Choices and Voices in Breast and Women’s Health
Transcription
Choices and Voices in Breast and Women’s Health
com The Vermont Cancer Center’s Choices and Voices in Breast and Women’s Health Friday, October 10, 2014 • 8:00 am – 4:30 pm Sheraton Burlington Hotel & Conference Center, Burlington, Vermont A Free Community Event! For patients, survivors, health care providers, family members, and others interested in breast and women’s health. presented by presenting support from gold support from www.VermontCancer.org @vtcancercenter @vtcancercenter facebook.com/vermontcancercenter facebook.com/vermontcancercenter pinterest.com/vtcancercenter pinterest.com/vtcancercenter The Vermont Cancer Center’s Registration is Free–2 Ways to Register! 1. Online: www.VermontCancer.org 2. By Phone: (802) 656-2292 A Message from Kathy McBeth, MA and Patti O’Brien, MD Co-chairs E ach year our Annual Breast Cancer and Women’s Health Conference is themed around a topic, and we try to weave in various new workshops and speakers to complement this. This year we felt it was important to talk about the many choices that women have in their care. Each woman needs to find her own voice to advocate for the care that she feels will be right for her. We are all unique. We all have our own values, beliefs, needs, coping skills, and communication styles. We each have a voice inside of us that helps us choose our path in life. Depending on how we listened to that inner voice we have each chosen our own lifestyle, our own preventative health habits and screening practices differently. When we are faced with choices about our medical care or how we want to respond to an illness we will each need to use our voices to ask unique questions. Only if we know how to ask questions and get information can we then move forward to make informed choices. A major goal of this conference is to give information to people in a variety of formats so that everyone can seek knowledge and support that will help them make healthy choices for themselves, their loved ones, or their patients. This is a place to come and ask questions, share information, and teach each other. You have a voice in this conference; this conference is designed by people who have been coping with cancer, by people who provide care for people dealing with cancer, by family members, and by previous attendees. Your voice is important. We hope you will come and use your voice to enrich this conference- if you have a question we encourage you to ask. Often the person next to you has the same question but is too shy to ask. You can help that person next to you by sharing your voice. Healthcare is rapidly changing on many levels. Your voice is needed to help guide these changes to better serve you and those around you. An informed voice is a strong voice that will be heard. An informed voice will give strength to those around you who are also trying to find their voice. We are inviting you to come and share your voice, and join us as we celebrate the many options that we can all explore in our lives. The Vermont Cancer Center (VCC) at the University of Vermont and Fletcher Allen Health Care is a comprehensive clinical and research cancer center committed to innovative cancer research, life-saving prevention and treatment programs, public education, and scientific collaboration. With more than 130 scientists engaged in a full range of basic, translational, clinical and outcomes research, the VCC plays an important role in cancer prevention and treatment across the region and beyond. Through the collaborations of researchers, physicians, and caregivers, the VCC brings advanced treatment options to patients in our region, including hundreds of clinical trials aimed at advancing the standard of care and improving overall quality of life for cancer patients. To learn more about research, education, prevention, patient care, and support at the VCC, visit www.vermontcancer.org. Why Your Support Matters Admission to all Conference sessions and exhibits is free, thanks to a generous grant from the VT-NH Affiliate of Susan G. Komen for the Cure and support from the Vermont Cancer Center, University of Vermont College of Medicine, Fletcher Allen Health Care, Blue Cross Blue Shield of Vermont, Front Porch Forum, and Seventh Generation. However, ongoing cancer research, patient education and prevention services, and community outreach efforts are not possible without your support. Consider making a $17 donation when you register online to celebrate our 17th annual conference. Your support makes all the difference! 2 PRE-REGISTRATION ENDS AT 8:00 AM ON MONDAY, OCTOBER 6TH! Attendees may still register for free on-site, but some sessions may be unavailable due to full attendance. Be sure to register early to get into the sessions you want most! Lunch Registration Lunch is by reservation only and may be purchased when registering for the conference. The purchase of a plated lunch is required to attend the keynote presentation. GRAB AND GO LUNCHES ($10) will be available in the Exhibit Hall starting at 11:30 AM. You will have your choice of wraps, sides, and a beverage. PLATED LUNCHES ($22) will be served in the Emerald Ballroom and VCC member Thomas Ahern, PhD, MPH will deliver a keynote presentation during lunch. Please do not sign up for a plated lunch if you wish to attend another lunch session. A Message from Becky Burke President, Susan G. Komen for the Cure Vermont-New Hampshire Welcome to the Vermont Cancer Center’s 17th Annual Breast Cancer Conference. Susan G. Komen for the Cure Vermont-New Hampshire is proud to support this educational resource essential to all individuals in our region interested in learning about breast health. We have supported and attended this conference since the beginning in 1998 and have watched it grow with great pride. In concert with Susan G. Komen for the Cure’s vision of a world without breast cancer, the conference is dedicated to saving lives, empowering people, ensuring quality care for all, and energizing science to find the cures. Additionally this year, we are excited to be supporting the work of Thomas Ahern, PhD, MPH, a Vermont Cancer Center scientist and recipient of a $450,000 Komen Environmental Challenge Grant. His research into breast cancer associated with the exposure to certain synthetic chemicals will have ramifications on breast cancer thinking and possible prevention the world over. Our support is made possible through various fundraising events held throughout