The Executive Director`s Desk - Disability Resource Association
Transcription
The Executive Director`s Desk - Disability Resource Association
PROGRESSIVE EMPOWERMENT 130 Brandon Wallace Way Festus, MO 63028 Phone: (636) 931-7696 Fax: (636) 931-4863 RETURN SERVICE REQUESTED NONPROFIT US POSTAGE PAID FESTUS, MO PERMIT #466 Our Mission: “Personal Empowerment for People with Disabilities, Seniors and Those in Need.” A QUARTERLY PUBLICATION PROGRESSIVE EMPOWERMENT The Executive Director’s Desk July 21, 2014 Craig Henning Well summer is here and many of you are out and about enjoying the nice weather. Here at DRA this is usually a slow time of year. Since the economy has been in such bad shape that summer slowdown just never seems to come to DRA. In the last six months Jefferson County has lost several large and small employers, and lay-offs are still occurring at high levels. When things like this happen in our community people turn to DRA to help them through the crisis. This summer instead of a slowdown, DRA experienced an increase in new referrals weekly. The DRA staff should be commended for all of their hard work and diligence. Join Us Online!! Twitter@DisabilityRA Pinterest: disabilityra Due to our ever increasing workload, DRA has added two new Independent Living Specialist / Case Managers. When you come into the office you will likely meet Tori and Lauren. Both of them bring a number of skills and experience to the job. It is always great to see new staff jumping in with both feet and these two certainly have done so. May also marked the return of Sarah the Intern. Sarah is a Maryville University student who brings a lot of experience with disability issues. Sarah works along with the staff and most of the people she works with have no idea she is an Intern with her professionalism. Needless to say we all appreciate Sarah’s hard work. Make sure you’re introduced to the new folks when you visit DRA. Facebook: DisabilityResourceAssociation *NEW* LinkedIn: Disability Resource Association Progressive Empowerment is a quarterly publication of Disability Resource Association. We accept disability-related and creative articles for our publications. Here at DRA, several key programs are supported solely through private grants or individual donations. These programs include the Ramps and Home Modification Program, Consumer Assistance, Circuit Breaker Tax Credit preparation and EquineAssisted Activities and Therapies. Other programs, such as the Transportation Assistance Program are primarily funded through private contributions. To provide a consistent stream of funding for these programs, DRA developed a Planned Giving Program that allows individuals to participate for as little as $5 per month and businesses as little as $10 per month. A donation slip is located on Page 11. All Contributions are tax deductible and participants can designate their contributions to a specific program. Editors: Pat Rimkus and Samantha DeClue Now that the legislative session is over, well sort of over, there has been nothing but bad news from Jefferson City. Due to an ongoing disagreement over the budget, the Governor has vetoed multiple items. As fate would have it the increases in funding DRA fought so hard for both got the veto budget ax. The first was an increase in the Independent Living Grant. This is the grant used to start DRA way back in 1996. In 1999 DRA received $205,000, in 2014 DRA received $193,000 which is a $12,000 annual net loss over a 15 year period. As everyone knows, the cost of doing business has gone up dramatically since 1999 while the grant has shrunk. The budget approved by the legislators included a 2% increase in the CDS / In-Home Provider rate. DRA planned to use these funds to give the attendants a long overdue wage increase. These funds were also vetoed despite being a recommendation in the budget the Governor proposed in January. After much discussion and debate, DRA decided the attendants had waited long enough and authorized the wage increase. This will create a hardship on the organization but it was the right thing to do. The attendants have been there for consumers through bad times so it was our turn to repay the favor. The board at DRA realizes that attendants work very hard and the job is not exactly fun. The organization appreciates all that attendants do and the extra mile these individuals go to meet the needs of those they serve. Please help us to keep things going in the right direction by volunteering or making a donation. DRA has been very lucky to have great community support and we hope you or someone you know will feel our work is worth a donation. As always, don’t hesitate to ask for assistance. PAGE 2 Interns at DRA PAGE 11 Nancy Pope Did you know that our newsletter is available online? Sean Merrell has been an intern at DRA since January 2014. He was diagnosed with Mucopolysaccharidoese (MPS) around the age of 6. MPS is a rare genetic disease caused by the body’s inability to produce specific enzymes. Sean has participated in a Phase 3 study for people with MPS. He travelled to New York City several times over the past year and a half to be given a medicine to stop the mucus from attacking his body. Sean feels