President`s Report Supplement

Transcription

President`s Report Supplement
President’s Report Supplement
Program Listing and View of IOM Finances
2013 EDITION
1
TABLE OF CONTENTS
Contents
Letter from the President2
Appendix to Letter13
Degrees of Impact17
President’s Office and Executive Office Staff
19
Recent Publications20
Program Listing25
IOM Finances69
Donors and Sponsors75
In Memoriam97
2
PRESIDENT’S REPORT SUPPLEMENT
21 October 2013
Dear Friends,
My Friesen Prize address in Ottawa last month featured the title “The Power of an Idea to Bring
Ideas to Power.” The idea was the creation of the National Academy of Sciences 150 years ago and
later its several constituent organizations, most recently the Institute of Medicine (IOM) in 1970.
Embedded in this idea was the establishment of an independent organization, based on science
and evidence, comprising experts who volunteer their time and knowledge in service to the public.
Bringing ideas to power means both bringing ideas to policy makers and bringing ideas into being,
so they can have a positive effect on the world.
In this final year of my service as president of the IOM, I cannot help but be struck by the
manifold ways in which the IOM contributes to health. The work of the IOM over the past year
demonstrates the scope of our undertakings, the importance and timeliness of what we accomplish, the innovativeness of our staff, the dedication and will to service of our members and other
experts, and the generosity of our sponsors and supporters. This annual report supplement helps
to show the richness of these contributions, covering the content of our program across the several IOM boards, a financial profile of our program, a listing of our donors, and a memorial page of
members who died in the last 12 months.
In describing the ways in which the IOM contributed to advising the nation and improving
health during the past year, I find it helpful to distinguish eight distinct though intersecting ways
the IOM makes a positive difference. The remainder of this letter selectively describes a few of the
IOM’s projects and reports grouped according to the eight broad purposes of our work. An appendix to this letter contains a complete categorical and chronological listing of more than 60 reports
and workshop summaries released during the past 12 months.
1. Bring new insights to longstanding problems
Violence remains a major public health problem worldwide, with many
low- and middle-income countries experiencing the greatest burdens. In
making the science of violence the topic for this year’s Annual Meeting, the
IOM recognizes the need for ongoing work on this subject.
Through the Forum on Global Violence Prevention, the IOM has taken up
the challenge of reducing violence across the world. The forum promotes
research on protective and risk factors of violence, encourages evidencebased prevention efforts, and facilitates dialogue by convening experts from
all areas of violence prevention. Recently, the IOM has convened three
workshops on the topic of violence:
• Contagion of Violence – Workshop Summary. Although violence was once thought to be inevitable, it is now understood to be frequently preventable. Violent acts often occur in clusters,
spread from place to place, and develop similarly to disease epidemics. The workshop covered the epidemiology of violence, possible processes and mechanisms by which violence is
LETTER FROM THE PRESIDENT
3
transmitted, mitigating factors in the spread of violence, and ways in which the contagion of
violence might be interrupted.
• Elder Abuse and Its Prevention – Workshop Summary. Elder abuse is a global public health
and human rights concern, magnified by the growing proportion of the population aged 65
and older. The problem has strong implications for the health care, social welfare, justice,
and financial systems. The 2-day workshop on elder abuse and its prevention used an ecological framework to examine the burden of elder abuse around the world, its impacts on
individuals, families, and communities, and its co-occurrence with other types of abuse.
• The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop Summary. This workshop explored the evidentiary base for violence prevention across
many stages of life and in many cultures, highlighting preventive interventions that have
been shown to reduce certain types of violence and ways in which demonstrably effective
interventions can be adopted and implemented in different cultural contexts.
2. Confront controversial questions of science and policy
Despite evidence of the overwhelming benefit of immunizations relative to
risk, some parents choose not to have their children vaccinated because of
concerns about vaccine safety. The Department of Health and Human Services (HHS) asked the IOM to examine the performance and safety of the
entire childhood immunization schedule. Of the dozens of IOM studies of
immunization safety, this was the first to cast such a broad net. In Childhood
Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence,
and Future Studies, the committee examined 158 putative effects of immunization. The committee found sufficient evidence to favor the absence of an
effect to allay some serious concerns, such as the putative relation of autism
to immunization. In a few instances, such as anaphylaxis, vaccines can rarely
cause severe reactions. In most instances, although the evidence was insufficient to support a strong conclusion to exclude the possibility of an effect related to vaccine, the
committee found little indication that most of the examined adverse effects bore any relation to the
immunization schedule.
The tragic problem of contaminated drugs captured national attention in late 2012 when
injectable steroid drugs produced by a compounding pharmacy in Massachusetts sickened more
than 600 people, killing 44 of them. Although such incidents are rare in the United States, they
are much more common in poor countries with weak regulatory oversight. Tackling the problem
will require international cooperation, but controversy among various stakeholders has hampered
coordinated efforts. The IOM report Countering the Problem of Falsified and Substandard Drugs,
commissioned by the Food and Drug Administration, assesses the global public health implications
of falsified, substandard, and counterfeit drugs to help jumpstart international discourse about the
problem. The committee described factors that permit or encourage the production of bad drugs
and outlined steps governments and manufacturers can take to ameliorate the problem. In August,
the IOM co-hosted a dissemination workshop with the Tanzania Food and Drugs Authority to
share the messages from the report and discuss potential ways to combat counterfeit and substandard drugs.
4
PRESIDENT’S REPORT SUPPLEMENT
Geographic variation in health care costs and outcomes has long been an
active subject of policy debate. Some members of Congress, mainly from
states where costs are relatively low, had raised the idea of adjusting Medicare payments to reward regions where costs are relatively low and outcomes
are relatively good. If such policies were adopted, many billions of dollars
could be redirected. Congress asked the IOM to examine the issue, and the
IOM committee’s comprehensive and detailed assessment was presented in
Variation in Health Care Spending: Target Decision Making, Not Geography.
The subtitle conveys the essence of the message. The committee found that
variation in costs persisted regardless of the size of the regions being compared. For Medicare patients, 70 percent of variation in costs was attributable
to differences in post-acute care. For privately-insured patients, 70 percent of variation was attributable to differences in unit prices. Doctors and institutions, not locations per se, determine costs,
and paying more to relatively better-performing regions would wrongly punish efficient performers in costly regions and wrongly reward inefficient performers in low-cost regions. Sometimes, as
in the case of this report, the IOM redirects policy makers’ attention to more appropriate frames
of reference for sound policy. The report also helps to reconcile seemingly contradictory results in
previous studies of cost variation across Medicare and privately-insured patients by showing that
the primary drivers of variation differ in the two cases.
3. Illuminate topics that demand notice
Adequate preparation for a catastrophic event is a difficult but critically important task that
can save lives during an emergency. Recent work by the IOM has highlighted the importance of
including the public in the decision-making process for disaster preparedness. Earlier this year, the
Forum on Medical and Public Health Preparedness for Catastrophic Events convened a workshop
to provide practitioners with guidance and key principles of public engagement. The themes and
presentations from the workshop are summarized in Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary.
Childhood obesity threatens the health of future generations, and one key driver of obesity
is the spread of sedentary behaviors. At the request of the Robert Wood Johnson Foundation, the
IOM convened a committee to examine the state of physical activity in schools and propose steps
to help students become more active. The committee’s report, Educating the Student Body: Taking
Physical Activity and Physical Education to School, recommends a “whole-of-school” approach to
better incorporate physical education and activity into school programs. In addition to the report,
the IOM created a short, animated video to extend the key messages from the report to a broad audience, including students, educators, and parents (available at www.iom.edu/studentbodyvideo). To
continue the conversation about the importance of physical activity, the IOM co-hosted a webinar
with the President’s Council on Fitness, Sports, and Nutrition to discuss implementation of the
report recommendations and ways to incorporate physical education and activity into schools.
Approximately 80 million adults in the United States have low health literacy, or a limited
ability to obtain, process, and understand basic health information. Low health literacy makes it
difficult for people to communicate with physicians and to be active participants in the health
care system. The IOM’s Roundtable on Health Literacy identifies approaches to promote health
LETTER FROM THE PRESIDENT
5
literacy, often through discussions at workshops. Because low health literacy is a problem in many
countries, one recent workshop, captured in Health Literacy: Improving Health, Health Systems,
and Health Policy Around the World – Workshop Summary, focused on international health literacy
efforts. Impact from the work of the roundtable includes
• The IOM discussion paper “Let’s Ask 4: Questions for Consumers and Providers About
Health Insurance” was listed as a key resource on the American Library Association’s webpage about the Affordable Care Act, along with resources from the Centers for Medicare &
Medicaid Services and other organizations. The paper was also featured on the NPR blog as
a “jargon buster” to help consumers wade through information about insurance plans.
• Health Literacy Consulting (HLC) founder and president Helen Osborne provided a testimonial about the IOM’s Roundtable on Health Literacy in the August 2013 issue of the HLC
newsletter: “I have learned so much from attending public meetings of the IOM’s Health
Literacy Roundtable. And by reading many, if not all, of their discussion and commissioned
papers. You can learn this way, too.”
In response to many high-profile mass shootings, in January 2013
President Barack Obama issued 23 executive orders directing federal agencies to find ways to reduce the toll of firearm-related violence. One of these
orders directed the Centers for Disease Control and Prevention (CDC) to
work to identify the most pressing problems in firearm violence research.
The CDC turned to the IOM and the National Research Council (NRC) to
develop a potential research agenda. In Priorities for Research to Reduce the
Threat of Firearm-Related Violence, the IOM/NRC committee proposed a
research framework focused on five high-priority areas: (1) the characteristics of gun violence, (2) risk and protective factors, (3) prevention and other
interventions, (4) gun safety technology, and (5) the influence of video games
and other media on firearm violence.
Tobacco use is clearly associated with the development of 18 different types of cancer.
In addition, tobacco use accounts for at least 30 percent of all cancer deaths and 80 percent of
lung cancer deaths. Despite the mountain of evidence portraying the deleterious health effects of
tobacco, the rate of decline of tobacco use has slowed in recent years, and new tobacco and nicotine
products have entered the market. The IOM’s National Cancer Policy Forum convened a workshop
to consider current challenges in tobacco control and possible new avenues for action, as described
in Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary.
Despite being one of the wealthiest nations in the world and spending much more on health
care per person than any other country, the United States is far from being the healthiest. In fact,
Americans are now, on average, dying at younger ages than people in almost all other high-income
countries. To better understand this disturbing phenomenon, the National Institutes of Health
(NIH) and HHS asked the NRC and the IOM to investigate potential reasons for the U.S. health
disadvantage and assess its larger implications. The committee’s report, U.S. Health in International Perspective: Shorter Lives, Poorer Health, compares the United States with 16 other affluent
nations, providing the first comprehensive multi-country survey of multiple diseases, injuries, and
behaviors across the lifespan. No single factor can fully explain the U.S. health disadvantage; there
6
PRESIDENT’S REPORT SUPPLEMENT
are likely multiple causes, including inadequate health care, unhealthy behaviors, and adverse economic and social conditions. To improve U.S. health standings, the report recommends a dedicated
effort to pursue established national health objectives. Without action to alter current trends, there
is no reason to expect that the health of Americans will stop falling further behind that of people in
other high-income countries.
4. Attend to needs of vulnerable populations
This year, the IOM extended its commitment to tackling health problems that affect members
of the military, veterans, and their families. More than 2.2 million troops fought in Iraq and
Afghanistan. Some returned home with few difficulties, but many are experiencing service-related
health conditions and struggling with readjustment after deployment. Following a congressional
request, the IOM conducted a study of the physical and mental health and other readjustment
needs of returning troops. Returning Home from Iraq and Afghanistan: Assessment of Readjustment
Needs of Veterans, Service Members, and Their Families presents the study committee’s comprehensive assessment and provides a detailed action plan that the Department of Defense (DoD)
and the Department of Veterans Affairs (VA) can follow to facilitate successful transitions to postdeployment life.
One of the most devastating service-related health conditions is traumatic brain injury
(TBI), a common outcome of improvised explosive device attacks in Iraq and Afghanistan. The
IOM released a report in 2011 about a form of treatment for TBI called cognitive rehabilitation
therapy (CRT), in which the committee determined that there is some evidence about the value of
CRT, but not enough to develop definitive guidelines about its application. As a follow-up to the
report, the IOM conducted a workshop to explore how research can best advance the science of
CRT and understand its value in treating service members and veterans with TBI. The workshop
discussions are captured in Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model
Study Protocols and Frameworks to Advance the State of the Science – Workshop Summary.
Another vulnerable population the IOM focused on in 2013 was children, especially those
experiencing some form of abuse, neglect, or exploitation. At the request of HHS, the IOM and
the NRC conducted a comprehensive assessment of the scope of child abuse and neglect and
research on the topic in order to update the IOM’s landmark 1993 report Understanding Child
Abuse and Neglect. The new report, New Directions in Child Abuse and Neglect Research, concludes
that the past 20 years have seen an explosion in research on child abuse and
neglect and increased attention to this topic by government and private organizations. Despite these gains, the committee found that child neglect and
abuse remain a serious public health problem and recommended an immediate, coordinated research response from the federal government. To help
spread the messages from this report more widely, the IOM developed an
infographic that defines abuse and neglect and conveys staggering statistics
about the scope of the problem (available at www.iom.edu/childmaltreatment). In addition, the IOM is planning a larger communications effort that
will include a video and a regional meeting to inform stakeholder groups
about the findings.
LETTER FROM THE PRESIDENT
7
Another recent report focused on commercial sexual exploitation and sex trafficking of
minors in the United States, two especially abhorrent forms of child abuse. Carried out at the
request of the Department of Justice, the study found that commercial sexual exploitation and sex
trafficking of minors are serious problems with immediate and long-term adverse consequences for
victims, their families, and society that are not given enough priority in domestic policies. In Confronting Sexual Exploitation and Sex Trafficking of Minors in the United States, the committee noted
that, despite the serious nature of these crimes, efforts to prevent, identify, and respond to them
are largely under-supported, inefficient, uncoordinated, and unevaluated. The IOM/NRC report
offers recommendations to thwart commercial sexual exploitation and sex trafficking of minors in
the United States, new legislative approaches, and a research agenda. To increase awareness of this
problem and highlight the committee’s recommendations, the IOM developed an animated video
in conjunction with the report (available at www.iom.edu/sextraffickingminorsvideo). Future
plans to communicate the report’s findings include creation of an infographic to visually depict
the committee’s recommendations, as well as development of user guides for various stakeholder
groups to help them better understand how to prevent sexual exploitation and sex trafficking of
minors.
5. Conduct evaluations that guide current and future programs
The President’s Emergency Plan for AIDS Relief (PEPFAR), an international
aid program designed to enable partner countries to deliver HIV services
and prevent the spread of HIV/AIDS, was enacted in 2003 and reauthorized
in 2008. When the program was reauthorized, Congress asked the IOM to
review the initiative’s performance and its impact on health in PEPFAR partner countries and to recommend strategies to improve the U.S. government’s
global response to HIV/AIDS. The comprehensive study, Evaluation of
PEPFAR, concluded that PEPFAR has been globally transformative and
should help both the U.S. Department of State and partner countries set
strategic priorities for investment in HIV/AIDS prevention and services. To
build on the momentum of this report, the IOM developed a short, digital
quiz about the report’s key messages (available at www.iom.edu/pepfar2). In addition, the IOM
created an online “interactive experience” that demonstrates the challenges and complex choices
faced by people across the world as they navigate the continuum of HIV-related services in PEPFAR-funded countries. The interactive experience provides an innovative way for individuals to
learn more about the barriers people encounter as they endeavor to access HIV/AIDS treatment
and services and improve their health (available at www.iom.edu/pepfargame).
Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations examines the performance of the newly-established Captain James A. Lovell
Federal Health Care Center (FHCC), a jointly-operated facility of the DoD and the VA intended
to increase efficiency for veterans and military personnel in Illinois and Wisconsin by replacing two
independently-operated centers. The Lovell FHCC was envisioned as an unprecedented, state-ofthe-art facility that would expand access to an array of medical services for service members and
veterans and integrate clinical and administrative services under a single line of authority. The
DoD asked the IOM to undertake a study of whether the Lovell FHCC actually improves access,
8
PRESIDENT’S REPORT SUPPLEMENT
quality, and cost, as compared to the performance of the original separate facilities. The report
identifies lessons learned and obstacles uncovered during the initial implementation of the Lovell
FHCC and recommends the development of a comprehensive evaluation plan that will objectively
judge the success or failure of the center going forward.
The IOM undertook an important evaluation in 2013 related to stem cell research in California. The California Institute for Regenerative Medicine (CIRM), established in 2005, has carried
out its stem cell research mission at an ambitious pace since its creation. Now, to keep up with rapid
scientific advances, CIRM must transition its scientific program and restructure the organization’s
priorities to help speed the transformation of promising stem cell therapies into medicines that can
directly benefit patients. The California Institute for Regenerative Medicine: Science, Governance, and
the Pursuit of Cures is the report of an IOM committee tasked with independently reviewing CIRM’s
programs, operations, and strategies. The committee recommended improvements to CIRM’s governance structure and scientific program and suggested policies that will better position CIRM to
realize the clinical benefits of regenerative medicine and build a sustainable, long-lasting research
program. Following the release of the report, CIRM’s governing board voted to endorse an organizational framework that incorporates many of the committee’s recommendations.
Earlier in 2013, the IOM completed an evaluation of the Clinical and Translational Science Awards (CTSA) Program, which is overseen by the National
Center for Advancing Translational Sciences (NCATS) at the NIH. The CTSA
program is designed to speed the transfer of basic and clinical research findings into clinical and community practice. The report committee reviewed
the program’s mission and strategic goals, evaluated its performance, and
assessed the effectiveness of NCATS in managing it. In its report, The CTSA
Program at NIH: Opportunities for Advancing Clinical and Translational
Research, the committee found that the CTSA program is contributing significantly to advancing clinical and translational research and recommended
a number of revisions that could make the program even more efficient and
effective. On the day the report was released, the director of NCATS released a statement indicating plans to immediately implement the IOM committee’s recommendations and to convene a
working group to advise during implementation.
Continuing a long history of assisting the federal government by evaluating its programs,
the IOM and the NRC considered whether it is feasible to objectively determine the adequacy of
allotments provided under the Supplemental Nutrition Assistance Program (SNAP). SNAP is
administered by the Department of Agriculture and aims to improve participants’ food security
and their access to a healthful diet. In Supplemental Nutrition Assistance Program: Examining the
Evidence to Define Benefit Adequacy, the IOM/NRC committee concluded that the adequacy of
allotments can be defined and recommended a variety of factors that should be considered during
the definition process.
6. Develop standards to protect health
Many recent efforts have focused on improving the quality and cost-effectiveness of day-to-day
health care, but these health care and public health systems must also be able to operate during
and after a major disaster. The IOM has conducted a series of studies about crisis standards of
LETTER FROM THE PRESIDENT
9
care that are intended to guide providers in allocating limited resources in
a fair and equitable way in the event of a disaster. In the most recent report
on this topic, Crisis Standards of Care: A Toolkit for Indicators and Triggers,
an IOM committee examined indicators and triggers that guide transitions
from pre-disaster standards to crisis standards of care and back again. The
report contains a practical discussion toolkit to help stakeholders customize these indicators and triggers to their local contexts. Building on this
series of reports, the HHS Office of the Assistant Secretary for Preparedness and Response launched the Communities of Interest for Crisis Standards of Care and the Allocation of Scarce Resources website in June. The
website features the IOM’s Crisis Standards of Care reports and the IOM Preparedness Forum’s
workshop series on the same topic as resources to help communities learn more about crisis standards of care and the allocation of scarce resources.
Work over the past year has focused on a variety of standards intended to improve individual
and population health. One recent workshop convened by the Forum on Drug Discovery, Development, and Translation brought together experts to discuss the increasing demand for globally harmonized, science-based standards for the development and evaluation of medical products.
The workshop discussions, compiled in International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary, explored principles, potential approaches, and
strategies to advance the development of more coordinated regulatory standards.
Another workshop focused on the merits and potential uses of a set of national nutrition
education curriculum standards and learning objectives that could be used in elementary and
secondary schools. Such standards would help make schools a focal point for obesity prevention – a
key recommendation in the 2012 IOM report Accelerating Progress in Obesity Prevention: Solving
the Weight of the Nation. Workshop themes are captured in Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary.
