Summer - Wisconsin Parkinson Association

Transcription

the
netw rk
Summer 2012
Green Bay Packer Legend
Forrest Gregg
Tackles Parkinson Disease
table of contents
association news
2
3
5
6
7
7
8
9
Letter from the President
From the Executive
Events Calendar
2012 WPA Tulip Award Presented to Wayne and Nancy Kreklow
Would You Like to Receive The Network?
WPA Business Partners
Tulip Club Members
Recent Community and WPA Fund-raising Events
medical • clinical updates
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12
13
14
The Issue of Trauma as a Causative Agent in Parkinson Disease
Going Social
Caregiver Stress and Third-degree Empathy
Ask the Doctor
wellness • fitness • living well
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17
19
Cover Story: Green Bay Packer Legend Forrest Gregg
Tackles Parkinson Disease
Constipation and PD
LSVT® LOUD – The Power to Communicate Well
research
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23
Parkinson Disease and Related Disorders, Part I
All Good Things…
support groups • exercise groups
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Support Groups • Exercise Groups
donations • memorials
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Donations & Memorials
Cover photo: Former Green Bay Packer player and head coach Forrest Gregg
The mission of the Wisconsin Parkinson Association is to expand medical professional and public
awareness and understanding about Parkinson disease that will lead to maximum support, the best
individual health care, assistance for caregivers and families, and increased funding for research.
association news
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Letter From the
President…
by: Keith Brewer
WPA Board President
As I begin to write the message for this
magazine, I am filled with mixed emotions.
I have had to make some difficult decisions
over the last six years as your president, and
this one was no different. I have decided
to step down as president of the Wisconsin
Parkinson Association, a position I have
thoroughly enjoyed. I have given careful
thought and reflected upon the things that I
feel have brought great value to the WPA in
the last six years, and here are a few:
• a re-energized organization that has an
active board of directors and outreach
into the communities we serve
• a wholly separate organization that
is financially stable and able to stand
alone without reliance on national funds
• the creation of an executive director
position to focus on the organization
and its goals and objectives
• more community events and
awareness-raising opportunities
to support our organization
Over the past six years, I have had the
privilege of working with so many great
people and meeting so many wonderful
people who have Parkinson disease or
love and support someone with the disease.
I know that my mother, who lived with
Parkinson disease for many years, would
be proud of what I have tried to contribute
to the organization.
What makes this decision a little easier for
me is twofold: My wife and I just had our third
child, a little girl named Alison Ann Brewer,
born on May 15. She joins her big brothers
Max, age three, and Jimmy, age six. As a
stay-at-home dad, I find that my family life
is becoming busier and busier, and I want
to be sure that I can fully give my effort to
my family as well. The other factor that
makes this decision easy is that I do not
have to step away entirely. The board of
directors has granted me “president emeritus”
status, which means that I can be as involved
as I am able without obligation such as that
of a board member or officer. I do plan
on staying involved whenever possible, as
I am passionate about this cause.
Taking over the position of president is a
very gifted and capable man, Michael
Hillman. I have full confidence that his
leadership will continue to guide the WPA
in the years to come.
Thank you to each of you who have put your
confidence in me over the past six years.
I hope that I have served you well. I look
forward to what the future has in store for me
and my family, as well as for the WPA.
Warmest regards,
Keith Brewer
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From The
Executive…
by: Jay R. Blankenship,
M.S.W., C.F.R.E.
Parkinson Disease Awareness
Before I talk about PD awareness, I want to
acknowledge and thank Keith Brewer for his
incredible dedication and commitment to the
WPA and the Parkinson community as president
of the WPA board of directors for the past six years.
Keith is stepping down from the president’s position
to spend more time with his growing family. Under
his leadership, the WPA has developed into one of
the top regional Parkinson disease associations in
the country, serving more than 10,000 people per
year and providing critical and creative education
and support programs for people with PD. During
his service, the WPA hired its first executive director,
developed its first strategic plan, grew its staff
structure, added special events and programs,
expanded its support group network, and increased
revenue by more than 55%. Because of his deep,
personal passion for this cause, Keith provided the
vision, creativity, and process to help make it happen.
Even though Keith will be stepping down as president,
he will remain on the board to continue sharing his
insight and enthusiasm for fighting against PD. I hope
you all will join me in thanking Keith for his service
and dedication.
If you have read previous articles by me in this
magazine, you’ll recall that I have mentioned our
concern for the number of people with Parkinson’s in
Wisconsin and a growing concern that there may be
hundreds and possibly thousands of people with PD
in our community who have been misdiagnosed or
not diagnosed who need care and treatment. I have
also discussed the problem of lack of awareness of
the symptoms of PD in the general community and
among health-care professionals. It is with this in mind
that the WPA decided to launch a Parkinson disease
awareness campaign during Parkinson’s Awareness
Month this past April.
During this campaign we had two messages to share.
For the first – “Would you recognize Parkinson’s?” –
we created ads, posters, and billboards with pictures
of many different people with PD, including men,
women, young, old, and from a variety of different
backgrounds and professions. The idea was that PD
can affect anyone at any time, and it doesn’t always
look like the stereotype that is often depicted.
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The second message was “Could it be Parkinson’s?”
Again, we created ads, posters, and billboards,
each with a different PD symptom and image.
One example was “Small handwriting? Could it
be Parkinson’s?” The concept here was to try to
educate people about the less-common symptoms
of Parkinson’s in hope that they may recognize
symptoms in themselves or a loved one.
The idea was that PD can
affect anyone at any time, and
it doesn’t always look like the
stereotype that is often depicted.
In addition to the above efforts, we also ran a series of
radio ads, and I gave brief interviews on WTMJ radio
and the “Morning Blend” show on TMJ4 television. We
also redesigned, updated, and launched our new
website (www.wiparkinson.org).
The results of this mini-campaign look promising. We
received dozens of calls during the month of April
from people looking for more information or help
with their Parkinson’s. A couple of people needed
a referral to movement disorders specialists for a
possible diagnosis of PD.
This is just one indication of the effect of our
campaign. Other impacts are hard to measure.
Who knows how many people saw the ads and
learned something but just didn’t need anything
at that time? The idea is to increase awareness
and understanding so that when the time comes,
people will know where to turn for help.
I want to thank all of the volunteers who agreed to
share their Parkinson story with us and allow us to use
their images for the campaign. It is not always easy
to announce to the world that you have PD.
We saw a huge jump in visits to our website. In fact,
total visits were up 125%, and unique visits increased
by 122% in April. A total of 1,178 visited the site in April,
with 523 of these being new visits. Seventy percent of
these visits were from new people.
If you saw or heard any aspects of this campaign, I
would love to hear your feedback or ideas. You can
always feel free to contact me directly at 414-219-7916
or [email protected].
association news
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Events Calendar
WPA Education Programs
For details about the WPA education programs that
follow, to register, and for information about public
screenings for Parkinson disease, contact Raven
Hamilton at 414-219-5768 or [email protected].
Tuesday, August 28
Newly Diagnosed Workshop
Aurora Sinai Medical Center (Milwaukee, WI)
Date TBA – call 414-219-5768 for details
Understanding PD Workshop
Holiday Inn (Eau Claire, WI)
Monday, September 17
Understanding PD Workshop
(Fond du Lac, WI)
Friday, October 5
Living Well Conference, Illinois
Cliffbreakers River Suites & Conference Center
(Rockford, IL)
Friday, November 2
Living Well Conference, Iowa
(Davenport, IA)
Parkinson Disease Symposia
Saturday, September 15
Annual Symposium for People with Parkinson’s
and Their Families
Presented by Froedtert & Medical College
of Wisconsin
Country Springs Conference Center (Waukesha, WI)
For more information, call 414-805-8326.
Annual Symposium for People with Parkinson’s
and Their Families
Presented by APDA, Wisconsin Chapter
St. Mary’s Hospital (Madison, WI)
For more information, call 608-229-7628.
Community Events for
Parkinson’s Support,
Education, and Research
Sunday, August 19
The Bottle Milwaukee’s 5th Annual Charity
Softball Tournament
KK Sports Complex (Milwaukee, WI)
Milwaukee south-side tavern,
The Bottle Milwaukee, is proud
to sponsor its fifth annual charity
softball tournament; this year
it has generously designated
the WPA as the recipient of the proceeds. In addition
to the eight-team, pool play–style, coed tournament,
the event will feature hot dogs, brats, beverages, raffles,
and an after-party at The Bottle Milwaukee.
For more information and to donate raffle items,
contact Matt Puthoff at [email protected].
Fall Parkinson Ride
Monticello, WI
Initially started by two friends to honor their grandfathers
who both had PD, the annual Fall Parkinson Ride brings
motorcyclists together for a fund-raiser for Parkinson
research. The ride traverses beautiful Wisconsin farmland
and last year attracted nearly 120 participants. Also
featured is a live auction.
For information about helping, donating, or joining
the ride, contact Brandon Hendrickson at
[email protected].
association news
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2012 WPA Tulip Award Presented to
Wayne and Nancy Kreklow
At the Kenton Kilmer Parkinson Disease Symposium on
June 29, held at the Country Springs Hotel in Waukesha,
Dr. Gary Leo presented the 2012 Tulip Award to Wayne
and Nancy Kreklow of New Glarus, Wisconsin.
The WPA Tulip Award was created in 2009 to recognize
a worthy individual, couple, or family who have
shown through their actions a dedication and
commitment toward helping people with Parkinson
disease, educating the public about Parkinson
disease, and supporting research to discover the
cause, better treatment options, and a cure.
April 21, 2012, marked the fourth year of an event
that Wayne and Nancy Kreklow have dedicated
themselves to planning and providing called “All
Shook Up for Parkinson’s.” Every spring, on a Saturday
in April, they transform the small town of New
Glarus into a Las Vegas nightclub with Elvis Presley
performing as the main event. More than 300 people
swarm into the intimate restaurant of Flannery’s
Wilhelm Tell Supper Club to enjoy wonderful baked
goods, an eye-catching tower of cupcakes, hot dogs,
and kettle corn; bid on the bountiful silent auction
filled with UW–Wisconsin memorabilia; and finally
scream their appreciation of the Elvis tribute artist,
Tony Rocker, and The Comeback Special.
It began in the fall of 2008, when Wayne “had an
idea.” Having Parkinson disease, he felt a need to
help others and was anxious to get the ball rolling to
hold a fund-raiser. Wife Nancy was willing to help but
knew that things don’t happen that fast: it would take
time to plan, with decisions to make and details to
work out. Wayne was not deterred. He contacted Tony
Rocker, who had performed at Nancy’s nephew’s
wedding reception months earlier. As they had left
the parking lot after the reception, Wayne looked at
Nancy and said, “I don’t know how I’m going to do
Wayne and Nancy Kreklow shown with two of their
four children: daughter Michelle Koerten and son
Duane Kreklow
it, but I’m going to get him to come to New Glarus.”
