Spring 2015 - ALS Society of Canada

CONNECT
ALS Society of Canada
Société de la SLA du Canada
Spring 2015
CANADA
NEW DRUG
TRIAL FOR ALS
MANAGING THE
JOURNEY THROUGH ALS
ALS Canada Equipment Program
EVERLASTING
LOVE
COMING TOGETHER
TO CHANGE THE
FUTURE OF ALS
GET INVOLVED
A new volunteer
program at ALS Canada
MY HUSBAND HAS ALS
MESSAGE
FROM
TAMMY
MOORE
CEO
challenging and therefore more costly to
solve. Due to a relatively small population
that is living with the disease, it has made it
more difficult to secure funding.
• As early as December funds from the Ice
Bucket Challenge and matching funds from
Brain Canada were used for additional
Discovery Grants and the Arthur J Hudson
Translational Research Grant.
• We will continue to make investments that
will:
Between August 8 and December 31 2014, over
$17 million was raised within Canada through the
Ice Bucket Challenge. Leveraged with a match
of an additional $10 million from Brain Canada
and the Federal Government the total is over $27
million for ALS research and support services
for the ALS community in Canada. Globally the
number is estimated at $220 million.
While it is a significant amount of money that
was generated, it is still a ‘drop in the bucket’
to what is needed.
The Economic Burden of ALS study1 that was
published in 2014 demonstrated the cost to a
working age, Canadian family to be $150,000 $250,000 in direct and indirect costs over the
short window of the diagnosed person’s life.
• ALS Canada fulfills a crucial role in Ontario in
helping approximately 1100 people living with
ALS and their families to navigate the realities
of ALS through in-home visits, education,
support and bereavement groups and the
provision of equipment whether through
an established loan pool or direct funding.
The support that we have been providing for
many years helps offset some of the costs
associated with the financial and emotional
burden.
• We will be making investments with the funds
from the Ice Bucket Challenge to ensure our
core programs are sustainable for the future
and identifying other projects that will help
ease the hardships associated with ALS.
ALS is a complex disease, so understanding
the cause and potential treatment is more
- accelerate research discoveries;
- foster collaboration and infrastructure within the Canadian research community.
We continue to advocate at a federal level for
changes to the Compassionate Care Benefit.
This would provide caregivers with income
support for 35 weeks instead of the 6 weeks
that is offered within the current program. Given
the profile of the meetings we have had with
government officials and bureaucrats in Ottawa
we are hopeful that we may see the change in
the Federal Budget for 2015. Depending on the
number of people who access the program, it
is estimated this could provide $5M - $10M in
direct income support annually to Canadian
families living with ALS.
As a solely donor funded organization, we are
now gearing up for our significant events which
happen between May and October. We hope you
will come out and support one of the 32 WALKs
for ALS which will be held in Ontario. In 2014
we had a goal of $1.775M for Ontario and raised
$2.1M, we have now set a target of $2.25M for
Ontario and $4.3M for Canada for the WALKs.
Not only are the WALKs a significant fundraiser,
they are also a tremendous way for the ALS
community to come together – both for people
currently living with ALS but to also remember
and honour people who have passed away. As
I attend the WALKs around our province, I am
constantly touched by the incredible people I
meet and their very powerful, personal stories.
The ALS Canada Golf Classic on Thursday
June 4, will be held at the prestigious private
King’s Riding Golf Club. Bring a foursome and
join us at this renewed tournament. The
ALS Canada Bombardier Plane Pull will be
moving to the early fall – stay tuned for more
information on this novel team building activity.
For the cycle enthusiasts, come join us for either
a 20 or 70km ride at the Jim Hunter ALS Cycle
for a Cure on September 27.
At ALS Canada, we are honoured to serve the
brave people who live with the realities of ALS.
We are incredibly appreciative of all of the
volunteers who give so tirelessly to support
the needs of the community and raise the
much needed funds. We have tremendous
gratitude for the many donors who continue
to support the cause. Together, we will make
ALS a treatable, not terminal disease.
Economic burden of amyotrophic lateral sclerosis: a
Canadian study of out-of-pocket expenses. Gladman M. et
al. (2014)
1.
