Best Medicine Matters Winter 2011
Transcription
Best Medicine Matters Winter 2011
The Best Medicine Matters winter 2011 Fam Famille Család Familia המשפחה Rodzina 가족 ةرسألا Gia đình Familj 家庭 Familja 家族 Perhe Rodina A publication of the Mount Sinai Hospital Foundation Pere Pamilya News Welcome to The Best Medicine Matters! As you’ve no doubt gathered, our theme is family! Family means many things at Mount Sinai Hospital. Every year, thousands of people experience their first days as a family here with the birth of their first child. Family members are considered part of our health-care team, as evidenced by our embrace of patient- and family-centred care. As you will read, patients and family members play a key role as advisors in departments throughout the Hospital and also are participating in the design process of Renew Sinai, our major capital redevelopment project. Heritage Toronto Commemorates First Mount Sinai Site On November 17, staff and donors had the pleasure of witnessing the presentation of a Heritage Toronto plaque at the site of Mount Sinai’s original building, at 100 Yorkville Avenue. It was an honour to be recognized by the City, and humbling to reflect on the Hospital’s history as a place of exceptional care and compassion for people from all walks of life. “The story of Mount Sinai Hospital is one of remarkable compassion, determination and hope for this city,” said Eric Slavens, Heritage Toronto board member. Foodie Fundraisers Meet Chef’s Challenge Patients and families have inspired our Grateful Hearts program, telling us they wanted a special way to say ‘thank you’ to caregivers. Now, you can show your Grateful Heart by making a donation and sending a card and pin to the physician, nurse, porter, administrator, volunteer or whoever made a difference to you or your family member. Go to supportsinai.ca to show your Grateful Heart! Family also refers to you, our donors. Like a trusted and treasured family, you support and sustain and celebrate Mount Sinai. We are so grateful for all that you do. Thank you! Over $1.1 million was raised for breast and ovarian cancer research at Mount Sinai Hospital last November in the inaugural Chef’s Challenge: The Ultimate Battle for a Cure, presented by World MasterCard®. The concept inspired fundraisers to raise a minimum of $2,500 just to attend. The top 50 fundraisers joined teams headed by celebrity chefs David Rocco, Jamie Kennedy, Lynn Crawford, Mark McEwan and Massimo Capra, and prepared food under the eagle eye of Chef Gordon Ramsay. Team Crawford took home 1st place, winning the judges over with a delectable crème brûlée. Continued on page 7 Mount Sinai Hospital Foundation In This Issue News . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 When Care Gets Intensive . . . . . . . . . . . . . . . . . . . . . . . . 3 ICU staff take care of patients and their families Ask An Advisor: Wills and Your Family . . . . . . . . . . . . . . . 4 Protect your loved ones with a legal Will Leading Research a Family Affair . . . . . . . . . . . . . . . . . . . 5 Dr. Andras and Kristina Nagy balance science and family Family Focus for New Families . . . . . . . . . . . . . . . . . . . . . 6 Mother and Baby Unit is expanding In Your Own Words . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 Left: For Kristina and Andras Nagy, scientific research is a family affair Drs. Stephen Lapinsky (left), Tracy Luk (right) and RN Betsy John (centre) in the ICU When Care Gets INTENSIVE “It was a frightening experience for our whole family.” Psychologist Daniel Goldberg, a teacher at The Toronto Heschel School, is recalling August 2010, when his 18-year-old daughter Rachel had a seizure while at camp in southeast Ontario. Fortunately, Rachel’s mother, Netta Zweig, worked at the camp and was with Rachel at the time. The girl was rushed to a local hospital, but her condition declined and she was flown to Mount Sinai Hospital. Her parents followed by car, arriving hours after their daughter had been admitted to the Intensive Care Unit (ICU). “Dr. Michael Christian at Mount Sinai had communicated with the local hospital, and we were reassured knowing that Rachel’s care would be in his capable hands,” says Dr. Goldberg. “As soon as we arrived, we received a detailed orientation regarding our daughter’s current status, treatment plan and prognosis, which was still uncertain. A social worker and chaplain were there to offer support.” The sudden illness of a loved one is terrifying. There is a comfort in seeing that person safely in hospital, but that relief is tempered by the challenges of trying to understand what is happening and coping with uncertainty