Nancy laughed and asked how he thought that was
going to happen. Wayne smiled.
Thanks to committee organizers and generously
supported by friends, family, and the community,
this event has raised $10,000 each year since 2009
for Parkinson research. Nancy says, “Thinking back
to when it all began, Wayne had a really good idea.
Tony Rocker is performing in New Glarus, money is
being raised for the WPA, and we are spreading the
word about Parkinson’s through this event and our
website at www.allshookupforparkinsons.org.” She
agrees, “In the end, Wayne got the last laugh.”
The WPA and Parkinson Research Institute rely on
people like the Kreklows to help us achieve our vision
of creating a world without Parkinson disease. Their
work and dedication are a tremendous example of
true philanthropy.
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Membership
Would You Like to Receive The Network?
If you enjoy reading The Network, find it to be a valuable
resource, and would like to receive future issues – and if
you are not already a member of the Wisconsin Parkinson
Association – join today! At the annual, basic level of $15
for individuals or $25 for couples, you will receive quarterly
issues in the mail and a membership card for discounts
with our Business Partners, free access to our resource
library and referral program, and discounts at WPA events
and programs and on WPA products and gifts. Members
at higher levels receive additional, special benefits.
If you are not certain about your membership status or
wish to renew your membership, please call Juliette
Hayes at 414-219-7060 or 800-972-5455. To begin
a new membership, simply fill out the envelope inside
this magazine and mail it with your payment.
Thank you for your help. Through your membership in the
WPA, you can become part of a community that works to
provide better care and a cure for this debilitating disorder.
Your membership helps us to offer programs and services
to those living with PD. For the past 25 years, the WPA has
provided education and support as well as increased
public awareness and understanding about the disorder.
Additionally, the WPA has raised more than $1 million since
2001 to fund research into improved treatments and the
causes of Parkinson disease.
Call today to receive a WPA
membership brochure! 800-972-5455
WPA Business Partners
When you become a member of the WPA,
you will receive a WPA membership card
that you can use for discounts with various
providers that participate in our Business
Partners program. The following companies
have joined our Business Partners program
and have agreed to offer a discount on their
products or services to paid members of the
Wisconsin Parkinson Association. We thank
all companies for their participation in
the program.
Appleton & Burlington, WI
Calumet, Winnebago, Outagamie,
Brown, & Waupaca Counties
In-Step Mobility
Products, Inc.
Bloomington & Mankato, MN
Quick Bib, LLC, Clothing Protection
Milwaukee County
Milwaukee-North & Eau Claire, WI
association news
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Tulip Club Members
The WPA’s membership program offers a range of membership levels. The Tulip Club is a special
membership group that provides additional philanthropic support for our programs and
services. Members of this club receive special benefits for their commitment to the WPA. Tulip
Club membership includes couples and is available at the Lifetime ($5,000), Benefactor ($1,000),
Founder ($500), or Supporter ($250) levels.
We are pleased to list our current Tulip Club members and thank them for their generous support:
Tulip Club – Benefactor
Mr. & Mrs. Roger Ritzow
Ms. Betty Sancier
Mr. & Mrs. Richard Schumann
Mr. Edmund J. Vojtik
Mr. & Mrs. Mark Wooster
Tulip Club – Founder
Mr. & Mrs. Ken Muderlak
Mr. & Mrs. Scott Semling
Tulip Club – Supporter
Mr. & Mrs. Donald S. Abrams
Mr. & Mrs. Duane Acker
Ms. Barbara Anderson
Mr. & Mrs. Ron Becker
Mr. & Mrs. Jay Blankenship
Mr. & Mrs. William Boles
Mr. & Mrs. Keith Brewer
Mr. & Mrs. Neal Buteyn
Dr. & Mrs. Robert Cooper
Mr. & Mrs. Kenneth Hunt
Mr. & Mrs. Bill Kanzenbach
Mr. & Mrs. Mandel Katz
Mr. & Mrs. Ron Muehlhausen
Sunday, October 7, 2012 | Italian Community Center
631 East Chicago Street | Milwaukee, WI
(in the Historic Third Ward)
Doors open at 11:30 | 12:00 noon kickoff vs. Indianapolis Colts
You and your family won’t want to miss this fun-filled afternoon!
Come watch the game, televised live on projection screens, and enjoy:
• passed appetizers and gourmet tailgate-themed food
• football face painting for the kids
• 50/50 raffle and silent auction
The committee’s honorary chairman, former Green Bay Packer player
and head coach, Forrest Gregg, will be there, along with other retired
NFL players. Support your team and, at the same time, raise money
to support those living with Parkinson disease!
Mr. & Mrs. Robert Norman
Ms. Cheryl Prescott
Mr. & Mrs. George Prescott
Mr. & Mrs. Donald Randall
Bill & Betsy Reilly
Ms. Jean Rinka
Mr. & Mrs. George Roman
Mr. & Mrs. Peter Weber
Forrest Gregg
Former Green Bay
player and head coach
50;
details
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association news
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Recent Community and
The WPA is an independent, nonprofit
organization that must raise 100% of
our revenue through donations,
memberships, and fund-raising events
in order to serve more than 10,000
people annually through support
groups, conferences and workshops,
free information and resources about
PD, free community screenings, and
much more.
But we are not alone. Individuals,
families, businesses, and schools step
up with their own fund-raising events
and offer the proceeds to the WPA. They
plan, organize, negotiate, publicize, and
accomplish raising money and goodwill
from members of their community to
help us provide services and information
about PD to those who need it. The WPA
truly, deeply appreciates the work
of this volunteer community!
On April 14, Craig High School held its
second annual “Pace for Parkinson’s”
5K run/1-mile family fun walk at
Riverside Park in Janesville, Wisconsin.
The fund-raiser, created to honor Craig
High School’s retired principal, Dr. Mike
Kuehne, drew 319 participants and
garnered $7,770 – more than twice last
year’s amount! – for the WPA; the funds
are being used for support, education,
and research. The first-place finisher
was 12-year-old Nathen Farrell, who
came in at 19:04. Mark your calendars
for next year’s run/walk on April 13!
We commend Craig High School, the
event organizers, and the community of
Above: Pace’s organizers Shelton Evans,
Cherie Farrell, Emily Dresen, and
Betsy Nelson; left: Dr. Mike Kuehne
Janesville for its outpouring of love
and support for Dr. Kuehne and
others living with PD.
On April 21, Wayne and Nancy
Kreklow hosted the fourth annual
“All Shook Up for Parkinson’s”
Elvis tribute at Flannery’s Wilhelm
Tell Supper Club in New Glarus,
Wisconsin. As in past years, this
event raised an amazing $10,000
for Parkinson research! (See page
6 for more news on Wayne and
Nancy Kreklow.) In addition to
many unique silent auction items
were collage prints by Dan Ott that
he created from WPA brochures,
postcards, and magazines. The WPA
and the Parkinson Research Institute
thank the Kreklows, their family and
friends, and the generous people of
New Glarus.
Artist Dan Ott and his collage print
association news
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WPA Fund-raising Events
The 15th annual LaVerne Brewer
Memorial Golf Outing took place
on May 12 at Ironwood Golf Course
in Sussex, Wisconsin. The friendsand-family day attracted 78 golfers
and featured on-course games and
a golf-ball toss during the cocktail
hour. Over the past fifteen years, the
total raised from this event is more
than $272,000.
Scenes from the
LaVerne Brewer Memorial
Golf Outing
The WPA hosted its first WPA Open
against Parkinson Disease golf
tournament on June 5 at The Legend
at Brandybrook in Wales, Wisconsin.
Eighty-four golfers enjoyed a
spectacular day at this beautiful
course and played “beat the pro”
against special guest and former
pro golfer Cherie Zaun. Also playing
on the course was former Milwaukee
Brewer Robin Yount. The event
netted $16,000.
For information about upcoming
community and WPA fund-raising
events, see pages 5 and 8.
Top: 2012 WPA Open awards; above: Robin Yount and
Cherie Zaun; right: Janis Kloeffler
11
The Issue of Trauma as a
Causative Agent in Parkinson Disease
by: Paul A. Nausieda, M.D.
Medical Director
Regional Parkinson Center
Aurora Sinai Medical Center
A common question relates to
the relationship between head trauma and the
development of Parkinson disease. Many review
articles will mention head trauma along with multiple
other potential factors that can increase the risk
of Parkinson disease, but they offer little additional
insight into the subject. That being the case, let me
present the information available.
Parkinson disease is a disorder of unknown origin
that results in a depletion of dopamine neurons in
the brain. It is identified by the presence of rest
tremor, slowness, stiffness, and a gait and balance
disorder that can be improved with the administration
of drugs that increase brain levels of dopamine.
By definition, trauma cannot cause this disorder;
we would call it post-traumatic Parkinsonism in
that case. Parkinsonism is a term used to describe
the same clinical features seen in Parkinson disease
but implies that the damage is more extensive than
a depletion of dopamine nerve cells or that the
condition does not improve with treatments that
raise dopamine levels. I know this can be confusing,
but the differentiation is more than semantic since it
has a direct impact on prognosis and treatment.
Parkinsonism from acute head trauma is rare and
usually is a condition that develops months after
severe head injuries. Severe head injuries put you
into the hospital, and the usual rule is coma lasting
for days. Occasionally patients will develop rest
tremor and evidence of slowed movement as
they recover, though in most cases the symptoms
seem to appear six to twelve months later. MRI
scans show evidence for traumatic injury to the
deep, white matter of the brain, and patients often
have intellectual impairment as a result of the injury.
MRI evidence for damage in the substantia nigra
and corpus striatum usually is not obvious (these
are the structures that contain dopamine receptors
and dopamine-producing neurons). This condition
is not reversible with anti-Parkinsonian medications
in my experience. I must note that I have seen only
a half dozen such cases in the last forty years, half
of which were referred by lawyers as part of a
damage litigation.
There are cases of post-traumatic tremor (not
Parkinsonism) that are seen more commonly, but
these usually are not associated with other signs of
Parkinsonism and lack the usual characteristics of
tremor seen in Parkinson disease.
Repeated head trauma with concussive injury
constitutes a different issue. There are only a few
instances in which one encounters a patient who
repeatedly is “knocked senseless.” Amateur and
professional boxers are the usual patients who
offer this history, and there is literature on “pugilistic
Parkinsonism.” (Pugno is a Latin verb meaning “I fight,”
from which the words pugilistic and pugnacious
are derived). These patients usually present with
dementia and a progressive gait disturbance that
looks a lot like the short-stepped gait you see in
Parkinson disease. This gait pattern was originally
referred to as the marche à petit pas, or gait of small
steps. It is often used to describe the walking pattern
Continued on page 28
12
Going Social
by: Gary Leo, D.O.
