Annual report - The Epilepsy Foundation
Transcription
Annual report - The Epilepsy Foundation
Annual report 2007–08 The Epilepsy Foundation of Victoria is Our values dedicated to enhancing the quality of Equity and access – ensuring that people living with epilepsy get a fair go and can connect to appropriate supports and services life of people living with epilepsy through information, education, advocacy, support services and research. Our purpose We wish to ensure that Epilepsy Foundation of Victoria develops a high-performing culture that delivers on our mission and utilises and expands on our capabilities, according to our values and in a sustainable way. Participation and inclusion – engaging people and building effective relationships based on a shared purpose Resourcefulness and innovation – seeking better ways to do more with the resources available to us Trust and integrity – displaying integrity in everything that we do thus enabling the people who rely on us to have confidence in our motives and abilities Accountability – fulfilling our responsibilities and obligations purpose values © Epilepsy Foundation of Australia, 2009 Epilepsy Foundation of Victoria 818 Burke Road Camberwell Victoria 3124 phone +61 (0)3 9805 9111 fax +61 (0)3 9882 7159 www.epinet.org.au Table of contents Our aspirations.............................................................................................. 3 The epilepsy landscape in Victoria................................................................. 4 What is epilepsy?.......................................................................................... 6 Looking forward............................................................................................ 7 President’s report.......................................................................................... 8 Committee of Management (as at 30 June 2008).......................................... 9 Chief Executive Officer’s report.................................................................... 12 Message from the Chair of the Patrons Council........................................... 13 Patrons Council........................................................................................... 13 Client services............................................................................................. 14 Fundraising.................................................................................................. 20 Our volunteers............................................................................................. 23 Honour roll................................................................................................... 24 Treasurer’s report......................................................................................... 27 Financial report............................................................................................ 29 Financials.................................................................................................... 35 Ben Ruiter is a young man with an engaging smile and an optimistic outlook. You would never know how tough his life has been since he was first diagnosed with epilepsy at 13 years of age. Epilepsy Foundation of Victoria | Annual report 2007–08 aspirations The Mavropoulos family knows what it is like to live with the impact of epilepsy. Three-year-old Ben was diagnosed with infantile spasms at five months of age and suffered uncontrolled seizures. He has made huge steps in his progress following major surgery. Epilepsy Foundation of Victoria | Annual report 2007–08 Our aspirations At Epilepsy Foundation of Victoria, we strive to make a real difference to the lives of any person who may be touched by epilepsy – whether as a result of having the condition, as a family member or carer or as a friend. We want families and support networks of people with epilepsy to: • be confident and knowledgeable • have access to opportunities for support and networking • have access to learning opportunities In our ideal world, the community: Through our work with health professionals, governments, other organisations and businesses, we seek to raise awareness of epilepsy in the community as a health condition and to remove the stigma associated with it so that people with epilepsy can live more fulfilling, open and inclusive lives. We believe an important measure of the positive impact of our services is the intangibles – like seeing people who have been diagnosed with epilepsy regain their confidence and resume an activity they love such as swimming, or take up employment again, or simply come to terms with their condition and find the inner peace and resolve to be able to continue living their lives as fully as possible. • provides increased opportunities for participation • gives people living with epilepsy a national voice • responds to the needs and aspirations of people living with epilepsy • understands epilepsy • affirms people living with epilepsy as valued members We work to ensure the Epilepsy Foundation of Victoria: • is well led • is sustainable Our aspirations, which guide us in our work each day, enable us to have a clear understanding of those intangible things that matter most – to the people who use our services or to those who deal with us as an organisation – and just where and how, within our capabilities and resources, we can make a real difference to people’s lives. • grows, both in knowledge and capacity We work with children, young people and adults with epilepsy so that they: • work together so people living with epilepsy are living richer lives with more opportunities in education, employment and lifestyle • experience increased self-esteem and connectedness • has the right people and enough resources In the epilepsy service sector we: • share knowledge and experience to create positive change • experience better educational outcomes • have increased opportunities to participate in community life • have knowledge and skills to achieve their own wellbeing • have access to support services and learning opportunities Epilepsy Foundation of Victoria | Annual report 2007–08 The epilepsy landscape in Victoria Epilepsy Foundation of Victoria supports people living with epilepsy across the state of Victoria, through our metropolitan head office in Camberwell, Melbourne, our regional offices and our state-wide outreach program. Epilepsy Foundation of Victoria also provides resources to support other state service providers and plays an active role in the national peak body, Epilepsy Australia. The prevalence of epilepsy One of our challenges is forming an accurate picture of the prevalence and impacts of epilepsy in Australia and, more particularly, in Victoria. The Joint Epilepsy Council of Australia is seeking Australian Government funding to carry out the necessary research that will enable member organisations to properly estimate and plan for services in the future. This research would focus on important quantitative aspects including the incidence of people living with epilepsy, Sudden Unexpected Death in Epilepsy (SUDEP) and avoidable deaths attributable to epilepsy. Furthermore, our longitudinal research needs cover the qualitative aspects of the condition, including epidemiological considerations and quality of life impacts across issues such as social inclusion and attitudes, housing, employment, education, mobility and the economic costs both to the person with epilepsy and the community. This research will enable us to better plan for the future in tailoring our services to ensure they meet individuals’ needs most effectively and to position Epilepsy Foundation to be able to meet the growing demand. Using the most relevant and current research available, we have extrapolated what we believe is the likely picture of the prevalence of epilepsy in Australia today. The Joint Epilepsy Council of Australia conservatively estimates that as many as 600,000 Australians may presently suffer from epilepsy or will suffer from epilepsy at some time in the future.1 Using other Australian studies, it is estimated that between 8.8 and 20 per 1,000 people in Australia has epilepsy.2 By applying the Australian Bureau of Statistics’ estimate of the Australian population in September 2008 to the prevalence estimates, we estimate that the number of people with epilepsy in Australia is in the range of 184,800–420,000.3 In Victoria, the number is therefore in the range of 45,760–104,000. However, the number of people who are significantly affected by epilepsy including, for example, carers and family members, will be around four times higher than these figures. 1 Joint Epilepsy Council of Australia (2006), A national strategy for epilepsy in Australia, the Epilepsy Foundation of Victoria, Melbourne. 2 Beran R (1983), Epidemiological studies of epilepsy in Sydney, Australia, a report prepared for the Federal Government of Health, Sydney. Sheehan R (1985), Epilepsy and human rights, Human Rights Commission Occasional Papers No 7, Canberra, AGPS. Brown K & Walker C (2006), Developing an applied research agenda into the social effects of living with epilepsy, Epilepsy Report, No 2, 23–27. 3 Australian Bureau of Statistics census reports, 2007. Epilepsy Foundation of Victoria | Annual report 2007–08 landscape Funding shortfall In the 2007–08 year, Epilepsy Foundation’s individual support services were accessed by approximately 3,400 people, suggesting that there are many thousands living with epilepsy, or closely linked to someone with epilepsy, who are not receiving the services they need, either through lack of referral or awareness, or for other, more emotional, reasons associated with the perceived stigma of seeking help. Furthermore, through our training and education program for schools, businesses and other organisations, we have reached more than 65,000 people with important messages about epilepsy and first aid for seizures. Each year, Epilepsy Foundation receives funding from the Victorian State Government Department of Human Services (DHS) for people living with epilepsy who meet strict disability criteria. This year we received $866,701 in government funds. Gross income 2007–08 However, this funding only covers one-third of the cost of delivering current services and meets only the most urgent needs. Hence there is an ongoing and pressing need for us to raise significant funds each year to meet the shortfall and be able to continue providing services at the current level. Many would be unaware that epilepsy can, in fact, strike unexpectedly for the first time in people over the age of 65. With our population ageing, the number of people with epilepsy in this age group can only be expected to rise significantly in the next 10 years, creating even greater demand for our services. Regrettably, our current Victorian Government funding does not cover the support of children under the age of six and there are complex transition issues for people over the age of 65, two unique groups with specific needs, which represent a significant proportion of those who seek our services. It is vital that we continue our efforts to raise awareness of epilepsy in the community and to put the spotlight on this serious health condition, so that we can increase funding for our activities to more realistic levels in line with current demand, and encourage greater community support. Dontations 26.78% Bequests 9.19% Membership fees 0.12% Fundraising events 26.86% Government grants 21.22% Investment income 0.46% Opportunity shops 12.81% Service fees/community awareness 1.82% Sundry income 0.53% Trading income 0.18% Profit on sale of motor vehicle 0.04% For Megan, the hardest part to cope with was people’s attitudes towards her when she experienced a seizure in a public place. What is epilepsy? Epilepsy is often referred to as a disorder of brain function that takes the form of recurring seizures. Our every thought, feeling or action is controlled by brain cells that communicate with each other through regular electrical impulses. A seizure occurs when sudden uncontrolled bursts of electrical activity disrupt this regular pattern. This can be confined to just one part of the brain or can occur right across the brain. Communication between cells becomes scrambled and our thoughts, feelings or movements become momentarily confused or uncontrolled. While seizures can be frightening, in most instances they stop without intervention. Once the seizure is over the person gradually regains control and re‑orients