President`s Report Supplement
Transcription
President`s Report Supplement
President’s Report Supplement Program Listing and View of IOM Finances 2013 EDITION 1 TABLE OF CONTENTS Contents Letter from the President2 Appendix to Letter13 Degrees of Impact17 President’s Office and Executive Office Staff 19 Recent Publications20 Program Listing25 IOM Finances69 Donors and Sponsors75 In Memoriam97 2 PRESIDENT’S REPORT SUPPLEMENT 21 October 2013 Dear Friends, My Friesen Prize address in Ottawa last month featured the title “The Power of an Idea to Bring Ideas to Power.” The idea was the creation of the National Academy of Sciences 150 years ago and later its several constituent organizations, most recently the Institute of Medicine (IOM) in 1970. Embedded in this idea was the establishment of an independent organization, based on science and evidence, comprising experts who volunteer their time and knowledge in service to the public. Bringing ideas to power means both bringing ideas to policy makers and bringing ideas into being, so they can have a positive effect on the world. In this final year of my service as president of the IOM, I cannot help but be struck by the manifold ways in which the IOM contributes to health. The work of the IOM over the past year demonstrates the scope of our undertakings, the importance and timeliness of what we accomplish, the innovativeness of our staff, the dedication and will to service of our members and other experts, and the generosity of our sponsors and supporters. This annual report supplement helps to show the richness of these contributions, covering the content of our program across the several IOM boards, a financial profile of our program, a listing of our donors, and a memorial page of members who died in the last 12 months. In describing the ways in which the IOM contributed to advising the nation and improving health during the past year, I find it helpful to distinguish eight distinct though intersecting ways the IOM makes a positive difference. The remainder of this letter selectively describes a few of the IOM’s projects and reports grouped according to the eight broad purposes of our work. An appendix to this letter contains a complete categorical and chronological listing of more than 60 reports and workshop summaries released during the past 12 months. 1. Bring new insights to longstanding problems Violence remains a major public health problem worldwide, with many low- and middle-income countries experiencing the greatest burdens. In making the science of violence the topic for this year’s Annual Meeting, the IOM recognizes the need for ongoing work on this subject. Through the Forum on Global Violence Prevention, the IOM has taken up the challenge of reducing violence across the world. The forum promotes research on protective and risk factors of violence, encourages evidencebased prevention efforts, and facilitates dialogue by convening experts from all areas of violence prevention. Recently, the IOM has convened three workshops on the topic of violence: • Contagion of Violence – Workshop Summary. Although violence was once thought to be inevitable, it is now understood to be frequently preventable. Violent acts often occur in clusters, spread from place to place, and develop similarly to disease epidemics. The workshop covered the epidemiology of violence, possible processes and mechanisms by which violence is LETTER FROM THE PRESIDENT 3 transmitted, mitigating factors in the spread of violence, and ways in which the contagion of violence might be interrupted. • Elder Abuse and Its Prevention – Workshop Summary. Elder abuse is a global public health and human rights concern, magnified by the growing proportion of the population aged 65 and older. The problem has strong implications for the health care, social welfare, justice, and financial systems. The 2-day workshop on elder abuse and its prevention used an ecological framework to examine the burden of elder abuse around the world, its impacts on individuals, families, and communities, and its co-occurrence with other types of abuse. • The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop Summary. This workshop explored the evidentiary base for violence prevention across many stages of life and in many cultures, highlighting preventive interventions that have been shown to reduce certain types of violence and ways in which demonstrably effective interventions can be adopted and implemented in different cultural contexts. 2. Confront controversial questions of science and policy Despite evidence of the overwhelming benefit of immunizations relative to risk, some parents choose not to have their children vaccinated because of concerns about vaccine safety. The Department of Health and Human Services (HHS) asked the IOM to examine the performance and safety of the entire childhood immunization schedule. Of the dozens of IOM studies of immunization safety, this was the first to cast such a broad net. In Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and Future Studies, the committee examined 158 putative effects of immunization. The committee found sufficient evidence to favor the absence of an effect to allay some serious concerns, such as the putative relation of autism to immunization. In a few instances, such as anaphylaxis, vaccines can rarely cause severe reactions. In most instances, although the evidence was insufficient to support a strong conclusion to exclude the possibility of an effect related to vaccine, the committee found little indication that most of the examined adverse effects bore any relation to the immunization schedule. The tragic problem of contaminated drugs captured national attention in late 2012 when injectable steroid drugs produced by a compounding pharmacy in Massachusetts sickened more than 600 people, killing 44 of them. Although such incidents are rare in the United States, they are much more common in poor countries with weak regulatory oversight. Tackling the problem will require international cooperation, but controversy among various stakeholders has hampered coordinated efforts. The IOM report Countering the Problem of Falsified and Substandard Drugs, commissioned by the Food and Drug Administration, assesses the global public health implications of falsified, substandard, and counterfeit drugs to help jumpstart international discourse about the problem. The committee described factors that permit or encourage the production of bad drugs and outlined steps governments and manufacturers can take to ameliorate the problem. In August, the IOM co-hosted a dissemination workshop with the Tanzania Food and Drugs Authority to share the messages from the report and discuss potential ways to combat counterfeit and substandard drugs. 4 PRESIDENT’S REPORT SUPPLEMENT Geographic variation in health care costs and outcomes has long been an active subject of policy debate. Some members of Congress, mainly from states where costs are relatively low, had raised the idea of adjusting Medicare payments to reward regions where costs are relatively low and outcomes are relatively good. If such policies were adopted, many billions of dollars could be redirected. Congress asked the IOM to examine the issue, and the IOM committee’s comprehensive and detailed assessment was presented in Variation in Health Care Spending: Target Decision Making, Not Geography. The subtitle conveys the essence of the message. The committee found that variation in costs persisted regardless of the size of the regions being compared. For Medicare patients, 70 percent of variation in costs was attributable to differences in post-acute care. For privately-insured patients, 70 percent of variation was attributable to differences in unit prices. Doctors and institutions, not locations per se, determine costs, and paying more to relatively better-performing regions would wrongly punish efficient performers in costly regions and wrongly reward inefficient performers in low-cost regions. Sometimes, as in the case of this report, the IOM redirects policy makers’ attention to more appropriate frames of reference for sound policy. The report also helps to reconcile seemingly contradictory results in previous studies of cost variation across Medicare and privately-insured patients by showing that the primary drivers of variation differ in the two cases. 3. Illuminate topics that demand notice Adequate preparation for a catastrophic event is a difficult but critically important task that can save lives during an emergency. Recent work by the IOM has highlighted the importance of including the public in the decision-making process for disaster preparedness. Earlier this year, the Forum on Medical and Public Health Preparedness for Catastrophic Events convened a workshop to provide practitioners with guidance and key principles of public engagement. The themes and presentations from the workshop are summarized in Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary. Childhood obesity threatens the health of future generations, and one key driver of obesity is the spread of sedentary behaviors. At the request of the Robert Wood Johnson Foundation, the IOM convened a committee to examine the state of physical activity in schools and propose steps to help students become more active. The committee’s report, Educating the Student Body: Taking Physical Activity and Physical Education to School, recommends a “whole-of-school” approach to better incorporate physical education and activity into school programs. In addition to the report, the IOM created a short, animated video to extend the key messages from the report to a broad audience, including students, educators, and parents (available at www.iom.edu/studentbodyvideo). To continue the conversation about the importance of physical activity, the IOM co-hosted a webinar with the President’s Council on Fitness, Sports, and Nutrition to discuss implementation of the report recommendations and ways to incorporate physical education and activity into schools. Approximately 80 million adults in the United States have low health literacy, or a limited ability to obtain, process, and understand basic health information. Low health literacy makes it difficult for people to communicate with physicians and to be active participants in the health care system. The IOM’s Roundtable on Health Literacy identifies approaches to promote health LETTER FROM THE PRESIDENT 5 literacy, often through discussions at workshops. Because low health literacy is a problem in many countries, one recent workshop, captured in Health Literacy: Improving Health, Health Systems, and Health Policy Around the World – Workshop Summary, focused on international health literacy efforts. Impact from the work of the roundtable includes • The IOM discussion paper “Let’s Ask 4: Questions for Consumers and Providers About Health Insurance” was listed as a key resource on the American Library Association’s webpage about the Affordable Care Act, along with resources from the Centers for Medicare & Medicaid Services and other organizations. The paper was also featured on the NPR blog as a “jargon buster” to help consumers wade through information about insurance plans. • Health Literacy Consulting (HLC) founder and president Helen Osborne provided a testimonial about the IOM’s Roundtable on Health Literacy in the August 2013 issue of the HLC newsletter: “I have learned so much from attending public meetings of the IOM’s Health Literacy Roundtable. And by reading many, if not all, of their discussion and commissioned papers. You can learn this way, too.” In response to many high-profile mass shootings, in January 2013 President Barack Obama issued 23 executive orders directing federal agencies to find ways to reduce the toll of firearm-related violence. One of these orders directed the Centers for Disease Control and Prevention (CDC) to work to identify the most pressing problems in firearm violence research. The CDC turned to the IOM and the National Research Council (NRC) to develop a potential research agenda. In Priorities for Research to Reduce the Threat of Firearm-Related Violence, the IOM/NRC committee proposed a research framework focused on five high-priority areas: (1) the characteristics of gun violence, (2) risk and protective factors, (3) prevention and other interventions, (4) gun safety technology, and (5) the influence of video games and other media on firearm violence. Tobacco use is clearly associated with the development of 18 different types of cancer. In addition, tobacco use accounts for at least 30 percent of all cancer deaths and 80 percent of lung cancer deaths. Despite the mountain of evidence portraying the deleterious health effects of tobacco, the rate of decline of tobacco use has slowed in recent years, and new tobacco and nicotine products have entered the market. The IOM’s National Cancer Policy Forum convened a workshop to consider current challenges in tobacco control and possible new avenues for action, as described in Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary. Despite being one of the wealthiest nations in the world and spending much more on health care per person than any other country, the United States is far from being the healthiest. In fact, Americans are now, on average, dying at younger ages than people in almost all other high-income countries. To better understand this disturbing phenomenon, the National Institutes of Health (NIH) and HHS asked the NRC and the IOM to investigate potential reasons for the U.S. health disadvantage and assess its larger implications. The committee’s report, U.S. Health in International Perspective: Shorter Lives, Poorer Health, compares the United States with 16 other affluent nations, providing the first comprehensive multi-country survey of multiple diseases, injuries, and behaviors across the lifespan. No single factor can fully explain the U.S. health disadvantage; there 6 PRESIDENT’S REPORT SUPPLEMENT are likely multiple causes, including inadequate health care, unhealthy behaviors, and adverse economic and social conditions. To improve U.S. health standings, the report recommends a dedicated effort to pursue established national health objectives. Without action to alter current trends, there is no reason to expect that the health of Americans will stop falling further behind that of people in other high-income countries. 4. Attend to needs of vulnerable populations This year, the IOM extended its commitment to tackling health problems that affect members of the military, veterans, and their families. More than 2.2 million troops fought in Iraq and Afghanistan. Some returned home with few difficulties, but many are experiencing service-related health conditions and struggling with readjustment after deployment. Following a congressional request, the IOM conducted a study of the physical and mental health and other readjustment needs of returning troops. Returning Home from Iraq and Afghanistan: Assessment of Readjustment Needs of Veterans, Service Members, and Their Families presents the study committee’s comprehensive assessment and provides a detailed action plan that the Department of Defense (DoD) and the Department of Veterans Affairs (VA) can follow to facilitate successful transitions to postdeployment life. One of the most devastating service-related health conditions is traumatic brain injury (TBI), a common outcome of improvised explosive device attacks in Iraq and Afghanistan. The IOM released a report in 2011 about a form of treatment for TBI called cognitive rehabilitation therapy (CRT), in which the committee determined that there is some evidence about the value of CRT, but not enough to develop definitive guidelines about its application. As a follow-up to the report, the IOM conducted a workshop to explore how research can best advance the science of CRT and understand its value in treating service members and veterans with TBI. The workshop discussions are captured in Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model Study Protocols and Frameworks to Advance the State of the Science – Workshop Summary. Another vulnerable population the IOM focused on in 2013 was children, especially those experiencing some form of abuse, neglect, or exploitation. At the request of HHS, the IOM and the NRC conducted a comprehensive assessment of the scope of child abuse and neglect and research on the topic in order to update the IOM’s landmark 1993 report Understanding Child Abuse and Neglect. The new report, New Directions in Child Abuse and Neglect Research, concludes that the past 20 years have seen an explosion in research on child abuse and neglect and increased attention to this topic by government and private organizations. Despite these gains, the committee found that child neglect and abuse remain a serious public health problem and recommended an immediate, coordinated research response from the federal government. To help spread the messages from this report more widely, the IOM developed an infographic that defines abuse and neglect and conveys staggering statistics about the scope of the problem (available at www.iom.edu/childmaltreatment). In addition, the IOM is planning a larger communications effort that will include a video and a regional meeting to inform stakeholder groups about the findings. LETTER FROM THE PRESIDENT 7 Another recent report focused on commercial sexual exploitation and sex trafficking of minors in the United States, two especially abhorrent forms of child abuse. Carried out at the request of the Department of Justice, the study found that commercial sexual exploitation and sex trafficking of minors are serious problems with immediate and long-term adverse consequences for victims, their families, and society that are not given enough priority in domestic policies. In Confronting Sexual Exploitation and Sex Trafficking of Minors in the United States, the committee noted that, despite the serious nature of these crimes, efforts to prevent, identify, and respond to them are largely under-supported, inefficient, uncoordinated, and unevaluated. The IOM/NRC report offers recommendations to thwart commercial sexual exploitation and sex trafficking of minors in the United States, new legislative approaches, and a research agenda. To increase awareness of this problem and highlight the committee’s recommendations, the IOM developed an animated video in conjunction with the report (available at www.iom.edu/sextraffickingminorsvideo). Future plans to communicate the report’s findings include creation of an infographic to visually depict the committee’s recommendations, as well as development of user guides for various stakeholder groups to help them better understand how to prevent sexual exploitation and sex trafficking of minors. 5. Conduct evaluations that guide current and future programs The President’s Emergency Plan for AIDS Relief (PEPFAR), an international aid program designed to enable partner countries to deliver HIV services and prevent the spread of HIV/AIDS, was enacted in 2003 and reauthorized in 2008. When the program was reauthorized, Congress asked the IOM to review the initiative’s performance and its impact on health in PEPFAR partner countries and to recommend strategies to improve the U.S. government’s global response to HIV/AIDS. The comprehensive study, Evaluation of PEPFAR, concluded that PEPFAR has been globally transformative and should help both the U.S. Department of State and partner countries set strategic priorities for investment in HIV/AIDS prevention and services. To build on the momentum of this report, the IOM developed a short, digital quiz about the report’s key messages (available at www.iom.edu/pepfar2). In addition, the IOM created an online “interactive experience” that demonstrates the challenges and complex choices faced by people across the world as they navigate the continuum of HIV-related services in PEPFAR-funded countries. The interactive experience provides an innovative way for individuals to learn more about the barriers people encounter as they endeavor to access HIV/AIDS treatment and services and improve their health (available at www.iom.edu/pepfargame). Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations examines the performance of the newly-established Captain James A. Lovell Federal Health Care Center (FHCC), a jointly-operated facility of the DoD and the VA intended to increase efficiency for veterans and military personnel in Illinois and Wisconsin by replacing two independently-operated centers. The Lovell FHCC was envisioned as an unprecedented, state-ofthe-art facility that would expand access to an array of medical services for service members and veterans and integrate clinical and administrative services under a single line of authority. The DoD asked the IOM to undertake a study of whether the Lovell FHCC actually improves access, 8 PRESIDENT’S REPORT SUPPLEMENT quality, and cost, as compared to the performance of the original separate facilities. The report identifies lessons learned and obstacles uncovered during the initial implementation of the Lovell FHCC and recommends the development of a comprehensive evaluation plan that will objectively judge the success or failure of the center going forward. The IOM undertook an important evaluation in 2013 related to stem cell research in California. The California Institute for Regenerative Medicine (CIRM), established in 2005, has carried out its stem cell research mission at an ambitious pace since its creation. Now, to keep up with rapid scientific advances, CIRM must transition its scientific program and restructure the organization’s priorities to help speed the transformation of promising stem cell therapies into medicines that can directly benefit patients. The California Institute for Regenerative Medicine: Science, Governance, and the Pursuit of Cures is the report of an IOM committee tasked with independently reviewing CIRM’s programs, operations, and strategies. The committee recommended improvements to CIRM’s governance structure and scientific program and suggested policies that will better position CIRM to realize the clinical benefits of regenerative medicine and build a sustainable, long-lasting research program. Following the release of the report, CIRM’s governing board voted to endorse an organizational framework that incorporates many of the committee’s recommendations. Earlier in 2013, the IOM completed an evaluation of the Clinical and Translational Science Awards (CTSA) Program, which is overseen by the National Center for Advancing Translational Sciences (NCATS) at the NIH. The CTSA program is designed to speed the transfer of basic and clinical research findings into clinical and community practice. The report committee reviewed the program’s mission and strategic goals, evaluated its performance, and assessed the effectiveness of NCATS in managing it. In its report, The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research, the committee found that the CTSA program is contributing significantly to advancing clinical and translational research and recommended a number of revisions that could make the program even more efficient and effective. On the day the report was released, the director of NCATS released a statement indicating plans to immediately implement the IOM committee’s recommendations and to convene a working group to advise during implementation. Continuing a long history of assisting the federal government by evaluating its programs, the IOM and the NRC considered whether it is feasible to objectively determine the adequacy of allotments provided under the Supplemental Nutrition Assistance Program (SNAP). SNAP is administered by the Department of Agriculture and aims to improve participants’ food security and their access to a healthful diet. In Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy, the IOM/NRC committee concluded that the adequacy of allotments can be defined and recommended a variety of factors that should be considered during the definition process. 