01.04 Newsletter.REV - AIDS Action Committee
Transcription
01.04 Newsletter.REV - AIDS Action Committee
WINTER 2004 • VOLUME 19, NO. 1 AIDS Action has been chosen to conduct field interviews for a Centers for Disease Control and Prevention study of sexual and drug-using behavior among gay and bisexual men. Boston is one of 15 cities nationwide where the study is being carried out. The initiative, dubbed the Men’s Health Survey, will last for one year. The information gathered will be used to develop strategies for federally funded HIV prevention programs targeting men who have sex with men. According to the CDC, HIV infections among gay and bisexual men rose 17 percent nationally between 1999 and 2002 while infections overall rose 5 percent in those same years. A sharp increase in syphilis cases among gay and bisexual men in Massachusetts over the last several years also worries prevention authorities as it may indicate an increase in unsafe sexual behaviors that can transmit HIV. “In the long term, the information we compile will help target prevention programs for men who have sex with men so that they are as effective as possible,” says Survey Supervisor Chris Wittke. “In the short term, we’ll be able to gather information on how gay and bisexual men in and around Boston are behaving so that we can focus our existing interventions in ways that they will do the most good.” Nationally, the survey administration is overseen by ABT Associates, one of the largest for-profit government and business research and consulting firms in the world. The other cities being targeted include Atlanta, Baltimore, Chicago, Dallas, Ft. Lauderdale, Houston, Los Angeles, Miami, New York, Newark, Philadelphia, San Francisco, San Juan and Washington. “We’ve spent the last couple of months identifying venues where at least 3/4 of the clientele are men who have sex with men,” explains Wittke. “We’ll be selecting from these places at random and visiting them over the next 12 months. At the end of the year, we hope to have 500 in-depth snapshots of Boston-area men that tell us about their sexual, social and drug-using behaviors.” continued on page 7 Men’s Health Survey staffers Brandon Meredith, Chris Wittke, Donyne Cowan and Dean Dillon (from left to right). WWW.AAC.ORG GETS UPDATE Director’s Desk p2 State Budget Update p2 New Boomerangs Opens p3 20th Anniversary Dinner Coverage p4 Upcoming Events p5 How to Volunteer p7 If you’ve visited AIDS Action’s online home, www.aac.org, over the last couple of months you’ve probably noticed a big change. That’s because the site went through an extensive redesign with the help of Boston-area web designer Tim Stevenson and the web content management firm, Convio. The new site is designed to be more informative, accessible, useful and interactive. “The new website allows us to keep in touch with our supporters and constituents and to more effectively provide them with information they can use to help themselves and their families and also to help us advance the battle against HIV and AIDS,” says AIDS Action’s Executive Director Rebecca Haag. Visitors to www.aac.org are now able to set up an account so they can automatically receive items of interest. They can register to be a part of AIDS Action’s newly enhanced Cyberaction network and receive action alerts on important public policy initiatives. They can also talk to a live counselor via the new Online Hotline; search the HIV Health Library for information on living with HIV and the medications used to treat it; find out about upcoming events; and donate money to support AAC programs and services. The site is constantly updated with the latest news on HIV/AIDS, information on important upcoming dates and events and happenings at other AIDS service organizations. “Our goal is to keep the sight fresh so that people have a reason to keep returning. Like any of the agency’s programs, we want our web presence to reach as many people as possible as often as possible,” says Haag. “Like the old adage says, ‘knowledge is power.’ That’s especially true when it comes to this disease.” Director’s Desk Dear Friends, We enter the New Year with a renewed sense of hope. We faced many challenges in 2003: infection rates were up particularly among our young people, state resources for services to people infected with HIV continued to shrink (down almost 40%), and an estimated 7000 people in Massachusetts are infected and do not know it. And yet, “Hope springs eternal”. Why? Despite our difficulties or maybe because of them, there is a new spirit of commitment and cooperation among those of us dedicated to ending this epidemic and providing necessary services to those suffering as a result of this terrible disease. All during this past year, AAC joined with its supporters, partners, and clients in commemorating twenty years of battling HIV/AIDS. Through a series of community events, we celebrated our successes and remembered those who we lost. In all of this, we gained a valuable insight. We have many, many allies and supporters in this battle. The sharing of memories and experiences, made us realize that we can succeed if we stand together and rebuild a sense of community around HIV/AIDS. There is a new spirit of collaboration and cooperation among the AIDS service organizations and our funding partners. We have been working together to find new ways to serve our clients and still maintain prevention programs despite the widespread funding cuts. We are working together to ensure that this Administration and the Legislature do not reduce funding further and jeopardize the public health of the citizens of the Commonwealth. We are also very encouraged by the prospect that the Legislature may finally pass a rational