Pink October 2012 - Cancer Research Malaysia

Message from CEO
P
ink ribbons, pink T-shirts, pink brooches, pink keychains – it is any surprise that the entire month of
October is often called Pink October? Pink October is
a call to action – for all women to be breast aware,
and to raise funds for research to find a cure. Every
minute, one woman dies of breast cancer. We all know
someone who has faced breast cancer: a mother, a
sister, an auntie, a friend. Are we winning the battle
against breast cancer?
The good news is that we now know more about breast cancer
than we did before. Today, with screening and better therapies,
more than nine out of ten women can survive more than five years if
the cancer is detected early.
But, there is still more to be done and we need all the help we
can get. I am delighted to welcome Professor Dato’ Dr Yip Cheng Har
as CARIF’s Lead Clinician for Breast Cancer Research (see page 2). We
both believe that cancer research is moving faster than it has ever
done before and we can all look to a brighter future:
First, new genetic technologies are enabling us to identify the
culprit genes that cause breast cancer. Although Asians make up 60%
of the 7 billion people in this world, we make up less than 5% of
genetic studies. CARIF is filling the gap in Malaysia: since 2003, our
genetic counseling and research team have been conducting research
to study these. Funds raised from our core donors and from the Estee
Lauder Breast Cancer Campaign, we have been offering free services
for families with breast and ovarian cancer (see more on page 4).
Second, we now know that breast awareness and screening results
in earlier detection and saves lives. Using funds from the Sime Darby
LPGA Golf Tournament, we launched the “More than a Mammo”
programme in October 2011, and to date, more than 1,200 women
have already come forward for a subsidized mammogram at RM50
(see page 6) and to participate our research to help us understand more
about screening in Asian women.
Finally, new genetic technologies is enabling us to identify how
individual genes cause cancer cells to divide, become immortal and
spread to other parts of our bodies, wrecking havoc wherever they go.
This knowledge is being used to develop new ‘targeted therapies’ to
save lives (see more on page 3).
OCT 2012
br ou gh t to yo
u by
C A N C ER RE SE A
RC H
IN IT IA TI VE S FO
U N D AT IO N
(C A RI F)
All of this “high-tech” stuff is making a difference and deserves our
support. But in Malaysia, there are still barriers for the simple things: many
people still lack knowledge about cancer prevention and treatment, they
fear cancer therapy more than cancer itself and most of us worry about
health care costs. Using funds from Sime Darby LPGA, we have developed
Patient Navigation Programme – to help newly diagnosed patients cope
and to help them make decisions (see page 5).
We are doing our part and we need your help and support. Come and
join us – raise awareness, take part in our research programmes, and raise
funds to help us find better ways to prevent and cure breast cancer!

YOU. ME. WE CAN BEAT CANCER
Prof Dr Teo Soo Hwang
Chief Executive and Breast Cancer Research Group Leader
w w w. c a r i f . c o m . m y
LEAD CLINICIAN for Breast Cancer Research
CARIF is pleased to announce the appointment of Prof. Dato’ Dr
Yip Cheng Har as the Lead Clinician for Breast Cancer Research
at CARIF. Prof Dato’ Dr Yip is a Consultant Breast Surgeon at
Sime Darby Medical Centre and prior to joining SDMC, she
was a professor in the Department of Surgery and Head of the
Breast Surgery Unit at the University Malaya Medical Centre,
Kuala Lumpur. As the Lead Clinician for CARIF, Prof Dato’ Dr Yip
will be working closely with Prof Dr Teo to translate laboratory
findings to the benefit of Malaysian breast cancer patients.
Prof Dato’ Dr Yip completed her Medical Degree
at the University of Malaya in 1981. She pursued
Prof Dato’ Dr Yip works closely with the breast
cancer support groups and non-government
her surgical training and obtained her FRCS
(Fellow of the Royal College of Surgeons) in 1985.
She joined UM as a lecturer in the Department
of Surgery and was appointed as a full Professor
in 2000. She runs an active clinical practice and is
recognised as one of the leading breast surgeons
in the region.
organizations to promote health awareness
and early detection of breast cancer. She is the
Vice-Chairperson of the Malaysian Breast Cancer
Council, an advocacy group for breast cancer in
Malaysia, and is a technical advisor to the Breast
Cancer Welfare Association, the main breast
cancer support group in the country. She has
been appointed an expert in cancer control by the
World Health Organisation and the International
Atomic Energy Agency (IAEA), and has been on
expert panels in international organizations such
as the International Cancer Control Conference,
and the Breast Health Global Initiative.
Prof Dato’ Dr Yip is the Chairman of the
Development Committee of National Clinical
Practice Guidelines for the Management of
Breast Cancer in Malaysia, which issued its first
guideline in December 2002. She is a pastpresident of the Association of University
Surgeons of Asia (2003-2005), past President
of the Asia Pacific Organization for Cancer
Prevention and is currently a council member
of Breast Surgery International. In 2010, she
was elected the President of the College of
Surgeons of Malaysia, the first woman to hold
such a position.
She was awarded the UICC 2009 Reach to
Recovery International Health Professional
Award for her work with breast cancer, and was
also awarded the Malaysian “Greatest Women
of Our Times” award in Oct 2009. In May 2012,
she was awarded the DPMP, which carried the
title of Dato’ from the Sultan of Perak.

