NTM Sampler 5 - Natural Transitions
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Natural Transitions Magazine SAMPLER Conscious, holistic approaches to end of life I N a t u r a l Tr a n s i t i o n s M a g a z i n e I 10 Rebecca Teague Rebecca Teague See what we have. SUBSCRIBE! ADVERTISE! SHARE! Natural Transitions Magazine SAMPLER Conscious, holistic approaches to end of life a time to die... Rebecca Teague Love in the Room By Rebecca Teague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ÁRZHUVJHPVWRQHVWHDUVDQG SHDFH , UHDOL]HG GXULQJ WKDW ZHHN DIWHU 0RUJDQ SDVVHG WKDW,KDYHDQLPSRUWDQWVWRU\WRWHOO²DQG,QHHGHGWR XVHP\FDPHUD WKHOLJKW WKHSHDFH , GLG QRW NQRZ KRZ PXFK ORYH ZRXOG EH LQ WKDW URRP , ZLOO QHYHU IRUJHW WKDW GD\ EXW PRVW RI DOO , ZLOO QHYHU IRUJHW WKDW PRPHQW ZKHQ , ÀUVW VDZ KHU 6KHORRNHGVREHDXWLIXO7KLVZDVWKHÀUVWWLPHLQP\ OLIHWKDWGHDWKKDGHYHUPDGHVHQVHLQP\PLQGDQG KHDUWDQGLWZDVLQWKDWLQVWDQWWKDW,NQHZWKDWHY HU\WKLQJ , KDG VHHQ DERXW FDULQJ IRU RXU ORYHG RQHV ZDVZURQJ²RUDWOHDVWYHU\LQFRPSOHWH7KHUHZDV DQRWKHUZD\7KHUHZDVDZD\WRKRQRUWKHOLYLQJDQG 9 I Winter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ÀQDO SDVVDJH 5HEHFFD7HDJXHLVWKHFKLOGRIWZRDUWLVWVZKRJDYHKHUKHU ÀUVWFDPHUDDWDJH6KHFXUUHQWO\WHDFKHVSKRWRJUDSK\WR PLGGOHVFKRROVWXGHQWVZZZUHEHFFDWHDJXHFRP Natural Transitions Magazine SAMPLER Conscious, holistic approaches to end of life ALL PHOTOGRAPH BY AKristine Lauria cultural contrasts Amish Ways: Not Always Plain & Simple By Kristine Lauria T he Amish are born at home and die at home. This is their way. I began my midwifery apprenticeship in 1989, with Mary, who was serving the Amish in rural central Ohio. I had often heard the Amish referred to as “plain and simple.” But their lives are as complex as the exquisite quilts for which they are so well-known. Mary and I did rounds on Mondays and Thursdays, driving to each family that needed a prenatal or postpartum visit. Impending births were kept secret from the children, who were not supposed to know why we were there. They were always shooed outside to play when we arrived. Once while peeking out the window, we caught a glimpse of several climbing the bumper of Mary’s Bronco. We overheard one say, “This must be where they hide the babies.” moving at 36 weeks of pregnancy, Mary and I confirmed what Mattie already knew: her baby had died. After some discussion, it was decided we would induce labor the next day at Mary’s house. Mattie did not want to wait for labor to start on its own; it could be weeks away. The castor oil and herbs we used to induce labor worked quickly and a normal labor pattern was established by noon the following day. Around suppertime, Mattie was ready to push. It was difficult, I could tell. She later told me the baby did not help. No, it wouldn’t, I thought. There was no life force there. At 7 pm, Mattie delivered a girl, slack and still, into my hands. I cut the cord; there was no reason to allow it to pulsate. Reverently, I wrapped the baby in a blanket, and handed the bundle to her mother. The room was quiet as snowfall, unlike any other birth I had attended. ´WKHJULHILVVR SULYDWHWKDWSDUHQWV GRQRWZDQWDQ\RQH HOVHWREHDUZLWQHVV WRWKHLUDJRQ\µ The Amish are cordial but reserved when first meeting outsiders, or “English.” Even though I was with Mary, they still had to scrutinize and question me. Only after attending births in which I dealt appropriately with complications was I fully accepted, and trusted. I met Mattie in mid-summer when she was halfway through her second pregnancy. A statuesque, sturdy, German-looking woman with luminous blue eyes and blond hair, she was 24-years-old, only two years younger than I was at the time. When she didn’t feel her baby 5 I Summer 2011 I There was to be only a small, familyattended burial on the third day, which was customary. The little girl would not be named; she would be buried in the cemetery across the road from the family’s farm, in an unmarked grave. I was disappointed that I wasn’t invited to attend, and sad that the little girl’s brief life seemed to mean so little. But, having seen parental grief on several subsequent occasions, I have come to understand it better. I believe the grief is so private that parents do not want anyone else to bear witness to their agony. It is so profound and tender, no onlooker could ever begin to understand. Natural Transitions Magazine SAMPLER Conscious, holistic approaches to end of life Aside from a few postpartum visits, I would not see Mattie again until she became pregnant with another baby. But at six weeks postpartum, she hemorrhaged so badly that Jacob, her husband, called an ambulance. Mary and I went to see Mattie as soon as she was home from the hospital. We found out her hemorrhage was due to choriocarcinoma, a rare cancer that sometimes develops after a pregnancy. It was growing rapidly, but was curable with chemotherapy and radiation. Not only could Mattie survive this, but she could go on to have more babies. I read all I could on the subject to help Mattie be better informed. The autumn leaves were falling when I started driving Mattie and her mother back and forth to the oncologist at University Hospital in Columbus, where she could have blood drawn and start her treatments. The oncologist was kind and gentle. I probed him with questions and he answered every one, so I could help the family understand what was happening. But after the first chemotherapy treatment, Mattie was sick and vomiting. Her hair fell out in clumps. She refused further treatment and would not go back to the hospital. She asked me to inform the oncologist. than that to know what was written. This would be the last time I saw him. I thanked him for all he had done for Mattie, and for all he had tried to do. I still visited Mattie every week. We were friends now. One clear and bright day in June I arrived while Mattie was weeding in her vegetable garden, her toddler at her side. Amish gardens are a thing of beauty because they’re framed with rows of marigolds to keep the bugs away. It is clear they take much pride in them, even though pride is not a quality the Amish embrace. Mattie looked thin and frail. Her breathing was labored. By this time I had read enough to be an expert on this