social care
Transcription
social care
ISSUE 6 October 2011 The Voice of Excellence in Social Care Let's talk social care! October 2011 Focus on social enterprises and informal carers Social enterprises explained: How do they fit in the sector? Not too old to care Up close and personal with Alison Hammond People power at work Sharing lives Striking a chord with dementia sufferers To get your free copy of Care Talk, register online at www.caretalk.co.uk Holiday Inn Bloomsbury London WC1 Wednesday 16 November 2011 Keynote speaker: Andrew Dilnot, Chair of the Commission on the Funding of Care and Support. £125 for ECCA members, £200 for non members. Call 08450 577 677 or email [email protected] www.ecca.org.uk We lead. Others only follow. 28 years of service to the care industry. Call us on 020 8336 0099 or visit our website www.carehome-insurance.co.uk Towergate Patrick is a trading name of Towergate Underwriting Group Limited. Register Office: Towergate House, Eclipse Park, Sittingbourne Road, Maidstone ME14 3EN. Registered in England no. 4043759. Authorised and regulated by the Financial Services Authority. CONTENTS Contributors Thank you to everyone who has contributed to this magazine. Do keep your articles, news and views coming. Andy Tilden Head of standards and qualifications Skills for Care Mike Padgham Chair Independent Care Group (York & North Yorkshire) Sarah Bartlett Press manager United Response Stephen Burke Director United for All Ages Baroness Sally Greengross Chair All-Party Parliamentary Groups Sarah Hillier Personal trainer Dr Helen Haugh University senior lecturer in community enterprise Cambridge Judge Business School Jonny Landau Partner Ridouts LLP Janet Crampton Consultant Colin Peacock Director and healthcare specialist Greenhalgh Chartered Accountants and Business Advisors Dominic Potter Interim director Transition Institute Dr Rhidian Hughes Head of social care Centre for Workforce Intelligence Simon Stevens Independent disability issues consultant, trainer and activist Imelda Redmond Chief executive Carers UK Inside Issue 6 06 18 This month 36 Pillow talk 04 Editor’s note 04 Caught on camera 38 Mrs MacBlog News 05 06 08 10 11 13 14 14 Wildlife in view Social enterprises explained Newsround Local comment Social care in the hot seat Putting people before profit Experts by experience Opinion Products and Services 16 Tagtronics Care 16 Essex Guardians 17 NAPA Case studies 18 19 20 22 23 Dame Jo Williams Chair Care Quality Commission Carla White Customer liaison manager Wates Living Space Care Talk is a trading name of Care Comm LLP. 21 Regent Street Nottingham NG1 5BS T: 0115 959 6134 F: 0115 959 6148 24 25 26 28 29 Shared Lives Redefining social care Lost Chord Training on the box Unpaid carer Up close and personal 360 – Informal carers Ask Jennifer In my opinion Voice over Editorial: Lisa Carr [email protected] Advertising: Rebecca Shaw [email protected] Creative assistant: Anouska Ellison [email protected] General: [email protected] Journalists: Vicky Burman, Julie Griffiths, Debra Mehta, Katrina Rose 39 Planet Janet Celebrate 40 Sevacare sponsors Great British Care Awards 40 And the winner is... Showcase 42 Care Talk on the road Recruitment 43 Moving up Learn 44 Induction works 45 It's never too late 46 Workforce watch Business banter 49 Capital allowances relief Social enterprise for social care People power at work United for all ages Not too old to care Carers UK Care Talk contacts 38 Let's hear it 48 Business round-up Chat 30 32 33 34 35 37 It takes two 39 Tabby Talk Focus on Sanjay Kava Managing director Cityworx 44 50 Company profile – Belong 52 Ridouts – Record keeping Property 53 Whitebeck Court Fun stuff 54 Vida the Beautiful 55 Tasty talk 55 The adventures of SID 55 Resident cat Tell us your news, views and suggestions! Email [email protected] Follow us! twitter.com/caretalkmag facebook.com/pages/ Care-Talk 03 CAUGHT ON note Welcome to the October issue of Care Talk. Summer is well and truly over and as the evenings draw in so do the viewing figures for prime time television. Yes, it's that time of year again when even the most determined anti-light entertainment brigade can hardly fail to notice the X Factor and Strictly effect. And for those of us of a more sporting persuasion it is of course the start of the football season where the diehards face the weekly pilgrimage to see 11 of their favourite overpaid sportsmen, celebrating (hopefully) with a half-time Pukka pie as well as watching Football Focus, Match of the Day and Match of the Day 2... the list goes on. And then there's the rugby world cup, of course. A great occasion on the other side of the world, which, even for those unappreciative of the game, may trigger some momentary pleasure from all those athletic thighs (go up a few feet, however, and the cauliflower ears and squashed noses can dampen the effect somewhat). So whether you're in the X Factor, Strictly Come Dancing, footie or rugby camp, there certainly seems to be something to suit everyone's palate. For me, it's definitely X Factor, especially as this year's Great British Care Awards will soon reveal our very own stars of social care. The judging days are now upon us and finalists face an interview with a panel of judges – who are hopefully more Louis Walsh than Simon Cowell! For some regions there's still time to get in those last minute nominations, so do visit the website www.care-awards.co.uk for details. The theme for this month’s issue is social enterprises. As the boundaries between charities, public services and businesses steadily become more blurred, our lead article on page 06 explores how the social enterprise may fast be becoming the model for future care. People power at work, an article by a national disability charity on page 25, demonstrates that while social enterprises are affected by recession in the same way as other businesses, the fact that they aim to deliver real benefits to the local community and not just profit could be their greatest strength, and one that sets them apart from the rest. We also focus on informal carers. Staggeringly, every six seconds someone takes on the role of caring for a partner, family member or friend. Page 29 features an insightful piece from the charity Carers UK, which highlights the significance of raising awareness of carers' needs across society. Page 23 features a wonderful example of the selfless work of unpaid carers, a remarkable lady, Elisabeth Johnstone, who cares for no fewer than three generations of her family as well as holding down a role as a Methodist preacher. We do hope you enjoy this issue and please do keep your news and views coming in – we love to hear from you. Lisa 04 The final episode of this series of one-off dramas, repeated on Sunday nights on BBC1, tells the story of Darleen, a young woman with learning difficulties, coping with the frustrations and stress of creating an independent life for herself, making decisions and developing adult relationships with people around her. She’s bored with life in her flat at Langton Lane assisted living complex and feels her ‘essential life skills’ training treats her as “stupid”. According to Darleen, her support worker Jen helps with shopping, filling in forms and so on, but “there’s no time for extra stuff”. There’s a strained relationship between Darleen and her mum Treena. At first Treena seems not to care, ignoring Darleen’s constant requests to come ‘home’ and irritated by her daughter’s fascination with medical and police TV dramas and the fact she regularly makes false 999 calls about being followed or having her things stolen. Things change when Darleen makes friends with Diane, a comfortably off elderly woman living in sheltered housing where Darleen’s friend James is a cleaner. In some ways Diane doesn’t understand why it’s important for Darleen to do things for herself, asking Jen why Darleen isn’t getting “professional help” and whether she wouldn’t be “safer at home”. But Diane also offers Darleen opportunities for learning, like teaching her to cook and make a tapestry for Treena’s birthday – and Darleen realises that if someone isn’t paid for helping (BBC1) her, it makes them a friend. It emerges that Diane is estranged from her grown-up daughter and has never seen her grandchild, but when Darleen asks why, they fall out. Things come to a head when a man forces his way into Darleen’s flat and steals her treasured DVDs. Diane encourages her to report it, and finally meets Treena. A discussion between the two women about Darleen’s behaviour becomes heated – Diane’s view is that no one has tried to get to the bottom of her obsession with the emergency services, which suggests a need for reassurance and protection. Treena points out that she’s spent years fighting on her daughter’s behalf to get the help she needs, but they also drive each other mad – she loves Darleen, but it’s hard. Darleen overhears, speaks up for her mum and attacks Diane for not speaking to her own daughter. Darleen is distraught when she discovers Treena’s new boyfriend has moved in and his little girl now has her old room, and reacts badly to her mum’s offer to help make the Langton Lane flat a proper home for herself. Leaving in tears, Darleen’s first response is to call 999 – but then she switches her mobile off, and tells herself she’s “too clever” for that. She also makes up with Diane, who has been jolted into getting in touch with her estranged daughter. Darleen is ready to move on but realises “it’s hard being a grown-up”. She takes up her mum’s offer to decorate the flat and asks Diane to help put up her pictures. The episode ends with Darleen bringing James to Treena’s birthday party as her boyfriend, and seemingly becoming properly independent for the first time. Vicky Burman Social care occasionally makes an appearance on TV and in films – but is that always a good thing? A chance to raise the profile of care and care workers, or sending out the wrong messages?. If you saw this programme, let us know what you think by emailing [email protected] Academy Productions Ltd Editor’s Moving On: I am Darleen Fyles ▲ © Copyright Liverpool CAMERA NEWS Sector Care home residents seek close-up view of local wildlife Residents in care homes across the UK are on the lookout for unwanted binoculars as part of their preparations for Bupa’s Wildlife Week (26 September to 2 October), a new Bupa Care Homes initiative that hopes to turn its grounds and gardens into wildlife havens. Teaming up with the Royal Society for the Protection of Birds (RSPB), staff and residents are receiving expert advice from the charity about the best ways to make their surroundings more appealing to nature and want help in spotting any new wildlife visitors to the homes. The binoculars will be used throughout the week to take a closer look at wildlife and later given to the RSPB to send on to conservation and education projects throughout the world. Bupa’s community affairs manager, Siobhan Drane, says: “We’re looking for binoculars or spotting scopes that may be hiding away unused in drawers and cupboards, so we can put them to good use and really bring Wildlife Week to life for our residents. Whether used for spotting birds or butterflies, hedgehogs or bees, we’re hoping our care homes will be hives of activity.” RSPB research has shown that access to nature and green spaces is important for older people and those recovering from illness, with the benefits of wildlife 1815-9x4-decotex 20/6/11 14:37gardening Page 1 including increased physical and mental activity as well as developing a sense of purpose. ▲ Bupa resident Arthur Clark, 77, on the look out for binoculars for Wildlife Week The partnership between Bupa and the RSPB has evolved from the charity’s Homes for Wildlife project, which offers gardening advice to try and attract species that are currently in decline in Britain. Richard Bashford, the RSPB’s senior project manager, says: “This is a fantastic partnership that will see over 300 Bupa care homes taking really positive steps to encourage more wildlife into Britain’s grounds and gardens. “Already there has been so much enthusiasm from staff and residents about the benefits of the project, and we hope it will make a real difference to wildlife that may be struggling to find the right habitats to thrive.” To find a local Bupa care home to donate some binoculars to, call 0845 600 4622 or email [email protected]. For more information about the RSPB’s project, Bupa’s Wildlife Week and advice on how to make your home appealing to wildlife, visit www.bupa.co.uk/wildlife Manufacturers and Importers of Flame Retardant Bed Linen and Luxury Towels Our unique feel (market leading) "Softguard" 100% polyester fire retardant bed linen BS 7175 Source 7 is manufactured to the highest standards and available in 10 colours. Our Turkish award winning towels are woven and hand finished using the finest yarns available, ranging from 100% pure certified and guaranteed Egyptian combed cotton to standard carded cotton. T E L E P H O N E : 01925 245496 [email protected] www.decotex.co.uk PLEASE VISIT US ON STAND C22 AT THE CARE SHOW, LONDON, 11th/12th OCTOBER NEWS Lead story l a i Soc s e s i r p r e t n e d e n i a l p ex How do they fit in the sector? As the boundaries between charities, public services and businesses steadily become more blurred, is social enterprise fast becoming the model for future care? Social enterprises are basically organisations that aim to fulfil a social goal. Profits are reinvested in the company or used for the benefit of the wider community. One in 10 UK social enterprises is in health and social care. In line with its Big Society vision of greater community engagement and social action for change, the Government has made a commitment to support the creation and expansion of social enterprises, reducing the red tape involved and giving public sector workers the right to form employee-owned cooperatives that can bid to take over services they deliver. The concept of ‘any qualified provider’ within the Health and Social Care Bill opens up new opportunities for social enterprises, while the Public Services (Social Enterprise and Social Value) Bill 2010-11 now going through Parliament aims to increase the importance of 'social value' in the provision of public services. 06 Recent events in the sector have raised the issue of whether social enterprises are better suited to care provision than purely financial business models, and post-Southern Cross, if is right to make profit from people’s wellbeing. A key feature of social enterprise is the ‘social return on investment’ they offer, which could mean getting patients back on their feet sooner or keeping more children in school. Analysts found that Whizz-Kids, a social enterprise providing mobility equipment to disabled children, generates £10-£65 of social return for every pound invested. And seeing what good comes from reinvestment of surpluses and profits focuses staff on the benefits of operating efficiently. Social Enterprise UK head of policy Ceri Jones argues that social enterprise is ideal for delivering care services. “On the whole, people get into care because they want to make a difference, not because they have the financial bottom line in mind, and the social enterprise model builds on that caring instinct.” And she believes this new approach offers some great advantages for providers, not least a strong identity in a crowded market. “You’re able to differentiate your organisation – it’s very powerful to say you’re not in business to make a profit but to improve people’s care.” Social enterprises have shown themselves to be resilient and adaptable, particularly in their ability to create jobs quickly, reduce bureaucracy and speed up processes, thereby opening up more opportunities for expansion and collaboration. According to a 2009 survey by Social Enterprise UK, social enterprises were twice as confident of future growth as SMEs and increased their turnover during recession. On the other hand, some argue that greater staff involvement can slow down decision making and generate a risk-averse culture. Social Enterprise UK guidance points out that it’s particularly important to involve staff in decisions when things are going badly – while there is a risk that employees will reject solutions, like reduced pay offers, often if NEWS Lead story people feel they ‘own’ the problem, they’re less likely to resist change because they accept that it’s necessary, and may be motivated to come up with innovative alternatives. Overall however, business is business, and whatever the size or model of a social enterprise, the issues are much the same as for traditional operators in the care sector, says Ceri. But start-up and sustainability can pose particular concerns. It can be harder to use the same routes to raise finance as traditionally run companies, where the owner can offer up their business as collateral with banks or a percentage of profits to investors in return for funding. Most social enterprises can’t or won’t want to do that, especially if they’re employee-owned. The good news is that there are now examples of success to emulate, and a growing number of social enterprise investors looking to bridge this gap in the funding market, championed by the Government’s Big Society Capital, a new financial institution designed to encourage and support investment in society. So what does it take to run a social enterprise? The basic skills are generally no different from what’s required to operate any business, particularly a good grip on finances in a sector where margins are already tight, but the right attitude is crucial, says Ceri. “This is not an easy option, so you need determination, a real commitment to doing things differently and feeling that it really matters will keep you going when things get tough.” Margaret Elliott, founder of Sunderland Home Care Associates, originally a cooperative and now an employee-owned provider, agrees. “Things don’t happen overnight, you have to work at it. You need staying power. And your personal beliefs and ways of working can be the difference between whether you sink or swim.” Your choice of social enterprise model will depend on what is most important to you, and to achieve your aims. So if you plan to raise money through donations, for instance, your enterprise should have some sort of charitable status. “Being clear about your mission is the starting point,” says Ceri. “There is no right model, and you’ll find there’s more flexibility within the various structures than you might think.” And the actual structure can be less important than the culture you create within the organisation – again, this is something to think about from the outset. But the quality and commitment of staff will always be crucial, so your organisational culture needs to be based on trust and good communication, whether social enterprises are owned by employees or not, says Ceri. In turn this will have beneficial impact on the cost base by keeping absenteeism low and improving retention. Margaret has certainly seen the benefits of transparency and staff involvement in Sunderland Home Care Associates, initially established in 1994 to secure a domiciliary care contract with the local council and steadily expanding into different types of care support and new markets. Since 2004, the Sunderland model has been successfully replicated across the north east through Care and Share Associates Ltd (CASA), a company limited by guarantee that provides ‘social franchising’ support to set up new organisations for a small stake in the business and percentage of future turnover. there is little distance between roughly 200 frontline staff and an executive team responsible for day-today management. An eight-strong board sets the overall strategic direction for the organisation. All staff are invited to a general meeting every other month, which makes recommendations to the board on issues like budgets and pay and conditions. As shareholders they can also attend the AGM at which the board is held to account. Communication is paramount, in Margaret’s view. “Let everyone know what’s going on all the time so they can see where the organisation’s heading, and ask them for their ideas.” Staff confidence to speak up extends to keeping each other on their toes. “We still sometimes have to address individual poor performance but there’s an element of self-regulation,” explains Margaret. “Because it’s their company, people take responsibility for standards of work and aren’t afraid to tell colleagues if they aren’t doing a good job.” Vicky Burman At Sunderland Home Care Associates all shares are owned by employees and allocated according to length of service and salary. A relatively flat management structure means 07 Call on the Government to create a dedicated minister for older people Anchor, England’s largest not-for-profit provider of care and housing, is calling on the Government to provide real leadership for the UK’s older people, to listen to their issues, give voice to them, and help all UK citizens enjoy happy living in the years ahead. Older people are fast becoming one of the largest groups in the UK and the country now has a greater number of people aged 60 and over than it does people aged 16 and under. Life expectancy will continue to increase, and the Government will face significant challenges as it prepares to serve the ageing population, says Anchor. The UK has no choice but to ensure that older people can live comfortably and enjoy dignity and respect in their later years. Despite making up 40% of the electorate, there is no government minister dedicated to the wellbeing of older people. Anchor points out that Theresa May is Minister for Women and Sarah Teather is Minister of State for Children and Families, but older people’s issues are scattered throughout various government departments. What is sorely lacking is a centralised government portfolio that prioritises the needs of older people and ensures that their views and interests receive dedicated attention, says Anchor. Many governments around the world, including those of Ireland and Canada, currently have a dedicated minister for older people, and it is high time the UK followed suit, argues Anchor. Both Wales and Northern Ireland have appointed an older people’s commissioner, but all older people living in the UK deserve a centralised ministerial post that looks after their needs. Travel concession comes to an end From October 2011 disabled people and pensioners will no longer receive halfprice concessionary coach fares, saving the Government around £20m. Coach company National Express had three million passengers using the scheme last year alone – disabled and elderly people who are unable to drive, or who cannot afford expensive train fares. Paying for long-term care in England A revised information leaflet on helping people pay for long-term care is now available. The leaflet has been developed by a group of public organisations and charities to help people make better and more informed decisions about paying for care. It can be downloaded at http://www.thinklocalactpersonal. org.uk/Latest/Resource/?cid =9049 08 Stress levels among social workers reach alarming new levels Job cuts and impossible working conditions are forcing more social workers to contact the British Association of Social Workers (BASW) advice and representation service because they are struggling to cope with the stress. BASW revealed that nearly two-thirds of calls to the service are now coming from social workers struggling to cope with extreme stress, with members reporting instances of clinical depression, breakdowns and even self-harm. Hilton Dawson, BASW chief executive and the initial general secretary of the new Social Workers Union until elections take place next year, said: “At a time when jobs are at risk, conditions of service are being eroded and caseloads are rising to ever more dangerous levels, a strong and independent trade union is vital to enable us to work with social workers and employers from all sectors to ensure the very best standards are