6. Develop standards to protect health Many recent efforts have focused on improving the quality and cost-effectiveness of day-to-day health care, but these health care and public health systems must also be able to operate during and after a major disaster. The IOM has conducted a series of studies about crisis standards of LETTER FROM THE PRESIDENT 9 care that are intended to guide providers in allocating limited resources in a fair and equitable way in the event of a disaster. In the most recent report on this topic, Crisis Standards of Care: A Toolkit for Indicators and Triggers, an IOM committee examined indicators and triggers that guide transitions from pre-disaster standards to crisis standards of care and back again. The report contains a practical discussion toolkit to help stakeholders customize these indicators and triggers to their local contexts. Building on this series of reports, the HHS Office of the Assistant Secretary for Preparedness and Response launched the Communities of Interest for Crisis Standards of Care and the Allocation of Scarce Resources website in June. The website features the IOM’s Crisis Standards of Care reports and the IOM Preparedness Forum’s workshop series on the same topic as resources to help communities learn more about crisis standards of care and the allocation of scarce resources. Work over the past year has focused on a variety of standards intended to improve individual and population health. One recent workshop convened by the Forum on Drug Discovery, Development, and Translation brought together experts to discuss the increasing demand for globally harmonized, science-based standards for the development and evaluation of medical products. The workshop discussions, compiled in International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary, explored principles, potential approaches, and strategies to advance the development of more coordinated regulatory standards. Another workshop focused on the merits and potential uses of a set of national nutrition education curriculum standards and learning objectives that could be used in elementary and secondary schools. Such standards would help make schools a focal point for obesity prevention – a key recommendation in the 2012 IOM report Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation. Workshop themes are captured in Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary. The IOM also undertook the challenging task of integrating measures of public health system performance and measures of individual and population health. In its report, Toward Quality Measures for Population Health and the Leading Health Indicators, the IOM committee laid out an integrated logic model for health metrics. The report demonstrates how this can guide the development of informative, timely, and actionable measures through four case illustrations in the domains of tobacco; maternal, infant and child health; environmental quality; and nutrition, physical activity, and obesity. 7. Foster innovative approaches to improve health and health care The IOM has conducted a number of studies and workshops that explore a variety of novel approaches to improving health. Technology-driven assistive and adaptive products have improved quality of life and have the potential to increase the number of disability-free years for many individuals. In December 2012, the IOM/NRC Forum on Aging, Disability, and Independence convened a workshop to examine the ways in which technological innovations can facilitate independence and healthy aging. The workshop discussions are summarized in Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop Summary. 10 PRESIDENT’S REPORT SUPPLEMENT Innovation also is key to continuous improvement of health professional education, a topic central to the work of the Global Forum on Innovation in Health Professional Education. During the past century, there have been myriad changes with regard to the health professions, the settings in which health professionals work, a shifting burden of disease, and technological advances that are transforming the health and educational systems. A 2012 workshop, summarized in Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models across the Continuum of Education to Practice – Workshop Summary, provided an opportunity for experts to discuss new models for educating health professionals that better reflect the current fiscal exigencies, technologies, organizational forms, and patient needs. Empowering patients and families to become active partners in their health care – a seemingly simple yet surprisingly multifaceted concept to implement – is another example of an innovative approach to health care being considered at the IOM. Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement – Workshop Proceedings details discussions from a February workshop convened by the Roundtable on Value & Science-Driven Health Care to explore more active patient engagement in health care. The workshop built on the ongoing work of the roundtable to achieve better care at lower costs and to create a continuously learning and improving health system. To disseminate the workshop themes more broadly, the IOM created a video and a brochure with information about how to establish more active partnerships for personal health and improve health system performance (available at www.iom.edu/partneringwithpatients). The IOM first examined priorities for new vaccine development in the mid-1980s and again in the 1990s. These previous efforts produced a list of priorities based on criteria including the then-current burden of disease and the state of technology. These reports inevitably became out of date as research progressed, new conditions emerged, and the burden of disease evolved. In a break from the traditional report model, the IOM recently undertook a pioneering, multiphase study to develop a vaccine prioritization software tool that utilizes decision science and modeling to help inform choices among potential candidates for vaccine development. The phase two report, Ranking Vaccines: A Prioritization Software Tool – Phase II: Prototype of a Decision-Support System, lays out a functional version of the SMART Vaccines (Strategic Multi-Attribute Ranking Tool for Vaccines) version 1.0 software that takes into account numerous factors influencing prioritization, including demographic, economic, scientific, and business considerations. Along with the report, the IOM developed a video that demonstrates the use of the new software (available at www.nap.edu/ smartvaccines). Telehealth is a maturing concept in health care delivery, with enormous potential to extend the reach of the traditional delivery model. A workshop convened in 2012 and summarized in The Role of Telehealth in an Evolving Health Care Environment – Workshop Summary brought together experts to consider the ways in which telehealth technology fits into the existing health care system. Specifically, participants discussed the potential for telehealth to help geographically isolated individuals access care and more efficiently utilize limited resources. LETTER FROM THE PRESIDENT 11 8. Design blueprints to meet health needs Approximately 14 million people in the United States have been diagnosed with cancer and more than 1.6 million new cases will be diagnosed this year. Although every patient deserves to receive the highest quality of cancer care, that goal has yet to be achieved. More than a decade after it first studied the topic, the IOM convened a panel of experts once again to examine the quality of cancer care in the United States and recommend improvements to the system. In Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis, the committee cited growing demand for cancer care, increasing treatment complexity, workforce shortages, and growing costs as reasons for the critical state of the cancer care delivery system today. Across-the-board changes are necessary among all stakeholders to improve the quality of life and health outcomes for cancer patients. To illustrate the need for change, the IOM created a video that describes the cancer care system from the perspectives of four patients battling the disease (available at www.iom.edu/qualitycancercarevideo). In addition, the IOM developed a document that outlines questions all patients should discuss with their cancer care providers in to ensure that they receive the best possible care (available at www.iom. edu/cancerquestions). Also in 2013, the IOM examined ways to accurately monitor the scope of the HIV/AIDS epidemic and the availability and success of treatment and prevention programs in the United States. The combination of the National HIV/AIDS Strategy (NHAS) released in 2010 and provisions in the Affordable Care Act (ACA) that expand access to treatment will likely lead to an increase in the number of people seeking care. Therefore, it is more important than ever for the federal government to be able to track the scope of the epidemic and assess its treatment and prevention efforts using accurate data. Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage is the second report from an IOM committee tasked by the White House Office of National AIDS Policy to help develop a monitoring plan. In its report, the committee noted that an improved monitoring system will allow for assessment of the effects of NHAS and the ACA on people with HIV/AIDS and will help inform future programs and resource allocations. Each of these reports makes a difference, and their cumulative contribution is considerable. In each case, the goal is to move beyond illuminating a topic to demonstrate the ways in which policy and practice can make real and lasting improvements in health. In order to make our work even more readily accessible, we have refreshed the look of our website to make it more engaging and easy to use. I invite you to visit the IOM website at www.iom.edu, where you will notice a more modern design that features compelling use of photos, a cleaner header and footer, and a more prominent placement of the meetings section to give the web visitor one-click access to information on meetings at the IOM. The IOM is a unique resource for our nation as the health arm of the National Academy of Sciences, independent of government and yet closely connected—metaphorically, I say, “at arm’s length and tightly clasped.” We advance in relevance and recognition insofar as we meet genuine needs to solve health problems, point the way to sounder policies, promote the public’s health, and 12 PRESIDENT’S REPORT SUPPLEMENT guide institutional and professional practice in the service of patients. I believe we do all this and more by virtue of the commitment and desire for public service of our members and expert volunteers, the extraordinary skill and dedication of our staff, and the generous support of our sponsors and donors. Our best days, I am sure, lie ahead. Sincerely, Harvey V. Fineberg, M.D., Ph.D. APPENDIX TO LETTER 13 Eight Purposes of Recent IOM Reports 1. Bring new insights to longstanding problems • An Update on Research Issues in the Assessment of Birth Settings – Workshop Summary • Contagion of Violence – Workshop Summary • Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary • Elder Abuse and Its Prevention – Workshop Summary • Neurodegeneration: Exploring Commonalities Across Diseases – Workshop Summary • Public Health Linkages with Sustainability – Workshop Summary • The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop Summary 2. Confront controversial questions of science and policy • Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and Future Studies • Countering the Problem of Falsified and Substandard Drugs • Environmental Decisions in the Face of Uncertainty Variation in Health Care Spending: Target Decision Making, Not Geography • Geographic Variation in Health Care Spending and Promotion of High-Value Care – Interim Report • Health Impact Assessment of Shale Gas Extraction – Workshop Summary • Population Health Implications of the Affordable Care Act – Workshop Summary • Sodium Intake in Populations: Assessment of Evidence • Variation in Health Care Spending: Target Decision Making, Not Geography 3. Illuminate topics that demand notice • Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop Summary • Educating the Student Body: Taking Physical Activity and Physical Education to School • Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary • Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress • Exploring Health and Environmental Costs of Food – Workshop Summary • Global Development Goals and Linkages to Health and Sustainability – Workshop Summary • Health Literacy: Improving Health, Health Systems, and Health Policy Around the World – Workshop Summary 14 PRESIDENT’S REPORT SUPPLEMENT • The Human Microbiome, Diet, and Health – Workshop Summary • Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public Health Considerations for Neighboring Jurisdictions – Workshop Summary • Oral Health Literacy – Workshop Summary • Organizational Change to Promote Health Literacy – Workshop Summary • Priorities for Research to Reduce the Threat of Firearm-Related Violence • Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary • The Social Biology of Microbial Communities – Workshop Summary • U.S. Health in International Perspective: Shorter Lives, Poorer Health 4. Attend to needs of vulnerable populations • Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model Study Protocols and Frameworks to Advance the State of Science – Workshop Summary • Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records – Workshop Summary • Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States • Gulf War and Health: Treatment for Chronic Multisymptom Illness • Improving the Health, Safety, and Well-Being of Young Adults – Workshop Summary • New Directions in Child Abuse and Neglect Research • Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and Their Families 5. Conduct evaluations that guide current and future programs • A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s Front Line • Evaluation of PEPFAR • Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations • Future Uses of the Department of Defense Joint Pathology Center Biorepository • Review of the Department of Labor’s Site Exposure Matrix Database • Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy • The California Institute for Regenerative Medicine: Science, Governance, and the Pursuit of Cures • The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research APPENDIX TO LETTER 15 6. Develop standards to protect health • An Integrated Framework for Assessing the Value of Community-Based Intervention • Crisis Standards of Care: A Toolkit for Indicators and Triggers • International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary • Leveraging Action to Support Dissemination of Pregnancy Weight Gain Guidelines – Workshop Summary • Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary • Toward Quality Measures for Population Health and the Leading Health Indicators 7. Foster innovative approaches to improve health and health care • Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop Summary • Improving the Utility and Translation of Animal Models for Nervous System Disorders – Workshop Summary • Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models across the Continuum of Education to Practice – Workshop Summary • Large Simple Trials and Knowledge Generation in a Learning Health System – Workshop Summary • Observational Studies in a Learning Health System – Workshop Summary • Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement – Workshop Proceedings • Ranking Vaccines: A Prioritization Software Tool – Phase II: Prototype of a Decision-Support System • Sharing Clinical Research Data – Workshop Summary • Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate Information for Public Health Officials – Workshop Summary • The Economics of Genomic Medicine – Workshop Summary • The Role of Telehealth in an Evolving Health Care Environment – Workshop Summary • The Science and Applications of Microbial Genomics – Workshop Summary • Strengthening Human Resources Through Development of Candidate Core Competencies for Mental, Neurological, and Substance Use Disorders in Sub-Saharan Africa – Workshop Summary • Transdisciplinary Professionalism for Improving Health Outcomes – Workshop Summary 16 PRESIDENT’S REPORT SUPPLEMENT 8. Design blueprints to meet health needs • Best Care at Lower Cost: The Path to Continuously Learning Health Care in America • Core Measurement Needs for Better Care, Better Health, and Lower Costs: Counting What Counts – Workshop Summary • Delivering Affordable Cancer Care in the 21st Century – Workshop Summary • Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis • Implementing a National Cancer Clinical Trials System for the 21st Century – Second Workshop Summary • Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage 17 DEGREES OF IMPACT Institute of Medicine Degrees of Impact Effecting Change Inspiring Action Informing the Field Receiving Recognition Spreading the Message Improved Health Outcomes Legislation Enacted Designation of Funding/Appropriations Policy Change, Including Organizational Policy Development/Revision of Guidelines Legislation Introduced Development of Action Group/Task Force Advocacy Initiatives Research Initiative Implemented Basis of RFA/RFP Educational Efforts Subject of a Professional Meeting Subject of a Congressional Hearing/Investigation Formal Response (Agency, Sponsor, Stakeholder) Awards Noteworthy Media Coverage Published Article in Journal 18 PRESIDENT’S REPORT SUPPLEMENT Institute of Medicine Organizational Chart President Interim Home Secretary Foreign Secretary Harvey V. Fineberg Harold J. Fallon Jo Ivey Boufford Executive Office The Interim Leonard D. Schaeffer Executive Officer Clyde J. Behney Office of Finance and Administration Janet A. Stoll Director Deputy Executive Officer Clyde J. Behney Office of Council and Membership Services Judith Shamir Director Office of Development Clare Flanagan Director of Development Office of Communications Abbey Meltzer Interim Director of Communications Boards Population Health and Public Health Practice Rose Marie Martinez Director Health Sciences Policy Health Care Services Andrew M. Pope Director Roger C. Herdman Director Global Health Food and Nutrition Patrick W. Kelley Director Ann L. Yaktine Interim Director Children, Youth, and Families Kimber Bogard Director African Science Academy Development Patrick W. Kelley Director Health of Select Populations Rick Erdtmann Director Health Policy Educational Programs and Fellowships Marie Michnich Director Roundtables, Forums, and Other Select Activities Food Forum Forum on Aging, Disability, and Independence Forum on Drug Discovery, Development, and Translation Forum on Global Violence Prevention Forum on Investing in Young Children Globally Forum on Medical and Public Health Preparedness for Catastrophic Events Forum on Microbial Threats Forum on Neuroscience and Nervous System Disorders Forum on Promoting Children’s Cognitive, Affective, and Behavioral Health Roundtable on Environmental Health Sciences, Research, and Medicine Forum on Public–Private Partnerships for Global Health and Safety Roundtable on Obesity Solutions Global Forum on Innovation in Health Professional Education A Healthy America Health Data Consortium Health Literacy Roundtable Medical Follow-Up Agency National Cancer Policy Forum Roundtable on Population Health Improvement Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities Roundtable on Translating Genomic-Based Research for Health Roundtable on Value & Science-Driven Health Care PRESIDENT’S OFFICE AND EXECUTIVE OFFICE STAFF Institute of Medicine Office of the President Harvey V. Fineberg, President Sherla Allen, Executive Assistant Morgan Heller, Assistant to the President for Special Projects Executive Office Clyde J. Behney, The Interim Leonard D. Schaeffer Executive Officer K. Corrin Merritt, Executive Assistant Clyde J. Behney, Deputy Executive Officer Erika Vijh, Senior Program Assistant Office of the Home Secretary Harold J. Fallon, Interim Home Secretary Office of the Foreign Secretary Jo Ivey Boufford Office of Council and Membership Services Judith Shamir, Director Donna D. Duncan, Deputy Director Office of Reports and Communications Abbey Meltzer, Interim Director Office of Finance and Administration Janet A. Stoll, Director Anton Bandy, Deputy Director Office of Development Clare Flanagan, Director 19 20 PRESIDENT’S REPORT SUPPLEMENT Recent Publications Elder Abuse and Its Prevention – Workshop Summary (October 18, 2013) The Evidence for Violence Prevention Throughout the Lifespan and Around the