like taking the medication and participating in the study has helped him with the symptoms. He was one of seven in the New York portion of the study to be given an award for his participation. Sean says, “I feel good knowing I’m helping people all over the world who have MPS and possibly my future children.” Hi! My name is Sarah and I am a Senior Rehabilitation Services student at Maryville University in St. Louis. I have been an intern at DRA for the past two summers and I absolutely love it! My favorite part of working at DRA is getting to know the consumers and learning about how an Independent Living Center runs. During the school year I am very involved on campus; I am an officer in three student organizations, including Maryville Student Government and Committee On New ‘N Existing Campus Traditions (CONNECT). I am also involved in many other organizations. I play Power Wheelchair Soccer and volunteer for the Muscular Dystrophy Association. This summer I got the opportunity to be one of the Sponsor Liaisons at MDA Camp, which is a camp for children with forms of Muscular Dystrophy. The Sponsor Liaison position involved welcoming all sponsors and visitors to Summer Camp, giving them a tour and telling them about MDA. Would you like to receive it via email instead of in your mailbox? If so, please e-mail Samantha DeClue at samanthad@ disabilityresourceassociation.org to get yourself registered. Hope to hear from you! --------------------------------------------------------------------------------------Cut along dotted line and mail to DRA at 130 Brandon Wallace Way in Festus, MO 63028 YES! I want to help DRA bring independence to all people with disabilities. Enclosed is my tax-deductible gift of: $_________________ Name:_____________________________________________________________ Address:___________________________________________________________ City/State/Zip Code:__________________________________________________ Phone #:____________________________________________________________ Amount Enclosed:____________________________________________________ Specify Program______________________________________________________ For more information call DRA at 636-931-7696 or donate on our website! PAGE 10 OUR NEWSLETTER IS EXPANDING!!! — Want to advertise your business?? Our publication is mailed four times per year to over 1,900 people, including persons with disabilities, aides/attendants and disability related businesses. Contact Samantha at 636-931-7696, ext. 136 for availability and pricing! United Access Mobility for Living, Service for Life -New & Used Wheelchair Accessible Van Sales -Lifts, Mobility Seating, and Driving Controls -24 Hour Service, Rentals, and much more! Visit us at either St. Louis location: 9389 Natural Bridge Rd. St. Louis, MO 63134 and 10232 Rahning Road St. Louis, MO 63127 (888)939-1010 or email: [email protected] Add some Joy Breaks to Your Day Laura Richmond PAGE 3 Adapted from the Farmer’s Almanac and Healthy Living Recent findings on happiness and well-being suggest that we ought to consider adding some “Joy” to our days. Rather than pursuing all-out work for as many hours as possible, followed by break-neck fun in whatever time we have left in the day, we would do better to pace ourselves. As such, scheduling “joy breaks” throughout the workday can make you happier, healthier and more productive. Aim for two to three hours of work, followed by a fifteen-minute joy break. Setting aside the time for this kind of break can help clear your head, reduce your stress and fill you with delight. Here are some ideas for joy breaks to get you started: Daydream: Haven’t had a vacation for awhile? Pick a favorite vacation spot and take some time to imagine how it looks, feels, smells, sounds and tastes. Who is there with you? Is there music playing? What’s the temperature? While it’s no substitute for the real thing, daydreaming about that adored hideaway or beloved place at the beach can fill you with delight. Be kind: Guess what? Performing random acts of kindness is one of the best ways to make yourself happy. Use your break to go out of your way to give a little help to someone. Pay a compliment to someone you don’t even know or send a “thinking of you” email to a friend you haven’t communicated with for awhile. Laugh: Read the comics or a joke book. Make up a silly song and sing it to yourself. Re-watch a scene from that movie or TV show that makes you cackle until you snort. Move: Dance. Go for a walk. Jump up and down. Do some stretching. Depending on whether you need to de-stress or stay awake, do whatever feels relaxing or energizing to you–just be sure to make it fun! Your workplace may not be conducive for all of these ideas but you can adapt them to suit your needs and your workplace. You can create your own list of “go-to” joys. Developing your list is easier than you might think. Begin by paying attention to the little things in life that always bring you pleasure. Is it listening to a certain song from your favorite summer growing up? Eating a certain kind of fruit? Petting your cat or dog? Looking at photos of your loved ones? Set a goal of coming up with ten “go-to” joys. You will have them in no time