Breast Cancer Wellness
Transcription
Breast Cancer Wellness
Breast Cancer Wellness M A G A Z I N E Be a Thriver! ® Family Matters “My heart and intuition kicked in. I took the biggest leap of faith.” Shouldn’t We Always Celebrate Life First? Caring for Lymphedema Positive Intensity –Paula Holland De Long What’s Next for my Life? Your entary mplim ue $4.95 C o Iss Volume 5, Issue 2 Summer 2010 NON-PROFIT PRST STANDARD US POSTAGE PAID PERMIT 205 BOLINGBROOK, IL Founder of Amazon Herb Company ‘Amazon John’ Easterling and his wife Olivia Newton-John Experience Lluvia™, the Natural Skin Care from the Rainforest Recent discoveries of antioxidant compounds, taspines and other naturally-occurring phyto-elements in Rainforest plants set a new standard in natural skin care therapy. These beneficial compounds give us a new natural choice for clear glowing skin that is alive and well nourished. For information and ordering: Call Janet at 573-301-6600 [email protected] Visit our Web site at healthyvisions.amazonherb.net contents Summer 2010 ON OUR COVER Paula Holland De Long Cover photo courtesy of George Kamper, Inc. of Ft. Lauderdale. 8 SUMMER 2010 | Volume 5, Issue 2 PUBLISHER Bevery Vote [email protected] To order your individual free subscription, go to www.breastcancerwellnesss.org or see page 23 to subscribe. To request magazines for your events, support groups, or patients: [email protected] ______________ DIRECTOR OF SALES Bonnie Phelps [email protected] 417.581.3438 Fax 417.581.3498 Please do not call Director of Sales for article and story submissions, refer to breastcancerwellness.org for submission guidelines or email [email protected] ______________ ART DIRECTOR Stacie L. Marshall www.hilldesignco.com Breast Cancer Wellness Magazine P.O. Box 2040 Lebanon, MO 65536 breastcancerwellness.org Published quarterly for Breast Cancer Wellness. Reader discretion is advised. Publisher of The Breast Cancer Wellness Magazine does not endorse or promote any product or service of advertisers of this publication nor does it verify the accuracy of any claims made in the advertisements or articles. This magazine is not intended to replace the care and advice of expert medical professionals. All rights reserved. Reproductions of any information appearing in this publication in whole or in part cannot be made without the express written permission of the publisher. F E AT U R E S D E PA RT M E N TS My Intentional Garden 5 PUBLISHER’S LETTER 4 I needed to decide what my intention was. This is important because it is the guiding point for all decisions from that point on. My intention is to live fully, enjoying my family and each day. This intention still guides me eleven years later as a survivor and as a thriver. Coming soon, BCW is going bold. Shipmates 8 Researchers have found that chronic inflammation not only plays a key role in the commencement and progression of many types of cancers, but it also fuels a wide variety of chronic disorders. Positive Intensity 16 If you have trouble coming up with positive thoughts on which to focus your attention, then try guided imagery. This is a tool that the medical community has begun to embrace because of its use of powerful healing metaphors to which your immune system can positively respond! AMOENA for me 10 Quelling the Fires of Inflammation 12 Finding a Family that Matters 16 Yes, family matters, that’s for sure, but I submit to you that your family can be of your own making. Caring for Lymphedema 20 Summertime Salads 18 Family Matters 26 A Message from Ambassador Nancy G. Brinker 22 PROFILES IN WELLNESS 32 What’s Next for My Life? 36 Family Matters for a Single Mom 38 Shouldn’t We Always Celebrate Life First? memories of the 4th Annual Breast Cancer Thrivers Cruise 40 From the Fitting Room 30 It’s all about the bra. A proper prosthesis fitting begins with a comfortable and precise fit. PINK PAGES DIRECTORY 45-46 www.breastcancerwellness.org 3 publisher’s letter Dear Thrivers, Coming soon, a sneak peak of a free book, “How We Became Breast Cancer Thrivers”—44 stories from my Breast Cancer Thriving Friends Now Living With Conviction, Clarity, Passion and Purpose will be on our website, www.BreastCancerWellness.org. This issue’s theme is “Family Matters”. Our lives are both enriched and tested by the people who we love and who love us. Who would we be without those tests in our lives to help us define who we really are, what we really believe and what we really want? A diagnosis of breast cancer makes us get down to what matters, and the tests of time always withstand that ‘families DO matter’ and the definition of family goes much deeper than one related by blood. We all belong to a family of some kind where the sum of the individuals equals greater strength, compassionate, wisdom and support. Plus there is the family of the pink sisterhood—where we are heard and understood even if we don’t say a word. Speaking of being heard and understood, we came from all across the country to meet other thrivers, to celebrate, to laugh, and to make memories together on the 4th Annual Breast Cancer Thrivers Cruise. I hope you enjoy the 4th annual cruise photos and video posted on the home page of www.BreastCancerWellness.org and our facebook page. Our Thrivers’ cruise family continues to grow and we would love to have you join us! The 5th annual BCW Cruise 2011 will have MORE time together, MORE value, MORE laughter, and MORE memories! The Funky Flip-Flop contest and the Pink T-Shirt Contests will be fun, but you may also want to set your sights on taking home the first trophy for the 2011 Funniest Breast Cancer Thriver or the best 2011 Cruise Karaoke singer. Call Shelly Williams at 1-800-810-8619 or e-mail her at [email protected] to be part of this special experience. Thank you Amoena for your continued support of this annual event! Coming October 1 Breast Cancer Wellness is going BOLD. 4 BOLD New Perspective 4 BOLD New Vision 4 BOLD New Mission 4 BOLD New Logo 4 ...and the release of a BOLD new book—a FREE E-Book! It is a gift of compassion, wisdom and bold honesty from Breast Cancer Thrivers from across the country. Our journey as publishers in the wellness field for breast cancer has evolved. As much as we have appreciated and honored the BCW dove logo—a new logo, new vision, and a new mission are coming soon. Everyone who attended the 4th Annual Breast Cancer Thrivers Cruise extend congratulations and best wishes to Joan Miller and her husband, Dr. Ken Miller in celebrating and renewing their 30th anniversary wedding vows during this special cruise. My prayer and invitation is for each of us to experience healing and wellness to the fullest. Be a Thriver! ® Beverly Vote Publisher / Editor 18 year breast cancer thriver! 4 Breast Cancer Wellness Magazine Be a ! er v i r h T ® BCWFEATURE q My Intentional Garden by Heather Jose At one point my life was crashing down around me and everything was hard. Now the tide is out and life does not crash. But that glorious view is gone. It is easy to become lackadaisical, not on guard anymore; the voice of God is not as clear, nor as intense. Jesus, it is difficult for me to not be among the crashing surf, though it is tiring to be in it. I pray that my rest can be to nurture myself and to be prepared to be strong enough to enter the surf again. It need not be the same as before, nor must it be directed by me. I pray though that I will be there again, engulfed in the intensity and power of life and God as the control. Lord, help me to use my low tide to walk with others along the journey that has been given to each of us. Please engulf me in the spirit again. –Excerpted from “Letters to Sydney: Every Day I am Killing Cancer” by Heather Jose T hrivers, in order to make the most of our minds we have to dream. Breast cancer tries to take away dreams, but we can change that. Dreams are the backbone of life. Why participate in the day to day if you don’t have a dream? Dreams form our heart, souls and mind and they help us to become more than we ever thought possible. They aren’t always clear, but that can be the beauty. It is important to think about our dreams, to get out of the box of our diagnosis and see the life that is in front of us. As long as I can remember I have watched my grandma garden. It’s part of her being even though she is well into her eighties and every year she says she is giving it up. If it is not winter, I know where I will find her. She has done it for so long she can’t quit. Sure, she may do less than she used to, but still she is out there. It is partly because of her that I love gardening too. It’s so satisfying to see things grow. But this is not a gardening magazine is it? While this is true, I can’t quit thinking about the thought that a healthy approach to breast cancer could be very similar to the way we tend a garden. A garden begins with a bit of dirt that we declare to be the place for things to grow. When my husband Larry and I built our house we set aside an area in the front of the house for my future flower garden. I even made sure to have a curved sidewalk leading to the front door so that people could meander in and enjoy the view. Our breast cancer garden is our mind, this is the place where thoughts grow and become actions. The longer I live beyond the diagnosis of breast cancer the more I see and understand the importance of using our mind to its full potential. Since we all have a mind, the first order of business is to get rid of the junk that would hinder growth. If I had left only sand full of nails and scraps, what kind of nutrients would that leave for my seeds? Instead I made sure to clear out the junk and I brought in some topsoil too. It was well worth the time and effort to prepare it correctly. What junk do you have in u www.breastcancerwellness.org 5 q BCWFEATURE In the midst of planting seeds and watching them grow, it is a must to take some to enjoy the process. your head that could hinder growth? For me it was the doubts and fears that came along with breast cancer. I consider myself to be pretty positive, but initially my garden was full of junk. It came from my own thoughts and sometimes from other people. These thoughts began to run like a reel through my head causing me to doubt myself and my potential to be well. In order to confront them I found myself writing them down. Once on paper I could really rid myself of them, making way for something new. While I knew that I needed to get rid of the negative fear and doubt I wasn’t sure what to replace it with. I needed to decide what my intention was. This is important because it is the guiding point for all decisions from that point on. My intention is to live fully, enjoying my family and each day. This intention still guides me eleven years later as a survivor and as a thriver. When I am feeling unbalanced or unsure of a decision I need to make, I think about my intention. Intent is the driving force behind our actions, it is the reason we choose the way we do. I believe it is worth taking some time to really find your intention, as life should revolve around it in almost every aspect. My intention is not based on cancer, although cancer is what drove me to figure it out. Intention is about life. Just because I knew what I intended to do didn’t mean that I knew how to get there. That’s where we think about the garden again, and begin to plant that seeds. Maybe it is a bunch of tiny little positive thoughts of hope, of faith, of determination. These seeds may not even be a whole a sentence long, however they are what resonates within us. “I’m going to see my daughter grow up.” “Every day we are killing cancer.” “Fear is courage that has said its prayers.” “Go beyond treatment.” “Make it a great day.” We can’t just plant them and forget about them, especially when they are new. Caring for our intention is a daily process, sometimes more time consuming than the day before. I put everything in a notebook and read it each and every day. The more I did this the more those seeds grew, and I found that before long hope, faith, and determination were blossoming within my soul. Of course, not everything blossomed as I thought it might, that was okay. I think I was left with the truest thoughts for me. We need to remember though, that intention is not enough to be a thriver. Intention only works when there are actions that follow. What good is it to plan our space, plant our seeds and then never do another thing? I use my intention to guide and inspire my actions through each day. These actions are the reason that I am living fully and enjoying my family. Actions can be mental, spiritual, or physical. They are not the same day to day, but they do occur each day. It is a matter of knowing what I need to nurture my intention in the moment. So let’s talk about growth in our garden/mind. Growth will occur with a combination of conditions. 6 Breast Cancer Wellness Magazine Not all of them are easy or fun, but those difficulties might spur the greatest growth if we keep our eye on our intention. This would be like enduring the rain on a Saturday that you hoped to be picnicking. We have had a lot of rain recently and it has made my garden grow, grow, grow. Rain in your mind might be doing a really hard workout, because you know the payoff is worth the effort. Or maybe it is embracing your treatment even though it is hard. You can focus on your intention at this time and it will make it all clear. Growth in your garden also requires taking the time to deadhead all of the spent blooms. It might even mean getting rid of a plant that is taking over your garden, or at least moving it or cutting it back. I think of this in my mind when I reevaluate how to spend my time and focus, what is working and what isn’t. It’s a process that keeps happening all for the good of our gardens. In the midst of planting seeds and watching them grow it is a must to take some time to enjoy the process. What good is all the work if we can’t see what we are nurturing? Take the moments as they come to enjoy the beauty. It seems so much sweeter when you have spent the time on it yourself. This is a time to walk through your garden and see how much you have grown and what is really shining. Over time, with much attention to your intention and action to support it there will be a day when you will be able to see the fruits of your labor. I have seen many harvests, all of them different. The first one came at the end of ten months of treatment when I could truly say that I was living my intention. Sure, I was happy to be done with treatment, but I was even more excited to see what all of my hard work had done for me. It is an amazing feeling to be able to see what has grown in your garden. I have realized that strength and determination were there, along with optimism, joy, independence, and humor. The harvest is different each time, and that is the way it is intended. After each harvest there is a time for rest. Out in the dirt they would call it dormancy. It is the time where things look dead, but it is really just preparing to come back bigger and stronger in the spring. We thrivers need a time to rest too, but as with the plants it doesn’t mean that we aren’t doing anything. Rather it is more of a day to day routine that keeps us heading toward our intention. It is impossible to be blooming and producing all of the time, we aren’t made that way. Besides being in a garden I have another favorite place to be, the beach. I love the water, the waves, the smell of the ocean, the feel of the sand. I wrote the prayer that we began with as I was finishing my first harvest. The challenge is to use the dormant times as preparation, keeping on our eye on our intention, and opening ourselves up to life’s possibilities. Keep in mind that there will be an opportunity to bloom again and take in the glorious view. I can’t wait to see the beauty in your garden. n Heather Jose Diagnosed