Complete Cancer Care - Mercy Health Saint Mary`s
Transcription
Complete Cancer Care - Mercy Health Saint Mary`s
Complete Cancer Care The Lacks Cancer Center Report to the Community A One-stop Approach to Cancer Care After she was diagnosed with breast cancer, Ruth Chisnall had lots of questions. In the past, getting answers would have required considerable time, multiple appointments and a significant amount of driving to the offices of different specialists. As it was, Chisnall was able to get all her questions answered in a single visit to The Lacks Cancer Center at Saint Mary’s Health Care. In a conference room, she met with a multidisciplinary team, including one of the area’s two fellowship-trained breast surgeons, a radiation oncologist, a cancer resource specialist, a nurse navigator and the center’s medical director, all willing to take as much time as necessary to answer her questions. “The thing that really impressed me is you have the benefit of the whole team’s experience,” Chisnall said afterward. “I have a lot of confidence in their ability to do what needs to be done.” Getting answers and access to the best care wasn’t always that easy for cancer patients in West Michigan. Richard Lacks, Sr., after he was diagnosed with a rare form of cancer, made many trips to the MD Anderson Cancer Center in Houston, far from his West Michigan home. During one trip, he said he wished Grand Rapids had a similar world-class facility. Lacks didn’t see his dream come true. The Grand Rapids industrialist died in May, 1999, one month after his father, John Lacks, succumbed to cancer. Thanks to his dream and his family’s generosity, Saint Mary’s Health Care in 2005 opened The Lacks Cancer Center, West Michigan’s only dedicated cancer hospital. “While the facility itself is first-rate, it’s the people working in it who distinguish The Lacks Cancer Center,” said Dr. David Baumgartner, Saint Mary’s vice president of medical affairs. “We had to get away from traditional thinking,” he said. “What are the patient’s needs, and what are the services that need to be brought to bear around that patient? It’s got to be centered around what the patient’s needs are. It really takes a well-functioning team to treat a complex disease like cancer.” When Lacks Medical Director Dr. Thomas Gribbin began planning the new center, he often remarked that a cancer patient in Grand Rapids needed two things: a full tank of gas and a map. Cancer care was scattered in hospitals and doctors’ offices throughout the area, and patients routinely had to wait weeks for diagnoses and then weeks more for treatment. Gribbin’s “vision was ‘let’s make it easier for the patient, bring it all together and have more-coordinated care,’” Baumgartner said. TEAM APPROACH: The Lacks Cancer Center Medical Director Thomas Gribbin (right) and a team of other cancer specialists including Dr. Jamie Caughran (second from right) and physician assistant meet with breast cancer patient Ruth Chisnall. Cover Photo REASSURING SMILE: Dr. Jamie Caughran meets with breast cancer patient Karen McKenzie before performing surgery. 2 Report to the Community DAVID BAUMGARTNER, MD Vice President of Medical Affairs At Lacks, everything a patient needs — all the specialists, equipment and services — are in one place. Not only is that more convenient for patients, but having all those specialists under one roof also allows for easier consultations about cases. “The communication piece is critical,” Gribbin said. “You get more rational decisions that way.” Another characteristic of The Lacks Cancer Center’s staff is “our global concern for the patient,” Gribbin said. “This is a life-changing event, and we need to understand that and treat that patient and the whole family.” At Lacks, the time between diagnosis and treatment has been reduced, often to a week, decreasing the patient’s anxiety. The center’s staff offers a variety of services to each patient and their families. Each is assigned a nurse navigator to answer questions and guide them through their treatment. A cancer resource specialist also meets with each patient to work out any barriers to care, whether it’s arranging transportation to appointments or dealing with employment problems. “We take into account not only a patient’s physical wellbeing, but their emotional and spiritual wellbeing,” The Lacks Cancer Center Director Kenda Klotz said. Saint Mary’s plans to continue expanding the types of cancers treated and the range of services offered at The Lacks Cancer Center, Phil McCorkle, the hospital’s CEO said, adding, “We have a clear vision and path of where we are going, incorporating innovative strategies, such as research.” A Phase I clinical trial unit allows Saint Mary’s patients to participate in the search for better cancer treatments, giving them access to the latest therapies. While some cancers still are incurable, Saint Mary’s is deeply involved in the search for more-effective treatments and possible cures. “I think we’ve come a long way in treating cancer,” Gribbin said, “and we stand at the edge of a revolution.” CARRIE NESTELL National Community Cancer Center Manager A NATIONALLY RECOGNIZED PROGRAM The Lacks Cancer Center is one of 30 hospitals in the country — and the only one in West Michigan — selected to participate in a National Cancer Institute program to increase cancer treatment access, improve the quality of care and expand research. As a member of the National Community Cancer Centers Program (NCCCP), Saint Mary’s and the other 29 hospitals share information on the latest research and most effective treatments, assuring Lacks patients get the highest level of care available anywhere in the country. “That’s the exciting thing about this project,” said Carrie Nestell, who manages the program at Saint Mary’s. “You can get outstanding care locally without having to drive long distances.” The National Cancer Institute created the program to give patients in underserved rural, suburban and urban areas access to the best care. The NCCCP has six goals: • Increasing participation in clinical trials • Sharing information through a national computer network • Collecting tumor specimens for research • Improving patients’ quality of life through palliative care • Offering the best care based on the scientific evidence of what works and what doesn’t THOMAS GRIBBIN, MD KENDA KLOTZ The Lacks Cancer Center Medical Director The Lacks Cancer Center Director • Reducing health care disparities Report to the Community 3 EXPANDING SERVICES, EXTENDING REACH The Mercy Cancer Network offers more than 200 board certified cancer care physicians, including oncologists, radiation oncologists and surgeons, as well as oncology nurses and other cancer-related specialists. As part of the network, The Lacks Cancer Center is one of 17 locations across the state, allowing for compassionate and quality patient care to be given close to home. Saint Mary’s also recently formed a regional health care system with Muskegon-based Mercy Health Partners to improve access to all types of medical care for patients throughout West Michigan, including those with cancer. The new Mercy Health system includes all Saint Mary’s locations; the Advantage Health/Saint Mary’s Medical Group; Mercy Health Partners hospitals and physician offices in Muskegon, Shelby and Norton Shores; Mercy Hospital Cadillac; and Mercy Hospital Grayling. The new regional system will provide more services throughout West Michigan, improve communication between patients and health care providers and give patients easier access to specialists, including those at The Lacks Cancer Center. The Mercy Health system, to be phased in over the next two years, will offer the expertise of more than 1,100 physicians and other health care providers, while retaining Saint Mary’s commitment to its community and personalized care. Saint Mary’s and Mercy Health are part of Trinity Health, one of the largest Catholic health care systems in the country. Thoracic Surgery The patient is 30 years old, a single mother of two. She’s a smoker, and the spot that showed up during a CT scan looks ominously like lung cancer. Amber Hammerlind had been coughing, was short of breath and felt tightness in her chest. An X-ray showed nothing, so her doctor ordered the CT scan, which detected the shadow on her right lung. Dr. Bruce Shabahang, medical director of thoracic oncology at The Lacks Cancer Center, presented her case at a weekly meeting of the hospital’s pulmonary tumor board, a multidisciplinary team of physicians and other staff members. A needle biopsy was deemed too risky, since the nodule was close to Hammerlind’s heart. The safest way to determine if the nodule was cancer, Shabahang decided, was for him to operate on her with one of the hospital’s two da Vinci® robots. The minimally invasive surgery requires only a few small incisions. “It’s substantially less traumatic,” Shabahang said. “Less muscle cutting, less bone fracturing — that leads to less pain and quicker recovery.” Many of the cases that come before the pulmonary tumor board are lung cancer, still one of the deadliest forms. “That makes early detection and smoking cessation two of the most important ways of improving survival,” Shabahang said. “This looks exactly like cancer,” he said, examining the CT images minutes before operating on Hammerlind, but he added: “Hopefully, this will be benign, and we can all go home happy.” GOOD NEWS: After performing lung surgery on Amber Hammerlind, Dr. Bruce Shabahang assures her grandmother, Pat Wagner, and aunt, Michelle Campbell, that the nodule he removed was not cancerous. “Couldn’t have turned out better,” he said. 4 Report to the Community COLLABORATION: Dr. Bruce Shabahang discusses cases with a team of doctors, nurses, social workers and other staff members, including Clinical Nurse Specialist Chris Werkema, during a weekly Pulmonary Tumor Board meeting (left photo). A team, led by Shabahang, prepares to perform lung surgery using the da Vinci robot (center photo). The robot’s tiny instruments (right photo) allow Shabahang to perform minimally invasive surgery, reducing blood loss and allowing faster recovery for the patient. He made three small incisions