being met and that practice is safe and ethical.” Living well with dementia: a Design Council challenge The Design Council, in partnership with the Department of Health, has launched a national challenge to develop new design-led ideas for products and services that make life simpler and more enjoyable for those with dementia, and for their carers. Paul Burstow, Care Services Minister, commented on the project: “Dementia is one of the biggest challenges we face as the population ages. It currently affects 750,000 people in the UK and that number is set to double over the next 30 years. “To make sure we continue to improve health outcomes and manage the growing costs associated with this, we need to think smart and do things differently. If diagnosed early and given the right support, people with dementia can continue to live well for a number of years. By engaging with businesses and the third sector I hope we will stimulate some creative thinking about how best to help people with dementia get the most out of their lives, rather than just focusing on symptoms.” Few think charities will benefit from London Olympics, survey finds Research consultancy nfpSynergy polled 1,035 members of the public to find their views on London 2012. Only 4% of respondents to the survey believed the main legacy of the London Olympics will be more volunteering or that the event would lead to more funding for charities, and only 12% believed that national charities were likely to benefit from the Olympics. Only 8% could name a charity officially associated with the games. Got a good story to tell? Email [email protected] NEWS Homecare staff face worsening pay and reduced safety Homecare staff are facing reduced pay and conditions and are being put at risk because of council cuts to providers, a United Kingdom Homecare Association survey has found. The research, which covers decisions by 111 UK councils and health and social care trusts, found 58% of commissioners had cut the price they paid independent providers, half had removed workers' unsocial hours premium and a fifth were reducing payments for workers' travel time between appointments. NHS reforms present 'huge opportunities' for private companies, says minister Lord Howe, a junior health minister in the Lords, has told an independent sector conference that it should not matter “one jot” if patients are treated in hospitals run by the public, private or voluntary sector, and that the NHS is about to turn into “a very different animal”. He insisted that the NHS was not the place “to earn a fast buck” and that private providers would not be given preferential treatment. John Healey, Labour's Shadow Health Secretary, said: “This confirms what doctors, nurses, health professionals, patients’ groups and Labour have all warned – the Tories' NHS plans will fragment our health service by placing competition ahead of patient care.” David Cameron claimed at Prime Minister’s Questions that three leading medical organisations are “all supporting our health reforms” – prompting them to issue statements expressing their continued concerns. Free training on the Mental Capacity Act The Social Care Institute for Excellence (SCIE), in partnership with care provider associations, is offering training on the Mental Capacity Act. The training sessions are free to staff working in organisations registered with the Care Quality Commission to provide adult social care. Government puts up £10m for use of technology to encourage giving The Innovation in Giving Fund will be run by independent body NESTA (National Endowment for Science, Technology and the Arts) and fund organisations with visionary ideas, according to Civil Society Minister Nick Hurd. The Office for Civil Society has opened a £10m fund to support charities, companies and other organisations that are developing new ways to encourage charitable giving and volunteering. New NHS could be more complex and costly, warns nursing chief Controversial reforms to the NHS that are being debated by MPs risk making the system more complicated and harder for patients to navigate, health leaders warn. Dr Peter Carter, general secretary of the Royal College of Nursing, has said the introduction of new levels of management and quangos could “tangle” the health service in “more red tape and bureaucracy”. His concerns are echoed by the leading public sector trade union, Unite, and the umbrella group for health service managers, the NHS Confederation, which has raised concerns over "confusion and duplication" among newly created quangos. Their comments come in another wave of opposition to the Government’s biggest upheaval in the 63year history of England’s NHS, which aims to hand control of buying treatment to GPs while giving private companies and voluntary groups more opportunity to run services. Tell us your news and views! Email [email protected] Memory test 'identifies Alzheimer's early' Doctors will be able to identify the initial signs of Alzheimer's disease earlier thanks to a new 10 minute, picture-based memory test. The iPad-based test will enable GPs to test patients in high street surgeries, rather than having to refer them to specialist clinics, which could drive up diagnosis rates. Councils not consulting adequately on services for older people Counsel and Care, the national charity working with older people, their families and carers, is dismayed at the investigation results published by Community Care. An investigation revealed that one out of 10 councils could have increased their charges for adult social care services before going through the full consultation process, a legal obligation since 2006. Counsel and Care head of services Elizabeth Lodge said: “Given recent news about the lack of quality services for older people, this blatant disregard for their views by councils is appalling. We understand that there is a squeeze on local authority budgets but it is not the most vulnerable, those who receive social care from their council, who should suffer without due regard to their needs. “Councils should be listening to the voices of older people as it is their duty to meet the needs of those who rely on them for care services. We are deeply disappointed to hear that such decisions are being made without true consideration of the service users themselves and would urge councils to rethink their care-charging practices in light of this investigation.” 09 NEWS Local Comment Support Wiltshire Good practice and joint working between the voluntary, statutory and private sectors are reaching out to and support unpaid, informal carers. Carer Support Wiltshire (CSW) is an independent charity that works to deliver a wide range of local support services to meet the needs of carers in their own communities. It is one of 144 carers’ centres that are network members of The Princess Royal Trust, which works to reach carers and develop services across the country. The charity works closely with, and is funded by, Wiltshire Council, and also receives funding from NHS Wiltshire, the National Lottery, Volunteering England and Westlea Housing. As with all the carers’ centres in the network, CSW aim is to provide support to carers by telephone, drop-ins and outreach groups. Communications officer Fiona Hunter explains: "CSW provides information and advice about all issues affecting carers. Emotional support is particularly important and provides opportunities for carers to talk through their concerns, both individually and in group sessions. We also provide community consultation by working with other agencies and consulting carers. “Carers' centres can have a strong influence on local policy, planning procedures and outcomes so it's essential that we raise awareness and work in partnership with other groups." CSW's commitment to partnership working was demonstrated recently when the organisation delivered 12 training sessions to domiciliary care agencies. The aim was to raise staff awareness of the issues faced by informal carers. "This has been a tremendous opportunity to raise the profile of CSW and the services we provide, and the benefits to carers," says Fiona. "The aim is to reach out to all carers but specifically to reach those who are self-funding and may not have received information and advice from the council. "We hope that by improving these relationships and links that carers are well-informed so that, for example, they are aware of the process of moving out of Unpaid carers, who are family or friends, provide support that is valued at £119bn a year. self-funding and they claim relevant benefits for themselves and the person they care for. The emotional support lessens stress and with the personalised information carers are better able to navigate through the changes in their caring role and stay well themselves.“ Chris Kay, a CSW support worker, is a testament to the project's success. “Having worked for CSW for many years, I’ve experienced first-hand the potential difference we can make via partnership working with the statutory and private sectors. It enables us to spread the message of what we do in order to hopefully find any ‘hidden’ unpaid carers who may not have realised the important role they play in their relative or friend’s life and the support available to them from their local carers’ support centre.” Chris Kay Support worker Carer Support Wiltshire We want to hear from more local care associations. Send your news, views and stories to [email protected] 10 NEWS Sector Social care in the hot seat Social care, nationally and locally, finds itself very much in the hot seat. The demise of Southern Cross and inadequacies exposed at Winterbourne and others have all pushed the sector into the headlines, for all the wrong reasons. Recent events have served to dent the image of a sector that relies on public confidence to prosper. Looking beyond the headline-grabbing issues, the sector faces much deeper challenges. The population is getting older and demand for care is growing. There is increasing pressure to move forward – improve quality, increase personalisation, embrace extra care provision and meet the Government’s Think Local, Act Personal message. But working almost in direct opposition to this, is the increasingly dire financial situation, with commissioners squeezing fees and reducing the amount of care they commission. No surprise that as I write this, two people on the Isle of Wight are mounting a legal challenge against their local council for cutting back on social care. At the same time, banks are cutting investment opportunity and costs like fuel and utilities, VAT, regulation and inspection are going through the roof. Inevitably providers are in dire straits and going out of business. At one point this year, it looked like social care was going to dominate the media and political spectrum for the right reasons and that progress would be made on improving its future. When the Dilnot report was published it thrust the difficult question of the future funding of social care to the fore and it seemed, just for a moment, that the longawaited debate would begin and we might start to see some solutions. But who remembers Dilnot now, and where is it on the agenda within government? Phone hacking and this summer’s riots very quickly took Dilnot out of the spotlight and one suspects that these, and certainly the continuing state of the British economy and events in Libya, are concentrating the minds of our politicians, rather than the future care of our older and vulnerable people. It is up to everyone reading this magazine to try to redress that balance and to lobby for social care to climb back up the agenda and for the Dilnot report not to become yet another worthy effort, consigned to the shelves at Whitehall, buried beneath other pressing matters. It could well be that events on the Isle of Wight might be more significant than they seem at first glance. Two severely disabled people are bringing a high court challenge against the Isle of Wight council over cuts to adult social care services. Solicitors acting on behalf of the two men won the right for a full judicial review hearing to contest the council's decision to restrict support to those with only the most critical care needs. The outcome of that case could have repercussions throughout the sector. Mike Padgham Chair Independent Care Group (York and North Yorkshire) 11 Attractive, easy to use and guaranteed to save you time, money and an office-full of paperwork, CareDocs is the only Care Planning and Home Management system you’ll ever need. • • • • • • • • Superb personalised Care Plans in minutes Dynamic body maps, charts, daily occurrences and much more All Resident and Staff details at your fingertips Unique ‘Home-at-a-glance’ status page Free laptop, desktop or touchscreen computer Free on-site training Free technical help-line Free system updates For full details, to view a typical CareDocs care plan, online demo or to arrange a visit: www.caredocs.co.uk 0845 500 5115 Care Management Systems Ltd eld sh e t ra es ate 0 pric g le De t 201 a ea rly bo 3f ok ing The Architecture of Good Practice or dis 2o co un ts ffe r als oa va 2 - 3 February 2012 ila ble Pre-conference New Products Workshops, 1 February 2012 Conference and Exhibition Business Design Centre, Islington, London N1 • Attend as part of your CPD Organised by: • Benefit from topical seminars and workshops promoting best practice • Meet with a range of professional and supporting organisations • T akepartin practical interactive problem-solving workshops featuring both paediatric and adult equipment Mo ving & Ha nd People • • View and discuss new products and handling techniques al g lin • Network with expert manual handling practitioners and stakeholders • 18th Annu • Visit the largest moving & handling equipment exhibition for professionals in the UK • Stimulateideas through extensive learning opportunitites To register: www.movingandhandlingpeople.co.uk Tel: 020 7324 4330 Sponsored by: Media Partner: 00 NEWS Sector Putting people before profit The implications of the fact that people in the UK are living longer have been felt across the spectrum of markets for social care services. In addition, the fact that many of the elderly also need medical care has further increased demand for combined health and social care services. Social enterprises are already delivering some services for the care of the elderly; for example, the award-winning social enterprise Sunderland Home Care Associates has established a very successful cooperative model for delivering domiciliary care for people living in the Sunderland area. Other opportunities for social enterprises include providing equipment, such as aids to daily living and consumables such as medical equipment and other supplies, as well as adapting homes for the needs of the elderly. Charitable organisations such as Leonard Cheshire, Abbeyfield and Age UK have a long history of providing residential care for the elderly. However, social and community organisations have found it difficult to develop a financially sustainable enterprise in the sector. For example, Eldonia House residential care home was initially established by the Eldonia community organisation in response to demand from older, local people to stay in their community. Although they retain ownership of the asset, management of the home is the responsibility of a private company. “Social and community organisations have found it difficult to develop a financially sustainable enterprise in the sector.” When compared to organisations in the public and private sectors, social enterprises offer five potential benefits to the residential care home service. First, their focus on the triple bottom line of economic, social and environmental performance is associated with closer identification of employees with the organisation and clients, leading to improved employee morale and decreased sickness and absenteeism. of purchasing and equipping a care home, and the associated management and quality control costs, are very high, and research to identify financially sustainable revenue models is urgently required. Second, when care services are externalised from public sector provision into social enterprises, organisational autonomy can lead to improved cost control and better financial management, and unleash innovation in the types of service offered and their mode of delivery. For small social enterprises, the costs are likely to be too high. Concerns that public funds invested in residential care homes will be disbursed to investors are also pertinent and might be allayed by adopting the community interest company (CIC) legal form that protects assets in perpetuity; however, we need more information about how to establish and manage a CIC in this sector. Third, independence opens up opportunities for generating new revenue streams and raising capital to invest and expand the social enterprise. Fourth, the involvement of clients, employees and others in social enterprise ownership and management structures ensures greater accountability to the communities they serve. Finally, following on from these closer community ties, employee, client and community participation can bring better engagement, cohesion and responsiveness to needs arising from deeper knowledge of client needs, as well as closer relationships and stronger trust between employees and clients. Resident, family and community satisfaction with the quality of services provided can be a route to increasing further volunteer involvement as well as opening up opportunities for philanthropy and giving. To increase the participation of social enterprises in the residential care for the elderly service, several challenges will need to be overcome. The capital cost Many successful community and voluntary and charitable organisations use a combination of employees and volunteers to deliver their goods and services, and the residential care home sector can learn from them how to increase and manage volunteer and community involvement. Bottom-up, community-based delivery models are the future for responsive public services. Other opportunities for social enterprises to become involved in residential care for the elderly include providing finance via social investment funds for the establishment of care homes, as well as the inspection, monitoring and quality control of residential care homes using measures that recognise a range of wider social and environmental and community benefits. Dr Helen Haugh University senior lecturer in community enterprise Cambridge Judge Business School 13 NEWS Sector Experts by experience From the very first day of the Care Quality Commission’s existence we have worked hard to get the views, opinions and insights of people who use care and have experience of the way that care works, so that the way we work is reflective of their needs. We currently employ around 120 individuals who are what we call experts by experience; these are people who use services, or carers who have experience of the health and care sector. Their knowledge and experience of using care services help us improve the way we inspect and give us a unique insight into the way that care works. We are currently in the process of recruiting more people, some further family carers for those with high support needs, plus people with experience of substance misuse. Eventually we hope to have over 200 experts. These experts by experience are people of all ages, from diverse cultural backgrounds, who have used a range of health and care services. An expert by experience will take part in an inspection, observe what’s going on and talk to the people who use that service; their views and impressions will then be added to, and form part of, the inspection reports that we publish. We are currently in the planning stages of a series of 150 inspections of care homes and hospitals providing care for people with learning disabilities. Experts by experience will play a pivotal role in those inspections, as they did in our recent series of 100 inspections in hospitals, looking at how well dignity Opinion and nutrition were being handled in hospital wards catering for older people. I recently went on one of these dignity and nutrition inspections, which was led by one of our inspectors accompanied by a practicing nurse and an expert by experience. Patrick, who I met on this visit, is retired and has been the main carer for both his parents and his wife’s mother, who has been in care homes for the past 14 years, so he brings to an inspection a wealth of real-world experiences of the care system as well as being a veteran of 14 inspections for both care homes and hospitals. While on the inspection, Patrick and I were briefed by the inspector on the areas that we were tasked with looking at. We then spent the next hour walking around the wards and observing the way that the nurses interacted with patients to get a real feel for how care was being delivered. We then went on to talk to patients and staff about the food they were given and observed the drugs trolley doing its rounds. In so doing, we gained invaluable insights about how care was being carried out on the ward. Many patients felt more relaxed talking to our expert as he was seen as less official and so they felt more able to give honest feedback about the care they were receiving. Dame Jo Williams Chair Care Quality Commission Really enterprising? My first experience of a social enterprise was over 10 years ago when I had lunch in a café supposedly run by people with learning difficulties. Watching the nondisabled staff managing the disabled ‘staff’ with a sense of fake optimism, I realised this was far from a real enterprise and more a new form of posh day care. The term ‘profit’ only relates to a legal way the balance of income over expenditure is seen. It is the automatic aim of any organisation and, indeed, individual to have more income than expenditure, whatever it is called. Over 10 years on, I am still unsure exactly what a social enterprise is. It is not quite a profit-making business and it is not a proper charity. It seems to be a term used by different people for different reasons, and this can be seen by the way the current government is making the privatisation of public local services sound acceptable. For me, there is absolutely no problem about anyone making a profit from anything, including supporting disabled people. I am, however, wary when the true motives are hidden in niceties. Sometimes I also feel that, without realising it, social care professionals have formed social enterprises as supported employment for users as a step forward to prevent three steps backward. By this I mean that, as professionals still fear letting go of the control and responsibility for users’ daytime activities, they have formed opportunities where they have control of the risks. While most social enterprises regard themselves as ‘not for profit’, it does not mean staff do not get paid, and sometimes they get paid very well. I feel, however, that the ‘not for profit’ tag is used to justify why non-disabled staff get paid, while disabled ‘staff’ are often unpaid or regarded as volunteers. The reality is that disabled people should either be in full mainstream employment or run their own enterprises on their own terms. The celebration of social enterprises as a successful way of providing employment opportunities is a hollow victory as it’s simply rearranging the deckchairs on the Titanic. The 14 Talking to our experts, you get a real feeling of how much they also get out of the experience and how rewarding it is for them to help to give a voice to people in all types of health and social care, who in many cases may not be heard. From our point of view, an inspector gets an insight into a service and how it’s looking after people that we simply wouldn’t be able to get without them. aim of social care, especially for working-age adults, should be to enable and empower users not to need constant involvement from professionals. When you hear of a new ‘exciting’ social enterprise to help users, my advice is to find out what