2015 iHOPE Annual Report - The International Academy of Hope
Transcription
2015 iHOPE Annual Report - The International Academy of Hope
Anything is possible ANNUAL REPORT 2015 The Sarah Jane Brain Foundation The International Academy of Hope SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 1 The Sarah Jane Brain Foundation The International Academy of Hope 101 W 116th St. 2nd Floor New York, NY 10026 (212) 787-8315 A MESSAGE FROM OUR FOUNDER www.thebrainproject.org www.iHOPEnyc.org On the cover: Yurisa and her paraprofessional enjoy a community outing in Central Park. Every student at iHOPE is supported by a team of experienced educators, therapists and paraprofessionals. CONTENTS iii A MESSAGE FROM OUR FOUNDER 26 SPEECH-LANGUAGE THERAPY 05 ORGANIZATIONAL STRUCTURE 28 VISION EDUCATION 06 MISSION, VISION & CORE VALUES 30 CONDUCTIVE EDUCATION 08 2015: A YEAR OF GROWTH 32 ACADEMICS 14 SPECIAL EVENTS 34 STUDENT PROFILES 14 iHOPE SUMMER OLYMPICS 34 KRISTINA 16 ANNUAL FASHION SHOW 35 OMARI 18 HOLIDAY FOOD DRIVE 36 SAMANDAR 19 AMERICAN GIRL OUTING 38 THE PABI PLAN 21 2016 EVENTS CALENDAR 40 CONTRIBUTORS 22 DEPARTMENT REPORTS 44 FINANCIALS 22 PHYSICAL THERAPY 46 BOARD OF DIRECTORS & SENIOR STAFF 24 OCCUPATIONAL THERAPY 47 5 WAYS TO HELP A S YOU KNOW, I started the Sarah Jane Brain Foundation in 2007, naming it after my daughter who was violently shaken by her baby nurse, breaking four ribs, both collarbones, and causing a severe brain injury when she was only five days old. While Sarah Jane cannot walk on her own or speak words yet – some day she will!! As her daddy, my job is to change the world for her and millions of others suffering from the #1 cause of death and disability of American youth: brain injury. Over 765,000 American youth enter an Emergency Room each year with a new brain injury, over 80,000 are hospitalized and over 11,000 die – annually! Since we launched, SJBF has grown into one of the leading organizations in the world working to prevent, identify, treat, and eventually cure brain injury. It doesn’t matter whether the cause of the brain injury was a motor vehicle crash, a sports concussion, or a stroke, the system of care for the millions of American families is arbitrary from state to state, random from one school district to another, and a crap shoot from doctor to doctor. SJBF has made major progress towards systematic change by establishing the most esteemed International Advisory Board which created the National Pediatric Acquired Brain Injury Plan (PABI Plan). The PABI Plan ii ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE develops a seamless, standardized, evidencebased system of care that is universally accessible for the millions of American families who have a child with an acquired brain injury. Since the PABI Plan was developed in 2009, our main focus has been on funding and implementing the $2.9 billion, seven year initiative. In 2015, in consultation with the White House and Members of Congress, we revised the funding of the PABI Plan to involve the private sector along with the federal government and Patrick Donohue, Founder SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT iii A MESSAGE FROM OUR FOUNDER “ My job is to change the world for millions suffering from the #1 cause of death and disability of American youth: brain injury.” we will have some major announcements in 2016 towards implementing the PABI Plan. While SJBF has been working globally, there were no schools in New York City focused on students like Sarah Jane with brain injuries or brain-based disorders. So in 2013, SJBF launched a subsidiary, the International Academy of HOPE (iHOPE), with six students in my living room in Northern Manhattan. Since then, iHOPE has grown into a 10,000 square foot facility in Central Harlem, with 31 students, over 60 full-time professional staff of Physical Therapists, Occupational Therapists, SpeechLanguage Therapists, Vision Therapists, Special Educators, Nurses and paraprofessionals and an annual budget over $5 million. As you can see on the pages throughout this annual report, iHOPE is having a direct, immediate impact on the lives of our students, families, and staff! 2016 is going to be a very exciting year as we continue to work towards implementing the PABI Plan, expanding iHOPE in New York City and making plans to replicate the program in other cities across the country and around the world. We are also making plans to add a clinical component to iHOPE, The International Center of HOPE, as well as a research component, The International Institute of HOPE. iHOPE Center will be an outpatient iv clinic providing much-needed medical and therapeudic services to our students outside of the school setting as well as the brain injury community at large (i.e., dental, nutritional, evaluations, etc). iHOPE Institute will be the cornerstone of applied research from the work done at the school to breakthrough therapeudic and medical services done at iHOPE Center (i.e., stem cell research). Every 40 seconds another American family is entering an Emergency Room with their child suffering from a new brain injury. We have a lot of work to do! Please come by and visit iHOPE when you are visiting Central Harlem in New York City. I will be sure to introduce you to my daily inspiration, Sarah Jane, who continues to make progress every day!! Remember our philosophy is “Things work out best for those who make the best out of the way things work out!” ORGANIZATIONAL STRUCTURE Structure This graphic representation explains the relationship and structure of The Sarah Jane Brain Foundation and iHOPE. Sarah Jane Brain Foundation iHOPE Academy iHOPE Academy of NY Network of State-level iHOPE Academies iHOPE Academy of NYC Regional Academies within each state iHOPE Center iHOPE Center of NY Network of State-level iHOPE Centers iHOPE Institute iHOPE Institute of NY The PABI Plan Network of State-level iHOPE Institutes All the best, Patrick (Sarah Jane’s Dad) Patrick B. Donohue, JD, MBA ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 5 IHOPE’S MISSION, VISION & CORE VALUES iHOPE’S MISSION, VISION & CORE VALUES Orlando works with his therapists both in and out of the classroom. O Our mission is to transform the manner in which educational services are delivered to students with brain injuries. We strive to be the worldwide leader in offering evidence-based services to these students. UR METHODS FOR therapy and education are evidence-based, supported by current and significant research related to our student population. VISION iHOPE’s vision is to create the best schools in the world for those with brain injury. iHOPE will serve as the exemplar, pilot program and change agent for modeling best educational practices. iHOPE will be a core beneficiary of the research promulgated through the PABI Plan, and will spur the migration of promising research and treatment into evidence-based educational practices. It will also provide leadership beyond the boundaries of its doors through advanced tele-education and teletraining programming. CORE VALUES LEADERSHIP We are committed to creating systemic change in the way students with brain injury and other brain-based disorders are educated. Maria receives direct instruction. 