aboard the ark Autumn 2014 www.noahsarkhospice.org.uk
Transcription
aboard the ark Autumn 2014 www.noahsarkhospice.org.uk
d r a o b a k r a the Autumn 2014 e.org.uk ospic h k r a s h a o .n www help us make every precious moment count 020 8449 8877 3 Beauchamp Court, Victors Way, Barnet, EN5 5TZ Registered Charity No. 1081156 … e m o c l e w news and out the latest d n Fi ’. rk a e es. th ren and famili e of ‘aboard ild su h is c r n u m o tu fit u e a n to the pport be ations and su how your don did you know? “I am delighted to have this opportunity to welcome our new Chief Executive, Ru Watkins who took up office in July this year. We are very pleased to have Ru at the helm of Noah’s Ark – especially at such an exciting time for the charity. If you have not already done so, I urge you to read his full biography on the Noah’s Ark website www.noahsarkhospice.org.uk – but suffice it to say, Ru brings with him a wealth of experience and abounding energy. He is also keen to meet you: our friends and supporters, to thank you personally for making our work possible and to hear your views about how we can improve and develop. Please do get in touch with Ru and introduce yourselves. In our last Newsletter we mentioned that we were seeking your advice on how we communicate with you. Thank you to all those who took part in our survey and to those who contacted us to let us know what we do... Noah’s Ark provides practical care and emotional support to families with children who have life-limiting or lifethreatening conditions living in the North London boroughs of Barnet, Camden, Enfield, Haringey and Islington. We support the whole family and need to raise over £1.3 million annually to provide these vital services. The children we work with have a range of conditions and often have very complex needs. Our services aim to help the children and their families make the most of the time they have together and we continue to support families after bereavement. Our Family Link Workers help families negotiate the complex social care, benefits and clinical arenas. Our nurse-led team of Specialist Carers are trained in the needs of the child to allow parents to take a much needed break. their thoughts on ‘aboard the ark’. As a result of our evaluation, we will now be mailing ‘aboard the ark’ twice a year: in May and in November – and in touch with you in between times via e-news. In order to move to this more modern, economically wiser and environmentally friendlier position, we need everyone’s email address. Please send us your email address at [email protected] so that we can keep you updated about the wonderful work of Noah’s Ark and abreast of ways in which you can help us. This Christmas we will be thinking especially about the precious moments we share with our own families and friends and asking you to think about the children and families we support here at Noah’s Ark. Thank you for helping us to create precious moments that make ever-lasting memories. If you would like to get in touch with the team at Noah’s Ark Children’s Hospice our details are below: Wishing you season’s greetings and every good wish for 2015.” 020 8449 8877 Michael McInerney, Chair of Trustees They provide sessions of care for children in their own homes which can lessen the need for medical or hospital visits. Our play Specialists offer fun play to ease the anxiety of the child who is receiving treatment and help them cope with difficult feelings. Our Family Support Volunteers also provide support for families in a home or community setting; helping out with driving to hospital appointments, shopping, playing with siblings and helping with homework. Our Parent’s Group is held six times a year and enables mums, dads and carers to get together, share ideas and support each other in facilitated groups. Brothers and sisters are very important to Noah’s Ark, and our Family Activities Workers organise monthly activities for the siblings to meet and have fun with other children who are in similar situations to them. To learn more about our services or to make a referral please call 020 8449 8877. Aboard the Ark Editor: Ghazal Tipu Design & print: DS Print Services Special thanks to airbusiness for distribution 2 Registered Charity No. no. 1081156 We will be sending e-news once every 4-6 weeks. If you would like to receive e-news please email us at enews@ noahsarkhospice.org.uk Noah’s Ark Children’s Hospice 3 Beauchamp Court Victors Way, Barnet Hertfordshire EN5 5TZ @NoahsArkHospice www.facebook.com/ NoahsArkChildrensHospice www.noahsarkhospice.org.uk It is with sadness that we share with you the news of the sudden death of Ted Gladdish, our former CEO. Ted was with Noah’s Ark in a parttime capacity until June this year and died suddenly whilst golfing in Spain in September. Our thoughts are with his family during this sad and difficult time. Noah’s Ark Children’s Hospice A member of Together for Short Lives Noah’s Ark Children’s Hospice is a charity registered in England (1081156) and incorporated as a company limited by guarantee (3901606) interview with … Chief Executiv e Ru started to put together a care model that encompasses social as well as clinical care. You have to remember that many of our children will be with us for a long time, so we need to match their expectations as they mature. Why were you interested in the role of Chief Executive at Noah’s Ark? When I left the Army, I worked for several years in the Business and Corporate sector. I got out of bed each morning and thought ‘that’s great – got stuff to do’, but there was something missing in my career. The missing bit was the ‘addback’ – getting out of bed and knowing that you will make a difference, and can help make life more bearable for someone. Luckily enough, the mix of a military and business