Early Childhood Mental Health Needs Assessment
Transcription
Early Childhood Mental Health Needs Assessment
Early Childhood Mental Health Needs Assessment Yolo County June 2008 First 5 Yolo Early Childhood Mental Health Needs Assessment ACKNOWLEDGEMENTS First 5 Yolo would like to extend thanks to everyone who participated in the Early Childhood Mental Health Needs Assessment. We are grateful to all of the mental health and health care providers, teachers, childcare providers and administrators that participated in the surveys and focus group. We are also very appreciative of the parents who shared their experiences and insights with us. We thank the parents, teachers and childcare providers who took the time to conduct the TABS screening on children. In addition, we would like to especially thank the people who contributed their expertise and assistance in shaping the project and interpreting the findings: Lynn Arner, Joan Beesley, Diane Casey, Jim Coulter, Diana Hansen, Lewis Oleson, Michael Rahilly, Dr. Kevin Rosi, Anne Bolden Schultze, Roseanne Testerman, Professor Ross Thompson, Pauline Wooliever and Oscar Wright. Finally, we would like to express our appreciation to the Quality Subcommittee of the Yolo County Children’s Health Initiative who identified mental health as a priority need for the children of Yolo County and recommended undertaking an early childhood mental health needs assessment for Yolo County. This Early Childhood Mental Health Needs Assessment was conducted by Kathleen Bowers, The Bowers Group. First 5 Yolo Early Childhood Mental Health Needs Assessment TABLE OF CONTENTS EXECUTIVE SUMMARY ............................................................................ 2 BACKGROUND ........................................................................................ 6 METHODS ............................................................................................... 7 FINDINGS ................................................................................................ 8 COMMUNITY ASSETS .............................................................................. 19 RECOMMENDATIONS ............................................................................. 29 APPENDICES............................................................................................ 32 First 5 Yolo Early Childhood Mental Health Needs Assessment EXECUTIVE SUMMARY First 5 Yolo will assist our community to raise children who are healthy and ready to learn. We will assure that our resources are effectively used and all community voices heard. - First 5 Yolo Mission Statement PURPOSE OF THIS REPORT First 5 Yolo commissioned this Early Childhood Mental Health Needs Assessment in response to a great deal of anecdotal information from early childhood educators, physicians, childcare providers, parents, and other community members, regarding the challenges faced in both attempting to identify early mental health issues in young children as well as accessing mental health services for young children 0 to 5 years old. This report takes a systemic, data driven approach in assessing Yolo County’s needs for early childhood mental health services as well as mapping mental health assets within the county. DEFINING INFANT AND EARLY CHILDHOOD MENTAL HEALTH For the purposes of this study, early childhood mental health is the capacity of the young child to “experience, regulate, and express emotions; form close and secure interpersonal relationships; and explore the environment and learn.”1 For very young children, the terms “emotional development” or “social and emotional development” are roughly analogous to the term “mental health.” Social-emotional development is an essential component of optimal child development and school readiness. In addition, a systems perspective defines early childhood mental health as a set of strategies that promote the emotional well-being of all young children; help families address any barriers that they face to ensuring their young children’s emotional development; expand competencies of caregivers and providers to promote the well-being of young children and families; and ensure that young children who are experiencing clearly atypical emotional and behavioral development and their families have access to needed services and support.2 Both perspectives, that of the individual child’s social-emotional development, and early mental health issues within the context of systems, are used as a framework for assessing early childhood mental health in Yolo County. METHODS In order to assess and describe the current landscape of mental health services for young children in Yolo County, estimate the number of children 0-5 who might be in need of mental health services, and identify gaps in services, the following activities were conducted: 1 Zero to Three, DC: 0-3R. “Social and Emotional Health in Early Childhood: Building Bridges Between Services and Systems.” Perry, Kaufman, and Knitzer (2007). 2 2 First 5 Yolo Early Childhood Mental Health Needs Assessment • Interviews of 41 key informants, including researchers, directors and clinical directors of community-based organizations, and Yolo County mental health practitioners in both public service and private practice; • Surveys, including 69 Yolo County mental health providers, nine physicians, and 44 parents; • A focus group of Yolo County early childhood mental health experts; • A mental health screening of 276 two year-old and three year-old Yolo County children; • Literature and data review. LIMITATIONS: This needs assessment focused primarily on the public and private mental health services available to young children. It does not fully examine the mental health services within educational or other settings that are not focused primarily on mental health. KEY FINDINGS 1. Key informants3 report that Yolo County’s greatest needs related to early childhood mental health are in the areas of public awareness, prevention and early intervention. 2. There is a shortage of practitioners with expertise in early childhood mental health. 3. Assets for mental health services for young children in Yolo County include: • Limited public mental health services for young children through Yolo County Department of Alcohol, Drug and Mental Health and its contracting agencies; Yolo County Office of Education; the five school districts’ special education departments. Mental health screening and limited mental health services for children with severe physical disability and/or developmental delays (e.g., Downs syndrome) are provided by Alta California Regional Center. • Private mental health services provided by 12 agencies and 55+ solo practitioners who see Yolo County children (although some, such as the UC Davis MIND Institute, are physically located outside Yolo County). • Parent education and support services that support the parent-child relationship. 4. In a screening of 276 2 and 3 year olds throughout Yolo County, approximately 30% were found to have indicators of possible atypical behavior. An additional 13% of children were found to be at risk of atypical behavior. 5. Very few children under 6 years old across all income groups receive mental health services in Yolo County. RECOMMENDATIONS Key findings support the notion that young children and their families in Yolo County would benefit greatly from the development of a coordinated system of care that offers a continuum 3 Mental Health Provider Survey, key informant interviews 3 First 5 Yolo Early Childhood Mental Health Needs Assessment of mental health services from promotion to prevention to intervention. Suggestions on where to begin include the following: 1. EXPAND PUBLIC AWARENESS The goals of raising public awareness include reducing general stigma associated with early childhood mental health. Additionally, all parents and family members, as well as professional caregivers, early childhood educators, and mental health and medical care providers would benefit from greater understanding of early childhood mental health. Another important area to address is language and cultural issues. 2. FOCUS ON PROMOTION, PREVENTION AND EARLY INTERVENTION STRATEGIES Promotion activities target all young children and their families, are designed to promote healthy social emotional development, and include approaches aimed at improving parenting knowledge and skills, child development, and social-emotional health. Promotion services can take many forms, such as parent support groups, home visiting to newborns, parent education programs focusing on social-emotional development, high-quality childcare and preschool, social-emotional screening as part of well-child check-ups, and breastfeeding support. These services can take place in many settings, including homes, early care and education settings, primary care provider offices, and other community environments. Social and emotional components may be integrated into existing services. Prevention strategies are targeted to specific populations considered to be at-risk because of environmental or biological factors, and are available prior to diagnosable symptoms. These types of services can be integrated into programs that serve at risk families and children. Intervention services target children with identified social-emotional delays. They can be provided in a variety of settings, and are designed to provide support to children who display atypical psychosocial development. Prevention and early intervention strategies should be relationship-based, developmentallybased, address the parent-child dyad or triad, support the parent’s mental health needs, and build on the strengths of the family. Focusing on promotion, prevention and early intervention represents a fundamental shift from targeted investment in children with the most severe needs to an approach that is strengthsbased, developmentally based, and relationship-based. 3. ENCOURAGE/SUPPORT WORKFORCE DEVELOPMENT The field of early childhood mental health is new and rapidly evolving. Providing early intervention services will require addressing workforce shortages. There is a need to promote specialized infant and early childhood mental health training. Early childhood mental health specialists include professionals with wide-ranging backgrounds: psychiatrists, psychologists, other clinicians, therapists, social workers, and educators. Some specialize in particular approaches and modalities as well as particular developmental stages within the 0-5 age range. 4 First 5 Yolo Early Childhood Mental Health Needs Assessment A workforce development strategy should take this into account. PUBLIC HEALTH MODAL FOR EARLY CHILDHOOD MENTAL HEALTH SERVICES Below is a conceptual model that is helpful in illustrating some of the key findings and recommendations of the Yolo Early Childhood Mental Health Needs Assessment4. Early intervention Prevention / Early intervention Public awareness / Prevention INDIVIDUAL Assessment / Therapy + all below SELECTIVE Curricula components / New parent support model / Consultancy model + all below Public education & anti-stigma campaign / Training / UNIVERSAL Promotion activities target all young children and their families (Universal). These activities are designed to raise awareness, reduce stigma, improve parenting knowledge and skills and promote social-emotional health of all children. The vast majority of children and families require only universal interventions and/or promotion services and supports. A smaller subset of children and families with identified risk factors, such as poverty, poor quality early care and learning experiences, parental risks and behaviors (e.g. lack of education, poor parental health, untreated parental trauma, negative parenting) and children with serious diagnosable emotional and behavior problems could benefit from prevention and early intervention services (Selective). A much smaller percentage of the population is likely to need additional targeted mental health services (Individual). These strategies are designed to assist and support children who have significant social-emotional delays in development. Key informants consistently suggested that the greatest need in Yolo County is for promotion, prevention and early intervention early childhood mental health services. 4 Social and Emotional Health in Early Childhood: Building Bridges Between Services and Systems, 2007. 