2012 Annual Report

2012
ANNUAL REPORT
About Autism
■ Autism is a general term used to describe a group of complex
developmental brain disorders – autism spectrum disorders –
caused by a combination of genes and environmental influences.
These disorders are characterized, in varying degrees, by social
and behavioral challenges, as well as repetitive behaviors.
■ It is estimated that 1 of every 88 children and 1 of every 54 boys in
the U.S. is on the autism spectrum – a 78% increase in six years.
■ Autism is the fastest-growing serious developmental disorder
in the U.S.
■ An estimated two million individuals in the U.S. and tens of
millions worldwide are affected by autism. Although improved
diagnosis and environmental influences are two reasons
often considered, scientists say that 50% of the increase is
unexplained.
■ There is currently no medical detection or cure for autism.
Our Mission
At Autism Speaks, our goal is to change the future for all who
struggle with autism spectrum disorders.
We are dedicated to funding global biomedical research into the
causes, prevention, treatments and a possible cure for autism.
We strive to raise public awareness about autism and its effects
on individuals, families and society; and we work to bring hope to
all who deal with the hardships of this disorder. We are committed
to raising the funds necessary to support these goals.
Autism Speaks aims to bring the autism community together as
one strong voice to urge the government and private sector to
listen to our concerns and take action to address this urgent
global health crisis. It is our firm belief that, working together,
we will find the missing pieces of the puzzle.
Letter from the Founders
Dear Friends,
It is amazing how far we have come since we started Autism Speaks in 2005. Not too many
years ago, people were unaware of the magnitude of autism. Today, more people than ever
know what autism is and are doing something about it.
In March, the Centers for Disease Control and Prevention (CDC) significantly revised the
estimated prevalence of autism in the United States. The new data show that 1 of every 88
children has autism. While we have always believed that autism is on the rise, the new
numbers confirmed it. In fact, based on findings in 2013, the prevalence of autism is likely
much higher, at 1 of every 50 children. This is why our mission has never been more urgent.
Thanks to our generous supporters and friends we made significant progress in 2012.
Science took a quantum leap forward. In one of the most exciting and promising developments
since our founding, Autism Speaks joined forces with BGI to begin building the largest
genomic database in the world, offering a platform for discovering new diagnostic methods
and drug targets. A multitude of discoveries will be made as a result of this new partnership.
We answered our next question about how to work beyond the science to deliver the
science with DELSIA (Delivering Scientific Innovation to Autism). DELSIA is partnering
with companies to develop promising medicines, supportive technologies and other
products that can treat autism symptoms or associated medical conditions and improve
the quality of life.
Suzanne and Bob Wright
Thanks to Autism Speaks advocacy efforts, another three states enacted autism insurance reform in 2012, raising the total to 32,
which represents 75 percent of the nation’s population. We worked with military families to rally support in Congress for changes to
TRICARE which provides military dependents better access to therapies. Our team has been hard at work and played an active role in
the 2012 Presidential Election, raising autism awareness at the Presidential Debate sites and co-sponsoring a National Forum on Disability.
We launched a 1 in 88 Can’t Wait campaign, highlighted by a YouTube video that went viral with over a quarter million views.
Our call for greater autism awareness soared to new heights in 2012 as over 600 cities and 45 countries on six continents joined our
Light It Up Blue campaign on World Autism Awareness Day, April 2, and throughout Autism Awareness Month in April.
In September, Autism Speaks hosted our Fifth Annual World Focus on Autism where an extraordinary assembly of dignitaries from over
20 countries, including Bangladesh, Cyprus, India, Panama and Serbia came together to help us raise the global consciousness of autism.
The 2012 World Focus on Autism was an exceptional success, with the announcement from Bangladesh Prime Minister Sheikh Hasina
that a new resolution on autism sponsored by her country would be introduced (and subsequently passed) at the United Nations.
The resolution called on U.N. agencies to proactively offer their support to Member States to enhance awareness and services.
Autism’s reach is truly global.
In just eight years we have shown how much progress is possible in such a short period of time. Awareness and advocacy have made
autism a word understood in households worldwide and brought about real changes in our communities. We are ready and eager to
see where the next phases of research will take us as we continue to drive our mission to change the futures for all the families and
individuals we serve.
As always, we could not make this significant progress without you. Thank you for your support.
Suzanne and Bob Wright, Co-founders
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Letter from the President
Dear Friends,
In the spring of 2012, the Autism Speaks Board of Directors adopted a strategic plan for the
next five years. The plan affirms our commitment to the four pillars of our mission: Research,
Advocacy, Family Services and Awareness, while setting forth an ambitious agenda to meet the
growing needs of the autism community. Despite escalating prevalence and the increasing need
for answers about the causes, treatments, and a cure for autism, there is limited government
funding for autism research, supports and services. Over the years, your generosity has made
an enormous difference in the lives of many families affected by autism. Private philanthropy
is more important now than ever.
Autism is a lifespan issue, and our strategic plan reflects that. Today, and looking forward,
Autism Speaks is poised to lead groundbreaking research as well as to develop and support
programs and services that meet the needs of our community from their earliest stages of
diagnosis through adulthood.
Liz Feld
Through our research, we know that early diagnosis and treatment provide the best chance for an improved outcome for someone with
autism. Our Early Access to Care initiative promotes awareness of the benefits of early diagnosis, while specifically addressing the barriers
to access for minority and underserved communities. Our 2013 Ad Council awareness campaign will feature ads in English and Spanish
that encourage parents to consult their doctor with concerns about their child's development. Working with primary care physicians and
community programs around the country, we must empower families so that all children with autism are given the chance for a better life.
We also know that research takes time and families need help now. We are there to support them. Our 17 Autism Speaks Autism Treatment
Networks around the country provide clinical care for 30,000 patients every year. In the fall, we launched DELSIA (Delivering Scientific
Innovation for Autism), a not-for-profit affiliate, to serve as a catalyst for private investment in autism related therapies. Under our
Translational Research banner, DELSIA works with partners in the for-profit sector to identify and fund development activities best
poised to deliver products aligned with unmet medical and behavioral health needs. Autism Speaks will lead the way in engaging
entrepreneurs and companies in the fields of electronic technology, biotechnology, life sciences, pharmaceuticals and software
development so that all are focused on developing products for the autism community.
The future holds so much hope, epitomized by our 10,000 whole genome sequencing initiative. In partnership with a leading international
genomic institute, Autism Speaks is mapping genomes from our extensive DNA database with the goal of providing customized treatment
for individuals living with an ASD. This groundbreaking work offers promise and possibilities we have never seen in autism research.
There is still a misconception that autism affects only children. In fact, over 500,000 young adults with autism will age out of school-based
services over the next decade and there is no national strategy to address their needs. While we continue to press our Advocacy agenda
at the state and federal level, pushing for autism insurance benefits and other legislation, our Adult Services team is focused on developing
resources that support all facets of adult life including employment, housing, community integration, and post-secondary education. In
2013 and beyond, employment and housing will be a strategic priority for Autism Speaks.
Our corporate partners have been essential in our ability to raise awareness and resources to support our agenda. So many business
leaders have promoted our mission, and we look forward to building these relationships further. Corporate leadership sends a message
to small and large businesses around the country that we have a shared responsibility and opportunity to improve the lives and futures
of those affected by autism.
The needs of the autism community are urgent. We must move forward together. We will fight to secure increased funding for dedicated
autism research and appropriate health insurance coverage for all Americans with autism. We will find partners at every level to build
supports and services for the millions of people who need them. Our families are our future at Autism Speaks, and we are working
harder than ever for them. They must be armed with the right tools and resources so that they are equipped to give their loved ones a
chance for a better life. At Autism Speaks, this is our goal. We will not stop until we get there.
Liz Feld, President
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There are four pillars of Autism Speaks mission: Research, Advocacy, Family Services and Awareness. The following is a snapshot of
ongoing work in each of these areas that is key to the success of the organization. Just as critical are the families and sponsors who
continually give back to their communities through volunteerism, leadership and fundraising. We applaud each and every one of you
who has joined the mission and we are proud to highlight a few of these great people who constantly raise the bar for us all.
Research
The mission of Autism Speaks Research program is to improve
lives today and transform lives tomorrow by advancing scientific
research aimed at improving diagnosis, prevention, treatments
and service delivery.
Launched the 10K Autism Genome Project. Autism Speaks is
making rapid progress toward the historic whole-genome sequencing
of 10,000 individuals in families affected by autism. This involves
our partnership with BGI, the world’s largest genomics organization.
Already, preliminary analysis of the first 200 genomes is providing
information with clear usefulness in the clinical management of autism. In the future, this unprecedented body of information promises to
guide the development of precision medicines based on an individual’s genetic profile.
Autism Speaks plans to share the data using its newly launched bioinformatics program. In this way, we will accelerate both basic and
translational research by qualified investigators worldwide. This project is built on the tremendous resources of Autism Speaks Autism
Genetic Resource Exchange (AGRE). Thanks go to the hundreds of Autism Speaks families who have contributed anonymous clinical
information and genetic samples to this effort.
In partnering with BGI, Autism Speaks is also pursuing the goals of its Global Autism Public Health (GAPH) initiative. Our Chinese partners
are using Autism Speaks resources to advance understanding and care of autism, not only in their own country, but worldwide. And they’re
doing so in ways not readily possible in the United States.
