At-risk pregnant women: under surveillance, coerced, passively
Transcription
At-risk pregnant women: under surveillance, coerced, passively
At-risk pregnant women: under surveillance, coerced, passively engaged or actively engaged? Rosa Flaherty PhD Student Australian Centre for Child Protection, Adelaide, Australia Email: [email protected] Overview 2 At-risk pregnant women – who are they? • Pregnant women living in circumstances where there are serious health risk factors for example violence, alcohol & other drug addiction, unmanaged mental illness, disability, homelessness & sex work (Australian Health Minister’s Advisory Council, 2012; Duff et al., 2014; McConnell, et al., 2008) • Apart from the direct physical effects of exposure to these circumstances, these issues can also contribute to a lack of antenatal care 3 Laws & processes enabling information sharing about at-risk pregnant women • Child Protection legislation enabling reporting of, and sharing information about, unborn children at risk e.g. Australian legislation includes Children & Young Persons (Care and Protection) Act, 1998; Children & Community Services Act, 2004; Children Youth & Families Act, 2005; Children & Young Persons & their Families Act, 1997; Child Protection Act, 1999; Children & Young People Act, 2008 • “Fetal protection” laws in other countries e.g. Texas Prenatal Protection Act (2003) • Local Safeguarding Children Boards UK (National Collaborating Centre for Women‘s and Children‘s Health, 2010) • Interagency Codes of Practice (e.g. Government of South Australia, 2013) 4 Goals of prenatal support to at-risk pregnant women Four goals: 1. Healthier birth outcomes for the mother 2. Healthier birth outcomes for the newborn 3. Mother more able to provide adequate care for the newborn 4. Statutory agency can monitor welfare of newborn 5 How do we intervene? Current international responses • • • • Scotland: A pathway of care for vulnerable families (0- 3) (2011) England: Pre-birth child protection conferences/reviews USA: Healthy Families initiatives, Nurse Home Visiting NZ: Array of services e.g. CADS – Pregnancy & Parental Service, women’s refuge, government policy e.g. Ministry of Health (2010). Alcohol and Pregnancy: A practical guide for health professionals. • • • • AUS: non-government Brighter Futures program Compulsory treatment via applying law Persistent international media interest in the issue of prenatal harm What is your country’s thinking on prenatal harm? 6 Unborn child “High Risk Birth Alert” 7 Literature review A: Zero peer reviewed papers on the specific form of intervention: “High Risk Birth Alert”. This is despite its widespread use & the amount of resources involved in activating & responding to such an alert. • Literature was discovered on the related processes of prebirth assessment (Calder, 2000; Hart, 2010); legal action to separate newborn babies from their parents – UK (Masson & Dickens, 2014); and, • Related discourses that could make a predictive contribution to the at-risk woman’s journey through the prenatal service delivery pathway. 8 • • • • Literature review highlighted 4 dominant discourses related to at-risk pregnant women Bad mother Fetus-centred Risk Woman-centred Why it matters: the lens you look through may strongly influence your practice 9 Bad mother discourse • Bad mothers are those that have chronic issues e.g. substance abuse while pregnant and need intervention from government (Reid et al., 2008) • Bad mother discourse promotes the rights of the fetus above the pregnant woman’s rights (Smith, 2006) • Bad mother discourse is further compounded by the judgment that the woman is responsible for her circumstances i.e. she should stop taking drugs while pregnant; she should not get pregnant if she has an intellectual disability or mental illness; it is her fault if she is homeless (Fordyce, 2014) 10 Bad mother discourse – possible impact on the prenatal journey • • One of the objectives of the high risk birth alert is to monitor the movements of the pregnant woman including the baby’s birth The conceptualisation of at-risk pregnant women as ‘bad mothers’ who engage in nonauthorised, immoral or unhealthy behaviours can promote monitoring and surveillance of their movements (Campbell, 2005; Fordyce 2014) • If the pregnant woman is conceptualised as a ‘bad mother’ who needs monitoring, her pathway through the service system may amount to no more than (a) being identified in the health system database at the time the alert is issued and (b) the child’s birth reported GOALS 1.Healthier birth outcomes for the mother 2. Healthier birth outcomes for the newborn 3. Mother more able to provide adequate care for the newborn 4. Statutory agency can monitor welfare of newborn 11 Fetus-centred discourse • Fetus-centred discourse