June 2013 Annual Report
Transcription
June 2013 Annual Report
hear The biggest fight starts with the smallest Annual report July 1, 2012 – June 30, 2013 In 2012, the pediatric cardiac program at West China Hospital of Sichuan University performed 618 open-heart operations and 200 pediatric interventional cases. Of the 618 open-heart operations, 262 were performed on children under the age of one. This number of infant open-heart operations increased 44 percent in one year alone. kindness A patient at Amrita Institute of Medical Sciences (AIMS), a Children’s HeartLink partner site in Kochi, India. Photo by Vicky Lakshmanan 2 Annual report July 1, 2012 – June 30, 2013 Surgeons working in the operating room at Amrita Institute of Medical Sciences (AIMS), a Children’s HeartLink partner site in Kochi, India. Photo by Vicky Lakshmanan Leading with Our Hearts Letter From the President. . . . . . . . . . . . . . . . 4 Donors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Medical Volunteers. . . . . . . . . . . . . . . . . . . . . . . 32 Letter From the Medical Directors. . . . . . . . . . 6 Quality of Care Starts with Quality Improvement. . . . . . . . . . . . . . . . 20 Giving Kids a Fighting Chance in Vietnam. . . . . . . . . . . . . . . . . . . . . . . 33 Visionary Circle. . . . . . . . . . . . . . . . . . . . . . . . . . 28 Board of Directors and Staff. . . . . . . . . . . . . . . 35 Organizational Volunteers . . . . . . . . . . . . . . . . 29 International Advisory Board. . . . . . . . . . . . . . 36 Helping Parents Around the World. . . . . . . . 30 Financial Health. . . . . . . . . . . . . . . . . . . . . . . . . . 38 Our Purpose. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 Leaders of Hope. . . . . . . . . . . . . . . . . . . . . . . . . . 11 AIMS Partnership. . . . . . . . . . . . . . . . . . . . . . . . 12 Summary of Events. . . . . . . . . . . . . . . . . . . . . . . 15 The Transformational Journey. . . . . . . . . . . . . 31 3 welcome Friends of Children’s HeartLink How do you ask for help when you haven’t even said your first word? When you haven’t learned how to tie your shoes? How do you fight for your life when your life is dependent on others? You start here, at Children’s HeartLink, where the biggest fight starts with the smallest heart. Baby Areyi Paul, pictured on the opposite page, was four months old when she arrived at Narayana Hrudayalaya Hospital in Bangalore, India. Areyi’s family traveled more than 1,100 miles to Bangalore from their home in Calcutta, as treatment in a private hospital was inaccessible and unaffordable to her father, who earns the equivalent of $85 U.S. dollars per month. As one of Children’s HeartLink’s Global Partners in Pediatric Cardiac Care, the program at Narayana is invaluable in providing high-quality and accessible care to children from India, Pakistan, Bangladesh, Iraq and as far away as the African continent. Congenital heart disease (CHD) knows no geographic or socioeconomic boundaries. Worldwide, one in 120 children is born with a heart defect. As I reflect on the story of Areyi, I am grateful for the support of the Children’s HeartLink community dedicated to assuring access to quality care. Today, Narayana represents what we strive for in each of our partner relationships: a self-sustaining, accessible and high-quality care institution, providing care to thousands of children who enter its doors each year. During fiscal year 2013, Children’s HeartLink medical volunteers, advisors and donors came together as they never have before to support clinical trainings, organizational improvement and leadership development for pediatric cardiac professionals at our 10 partner sites. This year, we orchestrated a cross-site training initiative between two of our partner sites, our first Global Partner in Pediatric Cardiac Care and Training, Amrita Institute of Medical Sciences in India, and Nhi Dong 1 in Vietnam. This exchange was a milestone for our delivery model and demonstrates our continued investment in building sustainable and high-quality programs worldwide. Together with our international partners and medical volunteers, Children’s HeartLink provided training to 1,050 medical professionals this year. We provided 17 customized clinical training visits to our partner sites and also organized 28 off-site training visits, offering the opportunity for our partners to observe and learn at a center of excellence. As a result, our partner hospitals were able to provide care to 71,000 children suffering from CHD over the course of the year. 4 Annual report July 1, 2012 – June 30, 2013 Patient Areyi Paul rests at Narayana Hrudayalaya Hospital, a Children’s HeartLink partner site in Bangalore, India. Photo by Carissa Johnson Our accomplishments this year would not have been possible without the generous contributions of our dedicated medical volunteers who come from outstanding medical institutions. These include Birmingham Children’s Hospital in the United Kingdom, Boston Children’s Hospital, Children’s Hospitals and Clinics of Minnesota, The Hospital for Sick Children in Toronto, KK Women’s and Children’s Hospital and National University Hospital in Singapore, Mayo Clinic, New York-Presbyterian Hospital, Seattle Children’s Hospital, Lucile Packard Children’s Hospital at Stanford University and University of Minnesota Amplatz Children’s Hospital. As leaders in pediatric cardiac care, Children’s HeartLink does so much more than offer training and capacity building. Thanks to our committed partners, talented medical volunteers from renowned institutions, generous financial contributors, a dedicated and experienced staff and a wonderful board of directors, we inspire hope for the children born each year with CHD in the developing world. At Children’s HeartLink, we never stop fighting to save the heart of a child. Each and every day we dedicate our work to ensure the smallest hearts will have access to lifesaving treatment. On behalf of everyone who is part of the Children’s HeartLink family, thank you for your belief in our mission, and for sharing your time, expertise, financial support and friendship with us this year. Sincerely, Elizabeth Perlich Sweeney President, Children’s HeartLink The biggest fight starts with the smallest heart 5 From the Children’s HeartLink Medical Directors In 1969, a U.S. Naval medic noticed a boy squatting listlessly on the ground in Vietnam. Realizing his bluish color was a symptom of heart disease, he made a call. With the guidance of a dedicated Minneapolis surgeon, the child was brought to the U.S. for treatment. This child’s successful surgery was the first of many that became the foundation for Children’s HeartLink. One million children worldwide are born yearly with congenital heart disease (CHD), yet 90 percent of them live in areas where medical care is inadequate or unavailable. Children’s HeartLink helps children better their odds in the fight against CHD. Our mission is to not only promote sustainable pediatric cardiac care, but to establish lasting infrastructures and expertise at our partner sites through focused visits and building long-term mentorships with world-class medical institutions. We build the capacity of our partner sites toward the goal of becoming a Global Partner in Pediatric Cardiac Care and Training. These Children’s HeartLink centers of excellence constitute the platform from which our vision may be realized — to assure that all children around the world have access to quality care. In fiscal year 2013, our global partners and volunteers trained 1,050 medical professionals and we increased the number of on- and off-site training experiences. We also facilitated the first pediatric cardiology fellowship in China. We brought our partners to numerous professional education opportunities, including the 9th Global Forum on Humanitarian Medicine in Cardiology and Cardiac Surgery. They are not only participating in these forums, but also teaching, leading and sharing their advancements with others. Children’s HeartLink began by providing treatment to one child 44 years ago. This year, Children’s HeartLink’s partners served 71,000 children in Ukraine, Brazil, India, China, Vietnam and Malaysia, but our initiatives do not end here and the need for your support remains great. The investment you make in Children’s HeartLink this year ensures that access to treatment is available, not only for one child, but every child. Sincerely, Joseph A. Dearani, M.D. Medical Director, Children’s HeartLink Chair, Division of Cardiovascular Surgery, Mayo Clinic 6 Annual report July 1, 2012 – June 30, 2013 David M. Overman, M.D. Medical Director, Children’s HeartLink Chief, Division of Cardiovascular Surgery, Children’s Hospitals and Clinics of Minnesota “The story of AIMS and Children’s HeartLink is quite an extraordinary one. To be quite honest, I don’t think we would be where we are without having had this association.” R. Krishna Kumar, M.D., clinical professor and head of the department of pediatric cardiology, Amrita Institute of Medical Sciences (AIMS) in Kochi, India it takes a lot of heart to heal a broken one. A patient recovers after surgery at Amrita Institute of Medical Sciences (AIMS) in Kochi, India. Photo by Vicky Lakshmanan 7 Annual report July 1, 2012 – June 30, 2013 Our Purpose dream Our purpose is to ensure that children around the world have access to quality care for the treatment of heart disease. In partnership with key stakeholders, we aspire to achieve our purpose by: Developing self-sustaining centers of excellence in pediatric and congenital cardiac care and training in areas of need Empowering medical professionals to meet the needs of children with heart disease Supporting communities surrounding partner sites to coordinate resources that facilitate access Congenital heart disease is the single most common major birth defect around the world, touching one in every 120 children. 