“From a Tiny Acorn A Mighty Oak Will Grow”

Long Beach Memorial
presents
“From a Tiny Acorn
A Mighty Oak Will Grow”
Fostering Excellence in
Pediatric Palliative Care
December 3-4, 2012
Course Director
Joetta Wallace, MSN, CHPPN
Course Description
Palliative care is the an interdisciplinary approach to assuring
physical, social and spiritual comfort for patients with serious,
chronic conditions, focusing on living as well as possible with the
underlying condition. This very exciting conference has been
designed by clinicians from all the pediatric palliative care
programs in Southern California to demonstrate and further
investigate approaches to incorporating concepts of palliative
care into the daily care of all clinicians. Doctors, nurses, social
workers, chaplains, dieticians, case managers, pharmacists,
respiratory, physical, occupational and speech therapists and all
other members of the healthcare team will join experts in the
field, along with an internationally recognized keynote presenter,
in identifying ways to assist these very special patients and their
families toward a cure of their disease, to better live with the
condition or if necessary, to die peacefully in a dignified
supported fashion surrounded by loved ones.
Course Objectives
After attending this course, participants should be able to:
1. Discuss the past and future of palliative care for children
and their families
2. Explore challenges to care for children as advancements
in technology abound.
3. Assure excellence in interdisciplinary meetings with
patients and families.
4. Recognize potential boundaries necessary in
healthcare today.
5. Identify special considerations required for adolescents
receiving palliative care.
6. Discuss approaches necessary to assure continuum
of care into the community.
7. Differentiate between physician-assisted suicide,
euthanasia, and palliative sedation.
8. Identify concerns addressed by parents regarding their
needs for their children at end of life.
9. Discuss the potential life-long challenges of the surviving
micro-premature infant.
10. Apply important self –care principles to themselves
while working in this demanding field.
Continuing Education/Contact Hours
Provider approved by the California Board of Registered Nursing,
Provider No. 512, for 16.8 contact hours.
This course has been approved for 14 Continuing Education Units
Board of Behavioral Sciences Continuing Education Provider
Number: 1216.
Long Beach Memorial Medical Center • Houssels Forum
2801 Atlantic Avenue, Long Beach, CA 90806
Target Audience
All health care professionals caring for children with complex,
chronic conditions providing end of life care.
Tuition Fees & Cancellation Policy
MemorialCare Employee $50.00
Non-MC Employee $100.00
To register, complete the registration form and mail or fax with the
appropriate fee to the Memorial/UCI Center for Health Education
(CHE) – FAX is 562-933-0101. Registration can be made with
Visa, MasterCard or American Express or a check made
payable to the Center for Health Education. Cancellation must be
made in writing, and received either by mail or FAX prior to
November 26, 2012 for return of registration fee without penalty.
No refunds of Conference Registration fees will be made after
November 26, 2012.
Pre-Registration is required
Course Location
The meeting will be held in Houssels Forum, Center for Health
Education, Long Beach Memorial Medical Center, 2801 Atlantic
Avenue, Long Beach, California. To arrive by car, exit the 405
(San Diego) Freeway at Atlantic Avenue. The Medical Center is
located three blocks south of the freeway. Turn right at Memorial
Medical Center Drive, into the visitor parking lot. The Center for
Health Education is located on the lower level of the medical
center, below the main hospital entrance. Parking will be validated
for all attendees.
Additional Information
For additional information concerning this program please call the
MMC/UCI Center for Health Education (CHE) at (562) 933-0100.
There may be changes in the faculty or minor changes in the
program content caused by circumstances beyond the control of
the CHE. The CHE reserves the right to cancel a program at any
time caused by circumstances not under its control. Persons
registered in a cancelled program will be notified by telephone,
using the telephone number listed on the application form.
Registration fees will be refunded for those programs cancelled
by the CHE. Travel arrangements made prior to program
cancellation may be eligible for reimbursement for paid registrants
only. The CHE is not responsible for any transportation or
accommodation reservations made 1) by anyone other than CHE
or its agents, or 2) prior to written confirmation of course
registration. In compliance with the Americans with Disabilities
Act, if you have any special needs, please contact the CHE by
November 26, 2012.
Course Agenda
DAY ONE ~ MONDAY, DECEMBER 3, 2012
8:00-8:30
Welcome/Introduction
JOETTA WALLACE, MSN, CHPPN
8:30-9:30
Keynote
Where have we been and where are we going?
