the Survey Results of NGOs Providing

Survey Results:
Humanitarian Organizations Providing Pediatric
Cardiovascular Services in Resources-Limited Countries
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Survey is designed to identify humanitarian organizations that
provide cardiac surgeries and/or catheterizations to children living in
regions of the world where access to such specialized care is limited.
Sponsors
The Global Council on Pediatric and Congenital Heart Surgery Services
of The World Society for Pediatric and Congenital Heart Surgery
Advocacy Fund Ann & Robert H. Lurie Children’s Hospital of Chicago, IL
Principle Investigator
Nguyenvu Nguyen MD
Investigative Team
Nguyenvu Nguyen MD Jeffrey P. Jacobs MD
Joseph A. Dearani MD Samuel Weinstein MD, MBA
William Novick MD Marshall L. Jacobs MD
Jeremy Massey Sara K Pasquali MD, MHS
Henry L. Walters III MD Satish Bhat MS, MBA
David Drullinsky MD Giovanni Stellin MD
Christo Tchervenkov MD
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Data Summary
Survey Monkey
•
•
Survey distributed to WSPCHS members, PediHEART.net, LinkedIn cardiovascular
groups with 94 responses as of 2/8/13
Identified 78 unique entities: NGOs, private foundations, individuals
Humanitarian organizations funding sources
•
Individuals and private foundations (48%)
•
Individuals, private foundations, and local governments (15%)
Visiting team governments (4%)
Local governments (4%)
•
•
Scouting mechanism prior to missions: Yes (41%); No (31%)
Database tracking outcomes: Yes (56%); No (19%)
International Quality Improvement Collaboration participation
•
Yes (12); No (62)
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Current Pediatric Cardiovascular NGOs Scope of Services
Link to interactive map
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
SCOPE OF SERVICES: Number of Missions per Year
(Percent of responses)
40
35
30
25
20
15
10
5
0
1 per year
2-5 per year
6-10 per year
Greater than 10 per year
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
SCOPE OF SERVICES: Types of Missions
70
60
50
40
30
20
10
0
Surgical missions
Interventional cath missions
Diagnostic cardiology missions
Didactic and clinical training
missions
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
SCOPE OF SERVICES:
Number of Surgeries Performed per Mission
30
25
20
15
10
5
0
5 to 9
10 to 15
Greater than 15
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
SCOPE OF SERVICES: Types of Surgical Cases
70
60
50
40
30
20
10
0
Neonates,
cardiopulmonary
bypass (cpb)
Neonates, non-cpb
Infants and children, Infants and children
cpb
(1 month-18 years),
non-cpb
Adults, cpb
Adults, non-cpb
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
SCOPE OF SERVICES: Cardiac Catheterizations
(Percent of Responses)
60
50
40
30
20
10
0
No cardiac catheterizations
Diagnostic cardiac catheterizations
Diagnostic AND interventional cardiac
catheterizations
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Local Programs Independent Surgeries
35
30
25
20
15
10
5
0
Cases with cardiopulmonary bypass, non-neonates
Cases without cardiopulmonary bypass, neonates
with coarctation and PDA
No interventions performed in between missions
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Types of Local Healthcare Partners
60
50
40
30
20
10
0
Teaching hospitals affiliated with medical
schools
Free-standing public hospitals
Free-standing private hospitals
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Members of Visiting Teams
Local
Respiratory
therapist
Biomedical
engineer
Pediatric
and adult
cardiac
surgeon
Respirator
y therapist Pharmacist
Adult
Pediatric
cardiologis
cardiac t
intensivist
Pediatric
cardiac
surgeon
Pediatric
cardiologis
t
Adult
cardiac
surgeon
Pediatric
ICU nurses
Members of Local Team
Local
Local
Pediatric
Local Adult Biomedical
Local
cardiac
cardiologist engineer
Pharmacist surgeon
Local
Pediatrician
with cardiac
experience
Local
Pediatric
cardiologist
OR nurses
Pediatric
intensivist
Pediatric
and adult
perfusionis
Adult
t
perfusionis
t
Pediatric
perfusionis
t
Pediatric
anesthesiol
Pediatric
ogist
cardiac
anesthesiol
ogist
Local
Pediatric
cardiac
intensivist
Local
Pediatric Local Adult
Local
intensivist perfusionist Pediatric
Local
perfusionist
Pediatric
and adult
perfusionist
Local
Pediatric
and adult
cardiac
surgeon
Local Adult
cardiac
surgeon
Local
Pediatric
ICU nurses
Local OR
nurses
Local
Pediatric
anesthesiolo
gist
Local
Pediatric
cardiac
anesthesiolo
gist
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Levels of Local Support (Percent of Responses)
40
35
30
25
20
15
10
5
0
Program support from Program AND financial Program support from Program AND financial Financial support comes
government
support from
non-government
support from nonmostly from visiting
government
agencies
government agencies
team
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org
Barriers Towards Services Expansion
50
45
40
35
30
25
20
15
10
5
0
Limited by host program
infrastructure
Limited by funding
Limited by equipment
Limited by time
Limited by volunteers
World Society for Pediatric and Congenital Heart Surgery-www.wspchs.org