in her chest, allowing the surgical team of nurses and technicians to insert two instruments and a tiny camera, all attached to the robot arms over the table. A few feet away, Shabahang sat down at a console and took hold of the da Vinci’s controls. Guided by a three-dimensional image, he moved the instruments inside Hammerlind’s chest. The da Vinci allows him to operate with greater precision than he could with conventional laparoscopic surgery, and he can reach areas inside a patient that otherwise would require a large incision. The instruments inside Hammerlind were extensions of the surgeon’s hands, turning when he turned his wrists, cutting and cauterizing to minimize blood loss. He probed her right lung, grasped the tissue with an instrument and held it up. Taz Kleyn, a registered nurse first assistant, inserted an instrument through one of the small incisions and placed a staple between the lung and the suspected tumor. Shabahang cut the piece free and inserted it in a tiny bag, which Kleyn withdrew. Shabahang stepped away from the console and dissected the nodule. “Just looking at the outside, it looks benign,” he said. But he couldn’t be sure until a pathologist examined it under a microscope. Minutes later, the call came. The nodule was not cancer. It was a granuloma, a collection of inflamed cells caused by a fungal infection. “I’ve got great news for you all,” Shabahang told Hammerlind’s parents, grandmother, an aunt and other family members in a nearby waiting room. “She should be fine.” Their relief was palpable. The fungal infection, he assured them, could be treated with medication. “Couldn’t have turned out better,” he said. “I’m very pleased. This is a joyful moment for all of us.” A few weeks later, Hammerlind tossed a football around her father’s backyard with her sons, Jon, 10, and Kyle, 6. For her, the scare was a wakeup call. “Oh, I was so relieved,” she said. “I didn’t want to leave them.” And that, she said, is why she has quit smoking. QUICK RECOVERY: A few weeks after undergoing lung surgery with the da Vinci robot, Amber Hammerlind plays touch football with her sons, Kyle, 6, and Jon, 10. BRUCE SHABAHANG, MD Medical Director of Thoracic Surgery Report to the Community 5 Breast Cancer Minutes before she was wheeled in for breast cancer surgery, Karen McKenzie was relaxed. “I’m fine,” she said. “Knowing what’s going to happen and what to expect puts me at ease.” She knew what to expect because from the moment of her diagnosis, a multidisciplinary team of doctors, nurses, social workers and other staff members at The Lacks Cancer Center had done all they could to keep her informed, expedite her treatment and alleviate her anxiety. That’s the philosophy behind the center — making the entire experience as comfortable and convenient for the patient as possible. “In other hospitals, if you have to get surgery, you’re transferring from building to building,” said Dr. Jamie Caughran, medical director for the Saint Mary’s Comprehensive Breast Center, part of The Lacks Cancer Center. “Here it’s all in one place.” While Saint Mary’s Health Care for years has offered a range of services for breast cancer patients, in September 2010 it formed the Comprehensive Breast Center, the only facility of its kind in West Michigan, bringing all those services together in The Lacks Cancer Center. Under the center’s Rapid Results Program, a patient can go from initial diagnosis to testing in a matter of 24 hours. “From diagnosis to surgery typically is under two weeks,”Caughran said. “The patient experience is so much better.” Karen McKenzie’s breast cancer first showed up as an ominous spot in a routine screening mammogram. With no family history of cancer, she was certain it was benign, but later tests confirmed it was invasive ductile carcinoma, the most common form of breast cancer. McKenzie’s initial impulse was to undergo a double mastectomy, get it all out, but she changed her mind after learning from her health team that research has shown the less-invasive lumpectomy is virtually as effective at avoiding a recurrence of cancer as the more extreme double mastectomy. “That told me I was at the right place,” McKenzie said. “My comfort was in knowing they’ve seen it all and done it all.” Beyond the technical expertise, McKenzie was impressed with the personal care at The Lacks Cancer Center, “a sense of calming and a sense of caring — those are the words I would use,” she said. With a detailed treatment plan in hand, she arrived one morning for surgery, with just one question left to be answered. “What kind of music would you like to have played in the operating room?” Dr. Caughran asked. “Elton John and Jimmy Buffet,” McKenzie answered. So it was, as she was wheeled into the OR, a Jimmy Buffet tune emanated from a CD player. “Before you know it, your operation will be over,” Dr. Keith Getz, an anesthesiologist, assured her. “You’re doing great.” EXPERT CARE: Dr. Jamie Caughran, a breast surgery specialist, and surgical technician Staci Enderle begin surgery on Karen McKenzie. RELAXED SETTING: Breast cancer patient Karen McKenzie chats with her husband, Mark, while nurse Angela Ichinose begins administering a chemotherapy treatment. Looking on, patient Karyn Webber-Swanson, nearing the end of her treatments, offers encouragement. 6 Report to the Community “MY COMFORT WAS IN KNOWING THEY’VE SEEN IT ALL AND DONE IT ALL.” Other team members — nurse Lou Sacha and surgical technician Staci Enderle — readied the instruments Caughran, a fellowshiptrained breast surgeon, would need. Caughran inserted a port in the right side of McKenzie’s chest, which later would be used to administer cancer-fighting drugs. She then removed lymph nodes and sent them for the pathology department to determine if the cancer had spread beyond the lump in the left breast. While awaiting that call, Caughran removed the cancerous lump and surrounding tissue. The call from pathology brought good news: the lymph nodes were cancer free, indicating the breast cancer had been caught early. JAMIE CAUGHRAN, MD Medical Director of Comprehensive Breast Center With McKenzie on her way to the recovery room, each member of the surgical team signed a card, “wishing you a speedy recovery.” She went home the following day and was back at her job as a bank branch manager a few days later. A few weeks after surgery, McKenzie met with a Saint Mary’s medical oncologist who explained the series of chemotherapy and radiation treatments she would undergo to assure that every last cancer cell was eradicated. As she began her weeks of chemotherapy, to be followed by radiation treatments, McKenzie said she couldn’t be happier with the care she was getting at The Lacks Cancer Center. RELAXED SETTING: Breast cancer patient Karen McKenzie, accompanied by her mother, Elenor Doerr, and attended by medical assistant Beth Van Iterson, receives chemotherapy treatments in The Lacks Cancer Center’s infusion area, which was designed to accommodate friends and family members. “I feel very blessed,” she said. “It was just a routine screening mammogram that caught it. That routine mammogram is priceless to me.” ON THE JOB: While periodically undergoing treatments at The Lacks Cancer Center, Karen McKenzie was able to continue working, meeting with customers at the bank branch she manages. “I’m not defined by cancer,” she said. Report to the Community 7 PREVENTING CANCER: MAMMOPLUS ® After genetic testing showed she had inherited a mutation putting her at a high risk for For most of her life, Amy Johnson didn’t know a mutation was lurking in her genes, greatly increasing her risk of developing breast and ovarian cancer. Her mother was diagnosed with breast cancer at age 50 and died two years later, but “I was told by a doctor it was not genetic,” Johnson recalled. “It gave me a false sense of security.” She was unaware her family history was one factor placing her at a higher than average risk of developing breast cancer. Fortunately, The Lacks Cancer Center, through its MammoPlus program, offers all women who come in for a screening mammogram, the latest in digital mammography — which provides a more accurate picture than traditional mammography — plus an assessment of each woman’s lifetime risk of developing breast cancer, conducted through a brief questionnaire. “THEY TOOK A BAD THING AND MADE IT AN AWESOME EXPERIENCE.” Those whose risk is deemed above average are offered an appointment with the High Risk Program for a more in-depth assessment. If they are confirmed to be at a high risk, they are offered closer monitoring, including annual mammograms and MRI images and twice-a-year examinations, as well as the option of taking Tamoxifen or Evista. While those drugs reduce the risk of breast cancer by 50 percent by blocking estrogen in the breast tissue, they must be taken every day for five years and are not recommended for women at risk of blood clots. Johnson’s mammogram was negative, but the high risk assessment placed her at a high risk of developing breast cancer. She chose another option offered by the Comprehensive Breast Center: genetic testing. She was stunned when the simple test showed she carried a gene mutation, one of two known to increase a woman’s risk of developing breast cancer to 87 percent and ovarian cancer to 44 percent. 