Resource Book - Mental Health Coordinating Council
Transcription
Resource Book - Mental Health Coordinating Council
Resource Book Foundations of Peer Work – Part 2 1 © 2015 National Mental Health Commission [This page has intentionally been left blank] Resource Book Foundations of Peer Work – Part 2 2 © 2015 National Mental Health Commission Acknowledgements Community Mental Health Australia (CMHA) acknowledges the traditional custodians of this land. CMHA acknowledges and greatly appreciates the funding provided by the National Mental Health Commission (NMHC) for the Mental Health Peer Work Qualification Development project. CMHA acknowledges the work of Simone Montgomery (Learning and Development Manager, Mental Health Coordination Council), Chris Keyes (Project Manager, Mental Health Coordination Council) and lead content developer Gillian Bonser (Paradigm Consulting Network) and the invaluable contribution of the reference group members who have worked on this project. National Management Steering Committee Susan Adam (Co-chair) Jenna Bateman (CMHA) Michael Burge (Co-chair) Jackie Crowe (NMHC) Chris Keyes (MHCC) Simone Montgomery (MHCC) National Technical Reference Group Jenny Burger (VIC) Peter Farrugia (Richmond PRA, NSW) Paul Nestor (SA) Helen Staples (QLD) National Carer and Consumer Peer Work Qualification Reference Group Susan Adam (Peninsula Carer Council, Vic) Julie Anderson (Vic) Eschleigh Balzamo (Brook RED Centre, Qld) Anne Barbara (SA) Barbara Biggs (WA) Michael Burge (Qld) Indigo Daya (Voices, Vic and Mental Illness Fellowship, Vic) Petra Elias (Consumer and Carer Inclusion Workforce, WA) Peter Farrugia (Richmond PRA, NSW) Fred Ford (NSW) Deiniol Griffith (Mental Illness Fellowship, SA) Patrick Hardwick (Private Mental Health Consumer Carer Network Australia, WA) Moira Munro (Perth Clinic, WA) Heather Nowak (SA) Lynette Pearce (Mental Health, Alcohol and Drug Directorate, DHHS, Tas) Ailsa Rayner (Qld) Alexandra Rivers (NSW) Colleen Simpson (Qld) Helen Staples (Qld) Lyn Mahboub (Richmond Fellowship, WA) Carol Turnbull (Adelaide Clinic, SA) Barbara Wieland (Adelaide Metro Mental Health Directorate, SA) Norm Wotherspoon (Private Mental Health Consumer Carer Network Australia, Qld) Lily Wu (NSW) CMHA acknowledges with thanks the lived experience cartoons provided by Merinda Epstein (Our Consumer Place) and the other cartoons provided by Paradigm Consulting Network. These images remain their copyright and have been included here with permission. CMHA thanks all others who have contributed towards the development of this resource book. This resource book is distributed by the National Mental Health Commission. Resource Book Foundations of Peer Work – Part 2 3 © 2015 National Mental Health Commission National Training Package CHC Version 1.0.0 Original release January 2016 Last revised January 2016 Released for use January 2016 Distributed by: National Mental Health Commission Disclaimer The National Mental Health Commission (NMHC) does not give a warranty nor accept any liability in relation to the content of this work. 2015 National Mental Health Commission. This resource may be reproduced for delivery of the nationally accredited Certificate IV in Mental Health Peer Work. It may also be reproduced for other educational purposes with acknowledgement to the NMHC and all contributors. Front cover logos, acknowledgements and footers are to remain on all documents. For information relating to use of these resources, please refer to Guidelines for Use included in the accompanying Companion Guide. To reference this resource please use the following protocol: Mental Health Coordinating Council. (2015). Foundations of Peer Work – Part 2: Resource Book. Sydney, Australia: developed on behalf of Community Mental Health Australia for the National Mental Health Commission’s Mental health peer work qualification development project. Resource Book Foundations of Peer Work – Part 2 4 © 2015 National Mental Health Commission Contents Understanding Human Rights .................................................................................... 9 History: international treaties and conventions................................................................ 10 Australia’s human rights obligations ............................................................................... 10 Australia’s other human rights obligations ...................................................................... 12 Social justice .................................................................................................................. 15 Mental Health Statement of Rights and Responsibilities ................................................. 17 Legislation and Some Key Documents..................................................................... 21 Recovery Oriented Practice in Context - Key Documents & Legislation (Law) ................ 21 Legislation (laws) ............................................................................................................ 22 Carer Legislation, Policy and Procedures ....................................................................... 28 What is a Code of Practice? ........................................................................................... 30 Community Work Practice Standards ............................................................................. 31 The ‘National Framework for Recovery Oriented Mental Health Services’ ...................... 34 National Mental Health Plans ......................................................................................... 35 NSW Strategic Plan ........................................................................................................ 35 2 key sets of standards (Workforce and service standards) ............................................ 37 Standards and plans....................................................................................................... 38 Principles of recovery oriented mental health practice .................................................... 42 NSW Disability Services Standards (NSW Standards) (guided by the Disability Services Act 1993 (NSW)) ............................................................................................................ 44 Some other useful documents ........................................................................................ 44 Duty of care .............................................................................................................. 46 Negligence ..................................................................................................................... 46 Dignity of risk .................................................................................................................. 47 Balancing dignity of risk with duty of care ....................................................................... 48 Ethical practice ......................................................................................................... 53 What are ethics? ............................................................................................................ 53 Key points about ethics .................................................................................................. 53 Ethics, codes of practice and codes of conduct .............................................................. 54 General ethical principles ............................................................................................... 55 Some Useful References ................................................................................................ 55 Peer work ethical principles ............................................................................................ 56 Values and ethics of mental health recovery and peer support ....................................... 58 Workplace Dilemmas...................................................................................................... 59 Ethical decision-making .................................................................................................. 60 Resource Book Foundations of Peer Work – Part 2 5 © 2015 National Mental Health Commission Ethical dilemmas ............................................................................................................ 68 Common ethical dilemmas for peer workers ................................................................... 69 Approaches and frameworks .................................................................................... 87 Using good practice frameworks..................................................................................... 87 What is a strength, and what is resilience? ..................................................................... 88 Strengths-based approaches.......................................................................................... 89 Holistic care .................................................................................................................... 91 Person-centred approach ............................................................................................... 93 Peer support and recovery ............................................................................................. 93 Connecting and disconnecting ........................................................................................ 96 Power and the drama triangle ......................................................................................... 97 Values-based practice skills ......................................................................................... 100 Record Keeping ..................................................................................................... 103 Collecting and managing consumer and carer information ........................................... 104 Principles of Record Management ................................................................................ 105 Information sharing ....................................................................................................... 105 Note-taking versus note-making ................................................................................... 106 Reflection on learning............................................................................................. 123 Appendix A: MHCC Law and Ethics Definitions ..................................................... 124 Appendix B: Glossary of other Key Terms ............................................................. 128 Appendix C: Key Legislation for Mental Health Workers ........................................ 136 Appendix D: Certified Peer Specialist Code of Ethics ............................................ 166 References ............................................................................................................. 167 Resource Book Foundations of Peer Work – Part 2 6 © 2015 National Mental Health Commission Acknowledgement of Country Where possible, a traditional Aboriginal or Torres Strait Islander Elder from the area will be invited to welcome the participants to their country. Your trainer will also acknowledge and pay respect to the traditional owners and custodians of the land on which the training occurs, and their elders both past and present, thanking them for their wisdom and care for the land. Note: There is a glossary and abbreviations list in the appendix of this book Resource Book Foundations of Peer Work – Part 2 7 © 2015 National Mental Health Commission DAY 3 “The secret of change is to focus all of your energy not on fighting the old… but on building the new” Socrates Resource Book Foundations of Peer Work – Part 2 8 © 2015 National Mental Health Commission Understanding Human Rights Human Rights are the fundamental rights and freedoms of every person to have the things they need to survive and thrive, to be treated with fairness and protected from injustice. They outline the things you can do, be and have and how you should be treated by others especially governments. The following information is adapted from the Australian Human Rights Commission (2010), ‘Understanding human rights’, p. 4. The full document is available at: www.humanrights.gov.au/education/understanding_human_rights Who has responsibility for acknowledging human rights? Governments (think about how this might work in a totalitarian state) Organisations such as the United Nations, Amnesty International, the International Committee of the Red Cross and so on Communities, such as school communities, town communities, club communities and so on Individuals, such as you and me What are some terms that describe what human rights are concerned with? Dignity, respect Every person has dignity and value. Responsibility Human rights are basic rights and Values freedoms. Systems Human rights are concerned with equality, fairness, dignity and respect. Moral and legal rights Human rights are about living a life free Justice, tolerance, equality from fear, harassment or discrimination. Interaction between people All human beings are born free and equal in and their community dignity and right. Where do human rights come from? Philosophies put forward by thinkers of the ancient world (e.g. Plato, Marcus Aurelius, Cicero, St Augustine) Religious principles from a range of world religions Philosophical positions from thinkers of the Renaissance and Enlightenment periods (e.g. Locke, Bacon, Descartes, Voltaire) Political struggles, such as the French Revolution, the American Civil War, women’s suffrage and the collapse of the apartheid system in South Africa Do you think human rights are important? Why? Unique value of each person and their common humanity Importance of recognising every individual’s dignity Need for freedom of thought, movement, ideas Need to operate as part of a community Value of mutual respect between people System of values by which individuals and communities can interact together constructively Need for balance between rights and our duty to acknowledge and respect rights of others Resource Book Foundations of Peer Work – Part 2 9 © 2015 National Mental Health Commission History: international treaties and conventions A ‘treaty’ is a written agreement between nations (or certain international agencies, such as the United Nations) that is intended to establish a relationship governed by international law. Various other terms may also be used for such an agreement, including convention, protocol, declaration, charter, covenant, pact, act, statute and understanding. Each member country of the United Nations decides whether to sign up to each convention. While many nations might ratify (sign) a convention, there is no means of forcing them to comply with its contents. Real commitment is demonstrated when nations embed conventions into their own legislation. Australia’s human rights obligations Universal Declaration Of Human Rights In 1948, the first international statement of human rights the Universal Declaration of Human Rights was adopted by the member countries of the United Nations. While not legally binding, the Declaration affirmed and recognised rights that had been violated before and during World War II. UNIVERSAL DECLARATION OF HUMAN RIGHTS - Simplified Version This simplified version of the 30 Articles of the Universal Declaration of Human Rights has been created especially for Youth for human rights and is available on their website: http://www.youthforhumanrights.org/what-are-human-rights/universal-declaration-of-human-rights/articles-1-15.html 1. We Are All Born Free & Equal. We are all born free. We all have our own thoughts and ideas. We should all be treated in the same way. 2. Don’t Discriminate. These rights belong to everybody, whatever our differences. 3. The Right to Life. We all have the right to life, and to live in freedom and safety. 4. No Slavery. Nobody has any right to make us a slave. We cannot make anyone our slave. 5. No Torture. Nobody has any right to hurt us or to torture us. 6. 6. You Have Rights No Matter Where You Go. I am a person just like you! 7. We’re All Equal Before the Law. The law is the same for everyone. It must treat us all fairly. 8. Your Human Rights Are Protected by Law. We can all ask for the law to help us when we are not treated fairly. 9. No Unfair Detainment. Nobody has the right to put us in prison without good reason and keep us there, or to send us away from our country. 10. The Right to Trial. If we are put on trial this should be in public. The people who try us should not let anyone tell them what to do. 11. We’re Always Innocent Till Proven Guilty. Nobody should be blamed for doing something until it is proven. When people say we did a bad thing we have the right to show it is not true. Resource Book Foundations of Peer Work – Part 2 10 © 2015 National Mental Health Commission 12. The Right to Privacy. Nobody should try to harm our good name. Nobody has the right to come into our home, open our letters, or bother us or our family without a good reason. 13. Freedom to Move. We all have the right to go where we want in our own country and to travel as we wish. 14. The Right to Seek a Safe Place to Live. If we are frightened of being badly treated in our own country, we all have the right to run away to another country to be safe. 15. Right to a Nationality. We all have the right to belong to a country. 16. Marriage and Family. Every grown-up has the right to marry and have a family if they want to. Men and women have the same rights when they are married, and when they are separated. 17. The Right to Your Own Things. Everyone has the right to own things or share them. Nobody should take our things from us without a good reason. 18. Freedom of Thought. We all have the right to believe in what we want to believe, to have a religion, or to change it if we want. 19. Freedom of Expression. We all have the right to make up our own minds, to think what we like, to say what we think, and to share our ideas with other people. 20. The Right to Public Assembly. We all have the right to meet our friends and to work together in peace to defend our rights. Nobody can make us join a group if we don’t want to. 21. The Right to Democracy. We all have the right to take part in the government of our country. Every grown-up should be allowed to choose their own leaders. 22. Social Security. We all have the right to affordable housing, medicine, education, and childcare, enough money to live on and medical help if we are ill or old. 23. Workers’ Rights. Every grown-up has the right to do a job, to a fair wage for their work, and to join a trade union. 24. The Right to Play. We all have the right to rest from work and to relax. 25. Food and Shelter for All. We all have the right to a good life. Mothers and children, people who are old, unemployed or disabled, and all people have the right to be cared for. 26. The Right to Education. Education is a right. Primary school should be free. We should learn about the United Nations and how to get on with others. Our parents can choose what we learn. 27. Copyright. Copyright is a special law that protects one’s own artistic creations and writings; others cannot make copies without permission. We all have the right to our own way of life and to enjoy the good things that art, science and learning bring. 28. A Fair and Free World. There must be proper order so we can all enjoy rights and freedoms in our own country and all over the world. 29. Responsibility. We have a duty to other people, and we should protect their rights and freedoms. 30. No One Can Take Away Your Human Rights. Resource Book Foundations of Peer Work – Part 2 11 © 2015 National Mental Health Commission Activity Human rights are closely connected to fundamental human needs In the table below is a list of some human rights. Identify the human need it meets and then add two (2) more of your own. Human right Eg right to work Human need it addresses Eg the Need for meaningful employment and sufficient financial support for basic needs Right to adequate food Right to freely participate in the cultural life of the community, Right to adequate housing Australia’s other human rights obligations Australia has signed a number of human rights treaties, including: International Covenant on Civil and Political Rights (ICCPR) International Covenant on Economic, Social and Cultural Rights (ICESCR) International Convention on the Elimination of All Forms of Racial Discrimination (ICERD) Convention on the Elimination of All Forms of Discrimination Against Women (CEDAW) Convention Against Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment (CAT) Convention on the Rights of the Child (CROC) Convention on the Rights of Persons with Disability (CRPD). However, we have never developed an Australian bill or charter of human rights, so these rights are not contained in a single, easy-to-find place. Individuals’ rights in Australia currently come from a number of different sources, including: international treaties and conventions legislation and regulations common law government standards and policies professional codes of practice and workplace policies. Resource Book Foundations of Peer Work – Part 2 12 © 2015 National Mental Health Commission Convention on the Rights of Persons with Disability (CRPD) This is the most important legal document relating to the rights of people with disabilities (including ‘mental illness’). It covers people who have long-term physical, mental, intellectual or sensory impairments that may hinder their full and effective participation in society on an equal basis with others. Australia ratified (signed) this convention in 2008. It was one of the first Western countries to do so. By ratifying the convention, Australia has agreed to promote the equal and active participation of all people with disability. The convention outlines the rights of people with all types of disabilities, including the rights to: equality and respect effective access to justice enjoyment of personal liberty and security freedom from torture, cruel, inhuman or degrading treatment, or punishment live independently and to be included in community life freedom of expression and opinion, and access to information respect for privacy respect for family life health work and employment an adequate standard of living. The convention talks about these rights in four different ways: ‘recognise’ means having laws to ensure the right ‘respect’ means not doing something that would take the right away from someone ‘protect’ means making sure that services outside the government don’t abuse the right ‘fulfil’ means taking steps to make sure everyone has the right in their life. Principles for the Protection of Persons with Mental Illness and the Improvement of Mental Health Care The Principles for the Protection of Persons with Mental Illness and the Improvement of Mental Health Care provide guidance and advice about how people with ‘mental illness’ should be treated in the healthcare system and by other services. They aim to maximise personal choice, autonomy and freedom. These principles are not legally binding, but they do influence and affect Australia’s policy and obligations. They were adopted by the UN in 1991, but have not been fully incorporated in Australian legislation. Resource Book Foundations of Peer Work – Part 2 13 © 2015 National Mental Health Commission The principles confirm that people with ‘mental illness’ have the right to: live and work, as far as possible, in the community be treated in the community in which they live receive appropriate health and social care receive medication only for therapeutic or diagnostic purposes access their health and personal records make a complaint about their treatment know and understand their rights. The full list of 25 principles is available www.un.org/documents/ga/res/46/a46r119.htm. Convention on the Rights of the Child These rights cover what children should be allowed to do, and how they should expect to be treated. More information is available at www.unicef.org.au/discover/Educational-Resources.aspx. A fact sheet that summarises children’s rights under the convention is available at www.unicef.org/crc/files/Rights_overview.pdf. Convention of the Rights of the Child – plain English version 1. All children have these rights, no matter what their race, colour, sex, language, religion, political or other opinion, or where they were born or who they were born to. 2. Kids have the right to grow up and to develop physically and spiritually in a healthy and normal way, free and with dignity. 3. Kids have the right to a name, to an identity and to be a member of a nation or country. 4. Kids have the right to special care and protection, and to good food, housing and medical services. 5. Kids have the right to special care if they have any disabilities. 6. Kids have the right to love, care and understanding, preferably from parents and family, but from the government where parents and family cannot help. 7. Kids have the right to go to school for free, to play and to have an equal chance to develop, grow and learn. They have the right to learn and live in their culture. They have the right to learn how to make good decisions and life choices. Parents have special responsibilities for their education and guidance. 8. Kids have the right to get help, protection and relief first. 9. Kids have the right to be protected against abuse, neglect, cruel acts and exploitation. Kids should not work before a minimum age, and never when it would hinder their health or their moral, mental or physical development. 10. Kids have the right to live free from discrimination, prejudice and oppression. They should be taught peace, understanding, tolerance, respect and friendship among all people. Resource Book Foundations of Peer Work – Part 2 14 © 2015 National Mental Health Commission Social justice A life of opportunity and dignity, free from discrimination and disadvantage, should not be an ideal. It is, in fact, a basic human right – one that we all share in common (Human Rights and Equal Opportunity Commission, 2003, Social Justice and Human Rights for Aboriginal and Torres Strait Islander people, www.humanrights.gov.au/social_justice). Image source: www.redroom.com. Social justice is about making sure that every Australian – whether Indigenous or nonIndigenous – has real human rights, choices about how they live and the means to make those choices. It’s about acting when people’s rights are violated or when people are living in poverty or experiencing disadvantage. Social justice means that it is a human right to be treated equitably and fairly. It means supporting people who are marginalised, living in poverty, dispossessed or disadvantaged in our society. It means ensuring that all people have equal access to services like education, water, sanitation and health care. It can involve education and promotional campaigns. It can be about fighting for the rights of individuals, but is often about groups and systemic change. Often this means working to change policies, legislation or government priorities, and helping society to take responsibility or change. Social justice principles The four principles of social justice are: equity access participation rights. Resource Book Foundations of Peer Work – Part 2 15 © 2015 National Mental Health Commission Social justice issues Social justice is what faces you in the morning. It is awakening in a house with an adequate water supply, cooking facilities and sanitation. It is the ability to nourish your children and send them to a school where their education not only equips them for employment, but reinforces their knowledge and understanding of their cultural inheritance. It is the prospect of genuine employment and good health: a life of choices and opportunity, free from discrimination (Mick Dodson, Social Justice Commissioner, Annual Report of the Aboriginal and Torres Strait Islander Commissioner 1993). Social justice issues include: health poverty education housing justice water and sanitation disability Indigenous rights women’s rights children’s rights (e.g. child soldiers) peace natural disasters human trafficking other human rights issues. An example of social justice for Indigenous people While Indigenous people are entitled to the full protection of the individual human rights system that has existed for the past sixty years, their rights have continued to be violated and they often experience poverty and disadvantage to a greater extent than the rest of the population. The United Nations Declaration on the Rights of Indigenous Peoples recognises the difficulty in realising human rights for Indigenous people who have been disadvantaged on a systemic level by historical discrimination and dispossession over past centuries (Ho, L, 2011, National Pro Bono Resource Centre Occasional Paper: What is Social Justice? p. 3). Social justice also includes recognising the distinctive rights that Indigenous Australians hold as the original people of this land, including: the right to a distinct status and culture, which helps maintain and strengthen the identity and spiritual and cultural practices of Indigenous communities the right to self-determination, which is a process whereby Indigenous communities take control of their future and decide how they will address the issues facing them the right to land, which provides the spiritual and cultural basis of Indigenous communities. The Aboriginal and Torres Strait Islander Social Justice Commissioner advocates for the recognition of the rights of Indigenous Australians and seeks to promote respect and understanding of these rights among the broader Australian community. Activity What does social justice mean to you? Resource Book Foundations of Peer Work – Part 2 16 © 2015 National Mental Health Commission Mental Health Statement of Rights and Responsibilities The following extracts are from the Mental Health Statement of Rights and Responsibilities (Commonwealth of Australia, 2012, pp. 7–8, 13–15 and 20–21).The full document is available at: www.health.gov.au/internet/mhsc/publishing.nsf/Content/8F44E16A905D0537CA257B33007 3084D/$File/rights.pdf. Non-discrimination and social inclusion Mental health consumers have the right to: a. respect for their individual human dignity and worth at all ages and stages of life b. respect for their privacy and confidentiality c. respect for their health, safety and welfare d. equal enjoyment of the highest attainable standard of physical and mental health e. equal recognition before the law and the equal protection of the law f. an adequate standard of living and social protection g. equal opportunities to access and maintain o health and mental health care o housing o education and training o work and employment o legal services o income maintenance o insurance h. respect for their family life i. have their sexual orientation, gender and gender identity taken into consideration when receiving social support, health and mental health services j. have their social, economic, cultural background and family circumstances taken into consideration when receiving social support, health and mental health services k. contribute to and participate in the development of social, health and mental health policy and services. Resource Book Foundations of Peer Work – Part 2 17 © 2015 National Mental Health Commission The right to mental health care Mental health consumers have the right to: a. be considered capable of making a decision (by the service or person providing care) b. consent to, or refuse, medical treatment and other services, unless their consent is governed by mental health or guardianship legislation c. have their wishes respected and taken into account d. have their lived experiences respected and taken into account e. receive the support that they determine is necessary to assist them to make decisions about health care f. receive appropriate and comprehensive information about their diagnosis, options for care and treatment and the availability of services g. obtain timely, appropriate treatment, care and support h. have their age, social, economic, cultural/geographical background and spiritual preferences taken into consideration in their treatment, support and care i. have their sexual orientation, gender and gender identity taken into consideration in their treatment, support and care j. have their right to privacy respected k. have their right to confidentiality respected l. be treated in the most facilitative environment with the least restrictive or intrusive response or treatment m. receive services in a safe environment that protects them from physical, sexual and emotional harassment, abuse and violence n. have families, carers and support persons involved in their assessment, support, care, treatment, recovery and rehabilitation to the extent requested by them o. be given appropriate reasons for the refusal of treatment p. be referred to alternative or complementary services q. where appropriate, receive mental health assessment, support, care, treatment, rehabilitation and recovery that is coordinated with alcohol and drug use services r. seek a second opinion s. signify their wishes and preferences in regard to future treatment, support and care t. be provided with information about ongoing assessment, support, care, treatment, rehabilitation and services that support recovery u. make a complaint regarding any facet of their assessment, support, care, treatment, rehabilitation and recovery Resource Book Foundations of Peer Work – Part 2 18 © 2015 National Mental Health Commission Carers and advocates 36. This statement acknowledges the contributions and expertise of informal, professional, non-professional and statutory carers and support persons. 37. Australian governments and the Australian community should endeavour to assist carers and support persons in their respective roles. 38. Carers and support persons who are young have special needs and are entitled to special support and consideration. 39. Carers and support persons have the right to: a. respect for their individual human worth and dignity b. respect for their privacy c. respect for their confidentiality d. comprehensive information, education, training and support to facilitate their care and support roles e. receive services that assist them to provide care and support f. contribute to and participate in the development of social, health and mental health policy g. place limits on their availability to the mental health consumer h. access mechanisms of complaint and redress if they are dissatisfied with the treatment or support provided to the mental health consumer i. receive support for their own difficulties that may be generated through the process of supporting, caring for or acting as an advocate for the mental health consumer j. provide information concerning family relationships and any matters relating to the mental state of the mental health consumer to health service providers. 40. With the consent of the mental health consumer, and where it is appropriate to do so in accordance with legislation and policy, guardians, carers and support persons have the right to: a. contact the mental health consumer while they are undergoing treatment b. participate in treatment decisions and decisions about ongoing care c. seek and receive additional information about the mental health consumer’s support, care, treatment, rehabilitation and recovery d. be consulted by service providers about treatment approaches being considered for the mental health consumer e. arrange support services for the mental health consumer, such as respite care, counselling and community care facilities f. be provided with any information that the mental health consumer requests they should receive. 41. Carers and support persons have the responsibility to: a. respect the humanity and dignity of the mental health consumer b. consider the opinions and skills of professional and other staff who provide assessment, individualised care planning, support, care, treatment, recovery and rehabilitation services to mental health consumers c. cooperate, as far as is possible, with reasonable programs of assessment, individualised care planning, support, care, treatment, recovery and rehabilitation. 42. Families, guardians, carers and support persons of children and young people have the responsibility to obtain appropriate professional assistance if they believe that a child or young person has a mental health problem or a mental illness. Resource Book Foundations of Peer Work – Part 2 19 © 2015 National Mental Health Commission To uphold human rights requires more than legislation. It requires that consumers and carers know their rights and that the professions are adequately trained in these and in their codes of ethics and practice, standards and quality improvement systems. All such systems need to be supported so that cultures in human services are caring ones. All workplaces need to nurture an inclusive society able to respond to people when they are at their most vulnerable (Mental Health Coordinating Council, 2011, NSW Mental Health Rights Manual). Activity How do consumers and carers find out about their rights at your service? Do you have culturally appropriate resources to inform people about their rights? Can you think of a time when a person’s rights were not respected? What happened? What should you do if a person’s rights have not been respected, or if they would like to make a complaint? Resource Book Foundations of Peer Work – Part 2 20 © 2015 National Mental Health Commission Legislation and Some Key Documents Note:This information is provided as general information only, and should not be considered or used as legal advice. As mental health workers you need to be aware of the laws (legislation), framework, standards and plans that should guide your work and the way you practice. The national and state documents provide the context in which mental health services need to operate. Legislation The ‘National NSW Mental Health Framework for Recovery Oriented Mental Health Services’ Strategic Plan "Living Well" Recovery Oriented Practice in Context - Key Documents & Legislation (Law) National Standards for Mental Health National Mental Health Plan Services (2010) National Practice Standards for the Mental Health Workforce (2013) Resource Book Foundations of Peer Work – Part 2 21 © 2015 National Mental Health Commission Legislation (laws) Note:This information is provided as general information only, and should not be considered or used as legal advice. ‘Appendix C’ - has more detailed information about relevant legislation for peer work. There is also a glossary of legal and ethical terms in ‘Appendix A’ Another invaluable resource for peer workers, mental health workers and those they work with is the: THE MENTAL HEALTH RIGHTS MANUAL: An online guide to the legal and human rights of people navigating the mental health and human service systems in NSW (4th Edition) 2015 http://mhrm.mhcc.org.au/home/ Legislation is often reviewed and updated. It is important to ensure that you are aware of the latest version of any legislation. Your organisation should provide you with information about the legislation that is relevant to your role during induction. It should also provide you with information about any changes or updates. If you have any questions, you should contact your supervisor. There are a number of key pieces of legislation (laws) at both state and federal level that workers need to be aware of. Depending on your work role, you might also need to be aware of additional legislation. At national level: Commonwealth Privacy Act 1988 applies to both government and private sector organisations across Australia Commonwealth Disability Discrimination Act 1992 states that discrimination is against the law if it happens in any of the following areas of life: employment and work; education; disability rights; access to public places; providing goods or services, including healthcare services; providing housing or accommodation; sale, lease or disposal of land; membership of clubs and associations and treatment of members; sport, including playing sport as well as coaching and sports administration; administration of Commonwealth laws and programs At state level there may be Acts relating to: Work Health and Safety Work Health and Safety Act 2011 (NSW) covers the prevention of work hazards and other work-related health and safety issues Mental health Mental Health Act 2007– providing for the care, treatment and control of people with ‘mental illness’ Mental Health (Forensic Provisions) Act 1990 – outlining rules and procedures that might apply to ‘forensic patients’, or people with ‘mental illness’ who have committed crimes and were deemed mentally unwell at the time Resource Book Foundations of Peer Work – Part 2 22 © 2015 National Mental Health Commission Information and privacy Health Records and Information Privacy Act 2002– to protect the privacy of health information in both the public and private sectors Government Information (Public Access) Act 2009 – ‘GIPA’- to allow people to ask for information from files and documents held by governments, including personal information about them, but also to protect them from access by others Discrimination Anti-discrimination Act 1977– making it unlawful to discriminate against someone because they belong to a particular group Protection, including child protection Children and Young Persons (Care and Protection) 1998 – to give the government power to protect children and young people from abuse, and requiring that some people, including health workers, must make a mandatory report to the government if, during the course of their work, they become aware of a person under 16 years of age who they suspect is at risk of harm Disability Disability Inclusion Act 2014 (NSW) – ‘DIA’-The Act replaces the Disability Services Act and has two main aims. The first aim is to explain how the government will provide disability supports and services (until the rollout of the National Disability Insurance Scheme (NDIS) expected to be by mid-2018. The second aim is to ensure once NDIS is rolled out, people with disability in NSW will have access to mainstream services and be part of the community. This includes providing access to services necessary to enable people with disability to achieve their maximum potential as members of the community, to achieve positive outcomes, such as increased independence, employment opportunities and integration in the community, and to have the same basic human rights as other members of the community. How to get legal advice or information about your role and responsibilities: Talk to your supervisor Read the relevant policies and procedures they usually refer to any relevant legislation Google the Mental Health Rights Manual (MHRM); THE MENTAL HEALTH RIGHTS MANUAL: An online guide to the legal and human rights of people navigating the mental health and human service systems in NSW (4th Edition) 2015: http://mhrm.mhcc.org.au/home/ Read the legislation at: o http://www.legislation.nsw.gov.au/ o https://www.comlaw.gov.au/ o http://www.austlii.edu.au/au/legis/cth/consol_act/ Legal Aid NSW helps people with their legal problems Help over the phone: Call LawAccess NSW on 1300 888 529 to get started LawAccess NSW is a free government telephone service that provides legal information, referrals and in some cases, advice for people who have a legal problem in NSW. We are a starting point to help with your legal problem: http://www.lawaccess.nsw.gov.au/ Resource Book Foundations of Peer Work – Part 2 23 © 2015 National Mental Health Commission Find information: factsheets and resources to help you with your problem: http://www.legalaid.nsw.gov.au/publications/factsheets-and-resources Get advice from a lawyer: We provide free face-to-face advice on most legal issues: http://www.legalaid.nsw.gov.au/get-legal-help/advice Help at court: We have lawyers to assist you at many courts and tribunals across NSW: http://www.legalaid.nsw.gov.au/get-legal-help/help-at-court The Law Society Solicitor Referral Service - 1800 422 713: http://www.lawsociety.com.au/community/findingalawyer/index.htm Your local Community legal centre - Community Legal Centres (CLCs) are independently operating not-for-profit community organisations that provide legal and related services to the public, focusing on the disadvantaged and people with special needs: http://www.naclc.org.au/need_legal_help.php Civil and administrative tribunal act 2013 NSW Civil and Administrative Tribunal (NCAT) was established by the Civil and Administrative Tribunal Act 2013, (with Schedule 6 outlining functions specific to the Guardianship Division). NCAT commenced operation on 1 January 2014 and has merged 22 previously separate NSW tribunals into one entity that now provides all specialist tribunal services. This integration was intended to retain the ‘expertise formerly spread across the tribunals, while increasing ease of access and restructuring back office administration’. NCAT is made up of four divisions, each headed by a Deputy President with expert knowledge in their area. The four divisions are as follows: 1. 