Just Like Us - NSW Public Schools
Transcription
Just Like Us - NSW Public Schools
Just A Resource for Student Representative Councils (SRCs) and Student Leaders © 2001 Department of Education and Training RESTRICTED WAIVER OF COPYRIGHT The printed material in this publication is subject to a restricted waiver of copyright to allow the purchaser to make photocopies of the material contained in the publication for use within a school, subject to the conditions below. 1. All copies of the printed material shall be made without alteration or abridgement and must retain acknowledgement of the copyright. 2. The school or college shall not sell, hire or otherwise derive revenue from copies of the material for any other purpose. 3. The restricted waiver of copyright is not transferable and may be withdrawn in the case of breach of any of these conditions. ISBN 0 7313 7065 1 SCIS 1035019 2 Just LIKE US Learning With over 30,000 kids with disabilities in government schools, chances are that you know a student with a disability or you, yourself, are a student with a disability. All students need to feel that they BELONG in their school community. What can YOU do to help fellow students fit in and participate fully in school life and activities? With a little bit of effort, you can make a difference. How? Picking up and reading this magazine is a good start. It helps students to better understand some of the issues facing students with disabilities. It also offers tips on how students with disabilities can help other students to more fully appreciate their needs. More importantly, it helps you realise that everyone is a valued member of the school community. “Just Like Us” encourages Student Representative Councils (SRCs) to develop projects in schools that allow students who have a disability to participate more in school life. This magazine should be read by student leaders and then promoted within the school as a resource. Have a look at page 21 for some ideas. What else can you do? That’s easy… share a joke, a magazine, a computer screen, a basketball court, whatever! Go on… just do it! You’ll be amazed at what a difference just one person can make. You can read about the personal achievements of the students featured in this edition. Look up the web sites and you will find people you can contact. This magazine is all about students supporting each other and learning together. DID YOU KNOW? • There are over 35,000 students with disabilities in government schools. • These students have intellectual and physical disabilities, hearing and vision impairments, mental health problems, autism and significant language disabilities. • Disability can be something you are born with or it may be acquired through accident or illness. • Students with disabilities attend school in regular classes, in special classes in primary and high schools, and at special schools. • It is against the law to treat a person less favourably than others in the same situation because of their disability. Just LIKE US 3 A word about language The words you use can have an enormous effect on people with disabilities and their families. It is important to place the emphasis on the person with a disability rather than the disability itself. With a little effort it is just as easy to say ‘the boy with Down syndrome’ rather than the ‘Down syndrome boy’. Even better, would be to say ‘Sean, from Mrs Brown’s class’. Source: “One of the Kids” Wendy Stroeve 1998 STUDENTS WITH DISABILITIES ARE YOUNG PEOPLE, JUST LIKE EVERYONE ELSE AT SCHOOL, BUT SOMETIMES THE ATTITUDES AND ACTIONS OF OTHER PEOPLE MAKE IT REALLY DIFFICULT FOR THEM TO PARTICIPATE IN ALL OF THE ACTIVITIES AND OPPORTUNITIES THAT SCHOOL OFFERS. Participation means more than just being there. Do students with disabilities have equal opportunity at your school? If not, why not? Sometimes students with disabilities need adaptations – different ways to do their work. This is not to give them an advantage but give them a chance to participate in all activities with their classmates. Have a look at this story about Susan. What do you think about the way she works with her class? Is it helpful to Susan? Is it fair to her classmates? Susan, who is in year three at her local school, finds it difficult because of her disability to write clearly, quickly, or for long periods. In order for her to join in the same activities as others in her class, a variety of ways have been used to adapt the way she is able to work: • The class often works in groups or pairs where Susan’s comments can be written down by another student. • Susan often chooses to record answers to homework on a tape recorder. When the class is working through examples of sums or doing a test Susan sometimes has fewer questions to answer, or sometimes is given extra time to finish at school or at home. • When the class is doing handwriting or stories, Susan practises keyboard skills or uses a word processor. • Susan’s teacher plans more activities with visual, auditory, musical or active elements, rather than concentrating on the more traditional written responses. She says this has benefited the whole class. Adapted from: "One of the Kids" Wendy Stroeve 1998 What about when Susan is doing assessment tasks in High School? Do you think that she should have the same special allowances then? What else could help Susan to fully participate in class activities? 