World – Workshop Summary (October 15, 2013) Organizational Change to Promote Health Literacy – Workshop Summary (October 15, 2013) Population Health Implications of the Affordable Care Act – Workshop Summary (October 7, 2013) Transdisciplinary Professionalism for Improving Health Outcomes – Workshop Summary (October 7, 2013) Neurodegeneration: Exploring Commonalities Across Diseases – Workshop Summary (October 3, 2013) Ranking Vaccines: A Prioritization Software Tool – Phase II: Prototype of a Decision-Support System (September 30, 2013) Global Development Goals and Linkages to Health and Sustainability – Workshop Summary (September 30, 2013) Improving the Health, Safety, and Well-Being of Young Adults – Workshop Summary (September 27, 2013) Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States (September 25, 2013) A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s Front Line (September 12, 2013) Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis (September 10, 2013) Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate Information for Public Health Officials – Workshop Summary (September 4, 2013) Health Impact Assessment of Shale Gas Extraction – Workshop Summary (August 30, 2013) Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary (August 23, 2013) Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement – Workshop Proceedings (August 15, 2013) RECENT PUBLICATIONS 21 Strengthening Human Resources Through Development of Candidate Core Competencies for Mental, Neurological, and Substance Use Disorders in Sub-Saharan Africa – Workshop Summary (August 14, 2013) Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress (August 2, 2013) International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary (August 1, 2013) Crisis Standards of Care: A Toolkit for Indicators and Triggers (July 31, 2013) Variation in Health Care Spending: Target Decision Making, Not Geography (July 24, 2013) Public Health Linkages with Sustainability – Workshop Summary (July 19, 2013) Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary (July 15, 2013) Implementing a National Cancer Clinical Trials System for the 21st Century – Second Workshop Summary (July 15, 2013) Health Literacy: Improving Health, Health Systems, and Health Policy Around the World – Workshop Summary (July 12, 2013) Toward Quality Measures for Population Health and the Leading Health Indicators (July 9, 2013) Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public Health Considerations for Neighboring Jurisdictions – Workshop Summary (July 9, 2013) The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research (June 25, 2013) Core Measurement Needs for Better Care, Better Health, and Lower Costs: Counting What Counts – Workshop Summary (June 24, 2013) Priorities for Research to Reduce the Threat of Firearm-Related Violence (June 5, 2013) Educating the Student Body: Taking Physical Activity and Physical Education to School (May 23, 2013) Sodium Intake in Populations: Assessment of Evidence (May 14, 2013) Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models across the Continuum of Education to Practice – Workshop Summary (May 13, 2013) Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop Summary (April 18, 2013) 22 PRESIDENT’S REPORT SUPPLEMENT The Science and Applications of Microbial Genomics - Workshop Summary (April 3, 2013) Sharing Clinical Research Data - Workshop Summary (March 29, 2013) Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Model Study Protocols and Frameworks to Advance the State of the Science – Workshop Summary (March 29, 2013) Review of the Department of Labor’s Site Exposure Matrix Database (March 27, 2013) Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and Their Families (March 26, 2013) The Economics of Genomic Medicine – Workshop Summary (March 26, 2013) Geographic Variation in Health Care Spending and Promotion of High-Value Care – Interim Report (March 22, 2013) Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop Summary (March 4, 2013) Oral Health Literacy – Workshop Summary (February 21, 2013) Evaluation of PEPFAR (February 20, 2013) Countering the Problem of Falsified and Substandard Drugs (February 13, 2013) Delivering Affordable Cancer Care in the 21st Century – Workshop Summary (February 11, 2013) Environmental Decisions in the Face of Uncertainty (February 8, 2013) Improving the Utility and Translation of Animal Models for Nervous System Disorders – Workshop Summary (February 8, 2013) Gulf War and Health: Treatment for Chronic Multisymptom Illness (January 23, 2013) Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy (January 17, 2013) Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and Future Studies (January 16, 2013) U.S. Health in International Perspective: Shorter Lives, Poorer Health (January 9, 2013) Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records – Workshop Summary (December 20, 2012) RECENT PUBLICATIONS 23 Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary (December 14, 2012) The Social Biology of Microbial Communities – Workshop Summary (December 10, 2012) The California Institute for Regenerative Medicine: Science, Governance, and the Pursuit of Cures (December 6, 2012) The Role of Telehealth in an Evolving Health Care Environment – Workshop Summary (November 20, 2012) Exploring Health and Environmental Costs of Food – Workshop Summary (November 8, 2012) An Integrated Framework for Assessing the Value of Community-Based Prevention (November 2, 2012) Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary (November 1, 2012) The Human Microbiome, Diet, and Health – Workshop Summary (October 24, 2012) Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations (October 16, 2012) Future Uses of the Department of Defense Joint Pathology Center Biorepository (October 10, 2012) Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage (October 5, 2012) Contagion of Violence – Workshop Summary (October 3, 2012) PROGRAM LISTING 25 Board on African Science Academy Development Initiative Patrick W. Kelley, M.D., Director Organized: 2004 The principal goal of the African Science Academy Development Initiative (ASADI) is to advance the ability of nations in Africa to address their most serious health challenges by (1) enhancing the capacity of African academies of science to provide independent, evidence-based policy advice to their governments, and (2) building African governments’ appreciation of and demand for advice from these academies. This 10-year effort engages nationally-based science academies in Cameroon, Ghana, Kenya, Nigeria, Senegal, South Africa, Uganda, and, most recently, Ethiopia. The African regional science academy, the African Academy of Sciences (AAS), and the Network of African Science Academies (NASAC) are also engaged. The specific objectives of this initiative include the following: • Select African academies of science with the greatest promise to provide evidence-based health policy advice; • Provide training for staff members from each participating academy to prepare them to support the conduct of policy advisory activities and manage finances; • Promote continuous discussion and debate of evidence-based policy development in crosscutting areas of health and sustainable development; • Strengthen academy policy advisory capacity through mentored policy advisory activities; • Strengthen substantive, managerial, and fiscal independence of academies of science through support of independent policy advisory activities and financially matched activities; • Develop human, material, and organizational infrastructure in each academy to support the contribution of science to policy advisory work in the future; • Build a regional alliance through annual symposia and learning collaboratives to enable participating academies and leading scientists in non-participating countries to learn from and support each other as they develop their roles; • Develop demand from African governments and civil society organizations for evidencebased policy advice from African academies of science; and • Externally evaluate project outcomes and the effectiveness of the processes used to achieve project outcomes. 26 PRESIDENT’S REPORT SUPPLEMENT Recent Activities Cameroon Academy of Sciences (CAS) The first consensus study undertaken by the Cameroon Academy of Sciences, Recent Advances on Onchocerciasis Research and Advances for Control, was recently published. Also, CAS has localized the IOM report Promoting Cardiovascular Health in the Developing World: A Critical Challenge to Achieve Global Health through the workshop summary Tackling Cardiovascular Diseases/NonCommunicable Diseases in Cameroon. CAS continues to receive subvention from the Cameroonian government. Ethiopian Academy of Sciences (EAS) The main focus for 2013 for the Ethiopian Academy of Sciences is planning and organizing the ninth annual meeting of ASADI, scheduled for early November 2013. In line with this, a planning meeting was held early July 2013 at the Rockefeller Foundation Bellagio Center in Italy. In addition, EAS plans to undertake a consensus study on the establishment of a national research council. The Ministry of Science and Technology of the Federal Democratic Republic of Ethiopia has shown keen interest in the establishment of such a body to enable its recently established National Science, Technology and Innovation Council guide researchers involved in the priority research agenda of Ethiopia. In December 2013, EAS released the publication Status of Health Research in Ethiopia. The EAS was officially chartered in June under Proclamation No. 738/2013. Nigerian Academy of Science (NAS) Following the Academy of Science of South Africa’s example, the Nigerian Academy of Science (NAS) also attained financial independence and “graduated” from the ASADI program in February 2013. Prior to its graduation, in November 2012 NAS successfully hosted the eighth annual ASADI meeting, focusing on climate change in Africa. Uganda National Academy of Science (UNAS) The Uganda National Academy of Science has received support through 2015. Over the past 9 years, UNAS has continued to make positive inroads toward influencing government policy decisions using an evidence-based approach. UNAS has also expanded its national and international stakeholder base and continues its outreach to the media. Current UNAS programs include: • The activities of the Advisory Committee on Vaccines and Immunization (ACVI). The first ACVI policy brief has been published and circulated. Several more briefs are currently being written. • Activities of the Malaria Vaccine Committee. This activity is supported by PATH. • Activities of the Research, Academia Scientists of the Self Coordinating Entity of the Uganda Aids Commission (UAC). This activity is funded by the UAC. PROGRAM LISTING 27 • Activities of the Science Education Committee. The committee is involved developing education policy briefs for the Ministry of Education Management Committee with emphasis on reviewing the curriculum and encouraging science education in Ugandan schools. • Young Scientists Program. Resources have been identified for holding an annual meeting of young scientists. The meeting is scheduled to take place by the end of 2013. • Development of guidelines and standards for UNAS publications by the UNAS Committee on Research and Publications. • Other programs in the pipeline include preparing for Annual Meeting of the African Science Academies (AMASA) 10, the ASADI annual meeting finale; climate change; science education for IAP; environment impact assessment and monitoring and evaluation of mitigation measures for oil extraction. • Working with the government of Uganda for an annual subvention. Academy of Science of South Africa (ASSAf) In 2011, the South Africa participation in the ASADI program ended after attaining their developmental goal of self-sustainability. ASSAf however, continues to play a leadership role in helping develop some academies in the South Africa Development Community (SADC), namely Namibia, Mozambique, Mauritius, and Zimbabwe. 2012 Annual Meeting The eighth annual ASADI meeting (also known as AMASA 8) was held in Lagos, Nigeria, on November 11-14, 2012. The theme for AMASA 8 was Climate Change in Africa: Using Science to Reduce Risks. AMASA 8 focused on the African perspective on issues of adaptation to and mitigation against the risks associated with climate change, especially in the health and agricultural sectors. The meeting brought together policy makers, members of the African science academies as well as academies in Europe and the United States, experts in climate change science, development partners, academia, and civil society organizations. Participants initiated a process for the long-term engagement of African science academies with their governments and relevant stakeholders on climate change issues. In addition, the African science academies issued a joint statement, “Raising the African Voice—Climate Change in Africa: Using Science to Reduce Risks,” which is currently being disseminated. The AMASA 8 conference was co-sponsored by ECOBANK Plc, the Central Bank of Nigeria, the government of Lagos, the Nigerian Geological Survey Agency, the Federal University Ndufa Alike Ikwo in Ebonyi State, the World Bank (STEP-B), the Federal Ministry of Health, and the University of Lagos. 2013 Annual Meeting The ninth annual ASADI meeting (also known as AMASA 9) is scheduled for November 10-14 in Addis Ababa, Ethiopia and will be hosted by the Ethiopian Academy of Sciences. The theme for 28 PRESIDENT’S REPORT SUPPLEMENT AMASA 9 is Biotechnology for Africa’s Development. The meeting is generating a lot of interest from the Bill and Melinda Gates Foundation, the U.S. Agency for International Development (USAID), the U.S. Embassy’s Regional Environment Office in Ethiopia, and other interested stakeholders. Two planning meetings have been held to date, with the last meeting held June 3-7 at the Rockefeller Foundation Bellagio Center, Italy. Board Roster Enriqueta C. Bond (Chair), Marshall, VA Jo Ivey Boufford (Ex Officio, Foreign Secretary, IOM), New York Academy of Medicine, New York, NY Michael Clegg (Ex Officio, Foreign Secretary, National Academy of Sciences), Department of Botany and Plant Sciences, University of California, Riverside Princeton Lyman, Council on Foreign Relations, Washington, DC Narciso Matos, Foundation for Community Development, Maputo, Mozambique Cheikh Mbacké, William and Flora Hewlett Foundation, Dakar, Senegal Romain Murenzi, TWAS–The Academy of Sciences for the Developing World, Trieste, Italy Venkatesh Narayanamurti (Ex Officio, Foreign Secretary, NAE), Harvard School of Engineering and Applied Sciences, Boston, MA Board on Children, Youth, and Families Kimber Bogard, Ph.D., Director Organized: 1993 The Board on Children, Youth, and Families (BCYF) is a nongovernmental, scientific unit within the National Academy of Sciences that convenes top experts from across multiple disciplines to analyze the best available evidence on critical issues facing children, youth, and families today. BYCF’s ability to evaluate research simultaneously from the perspectives of health, education, and the social and behavioral sciences allows it to shed light on innovative and influential solutions to inform the nation. BCYF’s range of methods—from rapidly convened workshops to consensus reports and forums—allows it to respond with the timeliness and depth required to make the largest possible impact on the health and well-being of children, youth, and their families throughout the entire life cycle. BCYF reports are independent analyses of the science that go through a rigorous external peer review process. Therefore, its recommendations are trusted and implemented at every level, from policy makers to practitioners. PROGRAM LISTING 29 Recent Reports 2013 • An Update on Research Issues in the Assessment of Birth Settings – Workshop Summary • Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States • New Directions in Child Abuse and Neglect Research • Leveraging Action to Support Dissemination of Pregnancy Weight Gain Guidelines – Workshop Summary (with Food and Nutrition Board) • Design of the National Children’s Study – A Workshop Summary (with Committee on National Statistics) • Evaluation of PEPFAR (with Board on Global Health) • Improving the Health, Safety, and Well-Being of Young Adults: Workshop Summary • Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary (with Food and Nutrition Board) 2012 •Child Maltreatment Research, Policy, and Practice for the Next Decade – Workshop Summary • From Neurons to Neighborhoods: An Update – Workshop Summary Current Activities/Studies in Progress • Forum on Global Violence Prevention (with Board on Global Health) • Sports-Related Concussions in Youth • Design of the National Children’s Study and Implications for the Generalizability of Results • Standards for Benefit-Cost Analysis of Preventive Interventions for Children, Youth, and Families: A Workshop • The Science of Children Birth to Age 8: Deepening and Broadening the Foundation for Success • Forum on Investing in Young Children Globally • Forum on Promoting Children’s Cognitive, Affective, and Behavioral Health Projects in Development • A Developmental Approach to Childhood Obesity: The Fetal and Early Childhood Years – A Workshop • Fostering Educational and Career Success for English Learners: A Research Agenda to Inform Policy and Practice (Study) 30 PRESIDENT’S REPORT SUPPLEMENT • Increasing Capacity for Reducing Bullying and Its Impact on the Lifecourse of Youth Involved: A Workshop • Parenting in Context – A Workshop • Summertime Experiences and Child and Adolescent Education, Health, and Safety Board Roster Bernard Guyer (Chair), Bloomberg School of Public Health, The Johns Hopkins University, Baltimore, MD Shari Barkin, Monroe Carell Jr. Children’s Hospital, Vanderbilt University, Nashville, TN Thomas F. Boat, College of Medicine, University of Cincinnati, OH W. Thomas Boyce, Faculty of Medicine, University of British Columbia, Vancouver, Canada David A. Brent, Western Psychiatric Institute and University of Pittsburgh School of Medicine, PA David V. B. Britt, Retired CEO, Sesame Workshop Debbie I. Chang, Nemours Health and Prevention Services, Newark, DE Janet M. Currie, Woodrow Wilson School of Public and International Affairs, Princeton University, NJ Patrick H. DeLeon, F. Edward Hebert School of Medicine and the Graduate School of Nursing Uniformed Services University of the Health Sciences, Bethesda, MD Angela Diaz, Department of Pediatrics and Community Preventive Medicine, Mount Sinai School of Medicine, New York, NY Gary W. Evans, Department of Design & Environmental Analysis and Department of Human Development, Cornell University, Ithaca, NY Elena Fuentes-Afflick, University of California, San Francisco, and San Francisco General Hospital Eugene E. Garcia, Mary Lou Fulton Teachers’ College, Arizona State University, Phoenix J. David Hawkins, School of Social Work, University of Washington, Seattle Jacqueline Jones, Early Childhood Education Specialist Ann S. Masten, Institute of Child Development, University of Minnesota, Minneapolis Susan E. Mayer, Harris Graduate School of Public Policy Studies, University of Chicago, IL Velma McBride Murry, Peabody College, Vanderbilt University, Nashville, TN Bruce S. McEwen, The Rockefeller University, New York, NY Pamela Morris, Department of Applied Psychology, The Steinhardt School of Culture, Education, and Human Development, New York University, New York Taha E. Taha, Johns Hopkins University, Bloomberg School of Public Health, Baltimore, MD PROGRAM LISTING 31 Food and Nutrition Board Ann L. Yaktine, Ph.D., RD, Acting Director Organized: 1940 The Food and Nutrition Board (FNB) is a focal point for activities of the IOM concerned with food, nutrition, obesity prevention, and food safety. The primary goals are • To provide visionary leadership in the effective application of the full range of nutrition and food sciences to improve human health; • To contribute at national and global levels to the enhancement of child growth and development; prevention of diet-related deficiencies and chronic diseases; and improvement of physical and cognitive function, health, and well-being; • To decrease the incidence of foodborne diseases to improve human health nationally and globally; and • To apply scientific knowledge to advise on policies and approaches to eliminate, reduce, or control the natural, inadvertent, or intentional contamination of the food supply. Food Forum Leslie Sim and Heather Cook, Co-Directors The Food Forum celebrated its 20th anniversary in 2013. The forum was established in 1993 to allow leaders from the food industry, government, consumer interest groups, and academia to openly discuss food-related issues in a neutral setting. Most recently, the Food Forum has facilitated discussions to promote multisectoral cooperation and innovation around the following topics: • Biomarkers as Indicators of Health • Sustainable Diets: Food for Healthy People and a Healthy Planet • The Future of Performance Standards in Food Safety: Innovation Ahead? • The Human Microbiome, Diet, and Health • Building Public–Private Partnerships in Food and Nutrition • Informing Health and Food Policy Through Systematic, Evidence-Based Reviews • The Impact of Global Trade on Food Safety: Supply Chain and Policy/Regulatory Approaches to Import Safety 32 PRESIDENT’S REPORT SUPPLEMENT Recent Reports 2013 • Leveraging Action to Support Dissemination of the Pregnancy Weight Gain Guidelines – Workshop Summary • Evaluating Obesity Prevention Efforts: A Plan for Measuring Progress • Nutrition Education in the K-12 Curriculum: The Role of National Standards – Workshop Summary • Educating the Student Body: Taking Physical Activity and Physical Education to School • Sodium Intake in Populations: Assessment of Evidence • Challenges and Opportunities for Change in Food Marketing to Children and Youth – Workshop Summary • Supplemental Nutrition Assistance Program: Examining the Evidence to Define Benefit Adequacy 2012 • Exploring Health and Environmental Costs of Food – Workshop Summary • The Human Microbiome, Diet, and Health – Workshop Summary • Fitness Measures and Health Outcomes in Youth • Research Methods to Assess Dietary Intake and Program Participation in Child Day Care: Application to the Child and Adult