The IOM also undertook the challenging task of integrating measures of public health system performance and measures of individual and population health. In its report, Toward Quality
Measures for Population Health and the Leading Health Indicators, the IOM committee laid out an
integrated logic model for health metrics. The report demonstrates how this can guide the development of informative, timely, and actionable measures through four case illustrations in the domains
of tobacco; maternal, infant and child health; environmental quality; and nutrition, physical activity, and obesity.
7. Foster innovative approaches to improve health and health care
The IOM has conducted a number of studies and workshops that explore a variety of novel
approaches to improving health. Technology-driven assistive and adaptive products have
improved quality of life and have the potential to increase the number of disability-free years for
many individuals. In December 2012, the IOM/NRC Forum on Aging, Disability, and Independence convened a workshop to examine the ways in which technological innovations can facilitate
independence and healthy aging. The workshop discussions are summarized in Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop Summary.
10
PRESIDENT’S REPORT SUPPLEMENT
Innovation also is key to continuous improvement of health professional education, a topic
central to the work of the Global Forum on Innovation in Health Professional Education. During
the past century, there have been myriad changes with regard to the health professions, the settings
in which health professionals work, a shifting burden of disease, and technological advances that
are transforming the health and educational systems. A 2012 workshop, summarized in Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models across the Continuum of Education to Practice – Workshop Summary, provided an opportunity
for experts to discuss new models for educating health professionals that better reflect the current
fiscal exigencies, technologies, organizational forms, and patient needs.
Empowering patients and families to become active partners in their health care – a seemingly simple yet surprisingly multifaceted concept to implement – is another example of an innovative approach to health care being considered at the IOM. Partnering with Patients to Drive Shared
Decisions, Better Value, and Care Improvement – Workshop Proceedings details discussions from a
February workshop convened by the Roundtable on Value & Science-Driven Health Care to explore
more active patient engagement in health care. The workshop built on the ongoing work of the
roundtable to achieve better care at lower costs and to create a continuously learning and improving health system. To disseminate the workshop themes more broadly, the IOM created a video and
a brochure with information about how to establish more active partnerships for personal health
and improve health system performance (available at www.iom.edu/partneringwithpatients).
The IOM first examined priorities for new vaccine development in the
mid-1980s and again in the 1990s. These previous efforts produced a list
of priorities based on criteria including the then-current burden of disease
and the state of technology. These reports inevitably became out of date as
research progressed, new conditions emerged, and the burden of disease
evolved. In a break from the traditional report model, the IOM recently
undertook a pioneering, multiphase study to develop a vaccine prioritization software tool that utilizes decision science and modeling to help
inform choices among potential candidates for vaccine development. The
phase two report, Ranking Vaccines: A Prioritization Software Tool – Phase
II: Prototype of a Decision-Support System, lays out a functional version of
the SMART Vaccines (Strategic Multi-Attribute Ranking Tool for Vaccines)
version 1.0 software that takes into account numerous factors influencing prioritization, including demographic, economic, scientific, and business considerations. Along with the report, the
IOM developed a video that demonstrates the use of the new software (available at www.nap.edu/
smartvaccines).
Telehealth is a maturing concept in health care delivery, with enormous potential to extend
the reach of the traditional delivery model. A workshop convened in 2012 and summarized in The
Role of Telehealth in an Evolving Health Care Environment – Workshop Summary brought together
experts to consider the ways in which telehealth technology fits into the existing health care system. Specifically, participants discussed the potential for telehealth to help geographically isolated
individuals access care and more efficiently utilize limited resources.
LETTER FROM THE PRESIDENT
11
8. Design blueprints to meet health needs
Approximately 14 million people in the United States have been diagnosed
with cancer and more than 1.6 million new cases will be diagnosed this year.
Although every patient deserves to receive the highest quality of cancer
care, that goal has yet to be achieved. More than a decade after it first studied the topic, the IOM convened a panel of experts once again to examine
the quality of cancer care in the United States and recommend improvements to the system. In Delivering High-Quality Cancer Care: Charting a
New Course for a System in Crisis, the committee cited growing demand
for cancer care, increasing treatment complexity, workforce shortages, and
growing costs as reasons for the critical state of the cancer care delivery
system today. Across-the-board changes are necessary among all stakeholders to improve the quality of life and health outcomes for cancer patients. To illustrate the need
for change, the IOM created a video that describes the cancer care system from the perspectives
of four patients battling the disease (available at www.iom.edu/qualitycancercarevideo). In addition, the IOM developed a document that outlines questions all patients should discuss with their
cancer care providers in to ensure that they receive the best possible care (available at www.iom.
edu/cancerquestions).
Also in 2013, the IOM examined ways to accurately monitor the scope of the HIV/AIDS epidemic and the availability and success of treatment and prevention programs in the United States.
The combination of the National HIV/AIDS Strategy (NHAS) released in 2010 and provisions in
the Affordable Care Act (ACA) that expand access to treatment will likely lead to an increase in the
number of people seeking care. Therefore, it is more important than ever for the federal government to be able to track the scope of the epidemic and assess its treatment and prevention efforts
using accurate data. Monitoring HIV Care in the United States: A Strategy for Generating National
Estimates of HIV Care and Coverage is the second report from an IOM committee tasked by the
White House Office of National AIDS Policy to help develop a monitoring plan. In its report, the
committee noted that an improved monitoring system will allow for assessment of the effects of
NHAS and the ACA on people with HIV/AIDS and will help inform future programs and resource
allocations.
Each of these reports makes a difference, and their cumulative contribution is considerable.
In each case, the goal is to move beyond illuminating a topic to demonstrate the ways in which
policy and practice can make real and lasting improvements in health. In order to make our work
even more readily accessible, we have refreshed the look of our website to make it more engaging
and easy to use. I invite you to visit the IOM website at www.iom.edu, where you will notice a more
modern design that features compelling use of photos, a cleaner header and footer, and a more
prominent placement of the meetings section to give the web visitor one-click access to information on meetings at the IOM.
The IOM is a unique resource for our nation as the health arm of the National Academy of
Sciences, independent of government and yet closely connected—metaphorically, I say, “at arm’s
length and tightly clasped.” We advance in relevance and recognition insofar as we meet genuine
needs to solve health problems, point the way to sounder policies, promote the public’s health, and
12
PRESIDENT’S REPORT SUPPLEMENT
guide institutional and professional practice in the service of patients. I believe we do all this and
more by virtue of the commitment and desire for public service of our members and expert volunteers, the extraordinary skill and dedication of our staff, and the generous support of our sponsors
and donors. Our best days, I am sure, lie ahead.
Sincerely,
Harvey V. Fineberg, M.D., Ph.D.
APPENDIX TO LETTER
13
Eight Purposes of Recent IOM Reports
1. Bring new insights to longstanding problems
• An Update on Research Issues in the Assessment of Birth Settings – Workshop Summary
• Contagion of Violence – Workshop Summary
• Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary
• Elder Abuse and Its Prevention – Workshop Summary
• Neurodegeneration: Exploring Commonalities Across Diseases – Workshop Summary
• Public Health Linkages with Sustainability – Workshop Summary
• The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop Summary
2. Confront controversial questions of science and policy
• Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and
Future Studies
• Countering the Problem of Falsified and Substandard Drugs
• Environmental Decisions in the Face of Uncertainty Variation in Health Care Spending: Target
Decision Making, Not Geography
• Geographic Variation in Health Care Spending and Promotion of High-Value Care – Interim
Report
• Health Impact Assessment of Shale Gas Extraction – Workshop Summary
• Population Health Implications of the Affordable Care Act – Workshop Summary
• Sodium Intake in Populations: Assessment of Evidence
• Variation in Health Care Spending: Target Decision Making, Not Geography
3. Illuminate topics that demand notice
• Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop
Summary
• Educating the Student Body: Taking Physical Activity and Physical Education to School
• Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary
• Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress
• Exploring Health and Environmental Costs of Food – Workshop Summary
• Global Development Goals and Linkages to Health and Sustainability – Workshop Summary
• Health Literacy: Improving Health, Health Systems, and Health Policy Around the World –
Workshop Summary
14
PRESIDENT’S REPORT SUPPLEMENT
• The Human Microbiome, Diet, and Health – Workshop Summary
• Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public
Health Considerations for Neighboring Jurisdictions – Workshop Summary
• Oral Health Literacy – Workshop Summary
• Organizational Change to Promote Health Literacy – Workshop Summary
• Priorities for Research to Reduce the Threat of Firearm-Related Violence
• Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary
• The Social Biology of Microbial Communities – Workshop Summary
• U.S. Health in International Perspective: Shorter Lives, Poorer Health
4. Attend to needs of vulnerable populations
• Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model Study Protocols and
Frameworks to Advance the State of Science – Workshop Summary
• Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records –
Workshop Summary
• Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United
States
• Gulf War and Health: Treatment for Chronic Multisymptom Illness
• Improving the Health, Safety, and Well-Being of Young Adults – Workshop Summary
• New Directions in Child Abuse and Neglect Research
• Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and Their Families
5. Conduct evaluations that guide current and future programs
• A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s Front Line
• Evaluation of PEPFAR
• Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations
• Future Uses of the Department of Defense Joint Pathology Center Biorepository
• Review of the Department of Labor’s Site Exposure Matrix Database
• Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit
Adequacy
• The California Institute for Regenerative Medicine: Science, Governance, and the Pursuit of
Cures
• The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational
Research
APPENDIX TO LETTER
15
6. Develop standards to protect health
• An Integrated Framework for Assessing the Value of Community-Based Intervention
• Crisis Standards of Care: A Toolkit for Indicators and Triggers
• International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary
• Leveraging Action to Support Dissemination of Pregnancy Weight Gain Guidelines – Workshop
Summary
• Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop
Summary
• Toward Quality Measures for Population Health and the Leading Health Indicators
7. Foster innovative approaches to improve health and health care
• Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop
Summary
• Improving the Utility and Translation of Animal Models for Nervous System Disorders –
Workshop Summary
• Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models across the Continuum of Education to Practice – Workshop Summary
• Large Simple Trials and Knowledge Generation in a Learning Health System – Workshop
Summary
• Observational Studies in a Learning Health System – Workshop Summary
• Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement –
Workshop Proceedings
• Ranking Vaccines: A Prioritization Software Tool – Phase II: Prototype of a Decision-Support
System
• Sharing Clinical Research Data – Workshop Summary
• Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate
Information for Public Health Officials – Workshop Summary
• The Economics of Genomic Medicine – Workshop Summary
• The Role of Telehealth in an Evolving Health Care Environment – Workshop Summary
• The Science and Applications of Microbial Genomics – Workshop Summary
• Strengthening Human Resources Through Development of Candidate Core Competencies for Mental, Neurological, and Substance Use Disorders in Sub-Saharan Africa – Workshop Summary
• Transdisciplinary Professionalism for Improving Health Outcomes – Workshop Summary
16
PRESIDENT’S REPORT SUPPLEMENT
8. Design blueprints to meet health needs
• Best Care at Lower Cost: The Path to Continuously Learning Health Care in America
• Core Measurement Needs for Better Care, Better Health, and Lower Costs: Counting What
Counts – Workshop Summary
• Delivering Affordable Cancer Care in the 21st Century – Workshop Summary
• Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis
• Implementing a National Cancer Clinical Trials System for the 21st Century – Second
Workshop Summary
• Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of
HIV Care and Coverage
17
DEGREES OF IMPACT
Institute of Medicine
Degrees of Impact
Effecting
Change
Inspiring
Action
Informing the
Field
Receiving
Recognition
Spreading the
Message
Improved Health Outcomes
Legislation Enacted
Designation of Funding/Appropriations
Policy Change, Including Organizational Policy
Development/Revision of Guidelines
Legislation Introduced
Development of Action Group/Task Force
Advocacy Initiatives
Research Initiative Implemented
Basis of RFA/RFP
Educational Efforts
Subject of a Professional Meeting
Subject of a Congressional Hearing/Investigation
Formal Response (Agency, Sponsor, Stakeholder)
Awards
Noteworthy Media Coverage
Published Article in Journal
18
PRESIDENT’S REPORT SUPPLEMENT
Institute of Medicine
Organizational Chart
President
Interim Home Secretary
Foreign Secretary
Harvey V. Fineberg
Harold J. Fallon
Jo Ivey Boufford
Executive Office
The Interim Leonard D. Schaeffer
Executive Officer
Clyde J. Behney
Office of Finance and
Administration
Janet A. Stoll
Director
Deputy Executive Officer
Clyde J. Behney
Office of Council and
Membership Services
Judith Shamir
Director
Office of
Development
Clare Flanagan
Director of
Development
Office of
Communications
Abbey Meltzer
Interim Director of
Communications
Boards
Population Health and
Public Health Practice
Rose Marie Martinez
Director
Health Sciences Policy
Health Care Services
Andrew M. Pope
Director
Roger C. Herdman
Director
Global Health
Food and Nutrition
Patrick W. Kelley
Director
Ann L. Yaktine
Interim Director
Children, Youth,
and Families
Kimber Bogard
Director
African Science
Academy Development
Patrick W. Kelley
Director
Health of Select Populations
Rick Erdtmann
Director
Health Policy Educational
Programs and Fellowships
Marie Michnich
Director
Roundtables, Forums, and Other Select Activities
Food Forum
Forum on Aging, Disability, and
Independence
Forum on Drug Discovery, Development, and
Translation
Forum on Global Violence Prevention
Forum on Investing in Young Children
Globally
Forum on Medical and Public Health
Preparedness for Catastrophic Events
Forum on Microbial Threats
Forum on Neuroscience and Nervous System
Disorders
Forum on Promoting Children’s Cognitive,
Affective, and Behavioral Health
Roundtable on Environmental Health
Sciences, Research, and Medicine
Forum on Public–Private Partnerships for
Global Health and Safety
Roundtable on Obesity Solutions
Global Forum on Innovation in Health
Professional Education
A Healthy America
Health Data Consortium
Health Literacy Roundtable
Medical Follow-Up Agency
National Cancer Policy Forum
Roundtable on Population Health
Improvement
Roundtable on the Promotion of Health
Equity and the Elimination of Health
Disparities
Roundtable on Translating Genomic-Based
Research for Health
Roundtable on Value & Science-Driven
Health Care
PRESIDENT’S OFFICE AND EXECUTIVE OFFICE STAFF
Institute of Medicine
Office of the President
Harvey V. Fineberg, President
Sherla Allen, Executive Assistant
Morgan Heller, Assistant to the President for Special Projects
Executive Office
Clyde J. Behney, The Interim Leonard D. Schaeffer Executive Officer
K. Corrin Merritt, Executive Assistant
Clyde J. Behney, Deputy Executive Officer
Erika Vijh, Senior Program Assistant
Office of the Home Secretary
Harold J. Fallon, Interim Home Secretary
Office of the Foreign Secretary
Jo Ivey Boufford
Office of Council and Membership Services
Judith Shamir, Director
Donna D. Duncan, Deputy Director
Office of Reports and Communications
Abbey Meltzer, Interim Director
Office of Finance and Administration
Janet A. Stoll, Director
Anton Bandy, Deputy Director
Office of Development
Clare Flanagan, Director
19
20
PRESIDENT’S REPORT SUPPLEMENT
Recent Publications
Elder Abuse and Its Prevention – Workshop Summary (October 18, 2013)
The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop
Summary (October 15, 2013)
Organizational Change to Promote Health Literacy – Workshop Summary (October 15, 2013)
Population Health Implications of the Affordable Care Act – Workshop Summary (October 7, 2013)
Transdisciplinary Professionalism for Improving Health Outcomes – Workshop Summary (October
7, 2013)
Neurodegeneration: Exploring Commonalities Across Diseases – Workshop Summary (October 3,
2013)
Ranking Vaccines: A Prioritization Software Tool – Phase II: Prototype of a Decision-Support
System (September 30, 2013)
Global Development Goals and Linkages to Health and Sustainability – Workshop Summary
(September 30, 2013)
Improving the Health, Safety, and Well-Being of Young Adults – Workshop Summary (September 27,
2013)
Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States
(September 25, 2013)
A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s
Front Line (September 12, 2013)
Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis (September 10,
2013)
Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate
Information for Public Health Officials – Workshop Summary (September 4, 2013)
Health Impact Assessment of Shale Gas Extraction – Workshop Summary (August 30, 2013)
Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary
(August 23, 2013)
Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement –
Workshop Proceedings (August 15, 2013)
RECENT PUBLICATIONS
21
Strengthening Human Resources Through Development of Candidate Core Competencies for Mental,
Neurological, and Substance Use Disorders in Sub-Saharan Africa – Workshop Summary (August 14,
2013)
Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress (August 2, 2013)
International Regulatory Harmonization Amid Globalization of Drug Development – Workshop
Summary (August 1, 2013)
Crisis Standards of Care: A Toolkit for Indicators and Triggers (July 31, 2013)
Variation in Health Care Spending: Target Decision Making, Not Geography (July 24, 2013)
Public Health Linkages with Sustainability – Workshop Summary (July 19, 2013)
Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary
(July 15, 2013)
Implementing a National Cancer Clinical Trials System for the 21st Century – Second Workshop
Summary (July 15, 2013)
Health Literacy: Improving Health, Health Systems, and Health Policy Around the World –
Workshop Summary (July 12, 2013)
Toward Quality Measures for Population Health and the Leading Health Indicators (July 9, 2013)
Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public Health
Considerations for Neighboring Jurisdictions – Workshop Summary (July 9, 2013)
The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research (June
25, 2013)
Core Measurement Needs for Better Care, Better Health, and Lower Costs: Counting What Counts –
Workshop Summary (June 24, 2013)
Priorities for Research to Reduce the Threat of Firearm-Related Violence (June 5, 2013)
Educating the Student Body: Taking Physical Activity and Physical Education to School (May 23,
2013)
Sodium Intake in Populations: Assessment of Evidence (May 14, 2013)
Interprofessional Education for Collaboration: Learning How to Improve Health from
Interprofessional Models across the Continuum of Education to Practice – Workshop Summary
(May 13, 2013)
Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop
Summary (April 18, 2013)
22
PRESIDENT’S REPORT SUPPLEMENT
The Science and Applications of Microbial Genomics - Workshop Summary (April 3, 2013)
Sharing Clinical Research Data - Workshop Summary (March 29, 2013)
Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model Study Protocols and
Frameworks to Advance the State of the Science – Workshop Summary (March 29, 2013)
Review of the Department of Labor’s Site Exposure Matrix Database (March 27, 2013)
Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and
Their Families (March 26, 2013)
The Economics of Genomic Medicine – Workshop Summary (March 26, 2013)
Geographic Variation in Health Care Spending and Promotion of High-Value Care – Interim Report
(March 22, 2013)
Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop
Summary (March 4, 2013)
Oral Health Literacy – Workshop Summary (February 21, 2013)
Evaluation of PEPFAR (February 20, 2013)
Countering the Problem of Falsified and Substandard Drugs (February 13, 2013)
Delivering Affordable Cancer Care in the 21st Century – Workshop Summary (February 11, 2013)
Environmental Decisions in the Face of Uncertainty (February 8, 2013)
Improving the Utility and Translation of Animal Models for Nervous System Disorders – Workshop
Summary (February 8, 2013)
Gulf War and Health: Treatment for Chronic Multisymptom Illness (January 23, 2013)
Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy
(January 17, 2013)
Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and
Future Studies (January 16, 2013)
U.S. Health in International Perspective: Shorter Lives, Poorer Health (January 9, 2013)
Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records – Workshop
Summary (December 20, 2012)
RECENT PUBLICATIONS
23
Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary (December 14, 2012)
The Social Biology of Microbial Communities – Workshop Summary (December 10, 2012)
The California Institute for Regenerative Medicine: Science, Governance, and the Pursuit of Cures
(December 6, 2012)
The Role of Telehealth in an Evolving Health Care Environment – Workshop Summary (November
20, 2012)
Exploring Health and Environmental Costs of Food – Workshop Summary (November 8, 2012)
An Integrated Framework for Assessing the Value of Community-Based Prevention (November 2,
2012)
Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary (November 1,
2012)
The Human Microbiome, Diet, and Health – Workshop Summary (October 24, 2012)
Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and
Recommendations (October 16, 2012)
Future Uses of the Department of Defense Joint Pathology Center Biorepository (October 10, 2012)
Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV
Care and Coverage (October 5, 2012)
Contagion of Violence – Workshop Summary (October 3, 2012)
PROGRAM LISTING
25
Board on African Science Academy Development Initiative
Patrick W. Kelley, M.D., Director
Organized: 2004
The principal goal of the African Science Academy Development Initiative (ASADI) is to advance
the ability of nations in Africa to address their most serious health challenges by (1) enhancing the
capacity of African academies of science to provide independent, evidence-based policy advice to
their governments, and (2) building African governments’ appreciation of and demand for advice
from these academies.