about the outcome. Every member of the ICU team understands this. “We’re taking care of not just a single person, but a whole family that’s going through crisis,” says Dr. Christian. Betsy John, RN concurs. An ICU nurse who looked after Rachel, she says it’s important to build an open relationship. “I listen to the family and I talk about my experience; it’s important that they trust you.” Open lines of communication helped Rachel’s parents. “Dr. Tracy Luk also treated Rachel and we appreciated her patiently responding to our questions with a perfect balance of candour and reassurance,” says Dr. Goldberg. “We’re taking care of not just a single person, but a whole family that’s going through crisis.” D r . M ichael C hristian Even as the medical team steps in, the family has a role. “If the person is awake and conscious, they’re often scared, and family members can help to calm them. If they’re not conscious, they can sense their family members’ presence — having that familiar voice can be very important,” says Dr. Christian. Families are also advocates. “We’ve never met the patient,” points out Dr. Christian. “Some people are more comfortable on one side, some might be claustrophobic, and if family tells us these things we can adapt our care.” “Patient- and family-centred care has been our approach for a long time,” says Dr. Stephen Lapinsky, ICU Site Director. “We have no restrictions on visiting hours, and we don’t send families out of the room during daily rounds. We understand that hearing information on rounds can be very meaningful because they see that the whole team is involved in the patient’s care.” Families also participate in management. “We’ve had a family member on that team for years,” says Dr. Lapinsky, pointing to complaints about noise levels that inspired a study, which in turn inspired change. “When a patient is relatively well, their vital signs are taken every two or four hours through the night, instead of hourly. We adjusted machines so alarms are not going off repeatedly. Often the reasons are innocuous, but families don’t know that and they worry.” Happily for Dr. Goldberg and Netta Zweig, their worries dispelled as Rachel improved. The Grade 12 student is healthy and exploring her university options. “The nurses were wonderful, everyone was very caring, very professional, very reassuring,” says Dr. Goldberg. “We are profoundly grateful not only for the outstanding treatment Rachel received at Mount Sinai Hospital, but also for the shining humanity of the professionals who treated her.” 3 Ask an Advisor: Wills and Your Family Elena Hoffstein It’s estimated 70 per cent of Canadians do not have a legal Will. Elena Hoffstein, partner at Fasken Martineau DuMoulin LLP and a member of our Legacy Giving Committee, explains why a Will is important to you and your family. Q Why is it important to draft a Will? A Having a Will allows you to control the destination of your assets. You can stipulate the persons you want to benefit and the ages at which they’re to receive their inheritance. For example, you can structure a Will to set up trusts for disabled children to ensure that they remain entitled to any government benefits they are receiving. If you are in a second marriage situation you can provide benefits for your current spouse, and ensure that the children of the first marriage receive an inheritance. You can arrange to leave legacies to charitable organizations. Also, if properly structured, a Will can result in probate tax and income tax savings. Q What happens if I don’t have a Will? A All provinces provide for a legislated distribution when someone dies intestate, or without a legal Will. In Ontario, a preferential share of $200,000 goes to a surviving spouse, and the balance of the estate is divided depending upon the number of children. If there are no children, the spouse receives everything. If there is one child, the spouse and the child share the balance. If there 4 is more than one child, the spouse receives one-third and the children share the remaining two-thirds. The inheritance of minor beneficiaries will be paid into court, which will administer the inheritance while the child is under 18. If a couple is living in a common-law relationship, a non-married partner does not inherit anything, although he or she may have a support or other legal claim against the estate. An existing Will is nullified by marriage. Even if you change nothing, you should make a new Will prior to your marriage, but it must state that it has been made in contemplation of the marriage. Q Should a Will be updated? A You should review and update your Will regularly. Your