a week in the life of a Brain injury
Transcription
a week in the life of a Brain injury
THE MAGAZINE OF SHEPHERD CENTER | FALL 2008 { a week in the life of a Brain Injury Patient at Shepherd Center { FEATURE PROFILE AND MORE: Woman who sustained SCI in violent attack gains strength and hope during recovery. Musician with quadriplegia writes songs and performs, rekindles relationship from years ago. Shepherd Center athletes compete in fencing and swimming in Paralympic Games in Beijing. Photo by Gary Meek Letter from James Shepherd T H E M A G A Z I N E O F SH E P H E R D C E N T E R FALL 2008 Shepherd Center 2020 Peachtree Road, NW Atlanta, Georgia 30309 404-352-2020 [email protected] www.shepherd.org/publications Editor Jane M. Sanders Dear Friends, The recent completion and opening of Shepherd Center’s Jane Woodruff Pavilion and the Irene and George Woodruff Family Residence Center have given the hospital state-of-the-art facilities. But they would not be truly complete without our excellent staff of highly trained physicians, who adeptly treat the most acute medical situations involving brain and spinal cord injuries, multiple sclerosis, chronic pain and other neurological conditions. Our physicians help lead the hospital’s staff in creating Shepherd Center’s uplifting atmosphere and remarkable outcomes for patients. The strengths of these practitioners lie in the combination of their excellent training at some of the nation’s top medical schools – including Baylor, Duke, Emory, Johns Hopkins, the University of Pennsylvania, Stanford and Vanderbilt – and years of experience in treating patients and conducting research. Their varied expertise brings together many different aspects of rehabilitation under one roof. Leading the way for 32 years was Dr. David Apple, Shepherd’s first medical director. Now medical director emeritus, Dr. Apple’s significant influence on the field of rehabilitative medicine continues as he oversees several research projects under way at Shepherd. Dr. Donald Peck Leslie, who became Shepherd’s medical director in 2004, now leads the medical staff with his incredible record of experience at both the Mayo Clinic in Rochester, Minn., and at Shepherd, where he led the Acquired Brain Injury Program for 10 years before taking his current leadership role. Assisting Dr. Leslie is associate medical director Dr. Brock Bowman, who came to Shepherd in 1998. Together, they lead a staff of eight full-time physicians who direct the care of patients in the Spinal Cord Injury Program, Acquired Brain Injury Program, Shepherd Pathways, the Andrew C. Carlos Multiple Sclerosis Institute and the Dean Stroud Pain Institute at Shepherd Center. The stellar qualifications of our physicians and the expertise of Shepherd’s staff in all departments are reflected in the hospital’s consistent moves up – this year to No. 9 – in the U.S. News & World Report ranking of the best rehabilitation hospitals in the nation. As we move forward, our physicians will continue to offer their wealth of expertise in caring for patients as they pursue their quest for advancing the treatment of people with catastrophic injuries. Warm regards, James H. Shepherd, Jr. Chairman of the Board Design Soloflight Design Contributing Writers Sara Baxter, John Christensen, Alison Damerow, Cathy Holleman, Dean Melcher, James Panter, Anne Pearce, Bill Sanders, Scott Sikes, Julie Washburn Souza Contributing Photographers Leita Cowart, Neil Dent, James E. Fitts, Kristen Bartlett Grace, Kathy Grosch, Dean Hesse, Gary Meek, Shelley Mitchell Board of Directors James H. Shepherd, Jr., Chairman Gary Ulicny, Ph.D., President and CEO Emory A. Schwall, Vice President William C. Fowler, Treasurer Stephen B. Goot, Corporate Secretary Alana Shepherd, Recording Secretary Members Fred V. Alias, Gregory P. Anderson, David F. Apple, Jr., M.D., Brock Bowman, M.D.*, Wilma Bunch*, James M. Caswell, Jr., Sara S. Chapman, John S. Dryman, Mitchell J. Fillhaber*, David H. Flint, Stephen B. Holleman*, Michael L. Jones, Ph.D.*, Tammy King*, Donald Peck Leslie, M.D., Bernie Marcus, Joseph R. Moderow, Julian B. Mohr, Charles T. Nunnally III, Sally D. Nunnally, Clyde Shepherd III, J. Harold Shepherd, Scott H. Sikes*, James E. Stephenson, James D. Thompson, Goodloe H. Yancey III *Ex Officio Spinal Column is published quarterly by Shepherd Center, a private, not-for-profit hospital specializing in the treatment of people with spinal cord injury and disease, acquired brain injury, multiple sclerosis and other neuromuscular disorders, and urological problems. E-mail change of address information or request to be removed from our mailing list to [email protected], or by mail to Shepherd Center, Attn: Spinal Column Mailing List, 2020 Peachtree Road, NW, Atlanta, Georgia, 30309. Please include mailing label. Spinal Column accepts no advertising. Spinal Column is a registered trademark of Shepherd Center. Spinal Column: The Magazine of Shepherd Center, a Catastrophic Care Hospital | Fall 2008 Illustration by Kerry McCaughan Departments 2 Short Takes 22 Patient Profile: Greg Harry 23 Research: Cure-Centered Discovery 24 Shepherd Alums 26 Foundation Features 38 Loving Tributes 4 12 16 COVER STORY: Seven Days Photo by Gary Meek A Week in the Life of Brain Injury Patient Molly Welch at Shepherd Center 16 18 20 G aining Strength: Mother and wife gains strength and hope during rehabilitation following violent attack. ports for Everyone: Shepherd sponsors S 12 sports teams for people with physical disabilities – several of whom competed in this year's Paralympics. From Painful to Pleasant: Shepherd Pain Institute delivers successful results with a holistic approach to the treatment of pain. Fifty & Growing: NeuroRecovery Network at Shepherd Center celebrates success with enrollment of its 50th patient. About the cover: Molly Welch, 21, of Alpharetta, Ga., was returning to her college campus when she sustained a severe brain injury in a head-on collision that left her in a minimally conscious state for weeks. Now, after months of rehabilitation, she continues to improve. Illustration by Kerry McCaughan, Based on a Photo by Gary Meek If you would like to make a gift to support the work you have read about, please contact the Shepherd Center Foundation at 404-350-7305 or visit shepherd.org. { Shepherd Snapshots: A Look at News and Other Notes {{ New Physician Joins Multiple Sclerosis Institute at Shepherd Center Dr. Sherrill Loring recently joined the medical staff at Shepherd Center as a neurologist seeing patients and conducting research in the Andrew C. Carlos Multiple Sclerosis Institute. Previously, she was an associate professor of neurology at the University of Florida. “The MS team is very excited about the addition of Dr. Loring,” says Dr. Ben Thrower, medical director of the MS Institute. “Her experience, knowlDr. Sherrill Loring recently edge and dedication will allow us to serve people joined the medical staff at with MS and their families even more effectively.” Shepherd Center Dr. Loring earned her medical degree from the Medical University of South Carolina. She then completed an internship and residency at the Medical College of Georgia, where she was later a clinical assistant professor of neurology. She also worked as the chief of neurology at University Hospital in Augusta, Ga., and later directed the MS Clinic at Georgetown University Hospital in Washington, D.C., before taking the position at the University of Florida. Dr. Loring is a member of the American Academy of Neurology and the American Medical Association. Shepherd Center Voted Among Atlanta’s Best Places to Work The staff at Shepherd has known it for years: Shepherd Center is a great place to work. And this past summer, the rest of Atlanta learned it, too. Shepherd Center ranked in the Atlanta Magazine top 40 “Best Places to Work in Atlanta.” To be considered in the running, Shepherd Center had to complete a workplace profile, and Shepherd employees had to respond to an electronic survey. More than 250 employees responded to the survey, placing Shepherd Center at number 11 out of 40 places to work in the city. The article is available online at: www.atlantamagazine.com/article.aspx?id=23900. Shepherd Center Hosts Conference on Religious Service and Worship Experience for People with Disabilities A recent one-day conference at Shepherd Center focused on how religious communities can make their houses of worship even more accessible to people with disabilities. Presenters went beyond discussions about eliminating physical barriers and talked about creating services and programs in which all members can easily participate. The conference, called “That All May Worship: Beyond the Ramp,” was sponsored by Shepherd, First Presbyterian Church of Atlanta and the Interfaith Disability Connection (IDC), which is managed by the Atlanta-based nonprofit Bobby Dodd Institute. The IDC works to connect the disability community with congregational leadership and to promote understanding of the unique accessibility and inclusivity challenges faced by people with disabilities. Leaders in religion and disability education spoke to a crowd of about 150 in the Center's Callaway Auditorium. The keynote speakers were Rabbi Lynne Landsberg, the Rev. Al Mead and Ginny Thornburgh. “Clergy and lay leaders in both religious and disability communities, advocates and friends all came together to take part in this conference on community, acceptance and inclusion,” says Wayne McMillan, president and CEO of the Bobby Dodd Institute. “Attendees gained the knowledge, resources and motivation to make positive changes in their religious communities.” For more information, visit www.interfaithdisability.org or contact IDC at [email protected] or 678-365-0073. 2 S p i na l c o l u mn www. sh e p h e r d . o r g Marriage to a quad leads wife to write a humor book Among the top 10 companies for workers with disabilities are business giants IBM, PepsiCo and General Motors, along with several healthcare-related organizations, according to a list published recently by DiversityInc magazine. All of the companies on the list have these things in common: specific programs to recruit employees with disabilities; the opportunity to work from home and/ or telecommute; job sharing; and employee-resource groups for people with disabilities. Eighty percent of them offer alternative career tracks for people with long-term family-care issues. The full article is available online at: www.diversityinc.com/public/3573.cfm. Photo Courtesy of Tim Evatt Former Shepherd Center patient Tim Evatt and his wife Rhonda Crozier Evatt firmly believe God brought them together after helping them through seemingly overwhelming obstacles in their lives. After almost four years of marriage, the couple still feel like newlyweds, they say. Humor has always been a big part of their relationship. They love to laugh together about everything – even the challenges they face with Tim’s quadriplegia. It was this spirit of fun and laughter that inspired Rhonda to Humor has been a big part of Tim and Rhonda Evatt’s relationship write her newly published book “101 throughout their almost-four years Reasons to Marry a Quadriplegic.” of marriage. They love to laugh “You only have to iron the front together about everything – even of their clothes,” Rhonda writes in the challenges they face with Tim’s quadriplegia. This spirit of fun and a section of the book titled “Every laughter inspired Rhonda to write Woman’s Dream,” which details all her newly published book “101 the perks she experiences. Reasons to Marry a Quadriplegic.” “I’ll never have a deer carcass in my backyard, I get to hide all the Halloween candy for myself and, of course, I win all the pillow fights,” Rhonda says, quoting a few of the reasons in her book. Rhonda and Tim, of Pendleton, S.C., met through eHarmony.com. Tim had been a quadriplegic for 22 years after a fall from a tree. Rhonda had been a single mother for 12 years. Both were looking for a serious, meaningful relationship and were praying for their ideal mates. Tim revealed his condition to Rhonda during their email exchanges. He asked if she could ever love a man in a wheelchair. After soul-searching and prayer, Rhonda replied that she had many requirements for a husband and father, but standing was not one of them. “God’s love knows no boundaries. Neither does mine,” Rhonda remembers writing. The couple talked for three months before they finally met in person. It was love at first sight for both of them. They were married after dating for a year and a half. Married life was an adjustment for everyone, but laughter helped the process. For years, the couple had running jokes of Rhonda’s reasons she married Tim. Rhonda never intended to write them down, but while recovering from a serious fall last year, she decided to write her book. It’s filled with her reasons for marrying a quadriplegic along with humorous stories from their marriage. Tim wrote the forward in the book. They hope it brings smiles to the faces of all who read it. “101 Reasons to Marry a Quadriplegic” can be ordered from most bookstores or Amazon.com. — Julie Washburn Souza U.S. Business Giants Among Top 10 Companies for Workers with Disabilities The DiversityInc top 10 companies for workers with disabilities are: Photo by Dean Hesse 1. IBM 6.Sodexo 2. Eastman Kodak Co. 7.Starwood Hotels 3. PepsiCo& Resorts Worldwide 4. Kaiser Permanente 8.General Motors 5.Health Care 9.Deloitte Service Corp. 10.Novartis Pharmaceuticals Corp. Above: Companies rated among the best for employees with disabilities offer telecommuting, job sharing and employeeresource groups for people with disabilities. Shown are Kim Smith, front, and fellow employees at IDI in Atlanta. fa l l 2 0 0 8 3 4 S p i na l c o l u mn Illustration by Kerry McCaughan Based on a Photo by Gary Meek www. sh e p h e r d . o r g {COVER STORY { Photographs by Gary Meek, Text by Jane M. Sanders A week in the Life of Brain Injury Patient Molly Welch at Shepherd Center John and Mary Welch don’t know what caused their daughter’s car to cross the median of a four-lane Alabama highway and collide with an oncoming truck. But because she had turned on her digital audio recorder before the crash, they have an audio recording of the aftermath of the accident in which other motorists, as well as emergency personnel, worked to free the 21-year-old Auburn University student from her car. Molly Welch, 21, of Alpharetta, Ga., was returning to Auburn after spending a weekend at home with her family in early February 2008. Once rescue workers removed Molly from her vehicle, she was taken to East Alabama Medical Center in Opelika, Ala., for trauma care. Doctors determined Molly had sustained a severe brain injury, as well as other injuries. She remained in the ICU for three weeks in a minimally conscious state. On Feb. 28, Molly was transferred to Shepherd Center’s ICU. Then she spent several weeks as a minimally conscious patient in Shepherd’s Pre-Rehabilitation and Education Program (PREP). After that period of therapy and family training, Molly was sent home for a month until she began to emerge from this low level of cognitive activity. She returned for acute rehabilitation in Shepherd’s Acquired Brain Injury (ABI) Unit, then continued her therapy as an outpatient at Shepherd Pathways for many weeks. While at Shepherd, ABI patients undergo an intense routine of daily therapy, including occupational, physical, speech and recreational therapy. They also receive neuropsychological testing and counseling, and participate in classes that teach patients and family members about their injury and how to manage their day-to-day care after leaving the hospital. While individual patients’ functional goals vary, Shepherd Center’s ultimate goal is to return patients to their communities to live as independently as possible. This photo essay chronicles a week near the end of Molly’s inpatient rehab – an important point in her journey toward restoring her hope for the future. fa l l 2 0 0 8 5 “The people here are just so dedicated… giving so much of themselves. It shows in all the patients that come here, and that’s why Shepherd has such as awesome reputation.” — Mary Welch, mother of ABI patient Molly Welch < physical Therapy As Molly Welch uses a walker to make her way down a quiet hallway at Shepherd Center, Mary Welch encourages her daughter: “You are doing great. You’re walking. You go, girl.” Molly looks straight ahead and responds to her physical therapist’s instructions with determination as she allows a slight grin at her mother’s praise. Everyone, including Molly, is hopeful today by Molly’s progress in learning to walk again. Physical therapist Rim Hendi and physical therapy assistant Guy Cooper are amazed at the progress Molly has made in just one week. Later in the session, after physical therapy on a mat, recreational therapist Lora Harvey, who assisted physical therapist Amee Reiss, says: “We’re working to get Molly out of her chair more to help her get her balance. She was unable to respond to us on her first day. Now, there’s a huge difference. She follows commands, participates in therapy and works very hard. She has a great personality and is doing so well.” Molly says she is working very hard in therapy because she really wants to go home soon. In fact, she is counting the days until her discharge. peech Therapy > S Initially, Molly and speech therapist Emma Quinn established a “yes/no” communication system, allowing Molly to show her therapy team she understood what was going on around her. Soon, she began speaking, and a whole new side of Molly emerged. She participated in tests to evaluate her memory, organization and reasoning skills. Molly struggled with sequencing and remembering daily events, as well as analyzing problems with good judgment. Here, she works on improved vocal quality, meanwhile improving: her memory; insight into her strengths and weaknesses; and ability to simultaneously attend to different concepts. 