Be Fit. - Breast Cancer Wellness
Transcription
Be Fit. - Breast Cancer Wellness
BCW SUMMIT 2012 p. 6 Be Fit. Be a Thriver! ™ Must Know Info Integrative Medicine DAY BY DAY Make the best of each day Laugh Christine Clifford ‘Til It Heals The Ultimate Food Fight NON-PROFIT PRST STANDARD US POSTAGE PAID PERMIT 205 BOLINGBROOK, IL $4.95 Volume 6, Issue 4 Winter 2012 Cleanse, Nourish and Balance Founder of Amazon Herb Company “Amazon John” Easterling and his wife Olivia Newton-John Health Pack This remarkable collection of Amazon Herb formulas has been carefully designed by health care practioners to cleanse, nourish and balance all of your body’s systems. A full spectrum of Rainforest botanicals to help cleanse, nourish and balance all of your body’s systems. • Supports a healthy immune system* • Promotes increased strength and energy levels* • Enhances overall intestinal health and digestion* Fiberzon Plus™ is a synergistic blend of 16 organic Rainforest herbs including sangre de drago sap for enhanced intestinal support and rhubarb root to stimulate regular bowel movements and cleansing. This balanced formula addresses all areas of the elimination system. It helps nurture a healthy lining of the stomach and intestines, stimulates liver function and supports healthy colon activity for elimination of toxins from the body.* Illumination™ is a blend of over 30 of the Rainforest’s most valued botanical treasures, an ultimate phyto-nutritional formula from the highest concentration of life energy on earth. It provides a sustained and ongoing wealth of beneficial plant nutrients synergistically combined in spagyric, whole-herb extracts. Using it as daily nutrition, Illumination™ feeds your body essential nutrients that are unavailable in today’s diet.* Sumacazon™ is a blend of four exceptional botanicals that have long been revered by the people of Brazil and Peru or their youth and energy enhancing properties.* This premiere formula promotes energy through endocrine balance, aids in strengthening the skeletal structure and has a wide-spectrum of trace minerals and phytonutrients that help you feel strong, stable and relaxed.* Rainforest Treasure Tea™ is a powerful herbal blend of jatoba, una de gato, tahari, chanca piedra, chuchuhuasi and stevia. The grind of each herb is calculated for the best flavor and fastest delivery of enjoyment... bringing you the complete impact of the energy of the Amazon. Hot or cold, Rainforest Treasure Tea™ delivers vitality, mental clarity and energy.* “I have been using these herbs in my practice for several years now. Energetically, they are extremely powerful. I use these products daily myself and recommend them to all of my patients.” –Dr. James Hawver, NMD, Bremen, Ga. These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent disease. * Contact: Janet Pittrich Satisfaction Independent Associate GuaranteeD Amazon Herb Company 573-301-6600 [email protected] http://healthyvisions4u.amazonherb.net Contents Openings } 4 5 COVER THRIVER 6 Christine Clifford WINTER 2012 Volume 6, Issue 4 Subscribe See page 19 or go to www.breastcancerwellnesss.org ten Request Magazines Editor’s Letter BCW Bulletin Board Grow } 6 Be Fit! Be a Thriver!™ 10 Integrative Medicine Nourish } To request magazines for your events, support groups, or patients: [email protected] 18 The Medicine of Movement: Exercise to Lower Your Risk **************************** Renew } PUBLISHER Beverly Vote 417.532.9763 [email protected] 20 Young Thrivers 24 Breast Cancer Thrivers Cruise ADVERTISING Bonnie Phelps, Director of Sales 417.581.3438 [email protected] Inspire } Please do not call the director of sales for subscriptions or story submissions—refer to breastcancerwellness.org for guidelines or email [email protected]. 26 30 32 36 38 Diane McIntyre Account Representative BCW Assistant and Cruise Coordinator Laurie Bennett 417.664.5380 [email protected] ART DIRECTOR Stacie L. Marshall www.hilldesignco.com **************************** Breast Cancer Wellness P.O. Box 2040, Lebanon, MO 65536 417.532.9763 breastcancerwellness.org Copyright 2012 by Breast Cancer Wellness magazine. All rights reserved. Breast Cancer Wellness magazine is published four times annually for world-wide distribution. While efforts have been made to authenticate all claims and guarantees offered by advertisers in this magazine, we cannot assume liability for any products or services advertised herein. The publisher reserves the right to accept or reject any advertising or editorial material. All advertisements created by the publisher are not considered a word made for hire and the publisher retains the copyright to all advertisements created by the publisher for the advertiser. The advertisements may not be reproduced without written permission of the publisher. 30 Laugh ‘Til It Heals The Ultimate Food Fight Valarie Thornton-Willoughby, Pioneer Day by Day Your Body, Your Mind and Their Link to Your Health Connect } 43 Pink Pages Directory Connect with us! BreastCancerWellness.org ThriversCruise.com Join us on www.breastcancerwellness.org 3 Openings “To survive is our starting point. To thrive is our original design.” –Beverly Vote DEAR FRIENDS, Be Fit. Be a Thriver!™ in 2012 We are excited to launch The Breast Cancer Wellness Summit 2012: Be Fit. Be a Thriver!™ Wellness Project. This month by month jump-in-at-any-time online summit was developed to include our nonmedical needs into the healing equation. Monthly teleclasses, training videos, online discussions and optional support material will be provided for you. Because we know that there are many decisions to be made and so much to learn, it is our hope that the Summit will demonstrate how to bring wellness and thriving principles into simpler action steps that are best for you. Be Fit. Be a Thriver!™ Wellness Project is FREE. Feel free to invite others to join you on the Summit. A new addition to the magazine is the Young Thrivers!™ feature. It will be led by Heather Jose, a thirteen year stage IV thriver and Maimah Karmo and Amy Rauch Neilson. You are invited to join Young Thrivers! on FaceBook and connect with other thrivers and supporters. Heather, Maimah and Amy look forward to hearing from you. Special thank you to International Spa from Sparta, NJ for their cruise scholarship and to Debbie Henry from Kirtland, OH for the cruise scholarship named in honor of her thriving sister, Gail Duscha. We look forward to seeing Debbie and Gail for years to come on the cruises. Top guns, the Pistol Grannies - Regina Springer, Tammy Ross and Kristi Dill—are amazing women. A big thank you to each of these women for their hard work for the BCW cause! Remember to include love and laughter in your life everyday. My prayer and invitation is for each of us to experience healing and wellness to the fullest. International Salon & Spa * * 4 JOIN US! s Meet other Thriver n fu e th e ar and sh on the 6th Annual se. BCW Thrivers Crui r fo 24 ge See pa details. Breast Cancer Wellness Magazine | Be a Thriver!® Be a Thriver! Author, Breast Cancer 101, Lessons I Learned about Healing and the Grave Mistakes I Will Not Repeat 19 year breast cancer thriver Grow “You have skirted this mountain long enough; turn northward.” — Deuteronomy 2:3 Be Fit. Be a Thriver! ™ Wellness Project Thrive /THrīv/ Verb: Grow or develop well or vigorously. Prosper; flourish. Be Fit. Be a Thriver!™ Wellness Project is for you if you want: y A fresh perspective y Change y Support y To learn wholistic principles to support your healing needs y To address concerns about fears including recurrence and mortality y To know your life purpose y To have more passion for life We are excited to launch the Breast Cancer Wellness Summit 2012: Be Fit. Be a Thriver!™ Wellness Project. It is created to support women as they move forward in their healing experiences. Sometimes the journey requires that we make lifestyle changes which sometimes can be overwhelming and even daunting. The Summit will provide monthly support designed to help make small daily changes that you desire. The online support will provide inspiration in ways that only can be compassionately understood by those who have walked in similar shoes. Thriving not only can begin at diagnosis but at any time. Thriving is a shift of mindset and personal energy. The energy of thriving helps us to heal and to move forward in our desired directions. The word itself is a reminder that we are not a powerless victim. Included will be discussions about core beliefs, personal toxins, mental clarity, and changing mental thought patterns which may be holding us back, healing agendas, group dynamics, life purpose and how to connect with the beauty of who you are. At the BCW Summit, you will not find medicinal advice, eating plans, exercise plans or calorie counting worksheets. Rather you will learn how to better listen to the wisdom of your own mind, body, and spirit to guide you. Laughter, fun, beauty therapy and group dynamics will be discussed. It is our intent you will be inspired, uplifted, and invigorated with new healing ideas. Join us at BreastCancerWellness.org Summit 6 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Magazine | Be a Thriver!® How the Online BCW Summit 2012 Works: Monthly Recorded Tele-classes Each month we will offer leading and relevant information designed to empower your mind, body, and spirit. Each tele-class is recorded so that you can listen at your convenience, at any time throughout the year. Online Video Tutorials The first video will introduce the simple outline of the BCW Summit 2012 and will demonstrate how to use the online support materials. Each month, a new video will present the next track. Monthly Support Material Available as a www.BreastCancerWellness.org download. Each month Breast Cancer Wellness will add another learning step to support you in achieving your healing goals. Beginning with self assessment, examination and evaluation, participants will reflect on self behavioral patterns, personal mindsets and daily choices that you want to address. Taking each day as a new beginning, we will offer small non-medical integrative suggestions and staying on track tools to assist you. Monthly Homework Assignments Available online for those wishing to participate. The assignments will be simple and designed to help you see more of your strengths, gifts and healing answers. Personal Assessments Choosing to thrive is a personal decision. You must get real with you. The assessments will assist you in self evaluation and a forward vision of your life. Sometimes the journey can be overwhelming; Be Fit. Be a Thriver!™ Wellness Project will provide gentle support. Interactive Online Support • • • • • Available via our closed group on Facebook. Support and availability to share experiences are vital parts of growth. You can share your experiences and glean from one another by joining BCW—go to http://www.facebook.com/groups/322438241101920/ Free — Jump-in-at-anytime! Available to everyone with internet access For patients, survivors, thrivers, family, friends, caregivers, coworkers For newly diagnosed and any stage of life 12 months of online support and wholistic information Be Fit! Be a Thriver!™ Supporters After breast surgery, it’s important to visit your local mastectomy fitter to learn about postmastectomy solutions available to you. ABC has a wide selection of bras and breast forms that will help you regain your confidence and feel feminine again. If you don’t know where to start, start with ABC. www.americanbreastcare.com Yoga revitalizes our mind, body and spirit. It supports those that suffer with fatigue. Gentle movements, and increased oxygen consumption will result in vitality. Yoga supports recovery back to a balanced state of mind and body by lessening muscle and emotional tension, and replacing it with self-nu. www.BreastCancerYoga.com Want to be healthy? You better sweat! Sweat eliminates toxins, regulates body temperature and helps keep skin clean. Unlike conventional antiperspirants which prevents sweating with harmful processed aluminum, Naturally Fresh Deodorant Crystal doesn’t block pores while still keeping you fresh. Our award-winning roll-on deodorant is endorsed by breast cancer survivor Dr. Melanie Bone. Available at Walmart. www.NatFreshDeo.com Healing Cream renews, restores, revitalizes and rejuvenates your skin, nourishing your body. It is natural, mostly organic, with known, pronounceable, only good-for-you ingredients, resting your mind. When you use it, it soothes smoothes and awakens your skin, making you feel more perfectly, fully, and beautifully yourself. www.bethelbotanicals.com Farrow Medical products empower patients to manage their swelling themselves with easy to use compression garments. Elastic garments are easily applied with Velcro® closures, giving patients the freedom to enjoy life, rather than fight with awkward bandaging. A wide variety of options and sizes are available. www.farrowmedical.com It is important that a woman be fitted by a professional mastectomy fitter after breast surgery. A properly fitting breast form has been designed to mimic as closely as possible the shape, weight and denseness of the natural breast tissue that has been lost. If not properly fit with the appropriate style, size and weight of breast form and mastectomy bra, a woman can suffer from “shoulder drop” as well as neck and back problems long term. Consider visiting your mastectomy fitter annually. www.nearlyme.com The Center for Natural Breast Reconstruction helps you be fit by helping you PUT CANCER AND ITS PROBLEMS BEHIND YOU so you can once again live life to the fullest. No worrying about potentially hard & painful implants, just SOFT, WARM, WONDERFUL YOU, always there, helping you look and feel your best each and every day. www.naturalbreastreconstruction.com Some wigs are worn for easier hairstyling for different looks and for medical reasons. This now allows those needing wigs for medical reasons to accept them easier because they are making a fashion statement at the same time as covering their hair loss needs. They can have fun, feel more confident and hopefully turn a negative into a positive. No one needs to have a “bad” hair day. www.internationalhairgoods.com Janac’s product the BEEN‐A‐BOOB helps a women forget she is wearing a prosthesis. It is non‐silicone, lightweight, soft and pliable. The pocketed leisure bras and bra‐ tanks are the most comfortable on the market. Our aim is to help women feel the same as they did before their diagnosis. www.janacmastectomywear.com Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer W I am a three time breast cancer survivor, and was first diagnosed at age 38 with three children under 7. Now, my children are ages 15, 14, and 9 and I still find the same sense of joy and happiness when I