Discovered a biomarker for detecting autism. Researchers funded by Autism Speaks identified the first autism-risk biomarker
detectable before the appearance of symptoms. Through brain imaging, the researchers found clear distinctions in the development of the
brain’s white-matter tracts by 6 months of age in babies who later developed autism. White-matter tracts play a crucial role in connecting
regions of the brain. The discovery offers promise for identifying at-risk infants early enough to benefit from treatments that can profoundly
improve outcomes. Autism Speaks-funded researchers are currently evaluating a number of these interventions.
Created a vehicle for transforming discoveries into products that improve lives. Autism Speaks recognizes that the goal of our science
is to ensure that breakthroughs are developed into products, services and therapies that can transform lives. Bringing products to market
requires that we make the “business of translation” as important as the underlying research. Our newly launched affiliate DELSIA
(Delivering Scientific Innovation to Autism) is designed to serve as a catalyst that accelerates private investment in product development.
As a venture-philanthropy arm of Autism Speaks, DELSIA complements our science mission by identifying and supporting companies
able to develop the products and services our community needs.
Transformed medical care for children with autism. In 2012, physicians with Autism Speaks Autism Treatment Network (Autism Speaks ATN)
developed the first clinically tested guidelines for treating medical conditions associated with autism. They published these guidelines in
a special supplement to Pediatrics, the journal of the American Academy of Pediatrics. Physicians can now use these guidelines to assess
and treat autism-associated medical conditions such as GI problems, sleep disorders, attention deficit and hyperactivity disorder.
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Our ground-breaking medical network brings together physicians,
researchers and families at 17 sites across the United States and
Canada. Each center provides comprehensive, high-quality care
by teams of healthcare professionals who understand autism and
excel at treating its associated medical conditions. As it prepares
for its newest round of funding, the Autism Speaks ATN has called
on prospective centers to develop innovative plans to integrate
their work with the needs of their surrounding communities.
Also in 2012, the Autism Speaks ATN published five much needed
tool kits for families and practitioners. This was done through the
network’s role as the federally funded Autism Intervention Research
Network on Physical Health. These tool kits included:
■ Parents’ Guide to Applied Behavior Analysis
■ Introduction to Behavioral Health Treatments
■ Parents’ Guide to Toilet Training in Autism
■ Sleep Strategies Guide
■ Treating Children with Autism Spectrum Disorders:
A Tool Kit for Dental Professionals
Defined the economic impact of autism on society. Autism
Speaks funded the economic study that delivered a much needed
update on autism’s economic burden to individuals, families and
society. This information is crucial to advocacy efforts. Presented at
the international “Economic Costs of Autism” summit, the findings
included the estimated lifetime cost per individual of $2.3 million.
The estimated annual cost to society was determined to be $137
billion in the U.S., and scientists will now examine the financial
benefits across the lifespan of providing early, intensive intervention.
Enhanced the quality of care for children with ASD in lowresource communities. Autism Speaks began closing the gap
in access to autism services in underserved communities across
North America and abroad. We worked with the governments
of countries such as Albania and Bangladesh to help develop
national autism action plans. Autism Speaks also pioneered
the translation, cultural adaptation and distribution of resources
for families in ethnic American communities. This included a
Korean-American edition of the 100 Day Tool Kit. Continuing
our partnership with the World Health Organization (WHO),
Autism Speaks helped make autism a global public health
priority with the unanimous passage of a United Nations
resolution on autism.
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When Gianna Ferrari
was four years old, her
parents brought her
to the Developmental
Neuropsychiatry
Program at Columbia
University Medical
Center. The Center
is part of Autism
Speaks ATN. There,
specialists assessed
Gianna and confirmed
she had autism.
She was enrolled in a
comprehensive care
program and her mom, Jillian, quit her teaching job to
work with Gianna at home. Then, as Gianna neared her fifth
birthday, her behavioral therapist raised the possibility that
she might be having epileptic seizures. At Columbia’s
Autism Speaks ATN center, a noninvasive test was performed
which showed that Gianna had “epileptiform discharges” –
abnormal brain activity similar to that seen in epilepsy.
Columbia’s doctors were already collaborating with neurologists
at other Autism Speaks ATN sites to study the effects of
abnormal EEG activity such as Gianna’s. With critical funding
from the U.S. Human Resources and Services Administration
(HRSA), the Autism Speaks ATN is also serving as the Autism
Intervention Research Network for Physical Care (AIR-P),
which allows the Network to conduct research and develop
evidence-based practice guidelines in key areas of medical
concern including epilepsy. For Gianna, her doctor recommended
against seizure medication and that she continue receiving
autism behavioral intervention services. Jillian wanted the
information learned about Gianna to add to the knowledge
that Autism Speaks ATN doctors are gaining about seizures
so hopefully it can help other children in the future. At her
follow-up neurological exams, Jillian signed a consent form
allowing Gianna’s test results to be used for research. “If they
can be helpful for someone else, that’s great,” says Jillian,
who looks forward to the day when researchers can provide
more answers – and treatments – for the neurological problems
so often associated with autism. With the support of her family,
classmates and therapists, Gianna’s social life is progressing.
Now seven years old, she attends a special education school,
takes dance lessons and participates in Girl Scouts. Gianna’s
doctors say the Ferraris embody the great attributes of a family
dealing with a child with a disability because of their dedication
and willingness to do everything for their child while also
contributing to the welfare of other children and their families.
We agree and are so thankful for their personal contribution
to this important research.
Advocacy
Autism Votes is the Advocacy initiative of Autism Speaks. Our focus is two-fold:
1) Maximizing support and funding for autism research, surveillance, awareness and services.
2) Working in state capitals, Congress and the courts for autism insurance reform that maximizes
coverage for evidence-based treatments including behavioral health treatments.
Every member of the Autism Votes team is the parent of a child with autism.
Spearheaded reform. During 2012, another three states – Michigan, Alaska and Delaware – enacted autism insurance reform laws
thanks to Autism Speaks and community advocacy efforts, raising the total to 32 states which represent 75 percent of the nation’s
population. In addition, four states – Vermont, Louisiana, Virginia and Rhode Island – took action to strengthen their existing laws.
Advocated for military families. Our team worked with military families to rally support in Congress for changes to TRICARE,
the Department of Defense insurance program, to provide military dependents better access to ABA. Following a standing room only
Congressional briefing in January, the House and Senate eventually agreed to create a one-year pilot program which provides
significantly expanded benefits. Our goal is now to make those benefits permanent.
Pushed for personal finance reform. In a close alliance with other national disability organizations, including the National Down
Syndrome Society and The Arc, the leaders of Autism Speaks helped drive strong bipartisan support behind the Achieving a Better Life
Experience (ABLE) Act. This legislation would create tax-advantaged savings accounts for people with disabilities. A majority of House
members and 40 members of the Senate were signed on as co-sponsors.
Extended insurance coverage. In states that have enacted autism
insurance reform laws, many families still cannot access autism insurance
benefits because their employers self-insure their health plans and,
therefore, are regulated under federal law. To encourage such employers
to voluntarily offer autism benefits, a Self-Funded Employer Tool Kit was
created. Sixty major employers now voluntarily offer autism benefits,
including Apple, Microsoft, Capital One, Home Depot, IBM, Wells Fargo,
White Castle and Oracle.
Raised awareness. The Autism Votes website was integrated
into the main Autism Speaks website as Advocacy, expanding the
its reach to the entire Autism Speaks community. Government
Relations has greatly expanded its social media reach through
Facebook and Twitter: The “1 in 88 Can’t Wait” autism
awareness campaign video that launched during the
2012 Election was viewed over a quarter million
times on YouTube.
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When the Centers for Disease Control and
Prevention announced the nation’s new 1 in 88
autism prevalence data in March 2012, one state
stood out as the hardest impacted: Utah. But Utah
remains one of only 18 states yet to enact autism
insurance reform. As a result, there were reports
of desperate families surrendering their children
to the state in order for them to receive the critical
intervention services they needed. Others chose to
relocate to find help for their children, while some
families stayed and eventually went bankrupt trying
to pay for the services themselves. Mirella Petersen,
a mom with a child newly diagnosed with autism,
traveled across the state as the Autism Speaks
Utah Policy and Grassroots Adviser to rally families
to fight for autism insurance reform. She had first reached out to Autism Speaks to learn about their advocacy efforts after making
a commitment to end insurance discrimination for individuals with autism. Mirella was fortunate to have an insurance plan that
covered diagnosis, and evidence-based medical treatments. However, friends and family who received a similar diagnosis were
going through extreme financial hardship trying to fund treatment. Due to pressure from the Utah Autism Coalition of which Mirella
is the president, the Legislature created a pilot program to provide coverage for some children. She has built one of the strongest
state-level grassroots organizations in the nation, which is keeping up the pressure to make full autism insurance reform the law.
Mirella is proud to be involved in organizing various Autism Speaks events and loves seeing families and friends of individuals with
autism become empowered to affect positive change. She also feels that while it wasn’t easy dragging her three young boys across
the state, “who now know more politicians than Disney characters,” one of her proudest moments was to see her children learning to
advocate for others. Mirella has our tremendous gratitude and deserves congratulations on her state advocacy award presented at
the 2012 Annual Autism Speaks Autism Law Summit in Washington, D.C.
