25 Years of Happiness, Hope and Healing

Transcription

2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g
Honoring Our Founders
Anna M. Gould
and
Dr. Lawrence Gould
Thank you for your leadership, inspiration,
passion, and above all, compassion.
Your selfless giving has improved
thousands of lives these past 25 years and
will continue to positively impact the lives
of generations of children and
their families for years to come.
The Camp Sunshine
Board of Directors and Staff
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C a m p S u n s h i n e A Message from the Founders
W
ith great
awe, we
reflect in
celebration of Camp
Sunshine’s 25 years.
It is amazing to realize that what was
planned for a onetime session, would
Anna M. Gould end up being an
amazing year-round
program. Like
parents, we have
wondered, nurtured,
been worried, been
proud, and watched
so many changes
take hold. The
matured results of
Lawrence Gould this camp and all its
programs are a true
testament to the need Camp Sunshine
fulfills.
Camp Sunshine was destined to be the
model for a family program. From
inception, the response to a family
program was overwhelming. The family, the volunteer, the medical and the
psychosocial components, are truly the
greatest and most lasting strengths of the
program. Keeping the family unit whole,
while addressing the traumatic impact of
illness on a child, is a daunting task for
anyone. Camp Sunshine was designed to
provide a much needed respite
to all family members. Having
watched thousands of families
over the years come through
Camp Sunshine’s doors, we
are still amazed at the positive
and restorative effects the camp
program has on families when
we first meet them and in their
subsequent visits to Camp Sunshine. The time they have to
talk to other parents who have
a child suffering from the same
illness, as well as the discussion
groups, help to give the parents
strength to return to continue
to meet the challenges at home.
The volunteer force is truly a
remarkable portrait of the best
of humanity. Volunteers come
from far away and next door.
The diverse group of volunteers consists of dedicated
teenagers to accomplished
grandparents, but what they all
share is their love and desire to
help others. They in turn go
home with a full heart, knowing they received far more than
what they gave.
As we reflect on the past 25
years, we feel honored to have
been given the unique opportu-
nity to encounter so many truly
amazing people: the children,
with their smiles and resilience to
overcome their illness; the parents, who stay steadfast in protecting their children; the volunteers, who come by the hundreds
to give of themselves for others;
and the staff that is dedicated in
providing an unforgettable experience for the families. It has
been an honor to have shared so
many special moments with so
many wonderful individuals.
It is with admiration for the
families that we are committed
to ensuring that Camp Sunshine
will always be the beacon of
hope and happiness to those that
walk through “the magical three
doors”. We hope you will also
continue to support this muchneeded oasis.
Thank you all for giving us the
treasured memories of the past
25 years; these are wondrous moments that will be with us for the
next 25 years and always.
Anna M. Gould
Lawrence Gould
Founders
TABLE OF CONTENTS
Executive Director’s Message ................................................5
One Family’s Journey..........................................................6-7
Camp Sunshine Board of Directors.......................................9
Camp Sunshine’s 25-Year Timeline..................................10-13
Psychosocial Director’s Message............................................14
Medical Director’s Message..................................................15
Campus Director’s Message...................................................16
15-25-Year Volunteers............................................................17
Quarter Century Club............................................................18
New Balance Foundation $250,000 Challenge........................19
Experiencing Pure Joy at Camp Sunshine..............................20
Message from Governor John Baldacci.................................22
Awards & Recognition ....................................................24-25
A Family Gives Back.................................................26-27
Referring Treatment Centers...........................................28
Message from Senator Susan Collins..............................30
Donor Testimonials........................................................31
Message from Senator Olympia Snowe...........................32
Charity Navigator Rating...............................................33
A Journey of Hope........................................................34
Camp Sunshine at Sebago Lake, Inc.
35 Acadia Road, Casco, Maine 04015
Tel (207) 655-3800 Fax (207) 655-3825
[email protected] www.campsunshine.org
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Camp Sunshine
Thanks
Point Sebago Resort
and Guests
From day one, you have raised over
$1 million for Camp Sunshine and
have given your hearts in helping
children with life-threatening illnesses
and their families live more hopeful lives.
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C a m p S u n s h i n e A Message from the Executive Director
experiences with all of us. These are
the people whose contributions and
life commitments to Camp Sunshine
have inspired and guided me and so
many others as we embark on journeys of our own with the organization. Along with our dedicated staff
and board of directors, without whom
the program would be far less magical, these are the people I am proud to
now call my friends.
Matthew M. Hoidal, Esq.
W
hen I assumed my post as
Executive Director in
2001, it was a major point
in Camp Sunshine’s history, as the
organization transitioned from its
founding and former base at Point
Sebago Resort, to its brand new
home next door. Eager to begin ad-
Every great organization only succeeds by remembering and honoring its roots. In the eight years since
Camp Sunshine moved into its new
campus, the organization has undergone tremendous growth, expanding from 4 sessions in 2000 to the 25
sessions planned on our 25th anniversary season. The campus has
grown, our volunteer and donor forces
have grown, awareness has increased,
and the need for the program always
“We Are Family”
vancing Camp Sunshine, I was also
mindful of the need to take time
to better appreciate and become
familiar with Camp Sunshine’s rich
history, and the people who helped
nurture and care for it for so many
years.
To this day, I love talking to people
about the days back at Point Sebago. For those of us who were not
involved in the program back then,
it would be so great if we could go
back in time and be a part of Camp
Sunshine. And while that’s not
possible, we are all fortunate that
those who enjoyed those years were
so open and willing to share their
Sunshine grows, we will grow as a
family, remembering our heritage,
and honoring those who came
before us, while constantly striving
to enhance and perfect our familyfocused programming.
Thank you all for welcoming me
into your family, and for giving me
this privilege of serving so many
families with you. I look forward
to sharing many more years with
you, and working together to bring
respite to the many more children
and families who need Camp Sunshine.
As you turn the pages throughout
this publication, I hope they evoke
nostalgic feelings and memories
of your involvement and reminds
you of the important role you have
played in Camp Sunshine’s 25 year
history.
Matt Hoidal, Esq.
Executive Director
continues. And yet as we change and
grow, our foundation, and the principles that have defined who we are and
what we do, remain the same.
It’s no surprise that the song “We
are family” is a routine act during
karaoke at Camp Sunshine’s weekly
Parents’ Gourmet Dinner. Indeed,
if I had to choose one word to define
Camp Sunshine, it would be “family.”
Family is who we exist to serve, and
it’s the community of friends, volunteers, donors, and all of the numerous other caring and compassionate
people who have come together in
support of Camp Sunshine over the
years. No matter how much Camp
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One Family’s Journey
C
amp Sunshine has meant so much to so
many families over the past 25 years, but
perhaps no family has had the fabric of their
lives more intertwined in Camp Sunshine’s
history than the Chapmans from Sydney, Maine.
It was the spring of 1982, and life could not have been
better for the Chapmans. They had two beautiful children, a daughter, Kim, age nine and a son, Jason, who
was seven. Jason had above average grades, he was
athletic, and had dreams of becoming a doctor.