6 S p i na l c o l u mn www. sh e p h e r d . o r g < occupational Therapy In occupational therapy with therapist Ruth Ann DeFazio, Molly learns how to do various daily activities, such as dressing and feeding herself. On this day, Ruth Ann, left, and occupational therapist intern Amy Studin Glade work with Molly on trunk stabilization while she sits on the edge of a mat and practices taking her socks off and putting them back on. The therapists also assess Molly’s upper-extremity range of motion, check her wrist range of motion and test her vision using an eye chart. “Molly is making significant functional progress,” Ruth Ann says. “She is motivated, cooperative and eager to do whatever she can to increase her independence.” “The last month has been totally awesome. It’s been very inspiring because Molly came from being home in a minimally conscious state to interacting verbally and feeding herself with her left hand. She’s walking with assistance. It’s just miraculous. There’s nothing I can say to explain how a parent feels when all these things come to fruition. It’s something you don’t anticipate, and when it happens, you’re just so elated. Every little bit of progress she makes… is very, very affirming.” — Mary Welch, mother of ABI patient Molly Welch fa l l 2 0 0 8 7 — Mary Welch, mother of ABI patient Molly Welch < “I have a lot of faith – faith in God and faith in the people here at Shepherd Center. I trust that they are doing their best for my daughter, and that’s a big relief as a parent.” Art Therapy Recreational therapist Ashley Haynes leads art therapy sessions with Molly and other patients. On this day, Molly paints and decorates a picture frame. During the session, Molly focuses on fine-motor and eye/hand coordination, attention and visual perceptual skills, as well as having fun. Molly makes her own decisions when designing her frame, giving her a form of independence and a chance to be creative. < Molly's nurse Molly and her family built a close relationship with ABI Unit nurse Monica Parra during Molly’s inpatient stay at Shepherd Center. One common bond Monica shared with John and Mary Welch was parenting special needs children. Molly’s older sister has severe cerebral palsy. Monica explains her approach to nursing for Molly and all her patients. “I have two special needs children, and I look at my patients as if they were my own children,” Monica says. “I do my best in caring for them.” She felt especially close to Molly and her family because of their common experience, she adds. The support of Molly’s family not only encouraged Monica as a nurse, she says, but also played a significant role in Molly’s emergence from a minimally conscious state and her subsequent progress in rehabilitation. John adds: “Monica looks beyond Molly’s medical needs and tunes in to who she is as a person and what her needs are. So she’s very insightful. Molly can express what she’s looking for, and Monica picks up on it.” 8 S p i na l c o l u mn www. sh e p h e r d . o r g Molly's family support > Throughout her experience, Molly has had incredible support from her family – parents John and Mary Welch, as well as a brother and two sisters. “Molly is just such a fighter,” Mary says of her daughter’s determination to get better. “We knew already that she was, but we weren’t really anticipating this kind of spirit. And I know that it has to be a lot of Shepherd’s influence on how she feels about herself because she’s really honest with us. She’ll say, ‘I’m sad. I’m sad that I’m different. I’m sad that I’m in a wheelchair. But the people that deal with her on a daily basis are able to take that and acknowledge that it’s a real feeling, but then ask her, ‘OK, now what are you going to do with that kind of energy?’ And, her dad and brother and sisters and I try to encourage her to do her best, to keep working hard and not give up. Her spirit is so strong about trying to be the best she can be that she just oozes a spirit of confidence. We’re just so grateful. She’s our new hero.” Molly expresses appreciation for her family’s love and attentiveness during her rehabilitation. “They are here every morning and every evening,” she says. A week before Molly’s discharge from Shepherd Center, Mary anticipates that Molly will “blossom” even more during her outpatient therapy at Shepherd Pathways. She is eager to get her home to be with family and friends, while also connecting with a new community of people at Pathways. “Shepherd does a wonderful job of transferring people from one setting to another so that when we get to Pathways, we will have already toured the facility, met the staff, and we will feel comfortable about it before Molly gets into the program. Once she gets there, I know she’s going to do great.” “Shepherd is really committed to treating the whole person, and that has freed us up from having to worry because they make sure Molly has what she needs physically, mentally, emotionally – all the therapies that are critical to her healing. There aren’t any gaps, so we can sit back and spend time with Molly and watch the miracles happen.” — John Welch, father of ABI patient Molly Welch fa l l 2 0 0 8 9 “This experience has made me a whole lot more appreciative of life, of Molly’s life, of our family as a unit, and it also makes me extremely empathetic about other families that go through this experience.” — Mary Welch, mother of ABI patient Molly Welch music Therapy > Music therapist Thomas Miller introduces Molly and other patients to a variety of music styles – blues, rock and pop. To begin the session, Molly plays an electronic drum set and sings the chorus to “Ride Sally Ride.” Then Thomas instructs Molly in playing a different drum rhythm for “Don’t Stop Believin’.” Next, Molly and her fellow patients do some wheelchair dancing; Thomas asks the patients to show him some moves. Then Thomas instructs his students in conducting an André Bocelli piece. All of this activity is therapeutic – physically and mentally for the patients. < Molly's physician “The staff and Molly’s physician, Dr. (Darryl) Kaelin, who I can’t say enough good things about, are very realistic about Molly’s prognosis,” says Molly’s mother, Mary Welch. “This situation is a perfect example of when you bring together a determined patient, a supportive, loving family, and a knowledgeable medical, nursing and therapy staff,” says Dr. Kaelin, medical director of the ABI Program. “Together, you can do great things. Despite a severe brain injury, Molly has proven that miracles happen at Shepherd every day, although sometimes at God’s pace, not ours. Molly will continue to improve over the next several months.” 1 0 S p i na l c o l u mn www. sh e p h e r d . o r g < Recreational Therapy Toward the end of Molly’s inpatient rehab, she and recreational therapist Ashley Haynes go on an outing to a nearby store. The excursion gives Molly an opportunity to work on wheelchair mobility on unlevel surfaces, overall endurance, safety awareness, sequencing, following directions, memory and problem solving. Molly struggles with organizing her thoughts and remaining on task, so she follows a shopping list that Ashley provides. “The more we complete tasks in the community, the more comfortable Molly becomes,” Ashley says. “On her first group outing, she experienced a bit of stigma. Now, she is more focused on the task and not her disability.” < To learn more To find out more about Molly Welch’s brain injury rehabilitation experience at Shepherd Center, go to www.shepherd.org/welch to view a slide show and video clips. following up < Spinal Column featured “Seven Days” in the life of spinal cord injured patient Ed Leatherman in the summer 2008 edition. If you missed it, the magazine is available in PDF format at the Shepherd Center web site at www.shepherd.org/publications. Additional video clips and a slide show are available at www.shepherd.org/leatherman. At the right, Ed Leatherman receives medication from nurse Erica Garofalo, a member of Shepherd Center’s team of dedicated nurses. Erica and other nurses play an important role in Ed’s rehabilitation program. In addition to the routine duties of looking after the health of patients, Shepherd nurses go above and beyond every day to assist spinal cord injured patients. For instance, Erica accompanied Ed on a fishing and hunting trip outside the Center in case any medical emergencies arose during the outing. fa l l 2 0 0 8 1 1 gaining Strength [ [ Wife of a soldier and mother returns to a healthy lifestyle and new hopes for the future after sustaining a spinal cord injury in a violent attack by burglars. By John Christensen, Photos by Kristen Bartlett Grace When Dawn Weiss was preparing to leave Shepherd Center in the summer of 2007, she insisted on being fitted for a power wheelchair. Although she had once been, in her own words, “a huge workout freak,” Dawn doubted she would ever have the strength to propel a manual chair. But in the year since she left Shepherd, she has used the chair exactly once. “I use my manual chair all the time,” she says. “I do laps around the neighborhood, and I’m gaining strength all the time.” Indeed, the only time the power chair gets used is when the family goes for a ride around the neighborhood. Daughters Kayla, 10, and Destyni, 7, ride their bikes. Dawn takes either her manual chair or her scooter, and husband Mike, who doesn’t have a bike, uses the power chair. This snapshot of classic Americana – with an Americans with Disabilities Act twist – speaks volumes about the progress Dawn and her family have made since she was injured. And it hasn’t just been physical. Until the spring of 2007, Dawn, 31, was the wife of a career soldier whose deployments during their 12 years of marriage had taken him to 1 2 S p i na l c o l u mn places like Alaska and Spain. Mike, 33, was stationed at Fort Eustis in Newport News, Va., but was with his transportation unit in Kuwait. Dawn, meanwhile, was training for a triathlon and studying to be a radiology technician, as well as caring for the children. She was fit, lean and proud, and as a symbol of her independence drove her Mustang convertible with the top down. But when she and the children went to check on a house they were watching for a friend in May, they had a terrifying encounter with four young burglars. Dawn was shot several times, breaking both arms, fracturing two vertebrae in her neck and leaving her paralyzed from the chest down. After being treated in Norfolk, Va., she was admitted to Shepherd Center for three months of rehabilitation, and her spirits lifted immediately. “The first night, I called my mom,” she recalls. “I was so happy and overwhelmed by the staff. Not that they weren’t nice where I’d been before, but I was overjoyed to be at Shepherd.” www. sh e p h e r d . o r g Former Shepherd Center spinal cord injury patient Dawn Weiss focuses on strength training in the gym built by her father, a building contractor, in her family’s home in Ocala, Fla. Dawn spends two or three hours a day there, building her strength, often with her husband’s assistance and encouragement. fa l l 2 0 0 8 1 3 “My mind was set on working as hard as I could to be as indepenAt Shepherd, she could swim only two laps. Now, she says: “I dent as I could. And the staff was so awesome. They were always there swim 30 or 45 minutes. I don’t even count the laps any more.” to answer questions and talk to me when I was down or had flashEach week, she sets a new task and stays with it until she acbacks or things I was dealing with. The nurses were just there to talk complishes it. She can now dress herself and cook. She can brush with me. Little things like that make you feel so important.” her teeth and open a bottle of water, something that defied her for But Mike, who received a “compassionate reassignment” to Fort weeks. She can also straighten and brush her hair, an accomplishMcPherson in Atlanta, arrived in a state of shock. ment of which she is especially proud. “It all goes back to ignorance,” Mike says. “If you don’t know a lot “When I left Shepherd, a therapist worked with me on straightabout something, looking at it from the outside in, it seems hopeening my hair,” Dawn says. “But I would get so frustrated because less. You see people’s despair, and it was amazing how well Shepherd I couldn’t squeeze the straightener. I didn’t have the strength in my Center teaches the family how to cope with it and teaches patients to hands, and I started to feel like ‘Why try?’ live new lives.” “But when we got home, While Dawn underwent I started working on it, physical, occupational and and now I’m able to do it. recreational therapy, Mike I guess anybody else would learned to coach and assist her, think nothing of it, but it and the experience changed was a huge thing for me. him so profoundly he wants I was like a kid in a candy to become a physical therapist store. Little things like that when he leaves the Army. even my girls wouldn’t have “A whole new world opened noticed before. But now up,” he says. “The whole thing they smile and they’re so was a learning experience. happy, and they want to tell I learned so many things I others that Mommy can didn’t know – how a person straighten her hair now. can go from being straight“I’ve always told them up paralyzed to start gaining what my father taught me: strength and getting feeling If you put your mind to back. It was phenomenal.” it and work really hard at Treatment completed, they doing something, it’s OK went to Ocala, Fla., to stay if you don’t succeed. But if with Dawn’s parents. Dawn’s you failed and you didn’t father, a building contracput 100 percent into it, tor, built a gym in the garage that’s not OK.” that included a weight bench, These little victories are of weights, an exercise bicycle more than passing imporand a machine that enables tance because she may soon her to stand up, like the ones be on her own again. Mike’s at Shepherd. unit is on active duty at She spends two or three Ft. Eustis, and he could be — Mike Weiss, husband of patient Dawn Weiss hours a day in the gym. “I do redeployed at any time. different exercises and stretch“If he’s sent to Iraq, we ing and pushups – girlie pushups – and I’ve gotten so much stronger,” may stay here or get our own house near my family in case I need she says. “At Shepherd, I was barely able to do two girlie pushups. anything,” Dawn says. “But if he’s just going for a few weeks, we’ll Now I’m up to 81 without stopping.” probably go back to Virginia. I’ll have the girls to help me, but I “She’s come a long way,” Mike says. “She’s up to 60 pounds on the hope to have everything to where I can take care of myself. I can do bench press, and she was doing 90 before she was shot. And she’s domy own catheters now, so I'm over halfway there.” ing 20 pounds on the (dumbbell) flys. The other night, she lay on her Still on her to-do list earlier this year were learning to get in and belly and pushed over to her side. I had to place pillows around her so out of the bathtub, getting into bed, putting her wheelchair in her car she wouldn’t get pressure sores, but before she couldn’t do anything.” and putting gas in the car. She also hopes to build up her strength so She also has overcome her fear of swimming without flotation she can use leg braces. devices or Mike supporting her, and Dawn swims two or three times a Their situation was eased considerably by an unexpected event this week to maintain good cardiovascular fitness and strength. past spring. Thanks to a letter Mike sent to the “Live with Regis and “… it was amazing how well Shepherd Center teaches the family how to cope… and teaches patients to live new lives.” 