Physician
There is a big buzz in today’s society
about the social media: Facebook,
Twitter, tweeting, texting, LinkedIn, YouTube, and
whatever else. It’s too much for me. I did join
Facebook because it is the only way I can see
pictures of my grandchildren. Otherwise, I try to
avoid all aspects of “social media.”
I recently attended a conference in Iowa at which
one of the presentations was on the use of technology
for people with Parkinson disease. There were several
interesting applications presented that may be useful.
Voice-recognition software programs distinguish
voice commands and can be used to dictate letters
or to control actions on a computer. Although it takes
some work to set up these programs, once they
are running, they can save time. Voice-activation
software can be effective for those who have
difficulty using a mouse due to tremor or slowed
hand movement. For those with PCs (Windows-based
computers), Dragon is a voice-recognition software
that is supported by the company Nuance. I am
sure you all have cursed this company at some time
over the past five years. It is one of the companies
responsible for automated directories: “If you want
accounts – press 1.” Now something good has
come from this technology. Apple has released
voice activation on the newer iPhones (cell phones).
Siri is the name of the application. You can ask for
directions, find local restaurants, and make a phone
call by speaking the command.
Video phone calls are another advantage of the
new technology. The idea of making a phone call
and being able to see the person you are talking
to – is so 1960s. It has never caught on with traditional
phone service. However, this can be achieved easily
with computers and cell phones. Calling family
members across the country and seeing grandchildren
in action can be rewarding. Skype is a free program for
the PC that allows free video calls across the country
and even internationally. You must have Internet
service, and the person you are calling also needs
Internet and a copy of the program. FaceTime is the
program for those with Apple products.
Productivity applications may interest some people.
Art programs allow a person to use the computer
to sketch and draw. There are also programs that
allow one to create greeting cards. Programs are
available that focus on hobbies such as gardening
or coin collecting.
The difficulty with technology is the vast number of
programs and computers that make choosing one
difficult. The iPad, which is made by Apple, was the
platform that was suggested at this conference. The
reason was that it is fairly simple to use. You don’t
need a mouse. The newer iPads will have the voicerecognition system and video calling as part of the
iPad. You do not need to buy another program for
these functions. Have a young person to help set this
up for you. I think it is much easier than trying to do
it for yourself. It would be a great holiday or specialevent gift to you!
13
Caregiver Stress
and Third-degree Empathy
by: Trevor Hyde, Ph.D.
Neuropsychologist
Over the past few years, the Parkinson
This difference probably results from differences
Research Institute has been conducting
in empathy. Empathy can be classified into four
a large study on caregiver stress in spouses of
degrees. Zero-degree empathy is having no
Parkinson disease patients. We recently finished data
understanding of the other person. First-degree
collection and are analyzing the results to submit
empathy is when you feel compassion for the
for publication. Some key results of this study will be
other person but cannot identify with them.
presented in this column over several issues. I also
Second-degree empathy is where your feelings
talked at length about this study at the WPA’s Kenton
are in accordance with the Golden Rule: treat
Kilmer Parkinson Disease Symposium on June 29.
others as you would like to be treated yourself.
Third-degree empathy is where you treat others
Patients and their caregivers see the situation from
as they would desire to be treated.
different perspectives. Sometimes they agree,
but frequently they come to different conclusions
Second-degree empathy is the most typical level of
about disease symptoms, independence, cognitive
empathy between loved ones, but it unfortunately
functioning, and quality of life.
can lead to a lack of understanding because it
does not take into account the needs and wants
Patients and their spouses seem to have fairly good
of the other person. A spouse may assume that the
agreement about disease symptoms, although
patient is depressed because he or she would feel
patients often rate themselves as having slightly
depressed in their circumstances. Spouses who
better levels of functioning. It is in the area of
do this assume that the patient is worse than they
emotions and well-being where we start to see
are, and, as a result, the spouses feel more distress
broad divergence in perspectives. Spouses often
themselves. This suggests that communication may
believe that patients have a lower quality of life and
be an excellent defense against caregiver distress
assume that depression levels are higher than they
because a possible major source of distress may
actually are. Moreover, caregivers who have less
merely be assumptions that a spouse is making
agreement in perspective with their spouses show
that the patient is capable of disputing.
higher levels of distress and think of themselves as
acting more like a caregiver and less like a relative.
14
Ask the Doctor
by: Kathryn Gaines, D.O.
Neurologist
Aurora Advanced Healthcare
Dear Dr. Gaines: I have Parkinson
disease. I am worried about my
children and grandchildren – what are the
chances of their inheriting PD?
Dear Reader: Thank you for your question. It highlights a
common worry among those diagnosed with Parkinson
disease and those with loved ones diagnosed with PD.
This past April, I had the opportunity to attend the
annual American Academy of Neurology conference
in New Orleans. Among one of the sessions I attended
at the conference was one that included the latest
understanding of what factors contribute to the
development of Parkinson disease.
Currently about one million Americans have Parkinson
disease. The majority of those affected with PD have
what is known as sporadic idiopathic Parkinson
disease. In essence, this means that PD has developed
on its own without a hereditary cause being passed
down from one generation to the next. I have to
qualify this statement by saying that every individual
could have some genetic susceptibility to developing
PD and that susceptibility may contribute to the
development of PD based on aging, environmental
factors, and other factors such as infections. For
example, we know that exposures to pesticides or
manganese can increase one’s risk of developing PD.
Manganese is a common metal that welders come
into contact with, but it is actually miners exposed to
manganese who have shown the development of a
particular type of PD. Certainly, some medications as
well as recreational drug use can contribute to the
development of PD. But not everyone exposed to such
substances will develop PD.
As far as hereditary or genetic PD, only ten percent of
PD cases are actually hereditary. Patients diagnosed
before the age of fifty are placed in the category
known as “early onset” Parkinson disease, in which
case a hereditary cause really should be considered.
Patients diagnosed before the age of thirty have the
highest genetic risk. The chance that a patient’s PD is
genetic is about twenty percent if the patient has been
diagnosed as “early onset” and also has a first-degree
relative with PD (that is, a parent, sibling, or child).
The genetics behind PD can be quite complicated,
and even though the scientific community has made
enormous advances in this area, obviously the subject
matter is vast. Possessing a gene for Parkinson disease
does define if or when one might develop the symptoms
of Parkinson disease. If genetic PD is strongly suspected,
I cannot stress enough the importance of meeting with
a genetic counselor before considering genetic testing.
Not only should a genetic counselor help determine
whether one should consider genetic testing; a counselor
can explain what the results of the testing might mean,
who else should get tested, and what the implications of
the testing might hold beyond one’s immediate health or
even whether testing is really warranted.
As I previously stated, the majority of PD patients do
not have genetic or hereditary PD; however, if there is a
suspicion of genetic PD, one should speak with his or her
neurologist or primary-care specialist regarding testing
and genetic counseling.
Ask the doctor! Send your questions about
Parkinson disease by mail to “Ask the Doctor,”
Wisconsin Parkinson Association, 945 N. 12th Street,
Suite 4602, Milwaukee, WI 53233 or email to
[email protected] and put “Ask the Doctor”
in the subject line.
cover story
Green Bay
Packer Legend
Forrest Gregg
Tackles Parkinson
Disease
15
Forrest Gregg has faced many opponents. His football
legacy began as a player at Southern Methodist
University in the 1950s. During his football career with
the Green Bay Packers and Dallas Cowboys, he was
recognized as one of the greatest offensive linemen in
NFL history. He played in a then-record 188 consecutive
NFL games during his Hall of Fame career and earned
the nickname “Iron Man.” He went on to coach the
Packers, Bengals, and Browns. His life has been about
planning and practicing strategies to beat the opposition.
Forrest’s most recent opponent is Parkinson disease.
It started with a small tremor in his left hand. His
wife encouraged him to see a doctor. Through his
primary-care physician, he was put in touch with
Rajeev Kumar, M.D., a neurology and movement
disorders specialist and medical director of the Colorado
Neurological Institute Movement Disorders Center.
For as many times as Forrest was hit or was delivering the
hit during his football career, receiving the Parkinson’s
diagnosis was a new kind of blow. “Although I knew other
people with Parkinson’s, I had no idea what it would
personally entail,” he remarks.
Forrest is no stranger to health challenges. He has faced
cancer head on, twice. In 1976 he was diagnosed with
skin cancer and in 2001 it was colon cancer. “In both of
those cases, I went public with my condition. It felt good
to know that I was raising awareness and helping others,”
says Forrest. Initially, he debated whether to go public with
his Parkinson’s diagnosis. “It is a very personal decision,
and I think you have to consider where you are in your life
and the effects it will have on your family, your career, and
how others treat you in general,” he comments.
16
Forrest is glad he decided to share his diagnosis. “When
I went public, information and support poured in,” he
says. “There is so much help available, and it is nice to
know that there are people and organizations like the
Wisconsin Parkinson Association that make it their business
to support all aspects of the Parkinson’s community.”
While his family, including his wife Barbara and their
two children, continues to be his main support system,
he also receives letters and notes from Packer fans,
other coaches and colleagues, and athletes he
has coached. He confides, “It helps just to know
that someone is thinking about you.”
Forrest comments on moving forward and coping
with his diagnosis: “It is too overwhelming to dwell
on ‘why.’ I don’t have the answer, so I don’t waste
my energy on the question. You can’t go back and
change things.” Instead, he has spent his energy on
gathering information and helping others. “I was
lucky to have found a doctor who specializes in
Parkinson’s,” he says. There are therapies available to
limit the effects of the disease, but equally important
is having motivation, support, and encouragement to
follow through with the treatment. “I had to learn what
to do and then make the time to do it.”
With medication, exercise, motivation, and
determination, Forrest has been able to limit his
symptoms, and the progression of his Parkinson’s
disease has been slow. He continues to travel, attend
autograph shows, assist with fund-raisers, and speak
at various events. In October, he will be chairing the
“Back the Pack” fund-raiser for the WPA and will be the
featured guest speaker.
Teamwork has always been a part of Forrest Gregg’s
life. And, with three Super Bowl rings, nine Pro Bowls, six
NFL championships, and multiple All-Pro recognitions
under his belt, he has not lost the drive that allowed him
to compete in 188 consecutive football games over a
15-year period. With his “Iron Man” attitude, he now does
what he can to raise awareness for Parkinson’s. “I know
that what I’m doing is helping. It won’t stop the disease,
but it may help someone else cope,” he concludes.
Forrest is serious about his exercise routine. “I include
movement, cardio, and balance. Ideally I try to walk
five days a week; six days tend to be too much,” he
admits. “I’ve overdone it sometimes and had to back
off, but anything you can do physically helps limit the
symptoms of Parkinson’s.” His philosophy is similar when
it comes to nutrition. Instead of a strict diet, he is more
aware of what he can and cannot eat or drink in order
to feel his best.
See Forrest Gregg
at
the WPA’s Back th
e Pack
event in October!
