2009 2010 Annual Report - The November Group Administration

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Movement · Struggle · Creation · Victory
Tourette Syndrome
Foundation of Canada
2009 2010 Annual Report
®
La Fondation canadienne
du syndrome de la Tourette
Tourette Syndrome
Foundation of Canada
Who Are We?
Established in 1976, the Tourette Syndrome Foundation of Canada
(TSFC) is the only federally registered, charitable organization of
volunteers assisting individuals affected by Tourette Syndrome (TS)
and its associated disorders. We are dedicated to improving the
quality of life for those with, or affected by, Tourette Syndrome
through programs of education, advocacy, self-help and the
promotion of research.
Our Mission
The Tourette Syndrome Foundation of Canada is a national
voluntary organization dedicated to improving the quality of life
for those with or affected by Tourette Syndrome through programs
of education, advocacy, self-help and the promotion of research.
Vision
All people who have Tourette Syndrome will lead quality lives as
accepted and valued members of an informed, tolerant society.
Core Values
The Tourette Syndrome Foundation of Canada will carry out its
mission and work toward its objectives and purposes with integrity,
professionalism, mutual respect, compassion and responsiveness.
Annual Report 2009 2010
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Contents
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Taking Up t
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Fresh Talent
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Drawing Stre
On Display
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Champions · 1
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2009 2010 Annual Report
President’s Message
New Beginnings
In my first message of 2010, as the New Year unfolded and a new decade
began I shared that it was the beginning of many new initiatives for the
Foundation. After settling into our new offices in Mississauga and the
launch of a newly designed website, work began on a series of initiatives
aimed at expanding our funding base and engaging our members like
never before.
Following the 2009 AGM as the newly elected President, I was excited to work with our new
Board of Directors and continue to explore the opportunities before us. The Foundation
developed a partnership with the global marketing firm of Saatchi & Saatchi to build a major
public awareness initiative. Human Resources and Skills Development Canada (HRSDC)
awarded our first Federal Grant to start a new education and self-advocacy program for our
youth called, It’s Your Move. Fundraising is a key component of our strategic and annual
business plans. While the economy has taken a toll for a number of charities, our second annual
Trek for Tourette was conducted across Canada on March 21st. While the total of funds raised
fell by a short margin from the first event, we involved more of our affiliates across the country
and continue to expand awareness of Tourette Syndrome and the national organization. Our
third Trek has been planned for March 27th, 2011. In order to further maximize our fund raising
efforts, a relationship was developed with FMS to assist with the annual golf tournament another
key fundraising event. Another area within the fundraising strategy is the development of
partnerships with other organizations. In 2009 we further expanded upon our relationship
with the Canadian Police Curling Association who has designated the Tourette Syndrome
Foundation of Canada as their charity of choice. We were fortunate to be adopted for the first
time by a company called SBLR as their charity of choice for 2010.
New Additions
At the National Office and due in part to the HRSDC grant, we have been able to add a couple
of new members to our office team so we can increase our services for our members and affiliates.
A number of programs were undertaken in the first phases of development in 2009. Throughout
this past year we have continued our work with the Neurological Health Charities Coalition of
Canada (NHCC), a group of neurological health organizations whose mandate is the
development of a neurological strategy for Canada in partnership with Health Canada. Our
Advocacy and Volunteer Development Committees have continued to develop programs to
help parents of youth with TS become effective advocates within the school system, as well as
Annual Report 2009 2010
4
an updated in-service training program to be used with our new software platform that will
provide volunteers with web based independent training.
New Connections
Our Board of Directors and the Professional Advisory Committee were able to undertake our
first in-person meeting in order to further development joint opportunities and you will see more
results of this session with the renewal of our strategic plans for the next few upcoming years.
Finally we are closing our AGM year with our first Leadership meeting of the Board of
Directors and the Presidents of the local affiliates across Canada to ensure we have a
collaborative team from coast to coast to sustain our growth as an organization.
Ultimately, these initiatives and opportunities were to continue progress from 2009 toward 2010
guided by our current strategic objectives; focus on the key areas of awareness & acceptance,
capacity building, funding, research and public profile.
In this annual report, we hope to show how tapping into the creative talents of so many people
has made a positive impact on our organization. Drawing on the positive aspects of having TS
has empowered our teams to think “outside the box” and find new ways of tackling challenges.
As we strive to achieve our vision, it is well to remember our past accomplishments and take
pride in our potential for 2011 and beyond.
Janet Rumsey
President, TSFC Board of Directors
5
2009 2010 Annual Report
Executive Director’s Message
2009 2010 marks another exciting year in the history of the Tourette Syndrome
Foundation of Canada. As we approach our 35th Anniversary in 2011 we do so with
a sense of pride and accomplishment.
