Queensland Prostate Cancer News - Prostate Cancer Foundation of

Queensland Prostate Cancer News
The newsletter of the Queensland Chapter of the Prostate Cancer Foundation of Australia
published monthly by Cancer Council Queensland
http://www.pcfa.org.au
[email protected]
November 2008
Cancer Council Helpline: 13 11 20
Two major events this month are set to raise awareness of prostate cancer. November becomes Movember
for males, or ‘Mo Bros’, within the community who may have often wondered how sophisticated they’d look
with a hairy upper-lip, or may have forgotten since last year, and can now do it to raise some serious funds to
improve understanding of, and assist with research into men’s health issues. What a great excuse to cut
down on shaving time, and a mo may just tickle your partner’s fancy! With beginnings in Australia,
Movember is now celebrated in the USA, Canada, UK, Spain, New Zealand and Ireland. Go to
www.movember.com for further details.
The other event is the Prostate Cancer Foundation of Australia’s (PCFA) first National Conference that will
be held on the Gold Coast mid-month. The PCFA will host the conference that has the theme Supporting
Quality of Life. Details of how you can be part of this inaugural event can be found at the end of the PCFA
Report in this issue of QPCN or by going to www.prostate.org.au.
Wishing you low PSA’s and good health,
Editor: John Stead.
CALENDAR 2008
Run for a Cure – Clip for Cancer – Dress Down Day – any time during the year
Relay for Life is to be held in 41 locations across Queensland in 2008.
Phone 1300 65 65 85 or visit www.cancerqld.org.au to register
Nov
Movember
5-7 Nurse of the Year – State Finals
7 Nurse of the Year – Gala Ball
14-15 Cancer Council Queensland Support Group
Forum
15-17 Inaugural PCFA National Conference
“Supporting Quality of Life”, Gold Coast
15 Hamilton Island Prostate Cancer Awareness
Event
Nov
Dec
20 The Australian Prostate Cancer
Collaboration Meeting – Brisbane
Convention Centre
16-21 Aust Health & Medical Research Congress,
Brisbane
16-22 National Skin Cancer Awareness Week
19-21 COSA Scientific Meeting, Sydney
1 William Rudder Memorial Lecture – Dr
John Yaxley
In this issue
7
2
3
5
7
Resources: Web Links,
Affiliated & Associated Groups
SPOTLIGHT ON Brisbane
Compassionate
Communication – Cate
Crombie
Ross Coco vs Prostate Cancer
Women Secret Weapon in
Prostate Cancer Fight
8 USA President’s Proclamation
9 Robotic Surgery – A
Consumer’s Story
10 PCFA Report
11 Antioxidant Trials
12 Cancer Voices Update
13
14
15
16
Transperineal Prostate Biopsies
Short Cuts
World Cancer Declaration, New
Simple PSA Test
Telling Your Kids About Cancer,
Brisbane Program, Privacy,
Contact Us, Disclaimer
The Queensland Chapter of the Prostate Cancer Foundation of Australia
is grateful for the generous support of Cancer Council Queensland,
including the printing of this newsletter.
The views expressed in this newsletter are not necessarily those of
Cancer Council Queensland.
-2-
Resources
Cancer Council Queensland
Prostate Cancer Foundation of
Australia www.prostate.org.au
www.cancerqld.org.au
A consumer’s view of the experience of diagnosis
and treatment for prostate cancer.
The Cancer Council Helpline
Ph 13 11 20 8am-8pm Mon-Fri
Research to beat cancer and comprehensive
community support services.
Queensland Chapter
www.pcfa.org.au
www.prostatehealth.org.au
Information, patient support materials, and
contacts for advice on living with prostate cancer
in Queensland.
The first stop for newly diagnosed men seeking
information on the disease.
APCC Bio-Resource
Lions Australian Prostate Cancer
www.apccbioresource.org.au
Andrology Australia
The national tissue resource underpinning
continuing research into prostate cancer.
www.andrologyaustralia.org
Andrology Australia is the Australian Centre of
Excellence in Male Reproductive Health.
HealthInsite
Mater Prostate Cancer Research
Centre www.mmri.mater.org.au
www.healthinsite.gov.au
Comprehensive information for those affected by
prostate cancer, including the latest research
news.
Your gateway to a range of reliable, up-to-date
information on important health topics.
Cochrane Library
www.cochrane.org
Australians now have free access to the best
available evidence to aid decision-making.
Prostate Cancer Support Groups in the Queensland Chapter
There are 18 PCSGs in the Chapter with a total membership of approximately 3,100 men.
Peer Support Group
Contact
Phone
Brisbane
Bundaberg
Central Qld. (Rockhampton)
Darwin
Far North Qld. (Cairns)
Gladstone
Gold Coast
Gympie & District
Hervey Bay (Pialba)
Ipswich
Mackay
Maryborough
Northern Rivers (Alstonville)
Sunshine Coast (Maroochydore)
Toowoomba
North Queensland (Townsville)
Twin Towns & Tweed Coast
Whitsunday (Proserpine)
Peter Dornan
Trevor Tuesley
Bill Forday
Peter Harvey
Jim Hope
Geoff Lester
James Stanfield
Norm Morris
Brian Henderson
Len Lamprecht
Ted Oliver
Leoll Barron
Pat Coughlan
Rob Tonge
Len Walker
Merv Albion
Ross Davis
Dave Roberts
07 3371 9155
07 4152 5524
07 4922 3745
08 8932 1923
07 4039 0335
07 4979 2725
07 5545 4235
07-5482 6196
07 4128 3328
07 3281 3656
07 4942 7916
07 4123 1190
02 6622 1545
07 5446 1318
07 4636 3739
07 4778 1137
07 5599 7576
07 4945 4886
The news-sheet for any group should have the meeting details for its neighbouring groups.