UNFORTUNATELY, NO WOMAN IS FREE FROM THE RISK OF BREAST CANCER.
FORTUNATELY, EARLY DETECTION AND
NEW ADVANCEMENTS IN RESEARCH CAN SAVE LIVES .
2
OCTOBER 2012
Datin Seri Tiara
Jacquelina
Actress and Film Producer,
Enfiniti Productions
B
eing a family member and having someone
close to you as your mother who is affected,
it makes you very angry and hopeless thinking
about why and how there is no cure.
There have been days that I felt hopeless
and helpless. I am sure out there lies a
cure for cancer. I really hope CARIF can
give us that glimmer of hope that
one day soon, we will find a way to
slay this ugly monster.

Professor Dato’
Dr Tunku Sara
Tunku Ahmad
Orthopaedic Surgeon
and cancer survivor
I
t was quite a surprise to me, as it is to most
people, that I have cancer. For a while, I used
to tell people that it was a blessing in a way
because it brings you close to God and also it
makes you realize that there are a lot of things
you didn’t acknowledge earlier which you
should be thankful for. Now, I remember what
is important and make sure that my priorities
are correct.
CARIF is a very unique organization. It is an
enterprise which is gone into research. Which
is unique in the world let alone in Malaysia. I
think in Malaysia it was a bit tough to start with
because it was such a new thing, raising funds
and starting off the whole thing was not easy
but I think my dad (Tan Sri Tunku Ahmad Yahaya)
really enjoyed it and made it one of his priorities
and it is making a difference. I am quite proud
of my dad that he actually did this thing which
is something worthwhile. He has done a lot of
worthwhile things. This is one the things really
makes a difference in human life.
I am alive today probably because of targeted
therapy – which is not a sledge hammer of
general chemotherapy. It’s something that
target particular cells and I think that that is
the way to go in cancer research. To me “Hope
Lives Here” probably means that there is hope
in the patient, hope in the doctor, hope in the
research and all these little bits of hopes when
joined together can really make huge impact on
solving cancers. Some patients can be cured and
some diseases can be cured but it needs to be
more universal.