See page 8 for de
tails.
17
Constipation and PD
by: Jeanne Schimmer, R.N.
Director of Outreach & Education
Wisconsin Parkinson Association
Constipation, defined as having a
bowel movement less than three times
a week, is a common and frustrating problem for
people with Parkinson disease. It can cause extreme
discomfort and, if left untreated, fecal impaction.
Patients with Parkinson’s often are advised by wellmeaning friends and family to eat more fruit and
vegetables or to increase their water intake – which
is good advice – but for many, that is not enough
to control the problem.
Causes
There are many reasons why patients with PD have
problems with constipation. In PD patients, the
autonomic nervous system that controls smooth
muscles in the stomach and intestines slows down,
which results in slower swallowing, delayed stomach
emptying, and slower colonic motility. Swallowing
problems may lead to reduced water and food
intake. Delayed stomach emptying may cause a
feeling of fullness and nausea. PD patients have
slower colonic motility that can result in stool being
in the colon too long, resulting in hard and dry stools.
Some PD patients may have an additional problem
of having uncoordinated pelvic floor muscles that
tighten when they are supposed to relax.
Certain medications, including narcotic pain killers
and anticholinergics, may cause constipation. Ask
your doctor to review your medications if chronic
constipation is a problem.
Fecal impaction
When constipation gets severe, it can result in a fecal
impaction (intestinal blockage). This occurs when
a large amount of dry, hard stool becomes stuck
in the rectum. Some of the complications of this
condition can be rectal bleeding, bladder pressure or
incontinence, and lower back pain. At this point home
remedies are not useful, and a trip to an urgent care
or ER is needed to remove the impaction. Liquid stool
sometimes oozes around the impaction, giving the
patient the false impression that he or she has diarrhea.
Water
Adequate fluid intake is critical for your body’s health.
Stool is comprised of 65% to 85% water. If the body
does not get enough water, the stool will become
hard and dry and become very difficult to pass. It is
suggested that patients drink 6 to 8 glasses of fluid
daily. Some Parkinson patients will deliberately drink
fewer fluids at night to prevent frequent nighttime
urination. For those patients, extra care must be taken
to ensure that they get enough hydration during
waking hours.
Diuretic is a term used to describe a substance
that increases the amount of urine that your body
produces. It is important to be aware that diuretics
lead to water loss in the bowel, which makes stools
drier and harder to pass. Diuretics come in the form
of prescription medications as well as beverages such
as coffee, tea, cola drinks, and alcohol. Do not count
these beverages as part of your recommended 6 to 8
glasses of fluid per day! Some commonly prescribed
diuretics – furosemide and hydrochlorothiazide – are
often prescribed for high blood pressure or edema
(swelling). If you are having trouble with constipation
and are prescribed diuretics, you should discuss this
with your doctor.
18
Fiber
Fiber is necessary to add bulk to the stool, which
makes stools soft and easier to pass. Fruits and
vegetables and whole grains such as bran are a
great source of fiber. Supplementary fiber may be
added to the diet in the form of over-the-counter
supplements such as Citrucel and Metamucil. Fiber
supplements should be taken only in partnership with
fluids. Supplements not accompanied by increased
fluid intake can actually make constipation worse.
Be patient when starting fiber supplements, as it may
take weeks to see long-lasting results. They should be
used on a daily basis. Start with a low dose and work
up to a full dose to let your body get used to it. Fiber is
also helpful in preventing colon cancer.
The following is a tried-and-true recipe that is natural
and tastes good. Some people refer to it as “power
pudding.”
Power Pudding
• ½ cup applesauce
• 2-4 tablespoons of unprocessed
wheat bran (found in health food stores)
• 4-6 ounces of prune juice
Mix and store up to one week in
the refrigerator. Take a tablespoon a
day, followed with a glass of water. If
needed, you may slowly increase the
amount taken over time. During the first
week, you may experience bloating
or gas, which should diminish with
continued use.
Exercise
Exercise is helpful for constipated patients. It helps
speed up the involuntary muscle movements that
occur naturally within the stomach and colon that
help move stool farther down gastrointestinal system.
When water and diet changes are not enough
Laxatives that work by irritating the lining of the bowel
should be avoided altogether. They can cause
dependence and harm to the bowel if used longterm. Some of the products that fall into this category
are Ex-Lax, Dulcolax, Senna, and mineral oil.
Stool softeners such a Colace are safe to use and
non-habit-forming. They are especially helpful with
patients who have hemorrhoids.
Miralax (polyethylene glycol) is a safe, over-thecounter product that works by drawing water into the
bowel. It is not habit-forming and may be taken on a
daily basis.
Enemas should not be used on a regular basis. They
should be considered a last resort.
Other helpful tips
• Go to the bathroom as soon as you feel the urge
to have a bowel movement.
• When passing a stool, try placing your elbows on
your knees and putting your feet on a footstool.
• Do not strain or hold your breath when going to
the bathroom.
• Try to train your bowel with a morning routine.
Some people find it helpful to drink a warm
beverage in the morning.
• If swallowing problems keep you from eating fiberrich foods or they make drinking a problem, ask
your doctor for a referral to see a speech therapist.
Constipation prevention requires daily vigilance on
the part of the PD patient. Fiber, water, and exercise
need to be addressed every day. If constipation is a
chronic problem, it needs to be discussed with your
physician for further evaluation.
19
LSVT® LOUD
The Power to Communicate Well
by: Susan Ludwig, M.S., C.C.C.-S.L.P.
Speech Pathologist
“Communication works for those who work
at it.” – John Powell
If you have noticed a decline in the strength,
clarity, or effectiveness of your voice and spoken
communication, consider taking the advice – and
gaining the benefits – implied in the quote above.
LSVT® (Lee Silverman Voice Treatment) LOUD is a wellknown and research-supported approach for voice
and speech training. LSVT LOUD is specifically designed
to treat the physical pathology that underlies voice
problems commonly experienced by people living
with Parkinson disease.
Research indicates that nearly 90% of individuals
with Parkinson disease have or will experience
speech and voice problems. Reduced vocal
loudness; hoarse, breathy voice quality; loss of
speech intonation; imprecise articulation; and
speech rate problems, together with lessened facial
expression, can contribute to significant limitations
in communication. Speech and voice changes can
appear relatively early in the disease process and
can be associated with reduced confidence and
some withdrawal from social interactions.
The good news is that use of the LSVT LOUD method
has shown to be effective for improving vocal
loudness and overall communication. A speech
pathologist certified to use LSVT LOUD teaches a
client how to produce a louder, more energized
voice that will drive improvements across the client’s
speech system. He or she learns to feel the greater
level of effort needed to produce a better voice with
a normal level of loudness. By completing a series of
voice exercises and speech practice tasks, a client
retrains and recalibrates himself or herself to use
louder and better speech in everyday conversation.
The LSVT LOUD voice
exercises are relatively
easy to learn and are
quickly empowering to
clients with Parkinson’s.
The vast majority of people
are able to demonstrate
louder and clearer voice
production early in the
course of treatment.
Jerry (pictured), a client
currently working with
my therapy colleagues
and me in the LSVT BIG & LOUD Clinic at the Aurora
Rehabilitation Center of Aurora Sinai Medical Center,
mentioned significant gains he noticed from treatment
prior to the end of his second week of therapy. “People
say that I am louder and clearer, and my wife doesn’t ask
me to repeat myself as much. My main barrier was my
speech, and to be able to break through gives me hope.”
Jerry added that his experience with LSVT LOUD and LSVT
BIG so far has proven to him the benefits of consistent and
intense training that the programs provide.
As Jerry mentioned, intensity of therapy is important.
LSVT sessions are held four times per week and are
completed in four consecutive weeks. The schedule
facilitates learning the skill of self-cueing the desired
behaviors so that better habits are formed and
improvements stick. Consistent use of home exercise
programs during therapy and after discharge will help
people to maintain their improved level of function for
several months post-treatment.
Recent Network articles have provided information on
the benefits of the related movement-focused therapy,
LSVT BIG, as well as additional positive comments
about BIG and LOUD made by other clients at the
LSVT BIG & LOUD Clinic at Aurora Sinai Medical Center.
For more information about our clinic, please call us
at 414-219-5241. To find a certified LSVT LOUD or LSVT
BIG therapist near you, visit www.lsvtglobal.com.
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20
Parkinson Disease &
Related Disorders,
Part I
by: Thomas Fritsch, Ph.D.
Director
Parkinson Research Institute
In my interactions with persons with
PD and their families, I have found that
one question comes up frequently:
Are there different “subtypes,” “strains,” or “variants”
of PD? The answer is yes, but I rarely feel I have
time to provide details about the subtypes. In this
issue of The Network, I will present the first of two
articles in consecutive issues on what we mean by
those “related disorders.” I hope this account will
be informative, and I invite you to submit questions
about areas that may still need clarification. (I can be
reached at [email protected] or 414-219-5697.)
“Classic” (Idiopathic) Parkinson Disease
In the world of Parkinson disease research and in
clinical practice, this phrase “Parkinson disease and
related disorders” is commonly used. But what exactly
do we mean?
Informally, we call the most typical form of Parkinson
disease “classic” Parkinson disease. In clinical
language, it is called “idiopathic” PD, meaning simply
that the cause or causes are unknown. Nearly 2%
of persons age 65 and older have idiopathic PD.1
It is characterized by four “cardinal” symptoms:
resting tremor, bradykinesia (slowness of movement),
rigidity, and postural instability. A positive response
to levodopa/carbidopa (Sinemet) is also suggestive
of idiopathic PD.
But there also seem to be “variants” of Parkinson
disease (different “strains,” in layman’s terms).
Collectively, these variants are referred to by many
names by professionals in the PD field: Parkinsonian
syndromes, Parkinson-plus conditions, or Parkinsonisms.
They frequently have different, evolving clinical
presentations, and this variance is related to differing
underlying pathological changes in the brain which
you can often see at brain autopsy – usually under a
microscope but sometimes with the naked eye.
In this issue, I will cover the following Parkinsonisms:
multi-system atrophy (MSA), Lewy body dementia
(LBD), and progressive supranuclear palsy (PSP).
There are probably more Parkinsonisms that we have
not yet recognized. Time will tell. But as researchers,
we are highly motivated to learn about them. The
more we learn about subtypes of PD, the better we will
be able to tailor treatments to suit specific conditions.
Multi-system Atrophy
The basics One of the Parkinsonisms is called multisystem atrophy. About 4 people in 100,000 have MSA.2
The defining feature is damage to multiple brain
systems which, individually, would seem sufficient to
cause classic PD.