public health policy on clean needle access. Mayor Menino has demonstrated great leadership in this area, and is publicly advocating for legislation that would allow clean needles to be purchased at a pharmacy. “Pharmacy Access” legislation has been filed by Representative Marty Walsh and Senator Robert O’Leary. Hearings are scheduled for late January. Since 41% of people currently living with HIV were infected through needle use this would be a major step toward reducing new infections. Massachusetts is one of only four states that still requires prescriptions for the sale of needles. The American Medical Association, the American Public Health Association, the American Bar Association, and the U.S. Conference of Mayors all support access to sterile syringes. On December 2, 2003, there was a supportive editorial in The Boston Globe. It stated, “Legislation of syringe purchases deserves especially high priority at a time when state budget cuts have forced reductions in other AIDS prevention programs. . . The Legislature should take the mayor’s advice and legalize over-the-counter purchase of needles.” This is our number one public policy priority at AAC in 2004. We are leading a statewide task force to ensure passage. Please help. You can make a difference by registering to be part of our Action Alert at www.aac.org. Contact your senator and representative to register your support for this important legislation. Our work with our clients is also a source of hope. Despite the odds, these folks continue every day in their struggle to survive. The medications often cause serious side affects and many need transportation, housing and nutritional support in additional to consistent medical care. And yet, they persevere. In December, staff of AAC started a new program for long term survivors. Over lunch, survivors shared their stories, challenges, and hope. They helped each other. They realized that others were having similar challenges with certain medications, had suffered set backs, were looking for jobs. Most importantly, they learned that they were not alone. As peers they were able to help each other in unique ways. These individuals are now meeting regularly and other groups are being formed. So we at AAC enter the New Year with hope in our hearts and a renewed sense of community, commitment, and collaboration. We thank you for all of your support and look forward to working with you to achieve new successes in 2004. We wish you and your families a New Year filled with love, laughter and peace. With warm regards, Rebecca Haag Executive Director Public Policy Update By Magnolia Contreras, Director of Public Policy and Community Relations The Fiscal Year (FY) ‘05 state budget process is already underway. Governor Romney’s budget proposal, known as House 1, is scheduled to be released on January 28th. Subsequently, the House and then the Senate will introduce, debate and pass their versions of the budget. Following a Conference Committee where the House and Senate work out the differences in their budgets, the final version of the legislature’s budget proposal, the Conference Committee Report, will go to the AIDS Action Update is a quarterly publication of the: AIDS Action Committee of Massachusetts, Inc. 294 Washington Street, 5th Floor Boston, MA 02108 Tel: (617) 437-6200 TTY: (617) 437.1394 Fax: (617) 437-6445 www.aac.org Governor for his signature or veto. In the case of a veto, the legislature will decide whether to accept the veto or to attempt to override it. The goal is a final budget signed by July 1, 2004. It is important that we in the AIDS advocacy community let our lawmakers know the importance of adequate funding for AIDS prevention and service programs EARLY and OFTEN in this process! The AIDS line in the state budget has been cut by 37% since FY ’01, when it was funded at $51.1 million. This year the line item was funded at just $32 million. That translates into $19 million less in funding available for prevention, for counseling and testing, for HIV specialty services and for crucial support services to help people adhere to their treatment regimens. In addition, more rigorous income standards were implemented by HIV Masshealth, which provides health coverage to low income people living with HIV. What has been lost in the last three years? Over 100 HIV positive Rebecca Haag Executive Director Louise Rice Acting Director of Prevention Programs Larry Kessler Founding Director Fernando Salguera Director of Administration and Finance Steve Balfour Director of Events Susan Tannehil Director of Programs Carola Cadley Director of Development Chris Viveiros Associate Director for Communications Magnolia Contreras Director of Public Policy & Community Relations Blackcoffee Design Lynley Rappaport Director of Programs Mass Web Printing Printing people lost their MassHealth coverage. 16,000 HIV tests have not been performed. Specialty care services including health center and home health care programs have been reduced or eliminated. Thousands have lost crucial client support services such as nutrition, transportation and respite care. Prevention services targeting youth and people with substance abuse problems have been eliminated. What is most alarming about these cuts is the fact that the numbers of people living with HIV Contributing writers: Tammy Goodhue, Rebecca Haag, Larry Kessler, Alison Kirchgasser, Chris Viveiros, Rob Wilson The AIDS Action Committee of Massachusetts is a not-for-profit organization whose mission is to stop the epidemic by preventing new HIV infections and optimizing the health of those already infected. and AIDS in the state continues to increase. The Department of Public Health reports that there are 14,564 known to be living with