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young at heart
Children’s Hospital Foundation of Richmond
FA L L 2014
From the President
Dear Friends,
MISSION
Children’s Hospital
Foundation funds and
advocates for pediatric
initiatives that improve the
status of health care and the
quality of life for children in
our region.
young at heart
FA L L 2014
Children’s
ation
Hospital Found
of Richmond
I
would like to welcome you to this issue of
Young at Heart. Last month you received the
Children’s Hospital Foundation Annual Report,
which highlighted a very successful fiscal year
in our fundraising and advocacy activities. We
were able to provide $6.1 million in support to
Children’s Hospital of Richmond at VCU (CHoR).
We are so pleased to be able to report that level
of funding, and we are planning to provide even
more support totaling $8.2 million during this
current fiscal year.
Chris Broughton-Spruill (left), President, Children’s Hospital Foundation,
and other members of the Foundation, including (left to right) Matt
Brady, Vice President for Communications, Sarah Irby, Volunteer and
Community Outreach Coordinator, Jodi Gibson, Accounting Manager,
and Stephanie Allan, Vice President for Community Relations, spent an
afternoon this summer creating decorations for the 51st Annual Children’s
Hospital Foundation Ball (see page 14). (Photo by Sara Jane Longstaff)
As I reflect on this number, I know it is because
of your interest and support that we are able to achieve such wonderful results. Through your active
participation in our activities, you continue to reinforce our belief that the children of our community need
and deserve quality health care in settings that are designed just for them.
Together we have made so much progress, and we are very optimistic about the future. Just this fall, three
new clinical specialists are joining the CHoR staff including a pediatric gastroenterologist, pediatric
orthopaedic surgeon and pediatric radiologist. All of these positions are being funded by our Foundation,
which speaks to our resolve to do what is in the best interest of the many patients we serve.
On the cover:
After receiving a living donor kidney transplant at
Children’s Hospital of Richmond at VCU in August
2013, 9-year-old Dani Jaramillo was able to return to
school and “participate in life,” according to his mom,
Pilar. (Photo by Doug Buerlein)
CHILDREN’S HOSPITAL FOUNDATION
PRESIDENT
Chris Broughton-Spruill
As you read this issue of Young at Heart, please keep in mind that everything we are able to accomplish
is made possible because you have chosen to be a part of this purposeful undertaking. Thank you for
continuing to believe in us and in what we can all accomplish together as a community with a clear mission.
Please remember to keep Children’s Hospital Foundation in your hearts.
Sincerely,
VICE PRESIDENT FOR
COMMUNITY RELATIONS
Stephanie Allan
VICE PRESIDENT FOR COMMUNICATIONS
Matthew E. K. Brady
ACCOUNTING MANAGER
Jodi Gibson
Chris Broughton-Spruill
President, Children’s Hospital Foundation
VOLUNTEER AND COMMUNITY OUTREACH
COORDINATOR
Sarah Irby
WRITER/EDITOR, Young at Heart
Alissa M. Poole
6
CHILDREN’S MIRACLE NETWORK
HOSPITALS
DIRECTOR
Rachel Bruni
PROGRAMS COORDINATOR
Amy Dickstein
Young at Heart is published by and in
the interest of Children’s Hospital Foundation,
2924 Brook Road, Richmond, Virginia, 232201298, and is issued four times each year. For
more information on articles appearing in
Young at Heart, contact the Vice President for
Communications at 804-249-8633 or
at the above address.
11
13
Look for the della Robbia
image throughout this
magazine to learn how
you can get involved
with Children’s Hospital
Foundation and make
a difference in the lives
of our children. For
many years, the della
Robbia has symbolized
the compassionate care
extended to so many
through the hospital
and supported by our
Foundation.
Children’s Stories
Getting the
Gift of Life
Nine-year-old Dani Jaramillo loves playing
outside with his older sister, Alejandra, an
activity that was more tiring before his kidney
transplant last summer. (Photo by Doug Buerlein)
N
ine-year-old Daniel ‘Dani’ Jaramillo likes eating pizza,
hanging out with his five dogs, playing Minecraft,
drawing and folding paper to create origami characters from
Star Wars. But unlike other kids his age, Dani has also had two
kidney transplants, a liver transplant and his health history
analyzed in at least five well-known medical journals. Born
by emergency Caesarean section at 35 weeks gestation after
doctors discovered autosomal recessive polycystic kidney
disease (ARPKD), a rare genetic disorder that causes enlarged
kidneys and progressive loss of kidney function, Dani spent the
first four months of life in the neonatal intensive care unit at
a hospital near his home in Fairfax County and had a kidney
removed when he was 17 months old.
hospital. Despite his growing
list of medical treatments and
providers, Dani was not eating
or growing well and was often
so weak he couldn’t walk.
“Everything Dani has ever
done has never been textbook,”
said Pilar who speaks of Dani’s
case with the knowledge of a
medical provider. “He’s never
followed protocol.”
“I told the doctors that God had bigger plans and wanted to
prove miracles do happen,” Dani’s mom, Pilar, recalled telling
physicians after Dani’s January 2005 birth. When Dani was 18
months old, he received a living donor kidney transplant from
his dad, Luis. After two years, Dani rejected the organ and began
receiving dialysis to remove waste and excess water from his body.
Over the next nearly seven years, Dani continued to receive dialysis
in hospitals, which he did not tolerate well, and at home, and in
February 2010, received a liver transplant at an out-of-state children’s
In April 2013, Pilar and Luis decided to transfer Dani’s nephrology
(kidney) care to Children’s Hospital of Richmond at VCU (CHoR), where
Dani was already being followed by Ronald Williams, MD, Assistant
Professor, Pulmonary Medicine. (Children with ARPKD often have
immature lungs that cause breathing difficulties.) Soon after meeting
Timothy E. Bunchman, MD, Professor and Chief, Division of Nephrology,
Dani began home hemodialysis, which allowed him to receive dialysis at
home instead of making the three-hour round trip to Richmond three times
young at h eart
I FALL 2014
“I TOLD THE DOCTORS THAT
GOD HAD BIGGER PLANS
AND WANTED TO PROVE
MIRACLES DO HAPPEN,”
Dani’s mom, Pilar, recalled
telling physicians after Dani’s
January 2005 birth.
