Annual Report 2008 – Cancer Patients Aid Association 0
Transcription
Annual Report 2008 – Cancer Patients Aid Association 0
Annual Report 2008 – Cancer Patients Aid Association 0 Contents Page no Chairman’s message 2 Prevention & Early Detection 3 Patient Care 4 Rehabilitation 5 Cancer Insurance 6 Fundraising 7 New Projects 8 Delhi Branch 9 Pune Branch 12 Chennai Branch 14 Events 15 Brief Financial Statement 22 Team CPAA 23 Annual Report 2008 – Cancer Patients Aid Association 1 CHAIRMAN’S MESSAGE With the completion of 2008, Cancer Patients Aid Association has reached the 40th year since its inception. When we look back at how we started the organisation and where we are today, we feel highly elated and proud to be a part of this dynamic organisation. Many of the dreams that we had at the time of inception have been accomplished despite the fact that everyone around us at the time ridiculed our aspiration and predicted its failure within two to three years. Going through the landmark events and the moments of joy which all of us have experienced in our wonderful journey gives us immense pleasure and happiness. The question that comes to the minds of all of us at this juncture is—what next? Do we pat our backs and sit on our laurels and continue with the routine, getting pleasure by going down the memory lane to replay some of the glorious moments we have gone through in the past and be satisfied with it? My answer and I am sure your answer too will be a definite and categorical ‘NO’. Our dream now for Cancer Patients Aid Association is to see it grow in the next five years to be acknowledged as the best NGO in the field of cancer in India and in fact, the entire world. We want our association to be the benchmark of performance in all the areas in which we are operating against which similar organisations measure their achievements. I would personally desire for CPAA to be recognised as an institution that sets the highest standards of excellence and to attain the highest level of learning and education for cancer NGOs of the world. While this sounds both abstract and vague and hardly achievable in the form in which it has been written above, from our track record in the past, I am sure we can reach this goal. To convert my conceptual aspirations and dreams, I would request each one of you to come out with your own dreams and goals in more concrete, quantifiable and also time bound terms. Once we have these in place and have collated them, we will once again have a new and beautiful dream for CPAA like the one we had when three idealistic young people dared to start the organisation forty years ago. I assure you it will be a pleasure for all of us to walk on the path that will take us to the fulfillment of these mutual dreams. Best wishes to all of you. Jai Ho ! Y.K.Sapru Founder Chairman & CEO Cancer Patients Aid Association Mumbai, India www.cancer.org.in Annual Report 2008 – Cancer Patients Aid Association 2 PREVENTION & EARLY DETECTION Catch it Early - Better still, Let's Try and Prevent Cancer We attribute the success of our department to the following three principles of Honesty, Commitment and Dedication. It has always seen us through in difficult times and helped us achieve what seemed impossible. Our target for 2008 was to reach out to more and more people through our awareness and early detection drives and being able to become self-sufficient. The first step towards this was the open forum programs on cancer awareness in regional languages. After the success of the first such program, many companies came forward to sponsor them. We invited renowned oncologist from leading cancer hospitals to speak about the importance of early detection and regular screening. They also answered questions regarding problems faced by people in combating the disease. Our team was also successful in raising funds for meeting our expenses as well as expansion programs. Along with our regular activities, we made it a point to help to needy cancer patients in all possible ways. I would like to thank my team for their invaluable individual contributions and for showing impeccable team spirit beyond the call of duty. ~ Neeta More, Director, Prevention & Early Detection ACHIEVEMENTS (A) Statistics - Cancer Screening & Early Detection Prabhadevi Clinic Camps Total conducted 199 108 Individuals screened 11,217 1,052 Males: 3,155 217 Females: 8,062 835 Suspected Cases 3,599 524 Detected Cases 55 6 Naigaon Clinic Patients Screened Investigations conducted Pathological Tests • H.I.V. Tests • HbsAg • other blood tests Radiological Tests • Mammography • X-rays • Sonography • E.C.G. • Follicular Study • N.S.T. 4766 1,821 8,520 147 615 7,758 3,301 362 702 1,905 123 88 121 (B) Statistics - World No Tobacco Day (Free Cancer Screening Camps) Individuals screened 482 Tobacco Trends Submucous Fibrosis 53 Betal Leaf Plakia 69 Betal Nut Thyroid Investigation 0 Tobacco Biopsy 11 Tobacco Toothpaste Immediate follow-up cases 17 Bidies Annual follow-up cases 127 18 18 165 5 1 Cigarettes 22 Masheri 36 Pan Masala / Gutka 14 (C) The department received a grant of 15,000 USD from UICC (International Union Against Cancer) for their project on 'Control of Tobacco related pre-cancerous conditions in children’; designed to address specific tobacco related issues in street children & those in prison or remand homes. It aims to provide ENT checkup to 2,000 children in 2008-09 to uncover existing addictions, to be followed by regular check-ups. After a survey to assess how and why children start using tobacco, this project got underway with a free ENT check-up camp and survey for street children at Shelter - Don Bosco and SMILE for 200 children. Annual Report 2008 – Cancer Patients Aid Association 3 PATIENT CARE A holistic approach to healing The Patient Care department tries to be a ray of hope for the patients who come through our doors. Over and above its patient support activities, the department has been successful in raising over Rs. 1 crore in donations through the dedicated endeavour of all the team members. I would like to place on record my appreciation of the individual efforts of my colleagues. Last year we initiated a unique program to provide financial assistance for the education of childhood cancer patients and children of cancer patients. We received an overwhelming response from donors whose generous donations enabled us to support 50 such students. The department also helps spread awareness about cancer through lectures. Our work is now being shared by an increasing number of volunteers who have attended CPAA's volunteer training programme. Our Volunteer and Counseling Cell strength has increased to 73. Our objectives for 2009 is to find prospective donors who will support the entire expense incurred towards providing drugs for patients at individual hospitals, to help rehabilitate greater numbers of patients and start a support group for Childhood Cancer Patients and Breast Cancer patients. ~ Vinaya Chacko, Director, Patient Care Department ACHIEVEMENTS: (A) Patients aided in various Hospitals & Institutes: Patients Aided Counseling & Guidance Hospital / Institute B. J. Wadia Bharat Sevashram TATA MEMORIAL - Room No. 59 Wards/Rooms Visits Information & Literature Total 708 513 524 1,745 2,554 2,389 3,368 8,311 880 358 2,031 3,296 Tata Memorial – Tata 189 3,693 281 2,434 6,408 Raheja 1,295 1,221 1,584 4,100 156 154 107 417 Cama & Albless 2,220 2,063 4,120 8,403 BYL Nair 1,588 1,378 3,177 6,143 Nanavati 445 162 317 924 13,539 8,519 17,662 Sion TOTAL (B) New Patients Registered Scheme Adopted patients (C) Patients Aided At King George Memorial No. Breast Prosthesis14 Permanent registration 393 Temporary registration 644 Special reference Total 21 1,072 Radiation Medical Aid - Patients 132 Amount spent Rs. 1,17,045 Patients 310 Amount spent Rs. 4,10,800 Patients 2,929 Amount spent Rs. 48,00,510 (D) CPAA helps Santosh Thapa fulfill his dream: CPAA's stated motto, ‘Total Management of Cancer’ means that we try to help the patient in a holistic manner, treating the individual rather than the malignancy. So when a 20 year old boy came to us for help for the treatment of his father suffering from prostate cancer, we did not stop at the patient's illness. We learnt that Santosh was a B.Com student, wanting to become a CA. His father, a watchman, had lost his job due to his illness and his mother worked as a house-help. His education fund had been used up for his father's treatment and it looked as if he would not be able to fulfill his dream. CPAA stepped in and besides paying for his father's chemotherapy, helped Santosh to raise the funds he needed for his education. While his enrolment fees were paid by a kind Samaritan, his tuition fees for coaching classes were donated by the Asian Paints Charitable Trust and M.L. Budhrani Trust. Annual Report 2008 – Cancer Patients Aid Association 4 Rehabilitation Center Building up Lives Again The best assurance you could give to a patient is the chance for survival. Cancer, post the diagnosis and treatment stage, is not an easy path for any patient. A need arises for the patient to gain great emotional and economic support, for him/her and the family. The Rehabilitation Centre believes in making this shift, a reality. Our aim is to teach every individual, that we come in contact with, to fish, rather than us giving him the fish. We go beyond the do-good stage; we are at the make-a-difference stage. To make this journey enjoyable, sincere effort is made to provide personalised care and attention to each patient / family member in terms of vocational training, counseling and support. The USP of this centre is that apart from being a Rehabilitation Centre, it is also a ‘Profit Centre’, where a hundred odd people work diligently for long hours, cutting, stitching, painting and packing a variety of products for the most discerning of customers in India and abroad, thereby generating funds required to run this operation. Manju Gupta, Executive Director, Rehabilitation Center ACHIEVEMENTS (A) Total No. of Patients Rehabilitated Nos. 1,190 New Patients / Relatives Adopted Nos. 21 Breast Prosthesis Cases Attended Nos. 218 (B) Total Amount Spent On Patients Rs. 40,98,920 Patient Wages Rs. 28,87,808 Patient Aid Rs. 3,20,295 Food Grains Rs. 2,96,146 Education & Vocational Training Rs. 5,94,670 (C) CPAA transfers Rs. 6,00,000 (D) Sales / Income Rs. 1,81,64,845 (E) Raw Materials Rs. 1,01,50,329 Annual Report 2008 – Cancer Patients Aid Association 5 CANCER INSURANCE POLICY Ensures regular funding for expensive and prolonged cancer treatment Despite the recession and increase in the service taxes, the policy department continued to be a reliable support for its 11,833 policy holders. We were able to settle all the 533 claims on time and also pay the annual premium of Rs. 2,89,84,812 to New India Assurance Company Ltd. Taking into account the considerable increase in cancer incidence, we have decided to encourage more and more policy holders to go for their annual follow-up checkups. Over the years the Cancer Insurance Policy Department, has also become front-runner in organising entertainment events for the patients and hopes to continue to do so in the future. Our goal for the future is to strengthen ourselves and grow, to reach out to larger groups of people, educating and spreading awareness about cancer, making a positive difference in prevention, aiding and assisting those who fall victim to this disease. ~ Anita Peter, Director, Cancer Insurance Policy ACHIEVEMENTS (A) Highlights of Cancer Insurance Scheme: • A total of 11,833 policy holders to date. • 90% annual follow-up. • Over 15 corporate have insured all their employees under our scheme. • 141 policy holders have been disbursed over Rs. 26 million towards cancer treatment. • 48 people were detected with cancer at the pre-policy screening and received timely and appropriate treatment. • 100% claim settlement (B) Highlights of additional activities: • Funds raised in 2008: Rs. 31,52,293/- (Individual/Corporate donations) • Awareness programs for corporates • Smoke free workplace campaign for tobacco control • Organised entertainment events for patients • Created anti-smoking advertisements • Spread information about CPAA’s activities through media coverage of events. Annual Report 2008 – Cancer Patients Aid Association 6 FUNDRAISING For the last 40 years, Mrs. Siloo Jasdanwalla- Hon. Secretary and Mrs. Rekha Sapru- Hon. Jt. Secretary have been heading the Fund Raising Department, with the aim of constantly nourishing CPAA's activities and fulfilling the vision and dreams of our Founder Chairman and CEO. From a small beginning, the Fund Raising Team has been able to collect Rs. 2 to 3 crores annually by organising various fund raising events such as film premiers, music programmes, fashion shows and plays. Due to the current financial crisis and recent recession, the team has decided to focus on raising money in small denominations through sale of newspaper collected from corporates, banks, etc.; money boxes and direct salary deductions. It has been noticed that the amount collected through Newspaper collection was around Rs.1.5 to Rs.2 lacs per month in the past and we aim to take the figure to Rs.4 to 5 lacs per month. In the present scenario, when old sources of funds have dried up, CPAA is able to continue its activities through innovative schemes for raising funds like the online “Payment gateway” on our website and the organisation of the annual Art Exhibition with Cymroza Art Gallery. At CPAA, we have now introduced the principle that fund raising is the responsibility of everyone in the organisation, and hence all the various departments have started collecting funds and are becoming increasingly self sufficient. Since we are working for a good cause, it is our expectation that we will continue to get the support we need in newer forms and sources. Annual Report 2008 – Cancer Patients Aid Association 7 NEW PROJECTS By definition, our department has the responsibility of initiating new activities with the aim of broadening the scope of CPAA in line with emerging technology, ideas or issues. ACHIEVEMENTS • CPAA's website was initially set up to provide information on our activities. Almost a decade old now, it has achieved so much more. It has acted as a bridge between patients and doctors, patients and NGOs and between other NGOs. We have sent brochures, leaflets, posters and stickers all over the world and to interior India. For example, we helped put a breast cancer patient in touch with a relevant support group in Peshawar, Pakistan. We provided literature in Gujarati to an American nurse in Atlanta, USA for her patients. We provided guidance to women who found lumps in their breasts in small towns in UP. • Psyco-Oncology Volunteers Training Programme: This course, conducted in cooperation with Nalanda, Times Foundation, was developed by Meghana Suchak, and provides a framework for committed persons wishing to contribute to the fight against cancer. Over 75 graduates of the programme from widely differing backgrounds are now part of CPAA’s volunteer network, guided by Susmita Mitra. • Translation of Cancer Information brochures into Regional Languages: Brochures and leaflets on Chemotherapy, Radiation, Breast Self Examination, Various kinds of cancers, ‘Amit Beats Leukemia’ for children suffering from cancer have been translated into Hindi, Gujarati, Marathi, Bengali through the efforts of Susmita Mitra. This helps to answer patients’ questions in a manner easily understood by them. • Expansion of CPAA counseling cells to newer hospitals such as Hiranandani Hospital. • Coming of Age of the Art Exhibition: In its 4th year, the art exhibition was able to attract