8 Annual report July 1, 2012 – June 30, 2013 Our Progress In the past year, Children’s HeartLink continued to work with partners to improve access to pediatric cardiac care by building capacity at our partner sites and in the communities surrounding them. With help from our medical volunteers, we continued to support clinical training, as well as organizational and leadership development. We also provided a range of educational and technical assistance opportunities for pediatric cardiac professionals at our 10 partner sites in six countries. These opportunities included 17 cardiac training visits by our volunteers and 28 off-site training experiences for our partnersite staff. This represents a significant increase from the previous fiscal year, highlighting the improved effectiveness of our program delivery approach. In fiscal year 2013, we continued our community capacity-building initiatives for groups of medical practitioners in the communities and regions surrounding our partner sites. This resulted in seven Children’s HeartLink-sponsored workshops and several conference presentations, all reaching groups of developing-world medical professionals from the wider community. Altogether with our international partners and medical volunteers, we trained 1,050 medical professionals in fiscal year 2013. Capacity Building This past year was particularly successful for many new capacity-building initiatives. Examples include: • Organized the first Parent Advocacy and Support Group (PASG) for parents of children with congenital heart defects in India • Organized the first ever Pediatric Advanced Life Support (PALS) training for nurses in Vietnam • Hosted the first gathering of partnersite surgeons during the annual meeting of the American Association for Thoracic Surgery in Minneapolis • Brought partners to the first International Quality Improvement Collaborative for Congenital Heart Surgery in Developing World Countries (IQIC) learning session in Geneva during the 9th Global Forum on Humanitarian Medicine in Cardiology and Cardiac Surgery • Children’s HeartLink staff was invited for the first time to present at the 6th World Congress of Pediatric Cardiology and Cardiac Surgery in Cape Town, South Africa • Facilitated the start of the first pediatric cardiology fellowship program in China • Facilitated a new Children’s HeartLink cross-site training initiative between two of our partner sites, Nhi Dong 1 in Vietnam and Amrita Institute of Medical Sciences in India The biggest fight starts with the smallest heart 9 “Children’s HeartLink has given me the opportunity to share my knowledge and skills as a nurse with nurses in another part of the world, to provide excellent cardiac care for children. Children’s HeartLink’s goal of providing support and training to create sustainable programs shows their commitment to improving pediatric cardiac care worldwide. I have developed a friendship with the staff I have worked with in China, and feel that our work there has had a profound impact on the children and families we cared for. Watching a parent’s reaction to seeing their child recovering after surgery is truly priceless.” Karin Robeck, R.N., pediatric cardiac ICU nurse, University of Minnesota Amplatz Children’s Hospital A young patient from West China Hospital #1 of Sichuan University in Chengdu, China. Photo by Bistra Zheleva 10 Annual report July 1, 2012 – June 30, 2013 United States Ukraine China India Vietnam Malaysia Ecuador Brazil Leaders of Hope Brazil Hospital de Base, São José do Rio Preto China First Hospital of Lanzhou University, Lanzhou Ecuador Tropical Disease Institute of Ohio University, Catholic University of Ecuador, Loja and Manabí Provinces India Jilin Heart Hospital, Changchun Amrita Institute of Medical Sciences, Kochi West China Hospital #1 of Sichuan University, Chengdu Innova Children’s Heart Hospital, Hyderabad Narayana Hrudayalaya Institute of Cardiac Sciences, Bangalore Malaysia Institut Jantung Negara (National Heart Institute), Kuala Lumpur Ukraine Ukrainian Children’s Cardiac Center, Kyiv Vietnam Nhi Dong 1 (Children’s Hospital 1), Ho Chi Minh City Postgraduate Institute of Medical Education and Research, Chandigarh The biggest fight starts with the smallest heart 11 empower AIMS: Coming Together in India for a Bigger Purpose Our partnership with Amrita Institute of Medical Sciences (AIMS), our first Global Partner in Pediatric Cardiac Care and Training, continued to thrive this past fiscal year. The AIMS pediatric cardiac program is a valuable resource for Children’s HeartLink and for the pediatric cardiac community in India. As a Global Partner in Pediatric Cardiac Care and Training, AIMS serves as a regional center of excellence in treatment and training and as a thought leader in challenges and opportunities unique to the management and improvement of pediatric cardiac care in the developing world. Over the course of the partnership, Children’s HeartLink and AIMS have worked collaboratively to provide training opportunities to more than 1,500 health professionals at AIMS and in the broader community. This past year, we helped the program strengthen their capacity by supporting off-site trainings for staff. In February, the head of the pediatric cardiac intensive care unit (PCICU), Rakhi Balachandran, M.D., presented at the World Congress of Pediatric Cardiology and Cardiac Surgery in South Africa. We also sponsored eight weeks of training for an intensivist at Boston Children’s Hospital, which included extensive time in the catheterization lab and the operating room, as well as an emphasis on quality improvement issues. In June, Children’s HeartLink facilitated a three-month mentoring and training exchange between AIMS and another Children’s HeartLink partner site, Nhi Dong 1 in Ho Chi Minh City, Vietnam. A pediatric cardiologist from Nhi Dong 1, Do Giang, M.D., traveled to AIMS for fetal echocardiography training. AIMS embraced their role as a trainer/mentor and developed a curriculum and training plan that fostered substantial learning about standard practices and protocols, observation, consultation, counseling and case reporting. “Now, my echo skills are better, my knowledge has grown and my English has also improved! Some cases I just read about in books, but now I have seen with my own eyes. I understand more clearly about the spirit that a pediatric cardiologist should have. We treat the patient, not the disease. We must get as much detail as we can to give the appropriate decision in each situation.” Do Giang, M.D., pediatric cardiologist, Nhi Dong 1, Ho Chi Minh City, Vietnam 12 Annual report July 1, 2012 – June 30, 2013 AIMS has become a center capable of performing nearly 700 surgical cases of varying complexity per year. Interventional catheter procedures have increased to 638 and fetal echocardiograms reached 410 in 2012. AIMS not only experienced their best patient outcomes last year, but also improved outcomes for patients with complex surgical needs. In 2012, AIMS staff performed an increased proportion of surgeries of higher complexity with results comparable to those of centers in developed countries. In partnership with Children’s HeartLink and the India Academy of Pediatrics, AIMS organized four workshops where 377 practicing pediatricians were trained on early diagnosis and timely referral of cases and appropriate follow-up after hospital intervention. Children’s HeartLink also continued to support AIMS’ regional infection control work, which has been an ongoing initiative. In fiscal year 2013, AIMS hosted two infection control certification programs for nurses, a modular program developed