Road to Richmond
—continued on page 4
3
Getting the Gift of Life
continued from page 3
a week. He also avoided the weakness and other
negative side effects he had previously experienced
from in-hospital treatment.
“Home hemodialysis is very rare in children,”
said Dr. Bunchman, who has written extensively
on the subject, “because it is more dangerous and
requires intense training for the parents. There are
most likely less than 20 kids in the U.S. and mostly
all over the age of 15 receiving this treatment. Dani
was no doubt the youngest and smallest.”
CHoR’s unique programs and research on
high-risk nephrology patients were two reasons
Pilar was drawn to Richmond and are two of
the reasons CHoR’s Division of Nephrology has
twice been listed among the top programs in
the country by U.S. News & World Report. CHoR’s
Nephrology Team, which includes one part-time
and three full-time physicians, a nurse educator,
dietitian, social worker and two nurses, has
grown over the last three years thanks in part
to more than $1.1 million in funding from
Children’s Hospital Foundation. Monies have
been used to recruit and retain specialists and
to fund an ACGME (Accreditation Council
for Graduate Medical Education) approved
Pediatric Nephrology fellowship program, which
began in July 2014.
“Our group works well together,” Dr.
Bunchman said. “We review every patient seen
each week so everyone on the team has input and
uses each other as our own sounding board.”
CHoR’s Nephrology Team, the sole provider
of pediatric nephrology services in Central
Virginia, offers general and transplant care to
patients at CHoR’s MCV Campus as well as
through clinics in Fredericksburg, Williamsburg,
Prince George and Richmond’s Stony Point area.
The team sees more than 2,500 outpatient visits
and 1,500 inpatient cases a year and consults
with other CHoR sub-specialists including
cardiology, urology, and hematology and
oncology as needed.
“An Excellent Prognosis”
After Dani’s parents were trained to administer
his in-home dialysis during the summer of
2013, Dani also began antibody reduction
treatment in preparation for a kidney transplant
from his mom. (When Dani’s body rejected
his first kidney transplant, his mom donated
blood to Dani, which created antibodies that
had previously prevented her from donating
a kidney.) On August 12, 2013, Dani received a
4
Since receiving a living donor kidney transplant from his mom, Pilar, in August 2013, Dani Jaramillo has more
energy to take walks with his family, pictured here with Pilar and his sister, Alejandra. (Photo by Doug Buerlein))
living donor kidney transplant from his mom.
She spent three days recovering in the hospital
near Dani then remained at her son’s bedside
during his week-long stay.
Pilar said she appreciated being close to
Dani during and after surgery, something that
was possible because of the shared resources of
CHoR and VCU Medical Center.
“There are 105 pediatric kidney transplant
programs in the country,” said Dr. Bunchman,
who also led the teams that completed a unique
heart and kidney transplant as well as the first
chain transplant (where multiple patients
receive transplanted organs) at CHoR in 2013.
“Most solid transplant programs share resources
between pediatric and adult surgeons to have
depth of volume. As with most things, the more
you do something, the better you get.”
After being out of school for a year, Dani
was able to return to school with his third
grade classmates last fall. He no longer receives
dialysis, is regaining his appetite and loves
playing outside with his friends and older sister,
Alejandra. He also enjoys science and has told his
mom he wants to be a pediatrician to “help kids.”
“Dani’s prognosis is excellent,” said Dr.
Bunchman, who continues to follow Dani through
CHoR’s Fredericksburg multi-specialty clinic.
Pilar said the Nephrology team’s creativity
in meeting Dani’s medical needs, accessibility
whenever she has questions or concerns
and ability to include her and Luis in Dani’s
care contribute to her satisfaction with
CHoR. “They will tell you they are going to do
something, and it gets done. Dr. Bunchman
understands people as individuals and is the
most humble person I’ve ever met.”
Dani’s reasons are a bit simpler. “Dr.
Bunchman is funny,” he said.
“I’m a huge fan of team Bunchman,”
said Pilar, affectionately referring to CHoR’s
Pediatric Nephrology Team. “When they
met me, they understood the urgency of the
situation. Now thanks to Dr. Bunchman and his
team, Dani gets to participate in life.”
“WHEN THEY MET ME, THEY UNDERSTOOD THE URGENCY OF THE
SITUATION. NOW THANKS TO DR. BUNCHMAN AND HIS TEAM, DANI GETS TO
PARTICIPATE IN LIFE.” Pilar Jaramillo
For more information about CHoR’s Division of Nephrology, see page 8 or visit
www.chrichmond.org/Services/Nephrology.
Children’s Stories
Medical Diagnosis Brings
Brothers Closer
Diagnosed with Becker muscular dystrophy five years ago, Jeremy (left) and Justin Gammon stay active with outdoor activities including fishing and
cheering on their favorite NASCAR drivers at Richmond International Raceway. (Photo by Michael Hahn)
W
“Justin and Jeremy have parents who are completely committed to
hen Gail and Jimmy Gammon brought their oldest son to
giving the boys the best they can,” said Nicki. “The MD clinic allows us
Children’s Hospital of Richmond at VCU (CHoR) in January 2009,
to follow them and offer services to help the boys remain as active as
they had no idea how his recurring stomach problems would impact
possible.”
their lives. Tests revealed then 13-year-old Justin had elevated liver and
The muscle deterioration caused by Becker muscular dystrophy is
muscle enzymes, which can be a symptom of Becker muscular dystrophy,
slower and less predictable than other forms of muscular dystrophy. It can
a degenerative neuro-muscular disease that affects the voluntary
cause coordination issues by impacting muscles in the hips, thighs and
muscles and is usually diagnosed in late childhood or adolescence.
shoulders and can weaken the muscles around
Because Becker muscular dystrophy is a
the heart and lungs. Some children with Becker
genetic condition, the Gammon’s other son,
“JUSTIN AND JEREMY HAVE PARENTS
muscular dystrophy, including Justin and Jeremy,
then 8-year-old Jeremy, was also tested and
WHO ARE COMPLETELY COMMITTED
also have scoliosis, an abnormal curvature of the
eventually diagnosed with the disease.