themselves to their surroundings, generally without any ill-effects. Approximately 80 percent of people diagnosed with epilepsy will have their seizures controlled. epilepsy “I would advise people to not let it get you down. Accept it and fight back. Unless your seizures cannot be controlled, I believe that you can live a very productive life.” – Maurice Rooney Epilepsy Foundation of Victoria | Annual report 2007–08 Looking forward A strategic review of the organisation’s direction, undertaken in June 2008, has resulted in the Epilepsy Foundation of Victoria Overall Strategic Plan, a forwardfocused blueprint for our activities over the coming three years. Outcome 3 – Effective and respected advocate The review determined several strategic themes: Outcome 4 – Sustainable organisation • Partnerships • Leverage off existing community services • Knowledge development • Capacity building • Resource development • Cross-functional project teams. Four specific Strategic Outcomes will underpin our strategies and initiatives: Our aim is to become the key voice for people living with epilepsy within government, the medical and other health professions and the wider community, in order to ensure that the needs of epilepsy sufferers and their families are heard and met in future years. The issue of raising sufficient funds and the wise application of them to enable Epilepsy Foundation to support people living with epilepsy now and in the future is, and always will be, a key area of concern and focused effort for us. More detail on these strategic themes is available on our website (www.epinet.org.au). Outcome 1 – Services aligned to need Our aim is to develop an improved and more sustainable service delivery model, based on a deep understanding of the needs of people living with epilepsy, and to engage with other community and disability organisations. Outcome 2 – Effective community engagement Our aims are to create effective stakeholder and community engagement programs to enhance our ability to deliver services, to create opportunities for learning and education, and to develop a social research policy and strategy. forward Epilepsy Foundation of Victoria | Annual report 2007–08 President’s report Epilepsy Foundation of Victoria is in good shape and our services are growing. Reducing the stigma associated with epilepsy is still our most important task. We recognise that a betterinformed and more welcoming community is essential if people living with epilepsy are to achieve economic participation and feel included in society. Training and community education services are growing. We have recruited staff to build our training capacity; over the last year we held more than 100 training and public education sessions. Some 30,653 kids participated in Trivia Challenge, our awareness program for schools. Improving awareness of epilepsy in schools is a very important part of the Trivia Challenge program and probably the key to improving community attitudes in the long term. Around 3,400 people living with epilepsy were individually supported by our staff during the year. Raising funds to support the organisation is always a challenge and this year has been a little more challenging than usual due to both the uncertain economic climate and capacity issues at our telemarketing provider. Strong control of expenses has meant that the result for the year was reasonable in the circumstances. Russell Pollard has resigned as Chief Executive Officer of the Epilepsy Foundation of Victoria after 13 years of service. He felt that the time was right at a personal level but, more importantly, that it was the right time for the organisation to make the transition to new leadership. Russell changed the nature of the Foundation and we will be seeing the benefits of his changes for many years to come. Graeme Shears has commenced as the Foundation’s new Chief Executive Officer. He brings extensive experience in the not-for-profit sector as a consultant, Board member and in executive positions. This will help to ensure the continuation of the many excellent activities that are currently in place while supporting the Foundation to think strategically about how best to focus the resources available to get results in the important years ahead. Epilepsy Foundation of Victoria | Annual report 2007–08 Key strategic themes have been identified as part of our planning: • Partnerships and leveraging off existing community services • Knowledge and capacity building • Developing our resources • Involving key stakeholders in our improvement projects. By ensuring these themes are embedded in the way we manage projects to improve our organisation we believe we will have the best chance of delivering on the aspirations we have for people living with epilepsy, the organisation and the community. I am often asked why the various state epilepsy organisations don’t get together and form a more powerful single organisation to lobby government and so on. This would, obviously, be a good thing and something we have worked to achieve over the years. Epilepsy Foundation is a member of Epilepsy Australia, the peak body representing some two-thirds of the service capability in the non-medical service sector. Epilepsy Australia initiated a strategic workshop to advance the unification of the service sector and a substantive body of shared purpose was established, with most of the states very much involved in Epilepsy Australia, and this initiative is going strong. The ongoing support of volunteers, philanthropists, funding agencies, government, the Patrons Council, suppliers and staff is vital to improving the lives of people living with epilepsy. Thanks to everyone at the Foundation for a great year, and especially to the client service staff and volunteers. Professor Mark Cook Committee of Management (as at 30 June 2008) Professor Mark Cook – President Currently Professor and Director of Neurology at St. Vincent’s Hospital Melbourne, Prof. Cook is a neurologist specialising in the treatment of epilepsy. After completing specialist training in Melbourne, he undertook an MD thesis at Queen Square, London. He returned to St. Vincent’s Hospital, Melbourne to continue his interest in epilepsy and has formed a large research group with a broad range of interests across epilepsy, neuromuscular disease, multiple sclerosis and Parkinson’s disease. Clinical and basic science research concerning epilepsy and neuromuscular disease is carried out in the department and has recently extended to neurophysiological studies in kindling models of epilepsy. Research grants are held across all of these areas, including NH&MRC and ARC funding. For the last four years Prof. Cook has been involved in a project to treat epilepsy via novel methods, including electrical stimulation and polymer-based drug delivery. He is President of the Epilepsy Foundation of Victoria and an Editor for Epilepsia. Cavell Zangalis As a secondary teacher Cavell became increasingly involved in migrant and multicultural education. She headed several Education Department sections in this area and some major initiatives such as Hodja, a multicultural publisher and pioneer multilingual library for schools. She was the founding principal of Melbourne Girls’ College. Her recent work as a volunteer at the New International Bookshop Cooperative has developed into an honorary management role. Dr Christine Walker Christine is currently Chief Executive Officer of the Chronic Illness Alliance Inc, a peak body representing more than 40 consumer and advocacy organisations for people with chronic illness. The aim of the Alliance is to build a better focus in health policy and health services for all people with chronic illness. In this role she works collaboratively with a number of other organisations, including government departments and hospitals, to further the Alliance’s aims of improving the lives of people with chronic illness. Christine completed a PhD thesis in 1995 which explored the growth of government intervention in the hospital system in Victoria. She has experience in qualitative research and has recently published a book on chronic illness as well as many journal articles. Christine is a member of the Community Quality Use of Medicines Working Group for the National Prescribing Service. Jacqueline Branston Jacqueline has been a Committee of Management member since November 2002 and is currently a counsellor, educator and public speaker in a voluntary capacity at the Epilepsy Foundation of Victoria. As a mother of a profoundly disabled son who has uncontrolled epilepsy Jacqueline is passionate in her efforts to ensure all carers are armed with accurate information and education. Jacqueline holds qualifications in counselling, psychotherapy and hypnotherapy. She has gained extensive personal experience as a volunteer in a wide range of community organisations over a 30 year period. Epilepsy Foundation of Victoria | Annual report 2007–08 Jim Campbell, AM Jim is a strategic change agent with more than 25 years’ experience in driving change in Commonwealth Departments as well as public and private companies. Over the past seven years he has worked in the not-for-profit sector successfully completing major restructures and integration projects with Vision Australia, Multiple Sclerosis Limited and Saint Vincent de Paul as well as a joint venture that led to the creation of VicBionics. Jim has undertaken work with Boards and executives on strategic planning, governance, business planning and performance evaluation and acts as a coach and mentor to directors and CEOs. He has practiced as a company director for more than 18 years with public and private companies. Jim is an Arts graduate of the Royal Military College of Australia and a business postgraduate of Monash University. Jim also has had personal family experience with epilepsy. Jock MacAdie Jock’s background is in corporate finance, corporate restructuring, health, hospitality and property. He worked for Elders in Australia and New Zealand where he set up their finance operations and for Rothschilds and Schroders in Australia. Jock worked with the provisional liquidators of Hooker Corporation and HIH Insurance where he advised on restructuring options, as well as stabilising and managing various assets of the businesses. He also advised on sale and realisation options and managed various disposals. In the healthcare sector Jock was for eight years the Finance Director/CFO of Australian Hospital Care Limited where he undertook assignments including major equity raisings, floating the company in a new public listing, various acquisitions and debt refinancings as well as numerous organisational restructurings. In the hospitality and property area, Jock worked with the Century City/Paliburg/Regal Hotels group in HK, a large hotel owner and operator in HK, the PRC and the USA as well as a major property developer and investor in HK and the PRC. 10 Epilepsy Foundation of Victoria | Annual report 2007–08 Sally Genser Sally Genser has been a member of the Committee of Management for three years. She was also a Board Member of Yarra Health Services and President of the Richmond Creche Society for many years and is now a Life Member of Richmond Creche Society. Sally is a licensed estate agent and has been a Director of The Belgrave Group of Companies for more than 15 years. The Belgrave Group is a boutique, family-owned property development group, which has been in business for more than 50 years, completing projects in residential, office, commercial, industrial, aged care, child care and hospitality and which has recently expanded to China. Sally was, for many years, an advisor to The Meat Workers Union Industry Employees Superannuation Fund advising on their property investment portfolio. She is also Managing Director of Quest Phillip Island (Serviced Apartments). Dr Lindsay Vowels Dr Lindsay Vowels’ career has spanned more than 40 years in the disability sector, working primarily with people with a neurological disability. Dr Vowels currently works in a voluntary capacity with several applied research projects including the MS Longitudinal Database. She joined the Committee of Management in 1992, holding the positions of President and Vice President and is also the founding and current chair of Epilepsy Australia. Her interests lie in the quality and variety of services available to people with epilepsy, education and training, which is available to professional staff employed by the Foundation and support and