with Children’s HeartLink’s support in 2010. As a result, 90 nurses in India increased their knowledge and skills to maintain safe hospital environments and health care delivery systems. AIMS’ own infection rates have dramatically improved in the last several years in the AIMS pediatric cardiac program: With support from Children’s HeartLink and in partnership with the Kerala chapter of India Academy of Pediatrics (IAP), AIMS also organized a pediatric antibiotic stewardship program aimed at understanding the current profile of infections in children admitted at AIMS, identifying specific situations of inappropriate antibiotic usage, introducing a system for continued surveillance of antibiotic usage and creating a platform for a robust antibiotic policy at both AIMS, and later in the state of Kerala. These projects are part of Children’s HeartLink’s increased commitment to community and regional capacity-building programs for health care professionals aimed at improving community-based screening, appropriate referral, and in-hospital care for children with heart disease across India. • Surgical site infections have decreased by 75 percent, from approximately 10 percent in 2010 to roughly 2.5 percent in 2012 • Bacterial sepsis rates have dropped from 18 percent in 2010 to 10 percent in 2012 The biggest fight starts with the smallest heart 13 Chen Qirong, Mark Rosen and the CAAM Chinese Dance Theater. Photos by Phoetic Images eventful A Year to Remember Children’s HeartLink is fortunate to partner with globally oriented individuals and businesses who are passionate about improving the welfare of children around the world suffering from heart disease. Fundraising is the focus of Children’s HeartLink events, but the talented entertainment, showcase venues and enthusiastic guests contribute to the building excitement year after year. This year’s events were a testament to the imagination and dedication of the volunteers, whose gifts of time and talent yield incredible dividends for our partner programs and the people they serve. 2012 HeartLink Gala Presented by Ecolab The 2012 HeartLink Gala Presented by Ecolab celebrated the “Year of the Dragon.” Named for a symbol of prosperity, longevity, strength and good fortune, the year of the dragon proved to be an enchanting theme to tell Children’s HeartLink’s story about our work in China. The 2012 HeartLink Gala brought together nearly 575 guests and volunteers to the Hilton Minneapolis on September 21, 2012. Dedicated honorary chairs Julie and Doug Baker, Chairman and CEO of Ecolab, helped Children’s HeartLink raise more than $780,000 at the 2012 HeartLink Gala. Chen Qirong, a thriving 19-year-old engineering student, gave a heartwarming testimonial about being treated for a congenital heart defect at the age of six when he received treatment at the First Hospital of Lanzhou University in Lanzhou, China, during a Children’s HeartLink cardiac training visit. Guests were also treated to performances by the CAAM Chinese Dance Theater and Minneapolis-based singer-songwriter Pamela McNeill. A culinary-themed silent auction, live auction and gourmet Chinese-themed dinner completed the event, which was hosted by Mark Rosen, WCCO-TV’s sports director and a Children’s HeartLink board member. Julie and Doug Baker. Photo by Phoetic Images The biggest fight starts with the smallest heart 15 Heart to Heart 2013 For the seventh year, gourmet supermarket Lunds and Byerly’s generously sold “Tiramisu for Two,” a Valentine’s Day dessert, with proceeds from the sale benefiting Children’s HeartLink. This special Valentine’s Day campaign was also supported by Caribou Coffee, Frito Lay and MOM Brands. Lunds and Byerly’s sponsored a tiramisu tasting in all Twin Cities locations, featuring local celebrity Miss Minnesota 2012, Siri Freeh, and media personalities such as Alexis Thompson from myTalk 107.1, Brian “B.T.” Turner from K-TWIN, K-FAN’s Henry Lake and KARE 11’s Belinda Jensen, Jana Shortal, Kim Insley and Pat Evans. Grocery shoppers had the opportunity to donate $3, $5 or $10 at checkout, making it easy for customers to include donations to Children’s HeartLink on their grocery bill. The 2013 Heart to Heart campaign raised $36,500 for Children’s HeartLink. Right: Miss Minnesota 2012, Siri Freeh. Photo by Helga Radio Below: Volunteer Bess Heyer, KARE-TV’s Jana Shortal and Children’s HeartLink employee Emily Dale. Photo by Helga Radio 16 Annual report July 1, 2012 – June 30, 2013 21st Annual heartLINKS Golf Invitational The 21st Annual heartLINKS Golf Invitational featured 18 holes of golf at the Golden Valley Golf and County Club, complimentary beer at the Miller Lite Oasis and a variety of on-course contests, including the Longest Putt, Straightest Drive, U.S. Bank FlexPerk Getaway contest, Longest Drive, Chipotle Beat-the-Pro contest and pre-tournament contests “Aim for the Heart” on the driving range and “Putt to the Summit” on the putting green. Following the tournament, golfers enjoyed dinner, an award ceremony, and a silent auction and raffle prizes. This year’s golf tournament raised $66,000 for Children’s HeartLink. After 21 great years of organizing an annual golf tournament, Children’s HeartLink had decided that this year’s tournament would be our last. We are grateful for the many generous sponsors and dedicated volunteers who made the heartLINKS Golf Invitational possible! Above: The U.S. Bank FlexPerks team at the 21st Annual heartLINKS Golf Invitational. Photo by Phoetic Images Right: The Minnesota Twins team at the 21st Annual heartLINKS Golf Invitational. Photo by Phoetic Images The biggest fight starts with the smallest heart 17 generosity Donors Thank you to all of our donors for your devotion and concern for children. We are proud and honored to recognize your contributions. Every effort has been made to ensure the accuracy of contributions made between July 1, 2012, and June 30, 2013. Please inform the development office at (952) 928-4860, ext. 23, of any oversight or inaccuracies and please accept our apologies in advance. Corporations, Foundations and Organizations Minnesota Vikings $5,000–$9,999 Minnesota Twins Gray Plant Mooty Pentair ACIST Medical Systems Mortenson Family Foundation Hays Companies St. Jude Medical Foundation Andersen Corporation Pellegrini Solutions, Inc. IBM Employee Services Center U.S. Bank Bellisio Foods, Inc. Rosen’s Diversified, Inc. $10,000–$24,999 Bernard J. and Valerie A. Daenzer Foundation, Inc. Wellesley Financial Group Kaiser Permanente Community Giving Campaign Andreas Foundation Carlson Companies $50,000–$99,999 APi Group, Inc. Delta Air Lines $1,000–$4,999 Leonard, Street & Deinard Cargill Foundation Cargill Frito Lay Alerus Financial McGough Construction Edwards Lifesciences Caribou Coffee Company, Inc. Great River Energy America’s Charities Moss & Barnett P.A. General Mills Caroline’s Kids Foundation Piper Jaffray Zynga Inc. Dorsey & Whitney, LLP Hedberg Family Charitable Foundation Ameriprise Financial Arizant Healthcare Independent Charities of America PwC Barnes & Thornburg, LLP RBC Wealth Management Bremer Bank Schwebel, Goetz & Sieben, P.A. Children’s Hospitals and Clinics of Minnesota Tankenoff Families Foundation $100,000+ Medtronic Foundation $25,000–$49,999 Boston Scientific Deloitte Ecolab The Hubbard Broadcasting Foundation Land O’Lakes 18 Annual report July 1, 2012 – June 30, 2013 Ernst and Young LLP George Family Foundation Lunds and Byerly’s The C. Charles Jackson Foundation Pine River Capital Management MOM Brands Robins, Kaplan, Miller & Ciresi McKinsey & Company, Inc. Target Corporation Microsoft Matching Gifts Program The Tarsadia Foundation Xcel Energy Creekridge Capital Fulcrum Consulting Grant Thornton Larry D. Martin Law Office Lazard Freres & Co. LLC Thomson Reuters Thrivent Financial for Lutherans Foundation y the power to save a child’s life starts with you. United Way of Metropolitan Chicago United Way of the National Capital Area UnitedHealth Group Matching Gift Funds $250–$499 Dave Cowley Incentives, Inc. Geyen Group Kelly Mitchell Group, Inc. Piper Jaffray Employee Giving American Legion Auxiliary Unit 73 Individuals American Legion Auxiliary Unit 139 $25,000+ American Legion Auxiliary Unit 169 Katina and Franck Gougeon $10,000–$24,999 Anne and Chris Policinski Caroline Amplatz Wendy Bennett and Kendall Powell Julie and Doug Baker Shannon and Mark Evenstad Kelly and Andrew Nelson Ardelle Nicoloff Carmen and Barry Nordstrand Dorothy and Robert Ollmann $500–$999 Stokes Auction Group, Inc. Boston Scientific Employee Giving Program Best and Flanagan SUNY Geneseo Women’s Leadership Institute CVS Annual Giving Campaign TCF Financial Corp. Dell Employee Giving United Way of Long Island eBay MissionFish Wells Fargo Community Support Campaign Horizon Agency