and soon be adding more of them–along with better health and greater productivity–from high atop cloud nine! Money Saving Tips Kendra Ham PAGE 9 PAGE 4 We all have to buy groceries, so everyone knows how expensive it can get. You can save money every month by only shopping with comp ads. Every week Schnucks, Shop ‘n Save and sometimes Queens send their ads to my home on Wednesdays. In Thursday’s Leader Cash Savers has their ad that I clip and on my way home I will stop and pick up the ad for Save A Lot. When I get home I look through all the papers to see what is on sale that week. We all shop our local Walmart enough to know the layout of the store and I start making my list. The beginning of the store has produce. So at the top of my list I will write what is on sale, quantity/size and what store has the sale. Examples: Corn on the Cob 5/$1 — Schnucks or Boneless Pork Chops Family Pack $1.79/lb. — Shop ’n Save On top of finding things that are on sale, you can also use a coupon for additional savings. You can save a lot of money this way on meat and produce. Income is tight so make every penny count. When using comp ads, make sure that you’re using the current week’s ads only. Have your list organized so that you can correctly tell the cashier the price you will be paying. And always have the ads with you in case they want to verify. When I fill my cart I separate my comp ads from the things that are not on sale so it will be easier for the cashier. He/she may ask me what and where the deal is. It adds a few minutes to check out, but is way worth it, especially if you can find a coupon for the item on sale. With comp ads, you can feed a family of 5 for under $100 per week. Besides the savings, you can still do all your shopping in one place. The Jefferson County Hunger Task Force is hosting a Food Drive, on Saturday, July 26th from 9 a.m.-5 p.m. At all Jefferson County locations of: Dierbergs, Schnucks, Shop 'n Save and Walmart . Please stop by and make a donation to help those in need. If you have questions, please call (636)931-7696. Items needed are: Food, Hygiene, & Cleaning Items. Meats (in can), Boxed Pastas, Rice, Potatoes & Cereals, Peanut Butter & Jelly, Fruits, Vegetables, Potatoes (in can), Dessert Mixes, Soups, Sauces, Toilet Paper, Paper Towels, Toothpaste, Toothbrushes, Soaps (hand & body), Shampoo, Deodorant, Feminine Products, Laundry & Cleaning Products. The Jefferson County Hunger Task Force is having an event to raise funds and awareness. Memories of Elvis - Starring Steve Davis as Elvis When: October 4th, 2014 Doors open at 6 p.m. Performance begins at 7 p.m. Where: Immaculate Conception Church in Arnold Tickets are $20 in advance or $25 at the door. Reserved seating is available for a ticket price of $30. Refreshments will be available, including: hot dogs, hamburgers, desserts, soda and water. Raffles, a 50/50, silent auction and cash bar will also be at the event. Step back in time to the era of Elvis. Enjoy a stroll down memory lane and listen to the groundbreaking music that made Elvis the icon he still is today. Opening acts will include; Thomas Hickey as Buddy Holly and Anna Blair as Patsy Cline. For more information or to purchase tickets, call (636) 287-3663. All proceeds will benefit the Jefferson County Hunger Task Force. Don’t forget DRA ‘s fundraiser called Good Search. We earn money for every search conducted at GoodSearch.com, as long as you choose Disability Resource Association as the donation recipient. Do you shop online? There are additional coupons for hundreds of businesses and DRA will get a percentage of the purchase. The best part is that it’s free to use! PAGE 8 Recipes Made Simple – Watermelon Cake New Faces At DRA Tori Dittmann, Independent Living Specialist Samantha DeClue, Development Assistant Lauren Caito, Independent Living Specialist Find the star looking like this hidden in the publication and you could be the quarterly star and win a $25 Walmart gift card. Find the star and mail your answer with your name, address and phone number to Samantha DeClue at DRA. Names with the correct answer will be placed in a drawing for a gift card per each quarterly publication. Deadline for submissions is 5 p.m. on 8/1/14. The drawing will be held on 8/4/14. DRA staff/immediate family are not eligible. The Star of the April 2014 issue was Derek P. It was located on the reminder finger on Page 8. Congratulations Derek for having a good eye. SOCIAL GROUP DATES TO REMEMBER July - Picnicking, Fishing & Swimming at Terre Du Lac August - To Be Announced September - Horseback Rides, Bon Fire & Hayride in De Soto Thank you to Variety The Children’s Charity!! A huge thank you to Variety The Children’s Charity for their continued support of our EquineAssisted Therapy Program. WO RD S of WISD OM Only those who dare to fail greatly can ever achieve greatly. PAGE 5 FU N FACTS Thunder is the boom made by air when it is heated up by lightening and expands at supersonic speed. The same effect happens when you burst a paper bag, but it’s not as loud. We can hear thunder from up to 12 miles away. Mike T. Ingredients: 2 - 8 oz. Containers Frozen Whipped Topping 1 Large Seedless Watermelon Assorted Berries & Mints (if