During these most challenging economic times we succeeded in remaining fiscally
sound and at the same time celebrate a momentous occasion, the receipt of our first
ever government grant from Human Resources Skills Development Canada.
The past year’s success is due to the tremendous efforts of many people. The dedication,
leadership and commitment of the Board of Directors provided the impetus that moved us
forward. There is no doubt that we need to vigorously pursue other fund development strategies
to obtain long term stability and enable us to broaden our awareness and advocacy efforts,
however, doing so in this climate requires careful planning and vigilance.
Awareness has always been one of our key strategies and on the advent of our rolling out of the
@Random project we hope to have a major impact on dispelling the Hollywood myth ergo the
resulting stigma.
While the Foundation’s mission includes the promotion of research, the funding required to
undertake such important work continues to elude us. However, with an extremely generous
donation to the Mort Doran Research Fund, the Foundation‘s Professional Advisory Board
was able to begin the work of developing clinical guidelines for Canada. A team is in place and
the work is scheduled to begin this in fall or 2010. These guidelines will act as a first responders
guide to Tourette Syndrome and speaks to one of our important goals… that of an earlier and a
ccurate diagnosis.
Thank you to the countless volunteers in numerous communities who have given so generously of
themselves. We are very grateful for your gifts which enable us to provide quality programs and
services to Canadians coast to coast.
In the coming year it is our goal is to expand our reach, enhance our profile and to continue to
foster strategic linkages. This seems like a long journey with the finish line remaining elusive,
but together we can achieve great things. Won’t you join in these partnerships through your
gifts of time, talent or philanthropy!
Rosie Wartecker
Annual Report 2009 2010
6
The Group of Five
From the Desks of our
Committee Chairs…
Our five committees – Conference, Youth, Advocacy,
Volunteer and Marketing – are central to the work we do
as an organization. Each touches on a critical aspect of the Foundation’s mission and is headed by a dedicated volunteer who in
turn brings together the talents and abilities of others
to make our lives – and the lives of those with TS – just a
little bit easier. As we reflect on our accomplishments of the
past year and anticipate the exciting paths that lay ahead,
we salute the enthusiastic and gifted team of individuals
helping us to achieve our goals.
7
2009 2010 Annual Report
Taking Up the Brush
Conference Committee 2009
Chair – Sybil Berenstein
Toronto Conference 2009: “Ages and Stages” was centered on
a theme that surely resonates with many people living with TS
today – namely, the challenges that Tourette Syndrome poses to
the individual throughout their life. From the fears and denial
that often accompany that first diagnosis in early childhood, to
navigating adolescence and emerging into adulthood, TS affects
us at virtually every stage in our lives.
The speakers were chosen for their expertise and ability to relate
to the spectrum of hurdles faced by the TS community both in
families and persons who live with the disorder. Participants
came away with new insights, valuable skills and a strong
support network, all of which are essential to the process of
coping daily with TS and moving forward.
Annual Report 2009 2010
8
Fresh Talent
Youth Committee Chair –
Alexander Patton
The Youth Committee, composed of ten people from across
Canada, was re-established in late 2009. The focus of the
committee is to serve the needs of the youth within the TSFC.
Many members are young adults who have Tourette Syndrome
themselves.
We are currently developing a survey to help us learn more about
the issues facing youth with Tourette Syndrome and aide us in
finding ways to address them.
One of our most exciting projects is the current work on
creating a subcommittee of youth aged 12 to 17 who will help
the Committee develop projects and ideas for this demographic.
This means that youth will play a role in the programs and
services provided for them and have a stronger voice within the
Foundation. We are currently in the process of recruiting
members.
Members of the Youth Committee assisted in planning the
youth track of the 2010 Conference as well as the new “It’s
Your Move” program and are very excited about this unique
initiative. Although we are a new committee, we are working
hard to generate new ideas for the Foundation’s youth and
we look forward to a rewarding year ahead!
9
2009 2010 Annual Report
Drawing Strength
Advocacy Committee Chair –
Tina Blanchette
Advocating is speaking on behalf of someone in order to advance
their rights. It can take many forms, from giving in-service
presentations to seeking changes in public policy. One of our
goals is to help young people with TS advocate for themselves;
but in order for this to happen, the appropriate supports need to
be in place.
Imagine going to work every day and facing ridicule from
co-workers, hostility from your boss, and not being able to quit,
leave or even complain. Now change the setting from a
workplace to a classroom: Is there really a difference? When
children with TS face these situations at school, parents often
feel helpless to intervene or are uncertain about how to
approach the issue.