Susan Gebelein and Richard Holcomb Infinity Direct, Inc. Laura and Joseph Kiser, M.D. Wells Fargo Private Mortgage Banking St. Andrews Sewanee School Steve Kuhn State Employees Federated Appeal CUNY Campaign for Charitable Giving Kathy and Emmett McMahon Molly Joseph and Andrew Olson $1,000–$4,999 U.S. Bancorp Foundation Employee Matching Gifts Program Theolyn Price, M.D. James Anderson Michael Rimland Eileen and Thomas Armitage, M.D. Buffalo Wild Wings Greater Twin Cities United Way Larson King LLP Lindquist & Vennum Network for Good Oak Grove Foundation Padilla Speer Beardsley, Inc. Pinstripes Prudential Foundation Matching Gifts State Employees’ Community Campaign Whitney Foundation Up to $249 American Express Foundation American Legion Auxiliary Department of Illinois American Legion Auxiliary Department of New Hampshire American Legion Auxiliary Department of Vermont American Legion Auxiliary Unit 52 Uponor Deb and David Andreas Theresa and Richard Davis Deneen and Christopher Vojta $5,000–$9,999 Marianne and Brett Brewer Ann and Mike Ciresi David Strand and Bridget Duffy, M.D. Maggie Gilbert and Robert Rosenbaum Mike and Elizabeth Perlich Sweeney Deb and Tom Vanderheyden Mary and David Wicker Martha Goldberg Aronson and Dan Aronson Rachael and Craig Atkinson Karen and Thomas Bach Liliane and Guillaume Bastiaens The biggest fight starts with the smallest heart 19 Quality of Care Starts with Quality Improvement Children’s HeartLink continues to provide technical and financial assistance to several of our partner sites to support their participation in the International Quality Improvement Collaborative for Congenital Heart Surgery in Developing World Countries (IQIC). The IQIC was conceived in 2007 by Boston Children’s Hospital, Children’s HeartLink and other pediatric cardiac care capacitybuilding organizations working in congenital heart surgery to address the problems faced by developing world programs. One major problem was the lack of comparable program data to evaluate performance and guide quality improvement. Since 2007, the IQIC has addressed this need by facilitating hospital participation in data submission to an online database designed to track clinical outcomes and by examining the outcomes across developing world programs. The IQIC has also provided education on quality improvement strategies centered on the three “key drivers” of reduced mortality associated with congenital heart surgery: safe perioperative practice, reduction of surgical site infections and bacterial sepsis and team-based practice through nurse empowerment. In June, Boston Children’s Hospital and Children’s HeartLink staff facilitated the first ever in-person IQIC learning session in Geneva, Switzerland, during the 9th Global Forum on Humanitarian Medicine in Cardiology and Cardiac Surgery. For some participants, this was their first trip outside of their home country, and for others, this was the first professional conference of their careers. For all participants, this was a groundbreaking opportunity to meet with their counterparts who face similar infrastructure, human resource and other challenges to brainstorm solutions to improve quality of and access to care for pediatric patients with heart disease. Representatives from Nhi Dong 1, Hospital de Base and Amrita Institute of Medical Sciences presented about individual program improvements at both the IQIC learning session and the Global Forum. Most sites presented storyboards detailing recent successes in quality improvement projects they had undertaken. Bruna Cury, R.N., nurse and international liaison from Hospital de Base, remarked, “This event was no doubt one of the greatest learning experiences of my life! Our team at Hospital de Base Pediatric Cardiology Service is so grateful to have Children’s HeartLink as our partner and to participate in the IQIC database.” 20 The mission of the IQIC is to reduce mortality and major complications for children undergoing congenital heart surgery in developing world programs. To achieve our goals, the collaborative aims to: Children’s HeartLink Partner IQIC participants: • Create tailored quality-improvement strategies to reduce mortality and major complications for developing world programs • Hospital de Base • Employ a telemedicine platform to facilitate distance-learning and dialogue, and to disseminate knowledge and skills • West China Hospital of Sichuan University Annual report July 1, 2012 – June 30, 2013 • Amrita Institute of Medical Sciences • First Hospital of Lanzhou University • Innova Heart Hospital • Nhi Dong 1 $1,000–$4,999 (continued) Peggy Johnson Michael Towns Philip Jemielita Kathleen and Thomas Rogers Pat and John Beithon Richard Johnson Jill and John Trautz Kathy Jenkins, M.D. Kathryn and Jack Romita Janine and Kevin Bennett George Kehl Leona Werner and Bob Waldron Sharalyn and Bruce Johnson Lisa and Mike Schwie Nancy and Paul Boddicker Victoria and Thomas A. Keller, III Jackie and M. Bradley Winges Karen and Tom Jollie Ida Belle Sweitzer Otto C. Winzen Erika and Herbert Kahler Loren Thacker Susan and Matthew Law Randi Winston and Barry Wolfish Donna Avery and Thomas Kigin Becky Thorson Steve and Kathi Austin Mahle Jill and Pat Wyant Tammy and Mark Leenay Julie and Bob Witt Besse Maragos Jean Simon and George Zenanko Dan Loftus Carla and Rod Young Susan Wyble and Kevin Busch Sally K. Bye Christine and Jeremy Chase Kerry Chase Joel Conner Melinda and Jeff Cotton Angela Craig Roberta and James Craig, M.D. Ann M. and Joseph A. Dearani, M.D. Kathy and Sam Economou Elyse and Anupam Kharbanda Leni and David Moore, Jr. Melissa and Boake Munsch Justin Zenanko Mike O’Meara $500–$999 Kristine and David Overman, M.D. Jet Baker Betsy and Tom Pfeifer Ann and Koen Bastiaens Elizabeth and Michael Lori Usha Maddala Girish Mallapragada Sophie and Munir Meghjee Janice and Russell Michaletz Michelle and Blair Allen Matt Ames Brenda and Michael Arbeiter Kim and Jeff Bjustrom Susan and Todd Bordson Cindy and Jim Murphy Allison and Rob Barmann Bonnie and F. Blanton Bessinger, Jr., M.D. Dannette Smith and David Piehl Michele and Jonathan Eisele Adam and Roxann Pike, M.D. Tonya and Joe Colletti Audrey Murray Brynn and Jeff Evanson Jan and Paul Pitlick Jean and David Dassenko, M.D. Rene and Timothy Newman Ajay Gupta and Jyothsna Rayadurg, M.D. Barbara and Allen Nussbaum Sakurako and William Fisher Beatrice Rothweiler and Neil Derechin, M.D. Berit and Michael Francis Kevin Rehnberg Phyllis and Paul Droher Sonja Devick Odland and James Odland Janet and Pat Gray Emily and Brian Rice Margo and Brad Farrell Eric and Sara Olsen Janice and Lawrence Grundtner Onie and Gordon H. Ritz, Jr. Karen and Lorry Frankel Rick Ostrom Keith Halleland Van and Jim Sanders Paulette Engelby, R.N. Jean and Jeff Paurus, R.N. Rebecca Lergier and Dan Hanrahan Dan Schmechel Deborah Giesen Jacob Pernick Jill Schurtz Rachel and Scott Haisting Sharon Hawkins Janet and Ron Schutz Dorothy and Larry Hamm, M.D. Marie Steiner, M.D. and Lee Pyles, M.D. Jean and John Hedberg Joyce and William Sieben Pouya Hemmati Jane and Peter Hesslein, M.D. Barb Simonson Paul Hoedeman Kristin and Jason Stokes Andrea Kaufman and Jim Jacobson Sally Cheng and Sam Hsu Kristen Olsen and Erick Ajax Susan Haggberg-Miller and Bob Miller Susan Kline and John Eisberg Jan and John Finnegan, Ph.D. $250–$499 Laurence and Gilles Aublin Cheryl Bock Annamarie Daley and Galen Bruer Maija and Brendan Cassidy Cheryl and Jeff Cowan Margarita and Deniz Cultu Carol and Ted Cushmore Abigail and Doug Daum Bryan Doneff Peggy and Thomas Radio Angeli Duffin Judy and Jim Rice, Ph.D. Melanie and Paul Dunleavy Sonja Hutchinson and Richard Rohrer Sarah and Kurt Erickson The biggest fight starts with the smallest heart 21 A nurse tends to a patient after an operation at West China Hospital #1 of Sichuan University in Chengdu, China. Photo by Bistra Zheleva Patricia and Philip McElroy Greg Stroik Marcie and Joseph Becker Sharon and Stan Chauss Jerry McLaughlin Kenneth Suzan Brenda Behan Stuart Chazin Kathleen and William McReavy, Sr. Todd Terhorst Scott Belcher Jeff Chen Geoffrey Thomas Shirley Bentdahl Everett Christensen Jeanne and Thomas Morizio Betty and Robert Van Tassel, M.D. Jessica Berg Laura Christensen Katie and Mark Mortenson Katrina and Andy Wallmeyer Patricia Berg Carol Church Dahri and Jeff Myers, M.D. Maureen Kucera-Walsh and Mike Walsh Leslie Berkshire Caroline Closmore Lisa and Richard F. Birhanzel Maria and Thomas Coffman Denise and Chuck Warta Sara Birkholz Rev. Anthony Coniaris Julie and Jeff Weirens Lydia Botham Kay Cotter Pamela and Daniel Weisdorf, M.D. Sarah Bougie Russ Crawford Erin and Jason Brass Gordon Curphy Up to $249 Barb and Jon Brekke Emily Dale Anonymous Bryan Brouchard Rachel and Mike Roen Kimberly and Norman Abramson Alvina and