March 29th of that year would be a day the family
would never forget. In Jason’s own words, written in
a speech he was to deliver many years later: “There
was actually a single word that would change my life
forever: Medulloblastoma.” At the time, just two cases
of medulloblastoma, which accounts for 30% of brain
tumors in childhood, were diagnosed in Maine annually. By day’s end the family found themselves at
Maine Medical Center, where Jason underwent 9 hours
of neurosurgery. The doctors estimated he had a 30%
chance of surviving 3 years.
Jason’s mother Carol recalls, “There was very little
support in Maine during the early 1980’s for families
battling childhood cancer. However, in 1984, we were
invited to attend Camp Sunshine’s very first session,
and it would prove to be the most wonderful experience
of our lives.” According to Carol, “For the first time
since the diagnosis two things occurred during our stay:
Jason was able to act like a child again, and my husband and I found ourselves able to laugh.”
The family was so impressed with their stay at Camp
that they returned to volunteer the following year, determined to repay the prior year’s gift.
The road ahead continued to be a struggle for the family over the next 15 years, with surgery after surgery
and extensive chemotherapy and radiation treatments.
Besides cancer, only one other constant would remain
for the Chapmans—Camp Sunshine.
By 2005, Jason continued to defy all odds and at age
30 was one of the longest known survivors of medulloblastoma. That same year, Jason returned to Camp
Sunshine, this time as a volunteer. He quickly became
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C a m p S u n s h i n e a role model for the children, as well as a beacon of
hope to the many families whose lives he would touch.
Sadly, 2005 would also be the same year Jason was diagnosed with his final, recurring brain tumors, just two
weeks after volunteering at Camp Sunshine’s winter
sessions.
In the words of Jason’s cousin Adam, who is also
deeply entrenched in Camp Sunshine as a volunteer
and fundraiser, “Jason’s incredible striving for life, and
his desire to make the people around him happy is why
he is such an inspiration. Every obstacle in Jason’s
journey became a milestone, an occasion for further
triumph. He is a hero who blazes a trail and gives others strength.”
Carol Chapman reflects, “Our entire family attributes
Jason’s strength, courage, and ability to cope to his
involvement with Camp Sunshine. We will forever be
grateful for all the sunshine Camp has brought to our
family.”
Today Carol and her husband Steve continue to volunteer. Jason’s memory lives on at Camp Sunshine
through the establishment by his family and friends
of the “Jason Chapman Family Sponsorship Fund.” This
fund will allow one family to attend camp each year in
Jason’s honor, forever…
Camp Sunshine is grateful to Jason’s family, and to all
of those who continue to celebrate his life through the
support of the fund established in his memory. To that
end, Jason’s memory will live on.
“Our entire family
attributes Jason’s
strength, courage,
and ability to cope to
his involvement with
Camp Sunshine.
We will forever be
grateful for all the
sunshine Camp has
brought to our
family.”
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Congratulations to the Visionary
Founders and Dedicated Volunteers
and Staff on Camp Sunshine’s
25th Anniversary.
Andrew and Erna Viterbi
and Family
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C a m p S u n s h i n e Board of
Directors
Anna Gould, Chair
Stephen Brickel, President
Donald Toms, Treasurer
David Sukoff, Secretary
Nancy Cincotta, M.S.W.
Bill Drapeau
Andrew Eichenfield, M.D.
Martin Grossman
Pat Horan
Joseph Pappalardo
Timothy Porta
Albert Ragucci
Dan Shaw
Honorary Members
Lawrence Gould, Ph.D.,
Chairman Emeritus
Governor John Baldacci
Rosalyne Bernstein
Bruce Chalmers
Senator Susan Collins
David Frohnmayer, Esq.
Andrew Viterbi, Ph.D.
Erna Viterbi
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Camp Sunshine’s 25 Year History
Beginning of proud partnership with:
Anna Gould and
Larry Gould donate
24 acres of land for
construction of a
permanent yearround campus.
Capital campaign
begins
Rotarians from across the
northeast gather to shingle
entire Family Activity Center
in one weekend
Sale of Camp Sunshine’s
paper “Sunnies” begins
43 families served!
Over a two-year period, Maine
National Guard 133rd Engineering
Battalion builds first structures on
property including a bridge,
gazebo and bathhouse
Camp Sunshine founded by
Anna M. Gould and Dr. Lawrence
Gould at Point Sebago Resort
1984
1987
1990
1992
Camp exceeds
1,000 families
(4,000 family
members) served
since inception
Maine National
Guard 133rd
Engineering
Battalion clears
grounds for
campus
1993
1994
Camp exceeds 2,500
families (10,000
family members)
served since inception
1995
1996
1997
Over 100,000 hours
volunteered since 1984
First Annual Camp
Sunshine Golf Tournament
held at Point Sebago Resort
Ground breaking for 23,000 square
foot Family Activity Center
Professional Residences
completed for on-site staff
Maine Bass Fishermen begin
supporting Camp Sunshine with
fishing trips for children
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C a m p S u n s h i n e The American Camp Association awards
Camp Sunshine the Eleanor P. Eells
Award for Program Excellence
Viterbi Family Activity Center
Anna Gould and Larry Gould
announce $1 million matching
challenge to raise funds needed
to complete campus
Camp Sunshine’s Brick
Walkway Program begins
1998
1999
First Annual Monte Carlo
Weekend to benefit Camp
Sunshine held at Point
Sebago Resort
Grand Opening of the Anna Gould &
Larry Gould Campus
First Winter Program offered
Program expands to 8 sessions
2000
Capital campaign concludes with
$1 million gift from the
Viterbi Family Foundation
2001
2002
2003
Over 250,000 hours
volunteered since 1984
Construction begins on family
and volunteer housing units
ABC News Nightline features
story on Camp Sunshine
Camp receives accreditation by
American Camp Association
First bereavement session
offered
With funding from Lions Clubs
International Foundation, Camp
Sunshine offers Ray of Hope
Sessions for families who lost a
parent on 9/11
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Camp Sunshine
offers pilot
program in
Warrens, WI at
Yogi Bear’s
Jellystone Park
Camp-Resort
Maine Parks & Recreation
awards Camp Sunshine Facility
of Merit Award
announce $2 million matching
challenge
Joey Cerato takes the first polar plunge to
benefit Camp Sunshine, immediately followed
by A.J. Cincotta-Eichenfield’s plunge, laying
the groundwork for plunges around the nation
Camp Sunshine kicks off
$14.5 million Momentum
Endowment & Capital Campaign
Anna Gould interviewed on the Glenn
Beck Show, CNN Headline News
Camp Sunshine & Life is good ® set
Guinness World Record with 30,128 lit
jack-o-lanterns on the Boston Common
Program expands to 22
sessions
Over 500,000 hours volunteered since 1984
Camp Sunshine celebrates
20th Birthday
2004
2005
Program Expands to 23 sessions
2006
Camp exceeds 5,000 families
(20,000 family members) served
since inception
With the support of Lions Clubs from ME,
NY, and Lions Clubs International
Foundation, Camp Sunshine installs a
generator capable of keeping facility fully
operational during outages
Camp Sunshine develops 8 acres of
land into the Joan & Bill Drapeau
Outdoor Challenge Area with a ropes
course and fitness trail
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C a m p S u n s h i n e Beginning of proud partnership with:
Camp Sunshine sets Guinness World
Record for Tallest Sand Castle - featured
on CBS Early Show, Today Show, and
Google News
Shaw Brothers Construction 7,000 square foot addition completed
Camp Sunshine earns Charity Navigator’s
highest rating for fiscal management for 5th
consecutive year, a distinction shared by only
3% of rated charities
Camp Sunshine offers pilot program in
Tucson, AZ at Rincon Country West RV
Resort
Camp Sunshine is awarded Agency of
Distinction by WCSH6 News
2007
Camp Sunshine program in Wisconsin
celebrates completion of 10th session
Over 750,000 hours volunteered since 1984
2008
Camp exceeds 7,500 families
(30,000 family members) served
since inception
offers $250,000 matching challenge in
celebration of Camp Sunshine’s 25th
Anniversary (See page 19 for details)
2009
Camp Sunshine is honored with the
Governor’s Exemplary Service Award
$2 Million matching challenge
concludes with major gifts from the
Orokowa Foundation, New Balance
Foundation, Alison & Gary Lieberman,
Joan & Richard Barovick, and Shaw
Brothers Construction
Momentum Endowment & Capital
Campaign breaks $8 Million mark
Tropical Smoothie Café selects Camp
Sunshine as its national charity.