HIV/AIDS in Massachusetts and estimates that there are an additional 7,000 people who are infected but do not know it. With no vaccine and no cure for AIDS, preventing new infections is our strongest weapon against this disease. Prevention and education programs must be a priority as we are seeing infection rates rising among such groups as young people and people 50 and over. Counseling and testing services are crucial to reduce the large number of people unaware of their positive status. Once people are aware of their status is it important for them to begin treatment immediately and to stay in treatment. Delays or interruptions in HIV treatment can lead to higher viral loads and to increasing strains of drug resistant HIV. In some areas of the state at least 20 percent of new infections are resident strains of HIV. Project ABLE (AIDS Budget Legislative Effort), a coalition of AIDS organizations, advocates and people living with HIV, is recommending that: • $4 million be restored to the AIDS line item (DPH 4512-0103) in FY’05. This would restore funding to a total of $36 million. 20 YEARS OF STRUGGLE AGAINST HIV/AIDS by James Carroll STILL HERE A LOOK BACK AT 20 YEARS By Larry Kessler, Founding Director January 2004 marks the end of AIDS Action’s 20th Anniversary Commemoration and I thought it would be fitting to end my look back at those 20 years with the column reprinted below. Originally published in the December 2, 2003 edition of The Boston Globe, this piece by James Carroll offers a heartfelt reflection on the last 20 years of the epidemic and takes a thoughtful look at what has changed and what has remained the same. Writing this column over the past year has allowed me a chance to reflect on the many incredible people that have been a part of this work. I hope you have enjoyed this look back and I hope you will continue to support us as we work toward a time when AIDS is but a distant memory. In 1988, the world health organization designated Dec. 1 as World AIDS Day, and since then the first week of this month has been a time of special reflection on what this disease is doing to the human family. In the United States, lately, our thoughts have been somewhat confused. Since 1996, when a treatment breakthrough occurred with the introduction of “protease inhibitors,” death rates have so dramatically declined that AIDS seems less urgent than before. There is still no vaccine, no cure, but “living with AIDS” has, thankfully, become the watchword. In Boston, one of the most admirable AIDS organizations in the country, the AIDS Action Committee, is observing its 20th anniversary. The committee’s founding director, Larry Kessler, recalls, “Few people under 40 know or remember just how rough those early days were, when a diagnosis of AIDS meant one could count on a series of opportunistic infections and a gradual and steady decline that was painful, lonely, and most often fatal.” Since then, in part because of the work of groups like the AAC, the typical course of the disease has changed, but so has society. That AIDS no longer generates a universal morbid dread, leading to panic and denial, is a good thing. Such responses made things worse. Gay men, in particular, were demonized. Yet gay men took the lead in responding with courage and hope. A culture of safer sex was created, together with a broad-based educational approach that changed behaviors and attitudes. That homosexuals have made such strides in demanding and receiving full civil rights in this society has been a byproduct of the forthright nobility that marked the gay community’s response to the tragedy of what was first dubbed “gay pneumonia.” But changing attitudes and behaviors had political implications, as well as intimate ones. Effective advocacy in the public arena and in the world of health care led to breakthroughs in funding, in medical practice, and in levels of research. The disease moved along the fault lines of society, with marginalized groups particularly vulnerable. To respond to HIV/ AIDS, soon enough, was to respond to broad structures of injustice. As the narrow definitions of “risk group” were expanded, the stigmas attached not only to homosexuality and bisexuality, but to IV drug use, and even poverty, were themselves confronted as part of the problem. Moralizing gave way to empathy. A profound shift occurred not only in medical practice, but in thinking. And why shouldn’t we have been encouraged? But the grip of the insidious disease never let up. As dread decreased, so did vigilance about safer sex, and infection rates began to climb, espe- cially among the young for whom the early traumas of AIDS were remote. Crucial public programs to provide needle-exchanges for addicts, a proven way to stem the spread of the virus, were not followed up on. And, especially in a time of tight budgets, funding for AIDS services, education, and research have all been cut. The result is a new picture of HIV/ AIDS in the United States that should obliterate complacency. Last week, the Centers for Disease Control and Prevention released figures that show that HIV infections climbed by more than 5 percent between 1999 and 2002, with the increase among Hispanics at 17 percent. More than 850,000 Americans have HIV, and every year that number grows by 40,000 - many of whom do not know they are infected. If the disease is proving so dogged here, why should we be surprised that it continues to devastate regions of the world that lack American resources? The mind blurs when the subject turns to AIDS in Africa, where the toll is impossible to grasp. Last week, UNICEF released a report that put the number of AIDS orphans in sub-Sahara at 11 million, a number expected to rise to 20 million by 2010 - “the