with stage IV breast cancer at 26, Heather Jose chose to fight the cancer head on putting together a plan to battle cancer on a daily basis. Ten years later, Heather is healthy and using her experiences to speak to healthcare providers and patients about how much their actions and words can impact success. Heather is the author of “Letters to Sydney: Every Day I am Killing Cancer”. www.heatherjose.com. www.breastcancerwellness.org 7 Judy Naylor Faith Anderson Shipmates Meet BCW Thrivers Cruise Mates—Judy Naylor and Faith Anderson How I Met Faith One day in mid January 2008, I looked up the Breast Cancer Thrivers Cruise on the Internet and there was our famous Shelly Williams and her phone number at Great Southern Travel. I called just to inquire as I had never ever been on a cruise before. Shelly immediately was a long lost friend who I had suddenly found over the phone... how incredible is that! She said she had several ladies waiting for a possible roommate and asked me to give it a try. Faith Anderson responded right away and I somehow felt this could work. We agreed that we both would like to go so we signed up. We were going to be roommates. That first cruise was very exciting to me! After we staked out our cabin territories... we got into all our histories you know like schooling, families, marriages, children, divorces, deaths and our cancer experiences. We exchanged and listened to everything. It was like a clearing ground and it all seemed to free us up to start healing, enjoy our survivorship’s and let the fun of living and thriving finally begin. Faith is a beautiful and intelligent lady with spunk and I love her for that. She is easy going, steady and kind. A real trooper. Sometimes things can turn quite hilarious as she sits back and observes things and I continue bantering her. We are both New England 8 Breast Cancer Wellness Magazine girls at heart. She is originally from Connecticut and I from NY area. I can always count on her and I’m proud and blessed to call her my friend. We have enjoyed many memorable moments together and now we are looking forward to our fourth cruise in 2011. Faith has shown me all the ins and outs of cruising. I couldn’t go on a cruise without her and better yet now I wouldn’t want to. We are like peas and carrots... she is she, I am me and that is acceptance at its finest! Stay well and I will see you next year Faith! About Judy My breast cancer was discovered in my 2006 yearly mammogram—24 hours before I flew out to go to my father’s homeland of Denmark. Because my daughter was with me when I had the biopsy, I had asked her to e-mail me the outcome of the biopsy thinking to myself that I had had a cyst aspiration in 2003 and this would be just as easy being it was so tiny. My daughter was told it was cancer and after talking it over with her siblings, they thought it best to wait until I returned home to tell me... even though she wasn’t sure when that would be as I had traveled with no return date until I was ready to return which turned out to be six weeks later. I regret that I just didn’t call the doctor myself because all my children were pretty scared about things. The biopsy probably removed all the cancer as they couldn’t find the spot at all during the surgery. Only ducts that were considered precancerous were removed. Then radiation and I am a 4 year survivor and thriver now. I am enriched by the continued support and friendship I have found with ALL of the breast cancer thrivers. I enjoy all the things that I do and everyday is different. Whether it be gardening a little here and there; visiting with family and friends; or doing some traveling. Choices seem to be made on a daily basis sometimes and I feel very grateful that I am able to do that. I am blessed! Judy Naylor Federal Way, WA How I Met Judy Shelly at Great Southern Travel suggested that Judy Naylor and I get together for the 2008 Breast Cancer Thrivers’ Cruise. She provided us with each others e-mail address and encouraged us to contact one another. I knew after the first e-mail exchange that we just might be able to spend a few days together. Who knew that we would find such joy in each others company, that we would cruise together in 2009, 2010 and be looking The search for one’s own being, the discovery of the life one needs to live, can be one of the strongest weapons against disease. –Lawrence Leshan forward to our 2011 trip. Judy and I are compatible because there is no pretense. We are who we are and our sameness and our differences seem to compliment one another. We don’t feel the need to be constantly joined by the hip but find enjoyment in doing things together but also doing things we like on our own. Our conversations run the gamut from serious to silly and Judy has a great though sometimes subtle sense of humor. Judy is an intellegent, wise and caring person. My “flower child” friend is a free spirit. She loves meeting other people and is so giving of herself that they are immediately drawn to her. She is an independant soul and would have no problem traveling by herself but has opened up her life to include me and my life is richer for it. Though we live a great distance apart, she in Washington and I in Illinois, when we see each other the distance and time disappear. I just love her and am happy to call her friend. About Faith My cancer was discovered by luck and probably my new guardian angel. I had moved to Illinois a few short months before being diagnosed with breast cancer to be near my grandchildren. While returning from shopping I was in an auto accident where all the airbags deployed. Luckily, I was not seriously injured but the airbags and seatbelt had caused some major bruising. My right breast looked especially bad and seemed to get worse as time passed rather than better. Having just moved to Illinois I did not know any doctors. I did finally get into see someone who sent me for a mammo- gram of the right breast to verify it was just a hematoma. When I arrived for the mammogram the radiologist was reluctant to do just the right breast because he had no base line for me. He requested and received an order to do both breasts. I had just had my annual mammogram five months previous so I was not concerned. I almost fell off the chair when I was told I had breast cancer in my left breast. Biopsies confirmed the diagnosis and I had a lumpectomy and radiation. I had lost my friend of 55 years to lung cancer less than a year before. Both her husband and sister felt she was watching over me and had a hand in making sure my cancer was discovered and treated since I would have not gone for a mammogram for several months.. I just felt she could have picked a better method than an auto accident. Presently things are a little shaky but I am convinced all will be well. My favorite hobby is enjoying my 6 year old triplet grandchildren. They are a joy and I was fortunate to be able to relocate close to them (about 10 miles away). I’m also an avid reader though I never seem to find the time to read when I cruise with Judy. I enjoy traveling and have been on some great trips such as the Pananma Canal, Australia and New Zealand. My new neighborhood is a friendly one and I have met people who share my interests and enjoy their company. Living near Chicago offers so many opportunities for exploration and enrichment. All in all, things are good. The support you need. With a woman’s touch. The St.Vincent Women’s Health Boutique provides the women’s healthcare products you need with the attention to detail you deserve. We offer mastectomy bras, breast prosthesis, mastectomy swimsuits, swim prosthesis, lightweight forms, postsurgical camisoles, and a huge variety of scarves, turbans and wigs. We’ll even submit insurance claims for you. Plus free shipping through womens.stvincent.org. Call 317.338.8866 to find out more. Faith Anderson Beach Park, Illinois All digital mammography. Copyright©2010 St.ClaireGroup Client: SVH Job Name: Women’s Health Boutique Ad Job Number: SVH-W Specs: 2.3” x 7.125” 4C Ad Publication: A digital mammogram takes a digital image of the breast and stores it IF YOU HAVE ANY QUESTIONS REGARDING THIS ART, electronically. Much higher resolution than a traditional film mammogram, CALLtoJOE JUDD 317-816-8810 ordetect e-mail jjudd@stclairegro digital images can be manipulated in PLEASE many ways aid in evaluation...and potential problems earlier.03/29/10 FINAL MECHANICAL REVISED#3 03/31/10 LAYOUT That’s why all of our mammography patients receive digital mammograms. Tracey Williams, R.N. Director Skaggs Women’s Services Branson • skaggs.net/centerforwomenshealth www.breastcancerwellness.org 9 for me Stay Cool This Summer: Feel the Breeze of Energy To maximize our comfort in hot summer weather, humans have come up with all kinds of things. The handheld fan, the parasol, the ponytail and iced lemonade continue to serve as some of the simplest solutions. More elaborate inventions range from the indispensible (air conditioner) to the absurd (hard hat fitted with 2 drinks and straws)! Then there are the ubiquitous ceiling fan, swimming pool and those modern amusement-park misting booths. None of those devices specifically addresses one of the most commonly overheated areas for women, however—the area surrounding her bra. In between and underneath—and especially when she’s wearing a breast form after mastectomy or lumpectomy—heat is almost always a factor. In fact, much of the recent history of the breast form has been an attempt to address the oft-cited complaints of heat buildup and weight in the older versions. Thankfully, Amoena’s research and development teams have innovated once again to help keep you cool, with the introduction of Energy—our newest lightweight breast form option. Feel comfortable… plus! It is truly the next generation of superior comfort, infused with 30% more of our patented Comfort+ technology. Comfort+ helps to equalize a woman’s body temperature by absorbing excess body heat from the chest wall during a rise in temperature to reduce overheating and perspiration. The result is a natural feeling because the temperature in that microclimate between chest wall and breast form is balanced—it’s as if she’s wearing no form at all. Amoena also added a patent-pending three-dimensional raised pearl surface to the back of the form, which creates small airflow channels that allow ventilation and moisture evapo- 10 Breast Cancer Wellness Magazine ration. Our researchers spent months testing to determine the best possible configuration of the 3-D raised silicone pearls; they’re strategically designed in varying heights and sizes to optimize their effectiveness where women most need it. This is one of the lightest forms in our portfolio. It is ideal for women who are hot-natured, exercise regularly or have hot flashes due to menopause or hormone therapy. Those with neck, shoulder or back problems from lymphedema, osteoporosis and arthritis may also benefit from wearing Energy. Its by Lee Thrash two distinct shapes, both with a narrow footprint, offer the chance to enjoy summer fashion styles—maybe a sundress or a V-neck tank. Keep your cool As the heat waves on this summer, there are lots of ways you can stay sweat-free and comfortable. Before you resort to something trivial like a squeezable spray-bottle fan, start at your foundation. Try the innovative comfort of Energy to cool you where you need it most. n Lee Thrash E-business & PR Coordinator, Amoena USA Lee Thrash manages Amoena’s online community, theBreastCareSite.com, Amoena Life magazine, and other online and print publications which help breast cancer survivors and their families. A graduate of Emory University, her writing experience includes reporting for and editing health care journals such as Hospital Case Management, Case Management Advisor, and Hospital Home Health (AHC Media), as well as 10+ years editing educational websites, brochures and publications. See the difference, feel the difference, MAKE A DIFFERENCE. medi lymphology is proud to announce that we have secured co-sponsorship for Bill H.R. 4662, The Lymphedema Diagnosis and Treatment Cost Saving Act of 2010. We understand the impact this Bill will have on the lives of patients, therapists and fitters. Please contact your congressperson and senators to voice your support. medi is a dedicated financial supporter of The Breast Cancer Research Foundation and The Prostate Cancer Foundation. Learn more about us at: mediusa.com HEALING MAGES SPEcIAL NOTIcE FOR MEdIcAL PROFESSIONALS HEALING IMAGES™ ACROSS AMERICA PROJECT IMAGINING THE POSSIBILITIES FOR BETTER HEALTH Do you believe in the POWER of the MIND? Are you a medical professional who wants to help your patients through the roller-coaster ride of emotions? Would you like to become certified in guided imagery so that you can help them add the “power of the mind” with an intention to heal? Thanks to the Healing Images™ Across America Project of ONE Health Institute, you can receive a $300 scholarship toward your $1200 tuition at the next certification symposium in St. Louis, Missouri on Oct 2 - 3, 2010. Just apply online using the Healing Images™ registration form, and for only $900, you can receive your certification after 16 hours of classroom training, 4 hours of personalized training by phone, and a satisfactory completion of the evaluative requirements. As a bonus, you get more than $350 in published support materials that will only make it EASIER to offer guided imagery and many other integrative techniques to your waiting clients! NormAlly $1200 for 20 Hours of trAININg & mAterIAls ... NoW oNly $900! $300 scholarships available through ONE Health Institute a 501(c)3 nonprofit organization Appl y online at www.HealingIma ges.com Professional Guided Imagery Certification www.HealingImages.com 636-273-9003 www.breastcancerwellness.org 11 Quelling the Fires of Inflammation by Christine Horner, MD Taking an anti-inflammatory can lower your risk of breast cancer by as much as fifty percent The largest on-going national study of women’s health called “The Women’s Health Initiative” (WHI), found that women who took aspirin or ibuprofen an average of 3 times week for the last 10 years had a significant lower incidence breast cancer. Those taking aspirin had a 28% lower incidence and the women who took ibuprofen had a 50% lower incidence. But aspirin and ibuprofen have potential serious side effects. For instance, 16,000 people in the US die each year from bleeding complications from these medications. So I recommend you take a safe herbal anti-inflammatory, like “Zyflamend”, instead. Research shows herbal anti-inflammatories works just as well. And rather than side effects, they have a multitude of wonderful side benefits. Inflammation is a normal and important process created naturally by our bodies and serves an important role. It helps to get rid of unwanted bacteria, and other invaders. It also assists our bodies in cleaning up dead cells from trauma or infections. When inflammation rises to assist our inner healing intelligence during these special circumstances and then quietly quells when it is no longer needed, no harm is done. But, if the inflammation remains beyond its useful purpose and becomes “chronic”—meaning it stays as an ongoing process in our body over time—it turns into a lethal firestorm, breaking down cells and destroying the natural architectural boundaries of the body’s tissues which makes it easier for tumors to invade and grow. Researchers have found that chronic inflammation not only plays a key role in the commencement and progression of many types of cancers, but it also fuels a wide variety of chronic disorders, including heart disease, arthritis and Alzheimer’s disease. One main reason why chronic inflammation can be so devastating to our health is because it doesn’t act alone. It creates additional destructive ammunition: oxygen free