With an extremely generous donation from the Longo’s Family
Charitable Foundation, the TSFC has developed and will soon
be beta testing an online, web-based program to help parents
become effective advocates within the education system. The
course, which will be led and moderated by Dr. Norm Forman,
author of Exceptional Children – Ordinary Schools: Getting the
Education You Want for Your Special Needs Child takes parents
through the advocacy process, from understanding its origins to
navigating school bureaucracies to creating an Individual
Education Plan (IEP). The aim is to make parents aware of
the rights that apply to their children in terms of receiving
accommodations and services at school, as well as knowing
whom to ask for help and what to expect from the system.
We look forward to getting feedback on the course during the
upcoming year, as well as hearing success stories from families
who have ‘bridged the gap’ between their needs and the services
designed to meet them.
Annual Report 2009 2010
10
On Display
Marketing Committee Chair –
Kirk O’Brien
Last year, the TSFC entered into a partnership with the global
marketing firm of Saatchi & Saatchi under the leadership of
Brian Sheppard, co-executive creative director, with the aim of
improving our branding and outreach strategy. Out of this has
come @Random, a major public awareness initiative aimed at
educating the public about Tourette Syndrome and the
people – friends, co-workers, neighbours – who have it.
A major component of @Random is the world -class
documentary of the same name. The film explores the Tourette
landscape using five minute segments devoted to the spectrum of
people who live with the disorder. One of the project’s goals is to
transform the public’s perception of TS from media-driven
stereotypes to a more realistic portrayal of TS. The project is
slated to roll out in time to celebrate the Foundation’s 35th
Anniversary in 2011.
We are proud to be working with so many talented individuals
to help achieve our vision wherein “All people with Tourette
Syndrome will lead quality lives as accepted and valued members
of an informed, tolerant society”.
11
2009 2010 Annual Report
Reaching Our Potential
Volunteer Development Committee
Chair – Patti Tomas-Lowe
In 2009 TSFC volunteers reached more than 3000 individuals
through in-service presentations in schools, workplaces and
community organizations across the country. Raising awareness
and bringing information about Tourette Syndrome to the
forefront is one of the most important services undertaken by the
Foundation. To this end, we are in the process of creating an
online in-service training module for recertification and for new
presenters, along with an updated set of presentation slides for
educators. Our goal is to keep the content current and relevant
while using the Internet to bring the material together in an
engaging, accessible format.
Two other initiatives were spearheaded by the Volunteer
Development Committee this year. “Project in the Box” will
create a list of successful projects undertaken by affiliates across
the country, along with strategies and ‘quick start’ tips for other
chapters looking for fundraising and public awareness ideas.
By pooling resources in this way we hope to make it easier for
everyone to seize opportunities and get the most from their
efforts.
We have also taken steps to strengthen our volunteer resources by
improving our system for connecting people with positions that
complement their skill sets. Our volunteers sit on committees,
raise funds, organize events, distribute materials, and moderate
online forums, to name just a few activities; their efforts help the
organization to function effectively in helping the thousands of
members that rely on us for support.
Looking ahead to next year, we anticipate the addition of more
education and public awareness initiatives, including a new series
of in-service presentations on TS and the law aimed at the
policing community.
Annual Report 2009 2010
12
Balance
Treasurer’s Report – Jay Thomblison
Our 2009 revenues far surpassed our expenses, owing to a large
one-time gain on the sale of the Jarvis Street property, the
former home of the TSFC National Office. However, when this
item is removed from the equation, we have an operating deficit
of $45,110. This is the second deficit we have incurred in a row,
and this trend cannot continue if we hope to remain financially
viable as an organization.
The Board of Directors and the management have carefully
managed the organization’s affairs over the past year, focusing on
both revenue generation and expense control. One item of note
was the creation of the inaugural Trek for Tourette event in
March of 2009. This event contributed significantly to our
revenue, and we look forward to many more successful Treks
in the coming years.
With the receipt of the HRSDC grant in early 2010, we foresee
some exciting project launches and spin offs in our future.
The Board of Directors, along with its Executive Director, will
need to continue with their efforts to control costs and generate
new revenue for the Foundation to ensure its success now and
in the future.
13
2009 2010 Annual Report
Financial Statements
Statement of Operations for the Year Ended December 31, 2009
Revenue
2009
2008
Donations
271,073
108,560
Memberships
23,678
24,068
Fundraising
324,272
424,605
Product Sales
15,644
20,325
Interest and Other
4,957
21,979
Property Sale
220,643
-
860,267
599,537
Administration
241,308
276,378
Fundraising
255,425
236,539
Strategic Areas/Support 184,662
121,974
681,395
634,891
Revenue over Expenses 178,872
(Expenses over Revenue)
Amortization
3,339
(35,354)
Revenue Breakdown
Expenses
Surplus (Deficit) for
the year
175,533
18,055
(53,409)
• The financial information is derived from the audited financial statements of The TSFC.
• A full set of audited statements is available upon request.
• The revenues and expenses include the activities of all 32 affiliates across the country.