8 Report to the Community developing breast cancer, Amy Johnson (left) underwent a double mastectomy and hysterectomy. Her friend, Rhonda Brewer (right), whose mother had breast cancer, was considering the same test offered under the Comprehensive Breast Center’s MammoPlus program. “I wanted to be proactive about my health,” Johnson said, particularly because her husband had died of a heart attack 10 years earlier, leaving her to raise their two sons. In the fall of 2010, Johnson, a second grade teacher, underwent a hysterectomy, performed by Dr. Kevin Brader with a da Vinci robot. Weeks later, Dr. Jamie Caughran performed a double mastectomy, followed by reconstructive surgery. The two surgeries reduced Johnson’s risk of developing breast or ovarian cancer to less than five percent. She was 50, the same age at which her mother was diagnosed with breast cancer. The physicians and other staff members at The Lacks Cancer Center “were just so kind and compassionate,” Johnson said, adding she was surprised at the range of complementary services she was offered, including massage therapy. “Who’s ever heard of that?” she asked. “I don’t think it can get any better than this. They took a bad thing and made it an awesome experience.” Gynecologic Cancer patient Kathie Eding never has forgotten what nurse Michelle Weller told her the first time they met at The Lacks Cancer Center. “She said, ‘There will be times we will laugh together. Unfortunately, there will be times we will cry together, but we’ll always be like family,’” Eding recalled. In 2007, Brader became the first surgeon in West Michigan to perform a hysterectomy with the da Vinci robot. Since then, he has become a da Vinci pioneer, performing more than 900 robotic operations as of early 2012, more than all but a few physicians in the country. He trains other surgeons on using the da Vinci. In addition to performing surgery, he supervises the chemotherapy treatments for his patients. “UNFORTUNATELY, THERE WILL BE TIMES WE WILL CRY TOGETHER, BUT WE’LL ALWAYS BE LIKE FAMILY.” After she was diagnosed with a rare and aggressive form of uterine cancer, Eding’s gynecologist referred her to Dr. Kevin Brader, a Lacks Cancer Center surgeon who specializes in treating gynecologic cancers. “The first time I walked through those doors, I was all teary eyed,” Eding said. “I walk in there now, instead of tears, I have a smile on my face.” Brader did not downplay the seriousness of her cancer, but Eding felt assured her care was in good hands. A week after her first visit, Brader performed a hysterectomy with the da Vinci Surgical System. Eding went home the next day. “I asked Dr. Brader, ‘So do I have any restrictions?’ He said, ‘Nope.’ ‘So can I go for a walk?’ ‘Yup, you can go for a walk.’” Brader said his patients usually are surprised when he tells them they have few restrictions. “I almost think I should give them restrictions,” he said. “Because they think I should.” Eding had just finished her fourth and final chemotherapy treatment and soon would begin a series of 25 radiation treatments. She could have those treatments closer to her Allegan County home, but “I just feel comfortable here,” she said. That’s because the Lacks staff knows that treating the cancer is not enough. They strive to treat patients and their families, making them as comfortable as possible through an extremely difficult time. “It’s all about the patient,” Michelle Weller, Brader’s nurse, said. “It’s so traumatic when they come in. I’m here to support them. We’re a team. We do become like family.” “I feel so fortunate to be here,” Eding said. “I think it’s important to have trust. I trust Dr. Brader. Like Michelle said, ‘We’re like family.’” The experience has strengthened her faith and taught her to appreciate what many take for granted, such as family, friends, and the beauty of nature. “I feel blessed,” Eding said. “If I become a better person because of this, then I’m blessed.” The robotic surgery not only is less traumatic for patients, but it allows the surgeon to do things that were difficult, if not impossible, with traditional surgery, such as accessing certain areas of the anatomy. TREATING THE FAMILY: Dr. James Kane answers questions from patient Kathie Eding and her husband, Mike, about the series of radiation treatments she will undergo. The Lacks Cancer Center staff members recognize KEVIN BRADER, MD Medical Director of Gynecologic Cancer Program that cancer affects not only the patient, but the entire family. Report to the Community 9 Gastrointestinal By the time EJ Horricks learned he had colon cancer, it had spread to his liver. He had a section of his colon removed, but doctors at the hospital where he got the grim diagnosis said there was nothing more they could do. Go home. Put your affairs in order. But Horricks wasn’t ready to give up, so he sought a second opinion at The Lacks Cancer Center at Saint Mary’s Health Care. While doctors there could not promise a cure, they offered something all cancer patients need: hope. Not false hope, but hope based on sound scientific evidence and a skilled team with knowledge of the latest techniques for fighting cancer. “It’s not hope to promise something that can’t happen,” said Dr. Thomas Gribbin, the center’s medical director. “Hope is about ‘can we accomplish what’s important to you?’ If they say, ‘I want to live a little longer,’ we’ll help them do that.” Through an innovative combination of procedures and treatments, Lacks doctors would try to shrink the three tumors in Horricks’ liver and then surgically remove them, they told him. “We met with the whole team that Friday,” Horricks recalled. “We walked out of there at 6 o’clock in the evening, and we had a plan. We had people we had confidence in. It was impressive. We went from ‘go home and die’ to ‘we have hope here.’” His doctors first administered a series of chemotherapy treatments to shrink the tumors. Then Dr. Matthew Tiede, an interventional radiologist, performed a portal vein embolization, inserting metal coils in the blood vessels feeding the right lobe of Horricks’ liver, the area where the three tumors were growing. Over the coming weeks, as the right lobe starved for lack of blood, the left lobe grew to compensate for the shrinking portion. A month and a half later, Dr. Laurence McCahill, medical director of surgical oncology at Lacks, performed a six-hour operation, removing the half of Horricks’ liver that included the shrunken tumors. “I feel really good right now, best I’ve felt in two years,” Horricks said a year after the surgery. “The Lacks Cancer Center is incredible. I’ve never had better care.” By then, his liver had regrown to its original size. A series of CT and PET scans over the months following surgery showed no trace of cancer. But then a PET scan in May 2011 detected a small tumor in his liver. Horricks met with McCahill and decided to undergo a second operation. The following month, Horricks’ wife, Elizabeth, other family members and friends again gathered at Lacks, while a team of physicians, nurses and assistants, led by McCahill, reopened his chest and slowly worked their way toward the tumor. McCahill was concerned that the tumor was next to a major artery. “We’ve just found the lesion now,” he announced two hours into the surgery. “I can feel the tumor.” TEAM WORK: Dr. Laurence McCahill (left), assisted by Registered Nurse First Assistant Taz Kleyn (right) and Dr. Ali Fouladi (center), removes a cancerous tumor from EJ Horricks’ liver. REASSURANCE: Family members and a nurse comfort EJ Horricks before he undergoes surgery for cancer that spread to his liver from his colon. 10 Report to the Community Nurse Ginger Mileski picked up a telephone and updated Horricks’ family in a nearby waiting room. Three pairs of hands — McCahill’s, Dr. Ali Fouladi’s and registered nurse first assistant Taz Kleyn’s — carefully probed inside Horricks’ chest. Four and a half hours after the surgery began, McCahill removed a portion of Horricks’ liver and placed it in a plastic pan. He sliced into it, exposing the white tumor. After closing the incision, he met with Horricks’ family. “I was pretty pleased with how it went,” he told them. “Hopefully, this will be his last liver resection. Hopefully, he’ll be good.” Horricks shares that hope. Six weeks after that operation, he sat in the living room of his home 50 miles from Grand Rapids and looked out at the river flowing past. A plaque on the wall said: “Sorrow looks back. Worry looks around. Faith looks up.” A Bible was on the table next to his chair. A year and a half after his first doctors offered him no hope, Horricks was alive and optimistic, although he knows when it comes to this kind of cancer, there are no guarantees. “I’ve got 2,000 people praying for me,” he said. “I’m a firm believer in the power of prayer. Eventually, somebody’s going to come up with a cure. My job is to stay healthy until that cure.” He rode an off-road vehicle up the lane to his garden, where his two grandchildren, Ellie, 8, and Micah, 7, met him. A third grandchild — a girl — was born a few days later. “I’m determined to stay healthy until that baby’s wedding,” Horricks said, “so I can dance at her wedding.” RECOVERING AT HOME: EJ Horricks decided to have his cancer surgery at The Lacks Cancer Center after meeting with the staff. “Thank goodness we did,” he said, following surgery. “We were so impressed with Saint Mary’s.” POWER OF PRAYER: Horricks and his family attend church every Sunday. “I’m a firm believer in the power of prayer,” he said. LAURENCE McCAHILL, MD Medical Director of Surgical Oncology LOVE OF FAMILY: Six weeks after his second liver surgery, Horricks hugs his grandchildren, Ellie, 8, and Micah, 7. “So what are we going to do this afternoon, kids, go swimming?” he asked. Report to the Community 11 Financial The patient was sitting at a table in the corner of her hospital room when cancer resource specialist Dan Sherman knocked on her door. Jo Ann Rogers had been diagnosed with acute myeloblastic leukemia days before. She was on Medicare, but, without supplemental insurance, the retired cab driver faced monthly bills of $560 for her treatment. “I started worrying about how I was going to pay for it,” she said. “There was no way I could afford this.” That’s when Sherman walked into her room, reviewed her financial situation and signed her up for a supplemental Medicare policy that would cover her treatments for $25 a month. As he got up to leave, Rogers thanked him. “You’re welcome,” Sherman said. She thanked him again, and he again said she was welcome. Rogers grasped his arm. “Dan, you just don’t get it,” she said. “I was planning my funeral when you walked into the room.” Until Sherman showed her otherwise, Rogers figured she couldn’t afford to live. “I was planning on dying,” she said. The program no longer is a pilot, but a permanent service offered to The Lacks Cancer Center patients. Whereas each patient is assigned a cancer resource specialist to help them with any social, psychological or other issues that interfere with treatment, only if a patient