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Family Services
Family Services is committed to connecting with and empowering
individuals with autism and their families through resources to
improve their quality of life today and into the future.
Outreach. In 2012, the Autism Response Team continued to
provide support for families of individuals with autism. The team
responded to close to 20,000 emails and phone calls, and hosted
regular online Office Hours sessions to answer questions from
our community. Local staff and volunteers hosted free workshops
and presentations, and distributed free tool kits to over 500 schools
and companies in their communities.
Resources. We receive many heartfelt requests from families in
need of tools to address serious issues faced by their loved ones.
In response to their needs, we have added new resources to our website including the Combating Bullying web portal to provide families
and professionals with tools to help them prevent and respond to concerns in their communities. The Challenging Behaviors Tool Kit provides
families with strategies to address their family member’s challenging behaviors, and to help support them during difficult situations.
Version 2.0 of our popular School Community Tool Kit provides valuable information, tools and strategies for school and administrative
staff, bus drivers, nurses, custodians, classmates and family members who interact with students with autism.
Grants. Throughout 2012, the Autism Speaks Family Services department distributed over $600,000 to our community through our
various grant programs. Our monthly AutismCares program continued to provide funds to financially disadvantaged families around
the country including providing 830 iPads to individuals with autism with significant communication challenges to help improve their
ability to express their needs and interact with others. AutismCares also provides much-needed funding during times of crises or
unplanned hardships. A total of $120,000 was distributed to 300 families with autism affected by Hurricane Sandy.
Adult Services. In response to the urgent need in the community for services for the growing population of adults with autism, Autism Speaks
hosted a two-day Employment Think Tank last June that focused on the role of adults with autism spectrum disorder in the workforce and
the needs of the current labor market. Participants included individuals with autism and their family members, business leaders, small
business owners, service providers and academic researchers. In addition, Autism Speaks created the Housing and Residential Supports
Tool Kit, as well as a new section on our website that contains resources related to residential services for young adults and adults with autism.
The Tool Kit was designed to assist individuals and their families as they identify and secure appropriate residential supports and services.
Before Christy Kraus’ son RJ was diagnosed in 2011, she couldn’t tell you a thing
about autism. After receiving RJ’s diagnosis from the Kennedy Krieger Institute in
Baltimore, Md., she was directed to call Autism Speaks. Christy made that call, and
through tears received valuable information, support and an Autism Speaks 100 Day Kit
that changed her life. After spending the necessary time to focus on her son, Christy
decided to create a Walk Now for Autism Speaks team called RJ’s Hope and in 2011
raised $5,610. By 2012, Christy became an active Autism Speaks committee member
and team mentor. She also attends a variety of Autism Speaks events, offering the same
hope and encouragement to parents of newly diagnosed children that she received
just a few years ago. Christy enjoys the personal connections she makes with families,
and is steadfast in her goal to raise as much money as possible for Autism Speaks. She feels the organization’s research will one
day lead to a cure. As the mother of a son who is less severely affected by autism, Christy says, “It’s my responsibility to step up for
other parents who can’t get out as much because they simply don’t have the time.” All of us at Autism Speaks are grateful for all
the time, energy and dedication Christy provides to her community and ours.
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Global Action
National
Awareness is a cornerstone of the Autism Speaks mission – with awareness comes action.
Our Ad Council campaign is the driver of our awareness efforts along with our Light It Up Blue
initiative every April.
Since 2006, Autism Speaks has partnered with the Ad Council and BBDO on our award winning
awareness campaign. The ads appear in print and television with advertising entirely donated by
the media. Since the launch of the campaign, media outlets have donated nearly $376 million
in time and space for the ads. The PSAs have also earned numerous awards, including an
Effie Award for advertising effectiveness in 2008, a Silver Telly in 2009, a Silver Addy and
Gold Ogilvy in 2011. New work was launched in the spring of 2013 to encourage early diagnosis
with an emphasis on underserved communities.
Autism Speaks’ signature event, Walk Now for Autism Speaks, took place
in more than 100 communities across the U.S. and Canada. Nearly 425,000
people joined together to raise approximately $30 million.
Toys“R”Us® and the Toys“R”Us Children’s Fund together serve as the
North American sponsor of Walk Now for Autism Speaks. Toys“R”Us, Inc.’s
sixth annual in‐store fundraising campaign to benefit Autism Speaks raised
more than $3.1 million across the U.S. and Canada in 2012. Since the
partnership began in 2007, Toys“R”Us, Inc., the Toys“R”Us Children’s Fund
and customer contributions have combined to provide more than $15 million
to Autism Speaks, helping our organization achieve many of its goals.
Local galas, golf outings and other unique events served as a new boost of revenue in 2012. Special events included Acts of Love in
San Francisco, Blue Tie Blue Jean Ball in LA, Evening with the Stars in Chicago and seven successful galas from coast to coast. These
events not only raised over $2 million, but attracted new audiences and increased autism awareness in many communities.
Across the nation, athletes determined to support families struggling with autism, took part in Team Up with Autism Speaks by
participating in marathons, triathlons, cycling and other endurance events to help Autism Speaks continue to fund our vital mission.
In 2012, Team Up participants raised approximately $1.4 million.
With over 60 Autism Speaks U chapters across the country, these groups are
dedicated to raising year-round awareness and funds for Autism Speaks, while
volunteering in the local autism community. Alpha Xi Delta Women’s Fraternity
hit the $1 million fundraising mark for Autism Speaks, and since becoming our
philanthropic partner in 2009, they have served as voices of hope and inspiration.
The fraternity Theta Delta Chi selected Autism Speaks U as their international
philanthropic partner and hosted the signature event, Autism Speaks U DodgeBrawl.
During April, over 220 colleges and universities lit their campuses blue and hosted
events benefitting Autism Speaks.
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Special Events. Autism Speaks hosted nine major fundraising events in 2012,
raising more than $4.3 million. Their success was a result of the overwhelming
support, dedication and generosity of sponsors, volunteers, in-kind donors and
celebrity friends who gave their time and energy to support our mission. A few
of the top events from 2012 included: Autism Speaks to Young Professionals
event series, Lead-Off for a Cure, Autism Speaks 14th Annual Celebrity Golf
Challenge at Winged Foot, 3rd Annual Autism Speaks Fall Classic at Baltusrol,
Autism Speaks to Wall Street: 6th Annual Celebrity Chef Gala, Autism Speaks
for Sandy with Generation NXT, and Point of Hope Holiday Luncheon hosted by
Amy & Deron Williams in partnership with Autism Speaks.
In June, Autism Speaks roared onto the famed “Monster Mile” at Dover International
Speedway for a weekend of fundraising and awareness at the second annual
NASCAR Sprint Cup Series race. In the spirit of our ever-growing partnership
with Dover International Speedway, FedEx and NASCAR, the inaugural Autism
Speaks “Day at the Races” marked the first-ever sensory friendly NASCAR
race, giving families an opportunity to experience the race in an environment
designed for the enjoyment of children with autism. Autism Speaks “Day at
the Races” was held in Dover’s air-conditioned indoor grandstand, offering a
great view of the Monster Mile from the backstretch. Autism Speaks “Day at the
Races” also featured a special surprise for the young fans in attendance.
NASCAR superstar Jimmie Johnson paid a surprise visit to the grandstand along with driver and autism advocate Jamie McMurray and
football coaching legend and NASCAR team owner Joe Gibbs. Immediately following the event, the families kicked back and enjoyed the
racing action, which featured Denny Hamlin’s number 11 FedEx Toyota car decked out in a special Autism Speaks puzzle piece paint scheme.
International
Light It Up Blue
In its third year, Autism Speaks Light It Up Blue campaign continued
to raise global awareness and served as the kickoff to World Autism
Awareness Day and Autism Awareness Month. At the iconic
Intrepid Sea, Air & Space Museum, more than 200 guests gathered
on March 31 for the “Autism Speaks Salutes Military Families”
event. On April 2, Autism Speaks celebrated the fifth anniversary
of the UN-sanctioned World Autism Awareness Day at the
New York Stock Exchange (NYSE). Surrounded by families and
supporters, Suzanne and Bob Wright were joined by Autism Speaks
Board Members – Dee and Tommy Hilfiger as they rang the opening
bell with NYSE CEO Duncan Niederauer and his wife Alison, a fellow
board member. The next stop was the Empire State Building, where
the Kenyon family, a military family affected by autism, joined the
Wrights and Hilfigers to flip the switch and light the world famous icon blue. Later that day, Suzanne and Bob Wright were interviewed
by MSNBC’S Andrea Mitchell Reports regarding the newly released CDC report indicating that 1 of every 88 children has autism and
1 of every 54 boys – a 78 percent increase in 6 years. The Wrights discussed the impact autism had on families around the world and
reinforced the importance of support for World Autism Awareness Day.
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Nearly 3,000 structures in more than 600 cities, 45 countries and on 6 continents were illuminated
in blue on April 2, joining to shine a bright light on autism. Along with the Empire State Building, other
iconic landmarks included The Great Pyramids of Giza in Egypt, Gano Bhaban – the Official Residence
of the Prime Minister of Bangladesh, Christ the Redeemer statue in Brazil, Burj Al Arab in the UAE,
Akashi Kaikyō Bridge in Japan, Table Mountain in South Africa, Canton Tower in China, CN Tower in Canada
and the Hungarian Parliament Building, among thousands of others. And as of the release of this report,
our 2013 Light It Up Blue campaign had already exceeded all expectations when over 8,000 structures
in more than 1,350 cities, 101 countries on all 7 continents went blue!