the year, beginning with the annual Romp to Stomp Snowshoe at Stratton Mountain, VT. In May, the 3rd Annual Komen New Hampshire Race for the Cure was held in Portsmouth, NH. Now in our 22nd year, the Komen Vermont Race for the Cure takes place on September 20th in Manchester, VT. Our two 10-mile pleasure horseback rides are scheduled for August 30th in New Boston, NH and October 13th in Woodstock, Vermont. We hope you’ll join us at one or all events! We would like to express our gratitude to the VCC and to conference co-chairs Kathy McBeth and Patti O’Brien for bringing together such a wonderful and diverse program full of opportunities to provide health care professionals, breast cancer survivors, and their family and friends with the most up-to-date and accurate information regarding breast health. As we look towards the future, our shared vision with the Vermont Cancer Center and the countless people who make this event a success each year is to provide educational opportunities to the region in an effort to end this disease, so we can ensure that one day we can live knowing that breast cancer no longer threatens the lives of our mothers and daughters, friends and neighbors. We are proud to be a part of your day and are sure you will find it an enriching and inspiring experience! Breast Cancer Awareness Quilt Stop by the Vermont Cancer Center table in the Exhibits Hall for an opportunity to win a beautiful hand-crafted quilt made by June Bugbee of Williston, Vermont. Proceeds from the raffle will benefit breast cancer research and education efforts at the Vermont Cancer Center. Agenda at a Glance 4 Predictors of Recurrence After a DCIS Diagnosis P N RT POSTER SESSION ❭❭ 8:00-9:00 AM Our annual scientific poster session will be held in the Exhibits Hall. Presenters from the Vermont Cancer Center and our allied institutions will showcase the latest in cancer research. Grab a cup of coffee and meet our poster presenters to start your day! SESSION ONE ❭❭ 9:00-9:50 AM 1 Sex After a Cancer Diagnosis: Has Anyone Seen My Libido? N SW Patti Johnson, RN, OCN, CBCN and Mary Nolan, RN, OCN This will be a patient-focused presentation with a wealth of information regarding body image, intimacy, and dealing with short- and long-term effects of cancer treatment. There will be a frank discussion of issues related to sexuality with time for questions. “Pandora’s Box”, a treasure trove of resources and enhancement devices, will be explored. Oncology RN and Breast Cancer Survivor Mary Nolan will share her personal experiences in overcoming the emotional and physical effects of cancer treatment as related to sexuality. 2 PHYSICIAN TRACK: Breast Cancer MicroRNAs: Novel Biomarkers for Early Detection and Prevention of Metastatic Bone Disease P N PT RT Jane Lian, PhD V and Marie Wood, MD V This session will explore the biology behind cancer metastases to bone. Additionally, we will look at what factors influence the spread of cancer to bone and what providers can do to help prevent and treat bone metastasis. This session is specifically geared toward primary care providers and other health care professionals. Kinesio Tape Management of Trunk, Breast, and Arm Lymphedema P N PT 3 Julia Child, PT, CLT-LANA This session will discuss the benefits of kinesio tape in the management of chronic and acute lymphedema. Lymphedema causes a decrease in the space between skin and muscle, resulting in constriction of lymphatic flow and pressure on sensory receptors which can cause pain and numbness. Kinesio tape applied to skin can improve lymphatic flow, resulting in a decrease in edema and discomfort associated with lymphedema. Brian Sprague, PhD V This session will discuss the basic biology of DCIS (ductal carcinoma in situ, the most common type of non-invasive breast cancer) and the magnitude of this diagnosis as a public health problem; the typical disease-free survival rates for DCIS, including the average time from diagnosis to an invasive breast cancer diagnosis; and predictors of disease-free survival, including factors related to the patient, her treatments, and the characteristics of the DCIS diagnosis. 5 Recipe for Breast Health: Understanding How Diet and Weight Affect Prevention, Survivorship, and Caregiving N ND Chef Curtiss Hemm and Jennifer May, RD, CD Increasingly studies suggest that a healthy diet may help minimize the lifetime risk of breast cancer. This session will address current and trending thinking about the relationship between breast cancer, personal nourishment, the modern diet, contemporary food systems, and discuss how to sustainably transform one’s current practices. This session will encourage better breast health and overall wellness for prevention, survivorship and caregiving. 6 Adjuvant Therapy P N PT RT SW Paul Unger, MD V This talk will cover the basic concept of giving treatments in addition to surgery for breast cancer patients. It will discuss the role of chemotherapy, hormonal, and immunological treatments for early stage breast cancer. 7 Integration of Palliative Care into Cancer Care P N PT SW Janet Ely, MSN, AOCNP, FNP and Mary Giancola, MSW, LICSW Palliative care is specialized medical care for people with serious illness focused on improving quality of life through relief from the symptoms, pain and stress of a serious illness. Care is provided by a team of caregivers who wholly support and care for the patient and family. Integrating palliative care into cancer care is appropriate for any cancer diagnosis and provides an extra layer of support from the time of initial diagnosis, through active treatment and, when needed, helping patients and families transition to end of life care. Educational Credit This program has been reviewed and is acceptable for up to 5.5 Nursing Contact Hours. The University of Vermont College of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The University of Vermont College of Medicine designates this live activity for a maximum of 5.5 AMA PRA Category 1 CreditsTM. The University of Vermont-Continuing Medical Education is an approved provider of continuing nursing education by the Vermont State Nurses Association’s Committee on Education, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Determination of Pharmacotherapeutic credit is pending. Credit is pending for the following providers: Social Work CEU, Nutrition and Dietetics CPE, ASRT and Physical Therapy. 