6 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE FAMILY-FOCUSED We always place the interests of the individual with a brain injury and their families at the center of our decisions. EXCELLENCE We aspire to the highest standards of excellence by implementing best practices and drawing on evidence-based research in the delivery of technically competent care. PROFESSIONAL DEVELOPMENT We foster an environment of rigor and respect in order to attract and retain the very best licensed and credentialed practitioners with expertise in pediatric brain injury. DISSEMINATION We support active dissemination of applied research, translating advances into effective handson instructional methodologies and approaches. TRANSPARENCY We value transparency and support Open Source data and shared knowledge as a means of advancing the field. COMPASSION We focus on meaningful outcomes for our students, attained within a context of kindness, optimism and celebration for growth and skill mastery. HOPE We work with the “cure” always in mind. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 7 2015: A YEAR OF GROWTH ENROLLMENT This year the iHOPE NYC School opened its doors to 18 new families. 2015: A YEAR OF GROWTH 50 40 35 We look forward to holding our first student art show later this year. 30 Enrollment up by 25%. 20 15 10 5 0 STUDENT ENROLLMENT 3 new administrative staff. 1st Student Government elections. iHOPE AQUATIC PROGRAM This summer we teamed up with the NYC YMCA to get students out of the classroom and into the pool! Our new aquatic program allows therapists from each discipline to collaborate and work with students. The aquatic environment improves physical functioning, alleviates stress, encourages a wider range of movement with less resistance and boosts self-esteem. 25 10 new teaching and therapy staff. 18 new families enrolled. 2013201420152016 PROJECTION 8 Our multidisciplinary model affords educators and therapists an opportunity to collaborate, and provide students with the best curriculum of care. This year our team implemented 3 new programs, which promote the social, mental, and physical well-being of every student. Designed and implemented by the talented and inspiring Alba Somoza, the program is tailored to the unique needs of our student population. Alba, diagnosed with cerebral palsy at a young age, has a deep understanding of the challenges each iHOPE student faces. Her program has given each student the opportunity to learn that creative self-expression knows no limits. 45 In 2015 we raised over $110,000 to support our growing student population, the expansion of our professional staff and the addition of beneficial school programs. Over $110,000 raised. NEW PROGRAMS ART CLASSES Our new art program offers students an opportunity to exercise decision-making, strengthen their fine motor skills, benefit from sensory integration and express themselves creatively. Highlights 3 newly funded programs. At a total of 31 students, iHOPE has reached peak enrollment for our current 10,000 sq. ft. facility and we are in the beginning phases of expanding to a larger facility in order to accommodate our goal of 50 students. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Students benefit from both the social experience of being in the pool with friends and the physical advantages of the aquatic environment – and it’s fun! In the future, the aquatics program will be expanding with a therapy pool housed in a new iHOPE facility. Jake experiments with colors in art. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 9 2015: A YEAR OF GROWTH 2015: A YEAR OF GROWTH “ Aquatic physical therapy involves utilizing water to achieve physical therapy goals. Water can be excellent environment for patients who have difficulty with weight bearing activities Nia Mensah, Director due to physical disability.” Physical Therapy Department We recognize each student as an individual. HEARING EDUCATION SERVICES This year, we introduced Hearing Education Services (HES) to our program model. HES is committed to promoting challenging educational experiences for students who are deaf or hard of hearing. Our Licensed Teacher of the Deaf and Hard of Hearing in collaboration with Speech Language Pathologists provide sessions on site following each students Individualized Education Program (IEP). THANKS TO… The generous contributions of philanthropists Tom Moran, Stanley Chera and Nelson Peltz, we were able to implement our first Art Program and Aquatic Program this school year. We are grateful for these three amazing supporters and look forward to the success of these programs and the benefits they will offer each student as they continue to grow. Students are exposed to communication options including spoken English, American Sign Language and components of signed English. We also offer an Auditory/Oral program, which focuses on maximizing each child’s auditory, listening, language, speech, and literacy abilities. With the latest technology and the support of our experienced staff, our children have an opportunity to realize their full potential, develope listening skills, and eventually speaking skills. Jake’s completed painting. Therapists from all disciplines work with students in our iHOPE Aquatic program. 10 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 11 2015: A YEAR OF GROWTH 2015: A YEAR OF GROWTH “ Teamwork is an essential component of our educational and therapeutic programs. Every teacher consults with every therapist about each individual student to adapt regimes based on each student’s needs, abilities and goals.” Vincent Massaro, President Our diverse team brings experience from all over the world to our multidisciplinary program. 12 ASSOCIATE PROGRAM DIRECTOR Linda Sanchez graduated from City College with a M.S. Ed. in Bilingual and Special Education as well as a M.S. in School Leadership from Fordham University. In addition, she has over 16 years of experience as a certified teacher and school building leader with the New York City Department of Education. SPECIAL EDUCATION COORDINATOR Tiffany Semms graduated with an M.S. in Special Education and General Education from Pace University. Since then she has taught Special Education to students ages 4-21 in a variety of classroom settings. In 2015 she started iHOPE’s first 8:1:1 class. SPEECH LANGUAGE PATHOLOGIST Jacqueline Rampersad, M.S., CCC-SLP, TSSLD obtained her M.S. degree from Columbia. Her experience, dedication and enthusiasm have made her a valuable addition to the speech department and the entire school. Recently Jacqueline has been working with our teenage population to develop cottage industries, moving students towards independence through entrepreneurism. PARAPROFESSIONAL Renate Grant joined our paraprofessional team this year. Committed to offering the best standards of care, she joined many of our paraprofessional staff by completing her certification as a Medical Assistant and Level 1 Teacher’s Assistant. Renate is currently pursuing her Level 2 certification to further her education. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE NEW STAFF “ At iHOPE, we provide each student with the individualized care and attention he or she needs. Every student is continuously supported by a multidisciplinary team of 7-10 staff members who provide the education, therapy and personal support necessary to ensure students continue to progress. The staff is wonderful— kind, loving.... Every time I stop by I hear them talking to the children with lots of Judith, love and care.” Parent In 2015, our growing student population required us to bring on additional staff, doubling the size of each department. Additional Therapists, Educators, Administrators and Paraprofessionals mean bigger opportunities, more ideas and a greater potential for iHOPE to advance evidence-based services for the brain injury population. Our experienced, credentialed and licensed teachers and therapists work collaboratively with brain injury specialists across numerous disciplines at the city’s renowned medical centers, rehabilitation centers and academic institutions on a variety of research projects specifically designed to enhance current practice and discover new methods to support learning and rehabilitation. Each student is supported by a caring paraprofessional. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 13 SPECIAL EVENTS SPECIAL EVENTS 90 number of medals awarded Students compete with peers just like them. iHOPE Summer Olympics “ From the get go, these kids did not lack for encouragement, and the support continued through events like curling, an obstacle course, and hope hoops.” This year marked the introduction of our 1st Annual iHOPE Summer Olympics, specifically designed for students with brain injuries and brain based disorders. Toni Rossi, The Christophers This major event gives iHOPE students the rare opportunity to participate in a competition amongst peers who are all non-verbal and non-ambulatory. After training, practicing and working towards their physical goals all year long, students were able to showcase the skills they’ve developed in their daily therapies for parents and supporters in the crowd. With months of planning and preparation by the iHOPE Physical Therapy Department, the 12 main events were tailored to the ability of student groups and included volleyball, cycling and floor routines. THANKS TO… The generous help of Rifton Equipment every student had the opportunity to compete in the Olympics using a Rifton Pacer. Students usually unable to participate were able to enter the competition and continue to use this equipment. Grace competing in the 50 Meter Dash. Yurisa participating in the Scoot the Boot event. 14 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 15 SPECIAL EVENTS SPECIAL EVENTS 6 designer collections donated Hair and makeup was done by iHOPE therapists. Annual Fashion Show Every year during New York Fashion Week, iHOPE students take to the runway in one of the best fashion events of the season! Parents, siblings, staff and supporters all joined in the evening festivities. Hosted in Times Square every September, the fashion show invites students and families to dress up and enjoy an evening in NYC. THANKS TO… The generous contributions of Skadden, Arps, Slate, Meagher & Flom and designers Mara Hoffman, Gabriela Cadena, Cristina Ruales, Kapital-K, Kahn Lucas, Bench, ABL Denim and Carrie Hammer, all of our students got to enjoy a magical evening. This year participating fashion designers donated clothing for student models and our event auction. Joined by over 150 supporters, the event is a special opportunity for students to show the crowd how they can walk the runway! This year, 7 students were able to walk in front of the crowd with minimal assistance. We can’t wait to see more students walking in the 2016 Fashion Show! “ One of the most inspiring runways at New York Fashion Week.” Carrie Hammer, Designer Many students walked for the first time in front of a crowd. 16 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 17 SPECIAL EVENTS SPECIAL EVENTS 900 number of pounds of of food collected and delivered by students Students enjoyed a delicious birthday brunch. Holiday Food Drive American Girl Birthday Party The annual Food Drive was the first in a series of community activities to be organized by the iHOPE Student Government. We celebrated Sarah Jane’s 10th birthday with our annual fundraising event at the American Girl Store in Rockefeller Center. Over 100 people attended to support. Led by President Nika and Vice President Amelia, the iHOPE students and staff collected over 1000 cans for our neighbors in Harlem. Students each hand delivered bags of canned goods to the Community Kitchen & Food Pantry of West Harlem. We were all more than delighted to have the entire school participate in this event. We are so proud of our students for seeing the value in giving back to the community. Please be on the lookout for the iHOPE Clothing Drive and Toy Drives to follow in 2016. Students hand delivered over 1000 non-perishable items to the local food pantry. “ Nika, Amelia and I were discussing the history of Thanksgiving and the importance of contributing to our communities. Both girls wanted to give back...” 100 number of friends who attended THANKS TO… The American Girl Place New York and their amazing team for making this experience extraordinary for our students and families. Now each iHOPE girl has an American Girl Doll to call her friend! Jacqueline Rampersad, Speech Language Pathologist “The Voice of Barbie” Kristy Kay and Sarah Jane. 18 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 19 SPECIAL EVENTS 4 SPECIAL EVENTS number of new annual events initiated this year Saskia an d Eddie ta ke a ride at the Bro nx Zoo. Y The FDN O lp us PE to he visited iH olidays. the h celebrate 2016 EVENT CALENDAR ided tour on a gu E students iHOP . of MOMA ving Potluck. ional Thanksgi All Members of the Ne w York City Balle rnat ed to the Inte staff contribut 2015 Halloween Parade and Scavenger t conducted a mo vement worksho 20 p. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Hunt. JAN iHOPE Community Food Drive FEB Have-a-Heart Valentine Fundraiser MAR Staff Appreciation Month Brain Injury Awareness Month APR iHOPE Student Art Show Child Abuse Awareness Month MAY Spring Festival JUN American Girl Birthday Fundraiser JUL Chelsea Piers Bowling Event iHOPE Prom AUG 2016 Summer Olympics SEP Annual Student Fashion Show OCT Halloween Parade and Scavenger Hunt NOV Thanksgiving International Potluck DEC iHOPE Holiday Celebration SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 21 DEPARTMENT REPORTS DEPARTMENT REPORTS 6 number of students who took their first steps this year! Nicole took 3rd place in the gait trainer race at the iHOPE Olympics. Physical Therapy Our PT Department specializes in individualized treatment programs that improve function and assist with equipment/orthotic management in order to prevent contractures and physical deformity. We provide outcome-based implementation to give ongoing feedback to parents and health providers regarding our children’s progress. Our services address neuromuscular/ orthopedic challenges and related manifestations resulting from an underlying brain injury and brain-based disorder. We provide a safe and interactive rehabilitation experience in order to address ongoing challenges our children face in the home and community. Our goal is to ultimately provide the resources to improve socialization, functional integration and quality of life of the children we serve. “ These students motivate me every day. Every time I see a student pushing themselves and progressing, I know that they are in the right place.” Dr. Nia Mensah, Director Physical Therapy Department OUR TEAM Physical Therapy is a major component of each student’s success and our dedicated, licensed team of PTs have extensive experience working with the pediatric population. Their approach to intensive rehabilitation has resulted in many of our students walking with minimal assistance during their first year at iHOPE. Sarah Jane walks for the first time in her new gait trainer. 22 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 23 DEPARTMENT REPORTS DEPARTMENT REPORTS 100 number of hours of OT services provided weekly. Yurisa practices activities of daily living (ADLs) when brushing her hair. Occupational Therapy “ As an occupational therapist it is a dream working at iHOPE. Each day we use holistic treatment techniques to help our students achieve goals such as using a spoon to feed themseleves for the first time, or playing with friends. It is so rewarding to be part of our students progress.” Our Occupational Therapy Department seeks to enhance student functioning by providing hands-on intervention, remediation, and modification of the environment so that each student can function as independently as possible in their school environment and daily lives. Occupational therapists address the physical, cognitive, emotional, and sensory-perceptual aspects of performance to create a holistic view of the individual they are working with. At iHOPE, the goal of Occupational Therapy is to enhance participation and improve quality of life through a neuro-occupation based model. We look at the whole living experience from the eyes of the student, their families, their friends and their community. We enhance meaning in participation while modifying, compensating or training the student and those around them. Using these methods and procedures, a student learns to function as independently as possible in their environment. 24 OUR TEAM Offering a wide range of experience and interests in different areas of the field, our licensed Occupational Therapists have developed one of the most creative and adaptive departments at iHOPE. Utilizing sensory integration to engage students in activities, our OTs have had great success motivating students towards independence. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Dr. Laura Romanelli, Director Occupational Therapy Department Students prepare baked goods and learn money Lorum ipsum Otame delles dolupta volo ex. management skills during OT student-run bake sales. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 25 DEPARTMENT REPORTS 4 DEPARTMENT REPORTS “ number of students able to taste food again. If you give up on the kids, they can sense it. You have to come in here every day and be their hope.” Zimmad Imam, Speech Language Pathologist During feeding therapy Noah learns the skills necessary to eat different food consistencies. Speech-Language Therapy The iHOPE Speech Department focuses on oral motor/feeding therapy, speech and language therapy and teaching students to use Alternative and Augmentative Communication (AAC). Our speech therapy program involves oral communication with the incorporation of PROMPT (Prompts for Restructuring Oral Muscular Phonetic Targets) as well as AAC devices. The majority of our students present with mild to severe speech or language problems and rely on AAC to supplement existing speech or replace speech that is not functional. Nevertheless, we always encourage our students to continue to produce sounds. We strongly believe that AAC users should continue using speech, using AAC aids and devices to enhance their communication. OUR TEAM With personalities as large as their department, our team of licensed Speech and Language Pathologists has done an amazing job giving each child at iHOPE a voice by creating a one-of-a-kind, individualized program for every student based on their interests. Grace practices using a communication device in Speech Therapy. 26 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 27 DEPARTMENT REPORTS DEPARTMENT REPORTS “ 40 It is essential for visual modifications to be incorporated into other therapies and educational settings. We meet with other staff members regularly to discuss these elements of each student’s program.” number of hours of Vision services delivered weekly. Lauren Schneider, Director Vision Education Services Student Government President Nika Vision Education The Vision Education program at iHOPE provides students with individualized sessions that focus on developing each student’s visual processing abilities. Visual modifications and interventions are implemented throughout the student’s day in order to continuously develop the visual pathways and processing systems in the brain. The program is highly individualized, based on assessments which guide the modifications and interventions that are utilized for each student. The vision department provides ongoing training for all staff and paraprofessionals regarding the nature of Cortical Visual Impairment, the assessment process and the process involved in implementing modifications and interventions. The Vision Program actively collaborates with many organizations in the New York area, including SUNY College of Optometry and the New York Deaf-Blind Collaborative. OUR TEAM Our certified Teachers of the Visually Impaired work hard every day to have a big impact on the way each child’s visual needs are addressed and incorporated into their academics, therapies and home life. Sarah Jane selects a color for her art project. 