Care Food Program – Workshop Summary • Building Public-Private Partnerships in Food and Nutrition – Workshop Summary • Alliances for Obesity Prevention: Finding Common Ground – Workshop Summary • Accelerating Progress in Obesity Prevention: Solving the Weight of the Nation • Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad • Nutrition and Healthy Aging in the Community – Workshop Summary • Measuring Progress in Obesity Prevention – Workshop Report 2011 • Front-of-Package Nutrition Rating Systems and Symbols: Promoting Healthier Choices • Updating the USDA Breastfeeding Campaign Work – Workshop Summary • Legal Strategies in Childhood Obesity Prevention – Workshop Summary • Leveraging Food Technology for Obesity Prevention and Reduction Efforts – Workshop Summary • Early Childhood Obesity Prevention Policies • Nutrition and Traumatic Brain Injury: Improving Acute and Subacute Health Outcomes in Military Personnel • Hunger and Obesity: Understanding a Food Insecurity Paradigm – Workshop Summary • Perspectives on Biomarker and Surrogate Endpoint Evaluation – Discussion Forum Summary PROGRAM LISTING 33 Current Activities/Studies in Progress • A Framework for Assessing Health, Environmental, and Social Effects of the Food System • Evaluating Progress of Obesity Prevention Efforts • Food Forum • National Nutrition Education Curriculum Standards Workshop (with Board on Children, Youth, and Families) • Physical Activity and Physical Education in Schools • Potential Health Hazards Associated with Consumption of Caffeine in Food Dietary Supplements: A Workshop • Roundtable on Obesity Solutions • Standing Committee on Childhood Obesity Prevention • Content Coordination for HBO’s The Weight of the Nation for Kids Projects in Development • Developmental Approach to Childhood Obesity: Fetal and Early Childhood Years • Agriculture–Nutrition Metrics • Assessing Safety and Monitoring Chemical Hazards in Foods • Sugar-Sweetened Beverages and Health • 21st-Century Opportunities in Nutrition and Food Sciences: A Workshop • Nutrition and Aging • Promoting Recovery from Traumatic Brain Injury Through Nutrition • Phase III – Implementation of the National Obesity Evaluation Plan • Supplemental Nutrition Assistance Program (SNAP) – Opportunities for Healthy Diets • National Nutrition Education Curriculum Standards Consensus Study Board Roster Suzanne R. Murphy (Chair), Researcher and Professor Emeritus, University of Hawaii Cancer Center, Honolulu Cheryl A. M. Anderson, Assistant Scientist, Department of Epidemiology, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD Patsy M. Brannon, Professor, Division of Nutritional Sciences, Cornell University, Ithaca, NY Fergus M. Clydesdale, Department of Food Science, University of Massachusetts, Amherst, MA 34 PRESIDENT’S REPORT SUPPLEMENT Richard J. Deckelbaum, Institute of Food and Nutrition, Columbia University, New York, NY Sharon M. Donovan, Professor and Melissa M. Noel Endowed Chair in Nutrition and Health, Department of Food Science and Health, University of Illinois, Urbana Lee-Ann Jaykus, Professor, Department of Food, Bioprocessing, and Nutritional Sciences, North Carolina State University, Raleigh Gordon Jensen, Department of Nutritional Sciences, Pennsylvania State University, University Park Joanne R. Lupton, Distinguished Professor, Regents Professor, and University Faculty Fellow, William W. Allen Endowed Chair in Nutrition, Texas A&M University, College Station Susan T. Mayne, Division of Chronic Disease Epidemiology, Yale University School of Medicine, New Haven, CT James M. Ntambi, Professor of Biochemistry, Steenbock Professor and Chair, Department of Nutritional Sciences, University of Wisconsin, Madison Rafael Pérez-Escamilla, Professor of Epidemiology and Public Health, Director, Office of Community Health, Yale School of Public Health, New Haven, CT Martin A. Philbert, Dean and Professor, School of Public Health, University of Michigan, Ann Arbor Mary T. Story, Professor, Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis Patrick J. Stover, Division of Nutritional Sciences, Cornell University, Ithaca, NY Connie M. Weaver, Distinguished Professor and Head, Department of Food and Nutrition, Purdue University, West Lafayette, IN Board on Global Health Patrick W. Kelley, M.D., Director Organized: 1985 Established in 1985, the Board on Global Health (BGH) is concerned with advancing the health of populations worldwide. This involves addressing developing country health issues, enhancing the U.S. role in global health, and addressing health issues that have implications for U.S. health policy. BGH identifies priority issues in these areas and facilitates provision of evidence-based guidance and recommendations to the U.S. government, international organizations, foundations, and nongovernmental organizations. BGH also collaborates with the medical academies in other countries, developed and developing, on health issues of mutual concern. Board members have broad expertise in international health and experience in a range of countries. BGH focuses on public health programs for prevention and control of disease and disability. This includes assessment of biomedical knowledge, research, and opportunities; reduction PROGRAM LISTING 35 of behavioral, socioeconomic, and environmental risks to public health; recognition and guidance on ethical issues in public health; and recognition of opportunities to apply scientific knowledge to public policy making. These activities frequently include addressing the adequacy of the scientific base to support improvements in health and health care, along with the availability of trained personnel, institutional capacity, and supportive partnerships and collaborations. Forum on Microbial Threats Eileen Choffnes, Director The Forum on Microbial Threats was established by the IOM in 1996 to provide a structured opportunity for discussion on topics related to basic and applied research on the prevention, detection, and management of emerging, re-emerging, and novel infectious diseases of humans, plants, and animals and to examine critical—and possibly contentious—scientific and policy issues of shared concern among forum members and the global public health communities.. The forum’s work is broadly categorized in the following interest areas: infectious disease surveillance and response; diagnosis and treatment; research directions and priorities; education and training, and public communication. Since its creation, the issues and challenges of emerging, re-emerging, and novel infectious diseases being explored by the forum continue to be of major global public health importance. The summary reports of forum workshops have highlighted and often anticipated some of the most important infectious disease issues of the past decade. These activities have resulted in many workshop summary reports that are highly relevant to the issue of antimicrobial resistance. Workshops from 2013 to date include Microbial Ecology in States of Health and Disease; Informal Briefing on Emerging Viral Diseases; The Science and Applications of Microbial Genomics: Predicting, Detecting, and Tracking Novelty in the Microbial World; and The Social Biology of Microbial Communities. The public engagement in and responses to the forum’s workshops, publications, and meetings has been considerable, positive, and growing. It is anticipated that the future activities of the Forum on Microbial Threats will build upon its previous work. Through public debate and private consultation, the activities of the forum continue to facilitate discussion and inquiry into cross-cutting sets of challenges within and across the spectrum of microbial threats. Forum on Global Violence Prevention Kimberly Scott, Director The Forum on Global Violence Prevention was established by the IOM and the NRC in July 2010 to explore cross-cutting topics related to the prevention of child and elder abuse, sexual and intimate partner violence, youth and collective violence, and self-directed violence. Since its launch in 2010, the forum and its 30 formally appointed members have promoted multidisciplinary prevention through public workshops on cross-cutting issues in the prevention of violence: • Preventing Violence Against Women and Children • Social and Economic Costs of Violence: The Value of Prevention 36 PRESIDENT’S REPORT SUPPLEMENT • Communications and Technology for Violence Prevention • The Contagion of Violence • Elder Abuse and its Prevention • Evidence for Violence Prevention Across the Lifespan and Around the World The forum has a global scope, with a special emphasis on low- and middle-income countries that highlights bidirectional learning opportunities and emphasizes an evidence-based prevention approach. Global Forum on Innovation in Health Professional Education Patricia Cuff, Director The Global Forum on Innovation in Health Professional Education is a convening activity of the IOM that brings together interested parties to network, discuss and illuminate issues within health professional education. This forum has grown in popularity and membership, which now numbers over 60 members, 45 of whom financially support the forum. These members come from 8 developed and developing countries and represent 18 health professions within government, academia, foundations, and educational associations. Established in 2012, the Global Forum has remained true to its guiding principles that forum members established at their first gathering. These principles emphasize engaging students, being patient- and person-centered, and creating an environment of learning with and from partners outside the United States. Twice per year, forum members gather to attend workshops on various topics that can form the basis for actionable next steps. The forum’s first and second workshops looked at interprofessional education (IPE) with a particular focus on how IPE programs can and do form better linkages between education and practice. Building upon the foundation laid in the IPE workshop series, the forum then hosted a workshop on professionalism and whether it might be possible for the health professions to come together as one and collectively discuss establishing a social contract with society. The next two workshops of the forum will explore health professional education and the future of health professional education. Recent Reports 2013 • Interprofessional Education for Collaboration: Learning How to Improve Health from Interprofessional Models Across the Continuum of Education to Practice – Workshop Summary • The Science and Applications of Microbial Genomics – Workshop Summary • Evaluation of PEPFAR • Countering the Problem of Falsified and Substandard Drugs PROGRAM LISTING 37 2012 • Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad • Improving Food Safety Through a One Health Approach – Workshop Summary • Communications and Technology for Violence Prevention – Workshop Summary • Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad • Country-Level Decision Making for Control of Chronic Diseases – Workshop Summary 2011 • Contagion of Violence – Workshop Summary • The Science and Applications of Synthetic and Systems Biology – Workshop Summary • Fungal Diseases: An Emerging Threat to Human, Animal, and Plant Health – Workshop Summary • Preventing Violence against Women and Children – Workshop Summary • Social and Economic Costs of Violence – Workshop Summary Current Activities/Studies in Progress • Ongoing Activities of the Forum on Microbial Threats • Global Cardiovascular Disease – Dissemination Activities • Ongoing Activities of the Forum on Global Violence Prevention • Ongoing Activities of the Global Forum on Health Professional Education • Strengthening Core Elements of Food and Drug Regulatory Systems in Developing Countries – Dissemination Activities • Standing Committee to Support USAID’s Engagement in Health Systems Strengthening in Response to the Economic Transition of Health • Managing the Peer Review of Disease Control Priorities, Third Edition • Forum on Public–Private Partnerships for Global Health and Safety Projects in Development • One Health/One Medicine Board Roster Thomas Quinn (Chair), Johns Hopkins Center for Global Health, Baltimore, MD Jo Ivey Boufford (Ex Officio, Foreign Secretary, IOM), New York Academy of Medicine, New York 38 PRESIDENT’S REPORT SUPPLEMENT Claire V. Broome, Rollins School of Public Health, Emory University, Atlanta, GA Jacquelyn C. Campbell, Johns Hopkins University School of Nursing, Baltimore, MD Thomas J. Coates, University of California Global Health Institute, Los Angeles Valentin Fuster, Mount Sinai School of Medicine, New York, NY James Hospedales, Pan American Health Organization/World Health Organization, Washington, DC Peter J. Hotez, Sabin Vaccine Institute, Houston, TX Clarion Johnson, Exxon Mobil, Fairfax, VA Fitzhugh Mullan, George Washington University, Washington, DC Guy H. Palmer, Washington State University, Pullman, WA Jennifer Prah Ruger, Yale University, New Haven, CT Board on Health Care Services Roger C. Herdman, M.D., Director Organized: 1981 The Board on Health Care Services (HCS) oversees activities of the IOM concerned with the quality, effectiveness, organization, financing, and delivery of health care services. The board identifies high-priority health issues and provides guidance on the conduct of studies and other projects. Most of the board’s studies are conducted by committees appointed by the IOM and comprise a mix of IOM members, an occasional board member, and outside experts. The board seeks to advance the well-being of people and communities by promoting independent, reliable scholarly analysis and advice to government, professionals, and other members of the health industry, patients, and the public in general. The board’s priority areas for examination have varied slightly over the years but have been generally consistent within the following areas: • Quality and safety of health care • Health information technology • Health care organization • Health care workforce education, practice, and financing • Insurance coverage, financing of services, and cost control • Human behavior and communications • Cancer care and policy PROGRAM LISTING 39 National Cancer Policy Forum Sharyl Nass, Director The IOM established the National Cancer Policy Forum (NCPF) in 2005 to identify emerging highpriority policy issues in the nation’s effort to combat cancer and to examine those issues by convening activities that promote discussion about potential opportunities for action. The NCPF provides a continual focus within the IOM on cancer research and care, addressing issues in science, clinical medicine, public health, and public policy relevant to the goal of reducing the cancer burden through prevention and by improving outcomes for those diagnosed with cancer. The NCPF includes 30 members representing a broad range of stakeholders in the National Cancer Program, including patient advocates; physicians; basic, translational, and clinical scientists; federal agencies; professional organizations; and the pharmaceutical industry; and has addressed a wide variety of topics, including: • Enhancing collaborations to accelerate research and development • Improving the quality and value of cancer and survivorship care • The role of obesity and tobacco use in cancer incidence and mortality • Developing tools and technologies to enhance cancer research and care Recent Reports 2013 • Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis • Interim Report of the Committee on Geographic Variation in Health Care Spending and Promotion of High-Value Care: Preliminary Committee Observations • Variation in Health Care Spending: Target Decision Making, Not Geography • Sharing Clinical Research Data (with the Forum on Drug Discovery, Development, and Translation; Forum on Neuroscience and Nervous System Disorders; National Cancer Policy Forum; and Roundtable on Translating Genomic-Based Research for Health ) • Delivering Affordable Cancer Care in the 21st Century – Workshop Summary • Implementing a National Cancer Clinical Trials System for the 21st Century – Second Workshop Summary • Reducing Tobacco-Related Cancer Incidence and Mortality – Workshop Summary 2012 • Geographic Adjustment in Medicare Payment: Phase II – Implications for Access, Quality, and Efficiency • Informatics Needs and Challenges in Cancer Research – Workshop Summary 40 PRESIDENT’S REPORT SUPPLEMENT • The Mental Health and Substance Use Workforce for Older Adults: In Whose Hands? • The Role of Obesity in Cancer Survival and Recurrence – Workshop Summary • Evolution of Translational Omics: Lessons Learned and the Path Forward 2011 • Allied Health Workforce and Services – Workshop Summary • Breast Cancer and the Environment: A Life Course Approach (with Board on Health Sciences Policy) • Health IT and Patient Safety: Building Safer Systems for Better Care • Facilitating Collaborations to Develop Combination Investigational Cancer Therapies – Workshop Summary • Essential Health Benefits: Balancing Coverage and Cost • Geographic Adjustment in Medicare Payment: Phase I – Improving Accuracy, Second Edition • Perspectives on Essential Health Benefits – Workshop Report • Implementing a National Cancer Clinical Trials System for the 21st Century – Workshop Summary • Improving Access to Oral Health Care for Vulnerable and Underserved Populations (with Board on Children, Youth, and Families) • Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care – Workshop Summary • Child and Adolescent Health and Health Care Quality: Measuring What Matters • Advancing Oral Health in America (with Board on Children, Youth, and Families) • Finding What Works in Health Care: Standards for Systematic Reviews • Clinical Practice Guidelines We Can Trust • The National Cancer Policy Summit: Opportunities and Challenges in Cancer Research and Care • Nanotechnology and Oncology – Workshop Summary • Perspectives on Biomarker and Surrogate Endpoint Evaluation - Discussion Forum Summary Current Activities/Studies in Progress • Governance and Financing of Graduate Medical Education • Addressing the Needs of Adolescents and Young Adults with Cancer: A Workshop Summary • A National Cancer Policy Summit: Workshop Summary PROGRAM LISTING 41 Projects in Development • Study on Family Caregiving • Consensus Study on Policy Issues in the Clinical Development and Use of Biomarkers for Molecularly Targeted Therapies (with Board on Health Sciences Policy) • Diagnostic Error in Medicine • Family Caregiving in the United States • Contemporary Issues in Human Subjects Protection in Cancer Research: A Workshop • Innovations in Clinical Care, Practice and Quality for People with Advanced Alzheimer’s Disease: Meetings of Experts • Assessing and Improving the Interpretation of Mammograms: A Workshop Board Roster Gail R. Wilensky (Chair), Senior Fellow, Project Hope, Melwood, VA Peter Bach, Director, Center for Health Policy and Outcomes, Memorial Sloan-Kettering Cancer Center, New York, NY Joseph R. Baker, President, Medicare Rights Center, New York, NY Elisabeth Belmont, Corporate Counsel, MaineHealth, Portland Robert A. Berenson, Institute Fellow, The Urban Institute, Washington, DC Lisa Bero, Professor, Department of Clinical Pharmacy, School of Pharmacy and Institute for Health Policy Studies, School of Medicine, University of California, San Francisco David Blumenthal, Samuel O. Thier Professor of Medicine, Harvard Medical School; Professor of Health Care Policy, Massachusetts General Hospital, Mongan Institute for Health Policy, Boston Stuart Butler, Distinguished Fellow and Director, Center for Policy Innovation, The Heritage Foundation, Washington, DC Carolyn Clancy, former Director, Agency for Healthcare Research and Quality, Rockville, MD Jon B. Christianson, James A. Hamilton Chair in Health Policy and Management Division of Health Policy and Management School of Public Health, University of Minnesota, Minneapolis Jane Delgado, President and CEO, National Alliance for Hispanic Health, Washington, DC Jack Ebeler, Principal, Health Policy Alternatives, Inc., Washington, DC Robert S. Galvin, Chief Executive Officer, Equity Healthcare; Executive Director, Corporate Private Equity, The Blackstone Group, New York, NY Rebekah E. Gee, Assistant Professor, Louisiana State University (LSU) Schools of Medicine and Public Health; Birth Outcomes Director, Louisiana Department of Health and Hospitals, LSU School of Public Health, Baton Rouge 42 PRESIDENT’S REPORT SUPPLEMENT Charles N. Kahn III, President and Chief Executive Officer, Federation of American Hospitals, Washington, DC Elizabeth A. McGlynn, Director, Kaiser Permanente Center for Effectiveness & Safety Research, Oakland, CA Mary D. Naylor, Director, NewCourtland Center for Transitions and Health, Marian S. Ware Professor in Gerontology, National Program Director, Interdisciplinary Nursing Quality Research Initiative, University of Pennsylvania, Philadelphia Alan Weil, Executive Director, National Academy for State Health Policy, Portland, ME Board on Health Sciences Policy Andrew Pope, Ph.D., Director Organized: 1977 The Board on Health Sciences Policy oversees and guides a program of activities that is intended to encourage and sustain the continuous vigor of the basic biomedical and clinical research enterprises needed to ensure and improve the health of the public. In conducting these activities, consideration is given to the ethical, legal, and social contexts of scientific and technologic advances and to the balance between scientific opportunities and public needs. The goals of the Board on Health Sciences Policy are to • Foster the emerging fields of research in the health and biomedical sciences; • Strengthen the role of science in policy and decision making; • Promote and improve the education of health and research professionals and of the general public; • Ensure an adequate workforce in biomedical and clinical research; and • Address issues in biomedical ethics. To accomplish these goals, the board helps shape the portfolio of projects by continuously monitoring issues in health policy and identifying emerging problems. Board members oversee the implementation of ideas and proposals and assist in ensuring the focus and purpose of sponsored projects through periodic review of study progress at board meetings and as official members on board-sponsored studies. Board members also