This 10-year effort engages nationally-based science academies in Cameroon, Ghana, Kenya,
Nigeria, Senegal, South Africa, Uganda, and, most recently, Ethiopia. The African regional science
academy, the African Academy of Sciences (AAS), and the Network of African Science Academies
(NASAC) are also engaged.
The specific objectives of this initiative include the following:
• Select African academies of science with the greatest promise to provide evidence-based
health policy advice;
• Provide training for staff members from each participating academy to prepare them to support the conduct of policy advisory activities and manage finances;
• Promote continuous discussion and debate of evidence-based policy development in crosscutting areas of health and sustainable development;
• Strengthen academy policy advisory capacity through mentored policy advisory activities;
• Strengthen substantive, managerial, and fiscal independence of academies of science through
support of independent policy advisory activities and financially matched activities;
• Develop human, material, and organizational infrastructure in each academy to support the
contribution of science to policy advisory work in the future;
• Build a regional alliance through annual symposia and learning collaboratives to enable participating academies and leading scientists in non-participating countries to learn from and
support each other as they develop their roles;
• Develop demand from African governments and civil society organizations for evidencebased policy advice from African academies of science; and
• Externally evaluate project outcomes and the effectiveness of the processes used to achieve
project outcomes.
26
PRESIDENT’S REPORT SUPPLEMENT
Recent Activities
Cameroon Academy of Sciences (CAS)
The first consensus study undertaken by the Cameroon Academy of Sciences, Recent Advances on
Onchocerciasis Research and Advances for Control, was recently published. Also, CAS has localized the IOM report Promoting Cardiovascular Health in the Developing World: A Critical Challenge
to Achieve Global Health through the workshop summary Tackling Cardiovascular Diseases/NonCommunicable Diseases in Cameroon. CAS continues to receive subvention from the Cameroonian
government.
Ethiopian Academy of Sciences (EAS)
The main focus for 2013 for the Ethiopian Academy of Sciences is planning and organizing the
ninth annual meeting of ASADI, scheduled for early November 2013. In line with this, a planning
meeting was held early July 2013 at the Rockefeller Foundation Bellagio Center in Italy. In addition, EAS plans to undertake a consensus study on the establishment of a national research council. The Ministry of Science and Technology of the Federal Democratic Republic of Ethiopia has
shown keen interest in the establishment of such a body to enable its recently established National
Science, Technology and Innovation Council guide researchers involved in the priority research
agenda of Ethiopia. In December 2013, EAS released the publication Status of Health Research in
Ethiopia. The EAS was officially chartered in June under Proclamation No. 738/2013.
Nigerian Academy of Science (NAS)
Following the Academy of Science of South Africa’s example, the Nigerian Academy of Science
(NAS) also attained financial independence and “graduated” from the ASADI program in February
2013. Prior to its graduation, in November 2012 NAS successfully hosted the eighth annual ASADI
meeting, focusing on climate change in Africa.
Uganda National Academy of Science (UNAS)
The Uganda National Academy of Science has received support through 2015. Over the past
9 years, UNAS has continued to make positive inroads toward influencing government policy
decisions using an evidence-based approach. UNAS has also expanded its national and
international stakeholder base and continues its outreach to the media.
Current UNAS programs include:
• The activities of the Advisory Committee on Vaccines and Immunization (ACVI). The first
ACVI policy brief has been published and circulated. Several more briefs are currently being
written.
• Activities of the Malaria Vaccine Committee. This activity is supported by PATH.
• Activities of the Research, Academia Scientists of the Self Coordinating Entity of the Uganda
Aids Commission (UAC). This activity is funded by the UAC.
PROGRAM LISTING
27
• Activities of the Science Education Committee. The committee is involved developing education policy briefs for the Ministry of Education Management Committee with emphasis on
reviewing the curriculum and encouraging science education in Ugandan schools.
• Young Scientists Program. Resources have been identified for holding an annual meeting of
young scientists. The meeting is scheduled to take place by the end of 2013.
• Development of guidelines and standards for UNAS publications by the UNAS Committee on
Research and Publications.
• Other programs in the pipeline include preparing for Annual Meeting of the African Science
Academies (AMASA) 10, the ASADI annual meeting finale; climate change; science education for IAP; environment impact assessment and monitoring and evaluation of mitigation
measures for oil extraction.
• Working with the government of Uganda for an annual subvention.
Academy of Science of South Africa (ASSAf)
In 2011, the South Africa participation in the ASADI program ended after attaining their developmental goal of self-sustainability. ASSAf however, continues to play a leadership role in helping
develop some academies in the South Africa Development Community (SADC), namely Namibia,
Mozambique, Mauritius, and Zimbabwe.
2012 Annual Meeting
The eighth annual ASADI meeting (also known as AMASA 8) was held in Lagos, Nigeria, on
November 11-14, 2012. The theme for AMASA 8 was Climate Change in Africa: Using Science to
Reduce Risks.
AMASA 8 focused on the African perspective on issues of adaptation to and mitigation
against the risks associated with climate change, especially in the health and agricultural sectors.
The meeting brought together policy makers, members of the African science academies as well as
academies in Europe and the United States, experts in climate change science, development partners, academia, and civil society organizations. Participants initiated a process for the long-term
engagement of African science academies with their governments and relevant stakeholders on
climate change issues. In addition, the African science academies issued a joint statement, “Raising
the African Voice—Climate Change in Africa: Using Science to Reduce Risks,” which is currently
being disseminated.
The AMASA 8 conference was co-sponsored by ECOBANK Plc, the Central Bank of Nigeria,
the government of Lagos, the Nigerian Geological Survey Agency, the Federal University Ndufa
Alike Ikwo in Ebonyi State, the World Bank (STEP-B), the Federal Ministry of Health, and the University of Lagos.
2013 Annual Meeting
The ninth annual ASADI meeting (also known as AMASA 9) is scheduled for November 10-14 in
Addis Ababa, Ethiopia and will be hosted by the Ethiopian Academy of Sciences. The theme for
28
PRESIDENT’S REPORT SUPPLEMENT
AMASA 9 is Biotechnology for Africa’s Development. The meeting is generating a lot of interest from the Bill and Melinda Gates Foundation, the U.S. Agency for International Development
(USAID), the U.S. Embassy’s Regional Environment Office in Ethiopia, and other interested stakeholders. Two planning meetings have been held to date, with the last meeting held June 3-7 at the
Rockefeller Foundation Bellagio Center, Italy.
Board Roster
Enriqueta C. Bond (Chair), Marshall, VA
Jo Ivey Boufford (Ex Officio, Foreign Secretary, IOM), New York Academy of Medicine, New
York, NY
Michael Clegg (Ex Officio, Foreign Secretary, National Academy of Sciences), Department of
Botany and Plant Sciences, University of California, Riverside
Princeton Lyman, Council on Foreign Relations, Washington, DC
Narciso Matos, Foundation for Community Development, Maputo, Mozambique
Cheikh Mbacké, William and Flora Hewlett Foundation, Dakar, Senegal
Romain Murenzi, TWAS–The Academy of Sciences for the Developing World, Trieste,
Italy
Venkatesh Narayanamurti (Ex Officio, Foreign Secretary, NAE), Harvard School of Engineering and Applied Sciences, Boston, MA
Board on Children, Youth, and Families
Kimber Bogard, Ph.D., Director
Organized: 1993
The Board on Children, Youth, and Families (BCYF) is a nongovernmental, scientific unit within
the National Academy of Sciences that convenes top experts from across multiple disciplines to
analyze the best available evidence on critical issues facing children, youth, and families today.
BYCF’s ability to evaluate research simultaneously from the perspectives of health, education, and
the social and behavioral sciences allows it to shed light on innovative and influential solutions
to inform the nation. BCYF’s range of methods—from rapidly convened workshops to consensus
reports and forums—allows it to respond with the timeliness and depth required to make the largest possible impact on the health and well-being of children, youth, and their families throughout
the entire life cycle. BCYF reports are independent analyses of the science that go through a rigorous external peer review process. Therefore, its recommendations are trusted and implemented at
every level, from policy makers to practitioners.
PROGRAM LISTING
29
Recent Reports
2013
• An Update on Research Issues in the Assessment of Birth Settings – Workshop Summary
• Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United
States
• New Directions in Child Abuse and Neglect Research
• Leveraging Action to Support Dissemination of Pregnancy Weight Gain Guidelines – Workshop
Summary (with Food and Nutrition Board)
• Design of the National Children’s Study – A Workshop Summary (with Committee on National
Statistics)
• Evaluation of PEPFAR (with Board on Global Health)
• Improving the Health, Safety, and Well-Being of Young Adults: Workshop Summary
• Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop
Summary (with Food and Nutrition Board)
2012
•Child Maltreatment Research, Policy, and Practice for the Next Decade – Workshop
Summary
• From Neurons to Neighborhoods: An Update – Workshop Summary
Current Activities/Studies in Progress
• Forum on Global Violence Prevention (with Board on Global Health)
• Sports-Related Concussions in Youth
• Design of the National Children’s Study and Implications for the Generalizability of
Results
• Standards for Benefit-Cost Analysis of Preventive Interventions for Children, Youth, and
Families: A Workshop
• The Science of Children Birth to Age 8: Deepening and Broadening the Foundation for Success
• Forum on Investing in Young Children Globally
• Forum on Promoting Children’s Cognitive, Affective, and Behavioral Health
Projects in Development
• A Developmental Approach to Childhood Obesity: The Fetal and Early Childhood Years – A
Workshop
• Fostering Educational and Career Success for English Learners: A Research Agenda to
Inform Policy and Practice (Study)
30
PRESIDENT’S REPORT SUPPLEMENT
• Increasing Capacity for Reducing Bullying and Its Impact on the Lifecourse of Youth
Involved: A Workshop
• Parenting in Context – A Workshop
• Summertime Experiences and Child and Adolescent Education, Health, and Safety
Board Roster
Bernard Guyer (Chair), Bloomberg School of Public Health, The Johns Hopkins University,
Baltimore, MD
Shari Barkin, Monroe Carell Jr. Children’s Hospital, Vanderbilt University, Nashville, TN
Thomas F. Boat, College of Medicine, University of Cincinnati, OH
W. Thomas Boyce, Faculty of Medicine, University of British Columbia, Vancouver,
Canada
David A. Brent, Western Psychiatric Institute and University of Pittsburgh School of
Medicine, PA
David V. B. Britt, Retired CEO, Sesame Workshop
Debbie I. Chang, Nemours Health and Prevention Services, Newark, DE
Janet M. Currie, Woodrow Wilson School of Public and International Affairs, Princeton University, NJ
Patrick H. DeLeon, F. Edward Hebert School of Medicine and the Graduate School of Nursing
Uniformed Services University of the Health Sciences, Bethesda, MD
Angela Diaz, Department of Pediatrics and Community Preventive Medicine, Mount Sinai
School of Medicine, New York, NY
Gary W. Evans, Department of Design & Environmental Analysis and Department of Human
Development, Cornell University, Ithaca, NY
Elena Fuentes-Afflick, University of California, San Francisco, and San Francisco General
Hospital
Eugene E. Garcia, Mary Lou Fulton Teachers’ College, Arizona State University, Phoenix
J. David Hawkins, School of Social Work, University of Washington, Seattle
Jacqueline Jones, Early Childhood Education Specialist
Ann S. Masten, Institute of Child Development, University of Minnesota, Minneapolis
Susan E. Mayer, Harris Graduate School of Public Policy Studies, University of Chicago, IL
Velma McBride Murry, Peabody College, Vanderbilt University, Nashville, TN
Bruce S. McEwen, The Rockefeller University, New York, NY
Pamela Morris, Department of Applied Psychology, The Steinhardt School of Culture, Education, and Human Development, New York University, New York
Taha E. Taha, Johns Hopkins University, Bloomberg School of Public Health, Baltimore, MD
PROGRAM LISTING
31
Food and Nutrition Board
Ann L. Yaktine, Ph.D., RD, Acting Director
Organized: 1940
The Food and Nutrition Board (FNB) is a focal point for activities of the IOM concerned with food,
nutrition, obesity prevention, and food safety. The primary goals are
• To provide visionary leadership in the effective application of the full range of nutrition and
food sciences to improve human health;
• To contribute at national and global levels to the enhancement of child growth and development; prevention of diet-related deficiencies and chronic diseases; and improvement of
physical and cognitive function, health, and well-being;
• To decrease the incidence of foodborne diseases to improve human health nationally and
globally; and
• To apply scientific knowledge to advise on policies and approaches to eliminate, reduce, or
control the natural, inadvertent, or intentional contamination of the food supply.
Food Forum
Leslie Sim and Heather Cook, Co-Directors
The Food Forum celebrated its 20th anniversary in 2013. The forum was established in 1993 to allow
leaders from the food industry, government, consumer interest groups, and academia to openly discuss food-related issues in a neutral setting. Most recently, the Food Forum has facilitated discussions to promote multisectoral cooperation and innovation around the following topics:
• Biomarkers as Indicators of Health
• Sustainable Diets: Food for Healthy People and a Healthy Planet
• The Future of Performance Standards in Food Safety: Innovation Ahead?
• The Human Microbiome, Diet, and Health
• Building Public–Private Partnerships in Food and Nutrition
• Informing Health and Food Policy Through Systematic, Evidence-Based Reviews
• The Impact of Global Trade on Food Safety: Supply Chain and Policy/Regulatory Approaches
to Import Safety
32
PRESIDENT’S REPORT SUPPLEMENT
Recent Reports
2013
• Leveraging Action to Support Dissemination of the Pregnancy Weight Gain Guidelines – Workshop Summary
• Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress
• Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary
• Educating the Student Body: Taking Physical Activity and Physical Education to School
• Sodium Intake in Populations: Assessment of Evidence
• Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop
Summary
• Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy
2012
• Exploring Health and Environmental Costs of Food – Workshop Summary
• The Human Microbiome, Diet, and Health – Workshop Summary
• Fitness Measures and Health Outcomes in Youth
• Research Methods to Assess Dietary Intake and Program Participation in Child Day Care:
Application to the Child and Adult Care Food Program – Workshop Summary
• Building Public-Private Partnerships in Food and Nutrition – Workshop Summary
• Alliances for Obesity Prevention: Finding Common Ground – Workshop Summary
• Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation
• Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad
• Nutrition and Healthy Aging in the Community – Workshop Summary
• Measuring Progress in Obesity Prevention – Workshop Report
2011
• Front-of-Package Nutrition Rating Systems and Symbols: Promoting Healthier Choices
• Updating the USDA Breastfeeding Campaign Work – Workshop Summary
• Legal Strategies in Childhood Obesity Prevention – Workshop Summary
• Leveraging Food Technology for Obesity Prevention and Reduction Efforts – Workshop Summary
• Early Childhood Obesity Prevention Policies
• Nutrition and Traumatic Brain Injury: Improving Acute and Subacute Health Outcomes in
Military Personnel
• Hunger and Obesity: Understanding a Food Insecurity Paradigm – Workshop Summary
• Perspectives on Biomarker and Surrogate Endpoint Evaluation – Discussion Forum
Summary
PROGRAM LISTING
33
Current Activities/Studies in Progress
• A Framework for Assessing Health, Environmental, and Social Effects of the Food System
• Evaluating Progress of Obesity Prevention Efforts
• Food Forum
• National Nutrition Education Curriculum Standards Workshop (with Board on Children,
Youth, and Families)
• Physical Activity and Physical Education in Schools
• Potential Health Hazards Associated with Consumption of Caffeine in Food Dietary Supplements: A Workshop
• Roundtable on Obesity Solutions
• Standing Committee on Childhood Obesity Prevention
• Content Coordination for HBO’s The Weight of the Nation for Kids
Projects in Development
• Developmental Approach to Childhood Obesity: Fetal and Early Childhood Years
• Agriculture–Nutrition Metrics
• Assessing Safety and Monitoring Chemical Hazards in Foods
• Sugar-Sweetened Beverages and Health
• 21st-Century Opportunities in Nutrition and Food Sciences: A Workshop
• Nutrition and Aging
• Promoting Recovery from Traumatic Brain Injury Through Nutrition
• Phase III – Implementation of the National Obesity Evaluation Plan
• Supplemental Nutrition Assistance Program (SNAP) – Opportunities for Healthy Diets
• National Nutrition Education Curriculum Standards Consensus Study
Board Roster
Suzanne R. Murphy (Chair), Researcher and Professor Emeritus, University of Hawaii Cancer Center, Honolulu
Cheryl A. M. Anderson, Assistant Scientist, Department of Epidemiology, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD
Patsy M. Brannon, Professor, Division of Nutritional Sciences, Cornell University, Ithaca,
NY
Fergus M. Clydesdale, Department of Food Science, University of Massachusetts, Amherst,
MA
34
PRESIDENT’S REPORT SUPPLEMENT
Richard J. Deckelbaum, Institute of Food and Nutrition, Columbia University, New York, NY
Sharon M. Donovan, Professor and Melissa M. Noel Endowed Chair in Nutrition and Health,
Department of Food Science and Health, University of Illinois, Urbana
Lee-Ann Jaykus, Professor, Department of Food, Bioprocessing, and Nutritional Sciences,
North Carolina State University, Raleigh
Gordon Jensen, Department of Nutritional Sciences, Pennsylvania State University, University Park
Joanne R. Lupton, Distinguished Professor, Regents Professor, and University Faculty Fellow,
William W. Allen Endowed Chair in Nutrition, Texas A&M University, College Station
Susan T. Mayne, Division of Chronic Disease Epidemiology, Yale University School of Medicine, New Haven, CT
James M. Ntambi, Professor of Biochemistry, Steenbock Professor and Chair, Department of
Nutritional Sciences, University of Wisconsin, Madison
Rafael Pérez-Escamilla, Professor of Epidemiology and Public Health, Director, Office of
Community Health, Yale School of Public Health, New Haven, CT
Martin A. Philbert, Dean and Professor, School of Public Health, University of Michigan, Ann
Arbor
Mary T. Story, Professor, Division of Epidemiology and Community Health, School of Public
Health, University of Minnesota, Minneapolis
Patrick J. Stover, Division of Nutritional Sciences, Cornell University, Ithaca, NY
Connie M. Weaver, Distinguished Professor and Head, Department of Food and Nutrition,
Purdue University, West Lafayette, IN
Board on Global Health
Patrick W. Kelley, M.D., Director
Organized: 1985
Established in 1985, the Board on Global Health (BGH) is concerned with advancing the health of
populations worldwide. This involves addressing developing country health issues, enhancing the
U.S. role in global health, and addressing health issues that have implications for U.S. health policy.
BGH identifies priority issues in these areas and facilitates provision of evidence-based guidance
and recommendations to the U.S. government, international organizations, foundations, and nongovernmental organizations. BGH also collaborates with the medical academies in other countries,
developed and developing, on health issues of mutual concern.
Board members have broad expertise in international health and experience in a range of
countries. BGH focuses on public health programs for prevention and control of disease and disability. This includes assessment of biomedical knowledge, research, and opportunities; reduction
PROGRAM LISTING
35
of behavioral, socioeconomic, and environmental risks to public health; recognition and guidance
on ethical issues in public health; and recognition of opportunities to apply scientific knowledge to
public policy making. These activities frequently include addressing the adequacy of the scientific
base to support improvements in health and health care, along with the availability of trained personnel, institutional capacity, and supportive partnerships and collaborations.
Forum on Microbial Threats
Eileen Choffnes, Director
The Forum on Microbial Threats was established by the IOM in 1996 to provide a structured opportunity for discussion on topics related to basic and applied research on the prevention, detection,
and management of emerging, re-emerging, and novel infectious diseases of humans, plants, and
animals and to examine critical—and possibly contentious—scientific and policy issues of shared
concern among forum members and the global public health communities.. The forum’s work is
broadly categorized in the following interest areas: infectious disease surveillance and response;
diagnosis and treatment; research directions and priorities; education and training, and public
communication.
Since its creation, the issues and challenges of emerging, re-emerging, and novel infectious
diseases being explored by the forum continue to be of major global public health importance.