5 First 5 Yolo Early Childhood Mental Health Needs Assessment BACKGROUND Early childhood mental health is the capacity of the young child to experience and regulate emotions, have secure relationships, and is critical to healthy development. Early childhood mental health cannot be separated from brain development. Children are born with roughly 100 billion neurons, and few additional neurons will be produced for the rest of their lives. At birth, the connections between these neurons are tentative. As the child grows, experiences the world, and establishes relationships with others, these connections are modified and “hardwired,” and these hardwired connections are responsible for all of a child’s major cognitive and emotional functioning. By age three, roughly 85% of the brain’s core structure is formed. In recent years, brain development studies and attachment theory have had important influences on the domain of infant and early childhood mental health. Many of the newer diagnostic tools, evidence-based practices, and treatment modalities are strengths-based and developmentally-based. As such, they measure individual competencies and deficits against the typical social-emotional development of infants, toddlers, and preschoolers, and then work with both parent and child to help move the child toward the level of competency that is typical for his/her developmental stage. Many of these newer approaches strongly focus on the child’s first relationships, particularly the parent-child dyad or triad. Treatment modalities sometimes focus on parent behavior as much as on child behavior. These newer approaches diverge significantly from the pathologyfocused foundations of adult mental health care and from earlier approaches to early childhood mental health. All major models place some focus on behavioral patterns. The field of early childhood mental health is relatively new, and rapidly evolving. Currently, those who are trained in the latest early childhood mental health modalities and methods come from not only the domain of psychiatry and psychology, but also early childhood education and early childhood development, medicine, and elsewhere. The following research-based statements represent some of the central tenets of the early childhood mental health field: 6 • Warm, loving relationships (“attachments”) with caring adults have a tangible and longterm influence on children’s lives, contributing to optimal social, emotional, and cognitive development for infants and toddlers (Zeanah & Doyle Zeanah). • “Emotional well-being, social competence, and emerging cognitive abilities are highly inter-related, and together they are the bricks and mortar that comprise the foundation for human development” (Emde & Robinson 2000). • Responsive care-giving can mediate the effects of some risk factors and chronic health conditions, e.g., prematurity and poverty (Zero to Three). • Healthy social emotional development is strongly linked to success in elementary school. Healthy social and emotional development provides a necessary foundation for literacy, language, and number skills. A child who is not secure in relating to others, First 5 Yolo Early Childhood Mental Health Needs Assessment doesn’t trust adults, is not motivated to learn, or who cannot calm himself, or be calmed enough to tune into teaching, will not benefit from early educational experiences. The emotional, social and behavioral competence of young children is a strong predictor of academic performance in elementary school (Zero to Three). • In general, the earlier the intervention, the briefer and more effective it will be (key informant survey, Mental Health Provider Survey, Zero to Three, National Center for Children in Poverty). METHODS In order to assess and describe the current landscape of mental health services for young children in Yolo County, estimate the number of children 0-5 who might benefit from early childhood mental health services, and identify gaps in services, the following research activities were conducted: • Interviews of 41 key informants, including researchers, directors and clinical directors of community-based organizations, and Yolo County mental health practitioners in both public service and private practice; • Surveys, including 69 Yolo County mental health providers, nine physicians, and 44 parents (surveys were conducted online, using the Survey Monkey tool); • A focus group of Yolo County early childhood mental health experts; • A mental health screening of 276 two year-old and three year-old Yolo County 0-5yo children; • Literature and data review. LIMITATIONS: This needs assessment focuses primarily on the public and private mental health services available to young children. It does not fully examine the mental health services within educational or other settings that are not focused primarily on mental health. 7 First 5 Yolo Early Childhood Mental Health Needs Assessment FINDINGS TABS Screening in Yolo County The estimated prevalence rates of children who are at risk for mental health disorders and those who are exhibiting emotional and behavioral disorders varies across studies. Some national studies indicate that one in five children may have a diagnosable disorder (Department of Health & Human Services). A Surgeon General’s 1999 report indicates that 9 – 13% of all US children have a serious, diagnosable emotional or behavioral disturbance resulting in substantial–to-extreme impairment (Friedman). The percentage of preschool children who meet the criteria for a clinical diagnosis of oppositional defiant disorder (ODD) ranges from 7 – 25% in the United States, depending on the population surveyed (Webster-Stratton, 1997). In order to estimate the number of children 0-5 years old in Yolo County who might benefit from preventive and/or early mental health services, a sample of 276 two year-old and three year-old Yolo County children were screened in November – December 2007 using the Temperament Behavior Scale (TABS) Screener. The TABS is a multi-component, and Atypical norm-referenced screening tool for infants and young children ages 11 – 71 months. The TABS Screener is designed for general screening programs as well as for individual administration. The TABS Screener is not designed to be used alone in determining whether or not a particular child is in need of services but to identify children who exhibit indicators of atypical development or who are at risk of atypical development. It is recommended that identified children be followed up with the full TABS assessment tool. If those results are also positive, children should be referred to a mental health care professional for additional assessment and treatment. Two hundred and seventy-six children across Yolo County were screened by either their early education or care provider or parent. Nineteen child care providers and preschool teachers, and 80 parents completed this simple 15 item screening tool designed for rapid identification of children who are likely to have or be at risk for atypical development, including behaviors related to autism spectrum disorders, ADHD, dysregulation, attachment deficits, neurological damage, or other brain development / mental health deficits. Of the 276 children screened, 239 were completed in English and 37 were completed in Spanish. Children were screened in Davis (20), Woodland (109), Esparto (18), Knight’s Landing (17), West Sacramento (157), and other outlying areas (15). The TABS Screener consists of fifteen simple statements that scorers check off if it accurately describes the particular child being assessed. Raw TABS scores are displayed in the graph below. The largest score category is “0.” A “0” means that there is no indication of atypical development or risk for atypical development. Scores of “1” and higher are increasingly significant markers of atypical development or risk for atypical development. These indications of possible atypical development may be tied to autism spectrum disorders, ADHD, dysregulation, attachment deficits, neurological damage, or other brain development / mental health deficits. 8 First 5 Yolo Early Childhood Mental Health Needs Assessment Among the children screened, 29% were assessed as exhibiting behavioral tendencies that indicate they may already have some atypical development of temperament and self-regulation (scores of 4 and greater). An additional 13% of children were found to have a likely risk for atypical development (scores of 2 and 3). (See graph below.) The TABS Screener addresses four types of risk factors tied to behavioral. 9 Detached: Exemplified by behavior that is withdrawn, aloof, self-absorbed, difficult to engage, and disconnected from everyday routines involving adults or other children. This behavior can be manifested in a variety of activities and contexts. Infants and young children with a detached style may look through or past people, tune out, lose contact with what is going on, often just stare into space, or act like others are not there. First 5 Yolo Early Childhood Mental Health Needs Assessment Commonly associated with autism spectrum disorder (ASD). Hyper-sensitive / active: Exemplified by behavior that is over-reactive to even slight environmental stimulation as well as impulsive, highly active, negative, and defiant. This behavior can be manifested in a variety of activities and contexts. Indicators include difficult to soothe when upset, crying, frequently irritable, touchy, or fussy, too grabby, impulsive, or destructive. Commonly associated with attention-deficit / hyperactivity disorder (ADHD). Under-reactive: Exemplified by child being truly unresponsive and requiring intense environmental stimulation to elicit a response. Associated with limited awareness, low alertness, passivity, and lethargy – and differs from a detached style that actively avoids engagement. May show no surprise at new events, not be upset when a favorite toy is taken away, not react to sounds, rarely smile, giggle, or laugh at funny things. Commonly associated with severe neurodevelopmental problems (i.e., problems presumed to have primarily a neural basis, such as problems related to brain injury and more subtle neurological impairment). Dysregulated: Exemplified by difficulty controlling or modulating neurophysiological behavior (e.g., sleeping, crying, self-comforting) and oral-motor control (e.g., jitteriness and hypersensitivity to physical contact.) Among the children screened, hyper-sensitivity / hyperactivity and under-reactivity related items were the most frequently reported. (See graph below.) Factor 1 Factor 2 Factor 3 Factor 4 The Modified Desired Results Developmental Profile, Revised (MDRDP-R) 2007 findings for 152 10 First 5 Yolo Early Childhood Mental Health Needs Assessment Yolo County children ages 4 years old to pre-k also correlate well with the findings of the TABS screening. The TABS screening suggests that 29% of Yolo County children in the 2 – 3 year age range are likely to have atypical development of temperament and self-regulation. The MDRDP-R shows that 23 to 49 percent of children aged 4 – pre-k fall short of the benchmark on individual measures of social-emotional skills regarded as necessary components for school readiness, such as: • • • • • • • • • Seeks adult help when appropriate; Seeks adult help after trying to resolve conflict/problem on his/her own; Negotiates with peers to resolve social conflicts with adult guidance; Expresses empathy or caring for others; Participates in cooperative group efforts; Exhibits impulse control and self-regulation; Follow rules when participating in routine activities; Comforts self and controls the expression of emotion with adult guidance; Understands and follow rules in different settings. There were roughly 15,330 children aged 0-5 living in Yolo County in 2007 (US Census, 2007). Both TABS and MDRDP found that a significant percentage of children assessed were reported to show signs of atypical social-emotional development or to have deficits in areas of socialemotional functioning considered necessary to school readiness, thus there could be as many as 4,450 children in Yolo County for whom a full assessment would be appropriate. Retrospective Survey of Parents who have sought or received mental health services for their children We also wanted to learn about the experience of parents who do seek and obtain mental health services, many of whom have children with severe needs. We surveyed parents who had received mental health services to learn about their experiences during the time their child was 0-5 years old. This survey was distributed through Warmline, Alcohol, Drug and Mental Health ADMH, the special day class at Korematsu Elementary School, Alphabet Soup, a Davis special education elementary school parent group, and Horizon School at Whitehead Elementary School. A total of 42 Yolo County parents participated in this retrospective survey. Seventy-five percent of these parents reported on their child(ren) who were 6 years old and up at the time of the survey, and 12% reported on their child(ren) who were 0-5 years old at the time of the survey (12% declined to state). Among Yolo County parents participating in this survey, all of whom have sought or received mental health services for their children, 72% report that they first noticed problems during the period at which their child was age 0-5. (See chart below.) 