it is really about, and who is really profiting from it, before opening that bottle of champagne. Simon Stevens Television actor Alan Halsall, better known as Coronation Street’s hapless mechanic Tyrone Dobbs, left the cobbles of the Street on Saturday 27 August to visit residents at Halifax care home, Savile Park and Wigan care home, Montrose Hall. d Lucy-Jo ▲ Alan an Along with his real-life wife, British actress Lucy-Jo Hudson – best known for her role as Katy Harris in Coronation Street – Alan sat down to a Roy’s Rolls brunch with the home’s residents at Savile Park and a rugby-themed afternoon at Montrose Hall to help celebrate the Challenge Cup Final. The actors mingled with residents and their families, and signed memorabilia and autographs. Residents took part in a raffle to win a signed copy of 50 Years of Coronation Street, while Lucy-Jo was presented with a bunch of flowers by home managers Paula Finn and Donna Norton. Alan commented: “Lucy-Jo and I were delighted to visit residents at Savile Park and Montrose Hall. The homes provide a valuable service to their local communities so it was an absolute pleasure for us to be part of it, and to meet the residents and staff who rk work there.” at Savile Pa Point & Click for Improved Workflow & Profitability y different For a refreshingl 83 on 0844 504 48 approach call [email protected] email info com www.zestcare. • Streamline your administration • Find the shortcuts but don’t cut corners • Stay on top of timesheets, budgets & training records • Realise real time invoicing and occupancy information • Deliver printable relevant reporting Fusion software is the difference between feeling under pressure and not. It’s simple and all at the touch of a button on a smooth three month rolling contract. Care home harmony couldn’t be easier! ”We’re really seeing tangible results, not only are we saving time but we’ve noticed we are saving costs on paper, duplicate work and costly mistakes. It’s a win, win for us and all at the touch of a button it couldn’t be easier.” Victoria Tuck, Winnie Care. by ‘software that cares’ Z est CARE SYSTEMS t: 0113 385 3853 e: [email protected] w: LNTsoftware.com Only £80 per month :: Accounts :: Multiple Contracts :: Care Planning :: Payroll :: Clocking in/out System :: Qualifications :: Financial Analysis :: Rota :: Invoicing :: Time Sheets such powerful tools at “ With your fingertips we are able to focus more time on care and less on administration. ” 15 PRODUCTS SERVICES ADVERTORIAL Tagtronics homecare scheduling/monitoring solutions help Mediline with all aspects of their business Michael Baines, Mediline’s managing director, says: “The Tagtronics system has enabled Mediline to set up and maintain an efficient and effective CRM system, with the additional benefit of linking in the facility to schedule care visits and issue work schedules from the same data. “In addition, we are able to effectively manage our financial administrative functions for payroll and invoicing from data that we can easily verify and export from the system. “The final recent development has enabled us to interface with an electronic homecare monitoring system to further streamline the process through a proactive, flexible software provider.” Mediline contacted Tagtronics at an early stage of their development. At that time they were already familiar with the idea of using homecare software to help with the day-to-day running of their rapidly growing business. They had a software package in place but due to the rate of their growth were looking for a more substantial solution to help them as they moved to the next stage of their expansion. During the initial meeting, one of Tagtronics homecare consultants visited Mediline’s head offices to evaluate how they currently did things; the next step was to then show how Tagtronics software solutions could help as they developed their business further. Mediline decided that they would move forward using Tagtronics software; they initially purchased a five-user system, which suited their business at that point in time. After a very successful implementation and training period, Tagtronics went on to have an influential role in the company and, in line with Mediline’s development, this has meant that they now have a 55-user system and provide in excess of 10,000 hours of care a week with over 800 existing clients. Features and benefits of TagtronicsCare • Easy-to-use Windows-based homecare software • Automate payroll and invoicing, integrated with various accounts packages • Take care of holidays, sickness, training and recruitment • Calculate mileage payments within our route planning software Managing money matters • Simple integration with third party electronic monitoring systems sovisit you For further information, please www.tagtronicscare.co.uk can concentrate on caring ADVERTORIAL Managing money matters so that you can concentrate on caring As a carer your time is better spent providing the care your residents deserve, not in the office handling their day-to-day finances. When care home providers are acting as corporate appointees, full responsibility for this role can be transferred to Essex Guardians. Doing so can remove potential conflict of interest, corporate liability and free up workloads. At Essex Guardians, we recognise that decisions about the use of a person’s income and savings may best be made by their relatives and friends, yet as a care provider you’ll know that at times there are no willing or suitable relatives or friends, or those already involved in a person’s finances are no longer able to formally assist. As one of the leading corporate deputyship services in the country, Essex Guardians can provide a practical solution. The service provides a dedicated team of professionals to expertly handle financial affairs for people when they no longer have the mental capacity to do so on their own. The service includes collecting, maximising and administering state benefits, paying bills and EG brochure 210 carers_2print.indd 1 ensuring that the individual has access to money for activities such as shopping and socialising. It can also safeguard savings and investments and oversee property and personal items. When Essex Guardians act as deputy, all clients’ funds are administered using secure bespoke For an informal chat, contact a member of our team on 01245 434 098, email [email protected] or visit our website at www.essexguardians.co.uk 16 administration systems that are fully auditable and reconciled daily. All funds held are protected by the UK Bank Deposit Guarantee Scheme or lodged with the Court of Protection, providing full security for all monies held. We provide a service that is open and transparent and supervised by the Office of the Public Guardian, so you can be sure we’ve always got the client’s best interests in mind. 16/05/2011 15:49 Referrals to Essex Guardians are welcome from anyone who is concerned for the personal welfare and financial wellbeing of an individual, such as health practitioners, friends or family. As a care provider, you may already be handling these finances and may be looking for a better way. PRODUCTS SERVICES ADVERTORIAL “Go out for a pub lunch? Will there be gin? You don’t have to ask me twice!” Elizabeth, 99 years old NAPA hosts grand fifties themed tea party to celebrate care home Food Glorious Food successes Activate a whole home approach to activities NAPA Activity Toolkit › Eight Guides › Training DVD › Two Workbooks Visit our free activity roadshow at: London Care Show – 11th / 12th Oct Care Roadshow Brighton – 23rd Nov Become a NAPA member for just £35/year Contact NAPA: 020 7078 9375 www.napa-activities.co.uk including an East End lunch and a Mad Hatter’s tea party. They also organised a retro ice cream parlour and involved local pre-school children in decorating biscuits and collecting eggs from the home’s chickens. Special efforts were made for two residents who were from Spain and Mauritius to enjoy the sights and smells of foods from their birthplace, with the help of staff from those countries. There was good feedback from the staff team, who realised the benefits of spending time with residents at mealtimes to help create a relaxed family atmosphere. On Thursday 1 September, The National Association for Providers of Activities for Older People (NAPA) hosted its annual challenge gala in central London. This year’s theme of Food Glorious Food inspired 152 entrants from all over the UK, who organised a range of fun, food-related activities throughout the month of June. NAPA was pleased to encourage care homes to not let overly restrictive health and safety policies get in the way of enabling older people to do more for themselves. To quote one resident Margaret, who is 80 years old: “Why do you need to watch me with a knife? … I’ve used one plenty of times before, you know.” Prue Leith, celebrity chef, writer and judge of the BBC’s The Great British Menu, gave out the prizes to the five lucky finalists. At Dittons Prior, residents chopped leeks in their bedrooms for a soup supper that was attended by family members. The home found that experimenting with multicultural food, including a Thai meal prepared by two of the home’s domestic staff, went really well. Ferfoot Care Home demonstrated a great range of community involvement in their challenge, including schoolchildren coming in for two mornings to make popcorn and homemade lemonade, compare food past and present and to play ‘food bingo’. A visit from the Let Nature Feed Your Senses project was particularly successful, with a 1940s picnic basket enjoyed by many residents – especially Don, who liked the flask in it! Heffle Court stood up for their particularly creative approach to themed activities, “We’ve learnt to remember the value of the small things. Something as simple as peeling an apple does not always register as a task to us, but can be a big achievement for one of our residents.” The Old Vicarage reported that it was the small changes, not the big once-amonth events, which make a huge difference; for example, putting a fresh peapod at everyone’s place setting produced a wave of conversation and laughter. They have completed food questionnaires for all residents and now include favourite individual recipes within the home’s weekly menu. Woodleigh Christian Care Centre demonstrated that some homes with a strong faith ethos are definitely not averse to alcohol, as pub visits featured a fair bit in this application! Candyfloss brought smells and memories into resident rooms and a bible study meeting was integrated into a breadmaking group. Edible flowers for tabletop decorations and a visit to a museum with kitchen utensils both prompted lively conversations. For more information about joining NAPA or our new activity toolkit, including the Living Life training DVD, please contact 020 7078 9375 or go to our web shop at www.napa-activities.co.uk 17 CASE ▲ STUDY Sharing Lives Shared Lives is the quiet voice of independent living. Across the UK, around 10,000 ordinary people share their home and their family life with vulnerable adults needing support, enabling them to live full lives, within local communities. Shared Lives offers its customers quality, individually tailored support that successfully meets current government objectives, and represents excellent value for money. ‘Non-relatives’ sharing a family’s home and life is not new. Formerly known as adult placements, this type of support has fitted in with successive social policies over many years. Yet research by the National Association of Adult Placement Schemes (NAAPS) and Improvement and Efficiency South East (IESE) in 2009 found low levels of awareness, with a perception that the service was often not seen as a real alternative to a supported-living model. Yet thousands of vulnerable people live ‘ordinary’ but successful lives, embedded in their communities, thanks to the skill and dedication of their Shared Lives carers. Margaret and Clifford Headlam are two such providers. They have been supporting people with learning disabilities in their home for 20 years. Both previously worked in social care, 18 but Clifford was inspired to open up his home when working with a young man whose needs could not be met by conventional services. Others quickly followed, and the couple’s daughters were born into a happy, busy and unusual household. Clifford and Margaret Headlam Margaret and Clifford are unassuming people who dismiss any praise for what they do. Yet Shared Lives has been shown to increase physical and emotional wellbeing, confidence, skills and independence, challenge stereotypes and strengthen communities. In 2004 Margaret and Clifford became Shared Lives carers with The Avalon Group, a leading UK provider of these schemes. Since then a number of vulnerable people have become part of this household at some time in their lives. The young man who originally inspired Margaret and Clifford was with them until his death, 13 years later. Three people live with them presently. One lady has been diagnosed with dementia, and is no longer able to undertake any tasks independently within the home, nor access outside services. Margaret and Clifford have reorganised their house and established routines to reduce risk and enable her to cope with the changes that her condition has brought. They are fully committed to caring for her till the end of her life. Avalon Shared Lives schemes are part of The Avalon Group, which is an established social care charity. The organisation provides Margaret and Clifford with a comprehensive package of support, including support and monitoring visits from their local Avalon representative, a 24-hour on-call system, and in-house training. This support ensures their customers continue to receive a quality service, which is fully up to date and compliant with all Care Quality Commission (CQC) regulations. All Avalon’s schemes are rated as ‘good’ or ‘excellent’ by the Government’s inspecting body. ▲ The Headlam family Supported by The Avalon Group, Margaret and Clifford and Avalon’s dedicated professional Shared Lives team provide a lifeline of support to vulnerable people and their families. For them, and the many other vulnerable people who benefit from Avalon’s Shared Lives scheme across Yorkshire, Teesside and Cumbria, the ordinary become the extraordinary in everyday lives.. CASE STUDY Redefining social care When people think of social care, many think of care homes and home care, but there are alternatives, and a number of them are quietly, but surely, growing in use. In Shared Lives, an approved Shared Lives carer includes an older or disabled person in their family life, either as a regular visitor or a long-term member of their household. Shared Lives carers and those they care for are matched for compatibility and then develop real relationships, with the carer acting as ‘extended family’. Mr C’s wife used the break to visit her daughter for a week. She says: “I didn’t feel anxious at all and was able to switch off, knowing that he would be enjoying himself.” Shared Lives support is cheaper than alternatives and outperforms them in care inspections. Around 10,000 people currently receive Shared Lives support in England alone and there are 150 schemes UK-wide, supporting people with a wide range of disabilities and support needs. Here is the daughter of a Shared Lives carer reflecting upon her first experiences of Shared Lives as a teenager: “When Michael took residence in our family home, I was a young 14-year-old. I wasn’t too sure what to expect of him but was told by my parents that he was a lovely guy. They were right: Michael was a fun-loving individual and soon became part of the family and a lifelong friend.” Sharing this ethos and Shared Lives’ small scale, a growing number of ‘micro-enterprises’ have also sprung up over recent years. Micro-enterprises are small services, often set up by social care professionals like Susan and her colleague, care workers who became frustrated providing a limited range of home care to older people, which felt rushed and impersonal. They set up Companions with a small team who are matched with one of their 20 customers. They keep change to a minimum and provide companionship, help with daily tasks and support to use the community. Mr C, an older person, recently stayed for the first time with Shared Lives carer Fran and her family in Shropshire. He says: “They are a lovely family and I felt very welcome. I sat in the conservatory and painted them a picture, something I used to do a lot of. Fran has hung it on the wall in the room I am using for respite. It felt like Christmas – I hope it won’t be long before I can go again!” Other micro-enterprises include Ace of Spades, a gardening and personal support business, and Pulp Friction, set up by a young woman with learning disabilities and her mother, which now works with a small group of people with learning disabilities, running pedal-powered smoothie bars at community events as a novel approach to developing social, independent and work-readiness ▲ Pulp Friction co-founder Jessie Carter-Kay skills. Both have been supported by Community Catalysts (www.communitycatalysts.co.uk), a social enterprise that helps micro-enterprises to start up and survive in a competitive and often regulationheavy world. While the diversity of these enterprises is limitless, they are all small scale and focus on tailoring their work to a small group of people. Professionalism, safety and effectiveness are just as important to them as to any other care and support service, but many look very different to most people’s idea of social care. As traditional approaches start to look increasingly unaffordable, they might just offer alternatives with a real future. More information about these and other members of NAAPS, the UK network for family-based and small-scale ways of supporting adults, can be found at www.naaps.org.uk. 19 CASE STUDY Striking a chord with dementia sufferers As I approached the day centre in Bassetlaw, I could hear the lilting sounds of the Welsh hymn Cwm Rhondda. Forgetting for a moment the reason for my visit, I imagined a full musical ensemble, so on entering I was surprised to see just two performers – a soprano and a harpist – surrounded by a small audience of around 20 people. Looking around the room, it could have been a show staged for a parish council or community group meeting, but in fact the majority of people in the room either suffered from early onset dementia or were accompanying a sufferer. The concert was arranged by Lost Chord, an innovative charity dedicated to improving the quality of life and wellbeing of those suffering with dementia through interactive musical stimuli, and to increasing their general awareness and “Shirley Bassey’s Hey Big Spender prompted one lady to get up and give a series of high kicks.” 20 self-esteem. Lost Chord is now a highly successful award-winning charity, operating in more than 70 homes in South Yorkshire, North Nottinghamshire, Derbyshire, London and Cardiff. The charity’s founder, Helen Muller, explains the philosophy. “Music can, in such a simple way, help to overcome those feelings of frustration and humiliation associated with dementia. Music is the most effective, and often the only, way to stimulate a response. It seems to reach into their very souls and unlock that door behind which a frightened, intimidated and humiliated person hides. Life at times is just too awful to face for most of them.” The duo at the concert were soprano Lois Davies, a Welsh lovely with a captivating voice that could easily match Lesley Garrett’s, and harpist Iona Jones, whose seemingly magical fingers mesmerised the audience, filling the room with lyrical harmonies. It was clear to see that the music had a profound effect on all those present. Audience participation was the name of the game, all joining in with their old favourites. One such favourite was Delilah, which whipped the audience into an excited frenzy and frankly put any Tom Jones audience to shame. Another, Shirley Bassey’s Hey, Big Spender, prompted one lady to get up from her seat and give a series of high kicks. The concert then took on a Name That Tune theme, a quiz which prompted memories through fun. The first song was The Green, Green Grass of Home – and the answer, which stumped me but not the majority of the audience, was Harry Secombe, of course! “She has no recognition of her family but recognises songs.” Looking around at the smiling faces all eager to participate, it was unclear who were the dementia sufferers and who were not. Life and laughter lay behind everyone’s eyes and there was more energy in that one small room that afternoon than a Nottingham nightclub on a Saturday night. Lois then proceeded to hand out brightly coloured tambourines. We became the orchestra, using instruments while singing at the same time; again multi-tasking, subtle yet ingenious. This took me right back to my school days and my starring role on the triangle in the primary school orchestra; I’d forgotten quite how much fun it was. CASE STUDY The hour-long session finished with renditions of Daisy, Daisy and We’ll Meet Again, which prompted the audience to get up and hold hands in a circle, much like the last dance at a wedding. So, in such a contrast to their ‘day job’, what compels professional singers and musicians, who normally perform in front of thousands of people, to do this? “It’s hard work but very rewarding,” says Lois. “Our concerts just fly by and it’s great to see immediate benefits. We try and include a bit of everything – classical, musical theatre and television. We like to warm up bodies as well as brains, so we incorporate movements, dancing and quizzes. Everyone, no matter how far progressed the dementia is, can join in, even if it’s just singing ‘la la la’.” A couple at the centre who are regulars at the concerts are Jeff and Joyce, who have been married for 56 years. Sadly Joyce has suffered dementia for the last eight years. “Joyce used to be a singer and a dancer,” her husband Jeff tells me. “These performances really stimulate her. She physically brightens up and memories are evoked. ▲ Iona and Lois “She has no recognition of her family but recognises songs. Caring for Joyce is hard work, so coming here provides respite for me.” “You ask someone to tell you their name and they can’t remember, then the next minute you see someone sing a line, and even a whole verse of a song.” Pauline Masheder, a volunteer at the centre, is equally passionate about the scheme. “I saw an advert in the local paper,” she says. “There was something in the name Lost Chord and I was intrigued. I had just retired and was looking for something to do, so I answered the ad and have never looked back. “It’s a tremendous amount of fun, not just for the elderly but also for the volunteers. Whatever the level of dementia, and however challenging, people always get something back. With people with dementia the last thing that goes is the music. “You ask someone to tell you their name and they can’t remember, then the next minute you see someone sing a line, and even a whole verse of a song. “Sometimes people cry if they hear a certain song or tune but I never tell them to stop. If they experience an emotion through a memory then that’s good; even a sad memory is a piece of who you are or were. “When you’re a volunteer, if you don’t get something back then you don’t do it. I couldn’t leave; I’d miss it way too much.” Lisa Carr Further information There is no statutory funding for Lost Chord’s work, which relies solely on supporters’ help. To make a donation please visit www.lost-chord.org.uk 21 CASE STUDY Stuck in a Tube tunnel, I’m running very late for my meeting at Pacific Television Centre. And no, it’s not an audition for the next Big Brother, but an interview with Dave Marsh, the chief executive of the Aged Care Channel (ACC-TV). It’s quite possible you haven’t heard of them, but I suspect that will change. ACC-TV provides training, but not as you know it! Gone are the lectures, flipcharts and PowerPoints in favour of TV