8 Touch, Caring & Cancer: Simple Instruction for Family and Friends N PT SW Catherine Cerulli, MEd and Janet Kahn, PhD, LMT The Touch, Caring, and Cancer (TCC) program used in cancer centers, hospices, hospitals, and homes across the United States has been found to support improved quality of life for cancer patients and their caregivers. This workshop will provide patients, caregivers, and health care professionals with simple, effective techniques such as massage, acupressure, mindfulness, and aromatherapy. 9 Changing Paradigms of Cancer Treatment: Can Peripheral Blood be a Surrogate for Tumor Biopsy to Identify Treatment Targets in Patients with Advanced Breast Cancer? P N Mary Chamberlin, MD Tumor biopsy can be an invasive process, but it is often deemed necessary to identify treatment for advanced breast cancer patients. But is there another way? This session will explore the use of peripheral blood as an alternative way to identify new treatment targets. 10 Lymph Node Transplant: A Case Study P N PT Justine Dee, PT, MS, OCS A lymph node transplant involves moving lymph nodes from one area of the body to another in order to help patients affected by lymphedema. We will present the case of a patient with breast cancer related lymphedema who underwent this procedure. 11 Y oga for Living with Cancer Susan Marx This gentle yoga class begins with warm-up movements and breath awareness to prepare for yoga postures. The heart of the class is a sequence of postures that stretch, strengthen, and balance the body. The class ends with deep relaxation and calming breath work. This session will help you wherever you are, whatever your treatment stage or yoga experience. Please bring your own yoga mat or towel to this session. 12 L ook Good…Feel Better Sponsored by the American Cancer Society, this is a double-length session that will provide makeovers to current cancer patients, giving them more hope and confidence. FOR CURRENT CANCER PATIENTS ONLY. This is a doublelength session that runs from 9:00-10:50 AM. Cost of physician credit (up to 5.5 credits) - $40 Cost of all other health care provider credit (up to 5.5 credits) - $20 P Physician CME N Nursing Contact Hours ND Nutrition and Dietetics CPE PT Physical Therapist CE Credit RT Radiologic Technologist CE Credit SW Social Worker CEU V VCC Member Schedule subject to change. Please visit www.VermontCancer.org for updates and bios of our speakers and panelists. 3 Agenda at a Glance SESSION TWO ❭❭ 10:00-10:50 AM 1 Environment and Women’s Health N ND Frances Carr, PhD V and Janet Gray, PhD The environmental choices you make can have a huge impact on your cancer risk and survivorship options. This session will explore some of those environmental factors and give you an idea of what decisions you can make to ensure a healthier lifestyle. PHYSICIAN TRACK: The Continuum of Oncology Rehabilitation for Cancer Survivors P N ND PT 2 Kim Dittus, MD, PhD V Cancer survivors often have specific needs when it comes to recovery and rehabilitation. We will discuss the unique rehabilitative needs of these survivors and how providers can help facilitate the road to recovery. This session is specifically geared toward primary care providers and other health care professionals. 3 Conversations and Choices for the Caregiver N SW Kathy McBeth, MA V What are the plights that caregivers face when taking care of somebody who is suffering through cancer? This session will discuss some of the tough conversations and difficult choices that caregivers and patients face, as well as some ways to find guidance through those tough times. 4 Breast Cancer and Weight Gain P N ND RT SW Jean Harvey, PhD, RD V Weight gain is common in breast cancer patients after diagnosis. Unfortunately, survivors who are overweight are more likely than trimmer survivors to have their cancer recur. This workshop reviews why weight is likely to change during treatment and details activities you can do that have consistently been shown to reduce the risk of breast cancer, improve odds of survival if diagnosed, and help prevent other illnesses. Living with Metastatic Breast Cancer: A Panel Discussion N ND PT RT SW 5 Rose Colletti, PhD V Survivors living with Stage IV breast cancer will share stories and respond to various topics, including how they maintain HOPE and develop MEANING in the face of ongoing treatment. Audience questions and participation will be encouraged. Choices in Prophylactic Mastectomy: Figuring out what is Right for YOU N PT SW 6 Clare Ginger, PhD, Robert Nesbit, MD, Patti O’Brien, MD V , and Michelle Sowden, DO V The desire for body symmetry after a mastectomy is a well-recognized need. There are many ways to try to achieve this symmetry, and this will be a discussion about the many options. Patients who have chosen very different options will be talking about their personal choices. Some women choose to “add back” a breast using their own tissue, an implant, or a prosthesis. Some women want the option to remove the “normal breast” even if they do not carry a genetic risk factor. These are very complex personal issues. The plastic surgeon and the oncology surgeon discuss with each woman to help her pick what is going to be right for her. 7 P Ovarian Cancer Screening and Prevention JOIN US FOR A COFFEE CHAT N PT RT Elise Everett, MD This session will discuss the various methods used to screen for ovarian cancer, symptoms of the disease, and prophylactic removal of the ovaries for women at high risk for disease. 8 Genetic Counseling and Testing Coffee chats will be held in sessions 2, 5, and 6 in the Emerald III Ballroom. These sessions are more casual and smaller in size, giving you the chance to have a cup of coffee and a discussion with the presenter and others attending the chat. More details about the individual coffee chats can be found online. N RT SW Wendy McKinnon, MS V This session reviews the features of hereditary breast and ovarian cancer and explains who might be a candidate for referral for genetic counseling and, possibly, genetic testing. The talk will review what happens during a genetic counseling session and discuss the risks, benefits, and limitations of undergoing genetic testing for cancer risk. Integrative Therapies in Cancer Care: Expert Panel Discussion P N ND PT SW Coffee for the 17th Annual Breast Cancer Conference is generously donated by the Burlington Starbucks stores. SESSION THREE ❭❭ 11:00-11:50 AM 9 Philip Trabulsy, MD and Janet Kahn, PhD, LMT A lively presentation and discussion by a panel of experts in the field of integrative medicine regarding the growing body of evidence for the clinical value of supportive cancer care using the best evidence-informed therapies from the field of complementary and integrative medicine, including symptom management, pain management, rehabilitation, survivorship, health promotion and cancer prevention. This clinical panel of integrative practitioners will discuss their particular healing discipline’s approach to support the cancer patient and will include such topics as integrative nutrition, natural supplements, herbal treatments, acupuncture, oncologic massage therapy, and mind-body medicine. 