28 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 29 DEPARTMENT REPORTS 6 DEPARTMENT REPORTS ONLY number of students walking with a ladder. Conductive Education program in NY State. Kristina enjoys doing crafts in CE. Conductive Education iHOPE provides the only Conductive Education program in New York State. Our Conductor-Teachers work with students in groups and individually, providing them with the ideal conditions to achieve their goals. Conductive Education (CE) was founded in the 1940s by Hungarian neurologist, Professor Andras Peto. This psycho-educational approach focuses primarily on the integration of the brain’s ability to change and learn (neuroplasticity), the child’s personality and lifestyle, as well as physiological and medical characteristics of the child. CE assumes motor disorders are learning disabilities and approaches physical disabilities from an educational rather than a medical or paramedical perspective. The approach focuses on reducing the physical effects of the disability while encouraging motivation and active physical participation, to become independent and increase self-esteem. The desired outcome is to internalize the intended movement and achieve maximal independence called orthofunction. Conductive education improves the quality of life as well as the psychological wellbeing of the child and family. 30 OUR TEAM We value the experiences and insight our Conductor-Teachers bring to the iHOPE program. Each with a degree from the Andras Peto Institute of Conductive Education and Conductor Training College in Budapest, Hungary, the iHOPE CE program offers a unique opportunity for children to achieve their goals. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Angelina walks with the assistance of a ladder in CE. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 31 DEPARTMENT REPORTS 2 DEPARTMENT REPORTS “ As teachers come to truly understand their students’ motivation and strengths, their focus shifts from viewing a child’s limitations to seeing Linda Sanchez, the child’s possibilities.” new classrooms started this year. Associate Program Director Marco working with his 1:1 paraprofessional in class. Academics The academic curriculum at iHOPE is designed to promote growth and independence in students with non-verbal learning challenges and multiple disabilities. Using research-based strategies specifically for students with Traumatic Brain Injuries (TBI) and Acquired Brain Injuries (ABI), our certified Special Education teachers oversee each student’s progress. iHOPE offers both 6:1:1 and 8:1:1 class settings to accommodate a range of needs. While all students receive multi-sensory instruction tailored to their specific cognitive and communication needs, those in the 8:1:1 class receive additional academic interventions due to their higher cognitive abilities or greater physical independence. Overall, teaching methods are integrated with therapeutic techniques allowing students to generalize skills across different contexts and settings. Students use their strengths to engage in activities designed to increase their communication, social, and life skills. 32 OUR TEAM Our dedicated and motivated academic team is passionate about engaging with students as they develop math, literacy and communication skills. Teachers meet regularly to share strategies to improve each students attention, memory, executive functioning, and behavior. They also collaborate with clinicians to implement the most effective strategies for each student during academic sessions ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE During story time Gabriel is able to answer “Who?” and “What?” questions. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 33 STUDENT PROFILES STUDENT PROFILES 16 number of new words learned this school year Omari, Age 5, 6:1:1 Class Kristina Omari Vibrant and outgoing, Kristina has a natural curiosity and an amazing sense of humor. Just months into the program, she isn’t just showing the world what she can do, but who she is. Go Kristina! When Omari first began attending iHOPE he was unable to extend his legs or maintain his head upright, only communicating with smiles to confirm or reject questions. Quickly progressing in the iHOPE program, you can often hear Omari’s cheering section filling the halls as he takes steps and vocalizes his emotions. For the first time Omari is able to: When Kristina joined iHOPE, she rarely used her voice, could not walk or stand with stability, and wasn’t performing basic activities of daily living. Thanks to the intensive therapy offered at iHOPE, Kristina has significantly strengthened her core, upper extremities and communication skills. For the first time Kristina is able to: • Take over 100 steps in his gait-trainer. • Associate meanings with words. • Use a two hand switch to answer questions accurately. • Vocalize 16 new words including “I’m good” and “I’m hungry.” • Maintain his head upright for up to 7 seconds before resting. • Show interest in book illustrations during Vision • Perform ADLs, such as hang up her coat, wipe her face, brush her hair and use the potty. • Velcro her own orthotics. • Stand for a few seconds on her own. • Walk with minimal assistance. • Navigate herself in a power wheelchair. • Use her communication device accurately. • Communicate with multi-symbol combinations. • Use simple verbal speech. Kristina, Age 6, 8:1:1 Class 34 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Omari is determined to succeed in any task that is presented to him. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 35 STUDENT PROFILES STUDENT PROFILES 7 number of laps Sam is able to walk. All our students are superstars; too bad we don’t have room to show them all! Samandar, Age 9, 6:1:1 Class Samandar Samandar aka “Sammy” is often described as playful, social and a hard worker – sometimes even a little mischievous! Meeting him now you would never know that just months ago he was unable to take a step or walk, wasn’t using verbal language and was unable to use his arms purposefully. Working closely with our dedicated team has motivated Sammy to persevere and make some remarkable progress. For the first time Sam is able to: • Say “Mama” and “Daddy.” • Approximate 4-5 words vocally. • Recognize 8-10 symbols. • Walk 7 laps using a walker. • Pedal 26 times alone. • Walk in his gait-trainer with supervision. • Use his left hand to access multi-panel switches accurately. Sammy in his gait trainer—a familiar sight at iHOPE. 36 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Lucy and her OT enjoying each others company. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 37 THE PABI PLAN NATIONAL PEDIATRIC AQUIRED BRAIN INJURY (PABI) PLAN 52 number of lead centers in the PABI network Thank you to all the families who supported iHOPE this year. What is the PABI Plan? The PABI plan was created in 2009 as the first initiative of the Sarah Jane Brain Foundation. It is a seamless, standardized, evidence-based system of care that is universally accessible to the millions of American families who have a child or young adult with a brain injury, regardless of where they live in the United States. CATEGORIES OF CARE Each category will establish a nationwide standard for collecting translational data, a standard set of training, education and dissemination of information, and the ability to develop and monitor scientific investigative research. 