Annual Report 2009 2010
14
Patrons (Donors)
$50 - 249
ADAM MCINNIS
ADRIENNE GUEST
AHMED SHALABI
ALBERT KUzMYK
ALICE SMITH
ALLAN GUNN
AMBER DUBCIAK
AMY CHOY
ANDREA EVANS
ANDREA HOLDEN
ANDREW COLLIER
ANDREW WAGG
ANDY LING
ANGELA THOMPSON
ANGELA SWITT
ANIKO VARPALOTAI
ANITA KITCHEN
ANN HOLTON
ANNA AGUIAR
ANNE MARIE MEEHAN
ANNE MARIE MELANSON
APRIL BROWN
ARTHUR zAMMIT
AXELSON ETHEL
BALL DARRELL
BANKS MICHAEL
BANNERMAN MILLER DENNISE
BARBARA ANN COOMBS
BARBARA SNELL
BARNETT HEATHER
BARNHILL GERALD
BARONE CAROLYN
BARRY BERENSTEIN
BARRY COX
BERENSTEIN SYBIL
BERNADETTE MCCARTER
BETTY ANN ATWOOD
BHR SIMMY WOLF
BILL COOKE
BILL FREMIS
BILL PALLETT
BLAIR GREENWOOD
BLOSTEIN FAY
BOB AND JUDY ROGERS
BOB SHUPE
BOB SOKALSKI
BRANDT LORNE
BRASCHUK DARLENE
15
BRIAN & SHERRY MCBARRON
BRIAN GREIG HORTON
BRIAN MIDWINTER
BRICE LINDA
BRONWEN BAYLIS
BROWN DONNA
BRUCE CHISLETT
BRUCE FORBES
BRUCE MACARTNEY
BRUCE OR CHRISTINE BARTEL
BRUCE TAYLOR
BRYANNE TAIT
BULMAN DEBBIE
C4 OFFICE CLEANING
CAITLIN CHISHOLM
CANDICE LI
CAROL GORDON
CAROL BEISEL
CAROLYN DENIGER
CARRIE GRAVEL
CARY SELBY
CATHERINE DYER
CHAN LINDA
CHANTEL BROTEN
CHARLENE WALSH
CHARLOTTE INAMA
CHERYL COOPER
CHERYL MOORE-PANGRAzzI
CHERYL POULIN
CHRIS AVERY
CHRIS JARVIS
CHRISTINA HUGHEY
CHRISTINE LUELO
CHRISTOPHE NGO
CHRISTY JOHNSON
CLAUDE THIBAULT
COCKELL DEAN
COFFIN KEN
COLLEEN BONNAH
CORNEL CEAPA
CUNNINGHAM CORRIE
CUNNINGHAM DOUGLAS
DAN AND JUDY BASSO
DAN SHULMAN
DANIELLE GRUNINGER
DARREN BADRY
DARREN JOPKA
DARREN MCMILLAN
DAVE O'BRIEN
DAVID KINDERS
DAVID PALOzzI
DAVID BURGESS
DAVID KINDERS
DAVID PETRISHEN
DAVID SACHVIE
DAVIS MONIQUE
DAYNA BLACK
DEAN COCKELL
DEB OCHOA
DEBORAH DIXON
DEREK GILES
DI LIM
DIANE DYER
DIANE GOUGE
DIANE STE. CROIX
DIMOND APRIL
DONALD BUTLAND
DONALD JONES
DONNA BROWN
DONNA SCOTT
DORIANNE HACHEY
DOUG LAKE
DOUGLAS KYLE
DR. DONALD GUTKIN
DROVER BARBARA
DUMORE DENTAL CORP
DUNCAN BUREAU
DUNCAN BUREAU
EBY ANNIE
EDWARD ROONEY
ELAINE SPENCER
ELIzABETH MISENER
ENS RUTH
EPSTEIN TRINA
ERIC MACDONALD
ESPOSITO YOLANDA
EVAN SONE
FAMILY GREENWOOD
FARQUHAR JACK
FAST DIANE
FLORDELIz OSLER
FOSTER MERVYN
FRANCES & DAVID RUBIN
FOUNDATION
FRANCES PILON
FRANDSEN JEAN
FRANK JASEK
FRED & MARGARET COLL
FRONTIERS NORTH ADVENTURES
G.J.ANDREWS FOOD & WINE
SHOPPE
GARRIOCH SANDY
GARY HUNT
GARY KEOUGH
2009 2010 Annual Report
Patrons (Donors)
$50 - 249
Continued
GARY LELOND
GARY QUINN
GARY SHADY
GAUDET TARA
GERALD A. STROME
GERALD PETERS
GERARD JOHNSON
GILBERT PATRICIA
GILMOUR PATRICK
GISELLE CHARTRAND
GLENN HILDEBRAND
GLORIA CLAMEN
GLORIA STEPHENS
GOHIL DILLON J.