needs special financial guidance, are they referred to a clinical financial consultant. “They get involved with anything, like if someone’s lost their job because they have cancer,” center Director Kenda Klotz said. “What if I don’t have insurance? What if I can’t make my mortgage payment? We try like crazy to get in front of the crises.” Sherman, with his eclectic background in psychology and accounting, works full-time, helping patients overcome financial burdens, whether it’s finding them insurance to cover the cost of their care, or helping them avoid foreclosure on their homes. “I consider my job to be helping alleviate financial disaster for our cancer patients so they can focus on their care, rather than worrying about their financial problems,” he said. Americans fear the cost of cancer care as much as they do dying of the disease, a recent survey by the Community Oncology Alliance found. Even among insured patients, 20 percent spend their life savings on cancer care, according to a recent study. Each day, he reviews records of new patients, looking for those who need his help. He signs them up for the best insurance he can find, collaborates with pharmaceutical companies to provide free drugs ($140,000 worth in the first three months of 2011), and refers some patients to other agencies to help with a range of financial issues. Based on Rogers’ experience, The Lacks Cancer Center administrators in 2008 approved a pilot program during which Sherman helped patients overcome a range of financial problems. He now serves as clinical financial consultant. Three years after completing her treatment, Jo Ann Rogers is cancer free and eternally grateful not only for the medical care she received at Saint Mary’s, but for the financial help Dan Sherman gave her. No patient ever is turned away from Saint Mary’s for lack of insurance or the inability to pay, but the program not only eased the financial worries of countless patients, it helped the hospital recover some of the cost of charity care. In its first five months, the pilot program saved Saint Mary’s more than $340,000. “I wanted to kiss him,” she said, “but I didn’t dare. I think he’s the greatest thing there is. If I called and told him I needed to talk to him, he’d be there.” Had she not gotten his help and the first-rate medical care at Lacks, she is certain of one thing: “I’d probably be dead.” AVOIDING FINANCIAL DISASTER: Without insurance, Jo Ann Rogers was certain she could not afford treatments for leukemia. Dan Sherman helped her figure out a way she could. DAN SHERMAN Clinical Financial Consultant 12 Report to the Community Nurses NAVIGATING CANCER: Breast cancer patient Hope Ottobre and her husband, Mike, meet with Nurse Navigator Cheryl Valentine. At the center, each patient is assigned a nurse navigator to guide them through treatment. As a nurse manager at The Lacks Cancer Center, MarKay Riippa supervises a staff of nurses, each trained in the specialized care of cancer patients. In the war on cancer, they are the frontline soldiers. For many, it’s a battle they take personally. “I think most of us have been touched by cancer,” Riippa said. Both her parents died of cancer. “I think all nurses care about their patients. What makes us special is we understand the impact of cancer. We have a lot of compassion.” Each patient who arrives at the center is assigned a nurse navigator to guide them through their treatment and answer any questions they have. Center administrators created those specialized positions because they recognized a diagnosis of cancer is difficult enough without the additional burden of maneuvering through treatment on their own. “I THINK EVERY HOSPITAL WILL TELL YOU THEY TREAT THE MIND, BODY AND SPIRIT. WE MAKE IT REAL.” “That’s our goal, that each patient has someone they can count on who can guide them from point A to point B,” said Cheryl Valentine, one of three nurse navigators who guide breast cancer patients. “If nothing else, I want them to know ‘if I have a question, I can call Chery.’” After an initial visit, each patient receives a binder containing a detailed treatment plan — “not just a generic booklet, but a personalized plan customized for their diagnosis and course of treatment,” Valentine said. A cancer resource specialist also is assigned to each patient to help with the emotional and practical aspects of cancer care. That includes referring them to support groups, helping them develop coping strategies and linking them with community organizations that provide transportation, financial help, housing and other services. “Our goal is to heal every patient,” Riippa said, adding that even for those patients who can’t be healed physically, “We try to bring them hope.” “These are very complex cases,” she said. “You say ‘cancer,’ and all hope drains out of you and fear takes over. You have to understand how cancer affects their bodies, what their needs are. A lot of times, a patient will talk to a nurse when they won’t talk to family members.” It takes a special person to give that kind of care. “You have to have a desire; you have to have a heart. You have to be a good listener,” Riippa said. “You have to be a person who can deal with a situation that can be very difficult. I think every hospital will tell you they treat the mind, body and spirit. We make it real.” MARKAY RIIPPA CHERYL VALENTINE Nurse Manager Nurse Navigator Report to the Community 13 Radiation Judy Benger arrived for her first radiation treatment, happy in the knowledge she had two different kinds of cancer. Normally, that would not be good news, but, for Benger, the diagnosis was much better than her doctors originally had feared. Initially, they thought she had stage-four breast cancer, greatly reducing her chances of survival. A mammogram showed a lump in her left breast, and a CT scan appeared to indicate it had metastasized, or spread, to a lymph node. After Dr. Bruce Shabahang removed the lymph node, a pathologist determined it was chronic lymphocytic leukemia. “This is the best possible news for this lady,” Shabahang said. “We were painting a picture of metastatic breast cancer — all gloom and doom. This is not gloom and doom. Basically, she’s got two treatable cancers.” A few weeks later, Dr. Jamie Caughran removed a small cancerous lump from Benger’s left breast. The cancer was detected early enough, thanks to the mammogram, and the lump was small enough that she did not need chemotherapy. “A series of radiation treatments alone would reduce her chances of the breast cancer recurring to less than 10 percent,” Dr. Mike Wilkinson, a radiation oncologist, said. For now, her chronic lymphocytic leukemia, a slow-growing type common in older adults, would require no treatment, only careful monitoring. A technician positioned Benger on a table beneath a linear accelerator, while Wilkinson studied her CT images that had been shot earlier to ensure the machine focused the radioactive beam at the area where the tumor had been removed. Down the hall, a TomoTherapy® machine combines the high energy of a linear accelerator with a CT scan, to further ensure the radiation is focused only on the tumor, not on the healthy tissue. The Lacks Cancer Center was one of the first 20 TomoTherapy® Centers of Excellence in the world. Saint Mary’s two medical physicists — Dr. Tewfik Bichay and Chen Chen — work with a team of dosimetrists to translate prescriptions from the radiation oncologists into treatment plans custom made for each patient. LATEST TECHNOLOGY: Breast cancer patient Judy Benger lies under a linear accelerator, while Dr. Mike Wilkinson, a radiation oncologist, prepares her for the first in a series of radiation treatments. 14 Report to the Community EXPERT CARE: Medical physicists Dr. Tewfik Bichay and Chen Chen work with a team of dosimetrists to develop a personalized radiation treatment plan for each patient. Bichay is the area’s only PhD medical physicist. “The ultimate intent is to deliver as much radiation to your target and as little as possible to the surrounding tissue,” Bichay said. “As a result, complication rates for patients have gone down substantially,” he said. Ironically, the same radiation that can cure cancer also can cause it, so to safeguard from radiation leakage most radiation oncology rooms have lead-lined doors, weighing about 3,000 pounds, which are closed during treatments, leaving the patient alone. “The patients hated it,” Bichay said. “They’d hear that thud, and they felt all alone. They felt like they were in a tomb.” Saint Mary’s was the first hospital to use that patent-approved design, allowing patients to feel more relaxed. Others hospitals are following Saint Mary’s lead. “It’s really become the way to go,” Bichay said. During her two-minute treatment, Benger was spared the desolate sound of a heavy door closing. She would return the next day for a second treatment and five days a week for the next month. After that, her doctors will carefully monitor her for any sign that the breast cancer has returned or that the chronic lymphocytic leukemia has progressed to a stage that requires treatment. Benger was beyond relieved when told she doesn’t have stage-four breast cancer, and she’s thankful her gynecologist referred her to The Lacks Cancer Center. “I couldn’t have asked for a better place than Saint Mary’s,” she said. “The nurses, the doctors, everybody was so friendly. I was overwhelmed by it. I think they’re really great people here.” That’s why Bichay designed the four radiation oncology rooms at The Lacks Cancer Center without the thick leaden doors. The hallways leading into the rooms have walls set at angles to deflect the radiation, which is absorbed by a plastic lining beneath the drywall. PRECISE PLANNING: Dr. Bruce Shabahang studies images of a suspected tumor in a lymph node before operating on Judy Benger. GRATEFUL PATIENT: Patient Judy Benger was relieved to hear that her breast cancer was detected at an early stage. Report to the Community 15 Research As better treatments for cancer are discovered, chances are they’ll be studied here first, in Saint Mary’s Health Care’s new clinical trial unit. The unit, the only one of its kind in the Grand Rapids area, opened