The summary reports of forum workshops have highlighted and often anticipated some of the
most important infectious disease issues of the past decade. These activities have resulted in many
workshop summary reports that are highly relevant to the issue of antimicrobial resistance.
Workshops from 2013 to date include Microbial Ecology in States of Health and Disease;
Informal Briefing on Emerging Viral Diseases; The Science and Applications of Microbial Genomics: Predicting, Detecting, and Tracking Novelty in the Microbial World; and The Social Biology
of Microbial Communities. The public engagement in and responses to the forum’s workshops,
publications, and meetings has been considerable, positive, and growing.
It is anticipated that the future activities of the Forum on Microbial Threats will build upon
its previous work. Through public debate and private consultation, the activities of the forum continue to facilitate discussion and inquiry into cross-cutting sets of challenges within and across the
spectrum of microbial threats.
Forum on Global Violence Prevention
Kimberly Scott, Director
The Forum on Global Violence Prevention was established by the IOM and the NRC in July 2010 to
explore cross-cutting topics related to the prevention of child and elder abuse, sexual and intimate
partner violence, youth and collective violence, and self-directed violence. Since its launch in 2010,
the forum and its 30 formally appointed members have promoted multidisciplinary prevention
through public workshops on cross-cutting issues in the prevention of violence:
• Preventing Violence Against Women and Children
• Social and Economic Costs of Violence: The Value of Prevention
36
PRESIDENT’S REPORT SUPPLEMENT
• Communications and Technology for Violence Prevention
• The Contagion of Violence
• Elder Abuse and its Prevention
• Evidence for Violence Prevention Across the Lifespan and Around the World
The forum has a global scope, with a special emphasis on low- and middle-income countries that
highlights bidirectional learning opportunities and emphasizes an evidence-based prevention
approach.
Global Forum on Innovation in Health Professional Education
Patricia Cuff, Director
The Global Forum on Innovation in Health Professional Education is a convening activity of the
IOM that brings together interested parties to network, discuss and illuminate issues within health
professional education. This forum has grown in popularity and membership, which now numbers
over 60 members, 45 of whom financially support the forum. These members come from 8 developed and developing countries and represent 18 health professions within government, academia,
foundations, and educational associations. Established in 2012, the Global Forum has remained
true to its guiding principles that forum members established at their first gathering. These principles emphasize engaging students, being patient- and person-centered, and creating an environment of learning with and from partners outside the United States.
Twice per year, forum members gather to attend workshops on various topics that can form
the basis for actionable next steps. The forum’s first and second workshops looked at interprofessional education (IPE) with a particular focus on how IPE programs can and do form better
linkages between education and practice. Building upon the foundation laid in the IPE workshop
series, the forum then hosted a workshop on professionalism and whether it might be possible for
the health professions to come together as one and collectively discuss establishing a social contract with society. The next two workshops of the forum will explore health professional education
and the future of health professional education.
Recent Reports
2013
• Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models Across the Continuum of Education to Practice – Workshop Summary
• The Science and Applications of Microbial Genomics – Workshop Summary
• Evaluation of PEPFAR
• Countering the Problem of Falsified and Substandard Drugs
PROGRAM LISTING
37
2012
• Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad
• Improving Food Safety Through a One Health Approach – Workshop Summary
• Communications and Technology for Violence Prevention – Workshop Summary
• Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad
• Country-Level Decision Making for Control of Chronic Diseases – Workshop Summary
2011
• Contagion of Violence – Workshop Summary
• The Science and Applications of Synthetic and Systems Biology – Workshop Summary
• Fungal Diseases: An Emerging Threat to Human, Animal, and Plant Health – Workshop
Summary
• Preventing Violence against Women and Children – Workshop Summary
• Social and Economic Costs of Violence – Workshop Summary
Current Activities/Studies in Progress
• Ongoing Activities of the Forum on Microbial Threats
• Global Cardiovascular Disease – Dissemination Activities
• Ongoing Activities of the Forum on Global Violence Prevention
• Ongoing Activities of the Global Forum on Health Professional Education
• Strengthening Core Elements of Food and Drug Regulatory Systems in Developing Countries –
Dissemination Activities
• Standing Committee to Support USAID’s Engagement in Health Systems Strengthening in
Response to the Economic Transition of Health
• Managing the Peer Review of Disease Control Priorities, Third Edition
• Forum on Public–Private Partnerships for Global Health and Safety
Projects in Development
• One Health/One Medicine
Board Roster
Thomas Quinn (Chair), Johns Hopkins Center for Global Health, Baltimore, MD
Jo Ivey Boufford (Ex Officio, Foreign Secretary, IOM), New York Academy of Medicine, New
York
38
PRESIDENT’S REPORT SUPPLEMENT
Claire V. Broome, Rollins School of Public Health, Emory University, Atlanta, GA
Jacquelyn C. Campbell, Johns Hopkins University School of Nursing, Baltimore, MD
Thomas J. Coates, University of California Global Health Institute, Los Angeles
Valentin Fuster, Mount Sinai School of Medicine, New York, NY
James Hospedales, Pan American Health Organization/World Health Organization,
Washington, DC
Peter J. Hotez, Sabin Vaccine Institute, Houston, TX
Clarion Johnson, Exxon Mobil, Fairfax, VA
Fitzhugh Mullan, George Washington University, Washington, DC
Guy H. Palmer, Washington State University, Pullman, WA
Jennifer Prah Ruger, Yale University, New Haven, CT
Board on Health Care Services
Roger C. Herdman, M.D., Director
Organized: 1981
The Board on Health Care Services (HCS) oversees activities of the IOM concerned with the quality, effectiveness, organization, financing, and delivery of health care services. The board identifies
high-priority health issues and provides guidance on the conduct of studies and other projects.
Most of the board’s studies are conducted by committees appointed by the IOM and comprise a mix
of IOM members, an occasional board member, and outside experts. The board seeks to advance
the well-being of people and communities by promoting independent, reliable scholarly analysis
and advice to government, professionals, and other members of the health industry, patients, and
the public in general.
The board’s priority areas for examination have varied slightly over the years but have been
generally consistent within the following areas:
• Quality and safety of health care
• Health information technology
• Health care organization
• Health care workforce education, practice, and financing
• Insurance coverage, financing of services, and cost control
• Human behavior and communications
• Cancer care and policy
PROGRAM LISTING
39
National Cancer Policy Forum
Sharyl Nass, Director
The IOM established the National Cancer Policy Forum (NCPF) in 2005 to identify emerging highpriority policy issues in the nation’s effort to combat cancer and to examine those issues by convening activities that promote discussion about potential opportunities for action. The NCPF provides a continual focus within the IOM on cancer research and care, addressing issues in science,
clinical medicine, public health, and public policy relevant to the goal of reducing the cancer burden through prevention and by improving outcomes for those diagnosed with cancer. The NCPF
includes 30 members representing a broad range of stakeholders in the National Cancer Program,
including patient advocates; physicians; basic, translational, and clinical scientists; federal agencies; professional organizations; and the pharmaceutical industry; and has addressed a wide variety of topics, including:
• Enhancing collaborations to accelerate research and development
• Improving the quality and value of cancer and survivorship care
• The role of obesity and tobacco use in cancer incidence and mortality
• Developing tools and technologies to enhance cancer research and care
Recent Reports
2013
• Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis
• Interim Report of the Committee on Geographic Variation in Health Care Spending and Promotion of High-Value Care: Preliminary Committee Observations
• Variation in Health Care Spending: Target Decision Making, Not Geography
• Sharing Clinical Research Data (with the Forum on Drug Discovery, Development, and
Translation; Forum on Neuroscience and Nervous System Disorders; National Cancer Policy
Forum; and Roundtable on Translating Genomic-Based Research for Health )
• Delivering Affordable Cancer Care in the 21st Century – Workshop Summary
• Implementing a National Cancer Clinical Trials System for the 21st Century – Second Workshop Summary
• Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary
2012
• Geographic Adjustment in Medicare Payment: Phase II – Implications for Access, Quality, and
Efficiency
• Informatics Needs and Challenges in Cancer Research – Workshop Summary
40
PRESIDENT’S REPORT SUPPLEMENT
• The Mental Health and Substance Use Workforce for Older Adults: In Whose Hands?
• The Role of Obesity in Cancer Survival and Recurrence – Workshop Summary
• Evolution of Translational Omics: Lessons Learned and the Path Forward
2011
• Allied Health Workforce and Services – Workshop Summary
• Breast Cancer and the Environment: A Life Course Approach (with Board on Health Sciences
Policy)
• Health IT and Patient Safety: Building Safer Systems for Better Care
• Facilitating Collaborations to Develop Combination Investigational Cancer Therapies –
Workshop Summary
• Essential Health Benefits: Balancing Coverage and Cost
• Geographic Adjustment in Medicare Payment: Phase I – Improving Accuracy, Second
Edition
• Perspectives on Essential Health Benefits – Workshop Report
• Implementing a National Cancer Clinical Trials System for the 21st Century – Workshop
Summary
• Improving Access to Oral Health Care for Vulnerable and Underserved Populations (with Board
on Children, Youth, and Families)
• Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care –
Workshop Summary
• Child and Adolescent Health and Health Care Quality: Measuring What Matters
• Advancing Oral Health in America (with Board on Children, Youth, and Families)
• Finding What Works in Health Care: Standards for Systematic Reviews
• Clinical Practice Guidelines We Can Trust • The National Cancer Policy Summit: Opportunities and Challenges in Cancer Research and Care
• Nanotechnology and Oncology – Workshop Summary
• Perspectives on Biomarker and Surrogate Endpoint Evaluation - Discussion Forum
Summary
Current Activities/Studies in Progress
• Governance and Financing of Graduate Medical Education
• Addressing the Needs of Adolescents and Young Adults with Cancer: A Workshop Summary
• A National Cancer Policy Summit: Workshop Summary
PROGRAM LISTING
41
Projects in Development
• Study on Family Caregiving
• Consensus Study on Policy Issues in the Clinical Development and Use of Biomarkers for
Molecularly Targeted Therapies (with Board on Health Sciences Policy)
• Diagnostic Error in Medicine
• Family Caregiving in the United States
• Contemporary Issues in Human Subjects Protection in Cancer Research: A Workshop
• Innovations in Clinical Care, Practice and Quality for People with Advanced Alzheimer’s
Disease: Meetings of Experts
• Assessing and Improving the Interpretation of Mammograms: A Workshop
Board Roster
Gail R. Wilensky (Chair), Senior Fellow, Project Hope, Melwood, VA
Peter Bach, Director, Center for Health Policy and Outcomes, Memorial Sloan-Kettering
Cancer Center, New York, NY
Joseph R. Baker, President, Medicare Rights Center, New York, NY
Elisabeth Belmont, Corporate Counsel, MaineHealth, Portland
Robert A. Berenson, Institute Fellow, The Urban Institute, Washington, DC
Lisa Bero, Professor, Department of Clinical Pharmacy, School of Pharmacy and Institute for
Health Policy Studies, School of Medicine, University of California, San Francisco
David Blumenthal, Samuel O. Thier Professor of Medicine, Harvard Medical School; Professor of Health Care Policy, Massachusetts General Hospital, Mongan Institute for Health
Policy, Boston
Stuart Butler, Distinguished Fellow and Director, Center for Policy Innovation, The Heritage Foundation, Washington, DC
Carolyn Clancy, former Director, Agency for Healthcare Research and Quality, Rockville, MD
Jon B. Christianson, James A. Hamilton Chair in Health Policy and Management Division of
Health Policy and Management School of Public Health, University of Minnesota, Minneapolis
Jane Delgado, President and CEO, National Alliance for Hispanic Health, Washington,
DC
Jack Ebeler, Principal, Health Policy Alternatives, Inc., Washington, DC
Robert S. Galvin, Chief Executive Officer, Equity Healthcare; Executive Director, Corporate
Private Equity, The Blackstone Group, New York, NY
Rebekah E. Gee, Assistant Professor, Louisiana State University (LSU) Schools of Medicine
and Public Health; Birth Outcomes Director, Louisiana Department of Health and Hospitals, LSU School of Public Health, Baton Rouge
42
PRESIDENT’S REPORT SUPPLEMENT
Charles N. Kahn III, President and Chief Executive Officer, Federation of American Hospitals, Washington, DC
Elizabeth A. McGlynn, Director, Kaiser Permanente Center for Effectiveness & Safety
Research, Oakland, CA
Mary D. Naylor, Director, NewCourtland Center for Transitions and Health, Marian S. Ware
Professor in Gerontology, National Program Director, Interdisciplinary Nursing Quality
Research Initiative, University of Pennsylvania, Philadelphia
Alan Weil, Executive Director, National Academy for State Health Policy, Portland, ME
Board on Health Sciences Policy
Andrew Pope, Ph.D., Director
Organized: 1977
The Board on Health Sciences Policy oversees and guides a program of activities that is intended
to encourage and sustain the continuous vigor of the basic biomedical and clinical research enterprises needed to ensure and improve the health of the public. In conducting these activities, consideration is given to the ethical, legal, and social contexts of scientific and technologic advances
and to the balance between scientific opportunities and public needs.
The goals of the Board on Health Sciences Policy are to
• Foster the emerging fields of research in the health and biomedical sciences;
• Strengthen the role of science in policy and decision making;
• Promote and improve the education of health and research professionals and of the general
public;
• Ensure an adequate workforce in biomedical and clinical research; and
• Address issues in biomedical ethics.
To accomplish these goals, the board helps shape the portfolio of projects by continuously monitoring issues in health policy and identifying emerging problems. Board members oversee the
implementation of ideas and proposals and assist in ensuring the focus and purpose of sponsored
projects through periodic review of study progress at board meetings and as official members on
board-sponsored studies. Board members also assist in the dissemination of study findings and
monitor the impact of sponsored studies.
Forum on Drug Discovery, Development, and Translation
Anne Claiborne, Director
The Forum on Drug Discovery, Development, and Translation brings together thought leaders and
PROGRAM LISTING
43
stakeholders in government, academia, industry, foundations, and patient advocacy with an interest in issues related to drug discovery, development, and translation. The forum convenes several
times each year to identify and discuss key problems and strategies in the discovery, development,
and translation of drugs. To supplement the perspectives and expertise of its members, the forum
also holds public workshops and commissions papers to engage a wide range of experts, members
of the public, and the policy community. The activities of the forum are determined by its members, focusing on five major themes: (1) the approach to drug development; (2) strengthening the
scientific basis of drug regulation; (3) transforming research and fostering collaborative research;
(4) developing drugs for rare and neglected diseases and addressing urgent global health problems;
and (5) promoting public understanding of drug development.
Over the past several years, the forum has been engaged in three major long-term initiatives:
Advancing Regulatory Science; Transforming Clinical Trials; and Addressing the Global Neglected
Disease Multidrug-Resistant Tuberculosis.
Forum on Neuroscience and Nervous System Disorders
Bruce Altevogt, Director
The Forum on Neuroscience and Nervous System Disorders focuses on building partnerships to
further understand the brain and nervous system disorders in their structure and function, as well
as effective clinical prevention and treatment strategies. The forum concentrates on six themes:
nervous system disorders, mental illness and addiction, genetics of nervous system disorders, cognition and behavior, modeling and imaging, and ethical and social issues. It serves to educate the
public, press, and policy makers regarding these issues. The forum brings together leaders from
private-sector sponsors of biomedical and clinical research, federal agencies sponsoring and regulating biomedical and clinical research, foundations, the academic community, and consumers.
The forum sponsors workshops for members and the public to discuss approaches to resolving
key challenges identified by forum members. It strives to enhance understanding of research and
clinical issues associated with the nervous system among the scientific community and the general
public and provide a mechanism to foster partnerships among stakeholders.
Roundtable on Translating Genomic-Based Research for Health
Adam Berger, Director
The Roundtable on Translating Genomic-Based Research for Health brings together leaders from
academia, industry, government, foundations, and associations and patient and consumer representatives who have a mutual interest in addressing the issues surrounding the translation of
genomic-based research. The purpose of the roundtable is to explore and implement strategies for
improving health through the translation of genomic and genetic research findings into medicine,
public health, education, and policy. Priorities and areas of emphasis for the roundtable include
(1) issues related to the translation of genomics to medicine and public health; (2) issues related to
the evolving requirements for the health professional community and the need to be able to understand and responsibly apply genomics to medicine and public health; and (3) ethical, legal, and
44
PRESIDENT’S REPORT SUPPLEMENT
social issues such as the potential for misuse of genetic information, the medical implications for
family members, and the rights of an individual, family, or community to control the use and dissemination of genetic information. To achieve its objectives, the roundtable conducts structured
discussions, workshops, and symposia and publishes workshop summaries.
The roundtable has developed several initiatives around the topics of clinical practice and
public health, drug development informed by genomics and genetics, diagnostic applications for
genomics, and emerging issues to guide the roundtable as it moves forward.
Forum on Medical and Public Health Preparedness for Catastrophic Events
Bruce Altevogt, Director
The Forum on Medical and Public Health Preparedness for Catastrophic Events serves to foster
dialogue among stakeholders and provide ongoing opportunities to confront and discuss issues of
mutual interest and concern. The forum provides a neutral venue for broad-ranging policy discussions that serve to facilitate coordination and cooperation among public and private stakeholders in developing and enhancing the nation’s medical and public health preparedness. More specifically, the forum provides a catalyst for voluntary public–private collaboration on topics where
there is synergy among potential partners; helps define the scope of the field and thus sets the stage
for future policy action; brings ongoing attention and visibility to important preparedness issues;
explores new approaches for resolving problem areas; and elevates the general understanding and
visibility of medical and public health preparedness in the broader research, public policy, and
other appropriate communities.
The forum is self-governing, meaning that the forum membership identifies the topics it
wishes to address and, with assistance from staff, develops meeting agendas and identifies workshop topics. As a result, topics span a broad range of issues in research, policy, and practice. Initial
attention is being given to the following broad topic areas: medical surge capacity, disaster preparedness training, communication and distribution, psychological and community resilience, and
research and evaluation.
Forum on Aging, Disability, and Independence
Tracy A. Lustig, Director
The IOM, in collaboration with the Division on Behavioral and Social Science and Education of the
NRC, has formed a new Forum on Aging, Disability, and Independence that fosters dialogue and
confronts issues of mutual interest and concern within the long-term services and supports system. The forum highlights capacities in which aging and disability network coordination is strong;
examines the historical challenges faced in aligning the aging and disability networks; defines the
scope of the challenges; explores new approaches for resolving problem areas; elevates the visibility and perspectives of the many stakeholders; and sets the stage for future policy actions.
The forum is self-governing, that is, the forum membership identifies the specific topics
that it wishes to address and—with assistance from staff—develops meeting agendas, commis-
PROGRAM LISTING
45
sions papers, and identifies workshop topics. Topics span a broad range of issues such as personcentered planning, self-direction, workforce education and training, health care and personal care
workforces, quality measurement, health disparities, research, and assistive technologies.
Standing Committee on Health Threats Resilience
Bruce Altevogt, Director
The Standing Committee on Health Threats Resilience is sponsored by the Department of Homeland Security’s Office of Health Affairs. The standing committee discusses issues related to shortand long-term strategic planning and includes experts in emergency management, emergency
medical services, emergency preparedness and response, intelligence, public health and medicine,
community resilience, economic development, and sociocultural sciences. The standing committee maintains surveillance of the field, discusses planning and program development efforts, and
serves as a focal point within the IOM and National Academies for discussions and potential ad
hoc studies related to (1) community resilience against health threats—including issues relevant
to preparedness, community engagement, and communications; (2) health security—the interface
with intelligence, infrastructure and security, and health resilience; (3) emergency response and
recovery activities and support of operational medicine; and (4) capacity and gaps in the capability
of federal, state, and local authorities to respond to catastrophic health events, including events
related to food, agriculture, human health, and animal health issues.
In this process, the standing committee may provide a public venue for communication
among government, the academic community, and the private sector, as well as other relevant
stakeholders involved in emergency preparedness and emergency response services. Further, as
needed, the standing committee will be involved in the planning, development, and oversight of
related ad hoc activities undertaken by separately appointed committees operating under its auspices. Standing committee discussions have led to workshops that have explored topics related to
workforce resilience and biosurveillance.