Associated Support Groups
Group
Alice Springs
Beaudesert
Capricorn Coast (Yeppoon)
Kingaroy
Contact
Murray Neck
Carmel O’Neill, RN
Jack Dallachy
Robert Horn
08
07
07
07
Phone
8952 3550
5541 9231
4933 6466
4162 5552
Sponsor
Darwin
Beaudesert Health/Gold Coast
Central Qld. (Rockhampton)
Toowoomba/Sunshine Coast
-3-
SPOTLIGHT
ON
Brisbane
The Brisbane Prostate Cancer Support Network – ProstHelp
Brisbane, widely known as Australia’s most liveable city, is also its fastest-growing capital, and the current
culturally diverse population of more than 1.8 million is projected to reach 3.4 million by 2051. The vantage
point of Mt. Coot-tha is part of the Taylor Range that forms a backdrop of hills to the city. Brisbane is the hub
of a transport network bringing produce from a vast agricultural and resource rich hinterland. It’s the third
busiest container port, the fastest growing port, and the leading port for beef and cotton exports (about 50
per cent) in Australia. The industrialised metropolitan area has engineering works, food-processing plants,
shipyards, oil refineries, sawmills, and factories with more than half of the State’s manufacturing capacity.
Oil is piped from wells at Moonie and Roma, which also supply natural gas.
The Brisbane Prostate Cancer Support Group was formed eleven years ago (in February 1997). We later
(in April 2000) decided that ‘Network’ more truly reflected our philosophy than ‘Group’. The main aims were
to fulfil the unmet needs of men who were diagnosed with prostate cancer.
This involved, primarily, educating men and their
partners to be better informed on all aspects of
managing prostate cancer. This brief also
included advocacy when dealing with diagnosis,
treatment
options,
sharing
information,
understanding the impact of side effects of
treatment and lending support to each other.
As we consider prostate cancer to be a family
disease, we encourage partners to be involved at
all levels. In fact, we now realise the great need
for us to recognise and understand the stress
that partners can endure. The Cancer Council
Queensland now convenes a special support
group for partners, a facility which is working
brilliantly.
Our group has meetings once a month, usually
highlighted with an address by a speaker who has
ABOVE: Brisbane Group Convener Peter Dornan
gained skills and has displayed a special interest
with Vicki Mol, the CCQ Support Contact for
in prostate cancer diagnosis, treatment and
Brisbane Support & Partners’ Groups.
ongoing care. These meetings are also an
opportunity for newly diagnosed men to share experiences with members of our group (about 800) and, by
virtue of our Queensland Chapter newsletter, with twenty-one other groups in the Queensland Chapter
(which includes Northern Rivers and the Northern Territory), and potentially with more than ninety other
groups nationally that are affiliated with the Prostate Cancer Foundation of Australia.
We convene on the second Wednesday of each month
at 7.00pm on even months, and at 9.30am on the odd months
in the Auditorium at Cancer Council Queensland
553 Gregory Terrace, Fortitude Valley.
The group have developed a culture of informality and encourage, without prejudice, peer support and
sharing. As such, we make no demands or place any expectations on anybody.
We receive overwhelming support from Cancer Council Queensland and are grateful for their many
resources. The experience of their collective staff enriches us, particularly Suzanne, Margaret, Judy, Sylvia,
Vicki and many others. I make a special mention of the CEO Jeff Dunn, who is always supportive.
-4Spotlight on Brisbane cont.
For me, one of the significant highlights of the group is to appreciate that we have developed the capacity to
introduce a newly diagnosed man and his partner into an environment where they can realise they are not
alone in their dilemma. They can be equipped with the knowledge that other men have previously addressed
this problem and have opened up reliable and valid pathways of action to assist them. They are offered
strategies to assist with the effects of the initial trauma of the diagnosis and to cope with the seemingly
chaotic search of finding a personal treatment plan, having regards to age, general health, status and
aggression of the cancer and the man’s expectations of quality-of-life issues.
As well, he can be directed to the availability of professionals who can advise on all aspects of this disease.
This would range from seeking opinions concerning the diagnosis to planning a treatment program, plus
managing any potential side effects of treatment including psychosocial effects.
In my experience, most men leave the meetings buoyed by feelings of comradeship and support. Here they
can shed the responsibilities and mantle of invincibility accepted by our male social role. They are reminded
that it is OK for men to be seen to be vulnerable and seek assistance. Most importantly, they know they can
approach virtually any member of the group in order to gain information and share experiences.
Many of the men have now become part of a strong administrative team and channel their enthusiasm into
various commitments to increase the effectiveness of the group, such as Spence Broughton, Bill McHugh,
John Ross, Peter Murphy, Fred Travis, Reg Armitage, Ross Gomersall, Lionel Foote (Queensland Chapter
Chair) and John Stead. David Farley, Bruce Kynaston, Graham Torney and Ian Smith have also assisted by
sitting on the Queensland Chapter Council. At present, Ian Smith is the Queensland Treasurer and assists
the Convenor run the Brisbane meetings.
The Brisbane group sends out a monthly newssheet with the Chapter newsletter, Queensland Prostate
Cancer News, to all of its members. We endeavour to keep ourselves at the cutting edge of all matters
involving prostate cancer, as we consider effective communication is imperative.
Towards these aims, Graeme Higgs, the Queensland and Northern Territory Manager of the Prostate Cancer
Foundation of Australia, and his team support us tremendously.
We feel we have a duty to alert the public to be aware of aspects of prostate cancer, so once a year we
convene a Public Awareness Meeting. If you are planning a trip to Brisbane this year, have a look at the
meetings on the forward calendar. This would be a good opportunity to come along and enjoy our fellowship
and catch up on current information.
Finally, by offering these services, we try to provide hope – honest hope. Part of this enlightenment will
evolve automatically, driven by a program suggesting that the man assumes control over his state of health,
that he should learn all he can about his condition, and then share his health management with his medical
practitioners.
Peter Dornan AM. Founder and Convenor.
ABOVE: Peter Dornan addressing a Brisbane group meeting.
-5-
Compassionate Communication
Over many years Dr Marshall Rosenberg, a clinical psychologist from the USA, brought together a number of
communication models which he put into a potent and easy to understand form and called it Compassionate
Communication. This is non-violent communication and is founded on language and communication skills
that strengthen our ability to remain human, even under trying conditions. It contains nothing new – its
content has been integrated into non-violent communication for centuries. Its intent is to remind us about
what we already know; how humans are meant to relate to one another and to assist us in living in a way that
concretely manifests this knowledge. Dr Rosenberg put his communication techniques into a book,
Nonviolent Communication – A Language of Life.