some of the most senior names in the world of Indian art through the dedication of Piali Syam. The exhibition now finds mention in the CVs of artists who have participated in the past showing the value they place on it. • Networking: CPAA joined the Cancer Care umbrella body of cancer related NGOs working in India. Through the organisation of the Reach to Recovery training programme, we have been able to get in touch with organisations not only in metros but in smaller towns where information needs to be given on an urgent basis. CPAA joined in the organisation of the Terry Fox run for the first time. • Globalisation: CPAA is seen to be knowledgeable about cancer related issues in India and is referred to by international bodies. Participation in conferences, workshops, meetings has helped expose a majority of our employees to the international stage. • Widening the use of the website: This year many innovative additions have been made to our website thanks to the work done by Aditi Bapat, Bani Anand and Pooja Karkera. Downloadable cancer awareness slides in English and Hindi, the Affordable drugs campaign, the e-newsletter, constantly updated clippings files are just some of the valuable information available on our site, newly named cancer.org.in reflecting nomenclature used all over the world. • Development of a unified design for all CPAA literature: ‘Branding’ is increasingly being seen to be important in projecting an organisation visually to ensure the best possible first impression. A unified design across all departments will help even those not directly in the field to recognize our organisation. • Patient Support Activities: The New Projects department realised that it is important to reach out to patients from a higher socio economic strata who have different problems from those faced by patients we have been interacting with so far. We organised a retreat for patients and their care givers which resulted in heart warming bonding between the participants and their family members as well as the facilitators. We plan to start similar support groups for childhood cancer patients. • Tobacco Cessation Campaign: The lack of a method for helping tobacco addicts quit tobacco was seen as a gap in CPAA’s Total Management philosophy. Shital Raval underwent training at Tata Memorial Hospital and has initiated a programme for corporates to help their employees quit tobacco habits. • Involving Media: CPAA gave meaningful interviews which speak about real issues of cancer patients. Mr. Y. K. Sapru, Ms. Anita Peter and Dr. Shubha Maudgal were quoted in such articles which reflect the respect given to the NGO. Annual Report 2008 – Cancer Patients Aid Association 8 NEW DELHI BRANCH The year 2008, has been outstanding. The collective efforts and focused determination of our small, but competent team has opened many avenues for cancer related work in New Delhi. An achievement that we are proud to talk about this year is, Avon Global selecting us as their partner for Breast Cancer Awareness for 2009. CPAA was the only NGO selected, by Avon Global to be their partners in India for their global walk around the world for Breast cancer awareness which was held, in Gurgaon, on 7th December 2008. Avon intends to organise similar walks for breast cancer awareness in Mumbai in 2009. In recognition of our work, AIIMS Hospital approached CPAA to help engage their doctors and nursing staff to participate in the hospitals play group activities. People from all walks of life have come together to start a support group for CPAA. This group works as a resource for us, in areas of initiating and planning activities for our patients. The year 2009 brings newer targets to be met, a challenge we take upon ourselves to make better the ACHIEVEMENTS lives of our patients. Last but not the least we are grateful to the Mumbai Head office for the unstinted support which has helped us to come this far. (A) Table of statistics: ~ Kiran Hukku, Director, New Delhi Branch ACHIEVEMENTS: (A) Early Detection Camp Total No. of camps No. of men screened No. of women screened No. of children screened Total no. of people screened No. of suspected cases Confirmed cases (B) Patient Care Patients aided New patients Medicine disbursed 24 420 1,080 1,000 2,500 13 3 (Amt. Rs) 536 110 3,67,353 (C) Counseling AIIMS Hospital Dharamshila Hospital 1,500 720 (D) Shuttle Service Patients assisted 3,358 (E) Kind Bank Commodity Atta Rice Sugar Dal Milk Powder Cooking Oil Dalia Tea Leaves Biscuits Horlicks Bread Quantity 1500 kg 800 kg 500 kg 500 kg 500 pkts 500 litres 500 pkts 500 pkts 800 5000 16000 Commodity Blankets Mufflers Shawls Caps Sarees Trousers Shirts Salwar suits T Shirts Utensils Tiffin Boxes Quantity 300 300 150 350 100 200 200 120 235 200 200 Annual Report 2008 – Cancer Patients Aid Association 9 EVENTS Fun Day: Fun Day was celebrated at the lawns of Bal Bhavan on 23rd January 2008 in the form of a mini mela. Children from DPS Public School, Vidya Niketan and Modern School put up various games stalls for the patients. The Bal Bhavan organised puppet making, painting, clay modeling, mehndi and caricatures stalls & workshops. The childhood cancer patients enjoyed playing in the ball pools, slides and bouncers especially put up for them. Celebrities Shweta Nanda and Seema Jajodia spent time with these children and participated in activities with them. They were also entertained by songs and dances performed by the school children from Modern School and DPS School. They were then treated to a delicious meal and take-away goodies like blankets, woolen clothes, caps, toys, chocolates and games. Women International Day: The first event of the year was International Women’s Day. CPAA conducted a Breast Cancer Awareness program and an Anti- Tobacco Initiative for a 100 women from Okhla Industrial Area slum (phase 1). In addition to the awareness talks, a film to depict the hazards of tobacco abuse were screened, a theatre group from the Ministry of Information and Broadcasting also did a little act. A Health mela at Convergys: A 5 day health mela (fair) was organized by CPAA for the employees of Concergys. From the 26 th till 30th May 08, the three Gurgaon centers of Convergys were bustling with excitement. The mela was a fun way to discuss healthy lifestyle habits. It brought together everybody within the organization, from the top bosses to junior employees. Games and other fun activities were cleverly thought out to provide information about Cancer and Tobacco abuse. The enthusiasm of the employees was overwhelming, they wanted to know more about the illness and also how they could help. Our achievement for that day was to see many youth pledge that they would quit smoking and join the CPAA’s Anti–Tobacco Campaign. They made their pledge publicly on World No Tobacco Day. Rose Day: A party and movie screening were organised for the patients at south Delhi’s Select Citywalk mall. 100 patients watched ‘Welcome to Saajanpur’ which was followed by a party. Each patient was welcomed with a rose and was greeted by MD & CEO of Select City Walk, actress Sushma Seth and TV personality Geetika Ganju. The patients also took home a large gift hamper bags, comics, towels, soaps, chocolates, juices and indoor games. Besides the excitement for the patients, Rose Day drew a lot of media coverage. Avon Breast Cancer Walk: Avon Global hosted a walk for Breast Cancer Awareness for the 1st time in India, on 7th December 2008. CPAA is proud to be the first NGO to partner with Avon Global on their venture to spread awareness about breast cancer. A 3.5km walk from the Hotel Crown Plaza, Gurgaon, where hundreds of participants dressed in pink came to show their support for this cause. The Head of Avon Cosmetics India Pvt Ltd., Sebestian Baku, Chief Guest & designer Leena Singh and Kiran Hukku, Director CPAA, Delhi, flaged off the