Martin Brueggemann Julie Verry and Dean Davidson Katie and Tony Scarfone Lora Alexander Harold Brull Kay Helen Dixon John Schmitz Erika Andersen Chad Buege Elise Marie Doemer Pablo Kuntz Jessica Smith-Schuh and Brandon Schuh Donna Marie Anderson Julianne Bye Amy Perwien and Brian Dorn Craig Kvamme Lorri and Keith Schuler Marina and John Antoniou Michelle Casiello Lewis Driskill Kareen and Mark Lambert Andrea Scott and Joe Schwarz Deborah Saunders-Asher and Jimmy Asher Betty Cavouras Keith Ellingson Norm Linnell Mary Solberg Elizabeth and Melvin Chafetz Kandace and David Ellis Brianna and Ben Axelrod Susan and Richard Lundell Roger Sorensen Clayton Chan Helen-Ann Brown Epstein Anne Baker Suzanne and Bob McCarty Kathryn Stangler Poonam Chandar Christina Ledin and Jerry Baker Kendra Towner and Donald Fadner Rena and Michael Feldman Mae Ferguson Indu and Satya Garg Sally and Mike Grossman Sue and Mike Hangge Kristen and Loren Heeringa Karen Ho Tami and Michael Holsten William Hren Carol Huss Gretchen and Rick Jelinek Janet and Gordon Johnson Kay and Bob Jones Jean Katkov Cheryll and Joseph Kerzman 22 Annual report July 1, 2012 – June 30, 2013 Peggy and Matt Monsein Quan Ni Libby Nicklow Kris Nielsen, C.C.P. Cheng-Hsin Ouyang Mary Perlich Tanja and Allen Pofahl Helen Hilton Raiser Jessica and Adam DeRosier Betty and Brian Falk Susan and Brent Hames Kathryn and Thomas Julian Leo Lopez Doug Mickschl Jennifer Leigh Faultner Judith and Martin Hansen Carrie Ellis and Jason Kalgreen Aaron Loss Scott Mida Barbara and Rick Fisk John J. Harrer Raj Kapoor Sally Love Bruce Mills Patricia Franklin Ila and Kevin Harris, M.D. R. Marianne Kaufmann Becky Ludvigson Natasha and Vadim Mirkin Gloria Freeman Scott Harris Margit Katz Mary and Thomas Maimares Jill Misgen, R.N. Dr. Jim Fricton Shanna Haugland Nancy and Mike Keller Mary Makredes Paulette Mitchell Joan Froh Kiki and John Hedican Don Kelly Peggy and Rodney Malikowski Renata and Todd Moning Molly Froseth Darwin Hendel Jonathan Kleva Rajeswari Manepalli Bruce Moyer, C.C.P. Mike Fuller Dean Henderson Darrin Knapp Kathy Manley Gregg Musiker Bistra Zheleva and Denis Gablenko Sally and Peter Herfurth Lazaros Kochilas Jenny Manogue Faina Nemirovsky Brian Herstig Rita Kolars Renee and Steve Marino Yan Ni, M.D. Phong Ho Katrina Vander Kooi Diane and Dave Markovich Jim Hollock Mary and Bob Kovell Rose Fricke and Aaron Martin Leslie Otto and Alexander Nicoloff Shawn Holt Michelle and Joel Kralj Carrie and Paul Martinson Kelly and Steven Housh Kay Kramer Katie Martinson Sandra and Scott Hvizdos Brett Krebsbach Julia Mason Debisu Hyde Connie and Kris Krishnan Ben Mattson Rajeswari Itharaju Alice and Thomas Kullman Ingrid Mattsson Caroline Jackson Mary Burns and Stephen Kurachek, M.D. Pete McCarthy Jennifer Gengler Jennifer and John Giese Edie Goldberg Sue and Jim Grahek Irene Grangaard Laura and Jack Greenberg Virginia and John Greenman Mike Gross Margaret Grote Valerie Grove Karen Hansen and Bill Gurstelle David Gutzke Kathy Bjerke and James L. Haas Cindy Hacker Heather and Spencer Hagen Rodney Hald Marilyn and Andrew Jackson Jenny Jechort Kristi Jereska Carissa Johnson Jim Jones Andrew Kwon Lisa Lange Jennifer and Andrew Larson Maxine Lazovick Jennifer McCool Timothy McCormick Brad McEnroe Kirk McGregor Edward Mears Mike Joseph Patricia and James Lehmann, M.D. Neeraj Joshi Claudia Liebrecht Cynthia and Scott Mevissen Michael Longrie Lee Ann and Bruce Meyer Linda Merritt, R.N. A patient recovers in the cardiology ward at Narayana Hrudayalaya Institute of Cardiac Sciences in Bangalore, India. Photo by Helga Radio Insolia Nina Michael Nixt Jean O’Brien Lee Ann and David Overman Larry Paster Visvas Patel Rob Peichel Joan Peterson Frances Schwartz Margery and Sheldon Torgerson Fernanda Petto Peter Seidman Janice Treat Marjorie Pihl Joan Semmer Tom Trutna Jean Launspach, M.D. and Tony Plucinski, M.D. Ross Shaich Michael Ushay, M.D. Barbara and Dennis Shaw Cindy Marsh and Wendell Vandersluis 50th Street Café Karen and Robert Vanney 5-8 Club Candice and John Varco A Sure Bet Jason Vega Adele’s Custard Sharon Vik Al Strang’s School of Golf Mark Warner Al Vento American Society of Interior Designers (ASID) Minnesota Chapter Helga Radio Victoria and Paul Radosevich Michael Jon James Rasmussen Lauren Record Molly Wright Reppenhagen and Chloe Reppenhagen 24 In-Kind Donors Lynn Petersen Melanie and Keith Sherman Gabriel Skelly Sarah Skowronsky Richard Smith, M.D. Susan and Don Smith Karin Robeck, R.N. Chad Sobocinski Christopher Rodgers Marc Sokol Madeline and Fredrick Washburn, M.D. Sylvia and Richard Rog Arif Somani, M.D. Ruth and Steve Waxman Kathryn and Daniel Rominski Jennifer Spies Jennifer Wehby Matthew Rosenblatt Pete Spike Sam Weisdorf Elizabeth and John Rossiter Andrea and Ryan Sriver Mary Weston Lisa and Daniel Rothstein Lisa and Joe Stackhouse Lorraine and Kenneth Roufs Linda and James Stein Ann Schrooten and Dawn Wieczorek Mary Jo and William Rusinak Corinne and Timothy Sterling Jamie Wiggins Nancy Rutzen Lucinda and Randy Stroetz Marguerite and Alex Wilson Annamarie and Paul Saarinen Joseph Struble Kim and Jason Wirka Scott Saffert Erin and Mike Studeman Laura and Teddy Wong Sunipa Saha Jennifer and Brennan Summers Jennifer and Chris Woodruff Mimi and Tony Sandler Mary and Richard Tacheny Andrea Yang Christopher Sather Barbara Talavan Howard Yee Ashley Schlag Renee Tasaka Sue and Alvin Zelickson Barb Schuh Judith Taylor Li Zhuo Anne and Mark Schumann Steven Tentis Paulina and Glen Zibley Annual report July 1, 2012 – June 30, 2013 Dianne and Ken Zylla 10,000 Licks Farm Fresh Pops 3 Tiers Cake 321 Theatrical Management Angie’s Hats Angry Catfish Arrowwood Resort & Conference Center Breadsmith Browne USA, Inc. Brunswick Zone XL Buffalo Wild Wings Bull Run Coffee Bungalow 6 Design California Olive Ranch Café Latte Café Maude Café Vin Callaway Cannon River Winery Celluon Chambers Hotel Chanhassen Dinner Theatres Char Crust Robin Asbell Children’s Theatre Company Auction Harmony Chipotle Mexican Grill B.R. Cohn Winery Christos Greek Restaurant BDM Agency Chronicle Books Beka North America Cima Collina Best & Flanagan Janice Cole Big Ink Comedy Sportz Improv Theater Birchwood Café Companion Group Blue Plate Restaurant Company Costa Farms BMO Harris CRAVE BMW of Minnetonka CREATE Catering + Dining Studio Bradshaw International, Inc. Brave New Workshop Cuisinart Di Majo Norante K.Y. Wong, M.D., a cardiologist from KK Women’s and Children’s Hospital in Singapore, performs an echocardiogram on a patient at Nhi Dong 1, a Children’s HeartLink partner site in Ho Chi Minh City, Vietnam. Photo by Bistra Zheleva Dixon Golf Gardens of Salonica Raghavan Iyer La Petite Fleur Michael Aram Dulcet Cuisine Gartner Studios Izzy’s Ice Cream Café LaFayette Club Microplane Ecolab Gold Nugget Tavern & Grille Jerry’s Foods Larson Design Build Midtown Global Market Edina Country Club Golden Valley Golf and Country Club Joe’s Garage Le Meridien Chambers Minneapolis Millennium Hotel Minneapolis John F. Eisberg Elle-Tee & the Kitchen Epitome Papers Familia Meschini Wines FlexPerk Visa Fogo de Chao Kieran Folliard Doris Fortino Fortune Bay Resort Casino Fritz Underground Winery Gandhi Mahal Restaurant Grand Hotel Minneapolis Great River Energy Grgich Hills Estate Hadley Table Hammer Made Hell’s Kitchen Hilton Minneapolis Holy Land Ichiban Japanese Steakhouse & Sushi Bar Kafe 421 Kai USA LTD. Kane’s Catering Katie Murphy Stationery KellyMitchell Kemps KettlePizza Kitchen in the Market Susan Kline Kowalski’s Markets LifeSpa Lion’s Tap Little Griddle Innovations, LLC Luci Restaurants Mall of America Maverick Industries McCoy’s Public House Media Loft Stephanie A. Meyer Mezzetta MillerCoors Brewing Minneapolis Club Minnesota Children’s Museum Minnesota Monthly Minnesota Twins Baseball Club Minnesota Vikings Minnesota Wild Minnetonka Moccasin Paulette Mitchell MN Pro Paintball The biggest fight starts with the smallest heart 25 In-Kind Donors (continued) Redstone American Grill Tom James Rice Paper Restaurant Toro Montage Laguna Beach Rustica Bakery Toshiba MyTalk107.1 FM Salad Girl Trudeau Nath Corporations Seven True Fabrications Naviya’s Thai Brasserie Shapco Tuttle’s North Star Bartenders Guild Skin Rejuvenation Clinic U.S. Bank Old Dutch Foods, Inc. Software for Good U.S. Bank FlexPerks Visa Olympic Hills Golf Club Spoonriver Unleash Your Inner Foodie One Dish at a Time Stages Theatre Company Vino in the Valley Pairings Food & Wine Market Star Tribune Vitamix Pedal Pub Twin Cities Summer Harsh Botanical Artistry Walker Art Center Periscope Perry Creek Winery Peter’s Grill Phillips Distilling Company Phoetic Images Sun Street Breads Sundara Inn & Spa Surly Brewing Company Pinstripes Mike and Elizabeth Perlich Sweeney Pizzeria Lola Sweet Retreat PoorBoy Candy The Blue Door