TO GIVING THE BOYS THE BEST THEY
spine.
The Gammons began making the 50-minute
CAN,” said Nicki Foster, RN. “THE
Although the boys are easily fatigued, they
one-way trip from their Louisa County home to
MD CLINIC ALLOWS US TO FOLLOW
played soccer for years and stay active by fishing,
CHoR’s Brook Road Campus for bi-annual visits
THEM AND OFFER SERVICES TO HELP
camping and going to the beach. Justin, who
to CHoR’s Muscular Dystrophy (MD) clinic, one
THE BOYS REMAIN AS ACTIVE AS
recently graduated from high school and plans
of the hospital’s multi-specialty clinics designed
POSSIBLE.”
to study engineering at a community college this
for patients to see multiple physicians, therapists
fall, also plays guitar. Jeremy, a rising high school
and service providers during one appointment.
freshman, enjoys playing the snare drums and studying science. Both
Although the Gammons often spend two to three hours each visit, they
boys are avid Washington Redskins and NASCAR fans and participated in
are able to meet with physical medicine and rehabilitation doctors, a
NASCAR’s “Racing for a Miracle” event for Children’s Hospital Foundation
neurologist, pulmonologist, cardiologist, physical therapist, education
in April, something Gail called “a dream come true for the boys.” Justin
specialist, and equipment vendor during that time.
even hopes to become an engineer with a NASCAR race team.
“It’s helpful to see all the specialists at once,” said Gail, who along
“The boys are almost five years apart but have similar interests,” Gail
with Jimmy takes the day off of work for the clinics. “The doctors call
said. “Being diagnosed together and experiencing the same things has
you by first name, and the nurses are always available for questions.”
made them closer.”
One of the multi-specialty nurses with whom Gail has developed
For Gail and Jimmy, the support from CHoR has been instrumental in
a strong friendship is Nicki Foster, RN. In addition to seeing the boys
helping the family adjust to the boys’ diagnoses.
during clinic visits, Nicki volunteers at muscular dystrophy camp
“The physicians and staff never hesitate to respond to our questions,”
each summer and spends a week watching Justin and Jeremy enjoy
said Jimmy. “They always call you back and are very accessible.”
camp activities including fishing, swimming and canoeing.
young at h eart
I FALL 2014
5
Local Company Remains Committed to Supporting Children
Giving Back
When American Family Fitness began supporting Children’s
Hospital Foundation (CHF) 17 years ago, the Richmond-based
health club had four locations and 25,000 members. Since that
time, as its membership and locations have grown, so too has
its commitment to the Foundation, giving more than $423,408
to fund Children’s Hospital of Richmond at VCU’s (CHoR) Dental
Program, Recreation Therapy Program, Community Therapy
Centers, camp scholarships and multiple Transitional Care Unit (TCU)
activities including the annual beach trip for children who reside on the
hospital’s long-term care unit.
“These children may never experience the same pleasures of life we
take for granted,” said Brian Evans, President, American Family Fitness, “but
I think companies that have the resources to contribute toward giving the
hope, and in some cases the reality, of these life experiences owe it to them
and the people who commit their time to the cause of Children’s Hospital.”
This fall, American Family Fitness will serve as the presenting sponsor
of the third annual Children’s Hospital Foundation Four Mile Walk/Run
and Superkid Adventure Obstacle Course. The event, which begins with
a warm-up led by one of American Family Fitness’ exercise instructors,
includes a four-mile walk/run through Richmond’s Northside neighborhoods
and an obstacle course for children at CHoR’s Brook Road Campus.
“It’s very special to be able to see the patients get outside, be part of
the race and interact with the community,” said Brian of the children who
participate in the annual event. “Our members and employees all have
fun participating and take a lot of pride in the event.”
In addition to sponsoring the annual Walk/Run, an event that evolved
from a race started by AFF in 2003, American Family Fitness encourages
American Family Fitness has supported Children’s Hospital Foundation in a variety of
ways for 17 years, including serving as the presenting sponsor for the Foundation’s
annual Walk/Run in September.
members and employees to sign up as race participants or volunteers.
Over the years, AFF has also sponsored celebrity golf tournaments,
organized teams for the Foundation’s annual Bowl-A-Thon and raised
money for CHF through its Fitness Challenge fundraiser.
“Children’s Hospital Foundation relies on the community to continue
providing support to Children’s Hospital of Richmond at VCU and the
many children it serves each year,” said Stephanie Allan, Vice President for
Community Relations, CHF. “Without partners like American Family Fitness we
would not be able to make a difference in the lives of so many children.”
sweetFrog Brings Sweet Smiles
F
rom their first visit to Children’s Hospital of Richmond at VCU
(CHoR) in 2011, employees from sweetFrog Premium Frozen
Yogurt knew they had found a new community partner.
“Kids have a special place in the heart of sweetFrog,” said Elise
Di Pace, Senior Creative Specialist, sweetFrog. “We wanted to do
something locally to support children.”
The Richmond-based frozen yogurt company began visiting
patients at CHoR’s MCV Campus every other month, bringing its
mascot, Cookie, along with promotional items and frozen yogurt
coupons. sweetFrog also began donating toys each December and
hosting fundraisers including spirit days and golf tournaments,
raising more than $3,400 for Children’s Hospital Foundation (CHF).
This summer, sweetFrog donated a portion of its proceeds from a
local community event to the Foundation.