assist in the dissemination of study findings and monitor the impact of sponsored studies. Forum on Drug Discovery, Development, and Translation Anne Claiborne, Director The Forum on Drug Discovery, Development, and Translation brings together thought leaders and PROGRAM LISTING 43 stakeholders in government, academia, industry, foundations, and patient advocacy with an interest in issues related to drug discovery, development, and translation. The forum convenes several times each year to identify and discuss key problems and strategies in the discovery, development, and translation of drugs. To supplement the perspectives and expertise of its members, the forum also holds public workshops and commissions papers to engage a wide range of experts, members of the public, and the policy community. The activities of the forum are determined by its members, focusing on five major themes: (1) the approach to drug development; (2) strengthening the scientific basis of drug regulation; (3) transforming research and fostering collaborative research; (4) developing drugs for rare and neglected diseases and addressing urgent global health problems; and (5) promoting public understanding of drug development. Over the past several years, the forum has been engaged in three major long-term initiatives: Advancing Regulatory Science; Transforming Clinical Trials; and Addressing the Global Neglected Disease Multidrug-Resistant Tuberculosis. Forum on Neuroscience and Nervous System Disorders Bruce Altevogt, Director The Forum on Neuroscience and Nervous System Disorders focuses on building partnerships to further understand the brain and nervous system disorders in their structure and function, as well as effective clinical prevention and treatment strategies. The forum concentrates on six themes: nervous system disorders, mental illness and addiction, genetics of nervous system disorders, cognition and behavior, modeling and imaging, and ethical and social issues. It serves to educate the public, press, and policy makers regarding these issues. The forum brings together leaders from private-sector sponsors of biomedical and clinical research, federal agencies sponsoring and regulating biomedical and clinical research, foundations, the academic community, and consumers. The forum sponsors workshops for members and the public to discuss approaches to resolving key challenges identified by forum members. It strives to enhance understanding of research and clinical issues associated with the nervous system among the scientific community and the general public and provide a mechanism to foster partnerships among stakeholders. Roundtable on Translating Genomic-Based Research for Health Adam Berger, Director The Roundtable on Translating Genomic-Based Research for Health brings together leaders from academia, industry, government, foundations, and associations and patient and consumer representatives who have a mutual interest in addressing the issues surrounding the translation of genomic-based research. The purpose of the roundtable is to explore and implement strategies for improving health through the translation of genomic and genetic research findings into medicine, public health, education, and policy. Priorities and areas of emphasis for the roundtable include (1) issues related to the translation of genomics to medicine and public health; (2) issues related to the evolving requirements for the health professional community and the need to be able to understand and responsibly apply genomics to medicine and public health; and (3) ethical, legal, and 44 PRESIDENT’S REPORT SUPPLEMENT social issues such as the potential for misuse of genetic information, the medical implications for family members, and the rights of an individual, family, or community to control the use and dissemination of genetic information. To achieve its objectives, the roundtable conducts structured discussions, workshops, and symposia and publishes workshop summaries. The roundtable has developed several initiatives around the topics of clinical practice and public health, drug development informed by genomics and genetics, diagnostic applications for genomics, and emerging issues to guide the roundtable as it moves forward. Forum on Medical and Public Health Preparedness for Catastrophic Events Bruce Altevogt, Director The Forum on Medical and Public Health Preparedness for Catastrophic Events serves to foster dialogue among stakeholders and provide ongoing opportunities to confront and discuss issues of mutual interest and concern. The forum provides a neutral venue for broad-ranging policy discussions that serve to facilitate coordination and cooperation among public and private stakeholders in developing and enhancing the nation’s medical and public health preparedness. More specifically, the forum provides a catalyst for voluntary public–private collaboration on topics where there is synergy among potential partners; helps define the scope of the field and thus sets the stage for future policy action; brings ongoing attention and visibility to important preparedness issues; explores new approaches for resolving problem areas; and elevates the general understanding and visibility of medical and public health preparedness in the broader research, public policy, and other appropriate communities. The forum is self-governing, meaning that the forum membership identifies the topics it wishes to address and, with assistance from staff, develops meeting agendas and identifies workshop topics. As a result, topics span a broad range of issues in research, policy, and practice. Initial attention is being given to the following broad topic areas: medical surge capacity, disaster preparedness training, communication and distribution, psychological and community resilience, and research and evaluation. Forum on Aging, Disability, and Independence Tracy A. Lustig, Director The IOM, in collaboration with the Division on Behavioral and Social Science and Education of the NRC, has formed a new Forum on Aging, Disability, and Independence that fosters dialogue and confronts issues of mutual interest and concern within the long-term services and supports system. The forum highlights capacities in which aging and disability network coordination is strong; examines the historical challenges faced in aligning the aging and disability networks; defines the scope of the challenges; explores new approaches for resolving problem areas; elevates the visibility and perspectives of the many stakeholders; and sets the stage for future policy actions. The forum is self-governing, that is, the forum membership identifies the specific topics that it wishes to address and—with assistance from staff—develops meeting agendas, commis- PROGRAM LISTING 45 sions papers, and identifies workshop topics. Topics span a broad range of issues such as personcentered planning, self-direction, workforce education and training, health care and personal care workforces, quality measurement, health disparities, research, and assistive technologies. Standing Committee on Health Threats Resilience Bruce Altevogt, Director The Standing Committee on Health Threats Resilience is sponsored by the Department of Homeland Security’s Office of Health Affairs. The standing committee discusses issues related to shortand long-term strategic planning and includes experts in emergency management, emergency medical services, emergency preparedness and response, intelligence, public health and medicine, community resilience, economic development, and sociocultural sciences. The standing committee maintains surveillance of the field, discusses planning and program development efforts, and serves as a focal point within the IOM and National Academies for discussions and potential ad hoc studies related to (1) community resilience against health threats—including issues relevant to preparedness, community engagement, and communications; (2) health security—the interface with intelligence, infrastructure and security, and health resilience; (3) emergency response and recovery activities and support of operational medicine; and (4) capacity and gaps in the capability of federal, state, and local authorities to respond to catastrophic health events, including events related to food, agriculture, human health, and animal health issues. In this process, the standing committee may provide a public venue for communication among government, the academic community, and the private sector, as well as other relevant stakeholders involved in emergency preparedness and emergency response services. Further, as needed, the standing committee will be involved in the planning, development, and oversight of related ad hoc activities undertaken by separately appointed committees operating under its auspices. Standing committee discussions have led to workshops that have explored topics related to workforce resilience and biosurveillance. Standing Committee on Credentialing Research in Nursing Cathy Liverman and Meg McCoy, Co–Directors The IOM has convened a standing committee for the American Nurses Credentialing Center. The standing committee discusses issues related to research on credentialing of nurses and organizations, including short- and long-term strategic planning. The standing committee maintains surveillance of the field, discusses planning and program development, and serves as a focal point for discussions and potential ad hoc studies requested by the sponsor and approved by the IOM and the National Academies. Topics that may be addressed by the standing committee or by sponsored workshops and future studies by IOM committees include: • emerging priorities for nursing credentialing research; • research methodologies and measures relevant to nursing credentialing research; 46 PRESIDENT’S REPORT SUPPLEMENT • the impact of individual and organizational credentialing in nursing on improving healthcare performance, quality, and outcomes. Standing Committee on Aerospace Medicine and the Medicine of Extreme Environments Cathy Liverman and Meg McCoy, Co–Directors The IOM Standing Committee on Aerospace Medicine and the Medicine of Extreme Environments coordinates with the National Aeronautics and Space Administration’s Office of the Chief Health and Medical Officer to become informed about existing conditions and emerging issues related to medical care in space and define prospective activities (such as studies or analyses of medical needs and/or approaches to addressing those needs) to be conducted at the IOM. The standing committee serves as a focal point for consideration of issues related to the practice of medicine during space travel. The standing committee considers relevant scientific, technical, and policy issues, including the development of optimal aerospace medicine and health care as an evolving multidisciplinary and international enterprise, health maintenance and care policies related to aerospace medicine, clinical research requirements and clinical strategies, and other relevant issues. Ad hoc committees are established to conduct studies as needed and as approved by the IOM and the National Academies. Standing Committee on Personal Protective Equipment for Workplace Safety and Health Cathy Liverman and Meg McCoy, Co–Directors The Standing Committee on Personal Protective Equipment for Workplace Safety and Health addresses scientific and technical issues relevant to the development, certification, deployment, and use of personal protective equipment, standards, and related systems to ensure workplace safety and health. This standing committee is supported by the National Personal Protective Technology Laboratory at the National Institute for Occupational Safety and Health. Standing Committee on Family Planning Adrienne Stith Butler, Director The Standing Committee on Family Planning was sponsored by the Department of Health and Human Services Office of Family Planning (OFP). The standing committee followed up on issues addressed in the 2009 IOM report, A Review of the HHS Family Planning Program: Mission, Management, and Measurement of Results, as well as identified emerging issues in this field. The standing committee provided a forum for discussion of scientific, workforce, health services, and education issues relevant to family planning. The committee maintained surveillance of the field, discussed planning and program development efforts, and served as a focal point for discussions and potential ad hoc studies requested by PROGRAM LISTING 47 OFP and approved by the IOM and the National Academies. Specific topics addressed at meetings of the standing committee included workforce planning; the role of family planning/reproductive health in health care reform; improving data collection on program performance; communication and transparency; and strategic planning for moving the Title X Program forward. Recent Reports 2013 • A Ready and Resilient Workforce for the Department of Homeland Security: Protecting America’s Front Line • Technologies to Enable Autonomous Detection for BioWatch: Ensuring Timely and Accurate Information for Public Health Officials – Workshop Summary (with the Division on Earth and Life Studies Board on Life Sciences) • Engaging the Public in Critical Disaster Planning and Decision Making – Workshop Summary • Strengthening Human Resources Through Development of Candidate Core Competencies for Mental, Neurological, and Substance Use Disorders in Sub-Sarahan Africa – Workshop Summary • International Regulatory Harmonization Amid Globalization of Drug Development – Workshop Summary • Crisis Standards of Care: A Toolkit for Indicators and Triggers • Nationwide Response Issues After an Improvised Nuclear Device Attack: Medical and Public Health Considerations for Neighboring Jurisdictions – Workshop Summary • The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research • Fostering Independence, Participation, and Healthy Aging Through Technology – Workshop Summary • Sharing Clinical Research Data – Workshop Summary • The Economics of Genomic Medicine – Workshop Summary • Improving the Utility and Translation of Animal Models for Nervous System Disorders – Workshop Summary • The California Institute for Regenerative Medicine, Science, Governance, and the Pursuit of Cures • Developing and Strengthening the Global Supply Chain for Second-Line Drugs for MultidrugResistant Tuberculosis – Workshop Summary 2012 • Genome-Based Therapeutics: Targeted Drug Discovery and Development – Workshop Summary 48 PRESIDENT’S REPORT SUPPLEMENT • Accelerating the Development of New Drugs and Diagnostics: Maximizing the Impact of the Cures Acceleration Network – Workshop Summary • Post-Incident Recovery Considerations for the Health Care Service Delivery Infrastructure – Workshop Summary • A Review of NASA’s Human Research Program’s Scientific Merit Assessment Process – Letter Report • International Animal Research Regulations: Impact on Neuroscience Research – Workshop Summary • Public Engagement on Facilitating Access to Antiviral Medications and Information in an Influenza Pandemic – Workshop Series Summary • Facing the Reality of Drug-Resistant Tuberculosis: Challenges and Potential Solutions in India – Summary of a Joint Workshop • Envisioning a Transformed Clinical Trials Enterprise in the United States: Establishing an Agenda for 2020 – Workshop Summary • Building a Resilient Workforce: Opportunities for the Department of Homeland Security – Workshop Summary • Ensuring Safe Foods and Medical Products Through Stronger Regulatory Systems Abroad (with Board on Global Health) • Epilepsy Across the Spectrum: Promoting Health and Understanding • Crisis Standards of Care: A Systems Framework for Catastrophic Disaster Response • Genome-Based Diagnostics: Clarifying Pathways to Clinical Use – Workshop Summary • Safe and Effective Medicines for Children: Pediatric Studies Conducted Under the Best Pharmaceuticals for Children Act and the Pediatric Research Equity Act • Alzheimer’s Diagnostic Guideline Validation: Exploration of Next Steps – Workshop Summary • Barriers to Integrating Crisis Standards of Care Principles into International Disaster Response Plans – Workshop Summary • Sex-Specific Reporting of Scientific Research – Workshop Summary (with Board on Population Health and Public Health Practice) 2011 • Strengthening a Workforce for Innovative Regulatory Science in Therapeutics Development – Workshop Summary • Chimpanzees in Biomedical and Behavioral Research: Assessing the Necessity • Breast Cancer and the Environment: A Life Course Approach • Information Sharing and Collaboration: Applications to Integrated Biosurveillance – Workshop Summary PROGRAM LISTING 49 • Integrating Large-Scale Genomic Information into Clinical Practice – Workshop Summary • Public Engagement and Clinical Trials: New Models and Disruptive Technologies – Workshop Summary • Incorporating Occupational Information in Electronic Health Records: Letter Report • Prepositioning Antibiotics for Anthrax • Occupational Health Nurses and Respiratory Protection: Improving Education and Training – Letter Report • Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research • Advancing Regulatory Science for Medical Countermeasure Development – Workshop Summary • Glutamate-Related Biomarkers in Drug Development for Disorders of the Nervous System – A Workshop • Generating Evidence for Genomic Diagnostic Test Development – Workshop Summary • The New Profile of Drug-Resistant Tuberculosis in Russia: A Global and Local Perspective: Summary of a Joint Workshop • The Emerging Threat of Drug-Resistant Tuberculosis in Southern Africa: Global and Local Challenges and Solutions – Workshop Summary • Preparedness and Response to a Rural Mass Casualty Incident – Workshop Summary • Preventing Transmission of Pandemic Influenza and Other Viral Respiratory Diseases: Personal Protective Equipment for Healthcare Personnel – Update 2010 • Perspectives on Biomarker and Surrogate Endpoint Evaluation – Discussion Forum Summary (with Board on Health Care Services and Food and Nutrition Board) Current Activities/Studies in Progress • Biomarkers Workshop (with Howard Hughes Medical Institute) • BioWatch Modeling Tools Used to Support Functional Requirements for Health Response: A Workshop • BioWatch Program Guidance Documents: Guidance for the Development of Locally-Owned Jurisdictional Response Plans for Response to BioWatch Actionable Results: A Workshop Series • Cognitive Aging: Translating Science into Prevention and Care • Committee on Aerospace Medicine and the Medicine of Extreme Environments • Committee on Department of Homeland Security Workforce Resilience • Committee on Developing Evidence-Based Standards for Psychosocial Interventions for Mental Disorders 50 PRESIDENT’S REPORT SUPPLEMENT • Committee on Health and Medical Infrastructure Needs for the Department of Health and Human Services • Committee on Personal Protective Equipment for Workplace Safety and Health • Ethics, Principles, and Guidelines for Health and Safety Standards for Long-Duration and Exploration Spaceflights • Forum on Aging, Independence, and Disability • Forum on Drug Discovery, Development, and Translation • Forum on Medical and Public Health Preparedness for Catastrophic Events • Forum on Neuroscience and Nervous System Disorders • Independent Review and Assessment of the Activities of the NIH Recombinant DNA Advisory Committee • Long-Term Recovery of the Health Care Service Delivery Infrastructure Following Catastrophic Incidents • Polymerase Chain Reaction Standards for the BioWatch Program (with the Division on Earth and Life Studies Board on Life Sciences) • Review of NASA’s Evidence Reports on Human Health Risks • Roundtable on Translating Genomic-Based Research for Health • Standing Committee on Credentialing Research in Nursing • Standing Committee on Family Planning (until March 2013) • Standing Committee on Health Threats Resilience • Strategies for Responsible Sharing of Clinical Trial Data: Guiding Principles and a Framework for Implementation • The Public Health Dimensions of Cognitive Aging and Health • Treatment of Cardiac Arrest: Current Status and Future Directions Projects in Development • Air Pollution and Health Effects for Deployed State Department Foreign Service Officers and Families • Cybersecurity for Public Health Preparedness • Epilepsy Forum • Forum on Engineering and Biomedical Technology • Human Rights, Medical Ethics, and the Values of Medicine • Increasing the Reproducibility of Scientific Research • Mental Health and Substance Use Disorders Roundtable • Partnership to Accelerate Therapeutics PROGRAM LISTING 51 • Personalized Medicine (Policy Issues in Clinical Development and Use of Biomarkers for Molecularly Targeted Therapies) • Prescription Drug Abuse and Prescriber Education Requirements • Regenerative Medicine Forum • Resilience of First Responders • Strengthening the Resilience of Academic Research Facilities • Total Worker Health: Best Practices in the Integration of Occupational Health and Safety and Health Promotion in the Workplace – A Workshop • Unproven Stem Cell Treatments: A National Academies and International Society for Stem Cell Research Workshop Board Roster C. Thomas Caskey (Chair), Baylor University, Houston, TX Eli Y. Adashi, Brown University, Providence, RI Wylie Burke, University of Washington, Seattle Robert M. Califf, Duke University Medical Center, Durham, NC Dennis Choi, The Simons Foundation, New York, NY Kathleen A. Dracup, University of California, San Francisco Michael Ehlers, Pfizer, Inc., Cambridge, MA Naomi Gerber, George Mason University, Fairfax, VA Lewis R. Goldfrank, New York University School of Medicine, New York Steven E. Hyman, The Broad Institute of Harvard and Massachusetts Institute of Technology, Cambridge, MA Paul E. Jarris, Association of State and Territorial Health Officials, Arlington, VA Jeffrey Kahn, Johns Hopkins University, Baltimore, MD Harry T. Orr, University of Minnesota, Minneapolis Sharon Terry, Genetic Alliance, Washington, DC Reed V. Tuckson, UnitedHealth Group, Minnetonka, MN Keith A. Wailoo, Rutgers, The State University of New Jersey, New Brunswick Clyde Yancy, Northwestern University, Chicago, IL 52 PRESIDENT’S REPORT SUPPLEMENT Board on the Health of Select Populations (Formerly the Board on Military and Veteran Health) Rick Erdtmann, M.D., M.P.H., Director Organized: 2006 The Board on the Health of Select