“Shelter from the Storm’ or "Starry, Starry Night?"
JOANNE M. HILDEN, M.D.
Professor of Pediatrics
Medical Director
Center for Cancer and Blood Disorders
Associate Chief, Section of Pediatric Hematology/
Oncology/Bone Marrow Transplant
Children’s Hospital Colorado
9:30-10:00 BREAK
10:00-11:00 Session #1
When Professional Responsibility, Technology,
Limited Resources and Parental Goals Conflict
MARK S. PIAN, M.D.
Professor of Pediatrics and Cystic Fibrosis Center Director
UCSD School of Medicine/Rady Children’s Hospital
11:00-12:00 Session #2
Nutrition and the Child with Limited Life Expectancy
GLEN KOMATSU, M.D.
Director, TrinityKids Care
12:00-13:00 LUNCH
Interdisciplinary and Regional Networking
13:00-14:00 Session #3
Promoting an Excellent Interdisciplinary and
Family Conference
NANCY FREEMAN-CRUZ, RN, MSN, MBA
Children’s Comfort Care Program Clinical Coordinator
UCLA School of Medicine
14:00-14:30 BREAK
14:30-15:30 Session #4
Relationships with Patients and Families:
Are There Boundaries?
JENNIFER MURRAY, CPNP
Nurse Consultant, Comfort and Palliative Care Team
Children’s Hospital Los Angeles
15:30-16:30 Session #5
Special Palliative Care Consideration for the Adolescent
CLARKE ANDERSON, M.D.
Assistant Professor of Pediatrics
City of Hope National Medical Center, Duarte
16:30-17:30 Closing
Providing PC/Hospice to Children/
Families in the Community
GAY WALKER, R.N., CHPN
TrinityKids Care
17:30-19:00 Reception
Trinity Kids Care
DAY TWO ~ TUESDAY, DECEMBER 4, 2012
8:00-8:30
Welcome
JOETTA WALLACE, MSN, CHPPN
8:30-9:30
Keynote
The Spectrum of Opportunities to Provide PC Services:
PC Exemplars
Panel of Palliative Care Experts
9:30-10:00 BREAK
10:00-11:00 Session #6
The Who/What/When/Where and How of PhysicianAssisted Suicide, Euthanasia and Palliative Sedation
REBEKAH HALPERN, MS, PA-C
PCCGA-Pediatric Intensive Care Unit
Miller Children’s Hospital/Palliative Care, Long Beach
11:00-12:00 Session #7
Bereavement Support: When A Child Dies
LAUREN SCHNEIDER, LCSW
Clinical Director of Children’s Programs
OUR HOUSE Grief Support Center
12:00-13:00 LUNCH
SCPPN Meeting
All Registrants
13:00-14:00 Session #8
Parents Panel: What We Needed But Did Not Receive
KATHLEEN ADLARD, RN, MSN. CPON
Clinical Nurse Specialist
Cancer Institute
Children’s Hospital Orange County
14:00-14:30 BREAK
14:30-15:30 Session #9
Economics of PC
AMI DOSHI, MD, FAAP
Assistant Clinical Professor of Pediatrics, UCSD
Pediatrics and Hospital Medicine
Director, Palliative Care
Rady Children's Hospital, San Diego
15:30-16:30 Session # 10
Medical (futility) and the Micro Preemie
ARTHUR A. STRAUSS, M.D., FAAP
NICU Medical Director
Miller Children’s Hospital, Long Beach
Associate Clinical Professor of Pediatrics
University of California, Irvine
16:30-17:30 Closing
Strengthening the Roots of Palliative Care:
Nourishment of Mind, Body and Soul
REBECCA SWOPE, RN
Registered Nurse/Preceptor
Miller Children’s Hospital, Long Beach
BRIGITTE CONNELLY, RN, CPHON
Pediatric Supportive/Palliative Care
Miller Children’s Hospital, Long Beach
“From a Tiny Acorn, A Mighty Oak Will Grow”
Fostering Excellence In Pediatric Palliative Care
December 3-4, 2012
Course Registration – Please type or print
PRE-REGISTRATION IS REQUIRED
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Memorial/UCI Center for Health Education
2801 Atlantic Avenue
Long Beach, CA 90806
Or FAX (562) 933-0101
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