1 4 S p i na l c o l u mn www. sh e p h e r d . o r g Previous Page: Dawn Weiss has returned to driving her Mustang convertible, which is now outfitted with hand controls. Above: Dawn Weiss and her family enjoy riding around their neighborhood on bikes and scooters. Dawn, who was injured in spring 2007, is strong enough now to push herself in a manual wheelchair. Kelly” TV show, Dawn was one of four women featured on the program on the Friday before Mother's Day. The whole family was flown to New York and told they were going to be given a week-long cruise, but were shocked when they were also handed a check for $100,000. “It was a complete surprise,” says Dawn, who sat in stunned silence while the audience applauded. They’ve spent some of the money on a modified van and tuition for Dawn’s schooling, and are saving the rest toward building a home. “Kelly told me during a commercial break that I should write a book about my experiences,” Dawn says. “So I’m going to see if I can find a publisher.” Dawn and Mike have discovered that the experiences of the past year and a half have reawakened them to the importance of family. “My priorities have really changed,” Dawn says. “I’m still strongheaded and strong-willed, but I’m not as fast-paced as I was. I was going to school and the gym a lot and didn’t spend as much time with the kids as I should have. Now I choose to be slower-paced and do more activities with the family.” And when her spirits have flagged, Mike has been there to pick her up. In some cases, literally. He braces her at awkward moments when she is learning a new skill, and when they went to Disney World, he picked her up and put her on rides that weren’t wheelchair accessible. When she thought she’d never be able to go to the beach again, Mike took her to Daytona Beach. “Going to work or school, getting the kids ready for bed, getting ready for the next day’s work,” Mike says, “you don’t realize how much of a gap there is in your life in the normal, daily routine until something like this happens. “I realized I wasn’t spending a lot of time with my family, and it made me feel so left out. It sucks to have to learn it this way, but you take what you have to learn and grow. We’re so much closer than we ever were. There’s such a bond between us…. I can’t believe I didn't see this sooner. “We’ll see how it changes when I’m back on normal duty, but I’m not going to put work first any more. Being at Shepherd Center gave us a whole new vision of how life was going to be. Life gave us lemons, and we’re making sweet lemonade.” fa l l 2 0 0 8 1 5 es se De an H by Ph oto Me ek Ga ry by oto Ph Left: Rafael Ibarra of Atlanta is a member of Shepherd Center’s handcycling and wheelchair racing teams. He won gold and bronze medals in wheelchair racing in the 1988 Paralympics in Seoul. Above: Shepherd Center’s quad rugby team, the Shepherd Smash, is one of 12 sports teams the hospital sponsors for people with physical disabilities. Sports For EVERYONE Shepherd Center sponsors 12 sports teams for people with physical disabilities. Matt Edens, sports teams coordinator at Shepherd Center, doesn’t have to look at a list. In one breath, he can reel off all 12 sports teams Shepherd sponsors for people with physical disabilities – probably alphabetically, if that’s what you want. “Quad rugby, wheelchair racing, swimming, men’s and women’s basketball, power soccer, water skiing, fencing, softball, riflery, bass fishing and hand cycling,” he recites. “That’s 12, right?” Twelve it is. If you can think of a sport that Shepherd doesn’t offer, that its patients might want, Matt sets out to make it happen. In fact, Shepherd Center has the largest sports program for people with physical disabilities in North America. “This past year, we started a women’s basketball team and softball,” Matt notes. “Shepherd continues to be a leader in providing disabled sports, especially newly formed or recognized ones.” Providing a sports outlet for Shepherd patients serves multiple purposes. For some, it helps them set long-term goals. For just about everyone, the training required for any sport aids in their rehabilitation and wellness. 1 6 S p i na l c o l u mn by Bill Sanders “What we do with our athletes ranges from those with a love of sports and want to lead a healthy and active lifestyle to those who want to make it to the Paralympics to everything in between,” Matt explains. Membership on a Shepherd sports team is open to athletes with any type of a physical disability, as long as the disability falls within the guidelines of the sport. Athletes compete in local, regional, national and international competitions. Regular practice sessions offer expert instruction, as well as camaraderie and peer support. More than 100 athletes participate in Shepherd’s team practices. These athletes have won national and international competitions, with several athletes holding world records. In addition, more than 20 athletes from Shepherd teams have qualified to represent the United States in their sports during the past several Paralympic Games, and several have won medals. Five athletes – fencers Mark Calhoun, Benjy Williams and Nate Klein, swimmers Alice Lue and Paralympic gold-medalist Curtis Lovejoy, and assistant quad rugby coach Marty Fierson – competed at the games in Beijing in September. (See sidebar article.) www. sh e p h e r d . o r g Shepherd Center Athletes Compete in 2008 Paralympics For Curtis, now 51, the Paralympics was another chance to compete at the international level. In 2006, he won the men’s foil, C category, at the World Wheelchair Fencing Championships in Torino, Italy. Then two months later, he captured a gold medal (150-meter individual medley) and two bronze medals (50-meter and 100-meter freestyle) at the IPC Swimming World Championships in Durban, South Africa. Those medals, however, are only a small part of Curtis’ collection. By 2006, he held 11 world records, 14 American records and 14 Pan-American records in swimming. In that year alone, he won 18 gold, four silver and six bronze medals in swimming, setting one new world record (a 4:21 time in the 150-meter individual medley). Though he did not medal in Beijing, Curtis, who now has 12 world records, loved the experience and vowed to compete again in the World Championships in 2010 and 2012. “Not only is Curtis a tremendous swimmer, he is a role model for our patients,” Matt says. “He has a great attitude and offers peer support on a regular basis. His work ethic is not matched by anyone. Every day he is in the pool or in the ProMotion gym for hours. “Shepherd Center and I are proud that Shepherd athletes represented our country in the Paralympics,” Matt adds. “All five have dedicated themselves to this goal and were ready to face the challenges of the 2008 Paralympics.” — Bill Sanders ek Me ry Ga by oto Ph ek Me ry Ga by Another record-setting Shepherd athlete is wheelchair racer and handcyclist Rafael Ibarra of Atlanta. He represented the United States in wheelchair racing at the Paralympics in Seoul in 1988, where he won a gold medal in the 800-meter competition and bronze medals in both the 4 X 100-meter relay and the marathon. “The sports programs at Shepherd help me maintain my overall fitness level, which translates to feeling better, performing at my peak on my job and, most importantly, keeping up with my very active 10-year-old son, Evan,” Rafael says. “The sports teams give me an outlet and an opportunity to travel and compete in both wheelchair racing and handbiking competitions. I would say that the Shepherd sports program is an integral part of my life.” For some Shepherd athletes, staying physically active doesn’t involve competition. Sports can just help people return to the things they love to do, Matt adds. Right: Shepherd Center athlete and Paralympic For more information about becoming gold medalist Curtis Lovejoy an athlete, or to sponsor the sports team of Atlanta practices in the program, call Matt at 404-367-1287 or hospital’s pool in July. He was focused on earning his 13th email him at [email protected]. Right: Benjy Williams, left, of Bethlehem, Ga., and Mark Calhoun, of Bremen, Ga., pause during a summertime fencing team practice at Shepherd Center. Both competed in their first Paralympic Games in September. Ph oto Shepherd Center had five more reasons to be proud this September as four athletes and one coach from its sports teams competed in the 2008 Paralympics Games in Beijing, China. Benjy Williams, of Bethlehem, Ga., and Mark Calhoun, of Bremen, Ga., competed in fencing events while world-record holder and gold medalist Curtis Lovejoy of Atlanta competed in swimming along with Alice Luo of Marietta, Ga. Meanwhile, Shepherd’s assistant quad rugby coach Marty Fierson of Eagle Sports Chairs served as an assistant coach for the USA quad rugby team, which won a gold medal in Beijing. For complete results, see http://en.paralympic.beijing2008.cn/. Neither Benjy nor Mark had competed before at this level, though both have been training and competing worldwide this year.“I expect it to be very tough because the international fencers practice very hard, and they are good,” Benjy said before the Paralympics. Mark has been fencing for several years under Shepherd’s current fencing coach, Julio Diaz. “Benjy learned fencing a few years back at Shepherd’s All Sports Camp,” says Shepherd sports teams coordinator Matt Edens. “He was introduced to it, joined the team and just a short time later was a Paralympian. It takes hard work and determination. All of these athletes competed throughout the year and were chosen for their respective teams.” world record in swimming in the Paralympic Games in Beijing in September 2008 fa l l 2 0 0 8 1 7 Shepherd Pain Institute delivers successful results with a holistic approach to the treatment of pain. Photo by Gary Meek By John Christensen from Painful to Pleasant When Judy Martin of Atlanta made her first visit to the Dean Stroud Pain Institute at Shepherd Center, she was no stranger to pain. The 70-year-old housewife had lived with chronic pain for six years following a surgery to fuse three spinal vertebrae. The debilitating pain she experienced limited her ability to perform ordinary daily tasks and prevented her from participating in many of the activities she enjoys. 1 8 S p i na l c o l u mn “I was on pain medication all the time,” Judy says. “It wasn’t just that it hurt at night; if I sat for a long time, it hurt…. “I couldn’t even bend over to put on shoes,” she adds. “The quality of my life went downhill fast. I was an avid tennis player, and when the doctor said I had to quit playing, I was beside myself.” Before visiting the Shepherd Pain Institute (SPI), Judy had tried a variety of treatments and therapies. But none delivered the results she needed, which led her to seek treatment with Dr. Bert Blackwell, the medical director at SPI. Using the latest imaging technology, Dr. Blackwell identified the source of Judy’s pain and diagnosed facet joint syndrome. It is an arthritic condition that leads to the deterioration of the facet joints, which stabilize the spine and limit excessive motion. Facet joint syndrome occurs when the joints become stressed and damaged, which can occur from everyday wear and tear, injury or degeneration of intervertebral discs. As the condition progresses, the joints become swollen and stiff, resulting in pain in different areas of the body, depending on which joints are affected. Judy’s treatment began with a facet joint block injection. The fluoroscope-guided procedure delivers a combination of numbing anesthetic and anti-inflammatory steroid medication directly to the joint through a thin needle. Following the successful block, Judy experienced immediate relief. www. sh e p h e r d . o r g “We learned to look at the whole person. The buzzword now is ‘multidisciplinary.’ If you’re not looking at the whole person, the results are not as good, and research shows that.” — Dr. Bert Blackwell “Dr. Blackwell is absolutely one of my favorites because he’s not one who starts you with a shot,” Maxine explains. “I like that he tried acupuncture and looks at different ways to treat you. He’s open to other possibilities.” Dr. Blackwell explains: “That was part of our fellowship training. We learned to look at the whole person. The buzzword now is ‘multidisciplinary.’ If you’re not looking at the whole person, the results are not as good, and research shows that.” That is why medical massage and yoga are also found in what Dr. Blackwell calls “our toolbox.” Maxine says of her yoga therapy: “It is one of the best things I’ve ever gotten into. I go to classes three times a week and do some at home, too. “I’m really at a good place,” she says. “I still have a little pain, but overall my life is so good. And I’m so glad we have the knowledge and treatments that we have now instead of 100 years ago.” For more information, see www.shepherdpaininstitute.org. Photo by Leita Cowart “I felt pretty darn good right away," Judy says. “I was so pleased, I could have skipped out of there.” Dr. Blackwell and Dr. Erik Shaw at the Pain Institute treat more than a dozen kinds of pain, including arthritis, back and neck pain, spinal stenosis, myofascial pain syndrome, sciatica and cancer-related pain. Clinical psychologist Urszula Klich, Ph.D., and physical therapist Chris Nesbitt are also part of the treatment team. “One of the things I really like about pain medicine,” Dr. Blackwell says, “is that we can help cancer patients. Most people think that because they’ve got cancer, it’s supposed to hurt, but that’s not true.” Treatment at the Institute begins with diagnosis and moves to intervention and rehabilitation. Treatments range from epidural injections, nerve blocks and trigger-point injections to radiofrequency treatments and implantation of spinal cord stimulators or intrathecal pumps. “Many things we see are not curable, but they are treatable,” Dr. Blackwell says. “We start with the least invasive treatment possible and move forward with a treatment plan specifically designed for each individual.” Treating pain involves what Dr. Blackwell calls “the art of medicine.” What may appear to be a pinched nerve, for example, may not respond to a nerve block or local anesthetic. So then he explores other options for treatment. The staff at Shepherd Pain Institute uses a team approach, which includes doctors, nurses, physical therapists and the patient. Also part of the team are a psychologist, who treats the psychological coping aspects of chronic pain, and a case manager, who guides patients through the treatment process to ensure that each patient receives the best possible care. In Judy Martin’s case, Dr. Blackwell referred her to the clinic’s physical therapist, Chris Nesbitt, who created an at-home exercise regimen designed for Judy’s long-term improvement. “I enjoyed working with Chris tremendously,” Judy says. “He was very knowledgeable and so friendly, and