career gives you many different skills and at times a particular skew on life. So when I was asked to join Noah’s Ark, I realised I could make a difference to many people and use a lot of my skills, as well as get out bed with a real aim for the day. Also, Noah’s Ark is unique in what it delivers, and I love that desire to do the best and get better - that is part of the Noah’s Ark culture. What are your plans for the next six months? My plan is grow and build a Noah’s Ark family across Barnet, Camden, Enfield, Haringey and Islington. According to national research, we are only reaching 20% of the children and families that need our help. So we must grow to help them. We need to innovate and think differently about how we do our work and deliver our care. We have We are going to increase our volunteer base and offer a development pathway. I am really excited about this and know that we will be leading the way nationally. We need to ensure we also listen to people as they can help us. We need to grow our income so we can support the children that need our help - so we need to re-engage with our supporters and remind them we are here. Part of this is how we generate income, so we need to partner within and outside the sector and with businesses. We need to gain more statutory funding. There are a lot of opportunities out there, so we now need to get on with it. We need to develop our retail outlets and use our shops differently as drop in centres perhaps, or locations for us to promote Noah’s Ark. We are just going online in the retail world, and having come from the UK’s No 1 white goods retailer, I am now looking at how we improve this. It’s a great start but we need to do much better. I also want to see us start the construction of the Environmental Centre at Byng Road in early January 2015. Laying the foundations is the trigger to building the hospice. I prefer to call it a ‘Beacon’ but more of that next time. Critically we need to communicate what we are doing across London and most importantly across our growing Noah’s Ark family. make a memory campaign Text MAKE20 £10 to 70070 to donate £10 NOW Watkins What are the challenges ahead for Noah’s Ark? Growth for any organisation is difficult and there are many challenges in terms of income, how we work together as a team, who is part of the team and not losing our culture or ethos. So there are quite a few internal challenges for us to work on and many external ones, but even only after 12 weeks, I feel really heartened that the innovation, passion, commitment and many of the skills we need to conquer the challenges are there. You have been at Noah’s Ark for 3 months – what have you learned during that time? I have actually learnt a lot in many different areas but, most importantly, I have learnt that we are really needed across North London and that the Noah’s Ark family want to make a difference in the boroughs we work in. With that knowledge behind you, you have to commit 100% to growing the charity. What have you enjoyed in your role so far? I tend to be a bit of a mix of thinker and doer. There are some great projects to deliver such as the ‘Beacon’ hospice and communications campaigns, and thinking how we can be more effective. I also love getting involved, so I have really enjoyed the variety of the Chief Executive role. One area I do really enjoy is meeting up with our Noah’s Ark family in terms of staff, volunteers and, really importantly, the families and the children. You have got to be really selfish to feel hard done by when you see what some of our children and families go through, so when one of the children comes up and asks for a race at sports day or just tells me about their first day at school, then you know that Noah’s Ark has made a difference and that is what I love. 3 . . . y r o t s r i e h t “Our sons Wiktor, Borys and Alexander were born three months premature as a result of complications during my wife’s pregnancy. Unfortunately, Alexander suffered severe brain damage and passed away a few hours after birth. For a month, the doctors battled constantly to stabilise Wiktor and Borys. After three months of care, Borys was finally discharged from the hospital, though Wiktor had to stay in the Intensive Care Unit for a year battling for his life. During this time, he suffered several life-threatening complications, which caused Cerebral Palsy. Wiktor is unable to talk but has developed his own way of communicating his emotions. His illness affects the muscles in his hands and legs which hinder his movement, however it doesn’t stop him from playing with his toys or showing acts of excitement by gently kicking his legs. Wiktor enjoys playing with his sensory toys and loves his games for children with special needs. He also enjoys watching his favourite programme “Something Special”. Wiktor needs our 24-hour care and commitment. Apart from the regular duties of changing and cleaning, his medication and liquid food are ingested directly into his stomach through a tube. Flu has threatened Wiktor’s life on three occasions, resulting in him being admitted into hospital. His difficulties swallowing cause further complications, as excess saliva and mucus can block his airway or lungs. Such a scenario has seen him also admitted into hospital under the Intensive Care Unit in an attempt to unblock his respiratory system. His lungs get weaker every time such equipment is used on him, so he needs regular physiotherapy to loosen the mucus in his lungs and airway. The torment we face every time Wiktor is rushed off to an Intensive Care Unit is mentally and physically exhausting. Our son is disabled and the reality is that there is nothing we can do to change that, however, Borys blowing bubbles at the summer ball we want the best for him because we love him so much. Noah’s