www.carif.com.my
3
CARIF’S BREAST CANCER
RESEARCH PROGRAMMES
D
id you know that as of the end of
last year, there are 7 billion people
living on Earth? Did you know that
six out of every 10 people living on
Earth are Asians, and that the majority
of Asians live in low and middle income
countries?
During our mother’s and grandmother’s times,
breast cancer was almost unheard of. But now,
unfortunately, breast cancer is the most common
cancer worldwide. It is estimated that this year,
1.4 million women will be told that they have
breast cancer.
Pick 19 women at random. Chances are, one
of these women will at some point in their lives
develop breast cancer. That is how common the
disease is in Malaysia and how randomly it strikes.
Around 4,000 women are diagnosed with breast
cancer every year, most of them aged between
35 and 60 years, with 40% of those affected
under 50 years old.
If we were to draw the world map according to the population
density, then all Asian countries would be inflated and North /
South America / Australia would appear really shrunken
CARIF has 3 research programmes to combat
breast cancer: The Genetics Programme, The
Patient Navigation Programme (Page 5) and
The More than a Mammo Programme (Page 6)
1. The Genetics Programme
The purpose of our research is to find out
why some individuals and their family members
are more likely to get cancer. So far, more than
1,500 breast cancer patients have participated in
this Malaysian Breast Cancer Genetic Study and
women who have high risk of having inherited
an altered breast cancer gene (called BRCA1
and BRCA2) are offered free genetic counselling
and genetic testing services (see next page for
story from a Malaysian patient who was found to
have a genetic alteration in the BRCA1 gene).
2. The Patient Navigation
Programme
In this programme,
we are developing
Patient Decision Aid
and Patient Navigator
video in Bahasa
Malaysia, English, Mandarin and Tamil. We hope
these tools will help guide newly diagnosed
patients through the maze of decisions and
treatment options and empower them to make
their own treatment decisions.
3. The More than
a Mammo
Programme
Launched in October
2011, this programme
offers Malaysian women
a subsidised mammogram at RM50. But more
than just a screening programme, the women
are also participating in CARIF’s research to
find out more about how genes, lifestyle and
mammographic density alter an individual
woman’s risk of developing breast cancer.

4
OCTOBER 2012
Patient’s testimonial
Participant of the Malaysian Breast Cancer Genetic Study
H
aving gone through treatment for
Hodgkin’s Lymphoma, it was incredibly
upsetting to find that 25 years later, I am now
diagnosed with breast cancer. The worst part
was realising that the cells had spread to the
bones: I had Stage 4 cancer. The usual reaction
that I received was tears from relatives and
sympathetic hugs from friends. I was going to
DIE? Oh dear!
Anyway, I consoled myself that people could
die just crossing the road and getting hit by a
bus. I have young children who at the time were
both in primary school. I had no choice but to rely
on my own strength to deal with the treatment
and the consequences of having cancer. Family
support helped me deal with the sickness and
nausea and sorting through my life.
It seems to me that more and more people
develop cancer. The knee jerk reaction that
relatives and friends have is to recommend
all sorts of treatments, from cleaning up the
lifestyle and eating patterns to consuming
weird powders and wearing volcanic matter
medallions!!
I believe cancer research will help to clarify
reasons for development of cancer to enable the
public to understand what type of behaviours
or hereditary genes can raise the risk of
cancers. Research for earlier identification of
symptoms and more effective and less painful
treatment is crucial. Very few people can afford
the high costs of treatment and the more
advanced a cancer is, the more expensive medical
treatment will become. If cancer is caught at its
early stage, the monitoring and treatment is
understood to be more effective.
To me, CARIF’s theme of ‘Hope Lives Here’
reflects the determination to achieve effective
and positive steps to address monitoring and
treatment of cancer. The basis for CARIF gives
hope to cancer patients and their families and
friends that there are people who care for
them and that these people are in a position
to actually get things done. I am grateful for
the work done by CARIF and am certain that
this work will be appreciated by greater
numbers of the public through its efforts to
address cures for cancer.

PATIENT NAVIGATION PROGRAMME
When I heard the words
“You have cancer”,
I went numb.
I felt my world just ended.
In the Patient Navigation Programme, CARIF
has partnered with University Malaya, Breast
Cancer Welfare Association, a number of
doctors, nurses, survivors and patient support
groups to develop Patient Decision Aid and
Patient Navigator video in Bahasa Malaysia,
English, Mandarin and Tamil. We hope these
tools will help guide newly diagnosed patients
through the maze of decisions and treatment
options and empower them to make their own
treatment decisions.
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For details and to get a copy, please contact
Maheswari at maheswari.jaganathan@carif.
com.my or call 03 5639 1874.