10 The Benefits of Nature Contact on Survivorship N SW Christine Vatovec, PhD V How can the power of nature help cancer survivorship rates? This session will explore the scientific data surrounding the role that nature contact, such as walks in a natural area or having plants in a clinical setting, plays in survivorship. 11 Coffee Chats Bring your coffee and enjoy a casual, small-group session in the Emerald III ballroom. Coffee chats available in this time slot are listed below. More details can be found on the web at www.VermontCancer.org. ✱R educing Toxic Exposure by Reforming Toxic Policies Taylor Johnson ✱ C oping with Cancer: A Social Work Perspective Stephanie Fraser, MSW ✱ T he Benefits of Oncology Massage Kirsten Wiley ✱ T he Impact of Philanthropy in Cancer Research Manon O’Connor ✱U nbridling the Past Janis Cooper ✱ T ools for Weight Management and Staying Healthy Siobhan Donegan, MS, RD and staff of Ladies First 1 P Screening: When, How Often, and Why? N PT RT SW Harry Chen, MD, Sally Herschorn, MD V and Marie Wood, MD V Screening guidelines change from state to state and from person to person, but what does that mean for you? This panel, moderated by Vermont Commissioner of Health Harry Chen, MD, will discuss the multiple screening guidelines out there, explain why recommendations differ, and help you figure out how to make the best choice. 2 PHYSICIAN TRACK: Cancer and Venous Thrombosis: Risk Factors, Treatment, and Prevention P N PT RT Neil Zakai, MD Venous thrombosis is a common complication of malignancy which affects both the quality and the quantity of life. It is important to understand the risk factors for cancer-associated thrombosis, the appropriate treatment, and novel prevention strategies in order to provide the highest quality care. We will discuss the risk factors and treatments for cancerassociated thrombosis and novel prevention strategies. This session is specifically geared toward primary care providers and other health care professionals. 3 What Health Care Reform Means for You Catherine Hamilton, PhD, J. Chris Nunnink, MD V , Allan Ramsay, MD The last year has seen huge changes in health care across the country. These changes have an impact on the choices available to patients during diagnosis and treatment. This session will explain the BlueCross BlueShield of Vermont Health Care exchange, new health care reform laws, and how they interact with cancer treatment and prevention. 4 The Road to Advocacy and Breast Cancer Deadline 2020® Nancy Ryan and Susan Pelletier Learn how to get involved, take action and end breast cancer! Educated consumer advocates help to steer breast cancer research, pass critical breast cancer legislation, and guide breast cancer public policy. Breast Cancer Deadline 2020® is the National Breast Cancer Coalition’s call to action for researchers, policymakers, breast cancer advocates and all other interested parties, to know, by January 1, 2020, how to end deaths from breast cancer. Lunch Sessions ❯ 12:00–1:00 pm Grab and go lunch is by reservation only. Plated Lunch and Keynote Presentation by Tom Ahern, PhD, MPH: What to Expect When You Get Called Back from Your Routine Screening Mammogram N RT SW 5 PLATED LUNCHES will be served in the Emerald Ballroom. The purchase of a plated lunch is required to attend the keynote presentation. Elise Hotaling, MD Approximately 10% of patients undergoing a screening mammogram are called back to further evaluate a finding seen on the initial images. Such findings may include calcifications, densities, and masses, any one of which may be a sign of benign or malignant disease. This presentation discusses the tools breast imagers use to complete this additional evaluation and what you can expect as a result. Looking for Avoidable Causes of Breast Cancer: No Trivial Pursuit! GRAB AND GO LUNCHES may be picked up in the Exhibit Hall beginning at 11:30 AM. Brighten Up: Bright Pink’s™ Educational Workshop on Breast and Ovarian Health N RT SW Lymphedema Awareness: Developing a Lymphedema Awareness Program for Breast Cancer Survivors Betsey Wesson The Brighten Up Educational Workshop is a signature program that educates and inspires young women to be proactive advocates for their health. Facilitated by a certified Bright Pink Ambassador, these sessions ground participants in the basics of breast and ovarian health, introduce them to early detection techniques, and equip them with life-saving knowledge. Immediately following the workshop, participants receive access to tools that can help them calculate their personal level of cancer risk, develop an action plan in partnership with their doctor, and monitor for symptoms and signs of cancer. 7 PHYSICIAN TRACK: Cardiac Disease and Breast Cancer N PT RT Paddle Your Way to Recovery and Feel Alive! N ND PT RT Linda Dyer Come learn about our unique support group where the focus is on living, not on the disease. We are Dragonheart Vermont. Together, we breast cancer survivors have taken on this challenging paddle sport while learning the true meaning of teamwork. No age limit or athletic experience is necessary. The Dragonheart Vermont Sisters paddle together on Lake Champlain all summer and race around the world together. Come learn about our trip to Italy where we raced in the World Club Crew Championships. We are paddling our way to wellness and loving every moment! Genetic Testing and Inherited Breast and Ovarian Cancer: Patient Perspectives N RT SW 8 Bernard Cole, PhD V This presentation will provide an overview of the process that new drugs must go through before they may be approved by the Food and Drug Administration. We will discuss early- and intermediate-phase clinical testing, where emphasis is typically focused on dosing, safety and preliminary evaluation of efficacy. We will then introduce the randomized clinical trial and its importance in modern medicine. The presentation will include a summary of the studies and process