desired) Directions: Slice two short ends off of Watermelon, so it sits flat. Cut away rind to make a cylinder. Transfer to cake stand. Frost with both containers of Whipped Topping. Top with berries and mints, if so desired. (Serves 10.) Featured Consumer of the Quarter Featured Staff of the Quarter My name is Dusty. Once my children were old enough to take care of themselves, I went back to school and then obtained a job in the medical field. All was going well for me and then I began having seizures. I had to stop working and needed assistance for myself. My name is Kris Scott and I have been a nurse with DRA for 6 years. It is a blessing to be able to work with so many wonderful people. It is truly special to have a career where I am able to reach out and help so many amazing individuals. My clients fill my heart with joy!! Through DRA, I have a nurse that sets up my meds and an aide that helps me every day. I have been married to my wonderful husband Michael for twenty five years, and together we have four amazing children. We love to camp and explore the outdoors. My favorite hobby is hiking Missouri State Parks. I also love to bake cupcakes, play tennis and ride bicycles. DRA has helped me in a number of ways and I feel blessed to have such nice people on my support team. PAGE 6 Equine-Assisted Activities and Therapies Pat Rimkus Equine-assisted activities and therapy continues to be a beneficial program enhancing the lives of our participants. Equine movement provides multidimensional movement which is variable, rhythmic and repetitive. The horse provides a dynamic base of support making it an excellent tool for increasing trunk strength and control balance, building overall postural strength and endurance, addressing weight bearing and motor planning. The horse’s gait mimics the human gait so it helps the participant improve their own gait. The movement also offers the participant an increase in sensory stimulation which enables them to complete multiple tasks. Therapeutic riding allows the special needs rider to improve knowledge of horsemanship, riding skills, balance, coordination, following directions and completing multi-step obstacles. It also improves socialization, self-esteem and sense of accomplishment. The rider gains a sense of independence while on horseback. A sincere thanks to our Session 1 & 2 participants and their families who issued donations to assist the Program with keeping a supply of treats on hand for the horses and obtaining specialized equipment needed to provide safe and productive lessons. Many thanks to our AWESOME volunteers who assist with making magic happen! Healing With Horsepower relies upon private donations, grants from foundations and sponsorships that are all tax-deductible. Please contact Pat Rimkus, DRA’s PATH certified therapeutic riding instructor at (636)931-7696, ext. 116 if you’d like to make a donation or sponsor a horse or rider. Check our website for some pictures of our 2014 participants at www.disabilityresourceassociation.org Many thanks to Variety The Children’s Charity. With their generous contribution we have been able to purchase additional shade/shelter in our arena, an outdoor restroom, and some outstanding playground equipment which has been heavily utilized by not only our adolescent participants but their siblings as well. Our equestrian center is a place for the entire family to enjoy. PAGE 7 EAAT Participants At Their Best Vanessa is 21 years-old with spinal fusion. She is challenged with neurologic and muscular weakness along with speech and intellectual delays. While acquiring a new skill of horsemanship, Vanessa was able to strengthen core muscles and had the tenacity to excel with her first year participation in the Program. Her motor skills improved so much during a 5-week session, she was able to advance to some independent riding in a round pen. Great job Vanessa! Anna Marie is 57 Years-old with pulmonary issues along with orthopedic challenges that cause joint pain. Anna Marie completed her second year with the Program with much enthusiasm to develop horsemanship skills. She never let a left knee replacement last fall prohibit her from her participation in riding and continues to be extremely active. Anna Marie was able to advance into some independent riding with our Clydesdale Eve. Way to go Anna Marie! Hayden is 6 years-old and challenged with Cerebral Palsy. She participated in the Program last year and needed to utilize a special needs saddle with a back. Hayden displayed enough core strengthening and control this year to advance into a regular youth saddle. Her verbalization improves each week and she has no problems comprehending instructions and following through to complete tasks on horseback. She is very proud of her own accomplishments. Super job Hayden! Ryan is 19 years-old and challenged with Autism and Epilepsy. He has utilized the Program for 4 years. The Program has assisted Ryan with an alternative learning method that enables him to comprehend instructions and follow directions. His verbalization improves each year. We have been pleased to encounter Ryan offering verbalization through his own thought process this year. Outstanding job Ryan!