march. CPAA played a key role in arranging support from Bharti Airtel, Covergys, SAP Solutions, Fedex Express, Lioness Club, Rotary Club, Doctors and many other friends, well wishers. We at the Delhi branch also launched our song on breast cancer awareness, which was composed and written by Vineet Pnachhi. The highlight of the event was 25 breast cancer survivors who had come all the way from Ghaziabad and Faridabad to support the cause. Our special kiosk at the event answered people’s queries on Breast Cancer and distributed information. Blue Mango Films launched their film on Breast Cancer awareness. Annual Report 2008 – Cancer Patients Aid Association 10 Festivals celebrated in the AIIMS Pediatric Ward: Every year CPAA has the great pleasure of celebrating with the childhood cancer patients of AIIMS Hospital. Shoppers Stop sponsored The Diwali celebration for the Pediatric ward, CPAA and AIIMS staff organized a drawing competition for the patients. A special Lakshmi pooja was also organized, to celebrate the festival. The patients were gifted bicycles, tricycles, and other toys too and each patient got a box of sweets for the family. Christmas too was as exciting for the patients; the ward was decorated the previous day by the Patient Care team who was assisted by children from the pediatric ward itself. Children from Millennium School Noida spent time with the patients; they sang some carols and played a few games. One of the patients dressed up as Santa Claus and greeted each patient and gave them their Christmas gifts. Awareness Programs: • • • SOS Village 10th March 2008: An awareness lecture on breast and cervical cancer was conducted for mothers of SOS village, a group of ladies from the neighboring village of Anagpur also attended. In total, there were about 70 women who attended this talk. Breast Cancer Campaign at FedEx: A Breast Cancer awareness lecture was organized for the female employees of Fed Express on 20th Nov, 08. Dr.Puneet Gupta from Apollo hospital conducted the program for us. The employees were very receptive and the feedback received has given us a great impetus to conduct more programs like this at other multi-national companies. Anti Tobacco campaign in Schools: As a part of WHO theme “Tobacco Free Youth for the Year 2009”, a series of awareness lectures and quiz competitions were conducted at the following schools in Delhi: Modern School, Vidya Niketan School, Saket and Tagore International School. Interactive sessions with the students made it more interesting for them and they seemed to understand and grasp a lot better. The children even took a pledge against tobacco abuse. Health check up and Early Detection camps: Early detection camps are held on a regular basis each month for the underprivileged in Lal Kuan Chungi No. 1, 2 and 3, Munirka Basti Phase 1, 2 and 3, Noida sector 37, 40 and 41, Harijan Nagar Dakshin Puri and Madangir. This year 2500 men, women and children were screened and 3 cases where suspected but only one was confirmed as a case of cancer. Annual Report 2008 – Cancer Patients Aid Association 11 PUNE BRANCH 2008 has been a successful year for the Pune branch, thanks to the concerted effort and good work of our team. The beginning of the year was a difficult phase for us due to the loss of our colleague Jayshree Lilani, who was our source of strength and courage and played a very important part in raising funds. Despite the tough economic times that the world is being hit by, CPAA Pune received a generous amount of donations and sponsorship which helped the team managed meet its targets. It gives me great pleasure to share, that CPAA has been selected by the Abhijeet Kadam Memorial Foundation as the best NGO working towards a humanitarian cause. We were honoured to receive a donation cheque from the superstar Shahrukh Khan at the Abhijeet Kadam Memorial Football match 2008. The Pune branch also participated in the Yellow Ribbon NGO Fair this year which was organised by the Ishanya Foundation. Our stall at the fair sold products created at the Rehabilitation Center and was a recipient of a certificate from Ms. Kiran Bedi. ~ Maharukh Mehta, Director, Pune Branch ACHIEVEMENTS (A) Early Detection (B) Patients Care Particulars Patients Particulars Patients Detection Camps 13 Medical Aid given 457 Awareness Camps 9 Radiation help given 67 Number of Patients Counseled 400 Special Investigation done for 5 Food grains distributed 327 Eggs distributed 232 Syrup bottles distributed 98 Biscuits distributed 111 Complan boxes distributed 800 Ambulance Service Provided 15 EVENTS • The Hobby Ideas Women Achievers was held at the Taj Blue Diamond, Pune to acknowledge the efforts put in by 35 stalwarts from different walks of life. Chief guest Sanjay Dutt was a show stopper and even walked the ramp gracefully. The event brought 35 celebrity women achievers to the fore, sporting ensembles especially created by renowned drape designer Shaina NC. CPAA received the proceeds from the sale of this collection to be used for the cause of cancer patients. The models who walked the ramp with élan included Amrita Thapar, Arzoo Govitrikar, Gauri Naiknavre, Mayuri Garware, Sunaina Gera, Nalini Gera, Nandita Kalmadi, Monika Trivedi, Supriya Mohite, Michelle Poonawalla, Vibha Bokey, Shefali Bajaj, Swapnali Bhosale, Mrinalini Pawar, Bhagyashree Patil, Alpana Kirloskar, Parul Mehta, Purnima Pendse, Almaz Kazi, Jyoti Agarwal, Annual Report 2008 – Cancer Patients Aid Association 12 Karen Anand, Arnawaz Damania, Damayanti Raje Bhosale, Neelam Seolekar, Varsha Chordia, Sabina Sanghvi, Cheeru Chandawarkar, Netannya Singh and Dr Rashika Vijen. • Women’s International Day: We had an unusual Women’s Day celebration this year with renowned Animal Therapist Ms. Minal Kavishear doing a workshop for the women patients. Her therapy-dog Kiara was the star that afternoon and won over the hearts of the patients. The patients were also treated to lunch at Oasis restaurant that day. total of 305 people were checked during the camps. • World No Tobacco Day: Conducted 3 awareness lectures for the students of Jr. Red Cross, Beggars Home & the staff of Horizon Flora respectively. 350 people attended the program. This was followed by 4 detection camps at Beggars Home, Stone Workers at Wagholi, Swargate ST Depot and Horizon Flora respectively. A • Rose Day: Our staff and volunteers started visiting hospitals in the city two days prior to Rose Day. Patients were greeted with roses, and gifted complan boxes, biscuits, apples, syrup bottles and nutrient protein powder boxes. On 22nd September 2008, CPAA along-with with Ruby Hall Clinic organised a music and dance program by the Harmonica Lover’s Society and the Ratnakar Shelke Dance Academy for 150 patients. • a) Festivals Celebrated: Diwali was celebrated in true Rajasthani style at Chokhi Dhani with 60 patients and their relatives. Patients were gifted lunch boxes with goodies. b) Santa Claus came and visited our patients at Sun-n-Sand Hotel for Christmas this year. Patients and the relatives were excited to spend time with Santa who then distributed biscuits and sweets and other gifts too. • Make A Cancer Patient Smile: a) Innerwheel Club of Riverside organised a fun-fair for our patients on Children’s Day. Games, a magic show and a music band by the children form the blind school children were a few of the activities organised for the patients. The patients felt extremely special and they did go home smiling for sure. b) 50 Patients were taken to Balaji Temple at Ketkawale and Narayanpur Temple. c) 35 Patients and relatives were taken to Rambo Circus. d) Two workshops for Diya Paintings were held at our office premises. About 2,500 diyas of different designs were painted by patients and relatives with the help of staff and volunteers. Annual Report 2008 – Cancer Patients Aid Association 13 CHENNAI BRANCH ‘I thought my