Pub Porter Creek Hardwood Grill The Burl Oaks Golf Club Professional Billiards Services The Camellia Inn Radisson Hotel Bloomington By Mall of America The Depot Renaissance Minneapolis Hotel Rare Steak & Sushi The Local RBC Wealth Management The Lowbrow Recombinetics Thyme to Entertain Red Stag Supperclub 26 Summit Brewing Company Annual report July 1, 2012 – June 30, 2013 Warehouse Winery Way Cool Cooking School Andrew Weber Whole Foods Wildfire Restaurant Wine and Canvas Wintergreen Dogsled Lodge, Inc. Wirtz Beverage Wirtz Beverage Minnesota WÜSTHOF-TRIDENT OF AMERICA, INC. Xcel Energy Center Zelo Zen Box Zinnia Design Florals In Honor of Pantea Holt Shawn Holt Sally K. Bye Julianne Bye Carissa and Peggy Johnson Caroline Jackson Jonathan Casiello Michelle Casiello Joseph Kiser, M.D. Claudia Liebrecht Children’s HeartLink Staff Barb Simonson Dilip S. Kittur’s Birthday and Father’s Day Alvina and Martin Brueggemann Wendy Cevallos Lauren Record Maureen and Bill Chandler’s 50th Wedding Anniversary Kandace and David Ellis John Cushing, Jr. Laura and Joseph Kiser, M.D. Matan Dragon’s Bar Mitzvah Elizabeth and Melvin Chafetz Zoe Faultner Jennifer Faultner Sue Gebelein Running the New York City Marathon Lora Alexander Erika Andersen Patricia Berg Harold Brull Kay Cotter Gordon Curphy Patricia Franklin Jennifer Gengler Edie Goldberg Darwin Hendel Jim Hollock Debisu Hyde Kay Kramer Maxine Lazovick Sally Love Bruce Mills Joan Semmer Marc Sokol Cindy Marsh and Wendell Vandersluis Mary Weston Emily Kralj Joel Kralj Frances and Richard Moyer Bruce Moyer, C.C.P. Pratyay’s Birthday Rajeswari Itharaju Richard and Joseph Rocco, Esqs. Larry Paster Phyllis Supino Helen-Ann Epstein Dr. Andrew Peik’s 40th Birthday Sandra and Scott Hvizdos Bridget Duffy, M.D. and David Strand Sakurako and William Fisher Elizabeth Perlich Sweeney Laura and Joseph Kiser, M.D. Mike and Elizabeth Perlich Sweeney Sally K. Bye Heather Varco’s Birthday Candice and John D. Varco In Memory of Kit Arom Sylvia and Richard Rog Ellyod A. Hauser The Hauser Family Carmen and Barry Nordstrand Solutran Dan H. Box Theolyn Price, M.D. Baby John Edward Hedican John and Kiki Hedican Nadja Carr Cheryl and Jeff Cowan The Cowan Family Stephanie Giesen Debora Giesen John Rohiteshwar Chandar Sr Poonam Chandar Adeline Granlund Ardelle Nicoloff Benjamin Michael Dercks Judith Taylor Bruce Johnson, M.D. Dorothy and Larry Hamm, M.D. Richard Johnson Jean Launspach, M.D. and Tony Plucinski, M.D. Frances Schwartz Laura Driskill Lewis Driskill Marjorie K. Larson Mary Makredes Myrna Economou Marina and John Antoniou Janet Lillyblad Joan and Bruce Peterson Gary DeCramer Virginia and John Greenman Olivia Rene Newman Rene Taylor Newman and Timothy Newman Samuel Peguero SUNY Geneseo Women’s Leadership Institute Dr. Demetre Nicoloff Memorial Fund Bonnie and F. Blanton Bessinger, Jr., M.D. Rev. Anthony Coniaris Paulette D. Engelby, R.N. Kelly and Steven Housh Ardelle Nicoloff Sylvia and Richard Rog Stephanie N. and Mark S. Schoening Dorothy and Robert Ollman Alexander Nicoloff and Leslie Otto Tankenoff Families Foundation Nancy and Wayne Vander Vort Neal Perlich Elizabeth and John Rossiter Betty Rew Elizabeth and Walter Bachman Barbara and Allen Nussbaum Audrey Thayer Rita Kolars Timothy McCormick Nancy Rutzen Margery and Sheldon Torgerson Ann Schrooten and Dawn Wieczorek John Anthony Thieke Jack Greenberg Betty Lou Romparte Judy and Martin Hansen Cavan Varco Candice and John D. Varco Amit Sarkar Brenda Behan Dr. Richard L. Varco’s 100th Brithday Candice and John D. Varco Lydia Mary Schwarz Barbara Talavan Dr. Sidney K. Shapiro Sally K. Bye Phyllis Hanna Irene Fletcher Anonymous for every litt le heart, every litt le bit counts. Dr. Nicola Ngiam from National University Hospital in Singapore and Dr. Minh, an intensivist from Nhi Dong 1, examine a patient’s chest X-ray at Nhi Dong 1 in Ho Chi Minh City, Vietnam. Photo by Bistra Zheleva Jeff Verry Julie Verry and Dean Davidson Nell Whittington Theolyn Price, M.D. Evelyn Wrobel Michael Longrie Insolia Nina Lynn Petersen thanks Visionary Circle The Children’s HeartLink Visionary Circle recognizes the most generous investors in our mission to save lives and heal hearts around the globe. Members of the Visionary Circle are individuals who contribute $10,000 or more and corporations, foundations and organizations that contribute $25,000 or more in a given year. Individuals Caroline Amplatz Deb and David Andreas Julie and Doug Baker Theresa and Richard Davis Katina and Franck Gougeon Susan Gebelein and Richard Holcomb Laura and Joseph Kiser, M.D. Steve Kuhn Kathy and Emmett McMahon Molly Joseph and Andrew Olson Theolyn Price, M.D. Michael Rimland Deneen and Christopher Vojta 28 Annual report July 1, 2012 – June 30, 2013 Corporations, Foundations and Organizations Boston Scientific Thank you for your support! Cargill / Cargill Foundation Deloitte Ecolab Edwards Lifesciences General Mills The Hubbard Broadcasting Foundation Land O’Lakes Medtronic Foundation Minnesota Vikings Pentair St. Jude Medical Foundation U.S. Bank Zynga Inc. The pediatric cardiac program at Institut Jantung Negara (IJN, or National Heart Institute) in Kuala Lumpur, Malaysia, performed 917 open-heart operations and 560 pediatric interventional cases in 2012. Of the 917 open-heart operations that were performed, 313 were performed on children under the age of one. Organizational Volunteers Children’s HeartLink relies on a network of volunteers for support with our organization’s programs, outreach, event logistics and other activities. We would like to take this opportunity to thank them for their tireless efforts and inspiring dedication. Thank you, everyone. Grace Anderson Richard Davis Peggy Johnson Kunal Mehta Jessica Shaw Rob Anderson Theresa Davis Belinda Jensen Melissa Molitor Jana Shortal Lester Bagley Kim Deutsch Renee Johnson Andrew Nelson Hester Simons Doug Baker Greta Drentlaw Jason Kalgreen Essa Nerenhausen Barb Simonson Jetson Baker Laura Durden Sarah Klang Quan Ni Mary Solberg Jared Sommer Julie Baker Pat Evans Dave LaCoursiere Lia Nicklow Guillaume Bastiaens John Finnegan, Ph.D. Henry Lake Eric Olsen James Stein CJ Becker Siri Freeh Leila Larson Juliana Panetta Linda Stein Katie Bellows Mike Fuller Ntshiashee Kristine Lee Christine Papai Michelle Stone-Light Peter Beniares Susan Gebelein Tom Lewis Kristin Peters Jennifer Strong Erin Betlock John Giese Jeff Light Chris Policinski Ying Suo Sara Birkholz Kristen Gillard Kelly Linnihan Julie Povick Mike Sweeney Sam Boddicker Karin Haas Susie Long Ken Powell Cathy Taylor-Sharp Susan Bordson Heather Hagen Emerald Lu Apoorva Reddy Alexis Thompson Debbie Bougie Spencer Hagen Stephanie Lund Jim Rice, Ph.D. Jeanette Tsakistos Sarah Bougie Jenny Halek Kathy Manley Molly Romanie Michael Tsakistos Jackie Brand Claire Halleland Besse Maragos Sara Schlauderaff Brian “B.T.” Turner Eric Brusven Bess Heyer Katie Martinson Lorraine Schleicher Cailin Wertish Maria Bruun Dan Higgins DeeAnn McArdle Barb Schuh John Wilgers Claire Carlson Stanley L. Hubbard Cristin McCormick Brandon Schuh Angeli Wishnow Louie Clark Kim Insley Mary McGrory-Usset Allan Share Brandon Wishnow Jeff Cotton Shruti Jagannathan Emmanuelle Mehta Charles Shaw John C. Cushing, Jr. Anthea Johnson The biggest fight starts with the smallest heart 29 Patient Fifi surrounded by her family and medical team members at Institut Jantung Negara, a Children’s HeartLink partner site in Kuala Lumpur, Malaysia. Photo by Carissa Johnson profile Helping Parents Around the World The Parent Education/Discharge Instructions (PEDI) include a package of validated training tools for patients, families and nurses, developed by Children’s HeartLink. With the help of a group of medical volunteers from several U.S. institutions, Children’s HeartLink has been gradually implementing PEDI at all of our partner hospitals. In the past fiscal year, we trained 250 nurses in this curriculum and protocol at Institut Jantung Negara in Malaysia, First Hospital of Lanzhou University in China and Narayana Hrudayalaya Institute of Cardiac Sciences in India. Before Children’s HeartLink implemented PEDI, Institut Jantung Negara’s (IJN) two nurse liaisons educated parents about pre- and post-operation instructions, but with more than 600 operations annually, they were able to speak with fewer than 150 families. 