look into their faces as I did when they were babies. It doesn’t matter that they are now almost taller than me. I can still look into their eyes and feel an overwhelming sense of calm. I am grateful for every day that I’m here, spending time with my family, being able to watch them grow and choose their path in life. Last November, I finally made the decision to join a personal training program in my hometown. I have been going regularly 3 times a week. It took about 7 months, but I finally got my excess weight off. I feel much stronger, and my right arm is improving. I find I don’t have to wear my sleeve or use the Flexi-Touch machine as often. My friends and family have been telling me that I look great and asking if I lost weight! This is such an empowering feeling for me. I still have my low days, but most of the time, I feel good about myself. For me, staying fit not only changed my body and the way I feel about my body, but it also helps my mind. I feel that when I feel good about myself, I can be a better wife and mom. Rose Ciardiello • Guilford, CT • [email protected] When you thrive you have peace and balance and still can see experience joy and happiness in life, even in the worst of situations. A thriver is someone who flourishes in life. Today, I am proactive in all areas of my life, and consistently reach out and ask for help when needed. I make choices rather than feel that there is no choice which includes health, relationships and business. I integrate my values and strengths in every day living. I recognize that all of my emotions and feelings are important and have meaning for me, even the ones that we “perceive” as bad. I am passionate about helping and empowering cancer patients or anyone whose lives have been touched by cancer. I partner with organizations who share my mission. My mind, my body, and my spirit; the “trinity of wellness,” became important not just to me in these last seven plus years, but to my children. My daughters, now 19 and 20, and my son, 18 live a life in which they put others before self. But they fully understand the importance in making sure that self can only be helpful when rested and strong and fit; in mind, in body, and in spirit. I eat organically as often as possible. I pray and meditate. I go for long walks on the beach. I do yoga as often as I can. I’m a really, really good patient. I “make my mess my message!” Everyone’s recipe for becoming a thriver is different, and the best support we give each other is to honor and celebrate those successes together, cheering each other on as we becomes thrivers and realize our goals despite or because of circumstances. Mary Ann Wasil Nilan, Founder, President & CEO, The Get In Touch Foundation • Milford, CT [email protected] A thriver keeps going in spite of the obstacles and roadblocks that life may put in your way to stop you from completing the goals you have set forth for your life. Today, I am a Surviving Thriver, I count life by the seconds in time. Life is not guaranteed to you, so you must take advantage of each second. As president of Sisters Network Columbus, OH, I have the opportunity of helping other newly diagnosed women and to bring comfort to them as they go through the uncertainty of their future. As well, I assist survivors with daily life. I take time to spend with God to thank Him for what He has done in my life and where He is taking me. Wanda Brown • Columbus, OH • [email protected] To survive is our starting point. To thrive is our original design. — Beverly Vote Despite the pain of my breast cancer diagnosis and treatment, I gained valuable life lessons. I kept a daily journal to examine and to reflect my experience. Breast cancer brings many intense moments and it’s easy afterwards to forget, or even want to forget just how it was. But the experience is too important to push out of the conscience. I continued to reread the journal to make the most of what I had learned and to go on learning. Lesson 1: It is not my timetable. My anxiety and my worry can not change the time table. Lesson 2: Help comes from the unexpected sources. Although my faith has always been strong, I was startled how prayer; both my own prayer and prayers of others carried me though the tough days and calmed and centered me during times when everything seemed good again. It prepared me for the next challenge. Lesson 3: Love comes in different forms. Love came in flowers, cards letters, emails, phone calls. Love came by poem from a friend. Love came in tears, hugs, soft touch, gentle words. Love came in a soft bath my husband gave when I first arrived home in the privacy of our home. Lesson 4. Receiving heals many: I cried in the joy of being helped as well the uncomfortable feeling of being unable to care for myself. I learned to listen and receive information and insight. I learned the relief of not needing to know all the answers. Lesson 5:Everyday has a choice. Choosing attitude. Choosing how to greet the day. Choosing how to view myself: victim or survivor? Lesson 6: Gratitude heals and motivates: New friends, new ideas, and new opportunities fill my life. I am thankful for the lessons I learned for know I help others by teaching, speaking and pay home visits to newly diagnosed. I am thankful for the journey and the new life unfolding before me everyday. Diane Davies • Hastings, MN • dianedavies.net Sharon Roth-Lichtenfeld, CPC, ELI-MP, BFA • Kendall Park, NJ • [email protected] Summit 8 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Magazine | Be a Thriver!® Since my original breast cancer diagnosis, I have been led to do Mastermind Journaling on a daily basis; this keeps my mind focused on what’s most important. It also alleviates me from “sweating the small stuff.” I listen to uplifting gospel music, this is soothing for me on many levels. I strive to minimize stress as much as possible, at home, work, etc... I accomplish this thru various ways; including “me time” - spa visits for massage, shopping, or simply reading a good book! I attend church on a regular basis; this is NOT optional for me! I also pray without ceasing... mind/body/ soul medicine “free of charge” from the Great Physician! I am more conscious about my food choices; staying away from fatty foods, over-indulgence in sweets, making sure to drink plenty of water daily. I consider each day a “gift” and I cherish every moment!! I love spending quality time with my wonderful husband James, a man of God, as well as my 13 year old son, James who I truly adore. Together... we laugh a lot and enjoy dinner and movie outings as much as possible. I also talk with my sister by phone at least once a week, often times more than that, since we have so much distance between us, but so much in common! Mary Kelton Smith • Nashville TN • [email protected] Although I had many questions, fears and concerns for my daughters during my illness, because of them my heart began to sing. I will forever remember the moment I sat on the couch staring out the window watching Macayla running outside, chasing butterflies, laughing and smiling with her cousins. The words began to pour out of my mouth as I began to write a song called, My Butterfly. For at that moment my daughter was flying for me, unaware and alive, she flew for me. Over and over as I began to sing the song I began to feel like I was in a cocoon and I began to see myself emerging and soon flying. I was fitting myself for song. Another song I wrote and lived, Keep Moving Forward, speaks volumes about not looking back but heading towards light and life. I have confidence as I have never had before, and am sure I empowered to bring joy and life to others. Gina Cook, Singer • Atlanta GA • [email protected] A thriver does not wallow in self pity, but rather takes control and is empowered to focus on living, not just existing, and not dying. A thriver learns and grows from the cancer experience; she takes something from the breast cancer experience and empowers herself to turn a negative into a positive. She realizes that cancer is a wake-up call that all is not well inside the mind and body; that the body is screaming for help. She learns to embrace life, love life and to live life. She is empowered to heal body and soul and to find a new path in life. When I took what I thought was a short sabbatical from my job to enjoy my babies, I began to realize that my life lacked purpose, yet I felt paralyzed to make changes. Having cancer opened the door to a new life and allowed me to make some much needed changes. I love my children, and enjoy my time with them, but I realized I needed to take care of me, to attend to my needs. Just like in an airplane when they tell you to put your mask on first, in life, you cannot attend to others if you do not take care of yourself. I have learned to put me first, to do things that make me happy, and to savor and nurture all that life has given me. I was a high stress person who ate pretty well. Relentless, unaddressed stress and a nutrient deficient diet are cancer supportive. I reflected on my life, what went wrong and what I could change. While I still do not meditate, I transcend myself into a state of complete relaxation by zoning out on the couch, blocking all busy thoughts, listening to music. I lie prone on the couch, knees supported and before you know it, I can’t get up; I am in a state of bliss and total relaxation. My boys come in and say “oh, sshhhh, mommy is doing her thing”. They know that if I am relaxed, they will have my complete attention and love when I emerge. Eating well is a loose term, widely interpreted. To some, it might mean that they eat a few vegetables every day; to some it might mean choosing pasta over meat, to others it means being vegan. In my case, I needed to redefine and embrace healthy eating. I now eat a mostly plant based diet and avoid sugars and refined grains. I have also learned to avoid difficult people and situations. I will not allow others to steal my energy or impose their negative energy on me. I adore my father, but now when he speaks negatively of the stock market, politicians, etc., I politely remind him that I do not choose to wallow in what I cannot change or influence, but rather to distance myself from negative conversation. Taking action is one thing, wallowing in the negative is unhealthy. I also came to realize that my former career did not satisfy my inner passions. I always felt I was meant to do more, to help others. I began coaching women and empowering them to take control of their cancer and treatment, to get past their cancer and into a life of wellness. Today I feel my life is complete. I have never felt healthier in my life. I have a wonderful and supportive family who understands I have needs too, and I have purpose and meaning to my life. I am a thriver. Eyln Jacobs • New York, NY • http://elynjacobs.wordpress.com Be Fit! Be a Thriver!™ Supporters Prevagen has helped women experiencing chemotherapy-related memory difficulties. 30 percent of breast cancer survivors suffer from “chemo brain” up to a year, or more, after stopping chemotherapy. Prevagen contains a one-of-kind, safe and natural ingredient called apoaequorin which helps brain cell function and promotes better memory. www.quincybioscience.com We all love to buy something new that makes us feel sexy, beautiful and fit. Breast surgery creates a new and difficult challenge. Finding the right bra and form that will feel natural, purchasing a strappy camisole or pretty bikini that will hide scars, and allow us to feel confident is sometimes impossible. The Woman’s Personal Health has it all for you. Swimsuits and tops from Europe that are well made and comfortable, well fitting bras and forms will help you gain confidence. We are here to help! www.womanspersonalhealth.com Real Purity was a dream then became a reality of Virginia Easterling in the mid 1980’s. Being a well known & respected aesthetician she grew tired of using skin care and cosmetic’s with synthetic & chemical ingredients. Many times she would use herbs from her own garden to concoct masques or treatments for her clients. The dream still remains, making products that benefit and not harm us or Mother Nature. Since then, a whole new world of pure raw materials is available to our labs so we can offer even better and more effective products. www.realpurity.com A Board Certified Mastectomy Fitter is important, as they have been trained and educated as to the fitting needs of a woman both pre- and post-mastectomy. A Certified Mastectomy Fitter’s special training assists women in making the transition from diagnosis, to patient, to Thriver. The Fitter is able to identify needs and make certain that the products that she introduces are specific to those needs. Be as choosy about your mastectomy fitter as you were with your physician. Make certain they are ABC or BOC Board Certified. www.anita.com Look like the survivor you are and start feeling better about yourself. If you lost hair or have poor or patchy growth, Dr. Lewenberg’s Formula will regrow your hair quickly and completely. It is safe, effective and convenient. Take care of your health and we’ll take care of your hair. www.baldspot.com I created For The Girls Windchimes to raise money for Breast Cancer charities. The soothing sounds will calm your soul. My mother appreciated listening to calming windchimes during her treatments. Chimes make the perfect gift to say thank you to a friend who helped you through treatments or for a thoughtful gift for someone facing the challenge! Listen, Relax, and Enjoy. www.qmtwindchimes.com It is never too late to harness your healing power by mastering your emotions, thoughts, beliefs, energy, and attitudes. Implement scientifically proven energy management skills to effect your genes, physiology, healing and stress hormones and immunity. Visit THE CONSCIOUS CANCER JOURNEY to learn more about group and individual programs. www.consciouscancerjourney.com Embrace Activism is your online source for yoga products with a CAUSE. Yoga will make positive changes to body, mind & spirit. Embrace Activism promotes health & wellness by enhancing your practice with exceptional products and extending it with our charitable-giving program. Embrace Activism for Your Health, Your Wellness & Your CURES! www.EmbraceActivism.com Breast Cancer Wellness Summit 2012 • Breast Cancer Wellness Summit 2012 • Breast Cancer W 9 www.breastcancerwellness.org Grow Integrative Medicine According to the Merriam-Webster definition, the word integrate means to ‘form or blend into a unified whole’. Now more than ever, hospitals and medical care teams are practicing methods that blend traditional medicinal standards with what has been termed as nontraditional treatments. Breast Cancer Wellness Magazine invited five leading cancer treatment centers in the United States to share with our readers more information about integrative medicine and what they offer the communities they serve. Today the term integrative medicine includes the practices and standards of whole body care with a collaborative focus on mindbody-spirit empowerment. Patients are usually most interested in evidence-based research and the highest standards of practice when seeking healing methods outside of traditional medicine. New terms for new methods for mindbody medicine continue to appear regularly. It is advisable to have the practitioner to explain the procedures and to do your research as well as asking for referrals. A qualified and experienced practitioner will understand that you may have concerns about treatments, and will patiently answer your questions about what to expect from the different services. Not all integrative and complementary therapies are included in insurance contracts. There are many qualified integrative cancer centers across the country. Some are associated with traditional cancer centers or university hospitals and others are independently owned centers. BCW does not endorse one facility or procedure over another. Thank you to each of the following physicians for taking not only the time to answer our questions, but also for their steadfast efforts in the cancer equation. CANCER CARE AT DUKE INTEGRATIVE MEDICINE by Adam Perlman, M.D. Duke Integrative Medicine offers a wide array of therapies and services that can complement cancer treatment and enhance 10 Breast Cancer Wellness Magazine | Be a Thriver!