association with Cancer Patients would be a distant dream…” when I had to make my move from Mumbai to Chennai, this was the first thought that ran through my head. My initial few days in Chennai, got me an introduction to Paterson Cancer Center which kept alive the immense joy I get out of working with cancer patients. But my chance to establish the Chennai chapter of CPAA seemed like a miracle, it not only gave me the opportunity to work with patients it was the best way to keep my association with CPAA. And this time it needed to be stronger and much better than ever before. Over a short span of one year, our work in Chennai has been far reaching. This was only possible thanks to the encouragement and support of my friends and colleagues. I would like to thank in a very special way Mr Y.K. Sapru, Dr. Shubha Maudgal, Mrs Gulshan Hodiwalla, Mrs Iva Athavia and Dr Indu Nair. ` I would also like to acknowledge the guidance that was given to me so freely by Paterson Cancer Center. As a new year approaches, the road for CPAA’s growth in Chennai is long, but my goal is to continue to spread awareness about our work and give patients the support and help they are looking for in whatever way we can. ~ Padma Narayanan, Director, Chennai Branch ACHIEVEMENTS The Chennai chapter of Cancer Patients Aid Association is still in its infancy. Getting used to Chennai took me some time, but happened much faster than I assumed. My initial work with Paterson Cancer Center, gave me an understanding of the culture of the place. Nine months after setting up, I am now at ease with the patients. Knowing the local language (Tamil) made communication easier. It is really heartwarming, to see patients looking forward to my visits to the hospital. While in Mumbai, I was a visiting volunteer at B.Y. L. Nair Hospital and Cama & Albless Hospital. Talking to the patients and their family members, doctors and other staff, distribution of Complan and other health foods to the patients were some of my responsibilities. Now that I have started the Chennai branch, there are so many more aspects that go into the working and running of the organisation. Raising funds is a very large part of the work we do, in the last nine months I have been able to collect Rs.8 lacs. EVENTS: • • • • Rose Day- To celebrate the opening of CPAA Chennai, Rose Day seemed like the perfect opportunity. On the 22nd September 2008, we had an inaugural ceremony in association with the Paterson Cancer Center, this event was sponsored by Indian Overseas Bank and got a great media response as it was telecast in Tamil News Channel (Doordarshan) and written about in leading Tamil News Papers. World Breast Cancer Awareness Month- October brings Breast Cancer Awareness; to support this mission CPAA conducted a free awareness and early detection camp for women at Hindu Mission Hospital, Tambaram. This program too was with the help and support of Paterson Cancer Center. We were able to spread our message to 70 women. Cancer Care – It was my great pleasure to represent CPAA in Cancer Care’s Annual General Body Meeting held in Chennai organised by CANSTOP on 7th November 2008. Forthcoming endeavours: We are working hard to bring out a publication on the similar lines of ‘Sahayata’ in Chennai. I truly feel that an informative directory like this would be beneficial to our patients. In the years to come I would also like to bring to Chennai CPAA’s insurance scheme and at the moment I am concentrating on growing our volunteer bank, so that we can reach out to large groups of patients. Annual Report 2008 – Cancer Patients Aid Association 14 EVENTS (January – December 2008) 1. • January Exhibition at L & T Powai: As a part of CPAA'a Cancer Awareness programmes, an exhibition was arranged for the employees of L & T at their Powai campus. Piali Syam, Bani Anand and Dr. Shubha Maudgal of the New Projects team distributed pamphlets and answered queries regarding cancer and specifically about cancer screening at early detection camps, leading to an increase in number of registrations for the camp subsequently organized for L & T employees. • Makar Sankranti: This festival was celebrated with great fervor amongst the women staff members of the Rehabilitation Center. It was a special day for them as they shared ‘haldi-kum-kum’ and a festive meal. • • a) 2. February World Cancer Day: On the occasion of World Cancer Day, three open forums programs were organized by the Prevention and Early detection team, in association with BEST undertaking at their Colaba, Wadala and Dindoshi Depot on 4th, 5th and 6 th February 2008 respectively, for their staff and family members. The panel doctors were Dr. Rajendra Badwe, Dr. Raman Deshpande, Dr. Dhairyasheel Sawant, Dr. Mandakini Purandare and representing CPAA were Chairman and CEO Mr. Y. K. Sapru and Director Mrs. Neeta More. Actors and celebrities Ms. Sonali Kulkarni, Ms. Priya Berde, Ms. Sukanya Kulkarni-Mone, Dr. Nishigandha Wad and Ms. Aditi Sarangdhar were the chief guests for these forums. Valentine’s Day: A candle light dinner for couples (where either spouse is a patient) was organised on the eve of Valentine's Day by the Cancer Insurance Policy team. Actors Vidya Balan, Vivek Oberoi and Dino Morea, made the day memorable for these couples, by their presence. This special valentine dinner was provided by Blue Foods while Big Bazaar sponsored the gifts. b) It was a double bash for the staff of the Rehabilitation Center as they celebrated Valentine’s Day and their colleague Suvarna’s wedding. They took some time off their otherwise busy schedule for some fun and games. 3. March • International Women’s Day: An open forum discussion on breast & cervical cancer was organised for general public at Karnataka Sangha Hall on 6th March, 2008. Dr. Rajendra Badwe, Dr. Hemant Tongaonkar, Dr. Mandakini Purandare and Mrs. Neeta More were the speakers and Ms. Reema Lagoo was the chief guest. Maharashtra Times was the media partner for this event. • On 8th March 2008, a free joy helicopter ride was organised for 10 female cancer patients undergoing treatment at Tata Memorial Hospital, in association with Pawan Hans Helicopter Pvt. Ltd. Annual Report 2008 – Cancer Patients Aid Association 15 • 4. April • Hobby Ideas Women Achievers Show in aid of CPAA was held on 13th April 2008 at The Leela Kempinski Mumbai. The show, conceptualized by Shaina N.C. and choreographed by Hemant Trivedi saw 42 achievers walk the ramp in Shaina’s creations. Some of the prominent achievers were Aditi Govitrikar, Perizaad Zorabain, Manasi Joshi Roy, Gautami Kapoor, Netra Raghuraman, Sakshi Tanwar, Surveen Chawla, Naheed Cyrusi, Vidya Malvade, Nicole Dastur, Nimisha Tiwari, Afsana Ahmed, Subha Saha, Pinki Dalal, Dr. Ushma Batra, Dr. Lekha Adik, Purvi Parekh, Bina Aziz, Alka Mishra and many more. Actress Waheeda Rehman was the Chief Guest, Nana Chudasama, Rashmi Thackery, Vinod Tawade were other dignitaries who graced the occasion. A similar program for was also held in Pune earlier this year on 13th January 2008. • 5. CPAA participates in the BG Energy Challenge Contest: BG India, organised its annual event - 'Energy Challenge', a corporate outbound event with a mix of physically and mentally stimulating activities, networking opportunities and teamwork. An important aspect of this event was fund-raising, whereby all participating companies raised funds for a charity. CPAA was chosen as one of two NGOs to benefit from the funds raised as well as to partner in the cause. Dr. Shubha Maudgal, Neeta More, Annette Raposo and Punya M participated in the event which was held at Garud Machi near Pune and stood a creditable 7th. CPAA received a donation of Rs. 24.27 lacs from the event organisers. Hanuman Jayanti: A Katha(discourse) was organised in Lonavala on 20th April 2008 for all the patients and workers. Besides entertainment, the workers felt