last will and testament” of a country’s economic survival, as one UN official put it. The disease is on a global rampage. Without resuming panic and morbid dread, can we return to our former urgency about AIDS? Funding for treatment, education, and research, both at home and abroad, can simply not be regarded as one more line item on public budgets. Getting clean needles to IV drug users must be a public health priority. As Mayor Menino suggested last Friday, that means in Massachusetts legalizing over-the-counter purchase of syringes. The teaching of safer sex in schools, with condom availability, must be reinvigorated. Full funding of service agencies like the AIDS Action Committee must be restored. Research efforts toward a vaccine must be redoubled. And America’s relationship to the world, especially Africa, should be defined by our readiness to commit wealth and knowledge to caring for the infected and protecting the uninfected. Twenty years on, the struggle against HIV/AIDS has just begun. Republished with permission of Globe Newspaper Company from The Boston Globe, Volume 264, Number 155, December 2, 2003; permission conveyed through Copyright Clearance Center, Inc. The Boston Globe can be found online at www.boston.com • the income limit for the HIV MassHealth program be restored to 200% of the federal poverty level from its current limit of 150% of poverty. • the HIV MassHealth enrollment limits, which were placed on the program during the FY’04 budget, be eliminated. (These caps have not yet been implemented.) AIDS Action will work closely with Project ABLE throughout the budget process. We will place Action Alerts on the Advocacy Page of our website (www.aac.org) whenever it is necessary for advocates to contact legislators. Join CyberAction (a link to join is on the home page of the AAC website) to be automatically notified when a new Action Alert is placed on the site. AIDS Action Hotline: (800) 235.2331 Hotline TTY: (617) 437.1672 Hepatitis C Hotline: (888) 443.HEPC If you are interested in finding out about volunteer opportunities, please call the Volunteer Information Line at (617) 450.1235. Printed on recycled paper. © 2004 the AIDS Action Committee NEW BOOMERANGS OPENS IN BRIGHTON AIDS Action opened a second branch of our celebrated Boomerangs resale store in Brighton this past November (the first one is located on Centre Street in Jamaica Plain). Soon after, the store was featured in an Allston-Brighton Tab story on places to shop for holiday gifts by staff writer Josh B. Waldrop. We here at Update felt Waldrop hit the nail on the head in his description and asked the Tab for permission to reprint it below: The first stop on my Christmas quest was one of Brighton’s newest businesses, a thrift store called Boomerangs (298 Washington St.). The shop features both used and unused items, and boasts the sort of variety one would expect from a thrift shop - “a little bit of everything,” according to co-manager Joe Haley. A good chunk of the inventory is given over to women’s clothes, but shoppers will be happy to know that “women’s clothes” doesn’t mean turquoise polyester pantsuits or other “vintage” delights. Instead, I found women’s leather boots, Gap jeans, tech vests, and other jackets and shirts from labels such as Structure, Chaps Ralph Lauren and Eddie Bauer, most only slightly worn and all reasonably priced ($5 for pants and shirts and $6 for shoes). And, of course, there were plenty of funkier styles and shapes that would fit my hipster little sister like a glove. I also found some great stuff in the book and record section of the store. (Yes, that’s right, records - those black vinyl things that you play with a needle.) For my friends that still stubbornly refuse to let the good old days die, I found great 1970s selections such as Boz Scaggs’ “Silk Degrees” and Steely Dan’s “Pretzel Logic” for only $1 apiece. I also grabbed the paperback “Murder at Fenway Park” - a mystery set in 1912 - for my buddy Mike, combining his dual passions of history and baseball. The best part? Boomerangs is run by the AIDS Action Committee, as is its Jamaica Plain location. “All merchandise is donated from private individuals and companies,” says Haley, “and 100 percent of the profits goes to AIDS charities.” The new Boomerangs is located at 298 Washington Street in Brighton Center and is open 10:30 a.m. to 7 p.m. Monday through Saturday and noon to 6 p.m. on Sundays. For more information or directions to the store, call 617.787.0500. The Jamaica Plain Boomerangs is located at 716 Centre Street and can be contacted at 617.524.5120. The Allston-Brighton Tab can be found online at www.townonline.com/allston/ AIDS ACTION’S 20 ANNIVERSARY COMMEMORATIVE DINNER TH 2 3 4 1. AIDS Action Committee Board Member Bryan Simmons reads from a letter written by Magic Johnson to the first President Bush 4. AIDS Action’s 2. John Hancock Financial Services Executive Director Vice President and Chief Counsel Rebecca Haag with Wayne Budd accepts the company’s Harold Cox, former AIDS Action Spirit Award from AAC Director of Client Services Founding Director Larry Kessler at AIDS Action currently serving as 3. Videographer Jay Barry and his wife Shaun, Boston Globe television critic Chief Public Health Officer for the City of Cambridge and CEO, Jackie Jenkins-Scott; Four hundred people turned out for AIDS Action’s 20th Anniversary Commemorative Dinner on October 1, 2003. Held at the Avalon nightclub on Lansdowne Street in Boston, the event featured performances by the Gay Men’s Chorus, Morningstar Baptist Church’s All God’s Children Inspirational Choir and soloist Dana Whiteside from the Trinity Church. Spirit of AIDS Action Awards, recognizing courage, care, compassion and commitment