Patient Handbook
Transcription
Patient Handbook
dukehealth.org/fvfg Patient Handbook Free Vascularized Fibular Graft contents 2 The procedure 4 Before your surgery 5 During your surgery 6 After your surgery 10 Frequently asked questions Overview The free vascularized fibular graft procedure was developed as an alternative to total hip replacement for patients suffering from osteonecrosis, also known as avascular necrosis (AVN). Osteonecrosis literally means “bone death.” There are multiple causes of this condition, and it occurs in a variety of patients and in a variety of anatomical locations. When this condition occurs in the hip, it can cause significant pain and disability to the patient. As this disease frequently occurs in younger patients, in whom total joint replacement is not the best solution, removing the dead bone and replacing it with healthy bone and a new blood supply—preserving the patient’s native hip bone—is currently the best solution for this challenging problem. The technique was pioneered by Duke orthopaedic surgeon James Urbaniak, MD, in 1979. Since then, more than 2,500 free vascularized fibular graft procedures have been performed by the Duke team. Patients from all over the world come to Duke University Medical Center to have this procedure performed. Within Duke Orthopaedics, you’ll find a comprehensive team of surgeons, physician assistants, nurses, anesthesiologists, physical therapists, occupational therapists, and patient resource managers who devote themselves to serving osteonecrosis patients. Each member of our dedicated staff works cooperatively to provide you with the most accurate information and best possible care in a compassionate and timely manner. We are here to address the concerns and support the needs of every free vascularized fibular graft patient. 2 Duke Orthopaedics Candidates of the Procedure Office Procedures This procedure was developed for young patients; any patient over age 50 is not a candidate. Due to possible complications, the surgery is also limited to patients that do not have sickle cell disease. If you have been diagnosed with osteonecrosis of the hip, and meet these limitations, you may be eligible for the free vascularized fibular graft procedure. Services Our clinical service coordinators are the first clinic staff you will meet as you arrive in our clinic. They will assist with checking you in for your appointment, collect your payment, and give you any additional information pertinent to your office visit. Patient representatives will then consult with you about insurance benefits and financial needs. Have your local orthopaedic surgeon complete the Avascular Necrosis Referral Protocol form, downloadable at dukehealth.org/FVFG. This form details the information needed to determine if you are a surgical candidate. If you are a candidate for the free vascularized fibular graft procedure, we will contact you and your referring doctor. If you are not a candidate, the x-rays and MRI will be returned to your referring doctor. Your Care Team Nurses The office nurses will assist you in the examining room. They are also available to answer questions or concerns that you may have. Insurance Your insurance policy is a contract between you and your insurance company. It is essential that you review your policy and become familiar with your benefits and provisions. In general, we file insurance as a courtesy to the patient. Any dispute regarding payment is between the patient and insurance company. Insurance plans usually require pre-authorization, and our patient representatives start this process as soon as your surgery date has been determined. Please verify that this step has been accomplished when you check into the clinic. If you have any questions about your coverage, contact your insurance agent. Questions regarding the filing of claims or the responsibility of payment can be discussed with the patient representative handling the claims. Laboratory If needed, lab tests will be performed at our clinic during return clinic visits. Radiology Our on-site radiology technicians specialize in working with orthopaedic patients. At each postoperative visit, you will have x-rays taken. You will not need a MRI at any time following your surgery. The MRI obtained prior to surgery is for diagnostic purposes; x-rays are used to follow the postoperative progression of bone healing. Important Numbers AVN Coordinator 919-668-5259 (tel) 919-668-5476 (fax) Billing 919-620-4555 (local) 800-782-6945 (toll-free) The CPT codes for free vascularized fibular graft are 27071, 27170, and 20955. The ICD diagnosis code for avascular necrosis of the femoral head is 733.42. Free Vascularized Fibular Graft Patient Handbook 3 Before Your Surgery There are some medications that can interfere with your surgery. The following drugs and dietary supplements should be discontinued: Several tests and procedures will be performed: n n Two weeks before surgery n n Alpha-omega supplements n Fish oil n Vitamin E One week before surgery n Aspirin products n Anti-inflammatory medications n Anticoagulants (blood thinners) n 4 Immunosuppressants (i.e., methotrexate, CellCept, Plaquenil) Duke Orthopaedics X-rays to measure the amount of dead bone MRI (magnetic resonance imaging) to further determine the extent of avascular necrosis A physical exam and other lab studies at the time of admission Your surgeon will schedule the surgery date once the review of your clinical history, x-rays, and MRI has been completed. The scheduling secretary will contact