MANAGING THE
JOURNEY THROUGH ALS
ALS Canada Equipment Program
IN THE
KNOW
By Eleanor Leggat,
Vice President of Support Services
The equipment program has continued to be
the focus of much activity over the summer and
fall months of 2014. A committee comprised
of board members, clients, healthcare
professionals and staff was chartered to
oversee a detailed review of the existing
equipment program. The purpose of the review
Brigitte Labby
North East
[email protected]
Charlene Spector
South West, Grey-Bruce
& Niagara
[email protected]
own Regional Managers regarding their
experiences with the current equipment
program and suggestions regarding key
elements of an equipment program.
In reviewing the information, very similar
issues/concerns were found regardless of
the location of the program. The nature of
equipment programs was found to be highly
influenced by government programming/
funding and the size of the population served.
All equipment programs reviewed presented:
• consistency in efforts in streamlining of
systems and processes to find efficiencies
Laurie Laxer
Mississauga, Halton
& Niagara
[email protected]
Joanna Oachis
Central West,
Waterloo Wellington
[email protected]
• need to collaborate with community based
health professionals
The meetings with families, clients, caregivers
and healthcare providers were held in person,
teleconference and webinars. In the course of
these meetings it was noted that:
• the participants were highly committed to
the equipment program
• the range of opinions as to equipment
preferences and what is considered “core
equipment” varied significantly
• the Occupational Therapists were being
proactive in terms of identifying required
equipment earlier.
• Participants provided a range of suggestions
for practical improvements to the equipment
program.
MEET ALS CANADA’S
REGIONAL MANAGERS
Sarah McGuire
Simcoe –York-Muskoka
[email protected]
Kim Barry
Central East
& Thunder Bay
[email protected]
is to ensure the equipment program continues
to operate in the best way possible so that ALS
Canada is able to meet the growing needs of
clients across Ontario. The committee created
guiding principles to ensure a fair and unbiased
approach is adhered to in the review process.
Information was gathered on other charities
with equipment programs from across Canada,
the United States and overseas. Input was
also obtained through meetings with clients,
families, families who have lost loved ones,
ALS clinic staff, health professionals and our
Sarah Reedman
Toronto
[email protected]
Lianne Johnston
South East
& Champlain
[email protected]
• cost savings through centralization/reduction
in number of vendors, simplification and
standardization of processes and systems
Some changes included improved inventory
tracking and rationalization and thinning of
inventory. During the information gathering
process consistent elements identified across
all equipment programs were the:
• use of a financially based means test;
• importance of relationship building
In your community, our committed and
compassionate team of Regional Managers
work with clients and families managing
their journey through ALS.
As we move into 2015, to ensure ALS Canada
adheres to the commitment of supporting
ALS clients to live at home/place of residence
(outside of a government funded facility) as
comfortably as possible and also ensuring that
ALS Canada is financially sustainable over time,
based on the analysis of all the data collected,
the information gathered will be integrated
into a renewed equipment program. In Spring
2015, the equipment program will be brought
to clients, family members and healthcare
professionals for a final consultation prior to
implementation of any changes.
IN THE KNOW | Page 3
IN THE KNOW
NATIONAL
VOLUNTEER WEEK
GET
INVOLVED
A new volunteer
program at ALS
Canada
By Vanessa Blount, Director Policy and
Program Development
Volunteers are central to what we do everyday.
Each year we are fortunate to welcome
approximately 300 volunteers into ALS Canada.
This year, we are launching a volunteer program
called the ALS Canada Ambassadors.
This new program is for people who want to
get more deeply involved in the ALS community
and ALS Canada. Ambassadors will take on a
leading role as a guest speaker on behalf of
ALS Canada, conducting speaking engagements
to a diverse set of audiences like government
officials, community stakeholders and the
public. The aim is to educate and inform about
ALS, our organization and the ALS community.
As this is the inaugural year for the program, we
will be testing new and exciting environments
with the team. We are looking for experienced
volunteers who have an interest in public
engagement, communications and are active
members within the ALS community and/or
have a strong connection to ALS Canada.
This could be you. Watch for the ALS Canada
Ambassadors page and application posted on
als.ca in September 2015.
Page 4 | IN THE KNOW
Did you know Canada has an estimated 13.3 million volunteers? Along side other charities, ALS
Canada will celebrate National Volunteer Week from April 12-18, 2015.
Join ALS Canada on Facebook and Twitter during National Volunteer Week and give a shout out
to our volunteers or someone special you know who volunteers.
Volunteer Canada will be celebrating volunteers with the National Volunteer Week symbol, a rock.
This symbol represents the ripple effect of how one person can make a difference. Available at
the National Volunteer Gift Store, you can purchase rocks that feature the engraved message,
Volunteers Rock. For more information visit, http://volunteer.ca/nvw2015.