GOLDBERG JEFF
GORD BROWN
GORD LAUGHY
GORDON CAMP
GORDON KYLE
GRAVEL CARRIE
GREEN SANDRA
GREENBERG JANICE
GRIFFIN JOAN
GUY REGNIER
GWEN GILMER
HéLèNE CONSTANT-RUEST
HANSEN JANICE
HARRY WIERENGA
HARVEY COLL
HATCH KIM
HAWAWINI CHARLENE C
HEDLUND ELSE-BRITT
HENRY CONSTANT
HENRY KIRWIN
HERLICK RICHARD
HILL ADRIENNE
HILL PENELOPE
HOLLY THIBERT
HORDAL MICHELLE
HORDERN BARBARA
HOWIE CHRIS & TAMARA
HUGH MACDONALD
HUNTER PATRICIA
HURST CATHERINE
HURTA EDWARD
IAN WORLAND
INFINYT DEVELOPMENT GROUP
IRA FRIEDMAN
IVERSON ERLING
JACQUELINE OWEN
JACQUES DION
JAIME BENAYON
JAMES KATHIE
JAMES M VALIQUETTE
JAMES RINGER
JAMES THOMBLISON
JAMIE NAPHOLC
JAN DAMERY
JANE WILKINSON
JANET BOYLE
JANET BROWN
JANICE MAYEDE
JANICE PURDY
JAQUES GEORGE & JUNE
JASON SPENCER
JAY TEITEL
JEANNE HATCH
JEANNETTE SHIPTON
JEFF ACKER
JEFF EKSTEIN C/O WILLOW PRINTING GROUP LTD.
JEFF LOTHIAN
JEN WELDON
JENICA RENAY
JENNIFER LEMIEUX
JENNIFER PARKS
JENNY FAIRBURN
JENSEN JOAN
JERRY ATNIKOV
JIM LUELO
JIM THOMSON
JOB HEINTz
JOCELYNE & RAYMOND CONSTANT
JODIE PIzzI
JOEL CARRIER
JOHN AND ROSIE USTER
JOHN BATHURST
JOHN BOYLE
JOHN CORNEY
JOHN LAWRENCE
JOHN MACLEOD
JON AND LISA LOVLIN
JONASSON DEBBIE
JONATHAN BLAKEY
JORAE MANAGEMENT INC.
JORDAN GOULD
JOYCE PIERCE
JUDY STIRLING
Annual Report 2009 2010
continued...
JULIA HOLDEN
JULIAN GERALD & GLENDA
JULIE WATKINS
KAMIEL-FORSTER DONNA
KAPETANIOS ELIAS
KAREN BURNINGHAM
KAREN TANG
KATHERINE DUSIK
KATHRYN SMALE
KATSOF ALISSA
KATSOF GARY
KEELY GILMORE
KEITH JAMES
KEITH O'BRIEN
KELLY JACK
KELWIN WYLIE
KEMPO LINDA
KENNETH HUNT
KENNY WONG
KIM DRAKE
KIM DREVER
KIM ERION
KIM LARSEN
KIRK O'BRIEN
KIRSTY MCAVOY
KLASSEN SHARON
KOROLUK KAREN
KRISTINA, TODD, RILEY AND
CAL TRUAX
KYLE KUzMYK
LAMBERT ELIzABETH
LAURA HATCH
LAURA LOCKE
LAURENCE FISCHER
LEDOHOWSKI DEANNA
LEMIEUX JANE
LEN DALMAN
LEN VANDENBERG
LEON JANzEN
LEON SALVAIL
LESLEY AND GEORGE FITzPATRICK
LEVINE GERALD
LINCOLN HATCH
LINDA SANSALONE
LINDA BABCOCK
LINDA BRAYSHAW
LINDA HAMILTON
LINDA NEWTON
LINDA PAPADOPOULOS
LINDA SAVARD
LINDSAY MILLER
LIPSETT RUTH
16
LIS DIPASQUALE
LISA CHISHOLM-NEAL
LISA ROTMAN
LORI GOHILL
LORI HALLIDAY
LORI LOEWEN
LUCIEN DAVALAN
LYNDA CHALLIS
LYNN RIDLEY
MACDONALD LESLIE
MACDOUGALL ANITA M
MADELINE POPOWICH
MAHONEY MARY MARGARET
MALA JOSHI
MALE KEN
MANDEL PAUL
MARC CHARLAND
MARILYN BOYLE
MARINER & MARINER COUNSELLING
MARK RAROG
MARLENE LEGAULT
MARY FRANCES LAUGHTON
MARY KAY TOMBU
MARY MACDONALD
MAUREEN BAIKIE
MAUREEN HOLLANDS
MAUREEN MIERAS
MAUREEN VOSS
MAX FEIERSTEIN
MC CULLOUGH BEV
MCBRIDE JOY
MEGHAN MEGER-JOHNSON
MELISSA MUSKAT
MELISSA PENNER
MERRITT ALLEN
MICHAEL KRESTELL
MICHAEL LAzER
MICHAEL MURPHY
MICHELE MACTAGGART
MICHELLE GIGNAC
MICHELLE JAMIESON
MICHELLE MURTON
MIKE KEENAN
MOFFATT PATRICIA
MOGUL LLOYD
MOMENTUM PHYSIO
THERAPY CLINIC
MONIQUE CONSTANT
MORRIS MAzzONNA JUDITH
MORRISON CAROL
MOSCOVITCH RUTH
MOUYLENG LY
NANCY ADDISON