2. 3. 4. Consumer and Commercial Division Administrative and Equal Opportunity Division Occupational Division Guardianship Division Guardianship Division The Guardianship Division within NCAT has replaced the Guardianship Tribunal of NSW, which was established in 1989. Its functions are essentially the same as its predecessor, with the Division conducting hearings to manage applications concerning adults with an impaired decision-making ability. What is a guardian? A guardian is a person appointed to make legally valid decisions on behalf of a person with a disability who is unable to make decisions on their own or without support. The Guardianship Division within NCAT can appoint guardians for people 16 years of age and over who are incapable of making their own decisions about their lifestyle. Generally, NCAT only hears applications where there are no appropriate decision making arrangements already in place or where an appropriate alternative to an application cannot be found. Resource Book Foundations of Peer Work – Part 2 24 © 2015 National Mental Health Commission Three separate organisations working together for people with disabilities http://www.ncat.nsw.gov.au/Documents/gd_factsheet_three_separate_organisations.pdf NSW Civil and Administrative Tribunal NSW Trustee and Guardian Public Guardian NSW Civil and Administrative Tribunal Appoints guardians for people with disabilities aged 16 years and over who are incapable of making their own decisions and need a legally appointed substitute decision maker. It may be a friend/family member OR Public Guardian Public Guardian can make decisions for the person’s ACCOMMODATION, Financial manager as substitute decision makers for people who are incapable of managing their own finances It may be a friend/family member (who will be subject to the directions of the NSW Trustee and Guardian) OR NSW Trustee and Guardian in certain circumstances may directly consent to medical and dental treatments for people who are unable to consent for themselves. NSW Trustee and Guardian can make decisions about the person’s FINANCES MEDICAL and DENTAL, HEALTH CARE and SERVICES. Types of decisions they can make are identified in the Guardianship order May provide advocacy for services and support but is not a caregiver themselves. Charges fees for: Financial and Asset Management and overseeing private managers (providing authorisation and direction) COMPLAINTS about the Public Guardian should be directed to the Complaint Support Officer at the Public Guardian. COMPLAINTS about the NSW Trustee and Guardian should be directed in writing to the Manager Quality Service and Client Relations at the NSW Trustee and Guardian. If you are requesting a review of a decision it is helpful to outline why you think the decision is not in their client’s best interests. COMPLAINTS: about the NSW Civil and Administrative Tribunal must be in writing and can be made by email, or online by using the feedback form or the form can be mailed or faxed direct to the Principal Registrar. Resource Book Foundations of Peer Work – Part 2 25 © 2015 National Mental Health Commission What does NCAT consider in making a guardianship order? NCAT will not make a guardianship order unless it is satisfied by the evidence before it that the person the application is about: has a decision-making disability, the disability results in the person being partially or wholly incapable of managing themselves, and there is a need for the person to have a guardian appointed. The contact details for NCAT are as follows: www.ncat.nsw.gov.au The Guardianship Division operates from Level 3, 2a Rowntree Street, Balmain NSW 2041 http://www.ncat.nsw.gov.au/Pages/guardianship/guardianship.aspx For further information contact the NCAT Guardianship Division’s enquiry service on (02) 9556 7600 or 1300 006 228. Public Guardian The Public Guardian promotes the rights and interests of people with disabilities through the practice of guardianship, advocacy and education. The Public Guardian is part of the Department of Justice. The Public Guardian is a statutory official appointed by the Guardianship Division of the NSW Civil and Administrative Tribunal (NCAT). A guardian will usually be authorised to make decisions on behalf of another person in specific areas of a person’s life and for a certain length of time. In guardianship an area of decision making authority is called a function. The Public Guardian is the 'guardian of last resort'. This means that the Guardianship Division of NCAT has decided no other person, such a family member or friend, can be appointed. NSW Trustee & Guardian NSW Trustee & Guardian (NSW Trustee and Guardian Act 2009), commenced operations on 1 July 2009 merging the Public Trustee NSW and the Office of the Protective Commissioner. NSW Trustee & Guardian's role is to act as an independent and impartial Executor, Administrator, Attorney and Trustee for the people of NSW. It also provides direct financial management services and authorisation and direction to private financial managers. A financial management order is a legal document made by a court or tribunal that states a person is not capable of making financial decisions. The document appoints another person to be the financial manager to make decisions on behalf of the person. NSW Trustee and Guardian (NSWTG) can be made the financial manager if there is no one else willing or able to make decisions. Resource Book Foundations of Peer Work – Part 2 26 © 2015 National Mental Health Commission Australia’s workplace relations laws The Fair Work Act 2009 outlines the key elements of Australia’s workplace relations framework. It was amended and added to by the Fair Work Amendment Act 2013 which commenced operation on 1 January 2014. The effectiveness has been reviewed by the Fair Work Amendment Act 2013 post- implementation review. The Fair Work Act is a safety net of minimum terms and conditions of employment. It includes protection against unfair or unlawful termination of employment Fair Work Act is overseen by the Fair Work Commission and the Fair Work Ombudsman. The Fair Work Commission is an independent national workplace relations tribunal. It has a range of functions and the power to ensure the safety net of minimum conditions, enterprise bargaining, industrial action, dispute resolution and termination of employment are all correctly implemented. The role of the Fair Work Ombudsman is to help employees, employers, contractors and the community to understand workplace rights and responsibilities. They enforce compliance with Australia’s Fair Work Act and other related workplace laws. For more information see: Call the Fair Work Info line on 13 13 94. Visit: https://employment.gov.au/australias-national-workplace-relations-system NSW’s workplace relations laws NSW Industrial Relations (NSW IR) is part of the NSW Treasury. It administers NSW industrial and workplace legislation and regulate related employment matters by conducting compliance activities. They work with employers and employees to promote “fair, equitable and productive workplaces” and educate the community on the Fair work system. Some NSW industrial acts that they regulate include: Annual Holidays Act 1944 No 31 Employment Protection Act 1982 No 122 Industrial Relations Act 1996 No 17 (except parts, the Attorney General) Industrial Relations Advisory Council Act 2010 No 76 Industrial Relations (Child Employment) Act 2006 No 96 Industrial Relations (Commonwealth Powers) Act 2009 No 115 Industrial Relations (Ethical Clothing Trades) Act 2001 No 128 Long Service Leave Act 1955 No 38 Public Holidays Act 2010 No 155 For more information see: http://www.industrialrelations.nsw.gov.au/oirwww/About_NSW_IR/Legislation.page http://www.industrialrelations.nsw.gov.au/oirwww/About_NSW_IR.page Resource Book Foundations of Peer Work – Part 2 27 © 2015 National Mental Health Commission Carer Legislation, Policy and Procedures Support to reduce the impact on carers – government strategies Government legislation, policies and procedures can reduce the impact of caring on carers. “Understanding the impact of caring helps to shape policy reform to: 1. support carers to combine caring responsibilities with paid work. 2. improve carer physical and mental wellbeing by reducing care mental health problems.” (OECD. 2011, p85) “Countries which want to maintain or increase reliance on family carers will need to alleviate the burden of family carers and reduce the economic costs associated with caring responsibilities” (OECD. 2011, p85) Australian governments have certainly increasingly focused on the rights, participation and involvement of carers in the recovery process. The impact on carers has also led to establishing programs and new initiatives to provide carers with better support. Carer Legislation The government has put in place legislation to ensure carer rights and acknowledge the vital social and economic contribution they make. The Australian Government created the Carer Recognition Framework. It is composed of: The Carer Recognition Act 2010 and the The National Carer Strategy The Carer Recognition Act 2010 This Act recognises the carer’s contributions and their rights. It also requires government agencies and funded services to consult with carers and engage their participation. The ‘cornerstone of the Act is the “Statement for Australia’s Carers” which outlines 10 principles that funded organisations as well as Australian government agencies need to incorporate into their policies and consider when designing and delivering services for carers and consumers. The National Carer Strategy This document outlines a vision, aim and priority areas, and was developed to increase respect and support for carers. The six priority areas are: 1. Recognition and respect 2. Information and access 3. Economic security 4. Services for carers 5. Education and training 6. Health and wellbeing All of Australia’s states and territories have in place legislation or policies to support carers and outline their rights. Resource Book Foundations of Peer Work – Part 2 28 © 2015 National Mental Health Commission Legislation Western Australia: Carers Recognition Act 2004 South Australia: Carers Recognition Act 2005 Queensland: Carers Recognition Act 2008 Northern Territory: Carers Recognition Act 2009 New South Wales: Carers Recognition Act 2010 Victoria: Carers Recognition Act 2012 Policy Australian Capital Territory: ACT Carers Charter Tasmania: The Carer Policy The Statement for Australia’s Carers 1. All carers should have the same rights, choices and opportunities as other Australians, regardless of age, race, sex, disability, sexuality, religious or political beliefs, Aboriginal or Torres Strait Islander heritage, cultural or linguistic differences, socio-economic status or locality. 2. Children and young people who are carers should have the same rights as all children and young people and should be supported to reach their full potential. 3. The valuable social and economic contribution that carers make to society should be recognised and supported. 4. Carers should be supported to enjoy optimum health and social wellbeing and to participate in family, social and community life. 5. Carers should be acknowledged as individuals with their own needs within and beyond the caring role. 6. The relationship between carers and the persons for whom they care should be recognised and respected. 7. Carers should be considered as partners with other care providers in the provision of care, acknowledging the unique knowledge and experience of carers. 8. Carers should be treated with dignity and respect. 9. Carers should be supported to achieve greater economic wellbeing and sustainability and, where appropriate, should have opportunities to participate in employment and education. 10. Support for carers should be timely, responsive, appropriate and accessible. Applying the Statement for Australia’s Carers The national statement is to direct the actions of government and government funded services and workers in particular so that: Workers have an awareness and understanding of the Statement for Australia’s Carers Human resources policies are consistent with the Statement The Statement’s principles are reflected in the development, implementation, provision and evaluation of ‘care supports’ Carers are to be consulted in the development and evaluation of ‘care supports’ That annual compliance reports are developed. Resource Book Foundations of Peer Work – Part 2 29 © 2015 National Mental Health Commission Activity In what ways does legislation impact on your role as a worker? What is a Code of Practice? Codes of practice are practical outlines or guidelines on how you should perform certain workplace activities or practices. For example WorkCover NSW have a number of approved code of practices to assist workers to achieve the health, safety and wellbeing standards required under the NSW Work Health and Safety Act and related WHS Regulations Many of the codes of practice belong to specific industries eg demolition, spray painting, welding, construction etc. There is not a particular code of practice for community services but a number of generic ones cover community services workplaces. These include: First aid in the workplace Hazardous manual tasks How to manage work health and safety risks Labelling of workplace hazardous chemicals Managing electrical risks in the workplace Managing noise and preventing hearing loss at work Managing risks of hazardous chemicals in the workplace Managing the risk of falls at workplaces Managing the work environment and facilities Preparation of safety data sheets for hazardous chemicals Work health and safety consultation, coordination and cooperation Resource Book Foundations of Peer Work – Part 2 30 © 2015 National Mental Health Commission For example: First Aid Code of Practice covers information on first aid kits, procedures, facilities and training for first aiders. It explains how to provide adequate first aid facilities in the workplace Hazardous Manual Tasks Code of Practice, refers to tasks that require “a person to lift, lower, push, pull, carry or otherwise move, hold or restrain any person, animal or thing involving one or more of the following: repetitive or sustained force high or sudden force repetitive movement sustained or awkward posture exposure to vibration”. Each of these factors can stress the body and lead to injury. Community Work Practice Standards Practice standard define the standards associated with a profession e.g. nursing or social work. Below is the community Work Practice Standards for the Australian Community Workers Association and available on the ACWA website. http://www.acwa.org.au/resources/ACWA_Practice_Standards.pdf In brief there are 6 standards Standard STANDARD 1 Ethical practice STANDARD 2 Regulatory framework STANDARD 3 Development and supervision STANDARD 4 Client rights STANDARD 5 Confidentiality STANDARD 6 Acknowledgement of diversity Resource Book Foundations of Peer Work – Part 2 Description A community work practitioner understands and has a commitment to ethical practice, human rights, individual worth and social justice Indicators A community worker complies with the legal, regulatory and statutory framework that underpins the rights of clients with whom they work Indicators A community worker continues with professional development and professional supervision throughout their career. A community worker acknowledges through his or her practice that individuals, families, groups and communities have a fundamental human right to access services and supports A community worker respects and maintains client confidentiality, privacy and ensures professional boundaries A community worker demonstrates awareness of the diversity of clients and service users in all professional practice 31 © 2015 National Mental Health Commission The complete version is: PREAMBLE: The practice standards are designed to promote excellence in community work practice and provide a guide to all community work practitioners. The standards document replaces the ACWA Core competencies. DEFINITIONS: Community worker: A community worker is a person who through professional training and field education has the knowledge, skills and values to work in an organisation or program intended to promote or restore the social functioning of individuals, families, social groups or larger communities. Client: The term client refers to an individual, family, group or community with whom a practitioner works. STANDARD 1 Ethical practice A community work practitioner understands and has a commitment to ethical practice, human rights, individual worth and social justice Indicators: 1.1 1.2 1.3 The community worker’s relationship with clients or client groups is based on the principles of respect and human dignity regardless of the client’s own attitudes or behaviour. The principles of social justice, equity, individual worth, human dignity and selfdetermination are applied in all day-to-day professional practice, policy development and implementation, and in all forms of written communication and record keeping. Ethical behaviour is practiced in every situation, and ethical problems are managed in reference to the Australian Community Workers Association’s Code of ethics. STANDARD 2 Regulatory framework A community worker complies with the legal, regulatory and statutory framework that underpins the rights of clients with whom they work Indicators: 2.1 2.2 2.3 2.3 Legal issues, principles and mechanisms, legislation, and statutory provisions affecting the professional practice of a community worker are acknowledged and adhered to. Client information is dealt with within the requirements of legislation including privacy, confidentiality and freedom of information. The rights of clients are paramount in the provision of information, support and services. Records and information systems relating to clients, resources, programs and projects are developed and maintained in accordance with legislation and organisational policies and requirements. Resource Book Foundations of Peer Work – Part 2 32 © 2015 National Mental Health Commission STANDARD 3 Development and supervision A community worker continues with professional development and professional supervision throughout their career. Indicators 3.1 3.2 Professional supervision is sought or offered wherever appropriate and possible. Competence in practice is maintained by undertaking relevant professional development. 3.3 Personal and professional limitations are addressed by consulting others and seeking appropriate professional or peer support. 3.4 The community worker applies critical analysis to the profession, human service agencies and organisations, and social institutions. 3.5 The community worker is responsible and accountable for his or her own actions, decisions and professional development. STANDARD 4 Client rights A community worker acknowledges through his or her practice that individuals, families, groups and communities have a fundamental human right to access services and supports Indicators: 4.1 4.2 4.3 4.4 4.5 Services are designed to meet individuals’ and communities’ right to selfdetermination. Clients are not disadvantaged or disempowered by the inherent imbalance of power and authority that exists between the community worker and the client. Appropriate techniques, assessment, planning and research are in use when engaging with clients and communities. Processes are in place to actively engage clients and communities in developing programs and policies. Service, program and project provision is regularly evaluated and monitored to ensure compliance with human and legal rights STANDARD 5 Confidentiality A community worker respects and maintains client confidentiality, privacy and ensures professional boundaries Indicators: 5.1 5.2 5.3 Professional relationships with clients, communities, colleagues and other professionals are maintained. An organisational complaints procedure is in place to address noncompliance. Client and organisational information is kept confidential; informed consent is sought before any confidential information is shared unless this is required by law. Adequate record keeping is in place to protect the privacy of clients. Resource Book Foundations of Peer Work – Part 2 33 © 2015 National Mental Health Commission STANDARD 6 Acknowledgement of diversity A community worker demonstrates awareness of the diversity of clients and service users in all professional practice Indicators: 6.1 6.2 6.3 Demonstrated recognition of diversity in all its forms and provision of services that do not discriminate on the basis of individual or group characteristics, values, beliefs and practices. Demonstrated processes to gain information from relevant individuals and Indigenous and ethnic communities to ensure professional practice is appropriate and sensitive to community and client needs. Policies, programs, research design and client services are appropriate and sensitive to client needs The ‘National Framework for Recovery Oriented Mental Health Services’ The ‘National Framework for Recovery Oriented Mental Health Services’ is a guide for mental health workers and services to Australia’s national framework for recovery-oriented mental health services. It provides definitions of the concepts of recovery and lived experience; describes the practice domains and key capabilities necessary for the mental health workforce to function according to recovery-oriented principles; and provides guidance on tailoring recovery-oriented approaches to respond to the diversity of people with mental health issues, to people in different life circumstances and at different ages and stages of life. Extract from the national framework for recovery-oriented mental health services Executive Summary p1 “The national framework for recovery-oriented mental health services provides a vital new policy direction to enhance and improve mental health service delivery in Australia. It brings together a range of recovery-oriented approaches developed in Australia’s states and territories and draws on national and international research to provide a national understanding and approach to recovery-oriented mental health practice and service delivery. It complements existing professional standards and competency frameworks at a national and state level. The framework supports cultural and attitudinal change and encourages a fundamental review of skill mix within the workforce of mental health services, including increased input by those with expertise through experience. The framework defines and describes recovery and lived experience, describes the practice domains and key capabilities necessary for the mental health workforce to function in accordance with recovery-oriented principles, and provides guidance on tailoring recovery oriented approaches to respond to the diversity of people with mental health issues. It is underpinned by extensive research and consultation and informed by lived experience,” (National Framework 2013 p1) Resource Book Foundations of Peer Work – Part 2 34 © 2015 National Mental Health Commission The two reports are available for download: A national framework for recovery-oriented mental health services: Policy and theory (2013) Commonwealth of Australia 2013 http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-pubs-nrecovpol A national framework for recovery-oriented mental health services: Guide for practitioners and providers (2013) Commonwealth of Australia 2013 http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-pubs-nrecovgde National Mental Health Plans The ‘Fourth National Mental Health Plan’ emphasises coordination and collaboration between government, private and non-government service providers to deliver a more connected care system so that people with ‘mental illness’ can participate more fully in the community. It is available at: www.health.gov.au/internet/main/publishing.nsf/content/360EB322114EC906CA257670001 4A817/$File/plan09v2.pdf. The Fifth National Mental Health Plan is currently under develop. The reference group has been appointed NSW Strategic Plan Living Well: A Strategic Plan for Mental Health in NSW 2014-2024 “In December 2014, the NSW Government adopted the Strategic Plan for Mental Health in NSW, developed by the Commission… The Plan, which sets out a 10 year vision for better mental health and wellbeing, includes 141 Actions that together will create a strong platform for better mental health and wellbeing for everyone in NSW.” http://nswmentalhealthcommission.com.au/about-us “The Strategic Plan sets out actions and future directions for reform of the mental health system in NSW. It maps a demanding agenda for change that puts people – not processes – at the heart of its thinking. It asks that the NSW Government recommit to completing the process of reform begun with the Inquiry into Health Services for the Psychiatrically Ill and Developmentally Disabled (Richmond Report) in the 1980s in particular by taking two important steps - closing the remaining stand-alone psychiatric institutions and shifting the focus of mental health care from hospitals to the community. The Plan does not directly govern the operation of services but instead lays out directions and principles for reform which agencies and service providers must find ways to embed in the supports they offer to people in our community. http://nswmentalhealthcommission.com.au/our-work/strategic-plan Resource Book Foundations of Peer Work – Part 2 35 © 2015 National Mental Health Commission 10 key focus areas of the plan 1: Planning for our future 6: Better responses 2: Making it local 7: Care for all 3: Getting in earlier 8: Supporting reform 4: Putting people first 9: Governance of mental health within NSW Health 5: Providing the right type of care 10: Broader context of reforms The NSW Mental Health Commission’s Vision Our vision is for the people of NSW to have the best opportunity for good mental health and wellbeing and to live well in their community and on their own terms. Resource Book Foundations of Peer Work – Part 2 36 © 2015 National Mental Health Commission 2 key sets of standards (Workforce and service standards) National Practice Standards for the Mental Health National Standards for Workforce Services (2013) (2010) Mental Health 1. Rights, responsibilities, safety and privacy 1 2. 3. Rights and responsibilities Safety Consumer and carer participation 4. Diversity responsiveness 5. Promotion and prevention 6. Consumers 7. Carers 8. Governance, leadership and management 9. Integration 10. Delivery of care (supporting recovery, access, entry, assessment and review, treatment and support, exit and re-entry) 2. Working with people, families and carers in recovery-focused ways 3. Meeting diverse needs 4. Working with Aboriginal and Torres Strait Islander people, families and communities 5. Access 6. Individual planning 7. Treatment and support 8. Transitions in care 9. Integration and partnership 10. Quality improvement 11. Communication and information management Includes the: • Principles of recovery-oriented mental health practice Key occupations it applies to: • Nursing • Occupational therapy • Psychiatry • Psychology • Social Work. but useful for other workers Resource Book Foundations of Peer Work – Part 2 3 extra implementation guides • Public mental health services and private hospitals • Non-government community services • Private office based mental health practices. 37 © 2015 National Mental Health Commission Standards and plans Standards and plans are introduced by governments as a guide to service delivery and to provide for continuous improvement, as well as a reference for consumers and carers about what they can expect from mental health workers and services. National Practice Standards for the Mental Health Workforce 2013 “Australian governments are committed to supporting and developing the mental health workforce that provides services to people with mental illness, and their families and carers. People who work in mental health are among the major strengths of the system. Supporting practitioners to develop their skills, knowledge and attitudes is an important element of service quality and improvement. It also contributes to worker satisfaction and retention. Working in mental health offers particular challenges and benefits, and the workforce has a vital role in improving health and social outcomes for the community” (National Practice Standards for the Mental Health Workforce 2013 p4) In February 1999 the Commonwealth, in conjunction with the Australian Health Ministers Advisory Council National Mental Health Working Group (AHMAC NMHWG), released Learning Together: Education and Training Partnerships in Mental Health. This report identified five professions that make up the bulk of the mental health workforce: mental health nursing; occupational therapy; psychiatry; psychology and social work. The report identified the common ground between all five disciplines working in the mental health sector and proposed that processes for collaboration be established between ‘the higher education sector, the Commonwealth and State Governments and the professional associations’. These standards were last revised in 2013. The 2013 standards outline capabilities that all mental health professionals should achieve in their work. They are intended to complement discipline-specific practice standards or competencies of the professions of: nursing, occupational therapy, psychiatry, psychology and social work. These standards are not a legal requirement, but they provide practical benchmarks and describe the knowledge, skills and attitudes required by workers in the mental health sector. Full copies of the standards are available on the internet: National Practice Standards for the Mental Health Workforce 2013: http://www.health.gov.au/internet/publications/publishing.nsf/Content/mental-pubs-nwkstd13-toc Resource Book Foundations of Peer Work – Part 2 38 © 2015 National Mental Health Commission Standard 2 relates specifically to consumer and carer participation. It identifies the following skills and activities: Standard 2: Working with people, families and carers in recovery focused ways In working with people and their families and support networks, mental health practitioners support people to become decision-makers in their own care, implementing the principles of recovery-oriented mental health practice. The mental health practitioner: 1. Works with people and their families and carers as partners 2. Engages in practice that reflects that the person exists within a context of family, significant people, community and culture 3. Applies the principles of self-determination and supports people and their family members and carers in being decision-makers in their recovery processes 4. Expresses hope and optimism, applying a strengths-based approach and valuing the person’s and their family’s/carer’s knowledge and perspectives 5. Demonstrates respect for family members’ and carers’ roles, acknowledging diverse family capacities, experiences, value systems and beliefs 6. Identifies the impact of the person’s mental health needs on their family and carers, including partners, significant others, children, parents and siblings, and supports referrals and interventions to help meet these needs 7. Engages with families and carers in treatment, care and decision making to the extent possible and supported by the person 8. Uses language that demonstrates respect for the person, family and carers at all times 9. Facilitates family and carer involvement, addressing barriers and supporting connections with the person 10. Identifies the needs of family members and carers in circumstances where the person has chosen to exclude their involvement in his/her treatment and care and supports interventions to meet these needs 11. Works with family and carers in such a way that they feel heard, informed to the extent possible and supported 12. Assists people and families and carers to contact appropriate peer advocates and consultants 13. Encourages feedback on service delivery, policy and planning from people and their families and carers 14. Facilitates social inclusion, social connectedness and engagement of people in activities that offer meaning, satisfaction and purpose to the person, such as recreation, education and vocation 15. Provides information in a format that is accessible to educate people, family members and carers on mental health issues and conditions, physical and co-morbid health conditions, mental health services, other support services and self-help organisations Resource Book Foundations of Peer Work – Part 2 39 © 2015 National Mental Health Commission State/territory plans, charters and frameworks States and territories also have plans, charters and/or frameworks in relation to mental health care and service/funding provision these are regularly updated and reviewed. National Standards for Mental Health Services (2010) The National Standards for Mental Health Services were released in September 2010. “While the practice standards relate to the skills, knowledge and attitudes expected of those who work in mental health services, the National Standards for Mental Health Services (2010) (service standards) apply to the setting in which mental health care is provided. The revised service standards cover 10 areas outlined in the table below, and also include recovery principles.” The third standard is a specific standard on consumer and carer participation. This standard (Standard 3) sets the expectation that mental health services “actively involve consumers and carers in planning, service delivery, evaluation and quality programs” (Australian Government. National Standards for Mental Health Services 2010. p11). Services are also expected to involve consumers and carers in the implementation and maintenance of the standards. How could peer workers contribute to the outcomes for standard 3? The 10th standard relates to the delivery of care, and includes a recovery standard. The two sets of standards are intended to work together to support the ongoing development and implementation of good practices and to guide continuous quality improvement in mental health services. The service standards should ensure systems and processes are in place at an organisational level to provide optimum support for people using the service and their families. The practice standards should ensure mental health professionals’ work practices demonstrate person-centred approaches and reflect nationally agreed protocols and requirements. As such, the two sets of standards are intended to provide a foundation for the sector.” p6 The first national standards for mental health services were originally developed in 1996. The revised standards (2010) place greater emphasis on recovery and apply to a diverse range of mental health services – public, private and non-government organisations – and where mental health care is delivered, such as drug and alcohol services, community-based mental health services and primary care services. There are three guideline documents that accompany the standards. These guidelines explain how to implement the standards, and give clear directions for mental health services on how the standards apply to different services. One of the guides targets non-government community services. The other 2 are for public mental health services and private hospitals and private office based mental health practices Resource Book Foundations of Peer Work – Part 2 40 © 2015 National Mental Health Commission Comparison of the national workforce and the service standards The workforce standards and the service standards have been compared to show where and how they cover similar topics. National workforce practice standards 2013 National standards for mental health services 2010 1 Rights and responsibilities Standard 1: Rights, responsibilities, safety and privacy 2. Safety 3. Consumer and carer participation Standard 2: Working with people, families and carers in recovery-focused ways 6. Consumers 7. Carers Standard 3: Meeting diverse needs Standard 4: Working with Aboriginal and Torres Strait Islander people, families and communities 4. Diversity responsiveness Standard 5: Access 10. Delivery of care (supporting recovery, access, entry, assessment and review, treatment and support, exit and re-entry) Standard 6: Individual planning Standard 7: Treatment and support Standard 8 Transitions in care Standard 9: Integration and partnership 9. Integration Standard 10: Quality improvement 8. Governance, leadership and management Standard 11: Communication and information management Standard 12: Health promotion and prevention 5. Promotion and prevention Standard 13: Ethical practice and professional development responsibilities http://www.health.gov.au/internet/main/publishing.nsf/Content/5D7909E82304E6D2CA257C 430004E877/$File/wkstd13.pdf Full copies of the standards are available on the internet National Standards for Mental Health Services (2010): http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-pubs-n-servst10 Resource Book Foundations of Peer Work – Part 2 41 © 2015 National Mental Health Commission Principles of recovery oriented mental health practice Extract from: the National practice standards 2013 p6. The National Standards for Mental Health Services (2010) principles of recovery-oriented mental health practice state that: From the perspective of the individual with mental illness, recovery means gaining and retaining hope, understanding of ones abilities and disabilities, engagement in an active life, personal autonomy, social identity, meaning and purpose in life, and a positive sense of self. It is important to remember that recovery is not synonymous with cure. Recovery refers to both internal conditions experienced by persons who describe themselves as being in recovery— hope, healing, empowerment and connection—and external conditions that facilitate recovery—implementation of human rights, a positive culture of healing, and recovery-oriented services. (Jacobson and Greenley, 2001 p. 482) The purpose of principles of recovery oriented mental health practice is to ensure that mental health services are being delivered in a way that supports the recovery of mental health consumers. (Commonwealth of Australia, 2010 p. 42) 1. Uniqueness of the individual Recovery oriented mental health practice: recognises that recovery is not necessarily about cure but is about having opportunities for choices and living a meaningful, satisfying and purposeful life, and being a valued member of the community accepts that recovery outcomes are personal and unique for each individual and go beyond an exclusive health focus to include an emphasis on social inclusion and quality of life empowers individuals so they recognise that they are at the centre of the care they receive. 2. Real choices Recovery oriented mental health practice: supports and empowers individuals to make their own choices about how they want to lead their lives and acknowledges choices need to be meaningful and creatively explored supports individuals to build on their strengths and take as much responsibility for their lives as they can at any given time ensures that there is a balance between duty of care and support for individuals to take positive risks and make the most of new opportunities. Resource Book Foundations of Peer Work – Part 2 42 © 2015 National Mental Health Commission 3. Attitudes and rights Recovery oriented mental health practice: involves listening to, learning from and acting upon communications from the individual and their carers about what is important to each individual promotes and protects individual’s legal, citizenship and human rights supports individuals to maintain and develop social, recreational, occupational and vocational activities which are meaningful to the individual instils hope in an individual’s future and ability to live a meaningful life. 4. Dignity and respect Recovery oriented mental health practice: consists of being courteous, respectful and honest in all interactions involves sensitivity and respect for each individual, particularly for their values, beliefs and culture challenges discrimination and stigma wherever it exists within our own services or the broader community. 5. Partnership and communication Recovery oriented mental health practice: acknowledges each individual is an expert on their own life and that recovery involves working in partnership with individuals and their carers to provide support in a way that makes sense to them values the importance of sharing relevant information and the need to communicate clearly to enable effective engagement involves working in positive and realistic ways with individuals and their carers to help them realise their own hopes, goals and aspirations. 6. Evaluating recovery Recovery oriented mental health practice: ensures and enables continuous evaluation of recovery based practice at several levels individuals and their carers can track their own progress services demonstrate that they use the individual’s experiences of care to inform quality improvement activities the mental health system reports on key outcomes that indicate recovery including (but not limited to) housing, employment, education and social and family relationships as well as health and well being measures. These Recovery Principles have been adapted from the Hertfordshire Partnership NHS Foundation Trust Recovery Principles in the UK. In addition to the 2 key mental health standards documents it is useful to be familiar with the disability standards. Resource Book Foundations of Peer Work – Part 2 43 © 2015 National Mental Health Commission NSW Disability Services Standards (NSW Standards) (guided by the Disability Services Act 1993 (NSW)) The disability service standards were recently revised (2014) to better support NGO’s introduce more person centred delivery. The aim is to provide a quality framework and improve service delivery to people with a disability, their families and carers. While psychiatric disability is included in the definition, it is not a recovery term is one that many people don’t want to use. However services that do provide disability programs accessed by people with mental health issues the standards must apply. The previous 10 standards have been streamlined to 6 standards: 1. “Service Access - focus on the importance of readily available information that is adapted to individual need and outlines the features and capacity of services so that each person knows how to access a service and is treated fairly by service providers 2. Individual Outcomes - shift to person-centred approaches, providing information and support that reflects a person’s individual and cultural needs - that service providers support each person to exercise choice and control over the design and delivery of their services 3. Participation and Inclusion - focus on people with a disability being valued members of their communities through active and meaningful participation - Service providers develop connections with the community to promote opportunities for active and meaningful participation 4. Feedback and Complaints - each person can expect a complaint to be dealt with in a manner that reflects their individual and cultural needs, and have support and the opportunity to participate fully in the process of complaints’ resolution 5. Service Management - each person receives quality services that are well managed and delivered by staff with the right values, attitudes, goals and experience. - each person receives quality services which are effectively and efficiently governed. 