Camp Sunshine proudly
celebrates its 25th Birthday
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Psychosocial Director’s Message
navigate the future, families
who have been on the journey
of a life-threatening illness, and
who were helped by their Camp
Sunshine experience. We have
children who have grown up
and have come back to help us
help others. What a testimony
to the magic of Camp Sunshine!
No matter how you look at it,
twenty-five years is a long time.
There is so much to reflect
upon. For all of you, (and you
know who you are) who have
come forward and lent a hand
at critical times, in the middle
of the night, on the long hauls,
with seemingly daunting tasks
– we can never thank you
enough.
The positive energy of Camp
Sunshine comes from the spirit of
giving that permeates the campus.
With the only facility in the world
whose sole purpose is to serve
families of children with lifethreatening illnesses in a retreat
model, every family member, every volunteer, every staff member
(and their family members), and
every board member, should feel
proud.
I thank you all for being the fabric
of Camp Sunshine, and for making the pattern in the Camp Sunshine kaleidoscope spectacular.
Nancy F. Cincotta, MSW
Psychosocial Director
Nancy F. Cincotta, M.S.W.
W
hen you look into a
kaleidoscope, you see an
image, often beautiful. You
turn even the simplest of kaleidoscopes
and there is yet another pattern even
more appealing. Each crystal, each color,
makes the new design remarkable, and so
it is with the people of Camp Sunshine.
After twenty-five years, Camp Sunshine is
populated by what seems to be an endless stream of amazing people who make
the image of what Camp Sunshine has
become more beautiful every day.
Camp Sunshine began as a well executed,
creatively planned program, somehow
unaware of its destiny. Our exceptional
founders knew that they had created
something special very quickly based
on the emotional connections among
the families served in those early sessions. In 2009, we all know that we have
something special, based on those same
emotional connections. But now we
have a generation of families to help us
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C a m p S u n s h i n e Nancy, Andy & son AJ with Hobbs
The Board of Directors and Staff of
Camp Sunshine wish to formally
recognize Nancy Cincotta for
her 22 years of caring and
supportive service.
Medical Director’s Message
family-centered respite at a time
when other programs focused
exclusively on ill children. It is a
testament to the Goulds, to Camp’s
dedicated staff, and to untold
numbers of volunteers that the
Camp Sunshine model has fulfilled
every one of the requirements of
a medical home. On the occasion
of our twenty-fifth anniversary, I
would like to take this opportunity
to thank all who have served at
Camp Sunshine through the years,
Dr. Andrew Eichenfield
Camp Sunshine, A Medical Home
Away from Home
I
n 1967, the American Academy
of Pediatrics first put forth the
concept of a medical home for
children as a place in which a primary
care physician could coordinate all
of a child’s health care. The current
vision of the medical home encompasses a model of care that is accessible, continuous, comprehensive,
family-centered, coordinated, compassionate, and culturally effective. It
is immediately apparent that Camp
Sunshine, while not a child’s primary
medical home, does serve as a medical home away from home, a place
that has provided all of the above for
the families which it has served for
the last twenty-five years. When a
child is diagnosed with a life-threatening illness, it is difficult to feel at
home almost anywhere. Camp Sunshine has become a home to many, a
safe and comfortable place.
Camp Sunshine’s founders had the
foresight to provide comprehensive,
individuals who have given of
themselves, involved their extended
families in Camp Sunshine’s mission, and have embraced what we
have all created.
derived from that concept. Everyone
is home together. Once you walk
through those three doors, something happens. For a period of days,
maybe a week, everyone shares a
remarkable experience. Whether a
medical emergency, a beautiful rainbow, a parents’ group, or an interchange between siblings, whatever
happens at Camp Sunshine happens
for everyone who comes together for
that Camp session.
So, I thank those
who have helped
us provide care
to families, in
the middle of
the night, in the
middle of the day,
in the middle of
the woods. Camp
Sunshine could
not be a home
without you, and
would not be
accessible to the
children and families we follow without your willingness to become part of the Camp
Sunshine family.
Andrew Eichenfield, M.D.
Medical Director
For the period of time that anyone
is at Camp Sunshine, it serves as
home, and part of the magic is
recognize Dr. Eichenfield for
his 21 years of dedicated and
compassionate service.
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Our Dedicated Volunteers
so, and even if for only a brief
time, be the support, the ear, or the
warm smile that creates and then
transcends the moment, forming a
memory for a child or a family that
will last a lifetime!
Leo Buscaglia, “Too often we underestimate the power of a touch,
a smile, a kind word, a listening
ear, an honest compliment, or
the smallest act of caring, all of
which have the potential to turn a
life around.”
“The Magic of
Camp Sunshine”
Michael Katz
A
s we move forward into
our 25th year of providing
a respite and haven of caring
for families that have a child suffering
from a life-threatening illness, I can’t
help but reflect upon the many special
people that have made this celebration possible. These special people,
known as volunteers, both young and
old, have been a large part of Camp
Sunshine’s journey, giving of themselves, their time and talents and most
importantly their spirit, helping to
ensure the growth and success of the
Camp Sunshine mission.
Through the past and into the present, volunteers of all ages have come
from all over the country, in fact from
all over the world (Japan, Scotland,
Germany, etc.) with the sincere desire
to help others. Students, CEOs of
large companies, and even Olympic
Gold Medalists have left their egos
and their own needs at the symbolic
three front doors of camp with one
common goal in mind…To matter!!