NATASHA MIERAS
NEIL PETERS
NIXON KAREN
NOAH ATKNIKOV
NORMAND GIARD
(KIMBERLY-CLARK
PROFESSIONAL)
NORMAND REGNIER
17
O'BRIEN CAROLYN
O'BRIEN ED & HELEN
O'SHEA NICK
P HAYDEN DESSER
PADDON STELLA & HOWARD
PALUMBO ARNELLA
PAM KLICK
PAMELA CAMERON
PAMELA HEINTz
PAMELA SILK
PANTING DIANE
PARESH SHAH
PARESH SHAH
PATRICIA BUCHANAN
PATRICK AND VANESSA COLLINS
PATRICK COYNE
PATTI AND JIM RINGER
PAUL KADLICK
PAUL LAWRENCE
PENNY ANTONY
PENTECOST KEVIN
PERRY AND SHELLEY SEIDELMAN
PERRY MILLER
PERT ROBERT
PETER AND ANNA MARIE STYS
PETER AND PATSY MAYEDE
PETER C KUzMYK
PETER MACDONALD
PETER SIEMENS
PHIL/ANGELA PENNER
PICCOTFI STEVE
POLSTER PHILIP
RADESCHI GIUSEPPINA
RAINSOFT (REGINA) LTD.
RAKAR STEPHANIE
RANDY HIEBERT
RAUGUST TYLER
RAY BAILEY
RAY CUTHBERT
RAY ROBERTSON
REBECCA SCHLEICHER
REBECCA VON zUBEN
REBECCA WEBB
REDA SANTO
RENé CHAMPAGNE
RICK DYER
RICK LIVINGSTONE
RIGATO MICHAEL
RITA GUNN
ROB GOULD
ROB JOHNSTON
ROBERT CARUSO
ROBERT CLAVEAU
ROBERT WRIGLEY
ROGERS BOB AND JUDY
ROMEO zEPPIERI
RON KIzNEY
RON KUIPERS
RON SYMONDS
ROSIE WARTECKER
ROSS MACDOUGALL
ROY AND LIz KUzMYK
SADORI MARCO
SAGER STEVEN J
SALOMON BENAYON
SAMANTHA STEPHENS
SANDRA JONSSON
SANSALONE LINDA
SAVILLE STUART
SBLR
SCOTT DAY
SEAN SLAUGHTER
SEGUIN CHARLENE
SEIDELMAN PERRY
SERNE LOUISA
SHAFFELBURG RENI
SHANNON ROSS
SHARON BABCOCK
SHEILA HARDING
SHEILA WEAVER
SHELDON FREEMAN AND
SHARLENE WILDER
SHELLEY CAPPUCCIO
SHOEMAKER KEN
SHONA MEYER
SHULMAN DAN
SILVEIRA MR
SLOBOJAN MARY
SONIA ABREU
SORRELL DEBBIE
STACEY SPRATT
STACKHOUSE DIANNE
STARKS FIROUzEH
STEINBERG RONALD
STEPHANIE COOLEN
STEPHEN PLATT
STEVE HUMAR
STEVEN ATNIKOV
STEVEN SAGER
STEW FARAGO
STOKAN KATHLEEN
SUDERMAN GARRY WAYNE
SUE TREGUNNO
SUE SMARKALA
SUE TOMNEY
SULPIzIO CHRISTINA
SUSAN CLOKE
SUSAN FOURNIER
SUSAN FRIEDMAN
SUSAN KETTERINGHAM
SUSAN MACKIRDY
SUSAN RAND
SUSAN SCHMALz
SUzANNE BEATTY
SUzANNE ETHIER
SUzANNE REGNIER-TRONT
SWANTJE ELKE
TANNA OUTHWAITE
TARAJOS JAMES
TEAM TELUS CARES
TERRY HOPKINSON
THE MOSCOE FAMILY
THE TORONTO-DOMINION BANK
THERESA ARSENAULT
2009 2010 Annual Report
Patrons (Donors)
$50 - 249
Continued
THOMAS SCHWAN
THOMAS VALIQUETTE
THOMAS ROGER
THOMBLISON JAY
THOMPSON LINDA
TILLEY DORIS
TINA GJERTSEN
TOBIN DAVIS
TOD NIBLOCK
TODD & JANICE DYER
TODD & JANICE DYER
TONCO CONTRACTING INC
C/O COCCIA T
TOOLE JEAN
TRACEY GRIESBACH
TRACY RICHARD
TRISH BRADEY
TYSON MATHESON
URSULA BELANGER
VAL AND HAzEN STEEVES
VALERIE MACDONALD
VALERIE YUEL-MILLER
VAN ORDER CAROLYN
VANESSA STRATTON
VEDO LUIS
VIC GOURILUK
VICTOR BLANCHETTE
VINCENT MACDONALD
WAJAHAT MAHMOOD
WANDA GRIFT
WAYMAN JOAN
WEIL DESIREE
WENDY J MILLER
WENDY RUBIN
WENN JEFF
WILLIAM COOKE
WILLIAM SPENCER
WINNIPEG CONVENTION CENTRE
WOLSEY ED
WOOD DIANE
Y BHATHELLA
YVAN MORRISSETTE
zUKER RICHARD
$250 - 499
BLOOM LANYS PROFESSIONAL
CORPORATION
BRIMACOMBE PETER
BROOKE COLL
DOUGLAS STEPHEN
FOLINO FIORINA
GREEN DAVID