to community in the fight against AIDS, were given to John Hancock Financial Services; Fenway Community Health Center’s Dr. Kenneth Mayer; Dimock Community 5 Health Center President and CEO Jackie Jenkins-Scott; and Margaret Sullivan, former AIDS Action Committee board member and founder of the Everybody’s Business fundraiser. AIDS Action Committee board member Dennis Duffy and Margaret Sullivan served as co-chairs of the event which raised $250,000 to support programs and services at AIDS Action. AIDS Action would like to extend special thanks to the event chairs and committee and to presenting sponsors Harvard Pilgrim Healthcare Foundation and FleetBoston Financial. AIDS Action would also like to thank the performers who donated their time, as 6 well as the Lyons Group, Rafanelli Events, Korn Design, Be Our Guest, Max Ultimate Food, Shreve Crump & Lowe, Spruce Flowers and United Liquors as well as the many AIDS Action staff and volunteers who helped make the event possible To get involved in the planning of the upcoming Week of Prayer, please contact Who Touched Me Ministry’s Robin Fuller at [email protected] or 617.450.1646. Director Larry Kessler and Executive 5. Treasurer of AIDS Action’s Board and Director Rebecca Haag; Dr. Ken Mayer, 6. Event co-chairs Margaret Sullivan of Public Policy and Community Rela- John Hancock Financial Services Ex- Medical Research Director at the Fen- and Dennis Duffy tions Magnolia Contreras and Gilbert’s ecutive Vice President and Chief Invest- way Community Health Center; and partner Tom McNaught, AIDS Action’s ment Officer John DeCiccio; Dimock Wayne Budd, Executive Vice President former Director of Communications. Community Health Center President and Chief Counsel at Hancock Photos: Marilyn Humphries 2003 SCOTT RIKLIN MEMORIAL GOLF TOURNAMENT While 2002’s Scott Riklin Memorial Golf Tournament was plagued by monsoon-like conditions, the golf gods were smiling on June 10, 2003 as fifty plus participants teed up for the seventh annual event at the Franklin Park Golf Course. Nine under par won it for perennial powerhouse team McVeigh Electric and prizes were awarded and raffle drawings held during the Texas BBQ, with almost everyone going home with something. Special thanks to this year’s hole sponsors: NUTop Countertop Company, New England Homecrafters, Inc., Devon Lumber, Direct Tire, Ellen Hoffman and Ken Loveday, Barry Rosenburg, Auburndale Cooperative Bank, Jackson Glass, Kal Kuban and Annette Rubin, National Lumber, Sam O’Reilly of First Financial Mortgage Company, AAA Appliances, Mal Elfman’s Carpeting, Ed and Nancy Kleiman, Mahoney O’Rourke Insurance Company, Gallinelli Plumbing, Signori Construction, Senibaldi Contracting Corp., Dr. Roy Baker, O.D., Commonwealth Resources and Clarity Tiling. Planning for the next tournament, being held on June 17, 2004 at Juniper Hills Golf Course, is already underway. If you would like to enter a team or want more information, please call Jeff Riklin at 617.641.9786. BOSTON BLACK CHURCHES WEEK OF PRAYER FOR THE HEALING OF AIDS March 7 – 13, 2004 Boston’s 14th annual Week of Prayer for the Healing of AIDS will take place the week of March 7, 2004. Here in Massachusetts, African-Americans account for more than 25 percent of HIV/AIDS cases while making up about 5 percent of the state’s total population. AIDS is the leading cause of death among African-American men and women aged 25 to 44 in the United States. During the Week of Prayer, black churches throughout greater Boston will dedicate their sermons to the topic of HIV and AIDS. The week kicks off with the annual Week of Prayer Gospel Concert where the Belynda A. Dunn Award for Courage, named in honor of the late Who Touched Me Ministry founder, will be given. The annual event is organized by the Who Touched Me Ministry and co-sponsored by AIDS Action Committee, the Multicultural AIDS Coalition and the New England HIV Education Consortium. Sponsored nationally by the Balm in Gilead, the annual Week of Prayer program is the nation’s largest HIV/AIDS awareness program aimed at African-Americans, and emphasizes the need for black churches to help in the fight against HIV and AIDS. AIDS Action Committee Founding Matthew Gilbert, AIDS Action’s Director AIDS Action’s HIV Health Institute hosted HIV and Corrections: Inside and Out, a conference for front-line social service providers, correction workers, former inmates and people living with HIV on Friday, December 5, 2003. The event at the Radisson Hotel in Marlborough drew more than 100 people interested in increasing their knowledge, awareness and understanding of HIV infection in correctional and post-correctional settings. The percentage of prison inmates known to be HIV-positive is four times that of the general population and the high concentration of persons infected or at risk for HIV, combined with gaps in treatment and prevention services for inmates and ex offenders, presents important challenges and opportunities. Highlights of the conference included discussions on bridging the gap between public health care and the corrections system, prevention for incarcerated women, prevention and treatment of infectious diseases in prison, challenges of providing services to multi-diagnosed inmates and connecting inmates with community services. Faculty included Tom Conklin, MD, Director of Health Services at the Hampden County Correctional Center; Anne DeGroot, Founder and Chief Editor of the HIV Education/Prison Project Report; and Rick Altice, MD, Director of the HIV in Prisons Program at the Yale University School of Medicine. The conference was sponsored by Abbot Laboratories, Agouron/Pfizer, Bristol-Myers Squibb Company and GlaxoSmithKline. The New England HIV Education