radicals. The cells in our immune system use oxygen free radicals like cosmic ray guns to shoot bacteria and other offenders. In the presence of inflammation, these cells release showers of oxygen free radicals and excess oxygen free radicals can cause damage to DNA that can lead to cancer. Certain foods and stress promote inflammation. Refined carbohydrates, sugar and certain fats (especially transfats) are some of the worst offenders. On the other hand, a diet rich in antioxidants found in fresh organically grown fruits and vegetables and omega-3 fatty acids reduces inflammation. Taking supplemental antioxidants and practicing stress reduction techniques are also very beneficial in preventing and reducing inflammation. INFLAMMATION AND THE COX-2 ENZYME There’s another way to reduce inflammation. It involves blocking the 12 Breast Cancer Wellness Magazine activity of a key enzyme essential to the process of inflammation. The enzyme is called cyclo-oxygenase 2 or COX-2. A relatively new class of pharmaceutical anti-inflammatories targets the COX2 enzyme and blocks it or inhibits it. Celebrex and Vioxx are two examples. But pharmaceutical medications, as you are probably aware, are hard on the body and create imbalances that result in potentially serious side effects. When reaching for COX-2 anti-inflammatories, the wisest choice is to choose those made by Nature. Herbal COX-2 inhibitors not only block the “evil” enzyme with equal force, but they also import a fantastic amount of extraordinary intelligence and balance into the body. Nature’s COX-2 inhibiting pharmacy includes dozens of herbs. The standouts are green tea, turmeric, holy basil, rosemary, ginger, oregano, Scutellaria, barberry, and the Chinese herbs Hu Zhang and Chinese Goldenthread. Researchers at Columbia University are currently studying the effectiveness of an herbal product, called Zyflamend, composed of a mixture of all of these potent herbal anti-inflammatories against prostate and breast cancer. Leading complementary and alternative physicians, like Dr. Andrew Weil, prescribe Zyflamend for their patients with inflammatory conditions. It is also used at the Cleveland Clinic Spine Center in Cleveland, Ohio. If you want learn more about the properties of the herbs in Zyflamend, there’s an excellent book I recommend called Beyond Aspirin (Newmark and Schulick, Hohm Press 2000). CANCER AND THE COX-2 ENZYME Researchers have found that inflammation isn’t the only thing that the COX-2 enzyme takes part in. It also plays a key role in the initiation and growth of several cancers including cancers of the colon, prostate, and breast. The COX-2 enzyme stimulates breast cells to start dividing and growing. It also prevents tumor cells from undergoing normal cell death, so more tumor cells stay alive, accelerating the growth of the tumor. The more tumor cells there are—the faster and bigger in a short period of time after treatment. Patients with these types of tumors also have an overall poorer survival. the tumor grows. The COX-2 enzyme also encourages new blood vessels to grow. New blood vessels are continually required to deliver enough nutrients and oxygen-laden blood to feed an expanding tumor. The more nutrients and oxygen the tumor gets—the bigger and faster it will grow. Tumor cells are able to invade normal tissue more aggressively as a response to COX-2. COX-2 also increases the tumor’s ability to metastasize or spread to other parts of the body and suppresses the immune system so that it can’t fight off cancer cells as well. It also increases the production of mutagens -- substances that cause mutations in our DNA that can lead to cancer. When you add them all up, all these nasty effects of the COX-2 enzyme powerfully promote tumor growth in our body. It’s no wonder studies show taking anti-inflammatories that blocks all the ill effects of the COX-2 enzyme can reduce your risk of developing breast cancer by as much as 50%. Some tumors show an “over-expression” of the COX-2 enzyme. What this means is that these tumor cells have a lot more active COX-2 enzymes than normal tissue usually does. The tumors that frequently show over-expression of the COX-2 enzyme include cancers of the colon, prostate and breast. Not all breast cancers over-express the COX-2 enzyme. Researchers found about 50% of breast cancers do. According to a study published in the Austria British Journal of Cancer in 2003, women with breast tumors that over-express COX-2 are more likely to have their tumors recur, or come back, COX-2 INHIBITORS AND BREAST CANCER As discussed above, certain antiinflammatory pharmaceutical medications, like Celebrex, are designed to work by blocking or inhibiting the COX-2 enzyme. All the herbs found in Zyflamend inhibit the COX-2 enzyme too. Research shows all COX-2 inhibitors, not surprisingly, have powerful anti-cancer properties. In experimental animals, they have been found to significantly reduce the formation of breast tumors and the number of tumors that grow in response to a carcinogen. They also inhibit the growth of tumors once they have formed. Researchers at Ohio State University in a study published in 2001, found a direct relationship between the amount of COX-2 inhibitor that was given and the number of breast tumors that formed in the test animals. The higher the dose of a COX-2 inhibitor that was given, the lower the incidence of breast tumors that formed. COX-2 INHIBITORS AND CANCER RISK FACTORS COX-2 inhibitors lower the risk of cancer in 2 major ways. They reduce inflammation and they block the COX-2 enzyme expression in tumors. As you learned above, inflammation creates copious amounts of oxygen free radicals and destroys natural tissue boundaries making it easier for tumors to grow. The COX-2 enzyme has a multitude of ways that it promotes the inception and cultivation of tumors. COX-2 enzyme inhibitors block every one of these tumor fostering processes. n Christine Horner, MD Christine Horner, MD is a board certified and nationally recognized surgeon, author, expert in natural medicine, professional speaker and a relentless champion for women’s health. She is the author of Waking the Warrior Goddess: Dr. Christine Horner’s Program to Protect Against and Fight Breast Cancer, winner of the Independent Book Publishers Award 2006 for “Best Book in Health, Medicine, and Nutrition.” For more information go to www.drchristinehorner.com. www.breastcancerwellness.org 13 Finding a Family That Matters by Ann Leach Life in Virginia as an only child was pretty good. Despite the fact that my father had died and mom was left to raise me, her only child, I feel as if I was afforded the comforts of home and surrounded by loving adults and friends. Fast forward thirty years when Mom died in her family home state of Illinois. As I managed the funeral and welcomed her friends, an elderly neighbor expressed her sadness and concern for me. “Oh honey, now you truly are an orphan!” Ruth said. Not too comforting at the time she declared that, but I have often thought of her words over the twenty years since she spoke them. Yes, family matters, that’s for sure, but I submit to you that your family can be of your own making. And when you’re caring for a loved one, there is no doubt some support is in order. Here are some steps you can take to assure you create a fabulous family of support: Do the caregiver countdown Break your day into five segments like morning, lunch time, afternoon, dinner time, and evening. Then jot down every task that you do to support your loved one in each segment. Look at the overarching categories you have like ‘physical support’, ‘transportation’, ‘entertaining and engaging’, etc. Who do you know that could provide help in these areas? Reach out and ask for their help. 14 Breast Cancer Wellness Magazine Let’s get physical Find your spiritual family Who do you know that would be willing to support you in maintaining your physical self? Do you have a neighbor who would take a short morning walk with you? A massage therapist that you haven’t seen for awhile? These folks can be added to your family of support circle and utilized often! Faith is a vital piece of caring for someone with cancer. You may honor your faith in a number of ways like attending a church, having quiet times of meditation by a river or on a hike in nature. Wherever you feel most connected to it is great. Do you have a soul sister? Someone with whom you can discuss your spiritual beliefs and share that sense of community with? Seek those people out if you don’t already have them in your life. Learning and growing in spirit is a life process that fuels us through the ups and downs of caregiving. Get a grip on the emotions of caring Explore your family’s beliefs about sharing problems or challenges with others. My own mother was mortified that I would talk to friends about the stress of caring for her at the end of her life. She was taught that “our problems are ours alone and we can handle them ourselves”. Still, I was grateful when a friend would sincerely ask “how are you doing with all this?” and really listen to my answers. You need that friend in your life too. And it may be an actual family member, which is great. Just make sure you have someone to talk to. Take some time this summer to review these four important areas of your life and design a fabulous family of support. Give thanks for their presence in your life and resolve to do the same for them when they need it. n Ann Leach Ann Leach is the founder and president of Life Preservers: a global grief support community. She served as the primary caregiver for her mother, who died of cancer twenty-one years ago. Ann produces an award-winning free online newsletter called In the Flow for caregivers coping with loss. Visit www.life-preservers.org for more information. 2010 Breast Cancer Thrivers Quilt Raffle This beautiuful quilt called ‘All About the Girls’ was designed and created by Nedra Fillmer from Marshfield, Missouri. “In designing the ‘All About the Girls’ quilt several emotions were running through me. I wanted to create a quilt that would scream it was for a woman, so it had to be pink but with the darker shades being brought out in the browns to depict the battles that we face to create an even balance. There are many struggles through breast cancer but one of the biggest accomplishments along the journey is to feel that you are beautifully whole again. It is an amazing journey and well worth the struggle when you reach the point where you can look at the darker shades of your life and know that you would not be as beautiful without them.” –Nedra Fillmer RAFFLE TICKETS 3 10 $ for BREAST CANCER THRIVERS QUILT RAFFLE Drawing to be held November 1, 2010 NAME:________________________________________________________________ ADDRESS:_ ____________________________________________________________ CITY, STATE, ZIP:_ _______________________________________________________ PHONE_ ______________________________________________________________ EMAIL_ _______________________________________________________________ Send to: Breast Cancer Thrivers, P. O. Box 2040, Lebanon, MO 65536 BREAST CANCER THRIVERS QUILT RAFFLE Drawing to be held November 1, 2010 NAME:________________________________________________________________ ADDRESS:_ ____________________________________________________________ CITY, STATE, ZIP:_ _______________________________________________________ PHONE_ ______________________________________________________________ EMAIL_ _______________________________________________________________ Send to: Breast Cancer Thrivers, P. O. Box 2040, Lebanon, MO 65536 BREAST CANCER THRIVERS QUILT RAFFLE Drawing to be held November 1, 2010 NAME:________________________________________________________________ ADDRESS:_ ____________________________________________________________ CITY, STATE, ZIP:_ _______________________________________________________ PHONE_ ______________________________________________________________ EMAIL_ _______________________________________________________________ Send to: Breast Cancer Thrivers, P. O. Box 2040, Lebanon, MO 65536 BE FEATURED IN BCW MAGAZINE! The raffle winner will have their photo taken for the article that will appear in the BCW 2011 Winter Issue. This beautiful quilt was custom quilted by Pat Capps of “Quilts and Things” of Lebanon, Missouri. Pat does custom quilting and purchased her first quilting machine in 1999. Her personal motto is “Quilts are our links to the past and the treasures of our future”. It is important to Pat that the quilting enhances the piecing. She wants every lady to know that her quilt is just as important as the next and she puts the same effort into every one. As Pat stitched together this quilt she thought of the family and friends who have survived breast cancer and those who did not. Pat has donated her talent and time to them. Her mother in-law and two sisters in-law have been diagnosed with breast cancer. Pat’s goal in life is to retire and quilt full time. Sponsored by ANITA International Corporation 3540 N W 56th St., Suite 204, Ft Lauderdale, FL 33309 Positive Intensity Do you ever hold back? Do you sometimes not say the things you really feel because your words might make someone you love angry, unhappy, scared, sulky, or maybe even somewhat abusive? We ALL hold back at times. We are HUMAN! We are so programmed to “fit in” with our world that sometimes we barely notice we’re even doing it. At other times, we rationalize it with: “Saying what I really feel would be SO much worse!” Eventually though, this lack of “speaking your truth” has its toll. Your brain (like everyone’s) is very trainable. It has learned that saying what is really on your mind brings nothing but trouble! Brains learn very quickly how to “adapt” in order “fit in.” And this is even a smart thing… for the very short term. But long term… this strategy is not wise because it is “costing” you big time! Science has given a name to this process, it’s called “learned helplessness.” But the reason scientists are taking a closer look at it now is because they are shocked to have discovered that our immune systems are learning this “helplessness” too! Your every thought has an identifiable “fingerprint” of complex chemicals, so know that your cells are actually “listening” on every thought you think! So don’t think you can ever fool your body! Not when emotions are attached! The secret is to learn more about healthy ways to express them all! Your body quite literally sees things more clearly than your mind… simply because your emotions constantly speak (whether you honor them or not). So maybe it’s time to treat each emotion with the respect it deserves! This does NOT mean you need to act on every emotion, but as a Breast Cancer Thriver, it DOES mean that some healthy ways to express them need to be incorporated into your wellness plan! 1. Don’t aim for constant “positive thinking!” You might wish for a brain that is constantly interpreting your life as “positive,” but it is normal and natural for your body to feel a “negative response” to things you don’t like. Start with a daily intention to not 16 Breast Cancer Wellness Magazine by Sandy Jost, PhD ignore any of your body’s messages. This way, your cells won’t need to “tire” from how hard it is to keep up with all the “stuffing” of negative emotions they once had to do. Find a way to journal feelings. Go ahead and express your most “negative” thoughts to get them out without hurting anyone’s feelings! You can even destroy pages afterwards, because the purpose of this is not to “hold on to your feelings” or “see how far you come,” but to simply get feelings OUT so that your body can finally let them go! If you are fortunate enough to have friends who can listen to your words without being hurt, then by all means, express your thoughts aloud too. This is why support groups can be so helpful. It helps to share feelings with others who are going through exactly what you are going through. Another beautiful way to express “negative” feelings is through the arts. Dance to express your grief, or mold clay to express anger. These outlets cause harm to no one, yet still allow ways for your body to feel “heard.” 