cancer, and I knew it had spread to her lungs. My heart sank. Until then I had held out hope for a miracle; who was I to doubt their faith? But this was the moment I knew for certain she was going to die. ´8QWLOWKHQ,KDG KHOGRXWKRSHIRUD PLUDFOHZKRZDV, WRGRXEWWKHLUIDLWK"µ It was later decided that I would be allowed to do a weekly blood draw on Mattie to check her HCG level. Measuring this hormone was the only way to know if the cancer was growing. The oncologist also provided IV bags of chemotherapeutic drugs, which Mattie agreed I could adminster to her at home. Without the localized radiation, however, he was doubtful that chemotherapy would help. But he was willing to do anything to keep Mattie from completely backing out of treatment. All winter I made my weekly pilgrimages to Mattie’s house. I would start her IV, hook up the bag, and Mattie and I would have tea and talk while the drugs dripped slowly into her veins. The treatment was not working. Lab tests revealed her HCG level climbing at an alarming rate. Mattie and her family decided on a hysterectomy, since the cancer originated in her uterus. The cancer had already spread to other parts of her body, however, so a hysterectomy would not help. But no amount of explanation would persuade them to let go of this idea. The oncologist agreed to the surgery. He bartered two beautiful quilts for his fee; the family would only have to pay the hospital bill. He also agreed to return Mattie’s uterus after it had been examined by pathology. The Amish do not leave body parts behind; they believe in a proper burial for all parts of the person. So, after the surgery, I retrieved the uterus from pathology and gave it back to Mattie. The surgery did not help, and the family did not understand. They asked me to deliver a note to the oncologist. He greeted me in his office and I sat across from him as he read it. Tears welled in his eyes, and I didn’t need anymore The months passed and Mattie got sicker. I visited her every time I did my rounds in her community. By December, snow was falling and Mattie was bedridden; her belly was filled with so much fluid that she appeared to be in the ninth month of pregnancy. I said my final goodbye to her that day, because I knew I would not see her alive again. The call came a day later. Mattie had passed and the funeral would be in three days. I was invited to attend. In the three days following an Amish death, the body is washed, and white clothes are prepared. For a woman, this is usually the shawl and bonnet she wore at her wedding. The body is never left unattended. A pine coffin is made by carpenters in the community. It is simple and unadorned, with no lining or padding inside. It takes the full three days to dig the grave, a job performed by men in the community. The task would be especially difficult for Mattie, because the ground was frozen. The women start baking and cooking for the lavish meal served after the funeral service. On the third day, I drove to Mattie’s parents’ house. A sea of black buggies covered the huge yard, along with a conspicuous row of passenger vans hired by the Amish that had come from neighboring states. My red Mazda looked out of place. As I walked past the group of van drivers, they stopped their conversation, eyed me curiously, and nodded politely in unison. I heard one of them whisper “Mennonite.” It was beyond their comprehension that an “English” would be at an Amish funeral; indeed, it was almost unheard of. As I reached the house, an Amish woman came out to greet me. She had clearly been assigned to watch for my arrival. It would have been a huge faux pas had I gone into the house where the men were gathered. During community events men and women are separate. The women waited in another building. Once we were called to enter the house, I followed the lead of the Amish women. There were rows and rows I N a t u r a l Tr a n s i t i o n s M a g a z i n e I 6 Natural Transitions Magazine SAMPLER Conscious, holistic approaches to end of life of benches; everything else had been moved out of the room. We all sat sandwiched together on the benches designated for women, which were across from the men who had entered the house from a different door. The casket was in the center of the room. ´,KDGSOHQW\RIWLPH WRSRQGHUZKDWZDV WRPHWKHVHQVHOHVV ORVVRIP\IULHQGµ The preacher began the service. Not only was it three hours long, but was also in German. I had plenty of time to ponder what was, to me, the senseless loss of my friend. I didn’t know whether the decisions about Mattie’s health care were her own, or were made by her parents and the elders of the church. At the end of the service there was a pause, then some words that were repeated in English, just for me: Mattie’s full name and the dates of her birth and death. We all filed past the casket on our way out. Mattie was dressed in white, ready to be buried next to her baby daughter. The casket was carried out by four men and put in a black buggy, which would take her to the cemetery. Another brief service would be conducted there for the immediate family. As soon as everyone had filed out, the women hurried 7 I Summer 2011 I to other buildings, and, carrying copious amounts of food, went back into the house. When we were ushered back in, rows of tables and benches had been set up and food laid out. The women with whom I sat were kind and friendly towards me – everyone seemed to know who I was. After eating, we quickly moved on so the table could be cleared for the next group to come in and eat. There were over 300 people. The whole event was orchestrated with expert precision and speed, although I never felt rushed. I marveled at this efficiency, just as I did for almost everything I witnessed among the Amish. My experiences with the Amish forever altered my perceptions on death and end-of-life issues and choices. Although I did not understand the choices Mattie and her family made, I came to respect and honor them. And, after many years, I have come to realize that choices surrounding death, like birth, aren’t always so plain and simple. Kristine Lauria currently lives with her son and practices midwifery in Nederland, Colorado. 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