Standing Committee on Credentialing Research in Nursing
Cathy Liverman and Meg McCoy, Co–Directors
The IOM has convened a standing committee for the American Nurses Credentialing Center. The
standing committee discusses issues related to research on credentialing of nurses and organizations, including short- and long-term strategic planning. The standing committee maintains surveillance of the field, discusses planning and program development, and serves as a focal point for
discussions and potential ad hoc studies requested by the sponsor and approved by the IOM and
the National Academies. Topics that may be addressed by the standing committee or by sponsored
workshops and future studies by IOM committees include:
• emerging priorities for nursing credentialing research;
• research methodologies and measures relevant to nursing credentialing research;
46
PRESIDENT’S REPORT SUPPLEMENT
• the impact of individual and organizational credentialing in nursing on improving healthcare performance, quality, and outcomes.
Standing Committee on Aerospace Medicine and the Medicine of Extreme
Environments
Cathy Liverman and Meg McCoy, Co–Directors
The IOM Standing Committee on Aerospace Medicine and the Medicine of Extreme Environments coordinates with the National Aeronautics and Space Administration’s Office of the Chief
Health and Medical Officer to become informed about existing conditions and emerging issues
related to medical care in space and define prospective activities (such as studies or analyses of
medical needs and/or approaches to addressing those needs) to be conducted at the IOM. The
standing committee serves as a focal point for consideration of issues related to the practice of
medicine during space travel. The standing committee considers relevant scientific, technical,
and policy issues, including the development of optimal aerospace medicine and health care as
an evolving multidisciplinary and international enterprise, health maintenance and care policies
related to aerospace medicine, clinical research requirements and clinical strategies, and other relevant issues. Ad hoc committees are established to conduct studies as needed and as approved by
the IOM and the National Academies.
Standing Committee on Personal Protective Equipment for Workplace Safety and
Health
Cathy Liverman and Meg McCoy, Co–Directors
The Standing Committee on Personal Protective Equipment for Workplace Safety and Health
addresses scientific and technical issues relevant to the development, certification, deployment,
and use of personal protective equipment, standards, and related systems to ensure workplace
safety and health. This standing committee is supported by the National Personal Protective Technology Laboratory at the National Institute for Occupational Safety and Health.
Standing Committee on Family Planning
Adrienne Stith Butler, Director
The Standing Committee on Family Planning was sponsored by the Department of Health and
Human Services Office of Family Planning (OFP). The standing committee followed up on issues
addressed in the 2009 IOM report, A Review of the HHS Family Planning Program: Mission, Management, and Measurement of Results, as well as identified emerging issues in this field. The standing committee provided a forum for discussion of scientific, workforce, health services, and education issues relevant to family planning.
The committee maintained surveillance of the field, discussed planning and program development efforts, and served as a focal point for discussions and potential ad hoc studies requested by
PROGRAM LISTING
47
OFP and approved by the IOM and the National Academies. Specific topics addressed at meetings
of the standing committee included workforce planning; the role of family planning/reproductive
health in health care reform; improving data collection on program performance; communication
and transparency; and strategic planning for moving the Title X Program forward.
Recent Reports
2013
• A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s Front Line
• Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate
Information for Public Health Officials – Workshop Summary (with the Division on Earth and
Life Studies Board on Life Sciences)
• Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary
• Strengthening Human Resources Through Development of Candidate Core Competencies for
Mental, Neurological, and Substance Use Disorders in Sub-Sarahan Africa – Workshop Summary
• International Regulatory Harmonization Amid Globalization of Drug Development – Workshop
Summary
• Crisis Standards of Care: A Toolkit for Indicators and Triggers
• Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public
Health Considerations for Neighboring Jurisdictions – Workshop Summary
• The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational
Research
• Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop
Summary
• Sharing Clinical Research Data – Workshop Summary
• The Economics of Genomic Medicine – Workshop Summary
• Improving the Utility and Translation of Animal Models for Nervous System Disorders – Workshop Summary
• The California Institute for Regenerative Medicine, Science, Governance, and the Pursuit of
Cures
• Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary
2012
• Genome-Based Therapeutics: Targeted Drug Discovery and Development – Workshop
Summary
48
PRESIDENT’S REPORT SUPPLEMENT
• Accelerating the Development of New Drugs and Diagnostics: Maximizing the Impact of the
Cures Acceleration Network – Workshop Summary
• Post-Incident Recovery Considerations for the Health Care Service Delivery Infrastructure –
Workshop Summary
• A Review of NASA’s Human Research Program’s Scientific Merit Assessment Process – Letter
Report
• International Animal Research Regulations: Impact on Neuroscience Research – Workshop
Summary
• Public Engagement on Facilitating Access to Antiviral Medications and Information in an
Influenza Pandemic – Workshop Series Summary
• Facing the Reality of Drug-Resistant Tuberculosis: Challenges and Potential Solutions in India –
Summary of a Joint Workshop
• Envisioning a Transformed Clinical Trials Enterprise in the United States: Establishing an
Agenda for 2020 – Workshop Summary
• Building a Resilient Workforce: Opportunities for the Department of Homeland Security –
Workshop Summary
• Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad (with
Board on Global Health)
• Epilepsy Across the Spectrum: Promoting Health and Understanding
• Crisis Standards of Care: A Systems Framework for Catastrophic Disaster Response
• Genome-Based Diagnostics: Clarifying Pathways to Clinical Use – Workshop Summary
• Safe and Effective Medicines for Children: Pediatric Studies Conducted Under the Best Pharmaceuticals for Children Act and the Pediatric Research Equity Act
• Alzheimer’s Diagnostic Guideline Validation: Exploration of Next Steps – Workshop
Summary
• Barriers to Integrating Crisis Standards of Care Principles into International Disaster Response
Plans – Workshop Summary
• Sex-Specific Reporting of Scientific Research – Workshop Summary (with Board on Population
Health and Public Health Practice)
2011
• Strengthening a Workforce for Innovative Regulatory Science in Therapeutics Development –
Workshop Summary
• Chimpanzees in Biomedical and Behavioral Research: Assessing the Necessity
• Breast Cancer and the Environment: A Life Course Approach
• Information Sharing and Collaboration: Applications to Integrated Biosurveillance –
Workshop Summary
PROGRAM LISTING
49
• Integrating Large-Scale Genomic Information into Clinical Practice – Workshop Summary
• Public Engagement and Clinical Trials: New Models and Disruptive Technologies – Workshop
Summary
• Incorporating Occupational Information in Electronic Health Records: Letter Report
• Prepositioning Antibiotics for Anthrax
• Occupational Health Nurses and Respiratory Protection: Improving Education and Training –
Letter Report
• Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and
Research
• Advancing Regulatory Science for Medical Countermeasure Development – Workshop Summary
• Glutamate-Related Biomarkers in Drug Development for Disorders of the Nervous System – A
Workshop
• Generating Evidence for Genomic Diagnostic Test Development – Workshop Summary
• The New Profile of Drug-Resistant Tuberculosis in Russia: A Global and Local Perspective:
Summary of a Joint Workshop
• The Emerging Threat of Drug-Resistant Tuberculosis in Southern Africa: Global and Local
Challenges and Solutions – Workshop Summary
• Preparedness and Response to a Rural Mass Casualty Incident – Workshop Summary
• Preventing Transmission of Pandemic Influenza and Other Viral Respiratory Diseases: Personal Protective Equipment for Healthcare Personnel – Update 2010
• Perspectives on Biomarker and Surrogate Endpoint Evaluation – Discussion Forum Summary
(with Board on Health Care Services and Food and Nutrition Board)
Current Activities/Studies in Progress
• Biomarkers Workshop (with Howard Hughes Medical Institute)
• BioWatch Modeling Tools Used to Support Functional Requirements for Health Response: A
Workshop
• BioWatch Program Guidance Documents: Guidance for the Development of Locally-Owned
Jurisdictional Response Plans for Response to BioWatch Actionable Results: A Workshop
Series
• Cognitive Aging: Translating Science into Prevention and Care
• Committee on Aerospace Medicine and the Medicine of Extreme Environments
• Committee on Department of Homeland Security Workforce Resilience
• Committee on Developing Evidence-Based Standards for Psychosocial Interventions for
Mental Disorders
50
PRESIDENT’S REPORT SUPPLEMENT
• Committee on Health and Medical Infrastructure Needs for the Department of Health and
Human Services
• Committee on Personal Protective Equipment for Workplace Safety and Health
• Ethics, Principles, and Guidelines for Health and Safety Standards for Long-Duration and
Exploration Spaceflights
• Forum on Aging, Independence, and Disability
• Forum on Drug Discovery, Development, and Translation
• Forum on Medical and Public Health Preparedness for Catastrophic Events
• Forum on Neuroscience and Nervous System Disorders
• Independent Review and Assessment of the Activities of the NIH Recombinant DNA Advisory Committee
• Long-Term Recovery of the Health Care Service Delivery Infrastructure Following Catastrophic Incidents
• Polymerase Chain Reaction Standards for the BioWatch Program (with the Division on Earth
and Life Studies Board on Life Sciences)
• Review of NASA’s Evidence Reports on Human Health Risks
• Roundtable on Translating Genomic-Based Research for Health
• Standing Committee on Credentialing Research in Nursing
• Standing Committee on Family Planning (until March 2013)
• Standing Committee on Health Threats Resilience
• Strategies for Responsible Sharing of Clinical Trial Data: Guiding Principles and a Framework for Implementation
• The Public Health Dimensions of Cognitive Aging and Health
• Treatment of Cardiac Arrest: Current Status and Future Directions
Projects in Development
• Air Pollution and Health Effects for Deployed State Department Foreign Service Officers and
Families
• Cybersecurity for Public Health Preparedness
• Epilepsy Forum
• Forum on Engineering and Biomedical Technology
• Human Rights, Medical Ethics, and the Values of Medicine
• Increasing the Reproducibility of Scientific Research
• Mental Health and Substance Use Disorders Roundtable
• Partnership to Accelerate Therapeutics
PROGRAM LISTING
51
• Personalized Medicine (Policy Issues in Clinical Development and Use of Biomarkers for
Molecularly Targeted Therapies)
• Prescription Drug Abuse and Prescriber Education Requirements
• Regenerative Medicine Forum
• Resilience of First Responders
• Strengthening the Resilience of Academic Research Facilities
• Total Worker Health: Best Practices in the Integration of Occupational Health and Safety
and Health Promotion in the Workplace – A Workshop
• Unproven Stem Cell Treatments: A National Academies and International Society for Stem
Cell Research Workshop
Board Roster
C. Thomas Caskey (Chair), Baylor University, Houston, TX
Eli Y. Adashi, Brown University, Providence, RI
Wylie Burke, University of Washington, Seattle
Robert M. Califf, Duke University Medical Center, Durham, NC
Dennis Choi, The Simons Foundation, New York, NY
Kathleen A. Dracup, University of California, San Francisco
Michael Ehlers, Pfizer, Inc., Cambridge, MA
Naomi Gerber, George Mason University, Fairfax, VA
Lewis R. Goldfrank, New York University School of Medicine, New York
Steven E. Hyman, The Broad Institute of Harvard and Massachusetts Institute of Technology,
Cambridge, MA
Paul E. Jarris, Association of State and Territorial Health Officials, Arlington, VA
Jeffrey Kahn, Johns Hopkins University, Baltimore, MD
Harry T. Orr, University of Minnesota, Minneapolis
Sharon Terry, Genetic Alliance, Washington, DC
Reed V. Tuckson, UnitedHealth Group, Minnetonka, MN
Keith A. Wailoo, Rutgers, The State University of New Jersey, New Brunswick
Clyde Yancy, Northwestern University, Chicago, IL
52
PRESIDENT’S REPORT SUPPLEMENT
Board on the Health of Select Populations (Formerly the Board on Military and Veteran Health)
Rick Erdtmann, M.D., M.P.H., Director
Organized: 2006
The Board on the Health of Select Populations was established in February 2009 to examine health
needs and health policies surrounding a broad range of discrete populations. It has expanded its
scope since 2006 when it operated as the Board on Military and Veteran Health. The board concentrates on significant health concerns that may affect groups of individuals categorized and defined
by common occupation, environment, health condition or characteristics, or a shared exposure to
a unique health risk. The board continues to concentrate heavily on the health of military men and
women, their families, and veterans. The Medical Follow-Up Agency (MFUA) is an important component of the board. MFUA has been conducting epidemiological studies on the long-term effects
of military service since 1946.
Recent Reports
2013
• Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and Their Families – Phase II
• Review of the Department of Labor’s Site Exposure Matrix Database
• Gulf War and Health: Treatment of Chronic Multisymptom Illness
• Health and Incarceration – A Workshop Summary
• Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records – A Workshop Summary
2012
• Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations
• Future Uses of the Department of Defense Joint Pathology Center Biorepository
• Substance Use Disorders in the U.S. Armed Forces
• Treatment of Posttraumatic Stress Disorder in Military and Veteran Populations: Initial Assessment
2011
• Long-Term Health Consequences of Exposure to Burn Pits in Iraq and Afghanistan
• Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Evaluating the Evidence
• Veterans and Agent Orange: Update 2010
PROGRAM LISTING
53
• Blue Water Navy Vietnam Veterans and Agent Orange Exposure
• The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better
Understanding
Current Activities/Studies in Progress
• Research Directions in Human Biological Effects of Low-Level Ionizing Radiation
• Establishing a Case Definition for Chronic Multisymptom Illness
• Assessment of Ongoing Efforts in the Treatment of PTSD – Phase II
• Readjustment Needs of Military Personnel, Veterans, and Their Families: Assessment of
Resiliency Programs for Mental and Behavioral Health for Service Members and their
Families
• Health Effects in Vietnam Veterans of Exposure to Herbicides (Ninth Biennial Update)
• Gulf War and Health: Long-Term Effects of Blast Exposure
Projects in Development
• The Assessment of Childhood Disability for the Social Security Administration
• Standing Committee to Improve the Medical Listings for the Associate Commissioner of
Social Security Administration
• Standing Committee on Health and Medicine for the Assistant Secretary of Defense for
Health Affairs
• A Review of Mental Health Services Provided by the Veterans Health Administration
• Women’s Veterans – Matching Health Needs with Services
• Establishing a Case Definition for Chronic Fatigue Syndrome
Board Roster
Dan G. Blazer (Chair), Duke University Medical Center, Durham, NC
Kathleen Brady, Medical University of South Carolina, Charleston
Michael L. Cowan, Association of Military Surgeons of the United States, Bethesda, MD
Walter R. Frontera, Vanderbilt University School of Medicine, Nashville, TN
Gregory C. Gray, University of Florida, Gainesville
Kurt Kroenke, Indiana University School of Medicine, Indianapolis
Janice L. Krupnick, Georgetown University Medical Center, Washington, DC
Stanley M. Lemon, University of North Carolina, Chapel Hill
54
PRESIDENT’S REPORT SUPPLEMENT
Vickie M. Mays, University of California, Los Angeles Fielding School of Public Health and
UCLA Center for Bridging Research, Innovation, Training and Education for Minority
Health Disparities Solutions
M. Jeanne Miranda, University of California, Los Angeles, CA
Frances Murphy, Health Care Independent Consultant, Silver Spring, MD
Michael D. Parkinson, University of Pittsburgh Medical Center Health Plan and WorkPartners, Pittsburgh, PA
Jennifer D. Peck, University of Oklahoma Health Sciences Center, Oklahoma City, OK
Carol K. Redmond, University of Pittsburgh, PA
Grace S. Rozycki, Indiana University School of Medicine, Indianapolis
George W. Rutherford, University of California, San Francisco
Medical Follow-Up Agency
David Butler, Ph.D., Director
Organized: 1946
The Medical Follow-Up Agency (MFUA) is an organizational element of the IOM’s Board on the
Health of Select Populations.
MFUA was founded shortly after World War II at the urging of Dr. Michael DeBakey, then
a colonel in the Office of the Army Surgeon General. In its early years, the program consisted
predominantly of clinical follow-up studies in which veterans were examined for after-effects of
World War II injuries and diseases.
MFUA now conducts a variety of epidemiological research studies and collaborates with
qualified researchers from diverse backgrounds to obtain and analyze records data.
Recent Publications
• Long-Term Health Effects of Participation in Project SHAD (Shipboard Hazard and Defense) I
Recent Journal Publications
McArdle, J.J., and Plassman, B.L. 2009. A biometric latent curve analysis of memory decline in
older men of the NAS-NRC Twin Registry. Behavior Genetics 39(5):472–495.
Joellenbeck, L.M. 2011. Medical surveillance and other strategies to protect the health of
deployed U.S. forces: Revisiting after 10 years. Military Medicine 176(7 Suppl):64–70.
Goldman, S.M., et al. 2012. Solvent exposures and Parkinson disease risk in twins. Annals of
Neurology 71(6):776–784.
PROGRAM LISTING
55
MFUA’s complete bibliography through 2009 may be found at: www.iom.edu/About-IOM/
Leadership-Staff/Boards/Medical-Follow-Up-Agency.aspx
Current Activities/Studies in Progress
• Air Force Health Study (Ranch Hand) Research Management Program
• Shipboard Hazard and Defense II
• Studies of U.S. Veteran Twins in the World War II Registry
• The Medical Follow-Up Agency Cohort Catalog
Projects in Development
• Mortality Status of World War II Twins
Advisory Committee Roster
Gregory C. Gray, University of Florida, Gainesville
Kurt Kroenke, Indiana University School of Medicine, Indianapolis
Frances Murphy, Health Care Independent Consultant, Silver Spring, MD
Jennifer D. Peck, University of Oklahoma Health Sciences Center, Oklahoma City
Carol K. Redmond, University of Pittsburgh, PA
Board on Population Health and Public Health Practice
Rose Marie Martinez, Sc.D., Director
Organized: 1981
The Board on Population Health and Public Health Practice is broadly concerned with promoting
the health of the public—physical, mental, and social—particularly through population-based interventions. The board examines and develops strategies for disease prevention, taking into account
the multiple factors affecting health—genetic endowment, social and environmental conditions,
individual behavior (including tobacco use, alcohol consumption, diet, and exercise) and personal preventive services. The board addresses the science base for such interventions, the public
health infrastructure, and the education and supply of health professionals necessary for carrying
them out.
The board has an ongoing program of studies on public health infrastructure, women’s and
children’s health, immunization, AIDS and sexually transmitted diseases, and environmental and
occupational health. In particular, the board has identified three priority areas that fall within a broad
56
PRESIDENT’S REPORT SUPPLEMENT
focus covering both preventive services and public health functions to emphasize in its work:
• re-examining public health capacities and responsibilities to meet public health challenges
at the federal, state, and local levels;
• community interventions to promote healthful behavior; and
• occupational and environmental health issues.
Roundtable on Environmental Health Sciences, Research, and Medicine
Rose Marie Martinez, Interim Director
The Roundtable on Environmental Health Sciences, Research, and Medicine was established in
1998 as a convening mechanism for individuals from the academic, industrial, nongovernmental,
and governmental perspectives to meet and discuss sensitive and difficult environmental health
issues of mutual interest in a neutral setting. Since its inception, the roundtable has addressed current and emerging issues in environmental health through discussions related to the state of the
science, research gaps, and policy implications.
Roundtable on Health Literacy
Lyla Hernandez, Director
The Roundtable on Health Literacy was established in 2006 to discuss challenges facing health
literacy research and practice and identify approaches to promote health literacy through mechanisms and partnerships in both the public and private sectors. Since its first workshop in 2006, the
roundtable has held 14 workshops and published 11 reports on topics such as improved medication labeling, use of electronic health records, and integration of health literacy with disparities
reduction and quality improvement. The roundtable has established working groups to explore
and develop activities addressing health literacy and health insurance reform, international health
literacy, public health literacy, and what makes an organization health literate.
Roundtable on Population Health Improvement
Alina Baciu, Director
The IOM Board on Population Health and Public Health Practice convened the multidisciplinary
Roundtable on Population Health Improvement in 2012. The roundtable’s mission is to engage
in dialogue and discussion that will emphasize exploration of cross-cutting issues pertinent to
population health improvement strategies and activities.
PROGRAM LISTING
57
Roundtable on the Promotion of Health Equity and the Elimination of Health
Disparities
Karen Anderson, Director
The IOM convened the Roundtable on the Promotion of Health Equity and the Elimination of
Health Disparities in 2007 to stimulate action, further the development of programs and strategies, promote health equity, and foster the emergence of leadership. With the publication of
several seminal IOM reports documenting the problem of health disparities in the early 2000s
(for example, Unequal Treatment in 2003 and In the Nation’s Compelling Interest in 2004), the
roundtable was created to continue the focus on eliminating health disparities. The roundtable, in
its focus on underserved populations, focuses on understanding the social determinants of health
that underlie health disparities.