www.carif.com.my
5
I
n October last year, using funds raised through
the Yayasan Sime Darby — LPGA (Ladies
Professional Golf Association) tournament,
we launched the “More than a Mammo”
programme to recruit 1,000 women to study
the link between mammographic density,
genes and lifestyle factors. “In just 6 months
since its launch on 11 October 2011, more than
1,000 women have already come forward to
participate, and so we are delighted to announce
that we are extending the programme to
another 1,000 women. Hopefully, we will reach
3,000 women by the end of 2012” said Prof
Dr Teo Soo Hwang, CEO of CARIF and Principal
Investigator of the programme.
“Although there is sufficient evidence that
screening can reduce deaths due to breast
cancer in countries like USA and Europe, there
is little data in Asians. Also, there is an urgent
need to develop more sensitive and specific
methods for the identification of women at
higher risk. Through the “More than a Mammo”
programme, it will be possible to begin to address
some of these questions.”
“We are delighted that so many women
have already come forward for mammographic
screening for only RM50 and nearly half of
these women have never had a mammogram
before. However, we have noticed that very few
Malay women come forward for screening and
we hope to encourage more Malay women to
come forward for screening,” said Prof. Dr. Teo.
To participate in Phase 2 of the programme,
you must be a Malaysian woman, aged 40 years
or older, have no personal history of breast
cancer and have not had a mammogram for
6
OCTOBER 2012
BE A CHAMPION RECRUITER!
Bring your friends and family members to
participate in the “More than a Mammo”
programme and stand a chance to win
a luxury spa for 2. Get an entry form
from CARIF or the Breast Care Centre to
participate. For every 10 women that you
have enrolled in the “More than a Mammo”
programme, you will receive one lucky draw
ticket. Hurry now — the competition ends on
31 December 2012!
the past 12 months. To make an appointment,
please call Sime Darby Medical Centre Breast
Care Centre at 03 5639 1340 or visit the Breast
Care Centre, 1st floor, Outpatient Centre, Sime
Darby Medical Centre. For more information
about the research study, email shivaani.
[email protected].

MAMMOGRAMS: X-RAYS OF THE BREAST
In these X-rays, the white areas are connective and epithelial
tissues. Some women have more white areas (dense breasts)
and other women have less white areas (less dense breasts).
We now know that genes and lifestyle factors can affect
mammographic density, and in turn, mammographic density
is an indicator of breast cancer risk. We currently know very
little about mammographic density in Asian women. Through
the “More than a Mammo” programme, we aim to learn more
mammographic density to help us to develop better ways to

fight breast cancer.
Did you know:
•
•
Mammograms are the most reliable way to detect breast cancer at an early stage
•
Most Malaysian women do not have a regular mammogram and the majority of breast
cancers present at a late stage.
•
Women with high mammographic density have a higher risk of developing breast cancer.
Through the More than a Mammo research study, we are finding out how genes and
lifestyle affect mammographic density and risk of breast cancer.
Women over 50 years old should have a mammogram every 2 years. Women aged 40-50
may also benefit from having a mammogram. Women with a close relative with breast
cancer should consider screening at an earlier age.
Participants registering for the More than a Mammo programme at the Breast Care Center, SDMC Subang Jaya.
www.carif.com.my
7
YAYASAN SIME DARBY LPGA
PINK OCTOBER CAMPAIGN
S
ime Darby is proud to announce the third
edition of the Sime Darby LPGA Charity
Gala dinner, held in conjunction with the 2012
tournament, and in support of Cancer Research
Initiatives Foundation (CARIF).
In recognising the need for cancer research
and education in Malaysia and globally, Sime
Darby has committed the proceeds of the
various fund-raising activities held throughout
the tournament solely to the cause.
This year’s theme, “Hope Lives Here”
is an empowering message highlighting both
CARIF’s and Sime Darby’s pledge to creating a
future free from fear of cancer, through medical
research, education and awareness. Come and
take part!

Play Your Part
1
Purchase a Table at the SIME
DARBY LPGA CHARITY DINNER
AND AUCTION
Don’t miss out on the rare opportunity to
rub shoulders and dine with the Rolex Ranking
Top 9 and the LPGA money list Top 10 players,
happening Wednesday 10 Oct 2012 at Sime
Darby Convention Center. Platinum tables
priced at RM20,000 will be graced with the
presence of two top lady golfers, or take up a
Gold table for RM10,000. Guests will be able
to participate in live and silent auctions of rare
and autographed golf memorabilia by top LPGA
players. You will also stand a chance to own
exquisite jewellery from Habib Jewels. For more
information on table sales, please contact Sarah
Hussin at 03 7849 5122.
LPGA Stars launch More than a Mammo Programme
in Oct 2011
2
Join SIME DARBY LPGA PINK
SATURDAY
Sime Darby LPGA Pink Saturday with LPGA
players wearing pink ribbons and pink gear to
raise awareness about breast cancer. Visitors
are encouraged to don pink outfits for the day.
CARIF will have pink pins, ribbons, earrings and
other pink merchandise on sale.
Funds raised will go solely towards Cancer
Research Initiatives Foundation supporting
CARIF’s early detection and prevention “More
than a Mammo” programme and “Patient
Navigation” — a programme that helped newly
diagnosed patients cope and help them make
decisions.