6. Rights - focus on people with a disability receiving services that promote and respect their legal and human rights and which enable them to exercise choice and participation like everyone in the community Family Relationships National and NSW approach to address concepts across all standards (Incorporated across” (ADHC 2014, p2) These standards are a very powerful tool for supporting consumers and carers in ensuring their right to service delivery that is respectful, takes account of individual difference, is accountable and is non-discriminatory. Workers should ensure that they and the consumers and carers they work with are aware of these standards and make the best use of them in ensuring that services are delivered in accordance with the Disability Services Act. Some other useful documents Mental Health Rights Manual A Consumer Guide to the Legal and Human Rights of People with Mental Illness in NSW (3rd Edition) 2011 This Mental Health Rights Manual (the Manual) is a resource for consumers involved in the NSW mental health system as well as carers of those consumers. The aim is to provide a guide to key areas of the law and on how to get help. It is written in plain English, free of legal and/or medical jargon. It is also a useful tool for carers and workers across the mental health and community sector. Resource Book Foundations of Peer Work – Part 2 44 © 2015 National Mental Health Commission Written in plain language, the manual is an invaluable readily accessible resource, bringing together vital information crucial to anyone having to navigate the mental health system, enabling them to become acquainted with their rights, the legal and service system, and access support and guidance. It is available for free on the MHCC website (www.mhcc.org.au). Disclaimer: The legal and other information contained in this Section is up to date to 13 September 2010. This Manual only refers to the law and practices applying to the Australian state of New South Wales (NSW). MHCC does not guarantee the accuracy nor is responsible for the content or the currency of the content of external documents and websites linked to this Manual. The Framework for Mental Health in Multicultural Australia: Towards culturally inclusive service delivery “The Framework for Mental Health in Multicultural Australia: Towards culturally inclusive service delivery The Framework has been developed to help organisations and individual workers to: Evaluate their cultural responsiveness Enhance their delivery of services for CALD communities. The Framework is mapped against current practice, policies and plans. Its implementation will not only assist services to fulfil their existing safety, quality and accreditation requirements, but also offers an ongoing process of assessment and development.” http://framework.mhima.org.au/framework/index.htm The Gayaa Dhuwi (Proud Spirit) Declaration “Aboriginal and Torres Strait Islander Leadership in Mental Health – together we are stronger” The declaration considers Aboriginal and Torres Strait Islander leadership across all parts of the Australian mental health system to achieve the highest attainable standard of mental health and suicide prevention outcomes for Aboriginal and Torres Strait Islander peoples It is a companion declaration to the Wharerātā Declaration for use by Aboriginal and Torres Strait Islander peoples. http://natsilmh.org.au/sites/default/files/gayaa_dhuwi_declaration_A4.pdf Resource Book Foundations of Peer Work – Part 2 45 © 2015 National Mental Health Commission Duty of care Understanding duty of care is important. Duty of care is the duty to take reasonable care, so that other people are not harmed. We all have duty of care. For example, staff members have a duty of care to consumers and carers, to each other and to the community; and employers have a duty of care to staff members, to consumers, to carers and to the community. Duty of care overlaps with work health and safety in this regard. Duty of care comes from the legal concept of ‘negligence’, which is part of common law. Common law is when judges and courts interpret the law by deciding cases on the basis of how similar cases have been decided in the past (this is the principle of ‘precedent’). This means that it can often be difficult to find the common law that applies to a situation, as it is not based on an Act of Parliament, but on decisions that judges have made about what is considered appropriate at a particular time and under particular circumstances. Negligence There are three important things that a judge will look for when deciding if someone (e.g. you, or your employer) has been negligent: 1. Duty of care is the obligation to take reasonable care to prevent injury arising from an act or omission. If someone is relying on you to be careful, and that reliance is reasonable under the circumstances, then it will generally be that you owe that person a duty of care. 2. Breach is a failure to take reasonable care. A breach has occurred when it can be proven that the person who has the duty of care has not provided the appropriate standard of care. In deciding whether this is the case, we consider the following questions. o What standard of care would be expected of any other reasonable person or worker who performs the same duties? o Is the risk of this type of harm foreseeable? o Is the risk significant? o Would a reasonable person have taken precautions? Consider: the probability that the harm would occur if care was not taken the likely seriousness of that harm the burden of taking precautions to avoid the harm the social utility of the risk-creating activity. 3. Injury, loss or harm are the results caused by the breach to the person to whom the duty of care was owed. Duty of care and negligence laws exist as a way to compensate injured people, including providing funds for expenses, such as medical costs. An injured person gains compensation by taking a person or organisation to court to prove that they were injured as a result of a breach of the duty of care by the other person or organisation. Resource Book Foundations of Peer Work – Part 2 46 © 2015 National Mental Health Commission Dignity of risk ‘Dignity of risk’ is a term that comes from the disability movement. It refers to a person’s right to make informed choices and to take risks in order to fully experience life, take advantage of opportunities and learn from mistakes. Patricia Deegan (1996) highlights the dignity of risk and the right for consumers to fail. She believes that we should not pathologise the poor choices that people with ‘mental illness’ might make. Poor choices, mistaken judgements, lack of insight, repeated mistakes and selfdefeating choices are not necessarily reflections of ‘mental illness’. They are the ways in which most of us grow and learn! Don’t automatically assume that a consumer’s poor choice is reflective of their ‘mental illness’. Openly challenge your co-workers who jump to such conclusions. Practise ‘normalising’ the choices a consumer is making. The concept of ‘dignity of risk’ is associated with duty of care. As workers, our concern to fulfil our duty of care to consumers or carers should not shield them from all possible risks, especially if this might actually prevent them from enjoying a full and rich life. Dignity of risk is about ‘allowing beings to manifest themselves, with as little interference and the most cooperation possible’ (Kuhn-White, 1992 p. 5). Dignity of risk refers to a person’s right to experience all that life has to offer, even though taking part in an activity may entail some element of risk. To put it simply, dignity of risk means letting people do their own thing, make their own choices and take some reasonable risks without constant worker or organisational interference. It doesn’t mean that workers ignore their duty of care responsibilities. A worker might, for example, provide the person with information about the choices they are making and the risks they are taking. There will still be times when the worker has to take action to protect the person, so that they are not negligent in their duty of care. Workers should always be actively working to encourage freedom of choice and autonomy. ‘Mental illness’ is often viewed differently from physical ill-health. Therefore, workers might view a consumer of mental health services taking risks differently from a person with a heart condition smoking, for example, and assume a more directive or autocratic approach. These are ethical considerations that we all need to reflect on in our work. We also need to acknowledge our own cultural context and belief systems in our work practices. Resource Book Foundations of Peer Work – Part 2 47 © 2015 National Mental Health Commission Balancing dignity of risk with duty of care Dignity of risk Duty of care Person’s right to make informed choices and take risks Legal duty to take reasonable care to protect person from harm Balancing Activity ‘Dignity of risk’ and ‘duty of care’ are common terms within mental health services. The Principles of Recovery-oriented Mental Health Practice state that: recovery-oriented mental health practice ensures that there is a balance between duty of care and support for individuals to take positive risks and make the most of new opportunities. Think about a situation you have been in with a person where you experienced tension between dignity of risk and duty of care. Write down the following components of your experience. Duty of care: Dignity of risk: How did you balance them? Resource Book Foundations of Peer Work – Part 2 48 © 2015 National Mental Health Commission Would you do it differently now? In your own words, why do you need to understand duty of care in your work? In your own words, why do you need to understand dignity of risk in your work? Resource Book Foundations of Peer Work – Part 2 49 © 2015 National Mental Health Commission Activity Choose one of the scenarios, read it and answer the following questions. Jenny Thirty-three-year-old Jenny has a diagnosis of bipolar disorder and a mild developmental delay. She lives in a four-bedroom home with three other women who also have mental health problems. As a peer worker your role is to provide support and assistance to the group of women seven days a week. Jenny has recently started spending time with a new male friend and is extremely happy about this. However, Jenny’s housemates have begun to complain to you about the amount of time her boyfriend is spending at the house and that they don’t feel safe around him. Today, one of the women has telephoned and told you that Jenny’s new boyfriend has been approaching her for sex in return for drugs and/or money. More recently, he has threatened to damage the house and hurt the women living there if they say anything about this to Jenny or anyone else. You arrive at the house to provide support and realise that Jenny’s boyfriend is there. What privacy issues are raised? What are the possible risks and safety options? What is your duty of care? Who do you talk to, and what do you say? What do you do? Resource Book Foundations of Peer Work – Part 2 50 © 2015 National Mental Health Commission John John is a 48-year-old man living with a diagnosis of schizophrenia and alcohol dependence. He often attends the day program where you work to socialise and eat an affordable lunch. More often than not, John arrives drunk and harasses the other consumers for money and cigarettes. There have been many discussions with John about his behaviour but he insists that alcohol is legal and he’s allowed to drink if he wants to. Recently, John has begun to fall over when drunk, sometimes causing injuries to himself. There are steep stairs at the day program venue and yesterday, as John fell over, you tried to grab him and injured your shoulder. He fell onto another consumer who was also injured. John lives with his parents, and a friend of his who also attends the day centre has told them what has been happening. They have called you to request an urgent meeting with you to discuss the situation. John has consistently told you that he does not want his parents involved in the services that he receives. What privacy issues are raised? What can you tell his parents? What can be discussed? What do you need to say to John? What are the possible risks and safety options? What is your duty of care? Resource Book Foundations of Peer Work – Part 2 51 © 2015 National Mental Health Commission Gweneth Gweneth has been the official carer for her son Brian for 10 years – ever since he was diagnosed with psychosis. She and Brain are very close and generally get on well. Lately, however, she has been feeling worn out and very stressed. Brian has not been sleeping, and that has affected her sleep as well. He has also been spending time with people who make her uncomfortable. Last night, four of them came around to the house and were drinking until late. One of them threatened her and swore at her. She is feeling frightened and has rung you for help. She doesn’t want to ban them from the house or upset Brian, and she won’t go to the police. You arrive at the house with a new peer worker for your scheduled weekly visit. When you arrive for the visit, three of them (including the one who allegedly threatened her) are there. Gweneth is distressed and wants you to come inside so she feels safe. What is your duty of care? What do you need to say to Gweneth? What are the possible risks and safety options? What will you say and do? Resource Book Foundations of Peer Work – Part 2 52 © 2015 National Mental Health Commission Ethical practice What are ethics? Ethics is about beliefs, and the way we think and behave. It is about the rules of behaviour and human duty, morals and values: that is, understanding right and wrong, justice and injustice, good and bad, and doing the right thing. (National Health and Medical Research Council, 2006, ‘Keeping research on track: A guide for Aboriginal and Torres Strait Islander peoples about health research ethics’, p. 4). Ethics are often described as the set of moral principles that guide our behaviour and decision-making, helping us to answer the question, ‘What should I do in this situation?’ Ethics help us to identify right from wrong, and good behaviour from bad. But often it is not that easy, as there can be good and bad on both sides of a situation. A person can be left trying to choose the better of two options that are really about competing values or priorities. We call this an ethical dilemma, and it requires ethical decision-making. Key points about ethics Our ethical beliefs and attitudes are extremely important personally and interpersonally. Values are formed and absorbed by us all as we develop from childhood and through adulthood. Beliefs and values have a cultural context and are complex; therefore, ethical constructs may be politically and religiously loaded. At the heart of ethics are understandings about how we should act in our world and how we should treat other people. Ethics are beliefs, moral values and understandings about right and wrong, held by an individual, group, culture or profession. Many professional groups have codes of ethical practice to guide their behaviour, including psychiatrists, nurses, psychologists, social workers, counsellors and psychotherapists. Activity Why do we need to know about ethics? Resource Book Foundations of Peer Work – Part 2 53 © 2015 National Mental Health Commission Ethics, codes of practice and codes of conduct A code of ethics defines the fundamental principles (like respect, integrity, trust, openness ) that should guide worker’s approach. It provides guidance in terms of ethical and moral responsibility. It is more general than a code of conduct and describes the principles and values of “what” is important and should be considered in making a decision. A code of conduct defines the required standards of behaviour and actions of a worker. It clearly describes expectations so people know ‘how to’ act. There are a range of factors that you need to be aware of in order to make sure you take an ethical approach to the working relationships you have with people. These documents according to the NSW Council of Social Service outline the relevant principles or standards to guide worker’s performance. This is important as mental health workers are often working with the most vulnerable, disadvantaged and marginalised people. They also help to establish effective, open and accountable organisations. Codes of Conduct A code of conduct should outline specific expected behaviour and actions in certain situations. They should align with and reflect the Code of Ethics and organisational vision, mission, values, policies and procedures and relevant legislation. While codes of practice are written for specific professions or job roles, codes of conduct refer more to actions, behaviours and approaches. It must be clear and unambiguous indicating required outcomes or rules to be followed. While they are more specific than codes of ethic they are rarely broad enough to cover every circumstance but do provide general direction on many matters. If your situation is not covered then discuss any concerns with your supervisor or seek clarification from another appropriate person. Topics typically addressed by codes of conduct include: Drug usage Standards of work Confidentiality and privacy Personal gifts and benefits Discrimination Conflict of interest Complying with laws and regulations Personal use of the organisation’s resources Bullying and harassment Responding to illegal or questionable activity Resource Book Foundations of Peer Work – Part 2 54 © 2015 National Mental Health Commission General ethical principles In the section on lived experience, we discussed the five ethical principles. However, they are included again here so you can easily refer to them in the following activities. Kitchener (1984) identified five principles as the foundations of ethical decision-making. Consider these principles whenever you are trying to determine how to respond in a certain situation. They may not provide all the answers, but they are a good place to start. In addition the Josephson Institute of Ethics after considerable community consultation published the 6 pillars of character. This is a list of characteristics an ethical person would display. It has been included in the following table with Kitchener’s principles. Kitchener (1984) five ethical decision-making principles "Six Pillars of Character" developed by The Josephson Institute of Ethics Fidelity: be trustworthy a) Trustworthiness: honesty, integrity, promise-keeping, loyalty Autonomy: respect choice b) Respect: autonomy, privacy, dignity, courtesy, tolerance, acceptance Beneficence: do good d) Caring: compassion, consideration, giving, sharing, kindness, loving Justice: be fair e) Justice and fairness: procedural fairness, impartiality, consistency, equity, equality, due process Non-maleficence: do no harm c) Responsibility: accountability, pursuit of excellence f) Civic virtue and citizenship: law abiding, community service, protection of environment5 The very nature and structure of ethics is determined by the particularities of a community’s history and convictions (Singer, 1993, p. 1). Some Useful References Association of Child Welfare agencies and Australian Community Workers Association (2013) Code of Ethics http://www.acwa.org.au/about/code-of-ethics Family and Community Services (FACS) (2013) Code of Ethical Conduct. Accessed from www.facs.nsw.gov.au/coec Gentile, M. (2010) Managing Yourself: Keeping Your Colleagues Honest; Change Management; Harvard Business Review., March 2010 Issue. Accessed from: https://hbr.org/2010/03/managing-yourself-keeping-your-colleagues-honest McNamara C ( ) Complete Guide to Ethics Management: An Ethics Toolkit for Managers. Accessed from http://managementhelp.org/businessethics/ethics-guide.htm on the Web NCOSS (2012) Council of Social Service of NSW (NCOSS) Management Support Unit Information Sheet 31: Ethical Frameworks: Codes of Ethics and Conduct Resource Book Foundations of Peer Work – Part 2 55 © 2015 National Mental Health Commission Peer work ethical principles Australia does not have a current nationally agreed set of ethical principles. However, several have been developed internationally. Three have been included here for you to consider. White (2007) developed ‘Ethical Guidelines for the Delivery of Peer-based Recovery Support Services’. He suggested that there were 18 ethical principles for peer support, as listed below. Ethical principle Explanation 1. Gratitude and service Carry hope to individuals, families and communities 2. Recovery All service hinges on personal recovery 3. Use of self Know yourself; be the face of recovery; tell your story; know when to use your story 4. Capability Improve yourself; give your best 5. Honesty Tell the truth; separate fact from opinion; when wrong, admit it 6. Authenticity of voice Accurately represent your recovery experience and the role from which you are speaking 7. Credibility Walk what you talk 8. Fidelity Keep your promises 9. Humility Work within the limitations of your experience and role 10. Loyalty Don’t give up; offer multiple chances 11. Hope Offer self and others as living proof; focus on the positive – strengths, assets and possibilities rather than problems and pathology 12. Dignity and respect Express compassion; accept imperfection; honour each person’s potential 13. Tolerance ‘The roads to recovery are many’ (Wilson, 1944); learn about diverse pathways and styles of recovery 14. Autonomy and choice Recovery is voluntary; it must be chosen; enhance choices and choice making 15. Discretion Respect privacy; don’t gossip 16. Protection Do no harm; do not exploit; protect yourself; protect others; avoid conflicts of interest 17. Advocacy Challenge injustice; be a voice for the voiceless; empower others to speak 18. Stewardship Use resources wisely Resource Book Foundations of Peer Work – Part 2 56 © 2015 National Mental Health Commission CODE OF ETHICS For Georgia Certified Peer Specialist Project www.gacps.org/CodeOfEthics.html The following principles will guide Certified Peer Specialists in their various roles, relationships and levels of responsibility in which they function professionally. The primary responsibility of Certified Peer Specialists is to help individuals achieve their own needs, wants, and goals. Certified Peer Specialists will be guided by the principle of self-determination for all. Certified Peer Specialists will maintain high standards of personal conduct. Certified Peer Specialists will also conduct themselves in a manner that fosters their own recovery. Certified Peer Specialists will openly share with consumers and colleagues their recovery stories from mental illness and will likewise be able to identify and describe the supports that promote their recovery. Certified Peer Specialists will, at all times, respect the rights and dignity of those they serve. Certified Peer Specialists will never intimidate, threaten, harass, use undue influence, physical force or verbal abuse, or make unwarranted promises of benefits to the individuals they serve. Certified Peer Specialists will not practice, condone, facilitate or collaborate in any form of discrimination on the basis of ethnicity, race, sex, sexual orientation, age, religion, national origin, marital status, political belief, mental or physical disability, or any other preference or personal characteristic, condition or state. Certified Peer Specialists will advocate for those they serve that they may make their own decisions in all matters when dealing with other professionals. Certified Peer Specialists will respect the privacy and confidentiality of those they serve. Certified Peer Specialists will advocate for the full integration of individuals into the communities of their choice and will promote the inherent value of these individuals to those communities. Certified Peer Specialists will be directed by the knowledge that all individuals have the right to live in the least restrictive and least intrusive environment. Certified Peer Specialists will not enter into dual relationships or commitments that conflict with the interests of those they serve. Certified Peer Specialists will never engage in sexual/intimate activities with the consumers they serve. Certified Peer Specialists will not abuse substances under any circumstance. Certified Peers Specialists will keep current with emerging knowledge relevant to recovery, and openly share this knowledge with their colleagues. Certified Peer Specialists will not accept gifts of significant value from those they serve Resource Book Foundations of Peer Work – Part 2 57 © 2015 National Mental Health Commission Values and ethics of mental health recovery and peer support Mary Ellen Copeland and Sheryl Mead (2004) identified the following 15 values and ethics for peer support work. 1. There is hope. A commonly held belief has been that people who experience certain kinds of ‘symptoms’ can never get well, and will probably worsen over time. However, it is now known that people can and do get well and go on to do things that they want to do with their lives (Copeland; 1991; Ralph & Corrigan, 2005). 2. Self-determination, personal responsibility, empowerment and self-advocacy are vital to recovery (Copeland, 1991). 3. Treating each other as equals with dignity, compassion, mutual respect and unconditional high regard is essential. 4. We must afford all people unconditional acceptance as they are, as unique, special individuals, including acceptance of diversity with relation to cultural, ethnic, religious, racial, gender, age, disability and sexual preference issues. 5. There are ‘no limits’ to recovery. 6. Recovery and peer support are about choices and options, not final answers. 7. Participation in all activities is voluntary. 8. Each person is the expert on himself or herself. 9. Clinical, medical and diagnostic language are to be avoided. 10. The focus is on working together to increase mutual understanding, knowledge and wellness. 11. Peer support and recovery initiatives are adaptable to anyone’s personal philosophy. 12. The emphasis is on strategies that are simple and safe for anyone and away from strategies that may have harmful effects. 13. Responses to difficult situations need to be ‘normalised’. 14. The focus must be on strengths, and away from perceived deficits (Rapp, 1998). 15. The body of knowledge is always expanding and is infinite. Activity Which of these three lists most closely fits for your work role and organisation? (If your service does not have a list which ones do you think are most important to your organisation?) Resource Book Foundations of Peer Work – Part 2 58 © 2015 National Mental Health Commission Workplace Dilemmas An ethical dilemma is a complex situation that involves a mental conflict between moral principles or competing values. Two or more options clash and whichever is selected generally other values can’t be met. Some common excuses for avoiding or not making a hard ethical decision: It’s standard practice –this is how we do it here No one is going to know. It’s not a big deal – discounting or minimising the consequences It’s not my responsibility- ignoring things or failing to speak up even when you now it is wrong I want to be loyal and not rock the boat We don’t have the time, dollars or staff to do this differently (loosely adapted from Gentile 2010) Closing your eyes or ignoring an ethical dilemma is insufficient and unethical. For as we know… “The only thing necessary for the triumph of evil is that good men should do nothing.” -Edmund Burke Consulting a Supervisor – about workplace dilemma When neither the code of conduct nor code of ethics clarifies a workplace ethical dilemma then it is important to consult your supervisor and organisational policies. Be open and honest and seek assistance early. If during the process you identify information or a better process that could be helpful to other workers you should also report that to your manager What are some of the strategies that you could suggest to your supervisor to improve legal compliance or ethical practice? What other suggestions can you offer? Training for workers; Forms to declare conflicts of interest, A notice board on recent changes to legislation, Elected representatives to sit on policy review groups Resource Book Foundations of Peer Work – Part 2 59 © 2015 National Mental Health Commission Ethical decision-making Sometimes situations arise where there are at least two sets of values involved, and you are being asked to decide which is the more important. As a peer worker you want to work collaboratively with the consumer or carer to safeguard their rights; however, sometimes the best way of doing that is not clear. Ethical dilemmas can be seen in terms of: competing values – for example, working with a consumer or carer who is abusing drugs raises their right to self-determination versus the value of protecting human life and health multiple sets of competing values – the consumer’s priorities may be different from those of their family or carers; for example, a consumer’s parents urge you to request a community treatment order because they believe you can breach their son if he goes out socially in situations where he abuses alcohol values dilemma – where the worker’s values conflict with those of a carer or consumer; for example, a carer makes decisions based on religious beliefs that are different from yours. Expert support for ethical decision-making If you have an ethical dilemma, or would like some assistance in making a good decision, talk to you supervisor or contact the St James Ethics Centre’s free, confidential and nonjudgemental ‘Ethi-Call’ ethics counselling service on 1800 672 303 to speak with one of their trained ethics counsellors. Ethical decision-making models Model 1 This model has been adapted from the NCOSS (2012) ‘Ethical Decision Making Information Sheet’ (http://ncoss.org.au/projects/msu/downloads/resources/information%20sheets/13ethical-decision-making-2012.pdf) and the St James Ethics Centre webpage ‘What is ethics’ (www.ethics.org.au/content/ethical-decision-making). The model includes the following steps. 1. Stop and think 2. Review 3. Make a list of options 4. Consult 5. Choose a course of action 6. Implement your decision 7. Evaluate your decision 1. Stop and think 2. Review 3. Make a list of options 4. Consult 5. Choose a course of action 6. Implement your decision 7. Evaluate your decision Resource Book Foundations of Peer Work – Part 2 60 © 2015 National Mental Health Commission Action Stop the momentum of events long enough to permit calm analysis. Effective decision-making is more likely to occur when the mind is alert and free from pressure. Questions Is it an ethical issue (as opposed to a legal or technical decision, practice issue, organisational issue, complaint, etc.)? Is this my/our decision? Action Questions What ethical guidelines are relevant to this situation? What is the key ethical issue? What values are involved? What values are in conflict? Action List the options and develop actions. Questions What are the most important principles? What are the risk/benefits if these principles are/are not acted on? Action Discuss and review with colleagues, supervisors and other stakeholders. Compare with similar cases where a reasonable precedent has been established. Questions Have I considered all relevant perspectives? Have other options been suggested? Action Reasoning, analysing and balancing information from a range of sources are important in values-based practice and ethical decision-making. Assess what course of action will produce the most good and the least harm. Review the options taking, into account respect for the rights and dignity of all stakeholders. Questions Reflection You might also want to reflect on the following. Would I be happy for this decision to be on the public record, and for my actions to be open to public scrutiny? How would I feel if someone did this to me? What would happen if everybody did this? How would I feel if my actions were to affect my family (child, partner or parents)? How would the proposed course of action affect my character and the reputation of my organisation? Have I considered that the ends may not justify the means? 1. Stop and think 2. Review 3. Make a list of options 4. Consult 5. Choose a course of action 6. Implement your decision 7. Evaluate your decision Gather information about values and facts – this is critical to the process. Workers need to be aware of the values and the diversity of those values. Review the available, relevant information. Consider both your personal and the organisation’s values and assumptions. Is it legal? Is it consistent with my role and boundaries? Does it meet the ethical principles? Is it consistent with human rights and other relevant rights? Whose values and preferences does it address? Whose values and preferences will not be met? Is it consistent with the organisation’s policy and procedures? Will I feel the same about this situation if I think about it a little longer? If this were common knowledge, would I behave differently? Am I comfortable with this decision? Questions Did the decision address the needs and concerns of all stakeholders? If it happened again, would I do anything differently? Resource Book Foundations of Peer Work – Part 2 61 © 2015 National Mental Health Commission Model 2 This model was developed by William White in ‘Ethical Guidelines for the Delivery of Peerbased Recovery Support Services’ (www.bhrm.org/recoverysupport/EthicsPaperFinal6-807.pdf). It focuses on risks; however, in ethical decision-making, considering strengths and wellbeing or thinking in terms of safety can also be useful, and more in line with recovery principles. A peer-based model of ethical decision-making A model of ethical decision-making is simply a guide to sorting through the complexity of a situation and an aid in determining the best course of action that one could take in that situation. White proposes that those providing recovery support services ask three questions to guide their decision-making. Question 1: Who has the potential to be harmed in this situation, and how great is the risk of harm? This question is answered by assessing the vulnerability of the parties listed in the table below and determining the potential and severity of injury to each. Where multiple parties are at risk of moderate or significant harm, it is best not to make the decision alone but to seek consultation with others given the potential repercussions of the situation. Significant risk of harm ( ✓ ) Vulnerable party Moderate risk of harm ( ✓ ) Minimal risk of harm ( ✓ ) Individual/family being served Recovery coach (peer worker) Service organisation Recovery support services field Image of recovery community Community at large Question 2: Are there any core recovery values that apply to this situation, and what course of action would these values suggest be taken? X Core recovery value Suggested course of action Gratitude and service Recovery Use of self Capability Honesty Authenticity of voice Credibility Fidelity Resource Book Foundations of Peer Work – Part 2 62 © 2015 National Mental Health Commission Humility Loyalty Hope Dignity and respect Tolerance Autonomy and choice Discretion Protection Advocacy Stewardship Question 3: What laws, organisational policies or ethical standards apply to this situation, and what actions would they suggest or dictate? Question 4: Where risk of injury is great to multiple parties, document: What I considered: Who I consulted: What I decided and did: The outcome of the decisions I made and actions I took: Resource Book Foundations of Peer Work – Part 2 63 © 2015 National Mental Health Commission Model 3: Strengths and Concerns Ethical Decision-Making Name of worker Position Date What is the issue that needs a decision? What are the key points? What are the ethical issues or concerns? Who will make the decision? (will it be Supported? Collaborative? Individual? Organisational? ) Names of others involved and their role Name Role Needs Values Fears What is the decision that had been made? Resource Book Foundations of Peer Work – Part 2 64 © 2015 National Mental Health Commission Type of Risk Stakeholders Safety strategy Eg Dignity of Risk re getting a job in hospitality Resource Book Foundations of Peer Work – Part 2 M L Community H Organisation Peer worker Concerns Ratings: N=None L=low M=medium H=high risk V=very high Carer, Family Friend Rating Consumer Consider both likelihood and seriousness M N 65 List possible safety strategies or considerations to keep people safe and promote ethical decision-making Make contact with AA buddy daily, meet with support worker weekly, visit GP to discuss options, try to get shifts in coffee shop not bar © 2015 National Mental Health Commission Reviewing the Ethical Basis of the Decision Recovery principles checklist Is the solution compatible? 1. Hope Yes No 2. Self-determination, empowerment, and self-advocacy Yes No 3. Power sharing and equality Yes No 4. Fosters open and mutual understanding and trust Yes No 5. Mutual respect and dignity Yes No 6. Empathic, warm and compassionate Yes No 7. Supports wellness and recovery of all parties Yes No 8. Individual and cultural acceptance Yes No 9. Values uniqueness and individuality Yes No 10. Places no limits on recovery Yes No 11. Promotes choice and consent Yes No 12. Involves no coercion Yes No 13. Acknowledges lived experiences and Yes person as expert in own life No 14. Recovery and strengths language Yes No 15. Strengths focused and builds capacity Yes No 16. Initiatives are flexible and adaptable to specific situation Yes No 17. Upholds rights Yes No 18. Safety focussed Yes No 19. Life is dynamic and changing and can be transforming Yes No 20. Holistic view of person and life Yes No Resource Book Foundations of Peer Work – Part 2 66 Comments Reviewing Ethical Solutions: © 2015 National Mental Health Commission Ethical checklist Autonomy – “Does it respect choice and self determination?” Yes No Does it consider all key Yes No stakeholders (including extended family or community where appropriate)? Beneficence - “Will it bring good and benefit to the key people ?” Yes No Does it consider needs? Yes No Non Maleficence - “Is it not harm” Yes No Does it consider values? Yes No Fidelity - “Is it open, honest and does it maintain trust?” Yes No Does it consider fears? Yes No Justice – “Is it fair” Yes No Is the solution rights based? Yes No Is it recovery focussed? Yes No Is it trauma informed? Yes No Was the solution collaboratively developed? Yes No Is it free of bias? (not Yes No influenced by power dynamics or prejudice) Are there any conflicts of interests in managing this situation? Yes No Is it legal? Yes No Does it consider culture? Yes No Is it evidence based? Yes No Comments ©2013 Winangay Resources used with permission Resource Book Foundations of Peer Work – Part 2 67 © 2015 National Mental Health Commission Ethical dilemmas Sometimes your personal values and principles do not match the values and principles of the people you are working with or your program or organisational values. To complicate matters, ethical dilemmas rarely arise in the form of stark choices between absolute right and absolute wrong. There are usually shades of grey and competing values. These situations can cause a worker a great deal of inner conflict and concern. Common ethical dilemmas encountered within the workplace include issues relating to friendship, dual relationships, gift giving and sexual behaviour. Workers should be particularly aware of issues relating to professional boundaries. It is important that you acknowledge such situations and discuss them with your supervisor or mentor, to help you make a decision about how you can best deal with the situation. Activity In groups, consider the statements below, and apply an ethical model of decision-making. Would you or could you: Give a consumer or carer your colleague’s home telephone number? Come to work drunk or hungover? Come to work dressed in your beach clothes? Have a relationship with a carer/consumer? Take money from a carer for petrol? Get a second job that starts at 3pm? Leave a consumer’s or carer’s file in the car? Lend money to a consumer or carer? Accept a present from a carer or consumer? Recommend a relative’s or friend’s business to a consumer or to their carer? Photocopy a large number of personal documents during work, or after hours? Use the organisation’s car to run your own personal errands? Ostracise or spread rumours about a colleague? Notes: Resource Book Foundations of Peer Work – Part 2 68 © 2015 National Mental Health Commission Common ethical dilemmas for peer workers This section explores a number of common ethical dilemmas. However the list is not all inclusive and many other situations can result in dilemmas. If one arises for you refer to service policy and procedures and consult with your supervisor. Boundaries • Dual Relationships • Boundary Crossing and Violations Reporting Unethical Conduct In Others Confidentiality Common Ethical Dilemmas for Peer Workers Conflicts of Interests Resource Book Foundations of Peer Work – Part 2 and Informed Consent Mandatory Reporting 69 © 2015 National Mental Health Commission Boundaries and limits A boundary is the limit of an area or a dividing line. Boundaries are what we call the ‘limits’ we place around a relationship in order to protect ourselves and other people and to separate ourselves from others. Like everything else in peer work there are very diverse perspectives on boundaries. For some people boundaries are firm and inflexible: they are used by professionals to keep people in an ‘appropriate’ relationship to their professional role. Others feel that traditional ‘professional boundaries’ are too restrictive to the peer worker. It is thought that they might distance people and hamper the authenticity required for peer work. They don’t see traditional boundaries as appropriate in peer work, as ‘we don’t have fixed roles with each other’ (Copeland & Mead, 2013). Some prefer the term ‘limits’ rather than boundaries. Rather than arbitrary blanket boundaries applied to everyone, they prefer limits to be negotiated in each situation. Generally, boundaries and policies are needed for clarity. However, wherever possible, it is thought negotiation of limits, along with role modelling of boundaries, helps builds trust. The key is to talk honestly and check that the boundaries and limits used create ‘greater safety for both parties’. ‘Boundaries are influenced by where you are, who you are with, and the cultural backgrounds of yourself and others’ (Henze & Sweeney). Some organisations require peer workers to sign codes of conduct that include set boundaries, which they believe make for safe workplace practice. Organisations create boundaries to protect the rights of everyone who works at and uses the service. Woodhouse and Vincent (2006) recommend that steps be taken to ensure that the boundaries between peer workers and carers/consumers are ‘carefully drawn and sensitively enforced’, in order to strengthen awareness that the relationship is goal focused rather than friendship oriented. You should clarify what is expected at your workplace with regard to boundaries and how they should be communicated to workers and program participants. You will need to clarify whether these are the same for all workers, or whether your workplace acknowledges the unique differences of the role of peer workers. In some cases, especially with new peer work programs, some negotiation and advocacy at your workplace may be necessary. Regardless of whether you believe in established or negotiated boundaries, it