ALS MAKES HISTORY
ON THE HILL
November 19 was a landmark moment for the ALS community and ALS Canada. On this day,
we announced our partnership with Brain Canada and the Government of Canada’s matching
gift of $10 million to be directed towards ALS research. A ground breaking achievement thanks
to the ALS Ice Bucket Challenge and our team’s ability to continue to honour the integrity in
stewarding your donor dollars.
MY HUSBAND HAS
ALS
By Zaga Poznan
My name is Zaga Poznan, and I am Milan’s
wife of almost 44 years. We met in the fall of
1970 on campus at the University of Belgrade
in Serbia (at that time Yugoslavia). We fell in
love - probably at first sight - and have been
that way all these years. In 1972, we moved
to Canada.
What I love about my husband the most are his
eyes because they are truly the windows into
his heart and soul. He was and still is a gentle
giant, personified. The man does not have a
mean bone in his body. He loves everyone and
gives people a lot more leeway than most of
us would. I have not yet met anyone who does
not like my husband.
October 1, 2008, was the day the doctors
pronounced Milan’s diagnosis. Milan had ALS.
That was the day I mourned my husband’s death.
Time stopped; our world changed completely
and the constant heartache moved in. Today,
Milan is in a long term healthcare facility.
Everyday I am losing him one day at a time
and there is nothing anyone can do to stop it
or reverse it.
ALS shattered all our plans for a peaceful,
relaxed and joyful retirement. It also took
away the pleasure of helping our only daughter
with her infant son. It put unforeseen financial
burden on our family and despite taking away
some of our friends, this disease has also
introduced me to some amazing new ones.
For me, the hardest part was getting used to
living alone (which I did not do since my 20’s). It
brought health issues related to a tremendous
amount of stress but also gave me the strength
and resolve to go forward and do all that I
can to help Milan live a dignified existence.
Milan with his two best friends Frank Aylward and Ray McKinnon
The one thing that I have learned from Milan
and his seven years of living with ALS is that you
do not know how much you love life until you
are on the brink of death. Also, no one should
have the right to decide someone else’s faith, as
long as that person has the smallest chance to
communicate their own wishes. Milan, in spite
of the debilitating effects of ALS on his body
and mind still believes and hopes that a cure
will be found. He wakes up every morning with
a smile and hope on his face and in his heart.
He and I both believe in the power of the human
mind and hope that there is somewhere in this
world a brilliant scientist working fervently to
decode the mystery of ALS!
I have witnessed that a positive attitude and a
load of love and care can be an amazing weapon
in the fight against this awful disease. I have
found that compassionate healthcare works
miracles; a kind word, a gentle hand and a
sunny day without a wind brings so much joy
to my husband.
For all of those other wives/husbands out there
going through this awful journey, I just want to
say to be prepared that it may be a long and
difficult battle – a battle that you will not want
to take alone. Accept help from your family
and friends. And know that you are not alone.
By Frank Aylward
My name is Frank Aylward. Milan is my friend
and former colleague. We met about thirteen
years ago and struck it off well.
Milan is a fine gentle person with a very big
heart. He always put others’ needs first. He has
a great big smile that is uplifting and makes
you feel better just to be around him. He has
taught me that life is very precious and not to
take life for granted. I feel very lucky to have
a good friend like Milan.
IN THE KNOW | Page 5
IN THE
NEWS
NEW DRUG
TRIAL FOR ALS
In partnership with Brain Canada and the Government of Canada,
we are proud to announce the first research grant from the
funds raised from the ALS Ice Bucket Challenge.
The Arthur J. Hudson Translational Team Grant will be used to
test clinical response to the drug pimozide, as well as to examine
a potential new biomarker test for understanding how this drug
therapy works in ALS patients and determine which patients
would best respond to this therapy.
Pimozide is a Health Canada approved drug for patients with
schizophrenia and Tourette’s syndrome, which has shown to
be effective in stabilizing neuromuscular function, thereby
strengthening the connection between our motor neurons and
muscles. The team’s hypothesis is that treatment with pimozide
may slow down the paralysis in ALS patients.
The trial is being led by Dr. Lawrence Korngut at the University
of Calgary and Dr. Lorne Zinman at Sunnybrook Health Sciences
Centre. It will test the safety and efficacy of this potential
treatment on 100 ALS patients across eight ALS clinics in Canada.