that it was a great chance for spiritual growth. May • The Prevention and Early detection team in association with the Vaswani Trust and Times Foundation organised a Magic show to fulfill the wishes of 60 childhood cancer patients on 3rd May 2008. • Ms. Neeta More, Director, Prevention and Early detection was invited to be a speaker on the television show, ‘Dilkhulas’ on Mi Marathi channel, along-with Dr. Rajendra Badwe and Dr. Mandakini Purandare on 16th May 2008. • Health Mela at Convergys: On 22nd May 2008, the Prevention and Early detection team was invited to distribute cancer awareness literature at the Health Mela at Convergys, Thane. Gifts article from CPAA’s rehabilitation centre were also kept for sale. • a) World No Tobacco Day 24th May 2008: An inter-collegiate Skit Competition was organised by the Cancer Insurance Policy team where 30 teams performed on the topic ‘Tobacco- deadly in any form’. Ms. Vineet Gill Munish (National Professional Officer - Tobacco Free Initiative, WHO); Mr. B K Prasad (Jt. Secretary, Health, Ministry of Health and Family Welfare); Dr. Vinayak Prasad (Director, Public Health, Ministry of Health and Family Welfare); Annual Report 2008 – Cancer Patients Aid Association 16 b) c) d) 6. Dr. Surendra Shastri (Head- Preventive Oncology Dept, Tata Memorial Hospital) and Mr. Y. K. Sapru (Founder Chairman and CEO, CPAA) judged this competition where Jai Hind College took the first place followed by EMDI and KC Colleges. 25th May 2008: Music Industry Supports Tobacco Control Initiative – The Bollywood music fraternity came together for a concert to extend their support to CPAA’s ‘Tobacco Control Initiative’. Directors Farah Khan and Tanuja Chandra and actor Viveik Oberoi inaugurated the show. It was a star studded evening with performances by Shweta Pandit, Raman Mahadevan, Anusha Mani, Akriti Kakkar, Mahalakshmi Iyer, Baba Sehgal, Javed Ali, Sowmya Rao, Madhushree and Srinivas Iyer. Music Directors ShankerEhsaan-Loy emblazened the evening with a foot-tapping medley. Actors and patrons of CPAA Tara Sharma and Shilpa Agnihotri spoke to the audience about the harmful effects of tobacco consumption at this event put together by the by the Cancer Insurance Policy team. A press conference preceded this event where actors Mr. Milind Soman and Mr. Arjun Rampal, DGP A.N. Roy, Founder chairman and CEO of CPAA Mr. Y.K. Sapru; Dr. Paramita Sudharto - Public Health Administrator, WHO, spoke about their support to tobacco control and felicitated artistes from the music industry for their enthusiastic participation in the concert. RJ Tarun Ratnani (Radio Mirchi) moderated the discussion. 29th May 2008: A free E.N.T. checkup camp was organised for 600 policemen and their family members at Naigaon Police Head Quarter by the Prevention and Early detection team. The camp was inaugurated by the late Joint CP Hemant Karkare and actress Ms. Varsha Usgaonkar. A skit was also enacted by Kamgar Kalyan Bhavan, Andheri. 31st May 2008: A friendly cricket match was organised by the Prevention and Early detection team at the MIG Club – Bandra, to create awareness about the ill-effects of tobacco consumption in relation to cancer, the theme of the day being ‘Tobacco Free Youth’. Ministers, cricketers, film personalities, and doctors participated in this match along with cancer patients. • Health Exhibition: A health exhibition was organised on 31st May 2008 at Kamathipura. This was done with the support of Committed Communities Development Trust (CCDT) to create awareness about the ill effects of tobacco and smoking. • Volunteer Training Programme: The New Projects team organised its 3rd certificate programme to train volunteers in cancer counseling. A group of 14 volunteers attended a 3-day workshop in which topics such as importance of counseling, exploring the individual's motivation, grief and loss, role of the counselor, developing skills, ethical issues, burnout and self care were covered. This programme was conducted by Susmita Mitra and Dr. Shubha Maudgal. July • An open forum program was organised by the Prevention & Early detection team at Naval Dockyard on 23rd July, 2008 for its staff members. Mr. Y. K. Sapru, Dr. Jyoti Taskar, Dr. Vani Parmar and Mrs. Neeta More were the speakers. Actress, Mrs. Sukanya Kulkarni-Mone was the chief guest. • ‘Khazana’ festival of Ghazals: The much awaited annual event, organised by the fundraising group, ‘Khazana’, Festival of Ghazals was held on 25th and 26th July 2008 at Oberoi Regal Room, Mumbai for the sixth consecutive year in aid of CPAA and Parents Association Thallasemic Unit Trust. The most talented Ghazals singers of this decade paid tribute to Begum Akhtar in celebration of her birth centenary year. Some of the prominent ghazal singers were Rita Ganguli, Rajendra Mehta, Bhupender and Mitali Singh, Penaz Masani, Anup Jalota, Talat Aziz, Pankaj Udhas and many more. Mr. Shatrughan Sinha, MP and Head of the BJP Art and Culture Department, was the chief guest. Annual Report 2008 – Cancer Patients Aid Association 17 7. • August Art Exhibition: On 2nd August 2008, the New Projects team organised its 4 th annual art exhibition and sale 'Colours of Life-IV - Wings of Hope’ at the Cymroza Art Gallery. This exhibition helps raise funds for the treatment of childhood cancer patients and has become an event that both artists and art lovers look forward to and support whole heartedly. This year’s collection curated by Piali Syam, comprised of works donated by 70 Indian Masters from all over the country and was co-hosted by Cymroza Art Gallery. • Illness to wholeness: CPAA’s New Projects team along-with Roots and Wings (www.roots-n-wings.org) organised a residential workshop to introduce participants to the latest mind-body-spirit approaches useful in managing cancer and to provide a safe and supportive environment in which to share their own experiences and learn from each other. The programme consisted of lectures, practical training and experiential sessions within the tranquil surroundings of the Leslie Sawhny Training Centre, Deolali. 17 patients and caregivers came out healed and able to ‘honour cancer in order to transcend it’. 8. September • Rose day a) On the 20th September 2008, the Patient Care team along with Deutsche Bank organised a day out for 50 childhood cancer patients to the Nehru Planetarium, followed by lunch at McDonalds. b) 20th September 2008: A Rose Day Mela (Fair) was organised for the patients and their family members by the Cancer Insurance Policy department. Not only were they treated to an evening of fun, food and festivities, but they also got a chance to meet their favourite stars like senior actress Dimple Kapadia who came along with her daughter, actress Twinkle Khanna, singer Sonu Nigam and actor Arjun Rampal. They distributed sweets and gifts amongst the patients and spent time with them. c) 22nd September 2008: As usual, CPAA put in every effort to “Gift a Smile” to cancer patients all over Mumbai. Every hospital, home and treatment centre was visited with games, gifts and goodies. The Rose Day program at the Shanti Avedna Hospice, for example, saw the choir group from St. Pauls Church perform live for the inmates as the Patient Care volunteers distributed presents and roses to the patients and the staff taking care of them. This was followed by a dance performance put together by choreographers Nicole, Javed and Marisha. The program ended with a special screening of the movie 'Lage Raho Munnabhai' for the patients. Similar programmes were organized to entertain patients and help them forget their sorrows and fears for a day. 9. October • Cancer Awareness Camp: As a part of CPAA's ongoing campaign to raise awareness about cancer, Minal Parab, Kirti Dustakar, Piali Syam, Shital Raval and Shubha Maudgal visited Tata Consultancy Services facility at Vikhroli over a period of two days. They