1. Prevention 2. Acute Phase 3. Reintegration & Long-Term Care 4. Adult Transition 5. “Mild” TBI Identification, Assessment & Treatment 6. Rural Tele-health 7. The Virtual SJBF Center PABI REGIONS To encourage increased regional collaboration, the PABI Plan divides the country into seven 38 regions with seven or eight states/territories for each region. Within each region there is a National Lead Center which serves as that regions coordinating organization. Northeast Region Mid-Atlantic Region Southeast Region Mid-Central Region South-Central Region Rocky Mountain Region Pacific Region Darker shade indicates lead regional center. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE STATE LEAD CENTERS In order to carry out this integrated seamless system of care, a network of 52 Sarah Jane Brain Foundation State Lead Centers of Excellence have been created. Each State Lead Center will work closely with existing partners in their state and region to provide complete national coverage and address their unique population health needs. Alabama University of Alabama at Birmingham Alaska Alaska Brain Injury Network Arizona Barrow Neurological Institute Arkansas University of Arkansas for Medical Sciences California UCLA Brain Research Institute/ Mattel Children’s Hospital Colorado University of Colorado School of Medicine/ The Children’s Hospital Connecticut Yale School of Medicine DC Children’s National Medical Center Delaware Nemours, Alfred I. du Pont Hospital for Children Florida University of Miami Miller School of Medicine Georgia Children’s Healthcare of Atlanta Hawaii University of Hawaii at Manoa Idaho Idaho State University Illinois Southern Illinois University School of Medicine Indiana Indiana University School of Medicine Iowa University of Iowa Carver College of Medicine Kansas State Department of Education Kentucky University of Kentucky College of Medicine Louisiana Louisiana Health Care Quality Forum Maine University of Maine Maryland Kennedy Krieger Institute Massachusetts Harvard University Medical School/ Boston Children’s Hospital Michigan Michigan Public Health Institute, Brain Injury Association of Michigan Minnesota Mayo Clinic Mississippi University of Mississippi Medical Center Missouri Washington University School of Medicine in St. Louis Montana Montana State University Billings Nebraska Madonna Rehabilitation Hospital Nevada Sunrise Children’s Hospital New Hampshire Dartmouth Medical School/ Dartmouth-Hitchcock Psychiatric Associates New Jersey Brain Injury Alliance of New Jersey New Mexico University of New Mexico Children’s Hospital New York Columbia University Medical Center/ Morgan Stanley Children’s Hospital North Carolina University of North Carolina School of Medicine, Child Development Institute North Dakota North Dakota State University Ohio Cincinnati Children’s Hospital Medical Center Oklahoma Oklahoma State University Center for Health Sciences Oregon Oregon Center for Applied Sciences/ Western Oregon University Pennsylvania Children’s Hospital of Pittsburgh of UPMC Puerto Rico University of Puerto Rico School of Medicine Rhode Island Hasbro Children’s Hospital South Carolina Medical University of South Carolina South Dakota Sanford School of Medicine of The University of South Dakota Tennessee University of Tennessee Health Science Center Texas UT-Dallas Center for BrainHealth Utah University of Utah Vermont University of Vermont College of Medicine Virginia University of Virginia Washington University of Washington School of Medicine/ Harborview Injury Prevention and Research Center West Virginia Brain Injury Alliance of West Virginia Wisconsin Marshfield Clinic Wyoming Brain Injury Alliance of Wyoming SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 39 CONTRIBUTORS CONTRIBUTORS Ron Savage and Patrick Kennedy The Urstadt Conservation Foundation Tornusciliolo Plumbing & Heating Inc. Truly Texan Market Turner Construction Violife LLC INDIVIDUALS Thank You We are grateful for the generous financial support of many organizations and individuals. Thanks to this support The Sarah Jane Brain Foundation and The International Academy of Hope are continuing to make strides for the brain injury population. Your contributions have enhanced our programs, improved operations and changed the lives of our students. ORGANIZATIONS ABL Denim Allstate Insurance Company Angels Treasures & More Angles on The Bay Arthur J. Finkelstein & Associates, Inc. Bank of America Banyan Biomakers, Inc. Bench Beverkill Foundation, Inc. Bialkin Family Foundation Blue Streak Wine and Spirits Brown McMahon & Weinraub LLC Buchanan and Associates Chaffin Luhana Foundation Community Playthings Cord Blood Registry David Schwartz Foundation Inc. Deutsche Bank Excelsior Graphics Inc. Fire Department of New York Goldman Sachs Greater New York Hospital Foundation Greater Williamsburg Community Trust Green Depot LLC High 5 Games HomeAway.com 40 IBE Trade Corporation International Union Of Operating Engineers Kapital-K Khan Lucas Kurzman Eisenberg Corbin & Lever LLP Mercury Public Affairs LLC Miami Childrens Hospital Foundation Mizuho Bank, Ltd. Mutual of America Foundation Nawrocki Smith LLP New Jersey Laborers’ Health and Safety Fund New York Giants New York Jets New York Mets New York Police Department New York Red Bulls Newman Family Foundation Nicholas & Lence Communications Northstar Mechanical Inc NYS Athletic Trainers Association Ocean Utility Contracting, Inc. Park Strategies, LLC Paul E. Singer Foundaton Pinsky Studios Pitta & Dreier LLP Pitta, Bishop, Del Giorno & Dreier, LLP Polaris Management Partner Raphaelson & Levine, P.C. Reich Communications Rifton Equipment Rockmore Contracting Corporation Russo’s on the Bay, Inc. Ryan Chelsea Clinton Community Health Center Sam Ash Music Corporation Skadden, Arps, Slate, Meagher & Flom The American Girl Store The Bartholomew J. Lawson Foundation For Children The Bronx Lebanon Hospital Center The Charles Evans Foundation The Christophers The Doughnut Plant The Elena Melius Foundation The Leonard Friedland Charitable Foundation Inc. The Litwin Foundation Inc. The Morton Foundation The Pechter Foundation ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE John Abramo Kenneth Abramowitz Elizabeth and Dore Abrams Robert Abreau Donald Adams Randi Adelstein Emma Adessa Janet Adinaro Sheldon Adler Kenji B. Akimoto Judy Albain Gerald Amantea Alfonse Amore Nana and Josef Ansorge Joe Araujo Lisa Arden Thomas Arena Douglas Arnest Alexander Arnold Philip Arnold Clifford