TorchLight Spring 2013 - Epilepsy Center of Northwest Ohio

Spring 2013
Newsletter of the Epilepsy Center of Nor thwest Ohio addressing issues of Epilepsy/Seizure Disorders/Developmental Disabilities
The Epilepsy Center is Moving!
Yes, that’s right! The Epilepsy Center is on the move come June
of 2013, just down the street actually, to 1701 Holland Road in
Maumee!
After experiencing such growth over the past 3 years we are
already bursting at the seams in our current office as our Adult
Day Service program has really taken off. Our Adult Day Service
program reached capacity in a hurry after our move to our
current location back in March of 2009. The new location will
allow us to feature many new Day Service Programs including art
classes, computer labs and an activity area including billiards,
ping pong, and air hockey. Another area of need was of a restroom where someone needing a lift could be accommodated.
We do not have that in our current location, but at our new
building we will have two restrooms that will allow lifts to be
used with ease!
We outgrew our Corporate office as well, as we have coordinators
working out of closets and file rooms. This expansion will give
everyone the proper workspace needed to perform their jobs
in proper working conditions. It will also see the opening of our
new Training Center that will allow capacity of up to 50 people.
This will also provide space for our Living With Epilepsy
educational series and can be used by others to hold seminars
or meetings.
This is a very exciting time and the biggest move the Epilepsy
Center has made in its over 35 year history of operation. A large
sign, thanks to the grant from the Epilepsy Foundation of
Northwest Ohio, will be displayed proudly, lit up, in front on
Holland Road. There will be no question that The Epilepsy
Center of Northwest Ohio is here!
Stay tuned for upcoming details about our Open House in the
summer, and come help us celebrate this historical event of The
Epilepsy Center!
Practically a Golf Tournament
In cooperation with Toledo Refining Company, the Epilepsy Center
of Northwest Ohio is putting on its 24th Annual Practically a
Golf Tournament (PGT), Friday, May 17th at 1:30 p.m. Again
this fun filled event will be held at Levis Commons around the
Clock Tower. This event is an 18-Hole miniature golf tournament
that benefits the Awareness, Education and Outreach Programs
the Epilepsy Center provides for people affected by Epilepsy.
As is tradition, the event will be complete with music provided by
DJ Richie, drink tents, cornhole, 50/50 raffle, raffle prizes, and
lunch “at the turn”. Come out and enjoy a beautiful day of fun
and putt-putt golf on holes built by local builders in the Northwest
Ohio region. For more information about putting a team together
or sponsorship opportunities please feel free to call The Epilepsy
Center at 419.867.5950.
www.epilepsycenter.org
Letter from the Executive Director
Hopefully by the time you read this
spring has finally arrived. It sure is taking
its sweet time getting here. But rest
assured warmer weather is coming and
with it comes many of our great outings
and events. In this issue of the TorchLight you will read about our Practically
a Golf Tournament coming in May and
our weekend-long Family Camp in July. If
you have never attended or volunteered
at these two wonderful events I really
Roy Cherry
encourage you to come out and see what
they are all about. I promise you will have
a lot of fun and be inspired!
I would like to take this moment for some editorial comments
about the people we serve. Over the years there have been many
changes to the name of individuals for whom we provide services.
We now use the term people with intellectual disabilities. Not
that long ago it was termed developmental disabilities which
followed the “Remove the R-word” campaign to change mental
retardation. Now granted these terms are much better than
what was used early in history, terms that were much more
offensive, and if you heard them you would hardly believe they
were used in a medical sense.
I don’t know if I really like the term intellectual disabilities. To
me that doesn’t sound any better than mental retardation. How
about we just call them people? How about we just call them
Kelly, Jim, Joe, or David? How about we call them friends, great
people, or someone we truly care for?
As a society we need to come up with some sort of label or
term. It must help us to better understand or deal with some
people that might be a little different than us. In any case, society
will continue to change the term to try to be less offensive. I
don’t think it will ever end, but I think I will just continue to
consider the people we care for as some pretty great and
amazing individuals that I am proud to have met.