interacted with employees for 2 days at this initiative taken by the New Projects team, and distributed brochures and spoke about the importance of early detection. This was followed by a screening camp for their HR department. • Launch of music album: Author and patron of CPAA – Ms. Shobhaa Dé recently released a unique musical album based on her book 'Superstar India'. Created along with Miti Adhikari and Neel Adhikari, this CD features melodic, soulful Indian classical renderings and earthy songs, through a very contemporary presentation and also has Shobhaa Dé herself reading a few passages from her book. This CD produced for Reliance Industries was launched by Mrs. Nita Ambani at the Oberoi Hotel Annual Report 2008 – Cancer Patients Aid Association 18 Mumbai on 27th October 2008. The proceeds of the album will be donated to the CPAA. • Affordable Cancer drugs: Taking forward our belief that medicines should not be denied to a patient simply for financial reasons and that every cancer patient has a right to life and must get the best treatment available today, the New Projects team started an initiative to unite various NGOs and help make the latest treatment options available to everyone who will benefit from them. A blog on CPAA’s website was activated to that effect too. • Susan Komen Foundation: CPAA played host to Ambassador Nancy Brinker, Founder of Susan Komen for the Cure, an organisation named after her only sister, Susan, who died from breast cancer in 1980 at age 36. The organisation is one of the best known worldwide for its efforts to build breast cancer awareness and financial support for patients. Ambassador Brinker spent time understanding CPAA's concept of Total Management of Cancer and visited the Rehabilitation centre as well. • Diwali: The Patient Care unit organised a performance by an orchestra, Sangeet Sanghya alongwith Mr. Jaffery (PRO) Tata Memorial Hospital for the 250 patients at ACTREC, Kharghar The ensemble entertained the patients with popular Bollywood tunes. 10. November • Diwali Sale: The Rehabilitation Center’s Diwali range was exhibited and sold at the annual exhibition of the Women Entrepreneurs of the Indian Merchant Chamber, held at Taj President, Mumbai on 1st November 2008. • c) Reach to Recovery Workshop: The first of its kind in India, CPAA was proud to collaborate with the International Union against Cancer (UICC) and Prashanti Cancer Care Mission, Pune to conduct an International Reach to Recovery (RTR) workshop in Mumbai. Ranjit Kaur, Immediate Past President of Reach to Recovery International (RRI), coordinator for the Asian region, and member of the Board of Directors of the UICC traveled from Malaysia to facilitate the programme. 24 participants representing NGOs from New Delhi, Chennai, Kolkata, Pune, Bhandara and Mumbai, viz, Mastectomees (MIA), TMH, VCare, ICS, Prince Aly Khan, Helping Hand, Aastha Support Group, Sakhi Support Group, Prashanti Cancer care Mission, Shri Swami Pratishtan, Hitaishini and Can Support attended this 3-day workshop held from 15-17 Nov 2008. The aim of this event was to enable women with breast cancer to receive psychosocial support using the Reach to Recovery concept and principles from trained breast cancer survivors. The workshop focused on developing RTR programmes in the community, teaching counseling principles and coping strategies and then identifying and using different modes of supportive care programmes. Esteemed doctors from the field of Breast Oncology took the podium to speak about topics ranging from the basics of Breast Cancer, pathology, epidemiology, treatment options, current research and palliative care. Guest speakers included Dr Duru Shah, Dr R.A. Badwe and Dr Zulica Baretto. The Chief Guest of the event organized by the New Projects team was the elegant Mrs. Esther Daswani. • Children’s Day a) The Patient Care unit put together a Children’s Day programme for several childhood cancer patients. This program, sponsored by the State Bank of India and held at its local head office, comprised of magic shows, games, music and food for the patients. Mrs. Jyoti Bhatt, President (SBI Ladies Club) along with other members distributed blankets and gifts to the patients. She also undertook to support the treatment of two patients under the Adopt-a-cancer patient scheme. b) On 13th November 2008, Childhood cancer patients were taken to Bowling Company, Phoenix Mills by the Cancer Insurance Policy team for a fun filled afternoon of playing video games and enjoying the lovely snacks and gifts. The presence of stars like Dia Mirza, Shiney Ahuja and singer Akriti Kakkar made their day. On the 14th November, several childhood cancer patients participated with children of MIG Club members in a drawing competition on the harms of tobacco, organized by the Prevention and Early detection team. The judges, Aditi Dandekar from Camlin and renowned artists Brinda Chudasama Miller and Subhash Awchat, had a hard time deciding who should get prizes. Ex-Miss World, Diana Hayden, fresh out of the Big Boss House distributed the prizes including one to a patient. Annual Report 2008 – Cancer Patients Aid Association 19 d) As a part of Community Day, Citibank organised an evening full of entertainment and fun for childhood cancer patients supported by the Patient Care team. It started off with a dance led by a specially trained movement therapist, Dilshad Patel. The children had a great time and showed wonderful talent in dancing. This was followed by a juggling and a magic show. The occasion was graced by senior executives of Citibank, including their CEO, Sanjay Nayar. • Council for International Fellowship (CIF): Ms. Iva Athavia, Secretary of CIF and a counselor at the Patient Care department, organised and hosted their annual exchange programme in India. Trained social workers, youth leaders and special educators came together to participate and learnt from the orientation and exposure to the Indian scenario. The programme, held from 5th November to 10 th December 2008 saw 7 participants from Sweden, Estonia, Finland, Germany, Austria and New Zealand. It included an initial introduction to the Indian socio political scenario; host family living to provide an Indian social, cultural and religious experience; placement at different agencies focusing on their area of work; a rural camp to understand developmental concerns in rural areas; followed by an evaluation and valedictory function. 11. December • Awareness Campaign for FedEx: CPAA conducted an awareness campaign for 100 employees of FedEx at their office in Powai. 4 lectures were delivered by New Project’s Dr. Shubha Maudgal and Dr. Shital Raval for male and female groups. Groups at FedEx branches in Chennai and Bangalore were also addressed by teleconference. • NGO Mela at St. Xavier's College: New Project’s Piali Syam and Shital Raval displayed and sold CPAA Rehabilitation centre products at the NGO Mela organised by students of St. Xaviers College on 22nd December 2008. This was also a good opportunity to spread awareness about cancer-causing lifestyle factors. Leaflets, brochures and stickers were distributed. • Distortion: Patient Care department’s Sneha Shenoy of facilitated CPAA's participation in an event organised by students of HR College, ‘Distortion’. 