To make a difference in someone
else’s life…To be a ray of sunshine,
aiding others through darkness! More
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C a m p S u n s h i n e I am often told by many volunteers
when asked about their experience
at Camp that they feel they have received more from volunteering than
what they actually feel they have
given in return. I believe that in
part this is because the very nature
and character of a Camp Sunshine
volunteer is one of caring and selflessness. I also believe, as I watch
volunteers embrace each other and
the members of the families we care
for in a farewell hug or see the tears
in the eyes of the volunteer who has
been touched to the core by a young
child, that they in fact truly do receive more and deservedly so. The
expression of love seems to display
that there is no greater gift than to
feel the sincere sense of mattering,
of making the difference in improving the lives of those around us,
while feeling good about ourselves.
It is a simple unselfish act from one
human being to another. To quote
inspirational author and speaker
Over the past 25 years, I feel very
fortunate to have had and continue to have the opportunity to
work with and share the Camp
Sunshine experience with so
many wonderful people. Interestingly enough, when I think of
Camp Sunshine and its volunteers, I can’t help but remember
a phrase I once heard… “Volunteers don’t make money, they
make a difference.” It is to all
these dedicated individuals who
have made a choice to make a
difference that I extend my sincere gratitude and look forward
to making the “magic” of Camp
Sunshine shine for the next 25
years!
Michael Katz
Campus Director
recognize Michael Katz for his 25 years
of unyielding service.
Since 1984, over 20,000 volunteers have given generously of their time and hearts so that families can find
hope and support at Camp Sunshine. Because space restricts us from listing everyone, we recognize below
those who have given 15-25 years of service.
Founding Volunteers still volunteering with us today:
Bruce Chalmers
Lawrence Gould
Joe Pappalardo
Dot Gonyea
Gloria Hague
Mary Ellen Sturtevant
Anna Gould
Joan Pappalardo
Don Toms
Those with 20+ years of service:
Nancy Cincotta
Marty Grossman
Sandra Kimball Al Ragucci
Andrew Eichenfield
William Gumbel
Kevin Lucey
Mary Ragucci
Joyce Grossman
Nancy Hibbard
Janet Quinn
Those with 15+ years of service:
Janet Bell
Bernadette Cattanach
Nicki Griffin
Rita Porter
Ruth Shadbolt
Jeff Boutiette
David Cieslik
Dan Paris
Beth Quinty
Stephen Brickel
Mark Gould
Dorothy Pillischer
Jim Quinty
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Honoring Our Quarter Century Club:
Donors who have contributed a total of $25,000 or more over the past 25 years.
$2,000,000 +
Anna M. Gould
Dr. Lawrence Gould
$1,000,000 +
Camp Sunshine Pumpkin
Festivals
The Orokawa Foundation
Point Sebago Resort
Monte Carlo Weekend
& Other Fundraisers
Viterbi Family Foundation
$500,000 +
Children’s Brain Tumor
Foundation
Life is good ®
The New Balance
Foundation
The S.L.E. Lupus
Foundation, Inc.
$300,000 +
Lions Clubs International
Foundation
Newland Communities
Shaw Brothers
Construction, Inc Dan and Jon Shaw
$200,000 +
The Barovick Family
Foundation
Camp Sunshine Golf
Tournament
Joan and Bill Drapeau
The Goddard Group
Carol J. Hancock, The
Carol J. & K. David
Hancock Charitable
Trust, Alison & Kevin
Hancock, Hancock
Lumber, & Hancock Land
Dr. and Mrs. Irwin Jacobs
The Leukemia &
Lymphoma Society
Mr. and Mrs. Gary
Lieberman
Mr. and Mrs. Joseph
Pappalardo*
Shawnee Peak Moonlight
Charity Challenge & the
Homer Family
TD Banknorth & TD
Banknorth Charitable
Foundation
$100,000 +
AJ’s Polar Dip
Beck Family Foundation
Sol and Margaret Berger
Foundation
Berlin City Motors
The Munch Bilheimer
Foundation
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Mr. and Mrs. Stephen
Brickel**
Demoulas Foundation
Fanconi Anemia Research
Fund
Mr. and Mrs. Robert
Graham
Hannaford Bros. Co. &
The Hannaford
Charitable Foundation
Irving A. Hansen
Memorial Foundation
Here Comes the Sun
Fashion Show
The Hermann Foundation
Mr. and Mrs. John Horan
Jacbel Foundation
Robert Wood Johnson
Foundation
JTG Foundation
Katzenberger Foundation
Lions Club of the Bronx
Maine Lions Clubs
The Thomas H. Maren
Foundation
New England District of
Key Clubs
Mr. and Mrs. Morris W.
Offit
The Skirball Foundation
South Portland Lions Club
Thomas F. Staley
Foundation
TCG
Tropical Smoothie Café
True Fans For Elvis Club
Tyco International
Tzell Travel Group
$50,000 +
Acorn Hill Foundation
ARBROS
The Frank Stanley
Beveridge Fund
Boston Ladder &
Scaffolding
The Buller Family
Foundation
Campbell & Company
The Chalmers Family
Coney Island Polar Dip
Downeast Energy &
Building Supply
Ron Eby’s Cantina
Nancy Cincotta, Dr.
Andrew Eichenfield &
A.J. Cincotta-Eichenfield
Mr. John Girouard
Gloria Hague - Point
Sebago Guests
Hands On Tzedakah
Harris Miniature Golf
Ralph E. Heckert
Revocable Trust
C a m p S u n s h i n e Anne Griffin Herrick
Fund
The Herrick Family
Foundation & Others
JetBlue Airways
Joey’s Polar Plunge
The Ruth and Seymour
Klein Foundation
Lanco Scaffolding
Lauren’s First and Goal
Foundation
Libra Foundation
Long Island Polar Dip
Camp Mataponi Marcy & Dan Isdaner
Miracle Marathon &
Miles for Smiles
National Kidney
Foundation of CT
NYMEX Charitable
Foundation
Amelia Peabody
Charitable Fund
Steven M. Perez
Foundation
PF.NET
The Pottruck Family
Foundation
The Mattina R. Proctor
Foundation
Rent-A-Husband High
School Business
Challenge
R.H. Reny, Inc.
The Robin Romano
Memorial Fund
Lawrence J. & Anne
Rubenstein Charitable
Foundation
The Scheerer Family
Foundation
Sebago Lake Rotary Club
The Virginia Hodgkins
Somers Foundation
The Sportshoe Center
Maine Marathon
Laurie & David Sukoff
Mr. and Mrs. Mark Swartz
Mr. and Mrs. Barry
Tatelman
Mr. and Mrs. Lenard
Tessler
Tony’s Foodland
United Way of Greater
Portland
Katie Vashon Fund
Mr. and Mrs. Don
Vermeil
Village Candle
C. & J. Viner Family
Foundation
Wadsworth Golf Charities
Foundation
Wal-Mart Foundation
The Wasserman Family
Foundation
The Zobel Foundation
$25,000 +
The Annunziata Family
Foundation
Archetype Architects
C.R. Bard Foundation, Inc.
The Andy Bovin Memorial
Fund
Mike Brooks
Bryan’s Dream Foundation
Mr. and Mrs. Steve
Burnham
Camp Sunshine Mountain
Lakes
The Thomas & Agnes
Carvel Fund
Mr. and Mrs. Dan
Cashman
Castle to the Sun
Champion BassMasters
Jason Chapman Fund
Coca Cola
Christopher Connolly and
Marjorie Liner & The
Arguild Foundation
Crusade for Karlee’s Kids
Divine Divas
Michael J. Dunleavy
Foundation, Inc.