On April 3, our organization co-hosted a United Nations panel discussion, “Delivering Answers through
Inclusive International Collaboration,” together with Bangladesh, the United States and the State of Qatar.
The event served as a platform to bring the
international community together to shed light
on autism’s effect on families around the world, and discuss measures that must
be taken to provide better access to resources and services. H.E. Mr. Ban Ki-moon,
UN Secretary-General, gave remarks and unveiled special United Nations Postal
Administration “Autism Awareness” stamps, designed by individuals with autism.
World Focus on Autism
Autism Speaks “Fifth Annual World Focus on Autism” brought together more than 15 first spouses and heads of state in an unprecedented
show of support to raise awareness of autism around the world and encourage collaboration among nations to improve service provisions
and share best practices. The event was held at and co-sponsored by the Roosevelt House at Hunter College and the Hunter Autism Research,
Practice & Policy Center. Autism Speaks Co-founders Suzanne and Bob Wright were joined by moderator Sue Herera of CNBC and by
co-host Mrs. Ban Soon-taek, wife of the U.N. Secretary-General, Ban Ki-moon. It assembled one of the broadest coalitions in Autism
Speaks history, with heads of state and first spouses from Albania, Australia, Bangladesh, Croatia, Guyana, the Maldives, Mali, Namibia,
Panama, and Saint Vincent and the Grenadines in attendance. Dignitaries from Cyprus, Ireland, Nigeria, Serbia, South Korea, Turkey and
the Ukraine were also in attendance.
Johanna Burke had never given the word autism a second thought until 2005 when her then
2 year old son, Aidan was diagnosed. After researching the disorder on her own, Johanna joined
Cure Autism Now (CAN), a leading private funder of biomedical research in autism. In 2006,
CAN merged with Autism Speaks and Johanna was inspired by Suzanne and Bob Wright
to join their Walk Now for Autism Speaks program. She began walking with her community of
Hawthorne, N.J., and has never stopped. Today, Aidan remains non-verbal and is severely affected
by autism, as well as sensory integration disorder, an immunodeficiency disease called DiGeorge
Syndrome and epilepsy. He requires 24-hour care. When Johanna sees a huge smile on Aidan’s
face in the morning it motivates her to, “keep the faith and fight the fight.” That’s why she’s
thrilled to be captain of Team Hawthorne United and notes they were the top Walk Fundraising Team in Northern New Jersey for
2012, raising more than $25,000. Johanna shares that her favorite part of the Walk each year is how, “the entire community comes
together for one great cause, from the Mayor to the Board of Education to local businesses and schools.” Johanna is proud of her
team and community. “I feel that Autism Speaks is one of the best organizations around, where the money that I fundraise goes to
scientific research and ultimately a cure – because that’s what I hope to see in my lifetime.” We echo your sentiments, Johanna and
are so proud to have you on our team!
PAGE 11
2012 Platinum Corporate Partnerships
■ Toys“R”Us,® Babies“R”Us® and the Toys“R”Us Children’s Fund’s “Shine A Light For Autism”
campaign ran for eight weeks in the U.S. & Canada and raised more than $3.1 million.
■ T.J. Maxx, in its ninth year, raised nearly $1.5 million in its
nearly 1,000 stores nationwide during Autism Awareness Month.
■ Dollar General raised more than $650,000 in its stores during the
month-long April campaign and its NASCAR Nationwide Series Race Team
sported the Autism Speaks logo in April races.
PAGE 12
2012 Gold Corporate Partnerships
■ White Castle, in its
fourth year of supporting
Autism Speaks through
its in-store campaign,
raised nearly $550,000. Cravers and team members in
over 400 restaurants in 12 states set a campaign record
for a third straight year. Since 2010, White Castle has
donated more than $1.8 million to Autism Speaks.
■ The Home Depot once again sold blue light bulbs and
lanterns in support of Autism Speaks and Light It Up Blue,
raising $245,000 from the proceeds of the product sales.
■ For a third year, more than 1,500 locations of Casey’s General Stores raised nearly $300,000.
PAGE 13
2012 Silver Corporate Partnerships
■ Build-A-Bear Workshop raised more than $140,000 in its
eighth year of raising funds and awareness of autism with
its month-long in-store donation campaign.
■ In its fifth year, premier chocolatier, Lindt & Sprüngli once again supported autism
and Autism Speaks through a star-studded celebrity-signed gold bunny auction and
a social media campaign. A portion of the sales of the Lindt signature Gold Bunny
sold throughout the Easter season, raised a total of $129,000.
■ Joe’s Crab Shack partnered with Autism Speaks throughout the year with free
coupons for donations, blue merchandise sales and a variety of activities,
raising over $125,000.
■ Modell’s Sporting Goods held a four-week puzzle campaign at checkout, raising $170,000
in its nearly 200 stores in the Northeast.
■ Village Super Market, Inc. and ShopRite Supermarkets, Inc. celebrated Light It Up
Blue for three weeks in April, raising a combined $190,000.
■ Panera Bread locations operating under the Covelli Franchise in the West Virginia and Columbus, Ohio
areas teamed up with their bakers for the second year in a row. The ‘Pieces of Hope’ campaign
donated 100% of proceeds on their shortbread puzzle piece cookies to Autism Speaks
PAGE 14
For the sixth consecutive year, Toys“R”Us, Inc. served as the largest retail partner of
Autism Speaks. Coinciding with Autism Awareness Month in April, Toys“R”Us® and
Babies“R”Us® stores in North America, along with Toysrus.com, encouraged customers
to donate to Autism Speaks and raise awareness for the autism community through its
“Shine A Light For Autism” campaign. The campaign raised more than $3.1 million across
the U.S. and Canada.
Customers who donated $10 or more to Autism Speaks at any Toys“R”Us or Babies“R”Us
store, received a reusable shopping bag designed by James Hogarth, a talented artist with
autism, and son of proud mom Mary Hogarth, a longtime employee of Toys“R”Us. Each bag
featured an autism super-hero, surrounded by beams of light.
Continuing its commitment to Autism Speaks throughout the year, Toys“R”Us and the
Toys“R”Us Children’s Fund served as the North American sponsor of Walk Now for Autism Speaks.
Employees participated in Walk events in their local communities, helping to raise even
more funds and awareness for Autism Speaks. From 2007 through 2012, Toys“R”Us, Inc., the
Toys“R”Us Children’s Fund and customer contributions have combined to provide Autism Speaks with more than $15 million, helping
the organization achieve many of its goals.
Autism Speaks is proud to have T.J. Maxx as its longest, continuous corporate
partner. T.J. Maxx, with the help of its customers, have raised more than
$9 million over the past nine years for research into the causes, treatments and
prevention of autism spectrum disorder. T.J. Maxx first began its commitment to
our cause by supporting the National Alliance for Autism Research (NAAR), an
organization which merged with Autism Speaks in 2006. In April 2012, more than
1,000 T.J. Maxx locations nationwide took part in an annual in-store fundraising
and awareness campaign to help support Autism Awareness Month. When asked
about the company’s long term partnership with Autism Speaks, Rebecca Leonard,
Associate Vice President of Public Relations, commented, “T.J. Maxx is founded
on the tenets of delivering value and giving our customers the opportunity to
express themselves through fashion. Through our support of Autism Speaks, we help further its mission to give a voice to all who
struggle with autism.”
PAGE 15
Thank you to our Generous Donors
Autism Speaks is grateful to all the individuals, organizations, foundations and corporations who generously supported our mission in
2012 through major and planned gifts, Walks and special events. We are pleased herewith to announce our new annual giving societies
in recognition of our donors who made gifts of $5,000 or more. Space restrictions limit us from listing all the thousands of donors who
contributed throughout the year. We aim for accuracy and completion and welcome suggestions and corrections to this list. Please send
any corrections to [email protected].
Visionary – $1,000,000 or more
Note: An asterisk (*) represents a multi-year gift
The Allerton Foundation
The Gordon and Llura Gund
Foundation*
Stavros Niarchos Foundation*
The TJX Companies, Inc.
Toys“R”Us, Inc.
Mel Karmazin Foundation, Inc.*
Champion – $500,000-$999,999
Community Health Charities
Dollar General
Donate for Charity, Inc.
Ellington Management Group, LLC
Philip H. Geier Foundation
Guess Foundation
Hager Companies
White Castle
Suzanne and Bob Wright
Founders’ Circle – $100,000-$499,999
Alpha Xi Delta Women’s Fraternity
Estate of Peggy Bergmann
Tom and Sallie Bernard
Bike to the Beach, Inc.
The Boler Family Foundation
Build-A-Bear Workshop Foundation
Cantor Fitzgerald Relief
Fund Administration
Carlson Capital, LP
Casey’s Charities
Daniel J. Doherty, III
Fashion Bug
Gap, Inc.
Gassin Family Foundation
Guess Foundation
The Home Depot, Inc.