Consortium, HEPP, Massachusetts Department of Public Health, SPAN and Centerforce all joined AIDS Action as planning partners. For more information on future HIV Health Institute events and conferences, contact Eric Brus at 617.450.1454 or visit www.aac.org HASTY PUDDING THEATRICALS PERFORMANCE TO BENEFIT AIDS ACTION COMMITTEE March 16, 2004 The Hasty Pudding Theatricals of Harvard University invites AIDS Action supporters to its 8th annual Charity Night at the Pudding, a special performance of As the Word Turns benefiting AIDS Action Committee of Massachusetts The Hasty Pudding Theatricals is the oldest theatrical company in North America and includes J.P. Morgan, Theodore Roosevelt and Jack Lemmon among its alumni. At its core, the Pudding show is a no-holds-barred student-written musical comedy with an all-male cast performing both the male and female roles. Continuing a long tradition of witty, pun-tastic, and unabashed musical extravaganzas, HPT has outdone itself yet again with its 156th production, As the Word Turns. Follow characters like Lynn Guist, Graham Uhr and Rich Bas’Tard as they try to out spell each other at every turn to win the coveted title of Ultimate Spelling Bee Champion - a big deal in their whimsical land where letters are king. The event is being held at The Hasty Pudding Theatre, Harvard University 10 Holyoke St., Cambridge and tickets are $25. The HPT box office at 12 Holyoke Street will open in early February for ticket sales. To purchase tickets before February, please leave your name and telephone number at (617) 495-5205 and a sales agent will return your call as soon as possible. Ticket Sales Managers, Burden Walker and Charles Worthington can be contacted via email with questions at [email protected] and [email protected]. 15TH ANNUAL BAYARD RUSTIN COMMUNITY BREAKFAST April 24, 2004 Every year, hundreds of politicians, community leaders, activists, and religious leaders from Boston’s gay communities of color and their friends attend AIDS Action Committee of Massachusetts’ Bayard Rustin Community Breakfast at the John F. Kennedy Library and Museum in Dorchester. The theme of the upcoming Breakfast, being held April 24, 2004, is An HIV “Positive” Report: Action in the Face of Complacency. While people of color account for only 18 percent of the state’s population, they make up 59 percent of those recently diagnosed with HIV. The Centers for Disease Control and prevention have found that nearly onethird of young, gay Black men in the U.S. are HIV-positive, as are nearly fourteen percent of young, gay Latino men. This year’s keynote speaker is Massachusetts state senator Jarret Barrios. There will also be entertainment by local performers. The Bayard Rustin Community Breakfast was founded by the AIDS Action Committee as an HIV/AIDS awareness forum for gay, lesbian, bisexual, transgender, and questioning communities of color and their family and friends to be informed, affirmed and empowered in the face of the continuing AIDS crisis and to recognize the key role they play in ending the epidemic. The breakfast is co-sponsored by the John F. Kennedy Library & Museum, where it is held free and is open to the public. For more information on the upcoming Breakfast or to get involved in planning it, call the Bayard Rustin Community Breakfast Hotline at 617.450.1644 or email [email protected]. upcoming events 1 2004 Taste of the South End March 16, 2004 This year AIDS Action will be hosting The Taste of the South End on March 16, 2004 at the Boston Center for the Arts on Tremont Street. Last year’s event was a great success and included more than 30 of the South End’s most popular restaurants and eateries as well as a half dozen wineries. Some of the participating restaurants included: Aquitaine, Bomboa, Davio’s, Hamersley’s Bistro, Masa, Metropolis Café, Pho Republique, Rouge, and Tremont 647. Last year, 500 people attended The Taste and enjoyed the musical entertainment and silent auction, which included gift certificates from many of the participating restaurants. Mark your calendars now and plan on coming to the 2004 Taste of the South End on Tuesday, March 16th to sample food from some of Boston’s best restaurants and mingle with your friends and neighbors. For more information about the Taste of the South End, visit www.aacevents.org or call 617.450.1527. SAVE THE DATE! AIDS WALK & 5K RUN June 6, 2004 The 19th Annual AIDS Walk & 5K Run to raise money for AIDS services and programs will be held on Sunday, June 6, 2004. Call 617.424.WALK to sign up yourself or a team to walk or run or to learn how you can volunteer to help make this year’s Walk & Run a success! A message to our friends: Do You Need to be Needed? Volunteer Opportunities Do you have great listening and communications skills? Are you comfortable talking about sex and drug use without passing judgment? Then come work on AIDS Action’s two statewide anonymous Hotlines in Client Services. Be part of a team that has provided information, support and referrals on HIV risks, testing and treatment to three quarters of a million people since 1983. Make a dent in the Hepatitis C epidemic by taking calls on our new statewide bilingual Hepatitis C Hotline. Both Hotlines especially need daytime volunteers. Outreach volunteers in AIDS Action’s MSM (Men who have Sex with Men) Action Program hand out prevention materials and information at special events or one of several area bars and clubs. Hand out condoms and safer sex information, make friends and enjoy a fun social setting while making a difference. We seek those who are straight, trans, gay, male, female, bisexual, questioning, etc., who want to be part of a colorful and fun program proven to prevent the spread of HIV/ AIDS and other