At the September meeting of the Brisbane Prostate
Cancer Support Network, Cate Crombie, an
Effectiveness Training Instructor and Certified Trainer in
Compassionate Non-Violent Communication (NVC),
spoke
about
Dr
Rosenberg’s
communication
techniques and how they can deepen the non-violent
communication process to assist in personal healing,
reconciliation and mediation. Cate is well qualified to
speak on this subject having been a facilitator of
communication courses for over twenty-years. Her
workshops and training are offered in a variety of
settings including corporate training, parenting
workshops in community centres, university programs
and in-service training in the social services sector. In
Brisbane she conducts community workshops at The
Relaxation Centre.
ABOVE: Cate Crombie B.Adult Voc.Ed
So what is compassionate communication or NVC? It’s a
way of interacting that causes us to become aware of what gets in the way of natural giving and receiving to
improve our life and the lives of those around us. It strengthens our ability to receive compassion from
others, to respond accordingly and rethink how we express ourselves and hear others to avoid and/or
resolve conflict. It requires empathy and honesty; perhaps it’s best described as the language of the heart.
The initial focus of NVC is on listening, not
just hearing what others are saying. Being
able to sort out the deeper meaning of
what’s said and interpret the facts and
feelings to get the real story. This puts us
on the same wavelength as those around
us so we can adjust our own dialogue to
reciprocate in a meaningful way. We get
the potential to connect with others so that
everybody’s needs can be heard and met.
It requires observation to grasp the real
feelings, needs and requests contained in
our own and others’ communication. Often
the superficial meaning of what’s said
masks an underlying need or request.
As an example, a conflict often arises
between a married couple where finances
are concerned; who controls the family
budget and signs the cheques? Discussion between the couple inevitably causes friction on both sides so
discussion occurs less-and-less often, but this in turn only increases an unspoken friction between the
couple. She has a need for trust, some autonomy and responsibility. He has a need for protection of the
family’s finances and knowledge of where the money’s going so he can balance the cheque book, credit card
account, etc. If both sides can recognise the feelings and needs of the other, then the conflict will be well on
the way to being resolved.
-6This
example
illustrates
that
communication doesn’t always go the
way we hope it will and it is possible to
miss all the signals until the proverbial
barbwire fence is built. In fact the
gentleman in the picture is to be
applauded because he’s acknowledged
that there’s a problem and he’s taken the
first step to try and uncover its cause.
These situations arise because we often
find ourselves in what might be described
as a “cultural default setting” where the
norm seems to be fault-finding, criticism,
blame, analysing, judging and the ageold game of who’s right. In these
circumstances you need to ask yourself
“Apparently I have done something to upset you.”
“do I want to be right or do I want to be in
this relationship?” Do you want to communicate from the heart or the head?
To avoid these situations we need to have empathy for others and empathy for ourselves. Often
communications are masked to cover our feelings. Outwardly we can sound eager and yet be anxious,
sound happy but be annoyed, sound confident but be confused or seem calm and relaxed but feel nervous
or helpless. Why do we do this?
It’s a strategy to meet the perceived needs of ourselves or others to counter discomfort we think may
eventuate if we are honest about our feelings. We may feel that our/their discomfort could arise from feelings
of exclusion, manipulation, neglect, rejection, betrayal, misunderstanding or that they/you could feel
attacked, used, let down, ignored or cheated.
There’s a universal list of needs that are a starting point for general wellbeing and health. We all have interdependent needs such as acceptance, companionship, respect and understanding (to understand and be
understood). We have health and safety needs which can be physical, psychological, food, shelter, clothing,
exercise, sexual expression, adequate sleep, challenge, enjoyment, relaxation and stimulation. We need
meaning in our lives that can include learning, discovery, hope, challenge, contribution, mourning, selfexpression and authenticity and we all need to be autonomous so that we have choice, freedom,
independence and our own space.
By recognising that these feelings are common to all of us, we are able to shape our strategies to meet the
needs and feelings of others. Feelings experienced when needs are being met could be confidence,
affection, inspiration, engagement, exhilaration, peace, hope and gratefulness. Alternatively, when needs are
not being met it can induce feelings of anger, aversion, fear, annoyance, confusion, disquiet,
embarrassment, vulnerability, sadness, tenseness, fatigue and pain.
By meeting the needs of others in our dealings with them, people are more likely to respond in a positive way
and reciprocate in their dealings with you. Both sides will experience meaningful engagement giving more
effective outcomes.
Yet, there are common pitfalls when dealing
directly with others or discussing a third party
with others. Advice, education, correction and
probing should all be done in a one-on-one
honest way. If sympathising or consoling, avoid
“I know how you feel.” You don’t! Try, “how do
you feel?” Don’t trivialise other’s problems. Do
express your needs clearly. Avoid oneupmanship and name-calling and don’t be
judgemental.
Compassionate communication takes thought
and practice but, with practice, it will come to be
your natural way of communicating. Use your
ears and listen to others, don’t just hear them.
Try and interpret what they’re really saying to get
the complete story. Align your life so that it’s in
harmony with your values and you’ll empower
yourself and those around you.
ABOVE: Cate Crombie: “Use your ears to listen,
not hear.”
-7-
Ross Coco vs Prostate Cancer
th
On Friday 24 October, The Banco Court in Brisbane’s Supreme Court Building was packed with spectators
eager to witness the ongoing case of Ross Coco’s prosecution of prostate cancer. Many notables from the
worlds of business, government, law and academia were subpoenaed to attend the Court and assist with the
proceedings. Following a pre-court briefing, a jury consisting of all present was empanelled and the Court got
down to the serious business of investigating the scurrilous defendant. The investigation included the
launching of a book, 50 Short Cuts, put together by Ross to assist with prostate cancer research and
launched by Professor Ross Young, Executive Director of the Institute of Health and Biomedical Innovation.
Actually, readers of the June 2008 issue of Queensland Prostate Cancer News may recall that Brisbane
Barber Extraordinaire, Ross Coco, was putting together a book of fifty short stories as told by some of his
notable clientele. Ross has been trimming locks for 37-years and the location of his Brisbane “office” has
meant that many of his clients are well-known stock-brokers, judges, barristers, politicians, journalists, high
ranking public servants and the like. Once in Ross’ chair they are captive to his persuasive nature and open
up in unexpected ways.