Dr. and Mrs. Arthur Falk
Mr. Mark Fisher
Mark Forti Leukemia Fund
The Fuller Foundation, Inc.
Alice G. Gadd Charitable
Fund
Oliver & Kathryn Gill Fund
William J.J. Gordon Trust
Mr. Martin Gould &
Dr. Larry Dumont
Mr. R. Milton Gray
The Greater Kansas City
Community Fund
- Sprint Classic Golf
Tournament
Friends and family of
Harold Greenberg
Mr. and Mrs. Marty
Grossman
Hampden Wilbraham
Regional School District
Harmon Foundation, Inc.
Harvard Pilgrim Health
Care & Employees
The Herbst Foundation
Horne Pond Ice Fishing
Derby
The Hudson Foundation
Mr. and Mrs. Gary Jackson
The JVK Foundation
Kachmar 80’s Dance
Party
The Katzin Foundation
Stephen & Tabitha King
Foundation
F. M. Kirby Foundation
KOA Care Camps
The Helen and George
Ladd Charitable Corp
The Laffey McHugh
Foundation
Leisure Systems, Inc.
Mr. and Mrs. Ted Levy
Joseph A. Libbey Estate
Mr. and Mrs. Barry Liben
The Agnes M. Lindsay
Trust
Lucent Technologies
Maine Army National
Guard
Maine Polar Dips
Amanda Martin Fund
Patrick Martin
Mr. and Mrs. Tim
McDonald
Mr. and Mrs. Tom
McKenny
Mercedes Benz of North
America
Migis Lodge & Guests
- Brick Walkway
Henry L. & Kathryn Mills
Charity Foundation
North Jersey Media
Group Foundation
Oakhurst Dairy
Philips Consumer
Electronics Co.
The Phoenix Fund - Dr. &
Mrs. Allen B. Chatt
Precept Asset
Management
Mr. and Mrs. Jim Quinty
Remillard Family
Foundation
Ride For the Son
Simmons Foundation
Tager Family Foundation
Ms. Ethel Tager
Mr. and Mrs. Donald
Toms
Toys ‘R’ Us Children’s
Fund
Trucking 4 Kids
UJA-Federation of New
York
United Bikers of Maine/
L-A Harley-Davidson
Virginia Polar Dip
Vital Basics, Inc
Mr. and Mrs. John Warta
Mr. Robert Weissman
Weston Pumpkin Festival
Windham High School
*In-kind
**Includes bequest
19
Experiencing Pure Joy at Camp Sunshine
The following is a letter from a family thanking the New Balance Foundation for sponsoring them
at Camp Sunshine.
Dear New Balance Foundation,
We are so thankful for your support to Camp Sunshine and for allowing our family to come and heal from our journey with cancer.
Our daughter, Joli, was diagnosed with cancer at age 2—one month after her 2nd birthday. We were completely surprised by this diagnosis, and had even just planned on a “fun day” in the city after her doctor’s appointment. Needless to day, the “fun day” turned into a cancer diagnosis, an emergency enucleation (removal) of her right eye, and
the change in our lives forever. Our seemingly healthy daughter - my 2 year-old - had cancer.
Joli’s little body endured six months of aggressive chemotherapy. She survived, and we are so thankful. Joli was fitted with a prosthetic eye, her hair grew back, and she has developed into a strong little girl.
Camp Sunshine is a place where we can feel “normal” for a week - a feeling we often take for granted. For one week
out of the year, Joli feels like every other kid because, at camp, every kid is a survivor of retinoblastoma (eye cancer). At camp, Joli doesn’t have to hear kids tease her. At camp, Joli doesn’t have to see people point and stare. As a
parent, I know that those taunts make Joli stronger in the real world, but the truth is, I wish we could always be at
Camp Sunshine, surrounded by people who see Joli for who she is—a beautiful, strong, courageous 4 year-old girl.
Because of your donation, Joli experiences pure joy for the one special week. We have never seen the smile as big on
her face as we see at Camp Sunshine! And, as a parent, that is the greatest gift we could ever receive!
Camp Sunshine is one of the only programs out there that treats our entire family. Camp is as therapeutic for our
entire family as it is for Joli. It is the confidence we gain at Camp Sunshine that carries us through the year. When Joli
has a bad day at pre-school or just feels like she is so sad for only having one eye, we sit and talk about her favorite
memories of camp, look through her camp scrapbook, or watch videos from camp. She smiles. She laughs. She feels
better.
That is Camp Sunshine.
Your generous sponsorship paid for
my child’s experience with courage,
with self confidence, and with a joy that
sustains her. Thank you, New Balance!
With great thanks,
Liza, Jorge, Joli (age 4),
and Jada (age 2) Vega
20
C a m p S u n s h i n e We Put Our Energy
Into Helping People.
For more than 100 years, we’ve put our energy into
our communities because we live here, and this is
what it’s all about.
Congratulations to Camp Sunshine
on your 25th Year!
Good Friends For All Seasons
1-888-665-2727
downeastenergy.com
25 Years
Congratulations, Camp Sunshine
Keep up the great work!
21
22
C a m p S u n s h i n e 2 5 Ye a r s o f H a p p i n e s s , H o p e a n d H e a l i n g
23
Awards & Recognition
June 2009
New York Magazine and Castle Connolly Medical Ltd. recognize Camp
Sunshine’s Medical Director Andrew Eichenfield as one of New York’s Best Doctors for the 8th consecutive year.
May 2009
Maine Senate and House of Representatives present Camp Sunshine and its founders
with an official expression of sentiment, recognizing 25 years of dedicated service to seriously ill children and their families.
April 2009
Maine Governor John Baldacci honors Camp Sunshine, and Board
September 2008
Charity Navigator awards Camp Sunshine its Top Rating for Sound Fiscal Management for September 2007
Guinness World Records confirms Camp Sunshine’s World Record for the Tallest Sand August 2007
WCSH 6, United Way of Greater Portland and TD Banknorth name Camp October 2006
Member and longtime volunteer Joseph Pappalardo with the Governor’s Exemplary Service Awards.
the 5th Consecutive Year.
Castle.
Sunshine their 2007 Agency of Distinction.
Guinness World Records confirms Camp Sunshine’s World Record for the Most Lit
Jack-o’-lanterns in one place at one time.
June 2004
Columbia University Press publishes Camp Sunshine’s Psychosocial Director Nancy Cincotta’s Chapter “The End of Life at the Beginning of Life: Working with Dying Children and Their Families,” pgs. 318-347, in Living With Dying: A Handbook for End-of-Life Health Care Practitioners.
Yankee Magazine honors Camp Sunshine Founder Anna Gould with its Community
Partners Barnraiser Award.
Camp Sunshine honors Camp Sunshine Founder Larry Gould with its First Lifetime Achievement Award.
May 2004
E-Town Radio presents Camp Sunshine Founders Anna Gould and Larry Gould with its
E-Chievement Award.