I saw how he treated others, too. I’m so glad I went there.” So is Maxine Parrish, 70, an Atlanta artist and gardener who has degenerative disc disease, a weakening of the vertebral discs that act as cushions between the vertebrae. “I was having a good bit of pain working in the garden, and I couldn’t hold a brush to paint,” Maxine says. Maxine was treated with an injection that offers pain relief for six to nine months. Her treatment plan, which also included acupuncture, did not end there, though. She has participated in therapeutic yoga for more than a year. Previous Page: Shepherd Pain Institute medical director Dr. Bert Blackwell discusses pain treatment procedures with patient Judy Martin of Atlanta. Above: Drs. Bert Blackwell, left, and Erik Shaw diagnose and treat more than a dozen kinds of pain in the Shepherd Pain Institute. fa l l 2 0 0 8 1 9 fifty& GROWING NeuroRecovery Network at Shepherd Center celebrates success. By Cathy Holleman After a bad fall from a stunt she was doing before gymnastics practice left Clara Brown mostly paralyzed below her shoulders, the spunky 12-year-old from Falmouth, Maine, always believed she would walk again one day. What surprised her was how quickly her belief would turn into reality: Within two months of her accident, she was starting to walk and run on her own. Clara believes the therapy she received as a participant in the NeuroRecovery Network (NRN) at Shepherd Center made the difference in her rapid recovery. “Shortly after starting the NRN program, I noticed a big improvement in my balance, and I regained more movement in my legs,” Clara recalls. “I knew I would walk again when I started my treatment at Shepherd, but I didn’t realize I’d make this much progress in such a short amount of time.” After going home for a few weeks to finish seventh grade, Clara returned to Shepherd for more NRN therapy to improve her gait pattern and stamina enough so she might be able to compete in cross country running and track at her middle school. It’s a big goal, but she thinks she will achieve it and is grateful to the NRN program and staff for helping her. Clara is one of a growing number of people who have achieved successful results through the NRN, which, among other things, provides a special 2 0 S p i na l c o l u mn outpatient locomotor training program for people with spinal cord injuries. Shepherd joined the NRN in January 2006, and the program has been on a steady increase ever since. In May 2008, the Center celebrated the enrollment of its 50th NRN participant, and it continues to treat a full schedule of seven individuals every weekday. “We’ve seen very positive results with nearly every person we’ve worked with,” says Sarah Morrison, a physical therapist and program director for Shepherd’s Spinal Cord Injury Program. “NRN participants are progressing more quickly in their recoveries, and more of them are relearning to walk on their own or with fewer assistive devices.” The NRN is a partnership of the Christopher and Dana Reeve Foundation, the Centers for Disease Control and Prevention, and seven of the nation’s leading rehabilitation centers, including Shepherd Center. The network is using locomotor training to help people with motor-incomplete spinal cord injuries regain functional recovery and improve their overall health. Locomotor training involves repetitive stepping exercises with body-weight support on a moving treadmill. Most people undergo an average of 40 NRN therapy sessions. “Outcome scores for many NRN participants show substantial improvements in balance and walking,” says Leslie VanHiel, clinical supervisor of locomotor training at Shepherd. “This training also provides a vigorous cardiovascular workout that increases strength, stamina and physical condition. Even when walking skills aren’t regained, participants often are better able to perform daily tasks such as sitting with better balance and getting in and out of bed.” Charlene Caswell of Harriman, Tenn., believes the NRN program played a key role in her successful recovery following a C6 spinal cord injury in early 2006. When she arrived at Shepherd, Charlene was unable to move below her shoulders, and her blood pressure was high. Following inpatient treatment, she completed a rigorous regimen of outpatient therapy and NRN locomotor training. “This therapy improved my stamina, lowered my blood pressure and restarted movement in my arms and legs,” Charlene explains. “Locomotor training was great because it felt normal to be up and moving again, and it made me want to work hard to get better.” By the time she left the program, Charlene no longer needed a wheelchair. Today she walks without assistance most of the time and only uses a cane in unfamiliar places. “People have achieved tremendous results through the NRN,” Sarah says. “We’re very pleased with the growth and development of this program, which is advancing the field of spinal cord injury rehabilitation.” For more information, see www.shepherd.org/NRN. Above: Within two months of her accident, Clara Brown, 12, of Falmouth, Maine, was starting to walk and run on her own. She and her family believe the therapy she received as a participant in the NeuroRecovery Network (NRN) at Shepherd Center made the difference in her rapid recovery. www. sh e p h e r d . o r g { Q&A { ask the Doc Shepherd Center physicians answer medical questions from patients and family members. Q: W hat is the difference between a complete and an incomplete spinal cord injury? Q: W hat are some of the newer medications available to treat multiple sclerosis? A: T o understand the difference between a complete and an incomplete spinal cord injury, we need to use the impairment scale of the American Spinal Injury Association (ASIA), an organization to which many Shepherd clinicians belong. ASIA A = complete. No sensory or motor function is preserved in the sacral segments (S4-S5, the lowest nerve segments). ASIA B = incomplete. Sensory, but not motor function is preserved below the neurological level and includes the sacral segments. ASIA C = incomplete. Motor function is preserved below the neurological level, and more than half of the key muscles below the neurological level have a muscle grade of 0, 1 or 2. ASIA D = incomplete. Motor function is preserved below the neurological level, and at least half of the key muscles below the neurological level have a muscle grade of 3, 4 or 5. ASIA E = normal. Sensory and motor functions are normal. — Dr. Donald Peck Leslie A: T he past 15 years have seen significant advances in our ability to slow the progression of MS. There are several currently approved therapies, including Avonex, Betaseron, rebif, Copaxone, Novantrone and Tysabri. While these drugs are effective for many, potentially better options are on the horizon. Several different oral medications are in testing. Cladribine, FTY 720, Fingolimod, BG00012, and laquinamod all offer the possibility that people with MS may not have to use injectable medications in the future. Some of our IV therapies in research would offer significant convenience as well. Rituximab, ocrelizumab and alemtuzumab are given at most twice a year by IV infusion. Finally, several vaccines are in testing. These therapies actually use natural immune responses to tone down the immune attack seen with MS. — Dr. Ben Thrower Q: W hat is the recovery timeframe after an acquired brain injury? A: T raumatic brain injury can be classified as mild, moderate or severe. Individuals with milder forms of brain injury generally recover from most of their symptoms within one month and usually all of their symptoms within three months. Those with persistent symptoms would be classified as having more complex forms of traumatic brain injury. As a rule, moderate and severe traumatic brain injuries heal in three phases. Physical recovery, including strength and balance, show most of their recovery in the first three to six months. The majority of cognitive (thinking) recovery happens in six to nine months, but some improvements may be seen for up to 18 months. Language deficits are the slowest to improve. Communication skills may continue to improve for 12 to 18 months after brain injury. Of course, these are general guidelines. Every individual shows recovery at his or her own rate. — Dr. Darryl Kaelin Submit your questions for “Ask-the-Doc” to Spinal Column editor Jane Sanders at [email protected] or via fax at 404-350-3145. contributors Dr. Darryl Kaelin, medical director of the Acquired Brain Injury Program at Shepherd Center Dr. Donald Peck Leslie, medical director of Shepherd Center Dr. Ben Thrower, medical director of the Andrew C. Carlos Multiple Sclerosis Institute at Shepherd Center fa l l 2 0 0 8 2 1 {{ { By Bill Sanders Quad writes and performs music as he draws upon a blossoming romance. ons him. The girlfriend beside him encourages him. And the hope that his best days are ahead of him inspires him. Greg’s tale of injury, rehabilitation and then getting on with life isn’t textbook. The 44-year-old Marietta, Ga., resident injured his spinal cord at the C4 level in 1991 when he fell off his deck and hit his head on an air conditioning unit. For 15 years before the injury, Greg had been working the Atlanta area as a professional guitarist. He spent five months at Shepherd Center rehabilitating from his injury and learning about life in a wheelchair. But to say he left Shepherd and picked up where he left off on his career in music would be untrue. “The people at Shepherd were great and got me through it,” Greg says. “But I didn’t learn a thing musically for five years (after being injured). I met a group of guys with the band Van Gough and I started learning how to program music my way. I sing into a computer and I’ve learned to play the harmonica. Now, we go and play at an ‘open mic’ night at a place called Brewster’s three Tuesdays out of four.” “Make that four out of four,” says Greg’s girlfriend and caretaker, Tracey Holt. “OK, usually four out of four,” Greg admits. With a thin, straw-like rod, Greg strokes the keys on his computer keyboard, programming sounds and writing songs. And with a C-clamp holder attached to a tray on his wheelchair, he plays the harmonica. “I used to wear it around my neck, but I could only do that for so long,” Greg explains. “Now I can play it without getting tired.” Greg’s musical style is somewhat bluesy, somewhat southern rock. He writes gospel music and, sometimes, pure folk. He cites the Blues Travelers, Mick Jagger and Robert Plant as some of his favorite musicians – all accomplished harmonica players. Greg recorded four CDs – the last one five years ago. That kind of long layoff hasn’t been good for him, he says, and he plans to remedy it soon, especially since he has more to sing about now than he has in a while. Greg and Tracey had been friends when they were younger. But she left Georgia in 1987, and the two lost touch. Mutual friends helped them reconnect in 2007 – after more than 20 years. “We’re in a loving relationship now,” Greg says. “I love him more than anything,” Tracey quickly adds. 2 2 S p i na l c o l u mn That love has helped him recover from an 18-month-long battle to heal from a pressure sore. Tracey, now Greg’s vigilant caregiver, keeps a watchful eye to prevent a recurrence. She encourages him to stay actively engaged with songwriting and performing. “Learning to create music again is more fulfilling than I could have ever imagined,” Greg says. “Losing my independence and the ability to create what I could do was the hardest part of being injured…. But I have my faith in God, and that has helped me get through this.” He calls the past year his most eventful since being injured – challenging because of the skin problems, but fulfilling because Tracey returned to his life. Tracey gushes when talking about Greg: “He knows so much about music. He knows the words to every song there is – every one of them.” In addition to the blessing of Tracey in his life, Greg notes that he has recovered more movement in his right arm than most C4 quadriplegics. “I can drive my chair with my arm about 50 percent of the time,” Greg says. “And I have better lung capacity than most C4s, and that gives my voice more power. I can go to Brewster’s and sing four or five songs every week. In that way, I’m very blessed.” Photo by Leita Cowart The music studio in the back of Greg Harry’s home beck- Above: Former Shepherd Center spinal cord injury patient Greg Harry of Marietta, Ga., writes songs and plays the harmonica in his music studio at home. His musical style is somewhat bluesy, somewhat southern rock. www. sh e p h e r d . o r g { Research { The Next Frontier { By Sara Baxter For the first time since he was a toddler, 30-year-old Don Pollard of Atlanta has a real chance to breathe on his own. Don is one of eight spinal cord injury or disease patients at Shepherd Center who participated in a clinical study testing the effectiveness of an implanted medical device Dr. Keith Tansey that stimulates breathing in ventilator-dependent people. The device, called a diaphragm pacing stimulation (DPS) system, has “already given me a lot more independence and a lot more confidence,” Don says. Don’s response is the kind of result that Shepherd wants to replicate in its research program for spinal cord injury (SCI) patients. Already, clinical research at Shepherd represents a wellspring of new potential therapies. Indeed, the Center is consistently sought out by outside scientific researchers developing next-generation treatments. Now, Shepherd wants to build on its clinical research activity for SCI patients by being the point of origin for new studies. “In addition to being the place where other researchers’ ideas are carried out, we also want to be the place where important new ideas are created,” says Keith Tansey, M.D., Ph.D., Shepherd’s director of spinal cord injury research. “We’ll take what we’ve learned in animal studies and apply it to humans.” One area of great interest to Dr. Tansey and others at Shepherd is neural plasticity – mechanisms by which the nervous system learns to adapt to new conditions, including injury. “After a nervous system injury, the remaining nerve cells and neuronal circuits have to adapt and adjust how they function with each other to recover abilities that were lost with the injury,” Dr. Tansey explains. “We can use training, medication and electrical stimulation to shape or direct this learning process. We’re retraining, if not yet repairing, the nervous system, which means we’re working to get better functioning out of what remains.” The approach is in keeping with the trend that began at Shepherd several years ago – initially leading the field in care research to now pursuing restorative therapies that could lead to functional recovery. Locomotor training, in which patients are suspended over a treadmill while a therapist or robotic device moves their legs to simulate walking, is one example. In transmitting sensory information to the spinal cord on stepping, joint positions and weight distribution, the locomotor experience can “retrain” the spinal cord and remaining connections within the brain in gait and stepping movements. Photos by Leita Cowart Research in Shepherd Center’s Spinal Cord Injury Program ventures into promising new territory – cure-centered discovery. Above: Don Pollard of Atlanta is one of eight spinal cord injury patients at Shepherd Center who participated in a clinical study testing the effectiveness of an implanted medical device that stimulates breathing in ventilator-dependent people. He’s pictured here with associate medical director Dr. Brock Bowman and researcher Michelle Nemeth. While locomotor training has helped people with incomplete injuries, such retraining isn’t enough for patients with complete injuries. So, Dr. Tansey wants to determine whether direct electrical stimulation or drugs can activate stepping in animal models of complete injury. If so, such therapy could help people with complete injuries recover certain functions. The same could be true for tetraplegics, who have paralysis in both their upper and lower bodies. “If you ask tetraplegic patients what they want most, they will likely tell you that they wish to regain use of their arms and hands,” Dr. Tansey notes. “Neural plasticity may well help accomplish this, but not a lot of study has been done in this area.” Collaboration with other institutions is key to achieving Shepherd’s goals. Dr. Tansey, who joined Shepherd in March 2008 from the University of Texas Southwestern Medical Center, also conducts animal studies at Emory University in Atlanta, and his work there has great significance for his Shepherd-based studies. Projects are also in the works with the Georgia Institute of Technology and the University of Georgia. “With Shepherd’s expanded research focus, we are poised to have a better tie to the basic science research community,” Dr. Tansey adds. fa l l 2 0 0 8 2 3 {{{SHEPHERDALUMS{ By sara baxter Jeremy and Kate Baker Jeremy Baker remembers those first days and weeks after falling 14 feet from a ladder. Paralyzed from the waist down while putting up roof rafters, the 27-year-old Waterford, Maine, resident was taken to Central Maine Medical Center. Jeremy was the youngest patient in the ward by about 30 years, and he began to feel depressed, he recalls. That changed after Jeremy was transferred to Shepherd Center and began meeting other patients. “I had a change of heart, being around people my own age,” he recalls. “I saw I wasn’t the only one in this position. I learned a lot that I don’t think I would’ve learned elsewhere. And when I left Shepherd, I felt a lot more confident.” After eight weeks at Shepherd, Jeremy returned home. And about a month later, on Sept. 1, 2007, he married his girlfriend, Kate, as he had been planning to do. Unable to return to his job as a land surveyor for commercial properties, Jeremy has since focused on adjusting to life in a wheelchair. He learned how to sit ski this past winter and has spent a lot of time riding a snowmobile. And though he’s enjoying learning new activities and adapting old ones, he admits he’s “still trying to figure stuff out.” This fall, Jeremy will start classes at Central Maine Community College, where he thinks he’ll pursue something in the engineering field. He’ll start by taking classes in computer-aided design. “I really like to build things,” Jeremy says. “I think I’d like to be a civil engineer, helping to design and build roads and subdivisions.” 