education services in rural and remote areas. She is currently involved in research into the psychosocial impact of epilepsy on individuals and their families, having convened the Research Working Party, which is developing guidelines for a proposed Parliamentary Enquiry into Epilepsy. Tony Mooney Tony Mooney currently works with several companies operating in the metal and plastic components market, working on product development through to full product manufacturing and providing advice on plant equipment and other business areas. Over the past 10 years he has been heavily involved in the management of various companies in the manufacturing sector, working in roles from team leader through to Chief Executive Officer for a period of three years. management committee 11 Chief Executive Officer’s report I am not in a position to comment about much of the activity for the year ending June 2008 as my personal experience is limited to the month of June. I do know that the organisation is in good financial shape, with competent staff who are passionate about supporting people living with epilepsy and engaged in the new strategic opportunities. We are fortunate to have a great source of influence and wisdom in the Patrons Council and enjoy a growing philanthropic support base. We have undertaken a strategic review to ensure we are clear as an organisation about what we need to do, what the priorities are, and how best to proceed. All our efforts will be directed to delivering the best outcomes for people living with epilepsy. We have thought about both immediate issues and also about being able to support people into the future. We are focused on capacity-building: • Within individuals and their families so that children, young people and adults with epilepsy experience increased self-esteem, connectedness, educational outcomes and opportunities to participate in community life, with the knowledge and skills to achieve their own wellbeing and access to support services and learning opportunities. 12 • Within the families and support networks of people with epilepsy so that they, too, are confident and knowledgeable, have access to opportunities for support and networking and to opportunities to learn. • Within organisations so that people with epilepsy who are engaging with or working in them find them accessible and supportive to their needs. • Within the community so that it provides increased opportunities for participation, responds to the needs and aspirations of people living with epilepsy, understands epilepsy and treats people living with epilepsy as valued members. Epilepsy Foundation of Victoria is thinking strategically and aims to be well led, sustainable, to grow both in knowledge and capacity and to have the right people and enough resources to support outcomes for people living with epilepsy in Victoria. Graeme Shears chief executive Epilepsy Foundation of Victoria | Annual report 2007–08 Message from the Chair of the Patrons Council My fellow patrons and I see this cause as a high priority and it’s time for the community as a whole to make things happen with regard to awareness about epilepsy. Epilepsy is seldom discussed and most people have only a vague and often misinformed understanding of the condition. This isn’t good enough when at least one in every hundred people in Victoria will have epilepsy in their lifetime. The misunderstanding increases the unjustifiable stigma that makes the lives of people with epilepsy far worse than they could be. Something needs to be done and quick smart. On the positive side it’s good to see the momentum that is building, particularly in regard to the Federal Government’s Parliamentary Friends of Epilepsy and I acknowledge the leadership role that the Epilepsy Foundation of Victoria has taken in this national initiative. Great research conducted by the Epilepsy Foundation of Victoria, including some Australian firsts in regard to longitudinal studies, has informed the way people are supported, and the Patrons Council will use its collective influence to help the Epilepsy Foundation of Victoria improve the lives of people living with epilepsy. I wish the outgoing CEO Russell Pollard all the best for his future and acknowledge the strong foundations that were built during the 13 years of his leadership. I look forward to working with the new CEO Graeme Shears whose experience and skills, supported by 12 years in executive roles or consulting in the disability sector, bode well for the future. Dame Beryl Beaurepaire Patrons Council Dame Beryl Beaurepaire AC OBE (Chair) Ted Baillieu MLA John Blackman The Hon. Justice Bernard Bongiorno Philip Brady Julian Burnside QC The Hon. John Button (Deceased) Professor Ed Byrne The Hon. John Cain The Hon. Joan Child AO Paul Cronin Sean Cummins The Hon. Justice Linda Dessau Ivan Deveson AO Melanie Eagle David Galbally QC Rhonda Galbally AO Bev Genser Petro Georgiou MHR Stera Gutnik David Hayward The Hon. Brian Howe John Jost Robert Kirby The Hon. Joan Kirner AM Emeritus Rabbi John Levi Judy Maddigan MLA Neil Mitchell Dame Elisabeth Murdoch AC DBE CBE Emeritus Professor Sir Gustav Nossal AC CBE Janet Powell Barbara Rozenes Ross Smith AM Richard Stanley QC Michael Stillwell Claude Ullin Luisa Valmorbida Epilepsy Foundation of Victoria | Annual report 2007–08 13 Client services About our services How many people did we reach in 2007–08? Providing quality, relevant and valued client services that make a difference to people’s lives, and providing them in a timely way along each person’s journey with epilepsy, is our sole purpose. Our services, which are provided across Melbourne and regional Victoria, reach many thousands of people each year. The reasons why people seek our services vary widely and depend on many factors: age and stage of life, individual needs, the unique problems or issues a person may be facing and their personal goals and aspirations for the future. Our services can essentially be described as the provision of: • information • education and training • advocacy • case management support • research. The way we provide these services depends very much on individual needs – our services are tailored in response to the person’s expression of their own goals and aspirations. We spend time with people, talk with them, learn about their life and family situation to gain an understanding of what they want to achieve, and then determine how best we can help. A diagnosis of epilepsy does not mean that life has to stop. One of our primary aims is to see people managing their epilepsy in a way that enables them to live, study and work as they normally would and participate in the activities they enjoy no matter what age. Many people with epilepsy are able to play sport, swim, go to the movies and, under certain circumstances, drive a car. Importantly, we work with people to help them regain their confidence so that they can continue to do the things they love or that matter most to them. 14 Epilepsy Foundation of Victoria | Annual report 2007–08 The Epilepsy Foundation has offices in Camberwell, Geelong and Ballarat and from these centres provides services in the metropolitan, Grampians, Barwon South West, Loddon Mallee and Hume regions as well as through outreach programs in other locations as required. During 2007–08, our services touched more than 3,400 people. Information services Our initial contact with a new service user is usually by telephone, often immediately after the person or their child has been diagnosed with epilepsy. This is a time when there can be a great deal of anxiety and confusion, along with feelings of anger, sadness or frustration. Our early intervention helps people make a healthy adjustment to living with the condition, often preventing the development of chronic problems such as depression. A diagnosis of epilepsy is almost always accompanied by a sense of loss – whether it is the loss of the ability to drive (a major factor for many otherwise healthy, mobile adults), a loss of income and independence through the inability to work for a period of time, or the loss of personal freedom which comes from a fear of having an epileptic seizure while carrying out day-to-day social or recreational activities. There is a widespread lack of understanding about epilepsy in the community and social stigma persists as a consequence. We believe that an effective way to remove the stigma and dispel the myths associated with epilepsy is through awareness and education. Our information service helps to reduce the anxiety surrounding epilepsy by easing the fear of the unknown, demystifying the facts and removing the misconceptions about what epilepsy is, and is not. We ensure that people living with epilepsy have access to as much current information about information the causes, treatments and impact of epilepsy as they need and want, to optimise management of their condition and improve quality of life. We also provide valuable information services to those in the community working with people with epilepsy, which enhances their capacity to provide appropriate services. Library service A critical component of our information service is the Epilepsy Foundation Library, which includes more than 2,500 books, audio visual materials, CDs, journals and extensive information files containing current literature on many subjects associated with both the study of, and living with, epilepsy. It is the most comprehensive epilepsy collection in the Southern Hemisphere and of considerable value to the community and to researchers engaged in the study of epilepsy. Our collection includes a wide range of materials for both adults and children, which answer many of the questions relating to epilepsy and the many issues associated with living with the condition. In addition we hold an extensive collection of works of interest to members of the medical and other health professions. We aim to provide both current and retrospective information about epilepsy and living with epilepsy for staff, those with the condition, their families, carers, interested members of the public and medical professionals. Our dedicated Librarian endeavours to assist with all information queries, whether they are made in person or by telephone, letter or email. Most books and audio visual materials are available for loan to members of the Foundation and our online catalogue is available for browsing. All clients, members of the public, research workers, students and medical professionals are welcome to visit the library and make use of its facilities. The library during 2007–08 • Approximately 70 new books and audio visual items were added to the collection during the year, at a cost of almost $9,000. The average cost of neurological titles is approximately $150 and upwards, a prohibitive cost but one we are prepared to bear, in order to keep our library as up-to-date as possible. • We loaned out 254 titles. • Using Gratisnet, the inter-library loan service, 72 titles were supplied on loan to other libraries and 39 were received from other libraries. •Approximately 500 reference queries from members of the public and staff were answered. Our dedicated Librarian endeavours to assist with all information queries, whether they are made in person or by telephone, letter or email. Epilepsy Foundation of Victoria | Annual report 2007–08 15 Support services Our support services are at the heart of our work with people with epilepsy – it is through our professional service staff’s one-on-one consultations with adults and children and their ability to build relationships with those who use our services that we are able to make a real difference to people’s lives. Support services are provided in a number of ways. These can include, for example, providing advice on how to deal with epilepsy for those newly diagnosed with the condition, liaison with schools or employers on behalf of the person with epilepsy, grief counselling or working with the person to re‑establish their confidence in gaining or regaining employment or engaging in social or recreational activities. Services can be provided periodically to address changing life situations, or on an ongoing basis. We may hear from a parent when their child with epilepsy reaches a major milestone in their lives This year our dedicated client services staff helped more than 3,400 individuals and reached many more thousands of people through our other training, education and schools programs. 