Recent Reports
2013
• Health Impact Assessment of Shale Gas Extraction – Workshop Summary
• Health Literacy: Improving Health, Health Systems, and Health Policy Around the World –
Workshop Summary
• Public Health Linkages with Sustainability – Workshop Summary
• Toward Quality Measures for Population Health and the Leading Health Indicators
• Oral Health Literacy – Workshop Summary
• Environmental Decisions in the Face of Uncertainty
• Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and
Future Studies
2012
• An Integrated Framework for Assessing the Value of Community-Based Prevention
• Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of
HIV Care and Coverage
• How Far Have We Come in Reducing Health Disparities? Progress Since 2000 – Workshop
Summary
• How Can Health Care Organizations Become More Health Literate? – Workshop Summary
• Ranking Vaccines: A Prioritization Framework – Phase I: Demonstration of Concept and a
Software Blueprint
• Ethical and Scientific Issues in Studying the Safety of Approved Drugs
• For the Public’s Health: Investing in a Healthier Future
• Primary Care and Public Health: Exploring Integration to Improve Population Health
58
PRESIDENT’S REPORT SUPPLEMENT
• Monitoring HIV Care in the United States: Indicators and Data Systems
• Facilitating State Health Exchange Communication Through the Use of Health Literate
Practices – Workshop Summary
• Living Well with Chronic Illness: A Call for Public Health Action
• Sex-Specific Reporting of Scientific Research – Workshop Summary
2011
• Scientific Standards for Studies on Modified Risk Tobacco Products
• Improving Health Literacy Within a State – Workshop Summary
• Promoting Health Literacy to Encourage Prevention and Wellness – Workshop Summary
• State and Local Policy Initiatives to Reduce Health Disparities – Workshop Summary
• Adverse Effects of Vaccines: Evidence and Causality
• Medical Devices and the Public’s Health: The FDA 510(k) Clearance Process at 35 Years
• A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases
• Clinical Preventive Services for Women: Closing the Gaps
• Health Literacy Implications for Health Care Reform – Workshop Summary
• For the Public’s Health: Revitalizing Law and Policy to Meet New Challenges
• Climate Change, the Indoor Environment, and Health
• Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and
Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes – Workshop Report
• HIV Screening and Access to Care: Health Care System Capacity for Increased HIV Testing and
Provision of Care
• Leading Health Indicators for Healthy People 2020 – Letter Report
• Innovations in Health Literacy Research – Workshop Summary
Current Activities/Studies in Progress
• The Nexus of Biofuels, Climate Change, and Human Health: A Workshop Summary
•Leveraging Culture to Address Health Inequalities: Examples from Native Communities: A
Workshop Summary
• Assessment of Models Used to Predict the Effect of Policies Related to Tobacco Regulation
• Health Implications of Raising the Minimum Age for Purchasing Tobacco Products
• Study on the Illicit Tobacco Market: Collection and Analysis of the International Experience.
(with the Committee on Law and Justice)
• Identifying and Prioritizing New Preventive Vaccines for Development, Phase II
PROGRAM LISTING
59
• Recommended Social and Behavioral Domains and Measures for Electronic Health
Records
Projects in Development
• Principles for the Creation and Use of Big Data in Population Health Improvement
• Strategies to Enhance Medication Adherence
• Examining Population Health Disparities Through the Lens of Adverse Childhood Events
Board Roster
Ellen Wright Clayton (Chair), Vanderbilt University, Nashville, TN
Margarita Alegría, Cambridge Health Alliance, Somerville, MA
Alfred Berg, University of Washington School of Medicine, Seattle
Bobbie A. Berkowitz, Columbia University School of Nursing, New York, NY
David R. Challoner, University of Florida, Gainesville
Alvin D. Jackson, Ohio Department of Health, Fremont
Matthew W. Kreuter, Washington University in Saint Louis, MO
Grace M. Lee, Harvard Medical School & Boston Children’s Hospital, MA
Howard Markel, University of Michigan Medical School, Ann Arbor
Linda A. McCauley, Emory University, Atlanta, GA
Elena O. Nightingale, Institute of Medicine, Washington, DC
Margaret E. O’Kane, National Committee for Quality Assurance, Washington, DC
Daniel Polsky, University of Pennsylvania, Philadelphia
John A. Rich, Drexel University, Philadelphia, PA
Susan L. Santos, University of Medicine and Dentistry of New Jersey, Newark
Martin Jose Sepúlveda, International Business Machines Corporation, Somers, NY
Joshua M. Sharfstein, Maryland Department of Health and Mental Hygiene, Baltimore
Steven Teutsch, Los Angeles County Public Health, Los Angeles, CA
Antonia M. Villarruel, University of Michigan, Ann Arbor, MI
Winston F. Wong, Kaiser Permanente, Oakland, CA
William A. Yasnoff, National Health Information Infrastructure Advisors, Arlington, VA
60
PRESIDENT’S REPORT SUPPLEMENT
Health Policy Educational Programs and Fellowships
Marie E. Michnich, Dr.P.H., Director
Organized: 1973
The Health Policy Educational Programs and Fellowships (HPEPF) office serves as the program
office for four national health policy fellowship programs: the Robert Wood Johnson Foundation
(RWJF) Health Policy Fellows; the IOM/American Nurses Foundation (ANF)/American Academy
of Nursing (AAN)/American Nurses Association (ANA) Distinguished Nurse Scholar-in-Residence;
the IOM Anniversary Fellows; and the Food and Drug Administration (FDA) Tobacco Regulatory
Science Fellowship.
The first and the oldest program, the RWJF Health Policy Fellows, celebrated its 40th anniversary in 2013. Exceptional midcareer health professional and behavioral and social scientists
actively participate in and contribute to the policy process at the federal level during a 12-month
residential experience in Washington, DC. These fellows remain in high demand and continue to
receive the most prominent federal health policy placements in both Congress and the executive
branch. Since 1973, HPEPF has been responsible for the recruitment, selection, orientation, and
placement of the Health Policy Fellows and has overseen the fellowships of 252 recipients. IOM
leadership, particularly board directors, contributes to the orientation and placement and serves
as a resource for the fellows throughout their experience. The priority areas of emphasis for this
program are (1) to continue to seek out qualified minority applicants, (2) to maintain a high number
of qualified applicants, and (3) to promote political balance in both recruitment and placement of
the fellows.
HPEPF also hosts the Distinguished Nurse Scholar-in-Residence, initiated in 1992 and supported by the AAN, the ANF, and the ANA. This residential program is designed to assist nurse
leaders in playing a more prominent role in health policy development at the national level through
a 1-year program of orientation and study at the IOM. The scholar produces a report as a result of
working on a current IOM initiative related to his/her area of expertise. The Distinguished Nurse
Scholar-in Residence for 2013-2014 is Beatrice Kalisch, Director of Innovation and Evaluation and
Titus Professor of Nursing at the University of Michigan. She brings extensive experience in quality of care and patient safety. This year, the IOM has invited the 2012-2013 Distinguished Nurse
Scholar-in Residence, Marla Salmon—an IOM member and the immediate past dean of the University of Washington School of Nursing—to extend her role as a scholar. Her work is focusing
on three areas of policy and scholarship: (1) global nursing workforce capacity building, (2) women’s development aimed at enhanced educational and economic well-being, and (3) social impact
investment and microfinance as mechanisms for reducing barriers to women’s education and subsequent sustained economic engagement. The priority for this program is to increase funding to
attract and support scholars in Washington, DC.
The IOM Anniversary Fellows is a program created in 2005 to celebrate the 35th anniversary
of the IOM. The purpose of the program is to bring exceptional early-career faculty and scholars
to work on an IOM board and an IOM study, forum, or roundtable. Since the initiation of the program, a total of 13 fellows have received the award. Three fellowships, the Norman F. Gant, M.D./
PROGRAM LISTING
61
American Board of Obstetrics and Gynecology; the James C. Puffer, MD/American Board of Family
Medicine; and the Gilbert S. Omenn Anniversary Fellowships are fully endowed; and three others
are in the process of being endowed in perpetuity.
Launched in 2012, the FDA Tobacco Regulatory Science Fellowship is a collaborative program between the IOM and the FDA Center for Tobacco Products (CTP). This program aims to
provide an opportunity for midcareer professionals to gain experience and expertise to further
define and develop the field of regulatory science as it relates to the regulation of tobacco products
and FDA’s new authorities under the Family Smoking Prevention and Tobacco Control Act. Three
fellows were chosen for the inaugural class in a national competition and were assigned to one of
three offices within CTP for the full 12-month fellowship year, which ended in August 2013: the
Office of Health Communication and Education, the Office of Policy, and the Office of Science. In
the second cycle, a total of five fellows were chosen and began their fellowship in September 2013.
The priority for this program is to improve the size and quality of the applicant pool and place at
least one fellow in each of the six CTP offices.
Robert Wood Johnson Foundation Health Policy Fellows Advisory Board Roster
Gail L. Warden (Chair), Henry Ford Health System, Detroit, MI
Joseph Antos, American Enterprise Institute for Public Policy Research, Washington, DC
Linda Degutis, Centers for Disease Control and Prevention, Atlanta, GA
Susan Dentzer, Robert Wood Johnson Foundation, Princeton, NJ
Clyde Evans, CE Consulting, Needham, MA
James R. Gavin III, Emory University School of Medicine, Atlanta, GA, and Healing Our Village, Inc., College Park, GA
Katie B. Horton, George Washington University, Washington, DC
Arthur L. Kellermann, Uniformed Services University of the Health Sciences, Bethesda,
MD
Herb B. Kuhn, Missouri Hospital Association, Jefferson City, MO
Peter Neumann, Tufts University School of Medicine, Boston, MA
Charles L. Rice, Uniformed Services University of the Health Sciences, Bethesda, MD
Sara Rosenbaum, George Washington University, Washington, DC
Eduardo J. Sanchez, American Heart Association, Dallas, TX
Kenneth B. Wells, Professor in Residence, University of California, Los Angeles, and Senior
Scientist, RAND Corporation
62
PRESIDENT’S REPORT SUPPLEMENT
Executive Office
Clyde J. Behney, The Interim Leonard D. Schaeffer Executive Officer
From time to time, cross-cutting program activities are carried out within the IOM executive
office, such as the Roundtable on Value & Science-Driven Health Care and the Robert Wood Johnson Foundation Initiative on the Future of Nursing. Some activities require the expertise of IOM
colleagues from different areas in the organization. This year, several activities were continued and
new, exciting initiatives were launched from the executive office.
Current Activities/Studies in Progress
• Gustav O. Lienhard Award
• The Rhoda and Bernard Sarnat International Prize in Mental Health
• Richard and Hinda Rosenthal Lecture Series
• The Health Data Initiative
• Go Viral to Improve Health: IOM-NAE Health Data Collegiate Challenge
• Committee on Approaching Death: Addressing Key End-of-Life Issues
• A Healthy America
• Roundtable on Value & Science-Driven Health Care
Richard and Hinda Rosenthal Lecture Series (December 2012)
Since 1988, the IOM has presented an annual lecture series dedicated to bringing greater attention
to some of the significant health policy issues facing our nation today. The 2012 Richard and Hinda
Rosenthal Lecture, End-of-Life Matters: Cultural Representations Through the Entertainment Arts,
explored how the language of the entertainment arts informs our cultural understanding of endof-life care. Through clips from the film Beginners and television medical dramas as well as a live
theatrical reading from Sophocles’ Philocetes, the lecture examined the various ways that the arts
can provide a platform for an engaging and compelling conversation about care received at the end
of life. The event was moderated by Neal Baer, CBS Television, and included panelists Jay Clayton,
Vanderbilt University; Bryan Doerries, Outside the Wire; and Kathleen Foley, Memorial-Sloan Kettering Cancer Center.
Go Viral to Improve Health (June 2013)
The IOM and the NAE challenged college and university students to use health data to develop
effective, innovative apps that take on the nation’s pressing health issues in the 2013 Go Viral to
Improve Health Data Collegiate Challenge. Working in interdisciplinary teams that brought
together technological skills and health knowledge, the IOM and the NAE challenged college stu-
PROGRAM LISTING
63
dents to generate exciting and powerful new products—the next “viral” apps—to improve health for
communities and individuals. In this the third year of the challenge, 39 submissions were received,
and the products were of a high caliber.
A team of students from Texas A&M University earned the first-place award with H-Radar,
a cross-platform app that utilizes anonymous health data, a cell phone’s global positioning system,
and real-time notifications to allow people to link to information and report infectious diseases
and symptoms. A multi-school team from University of California, Los Angeles; the Massachusetts Institute of Technology; Harvard University; and the University of Medicine and Dentistry
of New Jersey placed second; and third place was awarded to a team from the University of Iowa.
Although the IOM and the NAE contributed their resources to the challenge, Heritage Provider
Network provided the $10,000 award to the first-place team.
End-of-Life Care Activities in the Executive Office (Ongoing)
Continuing the national dialogue on end-of-life issues and interest stemming from the publication
of the 1998 report Approaching Death: Improving Care at the End of Life, the IOM executive office
will examine critical questions that individuals and families face at the end of life. Whether dealing
with a long-term illness or an unforeseen medical life-threatening event, questions such as “What
are your care preferences? How would you like to live your remaining life? Where do you prefer to
die?” often go unanswered. The IOM will commence a study, Approaching Death: Addressing Key
End-of-Life Issues, to examine the policies necessary to align end-of-life care with individual values and preferences and assess the challenges and opportunities in integrating end-of-life care into
a patient- and family-centered, team-based framework of health and community care. The work
of this study will stimulate a national conversation with individuals, families, and communities on
improving the way we, as a nation, approach death.
A Healthy America
The IOM is forging a new collaboration with The Public Good Projects, an independent non-profit
media organization, to develop and implement A Healthy America, the country’s largest public
health information and media campaign to date. The campaign seeks to promote the notion of
health as a core cultural value and will involve coordination with government agencies as well
as academic, corporate, and philanthropic sectors. With an emphasis on prevention and health
literacy, A Healthy America will use evidence-based storytelling, powerful communications tools,
and diverse media platforms to help people of all ages make informed choices about their health.
The multifaceted initiative will roll out in 2015, marketing health in every home, workplace, school,
and community.
Roundtable on Value & Science-Driven Health Care
J. Michael McGinnis, Executive Director
The Roundtable on Value & Science-Driven Health Care provides a trusted venue for national
leaders in health and health care to work cooperatively toward their common commitment to
64
PRESIDENT’S REPORT SUPPLEMENT
effective, innovative health care that consistently adds value to patients and society. Members of
the roundtable include clinicians, patients, health care organizations, employers, manufacturers,
insurers, members of the health information technology field, researchers, and policy makers.
Together, they seek “the development of a continuous learning health care system in which
science, informatics, incentives, and culture are aligned for continuous improvement and
innovation—with best practices seamlessly embedded in the care process, patients and families
active participants in all elements, and new knowledge captured as an integral by-product of the
care experience.”
As leaders in their fields, roundtable members work to identify and engage the key
challenges and opportunities for achieving better outcomes and greater value in health care,
marshaling the energy and resources of their respective sectors to work for sustained public–
private cooperation. The work of the roundtable is conducted through two types of activities:
1.Identification and discussion of priorities in achieving the vision of a continuously learning
health system.
2.Fostering action through joint stakeholder projects incubated in six Innovation Collaboratives focused on best clinical practices, communication of medical evidence, clinical-effectiveness research, digital technology for health, incentives for value in health care, and systems approaches for health ( jointly with the National Academy of Engineering).
Recent Reports and Discussion Papers
2013
• Partnering with Patients – Meeting Summary and Video
• Observational Studies – Workshop Summary
• Large Simple Trials and Knowledge Generation in a Learning System – Workshop Summary
• Core Metrics for Better Care, Lower Cost and Better Health – Workshop Summary
• “Bringing a Systems Health Approach to Health” – Discussion Paper
• “From Pilots to Practice: Speeding the Movement of Successful to Effective Practice” – Discussion Paper
• “Making the Case for Continuous Learning from Routinely Collected Data” – Discussion
Paper
2012
• Digital Data Improvement Priorities for Continuous Learning in Health and Health Care –
Workshop Summary
• Best Care at Lower Cost: The Path to Continuously Learning Health Care in America
• “A CEO Checklist for High-Value Health Care” – Discussion Paper
• “Demanding Value from Our Health Care: Motivating Patient Action to Reduce Waste in
Health Care” – Discussion Paper
PROGRAM LISTING
65
2011
• “Patient–Clinician Communication: Basic Principles and Expectations” – Discussion
Paper
• “The Common Rule and Continuous Improvement in Health Care: A Learning Health
System Perspective” – Discussion Paper
Commentaries
• Risa Lavizzo-Mourey, M.D., MBA – “Efforts to Reduce Avoidable Readmissions at U.S. Hospitals”
• George Thibault, M.D. – “Forging Collaboration: Academia and Health Care Delivery Organizations”
• Karen Daley, Ph.D., RN, M.P.H. – “A Continuously Learning Health System in the United
States”
• Leah Binder – “A Few Nudges for the Choosing Wisely Campaign”
• Christine Cassel, M.D. – “Choosing Wisely: Grounded in Physician Professionalism”
• Richard Platt, M.D., MS – “A Win for the Learning Health System”
• Delos Crosgrove, M.D. – “Transparency: A Patient’s Right to Know”
• Darrell Kirch, M.D. et al. – “Achieving Clinical Quality and Patient Safety”
• Joseph Fifer, FHFMA, C.P.A. – “Creating High-Value Health Care Consumers: Toward
Increased Transparency and Value”
• Scott Armstrong, M.B.A. et al. – “Creating Culture to Promote Shared Decision Making at
Group Health”
• Bruce Siegel, M.D., M.P.H. – “Improving Quality and Patient Safety for Vulnerable
Populations”
• Aaron Wernham, M.D. – “Ounces of Prevention”
Innovation Collaboratives
• Best Practices Innovation Collaborative: Health professionals working together for evidencebased best practices
• Clinical-Effectiveness Research Innovation Collaborative: Developing innovative approaches
to generate evidence for health care decisions
• Digital Learning Collaborative: Advancing progress on creating the digital infrastructure
required for continuous improvement and innovation in health care
• Evidence Communication Innovation Collaborative: Exploring strategies for communicating
with patients about health care decision making
• Value Incentives Learning Collaborative: Designing and evaluating innovations that reward
improved health outcomes while lowering costs
66
PRESIDENT’S REPORT SUPPLEMENT
• Systems Approaches to Health Innovation Collaborative: Applying lessons from engineering
principles to lay the foundations for a continuously learning health system with better care
at lower costs
Projects in Development
• Discussion Paper: “Modeling Systems Approaches to Health”
• Discussion Paper: “Education Strategies for Engineering and Health Collaboration”
• Discussion Paper: “Core Expectations for Accountable Care Organizations”
• Discussion Paper: “Data-Driven Medicine and Continuously Learning Health Care”
• Discussion Paper: “Administrative Costs in Health Care”
• Workshop: Data Harmonization and the Continuously Learning Health Organizations
• Discussion Paper: “Patients on the Care Team”
• Discussion Paper: “Shared Decision-Making Strategies and Tools”
Office of Reports and Communications
Clyde J. Behney, Deputy Executive Officer
Abbey Meltzer, Interim Director of Communications
The IOM Office of Reports and Communication (ORAC) is responsible for the IOM’s report review
function, communications strategies and activities, and other functions related to the report process and the administration of the IOM.
The communications aspect of ORAC’s role has two primary objectives: to increase public
understanding about the IOM and what it does and to communicate effectively the substantive
messages of the IOM’s studies and activities.
ORAC provides leadership, coordination, counsel, and assistance in the development of
strategies, products, and services that will enhance the communication and dissemination of IOM
reports, activities, and collateral materials. ORAC also administers the Kellogg Health of the Public
Fund, an endowment intended to better inform the public and local public health decision makers
about messages from IOM reports and activities as well as to develop targeted health resources,
intervention strategies, and communication activities that are responsive to the needs of local communities, especially underserved and disadvantaged communities. In addition, ORAC manages the
IOM’s website and e-mail marketing—including a monthly electronic newsletter that reaches more
than 38,000 people—and is responsible for the biannual report Informing the Future: Critical Issues
in Health, which provides an overview of the IOM and its impact.