leading to the recent FDA approval of pertuzumab for two indications in breast cancer. P Susan G. Lakoski, MD V Treatment for breast cancer may have increased risk factors for heart disease, and care providers need to understand these risk factors and integrate them into the standard risk factors such as obesity, lipid profile, smoking, DM, and inactivity. This talk is geared for the care provider that needs to screen breast cancer survivors for heart disease. Testing guidelines, symptom management and interventions will be discussed. This session is specifically geared toward primary care providers and other healthcare professionals. Elise Everett, MD This session will discuss the treatments used to treat ovarian cancer at various stages, side effect management, and research for new therapies. An overview of surgical and medical interventions used. 9 Evaluating Safety and Efficacy of Novel Drug Therapies: The Journey from Early Testing to FDA Approval P N N PT Kathy Weatherly Lymphedema is a chronic swelling and chronic challenge for many cancer patients. In this discussion Kathy will discuss methods of education and self-monitoring methods that PTs can use in their community to help breast cancer patients. Therapists will learn to develop an Action Plan for each patient, including taking monthly measurements and tips to help them reduce their risk of developing lymphedema. Materials will be made available for lymphedema specialists to utilize in their communities. Ovarian Cancer Treatments Wendy McKinnon, MS This panel discussion includes several individuals who have undergone genetic counseling and testing for the BRCA1/BRCA2 genes. These two genes are associated with the majority of inherited breast and ovarian cancers. There will be a variety of results and a range of perspectives on the testing process. Anyone interested in learning more about the BRCA1/BRCA2 counseling and testing process is encouraged to attend. N ND SW Lunch Sessions: 6 P P Tom Ahern, PhD, MPH V The premise of cause and effect drives epidemiologists, scientists that deal with incidence, distribution, and possible control of diseases, in their hunt for avoidable causes of breast cancer. In this talk, Dr. Ahern will explain a theory which focuses current research efforts to find highly prevalent, yet avoidable, contributors in the development of breast cancer which, if mitigated, substantially reduce the burden of breast cancer in a population. 10 Spirituality as a Cornerstone of Coping N SW Rebecca Brooks, Patricia Fontaine, MACP, and Roz Grossman, MA For many of us, a relationship with spirituality keeps us company during the healing journey with cancer. This panel of survivors, each with a different spiritual connection, offers reflections on what this relationship means to them. We welcome questions and will leave time to reflect as a group on your own journeys. 11 Culinary Demonstration ND Join local chefs for a culinary demonstration outside G’s Restaurant. This demo will give you a chance to learn some nutritional recipes and techniques that you can apply to create fast, healthy, and delicious meals anywhere and anytime. SESSION FOUR ❭❭ 1:15-2:05 PM 1 Chemobrain P N ND PT SW Kim Dittus, MD, PhD V , Owen Drudge, PhD, Julie Dumas, PhD V , and Patti O’Brien, MD V Women frequently comment that their memory declines during and after therapy for breast cancer. A panel of experts, including a cognitive expert, an oncologist, and a breast cancer survivor, discuss the science behind cognitive change and research efforts to increase our understanding of this condition. 2 PHYSICIAN TRACK: Deep Inferior Epigastric Artery Perforator (DIEP) Flap Breast Reconstruction P N PT SW Robert Nesbit, MD The DIEP flap is a common breast reconstruction procedure that has many benefits. This session will examine DIEP flap breast reconstruction as well as the benefits and challenges for physicians and their patients. This session is specifically geared toward primary care providers and other health care professionals. Phthalates are Everywhere–But Do They Cause Breast Cancer? P N ND SW 3 Tom Ahern, PhD, MPH V Phthalate compounds have made their way into a number of consumer products including food containers, children’s toys, cosmetics, and pharmaceuticals. Phthalates are suspected to disrupt hormonal pathways in our bodies, and have the potential to cause cancer. Dr. Thomas Ahern will discuss the pervasiveness of these compounds in our daily environment, summarize current evidence of the effect of phthalates on breast cancer occurrence, and introduce his new study, funded by Susan G. Komen for the Cure, which will thoroughly explore this topic in a population of women at risk for breast cancer. 5 Agenda at a Glance Healing Through Play: Strategies to Care for Self and Family N SW 9 Pilates Anywhere: Core Strength and Stability Exercises for Home, Work, and Travel Ali Waltien, CCLS and Julia Wick, MS, LCMHC In this experiential session, Licensed Clinical Mental Health Counselor Julia Wick and Certified Child Life Specialist Ali Waltien acknowledge that breast cancer impacts all members of the family. Using therapeutic play techniques, Julia and Ali will work with adult participants to give them tools to address the many emotions of cancer to support themselves and all members of the family. Janet Franz Pilates exercises create strong, stable core muscles in the abdomen, lower back and derrière. This helps you move easier, avoid back and hip pain, improve your posture, and enjoy a flatter tummy and tighter bottom. You will learn how to do Pilates exercises on your own, anytime, anywhere. Practice these moves with or without equipment at your desk, on the floor, standing up, or sitting in a chair. 5 A Multidisciplinary Approach to Breast Cancer Diagnosis and Treatment P N PT RT SW 10 Mindfulness Tools: An Introduction to Practices and Scientific Evidence N SW 4 Deborah Rubin, MD, Mary Stanley, MD V , and Erin Tsai, MD Current breast cancer care involves the coordination of multiple medical disciplines: surgery, pathology, radiology, and specialists in chemotherapy and radiation treatment. In this session you will sit in on a reenactment of a weekly breast cancer case conference where specialists review clinical, radiologic, and pathologic findings of patients recently diagnosed with breast cancer and discuss the best approaches to treatment. Vermonters Taking Action Against Breast Cancer: An Open Forum 6 David Cranmer V and Sharon Mallory Vermonters Taking Action Against Cancer, the state cancer coalition, in conjunction with the Vermont Cancer Center, has presented an annual forum for breast cancer patients, advocates and care providers since 2006. This is an opportunity for participants to discuss ways to collaborate with one voice to reduce the burden of breast cancer in Vermont. This session, open to all attendees, is a great way for advocates and patients to share and network. 