Ross convinced 50 of them to part with an anecdote that has impacted their lives and has put these into a
book titled 50 Short Cuts. They are not stories about corporate high-flying or finance. They’re personal
recollections, some funny, some poignant, all interesting. They are illustrated by local artists and cartoonists
and written by people who have influenced the fabric of Queensland culture.
All proceeds from the sale of the book will go to
Cancer Council Queensland’s prostate cancer research programs.
This book is a great personal read and/or might make an interesting gift for the reader in your family with
Christmas approaching. The cost is $39.95 plus postage. I recommend that you visit
www.50shortcuts.com.au where you can read three of the stories, see some of the illustrations and get
details of the other 47 inclusions. You can also order it online at this website. Ed.
ABOVE: Ross Coco checks Professor Ian Frazer’s pulse. “If you can develop a vaccine for cervical
cancer, why not prostate cancer?”
Women Key Audience for Prostate Cancer Screening Message
A Canadian survey has revealed women play a large role in getting their spouses to the doctor's office. The
survey, conducted by the Prostate Cancer Research Foundation of Canada, found approximately half of
Canadian men don't make a point of booking an annual doctor's appointment and that a similar proportion of
men admit they have been reminded by a woman to visit a doctor. In addition, an overwhelming 85.3 percent
of females report they've reminded men to get their annual physical.
These findings reinforce that men aren't the only ones that need to be educated about prostate health.
Therefore, public education programs should be developed, specifically aimed at women.
North Shore News – 14 September 2008
-8-
National Prostate Cancer Awareness Month, 2008
A
Proclamation by the President of the United States of America
National Prostate Cancer Awareness Month is an opportunity to underscore our commitment to fighting
prostate cancer and to raise awareness about this highly treatable disease.
Prostate cancer is the second most common type of cancer found in men, and one in six men will develop it
during their lifetime. The cause of prostate cancer remains unknown, but early detection can lead to better
treatment and increase the chances of survival. It is important for men to talk to their physicians about risk
factors, prevention, and preventive screenings.
My Administration remains committed to helping America's dedicated medical professionals learn more
about the cause of prostate cancer and develop new and better ways to combat it. Since 2005, the Cancer
Genome Atlas has studied the genetic sources of all types of cancer. By supporting medical research,
conducting clinical trials, and developing new surgical techniques to help patients recover quickly, the
National Institutes of Health, the National Cancer Institute, and the Centers for Disease Control and
Prevention are helping lead the fight against prostate cancer.
During National Prostate Cancer Awareness Month, we remember those who lost the battle against prostate
cancer, and we pray for their families and friends. We also remember those living with prostate cancer,
celebrate the lives of survivors, and thank all the medical professionals who aid in these victories. By
continuing our fight against this disease, we will make our Nation a healthier and more hopeful place.
NOW, THEREFORE, I, GEORGE W. BUSH, President of the United States of America, by virtue of the
authority vested in me by the Constitution and laws of the United States, do hereby proclaim September
2008 as National Prostate Cancer Awareness Month. I call upon government officials, businesses,
communities, health care professionals, educators, and the people of the United States to reaffirm our
Nation's strong and ongoing commitment to the fight against prostate cancer.
IN WITNESS WHEREOF, I have hereunto set my hand this twenty-fifth day of August, in the year of our Lord
two thousand eight, and of the Independence of the United States of America the two hundred and thirtythird.
GEORGE W. BUSH
The above press release from President Bush was issued at the end of August for use during September,
Prostate Cancer Awareness Month.
Readers of Queensland Prostate Cancer News may have noticed an article on page 16 of the Sept 2008
edition about prostate cancer screening in the USA. In part, the article said the US Preventative Task Force
had recommended that prostate cancer screening be discontinued for men over 74 years of age.
While President Bush makes no direct mention of screening initiatives, the US group ZERO – The Project to
End Prostate Cancer has issued a template “Letter to the Editor” for members regarding screening. The
letter could well apply to Australian men and I reproduce it below. Ed.
Men: The Government Doesn’t Belong at Your Doctor Visit
All men at risk for prostate cancer must be tested annually with no exceptions despite a US Preventative
Task Force (USPFT) Study claiming men 75 and older don’t need to be tested.
The government doesn’t belong at your doctor visit. Every man has the right to know if he has prostate
cancer and then decide with his doctor what, if any, is the best course of action. This study lumps all
men over 75 together, rather than considering that some older men may run marathons or play golf
every day and have a long life still ahead of them.
The study is also incredibly self-serving as many men over 75 have Medicare – where the government
pays for their health screenings. The government needs to find better ways to cut costs than slashing
health-care costs to America’s Greatest Generation.
What may be the most troubling revelation about this study is that the panel is made up of pediatricians,
OBGYN’s and prenatal doctors and no one from the fields of urology or oncology. Any excuse is a good
one for men not to see the doctor and they don’t need another one. Sadly, the government is
encouraging some men to throw away years of their lives.
Get tested. Know the risks. Make your own decisions.
-9-
Robotic Surgery – A Consumer’s Story
A robotic prostatectomy sounds like something H.G.Wells might have dreamt up in one of his more fanciful
moments. In fact “ robotic surgery” is not surgery performed by a robot but performed by a surgeon using a
“robotic platform” to precisely guide micro instruments with hand movements and a three dimensional
screen. Think of the surgeon as a puppeteer! In Australia, robotic surgery using the “da Vinci” robotic system
is currently available in only Sydney, Melbourne and Adelaide. The Royal Brisbane and Women’s Hospital
will be getting a unit in 2009.
A prostatectomy (surgery to remove the prostate) has traditionally been carried out through an open surgical
incision and a number of surgeons who operate this way say that there’s no substitute for fingers when the
delicate task of separating nerves and other tissue from the prostate, prior to its removal, is carried out.
Countering this, the “robotic surgeon” points to the greater magnification of the robotic procedure. It’s less
invasive meaning less blood loss and a shorter recovery time. Urinary and sexual function following the
prostatectomy is about the same for both systems.
The enormous benefit robotic systems will offer in the future is “remote” surgery. It will be possible for a
surgeon in London to operate on a patient in Brisbane or a surgeon in Brisbane to operate on a patient in Mt
Isa, reducing the need for patient travel when specialist-operating procedures are required.