4 Just LIKE US Do you know anyone with a physical disability? D o they need to use a wheelchair or some form of support? Think about the things you do everyday. How hard would it be to do them if you needed physical support? Could you get to all your classes? Could you go to the movies or the local shopping centre? What does your school and your local community need to do to make all activities more available to people with physical disabilities? If there are students with physical disabilities in your school don’t be afraid to help them or to play with them – they won’t break! Talk to the students, or to their parents or teachers. They can tell you what activities are best. Just remember that they will probably enjoy the same things as you do. Read Melissa’s story: Hi there, My name is Melissa and I have Cerebral Palsy. Right now I'm 16 and attend high school. I enjoy meeting people who share the same challenges as myself. I love taking on the challenges of life full force! I like to swim, ride horses (for therapy and fun), write, learn new things on the computer, and learn how to drive different vehicles. I look forward to going to university. I will probably become a computer graphic artist/web page designer in the future, but I'm not one hundred percent sure. I love old vehicles, I don't know much about them, but I have a blast driving them. I’m so fortunate to have control of my legs while sitting. This allows me to drive without adaptations. I use a power wheelchair to go long distances. My chair is a Quickie, and pops wheelies. This was quite a hit at school when I first got the chair. Am I different… Am I different from the rest, because I have to walk around with a bunch of metal? Am I different from the rest, because I ride around in a chair with big wheels? Am I different from the rest, because I am a little slow? Am I different from the rest, because I fall a lot? Am I different from the rest, because I can’t play a lot of sports? Am I different from the rest, because I get a lot of operations? No, I am not different from the rest. I just have trouble walking. From: http://www.angelfire.com/mi/ Care/writtenwks.html Just LIKE US 5 Talk to me! I use a wheelchair but I can do most things for myself. Whenever I’m out with someone else, people ignore me and talk to my relative or friend. They even talk about me as though I was not there! How do I get them to see that I would like to be part of the conversation too?…LEFT OUT Dear LEFT OUT, If possible, try inviting the other people to sit down so that they are at eye level with you, this will make it easier to join the conversation. Listen to what is being said and make comments at the right time so that people realise you have something to contribute that is worth hearing. If people ask your companion questions that they should have asked you, interrupt politely and answer them yourself! discovers new places S eventeen year old Scott Erichson of Mona Vale often travels to the city during the school holidays. Scott, who has been blind since birth, is a computer whiz and very keen on music. He particularly likes to visit the sound room at the Powerhouse Museum. Scott has learnt to use a long cane which enables him to travel to school independently. During the holidays his instructor will travel with Scott from his home to the city. The purpose of the journey is to familiarise him with express buses, trains, busy city intersections, city crowds and our new trams. Before tackling the city, Scott was introduced to less busy places like Manly, and the local bus depot to check out the various types of buses he will use in his travels. Copyright: Guide Dogs Association (NSW) 6 Just LIKE US What is it like to be visually impaired? Y our vision can be affected in many different ways. Wearing a blindfold is one way to get an idea of how blind people manage. However, since most “blind” people can see a little bit, at least, you may like to try some activities with low vision. To quickly simulate a loss of vision in the centre of your field of vision, hold your fist close to the centre of your eyes, keep your eyes fixed straight ahead and try to take note of what you can and can’t see. Try to read or walk across the room. An easy vision loss to simulate is cataracts. Tie a very thin, light coloured scarf around the eyes or separate a tissue in half and tape it to a pair of glasses. Things should look quite hazy so it can be difficult to identify different people or objects. Experiment with different thicknesses and in light and dark rooms. To simulate tunnel vision close one eye and hold your hand in the shape of a small ‘o’ in front of your face. Tunnel vision can also be simulated by making a paper bandit type mask for the eyes, then putting one pin-prick through it with a needle anywhere along the front-centre. Don’t make it too big (a pencil point thickness is plenty) or it’s too easy to see through. Try to do some of the following activities wearing a blindfold or a light scarf (with proper supervision for safety): • • • • • • • • move about the room try to follow along in a maths or science class do your homework talk with friends in a small group eat your lunch, pour a cold drink make a sandwich participate in a P.E. class deliver a message to another part of the school. Of course, unlike people with a vision impairment, you can remove the blindfold any time you like. What solutions to problems can you and your friends suggest? How could you make it a little easier for someone in your class who has a vision problem? ore? Out M d n i f o Want t s book: ? and ur blue ess “ hi t lo o d c a e e h R ber t t blindn m u u reme sk abo st “Do yo stions kids a Sally lo . . r e e u d q n r othe e of 26 t Alexa Hobar se at the ag aks to y ll a S a e spe By t to dis nd she also g people, h ig Some tips on the best way to help a blind person s r n he riter a t to you e is a w especially reveals wha h S d ❖ Offer help, rather than assume a person needs e n w h a o , S h s . on: ess oup assistance. If they