2. Find as much time as possible to search, find, and amplify the “positive” emotions that are there… especially gratefulness, love, and appreciation! As you dialogue with yourself throughout the day (…and no you are not crazy … we ALL do this), don’t “rationalize” your negative thoughts but instead come up with some genuine appreciations for “what is” … just AS it is! This takes a strong faith that there is “purpose” for everything; and sometimes this is not easy, especially when a lot of emotion is attached to the outcome. But this mind set can help you in all that you do! In order to find what feels like the ever-elusive feelings of gratefulness, you might try thinking of a “much worse” scenario in order to find them. Here’s an example: Driving to an important meeting, it soon becomes obvious that you are not going to get there on time. Your first reaction might be anger based upon the desire to NOT feel total embarrassment! But rather than “beat up” on yourself or the other drivers all around you, try turning your internal dialogue into something like this … “Gee… there must be a reason why I “needed” to be late. Maybe I am not supposed to get there when I had planned. Maybe my being late will allow me to meet someone I otherwise would not have met.” Your real “worst case” scenario though, might continue like this … “Or MAYBE… this allowed me to AVOID something! If I had started out sooner, then maybe I would have been involved in an auto accident! Thank goodness I now ‘only’ have to deal with being late!” From here, your brain can hopefully begin to immerse itself in gratefulness. When you focus intently on this thought, you can appreciate having two healthy arms, legs… not to mention that there is someone who cares enough to want you to show up at all! This way you can REALLY get excited about how grand life is… just as it is! All of life is just a “story” we tell ourselves, so learn to tell a more “grateful story” starting today. There is ALWAYS something positive to focus on. But if you just can’t seem to find it at the time, then simply have a good cry, express those “negative” emotions in a healthy way, and wait for the sunshine to appear. It always does. Every brain actually has rather “short term” focus, so make it a habit to journal every morning and night with a list of all the things in life for which you are grateful. Don’t rush this. Allow these thoughts to produce feelings that literally “bubble up” within you, and think of it as your immune system “bubbling up” from within to join you too! If you have trouble coming up with positive thoughts on which to focus your attention, then try guided imagery. This is a tool that the medical community has begun to embrace because of its use of powerful healing metaphors to which your immune system can positively respond! Your imagination is always there to serve in everything you do. So use it wisely! Surely you can see why the right guided imagery might offer your imagination a much more positive focus than our morning and evening news! 3. Practice detached fervor! We are learning just how much we are intertwined with each other too! Pay attention to who brings you “down” and who energizes you. Respect all your body’s responses as if they were from an intelligent and caring friend. But to “detach” is to also approach Life with a real sense of humor. Listen to your brain’s dialogue as it wants you to “take sides” in… well… everything! Chuckle at this and recognize that your brain is only “trying to help.” And every chance you get, tell your brain: “I’m okay… I am choosing to live with even more fervor than I could ever feel by ‘taking sides!’” When you do all these things, you will gradually begin to feel a healthy respect for all thoughts and emotions! Your brain is always changing and adapting, so learn to take an active role in designing how you want it shaped! Your body and your immune system are always listening… so simply let them know that they are NOT helpless! Speak your truth at every moment in whatever way feels right to you. But do give voice to this inner self… the “soul”… of who you really are. Listen long and hard until your deepest self is free to “bubble up”… with not only its frustrations but also its pure and innocent intentions for positive intensity! I think that your Soul is pretty important and has much to share, don’t you? Well why don’t you write a letter to your Soul tonight in your journal and ask IT if you don’t believe me? n Sandy Jost, PhD Dr. Sandy Jost is an author, speaker, and educator of the bodymind connection, who teaches professionals how to incorporate the power of the mind into medical treatment by offering certification in the use of guided imagery (www.healingimages.com). Jost’s PhD in psychology and master’s degree in nutritional biochemistry provides the perfect foundation for authoring her 9 CD publication of The Cancer Involvement Program: An Integrative and Holistic Approach to Conventional Medical Treatment. Available in hospitals nationwide and used in research to study the financial benefit of incorporating guided imagery into treatment, this program is available through Amazon.com or direct from the publisher at www.onehealthpublishing.com. [email protected]. FAR R O W Post-Surgical Camisole by Wear Ease® Designed for women to wear after breast or chest surgery. Inside View Soft elastic band encircles torso ◦ Beautiful feminine styling ◦ Easy to slip-on or step into ◦ Built-in shelf bra for extra support 866.251.0076 www.wearease.com Medical Innovations, Inc. Better compression made simple™ Armpiece you can don with one hand! Removable Drainage Tube Pouch FarrowWrap Trim-To-Fit™ Armpiece Trimmable Microfine Glove Will not fray or roll when trimmed! • SHORT STRETCH garment for the arm • Compression for edema, lymphedema, and post surgery • Durable, ultrathin and smooth • Easy to don ambidextrous hand gauntlet • Fine seams for comfort AVAILABLE; comes with high quality foam for • Ambidextrous, easy to measure, easy to fit additional dorsal hand compression; • Can be used instead of finger bandaging excellent at reducing hand edema • Can be used with Farrow hand gauntlet and armpiece For more information or Free Live Virtual Inservice call us at (877) 417-5187 or visit us at www.FarrowMedical.com www.breastcancerwellness.org 17 Summertime Salads by Holly Clegg Summer’s here and everyone wants refreshing nutritious recipes. Try this Slaw with Mandarin Oranges and Edamame. Finely shredded coleslaw with edamame, green onions, and mandarin oranges in a lime vinaigrette create this most amazing salad. Edamame are tasty green soybeans in the shell found in the frozen vegetable section of the supermarket. Raspberry Spinach Salad is a delicious salad packed with summer’s jewels of the season—fiber and antioxidant rich berries, spinach and kiwi in a light and healthy dressing. Slaw with Mandarin Oranges and Edamame Angel hair coleslaw with edamame, green onions and mandarin oranges in a lime vinaigrette creates an amazing salad. Makes 8 cups Holly Clegg, the “Queen of Quick,” is author of the trim&TERRIFIC cookbook series including a diabetic cookbook with the ADA, Eating Well Through Cancer and Kids Cooking for Mommies. Her new cookbook—“Too Hot in the Kitchen” will be out in September. Visit online at www.HollyClegg.com. Coming October 1... 6 cups angel hair coleslaw 1 (12-ounce) bag shelled edamame, boiled in salt water for 5 minutes, drained 1 bunch green onions, chopped 2 (11-ounce) cans mandarin oranges in juice, drained 3 tablespoons olive oil 1 tablespoon Dijon mustard 2 tablespoons lime juice 3 tablespoons raspberry wine vinegar or red wine vinegar Salt and pepper to taste 1. In large bowl, combine coleslaw, edamame, green onions, and mandarin oranges. 2. In small bowl, whisk together olive oil, mustard, lime juice and vinegar. Salt and pepper to taste. Serve immediately. Nutritional information per serving: Calories 75 Protein (g) 3, Carbohydrate (g) 8, Fat (g) 4, Calories from Fat (%) 31, Saturated Fat (g) 0, Dietary Fiber (g) 3, Sugars (g) 4, Cholesterol (mg) 0, Sodium (mg) 38, Diabetic Exchanges: 1/2 fruit, 1 fat Terrific Tidbit: Introduce the crunchy pop-in-your-mouth edamame into your diet with this salad... however, frozen peas, snow peas or snap sugar peas may be substituted. Get your copy at BreastCancerWellness.org FREE E-Book HOW WE BEC BREAST CANCAME ER THRIVERS Our hindsigh t can be your foresight How We Became Breast Cancer Thrivers By Beverly Vote, Publisher of the Breast Cancer Wellness Magazine, and 44 Stories From Her Breast Cancer Thriving Friends Now Living with Conviction, Clarity, Passion and Purpose 18 Breast Cancer Wellness Magazine By Beverly Vote, Publisher of the Breast Cance Her Breast Cance r Wellness Magaz r Thriving Friends ine, and 44 Stories Now Living with From Conviction, Clarity , Passion and Purpose Because you know a Breast Cancer patient or survivor… be a friend, tell a friend. Visit Softee USA.com or call 1‐866‐605‐8585 Raspberry Spinach Salad With its subtly sweet dressing paired with fresh fruit and nuts, this is an outstanding salad selection. Strawberries can be substituted for raspberries. This is very low in saturated fat. Makes 8 servings 3 tablespoons raspberry wine vinegar 3 tablespoons raspberry jam 1/4 cup canola oil 8 cups fresh spinach, washed, stemmed, and torn into pieces 1/4 cup coarsely chopped macadamia nuts 1 cup fresh raspberries 3 kiwis, peeled and sliced 1. Combine vinegar and jam in food processor or blender. Add oil in thin stream, blending well; set aside. Carefully toss fresh spinach, nuts, raspberries, and kiwis with dressing. Serve immediately. Nutrition information per serving: Calories 145, Protein (g) 2, Carbohydrate (g) 13, Fat (g) 10, Calories from Fat (%) 61, Saturated Fat (g) 1, Dietary Fiber (g) 3, Cholesterol (mg) 0, Sodium (mg) 26 Diabetic Exchanges: 0.5 fruit, 0.5 other carbohydrate, 2 fat Holly Clegg Holly Clegg, author of the best selling trim&TERRIFIC™ cookbook series including a diabetic cookbook with the ADA and Eating Well Through Cancer, has sold almost 1 million copies. Holly has promoted her healthy lifestyle recipes on national shows including Fox & Friends, NBC Weekend Today, and The 700 Club. She understands the demands of the busy person and with her user friendly, pantry friendly, and time friendly cookbooks, she has garnered a national reputation as the healthy “Queen of Quick!” For more information, visit www.hollyclegg.com or http://thehealthycookingblog.com Prosthetic garments for comfort during recovery & after. Helpful resources & inspirational support from a Breast Cancer Survivor. Arm sleeves, Gloves, Compression hosiery and Lymphedema products We sell Jobst, LympheDivas, Mediven, Juzo, and Sigvaris at up to 40% less than pharmacy prices. Order online at www.BrightLifeDirect.com or call 1-877-545-8585 Monday – Friday 9AM – 6PM, ET Order by 2PM for same day shipping 30-DAY MONEY-BACK GUARANTEE www.breastcancerwellness.org 19 Caring for Lymphedema by Beverly Vote What is Lymphedema? According to the American Cancer Society’s website, “Lymphedema is a build-up of lymph fluid in the fatty tissues just under th skin. It usually develops slowly over time. The swelling can range from mild to severe. It can start soon after surgery or radiation treatment. But it can also begin months or even many years later. Women who have many lymph nodes removed and women who have had radiation therapy to the breast and/or underarm area may have a higher risk of getting lymphedema.” Symptoms Symptoms of lymphedema include but are not limited to: Swelling, reduced energy, loss of mobility, fatigue, a burning feeling, tight skin, itching, swelling of the fingers or the arm area, soreness in a joint or joints, thickening of the skin, inability to sleep, the loss of hair, and irritability. Any concerns for your body should never be ignored and this is certainly the situation with lymphedema. Sometimes a misunderstood symptom can lead to more severe problems, thus be aware of your body. Caring for Lymphedema n Do not ignore the symptoms. n Seek professional help from qualified and experienced experts to diagnose and treat lymphedema. n Do not invite problems—your lymphatic system has been compromised if you have had surgery or radiation. Nurture and love your body even more. n Do not wear tight fitting or restraining clothing. n Remind the medical staffs that blood pressure monitoring, drawing blood, IV lines, and acupuncture should be avoided to the affected arm. 20 Breast Cancer Wellness Magazine n Listen to your intuition and the wisdom of your body. n Keep optimum body weight. n Take preventative measures against infections and rashes. Use care when doing household chores and gardening—gloves are highly recommended. Use electric razors instead of razor shaving. Use proper skin and nail hygiene. Avoid extreme temperatures. n Ask your medical profession how air travel may affect your condition. n Seek only qualified massage therapists professionally trained to care for the special massage needs of breast cancer and lymphedema. n Use prayer, meditation, and guided imagery to release compressed emotions of resentment and constricting anxieties. Envision your body releasing emotional and physical toxins and for your body to be rejuvenated. n Keep salt to a minimum. Eat a diet rich in fruits and vegetables. n Practice deep breathing. n Engage in remedial exercises such as walking and that include gentle range of motion exercises for your affected area. n When you need compression products, seek qualified and caring manufacturers and sellers. What Your Professional Suppliers Say Before After Kip Bright of Brightlife Direct advises that “Compression stockings are a medical device and they need to be worn properly to ensure maximum benefit. BrightLife Direct does not leave our customers to fend for themselves after their purchase. We have a fully trained, certified staff that is on call to respectfully answer your questions and offer advise. We encourage “newbies” who are making their first compression purchase to call us for some handholding.” (www.BrightLifeDirect.com) Michael Cannon, Product manager for Medi USA can also help. “We provide the highest quality garments in the industry and back them up with the right service and support. MediUSA has been manufacturing garments for over 80 years and it is what we do best. We are the largest manufacturer of compression garments in the world and we have our customers to thank for that.” (www.mediusa.com) “It is important not to neglect an individual’s self-care needs after being diagnosed with lymphedema” Barry Creighton DPM FACCWS, Vice-President of Farrow Medical recommends, “I think everyone should get garments that they can easily don themselves, and that are effective. They should also be meticulous with their skin care.” (www.FarrowMedical.com) n More Information www.cancer.org • Dr. Lewenberg’s Formula treats all forms of hair loss, including genetic, auto-immune, hormonal and cancer related • Use before breast cancer treatment to reduce hair loss • Use after breast cancer treatment to regrow healthy hair faster • Regrow normal hair even if you are taking a medication that can cause hair loss like Tamoxifen®, Arimidex® or Femara® For more information and to tailor the treatment to your specific needs, please contact us at: www.lebedmethod.com www.klosetraining.com www.lymphnet.org www.nwlymphedemacenter.org www.lymphedemacircleofhope.org Adam Lewenberg, MD 184 E. 70th Street, New York, NY 10021 • (212) 249-8800 [email protected] www.BaldSpot.com