® outcomes. Our services are based on the latest research that demonstrates the proven effects of a multi-disciplinary approach to cancer treatment and chemotherapy and the powerful connection between body and mind: n Complementary therapies, used as adjuncts to mainstream cancer care, are supportive measures that help control side effects, enhance well-being, and improve immune function.1 n Mind-body techniques—meditation, hypnosis, relaxation techniques, cognitivebehavior therapy, guided imagery—can reduce anxiety, depression, chronic pain, and mood swings in cancer patients and can enhance their coping skills. 2 n Acupuncture and acupressure help decrease nausea and vomiting sometimes associated with chemotherapy.3 n Herbs and other dietary supplements can enhance immune function and can prove useful in prevention and management of cancer.4 n For cancer patients, massage therapy has been recommended as part of a multipleapproach to treatment to reduce pain and anxiety.5 1 Deng G., Cassileth B.R., Yeung K.S., Complementary therapies for cancer-related symptoms. J. of Suppor. Onc 2004:2:419-26, discussion, 427-9 2 Devine E.C., Westlake S.K., The effects of psychoeducational care provided to adults with cancer; meta-analysis of 116 studies. Oncol Nurs Forum 1995:22:1369=81 3 LeeA., Done M.L., Stimulation of the wrist acupuncture point P6 for preventing postoperative nausea and vomiting. Cochrane Database Syst Rev 2004; CD003281 4 Deng, G. et.al. Integrative oncology practice guidelines, Journ of Soc for Int. Onc. 2007: 5:2: 65-84 5 Ibid. In coordination with our patient’s oncologist and other care providers, we work to help manage the most common side effects of cancer treatment. We help our patients learn how stress reduction techniques—meditation, guided imagery, hypnosis—can reduce pain and anxiety, and can enhance the effects of treatment; how acupuncture can alleviate by BEVERLY VOTE side effects of conventional treatment and of cancer itself (nausea, pain, tissue inflammation, fatigue, etc); how massage can reduce swelling, pain, and anxiety, and much more; and how nutrition can support immune system to ensure vitality during and well beyond treatment. Currently, patients at Duke Integrative Medicine may choose from a wide variety of services to support them through their cancer treatment including integrative medicine physician consultations, acupuncture sessions, massage therapy, nutrition consultations, individual yoga instruction and personalized mind-body session (guided imagery, hypnosis—with a personalized CD for your ongoing use—or relaxation training). Our plans for the future include a robust partnership with our colleagues at the Duke Cancer Institute so that we can provide both in-patient and treatment room services, classes, and programs. Adam Perlman, M.D. – Executive Director; Integrative Medicine Physician; Associate Professor, Division of General Internal Medicine. Dr. Perlman joined the staff of Duke Integrative Medicine in 2011. Prior, he was Executive Director of the Institute for Complementary and Alternative Medicine (ICAM) and associate professor of medicine within the School of Health Related Professions at the University of Medicine and Dentistry of New Jersey. In 2010, Dr. Perlman became chair for the Consortium of Academic Health Centers for Integrative Medicine, a consortium comprising 50 leading academic medical centers around the country with integrative medical programs. Dr. Perlman’s was guest editor for the Complementary and Alternative Medicine volume of Medical Clinics of North America, and is associate editor for the Complementary and Alternative Medicine section of the Physician Information and Education Resource (PIER), developed by the American College of Physicians and American Society for Internal Medicine. PANTONE 4515 (current) PANTONE 4505 PANTONE 4495 SiSterS Network® iNc. eArly BirD reGiStrAtioN Saturday, April 14, 2012 6:00 am Registration - 8:00 am Walk Discovery Green 1500 McKinney | Houston, TX 77010 early Bird registration Now until December 31, 2011 $25 Individual/$30 After December 31 $250 Team (minimum 10)/$300 after December 31 Register Now Online at www.stopthesilencewalk.org | 1-866-781-1808 toll Free JOHNS HOPKINS INTEGRATIVE MEDICINE & DIGESTIVE CENTER by Dr. Linda A. Lee The Johns Hopkins Integrative Medicine & Digestive Center (JHIMDC) is a distinctive multidisciplinary center based in Gastroenterology. We promote wellness and manage symptoms of chronic illness with a deep understanding of the function of the gastrointestinal tract in immunity, brain-gut interactions, and the impact of diet on chronic symptoms. To enhance our expertise in gastroenterology, consultative services within the Center are also available in rheumatology, gynecology, Traditional Chinese Medicine, and nutrition. Dietary approaches and behavioral medicine techniques are strongly emphasized when engaging each individual in the quest to restore quality of life and achieve a personal sense of wellbeing. Great attention is devoted to understanding each person’s unique concept of illness and wellness, cultural and spiritual beliefs. The successful promotion and practice of integrative medicine demands a collaborative group of practitioners committed to creating Chemo brain? “ “As a cancer survivor, I’ve had trouble with my memory for years after chemotherapy. Prevagen has helped me find my words in conversastions again and given me confidence again.” - Lisa S. 56 yrs old, Rolla, MO Try Prevagen® and feel the difference Clearer Thinking As Soon As 30 Days* Memory studies demonstrate Prevagen® improves memory within 30 days.* Unique Natural Ingredient Prevagen provides a healthier brain, sharper mind and clearer thinking* Easy Once a Day Capsule Prevagen® is intended for daily use and comes in an easy to take capsule form. For a special offer, call 1-888-895-6463 Available at: *These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease. 12 Breast Cancer Wellness Magazine | Be a Thriver!® an open dialogue with all who are involved in the care of each patient. Gaining mutual trust and respect among healthcare professionals enhances the care of those who are chronically ill, but often requires learning more about the unique training and skills each type of provider possesses. It is also important to routinely examine the published evidence and appreciate what research is still required when evaluating the potential efficacy of any therapy. Several of our practitioners teach at the master’s or graduate level, or have partnered with academic faculty in clinical research studies that employ their skills. In 2011, JHIMDC hosted a symposium on the Integrative Medicine Approach to Inflammatory Bowel Disease (IBD), to bring together the perspectives of experts from diverse disciplines. Many healthcare providers, and patients, for the first time were exposed to the full array of evidence-based approaches that currently exist to address the nutrition, physical, and psychosocial needs of those with IBD. Since its inception in September 2008, JHIMDC has expanded its staff and programs to include cancer support services for patients, survivors and caregivers. Through the Road to Wellness Program, cancer nutrition education and massage therapy is offered routinely to patients and caregivers who visit the Sidney Kimmel Cancer Center infusion center; acupuncture and massage therapy are also available to inpatients when requested. While fully embracing the Johns Hopkins Medical Institution’s rich history of medical research and commitment to the highest quality patient care and teaching, JHIMDC brings a modern and more comprehensive approach to healing by pushing past the boundaries of what has been known as strictly conventional care. The Director of JHIMDC is Dr. Linda A. Lee, a board certified internist and gastroenterologist, has been a clinician and faculty member at Johns Hopkins School of Medicine for twenty years. She spent 13 years engaged in NIH-funded cancer biology research and caring for cancer patients with liver or gastrointestinal issues. In 2008, she opened JHIMDC located at Johns Hopkins at Green Spring Station. Dr. Lee also serves as the Clinical Director for the Johns Hopkins Division of Gastroenterology and Hepatology. A hug can be one of the best medicines to help you feel better again, so can a better fitting breast form. New NEARLY ME® Extra Lightweight Flowable Back Breast Forms truly hug the body for a better “huggable” fit. Developed by Nearly Me Technologies, these remarkable forms have a layer of flowable silicone that flows into, over and around uneven areas on the chest wall for better contact against the body. This, plus the extra lightweight silicone front makes this form feel and fit like part of you. Soft, lifelike and in three shapes with multiple sizes, these forms, like a caring hug from someone you love, will help you feel beautiful again. NEARLY ME® Mastectomy Products are made in the U.S.A. and have been available at retailers across the country for over 30 years. Call our 1-800-887-3370 for the retailer nearest you. Mastectomy Products ®Registered Trademark of Nearly Me Technologies, LLC ©2010 NMT. All Rights Reserved. NEARLY ME® 375 Triangle NEARLY ME® 365 Oval NEARLY ME® 355 Butterfly CANCER TREATMENT CENTERS OF AMERICA by Theodore Pollock, DO, FACOI Cancer Treatment Centers of America (CTCA) provides a model in health care that combines cutting-edge conventional treatments, such as chemotherapy, radiation and surgery with scientifically supported integrative services. For almost 30 years, CTCA has focused on treating the whole-person to help patients fight their cancer from as many directions as possible. CTCA believes that integrative medicine can help keep patients strong, so that they’re better able to tolerate the side effects of their treatments. Below are some integrative services that the center offers. Naturopathic Medicine Naturopathic medicine makes use of natural methods to strengthen the body’s ability to heal itself. It focuses on creating a healthy environment both inside and outside the body. Naturopathic doctors (NDs) use techniques such as supplements, homeopathic medicine, hydrotherapy, acupuncture and the low level energy laser to help keep cancer side effects at bay. As NDs are not licensed to practice in every state, it is imperative that you check your ND’s credentials prior to seeing one. Nutrition Maintaining optimal nutrition is essential to keep you strong, enable you to tolerate your cancer treatment and help you recuperate faster after treatment. During this time, your body needs more “fuel” than normal in order to repair the effects of cancer treatment. Dietitians work in conjunction with BE A THRIVER! APPAREL Go Organic Hoda City_________________________________ State_______ Zip_ __________________________ HOW I SURVIVED War Zones, Bad Hair, Cancer and Kathie Lee YOU ARE THE BEST MEDICINE Don’t Hog Your Journey New Visionn New Missio NON-PROFIT PRST STANDARD US POSTAGE PAID PERMIT 205 BOLINGBROOK, IL Volume 5, Issue 3 14 www.breastcancerwellness.org Fall 2010 Theodore Pollock, DO, FACOI, is the director of medical oncology for the Tulsa CTCA hospital and brings more than 30 years of oncology experience with him to that role. He has been with CTCA for more than three years and in that time has fully embraced the center’s multidisciplinary approach and focus on patient empowerment. With cancer mortality changing minimally over the past several decades, it has been clear for some time that a fresh approach to the war on cancer is needed. Along with our clinical and research staff, I have spent over 30 years at the Block Center evolving an individualized, integrative treatment model to address the multiple concerns and complex biology cancer patients face. Approaching patients with solo therapies, such as pharmaceuticals - while essential - is simply not enough. That is why I have developed a multidimensional and multi-targeted model of care, individualized to each patient’s needs, their tumor’s unique molecular features, as well as the physiological environment that the cancer cells reside within. Fundamental to my treatment approach are four cornerstone aspects of care: a thorough medical workup, a select set of integrative assessments, the development of a strategic, personalized treatment plan and hands-on training for my patients. A new breast cancer patient first coming to the Block Center will start with a thorough medical workup. Included in this initial exam may be a Chemosensitivity Tissue Profile, which can help with selecting the appropriate chemotherapy agents for a patient. We also offer innovative molecular tumor tissue testing, which provides an overall prognostic portrait of a patient’s tumor. In addition, we do a Nutraceutical - Drug Coupling Profile, matching nutraceutials to chemotherapy drugs for the purpose of diminishing toxicity, reducing drug resistance, improving tolerance, and enhancing conventional treatment efficacy. Address_ __________________________________________________________________________ Nurses to Help You BOLD Rehabilitation Cancer and cancer treatment may impact your physical abilities and interfere with your normal daily routine. The goal of oncology rehabilitation is to help patients achieve their goals through modalities such as physical therapy, speech pathology and occupational therapy. Rehabilitation can help assist patients in overcoming such treatment side effects as “chemo brain,” neuropathy, lymphedema or reduced daily activity. by Keith I. Block, M.D. Name ____________________________________ Email _ ______________________________ NAVIGATING FORWARD GOES Mind-Body Medicine Mind-body medicine (MBM) explores the influence of your mind and emotions on your body and immune system, and vice-versa. MBM often uses techniques such as counseling, stress management, managing emotions, relaxation, guided imagery, laughter therapy, cognitive reframing and support groups to help the patient in the healing process. BLOCK CENTER FOR INTEGRATIVE CANCER TREATMENT Subscribe today! Only $12 for 1 full year p.2 The Power of Vision BCW the patient’s care team to help design a nutrition plan that will meet the complex needs of the patient. 