Clinical features Multi-system atrophy is characterized
by a dramatic failure of the autonomic nervous system
(the ANS). The ANS regulates “vegetative functions” of the
body; i.e., those functions over which we do not have
conscious control. Thus, for example, a person with MSA
may have very low blood pressure (called Shy-Drager
syndrome), incontinence, erectile dysfunction in men,
and vaginal tightness in women. In MSA, however, these
ANS-related signs and symptoms are relatively more
severe than in classic PD. Like PD, MSA patients may
experience rigidity, bradykinesia, postural instability, and
jerky postural tremor. Unlike PD, however, MSA usually does
not cause resting tremor and “dyskinesias” – those erratic,
uncontrolled movements now seen in Michael J. Fox.
Continued on page 21
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21
Parkinson Disease & Related Disorders, Part I
Treatment Unfortunately, the motor symptoms of MSA
respond poorly and only transiently to levodopa
therapy (Sinemet). And when levodopa is effective,
the benefits seem to wane after about two years.
Some doctors believe that MSA is untreatable.
However, Dr. Paul Nausieda at the Regional Parkinson
Center in Milwaukee, Wisconsin, has treated many
people with MSA. Under his care, some patients have
had improvements in symptoms (but others, not).
Dr. Nausieda maintains that, “In my experiences, MSA
is not a hopeless, untreatable condition. And there is
science to support this. A series of research articles
has documented a response to levodopa in a high
percentage of patients with MSA – not as good a
response as in the typical patient with idiopathic PD –
but a positive response nonetheless.”
Lewy Body Dementia
The basics Dementia is a blanket term used to
describe a medical syndrome in which a person
gradually loses his or her cognitive functions (e.g.,
memory, language, and reasoning) and also
the ability to carry out self-care activities, such as
balancing a checkbook or driving.
New research suggests that Lewy body dementia is
the second-most frequent cause of dementia after
Alzheimer’s disease. According to one report, about
47% of people with dementia have Alzheimer’s, while
about 22% have LBD.3
Its name comes from the fact that, in the brains of
affected persons, pathologists identify small structures
within cells called Lewy bodies. Lewy bodies seem to
be a marker for a cell that is “in trouble” and possibly
dying or dead. A Lewy body is a spherical structure that
is densely filled with a protein called alpha-synuclein.
(continued from page 20)
Clinical features For the experienced neurologist,
the symptoms of LBD are fairly easy to discern. Those
symptoms can be very dramatic and, many times,
disruptive for the affected person and their families.
Caregivers report that caring for a person with LBD
can be extremely stressful.4
Recently, the Parkinson Research Institute was
awarded a $20,000 grant from Milwaukee’s
Helen Bader Foundation to study the effects of
Lewy body dementia on their caregivers. We
will report results of this research in the future.
For example, persons with LBD often have
psychotic symptoms. Psychotic symptoms involve:
hallucinations, such as when a person sees or hears
things that aren’t really there (e.g., “I just saw a
strange man looking in the window!”); delusions (e.g.,
“I am the King of England!”); and paranoia (“You
stole my rings! You’re always stealing my things!”).
Persons with LBD lose the ability to think, reason, and
remember things. But their cognitive status is said to
be “fluctuating.” One day, the patient may seem lucid
and without symptoms, as though he or she were
completely healthy. The next day, he or she may not
recognize relatives or remember what was served for
breakfast. Relative to PD alone, people with LBD have
a more rapid downward course. This rapid decline is
hard on caregivers.
Treatment The psychotic features associated with
LBD often take caregivers by surprise. (You may
remember my description of a person with LBD in
the fall 2011 issue of The Network). Thus, physicians
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22
may consider using medications (“neuroleptics,”
commonly called “anti-psychotics”) to control
psychotic symptoms. However, the use of antipsychotics in LBD (not the typical, idiopathic PD)
must be considered very carefully and with caution.
A rule of thumb is that, overall, anti-psychotics should
be avoided because they can, in combination
with PD therapies (such as Sinemet), increase and
exacerbate PD motor symptoms – sometimes
even permanently. It is a treatment conundrum.
What’s worse? Disruptive psychotic symptoms or
PD symptoms that will never improve?
If I have hallucinations, does this mean
I have Lewy body dementia?
No. Many people with PD (but not LBD) also
have hallucinations. In this case, the psychotic
symptoms are benign. Some researchers
believe that psychotic features in idiopathic
PD may simply reflect damage to the visual
system rather than be a psychiatric problem. If
you or your relative with PD is seeing or hearing
things that aren’t there, take heart. It’s not a
significant problem and it can be treated. Tell
your treating neurologist at your next visit.
Progressive Supranuclear Palsy
The basics Progressive supranuclear palsy is
extremely rare and occurs in about 6 people in
100,000.2 It is frequently mistaken by primary-care
physicians as a disorder of the visual system.
Clinical features The clinical presentation of PSP
usually begins with gait disturbance and falls. Later
in the course of the PSP, the vision problems (“ocular
deficits”) begin to manifest themselves. For example,
people with PSP may report the inability to look
downward without head movement, instability of
fixation, and slow saccades (saccades are rapid
“jumps” from one fixation point to another).
The late actor, comedian, and pianist, Sir Dudley
Moore, had PSP. Barbara Walters interviewed him
about his condition in 1999, and you can watch this
interview by visiting the following location on the
Internet: www.youtube.com/watch?v=VVWGutY0xbw.
Please look to our next issue of The Network for Part II of
this series, when I will cover the following Parkinsonisms
(and one related condition): corticobasal degeneration
(CBD), early-onset Parkinson disease (EOPD), and
essential tremor (ET).
Celebrities with PD related disorders:
• Sir Dudley Moore, star of the film “Arthur”
(and pianist and comedian) had progressive
supranuclear palsy (PSP).
• Estelle Getty played Sophia in the television
series “The Golden Girls.” She passed away in
2008 after battling Lewy body dementia (LBD).
• Johnny Cash, the beloved country-western
singer, was diagnosed at death with ShyDrager syndrome, the former term for multisystem atrophy (MSA).
References
1. Wright Willis A, Evanoff BA, Lian M, et al. Geographic and ethnic variation in Parkinson disease: A population-based study of US Medicare beneficiaries. Neuroepidemiology
2010;34:143-151.
2. Schrag, Ben-Shlomo, Quinn. Prevalence of progressive supranuclear palsy and multiple system atrophy: a cross-sectional study. Lancet 1999;354:1771-1775.
3. Rahkonen T, Eloniemi-Sulkava U, Rissanen S, et al. Lewy bodies according to the consensus criteria in a general population aged 75 years or older. J Neurol Neurosurg
Psychiatry 2003;74:720-724.
4. Leggert AN, Zarit S, Taylor A, Galvin JE. Stress and burden among caregivers of patients with Lewy body dementia. Gerontologist 2010;51:76-85.
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23
All Good Things…
by: Stacy Ory, B.S.
Clinical Research Coordinator
“All good things must come to
an end.” This is a very well-known
proverb that dates back to 1374 from Chaucer. The
original proverb read, “Everything has an end,” and
“Everything comes to an end.” The word “good” was
added later. The proverb is true for everything in life,
and clinical trials are no exception.
Subjects are often distraught when they are required
to turn over all study drugs at their last visit, and they
are sometimes frustrated by being improved on a
new drug and then being sent back to a treatment
that has not been so effective.
Prior to entering every clinical trial, people read
consent forms and weigh possible risks of participation.
They review the possible side effects that may occur as
well as the study procedures and visit requirements. By
the time they agree to participate and sign consent,
they feel at ease and fully informed about the risks,
benefits, and set schedule they have committed
themselves to. However, these study subjects forget the
greatest risk of all. Even if the experimental drug has an
optimal therapeutic benefit to the subject, the study still
will come to an end, and so will the treatment that has
been helping them throughout the study.
The medication is stopped because it is important
to document any and all changes that occur. Side
effects experienced during the study may resolve,
new ones may arise, or a subject may experience
no change at all from being on the drug versus
being off it. This is important data that needs to be
captured in order to help verify safety and efficacy
of a drug. Most importantly, the FDA frowns upon
drug companies’ funding what are considered
“compassionate use” studies to keep patients on
unapproved medications for long periods of time.
These types of protocols are more common in
terminally ill patients rather than those suffering with
Parkinson disease, as the FDA has determined that
there are a variety of medications currently on the
market that adequately control symptoms of PD.
More often than not, it’s not a medical necessity
that PD subjects remain on the experimental drug.
As clinical research coordinators, we are trained to
clarify that patients have a right to discontinue their
participation in clinical trials whenever they want
for any reason, that the doctor can remove them
from the trial if the doctor feels they are no longer
appropriate for the study or the patient’s safety is
at risk, and that the drug company has the right to
terminate the study at any time. At the end of a study,
subjects will often ask if they are able to continue
getting the drug after participating in the study.
This is another example of why we appreciate our
clinical trial participants. Not only are they risking
negative side effects, but they are also risking losing
positive ones. It’s important to remember when
considering participation in a clinical trial that there
is a finish line. The best reward to our participants is
when a study drug is finally approved and released
for everyone to use, knowing they were responsible for
it. Thanks to a participant’s “good thing” coming to an
end, other PD patients are able to begin theirs.
List current as of July 20, 2012.
Please contact Raven Hamilton at
414-219-5768 with any changes.
illinois Support Groups
Dixon, IL
Town Square Center
102 S. Hennepin
2nd Floor Community Room
2nd Thursday at 1:00 p.m.
Contact: Anne Hilliard at 815-285-5575
Libertyville, IL
Lake County Parkinson Support Group
Condell Medical Center/
Conference Center
Condell Drive & Milwaukee Avenue (Rt. #21)
4th Wednesday from 7:00 – 9:00 p.m.
Contact: Wayne Zumstein at
847-949-1118 or 847-840-5700
Northfield, IL
North Shore Senior Center
161 Northfield
Every Wednesday at 1:00 p.m.
Contact: Michele Corrado at 847-784-6038
Rockford, IL
support group
Wesley Willows
4141 N. Rockton Avenue
2nd Wednesday at 10:00 a.m.
Contact: Faye Ford at 815-885-4897
or Joyce Reiland at 815-229-3078
young-onset group
Gloria Dei Lutheran Church
4700 Augustana Drive
3rd Tuesday at 7:00 p.m.
Dinner meetings at 6:30 p.m.
Contact: Sharon Habing at 815-398-1720
indiana Support Groups
Notre Dame/South Bend, IN
Michiana Parkinson Support Group
Holy Cross Village, Andre Place
54515 State Road 933 North
1st Monday from 1:00 – 3:00 p.m.
Contact: Sister Margie Lavonis at
574-876-1599
24
iowa Support Groups
Bettendorf, IA
Lewy body dementia support group
Trinity Medical Center
4500 Utica Ridge Road
Lower Level Classroom A and B
3rd Tuesday from 7:00 – 8:30 p.m.
Contact: Elizabeth Faelens at 309-523-3880
Burlington, IA
Great River Medical Center
1225 Gear Avenue
Blackhawk Room
3rd Thursday at 2:00 p.m.