“We have a passion for supporting causes,” said Nicole Sanderson,
Marketing Coordinator, sweetFrog. “We want to be a business that
gives back and cares.”
sweetFrog opened its first location in Henrico County in 2009 and
now has 347 stores in the U.S., England and Dominican Republic. In
®
Cookie, sweetFrog’s
mascot, visited with
Teriah Scott, 10,
in the pediatric
intensive care unit at
CHoR last summer.
the Richmond area, sweetFrog has seven corporate and 10 franchise
locations, many of which organize individual events to benefit CHF.
Nationally, sweetFrog supports charities focused on children or
hunger but encourages stores to support local causes.
On June 30, sweetFrog’s Monroe Park location hosted a golf
tournament at Brandermill Country Club and raised $850 for CHF.
In July three other sweetFrog locations sponsored a spirit day and
donated more than $200 reflecting a portion of the day’s sales.
To learn how your company or organization can support Children’s Hospital Foundation, contact Stephanie Allan at 804-228-5827 or
[email protected].
6
MAKING MIRACLES
Children’s Miracle
Network Hospitals
Children’s Miracle Network (CMN)
Hospitals works in Central Virginia
with Children’s Hospital Foundation
to support Children’s Hospital of
Richmond at VCU (CHoR).
Meadowbrook High School Hosts Inaugural Dance Marathon
Meadowbrook High School in Chesterfield County hosted its inaugural Dance Marathon fundraiser for Children’s Miracle
Network Hospitals in May. Organized by students in the National Honor Society and their faculty advisors, the event raised
$10,257 through donations, sponsorships, and sales of t-shirts and refreshments at the event. Dubbed a “Roar-A-Thon” in
reference to the school’s lion mascot, the 12-hour event featured themes every hour, including beach music, disco, Zumba,
Japanese taiko drumming, international dance, line dancing and more.
Dance Marathon 101:
Attend our Dance Marathon 101 session on
Thursday, September 25 from 3 to 4 p.m., and we’ll
provide you with all the tools you need to make
Dance Marathon a reality at your school. Contact
Amy Dickstein at [email protected] or
804-228-5934 for more information.
Food Lion Reaches Goal
Raising Funds One Cup at a Time
Family and friends of Fletcher Karr ( front right), 5, an oncology patient at Children’s Hospital of
Richmond at VCU (CHoR), won the most festive stand contest during Anthem LemonAid this
year. Their stand at the Colonial Heights Sam’s
Club raised $224 over LemonAid weekend, and
the family raised an additional $360 through an
online stand.
“I could not imagine our endless hours
spent at the hospital without the involvement
from the volunteers and wonderful staff,” said
Fletcher’s mother, Alisa. “Fletcher can definitely
be a pint-size ball of spitfire, but the nurses and
staff handle him wonderfully. They keep the
children engaged with games, television, and
other activities so they experience as little stress
as possible.”
Thanks to 695 participants, LemonAid
raised $97,317 for the Hematology and
Oncology Clinic at CHoR.
young at h eart
I FALL 2014
In 2011, Food Lion pledged $1 million to support
the pediatric emergency room at CHoR through
the area stores’
CMN Hospitals
fundraising efforts
over four years.
Food Lion fulfilled
its pledge in only
three years, and the
company’s support
was acknowledged with the naming of the Food
Lion Pediatric Emergency Waiting Room. Thanks
to Food Lion, its associates and customers for the
extraordinary support.
Thanks to our Donors
Children’s Miracle Network (CMN) Hospitals
recently received the following donations, raised
through the sale of CMN Hospitals Miracle
Balloon icons and from other events:
• Walmart - $263,929
• Food Lion - $142,423
• Rite Aid - $49,752
• Costco - $42,824
• Sam’s Club - $22,589
• Ollie’s Bargain Outlets - $1,703
7
Making a Difference
B U I L D I N G
A
F O U N D AT I O N
F O R
O U R
C H I L D R E N
Funds raised by Children’s Hospital Foundation stay right here in Central Virginia to benefit local children. The
Foundation provides support for the programs and services of Children’s Hospital of Richmond at VCU (CHoR)
and the tens of thousands of children it serves each year. During the last four years, the Foundation has provided
more than $58 million in gifts and pledges to develop medical programs, recruit pediatric specialists, provide new
equipment, and renovate facilities.
Long-Term Care Unit Celebrates Anniversary
The Carolyn Bennett Arnold Transitional Care Unit (TCU) at Children’s
Hospital of Richmond at VCU (CHoR) celebrated its 15th anniversary this
summer. Beginning with its first admission in June 1999, the TCU filled a gap
in health care for children who require long-term specialized nursing care,
yet do not need acute hospitalization. When it originally opened, the TCU
had 12 beds and was consistently at full capacity. In 2002 the number of
beds was increased to 23, and in 2008 the unit expanded again to its current
size of 47 beds. Over the last 15 years, many donors have contributed to the
TCU, which remains the only program of its kind in Central Virginia.
The Transitional Care
Unit, CHoR’s long-term
care unit, admitted its first
patient in June 1999. The
unit was renovated and
expanded to its current
size in 2008 and named
in honor of Carolyn
Bennett Arnold, who
donated nearly $3 million
to support the unit.
■ Carolyn Bennett Arnold’s connection with Children’s Hospital grew
out of one of the things she enjoyed most in her life—her membership
in Kappa Delta, a sorority that has supported the hospital as its
national philanthropy for more than 86 years. Her estate gift of $2.957
million allowed the TCU to expand to its current size and was named
in her memory.
■ Kappa Delta National Sorority contributed $250,000 from the
Children’s Hospital Foundation Kappa Delta Fund to support
construction of the TCU.
■ American Family Fitness funded a nursing station with a gift of
$28,500 representing proceeds from its 2007 5k/10K Walk/Run.
■ The Junior Board of Children’s Hospital Foundation also contributed
to the renovation by providing $260,000 from the 2007 Ball.
