inpatient services

INPATIENT SERVICES u
family
guide
Welcome to ChildServe! Our organization
has a rich history of serving children and
young adults for more than 80 years. Through
ChildServe’s inpatient services, we care
for children with intensive rehabilitation,
complex respiratory, palliative care, and
comprehensive medical needs. We serve
children and young adults from birth through
21 years of age, and we work to promote a
great life for each child while they are with us.
ChildServe’s Stelter-Fisher Transitional
Care Unit is a bridge between hospital and
home, offering your child a place to recover
following an illness, injury, or surgery. Our staff
are experts in the field of pediatrics, and they are dedicated to providing you
with education and training you will need to be successful at home.
Our equipment and facilities are specifically designed for children and young
adults, and we pride ourselves on offering child-focused, family-centered
care. From our therapy gyms, aquatics center, family room, and toddler room,
we are confident that your child will benefit from ChildServe’s nurturing
environment.
Please review this guide for more details about our services, and we look
forward to partnering with you to help your child reach his or her fullest
potential.
Dr. Teri Wahlig, Medical Director
Dr. Wahlig is board certified in pediatrics, neonatology, and palliative care.
TABLE OF CONTENTS
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10
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WELCOME
OUR APPROACH
INPATIENT SERVICES
YOUR CHILD’S TEAM
VISITING CHILDSERVE
FAMILY RESOURCES
ABOUT CHILDSERVE
ChildServe is a not-for-profit organization that partners with families to
help children with special health care needs live a great life. Originally
founded in 1928 as a convalescent home for children, today ChildServe
provides specialized pediatric health care services to more than 2,500
children in Iowa. Through the support of private insurance, public funds,
and the generosity of donors, ChildServe offers accessible, family-centered
care unique to each child’s needs, hopes, and dreams.
tessa’s story
Walking may be a
simple activity for most
adolescents, but for Tessa
it was a challenge. Tessa
has Spina Bifida and also
suffers from a congenital
hip deformity which made
walking very difficult and
painful. If her condition
went untreated, she would
have eventually lost the
ability to walk altogether.
Because of this, Tessa
underwent acetabuloplasty
surgery, a procedure in
which the edge of her hip
socket was built out to
improve stability and keep
her hip from dislocating.
Such a complex operation
required significant
rehabilitation, which Tessa
received at ChildServe. She
arrived in a full hip/leg cast
and once it was removed,
she received intensive
inpatient occupational
and physical therapies.
ChildServe’s therapists
worked with Tessa to
regain her strength and
improve her balance so that
she could receive the full
benefits that her surgery
afforded her. After eight
weeks of focused treatment,
Tessa left ChildServe walking
on her own, an activity that
she and her family will never
take for granted.
Our Approach
Child-Focused, Family-Centered Care
At ChildServe, you will be involved in every aspect of your child’s care.
ChildServe staff will partner with you to develop goals and plans to meet
those goals. We are committed to helping your child achieve the best
quality of life possible. We know that “quality of life” means different things
to different people, so we work to fulfill the goals of your child and family.
Pediatric Focus
ChildServe knows that children and teens have needs that are different from
those of adults with similar conditions. All of our equipment is designed
specifically for children, and every member of our staff has specialized
training to understand children’s growth and development.
Training and Support for the Transition Home
In addition to the care of your child, staff provide one-on-one training for
your child and your family members so you can learn how to manage your
child’s needs after discharge. Qualified staff help arrange for equipment and
technology needs at home, ensuring that you will be more prepared to care
for your child.
clap-out:
A ChildServe tradition! Clapping
and cheering staff members line
the halls when a child is discharged
home to celebrate the child’s hard
work and success.
Our Inpatient Services
Pediatric Rehabilitation
ChildServe’s pediatric
rehabilitation services help
children and young adults
restore function following an
accident, illness, or surgery. Our
therapists have extensive training
and experience in working with
pediatrics, ensuring that your
child will receive treatment that
is developmentally appropriate
for him or her.