7 W riting for Healing Patricia Fontaine, MACP The natural ability of the body to heal can be enhanced by artistic expression, and writing is a form of art accessible to all of us. Using simple writing techniques, participants will leave with some concrete tools and resources to begin their own writing practice. 8 Marijuana for Symptom Relief P N ND SW Bridget Conry, Shayne Lynn, Jeffrey Wallin, and Lindsey Wells What is my role as a provider? How do I become a registered patient? This session will focus on the process of registering with the Vermont Marijuana Registry and what happens after a patient is registered. 2:00-2:15 pm ICE CREAM BREAK Exhibit Hall & Level 2 Enjoy some ice cream, check out our scientific posters, and visit with exhibitors! Roz Grossman, MA and Yu-Jing Sun, PhD V Meditation and other mindfulness practices can benefit cancer recovery. This session will introduce mindfulness tools known to ease stress and anxiety and encourage calmness and wellbeing for cancer survivors and caregivers. Recently published scientific studies on mindfulness meditation in the areas of neuroscience, biology and immunology including clinical outcomes and potential mechanisms will be presented and discussed as well as resources for further mindfulness exploration. 11 Culinary Demonstration ND Join local chefs for a culinary demonstration outside G’s Restaurant. This demo will give you a chance to learn some nutritional recipes and techniques that you can apply to create fast, healthy, and delicious meals anywhere and anytime. 12 L ook Good…Feel Better Sponsored by the American Cancer Society, this is a double-length session that will provide makeovers to current cancer patients, giving them more hope and confidence. FOR CURRENT CANCER PATIENTS ONLY. This is a doublelength session that runs from 1:15–3:05 PM. SESSION FIVE ❭❭ 2:15-3:05 PM Are There Choices in Fertility Management after Breast Cancer? P N SW 1 Elizabeth McGee, MD V What are the options for fertility and family building after one has been treated for breast cancer? How can you know if you are still fertile? Can infertility be treated? Is it safe? Could it be an option for me? This session will answer these and other important questions about fertility management after breast cancer. 2 PHYSICIAN TRACK: The Many Benefits of Palliative Care as a Part of a Comprehensive Cancer Team P N PT SW Diana Barnard, MD and Jaina Clough, MD This session will discuss palliative treatments from a provider’s standpoint and give a comprehensive discussion on how every provider can benefit from knowing more about this field. This session is specifically geared toward primary care providers and other health care professionals. Please note that in order to fill the palliative care portion of the new CME requirements, this session will run until 3:15 PM. Everyday Chemical Exposures and Breast Cancer: Why Are We Concerned? What Can We Do? N ND 3 Janet Gray, PhD Many common products we use in our everyday life contain chemicals, including endocrine disrupting compounds, which have been linked to increased risk for developing breast cancer (and many other diseases). We will look at some of the scientific evidence that raises concerns about these chemicals, and then talk about ways that we as individuals can decrease exposures. And we will talk very briefly about pending federal policy and market-based initiatives that, if implemented, would make our homes and environment safer. 4 Management of the Axilla in 2014: Can the Past Guide the Future? N PT RT Kari Rosenkranz, MD The role of axillary surgery in the management of breast cancer has been a constantly evolving thing over the years. This session will explore the history of this procedure and discuss what the past can tell us about the future of treatment. 5 Clinical Trials and You P N ND PT RT SW Chris Holmes, MD, PhD V Clinical trials are among the greatest weapons we have in fighting cancer. This panel discussion will explore the world of clinical trials, how they help find new treatments for cancer, and how you can become a part of this important process. Aromatase Inhibitors: Managing Pain, Hot Flashes, and Bone and Sexual Health P N PT 6 Joanna Schwartz, PharmD This session will focus on emerging data and treatments for aromatase inhibitor-induced muscle and joint pains, vaginal dryness and pain with intercourse, and bone health. Dr Schwartz, who is a pharmacist, will also provide information on access to the treatments in the studies, such as if they are over-the-counter, prescription only, or compounding pharmacy only. 7 What to do When you Find a Breast Lump N RT SW Ted James, MD V This session is geared for anyone who wants to understand the nature of breast lumps and what to do when you find one. The talk will review the various causes of breast lumps and walk participants through the diagnostic process for evaluating a new breast lump. Recommendations to ensure timely, safe and high-quality care will be discussed. 8 P What’s New in Breast Cancer Reconstruction? N PT RT SW Susan MacLennan, MD In this session, we will focus on newer techniques for reconstruction after breast cancer surgery. Some of the techniques discussed may include oncoplastic surgery after lumpectomy, nipple sparing mastectomy, and new technologies that may improve reconstructive outcomes. 9 Komen for the Cure Grant Workshop Terry Farkas We will discuss the various breast cancer programs currently being funded by the Vermont/New Hampshire affiliate of Susan G. Komen for the Cure and the unique nature of Komen Community Grants. Additionally, we will offer a presentation on how your breast health program can become involved in our granting process. 10 Grow Your Wellness and Joy After Cancer: Survivorship NOW VT Linda Dyer and Susie McNamara Tap into the positive effects that exercise and connection have on your health. Learn more about Survivorship NOW’s FREE wellness programs with our exciting calendar of programs that vary from fitness to art to music to nutrition and more! Come learn how you can take part in Survivorship NOW today! Get stronger, fitter, and more connected. Feel empowered. Have fun! Open to males and females. We welcome survivors of all cancers. 