If proven effective, pimozide will be tested in a larger trial to
examine if it can be used as a marketed therapeutic to slow
down ALS progression in the wider population.
We will provide more information about the trial (sites, timelines)
as it gets closer to recruiting.
Page 6 | IN THE NEWS
TWEETABLE RESEARCH
#makealstreatablenotterminal
By Dr. David Taylor, Director of Research
@ALSCanResearch @ALSCanada
Over the past year, thanks to your generous
donations, ALS Canada has been able to fund
multiple research projects with top Canadian
researchers across the country. On a daily basis,
we collaborate with a network of researchers
to ensure your dollars make an impact in the
field of ALS.
Here is a summary of the projects you helped
fund in 2014. For more information and details
of each project visit als.ca.
ALS CANADA BRIDGE GRANTS
Our Bridge Grants offer short-term funding
of 1-2 years to keep the momentum of
research projects when they fail to receive
full government funding.
Dr. Neil Cashman
University of British Columbia
Studying if non-mutant SOD1 could cause
ALS by a change in its structure to a toxic form
& if that starts a cascade of toxic SOD1 formation
Dr. Jasna Kriz - Université Laval
Examining crucial factor (IL-10) in bad
activation of immune cells (microglia) before
and during ALS & hoping it is a new target for
therapy
Dr. Steven Plotkin - University of British
Columbia
DISCOVERY GRANTS
Five recipients received the Bernice Ramsay
Discovery Grants. Each grant provides funding
for one year ($100,000 per recipient) to build a
foundation of data for novel, ‘outside-the-box’
ideas in ALS research.
ALS CANADA BRAIN CANADA DISCOVERY
GRANTS
Dr. Heather Durham - Montreal Neurological
Institute
Examining the pathways that affect the
upper branches of motor neurons called
dendrites and what causes them to shrink in ALS
Dr. Charles Krieger -Simon Fraser University
Novel treatment strategy using bone
marrow cells to deliver substances that target
& eliminate toxic factors in diseased brain &
spinal cord
Dr. Alex Parker - Université de Montréal
Using worms to examine how a form of
the immune system (called innate immunity),
previously not studied in ALS, plays a role in
the disease
Dr. Janice Robertson -University of Toronto
Identifying substances interacting with
C9ORF72 (most prominent genetic cause of
ALS) to better understand pathways disrupted
in the disease
Dr. Melanie Woodin -University of Toronto
Using computers to understand how SOD1
structure changes to toxic form & find new
ways to design therapies that bind & eliminate
toxic SOD1
Studying upper motor neurons for early
causes of excessive firing possibly involved
in causing ALS & looking for ways to rescue
the effect
Dr. Michael Strong - University of Western
Ontario
BERNICE RAMSAY CLINICAL RESEARCH
FELLOWSHIP
Dr. Amanda Fiander - University of Calgary
Learning more about RGNEF, a newly
identified substance causing a genetic form
of ALS & seeing if it could be a new target for
therapy
Dr. Marvin Chum - Western University/London
Health Sciences Centre
London neurologist to train in specialized
care of ALS & research into clinical trials, as
well as improved palliative/end-of-life
ALS CANADA DOCTORAL AWARD
This award provides $105,000 spread over three
years, for salary of a promising PhD student
who will work on ALS.
Alexandra Lissouba Tatarinoff - Université
de Montréal
Seeking pathways affected in two fish ALS
models from different mutations - common
mechanisms, but different origins = new
treatment targets
TIM E. NOËL POSTDOCTORAL FELLOWSHIP
The Tim E. Noël Postdoctoral Fellowship provides
$165,000 spread over three years for salary of
a promising postdoc, nurturing bright young
minds into focusing on ALS as a potential career
Dr. Claire Leblond - Montreal Neurological
Institute, McGill University
Looking for spontaneous/somatic (noninherited) mutations occurring in known ALScausing genes of people who have sporadic
disease
ARTHUR J. HUDSON TRANSLATIONAL TEAM
GRANT (2015)
Lawrence Korngut & Lorne Zinman - University
of Calgary & Sunnybrook Health Sciences
Centre
New clinical trial of pimozide - 8 ALS centres
across Canada - 100 participants & study of
biomarker to determine who is likely to benefit
To learn more about these projects,
visit ALS.CA.