ChildServe offers comprehensive
rehabilitation services, including:
•
•
•
•
•
•
•
•
•
Physical Therapy
Occupational Therapy
Speech Therapy
Recreational Therapy
Child Life Services
Aquatics
Music Therapy
Adaptive Equipment
Rehabilitation Nursing
Our experienced team of therapists serves a
wide range of rehabilitation needs, including:
•
Acquired brain injury
(traumatic and non-traumatic)
•
Orthopedic rehabilitation
(traumatic and post-surgical)
•
Multiple fractures
•
Spinal cord injury
•
Stroke
•
Burns/wounds
•
Spasticity
•
Feeding disorders
Complex Respiratory
Did you know
that even children
with respiratory
equipment may
benefit from aquatic
therapy?
ChildServe’s inpatient
respiratory services offer a continuum
of care for children with complex
respiratory needs. Our respiratory
therapists specializing in pediatrics provide 24-hour
specialty care for a wide spectrum of respiratory illnesses. ChildServe’s
team works with primary-care physicians, pulmonology subspecialists,
community providers, and other specialists to create personalized care
plans that will meet the unique needs of each child.
Our respiratory services provide:
•
All levels of ventilator support, both invasive and non-invasive
•
Sophisticated monitoring systems to best track respiratory status
•
All modalities of respiratory care including, but not limited to,
tracheostomy care, vest therapy, inhaled medication, and airway
clearance therapy
•
A focus on individualized respiratory therapy and social interactions
•
Ventillator weaning services for appropriate patients
Palliative Care
ChildServe’s pediatric palliative care offers a total approach to care for
children, embracing physical, emotional, and spiritual elements. Palliative
care is appropriate at any time during an illness and can be provided at
the same time as treatment that is aimed to cure.
The palliative care team’s purpose is to:
•
Advocate for the child and family
•
Collaborate with the child’s providers
•
Help the family make treatment choices
•
Help the family find support
ChildServe’s unique facility, staff, and expertise are particularly suited
for children with the following illnesses:
• Life-threatening conditions for which curative treatment may be
feasible but can fail
• Conditions where early death is inevitable but where there may
be long periods of intensive treatment aimed at prolonging life
allowing participation in normal activities
• Progressive conditions without curative treatment options
• Irreversible but non-progressive conditions with complex health care
needs leading to complications and likelihood of premature death
Comprehensive Medicine
ChildServe’s inpatient comprehensive medicine services are designed to
support children who need additional time to recover following a hospital
stay. Our dedicated staff will work with you to establish an individualized
care plan that will support the specific needs of your child. Whatever
situation your child is facing, we can provide the medical support, training,
and transition planning to help your child reach his or her potential.
ChildServe has the facilities, equipment, and expertise to support a wide
range of needs, including:
• Nutritional Therapy (tube feeding)
• Intravenous Therapies (TPN, antibiotics, hydration)
• Postoperative Care
• Burn/Wound Care
We partner
with families to
help children with
special health care
needs live a
great life!
“The s
ChildSer taff at
ve is ama
You can t
zing.
ell in
that they
everythin
g they do
really wa
nt to be h
ere.”
-Jake’s da
d
cayden’s
story
When he was three years old, Cayden was involved in a devastating car accident which left him with a traumatic
brain injury. Once he was stabilized at the hospital, Cayden was non-responsive,
unable to eat, speak, or interact. Because of the severity of his injuries, Cayden’s
expected chance of recovery was grim.
Cayden came to ChildServe for inpatient rehabilitation
following his discharge from the hospital. After
assessing him, ChildServe’s therapists and staff knew
that he had the potential to regain his lost skills.
They committed themselves to connecting with
Cayden in spite of his injuries and limitations.
Involving his grandparents in his
treatment, ChildServe’s therapists
used the bond between Cayden and
his family to help him make strides in
recovery.
His treatment at ChildServe included
physical therapy, occupational therapy,
speech-language pathology, child life,
recreational therapy, pet therapy, and
aquatic therapy. This comprehensive
approach to Cayden’s care allowed him
to learn to walk again, talk again, and
begin eating again. Through the love
of his family, dedication of staff, and
determination of his spirit,
Cayden went home
after intensive inpatient
rehabilitation.