16 such as changing to a new or higher-level school. The difficulties associated with finding acceptance in a new environment – of fitting in – are often felt keenly by children with epilepsy and can be daunting. Our service staff help by liaising with the school staff to increase their understanding and knowledge of epilepsy and how to manage a child with epilepsy within the school community. We offer training for the principal and teachers in seizure recognition and seizure first aid and provide knowledgeable and empathetic support for the child and his or her family as they adapt to their new school, with the aim of maximising the child’s capacity to develop to their full potential. The Epilepsy Foundation also provides support to families in times of grief. Our bi-annual Memorial Service is held in remembrance of those who have died through epilepsy. This year the Memorial Service was held at St Mark’s Church in Camberwell where more than 150 attended to remember their loved ones. support Family and adult camps Education and training Often just the opportunity to talk with someone in the same situation, to share experiences, problems, ideas and outcomes can be invaluable in learning to cope with epilepsy. Our education and training program is a key element of our plans to raise community awareness about what it means to have epilepsy, how to live with the condition and how to manage if an employee or student in a particular setting has epilepsy. Our annual family camp is just such an opportunity, providing an outlet for parents of children with epilepsy to talk with others experiencing the same issues, whether relationship difficulties, problems with siblings or their hopes for the future. It is often the first opportunity for a child living with epilepsy to meet and interact with another child experiencing with the same condition. Parents and siblings also benefit from an opportunity to meet others sharing similar challenges. Many ongoing friendships develop from this experience. This year our camp was run at the Anglesea Recreation Camp and was attended by 78 parents and children including many regulars and a number of first-timers. Our annual Adult Getaway was held at Lady Northcote Recreation camp near Bacchus Marsh. A total of 43 people attended for four days of high adventure, with activities such as canoeing, yabbying, a flying fox, big swing, mountain biking and bush walking. We also enjoyed some more sedate activities like reading the newspaper, watching the footy and designing and creating a craft mural. During 2008 we expanded our Understanding and Managing Epilepsy program from two events per year to a monthly schedule, to enable more people to access this important service when they need it. Guest speakers attended some of these events to address specific topics of interest. Other very successful programs included two epilepsy surgery information afternoons, which were held on weekends to maximise attendance. At these events, a Neurologist spoke to an audience of people with epilepsy who have either undergone surgery in the past two years or who are contemplating surgery, together with their families and carers. In addition, surgery candidates spoke about their personal experience with surgery. Participants regularly report how valuable this program is. Often just the opportunity to talk with someone in the same situation, to share experiences, problems, ideas and outcomes can be invaluable in learning to cope with epilepsy. camp 17 In 2007–08 our education program also included: Regional services • Our annual Men and Epilepsy and Women and Epilepsy workshops, which were well attended. Our flexibility in running all our programs in the mornings, afternoons and evenings was appreciated and enabled more people to attend. Our professional client services staff provided specific services to the Loddon Mallee and Hume regions, covering cities such as Bendigo, Shepparton, Wangaratta, Swan Hill and Wodonga. • Our parent and carer education days, which were held twice during the year at the Camberwell centre. Professor Ingrid Scheffer, an eminent Paediatric Neurologist, has been the guest speaker at these events for many years. The program provides parents and carers with a comprehensive overview of childhood epilepsy and an opportunity to meet and talk with other parents for mutual support. This year we expanded our parent support workshops and ran training in Gippsland for health workers and members of the community over a fourday period. • A childhood epilepsy seminar held in Warragul in early 2008 at which Paediatric Neurologist Dr Rick Leventer was the guest speaker. This workshop was so well attended that the Epilepsy Foundation is planning to run more of these seminars in other areas of the state. • Training within community residential units operated by the Department of Human Services and other community providers, to equip those caring for people with epilepsy with knowledge and information. We also provided several epilepsy training sessions for Scope staff in Melbourne, Geelong and Bendigo, and other disability service providers accessed our training service throughout the year. Some of our training staff provided epilepsy training in the TAFE sector to students undertaking disability and aged care studies. • Talks at schools, which often related to a particular student with epilepsy. This work is designed to assist school staff to manage the needs of the student and to provide a safer, happier and more accepting environment for all concerned. • Similar training in places of employment, which assisted business owners and supervisors to better manage an employee with epilepsy in the workplace. 18 Epilepsy Foundation of Victoria | Annual report 2007–08 Similar services were provided from our Ballarat office to the Grampians region in Victoria and to the Barwon South West region of Victoria from our Geelong office. The regional work encompassed the range of services provided from our Camberwell office including case management, information, advocacy, education and training and clinic support. Involvement in epilepsy clinics Epilepsy Foundation has five service staff who work in partnership with neurologists specialising in epilepsy in seizure clinics at major hospitals in Melbourne and in some regional cities. These service staff are immediately on-hand after a patient is diagnosed with epilepsy to provide support and empathy during what is often a traumatic time for the patient. In addition to our involvement in clinics, many of our service staff visit clients when they are in hospital for various investigations or surgery. Our in-patient work at hospitals such as St Vincent’s, the Alfred, Royal Melbourne and the Austin is proving an invaluable service to patients and is highly valued by their health care professionals. Our expert knowledge of the social aspects of epilepsy and our advice on managing and living with the condition often lessens the anxiety surrounding a diagnosis of epilepsy and helps to demystify the facts. We also maintain excellent links with the Royal Children’s Hospital, which refers patients to the Epilepsy Foundation. We support the hospital’s ketogenic diet treatment program by supplying scales for families to borrow while they are trialling this treatment for children with uncontrolled epilepsy. During the year we consulted with approximately 500 people in the clinic or hospital setting, many of them on multiple occasions during the year. Accommodation service Since 1999, the Epilepsy Foundation’s accommodation service has assisted many hundreds of people to stay near their loved ones and be on-hand while they access medical services in Melbourne. This may involve assessments to determine their suitability for surgery, being nearby while they undergo surgery or attending information sessions in Melbourne. During the 2007–08 financial year, we reviewed the way in which we provide accommodation services with the aim of being able to offer the best possible service from our limited resources. While the issue of whether or not we would continue to offer accommodation services was never in question, we have taken the decision to provide this service in a different way. From 2009 we will link our service users with other, more mainstream, accommodation facilities such as quality, local motels, which have virtually unlimited supply and are located conveniently near the major hospitals. This will enable us to continue to assist people with local accommodation that meets their needs, while freeing up our staff resources for other service areas. Advocacy Our advocacy work primarily involves supporting our clients to ensure they are not disadvantaged in any community setting such as the workplace or school. We aim to ensure minimal restrictions and maximum opportunity for growth and fulfillment. Information and education are essential strategies for removing barriers to full participation and opportunity. education advocacy Our advocacy work primarily involves supporting our clients to ensure they are not disadvantaged in any community setting such as the workplace or school. 19 Fundraising The 2007–08 year in many respects has been a watershed year for the Epilepsy Foundation. Setting the scene The last decade has seen the Foundation grow from a narrow service delivery model whereby we were funded by little more than State Government grants, to an organisation where two-thirds of our income is derived from private sources through fundraising. We are unique in terms of disability agencies and health organisations of a comparable size in being so reliant on non-government income. Our uniqueness brings with it a real challenge in terms of sustainability and determining what income we can rely on to deliver our service programs. Some time ago we identified the need to have multiple fundraising programs to reduce our risk in the event of a downturn in any one area. The global financial crisis has already started to have an effect in a number of income areas and we see that becoming a much bigger issue for this coming year and beyond. Much of our growth to this point has been organic, taking place as opportunities have arisen, and reliant on individuals within the organisation taking the running to get the programs up and going. The problem with this method is that it is too dependent on these individuals and as the programs have grown our capacity to maintain that growth has been restricted. The challenge is to develop better processes and systems so that the programs can grow, so that we have the best use of the limited resources we have available to us, and so we can maximise the opportunities for our wonderful supporters and volunteers to help us. 20 Epilepsy Foundation of Victoria | Annual report 2007–08 Concept of fundraising Our goal is to raise sufficient funds to enable the Foundation to support people living with epilepsy now and in the future. This will be achieved by our aims to: 1. Develop and manage a portfolio of effective fundraising and communication products and methods that meet supporters’ needs, mitigate risk and reduce dependency on any one source of income, and to achieve both short and long term targets, in particular: • Increase the database of active financial supporters and their individual levels of support • Identify and acknowledge every act of philanthropy • Develop a program to generate enabling and transformational gifts for major projects and a capital appeal for a centre of excellence at our Camberwell head office • Explore corporate sponsorship of major activities • Position the Foundation to be a recipient of choice for bequests. 2. Maintain general public awareness, goodwill and understanding of the Epilepsy Foundation, while increasing these in key target audiences in order to improve understanding of epilepsy, first aid for seizures and the propensity to support. 