you by letter or telephone with the date of surgery. Additional information will be given at that time in preparation for surgery. For patients who require surgery on both sides of the hips, the hip most severely affected is operated on first; three months later the operation is performed for the opposite hip. The follow-up surgery will be scheduled at the time of discharge from the hospital or at subsequent office visits. During Your Surgery Two teams of specialty-trained surgeons will be present for your free vascularized fibular graft. One team works on the hip area, and the other team works on the lower leg (the area of the fibula). During the surgery, an incision is made along the hip so that the dead bone may be removed and the remaining bone prepared to receive the graft. An incision is made in the lower leg to remove a segment of the fibula and its attached blood vessels. The fibular segment of bone is then inserted into the hip bone. The blood vessels (artery and vein) in the hip region are connected to the vessels of the fibular graft with microsurgical techniques by either sutured connection or vascular coupler. The circulation is carefully checked to ensure blood flow into the hip, and the incisions are closed. A bulky dressing and cradle boot are applied to the lower leg to immobilize it for comfort. The cradle boot is usually removed after five days. A bandage is applied to the hip. The dressing and bandage can be removed five to seven days following surgery. During Your Hospital Stay After surgery, you will be given anticoagulants (blood thinners), which help to prevent blood from clotting too quickly and to enhance blood flow to the grafted area. On postoperative day 1, a physical therapist will begin guiding you in crutch-walking, muscle-strengthening exercises, and which activities to limit during your recovery period. The total length of the hospital stay is usually three to four days, including the day of surgery. Discharge usually occurs on postoperative day 3. Your hospital stay may be longer if your surgeon recommends later discharge. We are often asked for a recommended method of travel—car or plane. Consider the total length of time of transport from the hospital to your home when planning the method of travel. Usually, the shortest travel time is the best. Free Vascularized Fibular Graft Patient Handbook 5 After Your Surgery Wound Care Swelling Your Recovery Your incisions should be kept clean and dry. The dressing can be removed on the day following your return home. No drainage is expected from your incision, and minimal redness is expected around your incision. If you develop drainage or redness, contact your surgeon’s office. Postoperative swelling and a bruised appearance in the leg and hip region are common following a free vascularized fibular graft. The majority of the swelling will be located closest to the surgical site. As you are more active and have your foot below your heart, swelling in the leg will occur below the area of surgery in the lower leg and the foot. The swelling is usually less in the morning and greatest at the end of the day. While your hip bone re-vascularizes, the surface of the femoral head is very weak. In addition, the femur (leg bone) is 80 percent weaker because of the surgery. Therefore, it is very important to use your crutches and stay within the limits placed on weight-bearing. Any weight above the following prescribed amounts can cause collapse of the femoral head. Please also note that lack of postoperative pain does not indicate the rate of healing. Showering may be resumed seven days after surgery or when there has been no drainage for the preceding 48 hours. Wash gently over the incisions with warm sudsy water, rinse with clear water, and pat dry. You may leave the incisions open to the air or re-cover with a clean, dry dressing. If the dressing gets wet at any time, it should be removed and the incisions cleaned. Do not apply any creams or ointments to the incision until your Steri-Strips are removed. (You can remove them between 10 and 14 days following the surgery.) You may have had a plastic drain tube placed during surgery. If you had a drain, you most likely have clear plastic dressing on the site where the drain exited the skin. If a small amount of fluid collects under this area, it is not a problem; simply change the dressing. If the dressing leaks, it needs to be replaced. Use the dressing material given to you at the time of discharge from the hospital. Let us know if you have any concerns about the appearance of your incisions. 6 Duke Orthopaedics Periodically elevate your leg to help reduce swelling: Lie down in bed three to four times a day with the operated leg resting on several pillows. Do this for 20 minutes at a time to help decrease the swelling in your leg. If you have persistent swelling and pain that does not decrease with elevation, contact your surgeon’s or primary care doctor’s office. n n n Do not bear weight during the first six weeks At week 7, begin by bearing 20 pounds Increase weight-bearing on the operated leg by 10 pounds every two weeks until body weight is met Constipation Constipation is a common problem associated with decreased activity, decreased fluid intake, and the use of narcotic pain medication. You will be discharged with a stool softener, which is important to take as directed. You should also pay close attention to your fluid intake by drinking a lot of fluids and eating a diet high in fiber and roughage. Bran cereals, prunes, prune juice, highfiber