A member of the Central Queensland (Rockhampton) Prostate Cancer Support Group, Lloyd Younger,
travelled to Melbourne for a robotic prostatectomy. He shares his experience below. Ed.
In January 2005, the Red Cross knocked me back when I tried to donate
blood because of a low iron count. This resulted in a number of blood tests,
including a PSA. The first PSA reading was 2.8. By June 2007 my PSA was
3.4 and I was referred to a urologist. Although I had no symptoms, a biopsy
revealed prostate cancer and only being around 50-years of age, treatment
was recommended. The urologist gave me three options, seed
brachytherapy, external beam radiation or a prostatectomy, and suggested I
go home and discuss the situation with my family and also with the local
Support and Awareness Group who offered invaluable assistance.
ABOVE: Lloyd Younger
If I chose surgery, the urologist said I should consider the robotic procedure
as I had a “special” problem. I weighed 140 kilos and the less invasive robotic
operation would greatly reduce my recovery time compared to the large incision that would be necessary for
open surgery.
I chose the robotic prostatectomy and by mid October 2007, I was in Melbourne ready to go.
On the day of the op I was prepped, taken into the theatre and anaesthetised. Five small incisions were
made across my abdomen, one used to force carbon dioxide into the abdominal cavity to expand the “work
area” and the other four for instruments. The instruments were put in place and connected to the da Vinci
robot unit, ready for business. The surgeon was located in the theatre but away from the operating table,
sitting in front of a monitor with his hands operating the robot controls. The prostate was removed, sparing
surrounding nerves and tissue and then placed in a bag and removed through one of the incisions. The
urethra was re-attached to the bladder, an indwelling catheter inserted, the incisions were sutured and I was
back in the recovery room. All this took about four hours.
My hospital stay was two days, with moderate pain and discomfort on the first day, but after that, nothing a
paracetamol couldn’t cope with. My wife and I did some moderate walks during the first two to three days out
of hospital and after that, recovery was swift. After seven days the catheter was removed and I did a walking
tour of the Melbourne Cricket Ground before returning to Rockhampton.
At six weeks my continence was improving (three to four pads per day,) but there was some leakage that the
surgeon indicated could have been because of my weight putting pressure on my bladder. At 13 weeks I was
a one pad per day man. Occasionally a small amount of leakage still occurs if I sneeze or carry something
heavy when my bladder’s full, but I’m walking daily, playing golf, mowing the lawn, etc.
Life’s good and I’ve lost 20 kilos.
Lloyd Younger.
- 10 -
Prostate Cancer Foundation of Australia
Report – Queensland, Northern Territory & NSW (Northern Rivers) Office.
September was of course Prostate Cancer Awareness Month in Australia (and the USA and Canada), and
on every day it seemed like there was either an awareness campaign happening or a fundraiser in progress.
Ross Davis and his group from Twin Towns and Tweed Coast were exceptionally busy manning a wide
range of shopping centre booths throughout the month to spread the awareness word. Many others across
Northern New South Wales, Queensland and the Northern Territory participated in similar events.
th
Graeme Bryce and the Gympie & District Group were out in force at the annual Cooloola 500 on Sunday 14
September, with assistance from Cancer Council Queensland and the Prostate Cancer Foundation of
Australia. This is an event concentrating on men’s health issues and sponsored by the Gympie Cooloola
Rotary Club. The numbers of men and women accessing the new improved PCFA marquee easily exceeded
the 2007 total.
Bob Anderson and other members of the Northern Rivers Prostate Cancer Support Group held a very
th
successful Prostate Cancer Awareness Day in Ballina on Saturday 20 September. I hadn’t been to Ballina
for some time and enjoyed the opportunity to participate.
Closer to home, PCSG volunteers combined
with PCFA staff to spread the word to the
crowd attending the Wallabies versus All
Blacks game at Suncorp Stadium on Saturday
th
13 September. (Pity about the game’s result
though!)
th
Saturday 13 was a grand day for fundraising.
Gun workers at the Port of Brisbane Caltex Oil
Refinery, who are rewarded with bonus
payments for working safely during periods of
dangerous activity, donated twelve thousand
dollars of their bonuses to PCFA. These guys
get inside the refinery’s heating tubes and
repair them which is hot, dirty and very
dangerous work. Their donation is greatly
appreciated.
ABOVE: “Hands Up Those Who Know About Prostate
Cancer”. Caltex workers show their support for prostate
cancer awareness and research programs.
Before that fundraiser there was another equally important event. The annual Bridge-to-Brisbane run
conducted by The Courier-Mail raised over four and a half thousand dollars through the valiant efforts of staff
members from Live Life Retirement Homes. Managing Director, Michael Fallon, is to be congratulated for
the coordination of his staff and assistance during this event.
ABOVE: Staff from Live Life Retirement Homes with
Queensland Premier Anna Bligh (third from left).
Old friends from the Christian Motorcyclist
Association (CMA) and new friends from the
Redland Bay Chapter of the Ulysses
Motorcycle Club also got into the fundraising
act through a massive turnout in the annual
South-East Queensland Blue Ribbon Ride. TJ
from CMA organised more than 220 riders in
an event that raised over$2,000. As with last
year, this was also an awareness-raising event
with survivor Ross Gomersall relaying his
message about “surviving cancer with a sense
of humour.” Despite the unseasonably hot and
humid weather, everyone enjoyed themselves
and the sound of close to 200 bikes thundering
down the road had to be heard to be believed!
- 11 th
Finally, 26 September saw the inaugural Australand Corporate Rugby Tens conducted at Ballymore. This
very slick event saw a round robin rugby tens format conducted by competing teams from the real estate
world. Reini Otter from Australand provided the underwriting sponsorship money and Ryan Molloy and John
Slater, both from CB Richard Ellis, provided the organising prowess. For the record Savills (the Savills’
Sledgehammers) reigned supreme after routing CB Richard Ellis (Leprechauns), Knight Frank (Lions), and
Jones Lang Lasalle (Crusaders). With pledges still coming in the amount raised has already exceeded
$13,000, which for a first time event is truly awesome!