PROGRAM LISTING
67
Ongoing Activities
Kellogg Health of the Public Fund
The Kellogg Health of the Public Fund is an endowed fund intended to increase the IOM’s impact
in its efforts to improve health by better informing the public and local public health decision makers about key health topics, as well as by developing targeted health resources and communication activities that are responsive to the needs of local communities—particularly underserved and
disadvantaged communities. Over the past 7 years, since the endowment began distributing funds,
the IOM has undertaken numerous activities, extending the work of IOM reports including Health
Literacy: A Prescription to End Confusion, Food Marketing to Children and Youth: Threat or Opportunity?, and Weight Gain During Pregnancy: Reexamining the Guidelines.
In 2013, the IOM has focused on a diverse set of topics and audiences to carry out the mission of this fund. To reach the general public with messages about commercial sexual exploitation
and sex trafficking of minors, the IOM developed a short, animated video based on the September
2013 report Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United
States. The video was posted on the IOM website and shared with the sponsor and other stakeholders to help increase awareness of the topic and drive traffic to the report’s webpage, where users
can find more information.
As the IOM looks to reach new audiences, one project in the past year targeted Hispanic
women—particularly Mexican American women—with messages from the 2009 report Weight
Gain During Pregnancy: Reexamining the Guidelines. The goal of the project was to ensure that
Mexican American women understand the appropriate amount of weight to gain during pregnancy
to promote their own health and that of their baby. The IOM worked with a number of partners to
help spread this message and developed user-friendly tools designed to highlight information from
the report.
In addition, the IOM is developing a booklet in Spanish that includes common questions and
answers about breast cancer and the environment (drawn from the 2011 IOM report Breast Cancer
and the Environment: A Life Course Approach). The IOM plans to share this booklet with the partners developed through the project related to pregnancy weight gain.
The IOM also is extending the Smart Bites™ program, which launched for the first time in
2008. This program provides incentives for youth to make healthier food choices when dining out
by enlisting local restaurants to discount healthy food and beverage items and promote these discounts to students. Building on the success of the pilot program in Bowling Green, Kentucky, the
IOM is poised to expand the program into three new communities: San Diego, California; Genesee
County, Michigan; and the Eastern Shore of Virginia. More information about the Smart Bites™
program can be found at www.choosesmartbites.org.
These projects not only afford the IOM new opportunities to make an impact, they also grant
the ability to see how the IOM’s work makes a difference at the community level.
IOM FINANCES
69
Institute of Medicine Finances
A general overview of the Institute of Medicine’s finances is illustrated in the materials that
follow.
Chart 1 shows the Institute’s program expenditures over the last several years. Direct program expenditures for fiscal year 2013 are estimated at just over $41M representing a decrease
from fiscal year 2012. Our ratio of general operation expenditures to total expenditures remains
well below 20 percent. Table 1 presents the detailed dollar expenditures.
Sources of funding for general operations and program expenditures for fiscal year 2012 are
shown on Charts 2 and 3. The major sources of general operations support remain the indirect
cost pool of the National Research Council and income earned from the IOM endowment funds. The
Federal Government continues to be the main source of program support, providing 59 percent of the
funds in fiscal year 2012; however, this is a decrease from the previous year which was 78 percent.
$-
$10,000,000
$20,000,000
$30,000,000
$40,000,000
$50,000,000
$60,000,000
FY 2009
FY 2010
FY 2011
FY 2012
Chart 1
Program Expenditures
Fiscal Years 2009 through 2013
Est FY 2013
Direct Program
Flow-Thru Program
70
PRESIDENT’S REPORT SUPPLEMENT
IOM FINANCES
71
Indirect Funds
86%
Chart 2
General Operations Support
Fiscal Year 2012
Total Budget $6,944,274
Endowment Income
14%
72
PRESIDENT’S REPORT SUPPLEMENT
Private
39%
IOM
2%
Federal
59%
HHS
35%
Chart 3
Sources of Program Funding
Fiscal Year 2012
Total Budget @ $56,454,640
DHS
1%
VA
7%
USDA
2%
STATE
4%
Other
Federal
5%
DOD
5%
IOM FINANCES
73
74
PRESIDENT’S REPORT SUPPLEMENT
75
DONORS AND SPONSORS
2013 Private Contributions
We gratefully acknowledge the support of private contributors to the Institute of
Medicine. The collective, private philanthropy of our members and friends helps to
enhance the IOM’s impact as adviser to the nation on health.
The Einstein Society
In recognition of members and friends who have made lifetime contributions of $100,000 or more
to the National Academies as personal gifts or as gifts facilitated by the donor through a donoradvised fund, matching gift program, or family foundation. The following list reflects contributions
received as of August 31, 2013.
John Abelson
David G. Bradley
Bruce and Betty Alberts
Lewis M. Branscomba
The Ambrose Monell Foundation
Donald L. Bren
Rose-Marie and Jack R. Anderson
Sydney Brennera
John and Elizabeth Armstrong
George* and Virginia Bugliarello
Richarda and Rita Atkinson
Malin Burnham
Norman R. Augustine
Fletcher* and Peg Byrom
Francisco J. and Hana Ayala
Russell L. Carson
William F. Ballhaus, Sr.*
Charina Endowment Fund
Craig and Barbara Barrett
Ralph J. and Carol M. Cicerone
Thomas D.* and Janice H. Barrow
John and Assia Cioffi
Jordan* and Rhoda Baruch
Paul and Margaret Citron
Warren L. Batts
A. James Clark
Stephen D. Bechtel, Jr.
James McConnell Clark
Kenneth E. Behring
W. Dale and Jeanne C. Compton
Gordon Bell
Lance and Susan Davis
Elwyn and Jennifer Berlekamp
Roman W. DeSanctisa
Diane and Norman Bernstein
Robert and Florence Deutsch
Erich Bloch
Charles W. Duncan, Jr.
Elkan R.a* and Gail F. Blout
George and Maggie Eads
= IOM Member
* = Deceased
a
76
PRESIDENT’S REPORT SUPPLEMENT
Robert and Cornelia Eaton
Yuet Waia and Alvera Kan
Harvey V. Fineberga and Mary E. Wilson
Fred Kavli
Michiko So* and Lawrence Finegold
Cindy and Jeong Kim
Tobie and Daniel J.* Fink
Frederick A. Klingenstein
George and Ann Fisher
William I. Koch
Harold K.* and Betty A. Forsen
Jill Howell Kramer
William L. and Mary Kay Friend
Kent Kresa
Eugene Garfield
John W. Landis*
William H. and Melinda F. Gates
William W. Lang
Theodore Geballe
Geralda and Doris Laubach
Penny and Bill George
David M.* and Natalie Lederman
Nan and Chuck Geschke
Bonnie Berger and Frank Thomson Leighton
Jack and Linda Gill
Whitney and Betty MacMillan
William T.* and Catherine Morrison Golden
Asad M., Gowhartaj, and Jamal Madni
Bernard M. Gordon
Davis L. Masten and Christopher Ireland
Paul and Judy Gray
John F. McDonnell
Jerome H.a* and Barbara N. Grossman
Robin K. and Rose M. McGuire
Corbin Gwaltney
William W. McGuirea
John O. Hallquist
Burt and Deedee McMurtry
Margaret A. Hamburga and Peter F. Brown
Dane and Mary Louise Miller
William M. Haney III
G. William* and Ariadna Miller
George and Daphne Hatsopoulos
George P. Mitchell*
Jane Hirsh
Gordon and Betty Moore
Chad and Ann Holliday
Joe and Glenna Moore
M. Blakeman Ingle
David and Lindsay Morgenthaler
Joan and Irwin Jacobs
Richard M.* and Janet Morrow
Robert L. and Anne K. James
C. Daniel and Patricia L. Mote
Anita K. Jones
Philipa and Sima Needleman
Thomas V. Jones
Ralph S. O’Connor
Trevor O. Jones
Peter O’Donnell, Jr.
Thomas Kailath
Gilbert S. Omenna and Martha A. Darling
= IOM Member
* = Deceased
a
77
DONORS AND SPONSORS
Susan and Franklin M. Orr, Jr.
Melvin I. Simon
Larry and Carol Papay
Robert F. and Lee S. Sproull
Jack S. Parker*
Georges C. St. Laurent, Jr.
Shela and Kumar Patel
Arnold and Constance Stancell
Edward E. Penhoet
Edward C. Stone
Percy Pollard
John and Janet Swanson
Robert* and Mayari Pritzker
Judy Swanson
Allen E. and Marilynn Puckett
Charlotte and Morris Tanenbaum
Ann and Michael Ramage
Peter and Vivian Teets
Simon Ramo
Gary and Diane Tooker
Carol and David Richards
Ted Turner
Anne and Walt Robb
Leslie L. Vadasz
Henry M. Rowan
Roya and Diana Vagelos
Jack W.a and Valerie Rowe
Martha Vaughan
George Rowe, Jr.
Charles M. and Rebecca M. Vest
Joseph E.* and Anne P. Rowe
Andrew and Erna Viterbi
William J. Rutter
Robert and Joan Wertheim
Stephen * and Anne Ryan
Robert M. and Mavis E. White
Dame Jillian Sackler
John C. Whitehead
Raymond and Beverly Sackler
Wm. A. Wulf
Henry and Susan Samueli
Ken Xie
Bernard* and Rhoda Sarnat
Adrian Zaccaria
Maxine L. Savitz
Alejandro Zaffaronia
Leonard D. Schaeffera
Janet and Jerry Zucker
Wendy and Eric Schmidt
Anonymous
a
a
Sara Lee and Axel Schupf
Richard P. Simmons
= IOM Member
* = Deceased
a
78
PRESIDENT’S REPORT SUPPLEMENT
IOM Society
In recognition of members and friends of the Institute of Medicine who have made lifetime contributions of $20,000 to $99,999 to the National Academies as personal gifts or as gifts facilitated by
the donor through a donor-advised fund, matching gift program, or family foundation. The following list reflects contributions received as of August 31, 2013.
Dyanne D. Affonso
Edithe J. Levit*
John R. Ball
Margaret E. Mahoney*
Jack D. Barchas
Maclyn McCarty*
Paul Berg
Michael and Pat McGinnis
Kenneth I. Berns
Arno G. Motulsky
Floyd E. Bloom
Van C. and Barbara Mow
Robert and Lillian Brent
Woodrow A. Myers, Jr.
Roger J. Bulger
Robert M. and Marilyn R. Nerem
David R. and Jacklyn A. Challoner
Quigg Newton*
Purnell W. Choppin
June E. Osborn
Mary Sue Coleman
Daniel W. Pettengill*
Barry and Bobbi Coller
Helen M. Ranney*
Colleen Conway-Welch
Alexander Rich
James F. Crow*
William C. Richardson
Pedro M. Cuatrecasas
Charles A. Sanders
William H. Danforth
Rudi* and Sonja Schmid
Jane and Worth B.* Daniels, Jr.
Phillip A. Sharp
Robert A. Derzon*
Kenneth I. Shine
Delbert A. and Beverly C. Fisher
Eric M. Shooter
Richard L. and Lois E. Garwin
Maxine F. Singer
James R. Gavin III
Robert L. Sinsheimer
Bradford H. Gray
William N. Spellacy
Martha N. Hill
Thomas A. and Joan A. Steitz
William N. Hubbard, Jr.
Rosemary A. Stevens
Richard B. Johnston, Jr.
Samuel O. Thier
Tadamitsu Kishimoto
Robert E. Tranquada
* = Deceased
79
DONORS AND SPONSORS
Peter K. Vogt
Jean D. Wilson
Gail L. Warden
Tachi and Leslie Yamada
Irving L. Weissman
Warren and Nikki Zapol
Torsten N. Wiesel
Michael Zubkoff
C. Kern Wildenthal
Heritage Society
In recognition and celebration of members and friends for the thoughtful gesture of planning a gift
today that provides for the future by including a bequest to the National Academies in their will or
planning another deferred gift. The following list reflects planned gift intentions as of August 31,
2013.
Andreas and Juana Acrivos
Rita K. Chowa
Gene M. and Marian Amdahl
John A. Clements
Betsy Ancker-Johnson
K. Danner Clousera*
John C. Angus
D. Walter Cohena
John and Elizabeth Armstrong
Morrel H. Cohen
Norman R. Augustine
Stanley N. Cohena
W. O. Bakera*
Colleen Conway-Welcha
Jack D. Barchasa
John D. Corbett
Stanley Baum
Ross and Stephanie Corotis
Stephen D. Bechtel, Jr.
Ellis and Bettsy Cowling
Clyde J. Behney
Molly J. Coyea
Paul Berga
Barbara J. Cullitona
Franklin H. Blecher*
Malcolm R. Currie
Elkan R. * and Gail F. Blout
Lee L. Davenport*
Enriqueta C. Bonda
Ruth M. Davis*
Daniel Branton
Robert A. Derzon*
Robert and Lillian Brent
Peter N. Devreotes
Corale L. Brierley
Paul M. Doty*
James A. Brierley
Mildred S. Dresselhaus
Samuel Karlin* and Dorit Carmelli
Ernest L. and Eva Eliel*
a
a
a
a
= IOM Member
* = Deceased
80
PRESIDENT’S REPORT SUPPLEMENT
Gerard W. Elverum
William* and Constance Opie
Emanuel Epstein
Bradford W. and Virginia W. Parkinson
Tobie and Daniel J.* Fink
Zack T. Pate
Robert C. and Marilyn G. Forney
Daniel W. Pettengilla*
Jeanne M. Fox*
Frank Press
Paul H. Gilbert
Simon Ramo
Martin E. and Lucinda Glicksman
Alexander Richa
George and Christine Gloeckler
Henry W. Rieckena*
Christa and Detlef Gloge
Emanuel P. Riversa
Joseph W. Goodman
Richard J. and Bonnie B. Robbins
Chushiro* and Yoshiko Hayashi
Doris E. Robertsa*
Thomas S. Inuia
Eugene* and C. Ruth Roberts
Richard B. Johnston, Jr.a
James F. Roth
Anita K. Jones
Esther and Lewisa Rowland
Jerome Kagana
Sheila A. Ryana
John W. Landis*
Paul R. Schimmela
Norma M. Langa
Stuart F. Schlossmana
William W. Lang
Rudia* and Sonja Schmid
Edithe J. Levita*
Kenneth I. Shinea
R. Duncan* and Carolyn Luce
Robert L. Sinsheimera
Thomas and Caroline Maddock
Arnold and Constance Stancell
Artur Mager
H. Eugene Stanley
Jane Menkena
Dale F. and Audrey Stein
Gordon and Betty Moore
Rosemary A. Stevensa
Arno G. Motulskya
John and Janet Swanson
Van C.a and Barbara Mow
John A. Swets
Guido Munch
Esther S. Takeuchi
Mary O. Mundingera
Paul and Pamela Talalay
Philipa and Sima Needleman
Ivan M. Viest*
Norman F. Ness
Willis H. Ware
Ronald P. Nordgren
Robert and Joan Wertheim
Gilbert S. Omenn and Martha A. Darling
John Archibald* and Janette H. Wheeler
a
a
= IOM Member
* = Deceased
81
DONORS AND SPONSORS
Maw-Kuen Wu
Anonymous (2)
Wm. A. Wulf
Tilahun D. Yilma
Michael Zubkoffa
Catalyst Society
In recognition of members and friends of the IOM who contributed $10,000 or more in collective
support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge
those contributions made as personal gifts or as gifts facilitated by the donor through a donoradvised fund, matching gift program, or family foundation.
Members
Richard and Rita Atkinson
Lewis M. Branscomb
Harvey V. Fineberg and Mary E. Wilson
Penny and Bill George
Leonard D. Schaeffer
Samuel O. Thier
Roy and Diana Vagelos
Friends
Avram Goldstein*
Russell L. Carson
Richard B. Johnston, Jr.
Jeff Tarr
Philip and Sima Needleman
Anonymous
Gilbert S. Omenn and Martha A. Darling
George Rowe, Jr.
Rosette Society
In recognition of members and friends of the IOM who contributed between $5,000 and $9,999
in collective support for the National Academies from September 1, 2012 to August 31, 2013. We
acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through
a donor-advised fund, matching gift program, or family foundation.
Members
John R. Ball
Delbert A. Fisher
a
= IOM Member
* = Deceased
Antonio M. Gotto, Jr.
Bradford H. Gray
Tadamitsu Kishimoto
J. Michael McGinnis
82
PRESIDENT’S REPORT SUPPLEMENT
Robert M. Nerem
Paul A. Offit
Jean D. Wilson
Friends
Jonathan and Suzanne Ellenthal
Philip A. Marineau
Clara J. Szekely*
Challenge Society
In recognition of members and friends of the IOM who contributed between $2,500 and $4,999
in collective support for the National Academies from September 1, 2012 to August 31, 2013. We
acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through
a donor advised fund, matching gift program, or family foundation.
Members
Dyanne D. Affonso
Nancy C. Andrews
Anthony J. Atala
Jack D. Barchas
William G. Barsan
Jacqueline K. Barton
Maureen Bisognano
Robert J. Blendon
Floyd E. Bloom
Thomas and Miriam Budinger
David R. Challoner
Purnell W. Choppin
William H. Danforth
Peter B. Dervan
Leroy E. Hood
Tony Hunter
* = Deceased
James S. Marks
Marie C. McCormick
Bruce S. McEwen
Ronald D. Miller
Larry J. Shapiro
Eric M. Shooter
Robert L. Sinsheimer
William N. Spellacy
Joan A. Steitz
Rosemary A. Stevens
Gail L. Warden
Myron L. Weisfeldt
Thomas E. Wellems and Marilyn I. Powell
Owen N. Witte
Friend
Jay Scott Walker
83
DONORS AND SPONSORS
Charter Society
In recognition of members and friends of the IOM who contributed between $1,000 and $2,499
in collective support for the National Academies from September 1, 2012 to August 31, 2013. We
acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through
a donor-advised fund, matching gift program, or family foundation.
Members
Francois M. Abboud
Bobby R. Alford
Arthur K. Asbury
Dennis A. Ausiello
K. Frank Austen
Robert D. Beauchamp
Arthur L. Beaudet
Steven C. Beering
Paul Berg
Mina J. Bissell
Barry R. Bloom
Enriqueta C. Bond
Stuart Bondurant
Claire D. Brindis
William R. Brody
Patricia A. Buffler
John and Denise Carethers
Charles C. J. Carpenter
John Chae
Frank A. Chervenak
Barry and Bobbi Coller
Barbara J. Culliton
Philip D. Darney and Uta E. Landy
Mark E. Davis
Mark M. Davis
Karen Davis
Haile T. Debas
Joel A. DeLisa
Susan Dentzer
Roman W. DeSanctis
Sue K. Donaldson
Alain C. Enthoven
John W. Erdman, Jr.
Robert C. Gallo
Norman F. Gant
Patricia A. Ganz
Gary L. Gottlieb
Robert Graham
Diane E. Griffin
David S. Guzick
Ashley T. Haase
James G. Haughton
Jane E. Henney
Howard H. Hiatt
Martha N. Hill
Ada Sue Hinshaw
Hedvig Hricak
William N. Hubbard, Jr.
Richard and Fleur Hynes
Alan and Helgi Jobe
Michael M. E. Johns
84
PRESIDENT’S REPORT SUPPLEMENT
Larry R. Kaiser
Emanuel P. Rivers
Samuel L. Katz and Catherine M. Wilfert
Linda Rosenstock
Sung Wan Kim
Marla E. Salmon
David M. Kipnis
Alan C. Sartorelli
David Korn
Donna E. Shalala
Edward A. Kravitz
Harold T. Shapiro
Raju S. Kucherlapati
Michael L. Shelanski
Albert Lee
Charles J. Sherr
Irving M. London
Maxine F. Singer
George D. Lundberg
William and Janet Stead
JoAnn E. Manson
David and Jane Tirrell
Alexander R. Margulis
Reed V. Tuckson
Reynaldo Martorell
Neal A. Vanselow
Elizabeth R. McAnarney
Peter K. Vogt
Angela Barron McBride
A. Eugene Washington
Roger O. McClellan
Myrna M. Weissman
William W. McGuire
Nancy S. Wexler
Mortimer Mishkin
Catherine M. Wilfert
Harold L. Moses
James T. Willerson
Van C. and Barbara Mow
Gerald N. Wogan
John E. Niederhuber
Tachi and Leslie Yamada
June E. Osborn
Elias A. Zerhouni
Herbert Pardes
Thomas D. Pollard
John Edward Porter
E. Albert Reece
Friends
Gordon Baym and Cathrine Blom
85
DONORS AND SPONSORS
Other Individual Donors
In recognition of members and friends of the IOM who contributed up to $999 in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those
contributions made as personal gifts or as gifts facilitated by the donor through a donor-advised
fund, matching gift program, or family foundation.