Ark has supported us since July 2009. Our children are always happy to take part in the inclusive events and outings. This year, the summer ball yet again provided lots of activities for children with additional needs. My sons loved the sensory activities and group singing, and Wiktor especially loved the bubble machine. These activities greatly develop Wiktor’s development. One of the services that provides great support to our family is the Sibling Support Programme. My son Borys has the opportunity to spend time with other children and engage with them. It allows us the freedom to devote more time to Wiktor. When Rebecca, our Specialist Carer, plays with Wiktor it greatly benefits him. It also allows us to catch up with important housework, which is a bonus. This wonderful charity has been like one big family, aiding us through joyous and sorrowful moments. They are always eager to help and most importantly, thanks to them, all the children are happy and they feel included.” The Borkowski family 4 Registered Charity no. 1081156 fundraising n ews… featuring storie s from some of our amazin have been fu g supporters ndraising in th who e community diary are on . More dates page 14! for your did you know? There are a number of ways you can support us! • Make a donation We are funded almost entirely by voluntary donations from people who want to make a real difference to life-limited and life-threatened children and young people. • Sign up for a regular gift Regular giving means we can plan for the future. rainbow run It was a sight to behold as 150 runners were covered in powder paint at our first Rainbow Run held at Allianz Park, Hendon in July. As they ran around the perimeter of the 5km route, the participants were bombarded with all the colours of the rainbow. We are delighted that we raised over £14,000 from the participants, and would like to thank Martyn Gerrard Estate Agents for their sponsorship support. “I was planning on pushing both my daughters in their wheelchairs for the entire course!” • Join TEAM Noah and take part in a challenge event We have many exciting events throughout the year. • Hold your own fundraising event Why not get together with friends, family or colleagues and hold your own event? We can help you with ideas, posters and collection tins. • Company giving We can work with companies in many ways e.g. Charity of the year, sponsorship opportunities, employee fundraising, and cause-related marketing promotions. • Text donate Make a quick £5 donation by texting NOAH05 £5 to 70070. • Leave us a Legacy Leaving money in a Will is one way in which you can continue to show your support. • In-kind donation Maybe you would prefer to donate a service, or goods that can be auctioned? Among the runners were Karen and her two daughters Nix and Addy who we have supported since 2010. “When Nix had major surgery, Noah’s Ark provided specialist care and volunteer support, which helped us to manage the post-op experience. Without them we would have really struggled as our local nursing team said they didn’t have the resources to help at all. The support has continued and we as a family really appreciate it. So when I found out about the Rainbow Run I thought it would be a good way to try to raise some money to say thank you and at the same time have a bit of fun! My three-year old said at the end “Mummy, the Rainbow Run was fantastic. Can we do it again?” I was planning on pushing both my daughters in their wheelchairs for the entire course, but realised once we hit the first field that wasn’t really going to be possible as it was just too bumpy! Two hands on a chair meant a smoother ride, so being independent and rising to that challenge just wasn’t going to happen all the way. But, as always – Noah’s Ark came to the rescue - and Laura happily helped us along the way. In fact, I think we were almost beating off offers of help at one point! (Note for our sponsors, I did push them both for part of each field, I promise!) We will definitely be doing it again next year, though I shall learn from this year, and protect the girls’ wheelchairs before we start. And I’ll make sure I have help on hand for the cleaning-up process when we get home! We’re still dusting off the blue powder from the wheelchairs!” 5 … s w e n g n i s i fundra Schools…Get involved! Highgate Pre-Prep and Junior School raises £13,000 for Noah’s Ark. A BIG thanks! Are you a teacher or a School Governor? Or are you a parent with school age children? And do you love the work that we do? We are keen to work in partnership with new schools and want to hear from you! Schools benefit from working with us. Learning about the realities that face life-limited and life-threatened children and their families enhances children and young people’s personal and social development. And through fundraising, children and young people learn about the value of working together and giving back to the community. Mia Thai in Year 13 of Hertswood Academy told us “Raising money for Noah’s Ark has made us gain a real sense of community cohesion and we have thoroughly enjoyed it.” There are many ways in which schools can support us too: • Make Noah’s Ark your school, house or year group’s Charity of the Year. • Take part in our Bunting Challenge - a Guinness World Record attempt for the longest string of bunting Reaching out to faith communities We know that families accessing Noah’s Ark services come from a range of cultural and religious backgrounds. From varying weekend events between Saturdays and Sundays, to catering for religious dietary requirements, to providing a quiet room which can be used for prayer, we try to ensure all our families feel comfortable and respected whenever they are at one of our events. Whether your synagogue is looking for volunteering