accept your offer, let them take your arm. gr out her blindn or a blind pers grooms b f d a e an Never grab or push them. fe is lik esses daily li the time, dr r guide dog, e lls ❖ Talk directly to the person and not through a third person. she te works with h , lf e ❖ It’s fine to use words like “look” or “see”. People who hers rites. ooks. and w ren’s b d are blind use these words all the time. il h reads c iking ❖ Don’t shout. Most blind people can hear as well as anyone else. Publisher: V 80434 670 8 ISBN 0 ❖ When you greet a person, say who you are. And when you’re leaving tell them that you are going. Copyright: Guide Dogs Association (NSW) Just LIKE US 7 DID YOU KNOW that more than half of the students in our schools who have a disability have an intellectual disability? HELLO, THIS IS ALEX My favourite things to do are going to the movies and singing. I like to play basketball, swim and watch the Brisbane Broncos play. My favourite holiday was in Melbourne with friends. I am going to Melbourne next year. HELLO, THIS IS NIKELA My favourite things include collecting magazines, photos and CD’s. I also like listening to music and playing basketball. I like to watch TV programs such as Home and Away, The Nanny, Home Improvement and Hey Hey it’s Saturday. My favourite holiday was when I went to the Sunshine Coast. I am going to travel to Rome and then fly to America to meet Chris Isaac, John Farnham and Ricky Martin. HELLO, THIS IS ANNA I am improving my writing and enjoy reading and would like to write a book called Sweet Valley University. My favourite things are CD’s, books and my Backstreet Boys’ shirts and video. I sometimes listen to music on my CD player. I like to go swimming, play my recorder and listen to jazz. My favourite holiday was when I went to Tasmania and Sydney to meet the cast of Home and Away. I am going to go to Sydney to see Home and Away and to get the cast’s autographs. I wish I could meet my stars such as The Backstreet Boys and Britney Spears and get a solo career. My favourite songs from the Backstreet Boys are Fan and I Want it That Way. My favourite songs from Britney Spears are Baby One More Time and the Bottom of my Broken Heart. My favourite TV programs are Home and Away, Blue Heelers, Dawson’s Creek and Friends. (From http//www.uq.edu.au/ssserc/latchon.html) 8 Just LIKE US SIOBHAN PATON, teenaged swimming sensation! Siobhan Paton, a seventeen year old schoolgirl, who has an intellectual disability, was Australia’s most successful athlete of either the Paralympics or the Olympics in 2000. She won a record six gold medals for her achievements in the pool and she set a number of world records. Image from: www.actswimming.com.au Australian Paralympian of the Year S iobhan went into Paralympic swimming in June 1997. She had started swimming when she was 9 years old because doctors had told her family that it would help her with a connective tissue disorder and asthma. She has a very rigorous training program, swimming six days a week. She says her role models are Daniel Kowalski and Angie Kennedy because they appreciate that the Paralympians train just as hard as they do. Recognised in the Australia Day Honours List. Congratulations Siobhan As she prepared for the games Paton, OAM!! Siobhan said “For service to sport as a gold medallist at the Sydney 2000 Paralympic Games." “I am looking forward to competing for Australia and I hope to make everyone proud by doing my very best. I would like to win a medal but I will just have to see how well I can swim on the days". (www.actswimming.com.au) Just LIKE US 9 A few weeks after the Games and her six gold medals, Siobhan relaxed at home and talked of the amazing changes in her life. A life that has now included being named Australian Paralympian of the Year, being cheered by tens of thousands of people in street parades, appearing on a specially printed Australia Post stamp and being approached regularly by strangers wanting to greet a new Aussie sports champion. Speaking of the Games themselves, she is delighted Australians took sportsmen and women with disabilities to their hearts by switching on to the ABC radio and television coverage and packing Paralympic venues for most events. “Australians have a different view of people with disabilities now". she said. (www.kyrie.com) As I lay on my bed and stare at the ceiling I find all the emotions I’m feeling Frightened, afraid of what I may find Floating visions in my mind Visions of people laughing and staring I can’t take all this pain I’m bearing Why are they laughing? Is it 10 Just LIKE US Siobhan pictured with her medals, the special Australia Post stamp and the Paralympian of the Year trophy. what they see? I guess they think they’re better than me. Guys think you’re not even good enough to get to know So they take one look and decide to go Girls are the same You’re always to blame You’re not good enough to fit in their gang They’re always ready to blow you up with a bang One day I hope to be seen as a person With a name Like, there goes Rachael, Jackie or Sam, WELL, MY NAME’S FIONA AND I AM WHO I AM! Fiona Abdilla Sticky Beaks. Everywhere I go people stare at me, especially small children and older people. I’m in a wheelchair but that doesn’t mean I don’t ADVICE notice. Should I say something to them? UPSET. PLEASE!! Dear Upset, People probably stare at you because they don’t know much about people who use wheelchairs and they would like to know more. It would help if you could talk to some of them so that they can see you as a person just like them. But, if they are being rude you can certainly ask them to stop – find a polite way to say it though! Ideas please My friend Melissa uses a wheelchair. We