1 q Yes! Sign me up for a year subscription (4 issues) of BCW Magazine. q Check/Money Order q Bill My Credit Card CC #________________________ Exp_________ Send to Breast Cancer Wellness, P. O. Box 2040, Lebanon, MO 65536 OR Subscribe online at www.BreastCancerWellness.org Breast Cancer Wellness Magazine | Be a Thriver!® A key component of our integrative assessment is testing the cancer “terrain” or internal biochemical environment, as discussed in my book Life Over Cancer. Tests of biomarkers tell us whether your terrain either promotes the growth of cancer cells or helps thwart their progression. For instance, an important biochemical factor in breast cancer is the glucose-insulin axis. Research demonstrates that abnormalities in this axis can potentially double recurrence and triple mortality! Results of terrain testing allow us to prescribe the best-suited nutritional, lifestyle and nutraceutical strategies for each patient. Throughout the years, we have found that lifestyle information without hands-on training causes patients unnecessary angst and frustration. Our patients work individually with our dietitians, physical therapist and counseling staff towards adopting a healthful, phytochemically-rich diet, daily physical activity, and strategies for stress care. Daily cooking classes, individual instruction in various exercise modalities and training in deep relaxation, improving circadian rhythms, and fostering engagement with life are also provided. The true promise of integrative cancer care is realized when all of the needs of the patient are addressed, and treatment protocols are individualized to these unique needs. This is what patients at the Block Center experience every day. Keith I. Block, MD – Medical Director, Block Center for Integrative Cancer Treatment; Editor-InChief, Integrative Cancer Therapies, Sage Science Press; Editorial Board for Physician Data Query, Cancer CAM; National Cancer Institute; Author, Life Over Cancer (Bantam Hardcover). www.blockmd.com See the difference. Feel the difference. Make a difference. At medi, we care about your treatment success. We are committed to creating lymphedema garments that support your treatment needs and provide the comfort you deserve. We consider both function and fashion to give you advanced garments designed for everyday wear. mediven® 550, available in corselette, bustier and shirt styles, offers multiple accessories for optimal fit. Ask your fitter or healthcare provider about medi custom lymphedema garments. mediusa.com medi. I feel better. You’re losing your hair. Job#: 915MED11 • Job Title: Medi Half Page LymphologyFOR INNER PEACE: You’re afraid you won’t look like youPublication: again. Breast Cancer Wellness Magazine • Colors (include spots if used): CMYK Size: 1/2 page Island (4.75” x 7.125”) You’re on information overload. Date due to Pub: 12/30 • Run Date: February Electronic Medical Device Alpha-Stim The solution is easier than you think Clinically proven to relieve: CreatedHair.com & Salons – Personal Hair Loss Consultants • Anxiety • Depression • Insomnia • Helping women going through treatment since 2000 • Premium Light Weight Custom Made & Ready Made Wigs Designed for the Active Woman Personal Home Use For a Private Appointment in person, via phone or internet 310.550.0721 Medical Discounts Available Call or email for info: Amy Gibson Founder / Client 310-55o-0721 [email protected] www.breastcancerwellness.org 15 MAYO CLINIC’S COMPLEMENTARY AND INTEGRATIVE MEDICINE by Brent A. Bauer M.D. Mayo Clinic’s Complementary and Integrative Medicine program was created to address growing patient interest in wellness-promoting treatments that are not typically part of conventional medical care. Therapeutic interventions such as stress management techniques, resilience training, massage therapy and acupuncture are readily available to our patients to augment their ability to adapt well and recover quickly after stress, adversity, physical trauma or tragedy. Created in 2001, the Complementary and Integrative Medicine Program is a collaborative approach involving every Department and specialty at Mayo Clinic. Each year, more than 8,000 patients receive massage therapy (both in the hospital and in the outpatient setting), 10,000 acupuncture treatments are delivered, and over 1500 one-on-one patient/physician consultations are provided to patients seeking to enhance their wellness. Classes are provided to small groups as well as national audiences, reflecting the focus on education as a key part of an overall wellness promoting strategy. Finally, research into the efficacy of various therapies is also a major focus of the program, leading to substantial practice changes across the institution (e.g. small but positive studies on the efficacy of massage in the post-operative period led to incorporation of massage therapy as part of the routine care of patients receiving surgery at Mayo Clinic). The Complementary and Integrative Medicine cares for patients with a wide range of diagnoses, but by far the most common one is cancer. And of those patients diagnosed with cancer, by far the most common is breast cancer. Typically, patients who have experienced breast cancer and are referred to the CIM Program will meet with a physician who explores goals and helps create a wellness strategy. This typically involves some mind-body training (e.g. meditation) but can range from tai chi or yoga to biofeedback-assisted stress management tools. Many patients will also find benefit from acupuncture, again, depending on current symptoms 16 Breast Cancer Wellness Magazine | Be a Thriver!® or concerns. And most patients also find massage to be an effective component of the overall approach to enhancing wellness, regardless of the diagnosis or prognosis. Nurse-led stress management training, animal-assisted therapy and hypnotherapy are just a few of the other modalities that are included in the Program offerings. All recommendations provided by CIM staff are discussed in detail with the referring physician – so that the oncologist, patient and integrative medicine provider are all on the same page and working collaboratively. This allows the patient to integrate the best of both worlds – complementary and conventional – yielding optimal healing for each individual. “Bringing the best of both worlds together – for the benefit of the individual – is a wonderful way to practice medicine” — Brent A. Bauer MD, FACP Director, Complementary and Integrative Medicine Program, Mayo Clinic One of the nonprofit organizations that provides education about integrative therapies is the Society of Integrative Oncology. Their mission includes advocacy for responsible public policy and providing the highest standards of practice in integrative medicine through appropriate training and certification of health care professionals. This organization is founded in peer review of evidence-based research. A few of the complementary modalities that SIO studies include are natural and botanical products, nutrition, acupuncture, massage, mind-body therapies, and other complementary treatments. For more information about how they serve, go to http:// www.integrativeonc.org. WE CARRY READY-MADE & CUSTOM COMPRESSION GARMENTS FOR UPPER AND LOWER EXTREMITIES Covered by m insurance p ost Please call lans. to if you are co see ve for compre red ssion therapy. 888-414-9737 www.ojmedtech.com Toll Free www.breastcancerwellness.org 17 Nourish THE MEDICINE OF MOVEMENT: EXERCISE LOWERS YOUR RISK by Christine Horner, MD The right type of activity, at the proper time of the day, produces a cascade of powerful chemicals and hormones that decrease the risk of a multitude of disorders, especially breast cancer. For instance, engaging in activities that elevate your heart rate on a regular basis lowers your risk of breast cancer in eight major ways. First, exercise activity lowers the production of estrogen in your body. Breast cancer is strongly linked to estrogen. The more estrogen your body produces and that you are exposed to from other sources over your lifetime, the higher your risk of breast cancer. Second, regular vigorous activities have been found to lengthen the menstrual cycle. With each menstrual period, your body produces a surge of estradiol – the strongest type of estrogen and the one most linked to breast cancer. The longer your menstrual cycles are—for example, they occur every 30 days instead of every 28 days—the fewer the number of menstrual periods you will have over your lifetime. The fewer menstrual cycles you have, the lower the amount of 18 Breast Cancer Wellness Magazine | Be a Thriver!® estrodiol you will produce, and the lower you risk of breast cancer will be. Third, when you exercise in the proper amounts, the strength of your immune system is boosted. On the other hand, exercising too little, or too much, weakens your immune defenses. Keeping your immune system strong is important because it is composed of cells that provide your body’s main defense against foreign invaders like bacteria, viruses and cancer cells. A robust immune system is crucial for preventing and fighting breast cancer. Fourth, aerobic exercise regulates blood sugar. Sugar is the preferred food for cancer, so it is best not to eat very much of it. Another important reason to keep your blood sugar from getting too high has to do with the hormone insulin. When you eat sugar, especially simple or refined sugars, your blood sugar zooms up and your pancreas responds by releasing a lot of insulin – the hormone that facilitates sugar getting into your cells. Insulin can cause big problems when it comes to your risk of breast cancer. Women with the highest insulin levels are found to have a 283% increased risk of breast cancer. Insulin is also dangerous for women with breast cancer. Breast cancer cells have insulin receptors on them, and when insulin attaches to them, it makes the cancer cells grow faster. From Rene M. Caisse, RN Fifth, aerobic exercise lowers blood fat and keeps body fat in check. Obesity is thought to cause about 20-30% of all post-menopausal breast cancers. After menopause, your fat cells are the primary site for estrogen production in your body. The more fat cells you have, the more estrogen your body will produce. So keeping your body weight down is a good way to lower your risk of breast cancer. Sixth, exercise relieves depression. According to researchers at the University of Pennsylvania, women who are depressed have a 400% higher incidence of breast cancer. When you engage in strenuous physical activity, your body releases endorphins and other powerful moodboosting hormones. These chemical changes are extremely effective at relieving depression. In fact, several studies show that exercise works just as well at improving this condition as most commonly prescribed antidepressant medications. Seventh, exercising releases stress. Stress has been linked to 90% of all illness according to the National Institute of Health. Research shows that women under severe stress, or that have recently suffered a major stress, like death of a loved one, or loss of a job, are much more prone to developing breast cancer. Finally, regular exercise has been found to lower IGF-1 or insulinlike growth factor. Keeping the amount that our body produces of this naturally occurring growth factor low is crucially important, because it is the most powerful stimulator of breast cancer known. It is also imperative to be aware that excess amounts of this dangerous growth factor can get into our bodies from consuming dairy products from cows that have been injected with growth hormones. Since most of the cows on conventional American farms are given growth hormones, the only way to avoid ingesting dangerous amounts of IGF-1 is to either not eat dairy products, or to consume only those that are low-fat and have been organically produced. All of these breast cancer risk-lowering benefits of exercise add up to a lot of protection. Research shows that if you exercised regularly during your teen years, your risk of breast cancer will be 30% lower for the rest of your life. But it is never too late to begin exercising. If you start regularly participating in invigorating movements as an adult and keep it up, you can drop your risk of breast cancer by 30-50%. If you have breast cancer and exercise while under going treatment, a study published in the Journal of the American Medical Association in May 2005 found that your chances of surviving are twice as high. Just walking briskly for an average of three to five hours a week makes a significant difference. n Original Herbal Formula Trusted Worldwide Since 1922 Premium Quality Herbs Immune System* Support Gluten Free cGMP Compliance Made Only In Canada Doctors Recommend Powder Formula NPN 80012920 Christine Horner, MD is a board certified and nationally recognized surgeon, author, expert in natural medicine, professional speaker and a relentless champion for women’s health. She is the author of Waking the Warrior Goddess: Dr. Christine Horner’s Program to Protect Against and Fight Breast Cancer, winner of the Independent Book Publishers Award 2006 for Best Book in Health, Medicine, and Nutrition. For more information see page 38 or visit www.drchristinehorner.com. NPN 80015598 Bridge of Hope Extract NPN 80012914 Christine Horner, MD Vegetable Capsules The Life of Rene M. Caisse RN & the History of Herbal Supplement *This product is not intended to diagnose, treat, cure or prevent any disease. These statements have not been evaluated by the FDA. Beware of Counterfeits U.S. Office: P.O. Box 365, Lake Worth, FL 33460 Tel. (561) 585-7111 Fax (561) 585-7145 www.breastcancerwellness.org 19 E-mail: [email protected] YOUNG TH RI RS E V YOUNG THRIVERS!