THE CHILDREN`S IBD CENTER AT MOUNT SINAI
Transcription
THE CHILDREN`S IBD CENTER AT MOUNT SINAI
Spring is in the Air... I THE CHILDREN’S IBD CENTER AT MOUNT SINAI n this newsletter we are happy to share the art work of some of the children and teens who are followed at the Children’s IBD Center at Mount Sinai. Coming to the hospital for an appointment, test or admission can be a difficult experience for families. One parent shares with us how they make coming into the city for a check up quite an adventure. The next lecture offered by the Center will be given by Dr. Keith Benkov, on 5/1/07 at 5:00pm in The Zone, 1184 Fifth Avenue when he will present ‘Alternative Treatment in IBD’. We look forward to seeing you there. Art Work from our Patients SPRING 2007 Making the Most of the City By Sarah Philion U nfortunately, two years ago our four year old son was diagnosed with ulcerative colitis. Fortunately we found Dr. Benkov and the staff at Mt. Sinai Medical Center. He is now six, and doing well, but it is still necessary to visit the hospital at least a couple of times each year. We live in a small college town about three hours from New York City, four hours if we take the train. Our first couple of visits were day trips. Needless to say we came home exhausted and somewhat crabby. Although it’s not inexpensive, we decided it was worth it for us to travel to the city either the day before our scheduled appointment, or stay one night after the appointment, to take advantage of all the city has to offer. For example, on one recent excursion to the Big Apple we visited the Museum of Natural History, and last November we attended the Rockettes Christmas Spectacular at Rockefeller Center. You don’t always have to spend money to have a good time. We love to just walk the streets of NY, visit with friends and family who live there, find our way around using the subway and do business with the corner hot dog or bagel vendors. On our next trip we are planning to visit the Bronx Zoo. (Continued on page 2) Created by Alexa, age 5, with Crohn’s disease Created by Merima, age 14, with Crohn’s disease Making the most of the City continued... Through trial and error we’ve also found a very nice hotel that offers reasonable rates most of the time, and it’s easy to drive to. The Bentley is located just off FDR Drive at 59th Street, parking is free and it’s a short 10 minute subway ride up to Mt. Sinai. These side trips help ease the burden of a trip to the hospital and the accompanying stress and waiting time that inevitably go with it. We always try to make the trip an adventure for the whole family rather than something we dread. Even if you can’t do it every time you visit, New York is a great big, fun city with lots to do. You might as well make the most of it. While staying in the city may not be for everyone, there certainly are lots of activities close by! Justin created a picture of the Zone, the therapeutic play space for children and teens at Mount Sinai Kravis Children’s Hospital. A Trip to the City The next time you are at Mount Sinai, why not try to take in some of the sites? Mount Sinai is located in the center of museum mile on Fifth Avenue. The following museums are all near by: Metropolitan Museum of Art 82nd, 212-534-7710 Neue Galerie 86th 212-628-6200 Solomon R. Guggenheim 89th, 212-423-3500 National Academy Museum & School of Fine Art 90th, 212-369-4880 Cooper Hewitt, National design Museum 91st, 212-849-8400 The Jewish Museum 92nd, 212-423-3200 Museum of the City of New York 103rd, 212-534-1672 El Museo del Barrio 105th, 212-831-7270 Sam and Matthew, two of the youngest supporters of Team IBD having a well deserved break during the New York City Marathon last year! IBD Kids Chat We want to hear from you: Please join us for our next IBD Kids Chat group, 5/1/07 at The Zone, 1184 5th Ave, 5:00-6:00pm Resources for Families: To contact us or to receive updated information about Center events, please contact us by: www.IBDKids.com www.CCFA.org www.medlineplus.gov E-MAIL: [email protected] PHONE: 212-241-5415 WEB SITE: www.IBDKids.com Some suggestions from patients: Address: Children’s IBD Center at Mount Sinai 5 East 98th Street New York, NY 10029 www.Crohnszone.com www.dragonpack.com www.healingwell.com Please join for our next lecture: 5/1/07 Alternative Treatment in IBD The Children’s IBD Center at Mount Sinai is funded solely through philanthropy. Please contact us if you are interested in making a contribution to support our Center or in learning about other ways that you can help.