11 First 5 Yolo Early Childhood Mental Health Needs Assessment Note: While we attempted to include parents who had sought but not received services, the majority of parents who responded to the survey participated through the service delivery system. KEY INFORMANT INTERVIEWS AND PROVIDER SURVEYS Mental health provider survey respondents and interviewees provided information on what they regarded as the greatest needs in regard to early childhood mental health in Yolo County. The items mentioned most frequently were: • • • public awareness prevention and early intervention access to mental health service providers Also mentioned frequently was the need for early childhood mental health training for those working with young children and the need for more trained service providers. The areas identified most often by survey respondents were prevention and early intervention (82%), followed by earliest possible intervention (74%) and more support and education for parents (71%). In comparison, relatively fewer mental health providers (37%) saw a need for an increase in, or changes to, trauma-related services. 12 First 5 Yolo Early Childhood Mental Health Needs Assessment 1. There is an acute need for greater public awareness Key informants indicated that some sort of public awareness effort is needed to make parents aware of the importance of supporting their child’s healthy social and emotional development, what they can do to support it, and where to access services that will help them in doing so. Experts also consistently point to the need for public awareness initiatives (ZERO TO THREE, National Conference of State Legislatures). Key informants also point out that even people who are generally knowledgeable about young children tend not to be educated about mental health needs. They further report that, despite the successfulness of emerging evidence-based prevention and early intervention strategies, and despite the large percentage of children who exhibit atypical behavioral tendencies, there is a critical problem in connecting children to services. Moreover, children with mild to moderate social and emotional deficits go largely undetected by parents, care providers, doctors, and teachers until they are well into elementary school. By this point, the child may have more pronounced difficulties, and require lengthier and more intensive services. Parents may be completely unaware of the possibility of having someone help them address behavioral concerns for their young child(ren). A case in point comes from the Yolo County Children’s Alliance, which conducts phone surveys to follow up on health care utilization of the 56 0-5 year old Yolo County children the agency has enrolled in health insurance since January 2007. By December 2007, 21 families had been surveyed by the organization, and have been asked the following: “This insurance entitles your child/children to behavioral health care. Has your child seen a counselor, therapist or doctor for behavioral health concerns?” According to YCCA staff, the most frequent response from parents has been, “What is behavioral health?” Once informed as to the meaning, YCCA has discovered that, to date, only one family has raised a behavioral health issue with a counselor, therapist or doctor. Unless a parent, care provider, or doctor suspects a mental health need, children in need will not be referred for assessment. Few parents, care providers, and doctors are trained to recognize the difference between typical and atypical behavior in young children. This situation is further exacerbated by the fact that many parents, care providers, and doctors often do not know which agencies provide assessment and therapeutic services. Furthermore, public programs are mandated to serve children who either present a very severe need or whose mental health needs are secondary to severe developmental delays or physical disability. Private mental health providers trained to work with this age group are also 13 “The very concept of early childhood mental health is so little understood.” key informant interview “Nearly everyone who works with young children, from parents to preschool teachers, needs to learn about the importance of promoting healthy social-emotional development.” key informant interview “The problem is not ‘bad kids’ or ‘bad parents’ as is sometimes thought. Research shows that early childhood is not this carefree, evanescent time of life that we adults sometimes make it out to be… young children have deep, vulnerable emotional lives and are capable of very serious emotional problems that, left unaddressed, can lead to a lifetime of impairment and increasingly serious mental health issues. It’s a matter of providing assistance and support to promote healthy development at these very early stages.” - key informant interview First 5 Yolo Early Childhood Mental Health Needs Assessment extremely hard to find. “I'm not sure parents understand that they can get services through the county for their very young children, nor do they realize or recognize there's a problem until their child is older than 5 years.” Mental Health Provider Survey 2. There is a great need for more mental health prevention and early intervention services What is Prevention? Prevention is defined as any service that comes before a formal diagnosis is made. For many reasons, very few children 0-5 years old have been diagnosed. Parents may not realize that there is a problem, or what supports exist. Doctors may hesitate in diagnosing children so young. Parents may be frustrated in failed attempts to locate early childhood mental health specialists. The lack of available and/or publicized early childhood mental health specialists may also result in parents being unaware that such a specialty exists. “Sometimes a family tries several avenues to get answers about whether their child’s issues are developmental delays or mental health issues. During this sometimes lengthy process of searching for help, their child is getting older and his problems are getting worse.” - key informant interviews Among Yolo County early childhood mental health experts surveyed, 82% identified “prevention and early intervention” as an area in great need of attention. This was identified as one of the greatest needs in the county by more mental health providers than any other need. The need for early intervention: A large and growing body of research substantiates that the earlier the interventions take place, the faster, easier, more successful, and less costly the intervention will be (DeGangi, Greenspan, et al, 1996) (Cicchetti, Rogosch, Toth, 2006) (Santos metaanalysis, 2005). While atypical behaviors in infants and young children sometimes signal transitory problems, there is mounting evidence for the importance of early intervention to ensure that early behavioral issues do not become increasingly problematic. One key informant indicated that “children with early behavior disturbances often get on a developmental trajectory of increasing and more severe problem behavior, and do not get off easily.” This statement from a local early childhood mental health expert is corroborated by many studies, as evidenced by: 14 • The correlation between preschool-age aggression and aggression at age 10 is higher than that for IQ (Kazdin, 1995). • Children identified as “hard to manage” at ages three and four have a high probability (50:50) of continuing to have difficulties into adolescence. (Campbell & Ewing, 1990. Edgeland et al, 1990. Fischer, Rolf, et al, 1984). • Because young children’s brains are still forming, “The basic principles of neuroscience tell us that providing the right conditions for healthy development in early childhood is likely to The greatest need is for “programs to help the parents work better with their children.” - parent survey “Mental health care services for young children should be family focused, including the parentchild relationship, and parentparent relationship (and extended family, if available). Within the family relationships, family stressors, communication and interaction patterns, and family coping skills and resources can be assessed to find the strengths in each family. These services would include an educational component so that families are fully informed about child and family development.” - Mental Health Provider Survey First 5 Yolo Early Childhood Mental Health Needs Assessment be more effective than treating problems at a later age… Once a circuit is ‘wired,’ it stabilizes with age, making it increasingly difficult to alter function to change.” (Science-Based Framework for Early Childhood Policy, Center for the Developing Child, Harvard) Results from the TABS screening of children conducted in Yolo County indicate that as many as 29 percent of young children in Yolo County might benefit from further screening, and prevention and early intervention services. An overarching theme among mental health providers surveyed and interviewed was that early childhood mental health services should be relationship-based, address the parent-child dyad as well as supporting the parent’s mental health needs, and be developmentally-based. Other goals mentioned are home-based services and de-stigmatizing services. The focus may be on the parent-child relationship for several reasons. First, bonding and attachment are central to infant / early childhood mental health. Secondly, even in the absence of attachment issues, positive changes to parents’ skills can directly influence the child’s mental health status. Access to Care: Access to public and private mental health care services was identified as a problem in Yolo County, and it is particularly true for young children, as evidenced by the following: 15 • The Federal Health Resources and Services Administration has designated all of Yolo County as a Health Professional Shortage Area (HPSA) for mental health services. • The Yolo County Alcohol, Drug and Mental Health Services (ADMH) Mental Health Services Act Community Services and Support Plan of January 2006 states that “it is clear that children 0 – 17 are underserved” in our county. The Community Services and Support Plan further reports that for children 0-17yo, 27% are fully served, 73% are underserved, and disparities exist for Latino/Latinas. • The Community Needs Assessment 2004: Maternal, Child and Adolescent Health published by Yolo County Health Department’s Maternal, Child and Adolescent Health Program (MCAH) cites a lack of availability of mental health services as a prominent concern and gap in health access throughout the county. In this report, county residents and physicians expressed concerns that mental health care services for children are lacking or difficult to access. Many of the other problem areas identified in the MCAH report, including substance abuse, child abuse, obesity, and “Excellence means universal check-in screenings, both prenatal and at birth to assess for risk, with follow-up in the form of free developmental services for at least the first year, to which any family can self-refer.” -Mental Health Provider Survey “The barriers that families face are: a lack of a formal system, lack of home base services, too fragmented services.” - Mental Health Provider Survey First 5 Yolo Early Childhood Mental Health Needs Assessment health access, are clearly stated to have mental health implications, and “underscore the link between physical health and mental health.” The overwhelming majority of public mental health resources for Yolo County children 0-5 years old are restricted to those whose problems are comprised of the most persistent, serious mental illnesses, or whose mental health deficits are secondary to trauma (such as sexual abuse, child abuse, witness to a violent crime, serious neglect), or are secondary to a serious developmental delay or physical disability (such as mental retardation, Down Syndrome, Cerebral Palsy). Providers who are accessed via private pay or private insurance, and who have infant / early childhood mental health training are hard to find. Yolo County Alcohol Drug and Mental Health (ADMH) staff, as well as staff from agencies who refer to ADMH, indicate that the county’s program priority is providing services to only those with the most persistent, serious mental illnesses. Staff report that, in the case of young children, this means that children must meet very high or multiple criteria. Staff also report that “programs are impacted.” However, they also report that there is space and equipment available to expand capacity. What is lacking is allocated funds and a pool of therapists with the early childhood mental health training desired. Yolo County Office of Education (YCOE) is charged with serving children 03 with developmental delays or developmental concerns in the