11 Coffee Chats Bring your coffee and enjoy a casual session in the Emerald III ballroom. Coffee chats available in this time slot are listed below. For more information, please visit www.VermontCancer.org. ✱ Y ou are What you Breathe Martin Wolf ✱ L ight, Darkness, Color, and Sound in Healing Martha Loving ✱P erforming a Self Breast Exam UVM Nursing Students ✱ F ight Cancer Deliciously! Chef Curtiss Hemm ✱ C oping with the Physical and Emotional Pain of Cancer Treatment Suzanne Hall, RN, BSW ✱ L aughter-cize and You Traci Pena 12 Culinary Demonstration ND Join local chefs for a culinary demonstration outside G’s Restaurant. This demo will give you a chance to learn some nutritional recipes and techniques that you can apply to create fast, healthy, and delicious meals anywhere and anytime. SESSION SIX ❭❭ 3:15-4:05 PM 1 P Oncology Rehabilitation: Steps to Wellness N PT RT SW Kim Dittus, MD, PhD V , Kristie Grover, PhD, Rebecca Reynolds, BS, Diane Stevens, PT Steps to Wellness is a comprehensive oncology rehab program. This session will be presented by the team that provides this care. It is also a research program and Dr. Dittus will be discussing the findings and implications of this research. Persons interested in joining the program will find the overview helpful and professionals who want to build a team in their facility will learn gain an understanding of development. We will discuss how a structured exercise program can improve health after cancer treatment. 2 PHYSICIAN TRACK: The Use of Opiates During Cancer Treatment P N CULINARY DEMONSTRATIONS Mark Pasanen, MD The use of opiates as a way to treat cancer symptoms and relieve pain can be extremely beneficial to patients, but it also carries risks if misused. This session will discuss the prescribing of opiates, when it is best to do so, and how to properly manage these powerful tools. This session is specifically geared toward primary care providers and other health care professionals. Please note that in order to fill the opiate management portion of the new CME requirements, this session will run until 4:15 PM. Back by popular demand, culinary demonstrations will be held outside of G’s Restaurant in sessions 3, 4, 5, and 6. Presented by a variety of local businesses and organizations, these demos will give you a way to enjoy meals and snacks that are healthy as well as delicious. Good nutrition is the first step to a lifestyle change that can help you fight off cancer more effectively, and we hope that these culinary demos will give you a place to start. Visit VermontCancer.org for full details. 3 Risk of Breast Cancer Recurrence Associated with Carbohydrate Intake and Tissue Expression of IGF-1 Receptor P N ND Jennifer Emond, MSc, PhD There is growing interest in how carbohydrate content of the diet may impact prognosis among breast cancer survivors. The study presented in this session assessed the association between a change in carbohydrate intake within a few years of completing treatment on prognosis among postmenopausal breast cancer survivors, and tested the mediating effect of that association due to expression of the insulin-like growth factor 1 (IGF1) receptor in the primary breast tumor tissue. 4 What’s New in Radiation Oncology P N RT Rick Lovett, MD V This session discusses the principles of radiation and how tissue sparing is accomplished, the new advances in radiation treatments, and how individualized radiation treatments are designed. 5 P Symptom Control During Chemotherapy N ND PT SW Jennifer May, RD, CD This session will provide helpful hints for the management of common side effects of chemotherapy, including taste changes, nausea, and constipation. The goal of the presentation will be to help patients find strategies for optimal tolerance of treatment and preservation of quality of life. Additionally, focus will be placed on the maintenance of one’s nutritional status to ensure treatment can be continued uninterrupted, and aid in healing. Information will be presented through the collaboration of a dietitian and a panel of oncology nurses. Time will be allotted for questions and discussion. 6 Enhancing Treatment and Survival with ACT N SW Suzanne Hall, RN, BSW This session will help care providers explore the ACT system (Acceptance and Commitment Therapy). Understanding the principles underlying ACT gives care providers a whole new set of simple communication and interpersonal skills to use when treating patients. ACT empowers patients to choose a new approach to the physical and emotional pain they experience during the treatment process, providing them with a new outlook and emotional understanding that can help them face difficult times. 7 B reast Lymphedema N PT RT Kristi Johnson, PT, LANA This session will cover the myths and mysteries of lymphedema specifically related to breast edema. Learning objectives are to obtain a basic understanding of: the lymphatic system, breast related lymphedema, risks and precautions, as well as some treatment options. 8 Is There Sex After Cancer? Reviving your Sex Life After Cancer P N SW Gale Golden, LICSW, BCD When an illness occurs, the accompanying treatments, medications and surgeries may diminish desire for sex and intimacy. Even in the best of relationships, an open discussion about sex may be daunting and thus avoided. This discussion will offer practical help on starting the dialogue and reviving the comfort of an intimate and sexual relationship. Help is on its way! 9 Survivorship NOW’s Art as Healing Carolyn Subin, PhD, LSW Express yourself with watercolors. Tap into your creative side—maybe one you never knew you had— to enhance your healing and joy. No experience or artistic skills necessary. Let Carolyn bring out the artiste in you! 10 Culinary Demonstration ND Join local chefs for a culinary demonstration outside G’s Restaurant. This demo will give you a chance to learn some nutritional recipes and techniques that you can apply to create fast, healthy, and delicious meals anywhere and anytime. 