Members
W. Gerald Austen
Salim S. Abdool-Karim
Joan K. Austin
Barbara Abrams
John Z. Ayanian
Herbert L. Abrams
Daniel L. Azarnoff
Bernard W. Agranoff
Howard L. Bailit
Gustavo D. Aguirre
Jeffrey R. Balser
Margarita Alegria
Clyde F. Barker
Paula G. Allen-Meares
Jeremiah A. Barondess
David B. Allison
Michele Barry and Mark Cullen
Joel J. Alpert
Eugene A. Bauer
Lawrence K. Altman
Bruce J. Baum
Stuart H. Altman
Stanley Baum
Hortensia d. l. A. Amaro
John C. Beck
Kenneth C. Anderson
Richard E. Behrman
Norman B. Anderson
Leslie Z. Benet
Kathleen G. Andreoli
Georges C. Benjamin
George J. Annas
J. Claude Bennett
Karen H. Antman
Bobbie A. Berkowitz
Frances H. Arnold
Nancy Berliner
Kenneth J. Arrow
Eula Bingham
Ann M. Arvin
John D. Birkmeyer
David A. Asch
Michelle H. Biros
Karen H. Ashe
Robert L. Black
Barbara F. Atkinson
Martin J. Blaser
John P. Atkinson
Dan G. Blazer
Tom P. Aufderheide
Clara D. Bloomfield
86
PRESIDENT’S REPORT SUPPLEMENT
Thomas F. Boat
David A. Clayton
Michael L. Boninger
Linda Hawes Clever
Richard J. Bonnie
Jewel Plummer Cobb
William H. Bowen
D. Walter Cohen
L. Thompson Bowles
Sheldon Cohen
W. Thomas Boyce
Mary Sue Coleman
Allan M. Brandt
Anna B. Coles
Paula A. Braveman
Jack M. Colwill
Rachel and Henry Brem
Edward J. Connors
Patricia F. Brennan
Max D. Cooper
Devra M. Breslow
Peter Cresswell
Norman E. Breslow
Susan J. Curry
Ralph L. Brinster
George Q. Daley
Claire V. Broome
Chi and Mary Dang
Dorothy Brooten
Nancy E. Davidson
Rebecca H. Buckley
Ciro de Quadros
Joseph A. Buckwalter
Catherine D. DeAngelis
Kathleen Coen Buckwalter
Alan H. DeCherney
Benjamin S. Bunney
John O. DeLancey
Gerard N. Burrow
Robert J. Desnick
Michael L. Callaham
Don E. Detmer
Ned Calonge
Angela Diaz
M. Paul Capp
Luis A. Diaz
William B. Carey
Nancy Wilson Dickey
Webster K. Cavenee
William H. Dietz
Martin Chalfie
Salvatore DiMauro
Setsuko K. Chambers
Vishva M. Dixit
R. Alta Charo
Andrew D. Dixon
Lincoln C. Chen
Jack E. Dixon
Zang-Hee Cho
Kathleen A. Dracup
Rita K. Chow
Jeffrey M. Drazen
Francisco G. Cigarroa
Deborah A. Driscoll
87
DONORS AND SPONSORS
Mitzi L. Duxbury
Joe G. Garcia
Johanna T. Dwyer
Atul Gawande
Felton Earls and Maya Carlson
Kristine M. Gebbie
Timothy Eberlein
Apostolos Georgopoulos
Richard H. Egdahl
John P. Geyman
Herman N. Eisen
Richard A. Gibbs
David and Lucy Eisenberg
Irma Gigli
Mickey S. Eisenberg
David Ginsburg
Neil J. Elgee
Jonathan D. Gitlin
Robert M. Epstein
Linda C. Giudice
Carroll L. Estes
Seymour and Brenda Glick
William E. Evans
Stephen P. Goff
Stefan S. Fajans
Alfred L. Goldberg
Harold J. Fallon
Lewis R. Goldfrank
Diana L. Farmer
Bernard D. Goldstein
Rashi Fein
Joseph L. Goldstein
Donna M. Ferriero
Francisco Gonzalez-Scarano
Joseph J. Fins
Enoch Gordis
Gary R. Fleisher
Emil C. Gotschlich
Thomas R. Fleming
Patricia A. Grady
Stephen P. Fortmann
Margie and Larry A. Green
Daniel W. Foster
Deborah Greenspan
Henry W. Foster, Jr.
John S. Greenspan
Ellen Frank and David Kupfer
Paul F. Griner
Dennis G. Fryback
Ellen R. Gritz
Elena Fuentes-Afflick
Gerald N. Grob
Margaret T. Fuller
Michael Grossman
Terry T. Fulmer
Melvin M. Grumbach
Fred H. Gage
Bernard Guyer
Mitchell H. Gail
Zach W. Hall
Vanessa Northington Gamble
Charles B. Hammond
Theodore G. Ganiats
Qide Han
88
PRESIDENT’S REPORT SUPPLEMENT
Barbara C. Hansen
Alexandra L. Joyner
Richard W. Hanson
Roger D. Kamm
Stephen W. Hargarten
Morris J. Karnovsky
Charlene A. Harrington
Nancy Kass
Richard J. Havel
Jerome P. Kassirer
Samuel Hawgood
Michael B. Kastan
Maxine Hayes
Daniel Kastner
Jerris and Susan Hedges
Michael Katz
Arthur L. Herbst
Emmett B. Keeler
George C. Hill and Linda Haire-Hill
David A. Kindig
Kurt and Rochelle Hirschhorn
Lonnie J. King
Rochelle Hirschhorn
Talmadge E. King, Jr.
Helen H. Hobbs
Raynard S. Kington
King K. Holmes
Seymour J. Klebanoff
Thomas F. Hornbein
Herbert D. Kleber
H. Robert Horvitz
Claude B. Klee
Susan Band Horwitz
Charles R. Kleeman
James S. House
David J. Kupfer and Ellen Frank
Peter M. Howley
Nathan Kuppermann
Jennifer L. Howse
Michael D. Lairmore
George Hripcsak
Norma M. Lang
James M. Hughes
Joseph Larner
Barbara S. Hulka
Joyce C. Lashof
Peter B. Hutt
Cato T. Laurencin
Sharon K. Inouye
Judith R. Lave
Kurt J. Isselbacher
Robert S. Lawrence
James S. Jackson
Wendy and Ted Lawrence
Richard J. Jackson
John Q. Trojanowski and Virginia Man-Yee
Lee
Elaine Sarkin Jaffe
Richard Janeway
Roger A. Johns
Timothy S. Jost
Michael L. LeFevre
Caryn Lerman
Howard Leventhal
89
DONORS AND SPONSORS
Myron M. Levine
Beverly S. Mitchell
Richard P. Lifton
Richard T. Miyamoto
Jennifer Lippincott-Schwartz
James W. Mold
Roderick J. Little
John Monahan
Jay Loeffler and Nancy Tarbell
Jonathan D. Moreno
Ann C. Macaulay
Marsha A. Moses
Susan E. Mackinnon
Arno G. Motulsky
Ruth Macklin
John H. Moxley III
Peter and Marlene MacLeish
Fitzhugh Mullan
Albert Macovski
Frederick A. Murphy
Adel A. Mahmoud
Suzanne P. Murphy
Henri R. Manasse, Jr.
Milap C. Nahata
Audrey F. Manley
Carl F. Nathan
Willard G. Manning
Jack Needleman
Vincent T. Marchesi
Eric J. Nestler
Howard Markel
Liz and Ben Neufeld
Paul A. Marks
Duncan B. Neuhauser
Barry and Adrienne Marshall
Maria Iandolo New
George M. Martin
Jennifer R. Niebyl
Joseph B. Martin
Nancy Nielsen
Manuel Martinez-Maldonado
Elena and Stuart Nightingale
Ida M. Martinson
Ruth S. Nussenzweig
Carol A. Mason
William L. Nyhan
Bettie Sue S. Masters
Charles P. O’Brien
Rowena G. and Larry S. Matthews
Olufunmilayo F. Olopade
Charles A. McCallum
Walter A. Orenstein
Elizabeth A. McGlynn
Joseph P. Ornato
David Mechanic
Peter Orszag
Richard A. Merrill
J. Marc Overhage and Mary Brunner
Emmanuel Mignot and Servane Briand
Peter Palese
I. George Miller, Jr.
Guy H. Palmer
Lloyd B. Minor
Arthur B. Pardee
90
PRESIDENT’S REPORT SUPPLEMENT
John A. Parrish
Jane S. Richardson
Ira H. Pastan
William C. Richardson
Robert E. Patricelli
Barbara K. Rimer
Nicholas A. Peppas
Neil J. Risch
David H. Perlmutter
Saul A. Rosenberg
Ora H. Pescovitz
Dr. David Rosner
Christine Petit
Diane Rowland
Robert and Katherine Phillips
Esther and Lewis Rowland
Theodore L. Phillips
David R. Rubinow
Marina Picciotto
Abraham M. Rudolph
Chester M. Pierce
Erkki Ruoslahti
Vivian W. Pinn
William M. Sage
Jeffrey L. Platt
Bruce J. Sams
Stanley A. Plotkin
Peter T. Scardino
Peter J. Polverini
Jane G. Schaller
Claire Pomeroy
Thomas C. Schelling
Michael I. Posner
Joseph E. Scherger
Deborah E. Powell
Gerold L. Schiebler
Donald L. Price
Fritz H. Schroder
Paul G. Quie
Thomas L. Schwenk
Thomas C. Quinn
Matthew P. Scott
Mitchell T. Rabkin
Nevin S. Scrimshaw*
Daniel J. Rader and Carolyn C. Cannuscio
Donald W. Seldin
Marilyn J. Rantz
Iris R. Shannon
Judith L. Rapoport
George F. Sheldon
Robert D. Reischauer
Henry R. Shinefield
Allan L. Reiss
Edward H. Shortliffe
Mary V. Relling
Ira Shoulson
Alexander Rich
Carolyn W. Slayman
Charles C. Richardson
James P. Smith
* = Deceased
91
DONORS AND SPONSORS
Louis Sokoloff
Diane W. Wara
Jeannette E. South-Paul
Kenneth E. Warner
Harold C. Sox, Jr.
Stephen T. Warren
Frank E. Speizer
Judith Wasserheit
Allen M. Spiegel
Connie M. Weaver
Joseph W. St. Geme III
Paul C. Weiler
Zena A. Stein
Sheldon Weinbaum
Donald M. Steinwachs
John B. West
David K. Stevenson
Raymond P. White, Jr.
Barbara J. Stoll
Jeffrey A. Whitsett
Robert Straus
Torsten N. Wiesel
Brian L. Strom
Linda S. Wilson
Mervyn W. Susser
Ruby L. Wilson
Megan Sykes
Phyllis M. Wise
Lawrence A. Tabak
Mary Woolley
Nancy J. Tarbell
Laurence R. Young
Palmer W. Taylor
Huda Y. Zoghbi
Susan S. Taylor
George D. Zuidema
Gerald E. Thomson
Anonymous
Mary E. Tinetti
Robert E. Tranquada
Friends
Arthur C. Upton
Linda H. Barondess
Inder M. Verma
Marian B. Carlson
Sten H. Vermund
John A. Dracup
Barbara Vickrey
Olivia Tournay Flatto
Antonia M. Villarruel
Raghav Govindarajan
Bruce C. Vladeck
Leonard Lauder
Edward H. Wagner
Daniel Pruski
Edward E. Wallach
Fatoumata Sangare
Christopher T. Walsh
Athanasios Theologis
92
PRESIDENT’S REPORT SUPPLEMENT
Foundations, Corporations, and Other Organizations
In recognition of foundations, corporations, and other organizations that made gifts and grants to
the IOM from September 1, 2012 to August 31, 2013.
Foundations
American Board of Pediatrics Foundation
Archstone Foundation
Lance Armstrong Foundation
The Atlantic Philanthropies (USA)
Michael J. Fox Foundation for Parkinson’s
Disease
The Bill & Melinda Gates Foundation
George Family Foundation
William T. Grant Foundation
Bernard Van Leer Foundation
Greater Kansas City Community
Foundation
The Breast Cancer Research Foundation
Greater Rochester Health Foundation
Burroughs Wellcome Fund
Healthy Weight Commitment Foundation
California Community Foundation
Herbst Family Foundation
The California Endowment
The William and Flora Hewlett Foundation
California HealthCare Foundation
International Health Foundation
The Carson Family Charitable Trust
The JCT Foundation
CDC Foundation, Inc.
Jewish Healthcare Foundation
China Medical Board
The Robert Wood Johnson Foundation
The Commonwealth Fund
Joyce Foundation
Community Foundation for Southeastern
Michigan
The JPB Foundation
Connecticut Health Foundation, Inc.
Michael and Susan Dell Foundation
Doris Duke Charitable Foundation
The Henry J. Kaiser Family Foundation
The Katz Family Foundation
W. K. Kellogg Foundation
East Bay Community Foundation
The Susan G. Komen Breast Cancer
Foundation
The Ellison Medical Foundation
The Kresge Foundation
John E. Fetzer Institute, Inc.
LIVESTRONG Foundation
Fidelity Charitable Gift Fund
Foundation for Child Development
The John D. and Catherine T. MacArthur
Foundation
James F. and Sarah T. Fries Foundation
Josiah Macy, Jr. Foundation
93
DONORS AND SPONSORS
March of Dimes Foundation
Becton, Dickinson and Company
McCormick Foundation
Bessemer Trust
McKnight Brain Research Foundation
Blue Shield of California Foundation
Miami Foundation
BlueCross and BlueShield Association
Milbank Memorial Fund
Bristol-Myers Squibb Company
Missouri Foundation for Health
Cargill, Inc.
The Ambrose Monell Foundation
Charles River Laboratories International,
Inc.
Gordon and Betty Moore Foundation
NATA Research & Education Foundation
New York State Health Foundation
The Coca-Cola Company
Colgate-Palmolive Company
The David and Lucile Packard Foundation
ConAgra, Inc.
The Robert & Margaret Patricelli Family
Foundation, Inc.
Duke Corporation
Epic
Lisa and John Pritzker Family Fund
ExxonMobil Foundation
The Seattle Foundation
Fondation Merieux USA, Inc.
Alfred P. Sloan Foundation
GE Healthcare
The Clara J. Szekely Foundation, Inc.
Genentech, Inc.
The Wellcome Trust
General Mills, Inc.
Zerhouni Family Charitable Foundation,
Inc.
Genetic Alliance
Corporations
Genomic Health, Inc.
GlaxoSmithKline
HCA Inc.
Abbott Laboratories
Home Box Office, Inc.
Aetna Foundation
Humana, Inc.
Aetna, Inc.
International Business Machines
Corporation
Amgen, Inc.
Anheuser-Busch InBev
Anthem Blue Cross Blue Shield
AstraZeneca Pharmaceuticals LP
Avon Foundation for Women
Janssen Pharmaceutica Inc.
Johnson & Johnson
Kaiser Permanente
LeadingAge, Inc.
Life Technologies, Inc.
94
PRESIDENT’S REPORT SUPPLEMENT
Eli Lilly and Company
Lundbeck Research & Development
Other Organizations
The MAC Aids Fund
Academy Consortium for Complementary
& Alternative Health Care
Mars Incorporated
Academy of Nutrition and Dietetics
McDonald’s Corporation
Accreditation Council for Graduate
Medical Education
Medtronic, Inc.
Merck & Company, Inc.
Merck Partnership for Giving
Mondelez Global International
Monsanto Company
Nemours Foundation
Northrop Grumman Corporation
Novartis Pharmaceuticals Corporation
Novo Nordisk Diabetes Innovation Award
Program
Partners HealthCare Systems, Inc.
Alliance for a Healthier Generation,
Inc.
Alliance for Continuing Medical
Education
Alzheimer’s Association
American Academy of Family Physicians
American Academy of Nurse Practitioners
American Academy of Nursing
American Association for Cancer
Research
PepsiCo, Inc.
American Association of Colleges of
Nursing
Pfizer Foundation Matching Gifts
Program
American Association of Colleges of
Osteopathic Medicine
Pfizer, Inc.
American Association of Colleges of
Pharmacy
Premier
Sanofi Pasteur
Sanofi-Aventis
SCAN Foundation
Schering-Plough Corporation
Schwab Charitable Fund
Takeda Pharmaceuticals
Tate & Lyle Ingredients Americas, Inc.
United Health Foundation
American Association of Nurse
Anesthetists
American Biological Safety Association
American Board of Family Medicine
American Board of Internal Medicine
The American Board of Obstetrics and
Gynecology
American Cancer Society, Inc.
United Healthcare
American College of Emergency
Physicians
UnitedHealth Group, Inc.
American College of Medical Genetics
Wells Fargo Advisors, LLC
American College of Nurse-Midwives
Wyeth
American College of Obstetricians &
Gynecologists
95
DONORS AND SPONSORS
American College of Physicians
Campaign for Tobacco-Free Kids
American Dental Association
Catholic Health Initiatives
American Dental Education
Association
College of American Pathologists
American Diabetes Association
Council of Academic Programs in
Communication Sciences and Disorders
American Geological Institute
The Critical Path Institute
American Geriatrics Society
Economic & Social Research Council
American Medical Association
Emergency Nurses Association
American Nurses Association
FasterCures
American Nurses Credentialing Center
Federation of American Societies for
Experimental Biology
American Occupational Therapy
Association, Inc.
Gerontological Society of America
American Psychological Association
Health Partners
American Red Cross
Infectious Diseases Society of America
American Society for Microbiology
International Society for Stem Cell
Research
American Society for Radiation
Oncology
American Society of Clinical Oncology
International Society for Cardiovascular
Translational Research
American Speech-Language Hearing
Association
Martin Blanck Associates, LLC
Mayo Clinic
The American Veterinary Medical
Association
National Academies of Practice
Association of American Cancer Institutes
Association of American Medical
Colleges
Association of American Veterinary
Medical Colleges
Association of Schools and Colleges of
Optometry
Association of Schools of Allied Health
Professionals
Association of Schools of Public Health
California Dental Association
California Institute for Regenerative
Medicine
National Association of County and City
Health Officials
National Association of Emergency Medical Technicians
National Association of Social Workers
National Board for Certified Counselors,
Inc.
National League for Nursing, Inc.
National Multiple Sclerosis Society
National Organization for Associate Degree
Nursing
National Society of Genetic Counselors
North Shore–LIJ Health System
The Obesity Society
96
PRESIDENT’S REPORT SUPPLEMENT
Oncology Nursing Society
Tufts University
Physician Assistant Education
Association
University of California, San Francisco
Rutgers, The State University of New
Jersey
Society for Neuroscience
Society for Simulation in Healthcare
Texas Association of Nonprofit
Organizations
Trauma Center Association of America,
Inc.
University of Maryland Faculty Physicians,
Inc.
University of Washington
Vitality Group, LLC
Joan and Sanford I. Weill Medical College
& Graduate School
YMCA of the USA
We have made every effort to list donors accurately and according to their wishes. If we have made an
error, please accept our apologies and contact the development office at (202) 334-1342 so that we can
correct our records.
IN MEMORIAM
Institute of Medicine members whose deaths occurred since October 2012
Patricia A. Buffler
Noah R. Calhoun
David R. Cox
Peter B. Dews
Donna Diers
Ronald W. Estabrook
Robert A. Fishman
Emil Frei, III
Caroline Breese Hall
Maureen M. Henderson
Robert L. Hill
C. Everett Koop
Alexander Leaf
Wataru Mori
Robert H. Moser
Joseph E. Murray
Edmund D. Pellegrino
Henry W. Riecken
Francis H. Ruddle
Stephen J. Ryan
Nevin S. Scrimshaw
Lawrence A. Shepp
Gloria R. Smith
David H. Solomon
Morton N. Swartz
Homer R. Warner
Asa G. Yancey, Sr.
97
500 Fifth Street, NW
Washington, DC 20001
TEL 202.334.2352
FAX 202.334.1412
www.iom.edu
The Institute of Medicine serves as adviser to the nation to improve health.
Established in 1970 as the health arm of the National Academy of Sciences,
the Institute of Medicine is a nonprofit organization that works outside of government
to provide unbiased and authoritative advice to decision makers and the public.