2 4 S p i na l c o l u mn Not many people would choose to spend vacation time doing rehabilitation. But anytime Amy Ewing, of Lloyd Harbor, N.Y., has a break from her studies at Adelphi University, she heads south to Shepherd Center. “It’s good for me both mentally and physically,” Amy says. “I get an emotional boost when I come back to Shepherd. They give me the positive energy I need.” Amy first came to Shepherd in 2005 after sustaining an incomplete C-5 spinal cord injury in a diving accident. She spent several months in Amy Ewing the day program and returns for both regular therapy and the more rigorous Beyond Therapy program. “I use the resources at Shepherd as much as I can,” she says. “There’s always something I can work on.” While her outgoing personality and upbeat attitude have earned her many friends, one companion stands out – her service dog, Rebel. Trained to help with simple tasks such as pushing elevator buttons and turning off lights, Rebel accompanies Amy everywhere. He can even pull the covers up for her. Rebel is also the “big dog on campus” at Adelphi, where Amy is a junior studying political science and environmental studies. Amy commutes to Adelphi from her family’s home, and she hopes to someday play a role in shaping environmental policy. And when she’s not in school or at Shepherd, Amy has two passions: sailing on nearby Long Island Sound and watching the New York Mets with her father. When Vincent Marotta awakened from a six-week coma and saw his girlfriend, Dwan, standing over him, he made a lifechanging decision. He would ask her to marry him. A few weeks later, while recovering at Shepherd Center, he proposed. They’ve now been married for three years. It’s been quite a journey for Vincent, of Signal Mountain, Tenn., since he sustained a brain injury in a car accident in 2003. The wheel and axle flew off an 18-wheeler, crushing Vincent’s car and turning it into what he calls “an instant convertible.” He spent one month in Shepherd as an inpatient and received outpatient therapy for another six months. “I had to learn how to walk again and do everyday things, like eating and dressing myself,” Vincent says. He credits the staff at Shepherd with pushing him to relearn basic activities. While the brain injury prevented Vincent from returning to his job as a branch manager for Enterprise Car Rental, he found something else to do with his time. He dusted off a children’s book manuscript he’d written several years earlier and made it a goal to get it published. Called Vincent and Dwan Marotta “The Rhino Express,” the book tells the story of several wild animals in Africa that pool their individual strengths to solve a problem. He worked for a little more than a year to find a publisher, and he says the book has been a success. www. sh e p h e r d . o r g These days, Vincent is a self-titled “house husband,” keeping up with the cooking and other household chores while wife Dwan works as a nurse. “She’s a great source of support for me,” Vincent says. “I know I made the right decision to marry her.” *Vincent’s book, “The Rhino Express,” is available for $11 online at www.trafford.com or amazon.com. More than a year after a highway accident, Mike Patrick is back in the kitchen. And for that, many people are happy. “I love to cook,” Mike says. “I can cook anything. In fact, I really should’ve Mike Patrick been a chef.” Mike was working as a driver delivering auto parts when a semi-trailer truck collided with his delivery truck in March 2007. The accident left him with a T-9 spinal cord injury, as well as a brain injury, and he spent several weeks in Atlanta’s Grady Memorial Hospital before moving to Shepherd Center. “I’m lucky to be alive,” he says. It was during his months of recovery at Shepherd that Mike made a dish of beef stroganoff for his therapy team. The aroma of the dish, he recalls, “had people running to the kitchen.” He prepared more dishes for Shepherd staff as he continued his rehabilitation. “Shepherd gave me everything I needed to recover,” he says. “With their therapy, plus sheer determination and a positive attitude, I worked hard to get as much strength back as possible.” Mike also credits his two teenage sons, Michael and Ryan, for keeping him going during his rehabilitation. His recovery is progressing well: Though still in a wheelchair, he has been able to walk short distances with the aid of a walker. Today, Mike lives in an apartment near Shepherd, where he continues to work his magic in the kitchen. He’s teaching one of his caregivers, who comes from Jamaica, how to cook southern dishes. And he also prepares meals for Michael and Ryan. “Their favorite dish is ham, biscuits and hash browns,” he says. Roger Ramsey remembers perfectly the moment he first heard about Shepherd Center. It was April 2005, and he and his wife, Charlene Ramsey, had been in a car accident in Tennessee. The couple was returning home to Perrysburg, Ohio, from a trip to Florida. Charlene was airlifted to Erlanger Medical Center in Chattanooga. After Roger received the news that Charlene was a quadriplegic and would be on a ventilator the rest of her life, he asked the doctor what resources were available. That’s when the doctor told him about Shepherd Center. “Shepherd was a ‘house of God,’” Roger says. “We were so blessed to be there. We wouldn’t be where we are today without them.” Charlene was at Shepherd for two months. It was there that Roger learned to care for his wife, and after a bad experience with a caregiver, he has been doing it exclusively for the past three years. “I do everything myself,” he says. “I’m her doctor, nurse and physical therapist.” Always looking out for his wife, Roger also tracks the latest advances in research and treatment for quadriplegics. Charlene and Roger Ramsey Nowadays, Charlene enjoys listening to books on tape and spending time with her two grandchildren. They also travel between homes in Perrysburg, Pine Island, Fla., and Middle Bass Island on Lake Erie. Roger has made sure each home is outfitted with the equipment Charlene needs. “We still do everything we used to do – travel, go out to dinner, socialize with friends,” Roger says. “We just do things in moderation.” Hannah Saucier, of Rutherfordton, N.C., is a typical 13-year-old girl. She loves listening to music, playing on the computer and going to the mall with her friends to buy clothes. She’s outgoing, energetic and a real achiever. And the fact that she’s been in a Hannah Saucier wheelchair for the past year hasn’t slowed her down at all. After a diving accident in June 2007 left her paralyzed from the waist down, Hannah came to Shepherd Center, where she spent four months in inpatient and day program therapy. In November, she returned home and resumed seventh grade at Thomas Jefferson Classical Academy. “I got adjusted quickly and had no problems going back,” Hannah says, adding that supportive friends helped her make the transition (and continue to help her whenever she needs it). In the spring, she was able to join her class on a trip to Washington, D.C. – something she and her family weren’t sure she’d be able to do. Her favorite subject in school is math, and her proficiency in the subject is clear: She’s a grade level ahead of her classmates. Hannah also loves to paint pottery – something she says she does almost once a week – and now has an impressive collection of her own creation of plates and mugs. She keeps active by swimming and playing on the Nintendo Wii, and her favorite games are jet skiing, tennis, bowling, snowboarding and pool. Hannah started eighth grade this fall. While her studies are sure to keep her busy – she’s in a ninth grade math class – she says she’d like to add a new skill to her list: joining the debate team. What’s New? We want to stay current on any personal or professional news in your life. Send us an update and a photo (we’ll return it to you): Jane Sanders, Spinal Column Magazine, 2020 Peachtree Rd., N.W., Atlanta, GA, 30309. You can also e-mail us at [email protected]. fa l l 2 0 0 8 2 5 FOUNDATION Features Volunteer Profile: Ted Harrison Photo by Gary Meek By Julie Washburn Souza The life of successful father and businessman Ted Harrison of Atlanta dramatically changed in 2003 when he suffered a right-side stroke while driving. Ted remembers little about the accident, but was told later that he hit four cars after his stroke and was treated at Northside Hospital before being transferred to Shepherd Center’s Acquired Brain Injury (ABI) Unit for rehabilitation. After leaving Shepherd Center, Ted received outpatient therapy at Shepherd Pathways for several months. He suffered from severe memory and speech problems. During his time at Pathways, Ted had to learn to communicate again and to cope with the effects of his injury. “I was extremely angry for a long time, which I know now is typical with this type of injury,” Ted says. “I was disoriented and didn’t understand what had happened. I came from running a company with 160 employees to being in a place where I didn’t know anybody and being told what to do by people I didn’t know.” Ted still has short-term memory problems and considers his recovery ongoing, but is now living a happy, normal life. Now, years after the accident, he still remembers the difficulty of his initial recovery. Less than two years after his discharge from Pathways, Ted started volunteering at the facility to share his experience and encourage others going through the same ordeal. Ted goes to Pathways two days a week to offer support to many of the recovering patients there. He sits in on some of the patient classes at the facility and visits during lunch to be a friend and mentor and to speak with anyone in need of encouragement. He has made some lasting friends through volunteering and enjoys providing patients and caregivers with additional hope I think it means more through his experience, he says. when it comes from “I tell people that brain injuries take time to heal,” Ted says. “I know they’ve heard it before, someone who’s but I think it means more when it comes from been there and is someone who’s been there and is still recoverstill recovering. ing. It helps me just as much as it helps them. I know I get more out of it than I give to it. I — Ted Harrison need this, too.” Ted also goes to Spring Creek, a Shepherd Center supported living home for ABI patients. He enjoys spending time with the patients there, sharing his experiences and playing card games. Shepherd Center’s new volunteer manager, Jackie Gehner, appreciates all the work Less than two years after his discharge from volunteers like Ted do. Even after patients are discharged from Shepherd Center, it is Shepherd Pathways, former brain injury patient important for them to get support from former patients, she notes. Ted Harrison of Atlanta started volunteering at the “It’s great to have volunteers at Pathways who can provide support during patients’ facility to share his experience and encourage transitions back into the real world,” Jackie says. others going through the same ordeal. 2 6 S p i na l c o l u mn www. sh e p h e r d . o r g Brain Injury Survivors Volunteer in By Julie Washburn Souza Each week, brain injury survivors offer hope, support and encouragement to Shepherd Center patients and families through the Brain Injury Peer Visitor Program sponsored by the Brain Injury Association of Georgia (BIAG). Volunteers with the program are people who have recovered from a brain injury – and sometimes their family members or caregivers – who want to provide a source of hope to the newly injured. Program founder Ann Boriskie sustained a brain injury after a severe car accident in 1998, but she wasn’t diagnosed with a brain injury until a year later. Apart from multiple, serious physical injuries and depression, Ann found she had trouble remembering things and had difficulty doing simple tasks, such as driving and dialing a telephone number. Before the accident, she had lived a busy, active life, but much of that had changed. She could no longer do all of the things she did before the accident, and she was grieving over the loss of her former life. Ann remembers feeling completely alone through her diagnosis and recovery. She heard about the American Stroke Association’s Peer Visitor Program and wanted to do something similar to help people with brain injuries. “When I went through this, I had no one,” Ann says. “It became my mission to help others going through the same ordeal. It’s what kept me going.” Ann modeled the Brain Injury Peer Visitor Program after the American Stroke Association’s peer program for stroke patients and their families. The brain injury program was launched in 2006, and Ann became the official coordinator for it in 2007. Trained volunteers, who have recovered from brain injuries and are now living productive lives, visit patients at Shepherd Center and other metro Atlanta hospitals. They lend a sympathetic ear, offer hope and encouragement, and help patients and caregivers with any questions. The volunteers model how other survivors have recovered and have learned to cope with remaining difficulties from their injuries. They also distribute packets of information and helpful resources. “It’s very common for caregivers and patients to become discouraged and depressed,” Ann says. “We’re there to show people that we have been through similar tragedies and that we have gotten better and are leading good lives. We can provide real-life success stories.” Peer visitors with the program speak to patients and families shortly after their injuries. They also lend support to people who are struggling with the long-term effects of a brain injury. Photo by Jane M. Sanders Peer Visitor Program Above: Brain Injury Peer Visitor Program volunteers, including Dee Houchins, left, and Diane Quimby, visit brain injury patients and their families at Shepherd Center and Shepherd Pathways and provide them with packets of helpful information and resources. Inset: Former brain injury patient Ann Boriskie modeled the Brain Injury Association of Georgia’s Brain Injury Peer Visitor Program after the American Stroke Association’s peer program for stroke patients and their families. Diane Quimby is a long-time volunteer with the program. She sustained a brain injury in 2004 in a car accident and was a patient at both Shepherd Center and Shepherd Pathways. Her recovery continues, and she and her family wish the Brain Injury Peer Visitor Program had existed after her injury. “I have found that patients and families just need the opportunity to hope,” Diane says. “I think the greatest thing the Brain Injury Peer Visitor Program does is give people hope. People tell you that you’ll get better, but when you meet someone who has traveled that road already, it means so much more.” fa l l 2 0 0 8 2 7 FOUNDATION Employee Giving Programs Employees at Atlanta area businesses give to Shepherd Center. By James Panter Each year, Shepherd Center staff members and volunteers demonstrate their devotion to the hospital’s mission by generously donating through employee giving programs. Similarly, throughout metro Atlanta, employees of several organizations show this same devotion by regularly donating money from their hard-earned paychecks to help Shepherd provide the best possible rehabilitation environment for patients. 