March 2004
Maine Recreation and Park Association presents Camp Sunshine with its Facilities of Merit Award.
February 2004
American Camp Association presents Camp Sunshine with the Eleanor P. Eells Award Campus Director Michael Katz as At-Large Board Member.
24
for Program Excellence.
American Camp Association, New England Division elects Camp Sunshine’s C a m p S u n s h i n e March 2003
Windham Rotary honors Camp Sunshine’s Development Coordinator Michael Smith with January 2003
The Soros Foundation’s Project on Death in America awards Camp Sunshine’s
November 2002
American Camp Association accredits Camp Sunshine for the first time.
June 2002
Toastmasters International honors Camp Sunshine Founder Anna Gould with its
August 2001
E-Town Radio presents Camp Sunshine’s Executive Director Matt Hoidal with its
E-Chievement Award.
October 1999
Maine Governor Angus King presents longtime Camp Sunshine Volunteer and Board November 1998
Betty Crocker and BAC-Os recognize Camp Sunshine’s Volunteer and Board Member Joseph Pappalardo as “Top Volunteer of the Year”.
March 1996
The Jefferson Awards for Public Service honors Camp Sunshine Volunteer and Board Member Joseph Pappalardo, representing the State of Maine.
February 1996
the Paul Harris Fellow Award.
Psychosocial Director Nancy Cincotta with its Social Work Leadership Award.
Communication and Leadership Award.
Member Joseph Pappalardo with The Governor’s Service Award for Excellence in Volunteer Administration.
Adam Walsh Children’s Fund honors Camp Sunshine Founder Dr.. Lawrence Gould with its prestigious Rainbow Award.
January 1989-1991 Association of Pediatric Oncology Social Workers elects Camp Sunshine
Psychosocial Director Nancy Cincotta as President.
Agency of Distinction Award, Presented to Camp Sunshine August 2007
25
“It’s a way of giving back and helping other
families going through similar things we went
through. We cannot imagine our life now without
volunteering at Camp Sunshine.”
– Gail Toth
26
C a m p S u n s h i n e A Family Gives Back
W
hile bathing her toddler Jennifer 13½
years ago, Gail Toth wasn’t thinking
about Camp Sunshine, let alone the fact
that it would soon become so central to
her family’s life. In fact, the Toths had never heard
about Camp Sunshine, but the discovery of a large
lump under Jennifer’s ribs during that bath changed
their family’s life forever. Jennifer was diagnosed with
hepatoblastoma, a liver tumor, leading to a 14 year
(and ongoing) connection
to Camp Sunshine.
At Children’s Hospital
of Philadelphia, doctors determined that the
tumor was too large to
remove and started Jennifer on chemotherapy.
Five months and five
rounds later, the mass
had shrunk to the size of
a golf ball, and surgeons
removed the mass and
part of her liver.
In 1996, a year after Jennifer was diagnosed with
cancer, Gail, Jennifer and
father Bill spent a week at
Camp Sunshine, which at
that time was still being
hosted at Point Sebago
Resort. The experience
altered their lives to such
an extent that they have
returned every year since
to volunteer as a family,
which now includes Jennifer’s 5-year-old sister Julianna. “It’s a way of giving
back and helping other families going through similar
things we went through,” said Gail Toth. “I feel like
we can relate to the pain they’re going through. We
cannot imagine our life now without volunteering at
Camp Sunshine.”
“The camp is a comfort to families in crisis,” said Bill
Toth. “That’s the core of our volunteerism and support of Camp Sunshine.” In addition to volunteering at
Camp, the Toths started fundraising efforts several years
ago.
When we asked what volunteering meant to them, the
Toths responded as follows: “It means knowing that we
made a difference in a child’s life by helping them have
fun and maybe forgetting
about their illness, or their
sibling’s illness for a few days
or a week. It means giving
some parents a short break
from caring for their sick
child, maybe the first one
they have had in months; giving them time to spend with
a spouse or to play the Super
Dooper Blooper Games until
they laugh harder than they
have in months or years. It
means going in to the parent
discussion group at the end
of the week with our now
teenage daughter and talking about life after the end of
treatment and giving them
hope for the future and letting
them know it is okay and
normal to still be scared. It
means getting involved with
fundraising and planning a
polar dip in Virginia where
we live so more families
can experience the magic of
Camp Sunshine.”
Camp Sunshine is privileged to have had such a profound impact on the entire Toth family, and we are grateful for their continued support and involvement. The
magic of Camp comes from the dedication of the Toths
and the many other families and volunteers who give of
themselves to enrich the program.
According to Jennifer, “Being a cancer survivor is part
of who I am. I’m very involved with Camp Sunshine.
I look at these kids and I think, ‘That was me.’ That
makes it real to me.”
27
Referring Treatment Centers
Since 1984, Camp Sunshine has served more than 30,000 family members from 47 states and 17 countries.
Referring Treatment Centers include: Alabama: Children’s Hospital of Alabama, Birmingham; Arizona: Banner Children’s Hospital, Mesa; Phoenix
Children’s Hospital; St. Joseph’s Hospital, Phoenix; University Medical Center, Tucson; California: Children’s Hospital & Research Center, Oakland; Children’s
Hospital Central California, Madera; Children’s Hospital of Orange County; Children’s Hospital, Los Angeles; City of Hope, Duarte; Kaiser Permanente, Los
Angeles; Loma Linda University Children’s Hospital; Lucile Packard Children’s Hospital at Stanford; Mattel Children’s Hospital UCLA; Naval Medical Center
San Diego; Rady Children’s Hospital, San Diego; UCSF Children’s Hospital, San Francisco; Colorado: Childhood Hematology Oncology Associates, Colorado
Springs; Children’s Hospital, Denver; Connecticut: Connecticut Children’s Medical Center, Hartford; St. Francis Hospital & Medical Center, Hartford; Yale-New
Haven Children’s Hospital; Delaware: Nemours/Alfred I. duPont Hospital for Children, Wilmington; District of Columbia: Children’s National Medical Center;
Georgetown University Hospital; Florida: All Children’s Hospital, St. Petersburg; Arnold Palmer Hospital for Children, Orlando; Baptist Children’s Hospital,
Miami; Bascom Palmer Eye Institute, Miami; Children’s Hospital at St. Mary’s Medical Center, West Palm Beach; Children’s Hospital at Palms West, Loxahatchee; Children’s Hospital of Southwest Florida at Lee Memorial Health System, Fort Myers; Chris Evert Children’s Hospital at Broward General Medical
Center, Fort Lauderdale; Disney Children’s Hospital at Florida Hospital, Orlando; Joe DiMaggio Children’s Hospital at Memorial, Hollywood; Miami Children’s
Hospital; Nemours Children’s Clinic, Jacksonville; St. Joseph’s Children’s Hospital of Tampa; University of Miami/Jackson Memorial Medical Center; Georgia:
Backus Children’s Hospital, Savannah; Children’s Healthcare of Atlanta Pediatric Hospital; Columbus Regional Medical Center, Georgia; Illinois: Advocate Hope
Children’s Hospital, Oak Lawn; Advocate Lutheran General Children’s Hospital, Park Ridge; Children’s Memorial Hospital, Chicago; Southern Illinois University School of Medicine, Springfield; University of Chicago Comer Children’s Hospital; University of Illinois at Chicago Circle; Indiana: Riley Hospital for Children, Indianapolis; Iowa: Blank Children’s Hospital, Des Moines; University of Iowa Children’s Hospital, Iowa city; Kansas: University of Kansas Hospital,