KEITH LAUGHTON
LA CIVITA CLAUDIO
LORNE PERRIN
LYSAY ROBERT
MACDONALD VALERIE
MACNEILL RONALD
MICHELLE MILLS
MIRAGE CONSULTING LTD
MYERS RANDAL
PUGH DAVID
RAPID IMPACT COMPACTORS LTD.
SCOTT ALLAN
SELL IAN
SMITH ROBERT
THE NOVEMBER GROUP
TODD GRIERSON-WEILER
WHITEHOTS INC
WIGINTON KAREN
WILSON LOIS
continued...
SAND ANNA
STEFANICA VERONIQUE
THE BRAMPTON CURLING CLUB
TINA, MARC, THOMAS, DANIELLE
BLANCHETTE
WARTECKER ROSIE
zEKRI KHALED
$1000 - 4999
ALEXANDRA CONGEL
DUKSzTA ANNETTE
GORMAN DANIEL
INAMA CHARLOTTE
LAWRENCE BETTY JEAN
PENNELL ANN
PERRIN LORNE
RBC FOUNDATION
REAY SAMANTHA
ROBERTSON SCOTT
$5000
MEDWORXX
$500 - 999
ARCOMANO ATTN: EMILIE
ASPIRIA CORP.
BELL CANADA EMPLOYEE GIVING
PROGRAM
BIANCONI JORDAN
GOULD JOSEPH G
JAEGER BRUCE
JONES IAN C
LEON AND VONNIE zUPAN
MCLEOD THOMAS
MORTON ROBERT & JANICE
NEWFOUNDLAND LIQUOR CORPORATION, GANDER BRANCH
ONTARIO POWER GENERATION EMPLOYEES CHARITY TRUST
RUCAS DEREK
Annual Report 2009 2010
18
Champions
Three Types of Affiliates
The volunteer component of the Tourette Syndrome Foundation
of Canada is structured so that everyone who wishes to volunteer
has a choice as to how much responsibility they wish to take on.
Collectively, our local volunteers are called affiliates; the three
types of affiliate opportunities are contact representatives,
resource units and chapters. While these are sometimes referred
to as “levels” of the organization, there are in fact no levels.
Everyone is considered to be an equal member of the same
team, regardless of how they are involved.
Contact Representatives
Contact Representatives are individuals in a specific geographic
area who act for the TSFC. They are approved according to the
established policy (in the Governing Documents [White]
Binder). They provide assistance and information in their
community to individuals and families affected by Tourette
Syndrome, and other interested parties. Their responsibilities
are outlined in the Contact Representatives Agreement of
Affiliation, “Responsibilities of Contact Representatives”.
Contact Representatives may enlist the help of other volunteers
and form resource units or chapters, providing that the criteria
for those groups is met.
Resource Units
Resource units are groups of individuals (minimum of four) in a
specific geographic area who act collectively for the TSFC.
They too are approved according to the established policy in the
Governing Documents Binder. Like contact representatives,
members of resource units provide assistance and information in
their community to individuals and families affected by Tourette
Syndrome. Their responsibilities are outlined in the Resource
Unit Agreement of Affiliation, “Responsibilities of Resource
Units”. This ‘stepping stone’ in the structure of the Foundation
provides an opportunity for growth from contact representative
to affiliated chapter.