Higgins Family Charitable Foundation
Lisa Higgins-Hussman Foundation
The Tommy Hilfiger Corporate Foundation
The Huntington National Bank
Mr. and Mrs. Ralph T. lannelli, Jr*
The Ireland Family Foundation
Joe’s Crab Shack
Brian and Patricia Kelly
Lindt & Sprüngli
Major League Baseball
Marshall Wace North America, LLP
Modell’s Sporting Goods
Mary Pederson and Leslie Quick
Phillips-Van Heusen Foundation
Royal Arch Masons
Jim and Marilyn Simons
Simons Foundation
Stella & Dot, LLC
Toys“R”Us Children's Fund, Inc.
Village Super Market, Inc.
Love Ride Foundation
Michael Lukacs
Jillian Manus
Paul Marciano Foundation
The Marcus Foundation
Marex Spectron
Mattress Warehouse, Inc.
MKP Capital Management, LLC
NYSE Euronext Foundation
Newman’s Own Foundation
North Shore Autism Circle, Inc.
Office of the Commissioner
of Baseball
SL Chapman, LLC
Scentsy, Inc.
Henry B. Schacht
Sevenly, LLC
ShopRite Supermarkets, Inc.
Hope Geier Smith
South Florida Ford Dealers
The Up Foundation
Weatherstone Family
Foundation
Wachtell, Lipton, Rosen & Katz
Warmenhoven Family Foundation
Wawa
Vons Foundation
Zale Corporation
Directors’ Circle – $50,000-$99,999
Marc and Laura Andreessen Foundation
Allstate
Curtis Arledge
BTIG, LLC
The Solomon R. and
Rebecca D. Baker Foundation
The John W. Carson Foundation
Cassiani Family Foundation
Eric and Laurie Chern
Cravath, Swaine & Moore, LLP
DCU for Kids
The Emch Foundation
Fiduciary Trust Company
International
For Autistic Kids Foundation
The Geier Group, LLC
Goldman Sachs
Isadore and Bertha Gudelsky
Family Foundation, Inc.
The Martha & Warren Halle
Foundation, Inc.
Dee and Tommy Hilfiger
Jim Calhoun Cardio Fundraisers
JL Foundation
JPMorgan Chase & Co.
Karma 411
Jesse and Joan Kupferberg
Family Foundation
PAGE 16
In August of 2012, Laurie and Eric Chern, longtime supporters of Autism Speaks and the parents of
a son with Asperger syndrome, traveled a thousand miles from their Chicago home to North Carolina
for a lunch date they will never forget. The Cherns had made a gift to fund a clinical trial through
Autism Speaks that studied whether a nasal spray containing oxytocin, a hormone involved in
social bonding, could improve the social and communication skills of children on the autism
spectrum. Once the study was underway at the ASPIRE Research Program of the University of
North Carolina School of Medicine in Chapel Hill, the Cherns were introduced to some of the
mothers whose children participated in the study along with the lead investigator, Dr. Lin Sikich.
Good food and great stories were shared over lunch that day as the group discussed encouraging
study results that showed children more readily seeking affection and initiating interaction. This
hadn’t come easy for many of the children prior to participating in the study.
The findings from this particular study were positive and allowed Dr. Sikich and the ASPIRE program to leverage the support received
from Autism Speaks and the Chern family to successfully compete for a $12.6 million grant from the Eunice Kennedy Shriver National
Institute of Child Health and Development (NICHD) to conduct a Phase III, clinical trial for the use of oxytocin in children and teens.
This will be a major step toward possible approval from the Food and Drug Administration (FDA).
“Autism Speaks’ community of families has become incredibly sophisticated in their understanding of the science behind therapeutic
studies like these” says Robert Ring, Ph.D., Autism Speaks vice president for translational research. “This is exemplified by the Chern
family and further illustrates how our donors are essential partners in the translational process.”
In addition to being a donor, Laurie Chern volunteers with Autism Speaks’ Chicagoland chapter, and is the co-founder of the Community
Ambassador Program which trains volunteers to raise awareness about Autism Speaks’ resources for families among doctors,
psychologists, educators and other professionals. This program which started in Chicago, is now being embraced throughout the
organization. Laurie also chairs the chapter’s Resource Fair Committee, bringing exhibitors to the Walk Now for Autism Speaks
Chicago event. Both she and Eric chaired the Light It Up Blue Committee which featured a public service announcement from the
Mayor of Chicago, Rahm Emanuel this year.
Laurie, a former first grade teacher, felt isolated when her son was diagnosed and shares that, “When someone says ‘thank you’ to me
for our volunteer work, I laugh, because I don’t think that people understand what it does for me, that this is my best form of therapy.”
We’d like to thank Laurie and Eric on behalf of all the parents and children whose lives have been positively affected by your volunteerism
and the generations of children to come who will benefit from your generous contributions.
President’s Society
$10,000-$49,999
800LoanMart
AOL, Inc.
Action Council of Monterey
Acura of Denville
Advisors, LLC
Ahold Financial Services
Asha and Sajjan Agarwal Foundation
Alcoa, Inc.
Joseph Alexander Foundation, Inc.
Allen & Company, Inc.
American Commodities
Brokerage Company
American Express Foundation
American Legion Child Welfare
Foundation, Inc.
Amherst Securities Group, LP
An Evening for Autism
Anderson Center For Autism
Christopher S. Argyle
Julie and Daniel Aronson
Arts, Beats & Eats Foundation
Asbury Automotive Group
Auction Cause Corporation
Augie’s Prime Cut
Autistic Treatment Center, Inc.
Autism Alliance of Michigan
Aviation High School
Avon Foundation for Women
BNY Mellon
BOWA
Babson Capital
Baltimore Orioles
BakerHostetler
Bank of America
Baptist Health South Florida
Diana M. Barbetta
Basco Capital
Bayview Flowers
Eugene Beard
Becton Dickinson & Company
Behavior Analysis Center for Autism
Bell & Anderson, LLC
Berkshire United Way, Inc.
The Bernstein Companies
Frank Bisignano
Bloomberg
BlueCross/BlueShield of AZ
The Blue Dot Foundation
Blue Ridge Bread, Inc.
DBA Panera Bread
Bohemian Foundation
Emma Bowen
Bret Cloward Consulting
The Scott & Patrice Brickman
Foundation
Broadridge Financial Solutions, Inc.
Peter Brockway
Bronson Point Management, LLC
Burt’s Bees
CT Partners Executive Search, LLC
Calvin Klein
Robert and Patricia Cambo
Cantor Fitzgerald Securities
Capital Group Private Client Services
Nelson A. and Michele M. Carbonell
Family Foundation, Inc.
The Carino’s Foundation
The Carmax Foundation
PAGE 17
Jim and Noreen Carruthers
Cassin & Cassin
Phoebe Celestin
Chesapeake Bay Middle School
Chicago Board Options Exchange
Chilton Investment Company
Chopper Trading Group, LLC
Cleveland Clinic
The Coach Foundation, Inc.
Coatue Foundation
Coca-Cola Foundation
Collaborative Solutions
The Color Run
Columbia Neurosurgery
Columbus Circle Investors
Compassionate Representation
for Individuals
with Mesothelioma
Concept Contractors, Inc.
ConvergEx-Eze Castle Software
Convergent Wealth Advisors
Core Services
Costco Wholesale
Course for the Cause, Inc.
Covelli Enterprises, Inc. - Panera Bread
Cranberry Cup Nantucket
Crown Family Philanthropies
The Cruz Family
The Crystal Family Foundation
Community Services for
Autistic Adults and Children
The Cummins Foundation
Ruth Davis
D. A. Davidson & Co.
DHL
Mr. and Mrs. Yves C. De Balmann
Delaney Family Foundation
Delta Dough, Inc.
Deutsche Bank
Direct TV
Mr. and Mrs. Charles F. Dolan
Dominion Realty, Inc.
Jayne and Timothy Donahue
Dover International Speedway
Caleb C. & Julia W. Dula Educational
& Charitable Foundation
Sean, Joslyn, Sean, Karl &
Johanna Grace Dobson Foundation
Margaret Durham
E Street Denim
ESCO Limited
Eastdil Secured
Easter Seals, Inc.
The Elias, Genevieve and
Georgianna Atol Charitable Trust
Jill and Christopher Escher
Evil Shenanigans
Extended Home Care
Eze Castle Software, LLC
FINRA
Family Behavioral Resources
Farmington Bank
FedEx Corporation
Fidelity Charitable Gift Fund
Fifth Avenue of Long Island
Realty Associates
Fifth Third Bank
Carmen Finestra
The Lawrence & Megan Foley Family
Foundation, Inc.
Vince and Ellen Forlenza
Forty Seven Brand
Foundation for the Carolinas
Fox & Roach Charities
Fox Sports
Ramsey Frank
Franklin Advisors, Inc.
Nanci and Gary Fredkin
The Helen Clay Frick Foundation
Fried, Frank, Harris, Shriver
& Jacobson, LLP
Fullerton Main
Kurt and Cindy Funderburg
Fusionstorm
G2-Forbes
The GE Foundation
GLS Memorial Fund
Michael and Melissa Gallagher
Shelly and Joseph Galli
Gameforge AG
The Garchik Family Foundation
GE Foundation
Geico Philanthropic Foundation
The George Washington University
Lisa Beth Gerstman Foundation
Giving Assets, Inc.