programmes presented by experts in different fields, plus live phone-ins. They’re shot in real care homes across the country, not only focusing on key outcomes and the performance indicators expected by the Care Quality Commission (CQC), but also the issues faced by most staff, every day. “If you’re aiming to engage carers, then the training, the carer and the mindset is a very important relationship.” “Our motto is to ‘engage, inform and inspire’,” says Dave, as we settle down next door to the studio, “and it works because we understand the psychology of the carer. We understand that English may not be their first language, that they may be under-confident when it comes to reading and writing and perhaps in school they were the ones hoping the questions weren’t asked of them. So, when it comes to training – 22 which is a very good thing – they may prefer not to be in a blackboard type environment. “ Dave explains that if you’re aiming to engage carers, then the training, the carer and the mindset is a very important relationship. With a background as chief executive of Sunrise Senior Living in Europe, he fully appreciates that carers go into this work for a reason – something pulling them to it – because there are certainly other less physically and mentally challenging environments to work in. Dealing with the care of vulnerable adults in often very stressful situations near the end of life is a lot to ask of people. So why television? “The thing about television,” Dave says, “is that it is omnipresent in all our lives. It’s our storytelling device these days, and is therefore non-threatening. In olden times we’d all be sat round a campfire telling stories; well the campfire’s gone but now we have television!” I laugh at this but know instantly that he’s right. ACC-TV could simply make and sell a lot of specialist DVDs, but what seems to work – and why they have gained 200 members in barely two years in the UK – is the community created by having a live television broadcast once a month, followed by a period of time where calls are taken and questions answered by a specialist. In this way, the carer realises they’re not an isolated person in a care home in Somerset or Matlock, or the only one in the land with that problem, or even the only one who has that question. It’s a compelling outcome; the training medium allows the carer to feel part of a great swathe of people who are in the same sort of boat. I watch a bit of the live phone-in with cardiology expert Dr Ali. It’s bright and accessible – like daytime TV – but the questions on congestion and heart failure are real and answered sympathetically. Usefully, members can record the live programmes for future reference and use them to train new staff and others who may have been unavailable at the time of the original broadcast. The growing library of over 40 titles is supplied to all members. “The carer realises they’re not an isolated person in a care home, or the only one in the land with that problem or question.” Broadcast and live link-up over, Dave shows me the technical wizardry of the studios on my way out. He asks if I have any other questions and I reply that I very much like their motto. He smiles as he opens the door: “Our belief is that if we can inspire people through the medium of television, to just make a slight change in their behaviours, and can do that across a mass of people, then we can make a difference. That’s our objective.” My objective as I hit the road is a smooth-running Tube home. No problems on the District Line; I sit opposite a young woman circling programme times in a popular guide. Yes, we’re living in the TV Age. For more information visit www.agedcarechannel.co.uk Debra Mehta Daughter, wife, mother, preacher...carer The charity Carers UK estimates that there are 6.4 million people in the UK providing care for ill or disabled loved ones. Few of them are likely to be caring for three generations of their family, as Elisabeth Johnstone, of Haxby, York, does. Lis, as she prefers to be called, is registered carer for her husband and parents. She is also parent/carer for two of her three children, who have learning difficulties. Alongside her caring duties, she holds down part-time jobs as a work development training officer at North Yorkshire County Council and as an adult education tutor. Lis, 42, is also a volunteer Methodist preacher and plays an active role in local carers’ groups. Unsurprisingly, she says of her busy life: “I juggle a lot!” Lis began by caring for her mum, aged 73, who is deaf, when fibromyalgia started to cause her problems. About four years ago, Lis’s dad, 75, had a rare reaction to medication and she began to care for him too. “For my parents, it’s form-filling and shopping and offering them meals. It’s making sure that if they are having a bad afternoon, they don’t need to think about making a meal. I’ll pop over for a cup of tea and do a bit of vacuuming or sort out a letter or take their dog for a walk,” she says. “Lis fears that the Big Society may be used to cut funds.” In 2005, Lis’s husband Ian, who was in the RAF, returned from Iraq and began to experience poor mental health. He has since had two breakdowns. Now he is recovering but, in the early days, Lis describes the care as “full on” because she had to do everything for him. In addition to her husband, Lis was caring for her three children, aged 13 to 16. Her youngest two, Stephen and Andrew, need particular support since they have learning difficulties. “The care for the boys tends to be around their education and socialising. Stephen and Andrew might be the only children in their class with these issues and they can quickly become targets, so there are also self-esteem and confidence issues to consider,” she explains. Alongside addressing her boys’ emotional needs, Lis has to be organised on a scale that far exceeds that of most mothers. For example, she has to ensure there are three sets of sports gear ready for use at any one time – one at home, another at school and a third in the secretary’s room at school. “In addition to her husband, Lis was caring for her three children aged 13 to 16.” CASE STUDY resting with politicians, Lis fears that the Big Society may be used to cut funds. She is not alone. A survey by Carers UK carried out in June showed that 81 per cent of unpaid carers are worried about cuts to services. Carers UK chief executive Imelda Redmond says that there needs to be a rethink in how unpaid carers are supported. She points out that public services would struggle to meet demand without the efforts of unpaid carers: “This contribution is something we can be proud of as a country, and demonstrates how strong our families and communities are.” “It’s trying to anticipate problems before they happen, because once the boys are panicking then it’s difficult,” she says. As a result of her caring role, Lis has become involved in carers’ groups. She is involved with parents’ forum CANDI and the Carers’ Forum and has been developing a support group for families in York who have members with dyslexia and learning difficulties. Lis describes the support she receives from the various groups as invaluable. Meeting once a month for a coffee and chat is a chance to swap stories and share concerns with others. Such gettogethers have helped make her caring role much easier, she says, because she no longer feels so alone in meeting the challenges. “A few years ago I was isolated. Even though we’re members of a church, when my husband was ill, it was hard. People didn’t know what to say to me and I didn’t know what to say to them. But once we learned to accept it, we were able to reach out and that was the key thing because it’s very hard for people to know how to behave,” says Lis. The support that various networks have given to Lis makes her a supporter of Prime Minister David Cameron’s Big Society – in theory, at least. While she welcomes the idea of local communities working together to provide services and support, rather than the power “Lis is a volunteer Methodist preacher and plays an active role in local carers’ groups. She says of her busy life: ‘I juggle a lot!” Lis says that she feels lucky to have support from groups, church and her employer North Yorkshire County Council – without their willingness to be flexible, she would be unable to work. “I have good days and bad days but, generally, we’re OK. As a family, we are open and upfront about the challenges that face us. It’s brought us closer together.” Julie Griffiths 23 FOCUS ON Social enterprises Social enterprise for social care How public sector spin-outs are changing the face of social care Public services in Britain are currently undergoing a significant period of change. Social care is no exception and is perhaps feeling these changes more keenly than most parts of our public services. The sector is facing tough times of financial austerity, and with both the recent Southern Cross scandal and the release of the Dilnot Commission final report within the last 12 months, is also facing a great deal of scrutiny. Despite this, however, there is a growing opportunity for some care services and the teams and leaders within them, an opportunity to ‘spin out’ into an independent provider of services, run in a way that removes constraints and empowers staff and users to create the kind of services that will push our assumptions of just how good social care in Britain can be. The Coalition Government is encouraging the development of stakeholder-owned social enterprises to deliver health and social care, a model that has been supported by all three main party political manifestos. At present, approximately 9% of the 62,000 social enterprises in the UK operate in the health and social care sectors, a growing number of which have been successfully ‘spun out’ of the public sector in recent years1. So what does a spin-out entail and how do they benefit the social care sector? A spin-out is an organisation led by a group of public sector workers who act together to establish themselves as independent service providers, such as independently run care homes or day centres. The core idea is that they provide the same services as those publicly managed, but act autonomously and use business solutions to achieve a public good; in this case, better social 24 care. Spinning out therefore provides an opportunity for the social care sector to reinvest social value at the core of their public service delivery. That’s what the Transition Institute is all about. We support and stimulate new models of public services based upon maximising social value – basically, ensuring that the organisation is set up, run and governed in a way that provides the very best care and positively, proactively benefits the wider community in which the organisation operates. “Worthwhile things are often hard won, but this has been truly worthwhile and feels more like serving the public again than public service as it has come to mean to some.” An example of a successful social care focused spin-out organisation is NAViGO, a not-for-profit social enterprise that provides mental health services in North East Lincolnshire. Launched as a social enterprise in April 2011 as a transition from North East Lincolnshire mental health services, it works hard within its community to provide innovative and trustworthy assistance to those affected by mental health illnesses. Chief executive Kevin Bond is quick to point out the reality of the challenge. “It was awful, tortuous and, quite frankly, one of the most unpleasant and difficult things we have ever done. But we would do it all again tomorrow – the service is so much more efficient, less bureaucratic and quicker to respond, and now people who use it and the staff who work in it have a much greater say.” So while spinning out into a social enterprise is by no means an easy transition to undertake, the benefits are often worth the effort. Spin-outs can be a platform for re-engaging staff with the focus of providing even better public services and can encourage an innovative and entrepreneurial spirit among employees. There is also the opportunity for the organisation to train and invest in its staff, as surpluses can be reinvested into frontline services rather than purely taken as a profit or spread too thinly due to managerial overheads. Such staff investment has been very successful in health and social care spin-outs; NAViGO and Living Well (a social enterprise offering health-related services to support vulnerable people from a young age) are great examples. While spinning out of the public sector is not an overnight process for social care providers, under the right conditions and with enough dedication it can be the right path. NAViGO’s Kevin Bond can best sum up the transition: “Worthwhile things are often hard won, but this has been truly worthwhile and feels more like serving the public again than public service as it has come to mean to some.”. Dom Potter Transition Institute interim director Jillian Oxenham Network and communications intern 1 Social Enterprise Coalition 2009; Williams and Cowling 2009 FOCUS ON Social enterprises These are tough times for all businesses. The economic downturn means that many are having to look for that something extra that will set them apart from the competition. While social enterprises are affected by recession in the same way as other businesses, their raison d’être – the fact that they aim to deliver real benefits to the local community and not just profit – could be their greatest strength, and one that sets them apart from the rest. National disability charity United Response (UR) has extensive experience in the field of social enterprise. It runs social enterprises around the country, staffed predominantly by people with learning disabilities, many of whom face major obstacles in finding work through other means. The charity has also supported several people to set up their own social enterprises, including a successful gardening business. “People are learning the basic values and skills needed for work, all very important in terms of increasing confidence and employability for the future.” The hub of United Response’s social enterprise work is in Manchester, where the charity runs UR Consultants, a disability awareness consultancy, and UR Sorted, a bespoke mailing and fulfilment service. Both share office space with United Response’s Supported Employment Service. And both share a USP (unique selling point) – providing a quality service that traditional business would struggle to deliver, and boosting the confidence and employability of adults with learning disabilities in the process. Set up six years ago, UR Consultants and UR Sorted currently employ a staff of 60, including people with physical and learning disabilities, people with autism and people with mental health “Earlier this year successful business woman and former Apprentice hopeful Adele Lock approached them with a proposal.” needs. Getting a job at one of the enterprises often acts as a first rung on the career ladder: UR Sorted, in particular, is often the first experience of paid work that many of its employees have had, and aims to prepare people for mainstream employment while operating as an effective and efficient business in its own right. Laura Stott, who heads up the work of UR Sorted, says: “Through UR Sorted people are learning the basic values and skills needed for work, such as punctuality, commitment, working with colleagues, taking pride in your work, attention to detail and the importance of completing your work on time. These are all very important in terms of increasing confidence and employability for the future.” While some people have moved directly into open employment after leaving UR Sorted, others have gained work with UR Consultants, which delivers disability awareness training to local schools and companies. From there, many have secured paid positions with shops and businesses in the area. The nature of UR Sorted’s work means that because demand for their services may fluctuate, the staff and the business have to be flexible enough to turn around a large mailout or collating project quickly and to a high standard when required. Sharing premises and costs with other United Response services helps UR Sorted keep overheads down and to be more responsive, two very valuable assets in the current economy. Earlier this year, the flexibility of the UR Sorted team was really put to the test when successful businesswoman and former Apprentice hopeful Adele Lock approached them with a proposal. She wanted them to put together high-spec gift packs for her company in Manchester. The work, which requires a consistent eye for detail, was completed to such a high standard that UR Sorted now regularly carries out work for the company. The additional work has also enabled UR Sorted to take on new staff and create job opportunities for people with more complex needs. Clare and Amanda started working for UR Sorted in June, through SHIEC (Sustainable Hub for Innovative Employment for people with Complex needs), which aims to open up paid employment as an option for people with profound and multiple learning disabilities. For both women, this is the first time that they have been involved in paid work. Laura says: “When I went to visit Clare and Amanda after their first shift at UR Sorted, their beaming smiles and thumbs-up said it all! The change in their confidence from the first time I had met them was really noticeable. They were also asking about being paid again, which was great to see as it meant that they had already realised what work was all about.” As with many other social enterprises, the staff at UR Sorted are committed, hard-working, conscientious and flexible. These attributes have helped the service to gain new work during these difficult times and will hopefully allow it to thrive into the future.. Sarah Bartlett Press manager United Response www.unitedresponse.org.uk Photos courtesy of Mark Crick 25 From starting out to changing Britain Imagine a country where we invest in the future, where children get a good start in life, where older people and young people are valued and respect each other, where extended families are supported to care for each other and where communities are designed for everyone to live, work and play together. Imagine a Britain for all ages. That’s what United for All Ages aims to make a reality, working with councils, charities, universities and companies. It’s a year since my wife Denise and I took the plunge and set up United for All Ages. We gave up our jobs and moved out of London to live on the north-east Norfolk coast. In November 2010 we went public with United for All Ages, a social enterprise bringing generations together. The last year has flashed past as we have moved from start-up to vibrant business. Without going through all the mechanics of getting started, a number of lessons have emerged over the last year. 26 We have a vision (as set out above) of how Britain could become a society for all ages. The challenge is convincing national and local policymakers in these difficult times that this ambition is achievable and a better way of using scarce resources. Of course we are not the only organisation promoting inter-generational activities but we have been clear that we don’t want to duplicate what others are doing; rather we want to bring a new perspective to the idea of bringing generations together. Honing our USP (unique selling point) has taken time and repeated efforts to express it clearly. We are focusing on bringing generations together through shared sites, shared caring and shared interests, by advising a range of public, private and third sector organisations. We have focused on getting this message across to local authorities and other potential clients such as housing associations, children’s centres, schools, libraries and health trusts. We sell them consultancy – ideas, strategies, advice, communications – all leading to action and change. As always, relationships and contacts have been key to generating new business. Along with defining our USP, we have invested in our corporate identity to distinguish it from others. The identity has a lot of flexibility in the way it can be used, from our website to publications and exhibition materials. Our designer and web developer have been critical to making it happen, but we have also had to become competent at maintaining and updating the website (and doing lots of other e-things ourselves). “Imagine a Britain for all ages. That’s what United for All Ages aims to make a reality, working with councils, charities, universities and companies.” We soft-launched at a relatively quiet time preChristmas and then had a number of PR activities lined up for 2011 – a policy paper, new awards for all ages, speaking at conferences and commenting in the media on key issues. Timing and nimbleness is crucial for a small organisation competing with national PR machines as we develop a distinctive voice. One example is the United for All Ages response to the Dilnot report on care funding. In contrast to the almost universal acclaim for Dilnot’s recommendations, we focused on how the proposals add complexity to an already complex care system and are regressive by setting the same cap for someone who owns a terraced house in Sheffield as the owner of a mansion in Surrey. But another unfairness seems to bedevil our society; yet again younger generations are being asked to pick up the tab. Shifting the burden from richer older people to the taxpayer, as proposed by Dilnot, ignores where wealth rests in our society. FOCUS ON Social enterprises The vast majority of wealth is held in various assets – property, investments and pensions – by people aged 55-plus who have done very well from several housing booms and from decent pensions. It's only fair that funding for a much needed better care system comes from this wealth, in a way that relates to individuals' wealth. A levy on estates over a certain value would be fairer. It would also address the growing polarity between the rich and the rest in our country and its consequences for social mobility. Inter-generational fairness is the big issue this decade. As younger and middle-aged people feel the squeeze more and more, we need to restore the balance in our society. That is also the focus of a new United for All Ages paper, Investing in the future, which looks at wealth, work and welfare in a multigenerational society. A year after launching United for All Ages, we have begun to be recognised as a key player in a range of related areas, from childcare and children’s services to family and care policy and older people’s support. This autumn we will be attending the party conferences to raise our profile and ideas with policymakers but also to market our consultancy with potential clients. In two weeks we hope to do a year’s worth of networking! One of the challenges of being based on the Norfolk coast is that so much is still London-centric, so we have to make the most of every minute when we do visit the capital. Things always take longer than you want, so patience is vital. But it’s important to remain ambitious and optimistic about what could be. We returned recently from Washington fired up by the annual conference of our sister organisation, Generations United. Among the winners of the Generations United awards was the Lutheran Home at Kane, Pennsylvania, for its development of an inter-generational shared site. When the care home opened in 1966, no one imagined that one day children would share its premises. Now the 120 older residents of the Lutheran Home, many with dementia and other needs, share the facilities. “A year after launching United for All Ages, we have begun to be recognised as a key player in a range of related areas, from childcare and children’s services to family and care policy and older people’s support.” In the afternoon, 20 school-aged children arrive at KASP, the after-school programme. Here the older residents help the children with school assignments and take part in fun activities promoting wellness and fitness. The home also works with the local high school to train and employ nursing assistants, as well as being a clinical worksite for students considering careers in health and care. It may seem risky but it all works, benefiting older and young people alike. It’s a great use of scarce resources and a fantastic way to build lasting bonds between generations. We need to see more care homes doing similar things in the UK. That’s the kind of inspiration that drives on United for All Ages as we enter our second year.. Stephen Burke Director of United for All Ages www.unitedforallages.com Each day local parents bring babies and toddlers to KIDS, a day care service. While there, the children can visit the older residents to make crafts, exercise, read stories and enjoy each other’s company. 