2 8 S p i na l c o l u mn “We have been fortunate to receive support from employees of Shepherd Center and a number of different companies through payroll deductions,” says Shepherd Center Foundation Vice President and Executive Director Scott H. Sikes. “For example, over the past 10 years, the employees of ERB Industries Inc. have given $395,986 to the Foundation in small increments from their paychecks. These funds have benefited virtually every area of the hospital and helped patients and their families in many ways.” Georgia Tech graduate Bill Erb founded ERB Industries Inc., a safety equipment and apparel manufacturing company, in 1956. He and his wife Florrie, longtime friends of the Shepherd family, set up an employee giving program – via weekly payroll deduction – in 1998 to support the Center’s work. On May 22 of this year, 75 of the Woodstock, Ga., company’s 110 employees toured Shepherd Center to see the “fruits of their labors” and attend a luncheon. “About 10 years ago, ERB Industries was giving to a Chicago charity, and they wanted to start giving on a more local level,” says Bonnie Hardage, Shepherd Center Foundation’s director of major gifts. “They’ve given to almost every program that we’ve needed funds for through the years, and particularly the Injury Prevention Fund – a program to educate school-age children – because it aligns so much with the work they do. During their tour, we were happy to show them our major campus expansion and received great feedback. They saw how their contributions are helping.” In December 2007, ERB employee contributions began supporting the Dean Stroud Pain Institute at Shepherd (www.shepherdpaininstitute.org), to honor Bill Erb’s grandson, Robert “Dean” Stroud. The Institute helps individuals experiencing chronic pain problems, and ERB Industries has placed a link to Shepherd Center on its corporate Web site (www.e-erb.com). Sheila Eads, chief execuwww. sh e p h e r d . o r g Photo by Alison Damerow Photos by Gary Meek FOUNDATION “This is a way for our employees to give back to nonprofit organizations in their communities.” — Cindy Theiler tive officer of ERB Industries, is a member of the Shepherd Center Foundation’s Advisory Board, a group of community leaders who are advocates and educators in the community. “Our company has been employee-owned since 1997,” Sheila says. “We took a tour of the Center in 1998 when we started our program and on our 10th anniversary (in 2008) took a second tour. ERB Industries also supports a program where we give 50 cents to Shepherd Center for every order we receive. Our company is like a family, and we identify with the family approach of Shepherd Center.” Another supporter is Georgia Power’s Club of Hearts program, which donated more than $8,000 in 2007 to the Foundation to cap an annual fall drive. “We have pledge forms and online pledging,” says Cindy Theiler, Club of Hearts program manager. “Employees can donate by payroll deduction or by check. We have rallies around metro Atlanta and sponsor awareness days. Georgia Power’s motto has been for many years ‘to be a citizen wherever we serve.’ This is a way for our employees to give back to nonprofit organizations in their communities.” In addition to their vital work, Shepherd Center employees also donate to support the hospital’s programs through ShepherdCares, says Midge Tracy, director of Volunteer Services. “It is an employee initiative to raise funds for different programs or needs at the Center,” she explains. “Last year, our employees donated $60,000 to help pay for two suites in the Family Residence Center. Now we have two large posters, signed by employees who donated, to hang in the suites. It was amazing the number of people who said: ‘I want people to know that I gave. I want people to know that I care.’” About 600 Shepherd Center employees participate in Shepherd Cares; donations of $50,000 to $60,000 annually support programs for patients and families. Each year, the ShepherdCares Committee selects a program to support. Funds raised in the 2009 ShepherdCares initiative will go toward the refurbishment of patient rooms in the Shepherd Building and off-site family housing units. “Our employees have always been very generous,” Midge says. “The level of pride that they feel when they’re able to give back to the place where they work, the place that gives so much to them, is beyond measure. I’ve been impressed by the giving spirit of all of our employees and am proud to be one of them.” Above Left: ERB Industries Inc. employees, who have contributed to Shepherd Center since 1998, toured the hospital this past spring. Their donations now go to the Shepherd Pain Institute. Above, Top Right: Shepherd Center housing program manager Randy Padgett shows an Irene and George Woodruff Family Residence Center suite to new resident Marita Wagner of Greenville, S.C. Above, Bottom Right: Shepherd Center employees gave $60,000 that helped cover the costs of building two suites in the Family Residence Center, which opened in July 2008. fa l l 2 0 0 8 2 9 FOUNDATION Seasonal Socializing By James Panter Fall and winter activity and support programs bring seasons of fun and fellowship. 3 0 S p i na l c o l u mn make a corridor, and the patients walk a path to little stations where they have to do something therapeutic. Last year, we had a ‘Harry Potter’ theme, so they used a bow and arrow at my station to shoot monster spiders, and patients with no hand function used a blow dart.” It is a feast for the imagination. Last year, one group arrived as the Scooby Doo Gang, and the Foundation staff appeared as a Shepherd shuttle bus. “About three years ago, patients made paper costumes to look like vertebrae, tied together with rope, and eight of them moved around in their wheelchairs as a spinal cord,” Gary recalls. Peer support opportunities abound for patients, who help cook dinners and use funds provided to them to buy gifts for friends to open at a “Secret Santa” gathering, Cathi explains. “Fun Fridays” every other week may include a bus trip to the movies, the Georgia Aquarium, Zoo Atlanta or a restaurant, or the teenagers may stay in for a carnival or game day. Always buzzing with activity is Shepherd’s Therapeutic Recreation Department – the largest in the United States. Clinical supervisor Kelly Edens and a 35-person staff work with acquired brain injury (ABI) and spinal cord injury (SCI) patients, and specialists develop activity programs, such as outdoors events, sports and aquatics. Shepherd Center File Photo Photo by Leita Cowart Staff members in therapeutic recreation, chaplaincy and counseling services are gearing up to deliver fun activities and holidaythemed events for patients to enjoy this fall and winter. Counselor Cheryl Linden notes the importance of these programs in drawing patients and families closer together. “The impact is usually profound,” she says. “Some activities are normal things that our folks did prior to their injuries, and any time they can do something that is ‘back to normal,’ it is always helpful. When patients see they can still do things with their families, it gives them an emotional and mental boost. These events provide breaks from the routine and some fun, which is important when dealing with a life-changing event.” CEO and President Dr. Gary Ulicny notes, “Activities like this build camaraderie and allow celebration of what should be a festive time of year.” Perhaps the greatest display of creativity – from employees and patients alike – occurs in October, when the Center hosts its annual Halloween Haunted House. “We get the teenagers involved,” says physical therapist Cathi Dugger. “They help plan it and make costumes. We put up tarps to www. sh e p h e r d . o r g FOUNDATION camping or hunting trip each month. Patients are required to go on at least one outing per week; four or five outings are scheduled weekly. Complementing these programs is the Shepherd Center Chaplaincy Program, where chaplains Alan Roof and Ken Grosch provide guidance and resources for patients and families in coping with issues and observing traditions. Although most patients are Previous Page, Left: The “Harry Potter” theme of the 2007 Halloween Haunted House at Shepherd Center inspired costumes related to the popular book and movie character. Previous Page, Right: The Shepherd Center Therapeutic Recreation Department sponsors the annual Shepherd Shoot-Out Wheelchair Basketball Tournament in the fall. This Page, Left: The Shepherd Center Chaplaincy Program sponsors weekly interdenominational worship services and adds special holiday music to the gatherings in November and December. This Page, Right: Always buzzing with activity is Shepherd’s Therapeutic Recreation Department – the largest in the United States. One of the department’s activities scheduled for the fall is the annual All-Sports Camp held in Warm Springs, Ga. Shepherd Center File Photo “W hen patients see they can still do things with their families, it gives them an emotional and mental boost. These events provide breaks from the routine and some fun, which is important when dealing with a life-changing event.” — Cheryl Linden from Christian backgrounds, the chaplains arrange for patient visits by rabbis and lighting of menorahs, and contact leaders for other ministry needs. “Every Sunday, we have an amazing service with 20 to 60 folks,” Alan says. “In early December, we usually invite an outside concert or choral group to perform so people can enjoy some holiday music.” A motivational speaker usually addresses a Thanksgiving gathering, with lunch and dessert provided. Holiday services are held at the Center, Pathways outpatient facility and the residential living unit for ABI patients. “For people who are active in their churches, Ken and I can become their pastors for a while,” Alan adds. “A lot of folks are a long way from home, and we fill a role to remind them that God is with them on their journey.” For staff members, “the annual holiday party serves to build relationships that would not occur in the work environment,” says Chairman of the Board and co-founder James Shepherd. “People get to know each other outside the clinical arena. As we have grown, this has taken on a greater importance because many never get to interact with their peers in other departments.” Photo by Kathy Grosch “We recently added an adaptive dancing program, which we hold a couple of times a year for inpatients and day program patients,” Kelly says. “It is dancing by two people in wheelchairs, or by an ablebodied person and a person in a wheelchair, and an instructor comes in to give a two-hour lesson for patients.” Scheduled for the fall and winter are a scuba diving trip; outdoor expo with demonstrations of adaptive equipment for all-terrain vehicles, hunting, fishing and other pursuits; an All-Sports Camp (Oct. 17-19), held in Warm Springs, Ga., featuring instruction from elite wheelchair athletes in sports such as track, hand-cycling, swimming, tennis and golf; the Shepherd Shoot-Out Wheelchair Basketball Tournament (Nov. 7-9); an Artists’ Market (Nov. 12); a snow skiing trip (February 2009) and the Shepherd Classic Quad Rugby Tournament (Feb. 6-8, 2009). Thirteen adaptive sports teams represent Shepherd, and tournaments test their skills against other teams. The first Wednesday of every month features scuba diving in the pool, and inpatients go on a fa l l 2 0 0 8 3 1 FOUNDATION As the autumn leaves start turning beautiful shades of red, gold and orange, many people start planning their Christmas shopping and pondering their holiday card lists. Many of our friends and supporters plan to give a personal and special gift to their friends and family – the gift of hope for Shepherd Center’s patients – by making a “Holiday Tribute” gift to Shepherd Center Foundation in honor of their family and associates. The Foundation sends personalized cards with our donors’ own greetings to their holiday card lists. In addition, their friends and families are included in Spinal Column magazine’s annual “Holiday Tribute” listing. Long-time Shepherd Center supporters Joan Woodall and Jeanne and A.B. Martin have a tradition of sharing their spirit of philanthropy by making “Holiday Tributes” for their friends and associates. Shapiro Capital Management and People First Consulting are among the businesses that have chosen to honor their customers by making gifts to the Foundation to help Shepherd in its mission to restore patients’ lives with hope, dignity and independence. For information about Shepherd’s “Holiday Tribute” program, contact Dean Melcher at 404-350-7306 or [email protected]. 