Kansas City; Via Christi Regional Medical Center, Wichita; Kentucky: Kosair Children’s Hospital, Louisville; Louisiana: Children’s Hospital, New Orleans; Ochsner Children’s Health Center, New Orleans; Maine: Barbara Bush Children’s Hospital at Maine Medical Center; Eastern Maine Medical Center; Maryland: Johns
Hopkins Children’s Center, Baltimore; National Cancer Institute, Bethesda; University of Maryland Hospital for Children, Baltimore; Massachusetts: Baystate
Medical Center Children’s Hospital, Springfield; Boston Medical Center; Brigham & Women’s Hospital, Boston; Children’s Hospital Boston; Dana Farber Cancer
Institute, Boston; Floating Hospital for Children at Tufts New England Medical Center, Boston; Massachusetts Eye & Ear Infirmary, Boston; MassGeneral Hospital for Children, Boston; UMass Memorial Medical Center, Worcester; Michigan: Beaumont Children’s Hospital, Royal Oak; Children’s Hospital of Michigan,
Detroit; Helen DeVos Children’s Hospital, Grand Rapids; Michigan State University/Kalamazoo Center for Medical Studies; St. John Hospital & Medical Center,
Detroit; University of Michigan C.S. Mott Children’s Hospital, Ann Arbor; Minnesota: Children’s Hospital & Clinics, Minneapolis; Hennepin County Medical
Center, Minneapolis; Mayo Eugenio Litta Children’s Hospital, Rochester; United Children’s Hospital, St. Paul; University of Minnesota Medical Center, Fairview;
Missouri: Children’s Hospital, University of Missouri, Columbia; Ferrell-Duncan Clinic, Springfield; SSM Cardinal Glennon Children’s Medical Center, St. Louis;
St. Johns Mercy Children’s Hospital, St. Louis; St. Louis Children’s Hospital; Montana: Billings Clinic, Montana; New Hampshire: Children’s Hospital at Dartmouth, Lebanon; New Jersey: Cancer Institute of New Jersey, Robert Wood Johnson University Hospital, New Brunswick; Cooper University Hospital, Camden;
Hackensack University Medical Center; K. Hovnanian Children’s Hospital at Jersey Shore University Medical Center, Neptune; St. Joseph’s Children’s Hospital,
Paterson; St. Peter’s University Hospital, New Brunswick; Valerie Fund-Monmouth Medical Center, Long Branch; Valerie Fund-Morristown Memorial Hospital;
Valerie Fund-Newark Beth Israel Medical Center; Valerie Fund-St. Barnabas Medical Center, Livingston; New York: Bellevue Hospital Center, New York; Benedictine Hospital Cancer Center, Kingston; Beth Israel Medical Center, New York; Brookdale University Hospital & Medical Center, Brooklyn; Brooklyn Hospital
Center; Children’s Hospital at Albany Medical Center; Children’s Hospital at Montefiore, Bronx; Hospital for Special Surgery, New York; Long Island College
Hospital, Brooklyn; Maimonides Medical Center, Brooklyn; Maria Fareri Children’s Hospital at Westchester Medical Center, Valhalla; Memorial Sloan Kettering
Cancer Center, New York; Metropolitan Hospital, New York; Morgan Stanley Children’s Hospital of New York-Presbyterian; Mount Sinai Medical Center, New
York; Nassau University Medical Center, East Meadow; New York Presbyterian/Weill Cornell Medical Center; New York University Langone Medical Center;
North Shore University Hospital, Manhasset; Roswell Park Cancer Institute, Buffalo; Schneider Children’s Hospital, New Hyde Park; St. Vincent’s Catholic
Medical Centers, New York; Stony Brook University Medical Center; SUNY Downstate Medical Center, Brooklyn; SUNY Upstate Medical University Hospital,
Syracuse; University of Rochester Medical Center; Winthrop University Hospital, Mineola; Women’s & Children’s Hospital of Buffalo; North Carolina: Brenner
Children’s Hospital, Wake Forest University, Winston-Salem; Duke Children’s Hospital & Health Center, Durham; Levine Children’s Hospital at Carolinas Medical Center, Charlotte; North Carolina Children’s Hospital, Chapel Hill; North Dakota: Roger Maris Cancer Center, Fargo; Ohio: Akron Children’s Hospital;
Children’s Medical Center of Dayton; Cincinnati Children’s Hospital Medical Center; Cleveland Clinic Children’s Hospital; Nationwide Children’s Hospital, Columbus; Rainbow Babies & Children’s Hospital, Cleveland; St. Joseph’s Cancer Health Center, Warren; St. Vincent’s Mercy Children’s Hospital, Toledo; Oregon:
Legacy Emanuel Children’s Hospital, Portland; OHSU Doernbecher Children’s Hospital, Portland; Pennsylvania: Children’s Hospital of Philadelphia; Children’s
Hospital of Pittsburgh; Pediatric Specialists of Lehigh Valley, Allentown; Penn State Milton S. Hershey Medical Center; St. Christopher’s Hospital for Children,
Philadelphia; Wills Eye Institute, Philadelphia; Rhode Island: Hasbro Children’s Hospital, Providence; South Dakota: Sanford Children’s Hospital, Sioux Valley;
Tennessee: Eastern Tennessee State University Cancer Center, Johnson City; Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville; St. Jude’s Children’s
Research Hospital, Memphis; Texas: Children’s Medical Center of Dallas; CHRISTUS Santa Rosa Children’s Hospital, San Antonio; Cook Children’s Medical
Center, Fort Worth; MD Anderson Cancer Center, Houston; Medical City Children’s Hospital, Dallas; ‘Specially for Children, Austin ; Texas Children’s Hospital,
Houston; Utah: Primary Children’s Medical Center, Salt Lake City; Vermont: Vermont Children’s Hospital, Burlington; Virginia: Children’s Center for Cancer &
Blood Disorders of Northern Virginia, Fairfax; Children’s Hospital of the King’s Daughters, Norfolk; University of Virginia Children’s Hospital, Charlottesville;
Virginia Commonwealth University Children’s Medical Center, Richmond; Washington: Madigan Army Medical Center, Tacoma; Mary Bridge Children’s Hospital, Tacoma; Sacred Heart Children’s Hospital, Spokane; Seattle Children’s Hospital; West Virginia: West Virginia University Children’s Hospital, Morgantown;
Wisconsin: American Family Children’s Hospital, Madison; Children’s Hospital of Wisconsin, Milwaukee; Gundersen-Lutheran Health System, La Crosse;
Marshfield Clinic; Prevea St. Vincent Health Center, Green Bay; Canada: Manitoba: Children’s Hospital of Winnipeg; Nova Scotia: IWK Health Centre, Halifax;
Ontario: Children’s Hospital of Eastern Ontario, Ottawa; Hospital for Sick Children, Toronto; McMaster Children’s Hospital, Hamilton; Princess Margaret Hospital, Toronto; Quebec: Hôpital Sainte-Justine, Montreal; Montreal Children’s Hospital; Colombia: Saludcoop, Bogota; Peru: Instituto Nacional de Salud del Niño,
Lima; Denmark: Rigshopitalet, Copenhagen; The Netherlands: Universitair Medisch Centrum, Utrecht; Norway: Ullevål Universitetssykehus, Oslo; United Kingdom: East Oxford Health Centre; Hull Royal Infirmary, East Yorkshire; Sheffield Children’s Hospital; St. George’s Hospital, London; St. Mary’s Hospital, London;
East Oxford Health Centre; France: Hôpital Saint Louis, Paris; Germany: Universitätsklinikum Ulm; Universitätsklinikum Würzburg; Israel: Hadassah University
Medical Center, Jerusalem; Edmond & Lily Safra Children’s Hospital, Tel Hashomer; South Africa: Pretoria Academic Hospital; Philippines: Philippine Children’s
Medical Center, Quezon City; Australia: Women’s & Children’s Hospital, Adelaide; Princess Margaret Hospital for Children, Perth; Sydney Children’s Hospital;
New Zealand: Starship Children’s Hospital, Auckland; Taranaki Base Hospital, New Plymouth
28
C a m p S u n s h i n e We have millions of dollars worth of diagnostic equipment.