27 ▲ FOCUS ON Informal carers Keith and Alf Not too old e r a c to A carer’s life can be a tough one, especially when the carer faces the challenges of their own old age, but it can bring many rewards too. That is certainly the case for Alf Winter, now 90, who has looked after his disabled son Keith, 57 , all his life. In fact, Alf feels that caring for Keith is what keeps him alive and feeling young. Alf part-owns a bungalow in the Western Close housing complex run by Derwent Living in Ashby-de-la-Zouch, Leicestershire, which offers ‘independent living in a sheltered environment’. They moved there with Alf’s late wife in 1999 when Alf began to find the stairs in the family home too much for him. The accommodation offers Alf all the dayto-day support he needs. When his wife, who sadly died several years ago, developed dementia, Alf was able to arrange higher levels of support to help him care for both her and Keith, including home adaptations to cope with her wandering. Keith has very limited mobility as well as learning difficulties, and domiciliary care workers visit in the morning to help him shower and dress. He attends a day centre from Monday to Friday, has a support worker from learning disability charity Mencap and goes into respite care for a week five times a year. 28 With this support, Alf – officially Mencap’s oldest carer – and his son enjoy independent and full lives. Although he retired as a miner in his early 60s due to illness, Alf is still fit and healthy and able to drive. He does all the household cleaning, shopping and washing, and cooks full meals for himself and Keith every day. Western Close scheme manager Eileen Wheeler has nothing but praise for the way Alf not just gets on with his caring responsibilities but enjoys his life. And she believes that sheltered housing of this nature is particularly suited to older carers like Alf who might otherwise become isolated. There’s a mix of ages among the residents of the 29 purpose-built flats and bungalows, from 60 to 92, including two who are still working and another 90-year-old carer who’s looking after her husband. The laundry is the only communal facility, but there are lots of opportunities for socialising, and both Alf and Keith are regular guests at BBQs and birthday parties. Such activities are vital to people’s emotional wellbeing, and Alf is a particularly sociable person who also belongs to a local carers group. Eileen says: “I think Alf’s absolutely phenomenal. He does what he’s got to do so bravely and lovingly, and is always so happy and laid-back, although he still misses his wife and it has hurt him when ignorant people have discriminated against his son. And Keith has an amazing smile and is wonderful to talk to.” Eileen visits everyone in Western Close daily to check they’re OK and if there’s anything they need. She regularly helps Alf with paperwork like bills and benefit claims that can be confusing. Who cares for older carers? There are 48,000 unpaid carers aged over 85 in the UK, according to Age UK. But they may not view themselves in this role, seeing looking after a loved one as part and parcel of that relationship. But even when they find caring rewarding, it can be stressful and exhausting, especially if they neglect their own declining health or become socially isolated. Age UK’s campaign, Invisible but invaluable, wants health and care professionals to do more to identify these often ‘hidden carers’ and make sure they get their own needs assessed, the right practical and emotional support and regular health checks. Individual support plans identify where additional help is required, such as aids and adaptations. A central control system means that an immediate response is activated at the touch of an intercom button in an emergency. But the informal networks among residents are just as important. “They see each other all the time, and everyone keeps an eye on everyone else,” says Eileen. “The younger ones have got great empathy with the older ones.”. Vicky Burman FOCUS ON Informal carers Every six seconds, someone takes on the role of caring for a partner, family member or friend. We know that people who care can take years to recognise themselves as a ‘carer’ and access support. That is why it is so important to raise awareness of carers’ needs across society. We need everyone – colleagues at work, neighbours, friends, GPs, pharmacists – to recognise when the people around them might need a bit of advice, information or support because of caring responsibilities. At Carers UK we want to celebrate the value of what families do, both for their lovedones and for society as a whole – estimated to be equivalent to £119bn. It is also crucial that carers’ knowledge and expertise is acknowledged. The National Carers Strategy, recently updated by the current Government, emphasises the need for carers to be treated as ‘expert care partners’ by NHS professionals and the social care workforce. We know that health and social care services that involve families in treatment and decision-making, and consult carers as a matter of course, deliver better outcomes for older and disabled people, give families peace of mind and also save time for professionals. Professionals are often on the frontlines of identifying carers and guiding them to support. Carers UK delivers ‘carer awareness’ training for staff involved in social care. Receptionists, GP practice managers and admin staff, as well as care managers, can be the ones who pick up in a conversation that someone is providing care and hand them a leaflet or offer a small bit of advice that can help that person recognise themselves as a carer and enable them to access support, thereby minimising the potential impact on their health, finances and work prospects. “At Carers UK we want to celebrate the value of what families do, both for their loved-ones and for society as a whole – estimated to be equivalent to £119bn.” Growing issue Over recent years the UK has seen a 50% increase in the number of people providing round-the-clock care. Without a significant investment in social care, more families will have to provide large amounts of care, often falling out of work to do so. How we support carers is a growing issue due to the combined effect of a significant increase in the number of people who need care through frailty and disability and a significant reduction in public spending. Within the next three to four years the number of people needing care will outstrip the number of people able to provide that care. An ageing population, smaller family sizes and geographic mobility have all contributed to what is a significant crisis for the national and local government, the NHS and employers. We need to think differently about how care is provided and about how we support families who decide to provide that care, unpaid. Just as increased participation by women in the labour market led to more and better provision of childcare, so care services must be seen as an enabler as our population ages. Our vision for social care is that it delivers early, preventative, personalised support to families to promote the independence of older and disabled people. Indirectly, this will support carers too.. Imelda Redmond Chief executive Carers UK 29 CHAT … h t i w l a n o s r e p d n a Up close Baroness s s o r g n e e r G y l Sal Baroness Sally Greengross has been an independent crossbench member of the House of Lords since 2000 and chairs three all-party Parliamentary groups: Corporate Social Responsibility, Intergenerational Futures: Old and Young Together, and Continence Care. She is the vice chair of the all-party Parliamentary group on Dementia and Ageing and Older People. In December 2006, she was announced as a commissioner for the Equality and Human Rights Commission and was also director general of Age Concern England from 1987 until 2000. Q How do you see dementia care fitting into the Government's personalisation agenda? Dementia is high on the government agenda at the moment and will be for quite some time. Because of the demographics, and because people are living longer due to medical and social care advances, there is an increase in dementia. We need to acknowledge that it is different from many other conditions, because with the right care people can live with dementia and do a lot for themselves and participate in society. The whole personalisation agenda must include people with dementia as they are such a large part of the population that care workers serve. We have to maximise what people with dementia can do in their lives and in participating in society, so it's important that as much control as possible remains with that person. Dementia doesn't just affect the person with dementia, but also the family carer – they are the partner in care. The family carer must be as much a part of the personalisation agenda as the person with dementia. Q How did you feel about the task of chairing the all-party Parliamentary group on Dementia enquiry? It was an enormous privilege to be asked to do this. It's a huge challenge but an extremely important 30 one to get members of Parliament in both houses to become much more aware of what we are facing in terms of dementia, with research, both for a cure and maximising good care, and looking at the policy and practice and implications of having a national dementia strategy. It’s only if politicians are aware of the challenge, are aware of the priorities, and above all, are aware of what they need to do to leverage support to prioritise the actions that need to be taken for training that we can get the work that goes on in dementia right. Q How are you encouraging Parliamentarians to share their views? The all-party group brings in the members of Parliament from both houses and they learn what's going on in other parts of the country and what might happen in their constituency. They learn about what they need to do to get best practice on a local level and also to develop the relationships with key people in their constituency to improve practice where it's not very good. It’s knowledge spread, which is what we are about; getting the right information across the country to members of Parliament and their researchers and the people that work with them. There is so little knowledge about dementia and so much that isn't known. MPs are critical because they have huge potential to change and improve things but they don't always know about things or recognise things. We have to get past the lack of interest in old people, which is a form of prejudice, not recognising what a critical issue the whole ageing thing is and particularly when looking at the area of dementia. If you don't know, you can't change things. We spread the information so they are better informed to do things in their constituency, and indeed across the country, to effect legislation and debate. Q How will the enquiry give recommendations about developing skills in the workplace for social care? There are so many people doing a very good job in social care but not being very well qualified. So we need to get people better qualified and better recognised, which will mean their status will go up and they will be better rewarded. To get this through the all-party group we produce reports, we have meetings and receptions and get people involved. Most people in this country have either direct or indirect knowledge about somebody with dementia. We need to make people aware that they can get involved and can make things happen nationally and locally. Q What do you think will be the main barriers to implementing change? Getting adequate funds for training. Everyone is being squeezed very hard at the moment. There are enormous barriers that we have to overcome. Some of this we can do through organisations like the Alzheimer's Society, the Alzheimer's Research Trust and all the others that aim to raise the profile of health and social care. We need to spread knowledge and get a huge army of campaigners to make sure everyone knows that this is a critical issue. Social care is very important as it enables you to maximise the potential of people at whatever stage of dementia they are. We need more money available to us, whether it be for drugs or good care. A lot of it isn't about drugs, it's about understanding how to enable people by using technology and training – money has to be spent on these areas. The other thing is keeping people at home as long as possible doesn't cost more, it costs less because they have less time in highly expensive hospitals and care homes. Q It’s a fine balance of saving money for dementia care but still delivering better outcomes. How will the enquiry address this? Local authorities and the independent sector are having a problem to get enough money to do anything at the moment. There are issues about understanding that if you can keep people as well as possible for as long as possible, and encourage them to remain as independent as possible, they will not die of dementia, so it's in everybody's interest to do this. We have to train staff and care workers at all levels about what can be done to maintain wellbeing and independence. Staff have to be trained to deal with very challenging behaviour. Without training we run the risk of calming people down by inappropriate methods like anti-psychotic drugs. It's vital that we get highly trained staff trained and recognised in the area of dementia. “I want to be part of something that will be an instrumental change for the better.” Q Do you think the changes to the healthcare sector and the new GP consortia* will have any impact on dementia care? It could work well. GPs are the people that everyone is in touch with, and more commissioning done at a local level would be good for people with dementia. There is a shift of understanding that health and social care, when properly integrated, is beneficial. You cannot distinguish whether you need health or social care, and it’s very important that this change goes through. My worries are that GPs are not themselves knowledgeable enough, so we need to overcome that. GPs need to be much better informed. In the area of dementia, the consortia themselves have to be skilled in bringing in specialists so that people are properly diagnosed early. Early intervention means there is a whole lot that can be done, whereas if the diagnosis is later you lose a whole lot of opportunities for good care and good treatment. Integrated care, early diagnosis, involving the individual and the family in the care plan and the use of technology are all essential. Q What are your professional aspirations for the future? My whole professional life has been trying to effect change for vulnerable people, so I just go on wanting to see the time when we can guarantee good care for vulnerable, older people. I just want to be part of something that will be an instrumental change for the better for those who really do need that leg-up in our communities in order to lead a fulfilling life. “Get a huge army of campaigners to make sure everyone knows that this is a critical issue.” 31 CHAT 360 Informal carers... A lack of support for carers is costing this country billions of pounds every year, according to a new report from The Princess Royal Trust for Carers and Crossroads Care. On the flipside, the value of carers is estimated to be comparable to £119bn. We ask a group of stakeholders, what more can be done to support informal carers? ...what's important to you? Imelda Redmond Stephen Lowe chief executive, Carers UK policy adviser on social care, Age UK We need to think completely differently about how care is provided and about supporting families who decide to provide care unpaid. We need a new social contract between individuals, families, care providers, employers and government. Political parties must work together on reform of social care, placing a stronger emphasis on individually tailored support, imaginative use of technology – and, crucially, making it possible for carers to provide support without suffering any penalty. The majority of care that older people receive is provided by family carers, and quite a lot of those carers are themselves older people. In many cases they face the immense stress of caring for someone with dementia. Respite care, advice and information, and mutual support for these carers are essential and should not be seen as optional extras. The aim of this support should be to give carers a decent quality of life, and not just to ensure that they keep going. Geoffrey Almond carer for his wife Jean I care for my wife Jean, who has secondary progressive multiple sclerosis, out of a sense of love and compassion. Caring is reward itself. Although, at present, I am assisted with Jean's care by paid care support workers, the future looks very uncertain. Despite Jean's deteriorating condition, the amount of Independent Living Fund we receive has already been reduced. Clearly this is a worrying trend for the future. Genuine recognition by the Government and more support would enable us to carry on with Jean Almond our happy lives together cared for by her husband Geoffrey in our home. My life could not continue in the way it has done without my husband/carer Geoff's support. Although we also use paid care support workers, there are many gaps that my husband fills. My husband provides stability, comfort and love. He is my soulmate and I take great strength from that. I would not like to face the future without him. I cannot even think about residential care. 32 Beryl Cross head of operations, The Princess Royal Trust It is vital that we continue to support carers in practical ways through the development of local carers’ centres and other support networks. The Princess Royal Trust is continuing to act independently in the interests of carers through research, development and consultation and influencing national, regional and local policy. Forging partnerships with other national organisations and disseminating information through interactive websites and providing advice and access to support groups is key. Ask Jennifer… CHAT Ask Jennifer Dear Jennifer, Can you or any of your readers help me to escape from a vicious circle I find myself in? I work nightshifts, as a carer, five nights a week. My problem is sleeping during the day. I find if there are other people in the house I can’t get to sleep. Noise from the neighbours, even the postman delivering our letters, keeps me awake. I end up getting up, doing housework, watching television or even going out and doing some shopping. But the end result is that I don’t get enough sleep to be able to stay awake and do my shift overnight. My work is undoubtedly suffering because I can’t give it my full concentration. Nobody has said anything yet, but it is only a matter of time. I am also worried that I will forget something important or have an accident because I am so tired. Needless to say, this is also having a bad impact on my home life. By the time the weekend arrives I am exhausted and seem to spend my free time either asleep or slouched on the settee with no energy for my kids or husband. Does anyone else have this same problem? If so, how do they manage? I just don’t seem to be able to get any sort of work-life balance going at the moment. Dear Erika, Not getting quality sleep is very distressing. A note on the front door saying ‘night worker sleeping – quiet please’ might help. I rely on earplugs, which can be bought very cheaply from any chemist. You will need to try and establish a sleep routine again instead of an awake routine. Techniques include: avoiding heavy meals, alcohol or too much caffeine from tea or coffee before bedtime; having a routine as you may have done when your children were small to signal ‘sleep time’ (you might even want to try a bedtime story for yourself); doing some relaxation techniques (the simplest being to tense muscles one at a time from your toes up, then relax them). The Royal College of Psychiatrists has an excellent website with some useful information on sleep at www.rcpcych.ac.uk. Do let us know how you get on. Erika, Hemel Hempstead. Have you a problem we can help you with? If so, send your letters to us at [email protected] Alarmingly Affordable! Aid Call wireless nurse call systems support over 100,000 residents nationwide. Safe, reliable and simple to use - they’re also more affordable than you think. 0 220 (20 30 0 7) www.aidcall.co.uk EN 0800 052 3616 d n a Sexmentia De CHAT In My Opinion O P I N I ON This month In my opinion turns the spotlight on the tricky subject of sex and dementia and examines two sides of a common dilemma. Consider this scenario. Widower Jack goes into a care home when his advancing dementia means his family can no longer provide him with the care he needs. He settles in quickly and happily and makes new friends. One particular friendship is with Jean. The two of them spend a lot of time in each other’s company and it becomes clear that they would like to progress the relationship to a sexual, intimate level. The care home owner doesn’t know what to do. Fearing the disapproval of Jack and Jean’s families, he orders his staff to do all they can to prevent the relationship from progressing and forbids them to tell any of Jack or Jean’s relatives. Is he right? YES Jack and Jean clearly have dementia and won’t really know what they are doing and so they should be stopped. A care home is an inappropriate place to strike up a sexual relationship as the manager and staff have enough to contend with without this activity. Jack and Jean’s relatives trusted the care home to look after their parents, not allow them to get into a situation like this. Both had been married and should respect the memories of their late husband and wife. NO Despite the emphasis on person-centred care, there is a danger that we are ignoring one of the most personal aspects of human life – our need for affection and intimacy. While dementia may impact on a person’s life in many ways, including their sexual relationships, it would be wrong to assume that their need and desire for intimacy is destroyed. Sexual expression and intimacy enhance the general health and wellbeing of older people. The care home should make Jack and Jean’s respective families aware. If the home and/or the families have any doubts they should have Jack and Jean assessed under the Mental Capacity Act and if it is clear that both have the mental capacity to make such a decision for themselves, the relationship should be encouraged. Employers, staff and experts…what do you think? Email us at [email protected]. Care Talk looks forward to receiving your views, which will be considered for next month’s edition. 