last year, allowing researchers to conduct Phase I trials here. For West Michigan patients, that means they will have quicker access to the latest and most effective therapies. “It’s a significant investment, but we believe it’s the right thing to do,” Susan Hoppough, Saint Mary’s director of research and innovation, said as she walked through the new unit. “We’re committed to offering the latest technology and treatments to the patients we serve. It’s part of our mission.” For years, Saint Mary’s has participated in Phase II and Phase III clinical trials. The new unit allows doctors and other researchers to conduct Phase I clinical trials — the first stage during which new drugs and other treatments are tested on small numbers of volunteer patients. Drugs cleared in Phase I go on for further testing on larger numbers of patients in Phase II and Phase III trials. In the past, West Michigan patients who wanted to participate in early clinical trials had to travel elsewhere. “We’re interested in bringing the best in clinical trials to our patients,” Hoppough said. “They won’t have to travel far away. We’re bringing the research to them.” “WE’RE BRINGING THE RESEARCH TO THEM.” The eight-bed unit is available not only for Saint Mary’s doctors to perform studies, but for other community researchers, including those at universities and pharmaceutical companies. The new unit will be used to test new treatments against neurological diseases, HIV/AIDS, diabetes, kidney diseases and mental illness, as well as cancer. The Lacks Cancer Center doctors are deeply involved in other forms of research aimed at finding the best treatments. Dr. Laurence McCahill, director of surgical oncology at the center, recently completed a study that found wide variability in how breast cancer patients are treated at different hospitals. Nearly a quarter of the 2,200 patients who had partial mastectomies underwent a second operation, the study found, but surgeons and hospitals differed greatly on how they determined the follow-up surgery was necessary. McCahill hopes the study, published in the Journal of the American Medical Association, leads to uniform standards for treating breast cancer. Doctors at Saint Mary’s also are involved in studies with the Van Andel Institute, a medical research facility a few blocks away. That includes sending tumor samples to the institute for 16 Report to the Community research into the genetic origins of various kinds of cancers. Unraveling the genetic mutations that cause cancer is a highly complex endeavor, but, ultimately, it should lead to better treatments and possibly cures. Michigan State University’s decision to move the headquarters of its College of Human Medicine to Grand Rapids also expands the opportunities for doctors and patients here to participate in the latest research. Taken together, the various efforts to increase research “means our patients will have access to the cutting edge clinical trials, and West Michigan patients will be contributing to the new standard of care,” said Dr. Gilbert Padula, a radiation oncologist at the center and associate principal investigator for the Grand Rapids Clinical Oncology Program. The program is a cooperative effort of doctors and hospitals in West Michigan and Traverse City with direct funding from the National Cancer Institute (NCI) to “provide top-notch cancer care close to home,” said Padula, who in 2012 will become principal investigator overseeing the program’s clinical trials. Most advances in cancer care, he said, come in small increments rather than big breakthroughs. “I think it will be a series of steps that will turn cancer into a chronic disease,” Padula said. “We’re making strides every day.” CUTTING-EDGE CARE: The clinical trial unit, which opened in 2011, will allow Saint Mary’s to increase its research and offer patients the latest treatments. To keep up with an increasing need for its services, The Lacks Cancer Center continues adding physicians and other staff members. In August 2011, Dr. Jessica Keto and Dr. Ebony Rashaan Hoskins, both attracted by the center’s comprehensive approach to cancer care, joined the staff. EBONY HOSKINS, MD EXPANDING RESEARCH: Brian Berryhill During a fellowship with the National Cancer Institute, Dr. Ebony Rashaan Hoskins conducted extensive research and published many papers on ovarian cancer. (left), clinical research pharmacist; Lynn Cherney, clinical research coordinator; Michelle Rae, clinical research assistant; Kyle Herrington, finance analyst; and Susan Hoppough (right), Saint Mary’s director of research and innovation, tour the new clinical trial unit. In August, she brought that knowledge to The Lacks Cancer Center as its newest gynecologic oncologist. Hoskins, who earned her medical degree from Wayne State University, works closely with Dr. Kevin Brader, director of gynecologic oncology. Before joining the staff, Hoskins completed a residency in obstetrics and gynecology at St. Joseph Mercy Hospital near Ann Arbor and a fellowship in gynecologic oncology at Magee Women’s Hospital in Pittsburgh. As a surgeon, she appreciates The Lacks Cancer Center’s approach to “treating the whole person and the family,” she said. JESSICA KETO, MD GILBERT PADULA, MD Radiation Oncologist Associate Principal Investigator, Grand Rapids Clinical Oncology Program After graduating from the Michigan State University College of Human Medicine and during her surgical residency in Grand Rapids, Jessica Keto became familiar with the Comprehensive Breast Center in The Lacks Cancer Center at Saint Mary’s. In August, after completing a fellowship in breast surgery at Israel/St. Luke’s Roosevelt hospital in New York, she returned to The Lacks Cancer Center as associate medical director of the Comprehensive Breast Center, where she works closely with Dr. Jamie Caughran, the medical director who created the Comprehensive Breast Center. “I had experience with Saint Mary’s, so I knew they are dedicated to patient care,” Keto said. “I was very excited to come back.” Report to the Community 17 Urology After Ty Wessell was diagnosed with prostate cancer, some doctors urged him to undergo radiation therapy. Initially, he was convinced that was his best option, but “then I thought I ought to talk to a surgeon,” Wessell said. As a former school principal in East Grand Rapids and Rockford, he was familiar with Saint Mary’s Health Care and vaguely aware of The Lacks Cancer Center. But the center was more than 170 miles from his home in Northport, where he recently had retired as the school superintendent. After researching the reputations of various cancer centers, “My wife and I said we were going to go where we felt most comfortable,” Wessell said. He made an appointment with Dr. Paul Rodriguez, a urologist at The Lacks Cancer Center and one of West Michigan’s most experienced surgeons specialized in treating prostate cancer and other urinary disorders. “He was the first doctor I had talked to since my diagnosis who talked to me about options, rather than telling me what I ought to do,” Wessell said. “What a rare experience. He had all the time in the world. He obviously knew the research.” “WHAT A RARE EXPERIENCE. HE HAD ALL THE TIME IN THE WORLD.” Wessell decided to undergo surgery at The Lacks Cancer Center, despite the distance from his home. On August 8, 2011, Rodriguez performed the surgery with one of Saint Mary’s da Vinci robots. A couple of days later, Wessell was home. A month later, he was able to resume running two miles a day. INSTILLING CONFIDENCE: Although he lives 170 miles from Grand Rapids, Ty Wessell chose to have his prostate surgery at The Lacks Cancer Center. “My wife and I said we were going to go where we felt most comfortable,” he said. 18 Report to the Community “Never felt better,” he said less than two months after his surgery. “I’m a real fan of Lacks.” During his brief stay, “I felt like I was in a hotel.” Mike Schaper could have told him that. As a prostate cancer survivor, he has urged others to consider having surgery performed by Rodriguez at The Lacks Cancer Center. He was 45 when his prostate cancer was diagnosed four and a half years ago. “Dr. Rodriguez is a wonderful man,” Schaper said. “He was so open with me.” He decided to have Rodriguez perform surgery with the da Vinci, which is far less traumatic, results in less blood loss and allows quicker recovery than with traditional surgery. As he was wheeled into the operating room, “I remember looking at it (the robot) and thinking, how cool. How’s that going to work? To me, it’s amazing that they can do that.” After his discharge, “I felt great,” Schaper said, adding he needed no pain medication. “My wife thinks I have a high pain tolerance. I think I’m a wimp when it comes to pain. I wouldn’t want to have it again, but to me it was a cake walk.” Four and a half years after his surgery, he remains cancer free. For Schaper and Wessell, their futures are bright because their cancers were detected early — “a key for surviving most cancers, including of the prostate, the most common form for men,” Rodriguez said. One out of six men eventually will develop prostate cancer, the second leading cause of cancer death for men. “Right now in my practice, we’re seeing men with early stage prostate cancer for whom survival is 95 percent or better,” Rodriguez said. Early diagnosis and the advent of the PSA (prostate-specific antigen) test have improved survival rates, he said. Some doctors recommend annual testing for men over 50. For those at a high risk for prostate cancer, including African American men and those with a family history of prostate cancer, the test is recommended beginning at age 45. Since he began using the da Vinci in 2006, Rodriguez has performed the robotic surgery on nearly 500 prostate cancer patients. As an independent physician, he could perform surgery at other hospitals, but 90 percent of his practice is at Lacks. PAUL RODRIGUEZ, MD Urologist “It’s a nicer place to be for the patients and the doctors,” he said. “We have access to all the latest technology. We have highly trained physicians and nurses in a setting that is conducive to the health and wellbeing of the patient.” RELAXING AT