is important to ensure that the rights (including privacy) of people accessing the service are protected. Why are boundaries important? They demonstrate respect for others They promote honesty They foster trust between individuals They maintain the safety and rights of everyone involved They clarify roles and expectations They demonstrate professional integrity (Henze & Sweeney). Resource Book Foundations of Peer Work – Part 2 70 © 2015 National Mental Health Commission Professional or Role boundaries Professional or Role boundaries between a worker and a service user commonly relate to things like physical contact (touch, hugs), giving and receiving gifts, appropriate clothing, use of language, relationships or contact outside work, language, self-disclosure and so on. Explicitly stated boundaries exist to protect consumers from misuse or abuse by workers and to establish the ‘professional nature’ of the relationship (Borys, 1994; Brown, 1994; Gabbard, 1994; Pope & Vasquez, 1991). However, when working from principles of mutuality, reciprocity and equality, some traditional professional boundaries don’t apply, or are blurred. It is important to be clear about what boundaries apply in your workplace and for your work role. Make sure you are familiar with relevant policies and procedures and with your duty statements or job description. Activity What boundaries or limits are required by peer workers in your workplace? If you are not sure whether you are crossing a boundary or limit, what should you do? How comfortable are you at negotiating boundaries or limits? Resource Book Foundations of Peer Work – Part 2 71 © 2015 National Mental Health Commission Dual (or multiple) relationships Dual (or multiple) relationships refers to any situation where multiple roles exist between a worker and a consumer. Examples of dual relationships are when a consumer is also a member of the same club, a neighbour, a team member, friend, family member, co-worker and so on. It might involve playing in a sports team, attending a party, attending church or attending the gym at the same time. In rural communities there is a smaller pool of mental health staff and therefore an increased likelihood of personal encounters and dual relationships. Dual relationships involving personal and professional involvement are highly likely and often inevitable (Brownlee, 1996). Simple interactions, such as a chat on the street or even a cup of coffee (as cited by Corsini, 2005) may well have influence over both individuals’ mindsets, thus in the counselling profession this is generally considered unacceptable. Such events can induce emotional attachment, which can be misread and damaging to counselling goals and/or outcomes. However, while not encouraged, dual relationships are sometimes acceptable in certain circumstances (such as in rural settings) and not seen as unethical. To address these difficulties, workers should confirm with their supervisor so they have clear and realistic boundaries with respect to their professional relationships with the people they work with. One of the more difficult ethical dilemmas occurs when a worker forgets that they are in a professional relationship and becomes over-involved with a person and potentially violates their rights. This becomes particularly problematic when professional relationships inevitably have to end and the worker cuts off all contact. Care also needs to be taken to ensure that role conflict or overload doesn’t occur, and that worker self-care is not compromised. Professional boundaries need to be observed to ensure that professional standards are maintained. Professional boundaries do not mean avoiding another person and their problems. Acting professionally helps you to deliver quality care to someone whom you may not like personally. Ethical issues concerning boundaries and dual relationships are among the most complex and difficult for peer workers. Other than explicit prohibitions concerning sexual contact with consumers and carers, many of the boundary situations that arise are difficult to assess ethically. What constitutes a boundary violation in one situation may be ethically acceptable in a similar situation in a different location or service. (Caldwell, 2005). It is important that standards and policy guidelines provide workers with an understanding of what constitutes boundary crossings, boundary violations and dual relationships in that particular workplace, so workers can discern not only the highest standards for ethical behaviour, but the highest standards for practice. What dual relationships do you or could you have? Resource Book Foundations of Peer Work – Part 2 72 © 2015 National Mental Health Commission Boundary crossings Boundary crossing is blurring or bending a boundary in a way that does not cause any harm or exploit another person. This might occur on a situation-to-situation basis. For example, you might cross a boundary for cultural reasons. Boundary crossings are not generally harmful to service users, and can actually be helpful. They involve some flexibility or relaxation of a ‘professional boundary’. Some approaches or programs may require them; for example, home visits mean meeting consumers outside the office. Boundary crossing may also include hugs, bartering, small gifts or more personal selfdisclosure and story sharing. Boundary crossings are not necessarily unethical, but they could be. Boundary violations Boundary violations are generally clear-cut. They are serious breaches of a person’s rights that could harm and/or exploit them, particularly a person who has less power or control in a situation. Examples include: sexual advances (including flirting), sexual relationships, inappropriately intimate relationships, verbal aggression, put-downs, physical aggression, violence, stalking, pressuring (coercion), bullying, harassment, and borrowing or lending money. Boundary violations occur when workers cross the line of decency and violate or exploit service users. They are harmful to the service user and always unethical. Boundary crossings might be defined as ‘bending’ the boundary, while boundary violations are breaking the boundary and damaging the relationship. Signs of boundary violations While in isolation none of these behaviours may indicate a boundary violation, they could be indicators of a potential problem. Indicators can include a worker: developing strong romantic feelings for a consumer/carer spending significantly more time with one consumer/carer than others having very personal conversations with a consumer/carer receiving calls at home from a consumer/carer giving and receiving gifts doing things for a consumer/carer rather than enabling them to do it for themselves believing only they can offer the right services to a consumer/carer physically touching a consumer/carer. Also be mindful of times when you feel responsible for others’ circumstances. If we are feeling compelled to respond, we may be enmeshed – that is, our boundaries may be blurred with theirs. We need to remember that the person is responsible for themselves and although they may be feeling powerless it is not for us to rescue them. This kind of boundary violation is not helpful for enabling self-determination. Resource Book Foundations of Peer Work – Part 2 73 © 2015 National Mental Health Commission Some guidelines for avoiding boundary violations Finance: No lending, borrowing or receiving of money – not only from people you support, but also from other people within the organisation. Conflicts of interest: Openly declare any conflicts of interest. A conflict of interest is when your judgement or actions might be influenced, or might be seen by others to be influenced, by personal or family interests – regardless of whether you are influenced or not. For example, recommending a family member’s business, offering work to a relative, and influencing a decision that could lead to you receiving a pay rise or bonus are all conflicts of interest. Gifts: Do not accept gifts of any significant value. The amount will depend on your organisation’s policy, but it is often limited to $20–$50. Sexual contact: No sexual or inappropriately intimate contact with people you support, including dating and other types of intimate relationships. Home and work boundaries: Work issues should not intrude on your home and family life. People you support should not visit or stay in your house. Phone contact should be within work hours and on work phones where possible. Your private contact details should remain private. Power differences In community-managed mental health work, the framework for trauma-informed recovery orientation recognises the impact of power differences in service settings. This maximises a human-rights approach, promoting self-determination, supporting autonomy and empowering consumers to learn about the nature of their condition and to take responsibility for their own recovery. Some services still mirror the power and control experienced in abusive relationships that people may have experienced in the past or in the present, making recovery difficult and escalating the risk of re-traumatisation. This is not ethical, and may require advocacy to bring needed change. Resource Book Foundations of Peer Work – Part 2 74 © 2015 National Mental Health Commission Activity - Using the list of work situations below, classify each of these by placing a tick in the column that best fits Boundaries Keeping Crossing Violating Classify each item below by placing a tick in the correct column the boundary the boundary the boundary 1. Taking a person that you are providing peer support to home to live with you 2. Providing information about rights and responsibilities 3. Chatting at your local school fireworks night 4. Writing a song or poem together 5. 6. 7. 8. 9. Agreeing to provide peer support to someone you used to date Having sex with a person you are providing peer support to Coming in to work when you are sick, because people need you Lending or borrowing money to or from a person you are providing peer support to Talking with your partner at home about your work, and mentioning the name of someone you are supporting 10. Explaining informed consent 11. Giving a welcoming hug to a person you have known for a while 12. Meeting at the beach for a weekly appointment, and going for a walk as you talk 13. Buying a lottery ticket together 14. Accepting a tin of homemade biscuits 15. Buying drugs or alcohol for a person you are providing peer support to 16. Dating a person you are providing peer support to 17. Recommending your brother-in-law’s business to a person you are providing peer support to 18. Accepting a thank you card from a person you are providing peer support to 19. Letting the air out of a co-worker’s car tyre on April Fools’ day 20. Accepting an expensive gift at Christmas from a person you are providing peer support to 21. Not maintaining confidentiality (except in the special situations mentioned earlier) 22. Sharing or using drugs and alcohol with a person you are providing peer support to 23. Lending a CD to a person you are providing peer support to 24. Giving your home phone number to a person you are providing peer support to Resource Book Foundations of Peer Work – Part 2 75 © 2015 National Mental Health Commission Boundaries Keeping Crossing Violating Classify each item below by placing a tick in the correct column the boundary the boundary the boundary 25. Providing peer support at work for a member of your own family 26. Arranging to go out together on a Saturday night as part of a group outing 27. Teaching the person you are providing peer support to how to knit while you talk 28. Giving the person a hug when they are crying or distressed 29. Working through your lunch break 30. Going on holidays together with a person you are providing peer support to 31. Accepting a homemade birthday cake from a person you are providing peer support to 32. Giving a person you are providing peer support to a lift in your personal car 33. Having a coffee together when you meet by accident at the shopping centre on the weekend 34. Buying everyone an ice cream on an outreach visit 35. Accepting a thank you bunch of flowers from a grateful person who had a bad week and valued your support 36. Sponsoring a person you are supporting for a local charity fun run 37. Asking a person you are supporting if they want to sponsor you for a local charity fun run 38. Sitting for an artistic portrait by a person you are providing peer support to 39. Taking home stationery from work 40. Publishing a sector research paper together with a person you are providing peer support to 41. Staying back late at work 42. Accepting a request to be ‘friends’ on Facebook with a person you are providing peer support to 43. Borrowing $20 from petty cash until you get paid the next day 44. Sharing some of your medication with a person you are supporting who uses the same medication because they have run out Resource Book Foundations of Peer Work – Part 2 76 © 2015 National Mental Health Commission Peer work experts have the following advice about boundaries: Better to be safe than sorry – always err on the side of caution If in doubt about the boundary, take it up the line – consult your supervisor or another relevant person Pay particular attention to the meaning for the other person Consider the context. For example, whether hugging a person who is crying or distressed is appropriate might change depending on your and their genders, sexualities, cultures, religions and so on. Confidentiality The National Mental Health Consumer & Carer Forum Position Paper on Privacy, Confidentiality & Information Sharing (2011) includes the following definitions: Privacy relates to an individual’s ability to control the extent to which their personal information, enabling identification, is available to others. Confidentiality is an obligation that restricts an agency from using or disclosing any information in a way that is contrary to the interests of the person or organisation that provided it. Privacy and confidentiality are enforced by legislation and underpinned by professional codes of conduct to protect mental health information from unauthorised disclosure. Confidentiality of both verbal and written communication requires a worker to keep people’s personal information private and secure, treating it and the person with respect. It is fundamentally about protecting a person’s privacy rights. Confidentiality is ethically and legally required and protects the rights of the consumer, carers and others. When you begin working with a new consumer or carer you need to inform them about your organisation’s confidentiality policy and the limits to confidentiality. Limits of confidentiality There are some situations that are outside the limits of confidentiality. 1. If, for example, a person is at risk of harming themselves or another person (such as through suicide, weapons, threats, violence and so on), you are required to report this by informing a supervisor or manager. 2. If you have concerns about the neglect or abuse of a child or other vulnerable person, you are also required to report this. 3. You also have a legal responsibility to report any crime you become aware of (for example, if you are made aware of a murder). 4. If a court subpoena is presented to you or your organisation, then the information requested must legally be released. You need to be clear, and the person needs to be clear, about who you will be sharing their information with. In most organisations this generally includes your supervisor and other team members. If this is true at your workplace, the person needs to understand that you will be sharing their information in this way. They cannot ask you to break your code of conduct. What is recorded or shared and how at your workplace can be clarified with your supervisor. The trick is to work within the code of conduct, boundaries and limits required by your organisation’s policies and procedures. Remember the golden rule: When in doubt check with a team leader, experienced worker or your supervisor. Resource Book Foundations of Peer Work – Part 2 77 © 2015 National Mental Health Commission Informed Consent Informed consent is an important ethical and legal responsibility for workers. Information should not be released without permission or ‘informed consent’. Informed consent means ensuring that the person really understands what they are agreeing to and any consequences (both good and bad) of their decision. When you started your employment you would have been given the policies and procedures relating to privacy and confidentiality for your organisation. If you are not aware of these, please discuss this with your supervisor. They should not only tell you what to do with regard to confidentiality, but also how to do it, as well as any forms needed before you release information. Information needs to be ethically gathered. You should always explain the purpose for collecting any information, as well as how it will be used and securely stored. You must explain the benefits and risks to the person of supplying the information, as well as the risks of not supplying it. You also need to inform them of the limits of confidentiality. It is important that the consumer or carer understands all relevant facts about any service or program you are offering, and any consequences of the decisions they are making or consent they are giving. It should be seen as a human right and an ethical requirement to ensure that people have a full understanding of their choices in disclosing information or accepting services. The worker also needs to ensure that the consumer or carer understands all the potential benefits as well as risks or adverse effects. Giving informed consent requires ‘capacity’, which refers to a person’s ability to make their own decisions. A person may lack capacity in some areas, but still be able to make other decisions. These may be small decisions, such as what to do each day, or bigger decisions like where to live or whether to have an operation or join a program. An important aspect of the consumer–worker or carer–worker relationship is the development of trust and rapport. A premise for creating trust and rapport is good communication. Good communication is based on honesty. Thus, informed consent is not only an ethical requirement for the worker, but also a condition to achieve the collective goals of the relationship. Consumers and carers are entitled to know about all matters that affect them. They deserve to know the likelihood of harm (physical or mental) that could result from treatment, the possibility of side effects, the probability of success for treatment, the limits of confidentiality and the likely duration and cost of treatment (Corsini, 2000). An effective way to ensure that people are adequately informed is to produce a standard information disclosure statement (a contract), which comprises the worker’s and the consumer’s or carer’s responsibilities and rights. A well-defined statement will provide valuable information about areas such as confidentiality, record keeping, treatment, management, relationship boundaries and more. Mandatory reporting Mandatory reporting (or duty to warn) is one of the most contentious topics in mental health. In some situations a worker has a legal obligation to make a ‘mandatory report’, such as in cases of child abuse or neglect. However, workers don’t always find that easy. Mandatory reporting often requires breaking consumer/carer confidentiality. This is usually in order to protect the consumer, the carer or the community as a whole, when a consumer/carer poses a threat to their own safety or the safety of others. Resource Book Foundations of Peer Work – Part 2 78 © 2015 National Mental Health Commission When laws and values conflict, how will you deal with this inconsistency? Most cases of information disclosure in mental health work benefit the consumer/carer, such as sharing information with colleagues or supervisors in order to obtain an alternative opinion or perspective. However, mandatory reporting requires that the best interests of the community or society are given precedence over a consumer’s or carer’s interests. A common basis for reporting is the imminence of danger for the individual (self-harm) or others (such as their partner). A worker’s values must defer to their legal obligations. To fail to report suspected abuse is to break the law and has consequences including large fines and other punishments. All workers should be regularly trained in mandatory reporting and identifying child abuse and neglect. Children in the Workplace To keep children safe from potential abuse anyone working with a child or young person under 18 years of age must undergo a Working with Children’s’ Check (WWCC) to demonstrate they have no history of abuse. This task must be undertaken by the organisation and regularly updated. Every worker in the organisation needs to be cleared before children are permitted in the workplace or a new children’s program begun. This can cause a challenge if someone you are working with arrives for an appointment with their children. As a result most organisations have a policy and may undertake WWCCs in case an issue or situation arises. For example many young carers are under 18 years. They may attend to receive services themselves or to accompanying the person they care for. Occasionally a worker may bring their own children to work for the day or a meeting. All organisations should have policies and procedures addressing children in the workplace and making it clear how to manage this. What ethical dilemmas in relation to children might you encounter in your work role and how would you resolve them? Resource Book Foundations of Peer Work – Part 2 79 © 2015 National Mental Health Commission Conflicts of interest What is a conflict of interest? [A conflict of interest is] a situation in which a person has a private or personal interest sufficient to appear to influence the objective exercise of his or her official duties (C MacDonald, 2002, Journal of Business Ethics 39:1–2, pp. 67–74). A conflict of interest occurs when a person allows a personal interest to clash with a professional duty. It is quite possible that in our work life there will be conflicts between our own personal values, those of our family and friends, our professional values and the values or policy of our organisation. When there is conflict in the above interests, it is important to recognise them and to resolve the conflict in an ethical manner. When personal values and interests are pursued during work time, or when you are using information only accessible to you as a worker for the benefit of yourself, family or friends, a conflict of interest exists. A conflict of interest refers to a conflict between someone’s private interest and their official duty. Conflicts of interest include: accepting gifts, favours or bribes for doing your work duties improper use of official or personal information (e.g. leaking tender information) giving favours or special services to friends or relatives outside employment or outside activities that interfere or conflict with your ability to perform your duties in an effective and professional manner membership of an organisation, political group or board that interferes with you professionally performing your duties money-related conflict (e.g. charging the organisation for dubious services). Identifying a conflict of interest The following questions can help you to identify whether a conflict of interest exists. Can I or my family, friends or business associates benefit directly from this situation? Would a fair and reasonable person in this same position make the same decision? Have I considered all options on an equal basis? Would my actions withstand public scrutiny? What is my duty as a professional worker? Have I discussed this with my supervisor? Resolving a conflict of interest Where you think a private interest could be influencing a decision or action of yours, it is important to immediately discuss this with your supervisor or manager. Wherever possible, ensure that your behaviour is transparent, and avoid or remove yourself from the conflict of interest. As soon as you identify a conflict of interest you should declare it to your supervisor and provide all relevant details so they can impartially resolve the situation. Resource Book Foundations of Peer Work – Part 2 80 © 2015 National Mental Health Commission Resolving a conflict of interest may include: rearranging your duties in relation to this conflict discontinuing your private association or interest continuing with your work duties having to meet certain conditions. It is important to reflect on areas that might be potential conflicts of interests. You need to consider whether your values or actions are in conflict with the organisation’s expectations or best interests. It is critical that you discuss any actual or potential conflicts of interest with your supervisor and together agree on any appropriate actions. You need to do this even if you think the situation is resolved. For example, if a family member applies for a job and you exclude yourself from the interview panel (in an attempt to resolve the potential conflict of interest), unless your supervisor understands your reason, they might misunderstand and think you are uncommitted. As a worker, it is not recommended that you have dual relationships. For example, don’t have a niece, neighbour or gym friend as an employee or service user. However, this may not always be possible, especially in rural services. If someone you know from outside your work approaches you for a service, discuss it with your supervisor first. If a family member or friend asks you to move them up a waiting list or provide them with additional services, again, tell your supervisor. Dealing with unethical conduct in others It is important if you become aware of inappropriate or unethical behaviour that you let your supervisor know. If it is your supervisor who is acting improperly or concerns you in some way then you need to go to their boss. This can be challenging and difficult if you are in a junior position. However, it is ethically important that services be transparent, as most services are using public money to operate. If the issue is serious, such as a major work health and safety breach, and the organisation does not act, then you might need to report it to another body, such as WorkCover or the Ombudsman’s office. If it is an unlawful act, then it is very important for the community and the public interest that you report it. If the situation is serious then it is important that you keep it private and do not discuss it widely or publicly. You will be protected against discrimination as a result of your report if: your claim is reasonable you have reported the matter to an appropriate person you have documented it appropriately you are not just being mischievous. Useful further reading http://legacy.communitydoor.org.au/resources/etraining/units/chccs301a/section2/section2topic08.html http://legacy.communitydoor.org.au/resources/etraining/units/chccs301a/section2/section2topic11.html Resource Book Foundations of Peer Work – Part 2 81 © 2015 National Mental Health Commission Activity In small groups, discuss the ethical dilemmas involved in at least three of the following scenarios. Scenario 1 You live in a rural town. One Saturday night you attend your cousin’s 21st. It’s a big affair in the Land Council Hall. When you arrive you realise you are the peer worker for three of the guests. You know that they don’t want it known that they are using the service. One of them approaches you when you are alone at the food table and starts to ask your advice about some trouble they’ve had this week. Your organisational policy permits you to attend community events even if consumers and carers are present however it does not allow personal contact outside of work hours. For family reasons, you can’t leave the party. Scenario 2 A consumer/carer who has depression and is currently finding life challenging tells you that one of your co-workers, who you are close to, hasn’t been turning up for appointments, or comes late and leaves early. You that know this co-worker has also used the work car to run personal errands which is a breach of organisational policy. You don’t want to get him in trouble, as he is a friend and you recommended him for the job. Scenario 3 You live with your partner and two kids in a small rural town. You have been Ameeka’s peer worker for over a year. She comes in for her regular Thursday appointment and starts to tell you about a guy she met at a party on Saturday night that she really likes. He has been staying with her ever since. This morning, while discussing with him her plans for the day, she mentioned that she was coming to see you, and he told her that he was your stepbrother. You haven’t seen him for a year or so, since your parents split up, and you don’t get along now. You have heard that many years ago he spent 3 months in jail on drug related charges but you didn’t know him then. Scenario 4 You overhear a colleague telling someone on the phone how hot and sexy one of their consumers is. He doesn’t use her name but he does describe her in fairly graphic physical detail. You also know that he has been looking at pornography on the work computer at lunchtime. You are very uncomfortable around him as he makes personal remarks about your figure or clothes and so you have been increasingly avoiding contact with him. Scenario 5 Your aunty has unexpectedly dropped in to see you at work. While she is waiting in reception she asks several people in a loud voice what they are doing there. One of them is quite uncomfortable and doesn’t answer. Your aunty feels snubbed and makes some derogatory remarks about ‘stuck-up’ Asian people. The consumer complains to her worker, who discusses it with your supervisor. Your supervisor has asked to talk to you this afternoon. Resource Book Foundations of Peer Work – Part 2 82 © 2015 National Mental Health Commission Scenario 6 Your sister was staying with you on the weekend and got sick. She has been admitted to hospital and you are left with her four kids. You have no sick leave and have missed a lot of days lately. You have a number of urgent workplace activities you need to complete and several people who are expecting to see you.. You are worried that it might be the last straw with your supervisor if you don’t go in today. You can’t get anyone to take the kids. You wonder if the supervisor would let you take the four of them to work but you doubt it. Scenario 7 You are out for drinks with colleagues after work. One of the other workers, who has had a lot to drink in a loud voice, starts to discuss her frustrating day with one of the consumer’s carer. She doesn’t mention his name but she does mention other personal details that mean others could identify who she was talking about.. Scenario 8 Your best friend’s younger brother is living with a ‘mental illness’ and is unhappy with the service he is with. You have known him since he was little, know him well and really like him, as he is a nice guy. You regularly attend social activities together. Your friend has told him about your service and he wants to come. He has the right to attend any service he chooses, however your service targets people 18 years and older. He won’t be 18 for 6 months but is planning to say he is 18. You hate conflict and don’t want to tell your supervisor that you know him. However not telling will breach your service code of conduct. Scenario 9 Your service is currently recruiting, and you know that one of the applicants has a history of violence towards women. According to the grapevine he also uses drugs, and occasionally deals drugs. You have no evidence, and it is not first-hand information. You don’t want to be unfair, but you also don’t want to work with him. Scenario 10 You are a peer worker doing a home visit to someone who is becoming increasingly unwell. During the visit you observe that her 10-year-old daughter is caring for the other three kids, including making the baby’s bottle and changing his nappies. She is doing it well, and is clearly experienced. She also makes sandwiches for the older kids and washes up. Her mum makes no attempt to help, but she is keen to talk to you. You are worried about the welfare of the 10year-old, who seems to be so busy working that she isn’t playing or being a kid. Resource Book Foundations of Peer Work – Part 2 83 © 2015 National Mental Health Commission Scenario number: What are the main ethical issues or potential issues? What is at least one legal factor (eg legislation or common law concern) you would need to consider? What do you say and do? Scenario number: What are the main ethical issues or potential issues? What is at least one legal factor (eg legislation or common law concern) you would need to consider? What do you say and do? Resource Book Foundations of Peer Work – Part 2 84 © 2015 National Mental Health Commission Scenario number: What are the main ethical issues or potential issues? What is at least one legal factor (eg legislation or common law concern) you would need to consider? What do you say and do? Scenario number: What are the main ethical issues or potential issues? What is at least one legal factor (eg legislation or common law concern) you would need to consider? What do you say and do? Resource Book Foundations of Peer Work – Part 2 85 © 2015 National Mental Health Commission DAY 4 Approaches to peer work Don’t judge or look at my past too hard… I don’t live there anymore Recovery is the bridge between who you were and who you are Resource Book Foundations of Peer Work – Part 2 86 © 2015 National Mental Health Commission Approaches and frameworks Using good practice frameworks Using good practice frameworks and approaches create a strong foundation for peer work practice. Good practice frameworks assist you to: build and maintain trusting working relationships empower people to lead their own recovery work collaboratively in recovery-oriented ways bring about real change achieve outcomes improve quality of life create sustainable gains facilitate your own recovery and growth develop your emotional intelligence make sustainable gains by learning and growing through change work effectively with consumers and carers implement the principles and foundations of recovery and of recovery-oriented practice. The only real voyage of discovery exists, not in seeing new landscapes, but in having new eyes (Marcel Proust). Activity What are your strengths? Using the strength cards provided, list 10 of your strengths. 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. Resource Book Foundations of Peer Work – Part 2 87 © 2015 National Mental Health Commission List three other strengths that you would like to develop. 1. 2. 3. In groups, discuss how you could develop these strengths. What is a strength, and what is resilience? A strength is a skill, ability or talent. It is the capacity or the aptitude that helps you succeed and to achieve your outcomes. Resilience is the flexibility and elasticity to spring or bounce back in the face of adversity or challenges of life. Some of the main aspects of resilience are listed below, along with the behaviour and function associated with each aspect. Aspect of resilience Behaviour Function Self-reflection Asking tough questions and giving honest answers about yourself and the situations in which you find yourself Dispels denial and confusion, generates clarity, serves as a springboard for taking the necessary action to solve problems Independence Distancing emotionally and physically from trouble, such as from the pressures of family, friends and circumstances Provides physical and emotional safety Relationshipbuilding Connecting with people who matter Provides friendship, understanding, material and emotional support, and sometimes even love Initiative Meeting challenges by taking charge of problems and looking for solutions Solves problems, generates a sense of competence and mastery Creativity Using imagination in a positive, satisfying way Helps express difficult feelings Humour Laughing at yourself, finding what’s funny, even in sadness or pain Introduces liveliness and lightheartedness in sombre situations Morality Doing the right thing, using your conscience, thinking of others as well as yourself Generates a sense of being a good person, even when surrounded by badness Adapted from Wolin, S. (2003). What is a Strength? (The word ‘insight’ which is a red flag for many consumers has been substituted with the phrase ‘self-reflection’) Resource Book Foundations of Peer Work – Part 2 88 © 2015 National Mental Health Commission Strengths-based approaches When you look at the glass pictured here, do you see it as half full or half empty? In any situation or relationship, we can choose to focus on the strengths or on the problems and deficits. The strengths-based model focuses on ‘possibilities rather than problems, options rather than constraints, wellness rather than sickness’ (Rapp, 1998). This represents a radical departure from the deficit-based approaches of the medical model. Having a strengths-based approach involves training ourselves to be mindful and to notice the strengths, in order to see the possibilities and potential. It involves having hope and using encouragement, which actually helps you to grow. Strengths-based practitioners believe that: all people have value and deserve dignity and respect all people have strengths, gifts and capacities all people can change all people have the right to self-determination, freedom and choice strengths can grow and develop each person is the expert in their own life and situation focusing on problems rarely fixes them and takes time, energy and attention focusing on strengths makes us stronger and more resilient developing our existing strengths often leads us to further growth and development. Research shows that a strengths-based approach improves self-care, confidence, selfesteem, resilience and other capacities. Working from a strengths perspective involves two main areas of focus: asking strengths-oriented questions; and developing practical skills. Within a strengths-based approach, it is ‘essential to explore, understand and respect the person’s perspective on the self and the world, the difficulties they are experiencing, and the meaning they make out of experiences and events’ (Marsh & Dale, 2006). This approach offers techniques that may be used by workers to assist consumers and carers in setting goals and facilitating change. In other approaches, we might ask, ‘What is wrong?’. In a strengths-based approach, we ask, ‘What is going well?’ ‘What is working?’ or ‘What are you doing well?’ It is important to remember that focusing on strengths does not mean being ‘positive’ all the time or ignoring reality, safety or risks. Strengths-based practice offers a genuine basis for tackling so much of what mental health services try to deliver on a daily basis. It attempts to identify a positive storehouse of individual resources from which to draw when faced with the negatives that inevitably accompany the tackling of problems. Resource Book Foundations of Peer Work – Part 2 89 © 2015 National Mental Health Commission DeJong & Miller (1995) suggest the following strategies when interviewing for strengths: Exploring for exceptions – times when the problem could have occurred but didn’t Imagining a future where the problem has been solved, and describing how life would be different (this is known as ‘the miracle question’) Assessing coping strategies – asking questions that show how the person managed despite the presence of the problem. A true strengths-based approach is one that governs the way we think about people and the way we go about our work on a daily basis. It is not an option to apply only to certain people or to particular parts of our practice, but can be the basis for all our actions and interactions. Appreciative inquiry Solving problems by focusing on what’s going right. Developed by David Cooperrider in the 1980s, ‘appreciative inquiry’ is a strengths-based approach to problem solving. Rather than focusing on what is wrong, it explores what is working well and works on doing more of that. Appreciation involves recognising and valuing the contributions and strengths of processes, things and people. To inquire is to curiously explore and discover in order to develop greater awareness and understanding. This will assist in identifying new possibilities and directions. The 4D approach Appreciative inquiry uses the ‘4D’ approach, as shown below. You begin by identifying and defining the issue in positive terms eg ways to improve, accelerate, redirect etc. Discover Dream Design Deliver Step 1: Discover In groups, consider what is the best thing about what has happened in the past or is happening now. Ask people to tell a story about what they most appreciated or valued or their greatest highlight about the past or present, and share their thoughts in pairs or small groups. For example, ‘What have you enjoyed most about working here?’ ‘What is the greatest thing you or your team has achieved this year?’ ‘What is the best thing about this organisation?’ ‘What are you most proud of?’ ‘What was our greatest promotion strategy?’ Share some of these stories briefly to the rest of the group. Then look for trends of themes in the stories and begin to analyse the data you gathered through the stories. What themes or common ideas did your notice in the stories? Step 2: Dream With your group, dream about ‘what might be’. Consider how you can reinforce the strengths and positives identified in the discovery phase or take them to a new level. Brainstorm creative and innovative ideas for the organisation to move forward or accomplish something by building on one of the good points for example. Once the dream or vision is clear then move on to the next step. Resource Book Foundations of Peer Work – Part 2 90 © 2015 National Mental Health Commission Step 3: Design Work out the practicalities required to implement the dream. Identify the systems, processes, strategies and steps needed to make the vision a reality. Step 4: Deliver This involves implementing or delivering the dream. It includes managing contingencies and working out who will do what, when and where to make the needed changes. It includes working out the evaluation, review and strategies needed to sustain the changes. Once completed, the cycle starts again. Activity Appreciative Inquiry: In pairs, work through the first two steps of appreciative inquiry ‘discover’ and ‘dream’ - using the following questions: ‘What has been the best thing about doing this course?’ and ‘What would you like to see more of?’ Holistic care BODY Individuals Holistic = Whole person and all parts of their life Holistic care focuses on all aspects of the person’s life: physical, mental, social, emotional and spiritual. These are called the five domains and when they are healthy and in balance we say there is social and emotional wellbeing (SEWB). Holistic care involves considering all five domains and identifying any needs that the person thinks are important to them, including: MIND EMOTIONS physical health mental health culture/spiritual/religion legal issues employment or work concerns finances education or training needs emotional support accommodation and housing family and community positive thinking relationships Resource Book Foundations of Peer Work – Part 2 91 SOCIAL SPIRIT © 2015 National Mental Health Commission Ecosystems Networks and connections From a broader perspective, the holistic approach can involve looking at the person within the context of their whole environment, their friends, family and the broader community. An ‘ecosystem’ is a community of living and nonliving things that work together. The ecosystem perspective is an approach that focuses not just on the individual but also on their environmental situation, their networks and the people they relate to. In this approach: the individual is the centre of the ecosystem individuals exist within networks of families, friends, carers and consumers families exist within neighbourhoods neighbourhoods exist within communities communities exist within larger societies or regions. Each level can impact on the actions, beliefs and choices of the other levels. In collective cultures, such as Aboriginal and Torres Strait Islander communities, the emphasis is on being part of a group. Decisions are made in this wider context, so meeting the individual’s needs means including all those they want involved. The individual will indicate whether they have close and ongoing relationships with family and friends or with an identified carer or consumer to consider. With the person’s permission, working with their broader context can be very helpful and result in better outcomes for all involved. Working with family, carer and other networks Carers, families and friends can be very important allies in the recovery process for consumers. Historically in services, carers and families were not considered in collaborative ways. Parents were blamed for their offspring’s mental illness and, therefore, professionals did not communicate with families. Very little information was given to family members regarding medication, symptoms, etc., so families floundered and made awful mistakes (Drummond, R., n.d.). Nowadays, however, national policy encourages consumer and carer participation in planning, program development, delivery, review and evaluation processes. In NSW a family-friendly mental health service is one that: considers the family and carer network throughout the consumer’s journey supports consumers to involve their families and carers in the most appropriate way for both the consumer and the family and carer provides general information to families and carers, such as about how the mental health system works, and factsheets about different mental illnesses, treatments and so on Resource Book Foundations of Peer Work – Part 2 92 © 2015 National Mental Health Commission recognises family and carer needs, and provides information and/or referrals to help them to access support, information, education and advocacy recognises that the needs of families and carers change over time, and responds to these changes recognises their own personal and organisational values, and ensures that they operate to the benefit and not detriment of families, carers and consumers (http://www0.health.nsw.gov.au/mhdao/fc_mh_program.asp). Peer workers should, with the consumer’s permission, try to work collaboratively with their carers, families and friends in real and innovative ways. The emphasis should be on creating real networks in communities, including with neighbours, and on developing natural supports as potential resources for both consumers and carers. Peer workers can also work separately with carers and families to support their own needs and recovery. This approach can enhance social inclusion and reduce isolation and segregation. It involves focusing on community and network solutions rather than adopting a ‘service solution mentality’. Person-centred approach A person-centred approach puts the person at the centre of all decision-making that affects them. It is about having choice and having control It is empowering It is about encouraging voice and participation It is about holistic, person-driven processes. Some people are uncomfortable with the term ‘person-centred’, as it implies that we are choosing to place the person in the centre, but it is their life and they are the only one with the right to place it anywhere. Some people prefer the term ‘person-driven’, as it suggests that they are driving and setting the direction of their own life. When a worker treats a person with respect, listens well and seeks to maximise the person’s choice, control and participation, then the person is naturally at the ‘centre’. Peer support and recovery Mental health peer support sits within a ‘recovery and hope’ framework and is one type of recovery-oriented practice. As such, it aims to meet all the values and principles for recovery-oriented services outlined in the National Mental Health Strategy’s ‘A national framework for recovery-oriented mental health services’ (2013). In addition, peer work has some unique characteristics, values and practices, as discussed below. Lived experience The first is that it values lived experience. This was covered in detail earlier in the course, and your lived experience has been and will continue to be drawn on during the course activities. Peer support is based on the belief that people who have overcome adversity can provide support, encouragement and hope to others in similar situations (Davidson et al., 2006). Resource Book Foundations of Peer Work – Part 2 93 © 2015 National Mental Health Commission The lived experiences of both the person and the peer worker are valued and respected, and generally provide the initial connection on which to start and build a relationship based on mutual understanding. Reciprocity and mutuality The second unique value is reciprocity and mutuality. This refers to the fact that both people grow and learn from each other. It is understood that the learning is a two-way street and that, wherever possible, equality is the aim. With reciprocity both people give and receive – it is not just one person helping the other. ‘Intentional peer support is about relational change; a commitment to mutuality, negotiation, noticing power dynamics, and a transparent agreement that both people are there to learn through the process of their relationship. This starts with the very first contact and is carried through by an on-going process of self/relational assessment’ (Mead, S., 2006). In the peer relationship both the person and the peer support worker are valued and respected. Both can benefit from the relationship; however, the aim is for the primary attention and purpose to be supporting the person’s recovery journey. The purpose of the relationship is to support the person to move forward in their recovery and achieve their goals, so the focus of the relationship needs to be on the other person’s needs and goals. Woodhouse and Vincent (2006) recommend that steps are taken to ensure that the boundaries between peer specialists and service users are ‘carefully drawn and sensitively enforced’ to reinforce awareness that the relationship is goal rather than friendship orientated (McLean, J., et al., 2009). We will look at this quote in more detail later, but the focus in a peer relationship is on achieving recovery goals. The peer worker has a duty of care and responsibility to ensure that the relationship is primarily about the person and not the peer worker. Balancing the relationship is important. While the other person is the focus of attention the feeling must be of equality rather than a power imbalance. The power dynamics need to be managed carefully so the person stays in control, directing the process and remaining the expert in their own life. As a peer support program in New Zealand puts it, it is about ‘withness’, which is about being present ‘with’ or beside the person (http://www.tepou.co.nz/improving-services/peer-support). The aim is to avoid slipping into the traditional roles where one person is doing all the helping and there is no mutual learning or growth. When there’s no assumption of power over, or expert/recipient, many people become willing to hear/think/see in new ways (Mead, S., 2006). Peer support is about supporting the person to move forward on whatever pathway the person chooses. Hard times arouse an instinctive desire for authenticity (Coco Chanel). Honesty and transparency make you vulnerable. Be honest and transparent anyway (Mother Theresa). Resource Book Foundations of Peer Work – Part 2 94 © 2015 National Mental Health Commission Being authentic: ‘walking the talk’ A key component of peer work is forming authentic relationships. This often requires stepping outside your comfort-zone, and making space in your life and mind, to create authentic relationships with another person. A pre-requisite is a willingness to be real and not be too busy, too selfish, too filled with ourselves and our purposes to make space for others. Going through the motions is not enough – we need to engage in real and meaningful ways. Relationships are key in recovery. We need to connect with the consumer/carer we are working with. To do this we need to reflect on our self and aim for the following: 1. Be genuine, warm and real Be yourself (and notice when you’re not) Be real and honest No pretence, personas, facades or role playing 2. Be self-aware Aim to feel secure and accepting of who you are No need to falsely build yourself up or pull others down Be humble and comfortable in your own body and space Be consistent and congruent – match your words and body language 3. Be trustworthy Act with integrity and honesty Keep your word and do what you say you will do Be transparent in your communications with others 4. Value others Value people and show respect Treat everyone as special and important 5. Be approachable and open Put others at ease and help them to relax Don’t judge others (and notice when you are) Accept people for who they are and where they are at (not who you think they should be) 6. Be present and mindful Not distracted or preoccupied Value every moment – nothing is more important than now 7. Be constant and resilient Hang in there and don’t give up Overcome barriers and obstacles Withstand the storms Be comfortable with difficult conversations and strong emotions Manage conflicts Resource Book Foundations of Peer Work – Part 2 95 © 2015 National Mental Health Commission 8. Be available and willing to share Be willing to listen and hear stories of joy and pain, and ‘hold’ hope Be willing to share stories Be willing to use ‘their’ language, concepts and understandings 9. Be self-reflective Reflect on your thoughts, interactions and actions Ask yourself the hard questions Gather and act on feedback 10. Create safe spaces Create spaces of emotional safety. Within these spaces, authentic relationships, where matters of significance can be discussed, may arise (Taylor, 1992; Scott, 2011). I believe the greatest gift I can conceive of having from anyone is to be seen, heard, understood and touched by them. The greatest gift I can give is to see, hear, understand and touch another person. When this is done, I feel contact has been made (Virginia Satir). Connecting and disconnecting We often focus on the importance of connecting, however, we also need (when appropriate) to be able to disconnect. For example, if we have had someone share deeply with us, then afterwards we need to be able to disconnect and not continue to carry heavy feelings home or to the next person we see. If we become overwhelmed emotionally, attention may focus on us rather than on the person we are there to support. From the perspective of mutuality, sharing our feelings can be beneficial. However, doing so while we are overwhelmed is rarely optimal and may in turn overwhelm the other person or leave them uncomfortable about how to respond. This is not the intention of the peer work role. While we need to be aware of what we are hearing when someone is sharing, for our own wellbeing we also need to ensure that we do not ‘own’ or absorb all the emotions and experiences being shared. We also need to be alert when things are being shared that might trigger or re-traumatise us. Self-care is essential for our wellbeing and also for our longevity in this field of work. In these situations the practice of mindfulness and the skill of allowing strong emotions to pass over us can produce a healthy disconnection. Resource Book Foundations of Peer Work – Part 2 96 © 2015 National Mental Health Commission Power and the drama triangle Power differentials As previously discussed, peer workers need to be aware of the impact of power differentials (differences) in service settings. When peer workers adopt a human rights approach promoting self-determination and supporting autonomy, this encourages individuals to engage in self-reflection and positive decision-making, and to shape and direct their own recovery. Some services still mirror the power and control experienced in abusive relationships that consumers and carers may have experienced in the past (or present). This can make recovery harder to focus on and escalate the risk of re-traumatisation. It is not considered ethical and may require advocacy by you to bring about needed change. The drama triangle An understanding of power differentials and roles is useful. The drama triangle, developed by Karpman (1968), is a model of dysfunctional social interactions and power dynamics. Karpman argued that there are three archetypal roles in the drama triangle: victim, rescuer and persecutor. People might have a preferred position or they might move (sometimes very rapidly) between the roles. Rescuer Persecutor Victims deny all responsibility and act in a helpless and hopeless manner. They may feel powerless, Victim incompetent and inadequate. They like to be treated with ‘kid gloves’ and may seek compassion and support. Victims often look for a rescuer; however, colluding does not empower, instead it creates dependence. Rescuers constantly try to be helpful by taking on other’s responsibilities, while ignoring their own needs. They want to solve problems, be useful and feel needed. They often think it is best if they do it all, as they will do it best and others will get it wrong. They might complain about their treatment and they are sometimes martyrs. Underneath, they might resent what is occurring. Rescuing can, for some people, be a coping strategy that helps minimise their own pain and discomfort, while giving them an outlet and purpose. Persecutors will blame the victim, and are highly critical and negative. They bully and harass with threats, blame, put-downs and even violence. They can be overwhelming and use standover tactics. They might feel inadequate underneath, but on the surface they ooze power, and unpleasantness. They seem to thrive on conflict and loud disputes. Signs of unhealthy roles or boundaries Focusing on someone else at the expense of oneself Continually rescuing or caring for (rather than caring about, which is the healthy option) Feeling the need for approval Inability to say no Feeling responsible for another’s needs Resource Book Foundations of Peer Work – Part 2 97 © 2015 National Mental Health Commission Feeling angry/hurt if others don’t take our advice or help Getting joy in life from helping others; this makes a person dependent on others accepting their help and being appreciative – if others don’t like what they do, the person gets hurt or angry and say things like, ‘After all I have done for you ...’ Can lead to learned helplessness in the other Complex and enmeshed relationships Over-concern for others Development of dependent relationships Loss of capacity for self-direction Unclear and shifting boundaries Use of fear, obligation, guilt and emotional blackmail Feeling a duty or heavy burden to meet others’ needs Individual choices are seen as disloyalty or an attack (Mahboub, L., 2013). Activity Which role are you most prone to? Why do you think that is (i.e. what do you think you gain from that role)? What would it take for you to give up that role? The alternative ‘healthy’ triangle Resource Book Foundations of Peer Work – Part 2 98 © 2015 National Mental Health Commission Three other, healthy roles are possible as an alternative to the three roles above. Learners/travellers, rather than being victims, grow and develop new skills and knowledge; or do new things in new ways, see new things and go to new places. Coaches/mentors/trainers, rather than rescuing, teach the new skills the learner needs, provide knowledge and support change. At times they act as role models or mentors, and at other times they coach in new skills as well as train in new ideas, models and practices. Encouragers/inspirers, rather than persecuting, encourage and inspire the learner by acknowledging strengths, reframing events and inspiring hope. They can be the cheerleader, encouraging the traveller on! Activity Which of these roles will you have as a peer worker? Provide an example of when you might use each one. Questions for reflection Reflect on an interaction you are or were involved in that relates to Karpman’s drama triangle. You might find it useful to ask yourself the following questions (Orriss, M., 2004). What am I not doing? Want do I need to do? Who is taking responsibility for whom? Who am I talking responsibility for? Am I allowing the other person to take responsibility for themselves and their actions? Who has the power? How do I know? Have I agreed to more than I want to do? Am I doing more than half the work? Am I owning my power positively and appropriately? Am I using it to set my own boundaries and take responsibility for myself and my actions? What boundaries do I need to set up? Am I using my power to take care of myself properly? What am I feeling about this situation? What would I like to feel? What actions do I need to take to make sure that I deal with this in the best possible way so that it has the best possible outcome? Resource Book Foundations of Peer Work – Part 2 99 © 2015 National Mental Health Commission Values-based practice skills There are four main skills required for values-based practice. Awareness: Workers need to be aware of all the values and the diversity of those values. It requires practice to identify the range of values. One way that values can be revealed is in the language used by the person – the words, the analogies and the emphasis. Reflecting on this during and after meetings with a person can help to increase your awareness. As mentioned below, good communication and questioning skills are also important. Communication: Supporting decision-making is central to values-based practice, and this often involves resolving differences. This in turn involves advanced communication skills, as does working closely and collaboratively with a person. All of these skills include strong listening, good questioning and clear communication. Knowledge: Gathering information about values and facts is critical to the process. To gather information takes a lot of listening as well as good questioning. Reasoning: Analysing and balancing information from a range of sources is important in values-based practice. Logical reasoning is a key prerequisite to making or supporting a decision. Interpersonal skills are also important To work with people and identify values requires good ‘people skills’, also called ‘interpersonal skills’. They help to build trust and strong relationships. There are a number of other key understandings that inform values-based practice. The ‘two feet’ principle All good decisions require two feet on the ground: you need to have both the facts or evidence about the situation and the values of the key people involved. Know the facts Know the values Evidence-based practice requires awareness of the research and evidence that is relevant to your practice, and how strong the evidence is. This evidence needs to inform and be applied in your work so that you offer the best services possible. Being aware of the differing values of all key stakeholders, and working with values in positive and constructive ways to make decisions and inform processes and practice, involves listening to, learning from and acting on communications from the person and their carers about what is important to each of them. The ‘squeaky wheel’ principle Like a squeaky wheel, we only tend to focus on values when they are clearly different or in conflict. But values need to be a priority even when they are not yet clear or openly stated. Resource Book Foundations of Peer Work – Part 2 100 © 2015 National Mental Health Commission Degree to which you are currently putting this value into practice A little bit Some Quite a bit Most of the time Happy with current level Would like this to change Desire to change Not at all Consider your own values and what is important to: 1. 2. 3. 4. 5. 1. 2. 3. 4. 5. Actions you might take Top 5 PERSONAL values Top 5 WORK values Resource Book Foundations of Peer Work – Part 2 101 © 2015 National Mental Health Commission Sensory awareness Find a comfortable place outside. If you can, remove your shoes. Either sit or stand. Close your eyes for a moment and become aware of your feet touching the ground. Feel the grass, sand, soil or ground between your toes and under your feet. Feel the solidness of the ground and the bedrock below it. Be aware of the strength you feel from the ground and the sensations in your legs. Feel any breeze touching your body or the warmth of the sun or the cool of the shade. As you open your eyes, be aware of the colours and shapes around you. Let your eyes travel slowly taking in your surroundings – not just the big things but also the small things like an individual leaf or blade of grass that stands out from the others. Then slowly take a deep breath, flaring your nostrils and smelling the air around you. Become aware of the freshness of the air, the smell of the trees, flowers or grass. See if you can smell hints of the ‘smaller’ smells – the undernotes of fragrance that without awareness you might have missed or lost. As you smell, be aware of the sounds around you – the wind in the trees, the distant traffic and people walking or talking as they pass by. Depending on your setting, there might be things to taste as well. If not, allow your other senses free rein until you feel part of the land and space around you. If your mind wanders, let your thoughts float by and bring your attention back to your senses and the things around you. Activity What other mindfulness activities have you tried? How well did they work for you? Resource Book Foundations of Peer Work – Part 2 102 © 2015 National Mental Health Commission Record Keeping To create records we gather information about the person and their experience. We need to protect this information, keeping it private by locking it up and not discussing it with others without permission (called ‘consent’). We also need to meet legal obligations (NMHCCF, 2011, p. 5). As a peer worker, the formal records you might need to write and store include: referral forms consent forms initial contact forms person-directed records (e.g. advanced directives, wellness plans, wellbeing plans) individual service plans or recovery plans individual program plans formal or informal assessments service plans or agreements reports, e.g. incident reports evaluation and feedback forms other information that is collected about people, which may include: o notes on activities, events, strengths, needs, aspirations, goals, milestones, outcomes, achievements and concerns o responses to questions and other information provided by or for the consumer/carer o observations on physical appearance, behaviour, awareness or ‘sharpness’ (acuity) o file information including personal contact details, nature of services received, hours of contact and case notes o information provided by the person’s family, carers and others o information provided by other workers and agencies. What other records do you keep? Your position description and organisational guidelines and policy will identify your responsibilities and procedures for information collection and storage. If there are no organisational guidelines, peer workers should consider (and discuss with their supervisor) the amount and type of information to be collected, in order to balance the capacity to deliver appropriate services with possible breaches of privacy. A general rule of thumb is to report events objectively, and not to include any opinions or value judgments about behaviours. Consumers must be informed of the type and extent of information that is collected and stored about them. Resource Book Foundations of Peer Work – Part 2 103 © 2015 National Mental Health Commission Collecting and managing consumer and carer information There are four critical aspects to effective information management: 1. Accuracy – this involves Currency careful listening and checking that your interpretation is correct; reading existing files and checking that the information being collected is consistent; and checking all Collecting Privacy Accuracy data collected with consumers, and Managing carers and others who are providing information. Information 4. Currency – this means ensuring that all information for which you are responsible is Consultation up-to-date, including: policy documents, contact lists, information that is made available to consumers/carers, and their files. 5. Privacy – perhaps the most important aspect of information management. It includes confidentiality, sight and sound privacy, storage of information, use of information, reasons for collection of information and so on. 6. Consultation – when collecting information on consumers and carers, you will involve the person and perhaps others in the process. You may need to consult with other workers and managers in your own organisation, and others to which consumers and carers are being referred. Managing information about and for people living with mental distress, their families, friends, advocates, and support and service agencies is an important part of maintaining effective work-based relationships. People have the right to know that information collected about them is used, shared and stored in such a way that their privacy is protected at all times. Informed consent is required to release that information and, when information is shared with consent, it must be accurate and current. So maintaining up-to-date records is important. Privacy and confidentiality provisions in relation to mental health care refer to all consumer and carer information and formal records that are communicated verbally among mental health service staff and between staff and consumers and carers. Resource Book Foundations of Peer Work – Part 2 104 © 2015 National Mental Health Commission Principles of Record Management Records management (RM) and Records and Information management (RIM) is the supervision and administration of soft copy (digital) or hard copy (paper records), regardless of format. A well maintained records management system supports services to provide quality accountable service system. It includes the confidential and secure collection, access, maintenance and disposal of records. Covers paper records, media and electronic data (covers digital/ computer record and cloud storage) Confidentiality of all personal records shall occur at every point in the cycle Accountability and Transparency Integrity, authenticity and Honesty Objective and factual not assumption or subjective Comprehensive – cover all relevant topics Currency –completely in a timely fashion and kept up to date Protection –Secure storage , confidentiality maintained - only shared with others with person’s consent Transportation of records must align with organisational policy eg kept secure etc Compliant with laws, organisational policy and procedures Accessible and Retrievable – the person can access their records and make any changes Maintenance - Records shall be maintained in line with organisational policy Disposal -Records shall be disposed of in line with organisational policy Your position description and organisational guidelines and policy will identify your responsibilities and procedures for information collection and storage. If there are no organisational guidelines, peer workers should consider (and discuss with their supervisor) the amount and type of information to be collected, in order to balance the capacity to deliver appropriate services with possible breaches of privacy. A general rule of thumb is to report events objectively, and not to include any opinions or value judgments about behaviours. Consumers must be informed of the type and extent of information that is collected and stored about them. Information sharing The Queensland Government developed a resource in 2011 to provide guidance to mental health workers on how to share information about a consumer, called ‘Information sharing: Between mental health workers, consumers, carers, family and significant others’ it is available at www.health.qld.gov.au/mentalhealth/docs/info_sharing.pdf. It highlights that the sharing of information as often as possible between workers, consumers and those involved in helping a person’s recovery is central to person-centred support. It explores the benefits of information sharing, and asks us to look for opportunities to share information in ways that will benefit the consumer’s recovery and support the safety and wellbeing of others. Resource Book Foundations of Peer Work – Part 2 105 © 2015 National Mental Health Commission In seeking consent, it says, it is important for workers to: explain the reasons for and benefits of sharing specific information use language that is clear to ensure understanding remind the consumer that they can withdraw their consent at any time at the end of the discussion, clarify to ensure that you both have a shared understanding of what has been agreed document what was agreed according to your organisation’s record-keeping policy. When it is not possible to gain consent, sharing certain information may be appropriate as permitted by law. If the consumer currently lacks capacity to give consent, ongoing attempts to obtain informed consent should be made as their mental health changes and improves. Note-taking versus note-making Organisations have different perspectives and requirements on what records must be kept. As a worker you need to be familiar with these expectations. As a peer worker, you should make sure that your record keeping is in line with the values and principles of recovery and peer work. Record keeping (about people), like all our work, needs to follow the principle ‘nothing about us without us’. This means that any documentation, file notes and records need to be made collaboratively and led by the person. This can be challenging and is certainly a point for considerable negotiation. Keeping careful records of recovery stories can track and show choices, achievements and, most importantly, progress. Records are part of a person’s story and history. They allow a person periodic review and reflection on the journey taken so far. Note-taking It is not necessary to write down every word that is said. Note-taking is not like minutetaking. When meeting with a person, intense listening is often better than furious writing. Notes taken in meetings are often about recording decisions and information. Note-taking should be a collaborative process and should support the recovery process. Remember that what you write down is important. If there is a complaint or grievance, your records will be reviewed. A person’s records may be reviewed by a number of different people and organisations. Note-making Is the person keeping a record, journal or notes about their own recovery process? Some services stress the important difference between note-taking and note-making. These services believe that notes kept by the peer worker, or other workers, create potential barriers to developing strong recovery-oriented relationships. The priority is on maximising empowerment and keeping accountability – records are low on the list. In other services the person is encouraged to develop their own notes/records, with support as required. The peer worker may or may not keep a copy of the notes made, or they may simultaneously make a record to keep for service accountability purposes. The critical thing is transparency, for the person to feel empowered and able to access any record relevant to them. They must have a sense of control, so a collaborative process is Resource Book Foundations of Peer Work – Part 2 106 © 2015 National Mental Health Commission often a good approach. The key is to negotiate the process and to deeply listen and respond to the person’s desires and preferences. In some services, funding requirements or organisational policies require all workers to keep records. Many of the records you keep will be to meet organisational policy and procedural requirements. This is often seen as a risk-management strategy, such as in the event of the organisation being involved in a legal matter. It can be important in the event of, for example, a subpoena, a WorkCover inquiry, a quality review or a complaint. Certain other types of records are also kept for legal reasons, including incident forms, timesheets, referral forms, reports, performance appraisals, professional development plans, memos and organisational letters. Some records are kept for organisational accountability requirements, including statistics showing that the service is providing enough hours, or enough services to enough people. Whenever records are kept, there are legal and ethical matters to consider. Activity Do you make or take notes about a person’s recovery journey at your service? What is the process at your service? Resource Book Foundations of Peer Work – Part 2 107 © 2015 National Mental Health Commission Remember: A person’s records may be viewed by a number of different people and organisations, as shown below: The person Collaboratively developing them Gaining access to them to review or recall a matter, or to review or evaluate their recovery progress Critical incident review/ complaints Internal investigation by the service following a critical incident or complaint Insurance companies Workers’ compensation, personal injury claims Coroner’s court Investigations of deaths and will make recommendations to other legal bodies Healthcare team As part of ongoing treatment and communication, and for research and auditing Service Records Health Care Complaints Commission (HCCC) Similar to the professional registration authorities, use when investigating a complaint Courts: civil and criminal Health care records will be used as evidence, e.g. in the coroners court Consumer’s relatives or guardians May request to see notes especially after something goes wrong (this requires the consumer’s consent or a legal right) Professional registration or accreditation authorities eg. nurses registration boards when conducting investigations Managers or other workers For awareness if they are a new case worker, or in supervision, etc. Other workers and services With consent they can access, e.g. as part of a referral Resource Book Foundations of Peer Work – Part 2 108 © 2015 National Mental Health Commission National standards for mental health services 2010 Several criteria in the national standards apply to information collection, storage, access privacy and consent including: Standard 1: Rights and responsibilities criteria 1.3 All care delivered is subject to the informed consent of the voluntary consumer and wherever possible, by the involuntary consumer in accordance with Commonwealth and state / territory jurisdictional and legislative requirements. 1.8 The MHS upholds the right of the consumer to have their privacy and confidentiality recognised and maintained to the extent that it does not impose serious risk to the consumer or others. 1.13 The MHS upholds the right of consumers to have access to their own health records in accordance with relevant Commonwealth, state / territory legislation. 1.14 The MHS enacts policy and procedures to ensure that personal and health related information is handled in accordance with Commonwealth, state / territory privacy legislation when personal information is communicated to health professionals outside the MHS, carers or other relevant agencies. 1.16 The MHS upholds the right of the consumer to express compliments, complaints and grievances regarding their care and to have them addressed by the MHS. The National Mental Health Consumer & Carer Forum position on privacy, confidentiality and information sharing It is the position of the NMHCCF that: the privacy of consumers is a basic human right each consumer’s right to privacy should be balanced with their nominated carer’s need to give and receive information relevant to their caring role nominated carers should be identified, supported and incorporated into service provision nominated carers play a vital support role in a consumer’s recovery and should be included in information exchanges, where appropriate and with the consumer’s consent nominated carers’ involvement should be regularly reviewed consumer and carer participation is essential in developing best practice guidelines for information sharing. Activity How do you think the national standards and the NMHCCF position statement affect the work you do? Resource Book Foundations of Peer Work – Part 2 109 © 2015 National Mental Health Commission Activity Documentation dos and don’ts 1. Documentation Dos Write down as many good habits as you can think of that you should remember when developing documents and records. 2. Documentation DON’Ts Write down as many bad habits as you can think of that workers should avoid when developing documents and records. Resource Book Foundations of Peer Work – Part 2 110 © 2015 National Mental Health Commission Write legibly If people can’t read what you have written, it might as well not be there. If it does go to court you will be asked to explain it. If you can’t read an entry, ask the person who wrote it to explain it to you and, if necessary, rewrite it. Label all notes Notes need to be labelled on both sides of the page, including any correspondence that is received that is placed into the person’s file. This becomes an issue when notes are photocopied. Record who you are Record the date and time Without the date and time it is very difficult to establish the sequence of events and leads to more questions being asked. Document all changes, actions and outcomes This is the ‘golden rule’. Notes should follow this format and these are the questions that will be asked of the record when being reviewed. You should document in the light of the whole person, and any change or significant event should be documented, together with what action was taken and how it turned out. (name, title, signature) This is so your entry can be traced to you. It relates to professional accountability – if people have questions regarding what you wrote they can find you. The do’s of documentation Resource Book Foundations of Peer Work – Part 2 They will be much more accurate and hold much more weight. If you put a summary of what was said there is always the question regarding your interpretation of what was said. Use permanent black or blue pen only This avoids entries fading. This includes not using pencils or felt-tip pens (textas), whose ink washes away with water and doesn’t photocopy well. If records are photocopied, colours other than black or blue ink may not be clear. Make time to do it well Given that documentation is the record of the care that you gave, and what you will be asked to answer to, it is important to give it the time it deserves rather than just 15 minutes before you finish for the day. Records must be factual and objective Notes must only include facts. Colloquial terms, emotive language and waffle leads to workers’ professionalism being questioned and lawyers asking questions. Be definite in any observations and beliefs, and don’t use language such as ‘it appears that ...’. Use the person’s words Records are Contemporaneous (i.e. at the time) Record events straight away. It is important to write what you did at the time you did it, not at the end of your shift or later. If you do write things down later, make sure you record when you actually did them. Check records before and after you write them Ensure that you write the correct entry in the right person’s notes. It is difficult to prove you did something if it is not in the notes. 111 Notes must be in line with recovery-oriented practice and peer work principles Ensure your record keeping meets the principles of recoveryoriented practice and peer work. © 2015 National Mental Health Commission Don’t make assumptions Only document what you know, not what you suspect. (Write ‘The person reported being assaulted’, not ‘The person was assaulted’, if that’s all you know.) Don’t use unapproved abbreviations Be aware that all services have different approved abbreviation lists. Don’t scribble Don’t use terms you are not sure of If you write it there is an assumption that you believe what you wrote. Therefore you must fully understand all the terms you use. Don’t document care given by others If you wrote it, you did it, and you may be asked to explain it. This is how a court analyses records. memory You should not rely on your memory, but document immediately. You cannot write records retrospectively. The don’ts of documentation Don’t make Don’t enter notes in advance If you enter an action in advance and then fail to do it, and something happens as a result, you could be seen as both liable and negligent. Don’t leave spaces Space allows other people to add things to your notes. Any spaces should be ruled through with a straight line. Be aware that legal bodies will go to the extent of using a forensic specialist to review notes to see if they have been added to or changed. Resource Book Foundations of Peer Work – Part 2 Don’t rely on your out errors It might look like you are hiding something. 112 generalisations You need to be factual. Generalisations only lead to confusion and misunderstanding that the courts will need to ask you to explain. Don’t repeat or copy other information If you repeat or copy other information, such as observations or medications, you might copy it incorrectly and leave yourself open to significant criticism. © 2015 National Mental Health Commission Reflecting on your own work, which of the following things do you practice? The do’s checklist Record the date and time Take time to do it well Use the person’s own words Label all notes Write legibly Document each change, action, outcome Use only permanent black or blue pen Be objective and factual Contemporaneous (ie at the time) Record events straight away Record who you are (name, title, signature) Check records before and after you write them Reflect recovery-oriented practice and peer work principles The don’ts check list Don’t use unapproved abbreviations Don’t make assumptions Don’t rely on your memory Don’t use terms you are not sure of Don’t leave spaces Don’t document care given by others Don’t scribble out errors Don’t make generalisations Don’t repeat or copy other information Don’t enter notes in advance Resource Book Foundations of Peer Work – Part 2 113 © 2015 National Mental Health Commission Activity Option 1: What’s wrong or right with this documentation? Based on the do’s and dont’s listed above, consider what is wrong and what is right about the following documentation examples. Example A 12th Feb 2009 (14.35hrs) Jules is stressed and struggling with carer role and rest of family. Signature (Printed name), Job title. Example B 12th Feb 2009 (14.35hrs) Jason given his medication. All care attended. Signature (Printed name), Job title. Example C 12th March 2009 CPW 13.50hrs. Maria hurt herself in the garden, She was exhausted as her son had been pacing all night. Went to shops and doctor’s. Signature (Printed name), Job title. Example D 12th March 2009 PW 13.50hrs. Mark said he hurt himself in the garden. He was restless and fidgety when we went out. Went to shops and doctor’s. Signature (Printed name), Job title. Resource Book Foundations of Peer Work – Part 2 114 © 2015 National Mental Health Commission Example E 12th April 2009 Peer Worker 10.00am Visited Holly as arranged at her home. She was up and dressed to go out grocery shopping as planned. She stated she’d ‘had a terrible night’s sleep’. She reported not sleeping well for past week. We spoke about sleep and how she needs sleep to maintain her mental health. She stated she wanted to go to the doctor to get sleeping tablets because the last time she was like this she ended up run down, caught a virus and was sick in bed for a fortnight. She rang GP at 10.30am. GP spoke to Holly. GP told her the script would be ready to pick up later today. Drove her to the shops as her car is in garage. Talked about coping strategies on the way. Collected groceries and dropped Holly back home approx. 