www.breastcancerwellness.org 21 A Message from Ambassador Nancy G. Brinker Founder and CEO of Susan G. Komen for the Cure® Ambassador Nancy G. Brinker, Founder and CEO, Susan G. Komen for the Cure ® 22 Breast Cancer Wellness Magazine My sister Suzy was born in Peoria, Illinois, in the fall of 1943. The very moment the American dream was about to come true. She was three years old when I was born. Mom says Suzy peeked over the edge of the bassinet and said, “Well! She’s quite a character!” We were best friends from that moment on. Suzy and I grew up watching our parents put faith into action. We learned the importance of volunteering and people coming together with a purpose. Suzy was the queen bee of the neighborhood—very sweet, but she had her mischievous streak. When Suzy was grounded, I was the hostage negotiator. When Suzy exceeded her curfew, I was the peace envoy. When Suzy died, my life’s work was born. Millions of people know the name Susan G. Komen. Her name has become an icon for breast cancer awareness. But I wanted you to know the real Suzy—the Suzy I loved—a bright little girl, the homecoming queen in her dress with pink ribbons, the young woman who loved art and longed to see the world, the dedicated mother who fought for every last moment with her children. Her death set a dramatic series of events in motion, but first and foremost, I wanted to share her life. This was a real woman, just like your sister, your daughter, your best friend. When Suzy was diagnosed with breast cancer in her early thirties we faced this thing with such limited information. There were no web sites, no support groups, very limited treatment options. The lessons learned are so important. We are the CEOs of our bodies. From the beginning, Susan G. Komen for the Cure® has sought to empower women with knowledge, access to care, and better treatment that comes from a wider understanding of this disease. Working as a team with your physicians and caregivers, you can develop a strategy that works for you. Just before Suzy died, she said, “Promise me, Nanny. Promise me you’ll change it so other families won’t have to go through this.” I told her, “I promise. If it takes the rest of my life.” I didn’t realize at the time that it actually would. However, in the wake of all the work left to be done, I am reminded daily how much family matters. I am blessed to have my mother by my side who remains sharp and spry at the age of 89. Along with my son, Eric, who now serves on the Susan G. Komen for the Cure®’s board of directors. What started as a small group of committed women in my living room in Dallas has grown to a movement that reaches around the world. Our local affiliates—from Illinois to Italy—are peopled with remarkable volunteers. The Susan G. Komen Race for the Cure® marches on, tens of thousands strong. These are the people who redefined grassroots while our corporate partnerships redefined cause related marketing. We lit up the White House in pink. We lit up the great Pyramids in pink. Together we changed the culture and science of breast cancer in America. Now we’re reaching out to women around the world. You can join us in the global movement to end breast cancer forever. Learn more at komen.org. Warmest regards, Nancy G. Brinker Ambassador Nancy G. Brinker Ambassador Nancy G. Brinker surrounded by her son and Komen for the Cure Board Member, Eric Brinker, and her mother, Eleanor Goodman, after being honored by President Barack Obama with the Presidential Medal of Freedom. Yes! Send me a FREE subscription! SIGN UP TODAY TO RECEIVE YOUR FREE SUBSCRIPTION Sign up online at www.breastcancerwellness.org or use this form. NAME:________________________________________________________________ ADDRESS:_ ____________________________________________________________ CITY, STATE, ZIP:_ _______________________________________________________ EMAIL_ _______________________________________________________________ Send to: The Breast Cancer Wellness Magazine, P. O. Box 2040, Lebanon, MO 65536 www.breastcancerwellness.org www.breastcancerwellness.org 23 the mAssAGe Forms by American breast care ™ All DAy cool proven cooler than your lightweight breast form! Relative Perspiration in Contact Range of Breast Form 100 80 70 60 50 40 30 20 Resting < >< Walking (3 km/ h) >< Resting > 10 The special patented channel design keeps air flowing! 5 0 5 10 15 20 25 Time (min) 30 35 40 45 Prof. Dr. Bernhard Kurz, University of Munich Relative Humidity (%) 90 50 Massage Form™ Standard Back Lightweight Available at these fine retail outlets: Alabama speciAl touch by eunice 900 Bob Wallace Ave. S, Suite 106 Huntsville, AL 35801 (256) 532-5111 Arizona Alice rAe shops 5420 E. Broadway, Suite #224 Tucson, AZ 85711 (520) 745-5878 Also has a location in Scottsdale tinA’s treAsures VirGiniA G. piper cAncer center At scottsDAle heAlthcAre 10460 N. 92nd Street Scottsdale, AZ 85258 (480) 323-1990 Florida meDicAl DepArtment store 1180 Jacaranda Boulevard Venice, FL 34292 (941) 497-2273 Also has locations in Punta Gorda, Fort Myers and Sarasota perkins meDicAl supply 4005 20th Street Vero Beach, FL 32960 (772) 569-3797 Also has a second Vero Beach location and stores in Sebastian and Port St. Lucie Georgia cAt’s pAjAmAs, ltD. 48 Griffin Street McDonough, GA 30253 (770) 954-1005 pAnsy’s post mAstectomy boutique 2400 Garden Lakes Blvd., Suite D Rome, GA 30165 (706) 232-6600 the women’s shoppe At kennestone 677 church street marietta, GA 30060 (770) 956-STAR (7827) illinois riVersiDe heAlth equipment 1270 N. Kennedy Drive Kankakee, IL 60901 (815) 933-5187 iowa beyonD pink, llc 501 Alta Vista St. Alta, IA 51002 (712) 299-6711 maryland FittinGs by michele 108 Chelsea Grove Court Pasadena, MD 21122 (410) 255-0800 Also has locations in Salisbury & Frederick FrAn’s nu imAGe 12480 Mattawoman Drive, Chaney Building Suite 202 Waldorf, MD 20601 (301) 843-9282 sylene 4407 South Park Avenue Chevy Chase, MD 20815 (301) 654-4200 michigan binson’s home heAlth cAre centers lADy binson’s boutique 26834 Lawrence Center Line, MI 48015 (586) 497-4810 Also has locations and promotion days in Sterling Heights, Troy, Eastpointe, Royal Oak & Southgate. minnesota heiDe’s 701 North 6th Ave. E. Duluth, MN 55805 (218) 722-7860 silhouette shoppe 20 2nd Ave. SW, Suite 115 Kahler Hotel, Street Level Rochester, MN 55902 (507) 289-1512 north carolina unique boutique 2021 E. Seventh St. Charlotte, NC 28204 (704) 377-4356 wAyne phArmAcy & respirAtory home cAre 2302 Wayne Memorial Dr. Goldsboro, NC 27534 (919) 735-6936 north Dakota meritcAre heAlthcAre Accessories just For women boutique 3223 32nd Ave. S. Fargo, ND 58103 (701) 293-8211 or (800) 288-4613 new jersey the brA & GirDle FActory 1900 Route 70 Lakewood, NJ 08701 (732) 477-2227 pennsylvania the perFect mAtch boutique 1180 Lowther Rd. Camp Hill, PA 17011 (717) 774-0144 south carolina thAt speciAl look 101 East Wood St. Spartanburg, SC 29303 (864) 560-7080 south Dakota sAnForD home meDicAl equipment At bloom boutique 1309 West 17th St., Suite LL01 Sioux Falls, SD 57104 (605) 328-6054 tennessee beFittinG you mAstectomy boutique East Tennessee Discount Drugs 721 Hwy. 321 N. Lenoir City, TN 37771 (865) 988-0000, ext. 5 Also has two Knoxville locations and one in Maryville Virginia the brA lADy boutique 1085 Piney Forest Dr. Danville, VA 24540 (434) 793-LADY (5239) steppinG stones women’s center 7575 Cold Harbor Rd., Suite 2D Mechanicsville, VA 23111 (804) 746-9880 west Virginia resolutions 2 62 Perrywinkle Lane Huntington, WV 25702 (304) 733-2030 wisconsin knueppel heAlthcAre serVices, inc. 1444 S. 113th St. West Allis, WI 53214 (414) 258-2800 w w w. t h e m a s s a g e f o r m . c o m We were born into a family, whether a traditional family or non traditional. In a perfect world, we learned about love, discipline and values etc. Throughout the years, there is anger at the family and/or a particular member but most of us come away knowing that “Family Matters”. My personal experiences of the real importance of family came later. I loved my husband and children and all the in-laws and siblings but in the hurried world, all was more or less taken for granted to a degree. When I was first diagnosed with breast cancer 15 years ago, it was a terrifying experience to me and to my husband and children as well. When they got over the initial shock, the notion I was strong was a very helpful force in my two oldest son’s life. Our family mattered and the thought of losing me was difficult. More difficult for my 16 year old son who couldn’t really talk to me about anything at first. He was off with his friends. A couple of months later, he said, Mom, I want you to know how I feel about all this. He sat down at the piano and played the following called CLOSER. The days were so short, the nights were so long. There were times I wished myself far away from you I was a bold little boy, with a soul made out of steel. I thought you knew nothing about the contents of my heart. I wished that I could fly away with you to hold me down. But then the day arrived when I heard you say, My son I am so sorry but I might have to go away Then I realized in my heart how much you meant to me From the first breath of life to the time I learned to read. In the times that I felt pain and the times I felt so free You were always there to catch me when I fell. So please don’t leave me alone You are my hopes and dreams to this day. You are everything to me You are my light and guide throughout these years. Twenty years have passed, you’ve seen my children grow This life with you has got to be the greatest I will know Today, I want you to know That I love you and I always will He composed the lyrics and music which included his positive forward reflection of his hope and intent for me to be in his life for 20 years plus many more. It was so heartfelt, we both had the long needed tears and hugs. This song remains in our family history and our current life. The family life went on, two sons married, six grandchildren and my youngest, who wrote the music, has a fiancee. We have remained close as a family helping each other through adventures and misadventures. I don’t think that ever changes but family matters so we continue to be there for one another. All families are not so lucky. Last year, I was diagnosed with another cancer not related to the breast cancer and a lesion on a vertebrae. I again was terrified at the Stage IV diagnosis. We were at Mayo Clinic and each physician I saw was amazed at the entire family’s presence. Two days of meetings and deciding the route to take. .Everyone made themselves well informed and had queries. We were all together for the treatment and surgery. It required numerous trips out of town, away from children and business but everyone was there with me. A sacrifice made because family matters. A family can be large or small—with two parents or with one or even with other caregivers as grandparents. The important thing to take away is that love is a binding force for each family member. A family is a unit and each person is part of the whole. The words family unit means to encircle and that is the beauty of and reason that Family Matters. Mary Beth O’Reilly Springfield, MO I was 7 years old when my grandmother died of breast cancer. I was clueless, unaware, wondering, unsure. I lost my mother to breast cancer. She was 72. She didn’t talk about it, not wanting me to worry. I was lost, lonely, helpless, sad. At the age of 49, I was diagnosed with breast cancer. Even though I had the utmost support from family and friends, I wasn’t myself. I was emotional, unhappy, depressed, tearful, weak, longing for answers. My daughter Kari Moroz was diagnosed with breast cancer at age 29. I was compassionate, loving, nourishing, encouraging, God’s prayer warrior. Vickie Jenkins • Oklahoma City, OK • [email protected] 26 Breast Cancer Wellness Magazine We are all family. Never underestimate the power of family. I was diagnosed with breast cancer at the age of 42—the same age my mother was when she was first diagnosed—she is a three-time thriver. Things were VERY different for her—people didn’t want to talk about breast cancer back then. They simply sent her home with nothing but an appointment card for the next week. I can’t imagine what was going through her mind as she sat in the parking lot shaking. I was more fortunate, not only because of today’s support systems, but because we went through all this together. Wendy McCool Executive Director, Founder, Survivor & Thriver www.BreastCancerStories.org I was diagnosed with stage IIb invasive breast cancer on July 19, 2007. I went through a bilateral mastectomy, chemotherapy, radiation, and reconstruction. My husband of now 25 years, my two wonderful sons, my parents and my siblings were such an amazing source of strength, support and most of all LOVE. They showed me how much they love and value me and gave me that extra inspiration to fight through all the treatments and complications. I knew I could rely on them for anything, not only during treatment, but well beyond. Pictured: Sons, Troy and Patrick and husband, Keith. Terri Gaertner Centennial, CO [email protected] I’m a three-time cancer survivor and Thriver. The person that said family stands for “Father And Mother I Love You” was right on target. It was the love from family and friends that sustained me through my journey. Their cards, calls, visits and prayers lifted my spirits and strengthened me. My family lives in Reading, Pennsylvania, so they contacted a relative nearby to take me to my chemo therapy appointments and assist me as needed. It takes a village to raise a family and I am blessed to have such wonderful support from family and friends. Truly family matters! Pictured: 50th Birthday Celebration on June 6, 2009 & 3rd Cancer Victory Valerie Jackson Oxon Hill, MD Thriver since 2003 [email protected] I don’t have cancer, but I help those who do. It’s been a challenge to explain to my children why I’m flying off to yet another city to lecture on the value of nutrition in cancer. I’ve kept a memory journal to help them understand what Mommy does. Tucked inside a folder are countless clippings, emails, cards and even a few photos I have received throughout the years from people I have helped. Not long ago, my daughter looked through the folder and said, “You have to keep going Mom, these people need you more than I do.” Kim Dalzell, PhD, RD, LD • President, NutriQuest, Inc. and Author, Challenge Cancer and Win! www.naturesanswertocancer.com My husband Jerry Fleury-Charles and I were married just under 2 years when I received my diagnosis. Even though I had convinced myself that if a mastectomy had to be done I was okay with it. But as I awaited my surgery my husband knew something was bothering me, he asked me what was bothering me, and when I told him of my fears of having to have a mastectomy versus a lumpectomy, he said: “Honey, it is just a boob! I would rather have you without a boob, than to not have you here at all.” Now that is love! Gail Duscha • Tamarac, FL • I am a Thriver! • [email protected] www.breastcancerwellness.org 27 I was diagnosed with breast cancer on February 16, 2006. When I got the diagnosis, my family was immediately at my side to support me. Through my surgeries, chemotherapy, radiation and hospital stays, I knew I could count on my family. My family was my support system, and my grandchildren gave me the reason to fight. People come and go from your life, but my family has always been there and I feel truly blessed. And that is why “My Family Matters.” When I told them about the Breast Cancer Thrivers Cruise, they immediately found a way to go. My daughters, what could I possible tell them? Talk. Talk to your friends. Let them know what is happening. The support that my children needed was no less important then what my husband and I needed. The innate gift of gab my children possess was vital to