have a really good time together but I get bored just going to the local shops and watching TV. What else can I do with her that would be fun for both of us? CURIOUS Dear Curious, Think about the things that you like to do with your other friends and work out how Melissa could join in too. Perhaps you could invite friends around and enjoy some music and some snacks together; maybe there is a train station with a lift near you so that you and Melissa could explore some other places and activities. If access for wheelchairs is a problem in your community ask your parents or teachers to help you talk to your local council about it! What do you think? Are there other answers to these problems? What’s Going On? I have friends in class who are nice to me, but when it gets to recess and lunch, they go off and do their own thing. I sit on my own or help some other kids. LONELY Dear Lonely, Helping some other kids is a great idea because that way you solve two problems, yours and theirs. Look for friends in the playground with the same interests as you. If you can’t join in physical activities like kicking a ball maybe you can find a friend who would enjoy a card game or a visit to the library with you. All Mixed Up I have a severe vision problem and because of that, people seem to talk really loud to me. My hearing is fine. Why do they do this? NOT AMUSED Dear Not Amused, There is so much that people in our communities don’t understand about people with disabilities and so they act in strange ways. Hopefully, as people with disabilities are able to join in more everyday activities with everyone else, people will learn to treat you sensibly. Until then, just tell them quietly that there’s no need to shout! What could you do? It’s not funny! Sometimes the kids at school stare at me and laugh. Then my brother wants to punch them out. I’m glad he tries to look after me but I don’t like him getting into trouble just because I look a bit different. What can I do? WORRIED One of the Gang? I have a younger brother who has Down syndrome. He is not at school yet. Sometimes I see my school friends teasing other kids with Down syndrome. I feel like I should make them stop, but I want them to like me. What should I do? SOON IT WILL BE MY BROTHER. (Source: Sibshops by Meyer & Vadasy) Just LIKE US 11 A PARENT’S STORY Joshua Smith, Achiever of Excellence e were very thrilled and proud recently, to accompany our son, Joshua, to Sydney where he received a Minister’s Award for Excellence in Student Achievement 2000. The ceremony was held at the Powerhouse Museum and the Award was presented by Dr. Ken Boston, Director General of Education and Training. Joshua was one of 36 recipients from across the State and was in the company of some very elite Yr 11 & 12 students. As you may imagine we were absolutely thrilled that Josh was nominated by his school community and even more so that he won the award. It is a wonderful culmination to the 19 year journey we have been fortunate enough to have been on with Josh…our reward as well as his, for a job well done. Some other highlights of the last year have included performing at school assemblies as one of the Blues Brothers, and again at the end-of-year “muck-up” assembly for Yr 12, where his cameo spot (a “strip” to reveal his costume) brought the house down; the Yr 12 Formal Assembly where he received many awards; the much-anticipated Yr 12 Formal and his farewell speech at the Christmas lunch. The event that will stay in my mind for a long time though, was his attendance at the Champagne Breakfast on the last day for Yr 12. We received many phone calls from fellow students to make sure he went, and he had a ball…didn’t care for the champers though!!! This truly was a yardstick for inclusion and acceptance and one which we will treasure. A small thing I know, but one which gave us a buzz. I still can’t believe we have come this far and the reality of leaving school has been a real wrench for him and for us, but I believe the future will hold many opportunities for Josh and that he will embrace it with the same pleasure and commitment he has always displayed. W Kind regards, Liane Smith 12 Just LIKE US Nikki Wright (Girls’ Captain, Armidale High School), Dr Ken Boston (Director-General, Department of Education and Training), and Joshua Smith at the awards ceremony, 1.12.00 The Minister’s Award for Excellence in Student Achievement 2000 Joshua Smith Armidale High School Joshua Smith has been educated in a support class at Armidale High since 1995. This year he is undertaking his HSC, with a program which includes both Content Endorsed Courses and Board of Studies Endorsed Courses. Joshua enthusiastically participates in a comprehensive range of extra curricular activities, which have included both sporting and cultural activities as well as an active involvement in the Student Representative Council. Joshua has been awarded both a Bronze and Silver Award in recognition of his achievements in class and for his contribution and achievement in the life of the school. He is a great ambassador for young people. JAMES also graduated from Armidale High School last year, being awarded the Southern Cross University Prize for the Performing Arts at the school’s annual presentation evening. As part of his HSC studies, James completed the Sports Lifestyle and Recreation course, following up on his participation, in previous years, in regular classes in Personal Development, Health and Physical Education and in Dance. Like Joshua, James had actively participated in a range of school events. He was a part of the school’s dance ensemble which had perfomed at dance festivals and he was a member of the school’s Rock Eisteddford