8
OCTOBER 2012
C O M IN G U P
ESTEE LAUDER BREAST CANCER
AWARENESS CAMPAIGN
T
he year marks the 20th anniversary of the
global Breast Cancer Awareness (BCA)
Campaign, with the 2012 Campaign theme
Courage. Believe in a world without
breast cancer. Know we’re here until
it’s true. This year’s bold, empowering message
highlights the Company’s 20 year commitment to
defeating breast cancer through education and
medical research. Come and take part!

Play Your Part
1
Come for the PINK RIBBON CHARITY
WALK AND LANDMARK ILLUMINATION
Happening at the National Science Museum from
4pm to 8pm, on Saturday, 29th September 2012,
a total of 2,000 participants are expected to take
part in this 3.5km charity walk. RM50 per entry.
2
Purchase a flight at the PINK RIBBON
CHARITY GOLF
Happening Wednesday, 17th October 2012 at the
East Course of the Kuala Lumpur Golf & Country
Club, entry is RM900 per person or RM3,600 per
flight. Each golfer will also take home a goody
bag as well as stand a chance to win attractive
lucky draw prizes.
3
Purchase EXCLUSIVE PINK MERCHANDISE
Exclusive Estée Lauder Companies pink
merchandise will be sold throughout the Breast
Cancer Awareness (BCA) Campaign, whereby 100
per cent of the proceeds will go towards charity.
4
Purchase a Table at the PINK RIBBON
CHARITY BALL
This black-tie event – happening Wednesday, 31st
October 2012 in Shangri-La Hotel, KL – promises
a night of fun, memories and most importantly,
purpose. Tables are priced at RM20,000,
RM10,000 and RM5,000. Highlight of the night
is an exclusive showcase by Ramin Karimloo,
performing a showcase dubbed West End
Musical from Andrew Lloyd Webber featuring
show tunes from Phantom of the Opera, Miss
Saigon, Sunset Boulevard and Les Miserables.
For more information on table sales, please
contact Penny Ng, Annie Leong or Yen Chong
at 03 2092 6000.

Funds raised will go towards Cancer Research Initiatives Foundation, Breast Cancer Welfare Association,
College of Radiology Malaysia and National Cancer Society Malaysia. Each of these non-government,
non-profit organisations contribute towards fighting breast cancer through medical research, support for
survivors, patients and family members, free or subsidised treatments and more.
www.carif.com.my
9
TERRY FOX RUN 2012
DATE: 11 November 2012
VENUE: Padang Merbok, Kuala Lumpur
(near Lake Gardens)
T
he Terry Fox Run was started by a young
Canadian cancer patient, Terry Fox, who lost
his right leg to cancer at the age of 18. Stirred
by the suffering of cancer patients, especially
children, he started to run across Canada to raise
money for cancer research.
Terry ran a marathon a day for 143 consecutive
days (approximately 5,373 kilometres) before
passing away from bone cancer at the age of
21. Today, the Terry Fox Run continues around
the world annually to commerate Terry’s bravery
and continues his legacy of raising funds for
cancer research.
In Malaysia, the Terry Fox Run is organised
by a committee of volunteers and since 2003,
CARIF has been selected as the sole beneficiary
of funds raised. Come and take part!