Thank you for listening.
Roy J. Cherry, CMA
Executive Director
It’s coming! ... Family Camp!
Mark your calendars for July 26 -28, 2013!
Before you can say, “Slap that Groundhog”, winter will be over
and it will be time to start making warm weather plans for your
family getaways. The Epilepsy Center of NWO has the perfect
getaway weekend lined up for people of all ages who are living
with epilepsy.
Family Camp, a tradition for many years, is once again being
offered at no charge to those living with seizures at Camp Libbey
in Defiance, OH. This year’s theme is Camp Nomoreseizures
(our own version of an American Indian tribe)! At camp, children
get to meet other children who live with seizure disorders, and
their siblings meet other brothers and sisters to share their
feelings. Parents socialize with other parents who understand
them. Information about the latest treatments for epilepsy, as
well as tips for living well with seizures, are offered in a relaxed,
non-threatening environment.
In addition to informational sessions, there will be crafts,
games, swimming and other family activities.
Come join the fun! If you can’t make it for the whole weekend,
and Saturday is the only day that works for you, you are certainly
welcome to come for the day.
Look for registration information soon and don’t forget to check
out our website and Facebook for the latest information on all
of our events. Just visit www.epilepsycenter.org or call us at
419.867.5950.
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TorchLight – Spring 2013
Epilepsy Facts Crossword Puzzle
2
1
Crossword Clues
3
Down
1. Treatment with a single drug
2. Neurological disorder characterized by
recurrent seizures
3. Brain imaging method using magnets
instead of e-rays
4. A sensation recognized by the person
with epilepsy that precedes or signals
the beginning of a seizure
5. Electrical charges are spread between
cells in our brain through____________
6. A dietary treatment for seizure control
sometimes used to treat children with
refractory seizures
7. Medical term meaning the period of
time during a seizure
8. Old terms for seizure types are petit or
grand _____
Across
9. A generalized seizure characterized by
a sudden cry, fall and rigidity followed
by muscle jerks. (two words)
10. A belief held by people over the years
in which science has proved wrong
11. A generalized seizure characterized
by a brief lapse in consciousness with
a blank stare that begins and ends
within a few seconds
12. A seizure category in which the
seizure starts in only one part of the
brain
13. A general term for medication that is
used to prevent seizures
14. The area of the brain on either side of
the head behind the temples.
(two words)
9
10
4
5
11
6
12
7
13
8
14
Answers can be found on the bottom of page 5.
www.epilepsycenter.org
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The Epilepsy Center of Northwest Ohio
Announces Its Start of a Girl Scout Troop
Calling all girls entering 4th and 5th grade in fall 2013! The
Epilepsy Center of Northwest Ohio is excited to announce the
start of a Girl Scout Troop beginning July 2013. Parents, give
your daughter an exciting opportunity to become a girl of courage, confidence and character. During the bi-weekly troop
meetings girls will make new friends, help solve problems,
practice leadership, learn new skills, complete a service project
and have lots of fun. A parent meeting will be held on Thursday,
June 20, 2013, 6:30 p.m. to learn more about the Girl Scout
experience and to register your daughter to join. Financial
Assistance is available. The meeting will be held at our “NEW”
location, 1701 Holland Road, Maumee. To RSVP or if you have
any questions contact Karen at 419.867.5950 or
[email protected].
You May Benefit From New Pre-existing
Condition Insurance Plan
Reprinted with permission
By Erin Thompson
Social Security Public Affairs Specialist in Toledo, OH
Jay Feldstein
Dr. Michael Nagel
Living With Epilepsy Series
“Am I breaking the law if that happens during a seizure?”
Learn how the legal system works when questionable incidents
occur during the course of a seizure.
The Epilepsy Center’s Common Threads Peer Support Group
will present Epilepsy & The Law at the next session of our
Living with Epilepsy series. Guest speakers for the evening will
be Mr. Jay Feldstein, an attorney from the law firm of Kalniz,
Iorio & Feldstein, LPA and Dr. Michael Nagel, a neurologist from
The Toledo Clinic. Both gentlemen are especially well-versed in
matters regarding epilepsy and will be available to speak with
you about the legal issues that people with epilepsy sometimes
experience.