Asness, Ph.D. Edward Atwood Bruce Augustensen Michael Avella Gunes Aygok Jeannine Ayres Hilda Bacon Laura Balcer Levi Balkany Jonathan A. Ballan, Esq. Bianca Barinas-Bradford Kelly Barr Dorothy Barrie Thomas Basilo Jorge Batalla Cara Baugh, Esq. Lauren Baum Brian Becker Julie Bedard MaryJo Bellew Robert Bellini Lisa Benna Pearl Berman Ronald Berman Holly Bernene Debra Berstein Kenneth Bialkin, Esq. Joy Bieder Martin Bienstock Rick Birdoff Karen Birnholz Leigh & David Bishop-Taub Ann Bitetti Bruce Blakeman, Esq. Stéphanie Blanc Daniel Bloomstein Stephanie Boisture Jay Bond Joseph Bosch Kelly Bosma Mary Kay and John Bottorff Bonnie Bowers Mary Boyle, Ph.D. Roger Braden David Brooks Cameron Brown Keri D. Brown-Womack Dusty Brugh Mary and Chris Bucci Chantal and Bob Buchanan Jane Buchanan Natasha Buchanan Robert Buchanan Ann-Marie Buckley Henry Buhl III Mark Buller Tara Bullock Joseph Bulos Beverly Byron Gabriela Cadena Marvin Cadornigara Frank Cali Abigail Cameron Timothy Campbell Liz Cantalamessa Greg Cantwell Barry Capp, Esq. Steven Cappaert Ron Carmody Christopher Carr Genevra Casais Stewart Casper, Esq. Robert Catell Mehtap Cevher-Conti Alec Chang Susan Chavers Stanley Chera Maria Chiang Enzo Chiofalo Soniya Chohan Christopher Clancy Layla Clauss Daniel Clemons Elizabeth Clyne, Esq. Benjamin Cochran Sharon Coey Linda and Rolando Cohen Robert Colascione Ron Collins Barbara Comerford Kevin Conaty James Connolly George Conway III Eileen Cornacchia Thomas Crane Glenn Creamer “ Marshall Criser III Patrick Crowe Alan Damashek Jonathan Damashek, Esq. Cynthia Darrison Laura Davidian Cristine Davis Flobelle Davis Peter Davoren Deborah Dawkins Lawrence Degeorge Ronald Dela Cruz Dianne Dellureficio Cheryl and Richard Delrossi Louis Denkovic Annegret Dettwiler Bernedette Dichoso George Elliott Ruth Emblin Craig Engle, Esq. Andrew Entwistle, Esq. Richard Erde Nancy Escobar Elizabeth Estroff Thomas Evons Anne Fahey Socorro Fargas David Farrell Mary Ellen Farrell James Featherstonhaugh, Esq. R. Keegan Federal, Esq. Catherine Fenoglio Colleen Ferderigos Christy Ferer The purpose of human life is to serve and to show compassion and the will to Albert Schweitzer help others.” Jennipher Dickens James Dillon Michael Dior Carolyn Dixon Diane Dodich James Doherty Shannon Donnelly Adelaide Donohue Gina Donohue Matthew Donohue, Esq. Charles Dorkey III, Esq. Alison Douglass Jeff Dybass Christopher Echols Guy Edwards Eileen Elias Patrice Elliot Bruce Elliott Suzanne Ferreira Zachary Ferriere Katherine Finch Toni Finger Shea Fink Steven Fink John Finn Sean Finn Alexander Fisher James Foley, Esq. Thomas Foley Jr., Esq. Jacqueline Frey David Friedman Jonathan Friedman Michael Fruhling Henson Fuerst Catherine & Timothy Furey Christina Gaetano Members of FDNY Local 2507 SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 41 CONTRIBUTORS Jennifer Gagner Martina Gallagher Mark Gallogly Larry Gaslow Martin Geller Steve Gershowitz Jason Gerwitz Wayne Gibson Marie Gibson, Esq. Gerard Gioia, Ph.D. Cynthia and Matthew Glace Edward Glazer Larry D. Goad Peter Gold Ellen Goldberg Deb Goldman Bruce Goldner Jay Goldstein Anabela Gonzales Diane Gooch Michael Gooch Sandra Gooder Lisa Goodwin Kim Gorgens David Gottesman Robert Grand, Esq. Sharon Grandinette Phyllis Grann Annie Green Brian Greenwald “ Alone we can do so little; together we can do so much.” Helen Keller Debra Griffin Therese Grimm Stanley Grogg, D.O. Daisy Grooms Tony Grover Jeff Gural Steven Gursten Orly Hackmon Patricia and Jack Hadelman Nathan Hamm Carrie Hammer Jade Hargrave Casey Hauch Joan Hellmer Scott Henriksen Thomas Henson, Esq. Karen Herrmann The Honorable Robert Hettleman Jennifer and Steve Hodgson Mara Hoffman Judith Hoffman, M.D. Laura and Steven Holt Scott Horak Gillian Hotz, Ph.D. James Hutchison Steven Igou Woody Igou, Esq. 42 CONTRIBUTORS Basil Imburgia June Inderwies Jasmin Iraj Mark Jaccom Rob Jackson Robert Jacobson Mark Jaffe, Esq. Kerri Jaffee Lubna Jafri Jasmina Jahovic Ambassador Eric Javits Erik Joerrs Mark Johnny Melissa Johnsen Rachael Johnson Jeffrey Johnston Robert Juceam Jeanette Juhasz Eric Juline Jonathan K. Kadish Paula Kalb Sarah Kan Michael Kaplen, Esq. Joshua Kaplowitz Marilyn Kappenberg Michael Karmin Michael Karsch George Kaufman Laura Kaufmann-Belkhayat Kamalpreet Kaur Christopher Keane, Esq. Shari Kessel-Schneider Sarah Killough-Dhar Daria Kim Maura King Matthew Kipp Kasey Kirschner Bryna Kirzner Kelly Kitano Yvonne Kizner Patricia Knisely Caleb Koeppel Hajime Komamiya Jeff Korek, Esq. Maria Korina-Jardiel Harry Kraft Eileen Kramer Orin Kramer Sanford Krieger Juliet Krupa Cynthia Lake Florence Lassiter Susan Latham Kristian Latorre Michael Laub Dr. Gillian Hotz and Dr. Sanjay Gupta Fire Department of New York Catherine Lavin Karen Lawson, Ph.D. The Honorable Rick Lazio Michelle LeBlanc Diane Lenz Patricia Lepkowski Mark Lerner Mike Lesser Christopher Leupold Jeffrey Levine Michael Levine Jason Lin Harley Lippman Leonard Litwin John Lizardos David Longshore Alex Lorusso Dolly Luy Rosemary Lydon Courtney Lynch Kevin Lynch April MacGrotty David Mack Earle Mack Louis Maggiotto Karen Maher Mary and Jim Mahon Sara and Kieran Mahoney Candace and Pat Malloy Adam Malone, Esq. Thomas Malone, Esq. Timothy Malone, Esq. John Maltese Matthew Mamak David Mammina Dina Mangiafridda Joe Mangino John Mannix John Mara Anne Martin-Cushman Linda Maslin Mary and Vince Massaro Randy Mastro, Esq. Rita Mastroberardino Lauren Mastroberardino Patrick McClave Conor McCoy Terri McDaid Steven McDaniel Patrick McEvoy Pamela McFarland Sara McKasty Marty McLaughlin Audrey McNichols Mercedes Melendez Lisa Melville David Mendels Lyn Merchant Linda Michaels-Gruber Henry Miller Clinton Milsap Eleanor and Jules Minsky Thomas Mirabile Doug Mitchell Nahoko and Kentaro Mizuta Marc Moller Christopher Molloy Marilyn Molloy Charles Monnett III, Esq. Lisa Montafia Annie Montoya James Moore John Moore, Jr. Carole and John Moran Thomas J. Moran Debbie Morris Kieran Morris Carole and Victor Morris Karla and Jeff Mortara Georgette Mosbacher Mark Mueller, Esq. Cara and Pete Mulroy Deborah Munies Susan Murphy Craig Murray Sean Murray Reynaldo Nadal Raina Nasr Wallace Neel Alan Nelson Brittany Nelson Isabella Nelson Michael Nelson, Esq. Dee and Christopher Neske ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Dan Newcombe Mary and Fred Newman Mariam & Howard Newman Kathryn Nicklas Michelle Niemann Jean and William Noel Rebecca Nowlen Dennis O’Neill Gene O’Reilly William O’Reilly James Ortenzio David Osnos Renee Pacini Michael Paff Angela Pagano Charles Palombini Sal Panico Peter Pappas, Jr. Peter Pappas, Sr. Steven Paradise Janis Paris Jessica Parise Brent Parker William Parker Stephanie Paulos Elliot Pecker Nelson Peltz Joaquin Pereira Isabel Perez Anthony Perfetti John Perito Lee Perlman Jeanne Petitpas Margaret Petrovich Katherine Picco Thomas Pierce Marcia and Jerry Pinsky Cathy and