34 CHAT Voice Over TOP TIPS FOR PROMOTING COMMUNITY INTEGRATION How do you promote the relationship with relatives and the wider community? Traditionally, care homes have been perceived as lonely places, places that are institutionalised and cut off from the community. Of course, the reality is very different, with the focus very much being on promoting partnerships and integration with family, professionals and the local community. We asked five care home managers: How do you promote the relationship with relatives and the wider community? Debra Mehta 1 Have an open door policy; encourage participation and communication 2 Organise charity and other events; involve the local community 3 Give talks to different community groups; inform and promote understanding 4 Organise ‘family and friends evenings’; encourage people to come to you Karen Brett – 3AB Care Ltd Nike Ajewole – Tanglewoods I think it’s about the home being a friendly home and we involve relatives wherever we can in all activities we do at the home – in outings and for shared meals, for example. We also encourage a lot of the people from the village to join in with whatever activities we have on. We always promote the message that Brook House has an open door policy. We have a residents’ support group and we meet every six weeks, when we also help with any issues relatives might have, too. I also go out into the community to give talks – most recently the Rotary Club – about dementia and what we do. We rely on feedback from the community for what we do. Sue Grummett – Majesticare Shaji Rajamony – Redcliffe House Sean McCloskey – Regal Care We get involved with everything! We’re the only home in a bunch of villages and everybody knows everybody. The GP surgeries are very closely linked to us. Every three months we have a ‘family and friends evening’ and we have a lot to do with The Bramley newspaper, which is local. We put flyers out for our events and basically, if you live in our community and might one day need care, then we want to get to know you. Working with people with autism, we want to promote independent living for them so we organise activities to include relatives – it’s very practical. Two or three times a year we organise charity events, for example, Red Nose Day and car wash days, and we do charity walks inviting relatives and people from the community. To be surrounded by the community is very important. Home Ltd By incorporating everyone I meet! Local churches, local schools and the staff are vital because they live in the community. We’re currently working closely with people from St Barnabas Church, who come in regularly. And we have monthly meetings that all family members are invited to attend. Incorporating relatives and the wider community is vital to the job we do, to get the understanding and the feeling that they’re still part of the community. To get your free copy of Care Talk, register online at www.caretalk.co.uk 35 CHAT Pillow Talk She’s big, bold and beautiful! Alison Hammond is larger than life and has taken This Morning by storm. The ever-popular roving reporter has notched up nine years on our screens as the people's favourite with the personality you never forget. Her unforgettable charm and sense of fun rate her number one with the celebrities too. She's tap-danced with Renee Zellwegger, rapped with Will Smith, jammed with Russell Crowe and had Pierce Brosnan begging for more, to name just a few. Known for her quick wit, outrageous presenting style and big heart, nobody gets a better interview than Alison. Her latest adventure away from This Morning filming saw her enter the I’m A Celebrity jungle where she faced many fears, including eating and drinking all types of bugs. Alison is the presenter at the Great West Midlands Care Awards on 15 October. “I really appreciate the time and energy the social workers put into their job; they are amazing!” Q What have your experiences with social care, if any, been like? Q What do you consider to be your greatest achievement? I used to work as a social worker; I had a temporary job as a typist but unfortunately I was a bit too slow! But they loved me anyway and kept me on. It was very difficult because some of the case studies I looked at were fairly harrowing and it was difficult to do the job without getting emotional. I really appreciate the time and energy the social workers put into their job; they are amazing! To date, my greatest achievement is having Aiden and a successful career on This Morning. Q What is your perception of social care today? I think that social care workers do a lot more than we would ever know or realise. It’s not a typical 9-5 job. I have the biggest admiration for them. Q How does life before Big Brother compare to your life now? It’s a lot more business now, juggling motherhood and work. When I went into BB I was a kid – I didn’t even wear make-up! Q What was the most challenging, Big Brother or I’m a Celebrity, and why? I’m a Celeb because you’re outside – BB was luxury in comparison! 36 Q What were the highs and lows of being in the jungle? Lows, being away from family. Highs, having a laugh with everyone in camp. Q Who has been the most nerve-racking person to interview on This Morning? So far, the most nerve-racking person has been Simon Cowell. Q And the nicest? Will Smith. Q If you were stranded on a desert island, what would be your one luxury item? Laptop with wireless. Q If you had a magic wand, what is the one thing you would change about social care today? There would be more staff, more money and fewer hours for the hard workers, and they would be appreciated so much more. 2 CHAT It Takes 2 It Takes Home care worker Marion Harmer, from Allcare in Shrewsbury, and service user Shelia Roberts talk about their mutual respect and friendship for one another. Shelia Marion and I have known each other for just over three years now, after the district nurses first recommended Allcare to me. I had undergone major spinal surgery and the future was looking pretty bleak; the doctors didn’t think I’d pull through, let alone walk again. After the operation I spent a lot of time in hospital, but once I was finally allowed home it was then that Marion began visiting and our friendship was instant. Marion comes to visit me twice a week, one hour on a Monday and one hour on a Thursday. She helps me do jobs around the house that my back prevents me from doing; from making and changing my bed to cleaning the windows. She helps me get in and out the bath and I’ll always ask her to dust the top of the shelves, which I can never reach. She jests that I ought to buy a stepladder to join her and dust the curtain poles! "I look forward to Marion’s visits as we always get through several pots of tea and perhaps rather a few too many teacakes!" I try to do as much as I can by myself and like to get out of the house to socialise with friends in the village; we all go for lunch on the first Monday of every month. I think that, particularly at my age, it is very easy to cut oneself off from the rest of the world. Solitude is perhaps one of the greatest threats to elderly people. Going out for lunch and visiting neighbours helps to keep me active and retains an element of independence. I look forward to Marion’s visits as we always get through several pots of tea and perhaps rather a few too many teacakes! We are never short of things to talk about, and we just seem to have so much in common, whether that be our love of Irish folk music or family weddings. We truly are like old friends; we gossip about anything and everything. Her warm and caring nature makes the neighbours extremely fond of her. They too find it difficult to see Marion as just my carer, but rather a dear friend. Marion Shelia can be described as nothing more than an inspiration to us all. The retention of her independence stands testament to her strong and individual character. From sending party invitations to going for lunch with friends, Shelia has defied the odds with her recovery from surgery and is in no hurry to slow down. She is very much in control of her own care plan in that she decides what she wants to eat and when, or what she wants to wear in the mornings. It is such decisions that give individuals a sense of independence and of being in control. I help Shelia with the cooking, cleaning and her personal hygiene twice a week. Anything from dusting to hovering – I’ll often do the more manual jobs. In a sense I am like a second pair of hands for Shelia, just helping out when she needs it. ia Roberts rmer and Shel ▲ Marion Ha Shelia can perhaps be described as a ‘gadget girl’; she seems to have all the latest gadgets. I think her new vegetable steamer is her favourite (and perhaps mine too). Shelia and I have a unique relationship in that we get on so well as friends. It is as if we’ve known each other for years. She knows when I’m coming round and will always have the kettle on! We seem to have so much to talk about; Shelia will tell me about where she’s been during the week and who she’s seen – such a sociable person, it is hard to keep up with her. Earlier this year my son got married, as did one of Shelia’s nephews, and we spent much of our time together wedding planning and sharing photographs. We both also share fond memories of trips to Ireland and our love of Irish folk music, so much so that we go to a country and western club together. Shelia truly is a remarkable individual, especially bearing in mind how much surgery she has been through over the past few years. Her recovery has been remarkable and her character remains fully intact. There is no way to describe Shelia other than to say that she has an absolute thirst for life and her independence is certainly something to be admired. We get on so well together. It is hard to explain, but you often meet people in life who you immediately click with, and for me, Shelia is one of those people. Katrina Rose 37 CHAT Mrs MacBlog Let's Hear It Mrs MAC LOG My flat is on the ground floor. I don’t always feel very safe. I know there’s a security door, and a fence, and you can’t actually open the windows fully, but I don’t like sleeping when there’s just grass and a path outside. I wish I was upstairs. Sometimes I get a bit frightened in the night. The carers say I should pull the alarm cord if I think I can hear intruders but I don’t like to. They say there are staff here all night but I’m not sure that’s true and, if it is, they won’t want to be bothered by people like me worrying them unnecessarily. My George and I hardly ever had a night apart. We were married in 1946 but since he died I’ve slept alone. Actually, when I moved here I got rid of his bed and his wardrobe. No need of them any more, no George any more. We used to have this bedtime routine. I’d make us some warm drinks and he’d go round locking up and switching all the electrics off. We used to switch everything off at the socket and pull out the plugs. We’d been told it was safer that way, and then we read that if you leave things plugged in on standby, it still uses electricity and it could start a fire. But now, someone has put stickers on the sockets saying, PLEASE DON’T REMOVE THIS PLUG. I think it’s because everything has got a timer in it, and clocks and things. But it doesn’t feel right to me. Anyway, our routine was hot milky drinks and everything unplugged. Occasionally I have to get up to see if I’ve unplugged things I shouldn’t. That can’t be helping me sleep either! I get a bit mixed up over time too. Sometimes I get up feeling as if I’ve had a good night’s sleep and I’m ready to start the day, and then I look out and it’s pitch black outside. Middle of the night. And then again, sometimes I have such long naps in the daytime, I miss half the day. I do a lot of napping. No wonder I sometimes can’t sleep so well at night. I think I’m turning night into day. Mrs MacBlog Verona MacIntosh is 88 years old and has lived in extra care accommodation for nearly three years, after she had a stroke, and gets three calls a day. She’s been widowed for nine years. Mrs M acBlog “ Are any of the rs MacBlog contents of M u? How yo relevant to t or deal with ac re u yo would ure us t e this feat this? Why no ng ni staff trai as part of your h role play ug ro th sessions rum fo or a discussion 38 ” Let's hear it! This month Let’s Hear It addresses a dilemma faced by more and more carers as the impact of personal budgets is felt. Consider this scenario: ‘I have worked as a carer for a homecare agency now for seven years and am fond of my employers and the clients I see every day. But one of my clients has now come to me and asked me to care for them privately. They have their own care budget and want me to visit them daily and do a lot more for them than I am currently able to do in my allotted time with the agency. This private client arrangement would suit me much better, especially as another client I visit is considering the same thing. If I took on private clients I could earn as “Personal budgets are the future much, if not more, than I get through and more and more clients are minimum wage with the agency and have much better working hours.’ going to be seeking carers to work in this way..” What should she do? Go for it Personal budgets are the future and more and more clients are going to be seeking carers to work in this way. You should seize the opportunity to get the experience of working with private clients and set yourself up for running a business in the future. The extra money and flexible working hours will help you create a much better work-life balance and enable you to give better, longer and more specific care to your private clients. Stay where you are While an escape from minimum wage and the lengthy hours of the agency might look tempting, the grass isn’t always greener. Personal budgets are very much a new animal and no one is quite sure how they are going to work long term. The safety and job security you have at the moment is probably worth more than the immediate attractions of a small number of private clients. What happens if these clients change their minds or pass away? If you cannot find others to fill their place, you could find yourself without an income at all. Let us know what you think, please email us at [email protected] and we will share your thoughts in next month's Care Talk. CHAT Planet Janet Tabby Talk Tabby TALK s y a hd iB rt years old and am an aspiring My name is Tabitha. I am 13 years old I wanted to be one journalist. Ever since I was 8 first job as a writer! and look at me now doing my Yey! I’m finally 13! It feels so weird being a whole year older and a completely different age. I can now officially say I’m a teenager, which feels kind of amazing but also kind of bizarre. Whenever I have a birthday, I always feel so-o-o excited and just can’t wait for the big day. Each morning I look at the calendar and count down the days, hoping that it will come faster. My mum is totally different. When she has a birthday she just groans and goes on about getting older. I don’t get it – why not celebrate getting older instead of being embarrassed? Maybe when you get to my mum’s age it’s like you’ve had so many birthdays they are just not special any more. Perhaps it’s something to dread instead of something to look forward to – and yet my mum was really excited about my birthday, loads more than her own, which is only a few days after mine. So if that’s what happens when you’re my mum’s age, what happens when you are really, really old? Is it just another day in the year which will pass by unnoticed? And what happens if you suffer from dementia? So often, people with dementia don’t know what day it is never mind when it’s their birthday. But it’s still an important occasion for the people who love and care for you – they enjoy celebrating your birthday with you, and even if you’re only aware of it just for a moment, it’s definitely worth commemorating. So having my birthday and becoming a ripe old teenager has made me think; birthdays should be special whatever your age. The problem now is that I have to wait a whole year until the next one! Tabby X Tabby – Aged 13 Sometimes I feel like Alice. I've drunk out of the bottle and fallen down the rabbit hole. And it's all got curiouser and curiouser! Government cuts - how are they affecting us all? In our immediate jobs, if we’re among the lucky ones, we might not be feeling them directly, but all around us there are changes and probably, by now, everyone knows someone who has been affected or is about to be. It feels like the Sword of Damocles hanging over our heads, making it difficult to plan ahead, not knowing what the future holds. This is a time when there may be more people on the labour market and some of them might be interested in joining the care sector. It’s important that people with the right aptitude for caring (and the right attitude in terms of dignity and respect) are given the opportunity to join the sector. They will need thorough training of course, and they need to have some job security. Local authorities (many of whom are paying for the care you provide) are having to make dramatic spending cuts. Some of that job security might not be there any more, either for newcomers to the sector or for the more established care workforce. When contracts come up for renewal, care providers are going to have to be competitive in order to secure work for the future. Within the overall contract, local authorities are also requiring individuals’ care plans to be reviewed, shaving hours off here, minutes off there. I’ve heard of some going back to the ‘bad old days’ of 10-minute and 15-minute calls in order to reduce spending. Older people living at home are getting a raw deal. Your hard work is needed even more than ever, to keep people feeling confident, safe and cared for. Those who need nursing care, maybe with frequent hospital visits, might just find themselves on the shabby end of clinical services that are themselves under threat of change, restructuring, and reduction. NHS colleagues may be feeling demoralised – which is bound to have a knock-on effect on the quality of care given, which in turn impacts on all of us trying to maintain people at home, or rehabilitate them after a hospital stay. It means that the needs of the people you care for may become more extreme, and that funding will only be available for those with the most acute critical and substantial needs. At a time when care staff are being pushed to the limit on tasks-andtime, people will be even more dependent on the care you offer. Your role has never been more necessary; you have never been more needed. 39 CELEBRATE roud "We are very p ed to be associat with such a ent." prestigious ev s ▲ Ravi Bain ▲ Roger Bo oker Sevacare sponsors Great British Care Awards Sevacare is delighted to announce the recent sponsorship of the Great British Care Awards. Sevacare has sponsored six key operational regions in England, including the North West, East Midlands, West Midlands, Yorkshire, North East and London. Sevacare’s sponsorship of the awards demonstrates the company’s commitment to pay tribute to those who have demonstrated excellence across the care sector. Working in the care industry can be extremely challenging and demanding; the Great British Care Awards provide an excellent platform to showcase some of the dedicated, hardworking and inspirational people in the community, who are committed to making a difference to vulnerable people. Care workers provide more than just personal and practical care. They provide companionship, support and advocacy, and many are often referred to as friends. Care workers in the community prevent isolation and loneliness, which unfortunately is becoming a more common occurrence, especially for older people. Sevacare often refers to care workers as ‘unsung heroes’ because of the devotion, loyalty and compassion they give when making such a valued difference to people’s lives. Speaking about the sponsorship, Sevacare chief executive Roger Booker commented: “The domiciliary care market is a diverse industry, with a large number of small employers, which suggests the majority of people working in care are employed by small businesses. The majority of small businesses are not in a position to sponsor the awards or to enable their staff to participate because of the incidental cost involved. As a large provider, we see it as our moral responsibility to promote the work that these people do, so by sponsoring the Great British Care Awards, we can enable the work done by these people to be recognised.” Sevacare’s chairman, Ravi Bains, added: “We are very proud to be associated with such a prestigious event. Our significant investment in sponsoring the awards highlights even further the phenomenal work that our care workers do. The recognition of being nominated for one of the awards is an achievement in itself and showcases how much we value our care teams. The Great British Care Awards offer a very positive event for the industry to be involved with and, as a large corporate, we are obliged to celebrate the success of all people in the care community.” Monica Prosser, a manager at Acorn Court in Redhill, Surrey, part of the Carebase group, is the proud winner of the Putting People First category at the finals of the Great British National Care Home Awards. I have been in the care arena for just over 20 years and have worked in a wide variety of settings. Currently I’m the manager of an 87-bed home that specialises in dementia care and end of life care with a small acquired brain injury unit for younger people. I have been at Acorn Court for nearly two years now and the home continues to go from strength to strength. We have a very dedicated staff team and a waiting list for all floors. When I heard Christopher Biggins announce that I was the winner, it was a real surprise. I had not expected to hear my name called out at the nationals, so I was shocked but thrilled. Putting people first is what care is all about here 40 at Acorn Court. Winning the award is a huge honour for the team at the home, and the staff and the relatives were delighted that we had achieved such an accolade. After winning the award life has remained very busy. I do have many additional calls week to week from headhunters and I have had several really great offers, but I already work for a great company and I have made a commitment to the families of our 87 residents that I will ensure they will remain the most important part of my business – I always put them first. Monica Prosser ▲ Monica is pictured with Christopher Biggins and sp onsor Mark Gr eaves from Ideal Ca re Homes "These awards inspire everyone involved in the care arena to strive to achieve the highest levels of quality in care." member in e r o t t h ig n a for winners of Join us e celebrating th rds a w A e r a C h s i t i Great Br g taken Principal sponsor s now bein g in k o o b e l b a t - The search to find the winners of this year’s regional Great British Care Awards is almost complete. Entries are being invited from categories representing all areas of the social care sector from throughout England. The awards, sponsored by h.e.t software and supported by the Department of Health, take place in October and November this year and are a celebration of excellence across the care sector. h 7t ct O h 8t ct O Vanessa Feltz, East Midlands Sally Lindsay, North West nd 22 ct O th 28 ct O The purpose of the awards is to promote best practice within both the home care and care home sectors, and pay tribute to those individuals who have demonstrated outstanding excellence within their field of work. Finalists have been invited to attend judging days throughout the regions and represented areas of social care. From local private care providers, residential and nursing homes to local authority adult social care departments, one thing they all have in common is that they epitomise the unsung heroes of our industry. Without such people quality care for the vulnerable and elderly members of our community would fail. Lisa Carr, a director of the Great British Care Awards says: “We were truly heartened to receive such an overwhelming response to the Great British Care Awards and the quality of nominations has been extremely high. The awards offer a unique opportunity to celebrate the successes of individuals, teams and businesses throughout the UK – people who really do make a positive impact on other people’s lives. The awards will really help to raise the profile of social care in our regions and we are looking forward to what promises to be a series of superb awards evenings.” All the finalists have been invited to attend a spectacular gala dinner at one of nine