NFLD/PEI neurologist trains in Calgary to
specialize in ALS care & clinical trial research
- hope of leading a future new Maritime clinic
IN THE NEWS | Page 7
IN THE
COMMUNITY
L
PLACANNADEA PUL
FOR ALS
COMING
TOGETHER TO
CHANGE THE
FUTURE OF ALS
ALS CANADA
GOLF CLASSIC
L
PLACANNADEA PUL
FOR ALS
2013
September 13, 2015
June 4, 2015
September 27, 2015
One Plane. One Rope. One Great Cause.
Gather your foursome and hit the fairway
at this year’s ALS Canada Golf Classic. A
brand new venue, this year we will be at the
private King’s Riding Golf Club in King City.
Site of the 2000 Canadian PGA Championship,
King’s Riding Golf Club is a strategically
sophisticated course measuring 6,502 yards
with a par of 71 that will challenge elite
players.
In partnership with the Hunter Family, this
cycling fundraiser is a 20 km or 70 km ride
raising money for ALS research. This year
we are proud to welcome partners, the Tanz
Centre for Research in Neurodegenerative
Diseases (University of Toronto) and
Sunnybrook Foundation.
A unique event that provides a once-in-alifetime opportunity – pulling a 37,000lb
Bombardier Q400 NextGen aircraft. Are you
up for the challenge? Sign up a team of ten
and see if you can go the distance.
als.ca/planepull
als.ca/golfclassic
Page 8 | IN THE COMMUNITY
alscycleforacure.ca
MAY
9
• Peterborough
18
• Halton Region
30
• Kingston
• Toronto
• Peel Region
JUNE
6
• Alliston
• Orangeville
• North Bay
7
• York Region
• Cornwall
• Niagara Region
• Georgetown/Acton
13
• Almonte
• Barrie
• Kitchener-Waterloo
• Ottawa
20
• Durham Region • Hamilton • Sudbury
27
• Sault Ste. Marie • Wingham
• Scarborough
12
• Brampton
19
• Belleville-Quinte • Parry Sound
26
• London
27
• Mount Elgin
SEPTEMBER
• Smiths Falls
• Thunder Bay
• Timmins
• Smiths Falls
Virtual WALK for ALS is available 365 days, 24/7
The WALK for ALS is the largest
fundraiser for the ALS Societies
across Canada. Donations given
through the WALK provide essential
equipment and support for people
living with ALS and fund critical
research to make ALS a treatable,
not terminal disease.
With 32 WALKS in Ontario and over
90 across Canada, there’s a WALK
for ALS near you. Join us and help
raise $4.3 million nationally; $2.25
million in Ontario.
WALKforALS.ca
RAISING AWARENESS FOR ALS
One Bracelet at a Time
By Jacqui Devine
In 2012, we started noticing something was
different about dad. After a year of tests, which
included acid reflux, throat cancer and CT
scans, my dad was diagnosed with ALS on
August 8, 2013.
It’s really hard to explain what a family goes
through when this happens. But for my dad,
spirit-wise, he is great. He can still walk around
but can not go long distances. He uses his BiPaP everyday and has a feeding tube, suction
and cough assist machine. My dad has always
had a sense of humour and still jokes around
with my mom.
A few weeks after my dad was diagnosed the
first thing that crossed my mind was “Do I move
back home to help my mom and dad?” I live
in Pickering but my parents live in Glencoe,
three hours away. I asked my parents “What
do you want me to do?” My dad said, don’t
stop your life for me. I didn’t, but I needed to
do something to help.
I went online and found ALS Canada. I looked
up the volunteer section and right away got
involved volunteering at various fundraising
events. Since then I have participated in the
Bombardier Plane Pull, the ALS Canada Golf
Classic, the London and Durham Region WALK
for ALS and the Hike for ALS. The events are a lot
of fun, raising awareness, and the fundraising is
definitely needed. But putting all of those things
aside, I like these events the most because I
have met so many people that have helped
me. They have been a great support system.
Still I wanted to do something more.
On the anniversary of Lou Gehrig, I had an idea
to make bracelets to help raise awareness and
money for the ALS community. I have never
made bracelets before, but I was determined
to succeed. Today, I make bracelets made out
of different beads like Shamballa beads, and
beads made out of glass, plastic and metal. All
of my bracelets are nickel-free. Now I sell my
bracelets through word-of-mouth and through
my Facebook page https://m.facebook.com/
raisingawareness1braceletatatime
What I have learned through our family’s journey
with ALS is you have to look at things day by
day and lean on those that love you.
Don’t give up. There’s so much to life and you
never know what tomorrow will bring.