Populations was established in February 2009 to examine health needs and health policies surrounding a broad range of discrete populations. It has expanded its scope since 2006 when it operated as the Board on Military and Veteran Health. The board concentrates on significant health concerns that may affect groups of individuals categorized and defined by common occupation, environment, health condition or characteristics, or a shared exposure to a unique health risk. The board continues to concentrate heavily on the health of military men and women, their families, and veterans. The Medical Follow-Up Agency (MFUA) is an important component of the board. MFUA has been conducting epidemiological studies on the long-term effects of military service since 1946. Recent Reports 2013 • Returning Home from Iraq and Afghanistan: Readjustment Needs of Veterans, Service Members, and Their Families – Phase II • Review of the Department of Labor’s Site Exposure Matrix Database • Gulf War and Health: Treatment of Chronic Multisymptom Illness • Health and Incarceration – A Workshop Summary • Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records – A Workshop Summary 2012 • Evaluation of the Lovell Federal Health Care Center Merger: Findings, Conclusions, and Recommendations • Future Uses of the Department of Defense Joint Pathology Center Biorepository • Substance Use Disorders in the U.S. Armed Forces • Treatment of Posttraumatic Stress Disorder in Military and Veteran Populations: Initial Assessment 2011 • Long-Term Health Consequences of Exposure to Burn Pits in Iraq and Afghanistan • Cognitive Rehabilitation Therapy for Traumatic Brain Injury: Evaluating the Evidence • Veterans and Agent Orange: Update 2010 PROGRAM LISTING 53 • Blue Water Navy Vietnam Veterans and Agent Orange Exposure • The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding Current Activities/Studies in Progress • Research Directions in Human Biological Effects of Low-Level Ionizing Radiation • Establishing a Case Definition for Chronic Multisymptom Illness • Assessment of Ongoing Efforts in the Treatment of PTSD – Phase II • Readjustment Needs of Military Personnel, Veterans, and Their Families: Assessment of Resiliency Programs for Mental and Behavioral Health for Service Members and their Families • Health Effects in Vietnam Veterans of Exposure to Herbicides (Ninth Biennial Update) • Gulf War and Health: Long-Term Effects of Blast Exposure Projects in Development • The Assessment of Childhood Disability for the Social Security Administration • Standing Committee to Improve the Medical Listings for the Associate Commissioner of Social Security Administration • Standing Committee on Health and Medicine for the Assistant Secretary of Defense for Health Affairs • A Review of Mental Health Services Provided by the Veterans Health Administration • Women’s Veterans – Matching Health Needs with Services • Establishing a Case Definition for Chronic Fatigue Syndrome Board Roster Dan G. Blazer (Chair), Duke University Medical Center, Durham, NC Kathleen Brady, Medical University of South Carolina, Charleston Michael L. Cowan, Association of Military Surgeons of the United States, Bethesda, MD Walter R. Frontera, Vanderbilt University School of Medicine, Nashville, TN Gregory C. Gray, University of Florida, Gainesville Kurt Kroenke, Indiana University School of Medicine, Indianapolis Janice L. Krupnick, Georgetown University Medical Center, Washington, DC Stanley M. Lemon, University of North Carolina, Chapel Hill 54 PRESIDENT’S REPORT SUPPLEMENT Vickie M. Mays, University of California, Los Angeles Fielding School of Public Health and UCLA Center for Bridging Research, Innovation, Training and Education for Minority Health Disparities Solutions M. Jeanne Miranda, University of California, Los Angeles, CA Frances Murphy, Health Care Independent Consultant, Silver Spring, MD Michael D. Parkinson, University of Pittsburgh Medical Center Health Plan and WorkPartners, Pittsburgh, PA Jennifer D. Peck, University of Oklahoma Health Sciences Center, Oklahoma City, OK Carol K. Redmond, University of Pittsburgh, PA Grace S. Rozycki, Indiana University School of Medicine, Indianapolis George W. Rutherford, University of California, San Francisco Medical Follow-Up Agency David Butler, Ph.D., Director Organized: 1946 The Medical Follow-Up Agency (MFUA) is an organizational element of the IOM’s Board on the Health of Select Populations. MFUA was founded shortly after World War II at the urging of Dr. Michael DeBakey, then a colonel in the Office of the Army Surgeon General. In its early years, the program consisted predominantly of clinical follow-up studies in which veterans were examined for after-effects of World War II injuries and diseases. MFUA now conducts a variety of epidemiological research studies and collaborates with qualified researchers from diverse backgrounds to obtain and analyze records data. Recent Publications • Long-Term Health Effects of Participation in Project SHAD (Shipboard Hazard and Defense) I Recent Journal Publications McArdle, J.J., and Plassman, B.L. 2009. A biometric latent curve analysis of memory decline in older men of the NAS-NRC Twin Registry. Behavior Genetics 39(5):472–495. Joellenbeck, L.M. 2011. Medical surveillance and other strategies to protect the health of deployed U.S. forces: Revisiting after 10 years. Military Medicine 176(7 Suppl):64–70. Goldman, S.M., et al. 2012. Solvent exposures and Parkinson disease risk in twins. Annals of Neurology 71(6):776–784. PROGRAM LISTING 55 MFUA’s complete bibliography through 2009 may be found at: www.iom.edu/About-IOM/ Leadership-Staff/Boards/Medical-Follow-Up-Agency.aspx Current Activities/Studies in Progress • Air Force Health Study (Ranch Hand) Research Management Program • Shipboard Hazard and Defense II • Studies of U.S. Veteran Twins in the World War II Registry • The Medical Follow-Up Agency Cohort Catalog Projects in Development • Mortality Status of World War II Twins Advisory Committee Roster Gregory C. Gray, University of Florida, Gainesville Kurt Kroenke, Indiana University School of Medicine, Indianapolis Frances Murphy, Health Care Independent Consultant, Silver Spring, MD Jennifer D. Peck, University of Oklahoma Health Sciences Center, Oklahoma City Carol K. Redmond, University of Pittsburgh, PA Board on Population Health and Public Health Practice Rose Marie Martinez, Sc.D., Director Organized: 1981 The Board on Population Health and Public Health Practice is broadly concerned with promoting the health of the public—physical, mental, and social—particularly through population-based interventions. The board examines and develops strategies for disease prevention, taking into account the multiple factors affecting health—genetic endowment, social and environmental conditions, individual behavior (including tobacco use, alcohol consumption, diet, and exercise) and personal preventive services. The board addresses the science base for such interventions, the public health infrastructure, and the education and supply of health professionals necessary for carrying them out. The board has an ongoing program of studies on public health infrastructure, women’s and children’s health, immunization, AIDS and sexually transmitted diseases, and environmental and occupational health. In particular, the board has identified three priority areas that fall within a broad 56 PRESIDENT’S REPORT SUPPLEMENT focus covering both preventive services and public health functions to emphasize in its work: • re-examining public health capacities and responsibilities to meet public health challenges at the federal, state, and local levels; • community interventions to promote healthful behavior; and • occupational and environmental health issues. Roundtable on Environmental Health Sciences, Research, and Medicine Rose Marie Martinez, Interim Director The Roundtable on Environmental Health Sciences, Research, and Medicine was established in 1998 as a convening mechanism for individuals from the academic, industrial, nongovernmental, and governmental perspectives to meet and discuss sensitive and difficult environmental health issues of mutual interest in a neutral setting. Since its inception, the roundtable has addressed current and emerging issues in environmental health through discussions related to the state of the science, research gaps, and policy implications. Roundtable on Health Literacy Lyla Hernandez, Director The Roundtable on Health Literacy was established in 2006 to discuss challenges facing health literacy research and practice and identify approaches to promote health literacy through mechanisms and partnerships in both the public and private sectors. Since its first workshop in 2006, the roundtable has held 14 workshops and published 11 reports on topics such as improved medication labeling, use of electronic health records, and integration of health literacy with disparities reduction and quality improvement. The roundtable has established working groups to explore and develop activities addressing health literacy and health insurance reform, international health literacy, public health literacy, and what makes an organization health literate. Roundtable on Population Health Improvement Alina Baciu, Director The IOM Board on Population Health and Public Health Practice convened the multidisciplinary Roundtable on Population Health Improvement in 2012. The roundtable’s mission is to engage in dialogue and discussion that will emphasize exploration of cross-cutting issues pertinent to population health improvement strategies and activities. PROGRAM LISTING 57 Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities Karen Anderson, Director The IOM convened the Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities in 2007 to stimulate action, further the development of programs and strategies, promote health equity, and foster the emergence of leadership. With the publication of several seminal IOM reports documenting the problem of health disparities in the early 2000s (for example, Unequal Treatment in 2003 and In the Nation’s Compelling Interest in 2004), the roundtable was created to continue the focus on eliminating health disparities. The roundtable, in its focus on underserved populations, focuses on understanding the social determinants of health that underlie health disparities. Recent Reports 2013 • Health Impact Assessment of Shale Gas Extraction – Workshop Summary • Health Literacy: Improving Health, Health Systems, and Health Policy Around the World – Workshop Summary • Public Health Linkages with Sustainability – Workshop Summary • Toward Quality Measures for Population Health and the Leading Health Indicators • Oral Health Literacy – Workshop Summary • Environmental Decisions in the Face of Uncertainty • Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and Future Studies 2012 • An Integrated Framework for Assessing the Value of Community-Based Prevention • Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage • How Far Have We Come in Reducing Health Disparities? Progress Since 2000 – Workshop Summary • How Can Health Care Organizations Become More Health Literate? – Workshop Summary • Ranking Vaccines: A Prioritization Framework – Phase I: Demonstration of Concept and a Software Blueprint • Ethical and Scientific Issues in Studying the Safety of Approved Drugs • For the Public’s Health: Investing in a Healthier Future • Primary Care and Public Health: Exploring Integration to Improve Population Health 58 PRESIDENT’S REPORT SUPPLEMENT • Monitoring HIV Care in the United States: Indicators and Data Systems • Facilitating State Health Exchange Communication Through the Use of Health Literate Practices – Workshop Summary • Living Well with Chronic Illness: A Call for Public Health Action • Sex-Specific Reporting of Scientific Research – Workshop Summary 2011 • Scientific Standards for Studies on Modified Risk Tobacco Products • Improving Health Literacy Within a State – Workshop Summary • Promoting Health Literacy to Encourage Prevention and Wellness – Workshop Summary • State and Local Policy Initiatives to Reduce Health Disparities – Workshop Summary • Adverse Effects of Vaccines: Evidence and Causality • Medical Devices and the Public’s Health: The FDA 510(k) Clearance Process at 35 Years • A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases • Clinical Preventive Services for Women: Closing the Gaps • Health Literacy Implications for Health Care Reform – Workshop Summary • For the Public’s Health: Revitalizing Law and Policy to Meet New Challenges • Climate Change, the Indoor Environment, and Health • Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases: The Short-Term and Long-Term Outcomes – Workshop Report • HIV Screening and Access to Care: Health Care System Capacity for Increased HIV Testing and Provision of Care • Leading Health Indicators for Healthy People 2020 – Letter Report • Innovations in Health Literacy Research – Workshop Summary Current Activities/Studies in Progress • The Nexus of Biofuels, Climate Change, and Human Health: A Workshop Summary •Leveraging Culture to Address Health Inequalities: Examples from Native Communities: A Workshop Summary • Assessment of Models Used to Predict the Effect of Policies Related to Tobacco Regulation • Health Implications of Raising the Minimum Age for Purchasing Tobacco Products • Study on the Illicit Tobacco Market: Collection and Analysis of the International Experience. (with the Committee on Law and Justice) • Identifying and Prioritizing New Preventive Vaccines for Development, Phase II PROGRAM LISTING 59 • Recommended Social and Behavioral Domains and Measures for Electronic Health Records Projects in Development • Principles for the Creation and Use of Big Data in Population Health Improvement • Strategies to Enhance Medication Adherence • Examining Population Health Disparities Through the Lens of Adverse Childhood Events Board Roster Ellen Wright Clayton (Chair), Vanderbilt University, Nashville, TN Margarita Alegría, Cambridge Health Alliance, Somerville, MA Alfred Berg, University of Washington School of Medicine, Seattle Bobbie A. Berkowitz, Columbia University School of Nursing, New York, NY David R. Challoner, University of Florida, Gainesville Alvin D. Jackson, Ohio Department of Health, Fremont Matthew W. Kreuter, Washington University in Saint Louis, MO Grace M. Lee, Harvard Medical School & Boston Children’s Hospital, MA Howard Markel, University of Michigan Medical School, Ann Arbor Linda A. McCauley, Emory University, Atlanta, GA Elena O. Nightingale, Institute of Medicine, Washington, DC Margaret E. O’Kane, National Committee for Quality Assurance, Washington, DC Daniel Polsky, University of Pennsylvania, Philadelphia John A. Rich, Drexel University, Philadelphia, PA Susan L. Santos, University of Medicine and Dentistry of New Jersey, Newark Martin Jose Sepúlveda, International Business Machines Corporation, Somers, NY Joshua M. Sharfstein, Maryland Department of Health and Mental Hygiene, Baltimore Steven Teutsch, Los Angeles County Public Health, Los Angeles, CA Antonia M. Villarruel, University of Michigan, Ann Arbor, MI Winston F. Wong, Kaiser Permanente, Oakland, CA William A. Yasnoff, National Health Information Infrastructure Advisors, Arlington, VA 60 PRESIDENT’S REPORT SUPPLEMENT Health Policy Educational Programs and Fellowships Marie E. Michnich, Dr.P.H., Director Organized: 1973 The Health Policy Educational Programs and Fellowships (HPEPF) office serves as the program office for four national health policy fellowship programs: the Robert Wood Johnson Foundation (RWJF) Health Policy Fellows; the IOM/American Nurses Foundation (ANF)/American Academy of Nursing (AAN)/American Nurses Association (ANA) Distinguished Nurse Scholar-in-Residence; the IOM Anniversary Fellows; and the Food and Drug Administration (FDA) Tobacco Regulatory Science Fellowship. The first and the oldest program, the RWJF Health Policy Fellows, celebrated its 40th anniversary in 2013. Exceptional midcareer health professional and behavioral and social scientists actively participate in and contribute to the policy process at the federal level during a 12-month residential experience in Washington, DC. These fellows remain in high demand and continue to receive the most prominent federal health policy placements in both Congress and the executive branch. Since 1973, HPEPF has been responsible for the recruitment, selection, orientation, and placement of the Health Policy Fellows and has overseen the fellowships of 252 recipients. IOM leadership, particularly board directors, contributes to the orientation and placement and serves as a resource for the fellows throughout their experience. The priority areas of emphasis for this program are (1) to continue to seek out qualified minority applicants, (2) to maintain a high number of qualified applicants, and (3) to promote political balance in both recruitment and placement of the fellows. HPEPF also hosts the Distinguished Nurse Scholar-in-Residence, initiated in 1992 and supported by the AAN, the ANF, and the ANA. This residential program is designed to assist nurse leaders in playing a more prominent role in health policy development at the national level through a 1-year program of orientation and study at the IOM. The scholar produces a report as a result of working on a current IOM initiative related to his/her area of expertise. The Distinguished Nurse Scholar-in Residence for 2013-2014 is Beatrice Kalisch, Director of Innovation and Evaluation and Titus Professor of Nursing at the University of Michigan. She brings extensive experience in quality of care and patient safety. This year, the IOM has invited the 2012-2013 Distinguished Nurse Scholar-in Residence, Marla Salmon—an IOM member and the immediate past dean of the University of Washington School of Nursing—to extend her role as a scholar. Her work is focusing on three areas of policy and scholarship: (1) global nursing workforce capacity building, (2) women’s development aimed at enhanced educational and economic well-being, and (3) social impact investment and microfinance as mechanisms for reducing barriers to women’s education and subsequent sustained economic engagement. The priority for this program is to increase funding to attract and support scholars in Washington, DC. The IOM Anniversary Fellows is a program created in 2005 to celebrate the 35th anniversary of the IOM. The purpose of the program is to bring exceptional early-career faculty and scholars to work on an IOM board and an IOM study, forum, or roundtable. Since the initiation of the program, a total of 13 fellows have received the award. Three fellowships, the Norman F. Gant, M.D./ PROGRAM LISTING 61 American Board of Obstetrics and Gynecology; the James C. Puffer, MD/American Board of Family Medicine; and the Gilbert S. Omenn Anniversary Fellowships are fully endowed; and three others are in the process of being endowed in perpetuity. Launched in 2012, the FDA Tobacco Regulatory Science Fellowship is a collaborative program between the IOM and the FDA Center for Tobacco Products (CTP). This program aims to provide an opportunity for midcareer professionals to gain experience and expertise to further define and develop the field of regulatory science as it relates to the regulation of tobacco products and FDA’s new authorities under the Family Smoking Prevention and Tobacco Control Act. Three fellows were chosen for the inaugural class in a national competition and were assigned to one of three offices within CTP for the full 12-month fellowship year, which ended in August 2013: the Office of Health Communication and Education, the Office of Policy, and the Office of Science. In the second cycle, a total of five fellows were chosen and began their fellowship in September 2013. The priority for this program is to improve the size and quality of the applicant pool and place at least one fellow in each of the six CTP offices. Robert Wood Johnson Foundation Health Policy Fellows Advisory Board Roster Gail L. Warden (Chair), Henry Ford Health System, Detroit, MI Joseph Antos, American Enterprise Institute for Public Policy Research, Washington, DC Linda Degutis, Centers for Disease Control and Prevention, Atlanta, GA Susan Dentzer, Robert Wood Johnson Foundation, Princeton, NJ Clyde Evans, CE Consulting, Needham, MA James R. Gavin III, Emory University School of Medicine, Atlanta, GA, and Healing Our Village, Inc., College Park, GA Katie B. Horton, George Washington University, Washington, DC Arthur L. Kellermann, Uniformed Services University of the Health Sciences, Bethesda, MD Herb B. Kuhn, Missouri Hospital Association, Jefferson City, MO Peter Neumann, Tufts University School of Medicine, Boston, MA Charles L. Rice, Uniformed Services University of the Health Sciences, Bethesda, MD Sara Rosenbaum, George Washington University, Washington, DC Eduardo J. Sanchez, American Heart Association, Dallas, TX Kenneth B. Wells, Professor in Residence, University of California, Los Angeles, and Senior Scientist, RAND Corporation 62 PRESIDENT’S REPORT SUPPLEMENT Executive Office Clyde J. Behney, The Interim Leonard D. Schaeffer Executive Officer From time to time, cross-cutting program activities are carried out within the IOM executive office, such as the Roundtable on Value & Science-Driven Health Care and the Robert Wood Johnson Foundation Initiative on the Future of Nursing. Some activities require the expertise of IOM colleagues from different areas in the organization. This year, several activities were continued and new, exciting initiatives were launched from the executive office. Current Activities/Studies in Progress • Gustav O. Lienhard Award • The Rhoda and Bernard Sarnat International Prize in Mental Health • Richard and Hinda Rosenthal Lecture Series • The Health Data Initiative • Go Viral to Improve Health: IOM-NAE Health Data Collegiate Challenge • Committee on Approaching Death: Addressing Key End-of-Life Issues • A Healthy America • Roundtable on Value & Science-Driven Health Care Richard and Hinda Rosenthal Lecture Series (December 2012) Since 1988, the IOM has presented an annual lecture series dedicated to bringing greater attention to some of the significant health policy issues facing our nation today. The 2012 Richard and Hinda Rosenthal Lecture, End-of-Life Matters: Cultural Representations Through the Entertainment