■ In 2003, Dr. Edwin P. Conquest, Jr. established an endowed fund
to support rooms on the TCU. The Endowed fund, known as the
Mrs. Henry Fairfax Memorial Fund, was named in memory of Dr.
Conquest’s grandmother, Eugenia Baskerville Tennant Fairfax,
who was a member of the Board of the original Crippled Children’s
Hospital. The fund currently endows seven rooms on the TCU.
Q&A
With Timothy E. Bunchman, MD
In June, U.S. News & World Report ranked Children’s Hospital of Richmond at VCU’s (CHoR) Division of Nephrology in the
2014-15 Best Children’s Hospitals rankings. We caught up with Timothy E. Bunchman, MD, Professor and Chief, CHoR’s
Division of Nephrology, to ask about the progress the division has made over the last year.
What goes into submitting a program for ranking by U.S. News & World Report? The application takes a very extensive data
phase, including reporting the number of procedures, biopsies, transplants, and so on. It’s not only about what our division is doing but
what the entire Department of Pediatrics is doing.
The nephrology program rose in the rankings from number 50 in 2013 to number 28 in 2014. What do you attribute as the
cause(s) for the higher ranking nephrology achieved this year? What we’ve done between the last two years is add a fellowship
program, expand our transplant program, and expand our footprint in the state to see patients literally in about one third of the state. We’re
seeing academic growth with the fellowship, service expansion, and also several large research studies. We hit the application on all three levels.
Can you tell us a little bit about the nephrology fellowship program? The fellowship program was approved in spring 2013, and it started on
July 1, 2014 with our first fellow. We’ve already got a fellow lined up to start in July 2015, and we’re working with our internal medicine colleagues
to establish a joint fellowship program to potentially start in 2016. With a fellowship, you basically take someone who has gone through three years
of training in pediatrics, and if they want to specialize further they do another three years of specialty training through a fellowship. We had to go
through an extensive application process to get approved as a fellowship program as well.
Is there anything else you’d like to share about the state of the nephrology program at CHoR? Part of the reason we’ve been able to grow
is that we’ve had a philosophy of seeing patients the same day or the next day after a referral. That’s the type of attitude we need to have if we’re
serious about taking care of children in the Commonwealth.
8
Children’s Hospital
Foundation Research Fund
Awards Eight Grants
Encouraging a
Healthy Lifestyle
B
eginning this year, Children’s Hospital Foundation funded
a two-year $100,000 grant to improve the research
competitiveness of Children’s Hospital of Richmond at VCU
(CHoR) faculty. The grant was designed to be divided into small,
starter grants to fund eight to ten projects each year. Twentythree applications were received for the first year of grants, from
13 different divisions and units within CHoR, and eight projects
were awarded grants. Funded projects included:
Critical Care Medicine: $8,900
Loss of Bacterial Diversity in the Airway Microbiome Predates
Ventilator-Associated Infection
General Pediatrics: $7,500
Preventing obesity through early education: Informing mothers
about healthy lifestyle practices for their new infants in the
primary care setting
Healthy Lifestyles Center/Endocrinology: $5,000
Development of a Home-Based Pediatric Obesity Intervention for
Low Income Families
Physical Therapy/Neonatal Medicine: $5,000
Supporting Play, Early Exploration and Development in Infants
born preterm (SPEEDI) Feeding and Parent Child Interaction
Extension Project
Children’s Hospital Foundation recently provided an additional
$15,000 to be used by grant recipients to travel to present their
results at meetings or publish them in a medical journal. The
additional funds will ensure that the findings from CHoR’s
research projects can be shared with the medical community at
large and encourage collaboration and future growth.
Inspiring a New Generation
45-year-old Greg Smith was diagnosed with cerebral palsy (CP)
when he was 9 months old, and his parents were told that he
would never walk, go to school, or lead a normal life. Thanks to
his parents’ unending support and his own drive to succeed, Greg
overcame the obstacles associated with his diagnosis and today
owns his own business, G.M. Smith Landscape Design. Read more
about Greg at www.chfrichmond.org/greg.
young at h eart
I FALL 2014
Patients at the Healthy Lifestyles Center participated in a “Chopped Challenge” event at
the Center earlier this year. They were provided ingredients from the community garden
and challenged with using those ingredients to make healthy recipes.
Through a partnership with Children’s Hospital Foundation and Whole
Foods Market, the Healthy Lifestyles Center (HLC) at Children’s Hospital
of Richmond at VCU constructed a community garden on its grounds
last summer. The garden includes seven raised garden beds and trellis
structures for growing a variety of fruits and vegetables year-round. The
HLC held a number of planting events and cooking classes with patients
to encourage healthy eating choices.
To learn more about upcoming garden and cooking events, contact
Ashley Cappel, Registered Dietician, HLC, at 804-527-4760 or
[email protected].
Foundation Board of Directors
Welcomes New Member
Children’s Hospital Foundation was
pleased to welcome Heather Hewitt Daniel
to its Board of Directors this summer.
Heather was a member of the Junior Board
of Children’s Hospital Foundation for 10
years and held positions including Ball
Co-Chair, Vice President, and President
during her tenure.
“My service on the Junior Board
changed my life in unexpected ways,”
Heather said. “The friendships I made
were immeasurable, and helping children
truly enriched my life. My election to the Board of Directors is such
an honor, and I am committed to my role in leading the Foundation
forward. The Foundation’s role in supporting the most comprehensive
and effective healthcare for children in our community is pivotal.”
9
Members of the University of Richmond Men’s Basketball Team visited with cancer patients and survivors during ASK’s annual Summer Enrichment Camp in July. Players chatted and ran
dribbling, passing, and shooting drills with more than 30 children in attendance.
ASK Supports Pediatric Hematology and Oncology Positions
S
ince last fall, ASK Childhood Cancer Foundation has donated more than $176,000 to Children’s
Hospital Foundation toward its pledge of $208,898 in support of the ASK Pediatric Hematology
and Oncology Clinic at Children’s Hospital of Richmond at VCU (CHoR). The donation funds the
annual salaries of three full-time staff members at the ASK clinic: Katie Barber, CTRS, Child Life
Therapist; Matt Bitsko, PhD, Pediatric Psychologist; and Tom David Siebert, M.Div., MS, Chaplain.