3. Communicate the Epliepsy Foundation’s case for support to prioritised audiences. fundraising Principal fundraising activities The Foundation’s range of fundraising programs includes donation collections through direct marketing (mail, telemarketing, email and door knocks), raffles, opportunity shops, community fundraising and our school Trivia Challenge campaign. At the core of all the programs is the willingness of individuals to give both financially and of their time. This year saw mixed results (total donations $1,093,822 up 2 percent). While it started out well with record growth in our September (up 70.3 percent) and Christmas (up 27.3 percent) appeals, it slowed during the second half of the year resulting in a fall in our main appeal. The concern was not only that in fell in value, down 3.5 percent (total $174,566) but also that it fell in numbers, with the total number of donors down by 7.6 percent (total 2,097). The shining light for personal support came from bequest donations, up 890 percent to $375,218 thanks to the particular generosity of three donors, June and Ruby Pollard and Frederick Rogers. Bequests are absolutely vital if we are ever to raise the money we really need. Bequests, or a legacy, allow people to give substantial support at a time when it can be afforded. This is often because it is just not possible during their lifetime. Our raffle program is our largest fundraising program and it felt the brunt of the growing economic crisis in a different way. Initially, when times were good and employment low, our raffle operator, Apple Telemarketing (the largest supplier of charitable telemarketing in Victoria), was unable to recruit enough telemarketers to meet delivery schedules for all its clients and, as a result, we were forced to run one less raffle. This resulted in both reduced donations and raffle sales ($699,976). Charitable status, tax concessions and fundraising Epilepsy Foundation of Victoria Inc. ABN 75 967 571 784 is an incorporated association – Reg. No. A0022674D. Epilepsy Foundation of Victoria is a Public Benevolent Institution (PBI). It is endorsed as an Income Tax Exempt Charity (ITEC) and enjoys certain other tax concessions and exemptions consistent with its status as a PBI which relate to Goods and Services and Fringe Benefits Taxes. Epilepsy Foundation of Victoria has been endorsed by the Australian Taxation Office as a Deductible Gift Recipient (DGR). Epilepsy Foundation of Victoria is registered in Victoria as required by law to raise funds – Reg. No. 8190 renewable annually (October 2009). Epilepsy Foundation of Victoria is a declared charitable organisation for minor gaming purposes with The Victorian Commission for Gambling Regulation – Reg. No. 40315. Our fundraising staff are members of FIA (Fundraising Institute Australia) and subscribe to the FIA Codes of Professional Fundraising Practice. This Year’s Trivia Challenge attracted 30,653 participants from 243 schools. 21 In many ways, where we put our first foot forward with most people in the community is through our fundraising programs. It is therefore essential that we do this with clear, respectful messages that educate the broader community about epilepsy and the needs of people living with epilepsy. Many thousands of the people we encounter in this way have, over the years, become loyal supporters. Our supporter communications are thoughtfully produced to maximise awareness of the issues around epilepsy. We have a long term goal of getting at least one person in every household to understand first aid for seizures. At this stage, without significant outside support, we cannot engage in major publicity campaigns because they are just so expensive. We encounter many acts of generosity and are grateful for them all. While we cannot recount them all, we wish to say a sincere thank you to all who have helped in some way. You are all making a difference. Community education expense allocation Many other organisations separate out the education costs and transfer them out of the fundraising area prior to reporting. Our accounts show the full costs and, when required, we will internally take up the community education and public relations costs to reflect what they might cost the Foundation otherwise. Program type Raffles 55% Donations: Donor Renewal programs Donor Acquisition 50% 65% Op Shops/Recyclables 50% Trivia Challenge 80% Volunteer Fundraising 55% Bequests 50% Grants 22 % of gross expenses 0% Our volunteers Many of the activities conducted at the Epilepsy Foundation would not happen without the assistance of our team of wonderful volunteers. The extent of volunteer involvement can be seen from the vast array of programs they support, including our Opportunity Shops, camps, support groups and Helpline, along with public speaking, community education, administration and fundraising activities and our Committee of Management, various sub‑committees and Patrons Council. Our five Opportunity Shops require the largest number of volunteers. Each day they undertake tasks such as collecting, sorting and pricing goods through to retail sales. The range of administrative tasks is almost never-ending and includes clerical support, reception, data entry and sorting raffle tickets through to conducting mailouts. Specially trained volunteers are an integral part our family and adult camps and support groups, such as our Superfits recreational group. Regardless of the size or purpose of the task, our volunteers show a wonderful commitment, happily and consistently giving their time, and for that we sincerely thank them. During 2007–08 we were able to recognise the hard work and commitment of a number of volunteers by presenting them with their 5 and 10-Year Service Awards. The client services team has identified future areas of involvement for volunteers and, in particular, we will be focusing on the development of a volunteer educator project and a peer support program, both of which will harness the skills and experiences of people affected by epilepsy. 10-Year volunteer awards John Anderson Ross Brunt Colette Flynn Perin Harding Diane Holdsworth John Phillips Sandra Maschler Frank Riordan Robert Wierzbicki Les Feig Timothy Hacking Phillip Niehof Leonie Efthim 5-Year volunteer awards Eve Kilmartin Carol Miller Antoinette Matheron Wendy Hancock Bev Walker Ria White Win Wildish Bev Helmore Cheryl Benson Sandra Somers Jenny Brain 23 Honour roll $50,000 + Estate of June Heather Pollard Estate of Frederick Scoullar Rogers Estate of Ruby Elvina Pollard $10,000 – $49,999 The Jack Brockhoff Foundation Fred P Archer Charitable Trust Bell Charitable Fund Mr Wayne King Mrs Kathleen King Estate Columba Marguerite Mackie‑Smith The Ian Potter Foundation Snowy Nominees Pty Ltd Estate of Vera Marion Hale The Angior Family Foundation $5,000 – $9,999 AMCA Australia Post Goldman Sachs JB Were Foundation Pierce Armstrong Trust Mrs Ellen Cummins Freiburg Nominees Pty Ltd Consolidated Chemical Co. B L Parker Foundation Estate of the late Margaret Mary Breen Lord Mayor’s Charitable Fund Lauriston Girls’ School Camberwell Grammar School Mr G Lourie The Marian & E H Flack Trust State Trustees – Elizabeth Kucera Memorial Joe White Bequest 24 $2,000 – $4,999 $1,000 – $1,999 Mr Donald F Beaurepaire The Michael & Andrew Buxton Foundation Miss M O’Sullevan Mrs Margaret Rafferty Chatswood Stud Pty Ltd St Leonard’s College – Brighton Campus State Trustees – Clients’ Residual Balances The Alfred & Jean Dickson Foundation Mr & Mrs M & S Edwards Mr Richard Price Kardinia International College Estate of Elizabeth Porter Sacred Heart Primary School Mrs R M Andre Ms Angela Little Mr Graeme Shears Mrs June F M Smith Mont Albert Primary School Dr Tim Morgan Mr Andrew & Ms Laura Raniere Mornington Peninsula Country Women’s Association Bib Stillwell BMW SMG European Cars Pty Ltd St Michael’s Grammar School Mr Bruce Hedditch Estate of Michael Francis Coman Ritchies Stores Ballarat Magistrate’s Court Construction Engineering (Aust) Pty Ltd The William Angliss Charitable Fund Korowa Anglican Girls’ School Mr Ian C Curry Mr Raymond S Davey Dr Nicholas Ferris Mr Jeffrey Harris Ms Barbara Haynes Mr T C Johnston Ms W E King Dr James Lewis Mr Edward J Miller Village Roadshow Ltd The Elisabeth Murdoch Trust Mr & Mrs Francis & Helen Musk Miss E M Neilsen Mr John Sealey Mr Richard J Stanley Mr C D Turnbull Mr & Mrs John & Marie Warnock Mr Len Gill Loreto Mandeville Hall Toorak Primary Rangebank Primary School Beaconhills College The King David School – Magid Campus Our Lady of The Assumption Catholic School Ms Megan McDonald Mrs Diana M Lowe Parents Club – Brighton Primary School Blue Star Print – Australia Matthew Callaghan Memorial Fund Mentone Girls’ Grammar School Mr John Gilmour Mrs Marie Jones Boroondara Park Primary School Mr Jeremy Maxwell Mrs Barbara L Morrison Oakleigh Greek Orthodox College Rye Primary School Epilepsy Foundation of Victoria | Annual report 2007–08 $500 – $999 Nilsen (Vic) Pty Ltd Professor John Griffiths Colac High School Ballarat Grammar School Billanook College Limited Lions Club of Lakes Entrance Rotary Club of Preston Inc Mrs Joan Bucknell Mr Douglas Clark Mrs Maureen L Crawford Mrs Dung Doan Mr & Mrs David & Elizabeth Ebert Mr Stephen Edwards Mr PeterFoster Ms JeanHadges Mrs Marion M Harper Mr & Mrs Leslie & Yvonne Harrison Mrs Joan M Hunter The Dennis Family Corporation St Peters Opportunity Shop Luxton Plant Heavy Equipment Rentals Pty Ltd Mr W Lyon Mr & Mrs Gerard & Kim Magner Mrs L M Mason Mr John McPhee Mr R F McDonald Mr & Mrs Ian & Gail McKay Ms Glenda McNaught Mrs Norma Minney Mr Conrad Noronha Premier Property Valuations Pty Ltd Mr Phillip Ronan Mrs Elizabeth Russell Mr Martin Sachs Mrs M Slonim Mr Brian Wansbrough Miss M Watson Mr Mal Webb Ms Victoria White Mr Fred Whitfort Mrs Jean Williamson Rangeview Primary School Strathmore Primary School Miss Kay Edwards Mrs L Moir Black Hill Primary School Mr Norman Kotzman Mount Waverley North Primary School Wesley College – Glen Waverley Campus Borders Australia Pty Ltd Mr Leo Lazarus Mrs Joan Quigley Mr J David Kisby Miss Catherine Coghlan Mr George Gilbertson Mrs Marion Sheehan Mr & Mrs Peter & Jacqueline Smith Blue Label Pty Ltd Ms Fiona Cochrane Toorak Primary School City of Casey Camberwell South Primary School Emerald Primary School Mt Waverley Primary School Regency Park Primary School St Patrick’s Primary School – Pakenham Mr Greg V Shalit & Mrs Miriam Faine Mount View Primary School Mr W A Dott Mrs Joan O A Gibbs Mr Deepak Gulati Mr Edward Haldane Mr & Mrs Francis J Shelton Mr & Mrs Leonard & Jean Smith Miss Margaret Swan Mrs Rosemary Weatherly Miss Grace Rowland Beverley Hills Primary School Mr Joseph L Welsh Loreto Mandeville Hall Toorak Mr Terry Williamson Mrs Sarah C Vaughan Mount Dandenong Primary School Malta Star of The Sea Inc Mr Andrew Vaccaro Mrs Donna Gittins Scotch College Melbourne Mrs Phyllis Breen Ms Patricia M Holmes Mrs F Pinney Glenpar Pty Ltd Print Impressions Ms Samantha Meagher Tyabb Primary School Camelot Rise Primary School Glen Katherine Primary School Kew Primary School Staff – QBE Insurance (Australia) Ltd Mrs Suzette Main Mr Howard W Paul Mr John Phillips Mrs Betty Towie Christian College Highton Estate of John Cuthbert Gillespie Mr P Smart Balwyn North Primary School Templestowe Valley Primary School Cranbourne West Primary School Mr Robin B Taylor Scotch College Doncaster Primary School $250 – $499 Mr William Abbott Ms Wendy Addis Dr Helen Alexander Mr Michael Axiomakarou Mrs Loren Brown Mr Robert Challen Mrs Ann Davies Mrs Janice Dawson Mr Eric Easton Mrs R Firkin Mr Brian Gardner Mr & Mrs Les & Lorna Gawler Mr John Glenn Mr J A Hancock Mrs Marjorie Jago Mr & Mrs Denis & Margaret Leech Mr Edward W Lemanski Mr Bruce W Lithgow Mrs A I Longworth Mr Ted Lynes Mr W D G Maclean Mr Reginald Marlow Mr & Mrs Noel & Lucy McKinnon Mr John M O’Hara Mr William Pye Mrs Megan Rankin Mr Ashley Ray Miss Edna Richards Ms Margaret Saunders Dr Jennifer Schwarz Mrs Kathleen M Skinner Ms Peggy Smart Mrs Margery Snowball Mrs D Sturgess Kilberry Valley Primary School Mrs Alice Vaughan Canterbury Girls’ Secondary College Mr Alan Wilson Clifton Springs Primary School Darnum Primary School Lang Lang Primary School Burwood Heights Primary School Taroona High School Mr Albert Renshaw Staff – Australian Unity Mr Peter Briese Mrs Shirley Gardner Sacred Heart Primary School – St Albans Mrs Beth Brown & Tom Bruce, AM Mrs Mary G L Davis Melton Christian College Mrs Enez Lesser Mrs JudySutton Ms Linda J Barbour Mrs Cora Bayley Epilepsy Foundation of Victoria | Annual report 2007–08 25 $250 – $499 (continued) Mrs Yvonne Hinds Mrs Beryl J Hortin Ms Margaret Miller Mrs D Mules Mr Greg Noonan Mrs Louise Gourlay Rodinal Pty Ltd Our Lady of Sion College Mr Paul Barnett Xavier College – Kostka Hall Mr & Mrs K B & E A Allen Ms Joan Banks Mrs Ruby M E Barton Mr & Mrs John & Vesna Bragagnolo Ms Susan Brennan Mr George Broadbent Mr David Brownell Mrs P H Chestney Mr C M Costello Mr Howard Day Mr Desmond Deckker Mr Robert Eisner Mrs Jennifer Elliott Mr Ross Ferguson Mrs Norma Firth Mr & Mrs B P & L S Gallucci Mr Clem Gee Mr Jack Ginnane Mrs Elizabeth Grigg Mr P Hansen Mr John Hardie The Hollingsworth Family Trust Ms