areas of motor and fine motor skills, communication, self-help / adaptive, and social emotional development. However, in practice, children with either physical or global development delays (such as “mental retardation” and autism) may receive services from both Yolo County Office of Education First Steps Program as well as from Alta California Regional Center’s Early Intervention Program (referred to as Alta Regional). Although criteria differ slightly, the two agencies do case management together, and work in close collaboration with each other, but children whose primary needs are social-emotional rarely, if ever, receive services. Alta Regional staff report that they do provide mental health services, but only for children whose social and emotional deficits are secondary to a physical disability or pervasive developmental delay. Yolo County Office of Education and the county’s five school districts also provide some mental health related services for children aged 3 – 5 within the context of educational programs. At this point, criteria are related to disabilities that impede a child’s ability to benefit from educational offerings. According to key informant reports, the schools typically do not provide Individual Education Programs (IEPs) on the basis of mental health (social and emotional) deficits, with the exception of 16 “One two year old boy had obtained services through the YCOE First Steps Infant Program for a few months – but when he began to improve, they dis-enrolled him. Everyone agreed that he still needs mental health services. But it was decided that his remaining problems are more of an emotional nature than a developmental delay so he no longer meets the Infant Program’s criteria for eligibility. Now the mental health services he had (because of the cooccurring developmental delay) are no longer available to him.” -Source: key informant interview First 5 Yolo Early Childhood Mental Health Needs Assessment autistic spectrum disorders, which may be considered a mental health and/or developmental delay diagnosis, and very rare diagnoses of emotionally disturbed (ED). In practice, however, children with socialemotional deficits sometimes enter into special education services through another identified disability such as communication (speech and language). Yolo County Office of Education staff report that this is due to the fact that “it is easier to identify and measure physical disabilities than emotional disabilities.” These priorities and mandates of public agencies leave very few public mental health “slots” countywide for those children who exhibit mild or moderate social-emotional deficits. For Yolo County’s low income families, access to mental health services is complicated by factors of eligibility and severity of diagnosis as barriers to care. According to California Datebook, 13.8% of Yolo County children live below the poverty level. These children depend on the county system of care for mental health services. Children below 300% of poverty who are enrolled in Healthy Families, Yolo Healthy Kids, or the Kaiser Child Health Plan experience barriers to accessing mental health services due to lack of knowledge about benefit package, a shortage of providers in the provider network, language and cultural barriers, and stigma associated with mental health issues. For moderate income families, lack of adequate health insurance coverage creates additional barriers to access. Moderate-income families may be without health insurance and ineligible for public insurance programs. And when they do have insurance, it may not include mental health benefits. The Yolo County Alcohol, Drug and Mental Health Department, Mental Health Services Act Community Services and Support Plan (January 2006) states that “children from low-income [and moderate-income] families who are not eligible for Medi-Cal are more likely to be uninsured and, therefore, their medical and mental health needs are more likely to be undetected and untreated.” When families do have insurance that includes mental health benefits, low provider reimbursement rates result in very small provider networks and often providers limit the number of clients paid for with insurance that they will see. Even if providers accept insurance, typical office visit co-pays for mental health services are approximately 40% of provider fees. Yolo County physicians surveyed concur that access to mental health services for young children is a problem. They pointed out the following access issues: • 17 insufficient number of providers who are comfortable working with very young children; “Parents who have private insurance have an even harder time getting mental health services than those with Medi-Cal.” - key informant interview First 5 Yolo Early Childhood Mental Health Needs Assessment • inadequate funding for mental health services for children of all ages; • limited access to child psychiatrists at ADMH; • Complicated referral system; • Inadequate parenting support for uninsured and underinsured; • Cultural barriers to seeking mental health services. 3. There is a great need for provider training There is little information on the number of local people trained and available to work in the field of early childhood mental health. However, there is evidence that there is an acute workforce shortage. Experts from Yolo County ADMH, UC Davis, Napa Parent Child Fellowship Program, and the American Academy for Child and Adolescent Psychiatry, all report that there is an extreme national and regional shortage of child psychiatrists and child therapists, and that for the 0-5 age group, this shortage is even greater. The field of early childhood mental health is so new and so rapidly evolving that there are no standards for training. Early childhood mental health is a specialty area, yet there is no infant or early childhood mental health licensure, certification, or set of training standards at this time. The limited pool of individuals with specialized early childhood mental health training is distributed among medical, psychiatry, therapy, educational, and childcare settings. Training is critical to even the most basic assessment of typical versus atypical behavior (i.e., what constitutes a cause for concern in regard to early childhood mental health). While more research is required to determine the factors that are generally considered to be measures of adequate training in this field, an overarching theme among mental health providers surveyed and interviewed was that early childhood mental health services should be relationship-based, addressing the parent-child dyad as well as supporting the parent’s mental health needs, and developmentallybased. 18 “For 90% of child psychiatric disorders, the first treatment choice is therapy. There are not enough therapists trained in the modalities we need. All the kids we see need this. We are pulling in people to do child work who are not trained. This means that we are not able to provide the most effective treatments.” - key informant interview, referring to ADMH “Mental health services for all children need to be provided by experts in children's mental health.” - key informant interview First 5 Yolo Early Childhood Mental Health Needs Assessment COMMUNITY ASSETS At this early stage of the development of the field of early childhood mental health, those who have early childhood mental health training are found among a wide variety of credentialed and non-credentialed professions. This is reflected in the composition of our survey respondents (see graph below). Respondents listed the following credentials and degrees: MFT, MSW, LCSW, PhD, CADC (certified alcohol and drug counselor), ASW, MS, MA, RAS (registered addiction specialist), RN, and Psychologist. (Key informant interviews included people with all of the above credentials as well as MD, Child Psychiatry.) A common theme among key informants (mental health provider survey respondents and interviewees) was that, since the field of early childhood mental health is so new, the kind and degree of training among providers varies widely, and yet this is a critical element in choosing a provider to work with. Among mental health practitioners surveyed, 59% reported that they work with Davis children, and 70% report working with Woodland children. Mental health related care providers surveyed reported that there are more private-pay early childhood mental health services available in Davis than anywhere else in Yolo County, and that there are more public early childhood mental health services available in Woodland than anywhere else in Yolo County. Survey respondents came from a variety of mental health settings, including classroom and daycare settings, nonprofits, in-home services, private-office therapy, government agency settings, medical settings, and more. (See graph below for detail.) Among public-service practitioner survey respondents, 12 work in Woodland and 1 in Davis. Among private-practice survey respondents were 17 private practitioners in Davis and 1 in Sacramento (who works with Yolo County children 0-5yo). These practitioners include 19 First 5 Yolo Early Childhood Mental Health Needs Assessment therapists, and other professionals with early childhood development or early childhood education backgrounds. (See graph above for detail.) Some respondents serve in capacities other than directly providing services (38), such as program administration. Of 69 survey respondents (Mental Health Provider Survey), 40 told us about the children for whom they or their employers provide mental health services. They report working with more children on the older end of the 0-5 age range than with younger children, on average. (See graph below.) PUBLIC MENTAL HEALTH SERVICES: In Yolo County, public mental health services for children 05 years old come from three main sources: 1. Yolo County Department of Alcohol, Drug and Mental Health and its contracting agencies (Yolo Family Services Agency, Yolo Family Resource Center, Families First, and Sexual Assault and Domestic Violence Center) 2. Yolo County Office of Education; the five school districts and the programs administered by them: Woodland Joint Unified School District, Washington Unified School District, Esparto Unified School District, Winters Joint Unified School District, Davis Joint Unified School District 3. Alta California Regional Center Public service strategies include home visits (Alta California Regional Center, First Steps program of Yolo County Office of Education, Yolo Family Resource Center), child and parentchild therapy (Alta California Regional Center; Yolo County Alcohol, Drug and Mental Health; Yolo Crisis Nursery; Yolo Family Service Agency; Sexual Assault and Domestic Violence Center), and public school based services. Fewer than 1% of ADMH clients are 0-5 years old. The total number of 0-5 year old children seen by ADMH and all contracted agencies during the most recent fiscal year is 82. 