Arts, explored how the language of the entertainment arts informs our cultural understanding of endof-life care. Through clips from the film Beginners and television medical dramas as well as a live theatrical reading from Sophocles’ Philocetes, the lecture examined the various ways that the arts can provide a platform for an engaging and compelling conversation about care received at the end of life. The event was moderated by Neal Baer, CBS Television, and included panelists Jay Clayton, Vanderbilt University; Bryan Doerries, Outside the Wire; and Kathleen Foley, Memorial-Sloan Kettering Cancer Center. Go Viral to Improve Health (June 2013) The IOM and the NAE challenged college and university students to use health data to develop effective, innovative apps that take on the nation’s pressing health issues in the 2013 Go Viral to Improve Health Data Collegiate Challenge. Working in interdisciplinary teams that brought together technological skills and health knowledge, the IOM and the NAE challenged college stu- PROGRAM LISTING 63 dents to generate exciting and powerful new products—the next “viral” apps—to improve health for communities and individuals. In this the third year of the challenge, 39 submissions were received, and the products were of a high caliber. A team of students from Texas A&M University earned the first-place award with H-Radar, a cross-platform app that utilizes anonymous health data, a cell phone’s global positioning system, and real-time notifications to allow people to link to information and report infectious diseases and symptoms. A multi-school team from University of California, Los Angeles; the Massachusetts Institute of Technology; Harvard University; and the University of Medicine and Dentistry of New Jersey placed second; and third place was awarded to a team from the University of Iowa. Although the IOM and the NAE contributed their resources to the challenge, Heritage Provider Network provided the $10,000 award to the first-place team. End-of-Life Care Activities in the Executive Office (Ongoing) Continuing the national dialogue on end-of-life issues and interest stemming from the publication of the 1998 report Approaching Death: Improving Care at the End of Life, the IOM executive office will examine critical questions that individuals and families face at the end of life. Whether dealing with a long-term illness or an unforeseen medical life-threatening event, questions such as “What are your care preferences? How would you like to live your remaining life? Where do you prefer to die?” often go unanswered. The IOM will commence a study, Approaching Death: Addressing Key End-of-Life Issues, to examine the policies necessary to align end-of-life care with individual values and preferences and assess the challenges and opportunities in integrating end-of-life care into a patient- and family-centered, team-based framework of health and community care. The work of this study will stimulate a national conversation with individuals, families, and communities on improving the way we, as a nation, approach death. A Healthy America The IOM is forging a new collaboration with The Public Good Projects, an independent non-profit media organization, to develop and implement A Healthy America, the country’s largest public health information and media campaign to date. The campaign seeks to promote the notion of health as a core cultural value and will involve coordination with government agencies as well as academic, corporate, and philanthropic sectors. With an emphasis on prevention and health literacy, A Healthy America will use evidence-based storytelling, powerful communications tools, and diverse media platforms to help people of all ages make informed choices about their health. The multifaceted initiative will roll out in 2015, marketing health in every home, workplace, school, and community. Roundtable on Value & Science-Driven Health Care J. Michael McGinnis, Executive Director The Roundtable on Value & Science-Driven Health Care provides a trusted venue for national leaders in health and health care to work cooperatively toward their common commitment to 64 PRESIDENT’S REPORT SUPPLEMENT effective, innovative health care that consistently adds value to patients and society. Members of the roundtable include clinicians, patients, health care organizations, employers, manufacturers, insurers, members of the health information technology field, researchers, and policy makers. Together, they seek “the development of a continuous learning health care system in which science, informatics, incentives, and culture are aligned for continuous improvement and innovation—with best practices seamlessly embedded in the care process, patients and families active participants in all elements, and new knowledge captured as an integral by-product of the care experience.” As leaders in their fields, roundtable members work to identify and engage the key challenges and opportunities for achieving better outcomes and greater value in health care, marshaling the energy and resources of their respective sectors to work for sustained public– private cooperation. The work of the roundtable is conducted through two types of activities: 1.Identification and discussion of priorities in achieving the vision of a continuously learning health system. 2.Fostering action through joint stakeholder projects incubated in six Innovation Collaboratives focused on best clinical practices, communication of medical evidence, clinical-effectiveness research, digital technology for health, incentives for value in health care, and systems approaches for health ( jointly with the National Academy of Engineering). Recent Reports and Discussion Papers 2013 • Partnering with Patients – Meeting Summary and Video • Observational Studies – Workshop Summary • Large Simple Trials and Knowledge Generation in a Learning System – Workshop Summary • Core Metrics for Better Care, Lower Cost and Better Health – Workshop Summary • “Bringing a Systems Health Approach to Health” – Discussion Paper • “From Pilots to Practice: Speeding the Movement of Successful to Effective Practice” – Discussion Paper • “Making the Case for Continuous Learning from Routinely Collected Data” – Discussion Paper 2012 • Digital Data Improvement Priorities for Continuous Learning in Health and Health Care – Workshop Summary • Best Care at Lower Cost: The Path to Continuously Learning Health Care in America • “A CEO Checklist for High-Value Health Care” – Discussion Paper • “Demanding Value from Our Health Care: Motivating Patient Action to Reduce Waste in Health Care” – Discussion Paper PROGRAM LISTING 65 2011 • “Patient–Clinician Communication: Basic Principles and Expectations” – Discussion Paper • “The Common Rule and Continuous Improvement in Health Care: A Learning Health System Perspective” – Discussion Paper Commentaries • Risa Lavizzo-Mourey, M.D., MBA – “Efforts to Reduce Avoidable Readmissions at U.S. Hospitals” • George Thibault, M.D. – “Forging Collaboration: Academia and Health Care Delivery Organizations” • Karen Daley, Ph.D., RN, M.P.H. – “A Continuously Learning Health System in the United States” • Leah Binder – “A Few Nudges for the Choosing Wisely Campaign” • Christine Cassel, M.D. – “Choosing Wisely: Grounded in Physician Professionalism” • Richard Platt, M.D., MS – “A Win for the Learning Health System” • Delos Crosgrove, M.D. – “Transparency: A Patient’s Right to Know” • Darrell Kirch, M.D. et al. – “Achieving Clinical Quality and Patient Safety” • Joseph Fifer, FHFMA, C.P.A. – “Creating High-Value Health Care Consumers: Toward Increased Transparency and Value” • Scott Armstrong, M.B.A. et al. – “Creating Culture to Promote Shared Decision Making at Group Health” • Bruce Siegel, M.D., M.P.H. – “Improving Quality and Patient Safety for Vulnerable Populations” • Aaron Wernham, M.D. – “Ounces of Prevention” Innovation Collaboratives • Best Practices Innovation Collaborative: Health professionals working together for evidencebased best practices • Clinical-Effectiveness Research Innovation Collaborative: Developing innovative approaches to generate evidence for health care decisions • Digital Learning Collaborative: Advancing progress on creating the digital infrastructure required for continuous improvement and innovation in health care • Evidence Communication Innovation Collaborative: Exploring strategies for communicating with patients about health care decision making • Value Incentives Learning Collaborative: Designing and evaluating innovations that reward improved health outcomes while lowering costs 66 PRESIDENT’S REPORT SUPPLEMENT • Systems Approaches to Health Innovation Collaborative: Applying lessons from engineering principles to lay the foundations for a continuously learning health system with better care at lower costs Projects in Development • Discussion Paper: “Modeling Systems Approaches to Health” • Discussion Paper: “Education Strategies for Engineering and Health Collaboration” • Discussion Paper: “Core Expectations for Accountable Care Organizations” • Discussion Paper: “Data-Driven Medicine and Continuously Learning Health Care” • Discussion Paper: “Administrative Costs in Health Care” • Workshop: Data Harmonization and the Continuously Learning Health Organizations • Discussion Paper: “Patients on the Care Team” • Discussion Paper: “Shared Decision-Making Strategies and Tools” Office of Reports and Communications Clyde J. Behney, Deputy Executive Officer Abbey Meltzer, Interim Director of Communications The IOM Office of Reports and Communication (ORAC) is responsible for the IOM’s report review function, communications strategies and activities, and other functions related to the report process and the administration of the IOM. The communications aspect of ORAC’s role has two primary objectives: to increase public understanding about the IOM and what it does and to communicate effectively the substantive messages of the IOM’s studies and activities. ORAC provides leadership, coordination, counsel, and assistance in the development of strategies, products, and services that will enhance the communication and dissemination of IOM reports, activities, and collateral materials. ORAC also administers the Kellogg Health of the Public Fund, an endowment intended to better inform the public and local public health decision makers about messages from IOM reports and activities as well as to develop targeted health resources, intervention strategies, and communication activities that are responsive to the needs of local communities, especially underserved and disadvantaged communities. In addition, ORAC manages the IOM’s website and e-mail marketing—including a monthly electronic newsletter that reaches more than 38,000 people—and is responsible for the biannual report Informing the Future: Critical Issues in Health, which provides an overview of the IOM and its impact. PROGRAM LISTING 67 Ongoing Activities Kellogg Health of the Public Fund The Kellogg Health of the Public Fund is an endowed fund intended to increase the IOM’s impact in its efforts to improve health by better informing the public and local public health decision makers about key health topics, as well as by developing targeted health resources and communication activities that are responsive to the needs of local communities—particularly underserved and disadvantaged communities. Over the past 7 years, since the endowment began distributing funds, the IOM has undertaken numerous activities, extending the work of IOM reports including Health Literacy: A Prescription to End Confusion, Food Marketing to Children and Youth: Threat or Opportunity?, and Weight Gain During Pregnancy: Reexamining the Guidelines. In 2013, the IOM has focused on a diverse set of topics and audiences to carry out the mission of this fund. To reach the general public with messages about commercial sexual exploitation and sex trafficking of minors, the IOM developed a short, animated video based on the September 2013 report Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States. The video was posted on the IOM website and shared with the sponsor and other stakeholders to help increase awareness of the topic and drive traffic to the report’s webpage, where users can find more information. As the IOM looks to reach new audiences, one project in the past year targeted Hispanic women—particularly Mexican American women—with messages from the 2009 report Weight Gain During Pregnancy: Reexamining the Guidelines. The goal of the project was to ensure that Mexican American women understand the appropriate amount of weight to gain during pregnancy to promote their own health and that of their baby. The IOM worked with a number of partners to help spread this message and developed user-friendly tools designed to highlight information from the report. In addition, the IOM is developing a booklet in Spanish that includes common questions and answers about breast cancer and the environment (drawn from the 2011 IOM report Breast Cancer and the Environment: A Life Course Approach). The IOM plans to share this booklet with the partners developed through the project related to pregnancy weight gain. The IOM also is extending the Smart Bites™ program, which launched for the first time in 2008. This program provides incentives for youth to make healthier food choices when dining out by enlisting local restaurants to discount healthy food and beverage items and promote these discounts to students. Building on the success of the pilot program in Bowling Green, Kentucky, the IOM is poised to expand the program into three new communities: San Diego, California; Genesee County, Michigan; and the Eastern Shore of Virginia. More information about the Smart Bites™ program can be found at www.choosesmartbites.org. These projects not only afford the IOM new opportunities to make an impact, they also grant the ability to see how the IOM’s work makes a difference at the community level. IOM FINANCES 69 Institute of Medicine Finances A general overview of the Institute of Medicine’s finances is illustrated in the materials that follow. Chart 1 shows the Institute’s program expenditures over the last several years. Direct program expenditures for fiscal year 2013 are estimated at just over $41M representing a decrease from fiscal year 2012. Our ratio of general operation expenditures to total expenditures remains well below 20 percent. Table 1 presents the detailed dollar expenditures. Sources of funding for general operations and program expenditures for fiscal year 2012 are shown on Charts 2 and 3. The major sources of general operations support remain the indirect cost pool of the National Research Council and income earned from the IOM endowment funds. The Federal Government continues to be the main source of program support, providing 59 percent of the funds in fiscal year 2012; however, this is a decrease from the previous year which was 78 percent. $- $10,000,000 $20,000,000 $30,000,000 $40,000,000 $50,000,000 $60,000,000 FY 2009 FY 2010 FY 2011 FY 2012 Chart 1 Program Expenditures Fiscal Years 2009 through 2013 Est FY 2013 Direct Program Flow-Thru Program 70 PRESIDENT’S REPORT SUPPLEMENT IOM FINANCES 71 Indirect Funds 86% Chart 2 General Operations Support Fiscal Year 2012 Total Budget $6,944,274 Endowment Income 14% 72 PRESIDENT’S REPORT SUPPLEMENT Private 39% IOM 2% Federal 59% HHS 35% Chart 3 Sources of Program Funding Fiscal Year 2012 Total Budget @ $56,454,640 DHS 1% VA 7% USDA 2% STATE 4% Other Federal 5% DOD 5% IOM FINANCES 73 74 PRESIDENT’S REPORT SUPPLEMENT 75 DONORS AND SPONSORS 2013 Private Contributions We gratefully acknowledge the support of private contributors to the Institute of Medicine. The collective, private philanthropy of our members and friends helps to enhance the IOM’s impact as adviser to the nation on health. The Einstein Society In recognition of members and friends who have made lifetime contributions of $100,000 or more to the National Academies as personal gifts or as gifts facilitated by the donor through a donoradvised fund, matching gift program, or family foundation. The following list reflects contributions received as of August 31, 2013. John Abelson David G. Bradley Bruce and Betty Alberts Lewis M. Branscomba The Ambrose Monell Foundation Donald L. Bren Rose-Marie and Jack R. Anderson Sydney Brennera John and Elizabeth Armstrong George* and Virginia Bugliarello Richarda and Rita Atkinson Malin Burnham Norman R. Augustine Fletcher* and Peg Byrom Francisco J. and Hana Ayala Russell L. Carson William F. Ballhaus, Sr.* Charina Endowment Fund Craig and Barbara Barrett Ralph J. and Carol M. Cicerone Thomas D.* and Janice H. Barrow John and Assia Cioffi Jordan* and Rhoda Baruch Paul and Margaret Citron Warren L. Batts A. James Clark Stephen D. Bechtel, Jr. James McConnell Clark Kenneth E. Behring W. Dale and Jeanne C. Compton Gordon Bell Lance and Susan Davis Elwyn and Jennifer Berlekamp Roman W. DeSanctisa Diane and Norman Bernstein Robert and Florence Deutsch Erich Bloch Charles W. Duncan, Jr. Elkan R.a* and Gail F. Blout George and Maggie Eads = IOM Member * = Deceased a 76 PRESIDENT’S REPORT SUPPLEMENT Robert and Cornelia Eaton Yuet Waia and Alvera Kan Harvey V. Fineberga and Mary E. Wilson Fred Kavli Michiko So* and Lawrence Finegold Cindy and Jeong Kim Tobie and Daniel J.* Fink Frederick A. Klingenstein George and Ann Fisher William I. Koch Harold K.* and Betty A. Forsen Jill Howell Kramer William L. and Mary Kay Friend Kent Kresa Eugene Garfield John W. Landis* William H. and Melinda F. Gates William W. Lang Theodore Geballe Geralda and Doris Laubach Penny and Bill George David M.* and Natalie Lederman Nan and Chuck Geschke Bonnie Berger and Frank Thomson Leighton Jack and Linda Gill Whitney and Betty MacMillan William T.* and Catherine Morrison Golden Asad M., Gowhartaj, and Jamal Madni Bernard M. Gordon Davis L. Masten and Christopher Ireland Paul and Judy Gray John F. McDonnell Jerome H.a* and Barbara N. Grossman Robin K. and Rose M. McGuire Corbin Gwaltney William W. McGuirea John O. Hallquist Burt and Deedee McMurtry Margaret A. Hamburga and Peter F. Brown Dane and Mary Louise Miller William M. Haney III G. William* and Ariadna Miller George and Daphne Hatsopoulos George P. Mitchell* Jane Hirsh Gordon and Betty Moore Chad and Ann Holliday Joe and Glenna Moore M. Blakeman Ingle David and Lindsay Morgenthaler Joan and Irwin Jacobs Richard M.* and Janet Morrow Robert L. and Anne K. James C. Daniel and Patricia L. Mote Anita K. Jones Philipa and Sima Needleman Thomas V. Jones Ralph S. O’Connor Trevor O. Jones Peter O’Donnell, Jr. Thomas Kailath Gilbert S. Omenna and Martha A. Darling = IOM Member * = Deceased a 77 DONORS AND SPONSORS Susan and Franklin M. Orr, Jr. Melvin I. Simon Larry and Carol Papay Robert F. and Lee S. Sproull Jack S. Parker* Georges C. St. Laurent, Jr. Shela and Kumar Patel Arnold and Constance Stancell Edward E. Penhoet Edward C. Stone Percy Pollard John and Janet Swanson Robert* and Mayari Pritzker Judy Swanson Allen E. and Marilynn Puckett Charlotte and Morris Tanenbaum Ann and Michael Ramage Peter and Vivian Teets Simon Ramo Gary and Diane Tooker Carol and David Richards Ted Turner Anne and Walt Robb Leslie L. Vadasz Henry M. Rowan Roya and Diana Vagelos Jack W.a and Valerie Rowe Martha Vaughan George Rowe, Jr. Charles M. and Rebecca M. Vest Joseph E.* and Anne P. Rowe Andrew and Erna Viterbi William J. Rutter Robert and Joan Wertheim Stephen * and Anne Ryan Robert M. and Mavis E. White Dame Jillian Sackler John C. Whitehead Raymond and Beverly Sackler Wm. A. Wulf Henry and Susan Samueli Ken Xie Bernard* and Rhoda Sarnat Adrian Zaccaria Maxine L. Savitz Alejandro Zaffaronia Leonard D. Schaeffera Janet and Jerry Zucker Wendy and Eric Schmidt Anonymous a a Sara Lee and Axel Schupf Richard P. Simmons = IOM Member * = Deceased a 78 PRESIDENT’S REPORT SUPPLEMENT IOM Society In recognition of members and friends of the Institute of Medicine who have made lifetime contributions of $20,000 to $99,999 to the National Academies as personal gifts or as gifts facilitated by the donor through a donor-advised fund, matching gift program, or family foundation. The following list reflects contributions received as of August 31, 2013. Dyanne D. Affonso Edithe J. Levit* John R. Ball Margaret E. Mahoney* Jack D. Barchas Maclyn McCarty* Paul Berg Michael and Pat McGinnis Kenneth I. Berns Arno G. Motulsky Floyd E. Bloom Van C. and Barbara Mow Robert and Lillian Brent Woodrow A. Myers, Jr. Roger J. Bulger Robert M. and Marilyn R. Nerem David R. and Jacklyn A. Challoner Quigg Newton* Purnell W. Choppin June E. Osborn Mary Sue Coleman Daniel W. Pettengill* Barry and Bobbi Coller Helen M. Ranney* Colleen Conway-Welch Alexander Rich James F. Crow* William C. Richardson Pedro M. Cuatrecasas Charles A. Sanders William H. Danforth Rudi* and Sonja Schmid Jane and Worth B.* Daniels, Jr. Phillip A. Sharp Robert A. Derzon* Kenneth I. Shine Delbert A. and Beverly C. Fisher Eric M. Shooter Richard L. and Lois E. Garwin Maxine F. Singer James R. Gavin III Robert L. Sinsheimer Bradford H. Gray William N. Spellacy Martha N. Hill Thomas A. and Joan A. Steitz William N. Hubbard, Jr. Rosemary A. Stevens Richard B. Johnston, Jr. Samuel O. Thier Tadamitsu Kishimoto Robert E. Tranquada * = Deceased 79 DONORS AND SPONSORS Peter K. Vogt Jean D. Wilson Gail L. Warden Tachi and Leslie Yamada Irving L. Weissman Warren and Nikki Zapol Torsten N. Wiesel Michael Zubkoff C. Kern Wildenthal Heritage Society In recognition and celebration of members and friends for the thoughtful gesture of planning a gift today that provides for the future by including a bequest to the National Academies in their will or planning another deferred gift. The following list reflects planned gift intentions as of August 31, 2013. Andreas and Juana Acrivos Rita K. Chowa Gene M. and Marian Amdahl John A. Clements Betsy Ancker-Johnson K. Danner Clousera* John C. Angus D. Walter Cohena John and Elizabeth Armstrong Morrel H. Cohen Norman R. Augustine Stanley N. Cohena W. O. Bakera* Colleen Conway-Welcha Jack D. Barchasa John D. Corbett Stanley Baum Ross and Stephanie Corotis Stephen D. Bechtel, Jr. Ellis and Bettsy Cowling Clyde J. Behney Molly J. Coyea Paul Berga Barbara J. Cullitona Franklin H. Blecher* Malcolm R. Currie Elkan R. * and Gail F. Blout Lee L. Davenport* Enriqueta C. Bonda Ruth M. Davis* Daniel Branton Robert A. Derzon* Robert and Lillian Brent Peter N. Devreotes Corale L. Brierley Paul M. Doty* James A. Brierley Mildred S. Dresselhaus Samuel Karlin* and Dorit Carmelli Ernest L. and Eva Eliel* a a a a = IOM Member * = Deceased 80 PRESIDENT’S REPORT SUPPLEMENT Gerard W. Elverum William* and Constance Opie Emanuel Epstein Bradford W. and Virginia W. Parkinson Tobie and Daniel J.