team. Josh (left) with friends James and Primmy, Yr 12 Formal, Armidale High School 24.11.00 Just LIKE US 13 how does this 18 year old guy feel about his life? Autism is a neurological condition that I was born with. It affects my life in many ways. Since I am autistic I have a lot of social anxiety. I get nervous going to school or leaving the house. I get scared when I have to talk to people or ask someone something. This can affect me because I can be too scared to go to the shops or ask a teacher for instructions. I have trouble with social cues. I get extremely worried and paranoid about obeying them, and not letting someone think the wrong thing about me. I worry that things such as making eye contact while passing someone in the corridor, or accidentally getting in someone's way, or other things, will cause the person to misinterpret my body language. School is an unpleasant environment for me. I have trouble learning in the manner the teachers teach. I have a lot of trouble with the group assignments, because I do not know how to contribute to a group, or how to communicate my ideas. It's hard to be in class so long. Autism also has some positive characteristics. For example I have an IQ around 150. I am very good at Maths and Science. I can calculate arithmetic in my head faster than most people can, although not as fast as Rainman. I am a very visual thinker. If I were able to no longer be autistic, I wouldn't take the opportunity, although there are times when I say I would. Without autism perhaps I wouldn't be as intelligent, and might not have the same personality. I have my strengths and differences, like anyone else, my strengths and differences are just different. Are there students with autism at your school? People with autism are different from each other. They each have their own personality and needs just like you. Adapted from information by Quartz. My Life Behind Glass by Wendy Lawson. Published by Southern Cross Uni. Press, Lismore, NSW A unique personal account of growing up "different". ISBN 1 875855 31 9 H A V E A L O O K A T One of the best ways to understand autism is to imagine yourself as a perpetual onlooker. Much of the time life is like a video, a moving film I can observe but cannot reach. On a good day, I can smell the flowers, and taste the inviting aromas. What I cannot do is fully participate in the complexities of apprehension, interpretation, communication and comprehension. "Life Behind Glass" Wendy Lawson. T H E S E B O O K S Achievement. Living Life – a photographic representation of people with a disability. Photographs and captions by Sophia Borick. Covers a variety of people with disabilities. Available from Deafness Resources. (02) 9895 2970 Living Legends. Darlene Toole. Butte Publications, Inc. 1996. ISBN 1-884362-13-3 Views From Our Shoes – growing up with a brother or sister with special needs Donald Meyer (Ed), Woodbine House. 1997. ISBN 0 9331 49980 14 Just LIKE US Hi, I’m Ali… I have autism too… here’s some tips as to how we can better communicate with each other Autism is: being present in this world, But not entirely of it. I am one step removed and curled, The switch just doesn't click. • Talk to me. Even if I don’t always look straight at you, it doesn’t mean I’m not listening or interested. • It helps me a lot if you only use short sentences with a clear message. I often say only the message words. People sometimes say it sounds rude but it’s how I talk and understand best. • In group work it helps me if you let me read my part of the task alone. It’s better if you give me clear choices about how I can contribute rather than let me work out what to offer. • Using diagrams and pictures rather than just talking to me helps me a lot in class work. I can understand the information better in pictures even though my reading and writing is OK. • I like it when you let me know if I’m doing something that makes you uncomfortable, like standing too close or interrupting. Tell me how to make it better in a kind way and I’ll try to remember next time. Life is like a video, I watch but cannot partake. My uneven skills are but an echo, Of the frustrations which I hate! However, my focused use of time and space, I would not give away. I know that I am especially placed, For some developed career one day! (By Wendy Lawson, a woman with autism) Invite a speaker to your class, SRC meeting or assembly group: The Down Syndrome Association of NSW Inc, at PO Box 2356 North Parramatta, NSW 2151, is happy to arrange speakers for schools. They find that small groups usually work best. Volunteering NSW (ph.9231 4000) runs the School Community Involvement Program, where a group of people with different disabilities goes to a school and speaks with groups of students (arranged however it suits the school) about their particular disability. Each student gets to meet with each of the speakers. It is usually done as part of the PDHPE program. Perhaps a sibling from within the student body could do a similar thing. Invite a speaker from the Guide Dogs Association to visit your school. Ring them on (02) 9922 4211 or email on [email protected] Just LIKE US 15 Cop the tip, man Did you know that there are more than 400 students with a hearing impairment in NSW government schools? Try this to share their experience: • Gently stuff your ears with cotton wool, then take an unseen dictation test. • Put some fairly loud music on and then try to listen to the explanation of how to carry out a new task in mathematics. Remember these tips for talking to anyone who has difficulty in hearing: • Face the person directly, and be at the same eye level whenever possible. Don’t shout, speak normally. • Keep your hands away