12pm. Next visit planned for 14th April. Holly requested we meet at the local library. Signature (Printed name), Job title. Example F 20th April 2009 Peer Worker 11.00hrs Visited Harry as arranged at 10am at his unit. He was up and dressed to go out grocery shopping as planned. He stated ‘I had a terrible night’s sleep’. He reported not sleeping well for past week. We spoke about sleep and how he needs sleep to maintain his wellbeing. He stated he wanted to go to the doctor to get sleeping tablets because the last time he was like this he ended up in hospital due to his paranoia. Phone call to GP at 10.30am. GP spoke to Harry. GP told Harry script would be ready to pick up later today. Collected groceries and dropped Harry back home approx. 12pm. Next visit planned for 14th April. Harry requested to visit the local library. Signature (Printed name), Job title. Resource Book Foundations of Peer Work – Part 2 115 © 2015 National Mental Health Commission Option 2: Notes How can you ensure that the person controls the process for documenting their recovery, and that the process is transparent? How do you like to record notes about your recovery? Create a file note or entry that you would be happy to have collaboratively written with a peer worker about your recovery. Share it with a colleague or your small group. Based on your entry above and those of others at your table, list the characteristics of good notes. Resource Book Foundations of Peer Work – Part 2 116 © 2015 National Mental Health Commission Visual note taking – graphical representation While most records and notes are in written form, it is often useful to record some types of information in graphical (diagram) form. In particular, this allows workers to capture a picture of the person’s family. Many workers, particularly those who are visual learners, find that seeing a visual representation of the family makes it easier to recall details than reading pages of written notes. These diagrams can also be drawn in collaboration with the person or even by the person themselves. As a result they can be very empowering and accessible to the person as they may find them more useful than written notes. Whichever style or type of diagram is chosen, there are many benefits to visual representation: It is an accessible format for a service user (less literacy required) It allows you to form an overview of service provision (identifying current service relationships and possible gaps or alternative options) It promotes transparency in record-keeping – diagrams can be drawn in partnership with the person It increases understanding of relationships within a cluster (family, household or network); It can increase continuity of care by acting as a resource to assist with quickly familiarising new workers to the individual or family so the person doesn’t have to tell their story yet again. We will now look at three specific types of visual representations: ecomaps genograms social and emotional wellbeing Ecomaps An ecomap is a visual representation of a person or organisation and the system and social environment that surrounds them. It promotes a systemic view of the world and the person’s experience in it. There are many different ways to draw ecomaps. Below is an example of an organisational version. Centrelink Local council community workers Multicultural service Local health service Local hospital My service Local doctors Aboriginal Medical Service Community centre Resource Book Foundations of Peer Work – Part 2 Local carers group 117 Department of Housing © 2015 National Mental Health Commission Ecomaps are more commonly used to draw the system and social environment surrounding an individual or their family. The family is drawn in a circle in the centre (squares for males, circles for females) and lines are added to show relationships. Example: family ecomap Local fourwheel-drive car club Department of Community Services Mental health service Neighbourhood centre Church and women’s group activities Work in advertising office Ben 38 yrs Viv 37 yrs Mental health crisis team RSL club Merry 19 Jono 16 Alison 15 Rob 13 Extended family Meadow TAFE Holly 4 Noel 2 Counsellor Meadow Preschool Meadow High School Meadow Playgroup Local health centre Meadow Football Club Add names, ages and connections with community services and other key contacts. Key Male Relationship Strong line = strong connection Important or positive connection (variation to using a strong line) Female Direction of energy or Stress or tension Resource Book Foundations of Peer Work – Part 2 Tenuous relationship 118 © 2015 National Mental Health Commission Genograms A genogram is a diagram that shows a family’s history, strengths, challenges and behaviour patterns. It can map several generations and show patterns or trends in the family over generations. It is based on constructing a family tree, and then adding symbols, dates and other information to convey important family patterns and trends. Additional information can be added to identify patterns such as ages, occupations, AOD use, domestic violence (DV), illness, child abuse, incarceration, disability, mental health issues, recreation, beliefs and education. Example: family genogram Paul Rachel James Ellen Bella Sally Sara David Beth Terr y Kaye m. 1989 fostered Jim Lance Anna Lee Key: Male Relationship Female Household Deceased Fostered Stillborn Engaged pregnancy Divorced miscarriage Separated Additional symbols have been developed for specific purposes, such as an abuse symbol and a disease symbol. Search the internet to find out more. Resource Book Foundations of Peer Work – Part 2 119 © 2015 National Mental Health Commission Social and emotional wellbeing map Social and emotional wellbeing maps were originally developed to map extended Aboriginal and Torres Strait Islander families but have subsequently been used more generally. They allow you to rapidly identify important people and relationships to an individual or family. They identify key strengths and issues or concerns faced by family members. A large rectangle is drawn, filling most of the page. A circle is drawn in the middle of the rectangle for the main individual (they could be a consumer or carer). All the people who share the house and all the people who have daily or weekly contact are drawn in circles within the rectangle (red circles for support people, blue for social contacts). Lines are drawn to show the strength and type of relationship. Descriptions of relationships, ages, strengths and concerns are added in or near each circle. Other significant family members are drawn in circles outside the rectangle. They are not part of the person’s social or emotional network or only have intermittent involvement. Example: social and emotional wellbeing (SEWB) map 36yrs Friend for 12 years; play cards, visits Francis or talks every day [Francis also visits her, and they meet for coffee] Daisy Irene 42yrs Sister Very critical and thinks Frances should ‘get over it’ Ronnie 38yrs Friend for 15 yrs; play cards, visits Francis or talks every day, goes to church with her [Francis visits her often, and drives her to church] 24yrs Partner to Tina, gardens for Francis and does house repairs [Francis knits him jumpers] Francis 38yrs Living with depression and anxiety – close to grandkids, daughters and friends Janice Beth Tina 22yrs Daughter Lives in flat in town, visits daily, shops for Francis and drives her to doctor, cares well for her 3 children [Francis babysits for her and helps when the kids are sick. She also reads to them, lies with them and sews /knits for them] Resource Book Foundations of Peer Work – Part 2 C C C C C 120 63yrs Mother Cooks for family and helps with washing and housework [Francis drives her to church and to medical appointments] Kiarna Doug 43yrs Husband Contributes money to pay bills, close to grandkids, drinks and smokes heavily. Has his own room but watches TV with family and interacts with kids C 23yrs Daughter Contributes money to pay bills, cooks for family and helps with washing and housework; lives at home with her 3 children [Francis babysits for her and helps when the kids are sick. She also reads to them, lies with them and sews/knits for them] Aunt who lives in the city Contact at Christmas Uncle Joe (Elder) Great uncle Sonny 31yrs Brother Lives with wife in another state © 2015 National Mental Health Commission Key: Grey The individual Red Carer and emotional support Blue Regular ongoing social contact (takes to football, on outings etc.) but has no carer responsibilities Yellow External person, e.g. extended family with irregular or distant contact Green Child X Deceased (dead) Inside the rectangular border is a household and contains the members that live at the premises and those that have an ongoing and immediate relationship to the premises where the service user lives. Within the border you might place parents, immediate siblings and other members that contribute to the family or close family friends, supports and neighbours that have daily contact etc Outside the rectangular border are family members who live elsewhere and have ongoing but infrequent contact with the service user. Sometimes deceased family members may be included if they contribute to the understanding of kinship and cultural obligations A dashed line or coloured area represents people who live in the same house as the service user. This will change over time, so include a date Links to service user Shows which way the support goes If support is mutual, arrows go both ways, e.g. she cooks for me weekly, I mow her lawn Thicker line Distant or not so strong relationship. Relationship may become more distant, e.g. if someone is moving away from the household then you may change the line to a dotted line and add note, e.g. ‘Planning to move to Newcastle’. Strong support, e.g. Aunt Beryl provides good support and brings meals, so you might put a thicker line and write words to explain further, e.g. ‘emotional support’ or ‘food’. Negative relationship that can bring stress or distress for service user, e.g. a young relative who gets drunk every Saturday night and gets into fights with others in the household Thick wiggly line Very bad or negative relationship, e.g. serious and regular domestic violence. Dotted lines: A small house next to a person means they need accommodation to move them out of the house Resource Book Foundations of Peer Work – Part 2 121 © 2015 National Mental Health Commission Activity Choose one of the diagrams above that is new to you, and try to draw your own family. If you have time, try one of the other diagrams for your family or for someone you support. Resource Book Foundations of Peer Work – Part 2 122 © 2015 National Mental Health Commission Reflection on learning To maximise transfer of learning to your practice in the workplace, it is important to reflect on the topics covered here and identify any areas that you would like to grow and build knowledge and skills in. This table will be referred to again throughout the course. Areas covered in training today I’m feeling comfortable about my knowledge and skill in this area I need to know and develop skills in this area a little more I need to know and develop skills in this area a lot more (✓) (✓) (✓) Other areas I have identified that are not covered in the training Resource Book Foundations of Peer Work – Part 2 123 © 2015 National Mental Health Commission Appendix A: MHCC Law and Ethics Definitions Advocate To speak or write in favour of; support or urge by argument; recommend publicly. A person who speaks or writes in support or defence of a person or cause; who pleads the cause of another in a court of law. Breach The act or result of failing to obey or breaking a rule; a violation of law, faith or a promise. Bullying Persistent ill treatment of an individual by one or more other persons. It is usually continuous, intimidating and directed against a particular person. Includes verbal abuse, finding fault, threats, sarcasm, ostracism, sabotage of a person’s work etc. Charter A document, issued by a sovereign or state, outlining the conditions under which a corporation, colony, city, or other corporate body is organised, and defining its rights and privileges. Civil Law Decisions of courts, especially of reviewing tribunals. Code of Conduct A code of conduct defines the required standards of behaviour and actions of a worker. It clearly describes expectations so people know ‘how to’ act in certain situations. It must be clear and unambiguous indicating required outcomes or rules to be followed. While they are more specific than codes of ethic they are rarely broad enough to cover every circumstance but do provide general direction on many matters. If your situation is not covered then discuss any concerns with your supervisor or seek clarification from another appropriate person. Code of Ethics A code of ethics defines the fundamental principles (like respect, integrity, trust, openness) that should guide worker’s approach. It provides guidance in terms of ethical and moral responsibility. It is more general than a code of conduct and describes the principles and values of “what” is important and should be considered in making a decision. Codes of practice Codes of practice are practical outlines or guidelines on how you should perform certain workplace activities or practices. For example WorkCover NSW have a number of approved code of practices to assist workers to achieve the health, safety and wellbeing standards required under the NSW Work Health and Safety Act and related WHS Regulations. Many of the codes of practice belong to specific industries eg demolition, spray painting, welding, construction etc. There is not a particular code of practice for community services but a number of generic ones cover community services workplaces. These include: ‘First aid in the workplace’; ‘Hazardous manual tasks’; ‘Managing the risk of falls at workplaces’. Resource Book Foundations of Peer Work – Part 2 124 © 2015 National Mental Health Commission Common Law The system of law originating in England, as distinct from the civil or Roman law and the canon or ecclesiastical law. Unwritten law (especially in England), based on custom or court decision, as distinct from statute law. In common law systems, the courts are particularly influential in developing the law; although they may be said to interpret the law, the growth in case decisions can be regarded as effectively creating or developing the law, even though (as in the UK) parliament is sovereign (subject to the jurisdiction of the European Parliament). Complaint Management Complaints Management refers to the system of managing complaints from a service user, member of the public, stakeholder or worker. A complaint is any expression of dissatisfaction about a service, a worker’s actions, a service decision. Every service should have a complaints policy and procedure and information about it should be provided to all service users, as all people have a right to complain and organisations are responsible for their actions and decisions and those of their workers. Effective complaints handling can resolve issues before they escalate and can also contribute to quality improvement systems. Workers should encourage and assist people to raise their concerns. Principles of effective complaints management include: responsiveness, accessibility, fairness, efficiency, and integration. Stages of complaint handling: Acknowledge the complaint and ensure they are aware of the procedure, consider the information, plan the investigation, investigate, respond (take action), review and reflect on process, implement systemic change as required. Corrupt Conduct Immoral or dishonest, and often illegal behaviour. Corruption can take many forms including: Official misconduct Bribery and blackmail Unauthorised use of confidential information Fraud & theft. Efficiency The quality or ability to do something well or achieve a desired result without wasted energy or effort. Competent in performance. Equity The quality of being fair, just or impartial. Actions, treatment of others, or a general condition characterised by justice, fairness and impartiality. Fraud Corrupt conduct; dishonesty; deliberately deceiving a person or people to obtain money or some other benefit. Usually takes the form of giving a false impression through a statement or conduct in order to gain a material advantage. Harassment To persistently disturb, annoy, attack or torment someone. Impartial Just; unbiased; having no direct involvement or interest and not favouring one person or side more than another. Resource Book Foundations of Peer Work – Part 2 125 © 2015 National Mental Health Commission Integrity The quality of possessing and steadfastly adhering to high moral principles or professional standards. Maladministration Conduct that involves action, or inaction, of a serious nature that is: Contrary to law Unreasonable, unjust, oppressive or improperly discriminatory Based wholly or partly on improper motives. Mandatory Reporting Mandatory reporting is a term for the community and health worker’s legislative requirement to report suspected cases of child abuse and neglect to government authorities. Mandatory reporters are those that deliver services directly to children and young people. This includes those that deliver health care, welfare, education, children’s services, residential services or law enforcement to children or young people. The law also requires any person who manages an employee or volunteer from such services, to report suspected risk of significant harm. Ostracism Exclusion from social events or groups, to banish or isolate another person Policy framework A policy framework is a logical structure that is created to organise, order, develop and maintain policies to increase their implementation, usage and effectiveness. For example it may: a set of guidelines, as well as long term goals which are taken in to account when policies are being made be a structure to cluster, categorise or group or otherwise organise policies, so they are easier to find and understand; be a hierarchy of precedence where if in a specific situations two documents in the hierarchy conflict, the document higher in the hierarchy takes precedence. express the principles that will underpin most aspects of an organisation's work and decisions, and guide the development of policies and procedures For example the National Framework for Recovery-Oriented Mental Health Services provides a structure or skeleton so that all related programs, services, policy and procedures can be developed or shaped to fit. Policies, procedures and systems fit together or build on each other to create effective, fair, ethical, accountable and equitable structures. Practice standards Practice standard define the standards associated with a profession eg nursing or social work. While there are no Work Practice Standards for mental health there are generic resources for community work. They were developed by the Australian Community Workers Association and available on the ACWA website. The community work standards are: Standard 1: Ethical Practice; Standard 2: Regulatory Framework ; Standard 3: Development and Supervision; Standard 4: Client Rights ; Standard 5: Confidentiality ; Standard 6: Acknowledgement of Diversity; Resource Book Foundations of Peer Work – Part 2 126 © 2015 National Mental Health Commission Records Management Records management (RM) and Records and Information management (RIM) is the supervision and administration of soft copy (digital) or hard copy (paper records), regardless of format. A well maintained records management system supports services to provide quality accountable service system. It includes the confidential and secure collection, access, maintenance and disposal of records. Covers paper records, media and electronic data (covers digital/ computer record and cloud storage). Right In jurisprudence and law, a right is the legal or moral entitlement to do or refrain from doing something or to obtain or refrain from obtaining an action, thing or recognition in civil society. Compare with privilege (which is a conditional entitlement and can be revoked), or a thing to which one has a just claim. Universal Declaration Of Human Rights In 1948, the United Nations member countries adopted the first international statement of human rights called the Universal Declaration of Human Rights. It is comprised of 30 Articles and is still the primary document used today although other conventions and declarations have been added since eg . United Nations Convention on the Rights of Persons with Disabilities (CRPD). Vilify To speak evil of, or to defame. To make malicious and abusive statements about somebody. Often discrimination against people on the basis of their race, colour, descent, national or ethnic origin. Resource Book Foundations of Peer Work – Part 2 127 © 2015 National Mental Health Commission Appendix B: Glossary of other Key Terms Terms Definition Access and Equity This refers to ensuring the service is available to everyone who is entitled to use the service; and ensuring that fair treatment and justice, is experienced by everyone who is entitled to use the service. It includes identifying and removing the barriers to entry for using the service. Advocacy is the act of representing, pleading or negotiating on behalf of another person to promote, protect and defend their rights, welfare, wellbeing, justice and quality of life. AntiDiscrimination refers to laws ensuring the right of people to be treated equally. These laws aim to eliminate discrimination on the basis of disability, race, gender, pregnancy, marital status, sexual orientation, age, and marital status. Boundaries Limits or restrictions between a worker and a service user commonly relating to things like physical contact (touch, hugs), giving and receiving gifts, appropriate clothing, use of language, relationships or contact outside work, , self-disclosure and so on. They exist to protect consumers from misuse or abuse by workers and to establish the ‘professional nature’ of the relationship Boundary Violations These occur when workers cross the line of decency and violate or exploit service users. They are harmful to the service user and always unethical. Carer A person of any age who provides personal care, support and assistance to another person because the other person has a disability, a medical condition or a mental illness, or is frail. (Mental health statement of rights and responsibilities 2012) Citizenship The term Citizenship in the context of marginalised groups (including those living with mental health issues) refers to fully belonging and participating in all aspects of community life. Citizenship as defined by Michael Rowe (2014) involves “the person’s strong connection to the “5 Rs” of rights, responsibilities, roles, resources, and relationships that a democratic society offers to its members through public and social institutions and through “associational life,” meaning social networks and voluntary groups and activities”. This includes equal representation in areas like employment, education, health, social relationships, financial resources, quality of life, housing and other areas so they have the same ability to participate and the same access to opportunities as other people. Clinical recovery This is primarily defined by mental health professionals and refers to a reduction or cessation of symptoms and ‘restoring social functioning’ (Victorian Department of Health, 2011). See also personal recovery. Resource Book Foundations of Peer Work – Part 2 128 © 2015 National Mental Health Commission Terms Definition Complex trauma refers to the impact of more than a single traumatic event. Both the traumatic event(s) and circumstances and the impacts of the events are said to be complex because they have ongoing, multi-dimensional consequences. With ‘complex trauma’ the impacts of traumatic events and circumstances are commonly: Severe; Repeated; Occurring in childhood; involve an ongoing relationship with the perpetrator of abuse (including in circumstances of captivity) Conciliation is often used in disputes to identify a right that’s been breached and find the optimal solution. The person doing this is often an authority figure who can even give guidance on settlement proposals and strategies. Confidentiality this refers to keeping people’s personal information private and secure, treating it and the person with respect. It is fundamentally about protecting a person’s privacy rights. It is ethically and legally required; and protects the rights of the consumer, carers and others. Confidentiality is an obligation that restricts an agency from using or disclosing any information in a way that is contrary to the interests of the person or organisation that provided it. Privacy and confidentiality are enforced by legislation and underpinned by professional codes of conduct to protect mental health information from unauthorised disclosure. Conflict is a serious disagreement, argument or disharmony between two people who hold different or contradictory perspectives on values or ideas. Consumer and Carer participation Consumers and carers have the right to participate in and direct their own treatment making informed decisions about what they want. They also have under national policy the right to participate at the organisation level in providing feedback and perspectives on the services, programs, procedures and practices. Ideally this will involve a genuine opportunity to design, develop, and evaluate programs and not just a token or superficial involvement, in some cases it may even involve the consumers making the choices and leading the process. They may also choose to participate at the state or national level influencing and advocating for better services and outcomes for consumers and carers and providing expert perspectives and insights based on lived experience. This may involve sitting on boards, committees, forums and reference groups. Dignity of risk refers to a person’s right to experience all that life has to offer, even though taking part in an activity may entail some element of risk. To put it simply, dignity of risk means letting people do their own thing, make their own choices and take some reasonable risks without constant worker or organisational interference. It doesn’t mean that workers ignore their duty of care responsibilities. A worker might, for example, provide the person with information about the choices they are making and the risks they are taking. There will still be times when the worker has to take action to protect the person, so that they are not negligent in their duty of care. Workers should always be actively working to encourage freedom of choice and autonomy. Resource Book Foundations of Peer Work – Part 2 129 © 2015 National Mental Health Commission Terms Definition Discrimination refers to the unjust or prejudicial treatment of different groups or categories of people, particularly on the grounds of race, gender, disability, age, ethnicity, marital status or sexual preference. It involves bias, unfairness, unfavourable treatment, limited opportunities, ridicule, threats or even abuse. Dual (or Multiple) Relationships This refers to any situation where more than one role exists between a worker and a consumer. Examples include when a consumer is also a member of the same club, a neighbour, a team member, friend, family member, co-worker and so on. It might involve playing in a sports team, attending a party, attending church or attending the gym at the same time. Duty of care is the duty to take reasonable care, so that other people are not harmed. We all have duty of care. For example, staff members have a duty of care to consumers and carers, to each other and to the community; and employers have a duty of care to staff members, to consumers, to carers and to the community. Duty of care comes from the legal concept of ‘negligence’, which is part of common law. The common law that applies to a situation, as it is not based on an Act of Parliament, but on decisions that judges have made about what is considered appropriate at a particular time and under particular circumstances. Early intervention Early intervention refers to the provision of specialist and support services for a person either early in their lives or early in the development of the, a problem, issue or mental health concern or early in the episode of an illness. The aim is to promote social, emotional, wellbeing , improve quality of life and outcomes or address health, behavioural or cognitive concerns. Intervening early can result in better outcomes both now and in the future and has been found to reduce the impact of mental illness in the short-term and across their life span. Empowerment Having the power and confidence to do the things you want. It is a feeling of gaining power and freedom. Peer workers may work with the person to collaboratively increase their capacity to confidently make choices and take desired action. Facilitation is the act of making something easier. It is the process of leading or helping a group to identify, plan and work toward their common objectives The person doing this uses advanced communication and group management skills; and focuses on developing processes and activities that allow people to work together to achieve their desired aims and to solve problems. Health Promotion According to the World Health Organisation health promotion refers to the process of enabling and empowering people to have increased control over and the ability to improve their health. It can have an individual, a group, a community or population who are focus. It can produce social, emotional, psychological and environmental outcomes. The first International Conference on Health Promotion was held in Ottawa, Canada in November, 1986. It identified the benchmarks and foundations for the emerging field of health promotion. Resource Book Foundations of Peer Work – Part 2 130 © 2015 National Mental Health Commission Terms Definition Holistic This approach focuses on the whole of something, not just individual parts. This approach focuses on the whole person, not just a diagnosis of illness but on all of the things that make that person who they are: their total identity including their social context; relationships; connections; their culture and spiritual beliefs or practices; their emotional state; and their thinking and mind function, as well as their health and physical body functions. Human RightsBased Approach “Every person is free and equal in dignity and rights.” (Aust. Human Rights Commission) This approach involves empowering people to understand and claim their rights, allowing them to actively participate and make informed decisions. It is based on the P.A.N.E.L. Principles: Participation, Accountability, Nondiscrimination and equality, Empowerment and Legality. Iatrogenic Treatments that harm or have harmful or adverse effects are called iatrogenic. The unfavourable effects can be physical, emotional, cognitive (thinking). It can be from adverse effects of medication or an inappropriate or harmful treatment approach for that person. Informed Consent Workers seek this from those they work with before taking action or disclosing anything. It ensures the person understands all relevant facts about any service or program you are offering, and any consequences of the decisions they are making or permission they are giving. It is a human right and an ethical requirement to ensure that people have a full understanding of their choices regarding disclosing information or accepting services. Interpersonal Trauma This typically involves the use or abuse of power or betrayal by one person (or group of people) over another person (or group of people). Trauma that occurs at the hands of another person (or group of people) has the potential to impact on the way the person understands and forms other relationships throughout their life, including relationships with services. Interpersonal trauma involves a betrayal of trust, which can generalise to a loss of trust in all other relationships with people. Limits of Confidentiality There are some situations that override privacy. For example when a person is at risk of harming themselves or another person; concerns about the neglect or abuse of a child or other vulnerable person; reporting any crime, eg murder, rape etc; or if a court subpoena is presented. Lived experience This refers to the experience people have of their own or others’ mental health issues, emotional distress or mental illness, and of living with, and recovering from, the impacts and consequences of their own or others’ mental health issues, emotional distress or mental illness. Mediation involves resolving a conflict, dispute or controversy by using an independent person to help two parties who are in conflict to come to an agreement or settlement. The person doing this assists the parties to identify their needs, priorities and concerns; then assists them to reach a mutually satisfactory agreement. Resource Book Foundations of Peer Work – Part 2 131 © 2015 National Mental Health Commission Terms Definition Mental illness This refers to disturbances of mood or thought that can affect behaviour and distress the person or those around them, so that the person has trouble functioning normally. Mental illnesses include anxiety disorders, depression and schizophrenia (National Mental Health Commission 2012). Mutuality This is a peer work value that ensures both people in a relationship feel valued, equal and important. Wherever possible, equality is the aim. Power is shared as much as possible. In the peer relationship both the person and the peer support worker are valued and respected. Negotiation is a dialogue between two parties or individuals attempting to resolve an issue or determine agreement on a matter themselves. It can involve bargaining and compromise as they attempt to agree on a mutually acceptable position or solution. NonDiscrimination refers to the fair, equitable and non-prejudicial treatment of people. Peer leadership approaches Consumers and carers with lived experience and peer work experience may in time find themselves leading or managing other peers with lived experience. This could be informal mentoring and support to more formal line management or supervision/ covision. It is important that peer leaders are committed to and live out the values and philosophies of peer work, particularly role modelling the principles of mutuality and reciprocity. There are also national initiatives to identify, train and support peer leaders. Peer support This refers to people with lived experience of mental health issues supporting each other in their recovery journey. Support may be formal or informal, voluntary or paid. It may be stand-alone support or part of a program, project or service run either by peers themselves or by professional mental health service providers. Person centred Approach involves creating a safe, warm genuine, respectful relationship that conveys to the person a sense of positive regard, so they feel valued and see they are the experts in their own lives and experiences. With support and encouragement they will develop self awareness, find their own directions and solutions and draw on their strengths and potential to change their futures and manage their lives. The approach focuses on the person and their hopes, dreams and aspirations. It is not about making a person fit into a service or program but collaboratively holding hope and offering empathy to help them design the supports, service or program they require. The person will then solve their own problems and deliver their own solutions. Personal recovery This is defined as being able to create and live a meaningful and contributing life within a community of choice, with or without the presence of mental health issues. See also clinical recovery. Resource Book Foundations of Peer Work – Part 2 132 © 2015 National Mental Health Commission Terms Definition Prejudice is a negative, adverse and hostile opinion or judgment about a person or group/class of people. It is generally based on miscommunication, a misunderstanding or a bias in judgment. It is commonly not based on facts, sufficient knowledge or justified grounds. Privacy relates to an individual’s ability to control the extent to which their personal information, enabling identification, is available to others. Reasonable Adjustment This term refers to changes or modifications that an employer will make to a work environment to allow people with disabilities to work both productively and safely. To be employed the person needs to be able to perform the ‘important or inherent (required)’ tasks of the position; however they can receive support for the other components of the task and role as long as it doesn’t cause unjustifiable hardship to the organisation. The provision of this is a legal requirement and an organisation may be eligible for some funding support from the Australian government to modify the workplace. Mental health issues are covered by this legislation and so peer workers can request special support. Reciprocity This is a peer work value where people grow and learn from each other so learning is a two-way street. In this sort of relationship support goes both ways and both people give and receive – it is not just one person helping the other. Both can benefit from the relationship; however, the aim is for the primary attention and purpose to be supporting the person’s recovery journey. The purpose of the relationship is to support the person to move forward in their recovery and achieve their goals, so the focus of the relationship needs to be on that person’s needs and goals Recovery “Recovery means gaining and retaining hope, understanding of ones abilities and disabilities, engagement in an active life, personal autonomy, social identity, meaning and purpose in life, and a positive sense of self.” - Principles of recovery oriented mental health practice http://www.health.gov.au/internet/main/publishing.nsf/Content/CFA833CB8C1 AA178CA257BF0001E7520/$File/servpri.pdf Recoveryoriented practice This refers to the application of capabilities that support people to recognise and take responsibility for their own recovery and wellbeing, and to define their own goals, wishes and aspirations. Principles of recovery oriented mental health practice include: Uniqueness of the individual; Real choices; Attitudes and rights; Dignity and respect; Partnership and communication; Evaluating recovery (by the person or the service) Resource Book Foundations of Peer Work – Part 2 133 © 2015 National Mental Health Commission Terms Definition Retraumatisation Once a person has experienced a trauma, it is possible for other events to trigger or inadvertently lead to re-traumatisation where the person reexperiences some feelings, thought, memories, body reactions or other aspects of the traumatic experience. This is one of the reasons it is important to operate from a trauma-informed perspective. It could be a word, a situation, a picture, a smell, a touch, tone of voice, a time of day, an anniversary, criticism, embarrassment, shame, humiliation, lack of control in a situation, use of force, anger etc. Role Conflict Clash between two or more roles (eg being a peer worker and co-worker, peer worker and friend, peer worker and carer, peer worker and mother, peer worker and son). The person experiences conflicting role requirements, including competing ethical demands in the role, eg engaged as an advocate but not delegated sufficient independence and autonomy to do so effectively. Role Confusion Concern or stress caused by misunderstanding about a role. It commonly happens in two ways when a new worker doesn't receive adequate orientation, induction or training, so is uncertain about role requirements. It also occurs when co-workers expect different things from the peer role, applying direct or indirect pressure to meet their expectations, eg stating peer workers should do certain things. Role Strain This refers to stress within a role, eg overworked, unrealistic expectations This can be experienced as a result of a job exceeding current capacity, competency or level of experience, eg work hours beyond optimal levels for personal recovery, work requirements beyond ability of trained competency. Self-Advocacy involves representing yourself and your best interests. This includes asserting and negotiating in your own interests, for example: speaking up for yourself about your rights, responsibilities and interests; asking for what you want and need; and speaking up and managing your own affairs and making your own decisions. Self-Stigma is the internalisation and acceptance of society’s stigmatising perceptions of mental illness. This can lead to a lack of self-esteem or confidence in a person’s own capacity, a sense of worthlessness, social withdrawal, dependency, reluctance to seek support or services and an excessive use of alcohol and drugs. Social Justice This involves fighting against injustice; fighting for people’s rights; and fighting for equal economic, political and social opportunities for all people. Opportunities include access to education, employment, financial security, housing services etc. This includes fighting for justice addressing disadvantage, and opposing discrimination and prejudice. It also involves promoting tolerance and valuing diversity and culture and lifestyle choice. Resource Book Foundations of Peer Work – Part 2 134 © 2015 National Mental Health Commission Terms Definition Stigma is a mark of disgrace or infamy, like a stain or blot on someone’s reputation. It can be a physical mark or a social one. People with a lived experience of mental health issues often experience labelling, stereotyping and this. It can result in feelings of shame, blame, hopelessness or distress; as well as misrepresentation and stereotyping in the media and a reluctance to accept support or access services. Strengths based approach focuses on the person’s abilities and capacities literally their strengths. Other approaches may focus on what is wrong with the person (ie their deficits) and concentrates on what needs to be fixed. Using a strength based approach begins by identifying what is right and what is going well, then builds on these strengths to further increase the person’s resilience and capacity. It is by nature an empowering process that build confidence and autonomy and discourages dependency. It is more than simple praise and encouragement. It seeks to collaboratively identify and acknowledge the person’s real strengths and potential rather than their limits. Systemic Advocacy involves working as an individual or group to influence change in systems, often organisational or government policy, laws, practices or programs. It can include lobbying, media releases, campaigns, social action campaigns, writing letters, petitions etc. Trauma refers to an individual’s response to an unexpected and extremely stressful event or series of events that overwhelm the individual’s ability to understand and cope. The response is individual and two people experiencing the same trauma may react very differently. Trauma can happen to anyone, however vulnerable people are at greater risk. This includes people with disabilities, the homeless (particularly young people), Aboriginal and Torres Strait Islander people and refugees, people in the criminal justice system, women, aged and frail people Trauma can affect a person’s brain development, thoughts, feelings, behaviours, relationships and sense of self. Vicarious Trauma Listening to a person’s thoughts, feelings and experiences about being involved in a traumatic situation can actually lead to a trauma reaction in a peer or support worker. This is known as ‘vicarious trauma'. Just listening to a traumatic story being retold can expose a worker to images and emotional reactions that are draining, frightening and distressing. Workers are empathic and generally very caring. They are often very committed and have a strong sense of responsibility, which can increase the likelihood of vicarious trauma. They often have a strong desire to help, and can feel helpless themselves if they can’t. Listening to very painful and distressing stories can result in a worker struggling to release the feelings of concern and heaviness later. Resource Book Foundations of Peer Work – Part 2 135 © 2015 National Mental Health Commission Appendix C: Key Legislation for Mental Health Workers The NSW Mental Health Act 2007 THE MENTAL HEALTH RIGHTS MANUAL (MHRM): An online guide to the legal and human rights of people navigating the mental health and human service systems in NSW (4th Edition) 2015 (http://mhrm.mhcc.org.au/home/) Written in plain English, the Manual is an invaluable readily accessible resource, bringing together vital information crucial to anyone having to navigate the mental health system, enabling them to become acquainted with their rights, the legal and service system, and access support and guidance. It provides much more detailed information than the brief overview provided here. The main purpose of the Mental Health Act 2007 (NSW) is to ensure the 'care and treatment' of people in NSW who are 'mentally ill' or 'mentally disordered' (these terms are defined in the Act and do not necessarily have the same meanings as when used elsewhere). ‘As defined in the Act …a mentally ill person (Section14) is: 1) A person is a mentally ill person if the person is suffering from mental illness and, owing to that illness, there are reasonable grounds for believing that care, treatment or control of the person is necessary: (a) for the person’s own protection from serious harm, or (b) for the protection of others from serious harm. (2) In considering whether a person is a mentally ill person, the continuing condition of the person, including any likely deterioration in the person’s condition and the likely effects of any such deterioration, are to be taken into account.’ Serious harm can include: Physical harm Harm to your reputation and/or relationships Financial harm Self-neglect, and/or Neglect of others (e.g. children and other dependents).’ Objects of Act The Objects of the Act set out its fundamental policy and purpose and are an important guide to its interpretation. The objects of this Act are: a. to provide for the care and treatment of persons who are mentally ill or mentally disordered, and to promote the recovery of persons who are mentally ill or mentally disordered, b. to facilitate the care and treatment of those persons through community care facilities, Resource Book Foundations of Peer Work – Part 2 136 © 2015 National Mental Health Commission c. to facilitate the provision of hospital care for those persons on a voluntary basis where appropriate and, in a limited number of situations, on an involuntary basis, d. while protecting the civil rights of those persons, to give an opportunity for those persons to have access to appropriate care, e. to facilitate the involvement of those persons, and persons caring for them, in decisions involving appropriate care and treatment. The Objects of the Act also refer to voluntary and involuntary hospital treatment and to the involvement of people dealt with under the Act and their carers in decisions about 'care and treatment'. The amendments to the Mental Health Act 2007 (NSW) were assented on the 28 November 2014 by way of the Mental Health Amendment (Statutory Review) Act 2014. The Mental Health Act 2007(NSW) proclaimed on 31 August 2015 now states the primary objective of the Act to be ‘to provide for the care and treatment of, and to promote the recovery of, persons who are mentally ill or mentally disordered.’ The Act has removed the word ‘control’ from, and introduces the concept of ‘recovery’ to, the Objects of the Act, and refers only to ‘care and treatment.’ This change may reflect a legislative intention to give greater weight to the views of consumers when decisions are being made about care and treatment under the Act. 8 Principles for care and treatment It is the intention of Parliament that the following principles are, as far as practicable, to be given effect to with respect to the care and treatment of people with a mental illness or mental disorder: Resource Book Foundations of Peer Work – Part 2 137 © 2015 National Mental Health Commission The 8 Principles for care and treatment include: (a) people with a mental illness or mental disorder should receive the best possible care and treatment in the least restrictive environment enabling the care and treatment to be effectively given, (b) people with a mental illness or mental disorder should be provided with timely and high quality treatment and care in accordance with professionally accepted standards, (c) the provision of care and treatment should be designed to assist people with a mental illness or mental disorder, wherever possible, to live, work and participate in the community, (d) the prescription of medicine to a person with a mental illness or mental disorder should meet the health needs of the person and should be given only for therapeutic or diagnostic needs and not as a punishment or for the convenience of others, (e) people with a mental illness or mental disorder should be provided with appropriate information about treatment, treatment alternatives and the effects of treatment and be supported to pursue their own recovery, (f) any restriction on the liberty of patients and other people with a mental illness or mental disorder and any interference with their rights, dignity and self-respect is to be kept to the minimum necessary in the circumstances, (g) any special needs of people with a mental illness or mental disorder should be recognised, including needs related to age, gender, religion, culture, language, disability or sexuality, (g1) people under the age of 18 years with a mental illness or mental disorder should receive developmentally appropriate services, (g2) the cultural and spiritual beliefs and practices of people with a mental illness or mental disorder who are Aboriginal persons or Torres Strait Islanders should be recognised, (h) every effort that is reasonably practicable should be made to involve persons with a mental illness or mental disorder in the development of treatment plans and recovery plans and to consider their views and expressed wishes in that development, (h1) every effort that is reasonably practicable should be made to obtain the consent of people with a mental illness or mental disorder when developing treatment plans and recovery plans for their care, to monitor their capacity to consent and to support people who lack that capacity to understand treatment plans and recovery plans, (i) people with a mental illness or mental disorder should be informed of their legal rights and other entitlements under this Act and all reasonable efforts should be made to ensure the information is given in the language, mode of communication or terms that they are most likely to understand, (j) the role of carers for people with a mental illness or mental disorder and their rights under this Act to be kept informed, to be involved and to have information provided by them considered, should be given effect. Resource Book Foundations of Peer Work – Part 2 138 © 2015 National Mental Health Commission The amendments to the Mental Health Act 2007 (NSW) were assented on the 28 November 2014 by way of the Mental Health Amendment (Statutory Review) Act 2014. These changes are now in force. The Mental Health Act 2007 now restates the primary objective of the Act to be ‘to provide for the care and treatment of, and to promote the recovery of, persons who are mentally ill or mentally disordered.’ The word ‘control’ has been removed from the Act, and the concept of recovery has been introduced to the Objects of the Act, which refers only to care and treatment. This change may reflect a legislative intention to give greater weight to the views of consumers when decisions are being made about care and treatment under the Act. If it is decided that you have a 'mental illness' or are 'mentally disordered' as defined in the Act, you can be: taken to a hospital or psychiatric unit against your will for further assessment; treated in hospital without you agreeing to this; stopped from leaving a hospital that you've been taken to, including being kept behind locked doors and forcibly taken back to hospital if you leave; placed on a Community Treatment Order when you are not in hospital care, and made to have regular treatment, usually medication. Main rights under the Mental Health Act 2007 (NSW) If you are being dealt with under the Mental Health Act 2007 (NSW), you have a right to be: be given a Statement of Rights given information about treatment, treatment alternatives and the possible effects of treatment; be involved in the development of your treatment plan and any plans for your ongoing care; told your legal rights under the Act in a language that you can understand. The Mental Health Act 2007 (NSW) does not give you a right to be admitted to a mental health facility or to extend your stay (either as a voluntary or involuntary patient) if the treating doctors don't think it is clinically appropriate or necessary. The principle of least-restrictive care There is a principle under the Mental Health Act 2007 (NSW) that mentally ill and mentally disordered people should receive the care and treatment they require in the ‘least restrictive environment consistent with their safe and effective care.’ An Authorised Medical Officer of an inpatient unit or Director or delegate of a Community Mental Health Facility is required to provide care and treatment in accordance with this principle. Both aspects of the principle (‘least restrictive environment’ and ‘consistent with safe and effective care’) are important and must be balanced. For example, if a person can recover from the onset or a relapse of a mental health condition with care and treatment at home, and with family support, they ought not to be admitted to hospital. Conversely, if it would be unsafe or ineffective for a person to recover from the onset or relapse of a mental illness at home (perhaps because the person refuses treatment), and they are a risk of harm to themselves or others, an involuntary admission to hospital may well be the least restrictive alternative. Resource Book Foundations of Peer Work – Part 2 139 © 2015 National Mental Health Commission The principle of the least restrictive option is an important test for the type of mental health interventions authorised under the Mental Health Act 2007, but it is applied practically rather than theoretically. Consequently, any form of less restrictive care proposed must also be ‘reasonably available.’ The Mental Health Act defines three types of persons: Voluntary patient: where an individual is mentally ill and agrees to go to hospital for treatment; Involuntary patient: includes both ‘mentally ill’ persons and ‘mentally disordered’ persons detained under the MH Act; Forensic patient: a person with a mental illness who has been charged with a criminal offence and is in prison, hospital, or on conditional release under an order of the Mental Health (Forensic Provisions) Act 1990 or the Criminal Appeal Act 1912. Voluntary patients under the Mental Health Act 2007 (NSW) Although the Mental Health Act 2007 (NSW) is mainly about involuntary treatment and admission, it also deals with 'voluntary patients'. If a person wants to be admitted to hospital for treatment and the hospital assesses them as appropriately needing care and treatment, then the person is a voluntary patient and can discharge themselves from hospital at any time, preferably having told staff so that they can make appropriate after-care plans. If a person decides to discharge themselves and the hospital think this is inappropriate, the hospital can involuntarily detain the person for review before the MHRT as an involuntary patient. The rights and obligations of competent adult 'voluntary patients' under the Mental Health Act 2007 (NSW) are fundamentally the same as other adult patients in general hospitals. There are, however, some differences: The Mental Health Review Tribunal must review voluntary patients every 12 months if they stay as a patient of a psychiatric hospital or unit. A voluntary patient can be made an involuntary patient at any time without notice if they are assessed as being mentally ill or mentally disordered under the definition of these terms in the Mental Health Act 2007 (NSW). Although many voluntary patients see this as unfair when it happens, the Mental Health Act 2007 (NSW) says this can happen. The amendments to the Mental Health Act 2007 (NSW) were assented on the 28 November 2014 by way of the Mental Health Amendment (Statutory Review) Act 2014. These changes are now in force. The Mental Health Act 2007, gives an authorised medical officer of a public psychiatric unit the power to detain a voluntary patient in hospital for a period of up to two hours for the purpose of assessing if he or she is a mentally ill or mentally disordered person who ought to be detained as an involuntary patient. It also requires an Authorised Medical Officer of a mental health facility to give a person who becomes a voluntary patient a written Statement of Rights and to provide them with an oral explanation of those rights. These changes are now in effect. Resource Book Foundations of Peer Work – Part 2 140 © 2015 National Mental Health Commission The Mental Health Rights manual has useful information about the power of ‘enduring guardian’ and guardians in admitting a person (voluntarily or involuntarily) The Mental Health Act 2007 (NSW) allows children under 16 to be admitted as voluntary patients by their parents. Where a person has a legally appointed guardian, the guardian may be involved in decisions about admission and discharge. In this respect, a guardian is automatically recognised as a person’s Designated Carer under the Mental Health Act 2007 (NSW). The amendments to the Mental Health Act 2007 (NSW) were assented on the 28 November 2014 by way of the Mental Health Amendment (Statutory Review) Act 2014. These changes are now in force. The Mental Health Act 2007 changes the term ‘Primary Carer’ to that of ‘Designated Carer.’ A designated carer can also be a person who is a close relative or friend who has frequent contact and interest in the care of a person with a mental health condition. The 'relative' of a person who is an Aboriginal or Torres Islander includes a person who is part of the extended family or kin of a person according to the indigenous kinship system of the person's culture. Involuntary Patients Under the NSW Mental Health Act 2007 a person may be involuntarily admitted to hospital either because they are ‘mentally ill’ or ‘mentally disordered’. They are assessed by two 'authorised medical officers' usually but not always psychiatrists. The legal definition of mental illness in the Act differs from a clinical diagnosis of illnesses such as schizophrenia or bi-polar disorder. The legal definition is used to decide whether a person has a mental illness that will require treatment without his or her consent. A person cannot be detained just because they have a diagnosis of mental illness. They can only be detained if they are showing signs and symptoms such as delusions and hallucinations, and suicidality which would put them in danger of self- harm (including harm to reputation, serious neglect or a danger to others. Forensic patient The Mental Health (Forensic Provisions) Act 1990 (NSW) sets out how criminal proceedings are dealt with in the Supreme, District and Local Courts when the defendant has a mental disorder. It also deals with mental illness as a legal defence in criminal cases, as well as with forensic and correctional patients, including setting out the role and powers of the Mental Health Review Tribunal in reviewing forensic and correctional patients. When a person is assessed as a ‘Mentally ill’ patient: A person’s involuntary stay in a mental health facility may be extended by way of an involuntary patient order. If a person is found to be a mentally ill person as an ‘assessable person’ and must be brought before the Tribunal for a Mental Health Inquiry ‘as soon as practicable’. This will usually take place within 2-3 weeks after the person is detained in the mental health facility to allow sufficient time for the person to be fully assessed and for an appropriate treatment or discharge plan to be developed. When it hears an application for these orders, the Tribunal must decide if the person is a ‘mentally ill person’. Resource Book Foundations of Peer Work – Part 2 141 © 2015 National Mental Health Commission The person is usually represented by the Mental Health Legal Advocacy Service or their own lawyer. Prior to 21 June 2010, the enquiry was held in front of a magistrate (see NSW Health handout “Becoming an Involuntary Patient”) The Tribunal can set a review date for up to 3 months in hospital or discharge them. However, the hospital is obliged to discharge a person as soon as they become well enough. The review is necessary in case a person still remains in hospital. Involuntary patients can be confined and given treatment against their wishes if they believe it is in the best interests of the patient. However, the MH Act says: … any restriction on the liberty of patients and other people with a mental illness or mental disorder and any interference with their rights, dignity and self-respect is to be kept to the minimum necessary in the circumstances. There is nothing in the MH Act 2007 that gives a hospital or any health care professional special permission to restrain or sedate involuntary patients or put them in seclusion. Medication should be prescribed at the minimum level consistent with proper care to ensure that the person can communicate with their legal representative. A patient or primary carer can appeal against the Authorised Medical Officer’s decision If the Authorised Medical Officer refuses to discharge the patient, or fails to determine the application for discharge within 3 working days. A person is considered a ‘mentally disordered person’ by law when they behave, for the time being, in such an irrational way that temporary care, treatment or control of the person is necessary as they are at risk of seriously harming themselves or others. This category is most commonly used where a person is actively suicidal, loses control following a personal crisis, or is psychotic under the influence of drugs. When a person is assessed as ‘Mentally disordered’ they: Can only be detained for three days, not including weekends and public holidays. Can be confined and given treatment against their wishes, (see above). Must be examined every 24 hours by an accredited person/doctor. Must be released if the doctor decides the person is no longer mentally disordered. May be detained for no more than three consecutive three-day-periods in any one calendar month (in practice many are discharged the following day) The NSW Mental Health Act 2007 provides authority to Ambulance staff (once they have completed training) to transfer people to and from mental health facilities as well as sedation and search powers. Police involvement should only be required when there are serious concerns about safety of the person or others. Carers The Mental Health Act 2007 (NSW) has some new terms and categories of carers eg a new category of persons called “Principal Care Provider” who are persons entitled to be informed of a range of matters about the person for whom they provide care, including about their admission, aspects of treatment and discharge. A designated carer can also be a person who is a close relative or friend who has frequent contact and interest in the care of a person with a mental health condition. The 'relative' of a Resource Book Foundations of Peer Work – Part 2 142 © 2015 National Mental Health Commission person who is an Aboriginal or Torres Islander includes a person who is part of the extended family or kin of a person according to the indigenous kinship system of the person's culture. It is important to remember that all carers, people with mental illness and health care providers have legal rights and responsibilities, both under the Mental Health Act 2007 (NSW) and under the general law. The Mental Health Amendment (Statutory Review) Act 2014 (NSW) has replaced the term “Principle Carer” with that of “Designated Carer.” It also introduces a new category of persons called “Principle Care Providers” who are persons primarily responsible for providing care and support to a person with mental illness. Principle Care Providers have a similar right to information about the treatment of the person for whom they care to Designated Carers. A designated carer can also be a person who is a close relative or friend who has frequent contact and interest in the care of a person with a mental health condition. The 'relative' of a person who is an Aboriginal or Torres Islander includes a person who is part of the extended family or kin of a person according to the indigenous kinship system of the person's culture. Appointment of a Designated Carer The Mental Health Act 2007 (NSW) allows a patient (both voluntary and involuntary) to appoint a 'Designated Carer', who then automatically receives certain information about that patient. One purpose of changes to the Mental Health Act 2007 (NSW) back in 2007 was to recognise the importance of carers and give them access to some information to help them to provide care and support to a relative or friend who has a mental illness, whilst at the same time giving the person with mental illness the right to control who will be accessing this information. The main features of this part of the law are that: a person with mental illness may nominate (in writing) a person as their Designated Carer a person with mental illness can also put in writing that they don't want a particular person to be their Designated Carer a person with mental illness can revoke (cancel) a nomination of a Designated Carer nominations can be made at any time but stay in force for 12 months unless changed (revoked) by the person with mental illness in very limited circumstances, the nomination or revocation by the person with mental illness can be overturned. If a person with mental illness does not nominate a Designated Carer, one of the following will be regarded ('deemed') under the Mental Health Act 2007 (NSW) as the Designated Carer: a guardian (either Tribunal-appointed or an enduring guardian) a spouse (includes de facto spouse), 'if the relationship between the patient and the spouse is close and continuing' a person who is primarily responsible for providing support or care to the patient ('other than wholly or substantially on a commercial basis') a close friend or family member Resource Book Foundations of Peer Work – Part 2 143 © 2015 National Mental Health Commission In practical terms, a person who is deemed to be the Designated Carer (rather than nominated by the person with mental illness) continues as Designated Carer until the person with mental illness either excludes them from their care; revokes their nomination as Designated Carer, or nominates someone else as their Designated Carer. Under the Mental Health Act 2007 (NSW) two people may now be nominated as a Designated Carers, as well as the Principal Care Provider who is now recognised. The Act doesn’t say anything about what happens if a person with mental illness does not nominate a Designated Carer and there are two or more people who are eligible under the Mental Health Act 2007 (NSW) to be the person’s Designated Carer. The parents of a child under 14 who is a patient under the Mental Health Act 2007 (NSW) are the Designated Carers of that child. The Mental Health Act 2007 (NSW) says when a person with mental illness has reached 14 they can nominate their Designated Carer but also says if they are between 14 and 18, they can't exclude their parents from getting the information listed in the Mental Health Act 2007 (NSW). Access to patient information Just like other patients, patients with mental illness who are in hospital, can give permission for other people to have access to their private health information. Before 2007, public psychiatric hospitals had no standard procedures and rules to allow this to happen, and family members and spouses of adult competent patients participated in the care of patients in an ad hoc way. Often they were not given information about patients on the grounds of 'privacy', even where those patients had agreed (or would have if they were asked) to a carer having access to the information. Some family members want information about discharge and leave approved for involuntary patients because, for example, they want to be able to make sure appropriate support is in place or because they have fears of unwanted contact with the person. Click here to read about helping your friend or family member to be discharged. Under the Mental Health Act 2007 (NSW) Designated Carers have the right to be given certain information. For more about this, click here. Designated Carers do not have access to all patient information. The following information remains confidential unless the patient consents to it being discussed with the Designated Carer: Diagnoses Treatment other than medication Results and details of assessments and tests Content of conversations between doctor and patient. If the Designated Carer or any other family member or friend is given any of this information without the consent of the patient, the patient could complain to the Health Care Complaints Commission (HCCC) about a breach of confidentiality and to either the NSW or Federal Privacy Commissions about a breach of their rights under the privacy principles. (Such a complaint would be against the organisation or person that released the information not the person to whom it was given.) A designated carer can also be a person who is a close relative or friend who has frequent contact and interest in the care of a person with a mental health condition. The 'relative' of a person who is an Aboriginal or Torres Islander includes a person who is part of the extended family or kin of a person according to the indigenous kinship system of the person's culture. Resource Book Foundations of Peer Work – Part 2 144 © 2015 National Mental Health Commission Information to be provided to Designated Carers The Designated Carer is to be told: if the person with mental illness is detained in hospital if and when the person with mental illness is due to be part of a mental health inquiry by the Mental Health Review Tribunal what medication the person with mental illness has been given in hospital if the person with mental illness is away from the facility without permission or fails to return at the end of a period of leave if it is proposed to transfer the person with mental illness to another mental health facility or other health facility if the person with mental illness is discharged from the mental health facility if the person with mental illness has been re-classified as a voluntary patient if the Authorised Medical Officer is proposing to apply to the Mental Health Review Tribunal for an Electro Convulsive Therapy (ECT) Administration Inquiry or for a decision about whether the person with mental illness is capable of giving informed consent to ECT if a surgical operation is performed on the person with mental illness and they do not give consent or do not have capacity to give consent if the Authorised Medical Officer is proposing to apply to the Director-General of NSW Health or the Mental Health Review Tribunal for consent to perform a surgical operation or special medical treatment that requires special consent under the Mental Health Act 2007 (NSW) The Mental Health Act 2007 (NSW) also requires the mental health facility to consult with the Designated Carer about a discharge plan prepared for the release of the person with mental illness from hospital. A Designated Carer can also get information about the medication a person with mental illness is obliged to take under a Community Treatment Order (CTO). A designated carer can also be a person who is a close relative or friend who has frequent contact and interest in the care of a person with a mental health condition. The 'relative' of a person who is an Aboriginal or Torres Islander includes a person who is part of the extended family or kin of a person according to the indigenous kinship system of the person's culture. Access for Designated Carers and others to patient information with consent If a person with mental illness agrees to their Designated Carer, any other carer, family member or friend having access to the whole of their medical records, then no privacy or confidentiality obligations are breached. Arranging for this access to be provided will usually only occur after negotiation with the health care provider. It is important to note that if a Designated Carer does not have automatic access to the whole of a patient’s medical records. This is so, whether they have been appointed Designated Carer by a patient or if they are ‘deemed’ under the Mental Health Act 2007 (NSW), to have a right to access the information specified in the Mental Health Act 2007 (NSW). To access other health information in the patient’s files, they need the patient’s active consent, which would ordinarily be required to be in writing. People who want to have maximum participation in their friend or family member's care and treatment, and have that person's support for this, should encourage the person to nominate them as their Designated Carer and to consent in writing to them being given access to all of Resource Book Foundations of Peer Work – Part 2 145 © 2015 National Mental Health Commission the person's otherwise confidential files. It is best for the person with mental illness to do this when they are well, have an independent person (such as a lawyer) help them prepare the document saying this is what they want, and provide a copy of this document to all their usual health care providers. Community Treatment Orders (CTO) CTOs can be issued in hospital or in the community. The treatment order is specifically tailored to the person under the order, and failure to comply with the order can lead to them being ‘breached’ and brought into hospital. A CTO normally is set for 6 months unless the treatment team give good reason to do otherwise. For example, reasons given may be to: stabilise a patient’s condition and to establish a therapeutic relationship with a case manager/clinician in the community. CTOs can be made by an inpatient treating team; a community mental health team and /or GP and must be reviewed by the tribunal. A CTO no longer expires if the person is detained in hospital for assessment. Mental Health Review Tribunal (MHRT) The MHRT has an important role in the care and treatment of people with mental illness. The MHRT has three full-time and approximately one hundred part-time members. When it conducts hearings it is made up of three people: a lawyer, a psychiatrist and another person experienced in mental illness who may be a worker, e.g. psychologist, mental health nurse, OT, social worker etc., or a person with lived experience who is a consumer and/or carer. The MHRT travels to hospitals and community health centres to hold hearings. Most hearings are conducted by video and telephone used only when no other alternative available. The Mental Health Review Tribunal is a specialist quasi-judicial body constituted under the NSW Mental Health Act 2007. It has a wide range of powers that enable it to conduct mental health inquiries, make and review orders, and to hear some appeals, about the treatment and care of people with a mental illness. The MHRT can make the following orders: Involuntary Patient Orders –conduct Mental Health Inquiries, to determine whether a person detained in a hospital should be made an involuntary patient or continue to remain involuntary; hear appeals against a medical superintendent’s refusal to discharge an involuntary patient Review of Voluntary Patients - Review informal (voluntary) patients, who are long term hospital stay patients, usually every twelve months Community Treatment Orders – Make, vary and revoke Community Treatment Orders ; and hear appeals against a decision to make a community order Reviews of Forensic Patients – Reviews the status of all forensic patients Electro Convulsive Treatment (ECT) - Determine if voluntary patients have consented to ECT; and approve the use of ECT for involuntary patients Surgery and Special Medical Treatment Approve surgery on a patient detained in hospital; approve special medical treatment (sterilisation) Financial Management Orders - Can o order that a person's financial affairs be managed by the NSW Trustee, on a Financial Management Order Mental Health Advocacy Service The Mental Health Advocacy Service (MHAS) provides free legal advice and assistance about mental health law. They represent people in hearings that relate to their detention and treatment in hospitals and the community, and the management of their money. The service is able to assist: Resource Book Foundations of Peer Work – Part 2 146 © 2015 National Mental Health Commission People who have been involuntarily admitted to a hospital People appearing before the Guardianship Tribunal Relatives and friends are welcome to call for advice The service is part of Legal Aid NSW and is located at: Level 4, 74-76 Burwood Road, Burwood NSW 2134. The contact telephone is 02 9745 4277 Website: http://www.legalaid.nsw.gov.au/what-we-do/civil-law/mental-health-advice Official Visitors Program Official Visitors (OVs) are appointed by the NSW Minister for Health to visit people in mental health inpatient facilities in NSW and are available to assist consumers on Community Treatment Orders. OVs are independent from the health system and come from the community from a range of cultural, professional and personal backgrounds. They aim to safeguard standards of treatment and care, and advocate for the rights and dignity of people being treated under the NSW Mental Health Act 2007. OVs make regular visits to all inpatient psychiatric facilities across NSW; talk to patients, inspect records and registers, and report on the standard of facilities and services. They liaise with staff about any issues or concerns and report any problems to the Principal Official Visitor and/or the Minister for Health. OVs listen to consumers’ or carers’ concerns and help to resolve them, or, with permission, can act to resolve it on their behalf. Consumers, carers, family, friends, staff and other people with an interest in the care and treatment of people with a mental illness can contact Official Visitors. Consumers or carers can let the staff know if they want to see an OV during their next visit. Telephone 1800 208 218 between 9am and 5pm Monday to Friday, free of charge from within NSW. If you need to speak to an Official Visitor outside of these hours, phone 1800 208 218 and leave a message, or ask hospital staff to arrange it for you. The Official Visitor must be notified of the request within two days. You can also leave a letter in the Official Visitors Box in the ward, or write to: Official Visitors Locked Bag 5016, Gladesville NSW 1675 For more information see The Official Visitors website http://www.ovmh.nsw.gov.au/ Resource Book Foundations of Peer Work – Part 2 147 © 2015 National Mental Health Commission Discrimination; Abuse; Privacy; Confidentiality; Duty of Care and Dignity of Risk Discrimination Discrimination is when someone, because of a personal characteristic, is treated unfairly or less favourably than others in similar circumstances. Discrimination can also be when the same treatment of everyone has a negative impact on someone because of a personal characteristic. While this can be very negative, not all unfair treatment is considered to be discrimination under our legal system. Discrimination is prohibited by both state and federal legislation, which deal with certain personal characteristics (called ‘grounds’) in certain circumstances (called ‘areas’). Discrimination Legislation A quick guide to Australian discrimination laws (PDF) https://www.humanrights.gov.au/sites/default/files/GPGB_quick_guide_to_discriminat ion_laws_0.pdf A quick guide to Australian discrimination laws (Word) The Commonwealth Government and the state and territory governments have made laws to help protect people from discrimination and harassment. The commonwealth has a number of discrimination laws and the Australian Human Rights Commission has statutory responsibilities under them. They include: Age Discrimination Act 2004 Australian Human Rights Commission Act 1986 Disability Discrimination Act 1992 Racial Discrimination Act 1975 Sex Discrimination Act 1984. The Disability Discrimination Act 1992 covers people with psychiatric disability and mental illness issues that impact their daily. The Commonwealth laws and the NSW law overlap but cover some different areas. As both NSW laws and Commonwealth laws apply, you must comply with both. For example being granted an exception/exemption in one state doesn’t necessarily grant one for the other. The NSW government has their own legislation in relation to discrimination. The New South Wales act is the Anti-Discrimination Act 1977. Resource Book Foundations of Peer Work – Part 2 148 © 2015 National Mental Health Commission Commonwealth Legislation and grounds of discrimination Australian Human Rights Commission Act 1986 Discrimination on the basis of race, colour, sex, religion, political opinion, national extraction, social origin, age, medical record, criminal record, marital or relationship status, impairment, mental, intellectual or psychiatric disability, physical disability, nationality, sexual orientation, and trade union activity. Areas covered Discrimination in employment or occupation. Also covers discrimination on the basis of the imputation of one of the above grounds. Age Discrimination Act 2004 Discrimination in employment, education, access to premises, Discrimination on the basis of age – protects both provision of goods, services and younger and older Australians. facilities, accommodation, Also includes discrimination on the basis of age-specific disposal of land, administration of Commonwealth laws and characteristics or characteristics that are generally programs, and requests for imputed to a person of a particular age. information. Disability Discrimination Act 1992 Discrimination on the basis of physical, intellectual, psychiatric, sensory, neurological or learning disability, physical disfigurement, disorder, illness or disease that affects thought processes, perception of reality, emotions or judgement, or results in disturbed behaviour, and presence in body of organisms causing or capable of causing disease or illness (eg, HIV virus). Discrimination in employment, education, access to premises, provision of goods, services and facilities, accommodation, disposal of land, activities of clubs, sport, and administration of Commonwealth laws and programs. Also covers discrimination involving harassment in employment, education or the provision of goods and services. Racial Discrimination Act 1975 Discrimination on the basis of race, colour, descent or national or ethnic origin and in some circumstances, immigrant status. Racial hatred, defined as a public act/s likely to offend, insult, humiliate or intimidate on the basis of race, is also prohibited under this Act unless an exemption applies. Discrimination in all areas of public life including employment, provision of goods and services, right to join trade unions, access to places and facilities, land, housing and other accommodation, and advertisements. Continued over page Resource Book Foundations of Peer Work – Part 2 149 © 2015 National Mental Health Commission Commonwealth Legislation and grounds of discrimination Sex Discrimination Act 1984 Discrimination on the basis of sex, marital or relationship status, pregnancy or potential pregnancy, breastfeeding, family responsibilities, sexual orientation, gender identity, and intersex status. Sexual harassment is also prohibited under this Act. Fair Work Act 2009 Discrimination on the basis of race, colour, sex, sexual orientation, age, physical or mental disability, marital status, family or carer responsibilities, pregnancy, religion, political opinion, national extraction, and social origin. Areas covered Discrimination in employment, including discrimination against commission agents and contract workers, partnerships, qualifying bodies, registered organisations, employment agencies, education, provision of goods, services and facilities, accommodation, disposal of land, clubs, administration of Commonwealth laws and programs, and superannuation. Discrimination, via adverse action, in employment including dismissing an employee, not giving an employee legal entitlements such as pay or leave, changing an employee’s job to their disadvantage, treating an employee differently than others, not hiring someone, or offering a potential employee different (and unfair) terms and conditions for the job compared to other employees. NSW laws Legislation and grounds of discrimination New South Wales: Anti-Discrimination Act 1977 (NSW) Discrimination on the basis of race, including colour, nationality, descent and ethnic, ethno-religious or national origin, sex, including pregnancy and breastfeeding, marital or domestic status, disability, homosexuality, age, transgender status, and carer responsibilities. Areas covered Discrimination in employment, including discrimination against commission agents and contract workers, partnerships, industrial organisations, qualifying bodies, employment agencies, education, provision of goods and services, accommodation, and registered clubs. Sexual harassment and vilification on the basis of race, homosexuality, transgender status or HIV/AIDS status are also prohibited under this Act. Resource Book Foundations of Peer Work – Part 2 150 © 2015 National Mental Health Commission For a situation to be discrimination 2 factors need to be present. These are called the grounds and the area. Both are explained further below. GROUNDS + AREA = DISCRIMINATION Knowing about discrimination can help you to ensure that your service never does anything that might be considered discriminatory. It is far better to avoid any possibility of a consumer having grounds for making a complaint. It is not discrimination if a person is unable to perform the inherent requirements of a particular job. This must be determined on a case-by-case basis, according to the nature of the job and the nature of the circumstances. Step 1 – GROUNDS To work out whether someone can take legal action for discrimination the first thing you need to think about is the reason why they have been treated unfairly. Has the person been treated unfairly or harassed because they are…… (Tick if yes) Male or female (sex discrimination) Married, single or in a de facto relationship (marital status discrimination) Pregnant (pregnancy discrimination) Gay or lesbian (homosexual discrimination) Too young or old (age discrimination) A person with a disability, including physical, mental, cognitive or developmental/ or intellectual, or illness or disease, past or present (disability discrimination) A carer of someone, such as a child or family member Transgender or transsexual (transgender discrimination) Aboriginal or Torres Strait Islander or from a particular racial or ethnic background (race discrimination) Physical appearance Of a certain religious group OR they have been sexually harassed, or vilified on the basis of their race, transgender status, homosexuality or HIV/AIDS status. Sometimes the unfair treatment is obvious. For example, an employer tells the consumer that they did not get a job because they have a history of mental illness. That is called ‘direct discrimination’. Sometimes the discrimination is less obvious – rules, practices or policies which can have an unfair effect on a particular group. For example, it could be indirect discrimination if a university student was excluded for breach of attendance policy without regard to his mental illness having caused the problems in attendance. Resource Book Foundations of Peer Work – Part 2 151 © 2015 National Mental Health Commission Step 2 – AREA The next step in deciding if the person might have a discrimination case is to find out whether it happened in an area of life that is covered by discrimination laws. Was the person treated unfairly when they were…… (Tick if yes) At work (or in discriminatory advertising of a job) At school, TAFE, university or college Using a club or applying for membership at a club Securing accommodation or dealing with a real estate agent or landlord Trying to get a service or buy something, from e.g., a shop, a hotel, a restaurant, a government department, police, transport etc. Trying to use a public place or facility, such as public transport Assessed for insurance Eligible for or using government programs Trying to gain access to justice or legal systems Complaints about Discrimination The first thing a person can do if they think they have been discriminated against on the grounds of having a disability is to try talking to the person or organisation that appears to be discriminating. If that is unsuccessful then a formal complaint can be made to the AHRC Australian Human Rights Commission or the NSW Anti-Discrimination Board (ADB) within 12 months of the alleged discriminatory conduct or action. It is important that people are aware of the time limit. The Anti-Discrimination Board of NSW administers complaints under the Anti-Discrimination Act 1977 (NSW). They can be contacted on (02) 9268 5555 or Toll free on 1800 670 812. Refer to their website for information and fact sheets: www.lawlink.nsw.gov.au/adb. The Australian Human Rights Commission covers all of Australia and administers a range of discrimination laws including the Disability Discrimination Act 1992. They can be contacted by phone on 1300 656 419 (local call) or 02 9284 9888 Refer to their website for information and fact sheets: www.hreoc.gov.au. If you are unsure where to lodge a complaint, simply contact one of those organisations, and they will refer you to the other one should that be appropriate in the situation. Resource Book Foundations of Peer Work – Part 2 152 © 2015 National Mental Health Commission Abuse Abuse is the violation of an individual’s human or civil rights, through the act or actions of another person or persons. Neglect is a failure to provide the necessary care, aid or guidance to dependent adults or children by those responsible for their care. Types of Abuse 1. Physical abuse: intentionally using physical force which causes, or could cause, harm to a child or adult for example punching, pushing, hitting, slapping, burning, shocking, choking, throwing things, kicking, inflicting pain, forced feeding, denial of food, use of weapons, deliberately causing fear. 2. Sexual abuse: forcing someone to take part in sexual activity against their will including Any sexual contact between an adult and child 16 years of age and younger; or any sexual activity with an adult who is unable to understand, has not given consent, is threatened, coerced or forced to engage 3. Psychological or emotional abuse: Threatening (including verbal assaults, threats of maltreatment etc), harassing humiliating, intimidating, ignoring a person or denial of their cultural or religious needs and preferences. 