HOME: Mike Schaper’s wife, Jane, thinks he has a high pain tolerance. He disagrees. The da Vinci surgery, he said, made it “a cake walk.” QUICK RECOVERY: Prostate cancer patient Mike Schaper was able to resume work and play shortly after undergoing robotic surgery. Report to the Community 19 Palliative Care The patient has cancer, recently had a leg amputated and now, due to a head injury, is partially paralyzed. He made it clear he does not want extraordinary measures to keep him alive. Understandably, his family is upset, but they support his decision. “Do they understand what the other alternatives are?” asked Dr. Emily Gualtieri. “I suspect what they want is to see the patient well cared for.” As the medical director of Saint Mary’s critical care unit, Gualtieri is a member of the hospital’s palliative care team that meets to discuss cases and give patients and their families the information they need to make informed decisions. As in all cases, this patient and his family members were told in layman’s terms the likely course of his many illnesses and possible treatments. “The patient made it clear he does not want to be placed on a ventilator, which would help him breathe,” Dr. Richard Chambers said during a meeting of the palliative care team. “There are times when you have a recovery better than what you think,” he said, but, for this patient, the “prognosis is very grave. He could go quickly, or he could linger. We’ll make sure he’s comfortable.” “I think it’s empowering to have information that’s not just in medical terms, but to really understand what’s coming next,” Dr. Colleen Tallen, medical director of palliative care at Saint Mary’s, said. “I’m part of the team that listens to patients. Tell me about your life. Tell me what’s important to you. Do they really understand their disease? We want them to understand what their choices are. We help patients make decisions that they want, not what I want.” A visit from a palliative care specialist does not mean a patient is considered to be terminally ill. About 70 percent of the patients the team helps are not sick enough to be eligible for hospice care. Many will recover. Some cancers and other diseases that once were considered universally fatal now, if not curable, can be treated as chronic conditions. The palliative care team helps patients deal with the discomfort of their diseases and the side effects of treatments, including pain and nausea. “We try to proactively prepare patients and anticipate problems before they happen,” Tallen said. “We can walk with these patients and help prepare them for whatever decisions might come, and, when it’s time to make those decisions, we can be there.” The palliative care team — including three doctors, three nurse practitioners, a physician assistant, two nurses and a chaplain — consider the medical, ethical and personal issues involved in each case. Members of the team meet with patients and their families to discuss the likely courses of their diseases and possible treatments. Ultimately, it is the patient and the family, not the physician, who decide what to do. COLLEEN TALLEN, MD Medical Director of Palliative Care EASING DISCOMFORT: Members of Saint Mary’s palliative care team, including Dr. Emily Gualtieri (left), Dr. Colleen Tallen (second from left), medical director of palliative care, and Clinical Nurse Leader Laurie Sayer meet regularly to help patients deal with the discomfort of their diseases. 20 Report to the Community WEAVING WARMTH: Retired nurses (left to right), Nan Jager, Nancy Sweetnam, Wilma Courson and Mary Kay Kampfschulte, meet weekly at The Lacks Cancer Center to knit prayer shawls for the patients. Mercy Knitters For most of the Mercy Knitters, their weekly gathering at The Lacks Cancer Center is a homecoming. “We all feel connected to Saint Mary’s,” Mary Ann Finn said. That connection is spiritual, as well as tangible, because The Lacks Cancer Center was built on the site of the original hospital building where many of the Mercy Knitters were trained as nurses. The Mercy Central School of Nursing, based at Saint Mary’s, opened in 1898 and graduated its last class in 1986. When the center opened in 2005, two of the nursing school’s graduates, Kay Paskiewicz and Nancy Sweetnam, asked if they could provide prayer shawls for the cancer patients. Not only did Saint Mary’s accept the offer, but asked the women and their friends to knit once a week on the center’s fifth floor, a light-filled area where many patients come to relax. That’s when Mercy Knitters was born. “NOT ONLY ARE WE GIVING, WE’RE GETTING BACK AS WE GIVE.” The women say a prayer for each shawl: “Creator God, Bless this yarn and these needles. May this shawl be a sign of your healing presence. May it warm those who are weary, surround those who suffer and encircle those who are in pain. May Your gentle touch reach out to heal in the light of Christ. Amen.” The women complete about 200 shawls a year and give them to the patients. They do it for the same reason that prompted them to become nurses — “for the love of helping others,” Nan Jager said. “Not only are we giving,” added Nancy Sweetnam, “we’re getting back as we give.” HOMECOMING: The Lacks Cancer Center was built on the site of the original hospital, where many of the Mercy Knitters, including Mary Ann Finn (left) and Jacque Heynen, studied nursing. A dozen of the women, most of them retired nurses, sat in a circle next to the fifth floor’s conservatory one morning. While they do most of their crocheting and knitting at home, their weekly visits to The Lacks Cancer Center keep them connected with the patients. “A lot of us have had cancer, so we know how it feels,” Wilma Courson said. Report to the Community 21 Therapy Dogs Charley and Frisco are trained therapists. They arrive at The Lacks Cancer Center for their weekly rounds one morning and immediately are greeted by staff members and patients. They’ve come to comfort the sick. Patients perk up when Charley and Frisco arrive. Many miss their own dogs, and these weekly visits keep them connected with the world beyond the hospital’s walls. “There’s a connection beyond words with dogs,” MarKay Riippa, a nurse manager said. They work without compensation, save for the occasional biscuit. Charley and Frisco, a pair of golden retrievers, are among the many volunteers who keep The Lacks Cancer Center running smoothly and make life more pleasant for the patients and staff. The dogs possess an intuitive sense of which patients and their families most need them, Muth said. “I don’t know how to say this any other way,” she said. “It’s spiritual.” “Hello there. You’re so sweet,” patient Nancy Eldred said, petting Frisco’s head. “It puts a smile on your face. I felt like he was pouring healing into me.” One day, while walking the halls at Lacks, she and Frisco came upon a woman sitting outside a room where her father was dying. “I just asked God to send me an angel,” the woman said, “and he sent me a four-legged one.” The dogs and their owners, Myra Muth and Shari Duthler, are volunteers and members of the nonprofit West Michigan Therapy Dogs Inc. To call the women the dogs’ handlers is a misnomer, considering that Frisco and Charley each completed a seven-week course that included training in such hospital protocol as avoiding IV lines. “I got into it because both my parents died of cancer, and they were helped by therapy dogs,” Muth said. Duthler said her family also has dealt with cancer. “I thought, what can I do to give back to the community?” she said. The answer was to bring patients a little comfort that only a gentle pet can provide. REMINDERS OF HOME: Patient Marcy Deur and her husband, Butch, pet Charley. For many patients, the therapy dogs bring a sense of normality. CARING CANINES: Therapy dogs Frisco (left) and Charley, with their handlers, Myra Muth (left) and Shari Duthler, comfort Saint Mary’s patients every week. 22 Report to the Community Food The sun is shining, and, in a courtyard at Saint Mary’s Health Care, chicken and corn on the cob are sizzling on the grill. The aroma draws patients, visitors and staff members, who line up for lunch. This is hospital food? The kitchen crew at Saint Mary’s is changing the perception that hospital food by definition is bland. The hospital’s macadamia nut-encrusted tilapia recently won a hospital chefs’ competition in Chicago, and its other menu offerings have taken top honors in competition against mainstream restaurants, not just hospital cafeterias. “THE FOOD HERE WAS EXCEPTIONAL, LIKE A FIVE-STAR RESTAURANT.” In the past, hospital patients, if they were lucky, had two choices for each meal and no choice of when it was served. When The Lacks Cancer Center opened in 2005, it offered room service, which since has been phased in throughout Saint Mary’s Health Care. Patients can order breakfast from 7 a.m. to 7 p.m. and lunch and dinner from 11 a.m. to 7 p.m. Guests also can order from the room service menu or dine in the hospital cafeteria. Those patients on restricted diets are offered special menus. For most patients, the choices are considerably wider than in the past, much like you’d see in a popular restaurant, with such entrees as grilled Atlantic salmon, as well as a variety of sandwiches and pasta dishes. Specials, such as sea bass and short ribs, are offered each day. HOSPITAL FOOD? The Lacks Cancer Center patients are able to order from an extensive menu, featuring entrees, such as grilled Atlantic salmon with sautéed vegetables, a fresh garden salad and an apple. “The food here was exceptional, like a five-star restaurant,” said Amy Johnson, a former Lacks patient. Every Thursday throughout the summer, kitchen staff members cook outside on a gas grill. This year, they planted a garden in the courtyard, so the staff can cook with homegrown peppers, cabbage, tomatoes and herbs. ROOM SERVICE: Food service employee Trang Nguyen delivers a meal to patient Tammy VanVolkinburg. Report to the Community 23 Library and Chapel At The Lacks Cancer Center, patients and their families can find information and inspiration. A woman walked into the center’s Warren Reynolds Library one afternoon. Typical of many who come here, she