from your mouth. Give them every chance to see all of your face. • Reduce background noise. Turn off the radio or television. • Be sure the light is not shining in their eyes. • If you are not making yourself understood, find a different way of saying the same thing. • Be aware that they may have difficulty understanding speech even with a hearing aid. Can you help Amy? Hi, I’m Amy and I’m in Year 10. Michael, a guy with a hearing impairment, is in my English classes. He can follow the teacher most of the time by watching her closely and doing some lip reading. Once a week the teacher talks to us about our novel and we have to make our own notes. Michael says he can’t listen and write as well so he wants to copy my notes. The teacher says that I should let him but I don’t think that this is fair. After all, we will use these notes for our assessment tasks and why should he have my ideas? He should have to think for himself! What do you think should happen here? Should Amy share her notes with Michael? Would it be better if the teacher asked for volunteers to share their notes? Should the teacher provide notes for Michael? Perhaps the teacher could write the notes on the board for everyone. Is there another way that the lesson could be organised so that the students didn’t need to take notes? Does Michael need some extra help from the staff apart from the usual lessons? What do you think would be fair? What help would you like if you had a hearing impairment? Video: Signs of Life. Australia’s Deaf Community. Deafness Resources Project 1989. By the A/V Production Unit, Brisbane College of Advanced Education, Australia. Features deaf people – from young children to senior citizens – leading normal purposeful lives, participating in a range of activities including working, playing and socialising, and talking about their lives with inspiring candour, insight and humour. 40 minutes. 16 Just LIKE US Run a poster competition to design a fabulous wheelchair or special piece of equipment. Find out more about disability from the Internet. See the list of Web sites in this magazine on page 26. Start a program with a neighbouring school that has students with disabilities enrolled. Look around your school. Are there areas that would not be friendly for people with disabilities? Plan some ways they could be improved. With your friends, visit the web site of the Guide Dogs Association http://w ww.guidedogs. com.au/, and find out how to be a guide to a person with a visual impairment. Allow a trusted friend to blindfold you and lead you around the school grounds. Make sure you follow the rules so that everyone is safe! Blindfold yourself and then select your outfit for the day by feel. Can you identify your clothes by your finger tips? Try to identify the items in your bathroom by touch and smell. Real Gorgeous by Kaz Cooke. W.W. Norton & Co. ISBN 0393313557 An empowering book that tells girls and women how to be friends with their bodies. Travels with my Wheelchair by Miranda Yeend. e-mail: [email protected] The story of Miranda’s solo trip around the world. Just LIKE US 17 TROY SACHS and JANE WEBB PA R A LY M P I A N S People may have a disability from birth, or they may acquire it from accident, illness or the ageing process. Troy I was born without a tibia, (shin bone), and a foot that was deformed. It wasn’t much use helping me walk, so at the age of two and a half they amputated my foot and I was fitted with a prosthesis. I’ve worn an artificial leg ever since. Jane fell out of a tree when she was nine and landed on an exposed tree root and broke her back. Being so young, I think Jane and I both just sort of got on with it. I had an older brother, and I basically followed in the footsteps of everything he did. I went to the same school, and played able-bodied sports like he did until I was 14. You do always think, Oh, what if I had a leg, or whatever, but only in private. Jane was a really good runner 18 Just LIKE US until her accident, but her mum was very pushy about getting her back into sports, and not looking for sympathy. The only time I see it really worry or annoy her now is when there are stairs to a restaurant and she can’t get up them. Jane: When I met Troy he was this painful 14-year-old in a wheelchair. He’d do all these stupid things in front of the girls and be smelly. But he began to become this fantastic player at a very young age – getting a scholarship to play professionally in America was unique – so I used to see him when he came home, we were just buddies, you know. I suppose I did fancy him, that was always there. And we’re not together because we are both disabled: but sometimes I think it’s easier with Troy because he knows the deal with the wheelchair thing. I can say, ‘Oh, I fell out of my wheelchair today’, and he’s not automatically like, ‘Oh, God!’ He can see the funny side. Troy’s disability is hidden. He can walk into a room and unless he’s got a pair of shorts on, you’d never know that he was disabled. Whereas mine’s very much in your face, because I can’t walk and I wheel around everywhere. Extract from an article by Amanda Hooton July 29, 2000. Photographer: Tom Cliff Reproduced with permission from GOOD WEEKEND and the SYDNEY MORNING HERALD How to Play Wheelchair Football Wheelchair football has been developed with "universal" style rules and classifications that are meant to be flexible and should be modified to suit various playing fields and players with varying abilities. Playing Area Basketball court – divided into 4 equal parts, goal posts. Equipment 1 x Standard foam football (Nerf Ball, Poof ball etc). Some groups use a tennis ball. A game consists of two halves each of 20 minutes duration. Each team consists of 6 players and 1 reserve. The winning team is the one that scores the higher number of tries and goals. To start the game A) the referee tosses a coin – winning team has the right to choose whether they receive or "kick" off. B) to "kick" off a player on attack rolls the ball towards the opposition. Once the ball has rolled under a player’s wheelchair (WC) the person says GOT IT and proceeds to their try line (without the ball). C) to pass the ball it must be passed to a person behind (otherwise it would be a forward pass and the ball would be given to the opposition) by calling out their name or number. They must say GOT IT for the pass to be successful. D) to tackle another individual a player must touch (one-hand tag) the person, or touch wheelchairs. 