4. Constraints and restrictive practices: Restraining or isolating an adult for reasons other than medical necessity, absence of a less restrictive alternatives to prevent self-harm, the use of chemical or physical means, denial of basic human rights or choices (such as religious freedom, limiting who they can see, where they can go or their access to property and resources). 5. Financial abuse: The wrongful or improper use of another person's assets or denying a person the use of their own assets or resources 6. Legal or civil abuse: Denial of access to justice, or legal systems available to other citizens. 7. Systemic abuse: Failure to recognise, provide or attempt to provide adequate or appropriate services, including appropriate services for the person’s age, gender, culture, needs or preferences. Types of Neglect include (but are not limited to): 1. Physical neglect: Failure to provide adequate food, shelter, clothing, protection, supervision, medical and dental care, or to place persons at undue risk through unsafe environments or practices. 2. Passive neglect: A caregiver’s failure to provide, or withholding the necessities of life, including food, clothing, shelter or medical care. 3. Willful deprivation: Wilfully denying a person support, assistance or access to needed medication or medical care, shelter, food thus exposing that person to risk of physical, mental or emotional harm Resource Book Foundations of Peer Work – Part 2 153 © 2015 National Mental Health Commission 4. Emotional neglect: The failure to provide the nurturance or stimulation needed for the social, intellectual and emotional growth and well-being of a child or an adult. The National Disability Abuse and Neglect Hotline The National Disability Abuse and Neglect Hotline is an Australia-wide telephone hotline for reporting abuse and neglect of people with disability. The Hotline works with callers to find appropriate ways of dealing with these reports. If a caller reports abuse or neglect in a government-funded service, the Hotline will refer the report to the government body responsible for funding the service. The funding body will investigate the report. If a caller reports abuse or neglect in any other situation, the Hotline will refer the report to an agency or government department able to investigate or otherwise address the report, such as the NSW Ombudsman or complaints-handling body e.g. Health Care Complaints Commission. The Hotline can be used by anyone to report cases of abuse and neglect of people with disabilities who are using government funded services in Australia. Types of government funded services used by people with disability include: open or supported employment accommodation community services respite care services If a caller reports abuse or neglect in any other situation, the Hotline will refer the report to an agency able to investigate or otherwise address the report, such as an ombudsman or complaints-handling body. How to make a report You can make a complaint simply by telephoning the Hotline on 1800 880 052. Anyone can call the Hotline to report cases of abuse or neglect or to find out more about the service. The Hotline is open from 8am to 8pm across Australia, seven days a week. The hotline staff can also be contacted by email [email protected]. The Hotline is closely aligned with the Complaints Resolution and Referral Service (CRRS), another initiative by the Australian Government supporting the needs of people with disability. See their website, (www.disabilityhotline.net.au) for more information. Private Workers You can make a complaint about private workers to the association to which they belong, i.e. College of General Workers and the NSW Health Carer Complaints Commission Resource Book Foundations of Peer Work – Part 2 154 © 2015 National Mental Health Commission NSW Health Carer Complaints Commission The Commission’s Inquiry Service handles inquiries from people who are concerned about the quality of the health care provided to them or to a family member or friend. The service also responds to questions from health service providers in relation to complaints. Inquiries are usually made by telephone or email. Sometimes people visit the Commission’s offices. Telephone: (02) 9219 7444 Toll Free in NSW: 1800 043 159 TTY service for the hearing impaired (02) 9219 7555 or contact the National Relay Service on 133 677 Fax (02) 9281 4585 Email: [email protected] Office: Level 13, 323 Castlereagh Street (corner of Hay St) Sydney NSW 2000 Business Hours 9.00am to 5.00pm Monday to Friday What kind of information will I need to report? You will be encouraged to report: your name, address and age, some information about the service in which the abuse is occurring, the name of the person or persons responsible for the abuse, the name, age and address of the person being abused. You will also need to give permission for the Hotline to pass information onto other organisations which can investigate your report. You will be contacted later to find out what action has been taken and if you are satisfied with the outcome. Child Protection Children and Young Persons (Care and Protection) Act 1998 (NSW) This NSW Act focuses on the welfare and wellbeing of children and young people and outlines how children in NSW must be treated and cared for. In particular it covers concerns of child abuse and neglect, child/youth participation and the care and placement of children at significant risk who are placed in out of home care. In addition it covers a range of other child wellbeing issues including licensing of child care services, employment of children, care proceedings in the Children’s Court, etc Mandatory reporting is a term for the community and health worker’s legislative requirement to report suspected cases of child abuse and neglect to government authorities. Mandatory reporting occurs in all states and territories although the legislation varies. The key difference relate to who must report and what needs to be reported. The table below produced by the Australian Institute of Family Studies summarises the requirements for NSW Resource Book Foundations of Peer Work – Part 2 155 © 2015 National Mental Health Commission Who is mandated to report? A person who, in the course of his or her professional work or other paid employment delivers health care, welfare, education, children's services, residential services or law enforcement, wholly or partly, to children; and A person who holds a management position in an organisation, the duties of which include direct responsibility for, or direct supervision of, the provision of health care, welfare, education, children's services, residential services or law enforcement, wholly or partly, to children Abuse and neglect types which must be reported What must be reported? Reasonable grounds to suspect that a child is at risk of significant harm; and Physical abuse Sexual abuse Emotional/ psychological abuse those grounds arise during the course of or from the person's work New South Wales requires mandatory reporting for a person under the age of 16 years Neglect Exposure to domestic violence Legal provisions Sections 23 and 27 of the Children and Young Persons (Care and Protection) Act 1998 (NSW) https://aifs.gov.au/cfca/publications/mandatory-reporting-child-abuse-and-neglect Recent changes to the law Following an extensive review of the NSW child protection system, the Children Legislation Amendment (Wood Inquiry Recommendations) Act 2009 was introduced. It changed a number of reporting conditions most importantly raising the reporting threshold to “at risk of significant harm Useful Contacts Government Site outlining legal requirements and processes http://www.keepthemsafe.nsw.gov.au/home Useful summary of mandatory reporting requirements in plain English http://www.theshopfront.org/documents/Children_at_risk_-_mandatory_reporting__2010_version.pdf Online Mandatory Reporters Guide http://sdm.community.nsw.gov.au/mrg/screen/DoCS/en-GB/summary?user=guest http://www.community.nsw.gov.au/kts/guidelines/documents/mandatory_reporter_gui de.pdf Resource Book Foundations of Peer Work – Part 2 156 © 2015 National Mental Health Commission Privacy and Confidentiality An important part of protecting consumers’ rights is ensuring the right to privacy in relation to personal information. Leaving files open or not locking files away at night, or discussing an individual in inappropriate circumstances, can breach people’s right to privacy. It can often be difficult to walk the line between ensuring consumers’ right to privacy, and the legitimate needs of families, carers and other service providers for information. Health records often contain very sensitive information of a personal nature. Consumers need to be confident that their information will remain private. Without this confidence, consumers may not seek help when they need it, or may be reluctant to provide further information to the service. In particular, consumers have a legal right to expect that information that is held about them will not be disclosed inappropriately to others without their consent. Appropriate disclosure may involve treating teams sharing information for the purposes of care coordination (with the permission of the consumer) and worker supervision and debriefing as part of professional development, learning and worker safety. Commonwealth Privacy The Privacy Act 1988 protects personal information. “Personal information is information or an opinion that identifies you or could identify you. Some examples are your name, address, telephone number, date of birth, medical records, bank account details and opinions about you.” The Commonwealth law covers privacy requirements and managing credit information. It applies to Australian Government agencies and private sector organisations. The Office of the Australian Information Commissioner (OAIC) oversees the Act. Recent changes to the law On 12 March 2014 new amendments to the Privacy Act were introduced to make agencies and organisations more open in how they are using and storing your personal information. Changes introduced included: A new set of 13 Australian Privacy Principles (APPs) changes to the way your credit information can be collected and used new powers for the Office of the Australian Information Commissioner (OAIC) to resolve privacy complaints and investigations. Commonwealth Privacy fact sheet 24: How changes to privacy law affect you http://www.oaic.gov.au/privacy/privacy-resources/privacy-fact-sheets/ A summary of Australian Privacy Principles (APP) For private sector organisations, Australian Government and Norfolk Island agencies covered by the Privacy Act 1988. APP 1 — Open and transparent management of personal information Ensures that APP entities manage personal information in an open and transparent way. This includes having a clearly expressed and up to date APP privacy policy APP 2 — Anonymity and pseudonymity Requires APP entities to give individuals the option of not identifying themselves, or of using a pseudonym. Limited exceptions apply. Resource Book Foundations of Peer Work – Part 2 157 © 2015 National Mental Health Commission APP 3 — Collection of solicited personal information Outlines when an APP entity can collect personal information that is solicited. It applies higher standards to the collection of ‘sensitive’ information. APP 4 — Dealing with unsolicited personal information Outlines how APP entities must deal with unsolicited personal information. APP 5 — Notification of the collection of personal information Outlines when and in what circumstances an APP entity that collects personal information must notify an individual of certain matters. APP 6 — Use or disclosure of personal information Outlines the circumstances in which an APP entity may use or disclose personal information that it holds. APP 7 — Direct marketing An organisation may only use or disclose personal information for direct marketing purposes if certain conditions are met. APP 8 — Cross-border disclosure of personal information Outlines the steps an APP entity must take to protect personal information before it is disclosed overseas. APP 9 — Adoption, use or disclosure of government related identifiers Outlines the limited circumstances when an organisation may adopt a government related identifier of an individual as its own identifier, or use or disclose a government related identifier of an individual. APP 10 — Quality of personal information An APP entity must take reasonable steps to ensure the personal information it collects is accurate, up to date and complete. An entity must also take reasonable steps to ensure the personal information it uses or discloses is accurate, up to date, complete and relevant, having regard to the purpose of the use or disclosure. APP 11 — Security of personal information An APP entity must take reasonable steps to protect personal information it holds from misuse, interference and loss, and from unauthorised access, modification or disclosure. An entity has obligations to destroy or de-identify personal information in certain circumstances. APP 12 — Access to personal information Outlines an APP entity’s obligations when an individual requests to be given access to personal information held about them by the entity. This includes a requirement to provide access unless a specific exception applies. APP 13 — Correction of personal information Outlines an APP entity’s obligations in relation to correcting the personal information it holds about individuals. Full version available at: http://www.oaic.gov.au/privacy/privacy-resources/privacy-factsheets/other/privacy-fact-sheet-17-australian-privacy-principles Resource Book Foundations of Peer Work – Part 2 158 © 2015 National Mental Health Commission NSW Act - Privacy and Personal Information Protection Act 1998 (PPIP Act) The NSW Information and Privacy Commission undertakes the privacy functions conferred by the Privacy and Personal Information Protection Act 1998 (NSW) and Health Records and Information Privacy Act 2002 (NSW). The Privacy and Personal Information Protection Act 1998 (PPIP Act) outlines how New South Wales (NSW) public sector agencies manage personal information and the functions of the NSW Privacy Commissioner. It applies to “NSW public sector agencies, statutory authorities, universities, NSW local councils, and other bodies whose accounts are subject to the Auditor General.” 12 NSW Information Protection Principles An agency must: Collection 1. Lawful Only collect your personal information for a lawful purpose. It must be needed for the agency’s activities. 2. Direct Collect the information from only you, unless exemptions apply. 3. Open Tell you that the information is being collected, why and who will be using it and storing it. You must be told how to access it and make sure it’s correct. 4. Relevant Make sure that your personal information is relevant, accurate, current and non-excessive. Storage 5. Secure Store your personal information securely. It should not kept longer than needed, and disposed of properly. Access and Accuracy 6. Transparent Provide you with details about the personal information they are storing, reasons why they are storing it and how you can access it if you wish to make sure it's correct. 7. Accessible Allow you to access your personal information in a reasonable time frame and without being costly. 8. Correct Allow you to update, correct or amend your personal information when needed. Use 9. Accurate Make sure that your personal information is correct and relevant before using it. 10. Limits on use Only use your personal information for the reason they collected it. 11. Limits on disclosure Person must be aware of and agree to any disclosure 12. Special restrictions cannot disclose sensitive personal information about you unless that disclosure is necessary to prevent a serious and imminent threat Resource Book Foundations of Peer Work – Part 2 159 © 2015 National Mental Health Commission Collection 1. Lawful only collect health information for a lawful purpose. Only collect health information if it is directly related to the organisation’s activities and necessary for that purpose. 2. Relevant ensure that the health information is relevant, not excessive, accurate and up to date. Ensure that the collection does not unreasonably intrude into the personal affairs of the individual. 3. Direct only collect health information directly from the person concerned, unless it is unreasonable or impracticable to do so. See the Handbook to Health Privacy for an explanation of “unreasonable” and “impracticable”. 4. Open inform the person as to why you are collecting health information about them, what you will do with the health information, and who else might see it. Tell the person how they can see and correct their health information, and any consequences, if they decide not to provide their information to you. If you collect health information about a person from someone else, you must still take reasonable steps to ensure that the person has been notified as described above. Storage 5. Secure ensure that health information is stored securely, not kept any longer than necessary, and disposed of appropriately. Information should be protected from unauthorised access, use or disclosure (Note: private sector organisations should also refer to section 25 of the HRIP Act for further instructions). Access and Accuracy 6. Transparent explain to the person what health information about them is being stored, why it is being used and any rights they have to access it. 7. Accessible allow people to access their health information without unreasonable delay or expense (Note: private sector organisations should also refer to sections 26-32 of the HRIP Act for further instructions). 8. Correct allow people to update, correct or amend their health information where necessary (Note: private sector organisations should also refer to sections 33-37 of the HRIP Act for further instructions). 9. Accurate ensure that the health information is relevant and accurate before using it. Use 10. Limited only use health information for the purpose for which it was collected, or a directly related purpose that the person would expect. Otherwise, you generally need their consent. Disclosure 11. Limited disclosure only disclose health information for the purpose for which it was collected, or a directly related purpose that the person would expect. Otherwise, you generally need their consent. Resource Book Foundations of Peer Work – Part 2 160 © 2015 National Mental Health Commission Identifiers and anonymity 12. Not identified only identify people by using unique identifiers if it is reasonably necessary to carry out your functions efficiently. 13. Anonymous give people the option of receiving services from you anonymously, where this is lawful and practicable. Transferals and linkage 14. Controlled only transfer health information outside New South Wales in accordance with HPP 14. 15. Authorised people must expressly consent to participate in any system that links health records across more than one organisation. Only include health information about them, or disclose their identifier for the purpose of the health records linkage system, if they have expressly consented to this. Further reading You can find more detailed information about the HRIP Act by reading: Handbook to Health Privacy (PDF, 1.7mb) If you find that you are having difficulties reading our documents or other material, please contact us on 1800 472 679 so we can provide another option for you to access our material. The Health Records and Information Privacy Act, 2002 applies to both public and private sector agencies in NSW. The Privacy Commissioner administers this act, resolves complaints and protects and enhances privacy rights relating to the privacy principles in the Personal and Privacy Information Protection Act 1998 (NSW). They can be contacted on 1800 472 679 or via email [email protected]. A Handbook to Health Privacy has been developed to explain the HRIP. It states “The HRIP Act protects the privacy of people’s health information. It does this by requiring those who handle health information to comply with 15 Health Privacy Principles (HPPs). The 15 HPPs are the key to the HRIP Act. They are legal obligations describing what you must do when you collect, store, use or disclose health information. Privacy NSW recommends that you familiarise yourself with the 15 HPPs. The 15 HPPs are contained in Schedule 1, which is located at the end of the HRIP Act. If you are based in the private sector, you will also need to know about the special private sector provisions in Part 4 of the HRIP Act. These provisions are in addition to, and expand upon, the 15 HPPs. A summary of the 15 HPPs is set out on the following page. You will find a more detailed discussion of your obligations under the 15 HPPs, and the special private sector provisions, set out in Part 2 of this handbook.” The Act has fifteen health privacy principles directing how health information is to be collected, stored and used. Resource Book Foundations of Peer Work – Part 2 161 © 2015 National Mental Health Commission The most relevant principles to keep in mind are: Health information can only be collected if it directly relates to the service’s role, that is treatment and assistance and for management of the service. The information should be accurate and up to date. Individuals must be informed why information is being collected, what will be done with the information and who else might see it. If information about a consumer is to be collected from another person i.e. health professional or family member, then the consumer must be informed, except where Guardian has been appointed and a consumer does not have capacity to selfdetermination. Information should be stored securely and disposed of appropriately. Ask your supervisor what the requirements are as to how long records must be kept. Consumers can seek access to their medical records and other personal information and can request correction of any mistakes. This may be contentious when consumer in disagreement with workers. However, a consumer can insert their point of view for others to access, e.g. for MHRT review or hearings. Health information can only be disclosed for the purpose for which it is collected, or a directly related purpose that the consumer would expect. In other words, the passing on of information to another person or organisation that is involved in the ongoing care and treatment is permitted, if the purpose for which that information was collected is discussed. Otherwise consent is required from the consumer to disclose information to others. Exceptions All the exceptions discussed below should be approached with caution and discussed with your organisation. Information can only be disclosed without the consumer’s consent to an immediate family member for compassionate reasons where the consumer cannot give consent and it is not against their expressed wishes. Family members do not have an automatic right to health information or records. Information about the consumer without their consent may be disclosed to prevent serious threat to the health or safety of an individual or the public. Information may be required as evidence in court and staff may be subpoenaed, however records do not have to be provided to the Police prior to the Court. Advance Directives Advance Care Directives are a relatively new way that you can give guidance to health care professionals and health care providers about how you want to be treated in the future if you lose capacity to make healthcare decisions due to age, illness or injury. It usually includes information about where you do or do not wish to be cared for and by whom, or what treatment you want or do not want. An Advance Care Directive can include your wishes about any aspect of your life. For example, you can include in your Advance Care Directive the name of the person you want to make sure your wishes are carried out, and to make other personal decisions for you. An Advance Care Directive can also say who you would want to have as your guardian if one needs to be appointed (however, to do this it might be better to appoint the person as an enduring guardian). Resource Book Foundations of Peer Work – Part 2 162 © 2015 National Mental Health Commission An Advance Care Directive must be made when you are considered, at law, to have legal capacity to make your own healthcare decisions. They then function as an extension of your common law right to determine your own health care when you lose capacity to make decisions due to age, illness or injury. Advance Care Directives have limited legal force in NSW. However, there is no NSW law that deals specifically with the making or enforcement of Advance Care Directives. Advance Care Directives are not effective in all circumstances. For example, you cannot avoid the operation of the Guardianship or Mental Health Acts by making an Advanced Care Directive. However, the Advanced Care Directive can be taken into account in any decision-making that is required for you under those Acts. Advanced Care Directives are often very important in end of life decision-making. NSW Health has developed a web resource for health professionals (that is also very useful for others) called End of Life Decisions, the Law and Clinical Practice. This web resource provides information as to who can make end of life decisions and how they should be made in the NSW context. Advance Care Directives about mental health issues Advance Care Directives are a relatively new way that you can give guidance to health care professionals and health care providers about how you want to be treated in the future if you lose capacity to make healthcare decisions due to age, illness or injury. It usually includes information about where you do or do not wish to be cared for and by whom, or what treatment you want or do not want. An Advance Care Directive can include your wishes about any aspect of your life. For example, you can include in your Advance Care Directive the name of the person you want to make sure your wishes are carried out, and to make other personal decisions for you. An Advance Care Directive can also say who you would want to have as your guardian if one needs to be appointed (however, to do this it might be better to appoint the person as an enduring guardian). An Advance Care Directive must be made when you are considered, at law, to have legal capacity to make your own healthcare decisions. They then function as an extension of your common law right to determine your own health care when you lose capacity to make decisions due to age, illness or injury. Advance Care Directives have limited legal force in NSW. However, there is no NSW law that deals specifically with the making or enforcement of Advance Care Directives. Advance Care Directives are not effective in all circumstances. For example, you cannot avoid the operation of the Guardianship or Mental Health Acts by making an Advanced Care Directive. However, the Advanced Care Directive can be taken into account in any decision-making that is required for you under those Acts. You can include in your Advance Care Directive that you want to be treated with particular drugs and not other drugs if you become unwell. You can include in your Advance Care Directive you don't want to be treated (or do want to be treated) with particular procedures such as electro-convulsive therapy (ECT). You can also put in your Advance Care Directive your wishes about life management arrangements if you are admitted to hospital with a mental illness in an acute phase. This could include, for example, details about what you want to happen about the care of your children, the care of your pets, and who in your work place can be told Resource Book Foundations of Peer Work – Part 2 163 © 2015 National Mental Health Commission If you become an involuntary patient under the Mental Health Act 2007 (NSW), it will be up to your treating team to decide if they will follow your advanced directive. They may take it into account, but they don’t have to. Freedom of Information Legislation Freedom of information, at state and federal levels, provides for consumers to request information held by government, including personal information and medical files, but also protects that information from access by others. People have the right to have access to documents from the government. There is a fee to apply and not all documents are available. Commonwealth Legislation The Commonwealth legislation that gives people the right to request access to documents from Australian Government ministers, departments and agencies is the Freedom of Information Act 1982 (FOI Act). The FOI Act was reformed in 2010. These reforms placed new pro-disclosure requirements on agencies and ministers and provided greater review and complaint rights for individuals. The NSW Legislation: Government Information (Public Access) Act 2009 (NSW) (the GIPA Act) The Government Information (Public Access) Act 2009 (NSW) (the GIPA Act) replaced the Freedom of Information Act 1989 (NSW) (the FOI Act) on 1 July 2010. The GIPA Act establishes a comprehensive system for public access to government information. The Act makes government information more accessible to the public. It requires government to make as much information as possible freely available and simplified the process for people to access about themselves. Information is only to be restricted when the department can prove overriding public interest against disclosure. The public access to government information system is overseen by the Information and Privacy Commission. The Information Commissioner's roles include: Promoting public awareness and understanding of the Act. Providing information, advice, assistance and training to agencies and the public. Dealing with complaints about government agencies. Investigating agencies' systems, policies and practices. Reporting on compliance with the Act to the Minister responsible. You can find more information about the Information and Privacy Commission on its website at www.ipc.nsw.gov.au Contact the Information and Privacy Commission enquiries line on 1800 472 679 between 9am to 5pm, Monday to Friday (excluding public holidays). Community Services Unit http://www.community.nsw.gov.au/docs_menu/about_us/right_to_information.html Police Information Unit https://www.police.nsw.gov.au/services/information_access_unit_gipa Resource Book Foundations of Peer Work – Part 2 164 © 2015 National Mental Health Commission Australian Law Reform Commission (ALRC) The Australian Law Reform Commission is the federal agency that operates under the Australian Law Reform Commission Act 1996 (Cth), and the Public Governance, Performance and Accountability Act 2013 (PGPA Act). The ALRC conducts inquiries into areas of law at the request of the Attorney-General of Australia. The ALRC undertakes research and consultations and makes recommendations to government so they can make informed decisions about law reform. Over 85 per cent of ALRC reports have been either substantially or partially implemented—making it one of the most effective and influential agents for legal reform in Australia. The ALRC is independent of government but reports administratively as part of the AttorneyGeneral's portfolio. The purpose of the ALRC's is to make recommendations for law reform that: “bring the law into line with current conditions and needs remove defects in the law simplify the law adopt new or more effective methods for administering the law and dispensing justice, and provide improved access to justice” http://www.alrc.gov.au/about How to get legal advice or information about your role and responsibilities Talk to your supervisor Read the relevant policies and procedures they usually refer to any relevant legislation Read the legislation at: http://www.legislation.nsw.gov.au/ https://www.comlaw.gov.au/ http://www.austlii.edu.au/au/legis/cth/consol_act/ Legal Aid NSW helps people with their legal problems Help over the phone: Call LawAccess NSW on 1300 888 529 to get started LawAccess NSW is a free government telephone service that provides legal information, referrals and in some cases, advice for people who have a legal problem in NSW. We are a starting point to help with your legal problem. http://www.lawaccess.nsw.gov.au/ Find information: factsheets and resources to help you with your problem http://www.legalaid.nsw.gov.au/publications/factsheets-and-resources Get advice from a lawyer: We provide free face-to-face advice on most legal issues http://www.legalaid.nsw.gov.au/get-legal-help/advice Help at court: We have lawyers to assist you at many courts and tribunals across NSW http://www.legalaid.nsw.gov.au/get-legal-help/help-at-court The Law Society Solicitor Referral Service - 1800 422 713 http://www.lawsociety.com.au/community/findingalawyer/index.htm Your local Community legal centre - Community Legal Centres (CLCs) are independently operating not-for-profit community organisations that provide legal and related services to the public, focusing on the disadvantaged and people with special needs. http://www.naclc.org.au/need_legal_help.php Resource Book Foundations of Peer Work – Part 2 165 © 2015 National Mental Health Commission Appendix D: Certified Peer Specialist Code of Ethics The following principles will guide Certified Peer Specialists in the various roles, relationships, and levels of responsibility in which they function professionally. 1. The primary responsibility of Certified Peer Specialists is to help individuals achieve their own needs, wants, and goals. Certified Peer Specialists will be guided by the principle of self-determination for all. 2. Certified Peer Specialists will maintain high standards of personal conduct and conduct themselves in a manner that fosters their own recovery. 3. Certified Peer Specialists will openly share with consumers and colleagues their recovery stories from mental illness and will likewise be able to identify and describe the supports that promote their recovery. 4. Certified Peer Specialists will, at all times, respect the rights and dignity of those they serve. 5. Certified Peer Specialists will never intimidate, threaten, harass, use undue influence, physical force or verbal abuse, or make unwarranted promises of benefits to the individuals they serve. 6. Certified Peer Specialists will not practice, condone, facilitate, or collaborate in any form of discrimination on the basis of ethnicity, race, sex, sexual orientation, age, religion, national origin, marital status, political belief, mental or physical disability, or any other preference or personal characteristic, condition, or state. 7. Certified Peer Specialists will advocate for those they serve that they may make their own decisions in all matters when dealing with other professionals. 8. Certified Peer Specialists will respect the privacy and confidentiality of those they serve. 9. Certified Peer Specialists will advocate for the full integration of individuals into the communities of their choice and will promote the inherent value of those individuals to those communities. Certified Peer Specialists will be directed by the knowledge that all individuals have the right to live in the least restrictive and least intrusive environment. 10. Certified Peer Specialists will not enter into dual relationships or commitments that conflict with the interests of those they serve. 11. Certified Peer Specialists will never engage in sexual/intimate activities with the consumers they serve. 12. Certified Peer Specialists will not abuse substances under any circumstance. 13. Certified Peers Specialists will keep current with emerging knowledge relevant to recovery, and openly share this knowledge with their colleagues. 14. Certified Peer Specialists will not accept gifts of significant value from those they serve. Resource Book Foundations of Peer Work – Part 2 166 © 2015 National Mental Health Commission References ARAFMI WA, (2011). Best models for carer workforce development: carer peer support workers, carer consultants, carer advocates and carer advisors. Retrieved from http://www.mentalhealth.wa.gov.au/Libraries/pdf_docs/Best_Models_for_Carer_Peer_Workers__ARAFEMI_Nov_2011.sflb.ashx Australian Government Department of Health (2006). Pathways of recovery: preventing further episodes of mental illness (Rural and remote communities monograph). Retrieved from http://health.gov.au/internet/publications/publishing.nsf/Content/mental-pubs-p-mono-toc~mentalpubs-p-mono-pop~mental-pubs-p-mono-pop-rur. Australian Institute of Health and Welfare (AIHW) & Australian Institute of Family Studies (2013). Strategies and practices for promoting the social and emotional wellbeing of Aboriginal and Torres Strait Islander people. Resource sheet no. 19. Produced for the Closing the Gap Clearinghouse. Retrieved from http://www.aihw.gov.au/uploadedFiles/ClosingTheGap/Content/Publications/2013/ctgc-rs19.pdf Barkway, P., Mosel, K., Simpson, A., Oster, C. & Muir-Cochrane, E. (2012). Consumer and carer consultants in mental health: The formation of their role identity. Advances in Mental Health, 10(2), 157–168. Retrieved from http://search.informit.com.au.ezproxy.une.edu.au/documentSummary;dn=448373429591077;res =IELHEA Bora (2012). Empowering people: Coaching for mental health recovery’. Retrieved from www.rethink.org Carolla, B. (2013). Helping families navigate mental health care. National Alliance on Mental Illness (NAMI). Retrieved from http://www.nami.org/template.cfm?section=About_NAMI Chandler, R., Bradstreet, S., & Hayward, M. (2013). Voicing caregiver experiences: Wellbeing and recovery narratives for caregivers. Retrieved from www.scottishrecovery.net/Research/voicingcaregiver-experiences.html Chinman, M.J., Weingarten, R., Stayner, D., et al. (2001). Chronicity reconsidered: improving personenvironment fit through a consumer-run service. Community Mental Health Journal 37, 215–229 Clarke, G.N., Herinckx, H.A., Kinney, R.F., et al. (2000). Psychiatric hospitalizations, arrests, emergency room visits and homelessness of clients with serious and persistent mental illness: Findings from a randomized trial of two ACT programs vs. usual care. Mental Health Services Research 2, 155–164 Colquhoun, S. & Dockery, A.M. (2012). The link between Indigenous culture and wellbeing: Qualitative evidence for Australian Aboriginal peoples. Centre for Labour Market Research and School of Economics and Finance, Curtin University Commonwealth of Australia (2013). A national framework for recovery-oriented mental health services guide for practitioners and providers. Retrieved from http://www.ahmac.gov.au/cms_documents/National%20Mental%20Health%20Recovery%20Fra mework%202013-Guide-practitioners&providers.PDF Commonwealth of Australia (2012). Mental health statement of rights and responsibilities. Retrieved from http://www.health.gov.au/internet/mhsc/publishing.nsf/Content/8F44E16A905D0537CA257B330 073084D/$File/rights.pdf Consumers of Mental Health WA (2013). Response to Community Mental Health Australia (CMHA) Peer Work Project Survey. Retrieved from http://www.comhwa.org.au/wpcontent/uploads/2013/02/CoMHWA-Cert-IV-Response.pdf Copeland, M.E. & Mead, S. (2013). Peer Support: Boundaries and Limits from Wellness Recovery Action Plan and Peer Support: Personal, Group and Program. Retrieved from http://www.mentalhealthrecovery.com/wrap/sample_boundaries.php Copeland, M. & Mead, S. (2003) WRAP and Peer Support: A Guide to Individual, Group and Program Development. Peach Press. Retrieved from http://apt.rcpsych.org/content/14/3/181.full Resource Book Foundations of Peer Work – Part 2 167 © 2015 National Mental Health Commission Crowe, J. (2012). Launch of Recognition and Respect: Mental Health Carers Report. Mental Health Council of Australia. 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Retrieved from http://files.www.everidian.com/educate/recentarticles/Mindfulness__Experiential_Learning_-_Yeganeh__Kolb.pdf Resource Book Foundations of Peer Work – Part 2 172 © 2015 National Mental Health Commission Evaluation form for Foundations of Peer Work – Part 2 Resource Book (Certificate IV in Mental Health Peer Work) MHCC values your feedback. Please let us know what you think about this book. Your comments can be anonymous. Name:________________________________________________________ Tel:_____________________ Email: _______________________________ Please circle your responses to the following. 1. This Resource Book is: useful acceptable not useful acceptable not easy to use acceptable inadequate acceptable dull 2. This Resource Book is: easy to use 3. This Resource Book is: comprehensive 4. 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