Play Your Part
1
GET AN OFFICIAL TERRY FOX
T-SHIRT at RM30 each. T-shirts will be
available by mid-October at various
locations, including CARIF at the 2nd floor,
Outpatient Center, Sime Darby Medical Center
Subang Jaya, Cananadian High Commission
and Wisma Tan & Tan, Kuala Lumpur. For
enquiries or to book T-shirts, please call SookYee at 03 5639 1874 or email organizer@
terryfoxrunkl.org
2
ORGANISE A TEAM to join the run.
Organise a team at your office and
purchase corporate T-shirts which
has your company name embroidered on
the left sleeve. These T-shirts are priced at
RM35, with a minimum order of 30 pieces.
Order before 15 October 2012 to have a
guaranteed delivery.
10
OCTOBER 2012
3
VOLUNTEER your time. Help us manage
sales at public pick up points during
the weekends before the run, or be a
m a r s h a l l o n t h e r u n d a y, d i s t r i b u t e
water bottles, clean up after the run,
contribute photography services. Email
[email protected] to sign up!
C O M IN G U P
RECENT AND FUTURE EVENTS:
Asian BRCA consortium meeting
CARIF and University Malaya hosted the 1st Asian
Hereditary Breast Cancer Research Meeting in
Kuala Lumpur on the 17th and 18th August 2012.
This meeting brought together researchers and
clinicians from Korea, Japan, Hong Kong, China,
Philippines, Singapore, Thailand, Indonesia
and Malaysia, with Dr Antonis Antoniou from
the University of Cambridge attending as a
guest lecturer.
Although BRCA testing has been available for
the past 15 years and it is estimated that more
than 100,000 Caucasian women have already
been tested, there have been few studies in
Asians. “The Consortium brings together all
the main researchers working in this area and
hopefully, by putting our resources together, we
can deliver better services to Asian patients” said
Prof Dr Teo, who chaired the meeting.

Craze Ultramarathon
If you thought Frank Chong was mad to run
the 89km Comrades Marathon in South Africa
in June 2012 to raise funds for cancer research,
he has gone one up and ran the 160.8km
Craze Ultramarathon in Singapore for cancer
research! Show your support by donating
http://www.simplygiving.com/fundraising/
FrankforCancerResearch

Making The Cut
He has always been known as “cheung mo”
(long hair in Cantonese) among his friends for
his waist-length locks. But it looks like Geh
Chee Minh’s friends will have to brainstorm for
another nickname as he has opted for a crew cut
to promote cancer research. The 28-yr old, who
has kept long hair for the past 10 years, said he
also cut his locks to show solidarity for cancer
patients who lost their hair due to chemotherapy.
By promoting his gesture on Facebook, Geh,
a free lance photographer managed to raise
RM19,190 as of 26 Aug 2012.
“All the donations will go to the Cancer
Research Initiatives Foundation (CARIF)” he said.
“Initially, I was a bit afraid of cutting off all my
hair, but after getting so much support, I have
become much calmer,” said Geh, who had never
had a crew cut before.
Chee Minh has always been interested in
cancer research, but seeing his two aunts and
grandfather suffer from the illness made him
even more passionate about the cause.
“Next month, my friends and I will be going
to India to participate in a 3,500 km rickshaw
charity race to support water purification efforts
there. As we go through the race, I will be taking
pictures of the scenes in India. The photographs
will be auctioned off in January next year and I
will donate the proceeds to CARIF.”
Donations are still open!! Please visit
SimplyGiving website www.simplygiving.com/
MakingTheCut

www.carif.com.my
11
Play Your Part
1. Buy a table at the Sime Darby LPGA event
2. Buy a table at the Estee Lauder Pink Ribbon Charity Ball
3. Buy a flight at the Estee Lauder Pink Ribbon Charity Golf
4. Take part in the Estee Lauder Pink Ribbon Charity Walk and Landmark Illumination
5. Wear a pink pin and raise awareness about breast cancer
6. Come for mammographic screening if you are ABOVE 40
7. Donate to CARIF to support our breast cancer research and outreach programmes
EXCLUSIVE PINK MERCHANDISE
Pink T-shirt
RM50
CARIF pins
Size: S, M, L, XL
RM10-RM20
10-RM20 each
Earrings, mobile string & pin
Teddy Bears RM25 each
ach
Set of 5 at RM100
Calendar 2013
RM20
Hand Towel
Colour: White
Notebook
RM10
2 Designs – Images from the
“Art of Science“ exhibition
RM15
T-shirt RM30
Colour: Red, Blue, Pink
Size: S, M, L, XL
CONTACT US Cancer Research Initiatives Foundation (CARIF)
2nd floor, Outpatient Centre, Sime Darby Medical Centre, 1 Jalan SS12/1A, Subang Jaya, 47500 Selangor, Malaysia
Tel: +603 5639 1874 Fax: +603 5639 1875 Email: [email protected]