5 tackles are permitted, on the fifth the team has the choice to call for the ball and throw it and say KICK. If the ball goes dead the opposition gets a quarterline tap. The opposition can intercept and take the ball by saying GOT IT. On the sixth tackle the ball goes to the opposition. E) Once a try has been scored it needs to be converted. This is done by rolling the ball from halfway, towards the goalposts, in line with where the try was scored. F) The team who scores the try kicks off. A N O I T A L S I G E L S R E I R R A B F Q R P S I S E H T S O R P D A E F I G H J K I I A I R A L G N D C A N E R Y A C C E S MS D E N I N G I N D E I A G N O MMU E L L I T E L L N D S V T I C I Y T I L L Y MP S I A P I N A E X P I I Y D Z E R I R C B A B C Y O C N A C B T D T A S T B H D E A F U E I S F I E G E H T I A J O I K N G L B L O N C MP I O B L L L I C N O D R N B I A B E R N S L I E R B D X Q A R P I F A Y H S C O L E E P E M H A W S BRAIN TEASER DIGNITY BRAILLE INDEPENDENCE DEAF ACCESS PARALYMPICS ABLE-BODIED BLIND LEGISLATION CANE DISABILITY BARRIERS HEARINGAID FRIENDS SIGNING PROSTHESIS COMMUNICATION INTELLECTUAL PARTICIPATION WHEELCHAIR Just LIKE US 19 I found the work hard, but Mum helped me with my homework and my reading. They have always said that people with Down Syndrome would not learn very much. When I was eleven, in Year 5, my teacher wrote in my school report: "We should not expect too much of Ruth". But I wanted to show people that they are wrong about me having Down Syndrome. Inside me, I had the feeling that I can do things. But then I had to change schools as there was no help for me in the senior school. In my new school I did some classes with the other students and also did special education. My name is Ruth Cromer. I live in Sydney near Bondi Beach with my parents and my brother. I am 28. I am an actor. I work in a bank. I happen to have Down Syndrome. F or my work as an actor and my work as an advocate for people with Down Syndrome, I was nominated for the Young Australian of the Year Awards 1998. I was the winner of the Medibank Private Arts Award for NSW/ACT and I was very proud and very happy to win. Winning this award shows that if people with Down Syndrome are given opportunities and support, they can achieve just like anybody else! I went to normal schools (whatever they are) and I was in the regular classes. I liked my schools and I liked my teachers. 20 Just LIKE US So what was it like being a person with Down Syndrome at school? I didn’t have many friends in senior school, and sometimes I felt "outside". At lunchtime, I used to go to the school library and read books. When people were mean to me, I just walked away. And when some people were not interested in me, I felt left out. I felt lonely then. They were not friends of mine. And some people stared at me, and sort of pointed at me, and I found that rude. I always wanted to be an actor and I have done it! I auditioned and got a role in the TV series "House Gang", a comedy series about three people who live in a group home which was shown in Australia on SBS and also went international. We made a second series in 1998 in the United Kingdom. People always ask me how do I learn my lines? Do I have to have help? Well, I don’t. I learn all of my lines by myself and I keep at it. I also know the whole script. I never miss a cue. I do my job, and I work very hard. In a play I did, my final speech is a powerful monologue, it really hits home: I have Down Syndrome. It’s not a disease. There is no cure. I was born that way. I don’t like it, but I’ve learnt to cope with it. So have my parents. I’m not a disabled person. I’m a person with a disability. I’m a person first. WANT TO DO MORE? View the videos from the resource "Learning Together" which is available in your school. Encourage closer links between Support Units and the student body. Choose a special day and run awareness raising activities. Encourage students with a disability to nominate for and be appointed to the school SRC. Encourage SRC representatives from SSPs to attend district SRC meetings regularly. When nominations for membership to the NSWSRC and the State SRC Conference Working Party are called, encourage student leaders who have a disability to apply. Use the forms on the following pages to help in planning for your school. Just LIKE US 21 IDEASFEST Brainstorm all your ideas now! Idea Sheet 22 Just LIKE US Just LIKE US 23 4 3 2 1 Steps Action Possible problems Enlarge onto A3 paper for use By when S T U D E N T R E P R E S E N TAT I V E C O U N C I L Responsibility What we need (Support and resources): What we want to achieve (Goal): Project Name: Action planning Possible solutions SCHOOL How will we know we have succeeded? ACTION PLAN USE ALL YOUR IDEAS AND TURN THEM INTO AN ACTION PLAN! ACTIVITY: STEPS TO BE TAKEN: TIME IN WHICH EACH STEP IS TO BE COMPLETED: WHO IS TO CARRY OUT EACH STEP: RESOURCES NEEDED: REVIEW