personal circumstances may change: you may retire, a child may become disabled, family members may move to other jurisdictions, etc. Q What are the benefits of leaving a charitable gift? A The main benefit is that you’re supporting a cause that is important to you, but there are also tax savings because of the availability of charitable tax credits, which are enhanced in the year of death. Certain assets trigger tax and there may be tax advantages to leaving certain assets as bequests, for example, RRSPs. In addition, there are potentially additional tax benefits to making charitable gifts through your corporation. Q Where should a Will be stored? A This is an important document, so a safe deposit box is recommended, or your lawyer may be able to accommodate storage of your Will. Q What is your opinion on Will kits? A Planning a Will is complex and unfortunately Will kits generally do not accommodate the necessary complexities. Ambiguous language may create confusion, resulting in a lack of understanding of the terms used, and potential litigation following your death. Do-it-yourself Wills are often filled in incorrectly or not signed properly. People think they are cost efficient, but they may end up being a very costly option. Do you have a question? Send it to [email protected] Leading Research a Family Affair Kristina and Andras Nagy with 5-year-old Daniel and 3-year-old Emily For researchers Andras and Kristina Nagy, science brought them together and unites them still, making their collaborative research efforts a true family affair. The couple hail from Hungary and met at a research workshop in Germany 10 years ago. The Nagy lab at the Samuel Lunenfeld Research Institute has produced some of Canada’s most innovative work in stem cell biology, and even with the non-stop demands of research, Andras and Kristina find time for their children. “We have a very simple lifestyle: no separation between professional and private.” D r . A ndras N agy The Nagy duo collaborate not only in the lab, but in their home as well. “Our whole lives are one big collaboration — family, work and everything in between,” says Kristina. “We have six children in Toronto and overseas. The way we balance things is by doing everything we can together.” Andras, a Senior Investigator world-renowned for his pioneering work in generating Canada’s first human embryonic stem cell lines as well as an innovative, non-viral method to reprogram skin cells, believes that their team approach to brainstorming and creative problem-solving is the essence of their success both at work and home. “We have a very simple lifestyle: no separation between professional and private. After the kids are in bed, we talk about our latest ideas, and how we can solve problems that we hadn’t predicted.” Kristina explains that through their team approach to research, she and Andras have been able to generate specific stem cell lines that have enabled deeper understanding of stem cell biology. For example, they worked together to explore the process of changing fully mature cells of the body (known as somatic cells) into a pluripotent state (i.e., cells that can develop into most other cell types), and understand the molecular and genetic changes that occur during the cells’ reprogramming. “After a lot of brainstorming and through the myriad of connections with other research laboratories that Andras has established over the years, we finally achieved a breakthrough,” says Kristina. Andras notes that having a wife who is also a researcher is a key advantage. “We constantly challenge each other, which serves as great feedback for both of us to optimize the next steps in our work. Kristina truly understands what commitment to science means.” “After we’ve talked to the kids about their days and gotten them off to sleep, our conversations drift into what’s happening in the lab,” says Kristina. “We discuss everything: research plans, manuscripts, grant applications, problems and joys.” “After dinner we pull out our computers, sit opposite each other and concentrate on work,” says Andras. “Occasionally we email each other! And at 11 pm or midnight, we close down the day: no separation between weekdays and weekends.” T he N agy l a b will expand their research expertise later this month, when part of the fourth floor at 25 Orde Street is transformed into a centre for research into stem cell biology and regenerative medicine. Sharing the space will be Dr. Marc Grynpas’ team, allowing for new collaborations and research into bone-related diseases and their possible treatments. Family Focus for New Families “The care at Mount Sinai is excellent, but sometimes