Contact: Ruth & Bill Newton at 217-453-2481
Clinton, IA
Mercy Medical Center
638 S. Bluff Boulevard
South Campus Board Room
2nd Saturday at 10:00 a.m.
Contact: Don & Rita Schneider at
563-243-5585
Davenport, IA
Center for Active Seniors
1035 W. Kimberly Road
3rd Saturday from 10:00 a.m. – Noon
Contact: Eileen Benson at 563-332-6497
Decorah, IA
Winneshiek Medical Center
901 Montgomery Street
4th Wednesday at 1:30 p.m.
Contact: Mary Marx at 563-387-3020
Dubuque, IA
Stonehill Adult Daycare Center
3485 Windsor Avenue
4th Saturday at 10:00 a.m.
Contact: Gerald Osterhaus at 563-582-7313
Newton, IA
Wesley Park Center
500 First Street North
Garden Room
3rd Monday at 1:30 p.m.
Contact: Eloise Prater at 641-791-1018
or Maralyn Stull at 641-791-2299
Washington, IA
United Presbyterian Home
1203 E. Washington Street
2nd Tuesday at 3:30 p.m.
Contact: Amy Kleese at 319-653-5473
Waukon, IA
Veterans Memorial Hospital
404 First Street Southeast
Contact: Dan & Sarah Welsh at
563-568-2049
michigan Support Groups
Calumet, MI
Aspirus Keweenaw Home Health & Hospice
311 Sixth Street
2nd Monday at 1:00 p.m.
Contact: Sarah Baratono at 906-337-5708
Menominee, MI
Harbors
1110 Tenth Avenue
3rd Thursday at 10:00 a.m.
Contact: Patricia Ihler at 906-863-9445
wisconsin All Groups
Appleton, WI
young-onset group
Neurospine Center of Wisconsin
5320 W. Michaels Drive
2nd Floor Conference Room
2nd Thursday at 6:00 p.m.
Contact: Vera Ramacitti at 715-412-2148
Baraboo, WI
support group
First Congregational United Church of Christ
131 Sixth Avenue
Contact: Sylvia Kriegl at 608-356-7096
or Geri Schoenoff at 608-356-3473
exercise group
Ho-Chunk Wellness Center
S2821 White Eagle Road
Tuesdays & Thursdays at Noon
(fee associated)
Contact: Judee Mehlos at 608-434-0300
Bayfield–Apostle Islands, WI
support group
Location and day vary;
call for information
Contact: Jeff Obst at 715-209-0807
Brookfield, WI
support group
Brookfield Regency
777 N. Brookfield Road
1st Thursday at 2:30 p.m.
Contact: Winfield Reinemann at 262-786-6415
or Eleanore Krejci at 262-785-2630
support group
Brookfield Public Library
1900 N. Calhoun Road
Harnischfeger Room
3rd Tuesday from 2:30 – 4:00 p.m.
Contact: 414-805-8326
exercise group
Brookfield Senior Community Center
2000 N. Calhoun Road
Tuesdays & Thursdays at 10:30 a.m.
(fee associated)
Contact: Lisa Glenn at 262-796-6675
Brown Deer, WI
exercise group
RiteHite YMCA
9250 N. Green Bay Road
Tuesdays & Thursdays at 1:30 or 2:00 p.m.
(fee associated)
Contact: Pat Giese at 262-512-0206
Fish Creek, WI
exercise group
Door County YMCA
Northern Door Program Center
3866 Gibraltar Road
Tuesdays & Thursdays at 11:00 a.m.
(fee associated)
Contact: 920-868-3660
Fitchburg, WI
support group
Fitchburg Senior Center
5510 Lacy Road
3rd Friday from 9:30 – 11:00 a.m.
Contact: Mary Hoffman at 608-249-9109
Fond du Lac, WI
support group
Fond du Lac Senior Center
151 E. First Street
Call for meeting times
Contact: Cheryl Leonard at 920-477-5222
Green Bay, WI
support group
Aging & Disability Resource Center
300 S. Adams Street
Contact: Snooky Zuidmulder at
920-448-4309
exercise group
The Aquatic Center for CP
2801 S. Webster Avenue
Mondays & Wednesdays from
11:00 – 11:45 a.m. (fee associated)
Contact: 920-403-7665
25
exercise group
Aurora BayCare Orthopedic &
Sports Medicine Center
PWR! Fitness Training
1160 Kepler Drive
Call for meeting times ($5 per class)
Contact: Kelly Gerl at 920-288-4705
Greenfield, WI
exercise group
Southwest YMCA
11311 W. Howard Avenue
Mondays & Thursdays at 1:00 p.m.
(fee associated)
Contact: J.T. Mathwig at 414-529-4141
or Megan Radowski at 414-357-2820
exercise group
Wisconsin Athletic Club
5020 S. 110th Street
Tuesdays at 11:00 a.m. (fee associated)
Contact: Mary Spidell at 414-427-6500
Hartford, WI
exercise group
Aurora Medical Center Washington County
1032 E. Sumner Street
Rehab Department
Tuesdays & Thursdays at 12:30 p.m.
(fee associated)
Contact: Kim Beimel or Meg Bowen
at 262-670-7233
Hudson, WI
support group
Hudson Hospital and Clinics
405 Stageline Road
2nd Tuesday at 10:00 a.m.
Contact: Marilyn Schuchman at
715-386-1849
Janesville, WI
support group
First Baptist Church
3414 Woodhall Drive
1st Wednesday at 2:00 p.m.
Contact: Darlene Larson at 608-754-4549
exercise group
SOL Fitness
4113 Whitney Street
Tuesdays & Wednesdays from
9:00 – 9:45 a.m. (fee associated)
Contact: Connie Udell at 608-302-7088
Kenosha, WI
support group
Brookside Care Center
3506 Washington Road
Southport Room
1st Wednesday at 2:00 p.m.
Contact: Julie Topolovec at 262-657-7276
or Dave Gourdouy at 262-694-6156
King, WI
support group
Wisconsin Veterans Home at King
422 Bell Avenue
3rd Friday at 10:00 a.m.
Contact: Guy Connor at 715-258-5586 x 2604
La Crosse, WI
support group
Gundersen Lutheran Hospital
1900 South Avenue
4th Tuesday at 2:00 p.m.
Contact: Julie Holzwarth at 608-782-7300
Madison, WI
support group
Asbury United Methodist Church
6101 University Avenue
Contact: Hannah Wente at 608-229-7628
support group
Madison Public Library
Sequoya Branch
4340 Tokay Boulevard
Meeting Room A
Last Monday at 7:00 p.m.
Contact: Hilary Blue at 608-298-7520
support group
Oak Park Place
618 Jupiter Drive
4th Wednesday at 3:00 p.m.
Contact: Katie Lowe at 608-663-8600
caregiver group
East Madison/Monona Coalition on Aging
4142 Monona Drive
1st Tuesday at 4:00 p.m.
young-onset group
St. Mary’s Hospital
700 S. Park Street, Bay 4
exercise group
Harbor Athletic Club
2529 Allen Boulevard, Middleton
Multiple meeting days and times for
exercise, Zumba, PDGlee, PD in Motion
(fee associated)
Contact: 608-821-6501
exercise group
UW Health Sports Medicine Center
Research Park Fitness Center
621 Science Drive
Tuesdays & Thursdays from
12:45 – 2:15 p.m. (fee associated)
Contact: Emily Zimmerman, PT, at
608-263-7936
Manitowoc, WI
support group
Manitowoc Senior Center
3330 Custer Street
4th Thursday at 1:30 p.m.
No meeting July or August
Contact: Vicki Rathsack at 920-726-4626
exercise group
Aquatic Exercises, YMCA
205 Maritime Drive
(fee associated)
Contact: 920-682-0341 for more information
Marshfield, WI
support group
Wesley United Methodist Church
205 S. Maple Street
Contact: Jean Becker at 715-652-2957
Menomonee Falls, WI
support group
Arboretum Retirement Community
W180 N7890 Town Hall Road
Multipurpose Room
1st Thursday at 10:00 a.m.
Contact: Rita Meinholz at 262-253-0909
Milwaukee, WI
support group
945 N. 12th Street
History Room, 2403
Contact: Jay Blankenship at 414-219-7916
social group
YPPT: Young Parkinson Professionals
Together
Meeting dates and places vary; for the
latest information, go to meetup.com/
young-parkinson-professionals-together/
or contact Bob Norman at 414-550-1031
or [email protected]
exercise group
Yoga for Parkinson’s, Milwaukee
Yoga Center
3514 N. Oakland Avenue
Fridays from 1:30 – 3:00 p.m.
$13.50 per class
Contact: Susan Goulet at 414-332-3551
veterans’ PD support group
Clement J. Zablocki VA Medical Center
5000 W. National, 3rd Floor
Rec Hall/Gym, Room #3454
1st Thursday from 11:30 a.m. – 1:00 p.m.
Contact: 414-805-8326
26
Minocqua, WI
support group
Ascension Lutheran Church
Highway 51 South
2nd Tuesday at 10:00 a.m.
Contact: Dennis Leith at 715-358-2207
or Norma Semling at 715-545-3414
Mount Horeb, WI
support group
Mount Horeb Public Library
105 Perimeter Street
3rd Tuesday from 10:00 a.m. – Noon
Contact: Rita Stanton at 608-437-6959
Neenah, WI
support group
Neuroscience Group
1305 W. American Drive,
2nd Floor Classroom
4th Thursday at 2:00 p.m.
Contact: Patrick Pelkey at 920-538-0144
exercise group
Pilates for Parkinson’s
Neuroscience Group
1305 W. American Drive
Mondays & Wednesdays at 4:15 p.m.
(fee associated)
Contact: Kathy Hergert at 920-720-1617
New Berlin, WI
support group
Steeple View Senior Community
12455 W. Janesville Road
3rd Wednesday at 6:30 pm
Contact: Debra Haight at 262-989-9278
Oconomowoc, WI
support group
Oconomowoc Memorial Hospital
791 Summit Avenue
3rd Friday at 2:00 p.m.
Contact: Peg Theder at 920-261-9805
exercise group
Pabst Farms YMCA
1750 E. Valley Road
Wednesdays & Fridays at 1:00 p.m.
(fee associated)
Contact: Cathy Cauley at 262-434-2600
Oshkosh, WI
support group
Oshkosh Seniors Center
200 N. Campbell Road
South Facility
Contact: Paula Stephens at 920-232-5305
support group
Bella Vista
631 Hazel Street
Contact: Beth Waller at 920-233-6667
exercise group
Bella Vista
631 Hazel Street
Mondays & Fridays from 9:00 – 9:45 a.m.