bread, and raw fruits and vegetables will help reduce constipation. If necessary, a mild laxative may be used. Fever It is not uncommon to run a low-grade fever following major surgery, and it may last a week or up to 10 days. If you have a persistent fever above 101.5°F with pain, irritation of your incision, burning in the urinary area, or a productive cough, call your surgeon’s office. The progression to full, unassisted weight-bearing depends on the stage of your avascular necrosis and whether both hips are affected, follow-up x-rays, and symptoms. After your surgeon reviews your postoperative x-rays, you will be instructed when to discontinue crutches. Some patients prefer to use a walker instead of crutches for greater stability, particularly in the home. The progression with weight-bearing remains the same with walkers. Likewise, a wheelchair is not required postoperatively, but some patients prefer a wheelchair at work or around the home after having surgery on the second hip. Sitting To get up from a chair, hold both crutches in one hand and push up from the chair with your other hand. Once up, place one crutch under each arm. To sit back down, take the crutches out from underneath both arms. Hold the crutches together in one hand and reach back for the chair with your other hand. This makes the transfer smooth and decreases the risk of putting too much weight on your operated leg. Exercise n n n n Stairs To go up stairs, lead with your “good” leg, followed by your operated leg and crutches. Descend stairs with your crutches first, followed by your operated leg, then your “good” leg. If a railing is available, hold both crutches under one arm and use the railing for support in the other hand. Activity Level We encourage you to be up and active as you recover; most patients will feel like doing more activities after the first week home from surgery. We do recommend periodic rest with the operated leg elevated above the level of the heart. Fatigue following the surgery varies from person to person and should completely resolve by three months. Sleep Even though you are tired, you might find it difficult to fall asleep at night during the first weeks after free vascularized fibular graft surgery. Sleep in the most comfortable position for you. However, most patients wait until at least two weeks have passed before lying on the operated side. n Continue the exercise program you began in the hospital. Walking is excellent exercise to help build strength, but only after crutches have been discontinued. Swimming or aquatic exercises can be started six weeks following surgery. (Ensure safe access to the pool. Be sure to use steps or ramp access rather than ladder.) Stationary biking may be started six weeks after surgery with resistance on the pedals. You may use resistance to the same degree as you are permitted to have weight on the operated leg. The amount of resistance can be progressed at the same rate as weight-bearing. Avoid tennis, jogging, basketball, or other sports that require a lot of stop–start or cause jarring. Stop any form of exercise that causes new or increased pain. The desired form of exercise can be tried again in two weeks, but if the pain returns, that form of exercise is to be avoided. For further guidance, consult your surgeon at your next office visit. Travel If you need a temporary handicapparking permit, the application form may be obtained through your local DMV office. Fill out the patient part of the form and send it to your surgeon’s office for the doctor’s signature. For residents of North Carolina, our clinic can provide the application form. Returning to Work The length of disability from work varies from person to person and depends on the type of work and the severity of avascular necrosis. Most patients return to sedentary work with the use of crutches within six weeks. Please keep in mind that someone else will need to drive within that period. If your job requires walking without crutches, you may return four months to a year following surgery. If your job requires strenuous, manual labor, you may return after one year. Please complete the disability questionnaire, available through your local disability office, if a doctor’s statement is required. Returning to School The length of time away from school will depend on the modifications that will be required to get to and from the classroom. Most school-age patients have homebound tutoring arranged through the school system for the first six weeks. Sexual Intercourse Intercourse may be resumed when you feel your body has sufficiently recovered from surgery. As a guide, remain passive until after the three-week exercises are performed without pain. Women should consider delaying intercourse for six weeks to avoid stress on vascular repair. You should wait two weeks from the time of surgery to do any traveling outside the home. You can drive after the first six weeks or earlier, if permitted by your surgeon. Avoid twisting your operated leg while getting in and out of the car. Free Vascularized Fibular Graft Patient Handbook 7 Follow-Up Visits All free vascularized fibular graft patients require lifetime x-ray surveillance. Follow-up office visits are scheduled at the time of discharge from the hospital and at subsequent office visits. If interval visits are required, they can be scheduled by calling the Appointment Office at 919-613-7797 or 800-851-5811. If a problem arises that will require you to be seen on an emergency basis, call your surgeon’s office, or if after