™ by Heather Jose, Maimah Karmo and Amy Rauch Neilson Welcome to this special section and a new facebook page created just for Young Thrivers!™ Heather Jose, a 13 year thriver of stage IV breast cancer, diagnosed at age 26, originally had a prognosis of six months to live by her original doctor, so she immediately changed doctors and found someone who believed in taking a proactive approach to her healing possibilities. Joining Heather is Maimah Karmo, founder of Tigerlily Foundation and Amy Rauch Neilson, blogger and life long writer. Young Thrivers!™ will discuss mortality, fertility, family, intimacy issues, education resources for wellness, and the emotional elephant-in-the-room-issues that have to be discussed. Their objective is to keep the connection strong among other breast cancer thrivers and to keep the dialogue focused on wellness and living the best life possible no matter the situation. You are invited to join them. They will be interviewing other young women to also feature in the magazine. They would love to hear from you. — Bev Vote 20 Breast Cancer Wellness Magazine | Be a Thriver!® W e have long been called a ‘so-so’ generation. We have been told we will be the first generation that will not pass their parents in terms of wealth and status, that we lack direction and that we expect everything to be given to us without earning it. We are a generation that will likely contribute to social security and yet not draw from it. We hear loud and clear that our future is on our shoulders and that we aren’t going to handle it very well. While parts of these statements may be true, I also believe that we are a generation who refuses to live within the rules that have been set for us. We have fought to improve working situations so that we can be home more, stressed less and happier overall. We have chosen to change the things that we can control and let the rest go. We have embraced diversity. We have also learned that we can begin a movement toward change with relative ease when we put our passion into action. Bev Vote has passion for our generation. She herself was diagnosed at the age of 38. She understands all too well the way that breast cancer impacts a woman’s life just as they are hitting their stride. We have heard all of the slogans that are out there, and frankly I like a lot of them. I want to livestrong. I believe I do stand up to cancer. But I am not talking about mere words which people can wear on their wrist anymore. It is time to be heard. It is time for us to use our energy and passion to end breast cancer. Intuitively, we have the answers. It is within us to start a movement which puts health above dollars, and in doing so we will actually save money in the long run. We also know that if we join forces we can make a difference. Young Thrivers™ is an opportunity for change on an individual and sociological level. We want women to take this journey with us to learn more about themselves and to ultimately change the world. We are not looking for perfect women, we are looking for passionate ones. We are wanting women who want to embrace life rather than cancer. Women who get up each morning knowing that they impact the world in which they live. If you were to ask me why I am passionate about this, I would tell you this: I want to be able to say that I HAD cancer and I want my 14 year old daughter to live a life free of this disease. I also want to know that the things that I have endured and the lessons that I have learned are not in vain. It is so empowering to think that I have the opportunity to make a change in our world for the better. I have passion and determination and a fair amount of tenacity that I believe was given to me for a reason. There is a better life out there for women, and we are the ones to demand it in a way that is thoughtfully heard and by people who are learning to thrive with or without cancer. Cancer doesn’t define me. Though it has certainly changed almost every area of my life, I wouldn’t list it in the top things if I met you on the street. However, it is because of my journey with cancer I have learned valuable lessons and made choices that promote health and wellness. I deliberately choose not to be angry or victimized. I don’t want to live in a pink world and celebrate the sisterhood. I want to help women thrive, to move on from the cancer and pursue that which they were called to do. If a ticked off 28 year old can get Bank of America to rescind their fee policy, imagine what a united group of young thrivers could do to be heard in the medical community. The world is ready for this. Now more than ever. We do not need to keep dying from this disease. Come thrive with us. Heather Jose Author, Speaker, Breast Cancer Wellness Advocate [email protected] www.gobeyondtreatment.com light & firm I 5 Cup A–G I 32 521 – 44 momentum I 5 Cup A–H I 32 F ir m S u p p o rt M a xi m u m S u p p o rt light & firm I 5521 ANITA International Corporation · 3540 N.W. 56th Street · Suite 204 · Ft. Lauderdale, FL 33309, USA Toll free: 1-800-866-6223 · Phone: +1 954 730 8189 · Fax +1 954 730 8723 · E - Mail: [email protected] 529 – 46 www.anita.com I f I were to speak on behalf of young breast cancer patients, my message would be to live their lives to the fullest each and every day. My biggest obstacle in facing this disease was that I was diagnosed as a stage I in 2006, just six months after my first child Theodore was born. My treatment choices included double mastectomy, oophorectomy and four rounds of chemotherapy. Four years, ten months later the cancer returned aggressively at stage IV. I am in the small minority of women who get breast cancer without breasts and of course, it came as quite a shock. I want to help educate other women who have been diagnosed with breast cancer. Amy Rauch Neilson [email protected] www.itsinthegenes.com Maimah Karmo Founder, Tigerlily Foundation [email protected] www.tigerlilyfoundation.org RS E V YOUNG TH RI Thrive [thrahyv] verb. To grow or develop vigorously; flourish W hen breast cancer happened to me on February 28, 2006, two thoughts came to mind immediately – my then 3-year old daughter, Noelle and that I did not want to die. I was terrified of the future and I felt like a prisoner in my own body and in my life. What I have come to learn over the past 5 years is that breast cancer doesn’t have to be the end of the road, but the beginning of a wonderful new journey. Through my breast cancer experience, I learned that I was more beautiful, stronger and more powerful than I could have ever imagine. Where I once guessed, I now knew, where I before took tentative steps, I now walk steady, and whence I once merely existed, I now live. I AM ALIVE and I thrive, every day. This is what I want for all of you, my fellow thrivers, to open your minds to the perspective, that something beautiful can come from the challenge that you’re living with right now. I’m looking forward to loving, living and learning along with you. In health and in love, Visit Young Thrivers™ on Facebook https://www.facebook.com/groups/264032713653598/ www.C4YW.org February 24-26, 2012 Join us at the Hyatt Regency in New Orleans! Registration for C4YW opens Fall, 2011! Be sure to keep up-to-date on all the latest C4YW news by visiting us at c4yw.org and by joining us on Facebook at ‘C4YW’ “You have breast cancer...” Life-altering words women hope and often think they will never hear—especially at a young age. When a young woman is diagnosed with breast cancer, she can feel isolated and alone. Her psychosocial and medical issues are fundamentally different than those of older, post-menopausal women, as is the impact of her diagnosis on her family and friends. With the bulk of medical and psychological resources designed for women over 50, a younger woman may not know where to turn. More aggressive cancers, fertility, relationship issues, treatment-induced early menopause, living decades with this serious diagnosis—these are just a few ways a younger woman’s breast cancer experience can be unique. To address these issues, Living Beyond Breast Cancer and Young Survival Coalition have created C4YW—an annual conference for young women affected by breast cancer and those who support them. PRESENTED BY: MEDIA SPONSOR: LEAD SPONSOR: 5 day Western Caribbean April 21-26, 2012 jazzin it up! Andrea Barbera, Care Manager Anita Care Int’l is proud to be an Event Sponsor for the 6th Annual Breast Cancer Thrivers Cruise. We look forward to spending time getting to know you on this event of celebration and sisterhood. “The Breast Cancer Thrivers Cruise was an over-the-top experience that gave me the opportunity to be with hundreds of my pink sisters. The workshops were inspiring and gave me information I use every day. The cruise invigorated me physically and spiritually to the point that I realized I came on board with cares I was able to leave behind. Undoubtedly this cruise was an experience of a lifetime. Larry and I are looking forward to seeing everyone again this year.” — Carole Sanek, Tampa, FL 6 T H A N N U A L B r e a s t C anc e r T h r i v e r s C r u i s e Sailing out of New Orleans to Progreso, Yucatan and Cozumel, Mexico on the Carnival Elation® Cruise Ship Workshops Included Lillie Shockney RN, BS, MAS Admin Director of Johns Hopkins Breast Center and author of Stealing Second Base Lillie will share her personal journey and how humor has been one of her weapons against breast cancer. Her presentation will include how we as breast cancer thrivers have the opportunity in making a difference for going forward. She has been given many opportunities to inspire others and wants all of us to do the same. We’ll laugh, we’ll cry, and together, we’ll rock the boat! Karen E. Jackson Founder and CEO, Sisters Network Inc In the Company of My Sisters Beverly Vote Publisher of the BCW Magazine Interactive Days-at-Sea Workshops including: The Power of Sharing Your Story — What is your story? How do you share it with others? At this interactive workshop, you will learn how to articulate and deliver your life’s inspirational message. Prizes! Best Karaoke: Get your groove on! Largest Group Far Out Traveler Best Pink T-shirt Contest Best Flip-Flop Contest ThriversCruise.com $528 * Presailing Package 2 Nights in New Orleans in the French Quarter for only $252* $568 $958 * INTERIOR P/P OCEAN VIEW P/P * SUITES P/P Includes City and Katrina Tour, Plantation Tour, 2 Nights Lodging and one way shuttle from the hotel to the ship *Per Person www.BreastCancerWellness.org Book today! Call Julie Wilson 1-800-325-4792 [email protected] *Carnival reserves the right to re-instate the fuel supplement for all guests at up to $9 per person per day if the NYMEX oil price exceeds $70 per barrel. Rates are per person, based on double occupancy, include port charges, U.S. taxes and are subject to availability. Restrictions apply. Ocean suites require full deposit upon booking. Current rates listed as of BCW print deadline, please call to verify. Ship’s Registry: Panama. Inspire Thriver Profile 26 Breast Cancer Wellness Magazine | Be a Thriver!® Laugh ‘Til It Heals Cancer’s ne west way to g e t fit! by Christine K. Clifford, CSP Knowing that Breast Cancer Wellness Magazine is aiding women now more than ever to Be Fit, Be a Thriver!™, I immediately thought about sharing with readers the healing power of laughter. Many may not realize, but laughing out loud takes work and a lot of physical exercise! Your breathing level changes; blood flow changes; muscle tension is reduced. Stress goes down. Physicians such as Lee Berk, M.D., O. Carl Simonton, M.D., and Patch Adams have proven that laughter can provide physiological benefits, such as increasing natural killer cell activity, which is the body’s natural fighter for viruses and tumors; increasing T-cell activity; and reducing cortisone levels which tend to suppress the immune system. But not convinced that you can get your daily dose of exercise along the way? Read on and see how these cancer patients got a full work-out from the new book Laugh ‘Til It Heals: Notes from the World’s Funniest Cancer Mailbox! Warning: Humor May Be Hazardous to Your Illness! Dear Cancer Club, When I went for my first chemo treatment, I had to fill out a health questionnaire about pre-existing problems, such as heart disease, kidney disease, lung disease and so on. After completing the form, the nurse said to the other staff nurses, “Look at this: nothing checked. She is the healthiest person with cancer we’ve had in a long time!” Made me feel good. NOT! I had to cross a parking lot during a wind storm, and I was concerned about my wig staying on. It did stay on, but I told my friend Chris how upset I would have been if it flew off in front of my co-workers. Chris suggested I should run after it, yelling, “Fluffy! Get back here! Bad dog!”She made me laugh. So now my wig’s name is Fluffy. I will tell my husband that tonight Fluffy is getting a bath. Leslie Warren Toronto, OH Dear Cancer Club, I am a double cancer survivor: first colon, then breast, now eight years behind me. I was visiting my daughter in Florida. While there, we were working in her yard: planting, digging up weeds, and so forth. I was wearing a camp shirt that buttoned down the front, and a “cool” bra with my prosthesis. I had worn it before without any problems. It doesn’t have prosthesis pockets, but I do have pocket bras that I wear most of the time. I was weeding around the stone walkway and came upon a weed that was connected to lots of off-shoots. I got a little too rambunctious, trying to pull the entire weed, when my prosthesis fell out on the sidewalk with a plop. I looked around and reached down, wiped my “boob” off very carefully and replaced it in the pocketless bra. I heard the snickers, but very nonchalantly went about my weeding chore. My daughter just about lost it when she realized what I had just done! We had some good laughs about it later. We need good laughter and serious hugs during our recovery. Norma Jones Rising Sun,MD www.breastcancerwellness.org 27 THE NEW Sentoo Wig Collection IS HERE FROM EUROPE A collection of 7 UNIQUE STYLES specially designed for WOMEN with SENSITIVE needs. The Sentoo Collection stands out by featuring these unique characteristics: • LIGHT AS A FEATHER • SOFT GENTLE FEEL • NATURAL APPEARANCE • INVISIBLE HAIR LINE • NATURAL COLOR EFFECTS TO SEE MORE STYLES AND TO FIND A STUDIO NEAR YOU VISIT w w w. s e n t oowigs.com Distributed in the USA by International Hairgoods Visit www.sentoowigs.com or Call us at 1.800.328.6182 At International Hairgoods, we continually strive to offer you, the professional, the highest quality and newest solutions in hair restoration. Dear Cancer Club, About four months after my surgery, I attended a support group meeting where they displayed prostheses. One woman spoke up and said she simply used a shoulder pad in her bra and that helped a lot. I liked that idea. The following Saturday night I was invited to a friend’s house and thought this would be the perfect time to try the shoulder pad. We played board games, watched a movie, and then moved to the table to play cards. On his way over to the table, Jim leaned over to the floor and said, “Did someone lose a shoulder pad?” I was laughing so hard that I had to tell them where it came from. Now I use safety pins. GwenMyers Columbus, OH Have you laughed out loud yet? No? Try this: on the count of three, throw your head back and start laughing. Better yet, ask a friend to do this with you! Pretty soon, you’ll have tears streaming down your face! In Laugh ‘ Til It Heals, I interviewed nine of the world’s leading authorities on the use of therapeutic humor. Here’s what Patty Wooten, RN and author, speaker and cancer survivor had to say: Managing cancer is serious business. The treatments are toxic, the stakes are high, and the situations with which a patient must cope are often treacherous. Why would anyone want to laugh under these circumstances? Because laughter and humor can help Healthy & Hopeful Lifestyle Series E-books, CD, MP3’s and DVD Learn How To Move And Breathe With Purpose Learn How To Breathe With Purpose $5.00 OFF On Sales Over $9.98 Use Code “5off” Expires 2/15/12 Therapeutic Breathing $10.00 OFF FREE Breath E-book On Sales Over $30.00 Use Code”30off” Expires 2/15/12 www.BreastCancerYoga.com 28 Breast Cancer Wellness Magazine | Be a Thriver!