(continued over...)
19
2009 2010 Annual Report
Champions
continued...
Chapters
Chapters are larger groups of individuals (minimum of ten).
Often, chapters are formed when people who, led by a contact
representative or resource unit leader, expand their activities and
thus meet the criteria for becoming a chapter. Like contact
representatives and resource units, they are approved according
to established policy and provide assistance and information in
their community to individuals and families affected by Tourette
Syndrome. They have considerably more responsibility than
contact representatives and resource units, such as administrative
tasks and being financially independent. Unlike contact
representatives and resource units, chapters may operate bank
accounts. Full details of chapter responsibilities are outlined
in the chapter Agreement of Affiliation, “Responsibilities of
Chapters.”
Volunteers
By definition, the Tourette Syndrome Foundation of Canada
is a national voluntary health organization. With the exception
of the staff at its National Office, the time, energy and work of
volunteers keeps the Foundation functioning. It simply could
not exist without them. They are the Foundation’s most precious
resource.
It is through this combined effort of volunteers and staff that
the TSFC carries out its mandate. Our common vision, coupled
with the enthusiasm and dedication of our volunteers, ensures a
high level of service to people who have Tourette syndrome,
their families, their care givers and professionals. This effective
service delivery is based on the TSFC’s commitment to
providing its volunteers with the necessary tools and skills,
and the philosophy that everyone has something to contribute
and is highly valued for that contribution.
Volunteers operate under the leadership of the national
organization, and are responsible for direct service at the
local level.
Annual Report 2009 2010
20
Board of Directors
Chapters
The TSFC operates under the direction and governance of a volunteer Board
of Directors with representation across Canada. The Board of Directors is
elected each year at the Foundation’s Annual General Meeting.
Greater Vancouver, BC
Victoria, BC
Thompson-Okanagan, BC
Edmonton, AB
Winnipeg, MB
Greater Toronto, ON
Hamilton-Niagara Region, ON
London, ON
Ottawa, ON
Wellington-Waterloo, ON
Windsor-Essex, ON
Newfoundland Labrador, NL
Lorne Perrin
Janet Rumsey
Kirk O’Brien
Patti Tomas Lowe
Jay Thomblison
Sybil Berenstein
Charles Benayon
Tina Blanchette
Donna Brown
Gordon Brown
Dan Gall
Frans Sanders
Cathy Wylie
Paul Sandor, MD, FRCPC
Winnipeg, MB
St. John’s, NL
Kelowna, BC
Edmonton, AB
Burlington, ON
Toronto, ON
Thornhill, ON
Waterloo, ON
Ancaster, ON
Kitchener, ON
Winnipeg, MB
Lower Sackville, NS
Munster, ON
Toronto, ON
Past President
President
Vice President
Secretary
Treasurer
Director
Director
Director
Director
Director
Director
Director
Director
Liaison, Professional
Advisory Board
Professional Advisory Board
The Professional Advisory Board (PAB) is comprised of volunteer clinicians
who work with the Board of Directors and the Executive Director of the
Foundation assuring that all reference materials are expressed in accordance
with proper medial and clinical criteria. The PAB is called upon for direction
in respect to research project funding as well as other clinical advice required
by the Foundation.
Paul Sandor, MD, FRCPC
Cathy Barr, MD
Yves Dion, MD
Joseph Dooley, MD
Mort Doran, MD
Roger Freeman, MD
Sandra Luscombe, MD
B. Duncan McKinlay, Ph.D., C. Psych.
Tamara Pringsheim, MD, FRCPC
Sheryl Pruitt, M.Ed
Mary Robertson, MD
Gary Shady, Ph.D.
Toronto, ON Chair
Toronto, ON
Sorel, QC
Halifax, NS
Fairmont, BC
Vancouver, BC
St. John’s, NL
London, ON
Calgary, AB
Marietta, GA
London, UK
Winnipeg, MB
Resource Units
Brandon Westman, MB
Charlottetown, PEI
Calgary, AB
Fort Erie, ON
Lower Sackville, NS
Contact
Representatives
Prince George, BC
Nanaimo, BC
Comox, BC
Grande Prairie, AB
Whitecourt, AB
Fort McMurray, AB
Regina, SK
Sudbury, ON
Bracebridge, ON
Peterborough, ON
Summerside, PEI
Halifax, NS
Truro, NS
Corner Brook, NL
National Office Staff
Executive Director: Rosie Wartecker
Programs & Services and It's Your Move Project Coordinator: Tina Hahn
Marketing & Communications and It’s Your Move Project Marketing Coordinator: Kenneth Butland
Administrative Assistant: Liliana Ruiz
21
2009 2010 Annual Report