the accommodations aren’t so accommodating.” Toronto writer Erin Dym is recalling the birth of her first son, Ari, in 2009. “It was very difficult trying to breastfeed, sleep and host visitors in a semi-private room. There was too little space and too little privacy at a time when I needed it most.” “We hear that a lot. Happily, soon our moms will have a much better experience,” says Alison Gilmour, Nursing Unit Administrator, David & Stacey Cynamon Mother and Baby Unit, which in mid-2011 will be the first occupant of the sparkling new Lawrence and Frances Bloomberg Centre for Women’s and Infants’ Health (the Centre). Redevelopment of the Centre will modernize its technology, equipment and environment, and increase its square footage by 60 per cent. The expansion is essential: in the last decade, this patient population has almost doubled and our program has grown into the largest and most comprehensive in the province, with no change in physical space. The Mother and Baby patient rooms will line the perimeter of the 16th and 17th floors, to take advantage of the healing qualities of natural light. Along with more physical space, everything has been carefully designed to provide mom, baby and significant other with room to bond. For example, wall-mounted equipment, such as oxygen and infusion pumps, will be on articulated arms, easily stowed out of the way when not in use. “More space will increase the privacy and make it easier for new moms while they’re learning to care for their baby,” says Alison. “It will also help us to keep the partner and close family members involved. Our nurses really work at education. It’s so overwhelming when you have a new baby, and including the partner is really important.” “The environment is less medically focused,” says Dr. Mathew Sermer, Associate Chief, Obstetrics and Gynaecology. “The whole design mimics the home environment as much as possible. It’s comfortable, yet with all the necessary safety features.” The redevelopment team incorporated evidence-based building design to create a state-of-the-art facility that is therapeutic, supportive of families and efficient for staff. Research has shown that patient-friendly buildings can reduce stress, improve safety and positively affect the quality of patient care and health outcomes. An abundance of natural light, soothing colour schemes, thoughtful placement of equipment and provision of well-designed family spaces adds up to a thoroughly modern, healing environment. 6 Alison Gilmour, Nursing Unit Administrator, Mother and Baby Unit, looks forward to providing new families with a brand-new environment “Everything has been carefully designed to provide mom, baby and significant other with room to bond.” alison gilmour , nua Dr. Sermer remembers when nurses and physicians designed labour and delivery rooms. “Now we have family representatives for every area and they have a strong impact. For instance, they made sure fathers will have a place to stay in the Mother and Baby Unit and that family lounges include a play area and kitchenette.” Moms like Erin Dym say more private rooms will make a big difference. “I had a private room when my second son, Josh, was born,” says Erin. “I could have family and friends visit and have time and space to bond with my new baby. I could have stayed in one for a week!” Dav id & Stace y C y n a m o n M other And B a by U nit E x pa nds The new space will house: • 40 patient rooms, of which 26 are private, up from the current 10 • Bigger, more comfortable patient rooms. For example, the 12 semi-private rooms will be up to 68 square feet larger • A comfortable lounge with waiting area, kids’ zone and kitchenette • Dedicated rooms for breastfeeding support, hearing screening and procedures such as circumcision, wound and infection care News Continued First in Geriatrics Care Mount Sinai has become the first major academic health sciences centre in Canada to announce Geriatrics as a core strategic priority. Recently appointed Dr. Samir Sinha, Director of Geriatrics, is overseeing a number of initiatives, including a new Acute Care for Elders medical inpatient unit for seniors at high risk for functional and cognitive decline. As well, Mount Sinai will soon become Canada’s first hospital to offer all frontline staff three levels of training in geriatrics education. Mount Sinai Role in Ontario Health Study A team of Mount Sinai Hospital researchers and clinicians, in partnership with universities, medical research institutes and hospitals across Ontario, is conducting a new health study on the population of Ontario, with support from the Canadian and Ontario Governments. The