7 Exhibitors We anticipate additional exhibitors. Please check www.vermontcancer.org for exhibitor updates. For more information on exhibiting, please contact Charles Brooks at (802) 656-2176 or [email protected]. Exhibitor registration deadline is September 12, 2014. American Cancer Society www.cancer.org Cocktails Curing Cancer www.cocktailscuringcancer.com American Red Cross Blood Services www.redcrossblood.org Dana Medical Library library.uvm.edu/dana Amgen www.amgen.com Dragonheart/Survivorship NOW www.survivorshipnowVT.org Be the Match Registry www.marrow.org Eleanor B. Daniels Fund www.ebdfund.org BlueCross BlueShield of Vermont www.bcbsvt.com FAHC Breast Imaging www.fletcherallen.org/services/womens_ health/specialties/breast_imaging Bright Pink Vermont www.bebrightpink.org Cancer Patient Support Program, Fletcher Allen Health Care www.cpspvt.org Central Vermont Medical Center www.cvmc.org Christ Memorial Church www.cmcvermont.org FAHC Frymoyer Community Health Resource Center www.fletcherallen.org/community_ resources/resource_center National Network of Libraries of Medicine – New England Region www.nnlm.gov/ner Vermont Cancer Center www.VermontCancer.org Norris Cotton Cancer Center cancer.dartmouth.edu Pink Ribbon Butterfly Project Vermonters Taking Action Against Cancer (VTAAC) www.vtaac.org Solaris www.solarismed.com Steps to Wellness (Oncology Rehabilitation Program) www.stepstowellnessvt.org Accessibility for People with Disabilities Although the Breast Cancer Conference is spatially accessible to people with disabilities, please note that there are significant distances between some of the sessions at the event. We regret that we are unable to provide individual assistance for traveling throughout the premises. You are welcome, however, to be accompanied by someone of your choosing. We ask only that your assistant register for the event as well. For more information, please visit www.VermontCancer.org Conference Disclaimer The scientific views, statements, and recommendations expressed, displayed, or distributed during the Vermont Cancer Center Breast Cancer Conference represent those of the speakers and exhibitors, and do not necessarily represent the views of the Vermont Cancer Center, the University of Vermont, or Fletcher Allen Health Care. Inappropriate Behavior The Vermont Cancer Center Breast Cancer Conference is a community event meant to encourage togetherness and cooperation in the cancer community. Individuals who are disruptive or whose behavior runs counter to the goals of the conference will be asked to leave. Refund Policy The conference is free and open to the public. However, there are fees involved if you choose to order a lunch or request credit. Refunds for these fees may be obtained if notice of cancellation is received on or before October 1st. We are sorry, but no refunds are possible after this date. Vermont Reiki Association www.vermontreikiassociation.org 14th Annual Retreat for Stage IV Breast Cancer Survivors Thursday, October 9, 2014 Sheraton Burlington Hotel & Conference Center Join us for a wonderful opportunity to meet other cancer survivors and share experiences related to coping with metastatic disease. The retreat begins at 11 AM and continues into the evening. Participants share stories, learn new coping techniques, have time to swim, exercise, and use the spa. Lunch, dinner, and breakfast as well as overnight accommodations at the Sheraton are funded with a grant from the VT/NH Affiliate of Susan G. Komen. A limited number of scholarships are available for Vermont and New York state residents. Survivors from other states are welcome to attend, depending on space availability, and will need to cover their expenses. Please contact Rose Colletti, PhD at 802 847-5714 for more information. Retreat participants will be on site at the Sheraton to attend the 17th Annual Breast Cancer Conference on Friday, October 10, 2014. Registration for the conference is separate from the retreat. For information and to reserve your space at the retreat, contact: Rose Colletti, PhD, Staff Psychologist, Cancer Patient Support Program, Hematology/Oncology Clinic, Fletcher Allen Health Care, Burlington, Vermont • 802-847-5714 (Retreat registration deadline: September 1, 2014) Sponsored by a grant from the VT/NH Affiliate of Susan G. Komen for the Cure Post-Conference Event: Ultimate Survivor: A Culinary and Exercise Boot Camp for Cancer Survivors Saturday and Sunday, October 11th and 12th Curtiss Hemm, Pink Ribbon Cooking, Kim Dittus, MD, PhD, and Jean Harvey, PhD The Ultimate Survivor Boot Camp is designed to introduce cancer survivors to modifiable lifestyle changes that promote wellness and health after cancer treatment. Attendees will participate in guided hands-on healthy cooking instruction, supervised instruction on how to exercise and keep exercising and acquire skills that promote weight loss or maintenance. Participants must be able to walk for exercise and also should not be in active cancer treatment. All registrants will receive a personal phone call from Boot Camp Staff to review their medical history prior to the event. Special registration is required. Please visit www.VermontCancer.org. PRESENTING SUPPORT FROM www.med.uvm.edu www.FletcherAllen.org Vermont Cancer Survivor Network www.vcsn.net Vermont Department of Financial Regulation www.dfr.vermont.gov Peace Village Projects Greater Burlington YMCA www.gbymca.org Hotel & Travel Information This year’s conference will be held at the Sheraton Burlington Hotel & Conference Center (870 Williston Road, South Burlington, Vermont 05403). A limited number of rooms are available at a reduced conference rate. To receive this special rate, reservations must be made before September 12th. For more information about staying at the Sheraton or to make a room reservation, call (802) 865-6600. Visit www.VermontCancer.org for travel directions. www.VermontCancer.org (877) 540-HOPE Vermont Campaign for Healthcare Security Education Fund www.catamounthealth.org Solidea Medical www.solideamedical.com Thanks to support from the VT/NH Affiliate of Susan G. Komen for the Cure, there are a limited number of scholarships available for travel assistance for the 17th Annual Breast Cancer Conference. If you want to attend the conference but would be unable to do so because of the cost of travel, please call the Vermont Cancer Center at (802) 656-2176 or email [email protected] to inquire about receiving travel assistance. Susan G. Komen for the Cure VT-NH Affiliate www.komenvtnh.org National Breast Cancer Coalition www.breastcancerdeadline2020.org Genomic Health, Inc. www.genomichealth.com Travel Scholarships Available PRESENTED BY Lesbian Health Mammography Reporting System www.mrsys.com www.komenvtnh.org www.komen.org GOLD-LEVEL SUPPORTER www.bsbsvt.com SILVER-LEVEL SUPPORTER www.frontporchforum.com