® Therapeutic Yoga you get past the unpleasant, manage the unbearable, and cope with the unexpected. Humor is a perpetual event. It is a way of looking at things. No two people see things the same way, so there is a wide range of what can be defined as humorous. Men’s perceptions of what is funny tend to be different than women’s. With regard to illness, humor is the ability to perceive and find something funny in the face of adversity. Sometimes, humor provides us with a way to distance ourselves just enough from a troublesome experience to be able to tolerate it. Laughter is a behavioral event. It is a physical response to humor that can engage the entire body and involve most of the major muscle groups. The extent to which your body changes is related, in part, to how comfortable you feel with losing control. When you first recognize that something is funny, your breathing pattern changes, then you develop a smirk which turns into a smile and is followed by a grin. Next, you begin to make noises, ranging from controlled snickers, escaped chortles and giggles to cackles, hoots, and guffaws. As the noise grows louder, you may begin to sway back and forth, slap your knees, stomp your feet or jab your elbow into someone nearby. As your laughter peaks, tears may begin to flow freely. When you are finished laughing, you may feel weak and exhausted for a while. Laughter serves as a safety valve to release worries, relax, and let go. So next time you’re sitting in your chemo chair, lying on the radiation therapy table, or just getting ready to take a nap, don’t forget to laugh!™ It’s good for your health! n Christine Clifford, CSP, is CEO/President of The Cancer Club (www.cancerclub.com) and the author of eight books including Laugh ‘Til It Heals: Notes from the World’s Funniest Cancer Mailbox, Not Now…I’m Having a No Hair Day! and Cancer Has Its Privileges: Stories of Hope & Laughter. She is a seventeen year breast cancer survivor and Thriver, and speaks internationally on finding humor in the cancer journey. Don’t forget to laugh! ™ Email Christine at: [email protected]. Look for more wonderful things to come with the collaboration of our strategic alliance with Studio One Eleven, a division of Berlin Packaging. For more information contact www.breastcancerwellness.org 29 Inspire Thriver Profile Left: Lisa with her daughter, Garbriella. Above: Lisa and her husband Philip. The Ultimate Food Fight I was diagnosed with Stage 2 breast cancer in 2007. At that time, I lived in San Diego with my 8-year-old daughter, and I was in a serious relationship. I had just started my doctorate degree in Health Psychology (talk about irony!). In short, I had a lot of living to do—and I intended to fight back and thrive. I had been learning quite a bit in my doctorate program about nutrition’s affect on mind, body, and spirit—and I was a healthy eater overall. But I’ve never been one to kid myself that I know it all! I did not want to be a passive victim to breast cancer, so I decided to learn some ways to kick things up a notch nutritionally. My plan was to attack my cancer through food. My first source of information and inspiration was my friend, Cindy. At that time, Cindy was a 3-year thriver of stage 4 lung cancer… despite the fact that she had been given zero-to-1 month to live. I figured if Cindy was beating the odds, she must be 30 Breast Cancer Wellness Magazine | Be a Thriver!® doing something right! So we had a long talk about food. She encouraged me to start juicing daily, and also to eat more fresh vegetables and fruits. She also recommended that I start reading labels very carefully. The very next time I went grocery shopping, I began to empower myself by reading those labels. And I learned something very important—just because something has a ‘natural’ or ‘organic’ label on it does not mean that it’s completely healthy. Many ‘organic’ or ‘natural’ products may have added sugar, or even some fillers that are completely unnecessary for the body. For example, dried apricots are not nec- by Lisa Grey essarily a good thing. Apricots are fantastic for your health—but many dried fruits have sulfur dioxide added to them to keep their colors bright. Is it ‘technically’ safe to eat sulfur dioxide? Well, if by ‘technically’, you mean the government has approved it, then… yes. But, if your internal organs could talk, they would much rather that you eat dried apricots without any junky stuff added. Also, store-bought cereals and cereal bars often contain high amounts of sugars. It may be cane sugar or brown sugar—but please note, those are still just ‘sugar’ to your body once they’re inside of you! And speaking of sugar, I realized that an alarming amount of prepared foods contain sugar—including soups, spaghetti sauce, and ‘healthy’ chips and pretzels. Who knew? This drove the point home—if I wanted to fight my cancer with nutrition, then I had to have some control over what went into my body. And if I wanted some control over what went into my body, then I needed to prepare my own fresh foods at home. In theory, that was great. But there was just one huge problem—how? Let me explain… I already knew how to cook—I’d gone to culinary high school, and I’d been an avid foodie for years. But cancer treatments were draining me of all my energy, time, and money. One day during treatment, I stared at the onion on my cutting board. But just the thought of chopping that onion left me wanting a nap. And that’s when it really hit me: Other survivors feel the same way. After talking to many survivor sisters (and brothers)—in a nutshell, that is why they do not make the switch to healthy cooking and eating. The reality is—after cancer treatment we are all expected to go back to the daily grind—work, school, parenting, relationships. But our reality is - we are physically, emotionally, and spiritually drained from our cancer. Why on earth would we want to add anything to our schedule that takes more time, energy, or money? And so, that very day in my kitchen as I stared with dread at that onion, I made a vow. I vowed that when my treatment was done, I would do everything in my power to come to the rescue of my fellow survivors. Rescue? Yes. Because let’s be honest, none of us is brave all the time, nor should we be. There is a time to be strong and power through things—and a time to let others help you to power through. We were not meant to walk (or crawl) alone in this world, whether it be through cancer or any other hurdle. My heart was full with the longing to help as many people as I could to eat healthy, and to keep it as simple and cost-effective as I could. I wanted to make just one thing a bit easier on their list of Conquering-The-Daily-Grind-After-Cancer. And I wanted them to thrive while doing it. I wanted to empower them not just to avoid cancer, but to sleep well… gain energy… look better… but most of all, feel better. And so, when I finished my treatment, I started to blog for all my survivor sisters and brothers. I called the blog Pink Kitchen. I figured if I could help just a few people to see that healthy eating did not have to be tricky, expensive, or bland—then the blog would be worth it. I also added some nutrition information that survivors could relate to their specific needs—foods to help during radiation, foods to help with chemo-brain, cancer-battling foods, and— occasionally—even foods to help survivors to feel sexy again. (Well, why not? If we must jump back into The-Daily-Grind-AfterCancer, then we should be able to enjoy The-Perks-in-Life-Before-Cancer!) Never in my wildest dreams did I expect the response that I got to Pink Kitchen! The emails came flooding in—not just from breast cancer survivors, but from people of all walks of life. People with other diseases, inspired by the concept of fighting back with food. People who wanted to learn how to cook health foods. People who wanted to prevent cancer from entering their lives in the first place. I was so touched by all of the people out Above: Lisa with her daughter, Garbriella. Left: Lisa Grey’s book ‘Pink Kitchen Soups’. there who were just waiting for someone to encourage them that they could do it… someone who cared that they were already tired, broke, or even unmotivated… someone who, while wielding a spoon in their hand to fight back, just needed a virtual hand to hold the bowl. Fast-forward a few years and 3 cookbooks later. I’m still cooking, blogging, and thriving at Pink Kitchen… and helping others to cook and thrive. Hopefully, that will continue each day. Take that, cancer. Now that’s the ultimate food fight! n www.PinkKitchen.info Fighting Breast Cancer One YOGA Mat at a Time Premium Yoga products Over-sized for comfort & stability Health & eco-friendly 10% DiSCoUnt using code BCW Health, Wellness & CURES!! www.EmbraceActivism.com [email protected] • 425-894-3210 www.breastcancerwellness.org 31 Inspire Thriver Profile Valarie Thornton-Willoughby, Pioneer by LAURIE BENNETT Don’t ask God to order your steps, if you aren’t willing to move your feet. — Jewel Diamond Taylor “Many people in my family have died from various types of cancer and I am the first person in my family to survive it.” says Valarie Thornton-Willoughby, Durham, NC. Diagnosed with stage two breast cancer at the age of thirty, this young African American woman faced fears that many women never had courage to voice. In 1980, few women discussed breast cancer and African American women rarely talked about the disease. Valarie believes her committed plan of action and steps that her changed lifestyle helped her to be the first in her family to not only survive cancer but to thrive. Valerie graduated from college at age sixty from Emmanuel Bible Institute in Durham, NC with a Bachelor’s Degree in Religious 32 Breast Cancer Wellness Magazine | Be a Thriver!® Education. She is now working towards her Masters Degree in Christian Counseling. Such actions only validate and articulate the tenacity and standard that Valarie Willoughby lives by. Pursuing knowledge has always been a keen goal for Valarie and she has more to show for it than just a framed diploma hung in her office. She has a fuller life. “In 1980 I took it upon myself to learn how to prioritize the many doctors appointments and how to manage my treatment plans. I pondered the whole process of diagnosis to healing to full recovery. I knew that it was a distinct impossibility that I was the only African American woman who had ever had this disease so I went on the quest of my life. Being the nerd that I am, after my initial diagnosis I started researching breast cancer, stages, mastectomy and anything else I could locate. Every day I went to the library after I dropped my children at school and spent the most of the day reading and taking notes and writing down questions I wanted to ask my doctor. I spent the rest of the time seeking other doctors’ opinions in hopes of having a different diagnosis. Frighteningly they all gave me the same diagnosis and treatment plans.” “One day, I was in the library going through stacks of books and research looking for information on moles because I had read that when a mole on your body changes, it can be a health warning signal. Since my body had many moles, it seemed like a good idea to research more about moles.” With research books piled in her arms, she bumped into a woman as she was leaving. The woman assumed Valarie was a medical student and proceeded to ask about her school. When Valarie shared that she was a breast cancer patient seeking more information about her disease and attempting to educate herself on treatment plans, a strange look crossed the woman’s face. Valarie believes that this accidental meeting was one of life’s serendipity moments. Valarie had just met the head of radiology, Dr. Moore from the Philadelphia College of Osteopathic Medicine. Dr. Moore’s goal was to locate twenty women diagnosed with breast cancer to try a new experimental treatment called a lumpectomy as an option to mastectomy. The day they bumped into each other, Dr. Moore had 19 of the 20 women needed to be the first for the new lumpectomy trial. Valarie was her 20th. Shortly thereafter Valarie was introduced to the surgeon who would perform the lumpectomy and the the following week she underwent the new procedure and stayed a week in the hospital. Two weeks after her lumpectomy surgery, Valarie began the prescribed radiation treatments. For 24 weeks, seven days a week, Valarie reported to the radiologist at 7 a.m. Valarie continues, “But what I kept telling myself during that time was what every mother of two young children says to herself, “let me get this done because I have a lot to do. I’m busy and I don’t have time for this.” Valarie states that she does not regret the experimental treatments because she believes they helped save her life. When it was time to see an oncologist to discuss further treatment, she refused. Several times doctors tried to convince her. They reported that she was being very foolish and that her type of stage two cancer was only seen in women over 60 years old. She was told that she had approximately two years to live. Still she refused any further treatment and was labeled ‘non-compliant’. “I looked like a piece of burnt toast. I was more tired