our family’s cancer journey. Find a confidant, a friend, that one who you can call ANY time and just talk. Whether you are the patient or in support of the patient, you need that person(s) to just talk to. Three and a half years later—I cherish my husband and daughters love, support and talk time. Lynda Hunt Livonia, MI Thriving 4 years 3 months [email protected] Leslie Kestin Culver City, CA 3 ½ years and thriving! [email protected] Courage, strength, and hopefulness— these are just some of the words my family said to me while going through treatment. My husband held my hair back while I was getting sick. My daughter took me to all my doctor appointments. My son held me, told me he loved me and let me cry on his shoulder. These are just some of the things about my family. We all had busy lives before cancer. Cancer it brought us closer. We’ve laughed and cried together, we were always a close family but cancer brought us closer! Wendy Slattery Pasco, Wa 3 years 8 months thriving [email protected] On January 3, 2008, my husband I sat side by side holding hands. He heard the same words as I, “you have Breast Cancer.” Right away, he became my rock and advocate. He fought with me through everything, including the emotional turmoil I went through after all the treatments were done. Even today, he is my partner. We work together and plan the future, cancer free. When I informed my brother Jordan of my diagnosis, he never hesitated. He was there for me right away. If possible, the diagnosis brought us even closer. He flew up to Tampa, not once but 3 times. He paced the hallways of the hospital with my husband, was there when I awoke from the lumpectomy, came with me to chemo and joked with me about my bald head. Jordan has always been my best friend but now I truly know the gentleman and loving person he is. Finally, I am grateful to my parents and extended family. My parents have always been there for me. They, like many of my extended family came down during my treatments. Family has always been important in my life. I know that everyone is here for me in love and support, throughout my journey. Their love and support has made me stronger. (Pictured: Magda, Milt and brother, Jordan) Magda Orkin • Tampa, FL • Thriver of over 2 years • [email protected] 28 Breast Cancer Wellness Magazine I could not have made it as a breast cancer survivor or our new name “thriver” had it not been for everyone in my family. My parents and sister (not pictured) also were instrumental in getting me past cancer. They all but the grandkids attended my surgery and eagerly awaited the results. I am sure it was a very long day for them. We all prayed for the results and had faith. We have always been a very close family but when something like this happens you really realize the true meaning of family. I think it was harder on my family then it actually was on me. I remember trying to be strong for everyone. Also as family members everyone wants to help and please please let them do so—that is the only thing they can truly do to help them deal with the situation and the health issue. About two months after my surgery our daughter-in-law, Mary Kay Gratz (not pictured), had a cancerous brain tumor. I knew I needed to get better quickly to help take care of her and her family. Mary Kay was one of the strongest people I have ever met. She showed a tremendous example of strength, inner courage and faith before her passing. I would like to share the poem Mary Kay left to us. Nancy K. Gratz Jefferson City, MO y of my life, ever. d that this is the best da lize rea nly de sud I e, ok ay, but I did! Today, when I aw if I would make it to tod d ere nd wo I en wh es There were tim ing to celebrate! the accomplishments, the And because I did I’m go le life I have had so far; vab lie be ger. un an at wh e rat served to make me stron Today, I’m going to celeb hips because they have rds ha the n eve , yes d many blessings, an h and a happy heart. y with my head held hig da s thi gh ou thr go ll wi I mingly simple gif ts: I will marvel at God’s see The morning dew, The sun, The clouds, The trees, The flowers, The birds. e my notice. . ulous creations will escap I’ll make someone smile Today none of these mirac life with other people. for n know. nts eve me n’t ite do I exc ne my eo re Today, I will sha kindness for som of act ed ect exp un an perform ms down. I’ll go out of my way to ment to someone who see t how deeply I care for them and how pli com e cer sin a e giv Today, I’ll ne I love jus l he is, and I’ll tell someo I’ll tell a child how specia being grateful for all the much they mean to me. at I don’t have and start wh t ou ab ing rry wo it Today is the day I qu s already given me. Divine Plan wonderful things God ha se my faith in God and his cau be e tim of ste wa a t rry is jus I’ll remember that to wo ll be just fine. ns. wi g hin ryt eve ensure se my eyes to the heave d, I’ll go outside and rai be d for these to Go go I ise e for pra ll be t, wi I d igh And ton d the moon, an an rs sta the of ty au be I will stand in awe at the magnificent treasures. low, my head down on my pil As the days ends and I lay . life my of y da for the best se I know tomorrow with expectation becau I will thank the Almight d ite exc ld, chi ted ten of a con And I will sleep the sleep day of my life, ever! st be the be to is going d has called us to do... Please Start Living as Go Love, Mary Kay Gratz I’M FREE Don’t grieve for me, for now I’m free I’m following the path God had laid you see I took his hand when I heard Him call I turned my back and left it all. I could not stay another day. To laugh, to love, to work or play. Tasks left undone must stay that way. I found that peace at the close of the day. If my parting has left a void, Then fill it with remembered joys. Friendships shared, a laugh, a kiss, Oh yes these things I too will miss. Be not burdened with times of sorrow. I wish you the sunshine of tomorrow. My life’s been full, I savored much. Good friends, good times, a loved one’s touch. Perhaps my time seemed all too brief. Don’t lengthen it now with undue grief. Lift up your hearts and peace to thee. God wanted me now; HE SET ME FREE. –In memory of Mary Kay Gratz www.breastcancerwellness.org 29 FROM THE FITTING ROOM It’s All About the Bra by Linda Jackson A Good Fit Begins with the Right Bra It’s all about the bra. A proper prosthesis fitting begins with a comfortable and precise fit. A pocketed, or sometimes referred to as a surgical or mastectomy bra is similar in many ways to the bras you may have worn in the past. There are many styles and several colors to choose from. The pocketed bra is designed to hold a breast prosthesis (silicone or other), to create a balanced and natural appearance. A post-surgery bra is designed higher in the front and often is higher under the arms. It has special pockets sewn inside the cups to hold the prosthesis. Getting the Proper Fit When you are ready for your bra fitting, you will need to locate a trained, certified post-surgery fitter. For a fitter to become certified she must first complete extensive training. These comprehensive training classes are offered through accredited Orthotic and Prosthetic Certification Programs. When a post-surgery fitter becomes professionally certified, she has met all of the criteria necessary to work independently within a defined scope of practice. In addition to learning how to select the appropriate products and correctly measure for a proper fit, she also may have instruction in topics such as the different types of surgical procedures, anatomy of the breast, side effects of breast cancer treatments, and lymphedema. When your bra is properly fitted, your prosthesis should stay securely in place and you should not notice the weight of the silicone prosthesis. When the silicone prosthesis is fitted to you, it will weigh approximately the same as your natural breast. If the prosthesis feels heavier, the bra may not be the correct size or fit. The more snug to the body the bra fits, the less weight and movement you will have, and the more support you will achieve. During your fitting, if there are areas inside your bra cup that the prosthesis does not fill, there are fitting aids available at minimal cost, in many shapes and sizes that can be sewn in to smooth out the folds. Some bra styles come with little pockets sewn in under 30 Breast Cancer Wellness Magazine the arm to hold a specific brand of fitting aid. When you choose to wear a lighter weight silicone prosthesis, or a fabric or foam breast form you may find that the bra will ride up, or pull to one side. This occurs when there is not an equal amount of weight on the natural side and the surgery side. The only solution is to find a breast form with more weight to hold the bra in place. If both breasts have been removed, you will still need to be measured and fitted for a bra in the correct circumference size. The cup size is negotiable, so you can choose to be as large or as small as you wish. It is best to keep in mind that your bust size should be in proportion to the size and shape of your body. Your fitter can help make recommendations. When you have completed your fitting you will want to make sure that the bra feels comfortable yet snug around the rib cage, and that the prosthesis fills the cup. Projection and fullness of the prostheses should match the remaining breast. Check to see that the bra is centered in the front, and the top of the bra cup is filled out to match the remaining breast. Check your straps Bras stretch with time, laundering and wear. If the bra has stretched and becomes loose fitting it will not offer enough lift or support. Periodically check the shoulder straps, they may need to be tightened. You can also try fastening the back hooks to the end, or tightest position. If after trying both options, the bra still does not feel comfortable it is best to discuss other alternatives with your fitter. Should you experience weight gain or loss and feel that your bra and prosthesis fit is no longer appropriate, it is time to make an appointment for a new fitting. Under such circumstances most insurance companies and Medicare will reimburse for replacement products, even if you are not yet eligible. Call your fitter for more information. Caring for your bra Pocketed bras should be cared for and laundered like all fine washables. Wash by hand, or on delicate cycle inside a mesh lingerie bag, in cool water. Always air dry, do not put bras in the dryer, it will cause them to discolor, stretch and lose their shape. Bra Choices Because all women wish to feel feminine, comfortable and special, the choices in pocketed bras have never been as exciting as they are today! Ladies Ladies First First Nearly every style and color you loved prior to surgery is available at your closest specialty store. To find a certified post-surgery fitter near you, ask your physician and nurses for recommendations, find out where the members of your breast cancer support group go, or look in your telephone book yellow pages under the following listings: • Bras • Breast Prostheses • Hospital Boutiques • Medical Supply Stores • Lingerie • Orthotics and Prosthetics • Mastectomy Shops • Prostheses • Prosthetic Devices • Wigs Call ahead to make an appointment with your fitter, at this time she will help you determine if you need pre-authorization from your insurance company before your visit. Insurance If you have been diagnosed with breast cancer, all necessary post surgery products are covered by Medicare and insurance. Prior to, or immediately post surgery you are eligible for a SOFTEE® Prosthetic Recovery Camisole. After healing following a lumpectomy or mastectomy, insurance generally pays for pocketed bras and prosthesis, every year. Typically Insurance also covers some or all of the cost of a full, partial or shell prosthesis for those in the stages of, or even after- if needed, reconstructive surgery. Insurance benefits vary, so prior to purchasing it is best to contact your provider to verify coverage and reimbursement amounts. Celebrating Celebrating20 20years yearsof ofcomforting comforting specialty garments women with women with specialty garmentsdesigned designed for recovery and leisure day & for recovery and leisure - day &night night TM TM • Two Twoinner innerpockets pockets • Seamless stretch Seamless stretchcups cups • Microfiber Microfibersoftness softness • Wicks moisture Wicks moisture • Non-binding Non-binding • Fabric Fabriccomfort comfortband band • No Nohooks, hooks,wires wiresor orstays stays • Slip-on convenience Slip-on convenience • Latex LatexFree Free Available Availablein inlilac, lilac,mint, mint,periwinkle, periwinkle, black, ivory black, ivory& &white white For more information about our garments, or to find a retailer near you, contact us at: 800-497-8285 ladiesfirst.com ® SOFTEE SOFTEE®TWO TWO Prosthetic Recovery Prosthetic Recovery Camisole Camisole Linda Jackson is a BOC Certified post-surgery fitter and a 25 year survivor and thriver. She can be reached at ladiesfirst.com or 800-497-8285. n ® The TheSOFTEE SOFTEE®TWO TWOcan canbe beordered ordered online through UBCF at online through UBCF ataaspecial special discount. discount. Also, Also, Ladies Ladies First First will will donate donateaaportion portionfrom fromeach eachsale saleto to help helpsupport supportUBCF UBCFprograms. programs. www.ubcf.info/softee www.ubcf.info/softee All five SOFTEE® camisole styles can be purchased directly through Linda Jackson Breast Cancer Survivor and Thriver Founder and President of Ladies First, Inc., SofteeUSA.com, and Ladies First Choice, a Breast Cancer Boutique in Salem, Oregon www.softeeeusa.com www.LadiesFirst.com Soft Soft Silhouette Silhouette Bra Bra& &Pantee Pantee “Finally, “Finally,after after44years, years,IIhave have found a truly comfortable bra --the found a truly comfortable bra the TM TM !” S.H. Virginia Soft Silhouette Soft Silhouette !” S.H. - Virginia SofteeUSA.com For Recovery & Beyond 866-605-8585 Our Our products products are are 100% 100% American Americanmade madefor forAmerican Americanquality! quality! ® SOFTEE SOFTEE®The Thefirst firstand andgold goldstandard standardprosthetic prostheticcamisoles. camisoles.Survivor Survivorowned owned& &operated! operated! Profiles of Wellness What’s Next for My Life? Thriving Instead of Just Surviving! by Paula Holland De Long I was diagnosed with breast cancer when I was 37, in January of 1997. Before my diagnosis, I thought I was successful but I was dying inside. Cancer was the big wake up call for me. Through this dark night of my soul, I faced the unthinkable prospect of an untimely death and came out into the light physically flawed but more vitally alive than I have ever been. The experience of diagnosis, surgeries, and chemo granted me permission to choose for the first time in my adult life. It forced me into brutal honesty with myself, people I love, and to question my purpose for being alive. This forced honesty created purpose and clarity for me beyond my wildest dreams. Cancer took away my marriage, and led me to my soul mate. Cancer forced me to admit that I hated my career, and inspired me leave it and pursue my passion. Cancer gave me the strength to truly believe that I could do anything, and gave me the gift of allowing people to help me do it. Like many of you, one day I was living my normal life and suddenly four weeks later I was in a hospital minus my left breast, wondering what had hit me, afraid I was going to die. I had noticed a painful lump in my left breast so I mentioned it to my doctor during my annual physical. She assured me it was probably nothing since I was young, healthy, and had no history of breast cancer in my family, but suggested a mammogram just to be sure. The next thing I knew I was sitting in a surgeon’s office hearing the words, “I’m sorry but you have breast cancer. You