Sharon Hutchinson Mr Danilo Kerpesi Mrs Elsa Lindsay Mr J A Lyne Mr & Mrs John & Margaret Maxwell Mr A W McDonald Mr & Mrs N & M McKendrick Mr & Mrs Basil & Lillian Moss Mr Edward P Oldham Dr & Mrs Simon & Jean Pilbrow Mr Kevin J Punshon Mrs Judith A Pyke Mr Brian Rebbechi Mrs Corrine Robin Mr Hugh Smart Mr Richard Sturges Mrs Grete Walter Mrs Judith Warren Mr & Mrs David & Katharine Williams Yings Eltham Restaurant Great Ryrie Primary School The Principal, Red Cliffs East Primary School 26 The Principal, Leopold Primary School The Principal, Mountain Gate Primary School Mr Alan J Francis Donation Home Loans Pty Ltd Ms Cathy Almond Ramon Falls Pty Ltd Mr David Last Waverley Christian College Inc Mrs Winifred Hirst St John Vianney’s School Baden Powell College Deer Park North Primary School Trinity Anglican College Mr Roger Moritz Rose Bay High School Richmond Primary School Mr John W Ball Mr Justin Ben-David Mr Bruce Butler The Hon. Joan Child AO Mr Christian Fletcher Mr William A Manwaring Mrs Susan Penhall Mrs Jeanette Rubira Mr Joseph Schiavone Mrs Jan Sparks Mr & Mrs Robert & Janne Symons Mr Graeme S Thomson Bentleigh Secondary College Knox Park Primary School Mr D G Moynihan Traralgon (Stockdale Road) Primary School St Francis Xavier Catholic Primary School Mr David R Haines Moolap Primary School Eltham College of Education Hampton Park Secondary College Mr Norman Gray Pakenham Consolidated School Mrs Heather Dousset Mr Richard A Juska Oberon Primary School St Patrick’s School – Camperdown Prof & Mrs J D & E J Jago and Messrs C E & D A Jago Victorian Community Foundation – Ruth Fagg Foundation Mr Jack Bradstreet Mrs Melanie Cassy Mrs Ruth Costello Mrs Helen Hains Mr & Mrs Geoffrey & Sylvia Hammond Mr Arnold W Johnston Mr Raymond Landini Epilepsy Foundation of Victoria | Annual report 2007–08 Mrs Dorothy Lorimer Mrs Karin Mackinnon Mr A Maddison Mr Leonard O’Brien Mrs Patricia Reardon Mr & Mrs L & R Rossetti Mrs G A Russell Mrs Meredith Stone Mrs Nancy Sutton Ms Lee E Tan Mr Henry Tisell Leongatha Secondary College Mrs Sigrid Klaubert Kingston Heath Primary School The Swanston Hotel – Grand Mercure White Hills Primary School Heathdale Christian College (Primary) Heathmont East Primary School Mr George F Miller Mr Clarence N C Yek Kaniva College Koonung Secondary College Mrs Elizabeth Crawford Mr & Mrs Robert & Kathy Hall Mrs Kathleen Hatch Mrs L J McMullin Ms Nan Brown Glenhuntly Primary School Cheltenham East Primary School Sunbury College Malvern Primary School Hughesdale Primary School Gardenvale Primary School Mr Keith Taylor Eltham East Primary School Tongala Primary School Treasurer’s report The 2007–08 year end result is a deficit of $181,027.61 which includes non-recurrent expenditure of $135,000. Both revenue and expenditure increased in comparison with the 2006–07 financial year. It is pleasing to see an increase in bequest income, which indicates a growing community awareness and recognition of the importance of supporting people with epilepsy and reflects the concerted and systematic work of the development team over the past 10 years. Opportunity Shop revenue was up 28 percent for the year but the current economic downturn will make maintaining this increase difficult in the year ahead. Fundraising revenue was impacted on by logistical problems at our telemarketing provider, which resulted in less raffles being run over the year. Steps have been taken to address this issue for the coming year. Personnel expenses increased over the year reflecting the increase in training and education capacity. In overall terms the organisation is in a healthy financial position. The bequests received and those notified for future receipt mean that investments in future capability can be made confidently. treasurer Epilepsy Foundation of Victoria | Annual report 2007–08 27 Gavin and Ginny are now the proud parents of Isabella. On reflection, Gavin feels lucky. Yes, he had epilepsy, but he knew its cause, it was operable and in a position in his brain that was able to be operated on. 28 Financial report THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED (Incorporated in Victoria as an Incorporated Association – Registered No. A00022674D) A.B.N 75967571784 FINANCIAL REPORT FOR THE YEAR ENDED 30th JUNE 2008 financials Epilepsy Foundation of Victoria | Annual report 2007–08 29 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED FINANCIAL REPORT FOR THE YEAR ENDED 30th JUNE 2008 Table of contents Committee’s report...................................................................................................... 31 Statement by members of the committee of management........................................... 32 Independent audit report............................................................................................. 33 Auditor’s independence declaration............................................................................. 34 Financial statements.................................................................................................... 35 Notes to and forming part of the financial statements.................................................. 38 Directory Registered Address 818 Burke Road Camberwell VIC 3124 Bankers Westpac Banking Corporation Bendigo Bank National Australia Bank Auditor Dennis J Clark FCPA The Committee of Management 30 Chairman Prof. Mark Cook Public Officer Mr. Graeme Shears Treasurer Dr. Christine Walker Committee Members Dr. Lindsay Vowels Dr. Christine Walker Mrs. Jacqueline Branston Ms. Cavell Zangelis Ms. Sally Genser Mr. Tony Mooney Mr. Richard Polkinghorn (resigned July 2008) Mrs. H Fehring (resigned May 2008) Mrs. F Smith (resigned October 2007) Mr. J MacAdie (appointed August 2008) Mr. J Campbell (appointed July 2008) Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED COMMITTEE’S REPORT The Committee of Management of The Epilepsy Foundation of Victoria Incorporated submits the Financial Report for the financial year ended 30th June 2008. Committee members The names of Committee of Management members throughout the financial year and at the date of this report are: Prof. Mark Cook Dr. Lindsay Vowels Dr. Christine Walker Mrs. Jacqueline Branston Ms. Cavell Zangelis Ms. Sally Genser Mr. Tony Mooney Mr. Richard Polkinghorn (resigned) Ms. Heather Fehring (resigned) Mr. J. MacAdie (filling casual vacancy) Mr. J Campbell (filling casual vacancy) Mrs. F Smith (resigned) Principal activities The principal activities of The Epilepsy Foundation of Victoria Incorporated during the financial year were to enhance the quality of life of people living with epilepsy through information, education, advocacy, support services and research. Significant changes No significant change in the nature of these activities occurred during the year. Operating result The deficit from ordinary activities for the year amounted to $181,028. Signed in accordance with a resolution of the Committee of Management by: Professor Mark Cook – CHairman DR christine walker – treasurer Dated at Melbourne, Victoria: 18th November 2008 Epilepsy Foundation of Victoria | Annual report 2007–08 31 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED STATEMENT BY MEMBERS OF THE COMMITTEE OF MANAGEMENT The Committee of Management has determined that The Epilepsy Foundation of Victoria Incorporated is not a reporting entity and that this special purpose financial report should be prepared in accordance with the accounting policies outlined in Note 1 to the Financial Statements. In the opinion of the Committee of Management, the Financial Report, comprising the Income and Expenditure Statement, Balance Sheet, Cashflow Statement and Notes to the Financial Statements: 1. Presents a true and fair view of the financial position of The Epilepsy Foundation of Victoria Incorporated as at 30th June 2008 and its performance for the year ended on the date; and 2. At the date of this statement, there are reasonable grounds to believe that The Epilepsy Foundation of Victoria Incorporated will be able to pay its debts as and when they fall due. This statement is made in accordance with a resolution of the Committee of Management and is signed for and on behalf of the Committee by: Professor Mark Cook – CHairman DR christine walker – treasurer Dated at Melbourne, Victoria: 18th November 2008 32 Epilepsy Foundation of Victoria | Annual report 2007–08 PO Box 42988 Casuarina NT Phone: 0412 392 518 Email: [email protected] INDEPENDENT AUDIT REPORT To the Members of The Epilepsy Foundation of Victoria Incorporated: Audit Scope I have audited the accompanying Financial Report of The Epilepsy Foundation of Victoria Incorporated, as set out on pages 35 to 51 for the financial year ended 30th June 2008. The Financial Report comprises the Income Statement, Balance Sheet, Cashflow Statement and Notes to the Financial Statements. The Committee of Management of The Epilepsy Foundation of Victoria Incorporated is responsible for the preparation and presentation of the Financial Report and the information it contains. An independent audit of the Financial Report has been carried out in order to express an opinion on it to the Members of The Epilepsy Foundation of Victoria Incorporated. The audit has been conducted in accordance with Australian Auditing Standards to provide reasonable assurance as to whether the financial report is free of material misstatement. The audit procedures included an examination, on a test basis, of evidence supporting the amounts and other disclosures in the Financial Report, and the evaluation of accounting policies and significant accounting estimates. These procedures have been undertaken to form an opinion as to whether, in all material respects, the Financial Report is presented fairly in accordance with Accounting Standards and other mandatory professional reporting requirements in Australia, so as to present a view which is consistent with my understanding of The Epilepsy Foundation of Victoria Incorporated’s financial position and financial performance as represented by the results of its operations and its cash flows. The audit opinion expressed in this report has been formed on the above basis. Audit Opinion In my opinion, the Financial Report gives a true and fair view, in accordance with the Associations Incorporation Act 1981, applicable Accounting Standards and other professional reporting requirements, of the financial position of The Epilepsy Foundation of Victoria Incorporated, as at 30th June 2008, its financial performance and cash flows for the financial year then ended. Dennis J Clark FCPA Partner MDS Partners Appointed Auditor Dated at Melbourne, Victoria: 18th November 2008 Epilepsy Foundation of Victoria | Annual report 2007–08 33 PO Box 42988 Casuarina NT Phone: 0412 392 518 Email: [email protected] AUDITOR’S INDEPENDENCE DECLARATION TO THE COMMITTEE OF MANAGEMENT OF THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED I declare that, to the best of my knowledge and belief, during the financial year ended 30th June 2008, there have been: 1. No contraventions of accepted auditor independence requirements in relation to the audit; and 2. No contraventions of any applicable code of professional conduct in relation to the audit. Dennis J Clark FCPA Partner MDS Partners Appointed Auditor Dated at Melbourne, Victoria: 18th November 2008 34 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED INCOME AND EXPENDITURE STATEMENT FOR THE YEAR ENDED 30th JUNE 2008 Note 2008 $ 2007 $ INCOME Donations 2 1,093,823 1,141,808 Bequests 375,218 37,801 Membership Fees 4,795 5,522 3 47,728 154,867 Government Grants 866,701 864,692 Investment Income 18,618 6,463 4 363,402 282,731 Service Fees / Community Awareness 74,125 86,342 Sundry Income 21,682 47,778 5 7,355 3,693 Profit on Sale of Motor Vehicle 1,588 – Total income 2,875,035 2,631,697 6 406,650 353,552 Books, Publications and Aids 70,285 54,677 Community Awareness Events 45,768 65,176 Conference Expenses 48,894 10,637 Depreciation 56,243 73,157 Fundraising Expenses 119,607 112,059 Motor Vehicle Expenses 56,529 56,116 Fundraising Events Opportunity Shops Trading Income EXPENDITURE Administration Expenses Personnel Expenses 7 2,125,449 1,699,341 Property Expenses 8 87,194 92,998 Travel Expenses 39,444 66,619 Total expenditure 3,056,063 2,584,332 Profit/(loss) from ordinary activities (181,028) 47,365 Accumulated Surplus at the Beginning of the Financial Year 696,773 649,564 Prior Period Adjustment – (156) 515,745 696,773 Accumulated Surplus at the End of the Financial Year