STDs. Bar volunteers must be 21 years of age or older. If you are an attorney, you can use your skills to help people living with HIV maintain control of their personal affairs and exercise their legal rights as part of our Legal Task Force. The Task Force provides information and free legal services to AIDS Action’s clients in the areas of estate planning, bankruptcy, private and public disability benefits appeals, guardianship, and landlord-tenant issues. STATEWIDE HIV/AIDS HOTLINE NOW ONLINE As more and more people turn to the internet to find information about HIV, the AIDS Action Committee’s Hotline will be available online to provide that information. Since this past World AIDS Day (December 1), AIDS Action’s Hotline program has been accessible from our website. Boomerangs, AIDS Action’s resale stores, are seeking volunteers for a variety of fun and rewarding opportunities during store hours. Volunteers can help assist shoppers and donors on the sales floor; work behind the scenes by processing daily donations; assist with store displays, windows and merchandising; or provide vital administrative support. There is something for everyone at Boomerangs Brighton and Jamaica Plain, so join our team! People interested in working in a group setting should consider AIDS Action’s ongoing administrative support groups, the Tappers and Wranglers. The Tappers meet Tuesday evenings, the Wranglers meet Wednesday evenings from 6 to 8 p.m. Both groups support various departments by working on mass mailings and other administrative tasks. A three-month commitment is required for administrative group volunteers. The hope is to reach out to people who are interested in asking questions but are more comfortable using a computer than a telephone to do that. These people can now anonymously ask a live Hotline Counselor any HIV or Hepatitis C-related questions over an instant messenger program on our website and receive personalized answers. During those times when no counselor is available, people will have the opportunity to leave an email message for a counselor to respond to later. AIDS Action’s events department can always use volunteers to help with its major fundraising events, The AIDS Walk & 5K Run, bike ride, Yuletide Stride Road Race and Taste of the South End. Day and Evening volunteer positions are available preparing for these events and helping out the day of. For information about volunteer opportunities at AIDS Action, contact Deb Fournier at 617.450.1315 or email [email protected] volunteer profile If you would like to try our new online Hotline, go to the Hotlines page of our website at http://www.aac.org/site/PageServer?pagename=help_hotlines and click on the Hotline Online button on the right side of the page. To reach our hotline by phone, dial 800.235.2331 from anywhere in the state of Massachusetts. Tim Stevenson Tell us about yourself. My name is Tim Stevenson, I’m 35 years old and I live in Cambridge, Massachusetts. I am a designer by trade who has been a creative director, music video director, and graphic and web designer for local ad agencies as well as my own. I have done work for Volkswagen, Hummer, Neiman Marcus, Atlantic Records. Currently, I have a company known as GDG (gritty design group) at www.gritty.com. We specialize in graphic design, web design, as well as Flash and video presentations. I can be reached at [email protected] Tell us how you got involved with AAC and how you put your web design skills to work for us. I was looking for an opportunity that would allow me to give back to the community in some way. I had just finished a corporate gig and my good friend had just started consulting on AIDS Action’s new website redesign and redeployment and asked if I’d be willing to volunteer on creating the new look and feel of the site. Being the extremely persuasive person that he is, he convinced me this would be a great design challenge and a noble contribution. So I signed up. We worked together on trying to create a virtual AIDS Action. We wanted to create an online experience that was functional, easy to use and also captured the heart and soul of the agency. I care about doing great work, and the AIDS Action website allowed me the freedom to do that. Once I got to know more about the extent of AIDS Action’s programs and services, this project also became a part of a cause I was happy to be committed to. Why should other people with special professional skills to offer get involved with AIDS Action? Morally its always nice to put your skills to use in other ways that don’t include making money. AIDS Action is an amazing place that truly appreciates the contributions and time you put in. And you can go to bed at night knowing you did something, in some small way, to help. Any final thoughts? As an avid biker, I now want to get more involved in AAC’s events such as the bike ride this Summer. Maybe they will let me do that site too! Happy New Year! I hope this year brings health and happiness to each one of you. As we begin the New Year, I want to take a moment to thank you. Because of your generosity, we have been able to help the thousands of men, women and children who rely on our services every day of the year. Services that provide shelter, food, transportation, and complete case management for people living with HIV/AIDS as well as services that provide a voice of prevention and political action around HIV/AIDS issues that affect our entire community. 