regional events throughout the UK, where the winners will be announced. The gala awards evenings will consist of a champagne reception and a superb gourmet dinner followed by the awards presentation with celebrity presenter and dancing into the night. The winners from all the regional awards will then be invited to attend the national events for either the home care or care homes sector at a prestigious London venue in May and June 2012. th 15 ct O Debra Stephenson , London h 4t ov N Andrew Castle, East of England th 11 ov N th 19 ov N Jenny Eclair, Yorkshire & Hum be rside To book your table call 0115 959 6130 or email [email protected] Places are limited so please book early to avoid disappointment. Keith Chegwin, South West th 25 ov N Hardeep Singh Ko hli, North East The awards support the Care Professionals Benevolent Fund (CPBF), the registered charity for the care sector, which supports current, former and retired care professionals by providing assistance to relieve financial hardship or sickness. Alison Hammond, West Midlands Jeff Brazier, South East Let’s celebrate social care and help it get the recognition it deserves For more information on the Great British Care Awards, please visit our website at www.care-awards.co.uk SHOWCASE Care Talk on the road Coming up! Care Show London Olympia 11 – 12 October NCAS & ADASS conference ICC London ExCel 19 – 21 October Great British Care Awards Nine regions throughout England 7 October - 25 November See www.care-awards.co.uk for venues and dates! English Community Care Awards Conference Holiday Inn London, WC1 16 November Care Roadshow Brighton Hilton Metropole 23 November care roadshows BRIGHTON 23rd NOVEMBER 2011 care roadshows GLASGOW 10th MAY 2011 bringing the suppliers to you eractive d and i nt fast pacePA team a ” a e T in d NA me to y figures respecte ar t in “Co g i n d us t r n i d a e l · Take P op by the highly ates from worksh us t r y u p d usive ind l c x e als t e · G rofession seminars ers ed care p our FREE d ty suppli in li a -m u e q k rk with li ices from rv se d n · Netwo cts a er produ · Discov HLIGHTS: SHOW HIG Hilton Brighton Metropole 10am – 4pm For more information or to register for your FREE ticket visit www.careroadshows.co.uk or call 01425 838393 42 RECRUITMENT T N E M T I U R C E R K L A T S ’ T E L with Cityworx in association Moving up You are now in your ‘ideal’ job, the one you were searching for, so what next? You can either stay in your comfort zone or you can raise your head above the parapet and look for the next challenge. If it’s the latter, then read on… Not everyone wants promotion in its true sense; many are happy with what might be called a sideways move. The following are examples of both. candidate, you know the company and its culture so there is less training involved, and, above all, it shows other employees that there is clear room for progression. to move from a registered manager to an operations or area manager, one of the requirements is to have multi-site management experience (managing more than one branch). However, there is a lot to be said for ‘buying in' talent. New employees bring with them a wider view and some good working practices from their former employers “Before you and new and positive ways of look ‘outside’, working, plus energy to perform the next and do well in their new role. A good way to gain this kind of experience is on a voluntary basis with your current employer. By this I mean you could offer to take on additional responsibility to gain the necessary experience, and draw on your current line manager for guidance and support to help you to better understand the additional responsibilities of this new role. A branch or registered manager is promoted to area manager, which brings with it more accountability and pressure to perform. A sideways move could be a branch manager moving into either: • a trainer’s role, if you harbour a passion to train and enjoy imparting knowledge • a quality assurance role. s Sanjay Kava, managing director, Cityworx Ltd logical step would be to establish what options are available within your current employment.” Both roles require you to draw on past experiences but offer equally different challenges. One of the most important things to be clear about is the direction you want your career to head in, ‘up’ or ‘sideways’– neither is wrong, but it’s something you must decide and be very clear on. Before you look ‘outside’, the next logical step would be to establish what options are available within your current employment. Employers in general like to promote from within. There are a number of benefits to this; they know the What do you do if there just isn’t anywhere to move within your current employer? Firstly, be clear on what it is you really want in the way of career progression. Next, make sure your CV clearly reflects your ability to perform this enhanced role – the worst mistake anyone can make is to apply for a job for which they have no experience. Be patient. This type of career move will not happen overnight. Prospective employers are reluctant to take on’ trainees’ – by this I mean people who don’t have direct experience of the role. For example, This will also benefit you in the long term. Your new employer will want Recruitment Specialists to have a conversation with your former line manager about your skills and attributes – your former line manager can then tell them how you volunteered to take on additional responsibility and how you performed in the role. So to summarise, if you feel you are ready to take on the next challenge in your career, make sure you plan it well, be prepared to take on additional responsibility without necessarily being paid for it but with a long-term view of gaining the required skills and attributes in order to help you secure a new role, and be patient. Cityworx currently have the following opportunities available: Registered Manager Buckinghamshire £33k Care Coordinators x2 Milton Keynes £17.5K Registered Manager Bedfordshire £30K Care Coordinator Bedfordshire £17.5K Registered Manager West Yorkshire £25K Care Coordinators Huddersfield £17K Please visit our website to view the full list of vacancies available. T: 020 8901 7654 E: [email protected] www.cityworx.co.uk Putting You First Reach more people and fill your job vacancy with Care Talk! To advertise email [email protected] 43 LEARN n o i t c u d In s k r o w There’s no doubt that the first few weeks of any adult social care worker’s career is critical in keeping them in the industry, which is why Skills for Care refreshed the Common Induction Standards. The standards were revised in June 2010 after extensive consultation across the sector to make sure that people entering adult social care have the maximum support and guidance as they begin their careers. Feedback from employers told Skills for Care that effective implementation of the Common Induction Standards is a significant step in the delivery of high-quality care and support for new starters. The Care Quality Commission (CQC) has essential standards of quality and safety that highlight the importance and value of strong and comprehensive induction, and the CQC will need to be assured that staff have undergone a thorough induction process. If we are serious about developing people’s skills and knowledge then it follows they should develop a taste for learning from day one of their careers, but it was also clear from feedback that the induction standards needed to count towards a qualification to avoid duplication of learning. Critically for employers, the refreshed standards map to the underpinning knowledge of the mandatory units of the Health and Social Care Diploma at levels 2 and 3, which came on stream this year, to make sure there is a consistency of approach for the workforce. There are now eight new standards, which will not take new staff any longer to complete. These are: In practice, when workers have successfully completed the learning that meets the Common Induction Standards, they will have completed the first building blocks of underpinning knowledge for the Health and Social Care Diploma mandatory units at each level. The worker will then be expected to demonstrate competence based on this knowledge to successfully achieve their Diploma in Health and Social Care. There is also a sound business case for highquality induction, as evidence shows that well motivated workers tend to be more productive and move around less. Skills for Care believes that flexible qualifications have a real impact in making sure businesses remain competitive by providing high-quality services. We have calculated that it costs around £3,000 to Standard 1 - Role of the health and social care worker Standard 5 - Principles for implementing duty of care recruit and induct every new starter so Standard 2 - Personal development Standard 6 - Principles of safeguarding in health and social care Standard 7 - Person-centred support rates in any organisation. Standard 3 - Communicate effectively Standard 4 - Equality and inclusion Standard 8 - Health and safety in an adult social care setting effective induction can mean there are serious savings to be made if we can reduce turnover The industry has moved away from a ‘sink or swim’ mentality to training, and the new Common Induction Standards are a reflection that training starts from the moment an employee sets foot in their new workplace. Andy Tilden Head of standards and qualifications Skills for Care 44 LEARN Fitness e t a l o o t r e v It is ne There is a common misconception among elderly people that exercise and fitness are words consigned to the younger generation; but that shouldn't be the case, explains fitness guru Sarah Hillier. Sarah's training tips are relevant to both care workers and service users – so why not keep fit together? You may not be training for a gold medal in the 2012 Olympics but, just as Britain’s selected highly tuned athletes are daily slogging away to achieve their aims and goals, all of us as individuals should and can do the same. We can improve our health and fitness at any age by daily exercise. By doing activities that are fun and enjoyable, and physically stretch us, we can change our quality of life for the better. It is important to start thinking about the key areas to ensure we improve and maintain our fitness in our normal day-to-day activities. How do I start? First and foremost, exercise should be fun. Choose an activity that you enjoy, an activity that will raise your heart rate and work through all parts of the body. This could be walking in the garden, in the park or across the room, even dancing in a chair (it can be done). Where you choose to begin will obviously depend on what you have been doing recently and what you have done in the past. If your activity has been low for a while then you want to do just a few minutes a day and build this up very gradually over a few months, getting to 30 minutes three times a week. Secondly, set yourself targets, both short- and long-term goals. For example, you would love to walk and get your daily paper from the newsagent down the road (long-term goal) but you haven’t left the house for a long while. Start by walking up and down the garden, increasing the distance, for a couple of weeks and then break the distance from your house to the newsagent’s into manageable chunks (short-term goals). What at first seemed a daunting task can now become achievable. Breathing Focus on using your breathing more efficiently in day-to-day movement, generally breathing out on the effort. It is surprising how often we hold our breath when a task is difficult. Posture As we get older structural changes happen to our body, and the muscles shorten and weaken. By doing simple daily postural exercises we can still ‘stand tall’. Strength Maintaining and building muscle mass and increasing bone density so we can still lift a full kettle, tighten a screw or get out of a chair easily. A few final tips Flexibility Daily stretching of muscles to prevent muscles shortening. Stamina Have more capacity to deal with life and increased energy to cope with each day. Exercise with a friend or your carer. Sharing exercise increases the enjoyment and having someone there to nudge you on an ‘off day’ and vice versa means you are more likely to reach your goal. Balance Learn to evenly distribute weight around our bodies, preventing falling. There are specific exercises for each of the above points, but to generally think of all of them on a day-to-day basis is a fantastic start. Your goal is relative to you but whatever it is, even if you are chairbound, by persevering you will start to feel refreshed, more alert and generally healthier. Write every activity down so you can see your progression. Eat and drink healthily and regularly to maintain energy levels. You CAN achieve your gold! Sarah Hillier is a former specialist nurse. Sarah has 15 years in the fitness industry with 12 years in personal training Fit 4 Life company. Sarah specialises in gym and home-based training, from general to specialist and rehabilitation. 45 Workforce viewpoint from CfWI Employee-led social enterprise – a look back, and a look to the future The worker cooperative movement emerged during the early 1800s. The best known is the Rochdale Society of Equitable Pioneers (now the Co-operative Group), which started out as a small shop in Lancashire. These pioneers organised their work around a distinct moral compass. The ‘Rochdale rules’ emphasised open and voluntary membership, including dividends on purchases, members’ democratic control, concern for communities and anti-discrimination, and a commitment to educating workers and communities alike. The principles governing the early cooperative movement remain current and characterise many of the features of social enterprise today. Fast forward nearly 200 years to the 1990s, and we witness a resurgence of activity to promote social enterprises in social care. The NHS and Community Care Act 1990 led to the restructuring of councils with the intention of separating commissioning from service provision. This stimulated the social care market and further developed not-for-profit and social enterprise services. And in 2011 we see renewed interest in employeeled social enterprise. The Government’s paper A vision for adult social care: Capable communities and active citizens wants to see greater plurality within the social care market, including a broader range of providers such as social enterprise and mutual organisations. Working in social enterprises can offer great benefits to staff, especially at a time when opportunities for staff to work collectively and create their own employee-led organisations are gaining currency. These organisations enable staff to fill niche service areas creatively and imaginatively. We know creativity fosters greater job satisfaction, which could address retention problems facing some services. The social objectives at the heart of social enterprises have great affinity to social care outcomes – from enhancing quality of life and ensuring people have a positive experience of services through to safeguarding individuals. There are parallels also to be drawn between the objectives of social enterprise organisations and user-led organisations. Disability groups, for example, have long argued for services to be organised around the social model of disability. The social model looks to society to remove barriers that are put in the way. User-led organisations provide the opportunity for people to exercise self-determination, and user-driven social enterprise takes this one step further by bringing together the lived experiences of people using services with business-like, innovative and cooperative care solutions. And so from the 1800s to what the future might look like. 2012 has been declared by the United Nations as the Year of Co-operatives. The challenge for social care is to ensure the sector features strongly in these celebrations, recognising the contribution thousands of social care workers make to the not-for-profit movement each day. Rhidian Hughes Head of social care Centre for Workforce Intelligence (CfWI) Movement for life WALKER 37 Airogym™ is a portable, inflatable excerciser that provides a resistance-based excercise to help encourage blood flow in the lower legs. Good blood circulation matters whether you are young or old but particularly if you are elderly or recovering from an injury or operation. If you are immobile for long periods of time your blood flow decreases and your blood thickens. There is a risk of blood clots and you may also develop swollen ankles and joints which can be painful. The Airogym™ is a pocket-sized inflatable exercise cushion that is designed to help boost lower leg blood flow by providing a resistance-based exercise to perform whilst seated. It is endorsed by world-leading consultant vascular surgeon John Scurr and it has previously won a Sunday Telegraph Best Product Award with a 5-star rating. It is simple to use, gives no discomfort and can be operated at home or wherever is convenient. The exercise is extremely gentle and the more air you put into the Airogym™, the more strenuous the workout becomes, so it can be tailored to individual ability and circumstances. For trade enquiries please contact us for more information and pricing. Movement for life www.airogym.com Telephone: 01488 73848 www.airogym.com [email protected] Walker 37 Membury Logistics Centre, Unit 3 Ramsbury Road, Berkshire RG17 7TJ Ca re St Lon Sh an d o d on w B4 7 ytmfurniture design . manufacture . innovation ... e r You’ ed t i v In ay d h t Bir ure h t 0 it 3 n r u F YTM t 01977 66 50 50 / Join the YTM party as we celebrate our 30th birthday in a 1930’s style at The Care Show London, including new innovations in care home furniture. e [email protected] / w ytmfurniture.com Developing the right solutions so you can deliver the right care - Extra Care design and build solutions - Unlocking funds - Working in partnership For further information contact Paula Broadbent on 01709 766000 / email [email protected] www.bramall.com Across England and Wales BUSINESS BANTER Business round-up LNT Construction sells new care home to independent operator LNT Construction has successfully completed another care home in Sutton-in-Ashfield. The home has been finished to LNT’s standard specification and sold to Bank House Care Homes local operator Kris Sooriah for £3.7m. This is the second turn-of-key care home sold by LNT to independent operators this year. The company primarily develops for its sister company Ideal Care Homes but has also given property service Christie & Co a general mandate to offer full turn-of-key packages to the market on an ongoing basis. Karen Oliver takes over as NACC Chair Current National Association of Care Catering (NACC) deputy chair Karen Oliver will become chairman of NACC when incumbent Derek Johnson steps down at the end of the association’s national event in September. The NACC is a progressive organisation representing professionals providing catering to the care industry, says Derek Johnson, adding: “With Karen taking over the chair’s role it ensures there will be continuity in the NACC’s campaigning to raise the issue of malnutrition through our No One Should Go Hungry initiative.” Central & Cecil Big Lottery success Older people living at Central & Cecil’s Church Walk House care home in Hendon are about to begin a year-long gardening and reminiscence project, thanks to a donation of £5,270 from the National Lottery’s Awards for All programme. Vikki Moorhouse, Central & Cecil’s arts and education coordinator, says: “The project will start with a harvest festival and I’m looking forward to learning gardening skills from our more experienced residents. We previously had a very successful gardening project at our care home in Windsor and we’re very grateful to the lottery for providing funding so that a new group of people can share skills and create their own gardens.” The Big Lottery Fund distributes half of the National Lottery good cause funding across the UK. The fund aims to enable others to make real improvements to communities and the lives of people most in need. Southern Cross corporate update As part of the financial restructuring of the Southern Cross Group, its board anticipates that Jamie Buchan will step down as director and chief executive once the process of transitioning homes is well advanced. 48 A further deferral of rent worth £18m has been granted by landlords to Southern Cross, and the transition of care homes will begin at the end of September. The Association of Directors of Adult Social Services (ADASS) has compiled a list of individual Southern Cross homes, outlining what has happened to each one. For more details visit The Guardian newspaper website at http://www.guardian.co.uk/news/ datablog/2011/aug/31/southern-cross-homes-list Citizens advice bureaux funding 'cut by 10% on average' Funding for citizens advice bureaux has fallen by an average of 10 per cent this year, according to Citizens Advice, the service’s national organisation. United for All Ages – welfare paper published United for All Ages, a social enterprise developing new approaches to key social and economic issues, has published a paper titled Investing in the future. It sets out how welfare and work could be reformed, using tax funding raised from Britain’s wealthiest people and companies. The paper proposes six ways to tax wealth to give all children a good start in life, reduce youth unemployment, support families with childcare and eldercare, and enable older people to play a full part in society. It can be downloaded from www.unitedforallages.com Vodafone and JustGiving extend their free text donation service JustTextGiving is now available to individual fundraisers to direct donations to their chosen charity. Mobile phone provider Vodafone and the donation website have made their text donation service available to individuals that want to raise money for charity. Morrisons in move to open GP surgeries Supermarket Morrisons is considering installing GP surgeries inside its stores. Sainsbury’s currently has two and is planning a further six. Bleak prospects for reforming Winterbourne-style provision The prospects for reducing the use of outmoded learning disability hospitals such as Winterbourne View are bleak because of a lack of incentives to change from providers, commissioners and the regulator. The warning comes in a report from the National Development Team for Inclusion (NDTi), based on a Department of Health-funded project on reforming private sector hospital provision in line with government policy. The report said the services were generally out of step with personalisation policy and good practice because they congregated people in large numbers, offered little chance for service users to engage with the community and were remote from their homes and connections. However, providers were reluctant to change and few engaged with the NDTi project. The main reason for providers' aversion to change was a reluctance, in economically difficult times, to risk closing off a source of income "in favour of a (largely untried) alternative approach that may take a couple of years to show a comparable financial return". Sevacare contract wins Sevacare has announced its latest contract award, for two new extra care schemes in Hillingdon, London. Following a comprehensive tendering process, Sevacare becomes the lead provider in delivering the 500 hours per week of core personal care and support services to people living at Cottesmore House and Triscott House. Skills academy appoints dedicated policy manager Caroline Bernard joined the National Skills Academy for Social Care in July. Previously, Caroline was deputy chief executive with responsibility for policy and communications at Counsel and Care, the national charity working with older people, their families and carers to get the best care and support. BUSINESS BANTER Financial Is your care home business missing out on unclaimed capital allowances relief? The care sector is awash