Golf event Shotgun
Transcription
Golf event Shotgun
Shotgun Golf event Francis Clark is holding it’s annual charity Golf day on Thursday 26 May 2016 at Dainton Park Golf Club. Cost per team (of 4) will be £250 to include: • Team entry • Tea/coffee and bacon sandwiches on arrival • 2 course meal after golf • Fantastic prizes • Compete against a PGA professional If you wish to enter a team please contact Devon Reynolds on 01803 320100 or [email protected] MDUK – I Fight for James Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions. James Keenan, born in 2006, lives with his parents and twin brothers in South West England in Torquay. He loves Lego, Star Wars and Manchester United. His parents, Sean and Liz, describe James as having a ‘very bright, inquisitive nature’. His core strength for things like rock n rollers (sit-ups) was just not there. Doctors told James’s parents he was a slow developer and would catch up. When James started school his teachers also noticed he was struggling with getting up and down from the carpet and was walking flat footed. Again doctors told the family it was just his gait and that he would grow out of it. Sean and Liz took James on holiday to Ireland where a physiotherapist family friend noticed he had significant muscle weakness. Returning to their doctors they were sent to have blood tests four days before their twins were due to be delivered. James had a blood test on 23.12.13. The family’s whole world was then shattered when they had a phone call that same evening reporting high Creatinine Kinase levels. Sean and Liz had no means of knowing what this meant as hadn’t yet met with a consultant. The caller advised they couldn’t elaborate but it was something to do with muscles. After being left to google high Creatinine Kinase levels on the internet they then read the devastating truth, Duchenne muscular dystrophy. The family discovered MDUK through their research and saw all the efforts other fundraisers were involved with. 19 months in they feel ready to make a positive step forward to put their all into the fight against DMD. So far the family have been involved in fun runs, skydive, a 10k run and selling wristbands. Future plans include the London Marathon and much more. To find out more about MDUK and the I Fight for James campaign, please visit http://www.musculardystrophyuk.org/get-involved/family-funds/funds/i-fight-for-james/ or follow them on Twitter: @ifightforjames.