activities during Mitzvah day, or your local church is organising charity collections during Christmas or Lent, we hope you will think about supporting us as your charity of choice. flags. We need as many schools to take part as possible! • Hold a fundraising event - cake sale, dress down day, quiz or talent show. Why not hold an event in the run up to Christmas during our make a memory campaign? Sarah Latchford, Community Fundraising Officer, is available to speak at PSHE and citizenship lessons and school assemblies. If you would like more information or wish to book Sarah as a speaker, please contact her at slatchford@noahsarkhospice. org.uk. A huge thank you to the schools that have supported us and continue to do so. thank you Thank you to Ian Hill and his team for raising over £5,500 cycling around the Isle of Wight...to the Going Noah Fast team for raising nearly £5,500 even when the exhaust fell off during the Ramshackle Rally...to Mill Hill, The Shire and Hendon Golf Clubs for selecting us as their Charity of the Year...to everyone in TEAM Noah for raising over £9,500 so far from the Royal Parks Half Marathon...and to Angle House Orthodontics for their fundraising Winter Ball To find out more about how you can get involved contact Priya, Community Fundraising Manager, on 020 8449 8877 or [email protected] Ian Hill and his team 6 Registered Charity No. 1081156 in the Spotlight… Diyen Ramani Diyen Ramani will be braving the Moroccan Sahara in March 2015 with TEAM Noah. He and his wife have been supported by Noah’s Ark Children’s Hospice since 2011 Why are you taking up the challenge? I am taking up this challenge in memory of our bebo, Kayen Ramani. He had so many happy days with Noah’s Ark, and I am so grateful for that. I would like other children and families to benefit from the charity’s great work. My son Kayen is my inspiration, with his beautiful smile, warm cuddles, and personality. His memory has inspired me to conquer my fears. We ought to be learning something new every day, because before you know it, time has flown by and can’t be brought back. Live everyday as if it’s your last. Do you have a fundraising target? My target is to raise close to £2,000, and anything more than that would be a bonus. Staff at Noah’s Ark are so friendly and helpful, and I know will support me to reach my target. am not looking forward to the lack of home cooked food! What would you say to someone who is thinking about signing up for this challenge? Signing up is an opportunity to raise funds for a local cause that is so in tune with children’s and families’ needs. Noah’s Ark has simply been a life-line to my family and many others in North London. We’ve felt so supported during our time of bereavement. If you are interested in signing up to the Sahara Trek or would like an informal chat, please get in touch with our Fundraising and Challenge Events Officer Elena Damiani at [email protected] Sahara: The Trek What training are you planning to do for the challenge? I’ve already started to do long walks every evening, and plan to do longer endurance walks as I build up my stamina. Join TEAM Noah for a 7-day challenge trek in the Moroccan Sahara accompanied by professional English-speaking Berber guides who have an excellent knowledge of the region. The guides are first aid trained and will support you throughout your journey. You will also be supported by a team of support staff including cooks and camel handlers who together make your journey possible. What are you looking forward to the most and the least on the trek? I am simply looking forward to the challenge of trekking the Sahara desert, which I’d never imagined doing in my life! I am most looking forward to sleeping under the stars as it’s something I have always wanted to do. Every night I will look out for our bright shining star Kayen, and I know he will be guiding me on the trek. I Test your survival skills during the days of trekking in inhospitable landscape and cross sand dune fields, rugged stony ground, dried up river beds, large rocky outcrops and wide gushing rivers with your camels in the same way the Berber communities do! Enjoy delicious Moroccan meals and then rest under the starred sky during the night or sleep in a Berber tent if the weather requires. Throughout the trek you will gain an understanding of the Berber way of life and learn about important survival skills in the desert, such as how to cook bread in the sand, how to navigate by the stars and where to find water. Simply epic! follow us! @NoahsArkHospice www.facebook.com/NoahsArkChildrensHospice 7 … n g i a p m a c y r o m e m make a Make a Memory This winter, we will be asking you to make a memory. We all have cherished memories from our childhood. Whether playing on the streets until the sun went down, climbing trees, getting covered in mud, or jumping in puddles: these memories of play and exploring the world will stay with us always. Many of the seriously ill children that we work with are unable to experience the world in quite the same way. They require 24/7 care; many are in and out of hospital and for some families, simply getting out of the house can prove an overwhelming task. At Noah’s Ark, our Specialist Carers and our inclusive activities create precious moments for our children and families both in their homes and at our events: precious moments which make everlasting memories. Help us make everlasting memories for the children and families supported by Noah’s Ark Children’s Hospice. #MakeAMemory Text MAKE20 £10 to 70070 Precious Moments Concert Thursday 27 November, doors open 6pm We are delighted to invite you to a magical evening of festive music at our first Precious Moments Concert, which is supported by Stephen James BMW. Enjoy performances from local schools and community choirs – including singers from the Crouch End Festival Chorus, Coldfall Primary School, and Rhodes Avenue Primary School - under the musical leadership of David Temple and Amber Salladin. Launching our ‘make a memory’ campaign, this will be an evening for all the family to enjoy with Christmas carols and well known songs at one of the most beautiful churches in North London, St James’ Church in Muswell Hill. Doors will open at 6pm for a festive drinks reception and the concert will begin at 7pm. Tickets are available to purchase now for just £15 per adult/ £8 per child. To purchase a ticket please visit: https://preciousmomentsconcert-noahsark.eventbrite.co.uk or call Gina on 020 8449 8877 make a memory campaign Text MAKE20 £10 to 70070 to donate £10 NOW 8 Registered Charity No. 1081156 corporate ne ws… in the Spotlight… Accountancy Action Accountancy Action is a specialist in accountancy and finance recruitment across Hertfordshire, London, Bedfordshire and Cambridgeshire. Their philosophy is “redefining recruitment since 2001” Why did your company decide to start supporting us? We chose to support Noah’s Ark as you are a local charity and we know that the money we raise will make a real difference. It also helps that Noah’s Ark engages with us regularly and we know that you are thinking of ways in which we can get involved. We’re more than just helping people find a new job. As a business, we’re big believers in good citizenship and promoting best practice at all times. This includes being aware, and ensuring our consultants are aware, that our sector has a great deal of impact on the lives and communities around us. We feel this is often forgotten in our sector. How do you think we add value to your brand and organisation? The charity supports families and we have a passionate, family culture here at Accountancy Action. It is also refreshing to support a children’s charity that is not mainstream. You are a bit quirky and niche, which reflects our own brand and personality, therefore we see the partnership as a perfect match. Everyone at Noah’s Ark is enthusiastic and we are always made to feel that every donation, no matter how big or small, counts. We love the fact that representatives of the charity visit us and engage with our events. This is great for our clients to understand more about why we support Noah’s Ark and it also makes us feel more involved with the charity. How has Accountancy Action supported Noah’s Ark? Our clients really get behind our efforts to support Noah’s Ark. Whether it is the Annual Golf Day which raised over £2,000 or our Easter egg collection for the Easter Eggstravaganza where we collected over 450 eggs, our clients at Accountancy Action are so generous! People, employees and clients, want an opportunity to make a positive difference. We pledged to donate £2 for every new Twitter follower of Accountancy Action during Children’s Hospice Week, which raised £1,000, and we held a Christmas jumper day in which employees attended their company meeting in their best Christmas Jumper! Would you encourage other organisations to support Noah’s Ark in the same way? Most definitely. Noah’s Ark offers a great corporate partnership and bespoke ways of working together. The charity looks at your business and fundraises around key events in your diary. Stephen James Enfield supports make a memory appeal Stephen James Enfield, an authorised BMW dealer, is currently supporting Noah’s Ark Children’s Hospice. Throughout the year they have auctioned off their Head of Business, held a golf day and charity auction, and collected Easter Eggs. We are also grateful they are supporting our Precious Moments Concert in November. Morgan Stanley Clifford Chance Charity Football Cup Twelve city legal firms gathered for the Morgan Stanley Clifford Chance Football Cup to show off their football skills and raise money for charities including Noah’s Ark. They raised over £23,000 of which £4,250 went to Noah’s Ark. Thank you! 9 … s w e n t r o p p u s y l i m a f care and Spending time as a family: Bubbles, singing and laughter In July, 113 family members attended our annual ‘Summer Ball’ party. We worked with three organisations that specialise in providing inclusive activities. Performers from charity ‘Spread a Smile’ entertained families with imaginative magic, singing and story-telling, ‘Bag Books’ provided sensory story sessions and ‘Movers and Shakers’ held a lively music activity with singing, clapping and movement. Throughout the day, the children, parents and carers could also try arts and crafts, get their faces painted and play video games on the Wii and PS4. A highlight for everyone was the bubble station which provided lots of fun, smiles and laughter. did you know? • We are able to take referrals directly from families as well as professionals. • Once a referral has been accepted a member of our Family Link Team will visit the family to talk about what support or service might be helpful. • We look at the needs of the whole family. • Our Care Team works together to create an individual support plan for the family. • Every family has access to a Family Link Worker, family days and sibling groups for brothers and sisters over the age of six. • Families with a greater need for support may be offered a family support volunteer or respite from one of our specialist carers. Building confidence and teamwork at Sibs Weekend Away Our model of care is holistic. We understand the ripple effects of having a life-limited or life-threatened child in the family and support the whole family including siblings. Twenty young people enjoyed a weekend of rafting, quad biking and outdoor pursuits at the fifth annual Siblings Weekend Away in August. As well as being great fun, the outdoor challenges provided an opportunity to build teamwork