Your Health Care Team
At ChildServe, many people will play a role during your child’s recovery. Each
member of your child’s health care team will be an important source of
information and support. They wil bring their specific expertise to the treatment
planning proces and will help you learn skills to meet your child’s needs.
Health care team members may include:
Child and Family
You and your child are the most essential members of your child’s health care
team. Active participation in treatment and rehabilitation is critical to the
recovery process and will help your child successfully return home and to the
community.
Medical Director
Our medical director provides leadership to our clinical teams and oversees
the quality of care that will be provided to your child.
Pediatrician(s)/Nurse Practitioner
Pediatricians will oversee your child’s admission and treatment plan while
at ChildServe. ChildServe provides 24/7 physician coverage, and your child’s
pediatrician or other specialists are welcome to provide oversight during your
child’s stay as well.
Pulmonologist
Pulmonologists, or physicians who specialize in the field of pulmonary
medicine, will treat disorders relating to the lungs and respiratory system.
Nurses
Nurses will deliver care to meet your child’s daily needs including administering
medications, feedings, and treatment. They have experience in rehabilitation
and coordinate care with your child’s heath care team.
Access Specialist
Our access specialist will work with you through the admissions process
and will communicate with all parties involved in your child’s care to ensure
accuracy of information upon admission.
Medical Social Workers
Medical social workers will work with you to develop a discharge plan for your
child. They will also assist in identifying and connecting you with community
resources.
Care Coordinators
Care coordinators will work with you and your child to coordinate the plan of
care from admission to discharge.
Your Health Care Team
Adaptive Equipment Technicians
Adaptive equipment technicians will work with you and your child to
find all of the equipment and supplies needed with onsite customization.
Aquatics Coordinator
Our aquatics coordinator oversees the aquatics center located on ChildServe’s
campus which may be used to help your child participate in functional
activities under the supervision of therapists or other trained staff.
Child Life Specialist
Child life specialists will work with your child to reduce anxiety and help to gain
an understanding of his or her medical condition, procedures, and treatment.
Dietitian
Our dietitian is a food and nutrition professional who will work with your
health care team to coordinate medical and dietary needs.
Music Therapist
Music therapists will use music creatively to help your child address social,
emotional, or physical difficulties.
Occupational Therapists
Occupational therapists (OT) will help your child with upper extremity
functioning, fine motor skills, and sensory motor integration.
Orthotist
Orthotists will design, develop, create, and fit custom braces to maximize your
child’s physical function.
Physical Therapists
Physical therapists (PT) will help your child with strength, balance, coordination,
and gross motor skills.
Recreational Therapist
Recreational therapists will help your child integrate skills learned in other
therapies and apply them to leisure activities.
Respiratory Therapists
Respiratory therapists (RT) will help your child if he or she has breathing or
respiratory difficulties. They will work to improve your child’s ability to cough,
breathe, and resist infection, and will manage ventilator support when necessary.
Speech Language Pathologists (Speech Therapists)
Speech language pathologists will help your child with swallowing, oral motor
skills, cognitive-linguistic skills, and communication. They will also work to
identify alternative forms of communication when necessary.
seth’s story
Seth and his brother went out for a
ride on the family’s ATV Ranger on
Seth’s 13th birthday. During the ride
the ATV flipped, landing upside down
and rolling. Seth was life-flighted
to the University of Iowa Hospital
where it was determined he had a
skull fracture and a brain bleed. Seth
underwent surgery that evening,
receivi ng 80 stitches and two drains
of blood from his brain.
Seth came to ChildServe after his
stay at the hospital, unable to walk
or talk. During his stay, he received
intensive physical therapy,
occupational therapy, speech-language pathology,
child life, and recreational therapy. After four weeks of treatment, Seth
left ChildServe walking and talking, wanting to get back to running track,
fishing, and golfing.
“When w
e first go
it was a li
t here
tt
le
overwhe
We’d nev
lming.
er he
suddenly ard of ChildServe
,
we were
here thin and
king,
‘Wow, all
of these
people a
going to
re
take care
o
f
u
s.’”