Internally the staff (both paid and unpaid) in the Queensland office have had a punishing schedule that will
not ease as we head to National Conference, so we do hope everyone will come! Don’t forget that November
is Movember and what could be better than showing-off your Mo at the conference. Bookings for the Support
Quality of Life National Conference can be made online at www.prostate.org.au or by phoning freecall 1800
668 137. The website will also provide you with full conference program details and please remember, there
are special reduced rates for Prostate Cancer Support Group members.
Graeme Higgs
Antioxidant Trials Get Underway
In the July 2005 issue of Queensland Prostate Cancer News we reported that Greg Jardine of Dr Red
Nutraceuticals had developed a juice concentrate that had achieved a 100 per cent kill rate of three types of
prostate cancer cells. The work, carried out at the University of Sydney Prostate Cancer Research Centre,
was only done in-vitro with no testing on animals or humans.
A follow-up story in the February 2007 QPCN noted that an enhanced product had been produced, based on
powerful antioxidants found in blueberries and other botanicals, which outperformed the original formulation
and was about to undergo animal trials. If the results were positive the door would be open for human trials
to be conducted at a future date.
This is now about to happen. 72 men who have been diagnosed with prostate cancer at the Wesley Hospital
will be given the antioxidant formulation prior to receiving other treatments such as surgery, radiotherapy or
hormone therapy. Brisbane urologist Dr John Yaxley will supervise the trials. The 72 men will likely be
selected by the end of the year and initial results of the trial will be available in 2009.
In laboratory studies the antioxidant formulation reduced the size of tumours by 25 per cent in 10 days.
Details of Dr Red Nutraceuticals can be seen at www.drred.com.au. Ed.
Agent Orange Link Found
Vietnam veterans who were exposed to Agent Orange are much more likely to get prostate cancer, a new
study has found.
It is the first time the toxic defoliant sprayed during the Vietnam War has been linked to the most common
cancer in men and the second-biggest cancer killer.
The eight-year study of 13,000 veterans by the University of California’s Davis Center found twice as many
men exposed to Agent Orange developed prostate cancer as veterans who were not exposed. They were
also diagnosed at a younger age and their cancer was nearly four times more likely to spread.
More than 75 million litres of Agent Orange were sprayed to defoliate the jungles of Vietnam. It was later
banned. The Sun-Herald 10 August 2008
NATIONAL PROSTATE CANCER CONFERENCE
SUPPORTING QUALITY OF LIFE
Crowne Plaza Hotel, Royal Pines Resort, Gold Coast.
15-17 November 2008.
Phone 1800 66 81 37, or visit www.prostate.org.au for details.
- 12 -
Update – September 2008
Annual General Meeting
The first Annual General Meeting of CVQ was held on 14th August 2008.
The keynote address was presented by Danielle Tindle, a young survivor of Hodgkins Lymphoma. Danielle
did not recover from the first round of chemotherapy and had to undergo a previously untried chemotherapy
followed by a stem cell transplant to survive. Danielle spoke on her experience from a young person’s point
of view. Her talk was both informative and inspiring, and what she has accomplished in a very short time is
truly remarkable.
President Leonie Young presented the Annual Report, highlighting the substantial success in achieving most
of the goals for the first year announced at the launch on 29th July 2007. It has been a team effort to get to
this point, with a great deal of help from the Cancer Council Queensland. CVQ is extremely grateful for their
financial and practical support that has been invaluable.
Working parties have been established relating to advocacy, communications, policy, and sponsorships and
grants. We have published three issues of our newsletter, have started on a series of fact sheets, and
continue to improve our website. The policies and position statements which have been developed include
our Code of Ethics, Media Relations, Privacy, the Patient Travel Subsidy Scheme, Risk Management, eHealth, a Guide to Nominating to be a Consumer Representative, and our Expenses and Payment Policy.
Public Forums have been held in Townsville, Rockhampton, Brisbane, the Gold Coast, Emerald and the
Sunshine Coast. Since advocates must be knowledgeable and confident to play an active role, CVQ runs
advocacy training courses for its members. Currently our members have key roles on committees of Cancer
Australia, the Cancer Council Queensland, Queensland Health, the CanNet and EdCan projects, of specific
cancer bodies, eg colorectal, breast and prostate cancer, and of local health services, eg the Central Area
Cancer Network.
The Management Committee elected for the coming year comprises:
• President - Leonie Young
• Treasurer - Jenny Schofield
• Secretary - Jane Poynts
• Vice President - Aurilea Augustine (a new fourth position approved by the meeting).
William J Toner and Associates, Tewantin, have agreed to be our auditors for the coming year.
Survivorship
CVQ is participating in a Survivorship Program Reference Group that is developing a new program at the
Cancer Council Queensland - ‘Surviving and Thriving - Moving on After Treatment.’ This project is targeting
the psychosocial needs of cancer survivors following completion of “active” cancer treatment through a
proposed Survivorship Plan shared by the patients and their GPs. Also, if patients take their Survivorship
Plan with them when travelling, they would have all their relevant details on hand to inform health
professionals wherever they may be. The initial cancers chosen are breast, lung and prostate. It is
recognised that the Survivorship Plan would need to be available in an electronic form.
Approval of drugs and medical services
Incoming correspondence on medical services (eg. the location of radiation treatment facilities) and
pharmaceutical issues (eg. the listing of anti-cancer drugs on the Pharmaceutical Benefits Scheme) has
confirmed the need for the CVQ position statements on advocating for drugs and medical services. These
statements should guide all CVQ advocates in their roles. CVQ has welcomed the recent improvements to
the Australian system for approving therapeutic goods, including access to information on regulatory
processes, approved products and consumer medicines. It is understood that consumer representatives will
serve on all committees and advise on the effects that the matters under consideration will have on people’s
daily lives.
- 13 CVQ Update cont.
Community Consultation
Another successful public forum. Attendance at the Sunshine Coast Forum in Maroochydore on 16th
September 2008 rewarded those good folk who organised it. As usual, there were some particular issues
that may have benefited from individual advocacy, such as might be provided by members of the Combined
Advocacy Groups Queensland. The broader issues raised at the Sunshine Coast Forum were similar to
several of those brought up at other forums. This will help CVQ establish priorities and optimise the use of its
resources when advocating for resolution of the issues.