than the word implies. I had no appetite. I alternated between nausea and constipation daily. I had no eyelashes, no hair under my arms. My fingernails and toenails felt like rubber, and my ears rang constantly. Furthermore, I had a body that I didn’t recognize any longer. I had had enough as far as I was concerned,” shares Valarie. “I believe God was telling me I did not need any more treatment. I heard the Holy Spirit tell me I was not going to die from breast cancer and this gave me the faith to end my medical treatments.” “Because women were not encouraged to discuss breast cancer, we didn’t know what was available to us. We didn’t know what coping methods might be available to us. We didn’t know what treatment options there were. We did what we were told to do. African American women were silenced even more. We were told to stuff some pink foam in our bra and be on our merry way and all would be fine. I immediately rejected the pink molds and asked for brown. The looks I received were enough to tell me that there were little options for me and even less support,” states Valarie. The 168 treatments of radiation in 1980 left some side effects that linger today, 31 years later. “My fingernails still won’t grow and I am allergic to the acrylic they use in false nails so I can’t get my nails done. The hair under my right arm never grew back but I don’t consider that a problem. I still suffer from lymphedema on my right hand and shoulder but I feel grateful that God used me Bloom Anew u u fi ’ b R T Access Pockets, u F R L C Easy u kG T u ti b , b Women who’ve had a mastectomy now have the option to regain breast shape and fullness without artificial implants or loss of muscle. DIEP S-GAP I-GAP SIEA To learn more about these exciting procedures or to schedule surgical or consultation appointments contact us at 843-388-0660 or toll free at 1-866-374-2627. Offices in Charleston and Mt. Pleasant, South Carolina www.naturalbreastreconstruction.com Visit our blog : www.breastreconstructionnetwork.com www.breastcancerwellness.org 33 to be a pioneer for the lumpectomy procedure instead of a mastectomy. I am thankful. Then He opened doors for me to educate other women and today He continues to do that. That is why I went back to school - to educate myself and to help educate others.” “However, there are things in books that do not always teach you about the experiences you need to know. I have always been an avid seeker of knowledge. I love to read because I am a curious learner. My mother used FA R R O W M E DIC A L I N NOVAT ION S Better Compression Made Simple™ One-Stop-Shop for all Upper Extremity Compression Needs Walk in with a prescription ‑ walk out with a garment customized on site! Can be put on with one hand! FarrowWrap Trim‑To‑Fit™ Arm Simple Velcro® fasteners adjust as needed FarrowWrap™ Hand Gauntlet Durable and Comfortable Use instead of finger bandaging Farrow Microfine Glove Edema • Lymphedema Venous Disease Post Surgery www.FarrowMedical.com [email protected] (979) 822‑9120 p • (979) 775‑5202 f 34 Breast Cancer Wellness Magazine | Be a Thriver!® to make me sit outside on our front steps when the weather was nice so that I would get fresh air. If I started a book that interested me, I’d keep reading until I finished it. My cousin now teases me and says that I will read the phone book but I don’t go that far. I have always been nosy and researched and asked a millions questions about everything and anything. The word curious does not begin to describe me.” She still felt she was incomplete after dealing with cancer and treatment based only on research, education and information. Valarie had not yet dealt with the emotional issues that a breast cancer diagnosis brings. “I was suffering from post trauma stress disorder because I had never dealt with any of my emotions during breast cancer. I had repressed my feelings about the cancer so that I could focus solely on getting physically well. Later while I was recovering from anemia and a hysterectomy, I realized these unhealed issues were taking a toll on me. I sought help from a professional counselor. She helped me to see that dealing emotionally with a situation is just as important as doing something about it. Using the tools she gave me, I began to deal with these unhealed emotions day by day,” Valarie said. “I am still not very emotional, my daughters tease me about it all the time. But today I understand better that emotion has its place and if I feel it, I go with the feeling even though it seems my intellect kicks in first. I believe God gave me the gift of being able to emotionally detach myself from a situation so that I can look at it objectively and figure out what to do for myself and for others”, Valarie continued. Yet, Valarie, a woman who did not know how to handle her own emotions, went on to school to study counseling and how to help others with their circumstances and emotions. Not only is she an activist and advocate for breast health, Valarie serves as a Health & Wellness ministry leader at Antioch Baptist Church. She coordinates health fairs, seminars, and programs that pertain to the health issues that are plaguing African Americans. Today she is studying to be a Chaplain at her local hospital to assist women and families. This is in addition to singing in her church choir, serving as a Sunday School teacher and being ordained as a minister at her local com- munity church. Valarie indeed chose a life that portrays one of her favorite quotes, “Don’t ask God to order your steps, if you aren’t willing to move your feet.” A wife, mother and a grandmother to six, Valarie Thornton-Willoughby at age 61 thrives. She learned at a young age about breast cancer, and was determined to be proactive in her healing. She researched her body from head to mole. She formulated her wellness plan. She agreed to a lumpectomy at a time when the new procedure was unheard of. She listened to her body and at age 31 said no to chemotherapy against the professional advice from the medical staff. She learned how to better manage her emotions and how to heal more deeply on other levels of her life. Today she counsels women and families for their mental, physical, emotional and spiritual well-being. “I am able to help people because I understand their fears, doubts and concerns about situations in their life. I am able to help them because I can lead them through their emotions with truths and facts about their circumstances. I help people because I listen to them and help them see past what they are facing in the present moments,” Valarie said. Valarie serves many breast cancer support groups that are mission minded to wellness and healthy well-being. n Because you know a Breast Cancer patient or survivor… be a friend, tell a friend. Visit Softee USA.com or call 1‐866‐605‐8585 Prosthetic garments for comfort during recovery & after. Helpful resources & inspirational support from a Breast Cancer Survivor. NE SUBSCRIBE TO BCW MAGAZI p. 19 Name ____________________________________ Email _ ______________________________ Take Time To Live Love Strengthens The Experience Matters To Us Address_ __________________________________________________________________________ City_________________________________ State_______ Zip_ __________________________ Donna Deegan q Yes! Sign me up for a year subscription (4 issues) of BCW Magazine. My Defining Choice The Power of NON-PROFIT PRST STANDARD US POSTAGE PAID PERMIT 205 BOLINGBROOK, IL $4.95 Sharing Your Story Volume 6, Issue 3 Fall 2011 Subscribe today! Only $12 for 1 full year q Check/Money Order q Bill My Credit Card CC #________________________ Exp_________ Send to Breast Cancer Wellness, P. O. Box 2040, Lebanon, MO 65536 OR Subscribe online at www.BreastCancerWellness.org www.breastcancerwellness.org 35 Inspire Thriver Profile Day by Day by LAURIE BENNETT “When a mother contacts me asking for help because her daughter has been diagnosed with breast cancer, my first bit of advice is this: let the patient be in charge. Have her tell you and others what she needs. Otherwise, there will be a great deal of lost energy, but by having the patient in charge, everyone will benefit.” — Charmayne Dierker Charmayne is the mother of Lillie Shockney. Together Charmayne and Lillie founded the Mothers of Daughters with Breast Cancer, a non for profit organization assisting mothers. mothersdaughters.org Wanda Knight, a woman in her seventies, lives with a sassy vigor and a vitalized lifestyle that represents the class of her heart and her beauty. Wanda has been married to her husband Gerald for fifty two years. Together they raised four children, Kim, Michele, Steve and Jeff and have eight grandchildren and two great-grandchildren. To this day Wanda remains close with her lifelong girlfriends. Every year since high school they continue to meet annually for a weekend getaway. Together these women have shared their life’s experiences and challenges and have learned to support each other. In 1995 Wanda’s oldest daughter Kim was diagnosed with life threatening breast cancer at the age of 35. As a mother it was difficult to witness my daughter endure the attempted cancer treatments that were severe and long lasting. Because Kim lived only an hour away, I traveled to be with her as much as possible. Kim’s breast cancer was so progressive that she required chemotherapy before the surgery Kim’s doctor recommended radiation 36 Breast Cancer Wellness Magazine | Be a Thriver!® treatments and breast surgery followed by a bone marrow transplant. In the fall of 1995 Michele and I took Kim to Barnes Hospital in St Louis for her bone marrow transplant. For six weeks I never left her side. Following the transplant Kim demonstrated what she wanted to do in her life by spending time with her new nephew Mitchell, orchestrating to have family photos with her nieces and nephews, and taking a vacation together with her sister, her girlfriends and me. Even though Kim was dealing with her own health issues and mortality concerns, Kim encouraged and gently pushed me to start my own business. Although I have worked most of my adult life with our successful family business, Knight Auction Service, I took her advice. I now believe Kim knew I would need something to busy myself with after her passing. Even though I never talked or believed she would pass. A mother always has hope to the end. I never did not have hope. But Kim knew. And Kim’s nudging to me opening the store was Kim’s way of taking care of me. With help from Steve, my oldest son, I opened Knights Men’s Wear in downtown Lebanon, Missouri prior to the time of Kim’s passing in October 1997. Ten years later Michele, my second daughter was diagnosed with breast cancer. Although a different type of cancer, the news to me was more than frightening and overwhelming, at first it was paralyzing. “I remember the day that my younger brother and I told Mom and Dad about Michele’s diagnosis. I watched Mom catch her breath and just absorb what we had just told them. Days and weeks later I continued to watch my mom focus on Michele’s wellness and to keep life going for all of us. She never stopped, she continued every day moving forward with her life which helped each of us to do the same in our lives. She gathered information, educated herself and helped all of us. She might have had tears, or silence in her day, but she kept all of us in a hopeful attitude,” said Steve. I handled the news of Michele the same as I handled the news of Kim. I continued to care for my family and to move forward the best I could. When my fears arose and gripped me, I willed for hope and strength. Thankfully Michele was treated successfully for her cancer. Michele continued to operate the day to day activities of her business and alongside her husband, they focused on raising my grandson Mitchell. During Kim’s treatment, and before her own breast cancer diagnosis Michele assisted her local breast cancer foundation, The Breast Cancer Foundation of the Ozarks. Today, she continues her service to the foundation as a board director. A mother of two daughters who both had breast cancer makes one ask, how do one handle such crisis as you bury your oldest daughter and then face the disease with your remaining daughter? Wanda Knight will tell you day by day and always with a resolve of will to be strong and with a hopeful attitude about life. One of the first employees of Knight’s Men’s Wear was Lori Appleby. “Steve hired me the day before Kim’s passing because the family needed someone to keep the store open while they grieved. I had never met Wanda until the day after Kim’s funeral. I worked for her for the next ten years while the store remained open. I was there in the days following Kim’s passing and through Michele’s diagnosis and treatment. In one of the store rooms, we always had a fresh pot of coffee brewing. Wanda’s friends would stop by unannounced and meet Wanda in the backroom and just talk with her, listen to her and love her. I watched her many friends support and love her in that backroom with nothing more than two chairs and a coffeepot. Having known Wanda for the past seventeen years, I admire how she lives her life with strength and a gracious attitude.” It is by choice that I continue to move forward in living. I get up everyday. I work. I love and care for my children and grandchildren and husband. I have my faith to get me through the days. Things that I endured and faced made me a stronger person because I allowed them to strengthen me. n [email protected] Before After • Dr. Lewenberg’s Formula treats all forms of hair loss, including genetic, auto-immune, hormonal and cancer related • Use before breast cancer treatment to reduce hair loss • Use after breast cancer treatment to regrow healthy hair faster • Regrow normal hair even if you are taking a medication that can cause hair loss like Tamoxifen®, Arimidex® or Femara® FEATURED ON LIFETIME’S THE BALANCING ACT airing on TELEVISION For more information and to tailor the treatment to your specific needs, please contact us at: ADAM LEWENBERG, MD 184 E. 70th Street, New York, NY 10021 • (212) 249-8800 [email protected] www.BaldSpot.com www.breastcancerwellness.org 37 Inspire new! FLAX OIL Organic. Fresh. Cold-Pressed. And now 20% off! Use code: FLAX20 when you shop online! www.bionatures.com *valid for BioNatures New Organic Flax, Hi-Lignan & Clear Oil. Your Body, Your Mind and Their Link to Your Health by SANDY JOST, PH.D. The explanation for why a rare individual recovers from extraordinary circumstances lies somewhere within the complex workings of the body and mind. Scientists are now aware that these are not so much spontaneous healings as the result of hard work and events that somehow bring about a change from the individuals’ original way of thinking. Guided imagery is one valuable tool that can help you prepare your mind and body for such change. Guided imagery has been studied rather extensively in various areas of health. It has been shown to: • Reduce difficult emotions like fear, powerlessness, and depression • Instill confidence • Create optimism • Reduce physical tension and stress • Decrease panic and anxiety attacks • Help to manage pain and thereby reduce unwanted suffering • Diminish unwanted side effects of conventional medical treatments • Improve sleep and sleep patterns • Enhance the immune response • Deepen one’s “will to live” • Evaluate and change unhealthy beliefs • Transform an experience into once that is positive • Help to attain a higher quality of life This is only a partial overview of what scientists have found when adding guided imagery to medical treatment. So how does this relate to you and your health? If you think this could only be a minor ad- 38 Breast Cancer Wellness Magazine | Be a Thriver!