-Seth’s M
o
m, Anne
What to Bring
• Insurance cards
• If you are not a parent, please bring legal guardianship documents
• Clothing: 7-10 outfits for your child
Your Child’s Stay
Visitors
General guidelines for visitors:
• Regular visiting hours are from 8 a.m. to 8 p.m. Parents or primary
caregivers are welcome at any time of the day.
• People with colds, sore throats, or any contagious diseases should not
visit the children.
• Visitors may not consume alcohol in ChildServe facilities or on
ChildServe premises.
• A child over the age of 16 can visit on his/her own; anyone under 16
must have adult supervision.
r
o
f
s
d
r
a
rew
:
k
r
o
w
d
har
More than one therapist
has gotten a pie to the face
courtesy of children who
met their therapy goals!
we’re serious
about fun.
Thinking outside the box
is something we do on
a daily basis, especially
when it means creating
great life for a child.
When Teddy’s favorite
computer game was
released while he was
still in arm casts, our
recreational therapy
team and Electronics
Specialist developed a
pedal system so Teddy
could play the game
with his feet.
Parking
Parking is provided at Entrance B for visitors to the Transitional Care Unit.
Overnight Stays
Up to two parents or guardians may remain overnight with your child.
You may come to see your child at any time during the day or the night
to accommodate your schedule. No one under the age of 18 may stay the
night.
Please inform the nursing staff in advance (by 9 p.m. if possible) of your
intent to stay.
Private rooms provide a fold-out couch, and double rooms provide a recliner
which may be used for sleeping.
Meals
The dining room (Spirit Cafe) is open to families and visitors. The cost of
meals is nominal, but only cash and check are accepted (no credit cards).
Vending machines are also available.
Roommates/Changing Rooms
Some of our children share rooms with another child, so great effort is made
to match roommates based on compatibility. Every effort is made to keep
moves to a minimum, and you will be notified prior to any planned move.
Personal Items
Please make sure that all personal items, such as clothing, blankets, and toys,
are labled with your child’s name. ChildServe is not responsible for the security
of personal items.
Furnishings
ChildServe will furnish each room with a bed, storage closet/dresser, and
window coverings. ChildServe will also provide night stands, bulletin boards
and TV’s in each room. Linens will be furnished and laundered by ChildServe.
Any furniture addition to a child’s room must be approved by the ChildServe
staff prior to use.
Clothing
Parents and families are responsible for providing clothing during their
child’s stay at ChildServe. ChildServe has laundry services available to do all
of your child’s laundry, including personal clothing and linens. ChildServe
can not do laundry for family members.
Toiletries
ChildServe will provide basic toiletries to each child throughout his or her
stay including toothbrush, deodorant, tissues, and hair care products. You are
welcome to supply different toiletries.
Tobacco-Free Campus
The use of tobacco will not be permitted anywhere on ChildServe property,
including personal vehicles parked on company property.
“My dau
therapist ghter’s physical
was able
special re
t
lationship o develop a
included
with her
tru
which
a fabulou st and friendship
. She did
s job with
m
helped h
er want t y daughter and
o
work har
all truly w
d. Yo
ent the e
xtra mile u
-Katlin’s
!”
mom
Breyten, born three
months premature and
diagnosed with Noonan
Syndrome and chronic
lung disease, spent the
first nine months of his life
in the neonatal intensive
care unit at a local hospital.
When he was stable
enough to be discharged,
he still required 24-hour
nursing care as well as
intensive therapy to help
him grow strong enough
to be weaned from the
ventilator.
Breyten’s parents brought
him to ChildServe’s
Transitional Care Unit,
where he stayed while
he recovered from two
separate surgeries and
utilized therapy services
to build his strength.
During that time, his
parents learned to care
for his tracheostomy, feed
him through a g-tube,
maintain his ventilator,
handle his pulse oximeter
alarms, and assist in his
therapy. By the time he
was discharged, Breyten
was strong enough to
successfully make the
transition home—and had
already gotten to know
his homecare nurses and
outpatient therapists.
breyton’s story
What Will My Stay Look Like?
I JUST GOT HERE...
1. Park and enter through Entrance B.
2. Meet ChildServe’s Access Specialist.
I’M READY FOR THERAPY...