20 First 5 Yolo Early Childhood Mental Health Needs Assessment ADMH services are only available to children enrolled in full-scope Medi-Cal, and the child’s presenting mental health issue must be serious enough that treatment be a “medical necessity” under Medi-Cal guidelines. “Medical necessity” refers to a service that is “reasonable and necessary to protect life, to prevent significant illness or significant disability, or to alleviate severe pain.”5 This means that the child must score high enough on a list of weighted factors that include CPS involvement, sexual abuse, physical abuse, having witnessed domestic violence, severe neglect, having been removed from the home by child welfare services, having been expelled from preschool or child care three times or more, and exhibiting behavioral “outbursts.” ADMH has been overburdened and understaffed for several years. The focus is on providing services for the most acute and chronic mentally ill patients. One exception is that MHSA funding has been allocated to a pilot program in Esparto for young children and their families. Families First and CommuniCare staff report that referrals to ADMH have not been successful in getting access to treatment. ADMH staff reports that programs are impacted. An ADMH psychiatrist adds that, due to a shortage of trained therapists, ADMH is not able to provide “the treatment of first choice.” Alta California Regional Center and Yolo County Office of Education collaborate to provide services to children 0-3 years old with serious developmental delays (e.g., Down Syndrome and mental retardation) and serious physical disabilities. In order to qualify, children must have significant developmental delays in one or more areas. While “social and emotional delays” are included in the list of delays covered, according to staff, very few if any children in this age group are served for needs that are primarily social-emotional (i.e., mental health). Alta staff report, “Mental health is not part of what we do.” An exception is autism, which is a much more pervasive developmental delay and mental health that includes social-emotional deficits. An Individualized Family Service Plan (IFSP) documents and guides the early intervention process for children with disabilities and their families. The IFSP is the vehicle through which effective early intervention is implemented in accordance with Part C of the Individuals with Disabilities Education Act (IDEA). It contains information about the services necessary to facilitate a child's development and enhance the family's capacity to facilitate the child's development. Through the IFSP process, family members and service providers work as a team to plan, implement, and evaluate services tailored to the family's unique concerns, priorities, and resources. The IFSP often takes an interagency approach, involving representatives of several agencies to provide resources the child and family. Yolo County Office of Education First Steps staff report that caseloads are very high, and that the interagency approach sometimes results in an unintended duplication of some services while other services are not provided. Services available through the IFSP are usually provided in the child’s home. Changes in the federal Individuals with Disabilities Education Act (IDEA), however, state that services are to be provided in the child’s “natural environment,” which can include a child care setting, preschool or other community setting. At age 3, the IFSP is replaced with an Individualized Education Plan (IEP), and services are provided by YCOE and the school district. While the IFSP approaches the disability from a more global perspective, an IEP is tied to education. Key informants (Mental Health Providers Survey 5 Cal. Wel. & Inst. Code § 14059.5 (2001) 21 First 5 Yolo Early Childhood Mental Health Needs Assessment respondents and key informant interview participants) report that, in practice, the criteria for IEPs are set so high (a 50% delay in one area or two 25% delays) that many children who are struggling do not receive an IEP until well into elementary school. Key informants within this special education system report that although one of the criteria for getting special education services is a social-emotional deficit, in practice, this is very rarely applied to children 3-5 years old. Autistic spectrum disorders are an exception, and include more global functioning deficits beyond mental health. Some parents surveyed mentioned difficulties in making the transition from the IFSP to IEP. “Once a child ages out of the Early Start/Infant Programs at age 3 and services go from a developmental to educational approach, many services are dropped.” (Source: parent survey) AB 3632 delegates responsibility for providing mental health services for special education students to county mental health departments (CMHs) when consistent with their statutory obligations. This means that CMHs are responsible for mental health services that are necessary for the child to benefit from special education [Cal. Gov. Code Sec. 7572(d)] and beyond the capacity of the school’s counseling and guidance services to meet the child’s needs. [Cal. Gov. Code Sec. 7576(d), Cal. Ed. Code Sec. 56363.] However, any mental health services necessary for a child to benefit from special education, that is, necessary for a child to make progress toward his or her IEP goals, are the responsibility of the child’s education agency. A diagnosis does not automatically qualify a child yet it may be required for qualifying. County mental health is not held responsible until the school demonstrates that its attempts to provide counseling have been inappropriate or unsuccessful, that “the school has provided counseling, psychological, or guidance services to the pupil under its service structure, and the IEP team has determined that the services do not meet the pupil’s educational needs; or, in cases where these services are clearly inappropriate, the IEP team has documented which of these services were considered and why they were determined to be inappropriate.” [Cal. Gov. Code Sec. 7576(b); 2 C.C.R. Sec. 60040.] These systems are not designed for early intervention. In the first semester of the 2007-08 school year, there were 177 discrete special education services of any kind provided to children 3-5 years old in Yolo County. (This count is of services, not children. One child may receive several services.) Of these, no services were provided in the emotionally disturbed category, and 43 services were provided in the autism category (which is a more pervasive disability, yet includes social –emotional development). In a count of children rather than services, seven children 0-5 years old are reported to have received stand-alone behavior intervention services during this period (Source: Yolo County SELPA: Special Education Enrollment Data Report, 2007-08). This does not include special day classes. Children with social-emotional deficits may also have received other kinds of special education services under other qualifying criteria. This study does not aim to comprehensively discuss all of the mental health related components within all five school districts in the county, which have begun to administer some of the early childhood services previously administered by the Yolo County Office of Education, and that process is ongoing. District administered programs available to children under 6 years old include Horizon School at 22 First 5 Yolo Early Childhood Mental Health Needs Assessment Whitehead Elementary School in Woodland which provides an alternative educational setting for elementary school aged children, including five year-olds, identified as severely emotionally disturbed (SED). While this potentially includes kindergarteners, there are currently no children under 7 years old in this program. Programs also include a special day class at Korematsu Elementary School in Davis. Students served in the preschool qualify for special day school due to speech and language criteria, developmental delays, on the autism spectrum, orthopedic disabilities, or a multitude of other disabilities due to developmental issues. Children cannot qualify for special education for social-emotional reasons, unless there is very severe Emotional Disability (SED), and young children typically are not diagnosed with SED. Korematsu Elementary School’s program includes an autism clinic operated by Yolo County Office of Education. Head Start is also administered by the Yolo County Office of Education, and offers socialemotional screening to all children enrolled in its programs. Children identified as having deficits are referred to agencies in the community. Head Start provides a family support worker and mental health consultant, and parents receive information through monthly meetings and paid parent conferences. Safe Schools - Healthy Students provides screening and treatment offerings to families throughout the Woodland Joint Unified School District, and is currently reviewing screening tools and planning to begin mental health screening by early 2008. While the public schools will serve as a referral network for this program, it is still uncertain how parents of 0-5yo children will learn about and connect with this program in order to obtain mental health screenings and/or services. 23 First 5 Yolo Early Childhood Mental Health Needs Assessment Early Childhood Mental Health Services provided by public agencies and community based organizations Note: This does not include the entire spectrum of early childhood programs that foster social and emotional health, nor programs that target family members. PROVIDER Rural Innovations in Social Economics, Inc. (RISE) Yolo Crisis Nursery NUMBER OF CHILDREN 0-5yo RECEIVING MH SERVICES 7/yr (some are duplicated in the ADMH # above and/or YFSA # below) N/A (200/yr receive some kind of service) Yolo Family Service Agency (YFSA) 28/yr (some are duplicated in the ADMH # above) Yolo Family Resource Center (YFRC) N/A Sexual Assault & Domestic Violence Center (SADVC) N/A Safe Schools - Healthy Students expecting to concurrently serve 100 children 0-18yo, mostly school-aged Alta Regional Center N/A (zero for children whose primary need is mental health related) Alcohol, Drug and Mental Health Dept (ADMH) 24 82/yr (includes those seen by contracting agencies) SERVICES INFORMATION Children receive therapy services from two clinicians, one provided by Yolo Family Service Agency (YFSA) and the other provided by Yolo County Dept. of Alcohol, Drug & Mental Health (ADMH). The RISE model is a seamless service delivery system that includes a center-based childcare and parent education. Other services for young children include a daycare program that emphasizes parenting skills and early learning. Services include therapy (including PCIT and Family Life Skills Training), as well as free child care (designed for families in crisis, but also accept non-crisis child care placements) and other non-related services. Children (0-5) represent 4% of YFSA clients. Services include PCIT, Sand Tray, Play Therapy, Holding Therapy, Group-play Therapy, “Bubble Space,” EMDR, and parenting classes. YFRC provides services through the Child Welfare Services Differential Response Program, Safe Schools/Healthy Students, Alcohol, ADMH, and Head Start. YFRC also provides counseling to preschool children, including those in State Preschool. Services include case management (housing, clothing, childcare, basic needs), therapy, and home visits. Services focused on domestic violence, including children who are witness to domestic violence. Funded by State Office of Emergency Services, Health Dept (Maternal and Child Health) fund for domestic violence, victim-witness funds. Most targeted children are school aged, and are referred by school nurses, psychologists, teachers, and administrators. The program’s counseling center is under development, and is scheduled to open in early 2008.A clinical supervisor, three clinicians, and a case manager from Yolo Family Resource Center (YFRC) will staff the counseling center. Alta Regional provides services to children 0-3yo with severe developmental delays (Down Syndrome, Mental Retardation, etc.) and severe physical disabilities (Cerebral Palsy, etc.). Children whose primary needs are mental health related are not accepted into this program. Children 0-5yo represent 1% of ADMH clients. Of this small group, 56% receive services in Woodland, 17% in West Sacramento, and 15% in Davis. First 5 Yolo Early Childhood Mental Health Needs Assessment First Steps Infant Program of Yolo County Office of Education case load of 70 (zero for children whose primary need is mental health related) UC Davis MIND Institute N/A school districts N/A First Steps collaborates with Alta California Regional Center in providing therapeutic and wrap-around services to children 03yo with severe developmental delays (Down Syndrome, mental retardation, etc.) and severe physical disabilities (Cerebral Palsy, etc.). Children whose primary needs are mental health related are not accepted into this program. Serves children via referral from UC Davis Medical Group primary care physician. Or may be included in a databank for inclusion in clinical trials. Treatment oversight (with outside referral for ongoing services) for diagnoses which include autistic spectrum disorders, ADHD, developmental delays, and neurological issues such as seizure disorders. All five Yolo County school districts provide psychological assessments for children 3 – 5yo. Special day classes and other services vary by school district. Note: N/A indicates this information was not available at the time of this report. PRIVATE-PRACTICE MENTAL HEALTH SERVICES: This needs assessment has identified roughly 55 mental health service providers in private practice who work directly with Yolo County children 0-5yo. Of those, 18 participated in a survey and eight participated in a focus group or interview. This included four practitioners with PhDs, five MFTs, four LCSWs, and four with other master’s-level degrees. Seventeen of the providers in private practice see children in Davis, and one in Sacramento sees children living in West Sacramento. A survey of 36 Yolo County pediatricians and family physicians who treat children 0-5yo was conducted. Nine physicians responded to this survey, one of whom reported that s/he provides services related to mental health, and that same physician alone reported having some infant / early childhood mental health training. Among surveyed mental health providers in private practice, practitioners working in education settings work directly with many more children each month (an average of 59 per month) than those whose practices revolve around office visits (an average of 3.5 per month). Those who work in educational settings are also more likely to provide child care provider and preschool teacher trainings, to teach parenting classes, and to provide prevention and early intervention services. Of the mental health providers surveyed, 30 indicated that they obtain clients through referrals. Among this group, 22 said that they receive referrals from teachers and school administrators, 20 receive referrals from other mental health care providers, and 17 receive referrals from pediatricians and family physicians. 