IN THE COMMUNITY | Page 9
IN THE COMMUNITY
EVERLASTING LOVE
By Debbie Fortune
I met Mark in June 2008 when we were both
employed by Sobeys. He was such a nice man
- kind, considerate, thoughtful, funny, and so
handsome. He was a real gentleman. We became
good friends and two years later in 2010 we
started dating. He was the man I had looked
for my whole life. When we started dating I
remember thinking that I was so lucky because
I was dating my best friend. We enjoyed picnics
at the beach, romantic dinners, laughter and
we held hands like two teenagers in love.
In April-May of 2011, we noticed that something
was wrong. Mark would trip walking in my
back door, his speech was different and he
told me “my legs are heavy”. In July of 2011,
Dr. Shoesmith at London University Hospital
confirmed that Mark had ALS. We had been
Page 10 | IN THE COMMUNITY
dating for 9-months and were planning on
buying a house and spending the rest of our
lives together.
Once the shock wore off I thought that I can
sit here and wait for ALS to rear its ugly head
or we can live our lives. In September of 2010
on our one year anniversary, Mark put an
engagement ring on my finger and asked me
to share his life. We moved in together with my
12-year old daughter and between the three of
us, made memories to last a lifetime.
ALS took Mark’s life in October 2012, two weeks
before his 50th birthday. I was devastated
beyond words. This amazing man who showed
us nothing but strength and courage; who
laughed and smiled almost everyday of the
16-months that he lived with ALS, was gone. I
couldn’t wrap my head around loosing him. I
walked in circles. I looked for his car and when
I would come home I expected him to be there.
After a period of time I thought to myself I can
sit here and feel sorry for myself or I can try
and make a difference and maybe someday they
can find a cure for this devastating disease. I
spoke to a co-worker at Sobeys and together
we planned a BBQ in memory of Mark with 100%
proceeds to be donated to the ALS Society. I
spoke to a couple of other Sobeys stores in
our area and they also had a BBQ for ALS that
same day in memory of Mark. Together we
raised almost $4000.
My goal is to make our BBQs a yearly event and
for me, Mark’s memory will live on. He deserves
to be remembered. And for all the people living
with ALS, they deserve to hope for a cure.
ALS Society of Canada
Société de la SLA du Canada
PLEASE GIVE
IN SUPPORT
HOW YOU CAN HELP FIGHT ALS
ALS Canada needs your support. Today, there is no treatment for ALS. As a donor, you are helping
people living with ALS by funding support services, an equipment program and critical research
to make ALS a treatable, not terminal disease.
There are many ways to give and every dollar counts.
If you would like to donate to ALS Canada, go to als.ca/donate or mail us in your completed form.
Name
Address
City
Province
Email Address
Postal Code
Phone
I would like to support ALS Canada:
With my gift of: $
With my MONTHLY gift of : $
Cheque enclosed
Charge my:
Please charge my account on the
Complete
this form and mail back to:
ALS Society of Canada
3000 Steeles Avenue East, Suite 200
Markham, Ontario L3R 4T9
AMEX
MasterCard
1st
VISA
15th of each month
Attached is my void cheque
Card Holder’s Name
Card Number
Expiry (MM/YYYY)
Signature
Fax (if paying by credit card):
905.248.2019
An official tax receipt is issued automatically for all single donations of $20 and over. Charitable Registration Number: 10670 8977 RR0002
IN SUPPORT | Page 11
CHANGE THE REALITY OF ALS
HELP MAKE ALS A TREATABLE, NOT TERMINAL DISEASE
A PLANNED GIFT WILL MAKE A DIFFERENCE IN THE LIVES OF PEOPLE LIVING WITH ALS
AND HELP TO FUND ADVANCES IN RESEARCH THAT WILL MAKE A CHANGE FOR THE FUTURE.
IS THERE A PLACE FOR THE ALS SOCIETY OF CANADA IN YOUR WILL?
TO DISCUSS OPPORTUNITIES FOR GIVING AND YOUR WISHES FOR YOUR GIFT,
PLEASE CONTACT US AT 1.800.267.4257 OR [email protected]
CANADA
ALS Society of Canada, 3000 Steeles Avenue East, Suite 200, Markham, Ontario, L3R 4T9
1.800.267.4ALS (4257) | www.als.ca
Legal Name: Amyotrophic Lateral Sclerosis Society of Canada. Charitable Registration Number: 10670-8977-RR0002