30 Annual report July 1, 2012 – June 30, 2013 Involving the ward nurses in the process ensures that all patients and their families will be reached and educated. Nurses at IJN believe that teaching PEDI before the child is discharged will help parents feel more comfortable about going home. Since incorporating PEDI in IJN’s patient care process, all nurses have the knowledge to educate families at admission, recovery and discharge. Adlina, nicknamed Fifi, is a 3-year-old girl who was discharged from IJN after a six-day stay in the hospital following an operation to correct Tetralogy of Fallot. Suhayle, a nurse liaison, provided Fifi’s parents the PEDI discharge instructions while Fifi watched quietly. Her parents were happy to receive the instructions in their native language, Malay, and stated the materials will be helpful when teaching Fifi’s grandmother how to care for her while they are at work. The Transformational Journey The Thriving Partnership with Hospital de Base Monitoring and Evaluation (M&E) is a critical component of our work with Hospital de Base and with all of Children’s HeartLink’s hospital partners. M&E practices bring accountability and transparency to the partnership relationship by building systems that purposefully collect, analyze and report patient program and community outcomes. But even more important, Children’s HeartLink’s M&E efforts empower every professional in the partnership to use information for program planning, to take ownership of their team’s performance, to meaningfully improve their practices, to elevate the quality of care delivered and to ultimately improve patient and program results. “Our partnership with Children’s HeartLink has been an excellent resource for growth, knowledge and quality improvement. The visits from partner sites’ multidisciplinary teams are helpful in bringing in discussions, classes and simulations that cause a change of vision and behavior in our environment and staff. With that, our team’s desire to grow and learn more each day increases. The IQIC database allows us to find ways to reduce morbidity and mortality through webinars and data collection. Children’s HeartLink has an important role in making a stronger connection between our unit and IQIC, instructing our team in ways to improve data collection and statistics. There is so much to be said about our partnership with Children’s HeartLink, but it is absolutely important to mention how thankful we are for having them with us in this journey. Without Children’s HeartLink, we would not be where we are today. We hope in the near future we can serve as a model for other centers in the country who want to organize and evolve in the care of children with heart disease.” Bruna Cury, R.N., nurse and international liaison, Hospital de Base, São José do Rio Preto, Brazil Children’s HeartLink has provided great opportunities for our staff, including three nurses and one doctor who went to Minnesota for a month to visit the Mayo Clinic and Children’s Hospital and Clinics of Minnesota to learn and bring back ideas for improvement. Nurses from Hospital de Base, a Children’s HeartLink partner site in São José do Rio Preto, Brazil, enjoyed a ride in the Mayo Clinic helicopter. dedication Medical Volunteers Amrita Institute of Medical Sciences and Research Centre, Kochi, India Edwin Francis, M.D. Mahesh Kappanayil, M.D. K.H. Shine Kumar, M.D. R. Krishna Kumar, M.D. Benedict Raj, M.D. G.S. Sunil, M.D. Balu Vaidyanathan, M.D. Associated Anesthesiologists, St. Paul, MN, United States Neil Derechin, M.D. BC Children’s Hospital, Vancouver, BC, Canada Sanjiv Karamchand Gandhi, M.D. Derek Human, M.D. Sandy Pitfield, M.D. Birmingham Children’s Hospital, Birmingham, United Kingdom David Barron, M.D. Fiona Reynolds, M.D. Oliver Stumper, M.D. 32 Annual report July 1, 2012 – June 30, 2013 Boston Children’s Hospital, Boston, MA, United States Melvin Almodovar, M.D. Kathy Jenkins, M.D. The Children’s Hospital at Cleveland Clinic, Cleveland, OH, United States Elumalai Appachi, M.D. Children’s Hospitals and Clinics of Minnesota, Minneapolis, MN, United States David Dassenko, M.D. Frank Moga, M.D. David Overman, M.D. Jennifer Snider, R.N. Patsy Stinchfield, P.N.P. Gillette Children’s Specialty Healthcare, St. Paul, MN, United States Barbara Bor, R.N., C.I.C. Gleneagles Hospital, Singapore, Singapore Sriram Shankar, M.D. The Hospital for Sick Children, Toronto, ON, Canada Fraser Golding, M.D. Jeanette Guimond, R.N. Cecilia Hyslop, R.N. Jason Macartney, R.R.T. Lauren Scavuzzo, R.N. Steve Schwartz, M.D. Glen Van Arsdell, M.D. Rick Wray, R.N. KK Women’s and Children’s Hospital, Singapore, Singapore Keng Yean Wong, M.D. Lucile Packard Children’s Hospital, Palo Alto, CA, United States Sandra Staveski, R.N., P.N.P. Theresa Tacy, M.D. Kristine Taylor, M.S.N., R.N. Mayo Clinic, Rochester, MN, United States Grace Arteaga, M.D. Lisa Belch, R.N. Joseph A. Dearani, M.D. Roxann Pike, M.D. Edward Schneider, R.R.T. National Cancer Centre Singapore, Singapore, Singapore Guat Ling Teo, R.N. National University Hospital, Singapore, Singapore Nicola Ngiam, M.D. Mary Tan, R.N. Normandale Community College, Minneapolis, MN, United States Jeff Paurus, R.N. Seattle Children’s Hospital, Seattle, WA, United States Harris Baden, M.D. Lynn Chernick, M.N., R.N. Thomas Jones, M.D. Mark Lewin, M.D. Susanne Matthews, R.N. Michael McMullan, M.D., F.A.C.S. Molly Ruddy, R.N. Swedish Pediatric Specialty Care, Seattle, WA, United States Peter Hesslein, M.D. University of Minnesota Amplatz Children’s Hospital, Minneapolis, MN, United States Paul Paulisich, R.N. Lee Pyles, M.D. Karin Robeck, R.N. Shanthi Sivanandam, M.D. James St. Louis, M.D. Vadamalayan Hospitals, Madurai, India B.R.J. Kannan, M.D. Safdarjung Hospital, Delhi, India Rani Gera, M.D. Retired E. Marsha Elixson, R.N., Lilburn, GA, United States Pam Sagan, R.N., Los Altos Hills, CA, United States Sriram Shankar, M.D. profile Giving Kids a Fighting Chance in Vietnam Children’s HeartLink could not fulfill our mission without the remarkable dedication and continued support of our medical volunteers, who represent some of the finest medical institutions in the world. Two of those shining volunteers are from medical institutions based in Singapore: Sriram Shankar, M.D., from Gleneagles Hospital and Mary Tan, R.N., from National University Hospital. Dr. Shankar, a pediatric cardiac surgeon, has been working with Nhi Dong 1 in Vietnam since the partnership between Children’s HeartLink and the hospital began in 2008. He travels to Nhi Dong 1 on a regular basis to mentor, train and support the development of Nhi Dong 1’s pediatric cardiac surgical team. Dr. Shankar and his colleagues have empowered this team and strengthened their knowledge, skills and practice so that they can perform more complex procedures such as patent ductus arteriosus (PDA) ligation, ventricular septal defect (VSD) repairs and arterial switches. Under his guidance, the team has delivered great outcomes and built a talented team of professionals dedicated to Nhi Dong 1’s future. Dr. Shankar proudly noted that “the Nhi Dong 1 cardiac program has a very promising future as the doctors, nurses and administrators are talented and focused in building a great center.” Nurse educator Mary Tan, R.N., has generously donated her time as a Children’s HeartLink medical volunteer since 2009. She has enhanced nursing education and practice at Nhi Dong 1 in many ways, including designing and implementing a three-day basic workshop that prepares nurses for the American Heart Association’s Basic Life Support (BLS) and Pediatric Advanced Life Support (PALS) training courses. These areas of training have not previously been a part of the curriculum for pediatric cardiac nurses in Vietnam. Ms. Tan has a deep commitment to this work and stated, “I volunteer because it is an opportunity for me to continue teaching outside of my country and to help Vietnamese children.” The Nhi Dong 1 pediatric cardiac program has advanced tremendously since the beginning their partnership with Children’s HeartLink and the involvement of medical volunteers from Singapore. The number of children treated per year has increased to nearly 300 surgical cases and more than 800 interventional cases in 2012. Nhi Dong 1 has also reduced mortality and infections. Mary Tan, R.N. 34 Annual report July 1, 2012 – June 30, 2013 Pediatric cardiologist, Mahesh Kappanayil, M.D., performs an echocardiogram on an infant in the PCICU after an operation at AIMS in Kochi, India. Photo by Vicky Lakshmanan Board of Directors Founder Joseph Kiser, M.D. Chair Molly Joseph, UnitedHealth Group Vice Chair Emmett J. McMahon, Robins, Kaplan, Miller & Ciresi Medical Directors Joseph A. Dearani, M.D., Mayo Clinic David M. Overman, M.D., Children’s Hospitals and Clinics of Minnesota Secretary Thomas J. Kigin, Minnesota Public Radio Treasurer Ajay Gupta, Ernst & Young LLP Members Thomas L. Armitage, M.D., Medtronic, Inc. Thomas Bach, OptumRx Franck Gougeon, Giverny Investments LLC Mark Rosen, WCCO-TV Guillaume Bastiaens, Cargill, retired Keith Halleland, Halleland Habicht PA Robert Rosenbaum, Dorsey & Whitney Bridget Duffy, M.D., ExperiaHealth Tom Jollie, PadillaCRT Keith Sherman, Freeman + Leonard John