need surgery as soon as possible.” Terrified and not knowing what was next for my life, my shock and disbelief had barely sunk in before I was living it. I remember the pain and fear of not knowing what was going to happen. The shock when my lumpectomy came back 32 Breast Cancer Wellness Magazine with “bad” margins, necessitating a mastectomy the next week. Facing the idea of losing my hair during chemo. Having to decide about having reconstructive surgery or not. Facing my fear of dying. Wondering what I had done to deserve having my life turned upside down How could this be happening to me? After 8 years of being afraid to try, Paula made it to the top of the wall, cheered on by 7-year old oncology patients at the summer camp Paula ran. I remember the tedious numbness while putting one foot in front of the other during chemotherapy. Keeping my “I’m fine” face on and my wig straight in 90 degree heat and 90% humidity. Trying to be superwoman in a time when I could barely get out of bed. All of my focus was on reaching that magic time when this cancer stuff would end and my life could go back to “normal”. Several surgeries and four rounds of chemo later, my treatment finally did end. Everyone was so thrilled that I was “done” with cancer. But I didn’t feel excited. I was exhausted, bald, weighed 95 pounds, had scars all over my body. I slowly realized that I didn’t know what normal was anymore. Before cancer, I thought I would be happy when I got a promotion, finished everything on my to-do list, or made things easier for other people. If something needed to be done I did it. If someone else wasn’t doing it “right” I fixed it. I worked 60+ hours a week and came home cranky and exhausted. I was always striving for something but never taking any time for me. My life was full of have-tos, shoulds, and musts. My logic was fuzzy but my intuition was speaking the truth to me. The stuff I got and the things that I achieved didn’t take care of me when I was sick, love me when I was wrong, or provide inner peace or appreciation for what I did and who I was. In fact, my life before probably contributed to making me sick. Before long, I had to admit things that seemed so important before cancer didn’t matter now. The truth was, I wasn’t thrilled to have my old life back. Something was wrong and I had no idea what to do about it. Some serious soul searching began. An inventory of my life was long overdue. I thought about what things brought me down, zapped my energy, or made me feel bad about myself. It became obvious that I had a whole lot more negatives in my life than positives. At that point, consciously and subconsciously, cancer became a great motivator for me. I knew in my heart I had no choice but to power up and try some new ways of living and being. I really did wonder what was next for my life. I decided to start with things that made me feel good, made me feel alive, things I was drawn to. Spending time outside every day, enjoying time with the people I loved, listening to healing meditations were really, really resonate with my heart and spirit. I quit committing every single minute of my day to things that I HAD to do or SHOULD be done. I wanted some peace and joy in my life. Like many survivors, I wanted to thrive rather than tolerating the things that made me feel numb. Listening to my intuition, I decided to take a lower paying, mid-level job instead of going back to my high stress executive position in advertising. I started gardening and walking the dog. Pretty soon my husband was asking me “Who are you and what have you done with Paula?” (He didn’t mean that in a positive way). I was feeling better by then, but I still kept wondering “what’s next for my life?” and feeling “there’s got to be more.” I started to truly heal when I was trained as a Reach to Recovery volunteer, about 18 months after my diagnosis. (Reach to Recovery is an American Cancer Society visitation program where breast cancer survivors visit newly diagnosed patients.) This training was my first contact with other women who know what it is like to face cancer and death, and come out feeling happy and inspired. Their strength, compassion and honesty opened my heart in a way I had never felt before. Suddenly, I wasn’t alone with my cancer anymore; I had a family of women who understood all the big and little things that I was struggling with. They told me I could get a prosthesis to fill up the empty hole in my bra. They showed me that my frustration with going back to my old life was okay. And mostly, they gave me the courage to say “no” to negativity and “yes” to choosing a happy, joyful future on my own terms. Over the next year I visited 3-5 newly diagnosed women each week. Every time I met with them I could see their faces light up when their eyes inevitably went to my chest and my smile. When we met they were fearful, lonely and afraid. Who wouldn’t be? Their normal life had suddenly been stripped away. When I left we were hugging each other and they had hope because if I got through this they could too. I became stronger and more confident myself every time I was able to help one of these women. I was beginning to thrive. Things were still rocky in my personal life. My husband and I had grown apart, and my job, although less stressful, still left me empty and unfulfilled. Again my heart and intuition kicked in. I took the biggest leap of faith of my life. Over a four month period my husband and I parted (amicably); I gave notice to my job; bought my own house; and started my own company. Everyone thought I was crazy, or having a mid life crisis, and maybe I was. I did know in my heart and my soul that I was doing what I was meant to do, and I was powerless to deny it. So there I was. No husband, no clients, and a looming mortgage payment, trusting that somehow God and I would figure it out. The voices in my head were screaming things like “You’re too old to start over. You only have one breast; no one will want ever want you again,” and “you’re going to fail and be living in your car.” I gathered up my courage and asked my employer to become my first client. I was shocked when they agreed. The before-cancer Paula would have been afraid to ask. Other friends and connections from my career in advertising hired me on a freelance basis. I expanded my volunteer work with the American Cancer Society. Within a few years, the American Cancer Society had become one of my biggest u www.breastcancerwellness.org 33 clients. I had followed my heart and successfully created my own company! I also had a wonderful new man in my life. Convinced that my scars made me undesirable, I had been afraid to date. But when I told Chuck about my breast cancer, he took my hand, put it to his heart and said “I don’t care. I love all of you just the way you are.” Soon we were married. I was happy, healthy, and thriving in ways that had never been possible before my diagnosis. Before cancer I was overworked, overstressed Type-A person who had no appreciation for anything. I was crystal clear and very vocal about what didn’t work, what was wrong with my life, or other people’s choices. Unknowingly, I had been living my life as a victim. Cancer had turned me into a woman of choice, gratefulness, and joy. I never dreamed that I could be so happy. My higher power still had plans for me. A new passion was calling my name. By then I had worked with hundreds of cancer survivors, children with cancer, and their families and loved ones. I saw them struggle with the emotional and practical realities of the disease. I realized how much so many people I’d worked with were truly changed emotionally and spiritually. Cancer had Husband Chuck and Paula celebrate after walking the Survivor lap at the Parkland, FL Relay for Life. awakened an urgent need to make the most of the time they had, and to give back to others. It was the “how” of doing it that challenged them. I also gained a healthy respect for the many wonderful oncology healthcare professionals that do a fantastic job of treating the medical aspects of cancer, and how they tried to help their patients with the same emotional and practical challenges that I had faced. But I knew there was more I could do. It had taken me three years of strug- gling with my emotions to get my life back after my cancer treatment ended. That’s too long. I knew in my heart that I was meant to help. I was drawn to an emerging field called life coaching. I realized that coaching could be a powerful tool to help people with cancer and decided to start my career over and be trained as a coach. Coaching was all about making changes and living with purpose and passion. About living with a focus on what matters most to each individual, not what society or others think happiness should be. This idea was really resonant with me. After all, that’s what I had done for myself. I had been toying with the idea of creating a life coaching workshop that would help patients who were ending treatment rebuild their lives but I didn’t think I could do it. Again, my higher power stepped in. At my very first coach training I met a doctor, Mike Bauerschmidt, from my home town who knew an oncologist who agreed to test my idea. Within six months, we had done two pilots of the What’s Next For My Life?™ workshop for patients who were ending treatment. We began bringing the workshops to cancer treatment centers and support organizations Looking for Inspiration on your Cancer Journey? Buy the book today! Are you ready to go Beyond Treatment? Heather will be speaking at the 2010 North Coast Breast Cancer Conference Kalahari Resort, Sandusky Ohio October 2, 2010 It’s time to go beyond treatment! Contact Heather today. 517-262-8397 www.GoBeyondTreatment.com [email protected] 34 Breast Cancer Wellness Magazine “Letters to Sydney is a compelling and riveting approach to give hope to those experiencing cancer. it is a must read for every woman diagnosed with cancer.” –Greg Anderson, Author of The Cancer Conqueror Founding Chairman & CEO Cancer Recovery Foundation of America AD-Spr. 2010 Breast Wellness like Gilda’s Club in south Florida. We focused on helping patients realize that their emotions were normal and natural. We taught them how to explore their personal values and bring them into their day to day lives. Survivor after survivor reported huge increases in their feelings of acceptance, personal empowerment, and ability to make decisions and take action. Once again, my faith and passion were expanded, and my happiness and gratitude soared. I was doing the work I was meant to do and loving every minute of it. My second company, What’s Next For My Life, Inc. was launched. My connection with my higher power was growing. My life was more balanced between work, love, giving back and having fun than ever before. The last few years have been the happiest of my life. I’m still working with survivors and finding new ways to support them. I believe that cancer is a wake up call, a reminder that thriving is about being our own unique selves, and actively working to make the world a better place, one small or large step at a time. My mantra has become, “Why wait and why worry?” My courage is based on the absolute conviction that if I can do cancer, I can do anything. My newfound way of showing up in the world is based on compassion for myself and others, with excitement and curiosity about what we can do together, rather than alone. Dealing with cancer and all of the changes it forced on me inspired me to contribute to the world instead of standing on the sidelines. It wasn’t easy. It was definitely worth it. As I finish writing this story, I’m singing out loud to one of my favorite songs. The line that resonates in my heart says “I can be myself now finally, in fact there’s nothing I can’t be.” I wish this for each and every one of you. n Paula Holland De Long CPCC, ACC President/Survivor Life Coach, What’s Next For My Life, Inc. Cancer survivor, certified life coach, author, and speaker Paula Holland De Long CPCC, ACC, is an authority on how the lessons of survivorship can bring joy, passion and purpose to anyone’s life. Her first book, the What’s Next For My Life? Companion Journal for Cancer Patients has just been published. Her workshops and classes are offered at cancer treatment centers and support organizations. Her teleconference groups attract participants from around the country. Call 954-5656894, or visit WhatsNextForMyLife.com for more information. 3/10/10 10:51 AM Page 1 NEW Nearly Me ® FLOW-GEL™ Lightweight Breast Forms offer greater comfort AND a more custom fit. 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Products or call 1-800-887-3370 for Whatever your the retailer near you. shape after surgery, Nearly Me ® Mastectomy Products ™Trademark and ® Registered Trademark of Nearly Me Technologies, Inc. ©2010 NMT. All Rights Reserved. www.breastcancerwellness.org 35 Profiles of Wellness Family Matters for a Single Mom In March 2006, I went through a divorce ending a 20-year relationship. This was not an easy decision but one that I knew I had to make for me and my young son, Wyatt, who was five. The summer of 2006 flew by with moving and settling into a new home and preparing Wyatt to begin kindergarten. The year had been so stressful. I noticed that a lump in my left breast, which I had actually found in May 2005, but did not show up in the mammogram, was larger and very tender—it actually hurt. I called my doctor and was able to schedule an appointment with his nurse practitioner on October 10, 2006. Upon her examination, she immediately referred me to the Breast Care Clinic for a diagnostic mammogram, which was performed on October 20, 2006. The results of the test were not good. All I could think of was this can’t be happening to me; who will take care of my son; how can I get through this; this must be a mistake; and will I die. The night of my diagnosis, I was in disbelief and so numb. My brother had actually given away tickets to the World Series, with the Cardinals playing, so that he could be 36 Breast Cancer Wellness Magazine by Kimberly Davis there for me when the diagnosis came in. Early the next morning, Wyatt became ill. I think this was God’s way of telling me to stop feeling sorry for myself and take care of the incredible son that I have. My son’s 6th birthday party came and proved to be a very difficult and emotional time for me. Several times during the party, I had to escape to my bathroom to cry. All I could think of was if I would live to see him turn 7. Who will give him birthday parties if I’m gone? It was so important for me to have a lot of pictures taken on this day. Fears filled my mind and offered no escape for what should have been a happy occasion. There were several things that I had to do before going in the hospital. The most important thing was having a picture taken with my son. We had our picture taken at Picture People. I even had one taken of just me. The next item was making sure my trust and will were updated, and that my son was taken care of financially. I spent hours each night well into the early morning hours putting together a binder of my financial information, house information, insurance policies, investments, friends to contact, and other pertinent information. I even wrote my own obituary and funeral instructions. It was so incredibly important for me to do this, to be prepared, and to maybe have some control over this situation. I honestly wanted to make it easier for my parents in this difficult situation and I wanted to be the best mom that I could be under these circumstances. This was my personal vow. Christmas arrived, after two chemo treatments, and was accompanied with thoughts of not being around for the next Christmas. I have always loved Christmas especially decorating packages and buying toys! It continued to be a difficult time for me emotionally. The new year