Jonathan Pinsky Joel Pinsky Tracy Pirk Joseph Piro Antoinette Pitta Vincent Pitta, Esq. Lisa Plaskow Richard Pohl Lee Pokoik Mary and David Pol Melissa Polistena Thomas Poole Katherine Powell Ericka Prelari Howard Presant Kimberly Price Melissa Prober Tetiana Pronchick Juan Pujadas Justyna Pyka Barbara Quackenbos Sheldon Raab, Esq. Shareef Rabaa, Esq. John Ragheb Kristjan Ragnarsson, M.D. Juan Pablo Ramirez Ashley Ranaldi Charles Rappaport, Esq. Brian Rathjen Steven Ravid Josie Rayo Dworet & Felice Recupero Daniel Regan Giselle Reid Tanya Reid Freddie Reiss Christine Repasky Susan Reuter Kelly Richert Jeremy Richman Patrick Rigby Laurie Rippon Leandro Rizzuto Julian Robertson James Robinson, III J. Hugh Roff, Jr. Paul Rogina Amanda Roman James Romanelli Nicholas Romanelli Phillis Romanelli Roxann Romano Angelo Rosati Vittoria Rosone Bradford Ross, Ph.D. Steven Roth Nicholas Rowley, Esq. “ Edwin Simpser, M.D. Baldev and Avtar Singh Joseph Sitt Harriet Sloane Dian Smith Richard Smith, Esq. Stephen Smith, Esq. Timothy Smith, Esq. James Sommer Lindsay Space Jerome I. Speyer Andrew Spies Jr. Amy Stab Donald Steelman George Steinberg Howard Steinberg, Esq. Francis Stevens Vincent Stina Lisa and Adam Stoll Albert Sueiras Mary Sullivan Rachel Sumner It is not how much we give, but how much love we put Mother Teresa into giving.” Cristina Ruales William Rudin Laura Rumelhart Brian Rusk Douglas Rutnik, Esq. Christopher Ryback Bradley Sabel Michael Salzhauer Marc Samit Gillian Sandler Judith Santiago Kathleen Sanvidge Barbara & Robert Sartorius Ron Savage, Ed.D. Tony Sayegh, Jr. Ellen and Jack Scanlon John Scanlon Jack Scarda Randall Scarlett, Esq. Sylvia Schindler Sari and Matthew Schlussel -Leeds Richard Schmeelk Kathy Schwartz Richard Schwartz Roseann M. Searles Deborah Segaloff Jean Seigel Marie Serina Akshay Shah Neelam Shahani Steven Shapiro, Esq. Rafael Sharon John Shea Andrew Siben, Esq. Frank Sica Liana Siebel Maria Siebel Marti Silber Richard Silverman William Simon Koichi Takashi Margaretta Taylor Marvin Tenzer Joseph Tepas III, M.D. Fred Thaler Eric Thomas Shannon Thomason Patrick Tierney Candace Tietsworth Nettie Toomer Frank Toral, Esq. Steven Torres Ali Toufanpur Ben Tschann Pauline Turley Janet Tyler, Ph.D. Bruna Petrillo and Carrie Hammer Jennifer Udas Charles Urstadt Manasavalli Vadali Noel Vaz Claudia Velasquez Ben Verderame Patricia Vlahakis Chaim Wachsberger, Esq. Jack Waters John Waters Victoria Weiman David Weinraub, Esq. Cathy Weintraub Annie Wells Karen Westervelt Jeffrey Wiesenfeld Renee Williams Jordan Wilson Lance Wilson Kristin and Mike Winchock Mek Wok Beth Anne Woods Leila Woodsmith, Esq. Kuang-Lu Yen Clayton Yeutter Kimberly Young Melanie Young Ambassador Joe Zappala Christopher Zec Barbara Zweig Thank you to everyone who was a voice for hope this year. SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 43 FINANCIALS FINANCIALS Thank you to our amazing team. The Sarah Jane Brain Foundation & The International Academy of Hope Combined Financial Overview* 2014 2015 REVENUE 2016 projection Contributions $128,468 $103,625 $200,000 Program Revenue $2,884,829 $4,905,531 $7,638,380 TOTAL REVENUE $3,013,297 $5,009,156 $7,838,380 REVENUE Program General Administation & Fundraising $9,000,000 $8,000,000 $7,000,000 EXPENSES $2,253,246 $3,640,609 $6,100,380 General Admin & Fundraising $411,487 $614,651 $919,620 TOTAL EXPENSES $2,664,733 $4,255,260 $7,020,000 Change in Net Assets from Operations $348,564 $753,896 $818,380 Equipment & Research Initiatives $150,000 Investment for Long-term Reserves $125,000 $348,564 $753,896 $543,380 FY 2016 projections anticipate growth to 60 students and include the additions to academic, therapeutic and student support staffs required to deliver the high quality and level of support needed to deliver excellent programs and services to our students and their families. The 2016 plan also includes funding for the purchase and replacement of equipment and monies to initiate critical research programs that will enhance our educational and therapeutic programs. * Source: Audited Consolidated Financial Statements for 2014 and 2015. 44 14% $6,000,000 Program TOTAL CHANGE IN NET ASSETS 2015 EXPENSES ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE $5,000,000 $4,000,000 86% $3,000,000 $2,000,000 $1,000,000 $0 201420152016 PROJECTION SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 45 The Sarah Jane Brain Foundation The International Academy of Hope 101 W 116th St. 2nd Floor New York, NY 10026 (212) 787-8315 5 WAYS TO HELP www.thebrainproject.org www.iHOPEnyc.org On the back cover: iHOPE staff and students work closely together every day. Make A Difference BOARD OF DIRECTORS Patrick Donohue, Founder/Chairman Vincent Massaro, Treasurer Matthew Donohue, Secretary Cameron Brown, Member Steven Hardek, Member William Noel, Member You can make a difference in the lives of our students! Please consider how you can give and act today. Your ongoing, generous support will help our kids achieve their full potential. 1. MAKE A FINANCIAL CONTRIBUTION. SENIOR STAFF PayPal www.thebrainproject.org/Donate or www.iHOPENYC.org/Donate Mariela Camejo, Director Speech Therapy and Hearing Department Check, money order or credit card Download and complete the donation form from our website. Send it with your payment to the address on the form. Checks can be made payable to SJBF/iHOPE. Paul Juhasz Chief Administrative Officer Tara McAllister, Associate Director Special Education Department Nia Mensah, Director Physical Therapy Department 5. SPREAD THE WORD. Find us on social media at iHOPENYC. Then tell your friends and co-workers about the amazing work happening here. Contact our Associate Program Director Linda Sanchez at [email protected] regarding in-kind program contributions. Linda Sanchez, Associate Program Director 3. SUPPORT A FUNDRAISING EFFORT. Lauren Schneider, Director Vision Education Services 46 Submit our online volunteer application at www.iHOPENYC.org/Volunteer. 2. DONATE EQUIPMENT OR MATERIALS. Laura Romanelli, Director Occupational Therapy Department The Sarah Jane Brain Foundation, Inc. is a 501 (c) 3 non-profit and tax exempt organization. SJBF’s tax identification number is 26-1459452. HOPE is a subsidiary of SJBF and also a non-profit organization. 4. VOLUNTEER YOUR TIME. Contact our Marketing and Communications Manager Courtney Nelson at Courtney@ iHOPENYC.org with inquiries regarding sponsorship or events. We believe in our students. ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE Come see for yourself. Call today to request a school tour 212-787-8315 SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE ANNUAL REPORT 47 The Sarah Jane Brain Foundation The International Academy of Hope 101 W 116th St. 2nd Floor New York, NY 10026 212-787-8315 www.thebrainproject.org www.iHOPEnyc.org 48 ANNUAL REPORT SARAH JANE BRAIN FOUNDATION • INTERNATIONAL ACADEMY OF HOPE