Glenn Family Foundation
Global Tax Management, Inc.
Jay Goldman
Goldman Sachs Execution
and Clearing, LP
John & Marcia Goldman Foundation
Paul N. Gorup
Graham Capital Management
The Grainger Foundation
Lee Greenburg Family Trust
Greenberg Traurig, LLC
Greenway Medical Technologies, Inc.
David Gregory and Beth Wilkinson
Kyle Gugerty
Ralph and Calla Guild
Danielle Guyet
The Marc Haas Foundation
Happy Baby
Happy Family
Harvest Meat Company
Fred and Noreen Hassan
Havas Worldwide
Hensley Employee Foundation
Hill Holliday
Hillsborough Concours d’Elegance
Foundation
George Hoag Family Foundation
Jay and Michaela Hoag
Ruth A. Hodges and John R. LeClaire
The Homestead Living and
Learning Center
The Hope Institute for Children
and Families
Horncrest Foundation, Inc.
Dawn Hoyt
Hutton Parker Foundation
Susan and Joel Hyatt
Hyundai Motor America
IPC Systems, Inc.
ITG
Indus Capital Partners, LLC
Instinet
Interbrand
Invesco
Ionic Capital Management, LLC
Ivy Foundation
The Izak Family
JPMorgan Chase Foundation
Ross and Eve Jaffe
Kevin and Barb Jackson
Jefferies & Company, Inc.
Jewish Community Federation
John Thomas Financial
Johnson & Johnson Family of
Companies Contribution Fund
Johnny Rockets Group, Inc.
Christina and Adrian Jones
KPMG, LLP
Mr. and Mrs. Albert J. Kaneb
The Karma Foundation
Stephen and Jill Karp
Donna and Hugh J. Kelly
Steve Kirstein and Lisa Steren
Sam Klein
Kenneth & Harriet Kupferberg
Family Foundation
Knight Capital Americas, LP
Knight Capital Group, Inc.
Richard and Susan Koeppel
KKR & Co., LP
Robert Kraft
LF USA
Landscape Structures
Landy Family Foundation
Joseph Landy
Larry R. Laks Charitable Fund
Lavin Family Foundation
Laurence W. Levine Foundation, Inc.
Lazard Freres & Co., LLC
Lee Equity Partners, LLC
Lehigh Gas Corporation
The Leibowitz and Greenway
Family Charitable Foundation
Annette M. and Theodore N. Lerner
Family Foundation
Lester Glenn
Le Vian Corp.
Lexus Pursuit of Potential
Limited Brands Foundation
Lindsay Automotive Group
Lindsay Management Company, LLC
The Lotus U.S. Foundation
Louis & Melba Schott Foundation
Jennifer and Mario Loya
MacKenzie Corporation
Gayathri Mahesh
Majestic Athletic
Major League Baseball
Properties, Inc.
Manatt, Phelps & Phillips, LLP
Gena and Billy Mann
Marion Moore Foundation, Inc.
MasTec
Mattel
Susan McCaw
Alexandra Mease-White
PAGE 18
MedClaims Liason, LLC
Richard King Mellon Foundation
W. Hodges and Paula Mercer
Ronald Meyer
Microsoft Matching Gifts Program
John Middleton
Mile High United Way
Joe and Colette Mileti
Minerals Technologies, Inc.
Mitten Family Foundation
MLB Network, LLC
Modestus Bauer Foundation
Moog Charitable Trust
Cindy and Mike Moran
Morgan Stanley
The Irving I. Moskowitz Foundation
Motorola Mobility Foundation
Motorsports Charities, Inc.
Susan and Kevin Murray
NBC Sports
NBC Universal
NFL Charities
Nantucket Golf Club Foundation
Russell P. Nash
National Basketball Association
National Mah Jongg League
Foundation
Nature’s Best
Nest Fragrances
New Country Audi of Greenwich
New England Patriots Foundation
New York City District Council of
Carpenter Relief and Charity Fund
The New York Mets Foundation, Inc.
New York Yankees Foundation
Newton Glassman Charitable
Foundation
The Niederauer Family Fund
Nike, Inc. and Affiliates
Nomura Securities International, Inc.
Nordstrom Foundation
Olde Grandad Industries, Inc.
Robert and Gail O’Leary
Maureen Orth
Outdoor Cap Co, Inc.
Partners Foundation
Party Fair
Paul Marcian Foundation
Paul Weiss Rifkind Wharton & Garrison
Paulson & Co., Inc.
Payton Lane Nursing Home, Inc.
Pennsylvania-American Water
Federal Credit Union
PepsiCo Foundation Matching
Gift Program
Perella Weinberg Partners, LP
Perry Homes
Pfizer, Inc.
The James Walter Pickle
Charitable Foundation
Pitt Ohio Express
Mike and Cathy Podell
Popcap Games, Inc.
Potomac Management Group, Inc.
Powell Jobs
PricewaterhouseCoopers, LLP
Property Solutions, Inc.
Proskauer
QBE Foundation
The Queen’s Flowers Corp
RBS Securities, Inc.
RR Donnelley Foundation
Red Sox Foundation
Regional Management
Renaissance Charitable
Foundation, Inc.
Ira and Ingeborg Rennert
Reynolds Family Foundation
RoadID
Stephen Ross
Jeffrey Rowbottom
The Royalty Trust
Shawn Rubin
May and Samuel Rudin Family
Foundation, Inc.
SNR Denton US, LLP
Carolyn Chao Sabat
SAKS Incorporated
Samuel P. Mandell Foundation
Holly Sansing
Gary Schell
Mark Schell
John Schneider
Daniel H. Schulman and
Jennie Kassanoff
Wendy and Eric Schmidt
John Schneider
Schwab Charitable Fund
Schwartz Family Foundation Trust
Eric Schwartz
Jane Bell Scott
Seattle Mariners
Sedano’s Management, Inc.
Service Champions Heating &
Air Conditioning
Mark Silk
The Sidney Milton and
Leoma Simon Foundation
Simpson Thacher & Bartlett, LLP
Laura and Harry Slatkin
Slomin Family Center
David & Vickie Smick Foundation
Ann and Richard Smith
May and Stanley Smith
Charitable Trust
Rick Smith
Sole Technology, Inc.
Sony Corporation of America
William Sorenson
Southern Wine &
Spirits of America, Inc.
Sprouts Farmers Market
Kathleen and Robert Stansky
Steven Starker
Starwood Real Estate Securities, LLC
Jane and Frances Stein
Foundation
Ed Steinborn
Jane and Jim Stern
Sternlicht Family Foundation, Inc.
Stifel Nicolaus
Stop & Shop
Paul Stojanovich
Strake Foundation
Frank Strick Foundation, Inc.
Mark G. Strauss, Esq.
Subaru Distributors Corp.
Suburban Research Associates
Sun Capital Partners Foundation
Sunderberg
SunTrust Bank
Supersmile
SynapDx
TBI Bonds, The Hyde Agency
TD Bank
T off 4 Autism, Inc.
Elizabeth and Alain Taghipour
Chandler and Paul Tagliabue
Take 2
Team Scotti
Teamsters Local 25 Autism Fund, Inc.
Telecare Corporation
Teneo Strategy
The Telluray Foundation
Teradata Corporation
Titan Advisors, LLC
Torn & Glasser
Sarah H. Trulaske
The Wasily Family Foundation
The World Trade Association of
Philadelphia, Inc.
The Young Women's League
George Tappert
Tiffany Autism Foundation
TotalBank
Total Wine & More
Trinity Foundation
Truluck’s
Tupperware
Turner Broadcasting System
Twins Enterprise, Inc.
Twitter, Inc.
UBS Financial Services, Inc.
United Building Maintenance
United Health Foundation
United Way
Unreal Breads, Inc.
US BanCorp
Valley Honda Dealers
Susan and Bill Vareschi
Virtu Financial
Vollero Beach Capital Partners
Vranos Foundation
WME Foundation
The Estate of David K. Wachtel, Jr.
Walgreens
Allison and Michael Walmark
Walmart
Brian Walter
Warburg Pincus, LLC
Webkinz Foundation
Wells Fargo & Company
Wells Fargo Securities, LLC
White & Case
Thomas and Debbie Whitesell
John and Leslie Wilson
Carol Windham
The Wireless Zone Foundation
For Giving, Inc.
David and Cindy Wittels
The Young Women’s League of
New Canaan
The World Trade Association of
Philadelphia, Inc.
Mustafa Zaheer
Joseph and Jennifer Zarrilli
Zenith Media
Zenith Optimedia
Nathaniel Zilkha
Jonah and Ellen Zimiles
Arthur and Dorothy Zuch
Benefactor
$5,000-$9,999
121 Charitable Fund
ABN AMRO Clearing Chicago, LLC
AD Philanthropic Fund
AEP Ohio
AGI General Contracting
AMCAP
The Anne and Ronald Abramson
Family Foundation
Active Media Services, Inc.
Aerosoles
Ike Ahn
Aimbridge Hospitality
Elizabeth Ainslie
Air Products Foundation
Akin, Gump, Strauss, Hauer
and Field, LLP
Alcatel-Lucent
Cameron Alkhazraji
Bobby Allison
Alpine Valley Bread Co.