skills, gain confidence and make new friends. The Sibs weekend away, together with other events throughout the year, allow these children and young people to prepare for what may be difficult times ahead. The weekend helps to foster close and supportive relationships between the siblings. A big thank you to Skanska Balfour Beatty for supporting the Weekend Away. 10 Registered Charity No. 1081156 • Our Parents’ Group meets six times a year and offers opportunities for parents to share worries and solutions, and to socialise over lunch. The sessions are facilitated by the Family Link Team, and a crèche is provided. We care 24/7 A day on the farm Twenty five children and their families enjoyed a trip to Belmont Children’s Farm in August. This event enabled the children we support to enjoy fresh countryside air away from the city. Many of the children make regular visits to the hospital so outings like these allow a break from their routine and help towards their development. A day of inclusive sports Every child deserves to play and feel included. We know, however, there are barriers to play and leisure opportunities for life-limited and life-threatened children, despite their parent’s best efforts. Every year we organise a Sports Day encompassing a range of inclusive sporting and leisure activities. Physical activity is so important for children’s psychological wellbeing and development, because without sufficient play opportunities, seriously ill children are at risk of being isolated from their peers. The trip allowed the children to learn about animals outside the classroom setting, since these opportunities are not always accessible to them. One participant is visually impaired, and spent half an hour with Volunteer Leon listening to the different bird songs. Belmont Children’s Farm was chosen especially because of its accessible facilities. Laura Bridle, Family Activities Worker, made sure the tractor rides were adapted to ensure we could accommodate all our wheelchair users. This year, 51 family members took part in our Sports Day which was held at Ashmole Academy in Southgate in July. During the morning the children and their families had the opportunity to take part in a variety of sports activities including sitting volleyball, accessible tennis and cheerleading, suitable for a range of abilities and all wheelchair friendly. In the afternoon they finished with relay races and a certificate presentation. Memory Day It is important for Noah’s Ark families to have a time to remember the children who have died and to celebrate their cherished lives. As part of a developing service for bereaved families, our fourth annual memory event was held in September and was attended by parents, siblings and relatives. Families shared poems and tributes, and lit candles in memory of their children. We are grateful to Christchurch School in High Barnet for providing the venue and to all those who attended who made it such a special occasion. Music Session at Arts Depot did you know? • In the last five years we have increased the number of families we support annually by three-fold, from 56 families in 2009 to 171 in 2014 to date. • It currently costs £26,000 a week to run our services and we only get 10% from statutory funding. Robbie and a group of children enjoyed a jamming session with their specialist carers. make a memory campaign Text MAKE20 £10 to 70070 to donate £10 NOW • We are only reaching 20% of those needing our help. 11 … s w e n r e e t difference volun e g u a h e me can mak ur ti the gift of yo Vacancies An evening with Chief Executive Ru Watkins Our new Chief Executive, Ru Watkins, held a meet and greet evening with our volunteers at Stephens House & Gardens in Finchley in October. Ru was keen to meet with the volunteers, so that he could present his exciting plans for the development of Noah’s Ark, and share how volunteers can get involved. Noah’s Ark will focus on the investment and training of our most important resource; our staff and volunteers. A part of the plan is to provide a development pathway for our volunteers across all areas of our work that will allow them to learn new skills. He said: “Noah’s Ark has reached an important milestone in its development. This year, we have been supporting 124 children and 152 families as a whole, including 33 bereaved families. However, we know we are only reaching 20% of those needing our help. Because of this, it is our intention to expand, by growing and developing our programme of community and home-based care. Allied to this expansion, we will be increasing our outreach and volunteer programmes. We strive to be the best at everything and recognise that our volunteer workforce is a key asset in achieving this.” The evening also included a feedback session, which allowed the volunteers to share their views and ask any questions. Given its success we will be holding more events like this in the future. Volunteers in action 12 Registered Charity No. 1081156 We have two internships to support us during our exciting period of growth. Please get in touch if you are interested! Fundraising Intern If you are keen to gain experience working in a fast paced, professional fundraising team and you have good business acumen, this is the job for you! You will play a pivotal role supporting our Senior Corporate Fundraiser and helping Noah’s Ark’s growth in corporate fundraising. How to apply: Email CV and cover letter to Sarah Cadogan at [email protected] Marketing & Communications Intern Are you a marketing and communications graduate with impeccable communication and marketing skills looking to gain experience in the third sector? We are offering a six month unpaid placement to a conscientious, self-starter who is ready to hit the ground running! How to apply: Email CV and cover