Membership
More than 200 people wanting to add their weight to our advocacy, to become consumer representatives
generally or advocates in their own communities, or to offer their services, have now become members of
CVQ. CVQ is delighted with this great show of support from the community, and, in turn, is considering how
best to support their initiatives and involve them in CVQ activities.
New Concepts Symposium (AGITG)
A CVQ Advocate on the Consumer Advisory Panel of the Australasian Gastro-Intestinal Trials Group
(AGITG) attended its 10th Annual Scientific Meeting in September. The 300 or so registrants were primarily
chemotherapy and radiation oncologists, colorectal and other speciality surgeons, oncology nurses, drug
companies and Australian and international researchers. It was noted that progress in treatment has been
made and quality of life issues in both research trials and treatment outcomes are gaining recognition. The
New Concepts Symposium was of direct interest and relevance as new research proposals were presented
for which the Consumer Advisory Panel provides an opinion/review on funding requests.
In this regard, the Cancer Council and Cancer Voices in NSW have developed a set of criteria and
associated guidelines to identify and adequately describe measurable public values that can be used by
appropriately trained lay persons to rate research funding applications.
Our Contact details:
Phone: 0401 091 365 (we will call you back)
Email: [email protected]
Website: www.cancervoicesqld.org.au
Transperineal Prostate Biopsies
The St. Vincent’s Clinic, part of the St. Vincent’s Prostate Cancer Centre in Sydney, is performing prostate
biopsies via a transperineal approach. Traditionally, a transrectal approach (biopsy needles inserted through
the rectum) is used to sample the prostate for the diagnosis of prostate cancer. This is often done under a
local anaesthetic with patient awake. This method is quick, easy to perform and well samples the peripheral
areas of the prostate. A transperineal approach is done under a general anaesthetic and uses a grid
attached to an ultrasound machine that allows precise systematic biopsies. As this method is done with the
patient asleep, a larger number of biopsies can be performed, and due to the way the needles are placed
into the prostate (through the perineum, the area between the scrotum and anus, instead of the rectum), the
anterior areas of the prostate are better sampled.
To date 400 transperineal biopsies have been performed by Assoc. Professor Stricker and Dr Phillip
Brenner. The results show excellent cancer detection rates in these anterior zones whilst maintaining
detection rates in the peripheral zones. Thus far only one patient has required hospitalisation for infection.
This is an extremely low infection rate and proves that this approach is safe and effective, especially in the
detection of cancer in areas traditionally difficult to sample with a transrectal approach.
The results of the transperineal biopsies were well received at the Urological Society of Australasia State
Meeting as well as at the Annual Scientific Meeting held in Hong Kong earlier this year.
The Lifebuoy Issue 2,2008
- 14 -
Short Cuts
Prostate irradiation raises long-term risk of colon cancer September 3, 2008 NEW YORK (Reuters
Health) – Data from the Geneva Cancer Registry shows an increased long-term risk of colon cancer after
external radiation therapy for prostate cancer. “The risk of second cancer after irradiation, although probably
small, needs nevertheless to be carefully monitored,” the study team concludes in a report in the September
st
1 issue of the International Journal of Cancer. 2008;123:1141-1145.
Survey finds causes of cancer little understood Aug 26, 2008 GENEVA (Reuters) – People in rich and
poor countries alike have faulty understanding of what causes cancer and need better education on how to
ward off the disease, according to an authoritative report issued on Wednesday. The report, based on a
survey sponsored by the International Union Against Cancer (UICC) of nearly 30,000 people in 29 countries,
was released at the start of a four-day World Cancer Congress in Geneva.
Regular NSAID use may reduce PSA levels September 8, 2008 NEW YORK (Reuters Health) – Regular
use of non-steroidal anti-inflammatory drugs (NSAID’s) is associated with reduced levels of prostate-specific
th
th
antigen (PSA), according to a report in the October 15 issue of Cancer, issued online September 8 .
Prostate cancer diagnoses up, deaths down: study ABC Online 15/09/2008 – A major study of prostate
cancer patients has found more men are being diagnosed with the disease, but fewer are dying from it. The
study in the Medical Journal of Australia analyses rates of prostate cancer in New South Wales since 1972.
The study’s lead author, David Smith from the Cancer Council, says the death rate from prostate cancer has
fallen by about two percent per year since the early 1990’s.
Research spotlights high Hunter prostate cancer rate ABC Online 22/09/2008 – Newcastle University
Researchers are hoping to discover why the Hunter has the highest rate of prostate cancer in New South
Wales.
Severe psychological distress common in long-term cancer survivors September 23, 2008 NEW YORK
(Reuters Health) – Long-term survivors of adult cancers are significantly more likely than the general adult
population to have psychological distress severe enough to cause moderate to serious problems functioning
in social, work and school situations. That’s according to survey findings reported Tuesday at the American
th
Society for Therapeutic Radiology and Oncology’s 50 Annual Meeting by Dr. Karen Hoffman, a radiation
oncologist at the Harvard Radiation Oncology Program in Boston.
Starting hormone therapy soon after PSA doubles after radiation has benefits September 24, 2008
NEW YORK (Reuters Health) – Results of a study indicate a significant benefit to initiating hormonal therapy
sooner rather than later in men with early prostate cancer who experience a rapid doubling of their prostatespecific antigen (PSA) level within six months of radiation therapy. This study, the investigators say, helps to
further refine the role of PSA doubling time in predicting which patients may benefit from androgen
deprivation therapy (ADT) for biochemical failure and which may be “expectantly observed” and spared the
toxicity of hormonal therapy. The study reported the findings Tuesday in Boston at the American Society for
th
Therapeutic Radiology and Oncology’s 50 Annual Meeting.
Increasing BMI may impact choice of prostate cancer treatment September 24, 2008 NEW YORK
(Reuters Health) – Obese patients with prostate cancer appear to be more likely to receive nonsurgical
treatments than their normal weight counterparts, research shows. Urology 2008;72:406-411.