25 First 5 Yolo Early Childhood Mental Health Needs Assessment Referral Sources for Mental Health Providers (n=30) Other Mental Health Practitioners 67% Pediatricians and Family Practice Physicians 57% Teachers / School Administrators Department of Social Services Child Protective Services 73% 23% 47% Many providers in private practice either see mostly older children or see mostly children with severe needs. While providers report a significant need for early childhood mental health services, they also cite poor public awareness as a reason that explains why there is a disproportionately small demand in the private sector for these services. It is also difficult to attract new workers because there is no infrastructure in place to connect children needing these services with those who provide services. Key informants and parents surveyed report that the greatest difficulties surrounding the existing mental health services in the private sector are: • Locating practitioners; • Obtaining and using insurance for access to practitioners trained in early childhood mental health; • Being able to afford the cost of private-practice early childhood mental health services. PROMOTION AND PREVENTION SERVICES: Assets also include individuals, organizations, and programs that provide services that promote, prevent, and/or advocate for the positive mental health of children 0-5 years old and their families. These include: • Parenting classes, workshops, and other educational opportunities • Supports for parents’ own mental health • Programs that support the healthy development of young children • Home visitation programs • Workforce development for child care providers and preschool teachers to train in regard to healthy early childhood social and emotional development, recognizing the difference between typical and atypical behavior, and how/when to refer children for mental health services 26 First 5 Yolo Early Childhood Mental Health Needs Assessment Yolo County assets that fit this broader definition include: • Child welfare services • Warmline • NAMI (National Alliance on Mental Illness) • United Advocates for Children • Yolo Crisis Nursery • Parent and provider coaching and consulting services from Early Years Parent and Caregiver Consulting and other private consultants • Parent education and support services (see table below) • Early Childhood programs Yolo County parent education and support programs. PROGRAM NAME PROVIDER FREQUENCY COSTS DESCRIPTION Meet Other New Parents UC Davis Family Connection Program 8-week sessions, yearround $90 per session An environment for new parents to meet each other, ask experts questions about infant development, see babies explore. Parenting Support Group Yolo Family Resource Center weekly sessions Free Father/Grandfather Connections UC Davis Family Connection Program 8-week sessions, yearround $90 per session Parenting the Toddler Child Care Services Resource & Referral Network 4-week series Free weekly sessions Free Parents Together 27 Child Care Services Resource & Referral Network Discussion of family, parenting issues, children, communication, and other problems or concerns. An opportunity for infants, toddlers, fathers and grandfathers to connect with each other in a fun and supportive environment. A discussion of the challenges of raising a toddler, including the word "No!" and insights into who toddlers are and what motivates them. Covers communication, development, nutrition, positive discipline, friendships. A group for parents of infants with questions, concerns, or issues that they would like to share and discuss with other parents of young children. First 5 Yolo Early Childhood Mental Health Needs Assessment Workshop designed for parents and educators of children from birth to 3yo. Baby Signs reduces frustration and builds trust, allows babies to share their worlds, strengthens the parent or caregiver/infant bond, and promotes positive emotional development. Baby Signs Baby Signs by Erin Panelli day-long workshops Parenting in Recovery CommuniCare Health Centers 12weekly sessions Free. Parenting the Preschooler Child Care Services Resource & Referral 4-week series Free Various Families First varies Free Various Mother & Baby Source varies Varying fees. Varies. $10/year Videos and books on parenting and child development topics, as well as toys. For care providers as well as parents. Toy and Resource Library 28 City of Davis Childcare Services Resource & Referral ongoing $50 Classes cover parent behaviors as well as baby behaviors and needs. Discussion of the challenges of raising a preschooler. Varies. First 5 Yolo Early Childhood Mental Health Needs Assessment RECOMMENDATIONS Key findings support the notion that young children and their families in Yolo County would benefit greatly from the development of a coordinated system of care that offers a continuum of mental health services from promotion to prevention to intervention. Key informants consistently stated that the emphasis should be on prevention and early intervention services. Suggestions on where to begin include the following: 1. EXPAND PUBLIC AWARENESS Improving public awareness begins the process of education for all. This critical step lays a foundation for the development and utilization of early childhood mental health services within the community. The National Conference of State Legislatures’ research and policy report, Helping Young Children Succeed: Strategies to Promote Early Childhood Social and Emotional Development concluded that “public awareness is critical to the improved well-being of young children because parents and caregivers can gain greater skill in understanding the developmental needs and stages in children’s lives and how to support them,” (ZERO TO THREE, 2005). A well-coordinated public awareness campaign could take many forms, and would serve to inform everyone from parents and family members to caregivers and medical and educational professionals about the basics of early childhood mental health. Issues for a public awareness campaign to address include: discrepancies between the common perceptions of early childhood social and emotional development and what is known from research, stigma, and language and cultural barriers. A public awareness campaign could include the following: • Provide information about social-emotional development in the context of care giving relationships to all parents, health care providers, child care providers, early educators, etc. as part of public awareness efforts; • Disseminate information about the early foundations of school readiness to parents of young children, and talking to them about how these apply to their children; • Routinely talking about social and emotional milestones as part of developmental anticipatory guidance at home visits, well-child visits, and other standard interactions with parents and caregivers of young children; • Integrate infant/early childhood mental health concepts into trainings for personnel working with young children and their families. The goals of raising public awareness would be to reduce general stigma associated with early childhood mental health. Additionally, all parents and family members, as well as professional caregivers, early childhood educators, and mental health and medical care providers would benefit from greater understanding of early childhood mental health. 2. FOCUS ON PROMOTION, PREVENTION AND EARLY INTERVENTION STRATEGIES A key recommendation of interviewees, as well as by national experts, is to focus on prevention 29 First 5 Yolo Early Childhood Mental Health Needs Assessment and early intervention. This represents a fundamental shift from focus primarily being on children with the greatest needs to an approach that is strengths-based, developmentally based, and relationship-based. Promotion activities target all young children and their families, are designed to promote healthy social emotional development. They include approaches aimed at improving parenting knowledge and skills, child development, and social-emotional health. Promotion also involves assisting parents/caregivers to understand and respond sensitively to the cues the child gives, supporting families as they increase their coping skills and build resilience in their children. Promotion services can take many forms, such as parent support groups, home visiting to newborns, parent education programs focusing on social-emotional development, high-quality childcare and preschool, social-emotional screening as part of well-child check-ups, and breastfeeding support. These services can take place in many settings, including homes, early care and education settings, primary care provider offices, and other community environments. Social and emotional components may be integrated into existing services. Prevention strategies are targeted to specific populations considered to be at-risk because of various factors such an environmental or biological, and are available prior to diagnosable symptoms. These types of services can be integrated into programs that serve at risk families and children. Prevention services could take many forms, for example: home visiting, curricula, parent support groups, parent coaching, screening and assessment of social and emotional development as part of routine care provided to children (early learning sites, health care, home visiting programs, etc.). In group settings, the same prevention services can support the healthy development of well-functioning children while beginning to address the needs of children with deficits of social and emotional functioning. Prevention components may be integrated into existing services and existing programs. In the context of school readiness, several social-emotional skills have been identified that enable children to learn and be successful in school and later in life. These include: confidence, curiosity, intentionality, selfcontrol, relatedness, capacity to communicate, and cooperativeness. Early intervention services can also be provided in a variety of settings, and are designed to provide support to children who display atypical psychosocial development. Prevention and early intervention strategies would involve consulting with parents, through relationship-based practices, in order to promote the parent-child relationship. Providing prevention and early intervention services through child care centers and preschools may be particularly effective. Caregivers are invested in solving the issues of problem behavior. One possibility would be to integrate mental health consultation into existing programs. For example, a consultancy strategy would utilize the existing early childhood mental health trained workforce to serve as consultants to preschools and child care centers. The advantage of this model is that it maximizes the existing pool of early childhood mental health specialists. Once connected with the families through the child care or preschool, the specialist can determine which children need follow-up, and then work with them and their families more closely. Prevention and early intervention services would also include working with community mental 30 First 5 Yolo Early Childhood Mental Health Needs Assessment health and public health providers, when there is concern about maternal depression, parental substance abuse and other family mental health disorders. It would also entail assisting eligible children to access mental health providers for appropriate diagnostic and treatment services within the context of their family. Early intervention involves maintaining a collaborative relationship between parents/caregivers, early intervention team members and mental health professionals to assure coordinated intervention efforts. Prevention/early intervention could be effectively introduced at the earliest possible moment for maximum effectiveness – for example, in obstetrical settings or in conjunction with well-baby visits. Prevention and early intervention strategies should be relationship-based, developmentallybased, address the parent-child dyad or triad, support the parent’s mental health needs, and build on the strengths of the family. Focusing on prevention and early intervention represents a fundamental shift from targeted investment in children with the most severe needs to an approach that is strengths-based, developmentally based, and relationship-based. 