letter to Ghazal Tipu at [email protected] Deadline: 30 November 2014 for both internships Get Involved Family Support Volunteers in the Spotlight… Clare, Family Events Volunteer CMI Sustainable Business Manager, Clare Parsons, has been an Events Volunteer for the last three and half years with us. Why did you choose to volunteer for Noah’s Ark? I learned about the charity when I met a member of the Noah’s Ark team and knew that I could help make a tangible difference to the families. I also wanted to do something for a charity outside of my corporate work. Tell us about the support you provide for the children and families at events? I provide support mainly at sibling events. I help with transport, escort siblings in taxis, oversee events, get involved with what the kids are doing and make sure they enjoy themselves. I like the ongoing relationships – it’s lovely to see the same families again, and pick up conversations. Which events have you volunteered at recently? Most recently, we did a scavenger hunt at Stratford Westfield. Before that, we had an animation day and also visited White Hart Lane which was great fun. What was really good was the Sibs Weekend Away. It was amazing to watch the kids on zip wires, mountain bikes and giant swings! How do the events help the siblings of the seriously ill child? It gets them out of the home environment and gives time to the family to focus on the referred child. It also helps them to have peers who understand their situation. I’ve Shop addresses seen siblings grow in confidence as they get to know the staff and volunteers – you can see their development. What do you get from your role as Family Events Volunteer? It’s great to spend time with the kids because they’re hilarious and I enjoy interacting with their different personalities! I like to see them getting used to the groups and understanding what each other is going through. It gives me a different layer of respect for those who face these challenges everyday. Would you recommend Family Events volunteering and why? Absolutely! I think the rewards for the volunteer are equal to the benefits you are giving to the family. Noah’s Ark is an incredible charity to work with. Have you ever fundraised for Noah’s Ark? I did the Himalaya Trek last year. It was an amazing and beautiful trip, and I met a great bunch of people. I had a year to fundraise towards my target of £2,750 during which time I did a 30-day Bikram challenge, bucket collections and talked to friends and family to raise money. I actually beat my target and raised £3,750! It was even more motivating and special because I volunteer - I can see how well Noah’s Ark spends its money, so I did as much as I could. Family Support Volunteers support Noah’s Ark children and families. You can either support a family in the home - playing, helping with homework, gardening or ironing or support families at a Family Day, Parent or Sibling Group. This is a highly rewarding volunteer role, which can also provide invaluable experience working with children. If you are interested in finding out more please email Tom Smith, Family Support Volunteer Manager, at tsmith@ noahsarkhospice.org.uk Fundraising Events Volunteers Are you looking to get experience in fundraising? Then this is the role for you! Come along to our fundraising events throughout the year to help run stalls, raise awareness and perhaps even organise a fundraising event of your own! Fundraising raises vital funds to provide our services for children and their families. Please email Amy Walker, Volunteer Development Manager, at awalker@ noahsarkhospice.org.uk for more information. Charity Shop or Warehouse Volunteers We have three busy shops in High Barnet, Finchley Road, and a third in Borehamwood where we recently celebrated our first year! Volunteers help to sort donated goods, restock the shop floor, serve customers and undertake a variety of roles that help our shops to thrive. Volunteering at our shops is a great way to make new friends and give back to the community. Please email Amy Walker, Volunteer Development Manager, at [email protected] for more information. Barnet 103 High Street, Barnet, Herts EN5 5TZ Tel: 020 8440 8656 Finchley Road 287 Finchley Road, London NW3 6ND Tel: 020 7443 7766 Borehamwood 24 Shenley Road, Borehamwood WD6 1DR Tel: 020 8953 4209 13 … d e v l o v n i get it . Why not cut your diary dates for tice board? o n r u o y n o it out and put Precious Moments Concert 27 November – St James Church, Muswell Hill We are delighted to invite you to a magical evening of festive music. Enjoy performances from local schools and singers from the Crouch End Festival Chorus. An evening for all the family to enjoy. ation on any For further inform or to tell us of these events ising please about your fundra raising team on contact the fund 7. 020 8449 887 rkhospice.org.uk Visit www.noahsa .. fundraising pack to download your Virgin Money London Marathon Sky Dive 28 February 2015 Experience the unparalleled feeling of freefalling at 120mph from 13,000ft! Do something exciting today and get your family, friends and colleagues involved. 26 April 2015 Could you help us build a team for the London Marathon? If you are applying for a place through the ballot system and are looking for a charity - choose Noah’s Ark. There is no minimum sponsorship to raise if you have your own place and you will be part of an amazing team: TEAM Noah! Bupa London 10,000 25 May 2015 – St. James’s Park Celebrate your May Bank holiday raising money for your favourite charity! A 10k run, the Bupa London 10,000 starts and finishes in St. James’s Park and follows an anticlockwise route around the City of Westminster and the City of London. Santa Run Sahara: The Trek! Collections, carol signing and bag packing will take place throughout December. So keep your eyes out for the bright red t-shirts, Santa hats and our fabulous collection buckets! 