Above information sourced from Cancer Daily News
- 15 -
The World Cancer Declaration
A call to action from the global cancer community
Last August, the Union Internationale Contre le
Cancer held the UICC World Cancer Congress
2008 in Geneva, Switzerland. On 31 August 2008,
the Congress adopted the World Cancer
Declaration 2008 which set out steps to slow, and
ultimately reverse, the world-wide growth in
deaths from cancer. The Declaration builds on the
Charter of Paris of February 2000 which was the
first effort to mobilise the global cancer community
and which was followed by the original
Declaration formulated at the World Cancer
Congress in Washington DC in July 2006.
•
•
•
The UICC represents more than 300 member
organisations from over 100 countries and the
Declaration 2008 sets cancer control targets to be
achieved by 2020. These need to be achieved to
fulfil the Declaration’s aims. Areas included are a
health policy, cancer prevention and early
detection, treatments and research.
•
•
The 2020 targets are:
• Sustainable delivery systems will be in
place to ensure that effective cancer
control programs are available in all
countries.
• The measurement of the global cancer
burden and the impact of cancer control
interventions
will
have
improved
significantly.
• Global tobacco consumption, obesity and
alcohol intake levels will have fallen
significantly.
• Populations in the areas affected by HPV
and HBV will be covered by universal
vaccination programs.
•
•
Public attitudes towards cancer will
improve and damaging myths and
misconceptions about the disease will be
dispelled.
Many more cancers will be diagnosed
when still localised through the provision
of screening and early detection programs
and high levels of public and professional
awareness about important cancer
warning signs.
Access to accurate cancer diagnosis,
appropriate cancer treatments, supportive
care, rehabilitation services and palliative
care will have improved for all patients
worldwide.
Effective pain control measures will be
available universally to all cancer patients
in pain.
The number of training opportunities
available for health professionals in
different aspects of cancer control will
have improved significantly.
Emigration of health workers with
specialist training in cancer control will
have reduced dramatically.
There will be major improvements in
cancer survival rates in all countries.
The UICC has taken responsibility for preparing a
report every two years on the progress made
towards achieving the 2020 targets. These reports
will be presented at the biennial World Cancer
Congress.
Simple Test Could Administer Results in a Matter of Minutes
A finger prick prostate cancer test was launched this week in the UK and has the ability to assess a man’s
PSA level in just 10 minutes. This new test, called PSAWatch, requires only a small drop of blood to analyse
using a portable machine, eliminating the need to send blood to a laboratory to be evaluated.
“This test will be invaluable for patients who have active surveillance of their PSA levels or for patients who
need regular monitoring of disease progression or success of treatment,” said Dr Tim Larner, consultant
urologist at Brighton and Sussex University Hospital’s NHS Trust. “For these patients, any delay can cause
extreme anxiety and unnecessary distress.”
Press Association 5 October 2008 Lunch-hour Test for Prostate Cancer - Zero
Telling Your Kids That You Have Cancer
Of the estimated 1.4 million adults in the United States who will be diagnosed with cancer this year, 25 per
cent will have a child 18-years or younger. For these parents, in addition to worrying about their own well
being, many will wonder about how and what to tell their children about their cancer and their treatment. To
help address these and other concerns, Dana-Farber Cancer Institute in Boston developed the Family
Connections Program, which provides supportive resources for children, guidance, online support and
information for parents with cancer. Click the link to the program’s free website, www.danafarber.org/familyconnections Cancer Daily News 30 September 2008
Brisbane PCSG – 2008 meeting program
Cancer Council Queensland, 553 Gregory Tce, Fortitude Valley
Mornings at 9:30am (odd months)
12-Nov
Evenings at 7:00pm (even months)
Exercise & Fitness for Prostate Cancer. Dr Dennis Taaffe
& Helen Luery
10-Dec
Proton Therapy – A Consumer’s Story. Wayne Murphy.
Christmas Party
Partners Program
Christmas Function. 6.00pm. 26th November, 2008.
Important privacy information
You have received this newsletter because you have provided your contact details to Cancer Council Queensland or to a Prostate
Cancer Support Group (PCSG). The primary purpose of collecting your contact details was to enable support, resources and
information to be offered to you as a person affected by or interested in prostate cancer. Your contact details are held in the local office
of Cancer Council Queensland. Cancer Council Queensland ensures compliance with the Privacy Act, and does not use or disclose
your details except as you might reasonably expect. You may access your details and you may request that we correct or amend (ie.
update) or delete your details.
If you are a member of an affiliated PCSG you will initially receive by post your local group’s news-sheet, the monthly Queensland
Prostate Cancer News (QPCN), and the national quarterly Prostate News. You may also receive other communications from time to
time such as advice on upcoming symposia, news or surveys from research establishments, details of open clinical trials, and guidelines
being reviewed. You may ‘opt-out’ of any of these services at any time, ie. you will no longer receive any material of that type, by letting
us know your wishes. QPCN is available online at http://www.pcfa.org.au/qld/newsletter.htm.
Should you receive multiple copies, please let us know which address(es) to remove from which mailing list(s).
Contact Details for both the QLD CHAPTER OF PCFA and Qld Prostate Cancer News
Mail: c/- Cancer Council Queensland, PO Box 201, Spring Hill Qld 4004
Email: [email protected] Phone: via The Cancer Council Helpline 13 11 20
DISCLAIMER
Council (ie. the Council of the Queensland Chapter) accepts no responsibility for information contained in this
newsletter. Whilst the information is presented in good faith, it may contain information beyond the knowledge of
Council and therefore cannot be taken to be the opinion of Council.
The information in this Newsletter is not intended to be a substitute for professional medical advice, diagnosis, or
treatment. Always seek the advice of your qualified health provider with any questions you may have regarding a
medical condition. Never disregard professional medical advice or delay in seeking it because of something you have
read here.
LAST WORD
Mrs Smith accompanied her husband to the doctor’s office to get his pathology results. On arrival the doctor
took her aside and explained there’d been a terrible mix up. Her husband’s biopsies had gone to the
laboratory on the same day as another Mr Smith’s, and the lab didn’t know which was which. “The results are
either bad or terrible,” said the doctor.
“One tested positive for Alzheimers and the other for AIDS. The tests are extremely expensive so the
government won’t pay for new ones, plus there’s the problem of getting new biopsy samples.”
“What shall I do?” said Mrs Smith.
The doctor replied, “The pathology lab recommends that you drop your husband off in the middle of town. If
he finds his way home, don’t sleep with him.”