But nothing can replace this instrument.
Maine Medical Center has some of the newest
and most technologically advanced diagnostic
equipment in the country. But no matter how
advanced the equipment becomes, we know that
nothing will ever take the place of sitting down
and listening to a patient and their family. It’s
this combination of providing tenderness, as well
as technology, that has helped MMC become the
fourth safest rated hospital in the U.S.
Congratulations on 25 years, Camp Sunshine!
www.mmc.org
29
30
C a m p S u n s h i n e Testimonials
“We continue to be impressed by all that Camp Sunshine offers to
children and their families and we feel privileged to be in a position to
assist Camp Sunshine in sustaining and growing their valuable work.”
Jim and Anne Davis
CEO & Executive VP of Administration
New Balance Athletic Shoe, Inc. & The New Balance Foundation
Camp Sunshine is a very
important organization
– to Maine and to the entire
country. Hancock Lumber
is honored to be part of such
a special organization and
wishes everyone in the Camp
Sunshine family 25 more
years of success in touching
the lives of the precious
families it supports.
Kevin Hancock
President, Chairman & CEO
Hancock Lumber
As a Founding Board Member,
being involved since 1984 as a
Director at Camp Sunshine, and
now an Honorary Director, has
been a very rewarding experience.
I have also enjoyed watching our
employees and families spend time
as volunteers at Camp Sunshine
over the years.
Coincidentally, as the result of
a personal experience with son,
Tommy, my wife and I have
become good friends with one
of Camp Sunshine’s doctors, Dr.
Chris Turner. Dr. Turner donates
a considerable amount of his
vacation time each year, serving as
the camp doctor during the brain
tumor sessions at Camp
Sunshine.
We are very fortunate that Larry
and Anna made a dream a reality,
and congratulate Camp Sunshine
on it’s 25th birthday!
Bruce Chalmers,
Chalmers Insurance Group
Honorary Board Member &
Founding Director of Camp Sunshine
31
32
C a m p S u n s h i n e Charity Navigator Rating
33
A Journey of Hope
Fanconi Anemia (FA) is a rare genetic disorder. The likelihood that two people with FA would ever meet each other
is almost non-existent. However, meeting someone else
with this illness can be life affirming.
Although it is the most commonly reported inherited
disease causing bone marrow failure, Fanconi Anemia
is nonetheless quite rare, with an estimated annual birth
rate of 1/360,000. Affected individuals often have birth
defects, including missing thumbs, and heart and kidney
abnormalities. They go on to experience bone marrow
failure in childhood, causing low blood counts that cause
fatigue, increased risk of bleeding and infection, as well as
predisposition to leukemia. Stem cell transplantation from
a matched sibling donor is the safest and most effective
treatment for FA. Even after successful transplantation,
those with the disease are
at increased risk for solid
tumors.
Amy Frohnmayer was
a psychosocial intern at
Camp last summer. Her
enthusiasm about the internship was influenced by
having begun as an FA camper when she was just
three years old. The Frohnmayers had five children, two sons and three daughters. Each of the
three girls was diagnosed with FA. The Frohnmayers’ eldest daughter Kirsten died from leukemia in
1997 at age 24 after graduating Stanford University with honors. Katie “was hospitalized something
like 18 times in 14 months,” recalled her father. She died
from a stroke in 1991 at age 12. Their illnesses were both
directly linked to FA. Amy is the youngest daughter and is
now 22.
When Fanconi Anemia first affected their family, Lynn
and Dave Frohnmayer did all they could to discover more
about FA and to move science forward. They founded the
Fanconi Anemia Research Fund (FARF) in 1989, with
the goal of finding a cure for FA and providing support
and information for families affected by FA. Lynn and
Dave have been instrumental in expediting research about
Fanconi Anemia.
Camp Sunshine, FARF, and Amy were growing up at
about the same time. Our professional staff introduced
Camp Sunshine to FARF. In 1992, the first FA program
was piloted and the longest organizational partnership in
Camp Sunshine history was born.
34
C a m p S u n s h i n e Unlike most other programs at Camp, the FA session
provides families with a blend of scientific and clinical
information presented by researchers and physicians
from around the world. This state-of-the-art information, combined with psychosocial programming and
the magic of Camp Sunshine, truly enables families to
gain knowledge and insights specific to their children’s
medical situation and to connect with other families in a
life-changing way.
In the words of David Frohnmayer, “Camp Sunshine
has been an opportunity for education, shared grieving,
and nurturing new hope. We have learned through deep
friendships with other families that we can speed the
pace of progress, and that we do not face obstacles alone.
Camp Sunshine has been an indispensable part of a network of warmth and support.”
Camp has always remained a huge part of Amy’s life.
“For me, it’s
been an important source of
comfort, a safe
space to feel
and share any
emotion, and,
most recently,
a place filled
with meaningful life lessons,”
Amy recalls, “I don’t think the laws of time really apply
to Camp Sunshine. It embraces a different rhythm and
pace. While the rest of the world moves along at rapid
speed, Camp somehow allows families, who may begin
as perfect strangers, to connect deeply and develop treasured friendships in only days.”
With 52 families attending the FA session in 2008,
Camp Sunshine has truly become a place where children grow to understand that they are not alone. Camp
Sunshine is honored to be partnered with the Frohnmayers and the Fanconi Anemia Research Fund. We
are also in awe of Amy’s compassion, resilience, and
strength. We congratulate Amy on her graduation from
Stanford University and her choice to continue on in
graduate studies. We delight in her return to Camp Sunshine this summer.
35
C a m p S u n s h i n e

25 Years of Happiness, Hope and Healing

Transcription

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