Contact: 920-233-6667
exercise group
LSVT® BIG
Affinity Health System
Outpatient Rehabilitation Services
2700 W. 9th Avenue
Call for information (fee associated)
Contact: 920-236-1850
Portage, WI
support group
Bethlehem Lutheran Church
W8267 Highway 33
Contact: Elayne Hanson at 608-742-2410
Racine, WI
support group
Wheaton Franciscan Healthcare –
All Saints
3805 Spring Street
West Professional Building B, Lower Level
Contact: Susan Monson at 262-639-8490
or Ken Beth at 262-637-2834
exercise group
YMCA of Racine
725 Lake Avenue
Mondays & Wednesdays at 1:30 or 2:00 p.m.
(fee associated)
Contact: Christine Flones at 262-687-6784
St. Francis, WI
support group
St. Ann’s Center Adult Day Care Unit
2801 E. Morgan Avenue
Contact: Hattie Goodman at 414-744-5654
Seymour, WI
support group
Good Shepherd Services
607 E. Bronson Road
Community Center
Contact: Lori Tesch-Janke at 920-538-2017
or Carol Janke at 715-752-4247
Shawano, WI
support group
Shawano United Methodist Church
1000 Engel Drive
Contact: Jon Kallio at 715-524-2654
exercise group
Total Fitness
212 E. Green Bay Street
Mondays & Thursdays at 1:15 p.m.
(fee associated)
Contact: Jean Darling, PT, at 715-526-2899
Sheboygan, WI
support group
Aurora Sheboygan Memorial
Medical Center
2629 N. 7th Street
Conference Room C
Contact: Louis Borth at 920-467-0547
or Bill Bahr at 920-452-2444
exercise group
Aurora Sheboygan Memorial
Medical Center
2629 N. 7th Street
Tuesdays & Thursdays from
11:30 a.m. – 1:00 p.m. (fee associated)
Contact: Mike Heidt at 920-451-5550
Shell Lake, WI
support group
Northwest Wisconsin Parkinson’s
Support Group
St. Joseph’s Catholic Church
502 N. Second Street, Lower Level
Contact: Gary & Monica Burkart at
715-468-4334
Stevens Point, WI
support group
Lincoln Senior Center
1519 Water Street
Contact: Ellen Grys at 715-343-6294
Stoughton, WI
support group
Stoughton Area Senior Center
248 W. Main Street
4th Wednesday from 1:30 - 3:00 p.m.
27
Sturgeon Bay, WI
support group
United Methodist Church
836 Michigan Street
Contact: Carol Moellenberndt at
920-743-3476
exercise group
Door County YMCA, Sturgeon Bay
1900 Michigan Street
Tuesdays & Thursdays at 2:15 p.m.
(fee associated)
Contact: Carl Grota or Shawn Hanrahan
at 920-743-4949
Summit, WI
exercise group
Aurora Medical Center Summit
36500 Aurora Drive
Outpatient Rehabilitation Gym
Every Monday at 6:00 p.m.
(free of charge)
Contact: Amanda Borneman at
262-434-2600
Sun Prairie, WI
support group
Colonial Club Senior Center
301 Blankenheim Lane
Therapy Room
4th Monday at 1:00 p.m.
exercise group
Northeast YMCA of Dane County
1470 Don Simon Drive
Call for meeting days and times
Contact: 608-837-8221
Walworth, WI
support group
Inspirational Ministries – Pederson Center
Highway 67 and F
3rd Wednesday at 2:00 p.m.
Contact: Audrey Yakes at 262-723-1288
Waukesha, WI
exercise group
Waukesha Family YMCA
320 E. Broadway
Mondays & Thursdays (fee associated)
Contact: Kristine Dekarske, PT, at
262-542-2557
Waunakee, WI
support group
Village Center of Waunakee
Senior Center Stage
333 S. Madison Street
Wausau, WI
support group
Aging and Disability Resource Center
1000 Lakeview Drive
Wellness Room
Contact: Dona Boodle at 715-675-2040
or Lucy Harvey at 715-848-3545
Wauwatosa, WI
young-onset group
Community Conference Center
8700 Watertown Plank Road
Lower Level, east side of WAC
3rd Wednesday from 6:30 – 8:00 p.m.
Contact: 414-805-8326
caregiver group
Community Conference Center
8700 Watertown Plank Road
Lower Level, east side of WAC
2nd Saturday from 1:00 – 2:30 p.m.
Contact: 414-805-8326
men’s group
San Camillo
10200 W. Bluemound Road
Contact: Mitchell Smith at 262-796-1935
women’s group
San Camillo
10200 W. Bluemound Road
Contact: Gail Meilinger at 414-988-5262
or Pat Mueller at 414-545-1487
exercise group
Yoga Therapy for Parkinson’s
Haleybird Yoga Studios
9207 W. Center Street
Thursdays from 3:30 – 4:45 p.m.
(fee associated)
Elevator access is not available
in this building.
Contact: Biz Casmer at 612-801-0188
West Allis, WI
support group
Aurora West Allis Medical Center
8901 W. Lincoln Avenue
Meeting Room 1
Contact: Dale & Ellen Jante at
262-492-2439
caregiver group
Village at Manor Park
3023 S. 84th Street (enter at blue canopy)
Assisted Care area – G Lounge
Contact: Kate Olszewski at 262-672-0041
West Bend, WI
support group
Cedar Ridge Retirement Campus
113 Cedar Ridge Drive
Contact: Kathy Stultz at 262-338-2821
exercise group
Kettle Moraine YMCA at River Shores
705 Village Green Way, Suite 201
Tuesdays & Fridays at 2:00 or 2:30 p.m.
(fee associated)
Contact: Beth Dieringer or Anne
Langenfeld Smith at 262-306-6100
28
Whitefish Bay, WI
Whitewater, WI
support group
Jewish Community Center
6255 N. Santa Monica Boulevard
Room 1M50
2nd Wednesday from 3:00 – 4:30 p.m.
Contact: 414-805-8326
support group
Fairhaven Retirement Community
435 W. Starin Road
Lower Level Conference Room
Contact: Julie Hollenbeck at 262-431-4772
caregiver group
Room 3J15
1st Monday from 10:30 a.m. – Noon
Contact: Miriam Oliensis-Torres at
414-964-5030, ext. 114
exercise group
Mercy Fitness & Aquatic Center
580 S. Elizabeth
Dates and times vary
$5.00 senior rate
Contact: 262-473-4900
exercise group
Dancing Through Life
Every Friday from 2:15 – 3:30 p.m.
(fee associated)
Contact: Susanne Carter at
262-241-3822, ext. 5
Wisconsin Rapids, WI
support group
Riverview Hospital Association
410 Dewey Street
Contact: Randy & Jane Santora at
715-887-3805
The Issue of Trauma as a Causative Agent
in Parkinson Disease (continued from page 11)
seen in Parkinson disease, but historically it was
considered a characteristic feature of advanced
syphilis (general paresis of the insane). What’s
the relationship between Parkinson disease and
syphilis? None, but the walking pattern looks similar.
In boxers, the reason for the gait problem is closer to
the explanation for this finding in syphilis; both are
associated with widespread damage to the cerebral
cortex of the brain. In boxers, the damage is due to
repeated concussion of the brain and microscopic
hemorrhages as a result; in syphilis, it is due to
invasion of the brain by the organisms that cause the
disease and cause occlusion of the blood vessels.
At the beginning of the twentieth century, patients
with Parkinson disease were often misdiagnosed as
having some form of syphilis, and important scientific
studies at the time were attempts to separate the
two conditions. Of course, there was no effective
treatment for either, so this debate was more
academic than practical.
To conclude, trauma usually has little to do with the
development of Parkinsonism. Can incidental trauma
lead to classic idiopathic Parkinson disease? There
are studies suggesting this, but in my experience I
think the relationship is coincidental. Almost everyone
has had an episode of head trauma in his or her life,
and the event is so common that any association with
a later disease is impossible to define. Should you
avoid repeated head trauma? Of course you should.
Even if it does not cause Parkinson disease, it is clearly
capable of leading to impaired mental capacities
later in life.
donations & memorials
29
We are grateful to the following donors for their support of those living with Parkinson disease. This list reflects gifts received from
April 1 to June 30, 2012; contributions of $100 or more are shown. Donors whose names appear in italics have designated
their gifts for research.