3. ENCOURAGE/SUPPORT WORKFORCE DEVELOPMENT: Providing early intervention services will require addressing workforce shortages. This field is new and rapidly evolving. There is a need to promote specialized infant and early childhood mental health training. Early childhood mental health specialists include professionals with wide-ranging backgrounds: psychiatrists, psychologists, other clinicians, therapists, social workers, and educators. Some specialize in particular approaches and modalities as well as particular developmental stages within the 0-5 age range. A workforce development strategy must take this into account. A workforce development strategy needs to be well-matched to the long-range infrastructure and service delivery model. Questions to be addressed: What kind and education-level of early childhood mental health specialists do we need? To be paid how? To work in what settings? This might consist of basic early childhood mental health training for early childhood educators and caregivers already working in the field. Another option would be to provide early childhood mental health training for clinicians. Cultural competency is an important consideration in regard to not only service delivery but also to workforce development. CONCLUSION: First 5 Yolo commissioned this Early Childhood Mental Health Needs Assessment in an effort to begin to identify the current system of care that exists for young children and their families who might be in need of mental health services. By using a variety of methods, we hoped to gain an understanding of the current early childhood mental health landscape in Yolo County, as well as identify gaps in services. Findings from this needs assessment were used in First 5 Yolo’s strategic planning process, which resulted in the Integrated Family Support Initiative. Social Emotional Health is one of four priority areas funded under this Initiative. 31 First 5 Yolo Early Childhood Mental Health Needs Assessment APPENDIX A: Study Participants Study Conducted by: Kathleen Bowers, The Bowers Group / Davis Consultant Network Michael Mellison, The Bowers Group: Data collection and analysis Lynn DeLapp, Davis Consultant Network: Key Informant Interviews Francesca Wright, Davis Consultant Network: Key Informant Interview Pablo Stansbery, Davis Consultant Network: Technical assistance Assistance Lynn Arner MS, Child Development Consultant: Early Years Michael Rahilly PhD, Mental Health Specialist, Placer County Office of Education, Private-Practice Therapist Ross Thompson, Professor of Psychology, UC Davis Key Informants (Mental Health Provider Survey and Key Informant Interviews) Dr. Virginia Anthony, American Academy for Child and Adolescent Psychiatry Lynn Arner, MS, Child Development Consultant Jan Babb, Maternal, Child and Adolescent Health Director, Yolo County Health Department Kathleen Baxter, MFT Robin Bent, Yolo County Office of Education Deborah Born, Services Coordinator, Alta Regional Center Dr. Kristie Brandt, Co-Director, Napa Infant-Parent Mental Health Fellowship Program Mark Bryan, Department of Alcohol, Drug and Mental Health (ADMH) Carly Carstrida, Horizon School at Brighton Elementary School Dr. Constance J Caldwell, MD, Yolo County Health Dept Diane Casey, Inclusion and Family Resource Specialist, Warmline Family Resource Center Grace Chen, MFTI, SJUSD Kayce L. Cline Susan Contreras, MSW, Yolo County ADMH Jim Coulter, Director, Special Education Division, Yolo County Office of Education 32 First 5 Yolo Early Childhood Mental Health Needs Assessment Gretchen Cyprin, Alta California Regional Center Mark Diel, Executive Director, Children’s Health Initiative, Napa County Josie Enriquez, Yolo Family Resource Center Michelle Foucheaux, Executive Director, Sexual Assault and Domestic Violence Center Sara Gavin, MFTI, CommuniCare Health Centers / John H. Jones Camille Giometti May, Assistant Superintendent / Yolo County SELPA Director, YCOE Linda Glick, Infant Development Specialist (Teacher), YCOE First Steps Infant Program Margaret Greenough, MFT, M.Ed, CAMFT, AAMFT Kathleen Grey, MA, Child Development Consultant: Early Years, Parents Together Facilitator Linda Guttierez, Executive Director, Safe Schools – Healthy Students Program of WJUSD Etelberto Guzman, Yolo Family Resource Center Margie L. Hackett, MFT, The Counseling Associates Diana Hansen, MFT, Private practice supervisor for MFT students’ clinical hours in EC mental health Prof. Robin Hansen, UC Davis M.I.N.D. Institute Lynn Haskell , Behavioral Health Specialist, Butte County Department of Behavioral Health Laura Heintz, Executive Director, Families First Linda Hendricks, MFT, MFCC Sandy Heringer, CommuniCare Health Centers Kim Herkert, MFT Kalista Hickman, MFT, Kaiser Permanente Christina Hill-Coillot, LCSW, Deputy Director of Clinical Programs, Yolo County ADMH Teena Hosey, LCSW Milton Kalish, LCSW Dr. David Katz, MD, CommuniCare Health Centers Patricia A. Kelly, Sacramento County Department of Mental Health Katy King Goldberg, Health Access Outreach Coordinator, Yolo Children's Alliance Karina Knight, MFT Tamiko Kwak, Resource and Referral Coordinator, Child Care Services, Resource and Referral Dee Langley, CADC I, CommuniCare Health Centers Karen Larsen, MFT, Substance Abuse Treatment Program Director, CommuniCare Health Centers 33 First 5 Yolo Early Childhood Mental Health Needs Assessment Dannelle Larsen-Rife, PhD, Family Connection Program Mary M Lattimore, MFT, Winding Way Therapists Joyce Lee , Parent and Provider Consultant Christina Andrade-Lemus, CommuniCare Health Centers / John H Jones Julia Levine, PhD Dr. Edwin Lichwa, MD, CCHC Sara Lindsey, MFT Sue Lomax, MA, Ed, CommuniCare Health Centers Alison Loscotoff, MSW, CommuniCare Health Centers Lana Magness, MA, City of Davis Child Care Ser. Monique Marin, Clinician, Yolo County Department of Alcohol Drug and Mental Health (ADMH) Nancy Mercer, PhD Mosey Meszaros, Yolo County Office of Education, First Steps Infant Program Mary Meux, MD, CommuniCare Health Centers Michael Minnick, MPPA, CommuniCare Health Centers Hector Molina, PPS, WJUSD Mara Newbart, LCSW Antonia Oakley, UC Davis Family Connection Program Dr. John Oberholtzer, MD, Sutter West Medical Group Lewis Oleson, LCSW, MS Clinical Child Psychology, Yolo County ADMH Patricia Osuna, LCSW, Supervisor, Woodland Outpatient Clinic, Yolo County ADMH Dr. Yvonne S. Otani, MD, Kaiser Permanente Carolyn Pierson, MA, Health Administration, Executive Director, Yolo Family Resource Center Holly Pong, PhD, CommuniCare Health Centers Jan Poole, Intake Coordinator, Yolo County Office of Education First Steps Program, YES Team Director Dr. Yelena Popova, MD, Molina Medical Group Michael Rahilly, PhD, Private-Practice Therapist Cheryl Reilly, MFTI, Yolo County Department of Alcohol, Drug and Mental Health (ADMH) Dr. Michael Reinhart, MD, Sutter West Medical Group Dr. Gary Roberts, MD, CommuniCare Health Centers Jim Rodgers, Executive Director, Yolo Family Services Agency (YFSA) 34 First 5 Yolo Early Childhood Mental Health Needs Assessment Oralia Rodriguez, Coordinator, R.I.S.E. (Rural Innovations in Social Economics Inc.) Vivienne Roseby, PhD Dr. David Rue, MD (Psychiatry), Sutter Center for Psychiatry Susana Russ, Clinical Director, Yolo Family Services Agency (YFSA) Linda Ryan, MFT, CommuniCare Health Centers Anne Schultze, Mental Health Specialist, Yolo County Office of Education, Head Start / Early Head Start Mickey Senescall, CADC II, CommuniCare Health Centers Chris Shellhammer, MFT, Yolo Family Service Agency Cyndi C. Smit, MFT, Yolo County Alcohol, Drug, and Mental Health Kathleen Stutz, IMF, MFT, Youth and Family Services Martha E. Tamayo, Migrant Head Start Stewart Teal, MD (Psychiatry), Yolo County Department of Alcohol, Drug and Mental Health Kathryn Tessmer, MFT Roseanne Testerman, MFT, Woodland Healthcare Judy Tischer, Clinical Director, Sexual Assault and Domestic Violence Center (SADVC) Ross Thompson, Professor of Psychology, UC Davis Robbie Townsley, Resource and Referral Supervisor, Childcare Services Dolores Turner, MSW, Mercy Hospice Rossana Vigil, Resource and Referral Coordinator, Child Care Services Resource and Referral Karleen Watson, MFT, CommuniCare Health Centers Jay Weatherbie, CommuniCare Health Centers Cathie M. Wicks, Executive Director, R.I.S.E. (Rural Innovations in Social Economics Inc.) Judith Ann Wilkin, PhD, MFT, RN Pauline Wooliever, MS, Child Development Consultant: Early Years Oscar Wright, Executive Director, United Advocates for Children TABS Screening Participants Elaine Barratt, Administrator, International Parent / Child Learning Center, Davis Joy McMillister, Administrator, Holy Rosary Preschool, Woodland Maxine Pounds, Executive Director, Storybook Cottage, West Sacramento Cathy Wicks, Executive Director, RISE, Esparto 35 First 5 Yolo Early Childhood Mental Health Needs Assessment Renee Andreotti, Lead Teacher, Discovery Preschool, Youth and Teen Services, West Sacramento Anne Shultze, Mental Health Specialist, Yolo County Office of Education Head Start / Early Head Start Antonieta Licea, Owner, Licea's Day Care, Woodland Dave Bakay, Family Day Care, Davis Dee Chang, Family Child Care, Davis Cindy Cole, Pumpkin Vine Day Care, Woodland Joy Escalante, Family Day Care, Esparto Eliana Guerrero, Itsy Bitsy Preschool, West Sacramento Lila Lemenager, Woodland Preschool, Woodland Patricia Morales-Orozco, In Home Day Care, Woodland Clare Purtill, Children's Center, Grafton Elementary School, Knight’s Landing Johana Scott, Davis Joint Unified School District (DJUSD), Davis Nazarene Schetab, Head Start, Yolo County Office of Education, West Sacramento Kathy Torres-Lopez, Migrant Even Start, throughout Yolo County Kirsten Truitt, Alphabet Soup, Woodland 36 First 5 Yolo Early Childhood Mental Health Needs Assessment Appendix B Cited Works and Additional Resources Bruner, C, J Goldberg, and V Kot. The ABC's of Early Childhood: Trends, Information, and Evidence for Use in Developing an Early Childhood System of Care and Education. 1999. Campbell, S B., and L J. Ewing. "Follow-Up of Hard-to-Manage Preschoolers: Adjustment at Age 9 and Predictors of Continuing Symptoms." Journal of Child Psychology and Psychiatry (1990). Center for Evidence-Based Practice: Young Children with Challenging Behavior. <http://challengingbehavior.fmhi.usf.edu/> Cohen, Julie, Ngozi Onunaku, Steffanie Clothier, and Julie Poppe. Helping Young Children Succeed: Strategies to Promote Early Childhood Social and Emotional Development. National Conference of State Legislatures. www.zerotothree.org, 2005. 1-20. <http://www.zerotothree.org/site/DocServer/helping_young_children_succeed_ final.pdf?docID=1725&AddInterest=1157>. Cooper, Janice L., Rachel Masi, Sarah Dababnah, Yumiko Aratani, and Jane Knitzer. Strengthening Policies to Support Children, Youth, and Families Who Experience Trauma. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2007. 1-102. <http://www.nccp.org/publications/pdf/text_737.pdf>. Cooper, Ph.D., Janice L. "Financing Mental Health for Children, Youth and Their Families." 10.10.07. APA Congressional Briefing on Children’s Mental Health. Columbia University, 2007 1-3. Degangi, G A., and S I. Greenspan. "The Effectiveness of Short-Term Interventions in Treatment of Inattention and Irritability in Toddlers." JDLD 1 (1997): 277-298. Egeland, Byron, Mark Kalkoske, Natan Gottesman, and Martha F. Erickson. "Preschool Behavior Problems: Stability and Factors Accounting for Change." Journal of Child Psychology and Psychiatry 31.6 (1990): 891-909. Emde, R N., and J Robinson. "Guiding Principles for a Theory of Early Intervention: a Developmental-Psychoanalytic Perspective." Handbook of Early Childhood Intervention. Wiley, 2000. Fischer, Mariellen, Jon E. Rolf, Joseph E. Hasazi, and Lucinda Cummings. "Follow-Up of a Preschool Epidemiological Sample: Cross-Age Continuities and Predictions of Later Adjustment with Internalizing and Externalizing Dimensions of Behavior." Child Development 55.1 (1984): 137-150. Fox, Lisa, and Barbara J. Smith. POLICY BRIEF: Promoting Social, Emotional and Behavioral 37 First 5 Yolo Early Childhood Mental Health Needs Assessment Outcomes of Young Children Served Under IDEA. Center on the Social and Emotional Foundations for Early Learning & Center for Evidence-Based Practice: Young Children with Challenging Behavior. www.challengingbehavior.com, 2007. 1-2. <http://www.nectac.org/~pdfs/calls/2007/challengingbehavior/2-smith619policybrief.pdf>. Fox, Lisa, Glen Dunlap, Mary Louise Hemmeter, Gail E. Joseph, and Phillip S. Strain. "The Teaching Pyramid: a Model for Supporting Social Competence and Preventing Challenging Behavior in Young Children." National Association for the Education of Young Children (2003): 1-4. <http://challengingbehavior.fmhi.usf.edu/handouts/yc_article.pdf>. Fox, Ph.D., Lisa. Recommended Practices: Program Practices for Promoting the Social Development of Young Children and Addressing Challenging Behavior. Center for Evidence Based Practice: Young Children with Challenging Behavior. www.challengingbehavior.org, 2005. 