The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 35 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED BALANCE SHEET AS AT 30th JUNE 2008 Note 2008 $ 2007 $ CURRENT ASSETS Cash 12 497,941 433,799 Receivables 9 82,797 64,965 Inventories 14,133 14,120 Total current assets 594,871 512,884 NON CURRENT ASSETS Investments 10 214,921 88,037 Property, Plant and Equipment 11 3,102,653 3,120,778 Total non current assets 3,317,574 3,208,815 TOTAL ASSETS 3,912,445 3,721,699 CURRENT LIABILITIES Creditors and Accruals 390,208 255,300 21 494 2 Revenue Received in Advance 196,053 57,087 Employee Entitlements 13 371,912 283,382 Total current liabilities 958,667 595,771 Bank Overdraft NON CURRENT LIABILITIES Employee Entitlements 13 61,244 46,132 Bank Loans 21 1,088,515 1,094,749 Total non current liabilities 1,149,759 1,140,881 TOTAL LIABILITIES 2,108,426 1,736,652 NET ASSETS 1,804,019 1,985,047 MEMBERS’ FUNDS Capital Reserves 160,580 160,580 Asset Revaluation Reserve 1,127,694 1,127,694 Accumulated Surplus 515,745 696,773 Total Members’ Funds 1,804,019 1,985,047 The accompanying Notes form part of this Financial Report 36 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED CASHFLOW STATEMENT FOR THE YEAR ENDED 30th JUNE 2008 Note 2008 2007 $ $ Cash Flows from Operating Activities Receipts from public/customers 1,970,283 1,782,152 Receipt of Government grants 866,701 864,692 Payments to suppliers and employees (2,622,305) (2,485,594) 214,679 161,250 Net Cash Flows From (Used In) Operating Activities 12 Cash Flows from Investing Activities Proceeds from sale of property, plant and equipment 1,588 – Interest received 18,618 6,463 Purchase of property, plant and equipment (38,118) (36,180) Net Cash Flows From (Used In) Investing Activities (17,912) (29,717) Cash Flows from Financing Activities Repayment of borrowings (6,234) 119,756 Investments (126,884) (4,556) Net Cash Flows From (Used In) Financing Activities (133,118) 115,200 Net Increase (Decrease) in Cash 63,639 246,733 Cash at Beginning 433,797 187,064 12 497,446 433,797 Cash at End The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 37 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO AND FORMING PART OF THE FINANCIAL STATEMENTS CONTENTS Note Page 1 Statement of Significant Accounting Policies................................................. 39 2 Donations..................................................................................................... 42 3 Fundraising Events....................................................................................... 42 4 Opportunity Shops....................................................................................... 42 5 Trading Income............................................................................................. 42 6 Administration Expenses............................................................................... 43 7 Personnel Expenses..................................................................................... 43 8 Property Expenses....................................................................................... 44 9 Receivables.................................................................................................. 44 10 Investments.................................................................................................. 44 11 Property, Plant and Equipment..................................................................... 44 12 Cash Flows................................................................................................... 45 13 Employee Entitlements................................................................................. 46 14 Commitments for Expenditure...................................................................... 46 15 Contingent Liabilities..................................................................................... 46 16 Superannuation............................................................................................ 46 17 Auditor’s Remuneration................................................................................. 46 18 Responsible Persons Disclosures................................................................. 46 19 Segment Information.................................................................................... 47 20 Income Tax................................................................................................... 47 21 Financial Instruments.................................................................................... 47 22 Association Information................................................................................. 51 The accompanying Notes form part of this Financial Report 38 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 Note 1: Statement of significant accounting policies This financial report is a special purpose financial report prepared in order to satisfy the financial reporting requirements of the Associations Incorporation Act. The Committee of Management has determined that the foundation is not a reporting entity. However the Financial Report has been prepared in accordance with Australian Accounting Standards, Urgent Issue Group Consensus Views, other authoritative pronouncements of the AASB and the requirements of the Associations Incorporation Act 1981. The Financial Report consists of the Financial Statements of The Epilepsy Foundation of Victoria Incorporated as an individual entity. The Epilepsy Foundation of Victoria Incorporated is an incorporated association, incorporated and domiciled in Australia. The accounting policies adopted in preparing the Financial Statements are consistent with those of previous years, except where otherwise stated. The Financial Report of The Epilepsy Foundation of Victoria Incorporated complies with all Australian equivalents to International Financial Reporting Standards (AIFRS). The following is a summary of the material accounting policies adopted by The Epilepsy Foundation of Victoria Incorporated in the preparation of the financial report. The accounting policies have been applied consistent with the previous period, unless otherwise stated. 1.1 Historical cost The Financial Report has been prepared on an accruals and historical cost basis whereby assets are recorded at cost and do not take into account changing money values, nor the current cost of noncurrent assets, except for certain assets, which are at valuation. Cost is based on the fair value of the consideration given in exchange for assets. 1.2 Rounding off All amounts shown in the Financial Statements are expressed to the nearest dollar. 1.3 Property, plant and equipment Property, plant and equipment are carried at cost less any accumulated depreciation. The carrying amount of property, plant and equipment is reviewed annually by the members of the Committee of Management to ensure it is not in excess of the recoverable amount from those assets. The recoverable amount is assessed on the basis of the expected net cash flows which will be received from the assets employment and subsequent disposal. The expected net cash flows have not been discounted to present values in determining recoverable amounts. Non-current assets are capitalised and depreciated to write off the cost or revalued amount of each item of Plant and Equipment, over its expected useful life to The Epilepsy Foundation of Victoria Incorporated. Depreciation methods and rates used for each class of depreciable assets are: Method Rate Furniture & Equipment Reducing Balance 20% Motor Vehicles Reducing Balance 20% The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 39 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 Depreciation methods and rates of all non current assets are reviewed on an annual basis. There has been no change in the methodology and rates for 2008. 1.4 Inventories Inventories are stated in the Balance Sheet at the lower of cost and net realisable value. Cost is determined principally by the first-in, first-out method. 1.5 Employee entitlements The calculation of employee entitlements includes all relevant on-costs and employee entitlements are calculated as follows at reporting date. 1.5.1Wages and salaries, annual leave and sick leave Liabilities for wages and salaries and annual leave are recognised, and are measured as the amount unpaid at current pay rates in respect of employees’ services up to that date. Sick leave is non-vesting and a liability is recognised only when the amount of sick leave expected to be taken in future periods exceeds the entitlements expected to accrue in those periods. 1.5.2Long service leave A liability for long service leave is recognised and is measured as the present value of expected future payments (including on-costs) to be made in respect of services provided by employees up to the reporting date. Consideration is given to expected future wage and salary levels, experience of employee departures and periods of service. Expected future payments are discounted using interest rates on national Government guaranteed securities with terms to maturity that match, as closely as possible, the estimated future cash flows. The nominal amount of long service leave expected to be paid in the next financial year is included as a current liability. 1.5.3Superannuation Superannuation Guarantee Levy amounts are paid on behalf of eligible employees. No other liability for superannuation benefits is recognised. 1.6 Doubtful debts A provision is made for any doubtful debts based on a review of all outstanding amounts at reporting date. Bad debts are written off in the period in which they are identified. 1.7 Non current assets The gross proceeds from the sale of non current assets are included as operating revenue while the written down value of the assets sold are shown as an operating expense. The accompanying Notes form part of this Financial Report 40 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 1.8 Valuation of non-current assets Non-current assets are valued as follows: Application of Accounting Standard AASB J 041 Revaluation of Non-Current Assets requires that each class of non-current physical assets must be measured on either the cost or fair value basis. Plant and Equipment are measured at cost. The Epilepsy Foundation of Victoria Incorporated includes in its Asset Register only items of property, plant and equipment which have a life expectancy of more than twelve months. The Financial Statements are prepared consistent with the Asset Register. 1.9 Cash For the purpose of the Cashflow Statement, cash includes cash on hand and cash equivalents, i.e. highly liquid investments with short periods to maturity, which are readily convertible to cash on hand at The Epilepsy Foundation of Victoria Incorporated’s option. Cash at the end of the financial year as shown in the Statement of Cash Flows is reconciled to the related items in the Balance Sheet. 1.10 Goods and services tax Revenues, expenses and assets are recognised net of the amount of Goods and Services Tax (GST), except, where the amount of GST incurred is not recoverable from the Taxation Authority, it is recognised as part of the cost of acquisition of an asset or as part of an item of expense. The net amount of GST recoverable from, or payable to, the Taxation Authority is included as part of receivables or payables in the Balance Sheet. The GST component of a receipt or payment is recognised on a gross basis in the Statement of Cash Flows in accordance with Accounting Standard AAS 28 Statement of Cash Flows. 1.11 Revenue recognition Membership fees, government grants and other sales are recognised as revenue upon the rendering of an invoice. Bequests, donations and trading revenue are recognised as revenue on receipt or delivery. Investment income from cash, short term deposits and investments is brought to account on a time proportionate basis. 1.12 Tax The Epilepsy Foundation of Victoria Incorporated is considered to be exempt from income tax under the Income Tax Assessment Act 1997. 