R. Finnegan Jr., Ph.D., University of Minnesota School of Public Health Besse D. Maragos, Schilling Travel Directors Emeriti Susan H. Gebelein, Savannah Consulting Geoff Martha, Medtronic, Inc. David Andreas, Community Leader Thomas A. Keller, III, Moss & Barnett PA Children’s HeartLink Staff President Elizabeth Perlich Sweeney Financial Director Barb Simonson Vice President of Development and Marketing Carrie Ellis Vice President of International Programs International Programs Analyst In-Country India Consultant Bistra Zheleva Emily Dale, M.P.H., C.H.E.S. Veeralakshmi (Veera) Rajasekhar International Programs Manager Office Manager and International Programs Associate Marketing and Communications Manager Andreas Tsakistos International Programs Manager Carissa Johnson Helga Radio Development Manager Events Manager Jessica Smith-Schuh Development Associate Jennifer Jacobsen Giese International Programs Advisor John Cushing, Jr., M.H.A. Lisa Rothstein Erin Murley The biggest fight starts with the smallest heart 35 International Advisory Board The Children’s HeartLink International Advisory Board consists of experts in health care, public affairs and international development who provide Children’s HeartLink with expertise and consultation in areas such as strategic planning, capacity building, international relations and medical diplomacy. J. Brian Atwood, Chair Mr. Atwood is Professor and Chair of Global Policy Programs at the University of Minnesota’s Humphrey School of Public Affairs. He honed his powers of persuasion as a diplomat in Cote d’Ivoire and Spain, and as an official in the Carter and Clinton administrations. He served for six years as Administrator of the U.S. Agency for International Development (USAID) and Chair of the Overseas Private Investment Corporation during both Clinton terms. In 2001, he served on U.S. Secretary General Kofi Annan’s Panel on Peace Operations and was the only American on the 10-member “Brahimi” panel which recommended major changes in the U.N.’s peacekeeping and peace-building operations. From 2002 to 2011, he served as Dean of the Humphrey School. He left that post when asked by Secretary of State Hillary Clinton to represent the United States on the OECD’s Development Assistance Committee. During his tenure as Chair of the DAC, Professor Atwood is credited with renewing and expanding the committee’s global commitment to alleviating poverty in the developing world. Aldo Castañeda, M.D., Ph.D. Dr. Castañeda is the Founder of the Pediatric Cardiac Surgical Unit of Guatemala and is Professor Emeritus of Surgery at Harvard Medical School. After receiving his training and being on the staff of the Department of Surgery at the University of Minnesota from 1958 through 1971, Dr. Castañeda was recruited to Children’s Hospital Boston and served for 20 years as Chief of Cardiovascular Surgery and Surgeon-in-Chief. Dr. Castañeda received the World Heart Foundation Humanitarian Award in 2004, and in 2006, Dr. Castañeda was inducted into the Pediatric Cardiology Hall of Fame. Kathy Jenkins, M.D., M.P.H. Dr. Jenkins is currently a Professor of Pediatrics at Harvard Medical School and holds the Kobren Family Chair for Patient Safety and Quality. She is a faculty member in the Department of Cardiology and serves as Senior Vice President and Chief Safety and Quality Officer at Children’s Hospital Boston. 36 Annual report July 1, 2012 – June 30, 2013 Bongani Mayosi, M.D., Ph.D. Dr. Mayosi is a researcher, teacher and clinician in internal medicine and cardiology who currently serves as the 7th Professor and Head of the Department of Medicine at the University of Cape Town and Chief Physician at Groote Schuur Hospital in Cape Town, South Africa. Dr. Mayosi has published widely in both local and international journals and books on various topics related to cardiovascular medicine. His academic work focuses on heart diseases of the poor, including cardiomyopathy, tuberculous pericarditis and rheumatic fever. Srinath Reddy, M.D. Dr. Reddy is President of the Public Health Foundation of India. Until recently, he headed the Department of Cardiology at All India Institute of Medical Sciences (AIIMS). Dr. Reddy has been involved in several major international and national research studies including the INTERSALT global study of blood pressure and electrolytes, INTERHEART global study on risk factors of myocardial infarction and national collaborative studies on epidemiology of coronary heart disease and community control of rheumatic heart disease. He is Coordinator of the Initiative for Cardiovascular Health Research in the Developing Countries (IC Health), a global partnership program that promotes research for prevention of cardiovascular diseases in developing countries. He has served on many WHO expert panels and is on the board of the World Heart Federation. Richard Smith, M.D. Dr. Smith served as Chief Executive of UnitedHealth Europe, a subsidiary of the UnitedHealth Group that works with public health systems in Europe. He is currently Director of the UnitedHealth Chronic Disease Initiative, a program with the National Heart, Lung and Blood Institute that has created 11 centers in low- and middle-income countries that work to counter chronic disease. Amrita Institute of Medical Sciences pediatric cardiac nurses attending their PEDI training graduation ceremony. Photo by Vicky Lakshmanan Tommy Thompson Mr. Thompson is a former Secretary of Health and Human Services and four-term Governor of Wisconsin. He was a partner at the law firm of Akin Gump Strauss Hauer & Feld from 2005 through early 2012. Daniel B. Wright, Ph.D. Dr. Wright served at the U.S. Treasury Department as Managing Director for China and the Strategic Economic Dialogue (SED) where he provided strategic counsel to the Secretary of Treasury. Dr. Wright was also formerly Senior Vice President and China practice head of the Albright Stonebridge Group, a global strategy firm based in Washington, DC. He is Founder, President and CEO of GreenPoint Group, using his 26 years of China experience to build bridges between people, resources and public policy. at Children’s HeartLink, we give kids a fighting chance. The biggest fight starts with the smallest heart 37 Financial Health Children’s HeartLink finished our fiscal year especially strong with more than 11 percent growth in revenue, despite continuing global economic challenges. Eighty-one percent of our expenses were directly related to program delivery. Statements of Activities At June 30, 2013 and 2012 Unrestricted 2013 temporarily restricted Unrestricted 2012 temporarily restricted Total Total $785,747 $245,000 $1,030,747 $298,751 $180,030 $478,781 Revenue and other support Contributions Donated goods and services 475,843 475,843 458,229 458,229 Special events revenue 822,552 822,552 898,350 898,350 (177,468) (177,468) (172,622) (172,622) Interest and other income 3,529 3,529 3,061 3,061 Satisfaction of restrictions 376,920 (376,920) 0 286,287 (286,287) 0 $2,287,123 $(131,920) $2,155,203 $1,772,056 $(106,257) $1,665,799 $1,494,852 $1,494,852 $1,366,297 $1,366,297 94,556 94,556 74,344 74,344 Special events and activities 106,208 106,208 91,520 91,520 Other fundraising 199,890 199,890 188,139 188,139 $1,895,506 $1,895,506 $1,720,300 $1,720,300 Less direct benefits to donors Total Expense Program expense Management and general Total Change in net assets 391,617 (131,920) 259,697 51,756 (106,257) (54,501) Net assets (beginning of year) 903,825 395,044 1,298,869 852,069 501,301 1,353,370 $1,295,442 $263,124 $1,558,566 $903,825 $395,044 $1,298,869 Net assets (end of year) 38 Annual report July 1, 2012 – June 30, 2013 A patient at Nhi Dong 1 in Ho Chi Minh City, Vietnam. Photo by Bistra Zheleva Statements of Financial Position At June 30, 2013 and 2012 Assets Cash and cash equivalents $1,534,351 $1,225,509 55,186 21,523 8,533 18,689 162,616 164,049 $1,760,686 $1,429,770 $35,405 $16,082 16,715 14,819 Deferred revenue 150,000 100,000 Total liabilities $202,120 $130,901 $1,295,442 $903,825 263,124 395,044 Contributions and other receivables Prepaid expenses and other assets Property and equipment, net Total assets Liabilities Accounts payable Accrued payroll and benefit liabilities Net assets Unrestricted Temporarily restricted Total net assets $1,558,566 $1,298,869 Total liabilities and net assets $1,760,686 Expenses by Activity 81% Program expenses 14% Fundraising 5% Management $1,429,770 Thank you 5075 Arcadia Avenue, Minneapolis, MN 55436, USA Telephone: 888-928-6678 • childrensheartlink.org Children’s HeartLink® is a 501(c) (3) nonprofit organization. Children’s HeartLink, the Children’s HeartLink logo and Healing Hearts Worldwide are registered trademarks of Children’s HeartLink.
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