Ontario Health Study is aimed at investigating the factors that increase individual and community risk of developing cancer, heart disease, diabetes, asthma, Alzheimer’s disease and other common illnesses. “We will follow people across their entire adult lifespan and we hope that this study outlives those of us who started it,” said Professor Lyle Palmer, Executive Scientific Director of the study, and a Senior Investigator at the Samuel Lunenfeld Research Institute of Mount Sinai Hospital. Sarcoma Cancer Foundation of Canada Establishes Fellowship The Sarcoma Cancer Foundation of Canada held its official launch at Mount Sinai and announced a $250,000 gift to establish the Vera Arajs Clinical Research Fellowship in Sarcoma at Mount Sinai Hospital. “This generous gift will allow us to train new sub-specialists in the best sarcoma treatment practices who can then go out across Canada and elsewhere in the world to provide the highest level of cancer care in their communities,” said Dr. Jay Wunder, Surgeon-in-Chief, Head, Division of Orthopaedic Surgery, Rubinoff-Gross Chair in Orthopaedic Oncology and Leadership Sinai Chair in Surgery at Mount Sinai Hospital. Mount Sinai a Multiple Award-Winner 2010 was a banner year for awards! Mount Sinai was recognized as an exceptional place to work when it was named a Top GTA Employer in The Globe and Mail for the fifth consecutive year. We won the Energy Efficiency Award at the 10th Green Health Care Awards, sponsored by the Ontario Hospital Association (OHA) and the Canadian Coalition for Green Health Care. Mount Sinai was one of four Ontario hospitals to win a Platinum Quality Healthcare Workplace Award sponsored by the OHA and the Ministry of Health and Long-Term Care HealthForce Ontario. One initiative contributing to this award was our role as the first North American hospital to conduct a workplace census. Upcoming Events April 10 Yoga in Motion April 28 Hold’em for Life Charity Challenge May 4 Da Vinci Gala For information about these and other events, please call 416-586-8203 or visit the Calendar of Events at www.mshfoundation.ca June 9 Corrado Family Golf Tournament June 13 The Classic: 17th Annual Mount Sinai Hospital Golf Tournament In Your “ Own Words ” “As a team, the Sarcoma Unit doctors gave us all the medical information they could and allowed us to understand it, absorb it and respond to it. If something took a while to absorb, they understood if we came back later with questions. Towards the end of Ken’s treatment, Dr. Gladdy took the opportunity at the end of her day to respond to our questions. She was more than giving; she was so generous with her time. Her patience and her compassion and her eagerness to have us understand were absolutely outstanding.” — Gail Gortmaker “I went to Mount Sinai Hospital for day surgery and want to sincerely thank everyone for their care, compassion and sensitivity. I had put off seeking medical help for a long time due to my own insecurities and worries. Having not had a medical procedure for years and years, being scheduled for surgery, even just day surgery, was a scary thought. But I found everyone at the Hospital to be so caring and sensitive that the day went by easily and with less anxiety than I had thought. I really thank everyone for having dedicated their lives to helping others. You all really do.” — Nicole Adesoye “When I think of my experiences with Mount Sinai I weep with gratitude. They say you can’t put a price on health care and they are right. Your staff is priceless. They are every bit as skilled in dealing with people and emotions as they are in the medical field. You make a difference every single day, you certainly did for us. Thanks for really seeing us, the patients, and for healing not only the physical wounds but the emotional ones as well. You are all angels to me.” — Heather Sneddon Share your story with us! Send an email to [email protected] or contact us via Facebook or Twitter. We look forward to your comments 1001 – 522 University Avenue Toronto, Ontario, Canada M5G 1W7 <Field 17 – Sal_Addressee> <Field 8 – Address line1> <Field 9 – Address line 2> <Field 10 – Address line 3> <Field 11 – Address line 4> <Field 12 – Address line 5> <Field 13 – city> <Field 14 – province> <Field 15 – postal code> When you make a gift, the person you are honouring will receive a thank you card and a beautiful pin they can wear in recognition of your gratitude and generosity. WAYS TO HONOUR YOUR CAREGIVER 201004385 DM11B 1001 – 522 University Avenue, Toronto, Ontario, Canada M5G 1W7 t 416-586-8203 f 416-586-8639 [email protected] mshfoundation.ca Charitable Registration #119048106 RR0001