All three positions, which ASK has funded directly for years, are dedicated to Pediatric Hematology
and Oncology and provide services at no cost to patients or families. The Chaplain also conducts
a monthly support group for clinic staff while the psychologist counsels survivors and siblings in
addition to patients and parents.
“The partnership we have with Children’s Hospital of Richmond at VCU enables us to fund these
positions and offer a level of psycho-social support that’s not available at most hospitals across the
country,” said Amy Godkin, ASK’s Executive Director.
As part of the child life program, which uses play, music and art therapy to help children
understand and cope with their illness, Katie works with patients in the outpatient clinic at CHoR’s
MCV Campus. Matt and Tom David counsel outpatients as well as inpatients and survivors, a group
that is growing as the overall childhood survival rate is approaching 80 percent.
“Nationally less than half of families with children in treatment have access to psychological services,”
Amy said. “By offering psychology services at no cost to families or insurance companies, we’re able to
ensure that all families have access to those services. We’re also providing more support for survivors as
studies show that two-thirds of childhood cancer survivors experience permanent late physiological and
cognitive effects from treatment.”
Founded in 1975, ASK helps families navigate the pediatric cancer process, from diagnosis to
treatment and “life after” cancer. With one to two children being diagnosed with cancer each week
at CHoR’s MCV Campus, ASK provides educational, financial, social and emotional support to make
treatment less traumatic for children and families. ASK raises more than $450,000 annually through
special events, grants and individual and corporate donations.
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ASK CHILDHOOD
CANCER FOUNDATION’S
PROGRAMS AND SERVICES
INCLUDE:
• Funding 3 salaried positions –
Child Life Therapist, Chaplain,
Psychologist
• 3 one-week summer day camps in
Richmond and Fredericksburg
• Annual middle and high school
spring retreat
• Preschool program, one of only two
preschool programs for children
with cancer in the country
• Weekly after-school tutoring in
Richmond, Fredericksburg and
Colonial Heights
• Annual high school graduation
ceremony with $500 scholarship
for each graduate
• Moving Forward and Super Sibs
Programs in partnership with
YMCA Richmond
• Monthly young adult survivor group
• Social outings and celebrations
throughout the year
Community
The Senior Board of Children’s Hospital Foundation sponsors two annual events that focus on children supporting other children.
Since their inception, the golf tournament and coin collection programs have raised more than $484,400 for the Foundation.
Schools Support Children’s Hospital Foundation
More than 53 schools and organizations participated in the Change for
Children campaign during the 2013-2014 school year and collectively
raised $21,852 for Children’s Hospital Foundation. Organized by the Senior
Board of Children’s Hospital Foundation, the program is designed to give
children at local schools a chance to help other children in the community.
Congratulations to the Top Fundraisers for 2013-14
• Shady Grove Elementary - $1,547 for a grand total of $12,079 over six years
• Elizabeth Davis Middle - $1,200 for a grand total of $1,325 over two years
• Bailey Bridge Middle - $1,171 for a grand total of $4,337 over three years
Welcome
Children’s Hospital Foundation is pleased
to welcome the Steward School as a firsttime fundraiser in the Change for Children
campaign for the coming school year.
Youth Golfers Raise More Than $16,000
More than 40 junior golfers between the ages of 8 and 17, along with 14 adult golfers,
helped support local children by playing in the 12th Annual Children Fore Children Golf
Tournament on May 17. Organized by the Senior Board of Children’s Hospital Foundation,
the event raised $16,242 through registrations, donations, and generous sponsors, including
Troutman Sanders, Williams Mullen, and Walmart. The event has raised $258,949 for the
Foundation since its inception.
Thirteen-year-old Max
Berenson was the top
individual fundraiser with
a total gift of $1,000,
which he presented to
Laura Shuford (left),
Tournament Co-Chair,
and Sarah Irby
(right), Volunteer and
Community Outreach
Coordinator, Children’s
Hospital Foundation.
Other top fundraisers
(not pictured) were
Miles Krishnamurthy
with $550 raised and
Zachary Valdes with
$135 raised.
Pictured left to right, Bob Kluge, Business Manager for The Hermitage at Cedarfield, an
event sponsor, Boyd Peete, Noah O’Neill, and Ben Walters, were the winning team in the
15-18-year-old age group.
To learn how you or your school can get involved in the Change for Children Campaign or Children Fore Children Golf Tournament, contact
Stephanie Allan at 804-228-5827 or [email protected].
young at h eart
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11
See How We’ve Grown
During our 2014 fiscal year (July 1, 2013 to June 30, 2014), Children’s
Hospital Foundation supported the efforts of Children’s Hospital of
Richmond at VCU with $6.16 million in gifts thanks to the thousands of
people in our community who made donations and volunteered their
time. To learn about some of the children helped by these funds, visit
www.chfrichmond.org to read our Annual Report.
Children’s Hospital Foundation
2014 Annual Report
Restaurants Feature Special
Menu Items for Fundraiser
Emma Blair, 5, had her cleft palate repaired by specialists in the Center for Craniofacial
Care at Children’s Hospital of Richmond at VCU when she was 18 months old.
It’s United Way Time
Please remember Children’s Hospital Foundation during this year’s
United Way campaigns. The codes for the Foundation are 422
(Local Government and Schools), 90557 (Central Virginia Combined
Federal Campaign), and 3622 (Commonwealth of Virginia
Campaign). All other campaigns should write in “Children’s Hospital
Foundation, Richmond, VA.” Last year, Children’s Hospital Foundation
received more than $39,500 from your gifts in United Way
campaigns. For more information, contact Sarah Irby at 804-2285920 or [email protected].