The venue for the event will be The Toledo Clinic, 4235 Secor
Road, Bldg. 2, in the basement conference room, May 14th,
from 7:00 p.m. – 9:00 p.m. Light refreshments will be served.
There is no fee for this program. All we ask is that you please
call The Center at 419.867.5950, by May 10th to reserve your
seat. We hope to see you there!
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Do you find it hard to obtain health insurance due to pre-existing
conditions? You may be eligible for the new Pre-Existing Condition
Insurance Plan—a program for people who have a pre-existing
condition and have been without health coverage for at least six
months. People with pre-existing conditions face daunting
challenges—and high costs—when they shop for health insurance.
This new plan covers physician and hospital services and
prescription drugs. Premiums vary by state. Annual out-of-pocket
expenses for enrollees are capped.
Details about the program and how to apply may vary depending
on what State you live in. In some states, the U.S. Department
of Health and Human Services , with the help of the U.S. Office
of Personnel Management and the U.S. Department of
Agriculture’s National Finance Center, will run the Pre-Existing
Condition Insurance Plan; other states have asked to run the
program themselves. Regardless of which state you live in,
to qualify for the program you must have been uninsured for
at least six months. In addition, you must have a pre-existing
condition or have been denied insurance coverage because of a
medical condition.
For more information, call the Pre-Existing Condition Insurance
Plan toll-free at 1-866-717-5826 (TY 1-866-561-1604)
between the hours of 8 a.m. and 11 p.m. Eastern Time. Or visit
www.pcip.gov and select “Find Your State” to learn about
eligibility and how to apply.
TorchLight – Spring 2013
New Staff
Krystal Brown
Keyonna Ellis
Sasha Foster
LaQuinta Hightower
Tionna Jackson
Contributors
The following contributions have been made
between October 1, 2012 and December
31, 2012. If you name is not listed and
you have made a contribution during this
time, we apologize for the oversight. Please
contact Mary Jo Zeisloft at 419.867.5950
and we will acknowledge your gift in the
next issue of the TorchLight.
Annual Dinner Sponsors
Hardy Communications
Maxx Marketing & Design
Mosser Construction
Annual Campaign
David Black
Bruce & Laura Brancheau
Patricia Gutierrez
Josh Hammacher
Arthur W. Hills
Susan Jones
Matthew Miller
Christopher Rieman
Mr. & Mrs. Leon Williams
Kids on the Block Program
Buckeye CableSystem
(solicited by Nora Warejko)
Memorial Donations
In Memory of William Goetz
Mr. & Mrs. Michael Berkel
Mr. & Mrs. Daniel Bodette
Mr. Andre Criner
Mr. & Mrs. Michael Darcangelo
Mr. & Mrs. Robert Kalb
Mr. & Mrs. Ronald Roush
Mr. & Mrs. Joseph Schnidbauer
Ms. Joyce Starr
Mr. & Mrs. Ed Woityna
In Memory of Phil Mortensen
Mary Baker
Mr. & Mrs. John Bellingham
Marjorie Brechbill
Suzanne Christmyer
Mary Hills
Ann Murnen
Mary Igoe Meyers
Mr. & Mrs. Sheldon C. Williams
Young Services (dba Toddlers School)
General Donation
Max & Erma
Torchbearers of 2012
1st Quarter 2012
LaTonya Hills was
nominated by Gil
Seeburger. For all the
extra special care
she gave to Client
Ed Fin during his
last months of living.
LaTonya is a great example of someone
who goes above and beyond to ensure
that proper care is being provided for our
residents. It makes me excited to see that
we have staff with the drive and desire
to improve the lives of the individuals we
serve! I feel we are truly blessed to have
her as a staff now and hopefully for years
to come. I know that I cannot possibly be
the only staff that feels that LaTonya is an
exceptional employee and great asset to
this organization.