America’s Charities
American Express Pac Match
American Family Mutual
Insurance Company
Paul and Michelle Angelina
Anheuser-Busch, LLC
Angie’s Artisan Treats, LLC
PAGE 19
Answers
Aon Foundation
Ashford Hospitality Trust LP
The Association of Wall-Ceiling &
Carpentry Industries of NY, Inc.
Assurant Foundation
Hesham M. Atwa
The Aulls Family
Autism Puzzle Foundation
Autism Spectrum Therapies
Autodesk, Inc.
Auto Warehousing Co.
Avista Corp.
Aviv Reit, Inc.
Axial Capital Management
BAM Architecture Studio
BDO United States, LLP
BDP
Robert W. Baird and Co., Inc.
Balyasny Asset Management, LP
Barclays Capital
James Barefield II
Sylvia D. Barro
Baptist Health South Florida
Eugene P. Beard
James Beatty
Behavioral Education Assessment
& Consultation, Inc.
Craig and Donna Bernfield
W. Robert Berg
Greg Berlanti
Best Buy
Bimbo Bakeries
Bausch + Lomb
Heidi M. Birnbaum
BlackRock
Blair Academy
Robin Bloch
Blues 14 Fund
Catherine S. Bollinger
Marx Bowens
Shannon and James Broder
Rhys Brooks
Buffalo Wild Wings
Bully & Andrews, LLC
Johanna Burke
John Burke
Robert Preston Butcher
Stephen M. Bynum, Jr.
C-31S, Inc.
The CAC Group, Inc.
CDW
CKKO Family Foundation
C. R. Bard Foundation, Inc.
CRT Capital Group, LLC
CTL Capital, LLC
Cambridge Trust Company
Capital One
Cardinals Care
Cardio Express, LLC
Cards Direct
Cascade Fresh, Inc.
Cash Register Services, Inc.
Arlene Castillo
Darlene Catalano
Cauldwell Wingate Co., Inc.
Centene Corporation
Centric Consulting
Charlotte Collegiate Football
James A. Cooper
Courtney and Michael Charney
Peter Chernin
Lisa and Joe Chianese
Chicago Title Insurance Co.
Chino Valley Ranchers
Julie & Steven Cho
Choate, Hall & Stewart, LLP
Alan Chorne
Lewis Cirne
Ross Cole
Connie Frank Foundation
George Conrades
Charles M. & Linda J. Corbalis
Family Foundation
Cosi, Inc.
Robert Costas
Timothy & Maura Costello
The Cottrell Family Foundation
Crane Fund for Widows and Children
Larry Cress
Charles and Kerry Crew
Dean Criares
Ferdinand J. Crovato
John and Debra Cullins
Jean Cummings
Alexandra Cunningham
Cunningham Motors
Elizabeth Curran
DHL Express
Richard Daly
Danville School
Dartmouth College
Dauby O’Connor & Zaleski
Thomas DeAngelis
The Geaton & Joann Decesaris
Family Foundation, Inc.
Delaware Investments
Disney Worldwide Services, Inc.
Adele B. Dilschneider
Troy Dixon
Dodge & Cox
Jay J. Dor
City of Doral
Daugherty Systems
Douglas Development Corporation
Timothy Downes
Drexel University School of
Public Health
Dunkin’ Donuts & Baskin Robbins
Community Foundation
The Gerard J. Dynes New Jersey
Regional Day School
Andrew Dymsza-Volk
ESPN
EXOP Capital Group, LLC
Earthbound Farm
Earthrise Nutritionals
East Hanover Township Board
of Education
Eaton Vance
Education Management Corporation
Jan Ehrhardt
The Eleven 18 Foundation
Theodore Elliott Charitable Trust
Roland Emmerich
Ernst & Young
The Honorable Melvyn Estrin
Johan Eveland
Mark Everett
Family Behavioral Resources
FedEx
Fidelity Charitable Fund
Fidelity National Title Insurance
Company
William Finneran
First American Title Insurance
Company
Lawrence and Ronnie Fisher
Lester and Gwen Fisher
Robert Fleder
Fleming Charitable Foundation
Florida Power & Light Co.
Jeanette Flory
The Doug Flutie Jr. Foundation
For Autism, Inc.
Folsom Companies Operating
Camille Fondreist
Fort Armstrong Horsemen
Association Foundation
John A. Foster
Fresh Hemp Foods, Ltd.
Furniture Brands International
Glenn Fuhrman
Tina M. Gaboury
Paul Gaeto
Mr. and Mrs. Eugene Gallant, Jr.
Gantcher Family
Philanthropic Fund
Garden of Life, LLC
Lainie and George Garrick
Ellen Gebrian and Tim Barberich
Give With Liberty
Dynamic Glass
Eric Gleason
Donna and Michael Glenn
Global Governance Advisors
Global Tax Management, Inc.
Goldman Sachs Gives
Ryan E. Goldman Sachs
Matching Gift Program
Linda Goldstein
Golub Corporation
Good Health
Robert and Jill Granader
Green Thumb Produce, Inc.
Grimmway Enterprises, Inc.
Guitar Center
Lee Greenberg Family Trust
Gunterberg Charitable Foundation
Robert Guttenberg
Charitable Foundation
H.E.B.
Hahn Family Wines
The Hain Celestial Group, Inc.
John Halvey
Deb Hanke
Stephanie Hansen
C. Kent Harrington
Harrison High School
Harvey Kornblum Foundation
James A. Haslam, II
Debbie Hawes
Head Start Staff Fund
Heartland Farms
Heimer CH Foundation, Inc.
Hint, Inc.
High Speed Video
Highmark
Holman Automotive Group, Inc.
Allan M. Holt
Craig Horowitz
The Hughes Center
Team Hunter
Huntington National Bank
John K. Hurley
ICAP North America, Inc.
Illustro Trading, LLC
IMC Financial Markets
IMUSA
Brad Infante
Marci and Bill Ingram
Lawrence W. Inlow Foundation
Interpublic Group of Companies, Inc.
Sidney and Evelyn Insoft
Steven J. and Susan Insoft
The Jacquemin Family
Foundation, Inc.
J. C. Kellogg Foundation
John and Jeanette Jaworski
The Jewish Federation of
Sarasota-Manatee
Peter Jones
Josh Early Candies, Inc.
KSL Advisors
Nicole Katz
The Kaye Family Foundation
Kekst and Company Incorporated
Gale Kempf
Marci and Artie Kempner
Kilbride Family Classic 5K
Stephen King
PAGE 20
Caroline Kleiner
The Kleinknecht Family Foundation
Chris Krantz
Robert J. Kueppers
Lana Papp
Ruth and Stanley Lapidus
Lawrence Women’s Golf Club
Lawrence Leibowitz
Shelly Lazarus/Ogilvy & Mather
The Learning Spectrum
Lee Greenburg Family Trust
Legend Distributing, LLC
Lehigh Valley Acura, Honda,
Hyundai, Suzuki
Les Importations De-Ro-Ma
The Leterman-Gortz Corporation
Ann Lewnes
Andrea Levitt
Lexus Champions For Charity
Life Learning Devices, LLC
Reid and Nancy Liffman
Lighthouse Investment Partners, LLC
Lightning Foundation
Michael and Debra Lindsay
Jack and Jama Lintol
Robert Littleton, Jr.
Live Nation Worldwide, Inc.
Paul Long
David H. Long
Long Island Inferno Baseball, Inc.
Loomis, Sayles & Company, LP
Ashley Lower
Lyman Bullard and Choate,
Hall & Stewart, LLP
M&T Investment Group
MCL Fresh, Inc.
Macquarie Securities Group
Made4Net, LLC
The Madison Group of Charlotte, LLC
Thomas Maher
Main Street Children’s Dentistry
and Orthodontics, LLC
Albert Maldonado
The Joseph & Florence Mandel
Family Foundation
Mann Packing, Hampton Farms and
Country Fresh Mushrooms
Burt Manning
Maplewood Senior Living
Marion K. Salomon & Associates
Marsh & McLennan Companies, Inc.
Vivian Martin
Richard Martinson
Massachusetts Chapter American
Needlepoint Guild, Inc.
Massey Services, Inc.
Lilli and Gary Mayerson
William J. McAndrews
Patrick J. McCloud
The McGraw-Hill Companies
McDermott Will & Emery
Ronald Mcintosh
McKenna Long & Aldridge
Foundation, Inc.
Philip McKinney
John McNamara
MedClaims Liaison, LLC
Medistar Corporation
The Mellanby Autism Foundation
Melissa Gauthier Memorial Fund
Alan L. Meltzer
Members Handicapped Children’s
Fund, Inc.
Men on the Move Self Storage
Merrill Lynch
Eileen Meudt
Miami University
Stephen and Eve Milstein
Milwaukee Brewers Baseball Club, LP
Dr. Victor Mizrahi and
Mrs. Jennifer Laszlo
Monterrey
Erin Comley Moon
Morgan Keegan & Company, Inc.
Jared Morris
Michael and Linda Morris
The Morris Family
Stephen Mortimer
Mosi Foundation
Deborah and Robert Myman
NHS Foundation
NOI Services
National Children's Center
National Christian Foundation Houston
National Park Boat Club
Luis Nava
Navistar, Inc.