Making Holiday Wishes
EAT Restaurant Partners, a group of five Richmond-based restaurants
owned by Chris Tsui, held a fundraiser for Children’s Hospital Foundation
in June and raised $1,748. Foo Dog Restaurant, Osaka Sushi & Steak, Wild
Ginger, The Blue Goat, and Fat Dragon Chinese Kitchen and Raw Bar
each featured a special menu item and donated $2 each time that item
was ordered during June.
“We adopted this company-wide approach to charitable giving
for a few reasons,” explained Chris. “The campaign allows our regular
customers to select and help a chosen charity each month. Together,
we can focus on that single group and have a much larger and more
comprehensive impact on our community as a whole.”
The restaurant group has supported both smaller grassroots-based
charities and larger charities that have a regional, and even national,
presence. Feedback from customers at the restaurants has been
overwhelmingly positive and supportive, and diners have enjoyed trying
the unique “donation” dishes each month, such as lamb meatballs at The
Blue Goat or Singapore Noodle Dish at Foo Dog.
“Children’s Hospital Foundation has a large base of supporters,”
Chris added, “and we knew people would enjoy getting behind them.
Everybody wins.”
12
Make a donation to Children’s Hospital Foundation’s annual holiday
campaign between Nov. 1 and Dec. 31 to benefit the Children’s
Activity Fund. The Activity Fund provides field trips and other fun and
educational activities to the children who live on Children’s Hospital
of Richmond at VCU’s long-term care unit. For more information,
contact Sarah Irby at 804-228-5920 or [email protected].
With Our Thanks
Chris Staples (left), General Manager, Foo Dog Restaurant, and Chris Tsui, Owner, EAT
Restaurant Partners, unveiled their grand total fundraising amount at Foo Dog in July.
Funds were raised through special menu items at five local restaurants, including Foo Dog.
Children’s Hospital Foundation recently received gifts
from the following:
• Universal Leaf Foundation - $6,000
• The Brinks Foundation - $5,000
• Kohl’s Associates in Action - $4,000
• Bowl America Charity Fund - $2,000
• Dick’s Sporting Goods - $1,500
Children’s Hospital Foundation recently received the following
estate gifts:
• Andrew G. Sutherland - $53,748
• Shirley B. Phillips - $40,000
• John B. Whitehurst - $26,922
• Edith W. Badger - $500
snapshots
Campbell Brandt, 9, and Jasmine China, 13, enjoyed getting dressed up and having
their faces painted at Children’s Hospital of Richmond at VCU’s annual Oncology
Prom held in May. Featuring the theme “Into the Jungle,” the event was attended by
nearly 100 past and present patients of the hospital’s Hematology and Oncology
Clinic and their families.
BAPS Charities, a national philanthropic organization, coordinates walk-a-thons
throughout the country to benefit the national organization as well as local charities.
With more than 200 participants, the local chapter raised $1,501 for Children’s
Hospital Foundation through its walk-a-thon in Chesterfield County on July 12.
Helen Whitehead (left), owner of the Baskin-Robbins on Forest Hill Avenue, along with her
mother Joy Albert (right) and her daughter Hannah (center), who both work at the store,
presented a check for $2,000 to Children’s Hospital Foundation (CHF) in July. $962 was
raised from customer donations and the sale of CHF icons at the store in June, and the
remaining funds were donated personally by the Whitehead family.
Local Jersey Mike’s franchise owners Robbie Waldrop (left) and Tony Wilson (right)
presented a check for nearly $23,873 to Stephanie Allan, Vice President for Community
Relations, Children’s Hospital Foundation, in May. The funds were raised during the Jersey
Mike’s March Month of Giving Campaign. Over the past four years, Jersey Mike’s has
collected nearly $77,000 for the Foundation.
Grand Master Seung Gyoo Dong
(front left), along with instructors
at his Richmond-area schools,
presented a check for $35,613 to
Stephanie Allan (front right), Vice
President for Community Relations,
Children’s Hospital Foundation, in
June. The funds were raised during
the 43rd Annual Dong’s Martial
Arts Tournament held on May
31 at Douglas S. Freeman High
School. Over the last 19 years, the
tournament has raised a grand total
of $389,843 for the Foundation.
young at h eart
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13
Family Fun & More
calendarof events
Visit www.chfrichmond.org for the
most up-to-date event information.
All events benefit Children’s Hospital Foundation.
SATURDAY, SEPTEMBER 20
Children’s Hospital Foundation Four
Mile Walk/Run
It’s not too late to sign up! Be a superhero
for kids at an event with something for the
whole family. Walkers and runners of all
ages are invited to participate in the Four
Mile Walk/Run presented by American
Family Fitness, which features a race course through the scenic neighborhoods
of Richmond’s North Side. Children
between the ages of 5 and 10 have the
special opportunity to test their skills in
the Superkid Adventure Obstacle Course.
Start times are 8:30 a.m. for the
Superkid Adventure Obstacle Course and
9:00 a.m. for the Four Mile Walk/Run.
Registration for the Obstacle Course is $15
and includes a superhero cape, participation ribbon, and goody bag. For the Walk/Run,
registration is $35 and includes a race t-shirt (for the first 700 registrants) and goody bag.
Courses begin and end at Children’s Hospital of Richmond at VCU, Brook Road
Campus, 2924 Brook Road, Richmond. Register online today at www.chfrace.org. Contact
Stephanie Allan at 804-228-5827 or [email protected] for more information.
FRIDAY, NOVEMBER 7
51st Annual Children’s Hospital Foundation Ball
Organized by the Junior Board of Children’s Hospital Foundation
The 51st Annual Children’s Hospital Foundation
Ball, presented by Davenport & Company LLC,
will take place the evening of Friday, November 7.
This year’s theme, “An Evening in the Garden,” will
spotlight beautiful gardens from around the world.
For the third year, the “Jewels for Children”
raffle will bring together 12 Richmond independent
jewelers who have each donated one piece of
jewelry worth $1,500. Conceived and organized by
Richmond jeweler Cheryl Fornash, the event will allow Ball attendees the exclusive
opportunity to purchase $25 tickets for a chance to win one of the 12 pieces.