Memorial Gifts:
Donations:
Patron
($1,000 or more)
Burczyk Creative Group
Craig Senior High School
Mr. & Mrs. Richard Schumann
Association
($999 - $250)
Mr. Gerald Cullen
Mr. & Mrs. Frank Lorenz
Rockford Young Parkinson Support Group
Ms. Sarah Rosenkranz
Trade Press Media Group, Inc./
Hope Chest Committee
Sustaining Friend
($249 - $100)
Mr. Dennis Asmus
Mr. David Hetzel
Mr. Jim Kostrzewa
Mr. James Kress
Mrs. Christine Lomax
Mr. & Mrs. Colin Munn
Mr. & Mrs. Edward Napoleon
Ms. Dee Pech
Mr. Salvatore Purpero
In Memory of Bill Alexander
Mr. Winfield Reinemann
In Memory of Thomas Stuart Becker
Mr. & Mrs. Phillip Rainwater
In Memory of Jane Blankenship
Komisar Brady and Co., LLP
Mr. Elliot Lubar
Staff of the WPA, PRI, and WINSD
Mr. & Mrs. David Wolfson
In Memory of Patricia Blessing
Mr. & Mrs. James Bardenwerper
Ms. Erika Flaherty
Mr. & Mrs. Jim Geisthardt
Ms. Carol Hennarichs
Mr. & Mrs. Kirk Malnor
Mr. David Sulman & Ms. Ann Altschuler
Mr. & Mrs. Phil Werner
In Honor of Gerald Oliver
Mr. & Mrs. Dale Sterz
In Memory of Claretta Boyd
Mr. & Mrs. Keith Beck
Mr. Robert Boyd
Mr. & Mrs. Otto Ebeling
Mr. & Mrs. Kevin Field
Ms. Bonnie Jaeger
Ms. Arlene Niemuth
Mr. & Mrs. Leroy Tietz
Mr. Russell Tietz
Mr. & Mrs. Roger Woelfel
Mr. & Mrs. Earl Zubke
In Honor of Mike Oltersdorf
Delco Estate Planning Services
In Memory of Edward W. Burgess
Ms. Catherine Grimm
Honor Gifts:
In Honor of Lynn Chapman
Mr. Everett Scarborough
In Honor of Betsy Reilly
Diana, Donna, Dorothy, Elaine, and Judy
In Honor of Rev. Kenneth &
Rosamond Roever
Dr. Pamela Schultz
In Honor of Nelson Shafer’s 82nd BIrthday
Mrs. Carolyn Shafer
In Honor of Jerry Ulrich’s 80th Birthday
Mr. & Mrs. William McIntyre
Mr. & Mrs. Ray Sorenson
Friends of Jerry Ulrich
Mr. & Mrs. Kenneth Ulrich
Mr. & Mrs. Orville Vertein
Mr. & Mrs. James Wright
In Honor of Fr. Jim Vojtik
Ms. Monica Schmitz
In Memory of Cletus Ciszewski
Mr. & Mrs. Peter Brey
Mr. & Mrs. Ted Menge
In Memory of William Cull
Mr. & Mrs. Charles Druce
Patsy Fohrman
Ms. Ruth Ann Kearney
Mr. Thomas Laughlin
Ms. Kay Nelson-Cull
Mr. & Mrs. Robert Saunders
In Memory of Don Denz
Mr. David Dixon
In Memory of Stephen James Fowler
Ms. Beverly Frymier
Mr. James Grafstron
Mr. John Grafstrom
Mr. & Mrs. William Grafstrom
Ms. Gayle Grafstron-Corman
In Memory of Dorothy Gonwa
Ms. Dorothy Ethington
Ms. Geraldine Gonwa
Mr. & Mrs. Arthur Haley
Mr. & Mrs. Robert Kuehn
Mr. & Mrs. Isaac Trejo
In Memory of Gilbert E. Hren
Anonymous
Mr. & Mrs. David Cook
Mr. & Mrs. Brian Glisch
Mr. & Mrs. Russell Lemberger
Mr. & Mrs. Kenneth Snyder
Mr. & Mrs. Antone Wochinski
In Memory of Wayne Jahns
Tracy Dennis
Mr. & Mrs. Tony Nardi
Ms. Marissa Pitroski
Ms. Barbara Ray
In Memory of Michael Joyce
Mr. & Mrs. Ronald Bekken
Mr. & Mrs. Robert Bell
Ms. Kathleen C. Daly
Ms. Judith Gardetto
Mr. & Mrs. Ronald Grabowski
Mr. & Mrs. Bruce Hoppe
Mr. & Mrs. Dennis Jensen
Mr. James Kaczmarek
Mr. & Mrs. Robert Koeper
Mr. & Mrs. Robert Kreinz
Ms. Marie Nikolaus
Mr. & Mrs. James Sperka
Mr. & Mrs. Herbert Szatmary
Ms. Darlene Tillman
Ms. Patricia Zealley
In Memory of Gary McCann
Ms. Carol Potter
In Memory of Dorothy McMillan
Ms. D’Lea Crawley
Ms. Shannon Griffith
Ms. Sharon L. Hurlebaus
Mr. Mike Kivrecien
Ms. Diane Lawton
Ms. Sharon Lawton
Mr. Theodore Lawton
Ms. Gail Nelson
Ms. Tracie Selia
Ms. Lisa Stackpole
USPS
donations & memorials
In Memory of John Meiers
Anonymous
In Memory of Ronald L. Michael
Ms. Nichole Pirolo
In Memory of Deb Moede
Wisconsin Association of Medical
Staff Services
In Memory of Patricia Reed
Ms. Vicky Opine & Ms. Sherry Opine
Ms. Penny Prohazka & Ms. Janice Prohazka
Mr. Steve Remshak
In Memory of Nancy J. Ritzow
American Dental Specialty Institute, SC
Mr. & Mrs. James Anton
Ms. Jane Azzolina
Mr. & Mrs. Brent Bastic
Ms. Laurie Bebo
Ms. Sally Behrendt
Mr. & Mrs. William Berezowitz
Mr. & Mrs. Terrance Block
Mr. & Mrs. Dennis Braun
George Busch & Family
Mr. Mark Carstensen & Ms. Mary Horton
Ms. Judith Daniel
Mr. & Mrs. Robert Dierkes
Family Service Agency of Waukesha County
Mr. & Mrs. John Fleischer
Mr. & Mrs. Bradley Fluyeras
Mr. & Mrs. Leonard Fox
Ms. Shelly Gaatz
Ms. Beverly Garves
Mr. & Mrs. Gary Genrich
Ms. Helen Glander
Mr. & Mrs. Robert Gogin
Deb Graupner Interiors, LLC
Mr. & Mrs. Dick Hall
Mr. David Hamacher
Mr. Michael Hoffer &
Ms. Jane Spiegel-Hoffer
Mr. & Mrs. Chad Holton
Ms. Jacqueline Ioder
Mr. & Mrs Harry Ipsarides
Mr. & Mrs. Robert Johnson
Kanavas Landscape
Mr. & Mrs. Stephen Kerns
Ms. Georgia Ann Kletti
Ms. John Kreilkamp
Mr. & Mrs. Austin Krueger
Mr. & Mrs. Curt Kubiak
Mr. & Mrs. V.G. Lambrecht
Ms. Betty Lewkowski
Ms. Lynn Lieber
Mr. & Mrs. Nicholas Logarakis
Mr. & Mrs. Michael McCourt
Ms. Margaret Nehmer
Ms. Christine Nicholas
30
Nostalgic Car Club
Mr. & Mrs. Michael Oelschlaeger
Orthopedic Clinic of Appleton, Inc.
Mr. & Mrs. Mark Pass
Dale Penegor
Mr. Robert Pukay
Mr. & Mrs. Ronald Rakowski
Mr. & Mrs. Todd Rakowski
Mr. Winfield Reinemann
Mr. & Mrs. Glenn Richlen
Mr. & Mrs. Gerald Ritzow
Mr. & Mrs. Timothy Rogers
Mr. & Mrs. James Rydlewicz
Mr. & Mrs. Carl Sabourin
The Skrypchak Group
Ms. Dorothy Slivicki
Ms. Sally Smits
Mr. & Mrs. John Stimac
Mr. & Mrs. Alan Stout
Mr. Michael Straub
Mr. & Mrs. John Strobel
Mr. Jerome Tarkowski
Mr. & Mrs. Daniel Tews
Ms. Mary Thebert
Mr. & Mrs. Gerald Tobin
Mr. & Mrs. Gerald Tomas
Valley Orthopedic Clinic, SC
Waukesha Bearings
Ms. Barbara Wengert
Whyte Hirschboeck Dudek, SC
Mr. & Mrs. Daniel Williams
Mr. Robert Worth
Ms. Susan Morrissey
Ms. Jeanne O’Connor
Ms. Mary Piette
Jack and Barbara Renner
Jack and Lillian Renner
Mr. Fred Rettler
Ms. Ellen St. Pierre
Mr. & Mrs. David Schmidt
Mr. & Mrs. Gary Schmitz
Ms. Carol Schubert
Ms. Johanne Schubert
Ms. Stacey Sensor
Ms. Dorothy Tuchscherer
Ms. Jean Vanden-Branden
Ms. Mary Weber
Mr. Glen Wolff
Mr. Robert Wubben
Mr. & Mrs. Mark Zirbel
In Memory of Alice St. Pierre
Mr. & Mrs. Scott Andersen
Mr. & Mrs. Brent Bastic
Ms. Audrey Bobber
Mr. & Mrs. James Bouressa
Larrie Brazner
Mr. Keith Buxton
Mr. & Mrs. Leon Church
Mr. & Mrs. Robert Clausing
Mr. Dan Cloud
Mr. & Mrs. Frank Crikelair
Mr. James Dillon
Ms. Barbara Fetters
Mr. Richard P. Galloway
Hildebrand Enterprises
Mr. Alexander Irvine
Mr. & Mrs. John Kalfahs
Ms. Karen Kalmanson
Ms. Cynthia Keyes
Mr. & Mrs. Anton Kranner
Mr. & Mrs. Dudley Lehman
Mr. & Mrs. Thomas Lundstrom
Ms. Barbara Mahony
Shawn Maierhafer
Mr. & Mrs. John Maring
Mr. & Mrs. William McBride
Mr. Thomas McKenzie
In Memory of Dr. Eufrocina Suson
Caridad Asiddao
Mr. & Mrs. Thomas Balistreri
Ms. Jeanette Burmeister
Venancia Gamazon
Mr. & Mrs. Ross Hoggatt
Mr. & Mrs. Sid Maranan
Mr. & Mrs. Marcelo Mercado
Mr. Jose Montenegro
Mr. & Mrs. Charul Munshi
Kamal Nassif
Ms. Katherine Nell
Ms. Teresita Santos
Mr. & Mrs. John Schwendel
Mr. & Mrs. Jaime Soriano
Mr. & Mrs. Michael Sturm
Mr. & Mrs. Rodolfo Suaverdez
Ms. Kristine Sudbrink
Elizabeth Tavera & Family
Mr. & Mrs. David Thuli
Mr. & Mrs. Mark Williams
Mr. & Mrs. Jaime Yamat
Mr. & Mrs. Raymond Zobel
In Memory of Michael Schuster
Mr. & Mrs. Alan Turner
In Memory of Donna Scullion
Ms. Judith Adams
In Memory of Lassie Seitz
The American Legion Post 405
In Memory of Erika Serbian
Mr. & Mrs. John Ahrendt
Bimbo Bakeries USA, Inc.
Mr. & Mrs. Bert Restyanszki
In Memory of David Warhanek
Ms. Pearl Nimmer
credits
The Network is a publication for
persons with Parkinson disease, their
families and friends, and any interested
individuals and groups in the Midwest.
It is published by the Regional Parkinson
Center in cooperation with the Wisconsin
Parkinson Association and Aurora Sinai
Medical Center.
Information provided concerning
medical diagnosis, treatment, and
research is not intended to answer
individual problems but to report and
explain current information about
Parkinson disease. Feel free to contact
the office if you have any questions.
You should always ask your physician
about specific treatment issues.
Wisconsin Parkinson Association Office
1-800-972-5455
Website: www.wiparkinson.org
Email: [email protected]
Paul A. Nausieda, M.D.
Medical Director
Keith Brewer
Aurora Sinai Medical Center, Inc.
945 N. 12th Street
Milwaukee, WI 53233
Non Profit Org.
U.S. Postage
PAID
Milwaukee, WI
Permit No. 5590
Would you like to
become a member of
the WPA and receive
The Network magazine?
President, WPA
If you do not receive this magazine regularly, please consider
[email protected]
joining our membership.
Jay Blankenship, M.S.W., C.F.R.E.
Executive Director
Becoming a member helps persons with Parkinson disease by
[email protected]
allowing us to enhance and expand our services to them and
Raven Hamilton
Program Coordinator
[email protected]
Juliette Hayes
Communications Manager
[email protected]
Jeanne Schimmer, R.N.
Director of Outreach & Education
[email protected]
their families. Basic membership, starting at $15 per year, provides
you with a subscription to The Network, vendor discounts from
our Business Partners (see page 7), access to our resource library,
discounts for events and products, and information about events
and services. Higher levels of membership provide special benefits
for those who wish to increase their commitment to the association.
For more information about membership with the Wisconsin
Parkinson Association, please call Juliette Hayes at 414-219-7060.
Drew Warner
Events Coordinator
[email protected]
A publication of the Regional
Parkinson Center | Milwaukee, WI
This publication was made possible through
funding from the Aurora Health Care Foundation.

Summer - Wisconsin Parkinson Association

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