8 bands were twinned with 8 causes and competed for the spot of best band. The event provided CPAA with an opportunity to showcase our activities and spread awareness about the disease to a young audience. • Christmas Party: Christmas was celebrated with 50 childhood cancer patients and their families on 22nd December 2008. The red and white balloons and the other decorations set the festive tone for the party. The games, dancing, singing, entertainment and prizes kept the children excited through the evening. The highlight of the evening however, was Santa’s grand entry in an open jeep. Santa was more than obliging to the kids while distributing the gifts and taking photographs with them. Annual Report 2008 – Cancer Patients Aid Association 20 International symposia: 1. Call of the Peacock Exhibition: Mrs. Manju Gupta, Executive Director of the Rehabilitation Center participated in the 'Call of the Peacock' Exhibition in London organised by the Ladies Wing of Indian Merchant’s Chamber in June 2008. This was the first time that products from the CPAA's Rehabilitation Center's workshop were showcased in the elite Chelsea and Knight Bridge areas of London. The exhibition was a complete sell out with orders pouring in from all over the world. 2. APCASOT fellowship: Ms. Minal Parab from the Prevention and Early detection team and Ms. Anila Thale from the Cancer Insurance Policy team were awarded the UICC AsiaPacific Cancer Society Training Grant (APCASOT), a program for staff or accredited volunteers of voluntary cancer societies located in the Asia-Pacific region. They were invited by the Queensland Cancer Fund, Brisbane, Australia for training in a cancer related subject of their choice. 3. World Conference on Breast Cancer in Winnipeg, Canada: Dr. Shubha Maudgal, Executive Director (New Projects) and Mrs. Neeta More, Director (Prevention & Early Detection) attended the World Conference on Breast Cancer in Winnipeg, Canada. They presented papers on 'Promoting Early Detection of Breast Cancer in India' and 'Reaching the Hard to Find'. The conference was a unique opportunity to meet other NGOs, researchers, activists and most importantly, breast cancer survivors and share experiences. 4. UICC World Cancer Congress 2008: 6 representatives of CPAA viz, Mr. Y. K. Sapru (Chairman), Mrs. Rekha Sapru (Jt. Secretary) Dr. Shubha Maudgal (Executive Director), Ms. Kirti Dustakar (Prevention & Early Detection), Ms. Iva Athavia (Patient Care) and Ms. Anita Peter (Director, Cancer Insurance Policy) and were invited to attend this conference held at Geneva between 27th - 31st August 2008. Mr. Y.K. Sapru was invited to present a paper on CPAA's tobacco control activities and also chaired a session. Anita Peter presented a paper on the cancer insurance policy. 6 posters were also displayed on various aspects of CPAA work. This year CPAA also exhibited its activities, literature and products in a stall which was visited by over 2500 participants of the congress. 5. Training Programme on Clinical Trials: New Project’s Dr. Shubha Maudgal was invited by the National Breast Cancer Coalition Fund to attend a 4 day training programme on Clinical Trials in Paris from 3rd to 6th December 2008. Participants from all over the world attended. The intensive course included lectures on basic science, design of clinical trials, ethical issues, data safety monitoring, international issues, informed consent. Clinical trials are extremely important to cancer patients who need access to newer treatment options as existing modalities fail. Indian laws made it difficult for patients to get included in such trials. But recent change in legislation is paving the way to the possibility of greater involvement in future. It is therefore useful and necessary for NGOs like CPAA to understand the risks and benefits to help protect and project the rights of needy cancer patients. Participants got the unique opportunity to hear and interact with Dr. Dennis Slamon, who developed Herceptin as a targeted therapy for breast cancer as well as other well known lecturers. Annual Report 2008 – Cancer Patients Aid Association 21 BRIEF FINANCIAL STATEMENT (Extract from CPAA Audited Annual Financial Statement for 2007 - 2008) BALANCE SHEET AS AT 31.3.2008 Funds & Liabilities Trust Funds or Corpus INR Trust Funds Other Earmarked Funds Balance with Naigaon 35 AC Liabilities For Expenses For Advances For Rent & Other Deposits For Patients Sundry liabilites Income & Expenditure Account Balance as per Last B/S Add :- Surplus for the year Less :- Surplus trnsfrd to Cancer Hospital fund TOTAL (Rs.) Property and Assets 2,686,855.43 66,107,483.20 1,613,078.86 3,889,574.64 1,278,232.00 8,500.00 1,973,579.05 690,089.55 7,839,975.24 INR Immvoble Properties Investment Movable Property Inventories in Rehab Center Advances 9,184.00 49,619,356.00 6,070,478.00 1,820,998.00 4,795,182.80 Outstanding Income Interest Other Income Cash & Bank Balance With Bank SB A/c In FDR with Bank With Manager 5,757,426.44 13,887,339.22 19,644,765.66 11,000,000.00 Property and Assets 667,177.05 2,100,218.89 2,767,395.94 18,049,409.51 3,710,973.64 49,180.50 21,809,563.65 8,644,765.66 86,892,158.39 TOTAL(Rs.) 86,892,158.39 (Extract from CPAA Audited Annual Financial Statement for 2007 - 2008 Income & Expenditure from 1.4.2007 to 31.3.2008 Income INR Dividend on Mutual Funds Interest on Savings Bank, FDs etc Grants / Donations 2,024,058.10 853,211.12 28,497,426.45 Advertisements 767,750.00 Charity Show/Art Exhibition Membership fees 8,962,450.40 Expense On Properties INR 1,018,280.00 Estabilshment Expenses 13,619,523.24 Audit Fees 101,124.00 Depreciation 1,174,632.00 Expenditure on Objects of Trust 11,994,084.86 Excess of Income over expenditure 13,887,339.22 2,600.00 Net Surplus from Rehab Activity Gain on redemption of Investments TOTAL (Rs.) 292,959.25 394,528.00 41,794,983.32 TOTAL (Rs.) 41,794,983.32 * Details of remuneration, international travel expenses, etc are available on request subject to terms of confidentiality Annual Report 2008 – Cancer Patients Aid Association 22 TEAM CPAA Members of the Managing Committee Mrs. Siloo Jasdanwalla - Hon. Secretary Mrs. Rekha Sapru - Hon. Jt. Secretary Dr. Usha Saraiya Medical Consultant – Gynecology (Consultant Cama Hospital) Dr. Shashi Bakre (Medical Director) Dr. Piloo Hakim Medical Consultant – E.N.T. Surgeon (Consultant J. J. Hospital) Ms. Manju Gupta - Executive Director (Rehabilitation) Ms. Gulshan Hodiwalla - Executive Director (Administration) Dr. Shubha Maudgal - Executive Director (New Projects) Ms. Kiran Hukku - Director Delhi Branch Ms. Maharukh Mehta - Director Pune Branch Ms. Padma Narayanan – Director Chennai Branch Chief Patron - Late Mrs. Indira Gandhi (Former Prime Minister of India) Founder Chairman – Mr. Y. K. Sapru Chairman (Past Executive Director Johnson & Johnson) Patrons Mr. B.G. Deshmukh - Tata & Sons Mr. Nana Chudasma - Ex - Mayor Mumbai Mr. Nadir A Modi Solicitor - Hon. Legal Advisor Late Mr. Rajendra Jain - Industrialist Mr. Madanlal Dalmia - Businessman Mr. Shashi Kapoor - Film Artist Mr. Pankaj Udhas - Singer Mrs. Maya Shahani - Trustee (Shahani Trust) Ms. Shobhaa De - Author Mr. Anup Jalota – Singer Mr. Salman Khan - Film Artist Ms. Shaina NC - Cultural Ambassador Mr. Vivek Oberoi - Film Artist - TobaccoControl Ambassador TEAM CPAA Prevention & Early Detection Neeta More – Director Valsa Peter Kirti Dustakar Minal Parab Rupali Dalvi Anagha Wadki Sajeda Dhanshe Upasana Adhikari Rajashree Manchala Vimla Verghese New Projects Aditi Bapat Susmita Mitra Piali Syam Shailja Singh Dr. Shital Raval Delhi Branch Sudha Murgai Nilima Batra Anamika Trikha Niharika Raina Reena Patient Care Cancer Insurance Rehabilitation Vinaya Chacko - Director Halima Aurangabadkar Iva Athavia Sonali Arte Mallika Narayan Sneha Shenoy Anita Peter – Director Gorethi Rodrigues Poonam Bhovar Anila Thale Pradnya Getkewar Shyamsundar Choudhary Maria Lopez Rashmi Gaikwad Jennifer Marion Suchita Mane Fundraising Zainab Allana Zakia Topiwalla Phul Mathur Kavita Kulkarni Snehal Pawar Laxmikant Naik Sushila Sawant Swati Ambaredkar Pune Branch Veena Gaikwad Nazia Pathankar Suphula Gaikwad Administration Vaishnavi Varanse Vaishali Sakpal Avira Fernandes Jayshree Samla Victoria Santos Medha B. Nair Mani Irani Ashwini Bangera Consultants Shoba John – Tobacco Control, HealthBridge Canada Annual Report 2008 – Cancer Patients Aid Association 23
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