2nd Quarter 2012
Selena Flunder was
nominated by Linda
Coker for taking the
bus to be inspected
3 times and taking
the bus to get all
the repairs done on
her days off. She has been with us since
September of 2010 and has been nothing
but a firecracker since she got here.
3rd Quarter 2012
Gail Obliske was
nominated by Olga
Ruiz. Upon return
from her vacation,
Gail called her
Coordinator to ask
what she could do
to help. She noticed Client RA had a
Med Appt. and wanted to make sure it
was covered. Gail then offered to make
other arrangements with the clients she
normally works with so that she could
help cover the hours with RA for the week.
Great initiative Gail! Thank you! She has
been with us since December 20, 2004.
She has also been nominated three times
in the past.
4th Quarter 2012
Mary Jo Zeisloft is
nominated by Karen
and Madeline for
entering “Work Perks
on WRQN 93.5 and
won. Ron Finn and
Lyn Casey came out
on Thursday 9/20 with coffee and donuts
from Tim Horton’s. MJ then gave an
excellent interview, great free PR. Way to
go, Mary Jo! And Mary Jo Zeisloft is
nominated by Karen, Melissa, Faron,
Madeline, Olga, Linda and Wendy for
outstanding efforts to make the Annual
Celebration and the Holiday Party so
much fun! Mary Jo put her heart and soul
into these events and it showed. Love and
thanks to you, MJ!
The Epilepsy Center Wish List
As we move into our new space our Adult Day Service Program will grow and be in need
of some additional equipment and items. So if you know of anyone that could donate
one of these items listed below please contact Linda Coker at 419.867.5950 at the
Epilepsy Center office and thank you for your support!
• Foosball table• A
rcade game machine
• P
ortable basketball rim
• Musical equipment
• Air hockey table
• Glider swing
• Recliners
• Rocking chair
• Futon couch
• Exercise equipment and hand held
weights
Epilepsy Facts Crossword Puzzle Answers:
Down 1. Monotherapy 2. Epilepsy 3. MRI 4. Aura 5. Neurotransmitter 6. Ketogenic 7. Ictal 8. Mal
Across 9. Tonic Clonic 10. Myth 11. Absence 12. Partial 13. Anticonvulsant 14. Temporal Lobe
Disclaimer: The articles and information provided in TorchLight by contributing writers do
not necessarily reflect the opinions of The Epilepsy Center of Northwest Ohio.
The information published is not intended to diagnose or prescribe, but is provided for
the purpose of disseminating educational information related to The Epilepsy Center, its
clients and supporters.
www.epilepsycenter.org
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The Epilepsy Center
of Northwest Ohio
NON-PROFIT ORG.
U.S. POSTAGE
1545 Holland Road, Suite B
Maumee, Ohio 43537
PAID
TOLEDO, OHIO
PERMIT #565
email: [email protected]
website: www.epilepsycenter.org
Address Service Requested
Award-Winning Publication
The Epilepsy Center, an independent organization
serving Northwestern Ohio, is a member of the
United Way of Greater Toledo, Defiance, Fulton,
and Paulding Counties
Our Mission:
The mission of the Epilepsy Center of Northwest Ohio is
to improve the lives of people affected by epilepsy and
those with developmental disabilities.
Upcoming Events
Our Vision:
People with epilepsy and those with developmental
disabilities will attain the highest quality of life and
gain full acceptance and understanding from the
community.
Living with Epilepsy Series – Tuesday, May 14, 2013
The Toledo Clinic, 4235 Secor Road, Building 2
(7:00 p.m. – 9:00 p.m.)
PGT – Friday, May 17, 2013 (1:30 p.m.) – Levis Commons
The Epilepsy Center of NW Ohio
Board of Trustees
Jay Feldstein, President
Lee Ann Raezer, Vice-President
Sarah Weinlander,Treasurer
Sheri Bokros, Secretary
Dr. Mike Nagel
Kim Cole
Rod Bowe
Gretchen Esselstein
Bruce Joseph
Family Camp – July 26-28, 2013
Camp Libbey, Defiance, OH
For more information please call The Epilepsy Center office at 419.867.5950.
www.epilepsycenter.org