1. Head to the Inpatient Gym to
get started.
2. Work with your therapist(s) on
different tasks and exercises.
3. Check out the latest activites
in the Sensory Room during
Recreational Therapy.
3. Say hi to all
of the awesome
therapists and
nurses.
4. Unpack and
get settled into
your room.
I HAVE VISITORS...
1. Check in at Entrance B.
2. Head to the family room
for space to spread out.
3. If your guests are hungry,
check out what’s cooking
in the Spirit Cafe.
I’M LOOKING FOR
SOMETHING FUN...
1. Explore the “Kids Only” room.
2. Shoot hoops or just have fun
playing on ChildServe’s accessible
playground!
3. Try gaming on
the KINECT, Play
Station, and iPads
during down time.
4. Get creative
at the pin wall!
Food - Onsite
Spirit Cafe - ChildServe Campus
Hours: Breakfast 6:30am - 9:00am
Lunch
10:30am - 1:00pm
Dinner
4:30pm - 6:30pm
Food/Restaurants - Offsite
Subway (0.1 mi north)
5500 Merle Hay Road, Johnston
515-276-5111
Panera Bread (0.1 mi north)
5525 Merle Hay Road, Johnston
515-251-7733
Sonic Drive-In (0.1 mi south)
5350 Merle Hay Road, Johnston
515-334-7309
Lodging
Ronald McDonald House
1441 Pleasant Street, Des Moines
515-243-2111
Hotels
If you mention that your child is
staying at ChildServe, a discounted
rate may be available.
Bandit Burrito (0.1 mi south)
5340 Merle Hay Road, Johnston
515-254-9999
Hilton Garden Inn (3 mi west)
8600 Northpark Drive, Johnston
515-270-8890
Jimmy John’s (0.1 mi south)
5340 Merle Hay Road, Johnston
515-276-0708
Towne Place Suites (3 mi west)
8800 Northpark Drive, Johnston
515-727-4066
Pagliai’s Pizza (0.2 mi south)
5312 Merle Hay Road, Johnston
515-253-9800
Quality Inn & Suites (0.4 mi south)
4995 Merle Hay Road, Des Moines
515-278-2381
HyVee (0.3 mi north)
5750 Merle Hay Road, Johnston
515-270-9045
Ramada (0.6 mi south)
5000 Merle Hay Road, Des Moines
515-278-0271
Wendy’s (0.7 mi south)
4935 Merle Hay Road, Des Moines
515-270-0771
Holiday Inn (0.7 mi south)
4800 Merle Hay Road, Des Moines
515-278-4755
McDonald’s (0.7 mi south)
4825 Merle Hay Road, Des Moines
515-276-1968
Days Inn (0.8 mi south)
4845 Merle Hay Road, Des Moines
515-278-5511
Additional Services Provided by ChildServe
OUTPATIENT REHABILITATION
Physical Therapy, Occupational Therapy,
Speech Language Pathology
ORTHOTICS
Custom braces, dynamic movement
orthoses, static movement orthoses,
Cranial Symmetry Program (evaluation and
helmeting)
CLINICS
Augmentative Communication, Cochlear
Implant, Feeding and Swallowing, Spasticity
Management
ADAPTIVE EQUIPMENT
Customized seating and mobility fitting,
wheelchair provisions, and augmentative
communication devices
CONTINUING CARE
(LONG-TERM CARE)
24-hour nursing care including respiratory
care (tracheostomy care, invasive and noninvasive ventilatory care), feeding tubes,
and palliative care in a pediatric-focused
residential setting
HOMES
Intermediate care facilities for intellectual
disability (ICF/ID) and supported community
living (SCL/R) offering a structured homelike
environment focused on skill acquisition
RESPITE
Individual respite, specialized respite, respite
weekends, teen groups, sleepovers, Camp
ChildServe
SUPPORTED COMMUNITY LIVING
Goal oriented, one-on-one services
focused on developing independence
and acquiring daily living skills,
individual advocacy, community
participation, socialization skills, and/or
communication skills
CASE MANAGEMENT
Case management and care coordination
services in cooperation with Polk County
Health Services for children and families
enrolled in Medicaid’s Intellectual
Disability (ID) and Brain Injury (BI) waiver
programs
INTEGRATED CHILDCARE
Integrated and specialized childcare
services providing a safe, nurturing
environment for infants through schoolage children
DAY HEALTH
Providing nursing, therapy, early
intervention, and skill development for
children with special health care needs
DAY HABILITATION
Assisting teens and young adults to
successfully transition into adulthood
by increasing community integration
and life skills (activities of daily living,
functional skill development, mobility,
sensory integration, motor skills,
language/communication development)
HOMECARE
Specialized pediatric care providing
hourly nursing services, skilled nursing
visits, home health aide
visits, physical therapy,
occupational therapy, and
speech therapy in the
family’s home
Inpatient Rehabilitation Scope of Services
WHAT INPATIENT REHABILITATION SERVICES ARE AVAILABLE?