® dition to your particular case, believing your specific health issue to be totally unrelated to your mind, read on. The most up-to-date medical systems now attempt to incorporate a more three-dimensional look at treatment rather than just trying to determine what repairs need to be made on a malfunctioning body of organs. The mind plays an incredible role in the workings of the body. We have come to learn that the body and mind can no longer be separated out as two physically distinct units, for they are completely interwoven with biological fluids and electrical responses. This complex two-way communications system is in constant contact with each and every cell of your body as well as the deepest regions of your mind. Be sure to always include a doctor in your search for health! Doctors have many tools of their own that are very important. Please keep in mind, however, that the tools you bring to this quest have equal value, for it does not take any college degree to learn how to interpret this communication system between your body and mind effectively. If your particular doctor does not offer such a three-dimensional look into your treatment, do not wait to add some of the easier methods such as the ones that are included in my book, Your Body, Your Our give back pledge: Mind, and Their Link to Your Health – How GUIDED IMAGERY can bring extraordinary results to your life. These easy methods are designed to give you a simply entry into the more all-inclusive approach. But do not be discouraged with the medical community. Understand what your doctor is trying to do. First of all, our culture trains doctors to announce every negative outcome possible in order to protect themselves against legal implications. But once it is more widely recognized that those same negative pronouncements put their patients into mindsets that are not conducive for healing, the patients will be asking for change and we will begin to see a more well-rounded approach. Secondly, patients and caregivers have been known to get angry when doctors are unable to give a definite answer about an unknown situation. Our doctors are NOT capable of prophetic information, although we might wish we could give them that power. Never rely on anyone’s quoting of statistics to determine your particular situation – whether it concerns your outcome to a life-threatening illness or the simple cold that “appears to be going around.” Even if the person quoting the “facts” is someone with authority, it is only ever you (and your God) who can determine your path. Just as Olympic athletes add imagery to their workout for peak performance no matter what the sport, so too should you consider the addition of guided imagery to your treatment plan – no matter what the health issue. But remember, just as an Olympic athlete is never guaranteed a particular win yet still chooses to compete, so too can you choose to recognize that there is no guarantee for the type of outcome you will find as you pursue healing. Healing takes different forms for different people at different times of their lives. Without a predetermined view of the “cure” you currently wish for yourself, trust that guided imagery will help you to find a balance that will allow you to more peaceably communicate your true nature to the world. For no matter what form your own “healing” may take, it is only when your mind can find this peace that your body will then be free for the real healing to begin. 2% of all sales will go to charity. Compression hose and arm sleeves on sale from the top manufacturers. Jobst • Juzo Mediven • Sigvaris Compression price guarantee. What is GUIDED IMAGERY? Guided imagery is the process of using a person’s voice to guide you to a deeper state of relaxation, where an imaginary experience feels so real that it can include sight, sound, smell, taste, touch, and emotion. It often uses images that are symbolic so that interpretation can take place at a very deep, emotional level. Guided imagery often relies on a recorded voice. Customized sessions held one-on-one with a professional are another option; just as is the use of your own inner voice accompanied by nothing more than a creative imagination. But no matter what the venue, guided imagery is delivered with the intention of creating a desired outcome, which in this case, is for an improvement in health. All orders ship free. 877-835-2321 isupportcharities.com The Conscious Cancer Journey and the Empowered Life Beyond Feeling isolated or alone? Partner with Healer and Life Coach Melanie Brown in an innovative coaching/healing program that moves beyond traditional support groups. For over 20 years, Melanie has worked with cancer patients at all stages of disease and recovery. It’s never too late to harness your healing power. Visit the website to receive an audio interview discussing the program and other bonuses. • Spiritually based • In person or by phone • Individual or group programs • Complimentary assessment • Personalized • Scientifically proven • Register for free teleseminar via website • Works nationally and internationally Limited Sessions — Reserve Today! Melanie Brown, PT, Healer, Spiritual Life Coach 303-280-5751 www.consciouscancerjourney.com www.breastcancerwellness.org 39 But, if your mind is already affecting your body’s health and you want that effect to be more positive, then how do you CHANGE what your mind is thinking enough so that you can have a different outcome associated with your health? Guided imagery is one of the easiest tools you can use to help change what your mind is communicating to your body as well as to help you listen to whatever your body is trying to communicate to your mind. If your body is “expressing” a state of un-health that you would like to change....so that you can heal, or cope, or even simply learn from your body as you would a wise old friend....then guided imagery is for you and is also very simple to do. You body is an incredible sponge for the words you hear over and over again, as well as those highly charged emotional word you may have heard only once. Your body takes in all these words as pictures, translating them quite easily into various emotions and images that you associate with each picture. Your body is also incredibly adept at expressing these emotions to the rest of your body through a physical translation that occurs in the form of various neurochemical signals that travel through the cells. Just as a blush is the physical expression of an embarrassing thought and “butterflies in the stomach” are the physical expression of fear, some of these neurochemical messages are easier for us to interpret than others. This two-way communication between body and mind is constant. Since it is occurring anyway, learning more about this language can help you to tap into it and become more aware of what your body is expressing to your mind and what you are expressing to your body. Over time, you can become quite adept at speaking your body’s language and begin to direct it more intentionally toward all that you want it to be expressing. Subsequently, if it is at all feasible for your body to give what you are asking, it will comply; for your body is always trying to give you what it thinks is “best” at any given moment. Everyone can learn to speak this language of the bodymind. It is very easy to learn. Use the same mind you once used as a child – one with a natural inclination toward a creative imagination! Lean on whatever images “speak your language” by using the senses that are strongest in your enjoyment of life’s various touches, sights, smells, or sounds. Listen to a guided imagery CD over and over again, just as you would a favorite song on a CD, and learn to experience a healing exchange through a luxurious twenty minute session of intentional and complete relaxation. Excerpted with permission from Your Body, Your Mind & Their Link to Your Health: How GUIDED IMAGERY can bring extraordinary results to your life, written by Sandy Jost, Ph.D. Included with the book is the CD: ONE guided imagery session designed to assist you in the management of your health issues. Dr Jost recommends: • Play the CD with headphones whenever possible. • Find a quiet spot where no attention is necessary – NEVER while driving a vehicle! • Journal to clear your mind and write down everything occupying your thoughts. • Keep your journal private to encourage freedome of expression • Sit in a position not likely to put you to sleep; relax; and then listen to the CD. • Journal again to process all that you experience in each imagery session. • Repeat daily – or more if necessary – to achieve relief and encourage the changes that are more likely to occur with practice. n Sandy Jost, PhD Founder, ONE Health Institute www.ONEhealthInstitute.org “Healing Images across America” Dr. Jost is the Founder of ONE Health Institute, and the author of: Your Body, Your Mind, and Their Link to Your Health, The Cancer Involvement Program – An Integrative and Holistic Approach to Conventional Medical Treatment, The LAST thing the world needs is ANOTHER Weight Loss Program. The career of Dr. Sandy Jost mirrors the progression of change in science as it has come to recognize the power of connection between body, mind, & spirit in healthcare and wellness. With a BS in biology, MS in nutritional biochemistry, and PhD in psychology with a focus on psychoneuroimmunology, her aptitude took her initially from the research world where she published in recognized scientific journals, to commercial roles within the advancing areas of biotechnology, to her current role as educator, where she has now found her true calling. A noted author, speaker, and educator on the body-mind connection, Jost founded ONE Health Institute to promote more medical training of the scientifically grounded integrative techniques, ONE Health Publishing to further published works that support the patient-focused complementary & alternative therapies, and serves in various consulting capacities. Jost uses every avenue possible to spread this empowering message of the bodymind: that through “whole-body listening” we can maximize our psychological and physical health. Dr. Jost will be presenting the BCW Ambassador Certification Program on June 8-10, 2012 in St. Louis, MO. For more information, contact Dr. Jost at [email protected]. 40 Breast Cancer Wellness Magazine | Be a Thriver!® Are your patients singing your praises? Remember how it feels to be a patient? The Experience Matters Heather Jose is a professional patient AND a healthcare provider. Her high energy presentations bring both perspectives together in order to help your group create a positive, streamlined process that sends patients away singing your praises. Receptionist to doctor, paperwork to scheduling... it all evokes an experience. Heather will help you make it a positive one. Perfect keynotes for all healthcare employees and also for patients and their families who want to be actively involved. Author, speaker and 12 year stage IV breast cancer thriver— Heather is ready to help your group Go Beyond Treatment. Contact Heather at [email protected] or 616-920-1580. gobeyond Heather Jose TREATMENT Need inspiration? Buy the book! Look for the updated version of “Every Day I am Killing Cancer” this fall. GoBeyondTreatment.com Healing Images™ Certification Symposiums Sandy Jost, Ph.D. Author of Your Body, Your Mind, and Their Link to Your Health: How Guided Imagery Can Bring Extraordinary Results to Your Life The best way to get trained in the integrative therapies—offering a holistic approach to the treatment and management of disease and lifestyle issues. Get certified in guided imagery and receive a solid foundation in the cutting-edge sciences of psychoneuroimmunology [PNI], journaling, nutrition, epigenetics, neurogenesis, and neurolinguistic programming [NLP]. Be prepared, so that you can offer diverse supportive therapies in your own integrative medical or wellness programs! Contact Sandy Jost, PhD 972-322-7782 www.HealingImages.com [email protected] SCHOLARSHIPS AVAILABLE www.breastcancerwellness.org 41 42 Breast Cancer Wellness Magazine | Be a Thriver!® Pink PinkPages Pages DIRECTORY BreastCancerWellness.org Apparel Gifts CANCERAPPARELGIFTS.COM sells eye‐catching cancer shirts, apparel and gifts to promote awareness for your cause. Take a stand against cancer and make an impression with our cancer gear. www.cancerapparelgifts.com Cards / Stationary DIRECTORY A guide to the best services, products and websites so you can Be a Thriver!™ Compressions Garments Alternative Medicine Connect Pink PinkPages Pages Lymphedema Products carries compressions bandages, gauntlets/gloves, arm sleeves, legwear/ hosiery, nighttime compression devices, foams and padding, shoes/boots skincare lotions and Sur5vor.com a community of cancer venous warriors educational materials for Lymphedema, (and their whoCall haveKelly reached or at edema andsupporters) other edemas. 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Breast Cancer Wellness AMBASSADOR Certification Program Be a founding member of the BCW Ambassador Certification Program designed specifically to serve those diagnosed with breast cancer. The certification program is open to anyone interested in receiving training and certification in guided imagery and the Healing Images™ program. Sandy Jost, Ph.D. Author of Your Body, Your Mind, and Their Link to Your Health: How Guided Imagery Can Bring Extraordinary Results to Your Life June 8-10, 2012 Saint Louis, Missouri For more information, contact Dr. Jost at [email protected]. 46 Breast Cancer Wellness Magazine | Be a Thriver!® Wigs Your Way In-home service. Synthetic & human hair wigs, ready to wear or custom. Available in select salons in CT, NY & NJ. Aetna Provider. 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