3 2 S p i na l c o l u mn Photo by Gary Meek A Special Gift for the Holidays Shepherd Center Auxiliary Announces Pecans Fundraiser and Other News The Shepherd Center Auxiliary’s annual holiday fundraiser, Pecans on Peachtree, runs from Nov. 10 to Dec. 24. This is the 25th year for the fundraiser, which has raised more than $1.2 million for patient-related programs and Auxiliary operations since 1982. Georgia pecan farmers report that this year’s pecan crop appears to be even better than last year’s. Plus, all of the fundraiser’s mouth-watering pecan varieties – including dark chocolate pecan delights and the three-tin “Holiday Tower of Delight” – will again be available. The Auxiliary is busy signing up volunteers to work the sales tables inside Shepherd Center from 9 a.m. to 4 p.m. weekdays and to host “Pecan Parties” in their homes or businesses. If you would like to volunteer, receive a brochure or place an order, call 404-367-1322 or go to www.pecansonpeachtree.org. In other Auxiliary news: Diane Ashkouti was installed as the 2008-09 Auxiliary president in April. She has been a member of the Auxiliary since 1994 and has held several positions on the board since that time. Both Diane and her husband, Albert, are life members of the Auxiliary, and their daughter, Ashley, is a volunteer. Also, the Auxiliary is proud to be the benefactor of the $60,000 renovation of the Livingston Gym floor and the lobby area outside the gym. This work was funded by the proceeds of the Auxiliary’s 2007 Pecans on Peachtree fundraiser. The gym is one of the most-used areas of the hospital. Many inpatients and outpatients, as well as volunteers, staff and community members, workout there daily or simply enjoy watching Shepherd Center sports teams in action as they practice and compete in the gym. The lobby area serves as the entryway to the art therapy room and provides a great viewing area of the Olympic-size swimming pool below. On most weekdays, family members sit in chairs lined up against the glass wall watching their loved ones doing their aquatic therapy, along with children having swim lessons and community members doing water aerobics. — Midge Tracy Top of Page: The Shepherd Center Auxiliary contributed $60,000 in proceeds from the 2007 Pecans on Peachtree fundraiser to pay for the recent renovation of Shepherd Center’s Livingston Gym floor and adjacent lobby area. Here, patient Kelsey Tainsh of Winter Park, Fla., participates in therapy with exercise specialist Josh Zottnick. www. sh e p h e r d . o r g FOUNDATION Last Chance to Get Your “Password” for Speakeasy Junior Ball Promises to be a Fun-Filled Night at “The Stork Club” Get ready for a fun-filled night of great times, good friends and terrific music. On Saturday, Nov. 1, the Junior Committee will host “The Stork Club,” the annual Junior Ball held in conjunction with The Legendary Party, Shepherd Center’s black-tie gala. Named after the famed New York club opened by an ex-bootlegger, “The Stork Club” promises to be a rip-roaring addition to The Legendary Party’s “Speakeasy: Legend of the Jazz Age.” Not only is this a great party on its own, the Junior Ball gives the younger crowd a chance to sample The Legendary Party. The evening’s events also let these two groups of Shepherd supporters mingle and compare dance moves. This year’s bash will be at The Ritz-Carlton, Buckhead and will feature Atlanta’s party and dance band, Atlanta Beat. The party starts at 10 p.m. and ends at 2 a.m. with late-night buffets and a hosted bar. Tickets are $75 per person and include all festivities. For more information, contact Anne Pearce at 404-350-7302 or [email protected]. — Dean Melcher and Anne Pearce Above: Junior Ball 2008 Host Committee co-chairmen Rusty and Kimmy Umphenour, far left and right, and 2008 Legendary Party chair-elect Cyndae Arrendale, left, and chairman Sally Dorsey (on bar) invite guests to “Speakeasy: Legend of the Jazz Age.” Photo by Jim Fitts The Legendary Party is one of Atlanta’s premier social events. Each year, it revolves around a theme that represents a “legend” of our time. The 2008 ball, scheduled for Nov. 1, is themed “Speakeasy: Legend of the Jazz Age.” The word “speakeasy” conjures great images and history. Most people envision the roaring 1920s and the Hollywood glamour of the 1930s; Prohibition, Al Capone, mobsters and molls; jazz; and hidden nightclubs selling bootleg whiskey and bathtub gin. Speakeasies were exciting places, fraught with intrigue – and maybe a little danger. Legendary Party chairman Sally Dorsey has spent the past year developing the ultimate party concept to both raise money for Shepherd Center and pay tribute to one of Shepherd’s most beloved supporters, Elizabeth Allen. This year’s event promises a little mystery and lot of fun with a few surprises thrown in. The Ritz-Carlton, Buckhead will create a culinary masterpiece, and the impeccable service of Atlanta’s finest hotel will make our attendees’ evening a night they will never forget. After dinner, the ballroom will be hopping to a lively vintage music performance and dancing to Doc Scantlin’s Imperial Palms Orchestra. Tickets are $500 per person and can be ordered online at www.shepherd.org. For information, call Cara Puckett at 404-350-7778 or [email protected]. — Dean Melcher Above: Enjoying the late-night Junior Ball 2007 were, left to right, Sarah Griffin, Megan McSwain and Reuben Mann. fa l l 2 0 0 8 3 3 FOUNDATION Junior Committee Approaching the Starting Gates Returning members of Shepherd Center Foundation’s Junior Committee reunited for a new fiscal year in September and swapped Derby Day 2008 stories. They also met and mingled with new provisional members as everyone learned what’s in store for Derby Day 2009. Since 1983, young Atlanta professionals (22 to 35 years old) have worked hard and played hard to plan and implement the Southeast’s best-known Kentucky Derby-themed party to raise money and awareness for Shepherd Center’s Therapeutic Recreation Program. The all-day party features auctions, games, barbecue, beverages, great socializing and two live bands. Before the party planning got under way at the September meeting, Junior Committee 2008 co-chairs Leah Humphries and Meredith Repp handed the leadership reins to the 2009 co-chairs, Erin Jernigan and Ryan Hoyt. The 2009 steering committee also announced its goal to have 300 members in the Junior Committee before the group’s annual holiday party in December. The committee is soliciting new members until November. “The Junior Committee is a wonderful way for people to give back to the Atlanta community while having a great time and forming friendships with like-minded individuals” says Anne Pearce, Shepherd Center annual events manager. “Some members are new to Atlanta, moving here after college or for a job transfer, and they are looking to meet new people. “Some members are native Atlantans growing up just minutes away from Shepherd Center. We even have a few second-generation members whose parents were founding members of the Junior Committee. Everyone comes together for one common interest – improving the lives of Shepherd Center patients,” Anne adds. For information about Derby Day and Junior Committee membership, contact Anne Pearce at 404-350-7302 or [email protected]. — Dean Melcher and Anne Pearce Top of Page: Patrons at Derby Day 2008, a fundraiser organized by Shepherd Center’s Junior Committee, enjoy a day of music, mint juleps and watching the running of the 134th Kentucky Derby. Shepherd Center’s 2008 Annual Report Available Online Shepherd Center’s 2008 Annual Report is available both online and in printed format. The report includes statistical information about Shepherd patients, financial information about the hospital and information about philanthropic gifts to the Shepherd Center Foundation. It also includes features on the completion of the Jane Woodruff Pavilion and the Irene and George Woodruff Family Residence Center, the Center’s chaplaincy program, research updates and volunteer groups at the hospital. Also available both online and in print is a separate donor directory that lists individual and organizational donors, as well as Bridge Builders and endowed funds. To request copies, contact Dean Melcher at 404-350-7306 or dean_melcher@shepherd. org. Also, you can download electronic copies in PDF format from our Web site at www.shepherd.org/publications. 3 4 S p i na l c o l u mn www. sh e p h e r d . o r g Photo by Leita Cowart FOUNDATION [ Notes from Scott Sikes [ Shepherd Center Foundation Executive Director Planned Giving Autumn traditionally is time for back-to-school and back-to-work. It’s also the time when many recommit themselves to financial planning. If you own a home or farm, you can give it away now “on paper” to a charitable organization, continue to live in the home or use the farm, and also take an income tax deduction this year. It is a charitable giving technique called a “retained life estate.” While you have the right to use the property as long as you live, after your death, the charitable organization can sell the property and use the proceeds to fund their charitable mission. Shepherd Center Foundation would use the funds for research, medical care, rehabilitation, facility renovation and much more. Alternatively, the Foundation can keep the property and rent it for income or use the property in some other way. In addition to this year’s income tax deduction, you’ll also remove the property’s value from your taxable estate. Further, assuming this property will continue to appreciate in value, you’ll remove the property’s appreciation from your taxable estate, too. There are things you need to be aware of before you give away the property. Here are some, but not all, considerations. The income tax deduction you receive this year will be for the property’s “discounted present value.” It’s a special IRS-approved calculation that essentially says the older you are, the higher the income tax deduction; and, the younger you are, the lower the income tax deduction. While you’re alive, you must insure and maintain the property (which might in- clude re-roofing or repairing plumbing) and pay property taxes. You’ll have the same ongoing expenses as if you owned the property. The typical retained life estate donor is a married couple living in their home in one city with adult children who live in another city; and the adult children do not want their parents’ home. For example, the parents live in Charlotte, N.C., and the adult children all live in Los Angeles, Calif. There is little chance the children will move back. The example husband and wife are 70 years old; they bought their home for $200,000; and their home’s estimated fair market value is $400,000. Their income tax deduction this year will be $152,936. This deduction may be applied up to 30 percent of their adjusted gross income (AGI) this tax year. Any unused deduction remaining after the year of the gift is carried over and applied up to 30 percent of their AGI for up to five additional years. Of course, this article doesn’t constitute legal, tax or other professional advice. Please discuss your situation with experienced estate planners, and call me at 404-350-7305 or Ty Tippett, senior director of planned giving, at 404-350-7308. — Scott H. Sikes, MBA, CFRE, CFP® Vice President & Executive Director, Shepherd Center Foundation “Shepherd Center Foundation would use the funds for research, medical care, rehabilitation, facility renovation and much more. Alternatively, the Foundation can keep the property and rent it for income or use the property in some other way.” — Scott Sikes fa l l 2 0 0 8 3 5 Shepherd Center Leaders Inducted into Spinal Cord Injury Hall of Fame Alana Shepherd, co-founder of Shepherd Center, and Dr. David Apple, medical director emeritus, will be inducted this fall into the National Spinal Cord Injury Association (NSCIA) 2008 SCI Hall of Fame, along with Shepherd Center benefactors Billi and Bernie Marcus. Formed by NSCIA in 2005, the SCI Hall of Fame was created to celebrate and honor individuals and organizations that have made significant contributions to quality of life and advancements toward a better future for people with spinal cord injuries. Alana will be recognized in the category of grassroots organizer. Dr. Apple will be recognized in the direct provider category, and Billi and Bernie Marcus will be honored in the benefactor category. Previously inducted into the SCI Hall of Fame were cofounder and Board chairman James Shepherd in 2006 and Shepherd Center advocacy director Mark Johnson in 2007. Shepherd File Photo Photo by Gary Meek Photo by Gary Meek FOUNDATION Shepherd Center and Skimore Tours Offer Annual Adaptive Skiing Trip Shepherd Center and Skimore Tours have planned a trip to Breckenridge, Colo., this winter for adaptive snow skiing for beginners to advanced skiers with physical disabilities. The trip, scheduled for Jan. 29 through Feb. 3, 2009, includes private adaptive skiing lessons, airfare, lift tickets, equipment, transfers and hotel accommodations. People of all abilities are welcome, as well as their families and friends. Advance registration is required. The price varies depending on the airfare cost. For more information, go to www.skimoretours.com or contact Shepherd Center sports specialist Chris Ravotti at 404-350-7797 or [email protected] Above: Shepherd Center and Skimore Tours have planned a trip to Breckenridge, Colo., this winter for adaptive snow skiing. 3 6 S p i na l c o l u mn Troubled By Spasticity? Do you suffer from spasticity (muscle jerking, spasm or increased muscle tone) due to spinal cord injury? If you do, you should know about this clinical research study. Spasticity due to spinal cord injury can cause symptoms such as stiffness of arms and legs, atrophy (breakdown of the muscles), fibrosis (thickening and scarring of tissue) and contracting of muscles, including difficulty moving the arms and legs. If you are unhappy with your current anti-spasticity therapy or are not currently on anti-spasticity medication, call to learn more about this clinical study. Eligible participants will receive study-related examinations and study medication at no cost. Participants will also be compensated for time and travel. Call to learn more about this clinical research study for people with spasticity due to spinal cord injury. Contact Michelle Nemeth in Shepherd Center’s Clinical Research Department at 404-350-7688. www. sh e p h e r d . o r g No Barriers: Rehab Can’t Keep Shepherd Patient from Proposing Photo by Alison Damerow Love was in the air at Shepherd Center back in May when patient James Howard proposed to Anne Hall, his girlfriend of seven years. James was still an inpatient at Shepherd Center undergoing rehaAbove: Love was in the bilitation for a spiair at Shepherd Center back in May when patient nal cord injury that James Howard proposed paralyzed him from to Anne Hall, his girlfriend the chest down in of seven years. February. So taking Anne out for a romantic dinner wasn’t possible. Instead, with the help of Shepherd volunteer Lois Puckett, James brought the romantic dinner to Anne at Shepherd Center. The two dined on the seventh floor terrace at Shepherd, overlooking the lights of Atlanta, while a pianist played. Family members served the couple champagne and their favorite foods from area restaurants. Later, a plane flew by with a special message: Will you marry me, Anne? The couple’s English bulldog was on hand to help present Anne with the ring. Anne, of course, said yes. She was totally surprised and knew nothing of the planned evening despite the fact that most of the nurses on James’ floor knew about the upcoming proposal. The couple has not yet decided on a date. They plan to return home to Virginia after James completes therapy. — Alison Damerow Photos by Gary Meek FOUNDATION 2008 Beijing Paralympics Sponsors Shepherd Center salutes the following corporate sponsors and partners of the 2008 U.S. Paralympic Team and the Worldwide Partners of the International Paralympic Committee. Adecco Allstate Amino VITAL Atos Origin AT & TThe Coca-Cola Company General Electric General Motors The Hartford Hilton Hotels The Home Depot Johnson & Johnson NikeOtto Bock Healthcare Panasonic Samsung United Airlines VISA For a listing of the Beijing Paralympic Games sponsors, see: http://en.paralympic.beijing2008.cn/sponsors/ Above: Shepherd Center athlete and Paralympic gold medalist Curtis Lovejoy of Atlanta practices in the hospital’s pool in July. He was focused on earning his 13th world record in swimming in the Paralympic Games in Beijing in September 2008. Left: Paralympic fencers Mark Calhoun and Benjy Williams spar during practice at Shepherd Center this past summer. fa l l 2 0 0 8 3 7 {LOVING TRIBUTES { Honorees are listed first in bold print followed by the names of those making gifts in their honor. This list reflects gifts made to Shepherd Center between May 1, 2008 and July 31, 2008. Lee Hawkins Britt’s Birthday Mr. and Mrs. Ricky M. Britt Brian “BB” Brown Prudential CARES Volunteer Grant Prudential Foundation Photo by Leita Cowart Honorariums Karl Bevins Mr. and Mrs. Joel K. Isenberg Lee Bryan Ms. Patricia R. Johnston Steven Burse’s Recovery Ms. Christine Brichta Eula Carlos’ 80th Birthday Mr. and Mrs. James E. Gilmer, Jr. Mr. and Mrs. J. Harold Shepherd Elizabeth M. Allen Mr. and Mrs. Dan Carithers, Jr. Jim Caswell’s 78th Birthday From his oldest friend Alana Shepherd Dr. David Apple, Jr. Thomas Land Publishers, Inc. Jim Choomack’s Recovery Ms. Catherine Choomack Anita and Charlie Augello Mr. Joel M. Burns Betsy Baker’s Birthday Mr. and Mrs. Alan M. Smith Above: In May 2008, Shepherd Center marked the enrollment of its 50th NeuroRecovery Network participant. To celebrate, staff and former patients gathered for a reunion at Shepherd in July. Brant Davis’ Birthday Mr. and Mrs. Bussey C. Bonner, Jr. Dean Coleman’s 75th Birthday Mr. and Mrs. Jack Dreyfuss Brian Desko’s Recovery Mr. and Mrs. Jack Dreyfuss Andy Cook Mr. and Mrs. Glenn W. Cook Mary and Mike Balsamides’ 50th Anniversary Mr. and Mrs. George L. Betros Emily Cook’s Recovery Mr. and Mrs. Bernard S. Goldstein Maricela and Ryan Barnett’s Wedding Mr. and Mrs. Stuart Hanzman Gloria and Edwin Cowart’s Marriage Mr. Emory A. Schwall Mr. and Mrs. J. Harold Shepherd Ryan Barnett’s Recovery Mr. Peter May Rusty Begnaud Mr. Lucas Dore Patty Duncan – “Great job on the ASIA meeting” Dr. David F. Apple, Jr. Linda Epstien’s Recovery Mr. and Mrs. Jack Dreyfuss Carolyn Ewing’s Birthday Mrs. Frank C. Bowen, Jr. Zana Cox – “Great job on the ASIA meeting” Dr. David F. Apple, Jr. Jill North’s Father A B Combs Elementary School Alton Craft Mr. and Mrs. Winston Bentley Cindy and Bill Fowler Mr. and Mrs. Tom Johnson Photo Courtesy of Tamara McDonald Clifford Clarke Glover Batson-Cook Foundation, Inc. Above: Shepherd Center’s Marcus Community Bridge Program organized a “Day at the Lake” event for former patients at Lake Tobesofkee near Macon, Ga., this past summer. Left to right are Shepherd Center Bridge Program staff member Jennifer Breeding, former spinal cord injury patient Anthony Calhoun of Cordele, Ga., and Bridge staff member Shelley Mitchell. 