hours, call 919-684-8111 and ask for the orthopaedic resident on call. With Duke Orthopaedics surgeons AP pelvis and frog leg lateral x-rays will be obtained at six weeks, three months, six months, one year, and every year thereafter. With local/referring orthopaedic surgeons Many of our patients have follow-up visits performed by their local orthopaedic surgeon. You will be seen postoperatively at six weeks for weight-bearing instructions and gait training. AP pelvis and frog leg lateral x-rays are obtained at three months, six months, and yearly. After the six-month visit, your local orthopaedic surgeon will send us a summary letter and x-rays for review. After the reviews of x-rays, your Duke orthopaedic surgeon will relate his/her findings in a letter. It is our practice to review all x-rays and send a letter to the patient or local surgeon as soon as possible. 8 Duke Orthopaedics Recovery Timeline After 1 week Showering if no drainage at incision site for the preceding 48 hours 2 weeks Travelling outside your home 4 weeks Bathing 6 weeks First postoperative office visit Gradual weight-bearing on operated leg Return to driving 3 to 6 months Walking without crutches Full weight-bearing The Second Surgery If both of your hips have developed avascular necrosis, surgery may be performed on the second hip approximately three months following the first surgery. To speed your recovery and prepare your body for the second surgery, do not bear weight on the first hip for six weeks following the surgery. At week 7, add 25 to 30 pounds of weight-bearing, and increase weight-bearing on the operated leg by 10 pounds every two weeks. Adding swimming, aquatic exercises, and/or stationary biking three times a week—following the first six weeks of zero weightbearing—will help you be best prepared for upcoming surgery on the second side. Using your crutches correctly n n n n n n n n n To determine the proper crutch length, allow three finger spaces between your underarm and the top of the crutch when standing erect with shoulders relaxed. The far end of the crutches should come to a point 2 inches to side and 6 inches in front of the foot. The handle position should not allow the elbows to flex beyond 30 degrees. To avoid injuries to nerves and blood vessels in the shoulder area, do not make a habit of leaning on the axillary bar (the top bar). Support your body weight in the hands—not under your arms. Put away any throw rugs at home, as your crutches or toes could easily catch on them. After walking outside, check your crutch tips for gravel or other objects that could cause the crutches to slide on the floor. Exercise caution when walking from one floor surface to another, such as linoleum to carpet. The pads at the ends of crutches are susceptible to wear and tear and can be replaced as needed. The pads should be replaced before the pattern disappears or the concave surface flattens. Replacements are available at most drugstores or health equipment stores. Non-weight bearing (figure A) is accomplished by always keeping the operated leg off the ground. Your whole body weight should be shared evenly between the crutches. Throughout the gait cycle, keep the hip and the knee joint of the operated leg in a flexed position. With partial weight-bearing (figure B) , the crutches are moved forward with the affected foot making gentle floor contact in a line horizontal with the crutch tip. The amount of weight placed on a foot can be determined by placing the uninvolved foot on a telephone book next to a scale. Then place the affected foot on the scale bearing weight until the scale reads the desired number of pounds. If recommended by your surgeon, canes may be used to unload up to 15 percent of your body weight. The cane should be held in the hand opposite the operated leg since it takes less pressure in that hand to relieve hip pressure. The cane and operated leg should move together, and it is very important for the handle to be comfortable to hold. FIG A FIG B Free Vascularized Fibular Graft Patient Handbook 9 Frequently Asked Questions What are the risk factors for developing avascular necrosis (AVN)? How long can I wait to make a decision regarding surgery? How long does the free vascularized fibular graft surgery take? In children, the most common risk factors are trauma, slipped capital femoral epiphysis, and steroid use. Other factors are Legg–Calvé–Perthes syndrome and idiopathic (unknown) causes. Avascular necrosis is a progressive condition. Progression may be observed as early as one month or it may take several months. Progression usually occurs in less than 20 months. The surgical procedure lasts approximately three hours. Anesthesia duration is approximately four hours. In adults, the most common risk factors are steroid use, alcohol consumption, trauma, coagulopathies (blood clotting disorders), and abnormal anatomy. About 25 percent of patients develop avascular necrosis with no known cause. What is a free vascularized fibular graft? A free vascularized fibular graft consists of removing dead bone that has a poor blood supply from the hip (figure A), and replacing it with a healthy segment of vascularized (blood-rich) bone from the fibula (the smaller bone in the lower leg, as shown in figures B and C). The fibula segment serves as a graft. The goal of the free vascularized fibular graft is to preserve the femoral head (hip bone) rather than replace it with an artificial joint. What are the advantages of a free vascularized fibular graft? The advantage of a vascularized