Visit www.chfball.org for ticket and sponsorship information.
14
MARK YOUR CALENDAR
Miracle Jeans Day
Wednesday, September 10
Wear jeans and help kids! Whether you are an office, group
or individual, you can participate by making a donation to
wear jeans on Miracle Jeans Day or on your own special day.
Visit www.miraclejeansday.com to register.
Aireco’s Foolish Open Golf
Tournament
Thursday, September 18
Register your foursome (or sign up as an individual) for
this captain’s choice tournament where the golfer with the
highest score is the winner. $600 registration fee includes golf
for four, acknowledgement of your company or name on a
“Miracle Sponsor” sign and lunch after the event. 9 a.m. tee
off. The Brookwoods Golf Club, 7325 Club Drive, Quinton.
Contact Nancy McDaniel at 804-359-2468.
Fire Prevention Day
Tuesday, October 7
Children ages 4-7 are invited to attend this free event featuring
interactive presentations about fire safety and healthy lifestyles
from local fire departments and other community partners.
Pre-registration is required. 10 a.m. to noon. Children’s Hospital
of Richmond at VCU, Brook Road Campus, 2924 Brook Road,
Richmond. Contact Sarah Irby at 804-228-5920.
Extra Life Tournament
Saturday, October 25
Whether you spend hours playing Dragon Age, are a master
Monopoly player, or prefer to be a Fruit Ninja on your smart
phone, Extra Life makes it easy for EVERYONE to play their
favorite game for kids! Register to take part in this year’s
24-hour gaming marathon benefiting Children’s Miracle
Network Hospitals. Play for a few hours or the whole 24 and
have friends and family support you for as little as $1/hour.
www.extra-life.org.
Spirit Halloween Fundraiser
Through October 31
SATURDAY, DECEMBER 20
Teddy Bear Run
Saturday, November 1
Join us for Central Virginia’s
second annual High School
All-Star Football Game featuring
players from more than 40 local
high schools competing in a North
of the River versus South of the
River Team format. Players will be
graduating seniors who are nominated
by their head coach for outstanding
athletic and academic achievement.
With presenting sponsor Children’s
Hospital of Richmond at VCU, the game will
be played on Randolph-Macon College’s Day
Field, 204 Henry Street, Ashland. Tickets are $10/adults and $5/students.
Community members are also invited to purchase ticket packages to distribute to
teammates, coaches, and family members of players who might not otherwise be
able to attend the game. Contact Bob Siff at 804-338-1808 or [email protected]
for more information.
Organized by the Blue Knights VA III, the 32nd Annual
Teddy Bear Run will bring a parade of motorcycles
carrying teddy bears to patients at Children’s Hospital of
Richmond at VCU’s Brook Road Campus. 2924 Brook Road,
Richmond. Contact Stephanie Allan at 804-228-5827.
save the date
Spirit Halloween stores in the Richmond area are raising
funds for the Child Life Department at Children’s Hospital of
Richmond at VCU. Download a special coupon and get 10%
off your purchase while helping patients at the hospital. Visit
www.chfrichmond.org to get your coupon and find a list of
participating locations.
Mustaches 4 Kids
November 5 to December 5
Sign up before November 5 to grow a mustache and raise
funds to help children at Children’s Hospital of Richmond
at VCU. Participants in this facial hair marathon will
solicit donations from friends, family, co-workers, and
people in the community throughout the four-week
growing season. www.m4krichmond.org.
36 Hours for Kids Radiothon
November
Virginia Dance Festival
Saturday, February 7, 2015
The Virginia Dance Festival, organized by Jessica Morgan, will feature dozens of dance
troupes performing a wide variety of classical and modern dance styles. Altria Theater,
6 N. Laurel St., Richmond. www.virginiadancefestival.com.
Children’s Hospital Foundation Bowl-A-Thon
Saturday, February 21, 2015
The Bowl-A-Thon is open to the public and
includes the Battle of the Banks challenge, a special
competition for employees in all areas of banking and
their families. Registration for a team of five is $250.
Noon to 4 p.m. www.chfrichmond.org/bowling.
Dancing with the Richmond Stars
Friday, March 13, 2015
Tune in to Lite98 and Q94 on these days for an annual
radiothon benefiting Children’s Miracle Network Hospitals.
Event dates to be announced at www.chfrichmond.org.
young at h eart
I FALL 2014
Mark your calendars for the fifth annual Dancing with the
Richmond Stars, which pairs local celebrities with professional dancers in a live performance. Organized by the MCV
Hospitals Auxiliary with presenting sponsor C&C Electrical
Service, Inc., event proceeds will benefit pediatric mental
health treatment at the Virginia Treatment Center for
Children. 7 p.m. VCU Singleton Center, 922 Park Avenue,
Richmond. www.richmondstars.org.
15
CHILDREN’S HOSPITAL FOUNDATION
2924 Brook Road, Richmond, VA 23220-1298
804-228-5814
www.chfrichmond.org
NONPROFIT ORG.
U.S. POSTAGE PAID
RICHMOND, VA
PERMIT 1146
ADDRESS SERVICE REQUESTED
www.facebook.com/chfrichmond
BE A SUPERHERO FOR KIDS
Join Children’s Hospital Foundation for our Four
Mile Walk/Run presented by American Family
Fitness, and be a superhero for kids. The scenic
race course is perfect for walkers and runners
of all levels. Children between the ages of 5 and
10 can also enjoy a special challenge with the
Superkid Adventure Obstacle Course. Registration
is still open at www.chfrace.org.
See page 14 for full details.
Twelve-year-old Kyla Roerty plans to participate in Children’s
Hospital Foundation’s Walk/Run in September. Kyla, who was
diagnosed with cerebral palsy when she was 15 months old,
also enjoys playing softball, snowboarding and surfing.