reflects the rights of the fetus, outstripping the rights of the pregnant woman (Epstein, 1995; Greaves et al., 2002) • Fetus-centred discourse conceptualises the fetus as a citizen, and the pregnant woman primarily as the carrier of a fetus who must have its rights protected (McCulloch, 2012) • Fetus-centred discourse is reflected in fetal protection laws (Cherry, 2007) 12 Fetus-centred discourse - possible impact on the prenatal journey • Conceptualising the fetus as a citizen in need of protection can result in the atrisk pregnant woman being offered a narrow pregnancy service, where she is ‘directed’ to attend antenatal care in the best interests of her fetus • The high risk birth alert process is a system that is aimed at fetus-protection – the alert arises in response to a prenatal report, to the statutory child protection agency, on the welfare of the fetus GOALS 1.Healthier birth outcomes for the mother 2. Healthier birth outcomes for the newborn 3. Mother more able to provide adequate care for the newborn 4. Statutory agency can monitor welfare of newborn 13 Risk discourse • Risk discourses as proposed by Lawless et al. (2014) & others, can construct ‘risk’ in order to oversee and provide rationale for stateinitiated interventions • Risk discourse includes key foci of risk: prevention, management & reduction (Lupton, 2012;) & can be specifically applied to at-risk pregnant women within the emerging field of infant mental health (Lawless et al., 2014; Salmon, 2011) • Some risks to healthy pregnancies are seen as ‘preventable’ e.g. substance use 14 Risk discourse - possible impact on the prenatal journey • • In the context of the unborn child protection high risk birth alert, the risk discourse could explain the circumstance where both the GOALS pregnant woman and the service practitioner are engaged in the process ‘passively’ – to reduce risk 1.Healthier birth outcomes for the mother Provision of services to at-risk pregnant women & and being seen to be trying to reduce risk is steeped in risk calculation, reduction and management of this 2. Healthier birth outcomes for the newborn high-risk population 3. Mother more able to provide adequate care for the newborn • Risk to the pregnant woman & fetus is presumably reduced by receiving antenatal care, and risk to state authorities is presumably reduced as authorities are perceived to be taking action to 4. Statutory agency can monitor welfare of newborn protect the fetus 15 Woman-centred discourse • Woman-centred discourse reflects the ideology that the needs of the woman are assessed & addressed (Hunting & Browne, 2012) • Woman-centred discourse emphasises the woman (rather than the fetus) as the foremost recipient of services and acknowledges the woman has capacity to change (Marshall & Woollett, 2000) • A woman-focussed approach may help practitioners feel more confident in their work & reduce some of the barriers to seeking, engaging with and maintaining engagement with health & social care (Gunn et al., 2006; Poole & Greaves, 2009; Racine et al., 2009) 16 Woman-centred discourse - possible impact on the prenatal journey • The conceptualization of an at-risk pregnant woman within a womancentred discourse may enable better assessment of the woman’s needs • Women within the womancentred discourse are more likely to be perceived and construed as worthy and needing help GOALS 1.Healthier birth outcomes for the mother 2. Healthier birth outcomes for the newborn 3. Mother more able to provide adequate care for the newborn 4. Statutory agency can monitor welfare of newborn 17 Implications • Currently using a system (high risk birth alerts) that has no peer-reviewed evidence base • Lack of evidence hopefully promotes enthusiasm to advocate via research & policy responses including strong consideration of the benefits of joined up services • Joined up services – integrated service system, cooperative crossagency policy, community expectation that appropriate help will be provided to this vulnerable group (Garrett, 2004; Winkworth & White, 2011) • While all pathways (surveillance, coercion, passive engagement & active engagement) may all have a place in prenatal service delivery with at-risk women, what can we do to optimise opportunities for facilitating active engagement? 18 Future Research • Mixed methods research is underway in Australia via the Australian Centre for Child Protection at the University of South Australia • Study design = interviews with women who were at-risk while pregnant + surveying staff across health, statutory child protection and the non-government sector who provide services to, manage staff who provide services to or write policy for at-risk pregnant women + developing and testing a theory of change for the prenatal service delivery model of care Thank you 19