provides instructions for making a protein that is essential for normal brain
and neuron development.
Most of the children affected
by CDKL5 suffer from uncontrollable seizures that begin in the first few months of
life. Most cannot walk, talk or
feed themselves, and many
are confined to a wheelchair,
International Foundation
For CDKL5 Research
dependent on others for everything.
Please visit our website for a more comprehensive list of signs and symptoms.
http://cdkl5.com/Default.aspx
Google: CDKL5Juanjose (First giving Fundraising)
For more information contact: Patsy
E-mail: [email protected]
Phone: (505) 831-8841
KIT CARSON PARK
Saturday, October 18th
Making a difference…
In a child’s life!!
Pre-Registration
Event Schedule
Saturday October 18, 2014
Check-In & Registration 8:30 am
Name:
Address:
Contact #:
E-Mail:
Walk begins 10:00 am
Where:
Mail: Entry Forms, Pledge sheets & checks to:
CDKL5/Patsy P.O. Box 12064 Alb., NM 87195
KIT CARSON PARK
1744 Kit Carson Ave. SW
(Across from the Tingley Duck Pond)
Walk-a-Thon Entry Form
Please copy this form for additional entries.
Pledge sheet provided at request ([email protected]).
Check below to indicate your level of participation.
Raffle-Great Prizes-Family Fun
We encourage you to bring your family,
friends, co-workers and acquaintances to
help us celebrate our children and raise
awareness of CDKL5.
Optional
Package Includes: $20.00
T-shirt, Tote Bag, Bottled Water
and Snack
T-Shirts: $12.00
Other Items Available: $10.00
Mug
Tote Bag
Baseball Cap
___I will walk
___I will walk and I am submitting donation or
Pledge Form
___I will not walk
___I will not walk but I am submitting donation from
myself and or from donors who want to support
CDKL5 Research.
___I’d like to purchase a
Package_____
T-Shirt: Size_____ Cap_____ Tote Bag_____ Mug____
Liability Waiver
In consideration of my entry, I hereby for myself, my heirs,
executors and administrators, waive any release of rights
and claims for damages I may have against the IFCR ,
Tingley Park, City of Alb., the Munoz family & support
group of this event-named or unnamed, to participate in,
and returning from this event. I grant permission to all
forgoing to use any photographs, pictures, recordings, or
any other records of this event for any legitimate purpose.
Signature:
If under age 18, parent or guardian signature is required.
Rain or Shine
Please, help us find a cure!
We can’t do it without you!
In the past year, IFCR has been engaged in critical
research projects thanks to your generous support,
but we can’t stop yet. There is so much more to do,
and we have an abundance of hope….together we can
find a cure for our children!
**Represent CDKL5 Wear**
Lime Green / White Colors
Donation Greatly Appreciated
Please make donation checks payable to:
International Foundation for CDKL5 Research
Donate Online: www.cdkl5.com or
Google: CDKL5JUANJOSE/Firstgiving Fundraising