DATE: COMPLETION DATE: 24 Just LIKE US I Am Just Me By: Kelly Czarnecki Going to school isn't always easy for me I was born with something they called "Cerebral Palsy" Sometimes called C.P. I look a little different I stand out from my peers Their many unanswered questions Often cause them false fears That they can catch this terrible thing If they even come near me If they only let me explain The truth about C.P. They'd see it's not contagious That you can't catch it from me Some people pity me But that's not at all what I want I want people to see past this thing And be my friend Just treat me like everyone else, please... If you'd befriend me You'd truly see That I'm a whole lot more Than those two words they used so long ago To describe what was wrong with me If you see past my C.P. You will see that I am just like any other teenager I am just me From: http://www.angelfire.com/mi/Care/writtenwks.html Just LIKE US!! It is times like these that I am very thankful for you. When I met you, we started talking. When some people meet me, They shy away from me because of my wheelchair. You did not. You talked with me as if I was not in a wheelchair. This is being accepted. If I need help, I am not afraid or embarrassed to call upon you.You will help me, no questions asked. You will stand beside me without embarrassment. This is being accepted. Some people do not want to have anything to do with me because I am "different." Not you, you are right there ready to face my challenges with me. This is being accepted. Some people just do not understand that my wheelchair is only my method of transportation. You look beyond my wheelchair to see who I am. This is being accepted. Some people do not know how to help me in different situations. Rather than asking, they just walk away. Thank you for always standing by my side in all situations. This is being accepted. BEING ACCEPTED By Cindy Curtis From: http://www.angelfire.com/mi/Care/writtenwks.html Just LIKE US 25 Want to know more? Contact these places AASE Inc. (Australian Association of Special Education) PO Box 226 Bomaderry NSW 2541 http://www.aasensw.asn.au A collection of stories by young people with Down syndrome http://www.uq.edu.au/sserc/latchon.html Ageing and Disability Department Level 13, 83 Clarence Street Sydney NSW 2000 http://www.add.nsw.gov.au Aspect (Autism Spectrum Australia) 41 Cook Street Forestville NSW 2087 Brain Injury Association NSW Suite 106, Level 1 18-20 Ross Street Parramatta NSW 2151 Coeliac Disease Society of NSW http://www.nevdgp.org.au/geninf/gastro/ coeliac.htm PO Box 271 Wahroonga NSW 2076 Cystic Fibrosis Association of NSW http://cysticfibrosissa.senet.com.au/frmain.htm PO Box 149 North Ryde NSW 2113 DIRC: Disability Information and Referral Centre: East Sydney Email: [email protected] Disability Council of NSW http://www.discoun.nsw.gov.au/ Level 21, 323 Castlereagh Street Sydney NSW 2000 Down Syndrome Association of NSW Inc http://www.hartingdale.com.au/~dsansw/ PO Box 2356 North Parramatta NSW 2151 Eating Disorders Association of NSW http://www.edansw.org.au P.O. Box 811 Castle Hill NSW 1765 26 Just LIKE US Epilepsy Association of NSW http://www.auscharity.org/epilnsw.htm PO Box 879 Epping NSW 2121 Friedreich’s Ataxia Association of NSW http://www.faa.org.au/ 19/2 Harbour Street Wollongong NSW 2500 Guide Dogs Association (NSW) http://www.guidedogs.com.au/ 5 North Cliff Street Milsons Point NSW 2061 Human Rights and Equal Opportunity Commission http://www.hreoc.gov.au Juvenile Diabetes Foundation of Australia http://www.jdfa.org.au/ PO Box 1500 Chatswood NSW 2057 NSW DeafBlind Association–DBA(NSW) Inc http://www.deafblind.com/australia.html PO Box 1295 Strathfield NSW 2135 Northcott Society www.northcott.org 2 Grose Street North Parramatta NSW 2150 Royal Blind Society of NSW http://www.rbs.org.au/ar96/anrep96a.html 361-365 North Rocks Road North Rocks NSW 2151 Spastic Centre of NSW http://www.tscnsw.org.au/ 189 Allambie Road Allambie Heights NSW 2100 Schizophrenia Fellowship of NSW http://www.sfnsw.webcentral.com.au/ Macquarie Hospital 147 Wicks Road North Ryde NSW 2113 Tourette Syndrome Association of Australia Email: [email protected] Wendy Lawson’s Web Page (Autism) http://www.mugsy.org/wendy/index2.htm Acknowledgements The input of Elizabeth Butler (Clarke Road School) and Sheriden Starrett (Bossley Park High School) in the preparation of this material, is greatly appreciated. Cartoons by Linda Bowden, Special Education Consultant, Bondi District. Graphic design by BIAGDESIGN Resources Learning Together NSW Department of Education and Training. 1999 Just Like You, Just Like Me Disability Awareness Kit. Queensland Department of Families, Youth and Community Care. 1997. Physical as Anything Collaborative support for students with physical disabilities and medical conditions. NSW Department of School Education, Australia. 1996 Willing and Able, P.E. & Sport for Young People with Disabilities. An Introduction to Inclusive Practices. Australian Sports Commission. 1995 Images and information sourced from: http://www.kidstogether.org http://www.remote-ability.com/stunts/stunts.htm http://www.guidedogs.com.au/ http://www.faa.org.au/ http://www.hartingdale.com.au/~dsansw/ http://www.amazon.com http://www.isport.com.au/wheels/nswws/ http://www.angelfire.com/mi/Care/writtenwks.html http://www.mugsy.org/wendy/index2.htm http://www.uq.edu.au/sserc/latchon.html Produced by Special Education Unit on behalf of Student Services and Equity Programs Using technology in the community Finding useful information through using the computer Drawing in the Creative Arts room Applying practical knowledge in mathematics Just LIKE US 27 ISBN 073137065-1 9 7 80 7 3 1 3 7 0 65 8