Network for Good
Newcastle Foundation Trust
New Relic
New Story
New Tech Global
New York Presbyterian Hospital
The New York Times, Co.
Nicholas Markets, Inc.
Mr. and Mrs. Andrew Nicoletta
Joseph J. Nobile
North Brunswick Township
High School
Nurture, Inc.
Olson’s Baking Company, LLC
Ospraie Management, LLC
Ozark Shooters Sports Complex
PCI Group
PDQ Consulting, Inc.
PNC
Ted, Leah, James and Wanda Pedas
Pepsi Bottling Group, LLC
Pepsico Foundation
Matching Gifts Program
Yamileth Pereyra
Perficient, Inc.
Dr. Glen W. Petersen and
Dr. Deborah Greenberg
James Pettus
Piedmont Natural Gas Company
Pioneer Financial Services
University of Pittsburgh
Medical Center
Plains All American Pipeline
Plains Marketing, LP
Ivan M. Popkin
Porsche Club of America
Price Chopper Supermarkets
Provide Creations, Inc.
Puget Sound Amazing Race
Colgate Women's Hockey
Quad/Graphics
Quaker Sales and Distribution, Inc.
Phil Quartuccio
Queens For A Cause
RBS Securities
Raffle
Ralphs Fund
Joseph Ramos
The Randall A. Wolf
Family Foundation
Reba McIntyre Fund
Red Sox Foundation
Mr. and Mrs. Samuel S. Reid
Reol Services, LLC
Republic R-III School District
Andrew Robertson
Tim and Connie Rock
The Roddenberry Foundation
Rodger City Run/Walk
Juan Rodriguez
Diane P. Rogers
Richard Rosen
The Rosenthal Family Foundation
Roslyn High School
Rothstein Kass & Company, P.C.
Round Rock Baseball Club
Rouse’s Markets
Philip Ruedi
Michael Ruff
SB Capital Acquisitions, LLC
SMF Foundation/TAM, Inc.
Shawn and Cathy Ryan
Safelite Autoglass Foundation
Samsung
Colleen and Chuck Saftler
Safeway Foundation
Sammons Corporation
San Diego Padres
Mr. and Mrs. Ronald Sanders
San Francisco Giants
Sandmar Properties
Savant Construction, Inc.
Savor Street Foods
Raymond G. Scott, Jr.
Searcy, Denney, Scarola,
Barnhart & Shipley, P.A.
Mark Schell
Sconza Candy Company
Gavin Scotti
Scottrade
Scotts Miracle-Gro
Christine Seaver
Barry Segal
The Selati Family
Serta Mattress Company
Thomas Shadyac
Shapiro Lifschitz and Schram, PC
Sidney Milton and Leoma Simon
Foundation
Samir M. Shah
Norman A. and Margaret I. Shane
Charitable Trust
The Shape of Behavior
David and Abby Shapiro
The Clinton H. and Wilma T. Shattuck
Charitable Trust
Daniel Schlaak
Shefsky & Froelich Charitable
Foundation
Justin and Robin Sheperd
Paul Shlanta
Shoot Out for Autism
Sigma-Aldrich
Wallace N. Sipos
Sirius XM Radio
Harry Smith
The Smith Brown Partnership
Robert and Judy Snyder
Theodore Solso
Southwest Autism Research
& Resource Center
Polar Bear Splash
Spout Foundation, Inc.
Evelyn C. Springs
Square Two Financial
St. Charles East High School
St. Louis Blues Alumni Association
St. Louis Cardinals, LLC
State Farm Insurance
State Garden, Inc.
Stein Geisenheimer CH Foundation
Bradley A. Stephens Committeeman Fund
Lisa and Jason Stock
Strauss Foundation
Stop and Shop
Sugar Food Corp
Sun Tropics, Inc.
Surfer’s Environmental Alliance
Rekha Suryanarayana
Susan and John Turben Foundation
Susan Wagner High School
Susquehanna Bank/Allie's Alliance
TD Bank N.A.
PAGE 21
T G E, Inc.
TMA Resources
Taco Bell
Tampa Bay Rays Baseball, Ltd.
Linda M. Teplitz
Lawrence Tanimoto
Texas Rangers Baseball Foundation
The Tromblee Foundation
ThinkThin, LLC
Jim Thomas
Gary Scott Thompson
Thompson Foundation for Autism
Thompson Street Capital Partners
Tickets for Charity, LLC
Time Warner
Christopher Toomey
Total Wine & More
Michael S. Triggs
Trio Foundation of St. Louis
Tropical Nut and Fruit, Inc.
Robert S. Trump
Trumpet Behavioral Health, LLC
Tyco Electronics Corporation
UMC of Green Trails
University of Pittsburgh
Medical Center
Van’s International Foods, Inc.
Venable Foundation, Inc.
Verizon Foundation
Veros Credit
Volios Group, LLC
Vons Foundation
WJL Distributors, Inc.
W.L. Amos Sr. Foundation, Inc.
WME Entertainment
Wal-Mart
Wal-Mart Foundation
Michael Walsh
Julia Walters-Burns
Warburg Pincus, LLC
Warner Bros Television Production
Martha J. Weiner Charitable
Foundation
George A. Weiss
Wells Fargo Advisors, LLC
Western Construction Group
Westmoreland Center for
Internal Medicine
Whole Foods
Willkie Farr & Gallagher, LLP
Evan Winkler
Dr. and Mrs. Irving Wladawsky-Berger
The Randall A. Wolf
Family Foundation
Wolverine Execution Services
Sherman Wright
Xerox Corporation USA
Ye Loyal Krewe of Grace O’Malley
Young’s Market Company
Mary and Jeff Zients
2012 Financial Snapshot
Funding Sources
Walk Program/Retail Partners
Major Gifts, Grants and Other Contributions
Events
Interest Income and Other
$38.9 M
$12.1 M
$7.4 M
$0.1 M
Total $58.8 M
Your Dollars at Work
Program Services
Family Services, Awareness and Advocacy
Research
$21.1 M
$24.2 M
$45.3 M
Supporting Services
Management and General
Fundraising
$2.7 M
$16.1 M
$18.8 M
Total $64.1 M
Net Assets
Total Net Assets at December 31, 2012
$8.0 M
To view Autism Speaks complete audited financial statements please refer to our website
http://www.autismspeaks.org/about-us/annual-reports
PAGE 22
2012-2013 Board of Directors (As of publication date)
■ Curtis Arledge
CEO, BNY Mellon Investment Management
Vice Chairman, BNY Mellon
■ Peter Bell*
Executive Vice President,
Programs and Services,
Autism Speaks
■ Sallie Bernard
Co-founder and Executive Director,
Safe Minds
■ James Broder
Director Global Capital Raising
and Investor Relations,
Starwood Capital
■ Geraldine Dawson, Ph.D.*
Chief Science Officer, Autism Speaks
■ Liz Feld*
President, Autism Speaks
■ Nanci Bakar Fredkin
■ Philip H. Geier, Jr.**
Chairman,
The Geier Group, LLC
■ Gary W. Goldstein, MD
President and CEO,
Kennedy Krieger Institute
■ Dee Ocleppo Hilfiger
■ Tommy Hilfiger
■ Adrian Jones**
Co-Head of the Americas,
Goldman, Sachs & Co
■ Tim Jones
Chief Executive Officer,
Zenith Media
■ Mel Karmazin**
■ Brian Kelly**
Principal, Eastern Real Estate LLC
■ Artie Kempner
Director, Fox Sports Productions
■ Mark LaNeve
Chief Operating Officer,
Global Team Ford, WPP Group
■ Billy Mann
Chairman/CEO,
Green & Bloom Entertainment
■ Bernie Marcus**
Chairman,
The Marcus Foundation
■ Shawn Matthews
Chief Executive Officer,
Cantor Fitzgerald & Co.
■ Gary S. Mayerson
Founding Attorney, Mayerson & Associates
■ Kevin Murray**
G2 Investment Group, Forbes Private Capital
■ Alison Niederauer
Attorney
■ Herb Pardes, M.D.
Executive Vice Chairman of
the Board of Trustees,
NewYork-Presbyterian Hospital
■ Andrew Robertson
President & Chief Executive Officer,
BBDO Worldwide
■ Holly Robinson Peete
Actress; Author; Activist; Philanthropist;
Co-founder, HollyRod Foundation
PAGE 23
■ Chuck Saftler
Executive Vice President, FX Networks
■ Stuart M. Savitz
Founding Attorney,
Law Offices of Stuart M. Savitz, LLC
■ Dan Schulman
Group President – Enterprise Growth,
American Express Corporation
■ Laura Slatkin
President, Nest Fragrances
Founder & President,
New York Collaborates for Autism (NYCA)
■ Bob Wright**
Chairman of the Board and
Co-founder, Autism Speaks;
Senior Advisor, Lee Equity Partners, LLC;
Former Chairman & CEO, NBC Universal and
Vice Chairman, General Electric Company
■ Suzanne Wright**
Vice Chair of the Board & Co-founder,
Autism Speaks
■ John Wilson
President, Hyannis Port Capital, Inc.
■ David Wittels
Head of Private Equity,
Scopia Capital Management, LLC
*Staff Officers
**Executive Committee
PINNING OUR HOPES...
ON TODAY, TOMORROW,
AND A CURE.
PAGE 24
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