Cynthia Booth, MS, RN, APN, University of Illinois at Chicago

SPECIALIZED CARE
FOR CHILDREN
Serving Illinois Children with
Special Health Care Needs
Transitioning Children with Complex Medical
Conditions from Hospital to Home:
The Role of DSCC
Cynthia Booth, MS, RN, APN
Home Care Program Liaison
5th Annual ABC Conference
Conflict of Interest Disclosures for
Cynthia Booth
Grant/Research Support
Nothing to disclose
Consultant
Nothing to disclose
Speakers Bureau
Nothing to disclose
Stock Shareholder
Nothing to disclose
Other (identify)
Nothing to disclose
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Educational Objectives
Explain DSCC
Programs & Services
Hom
Understand the role
of DSCC in transition
from hospital to home
Describe the benefits
of collaboration between DSCC,
physicians, hospitals & other providers
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Who We Are
Illinois’ Title V organization since 1937
We partner with Illinois families and communities
to help children and youth with special
healthcare needs connect to services and
resources.
We help children with special needs
Nurses
Social Workers
Speech & Language
Pathologists
UIC SPECIALIZED CARE FOR
CHILDREN
Audiologists
Advanced Practice Nurses
Respiratory Therapists
Medical Insurance Specialists
(800) 322-3722
dscc.uic.edu
Core Program
Child has a medically eligible condition
Orthopedic
Eye impairment
bone, joint, muscle
Neurologic
nerve, brain, spinal cord
Cardiac
External body impairment
cleft lip/palate & severe burn scars
Hearing loss
Speech condition
require medical/dental treatment
UIC SPECIALIZED CARE FOR
CHILDREN
cataracts, strabismus, and certain
retinal conditions
Cystic fibrosis
Hemophilia
Certain inborn metabolic
problems
PKU, galactosemia
Urinary impairment
kidney, ureter, bladder
(800) 322-3722
dscc.uic.edu
Home Care Services
Care coordination
Respite care*
Environmental & vehicle
modifications*
Family training*
In-home shift nursing
Specialized training of
nurses*
Special equipment and
supplies
treatment regimens
use of medical
equipment specified in
the plan of care
CPR
Child/family counseling*
*waiver services
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Working Together:
Intake Process
Referral; application; authorization; MD letter;
medical reports
Home visit; select nursing agency and DME;
summarize and submit application to HFS
QIO review (Kepro)
Approval and resource allocation
Monthly budget for home nursing; coordinate
with parent/DSCC/Nursing agency
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Barriers to Discharge
Unstable or changing medical condition
Lack of safe home
Lack of trained caregiver
Lack of parent cooperation
Obtaining appropriate supporting
documentation (detailed nursing care notes)
Time required for development and approval
of comprehensive home medical plan
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Overcoming Barriers
Understanding the process
Early referral
Transitional care
Good communication
Liaison role
Providing complete documentation
throughout hospital stay
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Website
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Referrals are Easy
Call us (800) 322-3722
caregiver’s name
phone number
child’s address
county or zip code
Visit our website dscc.uic.edu
fill in family information
submit web form
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu
Thank you!
UIC SPECIALIZED CARE FOR
CHILDREN
(800) 322-3722
dscc.uic.edu