• Occupational Therapy
• Physical Therapy
• Speech Language Pathology
• Therapeutic Recreation
• Child Life
• Respiratory Therapy
• Music Therapy
• Aquatics
• Orthotics
• Adaptive Equipment
• Medical Social Services
• Nutrition
• Psychology
• Rehabilitation Nursing
HOW ARE SERVICES AUTHORIZED AND FUNDED?
Program costs are authorized and funded through commercial insurance
and Medicaid. Specific fees will be discussed during the intake/admission
process.
WHERE ARE SERVICES PROVIDED?
Inpatient Rehabilitation Services are provided on the Stelter-Fisher
Transitional Care Unit and Inpatient Therapy Wing at the ChildServe
Center in Johnston. Other facilities on the Johnston campus may be
utilized if it will be beneficial for treatment.
WHEN AND HOW OFTEN ARE SERVICES PROVIDED?
The frequency of any and all of the services listed above is dependent
upon the specific needs of each child/young adult. Physical, occupational
and speech therapy frequencies are determined by individual
assessments and vary from one service a day to three services twice a day
up to 6 days a week.
WHO PROVIDES MEDICAL MANAGEMENT
SERVICES?
All children/young adults will have a primary
physician or nurse practitioner to provide
medical management. Families have the choice
to select their own provider or utilize providers
that routinely provide medical management at
ChildServe. Primary physicians will work with
the child’s medical specialists, and ChildServe
will make sure the child is transported to his
or her appointments accordingly.
:
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WHEN WILL MY CHILD DISCHARGE FROM INPATIENT
REHABILITATION?
Consideration for discharge from inpatient rehabilitation will be based
on the following criteria:
• Plan of care (treatment) goals are achieved
• Child no longer requires a daily therapy service
• Progress towards goals has significantly slowed or stopped
• The child’s violent or agressive behaviors pose a significant danger
to self, other children, and/or staff and cannot be safely managed by
ChildServe staff
• The physician determines that services are no longer required
HOW CAN MY CHILD ACCESS CHILDSERVE’S INPATIENT
REHABILITATION SERVICES?
Referrals to ChildServe can be made by a discharge planner, physician,
case manager, or parent/guardian. To make a referral, contact our Access
Specialist at 515-331-8106.
More information on inpatient services can be found on our website at
www.childserve.org.
Directions
From south or west: As you
approach Des Moines, take
I-80E/I-35N. Exit at Merle Hay Road
(Exit 131). Turn left onto Merle Hay
Road and continue 0.5 mile.
ChildServe is on the left.
From north or east: As you approach
Des Moines, take I-80W/I-35S. Exit at Merle
Hay Road (Exit 131). Turn right onto Merle Hay
Road and continue 0.5 mile. ChildServe is on the left.
NW 66th Ave
ChildServe
Center
131
35
Urbandale
35
80
80
28
235
Des Moines
235
80
35
N
West Des Moines
Contact Inpatient Services:
Access Specialist
515-331-8106 office
515-314-0487 mobile
515-334-9553 fax
Nurses Station
515-331-8105 or 515-276-5032
ChildServe • 5406 Merle Hay Road • P.O. Box 707 • Johnston, IA 50131
tel 515.727.8750 • fax 515.727.8757 • online at www.childserve.org