fibular grafting is that the bone is transferred “alive,” which means an early take and better results. In addition, the blood vessels spread out and form new bone to strengthen the operated area. If I have avascular necrosis, can both hips be operated on at the same time? No, but if the unoperated hip is or becomes symptomatic, then the second hip surgery will be performed two to three months later. What is the process to get admitted for surgery? On the day prior to surgery, you will need to confirm your pre-surgery arrival time by calling a phone number that we will provide. On the day of surgery, you will be admitted through the operating room. Will I need a blood transfusion? Fewer than 2 percent of patients require a blood transfusion. Some patients prefer to donate their own blood in advance to use after the surgery, if required. This is called autologous blood donation. Some patients are unable to give their own blood. If so, a family member or friend with the same blood type may donate for the patient. This is called directed donation. In addition, there is blood available from the blood bank. Also, medications to increase red blood cell production, such as epoetin alfa, are available. These medications allow your body to boost blood count without donated blood. Can I have visitors? Your family (limited to two members) may accompany you to the preoperative holding area and will then be instructed to wait in the family waiting area. Your surgeon will speak to your family after the procedure. What should I bring to the hospital? Bring personal items and toiletries that you are accustomed to using at home. You may want your own pajamas a day or two after your surgery. Generally, a hospital gown is preferred immediately after surgery. A pair of comfortable flat shoes is also recommended. Bring your medications. Large amounts of money and jewelry should be left at home. No jewelry is permitted in the operating room. What happens to the lower leg after the fibula bone is removed? The fibula is a minimally weight-bearing bone and acts as strut for muscle attachment. For this surgery, the middle portion of the bone is removed, leaving the top and bottom of the bone without change. No plating is required and there is no change in the appearance of the lower leg except for the incision on the outside of the leg. Sometimes patients have transient swelling, numbness, and/ or weakness, and these symptoms usually resolve during the early postoperative recovery period. What will the scar on the hip and lower leg look like? See figure D (incisions highlighted). 10 Duke Orthopaedics Will I be on any medications after surgery? What kind of therapy will I have following surgery? Routine anticoagulation (blood thinning) medications, in the form of aspirin, dipyridamole (Persantine), and dextran, are given after surgery. Dextran will be given to you over a three-day period while you are in the hospital. Aspirin and dipyridamole are taken for six weeks. An iron supplement may also be prescribed. Physical therapy with a therapist is only necessary while in the hospital. Swimming and stationary bicycling are highly recommended after the first sixweek postoperative period. If needed, pain medicine taken before discharge from the hospital may be continued for one to two weeks following surgery. After discontinuing the prescribed pain medicine, we recommend acetaminophen (Tylenol) for pain control. Please follow the manufacturers’ dosing guidelines for proper usage. If you are unable to take acetaminophen, then other over-the-counter pain medicines will be recommended. For your routine medications, discuss with your surgeon when to resume taking them. Medicines for immunosuppression (Methotrexate or CellCept) or medicines that may increase bleeding (NSIADs or aspirin) are included in this group. Your dentist may ask if you have been prescribed antibiotics as part of your graft surgery. (Antibiotics are recommended with total hip replacements.) Since your own bone is used for the graft, antibiotics are not required. Additional variations in your postoperative medication schedule will be explained at the time of discharge from the hospital and is dependent on your individual clinical history. FIG A Will I need any special devices at home? You will need crutches or a walker, and your physical therapist will assess which device is best for you. If you already have crutches or a walker, bring them with you to the hospital on the day of your surgery. The equipment you bring will be assessed by your physical therapist for safety. Optional durable goods for home use include a wheelchair, an elevated toilet seat, handrails around the toilet, and a tub seat. Your discharge planner will assist you with any special needs. FIG B How long does the recovery take? Recuperation is variable and depends on each person. Some patients feel like their health and strength return one to three months after surgery. Most feel “back to normal” once they become full weight-bearing. How often do I need to return to Duke for follow-up visits if I live far away? You only need to come to Duke once for follow-up: at one year after surgery. Your local orthopaedic surgeon can see you for the other follow-up visits. FIG C FIG D Free Vascularized Fibular Graft Patient Handbook 11 DEL Duke Clinic 200 Trent Drive 5th Floor, Orange Zone, Room 5332 Durham, NC 27710 BOX DUMC 3466 Durham NC 27710 Produced by Marketing and Creative Services | dukecreative.org | Copyright © Duke University Health System, 2010 | MCOC-7040