recently had received troubling news and was seeking answers. “How can I help you?” Brett Powers asked. It’s more than a greeting. Powers is the center’s medical librarian with many years of experience helping cancer patients, their families and others find reliable information about cancer. Her husband recently was diagnosed with a brain tumor, the woman said. Powers led her to the library’s shelves filled with books, pamphlets, DVDs and CDs and pointed out those most relevant to her husband’s diagnosis. She left with a handful of pamphlets. Chances are she’ll be back. “It’s very common for them to get basic information and then come back looking for more,” Powers said. The woman had come to the one place that could provide the information she was seeking, one of the five largest cancer center libraries in the country and the most comprehensive in Michigan. The library was inspired by the late Warren Reynolds, a longtime Grand Rapids sports broadcaster who died of cancer in July 2000. Reynolds had expressed frustration at his inability to find information about the kind of cancer he was battling, so his family and friends raised money to open and support the library in his name. Saint Mary’s Health Care recruited Powers, previously a medical librarian at the MD Anderson Cancer Center in Houston and the Wright State University medical school in Dayton. He and Susan Hoppough, Saint Mary’s director of research and innovation, visited cancer center libraries around the country to gather ideas for how the Warren Reynolds Library should be designed. Since it opened on the center’s second floor in January 2005, the library has provided information to more than 22,000 visitors. “Anybody who walks through the door can use the library,” whether they are Lacks patients or not, Powers said. “Patients have lots of questions that they can’t always get answered,” so they come into the library. For some, their diagnosis is so new, they don’t know what to ask. “This information helps them ask better questions,” Powers said. PROVIDING INFORMATION: Andrew Spoolstra and Physician Assistant Rick Malmsten look up information in The Lacks Cancer Center’s Warren Reynolds Library, the only cancer library in West Michigan. 24 Report to the Community FINDING FAITH: Fr. Ayub Francis Nasar, a Saint Mary’s chaplain, leads mass in The Lacks Cancer Center’s chapel. Those The Warren Reynolds Library includes a reading room, private study rooms, six desktop computers and 15 laptop computers that patients can check out, as well as iPods loaded with 1,000 songs, “whatever we can do to make their stay easier,” Powers said. That includes a business center with faxing, copying, mailing and notary services. The library shelves are filled with more than 1,000 books on cancer, as well as pamphlets, DVDs, CDs and other reference materials. patients unable to attend can view the service on closed-circuit television. Those materials include not only medical information about the many forms of cancer, but help for family members, as well as advice on the nutritional, financial and spiritual aspects of the disease. Those who can’t get answers to all their questions in the library often find them just down the hall in The Lacks Cancer Center’s chapel, where Fr. Ayub Francis Nasar, a Saint Mary’s chaplain, was about to hold mass. After Sister Marie Joy Yuhasz played “For the Beauty of the Earth,” Nasar walked to the pulpit and, addressing those in the chapel and patients watching on closed-circuit television, began “this mass that God may heal them. May the Almighty God have mercy upon us,” he prayed. It’s all in keeping with the Saint Mary’s pledge to treat not only the disease, but the patient’s mind, body and spirit. BRETT POWERS Librarian Report to the Community 25 A LETTER FROM PHIL McCORKLE No one wants to hear they have cancer. Our goal from Last year, we opened a new Phase I Clinical Trial Unit, the moment a patient arrives at The Lacks Cancer Center which will allow us to expand our research into cancer is not only to treat the disease, but to make the and other diseases and give our patients access to the experience as easy as possible for the patient and the most progressive treatments. family during a very difficult time. Our oncologists and surgeons are nationally recognized for their expertise, The depth and breadth of our cancer program has grown and we provide them with the latest technology, rapidly since we opened The Lacks Cancer Center six including a Radiation Oncology Department. years ago, and we plan to continue growing to meet the needs of our patients and families. They have the right to But that’s not enough. We take a multi-disciplinary expect the best care available anywhere and the peace approach to treating cancer, and always keep it centered of mind of knowing they can get it close to home. on the patient. Our physicians are supported by a staff of nurses, physician assistants, social workers and others dedicated to giving the best care with compassion, Sincerely, considering every aspect of each patient’s life — mind, body and spirit. Our Comprehensive Breast Center is the only place in West Michigan that offers Mammo-Plus®, combining an advanced mammogram with a program Phil McCorkle that allows our patients to assess their lifetime risk for President and CEO developing breast cancer. Saint Mary’s Health Care The Lacks Cancer Center is West Michigan’s only dedicated, inpatient cancer facility. It also is one of only 30 in the country, and the only one in West Michigan, recognized by the National Cancer Institute as a National Community Cancer Center Program. That prestigious selection allows us and the other 29 hospitals to share information on the most advanced treatments available. 26 Report to the Community Report to the Community 27 HOW A MULTIDISCIPLINARY CLINIC HELPS GASTROINTESTINAL CANCER PATIENTS GET BETTER, FASTER CARE AT LACKS Compiled by Larry McCahill, MD Medical Director, Surgical Oncology Assistant Director, The Lacks Cancer Center Director, Lacks Gastrointestinal Multidisciplinary Program Initial research strongly supports that offering care through the GI Imagine a hospital where patients with newly diagnosed gastroin- The GI MDC began seeing patients in January 2010 and has collected testinal cancer can begin treatment sooner — with access to a nurse data to ensure that quality is both optimal and continuously improv- dedicated to helping them navigate their way through a complex care ing. This report summarizes the goals and key findings of the GI MDC. MDC may also provide a more patient-centric experience — assuring that care is timely, coordinated and well communicated between the patient and the entire treatment team. plan with open, ongoing communication between their physician and the entire care team. GOALS OF THE GI MDC MEASURED IN THIS REPORT: In addition, patients could see all their specialists, including surgical • Provide a patient-centric experience in which physicians and health care staff come to the patient in a single clinic visit. oncologist, medical oncologist, radiation oncologist, dietitians and social workers in one appointment, at one location. • Assure that cancer care for each patient is: -timely, THIS IS THE GASTROINTESTINAL MULTIDISCIPLINARY CLINIC AT THE LACKS CANCER CENTER AT SAINT MARY’S. -coordinated, - and well-communicated to the patient and all members of the treatment team. Traditionally, it can take several weeks or even months to gather all necessary clinical information and medical consultations before treat- • Assure that both staging studies and clinical treatment are concor- ment can begin. This is particularly true if physician visits and diagnos- dant with evidence-based cancer practice guidelines, as currently tic testing are done serially, which also contributes to communication published by the National Comprehensive Cancer Network (NCCN). breakdown of vital information and treatment planning. As a result, many patients diagnosed with gastrointestinal cancer experience a long time gap between diagnosis and initial treatment. GI MDC PROGRAM QUALITY MEASURES: • All patients diagnosed with GI cancer are evaluated by their entire medical team in one visit. To help shorten this lag time, a Gastrointestinal Multidisciplinary Clinic (GI MDC) dedicated to gastrointestinal cancers was implemented in • Patients are contacted within two days of referral, and communi- January 2010 and GI Nurse Navigator, Coralyn Martinez, MSN, RN, cation to referring and primary care physicians with the patient’s OCN, was hired to focus on GI cancer patients and their care. The scheduling plan is completed within two days. purpose was three-fold: 1. Increase the likelihood of evidence-based treatment. • Patient’s cancer stage is established within five days of referral. • Patients are evaluated within 10 calendar days of referral and have 2. Improve communication among the treatment team. 3. Increase positive patient experience in their cancer journey through a clear treatment plan at the end of their clinic visit. • Patients are offered appropriate treatment in accordance with enhanced coordination of all medical services. NCCN guidelines regarding all three disciplines: Medical Oncology, Radiation Oncology and Surgery. What is a Gastrointestinal (GI) Nurse Navigator? Team A dedicated GI nurse navigator is a registered nurse with specific training in GI GI MDC Physician Leader: Larry McCahill, MD, cancer. These cancers include colorectal, pancreatic, esophageal and gastric FACS-Surgical Oncologist cancers. In addition, GI cancer can also encompass the hepatobiliary system, such GI Nurse Navigator: Coralyn Martinez, MSN, RN, OCN as liver, bile duct and gall bladder cancers. This nurse is oncology certified and Quality Specialist and Auditor: Mary May, MS, RN works closely with the patient to coordinate efficient care with multiple specialists. Program Analyst: Wendy Taylor The nurse navigator serves as the primary contact between patients and specialists and works to maximize treatment outcomes and patient satisfaction. With special thanks to all members of the steering committee, and participation of all physicians, nurses, research staff and ancillary staff participating in the GI MDC Program. 