5 Star Travel’s Community Share Program benefits AIDS Action We often receive comments from thoughtful and grateful clients and we thought this would be a good time to share a few of them with you. AIDS Action Committee of Massachusetts was awarded 5 Star Travel’s “Community Share Program” for the second half of 2003. The Program, created by and managed by 5 Star Travel, donates a portion of each travel booking to a different non-profit during each designated period. The program to date has raised more than $35,000 and this year AIDS Action was selected to receive money from 5 Star Travel bookings that were made from July – December 2003. Past recipients have included Fenway Community Health Center, GLAD, and The Boston Living Center. AIDS Action would like to thank 5 Star Travel for their support and recognition of the work we do. “I was amazed such an organization existed—I felt such a great sense of relief.” “I walked through the doors of AIDS Action Committee an incomplete person; I asked for help...what I got was so much more.” “AIDS Action was available to me when I needed to make major changes in my life.” Men’s Health Survey continued from page 1 All of the data collected will be held in a secure location, only accessible by project staff, to protect the confidentiality of survey participants. At the end of the project year, the data will be transmitted along with the data from the 14 other participating cities to ABT Associates which will analyze the information and compile it into a useful format for the CDC. “It’s incredibly gratifying for AIDS Action to be selected to spearhead this initiative in the Boston area,” says AIDS Action Executive Director Rebecca Haag. “AIDS Action makes me feel like I belong in the world. The staff has led me in so many positive directions that I now feel I have control.” “We’ll be collecting information that will help us design more effective prevention programs.” “At the same time, we’ll be taking an active role in shaping prevention strategies in this country for years to come,” Haag continues. “I have the utmost confi dence in the ability of the staff we’ve assigned to this project to carry it out with the integrity and forethought necessary to ensure its success.” At the end of the year, Haag thinks the agency will be wellpositioned to carry out the next phase of the survey project, focusing on intravenous drug users. “We’ve trained our people and created the infrastructure to support this sort of intense survey work,” says Haag. “I think we’ll be in a very good place to carry out the next arm of the survey and then to hopefully continue with the project for as long as the CDC feels the work is valuable and informative.” “Thank you. It is so nice to come to a place where someone will listen to you and help you without judging you.” “I’ve called the hotline before; the staff is always calm, supportive and very knowledgeable— thank you.” “AIDS Action and the staff at the HIV Treatment Library helped make me feel less adrift when I arrived at my doctor’s office.” “After losing my son to AIDS, I became a volunteer at AIDS Action. At first, I was too sad to do much. But in this healing environment, I began to work out my pain and see what I could do to help others.” These are just a few of the comments we receive on a regular basis. I wanted to share them with you because you are as much responsible for the good work we do as our dedicated staff. Your gifts make our work possible. These are challenging times for AIDS service organizations. HIV infections are once again on the rise, and funding sources have been cut. There are a number of ways you can support AIDS Action in its mission to care for those already infected and halt the spread of AIDS here in Massachusetts. To make a gift today, simply fill out the enclosed envelope, visit our secure website aac.org or call me directly at 617/450-1216 to discuss giving options in greater detail. On behalf of our staff, our Board, and especially the people we serve, thank you for your loyal and generous support. Carola Cadley Director of Development Directory AIDS ACTION COMMITTEE OF MASSACHUSETTS, INC. 294 Washington Street, 5th Floor Boston, MA 02108 617.437.6200 Main number 617.437.1394 TTY • 617.437.6445 Fax www.aac.org • [email protected] THE AIDS ACTION HOTLINE Anonymous statewide hotline for those with questions about HIV/AIDS, safer sex and STDs. 9:00 a.m. to 9:00 p.m. Monday through Friday 10:00 a.m. to 2:00 p.m. Saturday Spanish-speaking counselors available 9:00 a.m. to 5:00 p.m. Monday through Friday 800.235.2331 (Massachusetts only) 617.536.7733 • 617.437.1672 TTY STATEWIDE HEPATITIS C HOTLINE Anonymous statewide hotline for those with questions about Hepatitis C 9:00 a.m. to 9:00 p.m. Monday through Friday 10:00 a.m. to 2:00 p.m. Saturday Spanish-speaking counselors available 9:00 a.m. to 5:00 p.m. Monday through Friday 888.443.HEPC (Massachusetts only) 617.536.7733 • 617.437.1672 TTY HIV HEALTH RESOURCE LIBRARY Located in the AIDS Action offices at 294 Washington Street, the library is generally open the same hours as the agency- Monday through Friday, 9 a.m. to 5 p.m. Those wishing to visit the library are encouraged to call ahead to ensure that a staff person will be available to meet with them. 617.450.1432 • [email protected] AIDS Action Committee of Massachusetts, Inc 294 Washington Street, 5th Fl, Boston, MA 02108 AIDS ACTION’S FUNDRAISING EVENTS For information on all of AIDS Actions fundraising events, visit www.aacevents.org, or call 617.450.1100. For information on specific events, call or visit: BOSTON AIDS WALK AND 5K RUN 617.424.WALK www.aidswalkboston.org www.5krun.org AIDS ACTION RIDE 617.450.1100 www.aidsactionride.org MONSTER CHALLENGE TRIATHLON 617.450.1100 www.monsterchallenge.org ARTCETERA 617.450.1527 www.artcetera.org TASTE OF THE SOUTH END 617.450.1527 www.aacevents.org/taste.html VOLUNTEER INFORMATION For information on volunteer opportunities, call or email: 617.450.1277 [email protected] WINTER 2004 • VOLUME 19, NO. 1