* Fink Zack T. Pate Robert C. and Marilyn G. Forney Daniel W. Pettengilla* Jeanne M. Fox* Frank Press Paul H. Gilbert Simon Ramo Martin E. and Lucinda Glicksman Alexander Richa George and Christine Gloeckler Henry W. Rieckena* Christa and Detlef Gloge Emanuel P. Riversa Joseph W. Goodman Richard J. and Bonnie B. Robbins Chushiro* and Yoshiko Hayashi Doris E. Robertsa* Thomas S. Inuia Eugene* and C. Ruth Roberts Richard B. Johnston, Jr.a James F. Roth Anita K. Jones Esther and Lewisa Rowland Jerome Kagana Sheila A. Ryana John W. Landis* Paul R. Schimmela Norma M. Langa Stuart F. Schlossmana William W. Lang Rudia* and Sonja Schmid Edithe J. Levita* Kenneth I. Shinea R. Duncan* and Carolyn Luce Robert L. Sinsheimera Thomas and Caroline Maddock Arnold and Constance Stancell Artur Mager H. Eugene Stanley Jane Menkena Dale F. and Audrey Stein Gordon and Betty Moore Rosemary A. Stevensa Arno G. Motulskya John and Janet Swanson Van C.a and Barbara Mow John A. Swets Guido Munch Esther S. Takeuchi Mary O. Mundingera Paul and Pamela Talalay Philipa and Sima Needleman Ivan M. Viest* Norman F. Ness Willis H. Ware Ronald P. Nordgren Robert and Joan Wertheim Gilbert S. Omenn and Martha A. Darling John Archibald* and Janette H. Wheeler a a = IOM Member * = Deceased 81 DONORS AND SPONSORS Maw-Kuen Wu Anonymous (2) Wm. A. Wulf Tilahun D. Yilma Michael Zubkoffa Catalyst Society In recognition of members and friends of the IOM who contributed $10,000 or more in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through a donoradvised fund, matching gift program, or family foundation. Members Richard and Rita Atkinson Lewis M. Branscomb Harvey V. Fineberg and Mary E. Wilson Penny and Bill George Leonard D. Schaeffer Samuel O. Thier Roy and Diana Vagelos Friends Avram Goldstein* Russell L. Carson Richard B. Johnston, Jr. Jeff Tarr Philip and Sima Needleman Anonymous Gilbert S. Omenn and Martha A. Darling George Rowe, Jr. Rosette Society In recognition of members and friends of the IOM who contributed between $5,000 and $9,999 in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through a donor-advised fund, matching gift program, or family foundation. Members John R. Ball Delbert A. Fisher a = IOM Member * = Deceased Antonio M. Gotto, Jr. Bradford H. Gray Tadamitsu Kishimoto J. Michael McGinnis 82 PRESIDENT’S REPORT SUPPLEMENT Robert M. Nerem Paul A. Offit Jean D. Wilson Friends Jonathan and Suzanne Ellenthal Philip A. Marineau Clara J. Szekely* Challenge Society In recognition of members and friends of the IOM who contributed between $2,500 and $4,999 in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through a donor advised fund, matching gift program, or family foundation. Members Dyanne D. Affonso Nancy C. Andrews Anthony J. Atala Jack D. Barchas William G. Barsan Jacqueline K. Barton Maureen Bisognano Robert J. Blendon Floyd E. Bloom Thomas and Miriam Budinger David R. Challoner Purnell W. Choppin William H. Danforth Peter B. Dervan Leroy E. Hood Tony Hunter * = Deceased James S. Marks Marie C. McCormick Bruce S. McEwen Ronald D. Miller Larry J. Shapiro Eric M. Shooter Robert L. Sinsheimer William N. Spellacy Joan A. Steitz Rosemary A. Stevens Gail L. Warden Myron L. Weisfeldt Thomas E. Wellems and Marilyn I. Powell Owen N. Witte Friend Jay Scott Walker 83 DONORS AND SPONSORS Charter Society In recognition of members and friends of the IOM who contributed between $1,000 and $2,499 in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through a donor-advised fund, matching gift program, or family foundation. Members Francois M. Abboud Bobby R. Alford Arthur K. Asbury Dennis A. Ausiello K. Frank Austen Robert D. Beauchamp Arthur L. Beaudet Steven C. Beering Paul Berg Mina J. Bissell Barry R. Bloom Enriqueta C. Bond Stuart Bondurant Claire D. Brindis William R. Brody Patricia A. Buffler John and Denise Carethers Charles C. J. Carpenter John Chae Frank A. Chervenak Barry and Bobbi Coller Barbara J. Culliton Philip D. Darney and Uta E. Landy Mark E. Davis Mark M. Davis Karen Davis Haile T. Debas Joel A. DeLisa Susan Dentzer Roman W. DeSanctis Sue K. Donaldson Alain C. Enthoven John W. Erdman, Jr. Robert C. Gallo Norman F. Gant Patricia A. Ganz Gary L. Gottlieb Robert Graham Diane E. Griffin David S. Guzick Ashley T. Haase James G. Haughton Jane E. Henney Howard H. Hiatt Martha N. Hill Ada Sue Hinshaw Hedvig Hricak William N. Hubbard, Jr. Richard and Fleur Hynes Alan and Helgi Jobe Michael M. E. Johns 84 PRESIDENT’S REPORT SUPPLEMENT Larry R. Kaiser Emanuel P. Rivers Samuel L. Katz and Catherine M. Wilfert Linda Rosenstock Sung Wan Kim Marla E. Salmon David M. Kipnis Alan C. Sartorelli David Korn Donna E. Shalala Edward A. Kravitz Harold T. Shapiro Raju S. Kucherlapati Michael L. Shelanski Albert Lee Charles J. Sherr Irving M. London Maxine F. Singer George D. Lundberg William and Janet Stead JoAnn E. Manson David and Jane Tirrell Alexander R. Margulis Reed V. Tuckson Reynaldo Martorell Neal A. Vanselow Elizabeth R. McAnarney Peter K. Vogt Angela Barron McBride A. Eugene Washington Roger O. McClellan Myrna M. Weissman William W. McGuire Nancy S. Wexler Mortimer Mishkin Catherine M. Wilfert Harold L. Moses James T. Willerson Van C. and Barbara Mow Gerald N. Wogan John E. Niederhuber Tachi and Leslie Yamada June E. Osborn Elias A. Zerhouni Herbert Pardes Thomas D. Pollard John Edward Porter E. Albert Reece Friends Gordon Baym and Cathrine Blom 85 DONORS AND SPONSORS Other Individual Donors In recognition of members and friends of the IOM who contributed up to $999 in collective support for the National Academies from September 1, 2012 to August 31, 2013. We acknowledge those contributions made as personal gifts or as gifts facilitated by the donor through a donor-advised fund, matching gift program, or family foundation. Members W. Gerald Austen Salim S. Abdool-Karim Joan K. Austin Barbara Abrams John Z. Ayanian Herbert L. Abrams Daniel L. Azarnoff Bernard W. Agranoff Howard L. Bailit Gustavo D. Aguirre Jeffrey R. Balser Margarita Alegria Clyde F. Barker Paula G. Allen-Meares Jeremiah A. Barondess David B. Allison Michele Barry and Mark Cullen Joel J. Alpert Eugene A. Bauer Lawrence K. Altman Bruce J. Baum Stuart H. Altman Stanley Baum Hortensia d. l. A. Amaro John C. Beck Kenneth C. Anderson Richard E. Behrman Norman B. Anderson Leslie Z. Benet Kathleen G. Andreoli Georges C. Benjamin George J. Annas J. Claude Bennett Karen H. Antman Bobbie A. Berkowitz Frances H. Arnold Nancy Berliner Kenneth J. Arrow Eula Bingham Ann M. Arvin John D. Birkmeyer David A. Asch Michelle H. Biros Karen H. Ashe Robert L. Black Barbara F. Atkinson Martin J. Blaser John P. Atkinson Dan G. Blazer Tom P. Aufderheide Clara D. Bloomfield 86 PRESIDENT’S REPORT SUPPLEMENT Thomas F. Boat David A. Clayton Michael L. Boninger Linda Hawes Clever Richard J. Bonnie Jewel Plummer Cobb William H. Bowen D. Walter Cohen L. Thompson Bowles Sheldon Cohen W. Thomas Boyce Mary Sue Coleman Allan M. Brandt Anna B. Coles Paula A. Braveman Jack M. Colwill Rachel and Henry Brem Edward J. Connors Patricia F. Brennan Max D. Cooper Devra M. Breslow Peter Cresswell Norman E. Breslow Susan J. Curry Ralph L. Brinster George Q. Daley Claire V. Broome Chi and Mary Dang Dorothy Brooten Nancy E. Davidson Rebecca H. Buckley Ciro de Quadros Joseph A. Buckwalter Catherine D. DeAngelis Kathleen Coen Buckwalter Alan H. DeCherney Benjamin S. Bunney John O. DeLancey Gerard N. Burrow Robert J. Desnick Michael L. Callaham Don E. Detmer Ned Calonge Angela Diaz M. Paul Capp Luis A. Diaz William B. Carey Nancy Wilson Dickey Webster K. Cavenee William H. Dietz Martin Chalfie Salvatore DiMauro Setsuko K. Chambers Vishva M. Dixit R. Alta Charo Andrew D. Dixon Lincoln C. Chen Jack E. Dixon Zang-Hee Cho Kathleen A. Dracup Rita K. Chow Jeffrey M. Drazen Francisco G. Cigarroa Deborah A. Driscoll 87 DONORS AND SPONSORS Mitzi L. Duxbury Joe G. Garcia Johanna T. Dwyer Atul Gawande Felton Earls and Maya Carlson Kristine M. Gebbie Timothy Eberlein Apostolos Georgopoulos Richard H. Egdahl John P. Geyman Herman N. Eisen Richard A. Gibbs David and Lucy Eisenberg Irma Gigli Mickey S. Eisenberg David Ginsburg Neil J. Elgee Jonathan D. Gitlin Robert M. Epstein Linda C. Giudice Carroll L. Estes Seymour and Brenda Glick William E. Evans Stephen P. Goff Stefan S. Fajans Alfred L. Goldberg Harold J. Fallon Lewis R. Goldfrank Diana L. Farmer Bernard D. Goldstein Rashi Fein Joseph L. Goldstein Donna M. Ferriero Francisco Gonzalez-Scarano Joseph J. Fins Enoch Gordis Gary R. Fleisher Emil C. Gotschlich Thomas R. Fleming Patricia A. Grady Stephen P. Fortmann Margie and Larry A. Green Daniel W. Foster Deborah Greenspan Henry W. Foster, Jr. John S. Greenspan Ellen Frank and David Kupfer Paul F. Griner Dennis G. Fryback Ellen R. Gritz Elena Fuentes-Afflick Gerald N. Grob Margaret T. Fuller Michael Grossman Terry T. Fulmer Melvin M. Grumbach Fred H. Gage Bernard Guyer Mitchell H. Gail Zach W. Hall Vanessa Northington Gamble Charles B. Hammond Theodore G. Ganiats Qide Han 88 PRESIDENT’S REPORT SUPPLEMENT Barbara C. Hansen Alexandra L. Joyner Richard W. Hanson Roger D. Kamm Stephen W. Hargarten Morris J. Karnovsky Charlene A. Harrington Nancy Kass Richard J. Havel Jerome P. Kassirer Samuel Hawgood Michael B. Kastan Maxine Hayes Daniel Kastner Jerris and Susan Hedges Michael Katz Arthur L. Herbst Emmett B. Keeler George C. Hill and Linda Haire-Hill David A. Kindig Kurt and Rochelle Hirschhorn Lonnie J. King Rochelle Hirschhorn Talmadge E. King, Jr. Helen H. Hobbs Raynard S. Kington King K. Holmes Seymour J. Klebanoff Thomas F. Hornbein Herbert D. Kleber H. Robert Horvitz Claude B. Klee Susan Band Horwitz Charles R. Kleeman James S. House David J. Kupfer and Ellen Frank Peter M. Howley Nathan Kuppermann Jennifer L. Howse Michael D. Lairmore George Hripcsak Norma M. Lang James M. Hughes Joseph Larner Barbara S. Hulka Joyce C. Lashof Peter B. Hutt Cato T. Laurencin Sharon K. Inouye Judith R. Lave Kurt J. Isselbacher Robert S. Lawrence James S. Jackson Wendy and Ted Lawrence Richard J. Jackson John Q. Trojanowski and Virginia Man-Yee Lee Elaine Sarkin Jaffe Richard Janeway Roger A. Johns Timothy S. Jost Michael L. LeFevre Caryn Lerman Howard Leventhal 89 DONORS AND SPONSORS Myron M. Levine Beverly S. Mitchell Richard P. Lifton Richard T. Miyamoto Jennifer Lippincott-Schwartz James W. Mold Roderick J. Little John Monahan Jay Loeffler and Nancy Tarbell Jonathan D. Moreno Ann C. Macaulay Marsha A. Moses Susan E. Mackinnon Arno G. Motulsky Ruth Macklin John H. Moxley III Peter and Marlene MacLeish Fitzhugh Mullan Albert Macovski Frederick A. Murphy Adel A. Mahmoud Suzanne P. Murphy Henri R. Manasse, Jr. Milap C. Nahata Audrey F. Manley Carl F. Nathan Willard G. Manning Jack Needleman Vincent T. Marchesi Eric J. Nestler Howard Markel Liz and Ben Neufeld Paul A. Marks Duncan B. Neuhauser Barry and Adrienne Marshall Maria Iandolo New George M. Martin Jennifer R. Niebyl Joseph B. Martin Nancy Nielsen Manuel Martinez-Maldonado Elena and Stuart Nightingale Ida M. Martinson Ruth S. Nussenzweig Carol A. Mason William L. Nyhan Bettie Sue S. Masters Charles P. O’Brien Rowena G. and Larry S. Matthews Olufunmilayo F. Olopade Charles A. McCallum Walter A. Orenstein Elizabeth A. McGlynn Joseph P. Ornato David Mechanic Peter Orszag Richard A. Merrill J. Marc Overhage and Mary Brunner Emmanuel Mignot and Servane Briand Peter Palese I. George Miller, Jr. Guy H. Palmer Lloyd B. Minor Arthur B. Pardee 90 PRESIDENT’S REPORT SUPPLEMENT John A. Parrish Jane S. Richardson Ira H. Pastan William C. Richardson Robert E. Patricelli Barbara K. Rimer Nicholas A. Peppas Neil J. Risch David H. Perlmutter Saul A. Rosenberg Ora H. Pescovitz Dr. David Rosner Christine Petit Diane Rowland Robert and Katherine Phillips Esther and Lewis Rowland Theodore L. Phillips David R. Rubinow Marina Picciotto Abraham M. Rudolph Chester M. Pierce Erkki Ruoslahti Vivian W. Pinn William M. Sage Jeffrey L. Platt Bruce J. Sams Stanley A. Plotkin Peter T. Scardino Peter J. Polverini Jane G. Schaller Claire Pomeroy Thomas C. Schelling Michael I. Posner Joseph E. Scherger Deborah E. Powell Gerold L. Schiebler Donald L. Price Fritz H. Schroder Paul G. Quie Thomas L. Schwenk Thomas C. Quinn Matthew P. Scott Mitchell T. Rabkin Nevin S. Scrimshaw* Daniel J. Rader and Carolyn C. Cannuscio Donald W. Seldin Marilyn J. Rantz Iris R. Shannon Judith L. Rapoport George F. Sheldon Robert D. Reischauer Henry R. Shinefield Allan L. Reiss Edward H. Shortliffe Mary V. Relling Ira Shoulson Alexander Rich Carolyn W. Slayman Charles C. Richardson James P. Smith * = Deceased 91 DONORS AND SPONSORS Louis Sokoloff Diane W. Wara Jeannette E. South-Paul Kenneth E. Warner Harold C. Sox, Jr. Stephen T. Warren Frank E. Speizer Judith Wasserheit Allen M. Spiegel Connie M. Weaver Joseph W. St. Geme III Paul C. Weiler Zena A. Stein Sheldon Weinbaum Donald M. Steinwachs John B. West David K. Stevenson Raymond P. White, Jr. Barbara J. Stoll Jeffrey A. Whitsett Robert Straus Torsten N. Wiesel Brian L. Strom Linda S. Wilson Mervyn W. Susser Ruby L. Wilson Megan Sykes Phyllis M. Wise Lawrence A. Tabak Mary Woolley Nancy J. Tarbell Laurence R. Young Palmer W. Taylor Huda Y. Zoghbi Susan S. Taylor George D. Zuidema Gerald E. Thomson Anonymous Mary E. Tinetti Robert E. Tranquada Friends Arthur C. Upton Linda H. Barondess Inder M. Verma Marian B. Carlson Sten H. Vermund John A. Dracup Barbara Vickrey Olivia Tournay Flatto Antonia M. Villarruel Raghav Govindarajan Bruce C. Vladeck Leonard Lauder Edward H. Wagner Daniel Pruski Edward E. Wallach Fatoumata Sangare Christopher T. Walsh Athanasios Theologis 92 PRESIDENT’S REPORT SUPPLEMENT Foundations, Corporations, and Other Organizations In recognition of foundations, corporations, and other organizations that made gifts and grants to the IOM from September 1, 2012 to August 31, 2013. Foundations American Board of Pediatrics Foundation Archstone Foundation Lance Armstrong Foundation The Atlantic Philanthropies (USA) Michael J. Fox Foundation for Parkinson’s Disease The Bill & Melinda Gates Foundation George Family Foundation William T. Grant Foundation Bernard Van Leer Foundation Greater Kansas City Community Foundation The Breast Cancer Research Foundation Greater Rochester Health Foundation Burroughs Wellcome Fund Healthy Weight Commitment Foundation California Community Foundation Herbst Family Foundation The California Endowment The William and Flora Hewlett Foundation California HealthCare Foundation International Health Foundation The Carson Family Charitable Trust The JCT Foundation CDC Foundation, Inc. Jewish Healthcare Foundation China Medical Board The Robert Wood Johnson Foundation The Commonwealth Fund Joyce Foundation Community Foundation for Southeastern Michigan The JPB Foundation Connecticut Health Foundation, Inc. Michael and Susan Dell Foundation Doris Duke Charitable Foundation The Henry J. Kaiser Family Foundation The Katz Family Foundation W. K. Kellogg Foundation East Bay Community Foundation The Susan G. Komen Breast Cancer Foundation The Ellison Medical Foundation The Kresge Foundation John E. Fetzer Institute, Inc. LIVESTRONG Foundation Fidelity Charitable Gift Fund Foundation for Child Development The John D. and Catherine T. MacArthur Foundation James F. and Sarah T. Fries Foundation Josiah Macy, Jr. Foundation 93 DONORS AND SPONSORS March of Dimes Foundation Becton, Dickinson and Company McCormick Foundation Bessemer Trust McKnight Brain Research Foundation Blue Shield of California Foundation Miami Foundation BlueCross and BlueShield Association Milbank Memorial Fund Bristol-Myers Squibb Company Missouri Foundation for Health Cargill, Inc. The Ambrose Monell Foundation Charles River Laboratories International, Inc. Gordon and Betty Moore Foundation NATA Research & Education Foundation New York State Health Foundation The Coca-Cola Company Colgate-Palmolive Company The David and Lucile Packard Foundation ConAgra, Inc. The Robert & Margaret Patricelli Family Foundation, Inc. Duke Corporation Epic Lisa and John Pritzker Family Fund ExxonMobil Foundation The Seattle Foundation Fondation Merieux USA, Inc. Alfred P. Sloan Foundation GE Healthcare The Clara J. Szekely Foundation, Inc. Genentech, Inc. The Wellcome Trust General Mills, Inc. Zerhouni Family Charitable Foundation, Inc. Genetic Alliance Corporations Genomic Health, Inc. GlaxoSmithKline HCA Inc. Abbott Laboratories Home Box Office, Inc. Aetna Foundation Humana, Inc. Aetna, Inc. International Business Machines Corporation Amgen, Inc. Anheuser-Busch InBev Anthem Blue Cross Blue Shield AstraZeneca Pharmaceuticals LP Avon Foundation for Women Janssen Pharmaceutica Inc. Johnson & Johnson Kaiser Permanente LeadingAge, Inc. Life Technologies, Inc. 94 PRESIDENT’S REPORT SUPPLEMENT Eli Lilly and Company Lundbeck Research & Development Other Organizations The MAC Aids Fund Academy Consortium for Complementary & Alternative Health Care Mars Incorporated Academy of Nutrition and Dietetics McDonald’s Corporation Accreditation Council for Graduate Medical Education Medtronic, Inc. Merck & Company, Inc. Merck Partnership for Giving Mondelez Global International Monsanto Company Nemours Foundation Northrop Grumman Corporation Novartis Pharmaceuticals Corporation Novo Nordisk Diabetes Innovation Award Program Partners HealthCare Systems, Inc. Alliance for a Healthier Generation, Inc. Alliance for Continuing Medical Education Alzheimer’s Association American Academy of Family Physicians American Academy of Nurse Practitioners American Academy of Nursing American Association for Cancer Research PepsiCo, Inc. American Association of Colleges of Nursing Pfizer Foundation Matching Gifts Program American Association of Colleges of Osteopathic Medicine Pfizer, Inc. American Association of Colleges of Pharmacy Premier Sanofi Pasteur Sanofi-Aventis SCAN Foundation Schering-Plough Corporation Schwab Charitable Fund Takeda Pharmaceuticals Tate & Lyle Ingredients Americas, Inc. United Health Foundation American Association of Nurse Anesthetists American Biological Safety Association American Board of Family Medicine American Board of Internal Medicine The American Board of Obstetrics and Gynecology American Cancer Society, Inc. United Healthcare American College of Emergency Physicians UnitedHealth Group, Inc. American College of Medical Genetics Wells Fargo Advisors, LLC American College of Nurse-Midwives Wyeth American College of Obstetricians & Gynecologists 95 DONORS AND SPONSORS American College of Physicians Campaign for Tobacco-Free Kids American Dental Association Catholic Health Initiatives American Dental Education Association College of American Pathologists American Diabetes Association Council of Academic Programs in Communication Sciences and Disorders American Geological Institute The Critical Path Institute American Geriatrics Society Economic & Social Research Council American Medical Association Emergency Nurses Association American Nurses Association FasterCures American Nurses Credentialing Center Federation of American Societies for Experimental Biology American Occupational Therapy Association, Inc. Gerontological Society of America American Psychological Association Health Partners American Red Cross Infectious Diseases Society of America American Society for Microbiology International Society for Stem Cell Research American Society for Radiation Oncology American Society of Clinical Oncology International Society for Cardiovascular Translational Research American Speech-Language Hearing Association Martin Blanck Associates, LLC Mayo Clinic The American Veterinary Medical Association National Academies of Practice Association of American Cancer Institutes Association of American Medical Colleges Association of American Veterinary Medical Colleges Association of Schools and Colleges of Optometry Association of Schools of Allied Health Professionals Association of Schools of Public Health California Dental Association California Institute for Regenerative Medicine National Association of County and City Health Officials National Association of Emergency Medical Technicians National Association of Social Workers National Board for Certified Counselors, Inc. National League for Nursing, Inc. National Multiple Sclerosis Society National Organization for Associate Degree Nursing National Society of Genetic Counselors North Shore–LIJ Health System The Obesity Society 96 PRESIDENT’S REPORT SUPPLEMENT Oncology Nursing Society Tufts University Physician Assistant Education Association University of California, San Francisco Rutgers, The State University of New Jersey Society for Neuroscience Society for Simulation in Healthcare Texas Association of Nonprofit Organizations Trauma Center Association of America, Inc. University of Maryland Faculty Physicians, Inc. University of Washington Vitality Group, LLC Joan and Sanford I. Weill Medical College & Graduate School YMCA of the USA We have made every effort to list donors accurately and according to their wishes. If we have made an error, please accept our apologies and contact the development office at (202) 334-1342 so that we can correct our records. IN MEMORIAM Institute of Medicine members whose deaths occurred since October 2012 Patricia A. Buffler Noah R. Calhoun David R. Cox Peter B. Dews Donna Diers Ronald W. Estabrook Robert A. Fishman Emil Frei, III Caroline Breese Hall Maureen M. Henderson Robert L. Hill C. Everett Koop Alexander Leaf Wataru Mori Robert H. Moser Joseph E. Murray Edmund D. Pellegrino Henry W. Riecken Francis H. Ruddle Stephen J. Ryan Nevin S. Scrimshaw Lawrence A. Shepp Gloria R. Smith David H. Solomon Morton N. Swartz Homer R. Warner Asa G. Yancey, Sr. 97 500 Fifth Street, NW Washington, DC 20001 TEL 202.334.2352 FAX 202.334.1412 www.iom.edu The Institute of Medicine serves as adviser to the nation to improve health. Established in 1970 as the health arm of the National Academy of Sciences, the Institute of Medicine is a nonprofit organization that works outside of government to provide unbiased and authoritative advice to decision makers and the public.
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