28 Report to the Community Special Focus: Pancreatic Cancer GI Nurse Navigator at The Lacks Cancer Center at Saint Mary’s is GI Nurse Navigator of the Year While a GI Nurse Navigator coordinates care for all patients diagnosed with GI cancer, this section highlights pancreatic cancer, Coralyn Martinez, MSN, RN, OCN, of The Lacks the #1 diagnosis in The Lacks Cancer Center Cancer Center of Saint Mary’s, was recently named GI MDC. Nearly 40 patients with pancreatic the National GI (gastrointestinal) Navigator of the cancer were seen at The Lacks Cancer Center year by the Academy of Nurse Navigators at its 2011 in 2010 and 64 have been seen YTD 2011. conference in San Antonio, Texas. KEY FINDINGS: Average Length of Stay in the Hospital After Surgery (Fig. 1.4) • The GI MDC consistently meets or exceeds its goals, with very • National Average: 16.5 days few exceptions. • The Lacks Cancer Center: 11 days • Patients are now contacted by the GI Nurse Navigator generally • Staging evaluations are almost uniformly completed within five business days of referral. • The time between referral and when cancer treatment begins averages 15 days in 2011, down from 22 days in 2010. (Fig. 1.1) Days Fig. 1.1 Average Calendar Days from Referral to Cancer Treatment Initiation 25 20 15 10 5 0 Goal is 25 calendar days 22.3 17.1 Q1 2011 14.5 15.0 13.9 Fig. 1.4 The Lacks Cancer Center Median Length of Stay 15 Days the same day as referral. 10 Mean Hospital LOS Benchmark: 13.7–16.5 days (Johns Hopkins University and National Inpatient Sample) 16.5 11.0 13.7 5 0 The Lacks Johns Cancer Hopkins Center 2010 University 1984–1999 National Inpatient Sample 1996–2006 Key Findings Average Operation Time Q2 Q3 2010 YTD 2011 2011 2011 Quality Measures: Timeliness, Efficiency of Health Care Delivery • Cancer staging studies are more than 90% compliant with NCCN staging guidelines. • Physician clinical evaluations are completed within less than ten (10) days of referral, with a 2011 average of 6 days. (Fig. 1.2) Benchmark 324–400 minutes* Goal Less than 600 minutes The Lacks Cancer Center 414 minutes Median Estimated Blood Loss During Surgery Benchmark 750–1200 ml* The Lacks Cancer Center 700 ml Percent of Intra-operative Blood Transfusions Goal is 10 calendar days 10 Days Fig. 1.2 Average Calendar Days Until Patient is Seen in GI MDC Clinic 5 6.5 5.0 6.4 7.3 Benchmark35%** The Lacks Cancer Center 6.0 28% *Indiana University and Johns Hopkins University **Johns Hopkins University 0 Q1 2011 Q2 Q3 2010 YTD 2011 2011 2011 Quality Measures: Timeliness, Efficiency of Health Care Delivery QUALITY AND CONTINUOUS IMPROVEMENT • The GI MDC continues to meet its goal of having patients seen by Fig. 1.3 Patients Seen by all Required Physicians at First Clinic Visit Percent all necessary physicians in one clinical visit. (Fig. 1.3) 100 80 60 40 20 0 The clinic has worked closely with the recommendations of a National Institute of Health Expert panel statement to incorporate the 41 recommendations for centers conducting pancreatic surgery. Currently, 83 Q1 2011 83 94 93 87 Goal was 70% in 2010; 80% in 2011 The Lacks Cancer Center meets all 41 recommended process, structure and quality measures. Q2 Q3 2010 YTD 2011 2011 2011 Quality Measures: Patient Centeredness, Efficiency Report to the Community 29 THE COMPREHENSIVE BREAST CENTER: REDUCING RISK, SAVING LIVES The Comprehensive Breast Center at The Lacks Cancer Center opened offered an appointment in three days or less, often with same-day its doors in 2011. The only facility in West Michigan of its kind, the access (Fig. 1.2). Patients with a new diagnosis of breast cancer Comprehensive Breast Center brings the entire scope of breast care are scheduled with our fellowship-trained breast surgeons in five under one roof. business days or less. A multidisciplinary approach within one dedicated cancer center greatly enhances the patient’s experience from initial diagnosis of breast cancer or disease through recovery and ongoing care. 3.Second Opinion Clinic. For women newly diagnosed or with recurring breast cancer, this is the opportunity to meet with our surgeons to ensure awareness of all the treatment options available. It’s a thorough diagnosis and treatment plan from the entire breast And as one of 30 hospitals nationwide — and the only in West cancer team, including breast surgeons, oncologists, radiation Michigan — recognized as an NCI Community Cancer Centers (NCCCP) therapists and subspecialists. It includes a consultative review of Program, we are working within a network of hospitals across the your mammography findings and/or pathology slides, followed by country to reduce health care disparities, improve access to clinical a personalized treatment recommendation developed by our team trials, improve overall quality of care, and link with national computer of specialists. networks that support research. The centers also work to improve survivorship, palliative care and patient advocacy while allowing patients to experience exceptional care close to home. At the Comprehensive Breast Center, the medical staff is dedicated to being the best in the region. In the past year, the center has received three national accreditations that recognize achievement in reaching 4.Swift recovery. At the Comprehensive Breast Center, 100 percent of the breast biopsies are minimally invasive (Fig. 1.3), compared to a national average of 85 percent. We focus on breast conservation, which provides the least invasive surgery when possible (Fig 1.4). In 2010, there were no unplanned overnight stays for those patients having less invasive surgery such as lumpectomy. the highest standards in: An average of three percent of women who receive a MammoPlus® • Timeliness of care mammogram — the Comprehensive Breast Center’s exclusive • Quality of all breast imaging • Outstanding programmatic components which patients may access WHY IT MATTERS With these national achievements and the expert and compassionate delivery of care, patients have peace of mind knowing that they are in the best possible place. Specifically, this means that patients have access to: 1.Experience. Patients of the Comprehensive Breast Center at Lacks mammogram service that includes digital mammography and a risk assessment to determine a woman’s risk for developing breast cancer — prove to be at high risk for developing breast cancer. These patients are offered access to our High-Risk Clinic, where patients receive extensive evaluation, counseling and a custom surveillance plan to reduce risk. To decrease the barriers for underserved and underinsured women, the Comprehensive Breast Center has been the recipient of two grants from The Susan G. Komen for the Cure – West Michigan affiliate. These grants help underinsured and underserved women receive the have access to two fellowship-trained breast surgeons — surgeons care every woman needs. Along with grant funding, the center has with additional, specific training in breast surgery and breast cancer provided screening for women through the Breast and Cervical Cancer care unmatched by anyone else in the region. Control program for more than 16 years at no cost to the patient. 2.Timeliness with a focus on the patient. Leading the region, the average time from initial screening to diagnostic mammogram is 3.5 Thousands of women have been screened and provided with access to all programs offered at the Center. days (Fig. 1.1). Plus, patients requiring minimally invasive biopsy are Screening Mammogram vs. Diagnostic Mammogram: What’s the Difference? 30 A screening mammogram is an X-ray to screen women who are at cancer, a more in-depth diagnostic mammography is done utilizing risk of developing breast cancer, but have no symptoms. Women 40 more views of the breast from various angles. The mammography and older are recommended to get a screening mammogram once a technologist may magnify a suspicious area to produce a detailed year. If a screening mammogram reveals signs or symptoms of breast image that can help the physician make an accurate diagnosis. Report to the Community What is a Breast Nurse Navigator? This dedicated nurse navigator is a registered nurse with specific certified nurse for breast cancer treatment navigation, and 2) Breast training in breast health and breast cancer. She is oncology certified Health Navigation for breast imaging, callback navigation, navigation and serves as the primary contact between patients and specialists, from diagnostic imaging to biopsy, benign disease navigation and working to maximize treatment outcomes and patient satisfaction. navigation from MammoPlus® to Risk Analysis. Breast Health Navigation includes nurses and other medical professionals with imaging/ At the Comprehensive Breast Center, we believe that navigation has diagnostic/high risk experience. two essential levels of complexity: 1) Nurse Navigation by an oncology Fig. 1.1 Average Days Between Screening Mammogram and Diagnostic Mammogram Fig. 1.4 Breast Conservation Surgery Rate for Eligible Patients 102 100 20 15 96 10 3.5 5 0 National Average Comprehensive Breast Center at The Lacks Cancer Center Fig. 1.2 Average Days Between Diagnostic Mammogram and Needle/Core Biopsy Days 20 19 10 5 3 0 National Average Comprehensive Breast Center at The Lacks Cancer Center Fig. 1.3 Percent of Patients Who Received a Needle/Core Biopsy Rather Than Open Biopsy 120 Percent 100 100 (actual) 80 60 40 94 92 90 88 90 86 84 National Average Comprehensive Breast Center at The Lacks Cancer Center WE BELIEVE THAT NURSE NAVIGATION HAS TWO ESSENTIAL LEVELS OF COMPLEXITY: 25 15 100 (actual) 98 20 Percent Days 25 50 Nurse Navigation — usually a nurse with oncology experience Breast Cancer Treatment Navigation Breast Imaging Callback Navigation, Navigation from Diagnostic Imaging to Biopsy, Benign Disease Navigation and Navigation from MammoPlus to Risk Analysis Breast Health Navigation — nurses or medical professionals with imaging/diagnostic/high risk experience 20 0 National Average Comprehensive Breast Center at The Lacks Cancer Center Report to the Community 31 250 Cherry Street Grand Rapids, MI 49503 1.877.LACKSMI (522.5764) www.lackscancercenter.org