21 – 28 March 2015 – Morocco Join TEAM Noah for a 7-day challenge trek in the fantastic Moroccan Sahara, accompanied by professional English-speaking Berber guides, who have an excellent knowledge of the region. The guides are first aid trained and will support you throughout your journey. Trek 100km over 3 full days in the desert; a truly beautiful place to discover, while the incredible star-strewn night skies are unforgettable. Haydn Chamber Orchestra Easter EGGstravaganza Christmas Collections Throughout December 7 February 2015 – St Michael’s Church, Highgate Tickets are £25, £20, £15 reserved, and £10 unreserved. For further information, please contact Pauline Treen on 020 8340 5643. 14 Registered Charity no. 1081156 3 – 4 April 2015 – Capel Manor Gardens, London Come down to Capel Manor Gardens, Enfield, this Easter Bank Holiday to keep your little bunnies busy with lots of fun Easter activities. Nightrider 6 June 2015 – London Nightrider is a unique 100km moonlit cycle ride past London’s iconic landmarks. Starting at Alexandra Palace, you will cycle over Tower Bridge, through Canary Wharf, around the buzzing Piccadilly Circus; see the London Eye lit up and cycle over the crossing on Abbey Road. ✂ 7 December – Victoria Park, East London Join 3,500 wannabe Santas and descend on the capital on a Christmas mission to raise vital funds for us. This is a 5k or 10k sponsored run with a difference. Do not miss the Christmas Event of the year and be part of Santa’s TEAM Noah! designed by awarding-winning illustrator Jane Ray We are thrilled that award-winning illustrator Jane Ray has designed Noah’s Ark Christmas cards, and general cards for all purposes. They are now available to purchase from our eBay store and charity shops. You can also call and order the cards from Rebekah Severn on 020 8449 8877. Buy now while stocks last! Alison Goodman, Noah’s Ark Director of Income Generation, and Jane Ray Christmas card Available in packs of 10 for £3.95 General card Available in packs of 10 for £3.95 15 y r e v e e k a help us m t n u o c t n e m o m s u o i c pre If you would like to make a donation, please complete the form below. There is also an option to become a regular giver, which helps us to plan for our future. Thank you for your support! Regular donation Single donation I would like to give a one-off donation of I would like to become a Regular Giver £ Start date: Please select below the payment type you are making, if you have selected to make a one-off donation. Cash I will donate £ Cheque (made payable to Noah’s Ark Children’s Hospice) Hospice monthly until further notice Donation by credit/debit card: (Please enter your details below) Please debit my Visa Mastercard CAF Card Address: Card Security Code Postcode: Expiry Date (last three digits on signature strip) Issue number Full Name: Maestro Card Number Maestro only: to Noah’s Ark Children’s Email: Valid from Expires end Signature Date Telephone: / / Full Name: In order for us to set up your Regular Giving, we will require your bank details: Instruction to your Bank or Building Society to pay by Standing Order Address: HSBC, 171 Darkes Lanes, Potters Bar, Hertfordshire EN6 1BU Sort code: 40-37-19 Account No: 41368109 Noah’s Ark Children’s Hospice, 3 Beauchamp Court, Victors Way, Barnet, Hertfordshire EN5 5TZ Postcode: Email: Name and full postal address of your Bank or Building Society Telephone: Your gift already makes an incredible difference, help us make it go even further by completing this Gift Aid declaration form. If you are a UK taxpayer you can increase the value of your donation, as Gift Aid means that every pound you give us, we will receive an extra 25p from HMRC at no extra cost to you! I would like Noah’s Ark Children’s Hospice to treat all gifts of money that I have made in the past 4 years and all future gifts of money that I make from the date of this declaration as Gift Aid donations. To: The Manager I confirm I have paid, or will pay an amount of Income Tax and/ or Capital Gains Tax for each tax year (6 April to 5 April) that is at least equal to the amount of tax that all charities or Community Amateur Sports Clubs (CASCs) that I donate to will reclaim on my gifts for that tax year. All other taxes such as VAT and Council Tax do not qualify. Further information on Gift Aid can be found on the HM Revenue and Customs website. Please notify Noah’s Ark if you: (1) Want to cancel this declaration. (2) Change your name or home address. (3) No longer pay sufficient tax on your income and/ or capital gains. Please note: If you pay Income Tax at the higher or additional rate and want to receive the additional tax relief due to you, you must include all your Gift Aid donations on your Self Assessment tax return or ask HM Revenue and Customs to adjust your tax code. Bank or Building Society Address Postcode Name(s) of Account Holder(s) Branch Sort Code Bank or Building Society account number Reference (for official use only) Instructions to your Bank or Building Society Please pay Noah’s Ark Children’s Hospice by Standing Order from the account detailed in this instruction subject to the safeguards assured by the Direct Debit Guarantee. I understand that this instruction may remain with Noah’s Ark Children’s Hospice and, if so, details will be passed electronically to my Bank/Building Society. Signature(s) Date / / Noah’s Ark will not disclose your information to any third party. From time to time we may send you updates on Noah’s Ark. If you do not wish to receive this information, please tick this box Please return your donation slip to: Noah’s Ark Children’s Hospice, 3 Beauchamp Court, Victors Way, Barnet EN5 5TZ Registered Charity no. 1081156