1-3. <http://challengingbehavior.fmhi.usf.edu/handouts/ProgramPractices.pdf>. Greenspan, Stanley, and Nancy T. Greenspan. First Feelings: Milestones in the Emotional Development of Your Infant and Child From Birth to Age 4. Viking P, 1987. Johnson, Kay, Jane Knitzer, and Roxanne Kaufmann. Promoting the Emotional Well-Being of Children and Families, Policy Paper No. 4, Making Dollars Follow Sense: Financing Early Childhood Mental Health Services to Promote Healthy Social and Emotional Development in Young Children. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2002. 1-32. <http://www.nccp.org/publications/pdf/text_483.pdf>. Kazdin, A. E. "Risk Factors, Onset, and Course of Dysfunction." Conduct Disorders in Childhood and Adolescence (2nd Edition). Thousand Oaks, CA: Sage Publications, 1995. 50-74. Kazdin, A. E. "Risk Factors, Onset, and Course of Dysfunction." Conduct Disorders in Childhood and Adolescence (2nd Edition). Thousand Oaks, CA: Sage Publications, 1995. 50-74. Knitzer, Jane, and Jill Lefkowitz. Helping the Most Vulnerable Infants, Toddlers, and Their Families. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2006. 1-38. <http://www.nccp.org/publications/pdf/text_669.pdf>. Knitzer, Jane. Promoting the Emotional Well-Being of Children and Families, Policy Paper No. 1, Building Services and Systems to Support the Healthy Emotional Development of Young Children—an Action Guide for Policymakers. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2002. 1-30. 30 Jan. 2008 <http://www.nccp.org/publications/pdf/text_369.pdf>. Masi, Rachel, and Janice Cooper, comps. Children’S Mental Health: Facts for Policymakers. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2006. 1-4. <http://www.nccp.org/publications/pdf/text_687.pdf>. 38 First 5 Yolo Early Childhood Mental Health Needs Assessment Maughan, A, D Ciechetti, S L. Toth, and F A. Rogosch. "Early-Occurring Maternal Depression and Maternal Sensitivity in Predicting Young Children's Emotional Regulation and Socioemotional Difficulties." Journal of Abnormal Child Psychology 35.5 (2006): 685703. National Institute of Mental Health. 28 Jan. 2008 <http://www.nimh.nih.gov/>. Perry, Deborah F.., Kaufman, Roxane K., and Knitzer, Jane. Social and Emotional Health in Early Childhood: Building Bridges Between Services & Systems. Paul H. Brookes Publishing Co., (2007). Poverty and Brain Development in Early Childhood. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 1999. 1-2. <http://www.nccp.org/publications/pdf/text_398.pdf>. Promoting the Social, Emotional and Behavioral Development and Outcomes of Young Children. 2007. <http://breeze.unc.edu/challengingbehavior>. Promoting the Social, Emotional and Behavioral Development and Outcomes of Young Children. 2007. <http://breeze.unc.edu/challengingbehavior>. Raver, C. Cybele, and Jane Knitzer. Promoting the Emotional Well-Being of Children and Families, Policy Paper No. 3, Ready to Enter: What Research Tells Policymakers About Strategies to Promote Social and Emotional School Readiness Among Three- and FourYear-Old Children. National Center for Children in Poverty, Columbia University, Mailman School of Public Health. Columbia University, 2002. 1-24. <http://www.nccp.org/publications/pdf/text_485.pdf>. Santos, R. "Research on Home Visiting: Implications for Early Childhood Development (ECD) Policy and Practice Across Canada." Encyclopedia on Early Childhood Development (2005): 1-9. <http://www.child-encyclopedia.com/documents/SantosANGps.pdf>. A Science-Based Framework for Early Childhood Policy. Center for the Developing Child, Harvard University. <http://www.developingchild.harvard.edu/content/publications.html>. Shonkoff, M.D., Jack P., comp. Science-Based Framework for Early Childhood Policy. 07 Aug. 2007. Center for the Developing Child, Harvard University. <http://www.developingchild.harvard.edu/content/publications.html>. United States. Surgeon General. Department of Health and Human Services. U.S. Public Health Service, Report of the Surgeon General’s Conference on Children’s Mental Health: a National Action Agenda. Washington DC, 2000. US Department of Health & Human Services. <http://www.hhs.gov/>. Webster-Stratton, C, and M Hammond. Journal of Consulting and Clinical Psychology 65.1 (1997): 93-109. <www.myweb.brooklyn.liu.edu>. When the Bough Breaks. Dir. Neil Docherty. Videocassette. Film Makers Library, Inc., 1992. Zeanah, C H., and Doyle Zeanah. "Towards a Definition of Infant / early childhood mental 39 First 5 Yolo Early Childhood Mental Health Needs Assessment health." Zero to Three 22.1 (2001): 13-20. <http://www.nhchc.org/Network/HealingHands/2005/June2005HealingHands.pdf>. ZERO TO THREE web site <http://www.zerotothree.org>. ZERO TO THREE. Diagnostic Classification of Mental Health and Developmental Disorders of Infancy and Early Childhood, Revised (DC:0-3R). Zero to Three, Revised Edition, 2005. 175. ZERO TO THREE, with National Conference of State Legislatures. Helping Young Children Succeed: Strategies to Promote Early Childhood Social and Emotional Development, 2005. 40 First 5 Yolo Early Childhood Mental Health Needs Assessment APPENDIX C: Temperament and Atypical Behavior Scale TABS Indicators The following fifteen items list some of the most frequent problems in temperament and selfregulation that parents and professionals observe in young children. Read each numbered item and check NO if the behavior is not a problem. Check YES if the behavior is a problem. NO 1. Emotions don’t match what’s going on 2. Gets angry too easily 3. Too easily frustrated 4. Has wild temper tantrums 5. Frequently irritable, touch, or fussy 6. Can’t comfort self when upset 7. Doesn’t pay attention to sights and sounds 8. Seems to look through or past people 9. Resists looking you in the eye 10. Too grabby; impulsive 11. Moods and wants are too hard to figure out 12. Seems to be in own world 13. Tunes out, loses contact with what is going on 14. Overexcited in crowded places 15. Wanders around without purpose 41 YES First 5 Yolo Early Childhood Mental Health Needs Assessment Appendix D: Parent Survey 1. How old is your child today? 2. Where did you live during your child’s first five years? 3. Please tell us what prompted you to try to get assessment or services for your child (open-ended). 4. At what aged did you first notice behavior issues or problems? 5. When you first tried to get services for your child, was he/she 5 years old or younger? 6. Have you received all the services you have tried to get for your child? 7. Please tell us about any problems you’ve experienced in trying to get services (openended). 8. In what context(s) have you received services for your child? a. b. c. d. e. f. In-home visitation assistance in daycare setting therapists office nonprofit agency setting government agency setting in another setting (please specify) 9. How did you locate services (open-ended)? 10. Please tell us how satisfied or dissatisfied you’ve been with the services you’ve received. What has helped you most? What’s missing? (open-ended) 11. Please tell us what you think are the most pressing needs in Yolo County related to support for children’s social/emotional development (open-ended). 12. Is there anything else you’d like to tell us (open-ended)? 42 First 5 Yolo Early Childhood Mental Health Needs Assessment Appendix E: Mental Health Provider and Physician Survey 1. What ages do you work with? a. b. c. d. e. f. g. h. birth to 2 years old 3 to 5 years old 6 to 12 years old teens transition aged youth young adults adults parents and children together 2. Please estimate how many children 0-5 you see each month. 3. Please tell us where your patients live. (please check all that apply) a. b. c. d. e. f. g. h. i. j. 4. Capay Valley Davis Dunnigan Esparto Sacramento Vacaville West Sacramento Winters Woodland Other How can clients access your services? (please check all that apply) a. b. c. d. e. f. g. h. i. j. k. l. I am able to accept Medi-Cal I am able to accept EPSDT I am able to accept Kaiser I am able to accept Magellan (Western Health Advantage) I am able to accept HealthNet I am able to accept United Behavioral Health I am able to accept Blue Cross/Blue Shield I am able to accept AETNA I accept private-pay clients My employer pays me to provide services Grant funds cover the cost of my services I am able to accept other HMOs, carve-outs, public insurance, and/or employer provided benefits (list below) 5. Please list specific mental health related trainings you’ve received that have helped you in your work with children aged 0-5. 6. Do you provide direct mental health services to children aged 0-5? 7. How many times per month would you estimate that you refer a child aged 0-5 for 43 First 5 Yolo Early Childhood Mental Health Needs Assessment mental health services? 1-3 4-6 7-9 10-15 16-20 21-30 31 or more 8. Please provide us with the names of people to whom you refer children 0-5 for mental health services. 9. Do we have your permission to include you as a mental health services provider in an upcoming First 5 Yolo Mental Health Practitioners Resource Directory? 10. What information about you would you like included in the First 5 Yolo Mental Health Practitioners Resource Directory? 11. Which issues do you feel are in need of attention in regard to mental health services for young children (0-5 years old) in Yolo County. Please rank as follows: 1) there is a huge need for this; 2) there is a significant need for this; 3) there is some need for this; 4) there is no real need for this; 5) I don’t know enough to rank this. a. b. c. d. e. f. g. h. i. j. More support for parents to promote positive mental health development in infants and young children. More attention to prevention. More attention to identification of children who need help. Earlier intervention than what now exists. Increase in or changes to existing trauma, addition-related, domestic violence, and abuse related services. Better referral networks and/or collaboration among schools, doctors, mental health agencies and mental health providers. More training for doctors to help them identify and refer children who need help. More training for educators to help them identify and refer children who need help. More mental health practitioners available to meet the need. More up-to-date models for mental health services to infants and very young children. 12. Please tell us more about what you see in regard to greatest need (open-ended). 13. Please tell us about any barriers families may face in getting mental health services for children aged 0-5 in Yolo County (open-ended). 14. What do excellent mental health care services for young children look like? Please describe some of what you regard as the most important components/features (open- 44 First 5 Yolo Early Childhood Mental Health Needs Assessment ended). 15. 45 Are there any promising practices for early childhood mental health services that you’d like to tell us about? First 5 Yolo Early Childhood Mental Health Needs Assessment Appendix F: Community-Based Mental Health Organization Key Informant Interview 1. How many children aged 0-5/families did you serve last year? • Among these children, how many were initially the primary client? • What percentage of your total clientele does this represent? 2. How do you adjust your services or process to address the needs of families of different ethnicities? What are the issues, solutions? 3. What are the primary presenting issues/needs/diagnoses that you see for children 0-5? 4. What services do you provide for children 0-5 and their families (be specific)? 5. How are children and families referred to you? From whom? Could you provide us with any data on referral sources? 6. What barriers do families face in obtaining mental health services for children 0-5? 7. How are services paid for? What issues are involved with each funding stream? • • • • • Medi-Cal? Other public agency funding? Private insurance? Foundation grants? Other – fee for service, sliding scale? 8. Do you integrate your services with other service providers? In what ways? 9. What data do you have on outcomes for children 0-5? Could you share this data with us? 10. What gaps in services for children 0-5 in Yolo County do you see that are not currently being addressed? Are there services/assets that are underutilized? (Why?) 11. Are there any services for young children that you would like to provide but don’t? 12. What promising practices do you currently use? Are there others that you would like to implement? 13. Anything you’d like to add? Any materials or practices you’d like to share? 46