3 8 S p i na l c o l u mn Debbie Griffiths’ Birthday Mr. and Mrs. Ken Feinberg Anne Hall and James Howard’s Engagement Ms. Nancy E. Wellons Walter J. Hoyt Family Mr. and Mrs. Fred A. Hoyt, Jr. William D. Hoyt family Mr. and Mrs. Fred A. Hoyt, Jr. Lesley Hudson’s Birthday Mrs. Barbara St. John Lesley Hudson, Whitney Johnson and Caitlin Johnson – “Great job on the ASIA meeting” Dr. David F. Apple, Jr. Leah and Nick Humphries – “Mighty efforts on Derby Day” Mr. and Mrs. C. Richard Hoskinson Jason Kerr Mr. David A. Bosen Mr. and Mrs. James R. Sechrest Ada Lamon’s Recovery Mr. and Mrs. Bernard S. Goldstein Donald Peck Leslie, M.D. Mr. and Mrs. Philip S. Beeson, Sr. Douglas Lindauer Ms. Veronica Sheehan Jami Hanzman’s Recovery Mr. and Mrs. Noah Bronstein Jerry Lindauer – Happy Father’s Day Mr. and Mrs. Douglas Lindauer Cam Harrison Mr. and Mrs. Jack Nicklaus Billi and Bernie Marcus’ Birthdays Mr. and Mrs. Marvin C. Shrager Kim Harrison’s Friendship Mr. Dan Chase Mary A. McClendon Anonymous Caroline Hazel’s Birthday Dr. and Mrs. John C. Knox Dean Melcher – “Great Derby Day” Dr. David F. Apple, Jr. Bryan Hewins’ Recovery Mr. and Mrs. Bob Barnwell Beverly and John Mitchell Mrs. Mary W. Breitenbach Mrs. Henry A. Huettner Arnold Holzer, Jr. – “Thinking of You” Mr. and Mrs. Alan M. Smith Brian Mock Mr. and Mrs. Paul Kurtz www. sh e p h e r d . o r g {LOVING TRIBUTES { Sarah Morrison – SCI vision of excellence Dr. David F. Apple, Jr. Michelle Nemeth – “Another step up the ladder” Dr. David F. Apple, Jr. Martin Ouzts’ Recovery Mr. and Mrs. Joel K. Isenberg Anne Woolsey Pearce’s 30th Birthday Ms. Caroline Abney Mr. and Mrs. Jay Biber Mr. and Mrs. Randall R. Bryan Ms. Marnite B. Calder Ms. Allison Escott Mr. and Mrs. Wade Fowler Mr. Henry Gurley Mr. Daniel Henning Mr. and Mrs. C. Richard Hoskinson Mr. and Mrs. Travis Kirkland Mr. Dean Melcher Mr. and Mrs. Spencer L. Moore Ms. Elizabeth R. Pearce Mr. and Mrs. Eugene L. Pearce III Ms. Neville S. Pearson Mr. and Mrs. Humberto Perez Ms. Cara D. Puckett Mr. and Mrs. William M. Puckett Mrs. Virginia Roe Ms. Daryn Schwartz Ms. Helene M. Schwartz Mr. and Mrs. Haygood P. Seawell, Sr. Mr. and Mrs. J. Harold Shepherd Ms. Meredith Smith Mrs. Eadie Tant Mr. and Mrs. J. Tyler Tippett Mr. and Mrs. Terrence M. Tracy Mr. and Mrs. Scott Tucker Mr. and Mrs. Mark M. Whitney Ms. Lindsay Williams Mrs. Brittany G. Wilson Mr. and Mrs. J. Blake Young, Jr. Ms. Sarah E. Zullo Sue Schoedinger’s Recovery Ms. Patricia Suelmann Happy Shaw’s Birthday Mr. and Mrs. Jack Dreyfuss David Shea Mr. and Mrs. Jack Nicklaus Alana’s Birthday Bickers Planning Solutions, LLC – Wishing Alana a Happy Birthday Mr. and Mrs. James M. Caswell, Jr. Shepherd Center Admissions Evaluators Ms. Susan B. Sheehy and Mr. John Sheehy Mickey Shepherd’s Birthday Bickers Planning Solutions, LLC Beverly and Jack Shields Mr. John R. Simmerman Barry Sikes Ms. Becky Geer Ms. Margo L. Merchant Elizabeth Smith’s Recovery Mr. and Mrs. Bernard S. Goldstein Russell Smith GLM Aircraft Robbie Svoboda Mr. Rob Scott Eadie Tant – “Good job on recording accuracy” Dr. David F. Apple, Jr. Brian Thomas Chi Phi Fraternity at Cornell University Janice Tilley – “Great job on the ASIA meeting” Dr. David F. Apple, Jr. Ty Tippett – 5th Year Anniversary at Shepherd Center Dr. David F. Apple, Jr. Tommy Towles’ Birthday Mrs. Oliver J. Keller, Jr. Mr. and Mrs. J. Harold Shepherd Blake Wallace in Memory of his Grandmother, Charlotte Wallace Mr. and Mrs. Steven Absher Mr. and Mrs. Edward U. Babb Ms. Elizabeth C. Banick Ms. Evelyn S. Blakely Ms. Hazel C. Brimi Carrington Foods, Inc. Mr. and Mrs. John T. Dawson, M.D. Mrs. Jane Dempster Mr. and Mrs. T. J. Hall III Mr. and Mrs. Joe S. Hammond Mr. and Mrs. Francis X. Higgitt Home Financial Services, Inc. Ms. Dawn M. Huff Dr. and Mrs. George M. Krisle III Ms. Sherri P. Lee Mrs. Dana L. McAlister Ms. Kim McMillan Mr. and Mrs. Hugh McWilliams Mr. Burt A. Medoff Novinger, Ball & Zivi, P.C. Peninsula Club Pirates Ms. Susan Polk Ms. Nancy Riddle Mr. and Mrs. Preston Shepherd Ms. Sarah Stowers Mr. and Mrs. Robert L. Straight Talahi Garden Club Mr. Harry J. Thayer, Jr. Mrs. Catherine M. Van Meter Mr. and Mrs. Tim Wright Mrs. Sara B. Yoakley Phillip Watters’ Recovery Pine Street Elementary School Caroline Wells’ Birthday Ms. Sandra Wells Thom Whiten’s 65th Birthday Mr. and Mrs. Joel K. Isenberg Sue and Neil Williams’ 50th Anniversary Ms. Marnite B. Calder Perry Ann Williams Dr. David F. Apple, Jr. Shelly Williams’ Recovery Mr. and Mrs. Greg Hampton Carol and Bruce Wilson Mr. and Mrs. Vance C. Miller Dancy H. Wynne Mr. and Mrs. Fred A. Hoyt, Jr. Sara Zullo – “Congratulations on getting into grad school.” Dr. David F. Apple, Jr. Photo by Gary Meek Deanne Jackson and Julian Mohr’s Wedding Mr. and Mrs. Alan M. Smith Anne W. Pearce Dr. David F. Apple, Jr. Amanda Perla’s Recovery Mr. Frank Castro Curtis L. Phillips’ Recovery Mr. Douglas L. Batson – Men and Women of 22nd AF, Logistics Division, Dobbins ARB Nancy A. Phillips Mr. Andy Reiter Jamie Redmond’s Recovery Wilson Boiler Service, Inc. Meredith Repp – Efforts on Derby Day Mr. and Mrs. C. Richard Hoskinson Above: Three young spinal cord injury (SCI) patients who became friends during their inpatient stays at Shepherd Center celebrate the recent SCI Day Program graduation of Traci Pauls, front and center, of Blackville, S.C. Patients Ashleigh Amerson, left, of Gordon, Ga., and Jessica Burrell, right, of Owego, N.Y., are joined by their therapy team members, back row left to right, Cindy Hartley, Marianne Dunn, Cheryl Linden and Cathi Dugger. fa l l 2 0 0 8 3 9 {LOVING TRIBUTES { Deceased friends of Shepherd Center are listed first in bold print followed by the names of those making gifts in their memory. This list reflects gifts made to Shepherd Center between May 1, 2008 and July 31, 2008. Ernest H. Abernethy, Jr. Blind Ambition Management, Ltd. Mr. John W. Stern Mr. Burke W. Whitman Lena Anderson Ms. Susan N. Wells Walker Atrice III Mrs. Perry Ann Williams Dorothy Powers “Do” Black Mr. and Mrs. James M. Caswell, Jr. Harold Bowman Mr. and Mrs. Milton Jacobson Gordon C. Bynum, Jr. Mr. and Mrs. Thomas H. Lanier II Joan Wood Freeman Cargill Mr. and Mrs. Donald L. Bloebaum Ryburn C. “Pete” Clay Mr. and Mrs. J. Harold Shepherd Douglas Cook Mr. and Mrs. Glenn W. Cook Mr. and Mrs. Bernard S. Goldstein George B. Davis Mr. and Mrs. Kirkwood M. Callahan Anne Coggins DeBorde Mr. and Mrs. George S. Williams Ralph Degen Mrs. Patricia C. Williams Ronnie Bailey Mr. and Mrs. Charles Pruitt Max I. Benator Mr. and Mrs. Victor Cohen Gerald Edwin Bernal Mr. Richard F. Bernal Photo Courtesy of Tamara McDonald Caroline P. Bagwell Mr. and Mrs. Calvin E. Anthony Mr. and Mrs. Henry E. Barton Mr. and Mrs. Ray W. Barton The Beaty Family – David, Kelly, Matthew, Marshall and Daniel Mrs. Barbara Bobo Campbell & Campbell, Attorneys at Law Mrs. Carl Caudell Mr. and Mrs. William P. Chandler Mr. and Mrs. Herbert Chisenhall Walter Bilsky Mr. and Mrs. James Begley Mr. and Mrs. Russell S. Goldman Dr. and Mrs. David Palay Mr. and Mrs. Nathan H. Popky Above: Shepherd Center’s Marcus Community Bridge Program organized a “Discover SCUBA” event for former patients this past spring in Dunnellon, Fla. Assisting with the event were staff members from Divers@Sea. Pictured is former brain injury patient Matthew Hoover, center. 4 0 S p i na l c o l u mn Photo Courtesy of Tamara McDonald Memorials Mr. and Mrs. Alan D. Chunka Mrs. Dianne Colston Community Bank & Trust Mr. and Mrs. Robert H. Corley Mr. and Mrs. Michael H. Crawford Mrs. Leah Cueva Mr. and Mrs. David Dunwoody Mr. and Mrs. Neal Dunwoody Mr. and Mrs. Jordan Gasaway Mr. and Mrs. Joe B. Gibbs Ms. Leah Glazier Mr. and Mrs. Leon C. Greeson Mr. and Mrs. Max G. Harrell Ms. Elizabeth Hinesley Mr. Dave Hollenbeck The Hollow Log Mr. and Mrs. David Irvin Mr. and Mrs. Daniel B. Kirby Mr. and Mrs. William S. Loyd Mr. and Mrs. Robert G. Matthews Mr. and Mrs. Gerald E. McDaniel Mr. and Mrs. Richard C. Morgan Noteworthy Publications, LLC Mr. and Mrs. C. R. Nuckolls Ms. Deanie M. Sellers Sherwood Clinical Ms. Michelle Smallwood Mrs. Emily S. Stromquist Mr. and Mrs. Dean Swanson Mr. and Mrs. George D. Telford Ms. Jan Walker Mr. and Mrs. Joe Watkins Ms. Linda H. Wingate Mr. and Mrs. Keith York Above: Shepherd Center’s Marcus Community Bridge Program organized a “Day at the Lake” event for former patients at Lake Oconee in north Georgia this past summer. Pictured are former spinal cord injury patient Jeremy Peebles, center, of Auburn, Ga., and his mother Patricia and cousin Thomas Smith. Frank S. Goodman Mr. and Mrs. Julian LeCraw, Sr. Mr. Gene Vance The Reverend and Mrs. Kenneth A. Walker Mr. and Mrs. David J. Wolf Elizabeth S. Green Mr. and Mrs. Hansford Sams, Jr. Gus Hoyt Mr. and Mrs. Fred A. Hoyt, Jr. Travers Green Mr. and Mrs. R. P. Griffin, Sr. Marty Hughes Mr. and Mrs. Milton Jacobson Margaret Hassell Griffin Mr. and Mrs. Jerry M. Hux Nat C. Hughs, Jr. Mr. and Mrs. Donald L. Bloebaum Martha Gunn Ms. Faye B. Isaacs Hugh M. Inman Mr. and Mrs. Thomas J. Amason, Jr. Mr. and Mrs. Paul W. Baker Mrs. William L. Bartlett Mr. and Mrs. Louis Bondurant, Jr. Mr. and Mrs. Kevin Cleveland Mr. and Mrs. Richard K. Cook, Sr. Mr. and Mrs. Bill Davidson Mr. and Mrs. Scott M. Dayan First Communities Family and Rob Johnston, Ed Romano, Kandi Coleman Mr. and Mrs. Robert H. Harris Mr. and Mrs. Walter S. Hay Mrs. George A. Horkan, Jr. Mr. Charles D. Hurt, Jr. Mrs. McChesney H. Jeffries Kay Kirkpatrick, Glenda Harmeling, Linda Boatner and Pooh Head Mr. and Mrs. John O. Mitchell Ms. Mary A. Mitchell Ms. Mary Anne Pait Mrs. and Mrs. Edward Patz Peachtree Hills Place, LLC Mr. and Mrs. Langdon Quinn Mrs. Jane D. Scruggs Betty Jane Hamling Mrs. Patricia C. Williams Frances Hargrett Mrs. James B. Ramage Cannon Harmon, Jr. Mrs. and Mr. Karol A. Neufeld Daniel T. Hooks Mrs. Joan Pendley Dr. William Harvey Howell Akin & Tate, PC Ms. Cathy L. Croninger Ms. Margaret Croninger Mr. and Mrs. Bill Dunaway Dr. and Mrs. Don Evans Mrs. Kathy N. Greene Mr. William Y. Harvey Ms. Janet C. Neel Dr. and Mrs. George M. Perrine Mr. and Mrs. Robert T. Pope, Sr. www. sh e p h e r d . o r g Mrs. Doris H. Shelton Mr. and Mrs. J. Harold Shepherd Mrs. Meme W. Smith Mrs. W. Sam Smith Mr. and Mrs. Larry A. Taylor Ms. Nancy B. Thomas Mr. and Mrs. Mark C. West Mrs. Patricia C. Williams Mr. and Mrs. Roy H. Zellars Allen S. Jackson Mrs. Patricia C. Williams Ollie Keller Mr. and Mrs. John E. Duggan Terry D. Kerr Ms. Carol J. Altone Mr. and Mrs. Matthew Crow Dana and Kristin Gibson Mr. and Mrs. Gary Lofton Mr. and Mrs. Lewis Moore Nat Sherman Inc. Jackie Pray Mr. and Mrs. Larry Shelton Mrs. Carol Smith Mr. and Mrs. William D. Steele Mr. and Mrs. W. N. Trotter Mr. and Mrs. William H. Turman Mr. and Mrs. Pembroke W. Williams, Jr. Mr. and Mrs. Wayne York Miriam Nunnally Mrs. Frank C. Bowen, Jr. Mrs. Joy Butterfield Mr. and Mrs. James M. Caswell, Jr. Mr. and Mrs. Edwin Cowart Mr. and Mrs. J. Harold Shepherd Mr. and Mrs. George S. Williams Mrs. Joan Woodall Evonne O’Neal Ms. Donna Neff Photo Courtesy of Atlanta Falcons {LOVING TRIBUTES { Dr. Robert Fleming Parham Mr. and Mrs. Keith Stephenson Iwee Patterson Mr. and Mrs. John E. Duggan Vivian Rae Ms. Kris Bleiler Mr. and Mrs. Raymond B. Couture, Jr. Dixie Crane Service, Inc. Ms. Josephine H. Ferris Ms. Gail L. Graczyk Edward P. Kenny Ms. Margaret A. Lofving Phoenix Crane Rental – Augusta Phoenix Crane Rental Company Mr. and Mrs. R. Joseph Pollock Ms. Angela P. Raney The Golden Oldies Line Dance Class Irving “Sonny” Shlesinger Mr. and Mrs. Alan M. Smith Bobbi Ann Kirkland Ms. Martha D. Nelson Robby Redding Mr. and Mrs. Phillip Searcy John Simbas Mr. and Mrs. James M. Fleming Keven Kirkpatrick Mr. and Mrs. Robert C. King Henry L. Reid Mrs. Patricia C. Williams Grace Hunter Kohn Mr. and Mrs. Louie A. Pittman, Jr. Dr. Todd Reynolds David & Jennifer Kahn Family Foundation Dr. and Mrs. James C. Kincaid Marcella Spangler Mr. and Mrs. Stephen G. Abernathy Mr. and Mrs. Stephen H. McCracken Mr. and Mrs. G. E. Valentine, Jr. Charles M. Lokey Mr. and Mrs. J. Harold Shepherd Pen Lybrook Ms. Phyllis Brooks Marshall “Bud” Mantler Mrs. Patricia C. Williams Mike McElwaney Mr. and Mrs. Buck Murphy Boice McGrew Mrs. Charles H. Peterson Dee McKeever Mrs. James B. Ramage Martha McKinney Mr. and Mrs. Thomas G. Thompson, Jr. Mrs. Lou Miricle Mrs. Joan Woodall Hugh G. Moore Mr. and Mrs. Frank G. Carter Mr. and Mrs. Paul H. Timmers Joseph North Mrs. Patricia C. Williams Ronald Rice, Jr. Mr. and Mrs. Russ Lott Dorothy Richter Mr. and Mrs. Louie A. Pittman, Jr. Miriam Rittenbaum David & Jennifer Kahn Family Foundation Mr. and Mrs. J. Harold Shepherd Harrison Rogers, Jr., M.D. Mr. and Mrs. John E. Duggan Ivon C. Rolader Mr. and Mrs. George S. Williams Robert Louis Rosenkranz Mr. and Mrs. Lester Cohen Sallie Sellers Mr. John M. Tinley Qaiser Shamsy Deloitte Root Learning, Inc. John J. Shea Mr. and Mrs. Julian LeCraw, Sr. William E. Speaks Mr. and Mrs. Gilbert Bachman Mrs. Robert J. Brindell, Jr. Mr. and Mrs. Larry T. Earley Mrs. Louis H. Felder Mr. and Mrs. Wesley D. Jones Mr. and Mrs. Herbert R. McCartney Mr. Joseph L. Oprisch Saint Patricia Circle Mr. Emory A. Schwall Mr. and Mrs. J. Harold Shepherd Mrs. J. Lucian Smith Ms. Anastasia P. Truman Mrs. Mary Frances Woodside Betty Spiegelman – Beloved Mother and Grandmother Ms. Jody Steinberg Above: Some Atlanta Falcons football players visited Shepherd Center patients in late May. Left to right are Brandon Miller and Montavious Stanley with patient Brittany Thompson of Norcross, Ga. Mr. and Mrs. J. Harold Shepherd Mrs. Patricia C. Williams Joey Waters Country Garden Florist, Inc. Doris and Lowell Wheeler Mrs. Janis W. Gravely Milton H. “Jay” Woodside Mrs. Winston Wiant Margaret Yates Mr. and Mrs. Julian LeCraw, Sr. Mr. Homer S. Mullins Mrs. James B. Ramage Church Yearly Mrs. Thornton Kennedy Mr. Albert Lawton Ruth R. Stewart Mr. and Mrs. M. H. Woodside, Jr. John Henry Stokes Mrs. Martha T. Haymaker John M. “Buddy” Taulman Mrs. Joan Woodall Sarah E. Thorpe Mr. and Mrs. Frank G. Carter Mr. and Mrs. David H. Flint Mr. and Mrs. Louie A. Pittman, Jr. fa l l 2 0 0 8 4 1 “Friends of Robbie” Embark on Mission to Raise $100,000 for Shepherd Center When Shepherd Center spinal cord injury patient Robbie Svoboda’s friends learned he was undergoing rehabilitation at the hospital, many asked how they could help. Calling themselves “Friends of Robbie,” the group decided to use the opportunity to raise funds and awareness for Shepherd. An anonymous donor stepped forward with a challenge: If they could raise $50,000, he will match their donation to make the total $100,000. The funds will be directed to Shepherd Center’s Campus Renovation Fund to renovate the second floor therapy gym, which will be named in Robbie’s honor. Robbie, who lives in Atlanta, is deeply moved by his friends’ effort. “The idea of giving back to Shepherd Center in my name – I don't mean to sound vain – is awesome,” he says. “I would love to be able to give back to Shepherd for everything they have done for me and for the amazing advances they are continuing to have in treating catastrophic injuries.” For more information, visit the Shepherd Center website at www.shepherd.org and click on “Donate Now” or contact Dean Melcher at 404-350-7306 or [email protected]. Shepherd Center 2020 Peachtree Road, NW Atlanta, Georgia 30309 404-352-2020 Address Service Requested