arrived, along with my 43rd birthday and the loss of my hair—not a great birthday present! It was so very difficult watching my hair fall out and many tears were shed. I almost believe that this was more difficult than actually losing the breast. We told Wyatt that mommy was very sick and would have a lot of doctor appointments to help her get better. I could not use the word cancer to him. We talked about my hair falling out but that I would still be his mommy and would do my best to get better. I was afraid to tell him that I would be okay—because at the time I honestly didn’t know if I would ever be okay again. February 2007 brought even more challenges for my family as we were faced with another family member diagnosed with cancer four months to the date of my diagnosis– my dad. Here he and my mother had been right by my side since the ordeal started. Dad was going with me to the chemo treatments and Mom was taking care of Wyatt, as well as the house. This was an incredible shock especially since he was diagnosed with an incurable cancer, multiple myeloma. I remember asking “What have we done wrong? Why do we deserve this? I kept thinking that this was another nightmare that would go away, but it didn’t. I never imagined sitting next to my dad while we both were getting chemo treatments at the Hulston Cancer Center. He faced radiation, chemo treatments, and a stem cell transplant. Now, my mom was faced with an even greater challenge—she had to take care of my dad, me, and Wyatt. Her strength was amazing and exemplifies the remarkable woman that she is. So many times during the treatment, my son would say that he couldn’t wait till Mommy got better and could play with him. These were difficult times for both of us. At one point, he asked me if Harry Dog, his favorite stuffed animal, would get sick. I honestly didn’t understand what he was asking at first. He then asked me if his dog would get cancer like his mommy and papaw had. How do you respond to a 6-year old asking such a question? My heart was so sad that he was faced with dealing with cancer at such a young age and that I could not shield him from the disease. Many times we would lie in bed and watch TV or read together during my treatments. The last four years have proved to be a difficult journey for me, my son, and family but I see the light at the end of the tunnel. Reconstructive surgery was performed on February 14, 2008, and a new chapter on my journey began. I won’t say that this process was easy but I know I made the decision that was right for me. My body feels whole again, despite some scars. I made it to see my son turn 7, 8, and 9; shared three more Christmas with him; and watched him play basketball, lose 5 teeth, and earn several belts in martial arts. My son and family were my inspirations to overcome this challenge. I realize that I am growing into a new normal life. Not only am I more appreciative of my life and each new day, I also Top to bottom: Kimberly’s parents— Eddie and Jolene Puckett. Kimberly and Wyatt. realize that I need to be more aware of the needs of my health. I learned about forgiveness and to heal issues in my past. I also learned that I am not always in control, but by sharing my experiences I really feel better about the breast cancer healing experiences that I have been through and that I have grown stronger as a woman and as a parent. The experience has shown me the depths and strengths of my family and friends that I hadn’t realized before, how much they mean to me, and how I borrowed from their strength until I was able to be strong again for myself. I continue to come to terms with my new normal. Having breast cancer has also made me less sensitive to others complaining of what seems like insignificant things to me. I don’t have much patience for complaining or negative people. Some days I feel that I can do anything and other days, I am more cautious about my left arm and tend to be more protective after having the mastectomy. I always felt that I could do anything such as my own landscaping. Now I seem to hire more things done and ask for help more than I would in the past, and that is okay. I also feel stronger spiritually and have come to realize the importance of positive thoughts and prayers. I truly believe things happen for a reason even though we may not always understand the why. When I was diagnosed, there were plenty of tears, disbelief and angry moments from the very beginning of this journey. I know some of my conversations with God probably bordered on disrespect, selfishness, and ungratefulness. In fact, I know they did, and it didn’t seem like He was listening to me. My life became centered around doctors, medicine, chemo, radiation, surgeries, and disease. I struggled with not being able to control anything, everyone was telling me what to do, when to be at the doctor, what the treatment was, how much medicine. I had always been healthy up to that point and now I had a calendar to follow for each day. It seems like my strong will (or stubbornness as my mom would say) had to find a new avenue and that was to use my body and mind best I could to get well. Sometimes reading helped me to find the answers I needed. Waking the Warrior Goddess, Nordie’s at Noon, and Finding the “Can” in Cancer helped me and today I am reading Debbie Ford’s books about life and going forward. When I look at my son, who is now 9 and being appreciative for him being in my life, I feel so alive and so grateful. We have celebrated three more birthdays together. I count my blessings for the incredible support that I had from friends and family. It is like I have been given another chance to appreciate everything in life, simple things like the blue sky, and wonderful times with family and friends and to be a more giving person and maybe make a difference in the world, and to understand the importance of having faith and God in my life. I found a new channel I guess for my stubbornness and realized I could also help others face the same challenges with cancer. I learned to be more positive and hopeful, and started volunteering for the Breast Cancer Foundation of the Ozarks in Springfield Missouri. Mothers facing breast cancer have special circumstances and many additional worries. That is why I believe I was filled with the need to make a difference or touch the lives of women and mothers who might be experiencing what I did, so they wouldn’t feel isolated or alone and perhaps I could help them feel less afraid. I have plans for the future, I want to travel and see the world, do public speaking for women’s advocacy and to serve on a charitable board and to make a difference. If God is willing, I hope to see many more of Wyatt’s birthdays, his graduation from high school and college, and his wedding day as long as it is after his 30th birthday... n www.breastcancerwellness.org 37 Profiles of Wellness Shouldn’t We Always Celebrate Life First? by Janet Chambers July 3, 1999, 8am. Just after celebrating my 40th birthday…. Ringing phone cuts the silence. I answer with a sleepy “Hello”. “Janet? I’m sorry but I wanted to let you know as soon as possible; your biopsy results are back, (silence); its breast cancer.” Until then, I thought I was invincible. 3 beautiful daughters, 3 years newly married, a great job I loved, a new house, and a handsome stepson. Life was finally coming together! But the biopsy results rallied my family in ways that were truly a blessing to me. How would I have known my husband, Mike, my mom, step son, and 3 daughters would embrace my healing needs and inspire me each step of the way. Preparation was key. 1st: Rally the troops. 2nd: Plan the attack. 3rd: Plan a celebration party! Everyone had his/her own personal contribution. More about the party later! It seems that moms always heal with food. Mine was no different. She was so supportive and encouraging. She insisted on encouraging my healing with breakfast every day, even serving juice in a wine glass no less. Before I was diagnosed (1997), my husband, Mike, and I purchased our dream home and started to purge an area of the backyard of annoying, never tended weeds that were climbing our trees. Similar to cancer, the weeds were out of control, destructive, and ultimately suffocating the life right out of the trees. A good friend of mine, Dana, compared the weeds suffocating our trees to negativity. She told me once “You have to get the negativity out of your life. We call that getting the snakes out of your garden.” After diagnosis, Mike finished the area by creating a ‘healing garden’. It was also a place of solace, a place to grieve (as we all need a good cry once in awhile when going through chemotherapy!). It was also a place to restore 38 Breast Cancer Wellness Magazine Janet and Mike Chambers and their daughters Linda, Shelly and Kelsey. my dwindling energy, renew my spirit, meditate (taking time to pray and read scripture) and heal. It was far away enough from our house that I actually felt like I was escaping reality for a few brief moments. For someone with no energy, it seemed like an all day hike! The kids chipped in with cleaning and helped each other with homework. We endured each day, finding laughter in the oddest places and prepared for the journey ahead of us. Like the day my hair fell out. While in the shower that morning, I mistakenly thought the clod of hair on my shoulder was a mouse! Really, why would there be a mouse in my shower, conveniently perched on my shoulder? I let out a piercing scream, causing a chain reaction of my husband dropping a hot coffee pot! It was a Sunday, so when I called my hairdresser, she opened the salon just for me. We laughed about my morning and the fictitious mouse, while she shaved. Then I saw it... My beautiful brown hair falling on my face, falling on my chest, falling to the floor, and my tears falling with them. Later at home and trying to keep the bald head a secret from the girls, I wore my wig and seemed normal during dinner. They progressed to their upstairs rooms to finish homework and my tears fell again. Mike convinced me to shed the wig and let the girls see me without hair. I agreed and removed the hot, itchy wig…until I got to the steps and one of my daughters (Shelly) stepped out of her room and said “Hey mom”… Panic set in…hurry, I thought, the wig, quick, do something…. She flipped on the hall light, looked down the steps at me, eyes wide and declared “I completely forgot what I was going to ask you, but …but…why is your hair on upside down?” We laughed till our bellies ached, and as the other two girls met up with us in the hallway, I removed my wig. We embraced and the tears fell in unison. Eric, my stepson, was studying at University of Kentucky at the time. However, that didn’t stop him from calling to check on my progress and give encouragement, sending his love each week and praying for my recovery. It is so important to know that you matter in others lives. The act of others supporting you in even the simplest gestures becomes ever so essential in recovery. As part of recovery, ALL of us planned the “Celebration of Life” party! Personally, I think the party should have been #1! Shouldn’t we always celebrate life FIRST? We invited everyone we knew, fired up the grill, brought in the food, music, and adult beverages! We even blew bubbles! Then we built a bonfire! As we built the fire, up in smoke went all the pain, all the limitations, all the despair, and all the negativity. Along with that, we conveniently tossed in prescription bottles, scarves, false eyelashes, and get-well cards! Wow! What a cleansing experience that turned out to be! I do believe cancer was a snake in my garden. Now that I think of it, I think it was a PYTHON!” But, little by little, leaning on my circle of support, trusting my surgeons, oncologist, and changing my lifestyle, we eliminated the snake (cancer) and all the negativity that goes with it from our otherwise content garden, our Healing Garden! You know, it all started in the garden, it always did. Clockwise: Janet used a firepit to symbolically burn past unwanted memories of her breast cancer experience. Janet and Mike Chambers children, Eric, Linda, Shelly, and Kelsey. Janet celebrated life with a family party along with friends Robin and Ronnie and her husband Mike. Epilogue: Well, here I am 11 years out, surviving, thriving, and enjoying life for what it is. A gift. Looking back, I realize that pain prepares you for joy, disease prepares you for health, and that God sent me what I needed to turn all those difficulties into victories. It’s called healing. Now, I get enormous pleasure from our 6 grandchildren and 2 step-grandchildren. Today, I am so thankful to have the opportunity to hear those precious words…“I love you Grandma”! n I Have Wings Breast Cancer Foundation took flight in 2002. WINGS is an acronym for “With Inspiration No-one Goes Solo”. Our mission is the 3 E’s: Educate our community on breast cancer prevention. Ease Stress of families undergoing a breast cancer diagnosis and Endorsing research. We accomplish this by assisting families with emotional and financial assistance during a cancer diagnosis, and supporting Wood Hudson Cancer Research Laboratory. We are located in Northern Kentucky and assist families in the Cincinnati, OH Tri-State area. For more information go to www.ihavewings.org Look for more wonderful things to come with the collaboration of our strategic alliance with Studio One Eleven, a division of Berlin Packaging. For more information contact www.breastcancerwellness.org 39 2010 Breast Cancer Thrivers Cruise MEMORIES 4th Annual 7 day Eastern Caribbean May 14-21, 2011 MORE FOR YOU More Value More Fun More Memories 5 T H A N N U A L B r e a s t C anc e r T h r i v e r s C r u i s e Sailing out of Miami, Florida to Half Moon Cay Bahamas, St Thomas, San Juan Puerto Rico, and Grand Turk on the Carnival Liberty Cruise Ship ote , Pub lisher Join us on our 5th annual Breast Cancer Wellness Cruise. We have more fun and special times planned for you than ever before. Breast cancer survivors and thrivers from across the country will come together and celebrate. And what better way to relax and have fun than on a Carnival cruise and to share these good times with other breast cancer survivors and thrivers. Bev , ms lly W illia She S o ut h e r n T ra $470 $620 * INSIDE P/P OCEAN VIEW P/P * BALCONY P/P *Port charges and taxes $252.64 per person. Passports required. v el G t rea $370 * er V ly I always look forward to this annual event. Breast cancer survivors and thrivers are some of the most courageous and compassionate women I have ever met. I hope you will join us. Call me today so that I can assure you of the best availability and value. Carnival reserves the right to re-instate the fuel supplement for all guests at up to $9 per person per day if the NYMEX oil price exceeds $70 per barrel. Call Shelly Williams at Great Southern Travel 1-800-810-8610 [email protected] For more information, visit www.breastcancerwellness.org and check us out on facebook. 44 Breast Cancer Wellness Magazine Pink Pages Pages Breast Cancer Wellness Pink Pages and Website provides you the easiest and most convenient wellness resource directory at your fingertips. www.BreastCancerWellness.org DIRECTORY Alternative Medicine Footwear Hats & Headwear Organic Recover Cap To Order: The Biomat Store LLC The Biomat is a Far Infrared Therapy Pad for home or clinic. Used to prevent metastatic cancers, strengthen the immune system, detox the body and promote deep relaxation. FDA cleared. Call 866.952.8111 toll free for a free book. [email protected], www.thebiomatstore.com Cards / Stationary Cancer Cards Real paper greeting cards mailed direct. Free Personalization and Free Shipping. Humorous Cancer Cards, Kids Cards, Traditional and Spiritual. All cards environmentally friendly. 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