with consultants selling the latest tax schemes to owners. With so many different schemes being offered, operators can, understandably, find it difficult to determine which schemes are worthwhile pursuing. It may often seem easier to dismiss them all, assuming that any possible return will not be worth the time, effort and cost that making a claim entails. However, if you have received information on embedded capital allowances and dismissed it, you may want to think again. This particular scheme works extremely well for any business that trades from a large property, and is therefore well suited to the care sector. Embedded capital allowances can be claimed on assets acquired for use in a business, allowing businesses to reduce their tax bill by deducting a proportion of these costs from their taxable profits year on year. Where businesses have acquired, built, renovated or extended commercial premises, claims can currently be made retrospectively for items that, prior to 2009, may have been ineligible for embedded capital allowances. A claim may therefore be possible even if you have already completed a project but qualifying capital expenditure has not been identified or quantified. It is also possible to make a claim on a property you have acquired, providing the previous owner has not already done so. However, if you have not already made a claim, you need to act quickly. The Government is currently When talking to potential advisers, you may wish to consider the following points. Make sure you understand the fee structure. Fees should be charged on a contingent basis, i.e. what you pay is based on a percentage of embedded capital allowances found. Ask them to provide an explanation of how the process works and when and how tax is saved. Find out how long they expect the project to take. Ask what documentation they will produce and what will be submitted to HM Revenue and Customs. Request testimonials from satisfied clients. consulting on proposals aimed at restricting the ability to claim previously unclaimed embedded capital allowances relief, which could come into effect in April 2012. These new proposals may seek to impose a time limit on the making of retrospective claims. This could prevent property owners making a claim if they have not done so within two years of the property being acquired or building project being completed. Many operators think that their accountant will have picked up the relevant allowances as a matter of course, but this is often not the case. So if you decide to make a claim, how do you choose the best partner to work with you from the myriad providers out there? In terms of the amount of tax you can expect to save, amounts will vary considerably. A recent project that we carried out on behalf of a client who owns a 23-bed residential home resulted in a tax saving of in excess of £30,000. What is more, the project was carried out with little fuss and no disruption to the day-to-day trading of the business. If you think your care home business qualifies for an embedded capital allowances claim, you must act as soon as possible to take full advantage. Providing you choose the right adviser, you should have nothing to lose. Colin Peacock Director and healthcare specialist Greenhalgh Chartered Accountants and Business Advisors www.greenhalgh.co.uk Email [email protected] 49 y t i n u m A com o t g n o l to be Belong villages are attracting national attention for their success in delivering a radically different model of both housing and care. For one, they have been designed around the needs of the very frail, typically 85-plus, sector of the population and provide everything from independent living to complex nursing care. Operated by the CLS Care Services Group – a not-forprofit organisation – the villages offer a purpose-built environment, based on leading-edge design, to meet the needs of older people, particularly those with dementia. I decided to take a trip to Belong's village in Wigan to see what all the fuss is about. On arrival I'm met by manager Gill Menguy, who explains the Belong concept. In a nutshell, residents can choose to live independently in village apartments, or enjoy a high level of support in households. Even then, the level of support varies according to residents’ needs, from residential through nursing to high-dependency dementia care. The idea behind this is that villages should offer a home for life, with flexibility for residents to access different services should their needs change. We start our tour of the village in one of the small households. The design of the buildings is led by 50 the needs of older people who live in them. Smaller households of around a dozen residents mean a family atmosphere is achievable, and that residents are well understood and known to their care workers. On entering the household I can hear the radio playing in the background and see people sitting around in the living room looking relaxed and happy. Just off the living room is a small open-plan kitchen where one elderly lady is helping another lady to make cakes. Looking around, I wonder for a moment where the staff are. "Staff don't wear uniforms," says Gill. "We are looking to be all-inclusive and promote a family environment." “A ‘world café’ at recruitment days ... like speed-dating with service users and candidates.” Gill explains that each household has three support workers who will perform all tasks from practical to personal care as well as preparing the meals. Residents have secure access to the outdoors from each household and can move freely in and out. At the same time, security is maintained between the households and village centre to ensure privacy within people’s own ‘homes’. "We have no dining rooms," says Gill. "Every household has a kitchen so residents get involved with the cooking, the cleaning and the making of drinks. There are no set meal times – people eat when they want to." Support worker, Brenda Ashurst, a carer for 20 years who has worked with Belong for the last two, is busily preparing lunch. "The culture here is much more informal," says Brenda. "Previously the clients with dementia would have been the 'forgotten ones'. They would have been wondering around with no direction and not knowing where they were going. Here, because it's just small households, we know them much more intimately so we can pre-empt what their needs are. We get to know them as individuals and have formed a strong bond; it's like a little family." Assisting Brenda with lunch is Elsie Davies, a dementia sufferer, who has been living at Belong for two years. "Elsie engages with everything with a bit of prompting," says Brenda. "She loves to get involved and because of her life plan we know Elsie loves baking. She's always helping me. "These people have cooked, cleaned and looked after their families all their lives so it's nice that they can still participate in everything that we do. Because they are so involved there are none of the usual behavioural problems associated with dementia." Our tour continues through the village's bistro. A busy café with a 'Starbucks' atmosphere, it is just preparing for the lunchtime rush. BUSINESS BANTER Company Profile "The idea of the bistro is that residents, staff and members of the public can all sit together and be a part of the same community," says Gill. "School teachers will often pop in on their break for lunch and we have a crèche so mums can sit and chat. Older people from Wigan are also regulars so it's difficult to see who is a member of staff, a resident or a member of the public – it's all-inclusive." Up on the first floor we walk down ‘the street’, aptly named due to the many different services available here. There’s a salon, therapy room, gym, bar and internet room as well as a multi-purpose function room, which is used for church services for residents on a Sunday as well as for weddings and other events for the general public. Away from the street and into the private village apartments, we see the visitors’ room for relatives who want to stay over. They really do seem to have thought of everything here. "Candidates will meet with service users and have round-the-table discussions," says Tracey. "They bring a personal object and have to talk about it. We spend more time with people to assess if they have the right attitude and approach, and this seems to be working." Leaving Belong, I think about the decisions people face when they need home or residential care. It's surely not just the loss of independence and good mental or physical health that service users and their families will grieve for, it will also be the sense of belonging to a real community. Just because we become old and vulnerable, we should not face isolation from the real world, but be able to remain part of a real community. At Belong this may just be possible. Lisa Carr “These people have cooked, cleaned and looked after their families all their lives, and because they are so involved there are none of the usual behavioural problems associated with dementia.” John and Betty Joughlin live in one of the village apartments. "We heard about Belong through a relative," says John, "and although we've had to move to a totally new area away from our friends, we've settled in really well. “We have a much better quality of life here and already have new friends. It's a really friendly community. Most of all we have peace of mind – we no longer feel vulnerable." Belong’s support services are not restricted to those living within the village. Members of the community can be supported in their own home through the organisation’s registered domiciliary service, Belong at Home. Care coordinator Michaela Heaton, who has previously worked in traditional care environments, is keen to stress the difference in her new role. "The culture and the values are different from other homecare services. We have the same support workers for each service user. Times are tailored to suit them and not dictated by us. We provide onehour visits as a minimum, so we're not just popping in and out, and there are no 15-minute calls. This means we can provide a higher quality service that is totally in line with the values of fully supporting the individual. "We hold monthly events and are always asking customers what they want to do so we can develop activities in the community. If a person doesn't want to go out because of their hair, we take them to hairdressers to get it done. We try and overcome barriers to promote independence and personalised care." So with such an innovative and supportive culture you would think it would be easy to retain staff. Not so, says Belong's operation director Tracey Paine. "We have lots of interest but, surprisingly, staff are difficult to retain. We have a much higher turnover than we first anticipated. Care workers traditionally want to get people washed, dressed and go for their break. Some people like to be regimented, but each day is different at Belong." Belong have now changed the way they recruit and are looking for people who aren't too traditional. The introduction of a ‘world café’ at recruitment days (think speed-dating between service users and candidates) allows people to move round and get a feel for how each candidate interacts in interviews. Some of the names of the service users have been changed for reasons of confidentiality 51 BUSINESS BANTER Ridouts Record-keeping AND REPORT WRITING It is difficult to overstate how important good record-keeping is yet it is surprisingly rare. Good record-keeping ensures that relevant information is captured for use by carers and other professionals. That information may be needed for a variety of reasons including, among other things: identifying trends for use in risk assessments monitoring changes in medical conditions such as diabetes and hypertension providing evidence that appropriate care is being delivered. All too often we see care records that use shorthand terms such as ‘all care given’. A rule of thumb that carers may find useful is ‘if it isn’t recorded, it didn’t happen’. All care, all responses to particular incidents, all discussions with professionals and other stakeholders – anything at all that is done or said about a service user – must be recorded. ndau s Jonny La “Seek and exploit training opportunities. Record-keeping is a skill that is learned and professional training can be a great help.” 52 Poor record-keeping generates serious risks. First, and most importantly, service users are potentially at serious risk if important information is not captured and communicated effectively. That can lead to anything from failing to identify service users’ lifestyle preferences to mistreating medical conditions in a life-threatening way. There is, however, also a serious risk to carers and other professionals from poor record-keeping. In any investigation into the treatment of a service user – for example, a safeguarding investigation or a compliance review by the Care Quality Commission – the care plan is the first document that will be looked at. Applying the rule of thumb identified above, investigators will be very slow to accept that appropriate action was taken if it was not contemporaneously recorded. Those with professional registrations, such as nurses, also risk disciplinary action if they fail to meet professional standards about record-keeping. What, then, are the keys to good record-keeping? The following are some useful tips. 1. Assume that the person reading your notes has no previous knowledge about you or the service user in question. The more detail the better. 2. If you find yourself too busy to make full notes, then the service is understaffed. Raise the issue with your manager and if that doesn’t resolve matters, consider using the whistle-blowing procedure. Keep a record of your efforts. Ensure that you don’t take the fall for a service being under-resourced. 3. Seek and exploit training opportunities. Record-keeping is a skill that is learned and professional training can be a great help. 4. Seek support from managers and colleagues if necessary. This is especially important for new entrants to the care sector, those who do not speak English as a first language and anyone with dyslexia or literacy difficulties. Writing reports requires even more care as they are bound to be scrutinised carefully. Senior management or legal advice should be sought in appropriate cases. In a nutshell, when it comes to recordkeeping, be thorough and seek help if you need it. Jonny Landau partner Next month – training and development PROPERTY PROFILE Whitebeck Court – Taking extra care living to new heights In 2009, Northwards Housing and Manchester City Council formed a partnership to deliver a flagship extra care development in Charlestown, North Manchester, and brought family-owned contractors Wates Living Space on board. Whitebeck Court, a 16-storey tower block, had stood empty and unloved for more than three years and was longing to be transformed. Grant funding from the Department of Health meant the £9.4m development could finally become a reality this year. The development has created 91 fantastic extra care apartments, making use of the stripped back external concrete shell to provide a high-quality, well-specified and modern residential apartment scheme. Whitebeck Court boasts a spectacular ‘sky lounge’ on the 16th floor which has breathtaking views, an area which residents can use to socialise and enjoy activities with friends and neighbours. To bring local facilities into the area, Wates Living Space built a ground floor extension that incorporates the new Eric Hobin Centre. The centre, now locally known as Eric’s, is a fitting tribute to Eric Hobin, a much-loved councillor in the area who sadly passed away in 2007. Eric’s includes community facilities of an ICT suite, a popular community café, shop, beauty salon, treatment room and a relaxing lounge, run by local volunteers. A private external sensory garden, low-impact adult exercise area and garden facilities have all added to the overall living environment for the Whitebeck Court residents, giving them pride in their new homes. Whitebeck Court has been a true example of bringing together a ‘big society’. Whitebeck ‘goes green’ Whitebeck always had the sustainability agenda at its core, from its design and construction to its end use. The building’s energy efficiency has been dramatically improved through a number of measures, including the installation of photo voltaic panels (PVs) on the south- facing elevation, providing electricity for the communal areas and reducing the service charge for Whitebeck Court’s elderly residents, thereby improving meaningful aspects of their quality of life. in employment but to have been an integral part of regenerating their own communities. During the project, Wates created Whitebeck World, a monthly community magazine updating local residents on progress and activities. The apprentices all enjoyed ‘spotlight’ appearances in the magazine. Opportunities to gain new skills went beyond the local jobs created through the improvement works and those created in the Eric Hobin Centre. Residents of the block and surrounding area are encouraged to get involved and actively volunteer to help out in the shop and with the maintenance of Extensive eco glazing was used to maximise the gardens. Without these volunteers, the natural light to the living areas, while also shop would be unsustainable helping to reflect and retain heat. and there would be significant All the lighting is energy efficient, “Whitebeck maintenance costs required to with external lights controlled by Court has been a keep the gardens looking great. daylight and movement sensors true example of With the help of Northwards for communal corridors. All kitchen bringing together Housing, the green-fingered appliances are A+ rated and residents have managed to a ‘big society’.” outdoor rotary dryers have been secure grant funding to pay for provided to minimise the use of the equipment necessary to electrical dryers. The cumulative maintain the gardens as well as new seeds effects of these ‘green’ initiatives not only and plants. Together, these contributions have reduce energy consumption really helped create a sense of community and carbon emissions, but are significantly along with ownership and intense pride in the reducing residents’ fuel bills; fuel poverty is a block and surrounding area, which feedback significant issue facing low-income residents has suggested makes the whole building more across north Manchester. personal and it quickly feels like ‘home’ for new residents moving in. Wates builds futures As part of public consultation events, Wates Living Space promoted local employment opportunities and training through their Building Futures programme. Altogether 15 long-term unemployed people completed the two-week programme, gaining a Level 1 accreditation from educational charity AQA. Six of them, all from the Charlestown area, successfully gained employment with Wates, completing their apprenticeships this year. They are all very proud not only to be back Welcome to Whitebeck Whitebeck Court opened its doors in celebratory fashion in March 2011, officially launched by Manchester’s Lord Mayor, Councillor Mark Hackett. The 68-week project was a fantastic success and a true example of collaborative working that has left worthwhile legacies for the community and people in the Charlestown area in terms of sustainability, employment and pride. Carla White 53 Vida FUN STUFF the Beautiful Part Six: ul, In the final part of Vida the Beautif d Helena and fellow visitor Patrick fin e each other as the visits to the hom finally come to an end. We sit in silence, Vida’s past resting upon her knees, until Miss Joyce arrives to wheel her off to the chapel. The supervisor agrees to take the photographs and pass them onto Vida’s solicitor; he may know of an appropriate home for them. Out in the garden I see Patrick reading against the trunk of an oak in its fat round of shade. His shoes are lying on the grass and he’s swigging from a water bottle. “Rose says I’m sitting on a black pancake,” he says as I approach. We smile for one another. He tells me how old people eventually become poets, that they see everything new again. He says he has a notebook and writes it all down. He’s going to live in France when Rose has gone. I tell him about Vida and kick off my shoes. He lets the book slide away to look at the photographs. His hair falls forward and I can’t see his green eyes but I feel warmed, rippled and complicit. He describes her beauty and her body to me as though I’m blind 54 or have never seen them. I lean back against the tree, close my eyes and listen to the chapel bells. I tell him of her nightly visits, of how the handtinted carmine lips open and shut for me with a shining promise. I tell him how her body makes me love my body. As the train nears home, I read the note: In silence eloquent, pres ent in absence, ageless, Young in the old, old in the new-born Ever ywhere and nowher e, is fleet is gone, Now as I write, is hear ttohear t, is mine.” K. Raine He traces a tear down my cheek with his thumb and pulls me to him. My mouth is open from what I think is surprise but turns out to be longing – a greedy saturation. As we twine our hands through hair, like vines, we take each other’s lips and tongue in slow rounds. Vida the Beautiful drops to the grass and the song of the chapel bells finally ends. Three months later a package arrives. There’s a letter from the supervisor. In it she explains how Vida died a few weeks after my visits ended. I read the letter over and over. The solicitor found a great-niece who had taken the photographs and who knew that Vida’s husband Jack was killed two years before she even came to live in my house. We fall apart. Tom peers into the box. The service is over. Patrick doesn’t say goodbye but places a page from his notebook in my pocket as I wait. Vida spots me waiting on the terrace near the doors, waving like an empress as the train of wheelchairs processes back to the conservatory corridor. Then she smiles her black hole smile. “You’re not giving that thing to our baby,” he says, cradling my small bump. “Look what Vida left me.” “It’s Betty!” I laugh, winding the little key. “Of course I shall.” “Mind you take care of Frank,” she calls out. I cover the doll with layers of tissue paper and seal the box – brief rest in a lifetime of forward motion. Vida’s lost brilliants shining for me. Debra Mehta Tasty talk FUN STUFF Poached Cod Fillet Thanks to Asvinta Thakkar from Queen Elizabeth House in Bromley, Kent, for this quick and nutritious recipe. Serves: 1 Method 140-170g cod fillet Separately cook the vegetables, either boil or steam them. To poach the fish, you will need a large pan in which you will add the fish stock and chives together and bring them to the boil. Reduce the heat so it is barely simmering. 1 carrot (medium size) 1 broccoli (medium size) Salt and pepper to taste 2 tbsp butter 1 pint fish stock Chives If you would like to share any quick and easy recipes please email [email protected] Now slowly lower the fish into the poaching liquid. Poach the fish until it is just cooked through. After about 6 minutes, remove and serve with drizzling melted butter and hot vegetables. the adventures of sid the social inclusion dog Resident cat Mrs Jean Brown and her cat Gus This month's resident cat is Augustus (Gus for short!) with resident Mrs Jean Brown from Richmond Village Painswick, in Gloucestershire. 55 • • • • Increaseyouroccupancy ProfessionalpromotionalDVDstopromoteyourcarehome. Promotestaffretention Raisethepositiveprofileofsocialcare Tellothersaboutyouraward winninghome Awards footage, interviews with staff, residents and their family, fresh and innovative style ‘ ‘ These great quality videos have allowed us to promote our facilities and shows that Ideal Care Homes is a great place to live. Best of all this message is delivered from those who receive the care – our residents. TonyUpward,IdealCareHomes For more information call 01159596133 or email [email protected]