1.13 Comparative figures Prior period figures have been adjusted, where appropriate, to ensure consistency with current year figures. The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 41 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 2008 $ 2007 $ NOTE 2: DONATIONS General 515,096 446,907 Trusts – 69,568 Doorknock 578,727 538,602 Raffles – 86,731 Net Surplus from Donations 1,093,823 1,141,808 Trivia Challenge 87,360 126,835 Less Costs (45,857) (80,451) Net Surplus 41,503 46,384 NOTE 3: FUNDRAISING EVENTS Raffles and Other Events 1,009,421 1,702,338 Less Costs (1,003,196) (1,593,855) Net Surplus 6,225 108,483 Net Surplus from Fundraising 47,728 154,867 Sales 523,172 434,163 Less Costs (159,770) (141,432) Net Surplus from Opportunity Shops 363,402 282,731 Sales – Books, Badges and Medical Aids 7,355 3,693 Total Trading Income 7,355 3,693 NOTE 4: OPPORTUNITY SHOPS NOTE 5: TRADING INCOME The accompanying Notes form part of this Financial Report 42 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 2008 $ 2007 $ Advertising 20,190 16,808 Bank Charges 14,210 21,009 Bad Debts 2,648 4,480 Computer Charges 30,690 23,393 Internet Expenses 54,306 - Courier 804 2,134 Honorariums 45 962 Income Protection Insurance 8,093 9,058 Interest Expense 89,040 91,270 Loan Fee - 1,600 Volunteer Program 7,040 5,823 Postage 21,095 31,786 Photocopying, Printing & Stationery 10,491 15,308 Regional Office Expenses 24,408 25,982 Repairs and Maintenance 1,828 4,373 Security Documents Disposal 1,457 2,252 Subscriptions 5,775 3,402 Sundry 5,501 39,838 Telephone 32,357 35,754 Professional Fees 76,672 18,319 Total Administration Expenses 406,650 353,552 Salaries 1,754,586 1,466,771 Provision for LSL 90,085 46,429 Staff Procurement 2,988 165 Consultants Fees 28,953 16,973 Superannuation 141,925 121,266 WorkCover 91,281 39,518 Staff Amenities 4,208 5,377 Staff Training 11,423 2,842 Total Personnel Expenses 2,125,449 1,699,341 NOTE 6: ADMINISTRATION EXPENSES NOTE 7: PERSONNEL EXPENSES The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 43 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 2008 $ 2007 $ Cleaning 32,196 27,828 Consultant 0 240 Power and Light 16,054 16,506 Security/Fire Monitoring 5,438 6,151 Rates 3,331 3,545 Repairs and Maintenance 25,599 28,186 Insurance 4,576 10,542 Total Property Expenses 87,194 92,998 Trade Debtors 29,210 7,748 Sundry Debtors and Prepayments 53,587 57,217 Total Receivables 82,797 64,965 Trust Co of Australia – At Call 214,921 88,037 Total Investments 214,921 88,037 NOTE 8: PROPERTY EXPENSES NOTE 9: RECEIVABLES NOTE 10: INVESTMENTS NOTE 11: PROPERTY, PLANT & EQUIPMENT Land and Buildings At Cost 973,151 973,151 At Independent Valuation 2,026,849 2,026,849 3,000,000 3,000,000 Furniture and Equipment At Cost 610,544 560,015 Accumulated Depreciation (542,957) (505,899) 67,587 54,116 Motor Vehicles At Cost 165,279 188,553 Accumulated Depreciation (130,213) (121,891) 35,066 66,662 Total Property, Plant and Equipment 3,102,653 3,120,778 The accompanying Notes form part of this Financial Report 44 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 2008 $ 2007 $ NOTE 12: CASH FLOWS Cash 497,941 433,799 Bank Overdraft (494) (2) 497,447 433,797 Reconciliation of Profit/(Loss) From Ordinary Activities To Net Cash Provided By Operating Activities: Profit/(Loss) (181,028) 47,365 Depreciation and amortisation 56,243 73,157 Proceeds from sale of property (1,588) – Interest received (18,618) (6,463) Prior year adjustment – (156) Change in Operating Assets and Liabilities Decrease (Increase) in receivables (17,832) 21,601 Decrease (Increase) in inventories (13) 9 Increase (Decrease) in payables 134,908 (13,265) Increase (Decrease) in revenue received in advance 138,965 22,843 Increase (Decrease) in employee provisions 103,642 16,159 Net Cash Provided By Operating Activities 214,679 161,250 The Epilepsy Foundation of Victoria Incorporated has no credit standby or finance facilities in place, other than a bank overdraft facility of $400,000. NOTE 13: EMPLOYEE ENTITLEMENTS Annual Leave 202,049 153,026 Long Service Leave 231,107 176,488 433,156 329,514 Current Liabilities Annual Leave 202,049 153,026 Long Service Leave 169,863 130,356 371,912 283,382 Non Current Liabilities Long Service Leave 61,244 46,132 61,244 46,132 The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 45 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 2008 $ 2007 $ NOTE 14: COMMITMENTS FOR EXPENDITURE As at 30 June 2008, The Epilepsy Foundation of Victoria Incorporated had no outstanding capital commitments (2007 nil). NOTE 15: CONTINGENT LIABILITIES As at 30 June 2008, The Epilepsy Foundation of Victoria Incorporated had no contingent liabilities (2007 nil). NOTE 16: SUPERANNUATION Contribution to All Funds 141,925 121,266 141,925 121,266 For Auditing the Financial Statements 10,340 10,340 For Other Services 3,650 - 13,990 10,340 NOTE 17: AUDITOR’S REMUNERATION NOTE 18: RESPONSIBLE PERSONS DISCLOSURES Responsible Persons: The names of persons who were members of the Committee of Management of The Epilepsy Foundation of Victoria Incorporated, at any time during the financial year were: Prof. Mark Cook Dr. Lindsay Vowels Dr. Christine Walker Mrs. Jacqueline Branston Ms. Cavell Zangelis Ms. Sally Genser Mr. Tony Mooney Mr. Richard Polkinghorn Ms. Heather Fehring Mrs. F Smith Remuneration of Responsible Persons: There was no remuneration received or due and receivable from The Epilepsy Foundation of Victoria Incorporated in connection with the management of The Epilepsy Foundation of Victoria Incorporated. The accompanying Notes form part of this Financial Report 46 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 Retirement Benefits of Responsible Persons: There were no retirement benefits paid by The Epilepsy Foundation of Victoria Incorporated in connection with the retirement of Responsible Persons of The Epilepsy Foundation of Victoria Incorporated (2007 nil). Superannuation: There were no amounts paid to a superannuation plan by The Epilepsy Foundation of Victoria Incorporated in connection with the Responsible Persons (2007 nil). Other Transactions: The Epilepsy Foundation of Victoria Incorporated entered into other transactions, which are insignificant in amount, with Responsible Persons in their domestic dealings within normal customer terms and conditions not more favourable than those available in similar arms length dealings. NOTE 19: SEGMENT INFORMATION The Epilepsy Foundation of Victoria Incorporated operates throughout Australia, predominantly in the not for profit charitable sector. NOTE 20: INCOME TAX The Epilepsy Foundation of Victoria Incorporated is considered to be exempt from income tax under the Income Tax Assessment Act 1987. No income tax is therefore payable. NOTE 21: FINANCIAL INSTRUMENTS 21.1 Terms, Conditions and Accounting Policies The Epilepsy Foundation of Victoria Incorporated’s accounting policies, including the terms and condition of each class of financial asset, financial liability and equity instrument, both recognised and unrecognised at reporting date, are as follows: Recognised Financial Instruments Notes Accounting Policies Terms and Conditions 12 Cash at Bank is carried at the principal amount. Cash is invested as funds permit at varying market interest rates. FINANCIAL ASSETS Cash Assets Cash at Bank The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 47 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 Recognised Financial Instruments Notes Accounting Policies Terms and Conditions Receivables – Trade Debtors 9 Trade Debtors are carried at nominal amounts due less any provision for doubtful debts. A provision for doubtful debts is maintained, as appropriate, to recognise that collection of the full nominal amount is no longer probable. Credit sales are on 30 day terms. Receivables – Sundry Debtors 9 Other Debtors are carried at the nominal amounts. Credit is allowed in accordance with agreement. Investments 10 Investments are carried at the principal amount. Investments earn varying market interest rates. 10 Liabilities are recognised for amounts to be paid in the future for goods and services received, whether or not invoiced to The Epilepsy Foundation of Victoria Incorporated. Trade liabilities are settled as required. Bank Overdraft Bank overdrafts are recorded at the nominal amount. Overdrawn amounts incur varying market interest rates. Bank Loans Banks loans are recorded at the nominal amount. Outstanding amounts incur varying market interest rates. FINANCIAL LIABILITIES Trade Creditors and Accruals The accompanying Notes form part of this Financial Report 48 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 21.2 Interest Rate Risk The Epilepsy Foundation of Victoria Incorporated’s exposure to interest rate risks and the effective interest rates of financial assets and financial liabilities, both recognised and unrecognised at balance date are as follows FINANCIAL INSTRUMENTS Floating Interest Rate Non-Interest Bearing 2008 $ 2007 $ 497,941 433,799 2008 $ 2007 $ Total Carrying Amount per Balance Sheet 2008 $ 2007 $ 497,941 433,799 82,797 64,965 214,921 88,037 FINANCIAL ASSETS Cash at Bank Receivables – Debtors 82,797 Investments 214,921 88,037 Total Financial Assets 712,862 521,836 64,965 82,797 64,965 795,659 586,801 390,208 255,300 390,208 255,300 FINANCIAL LIABILITIES Trade Creditors & Accruals Bank Overdraft 494 2 494 2 Bank Loans 1,088,515 1,094,749 1,088,515 1,094,749 Total Financial Liabilities 1,089,009 1,094,751 1,479,217 1,350,051 390,208 255,300 The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 49 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 21.3 Net Fair Values The aggregate net fair values of financial assets and financial liabilities, both recognised and unrecognised, at balance date, are as follows: Total Carrying Amount as per the Balance Sheet Aggregate Net Fair Value 2008 $ 2007 $ 2008 $ 2007 $ 497,941 433,799 497,941 433,799 82,997 64,965 82,997 64,965 Investments 214,921 88,037 214,921 88,037 Total Financial Assets 795,659 586,801 795,659 586,801 390,208 255,300 390,208 255,300 494 2 494 2 Bank Loans 1,088,515 1,094,749 1,088,515 1,094,749 Total Financial Liabilities 1,479,217 1,350,051 1,479,217 1,350,051 FINANCIAL ASSETS Cash at Bank Receivables – Debtors FINANCIAL LIABILITIES Trade Creditors & Accruals Bank Overdraft The following methods and assumptions are used to determine the net fair values of financial assets and liabilities: Recognised Financial Instruments Cash at Bank, Investments, Receivables, Trade Creditors and Accruals, Bank Overdraft and Bank Loans. These financial instruments have short to medium terms to maturity. Accordingly, it is considered that their carrying amounts reflect fair values. The accompanying Notes form part of this Financial Report 50 Epilepsy Foundation of Victoria | Annual report 2007–08 THE EPILEPSY FOUNDATION OF VICTORIA INCORPORATED NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30th JUNE 2008 21.4 Credit Risk Exposures The Epilepsy Foundation of Victoria Incorporated’s maximum exposure to credit risk at balance date in relation to each class of recognised financial asset is the carrying amount of those assets as indicated in the Balance Sheet. Concentration of Credit Risk The Epilepsy Foundation of Victoria Incorporated minimises concentrations of credit risk in relation to trade accounts receivable by undertaking transactions with a number of customers. The customers are concentrated in Australia. The major customers relate to the provision of services. The Epilepsy Foundation of Victoria Incorporated continues to provide services for those customers who adhere to industry trade terms. Credit risk in trade receivables is managed in the following ways: • Payment terms are 30 days from date of invoice • Debtors with accounts in excess of 30 days are sent a statement of account, indicating terms of 30 days to make payment • Debtors with arrears are followed up by telephone prior to referring their debt to a debt collection agency • Debtors which represent Government departments or agencies are not referred to a debt collection agency, but managed by the organisation directly with department or agency contacts. NOTE 22: ASSOCIATION INFORMATION The registered office of The Epilepsy Foundation of Victoria Incorporated is currently 818 Burke Road, Camberwell, VIC 3124. The accompanying Notes form part of this Financial Report Epilepsy Foundation of Victoria | Annual report 2007–08 51 dreams Arranging to meet footballers is not usually in the job description of our client services staff, but when it comes to helping clients like Steve Rees live their dream, then it’s all in a day’s work. 52 The Epilepsy Foundation of Victoria is dedicated to enhancing the quality of life of people living with epilepsy through information, education, advocacy, support services and research. Epilepsy Foundation of Victoria 818 Burke Road Camberwell Victoria 3124 phone +61 (0)3 9805 9111 fax +61 (0)3 9882 7159 www.epinet.org.au