Cornwall Mental Health Project Newsletter Summer 09
Transcription
Cornwall Mental Health Project Newsletter Summer 09
Mental Health Project Newsletter Summer 2009 Mental Health Project Newsletter Summer 2009 2 Inside this issue: Contents Project Update 3 CPA Care Programme Approach changes 4 Black Minority Ethnic Panel—members needed 7 Community mental health services feedback 8 Independent Visitor Feedback 12 Cornwall LINk 16 Cornwall Respect Festival (also inside back cover) 18 Council Tax Exemption 20 Self Help Group listings 24 OCD self help group start up 29 Celebrating Rethink Service Users 32 WECAN Keep Active Goes Outdoors 34 Rod Harvey speaks 36 Women’s Health Group 39 Mental Health and Debt 40 Reviving The Senses event 43 The Childish BPD Adult 44 Rethink WRAP course 46 Contact Information 48 Editor: Nicki Sweeney, Sub-Editor: Caroline Walsh, Designer: Laurens van der Eyken Mental Health Project Newsletter Summer 2009 Project Update "Here comes the sun, do-do-do-do, here comes the sun… " and here come a number of new things that are running over the next few months to distract you from the crowded beaches and heavy traffic: On 16 May we are hosting Cornwall Asperger's Association's planning event at the Royal Cornwall Showground – feedback from this in the next newsletter! On 18 June we are holding a initial meeting for anyone interested in joining an OCD self-help group. Meeting will take place at our offices in Princes Street from 10.30. See p.28 In the meantime we are commencing our Community Independent Visiting Scheme pilot. It began in St Austell's Alexandra House on 30 April, at Redruth's Trengweath on 7 May and Bolitho House in Penzance on 12 May. Each session is half a day and runs fortnightly. See p.11 Further events held by other organizations are a Mini Health Summit on 19th June at the Royal Cornwall Showground aimed at improving understanding around mental health and debt and the recession see p.27 and Cornwall Respect Festival in Truro on 29th August celebrating the multi-cultural aspects of life in Cornwall see p.18 Plus! Regular features: Independent Visitor feedback p.12 Community mental health services feedback p.8 See our expanding web pages at www.cornwallrcc.co.uk/ mental_health for information on what we offer and to download information documents and grant application forms. We hope you have a fantastic summer – look out for the Autumn edition of our newsletter in September! Best wishes Jenny, Nicki, Lesley & Caroline 3 Mental Health Project Newsletter Summer 2009 4 There are Changes Being Made to the CPA Care Programme Approach The Department of Health has issued new guidance about the Care Programme Approach. Here’s what you need to know What is the Care Programme Approach CPA? The Care Programme Approach is the process by which your care and treatment is delivered to you and should consist of the following elements: • A Comprehensive Assessment of your Health and Social Care needs A Care Plan developed with you detailing your Care and Treatment • • • A copy of your Care Plan should be given to you A named Care Co-ordinator will be designated to oversee your Care and Treatment – your care coordinator will be a qualified mental health worker: ie a Community Psychaiatric Nurse (CPN), a socail worker, an occupational therapist (OT) or a psychologist. Your care plan will be reviewed regularly with you and others involved in your care including friends or family if you want this. • Also anybody who cares for you must have an assessment of their caring needs and a Care Plan to address these needs. How will the New CPA work in practice? Everyone must receive an initial assessment when they come into contact with the *Secondary Mental Health Service which will ascertain their need for treatment, care and support. From that initial assessment it will be decided whether they need (New) CPA or not. Those who do qualify for New CPA Those who qualify for New CPA will be those who are or would be placed on the current ‘Enhanced’ level of CPA this means that their case is categorised as: • • High need High risk Mental Health Project Newsletter Summer 2009 • • Complex issues such as Housing, Finances, Employment, Family Vulnerability issues. Clear criteria for New CPA has been published as part of the Department of Health Guidance. Those who do not qualify for New CPA Those who do not qualify for New CPA will be those who have contact with only one agency, have straightforward needs and who’s risk is low. Those on non-CPA or standard care will still have: • • • • • • • A Lead Professional identified Self directed care with support A full assessment involving assessment of risk A statement of care agreed with them Regular reviews of their care Carers will be identified Central records still maintained There are strict standards set by the Department of Health about what should happen both those on New CPA and those not on CPA. Those already receiving Mental Health Services under Standard CPA will not have this tier removed without a clear process of handover and alternative support being put in place for both Service Users and their Carers. No Service User will have any changes made to the way their Care and treatment is delivered through CPA without a review in which they will be included. For further information: Speak to your care cordinator or lead professional or call Sarah Gabert, Care Programme Approach Lead for Cornwall Partnership NHS Trust, on 01208 256268 or look at the Department of Health Website http://www.dh.gov.uk – “Refocusing the Care Programme Approach” 5 Mental Health Project Newsletter Summer 2009 Changes to Home Treatment Service provided by Cornwall Partnership NHS Trust (CPT) From Monday 23rd February, the Central Home Treatment Team will cease operation as the service is reconfigured. From 23rd Feb Home Treatment will be provided by West and East teams. To contact the teams please use the following numbers: Restormel, Caradon & N. Cornwall please call the East Home Treatment Team on: 0845 230 3901 Carrick, Kerrier and Penwith please call the West Home Treatment Team on : 0845 230 3902 Telephone number change! Actually our telephone numbers changed last February (2008) when we moved premises although people have still been able to get through on the old numbers for the last year due to some clever bits of technology. However, it's costing us a lot of money to keep the old numbers operating so we are having to stop using them. From 22nd Feb if you ring the old numbers you will just hear an automated message giving you the new number – you will be charged for this call but you won't be put through to us and you will then have to dial again! So, to ensure you get through to us first time, please make a note of the correct numbers: Thanks Caroline/ Jenny 01872 243532 Nicki (West) 01872 243542 Lesley (East) 01872 243557 6 Mental Health Project Newsletter Summer 2009 7 Mental Health Project Newsletter Summer 2009 Issues raised by service users in the community about mental health services Many people across the county have contacted us to say they feel they have been discharged from Community Mental Health Team services before they felt they were ready. People report feeling ‘dumped’. Someone said they attend Oakleigh House from time to time which helps them to stay well – without a CPN they can no longer go to Oakleigh and said they have already hit crisis point; people feel that you have to be very acutely unwell to have a CPN and feel that there’s no support if you’re not deemed acute – they feel that there should still be some sort of support available to people (they feel that day centres are great but don’t provide the clinical support they need). A big bone of contention for people was about being able to re-access CMHT support once discharged (episodic care). People said that much of the fear around being discharged was knowing that they periodically become unwell again and that it’s extremely difficult to access the service during these periods. Re-referrals can take months by which time people have become so unwell that some say they’ve needed inpatient care. They feel that if support was more easily accessible, it would prevent their mental health deteriorating further so that HTT or hospital are required. People said they would rather have short-term episodic care that helps them to maintain reasonable health, than the peaks and troughs that occur because of the difficulty in accessing CMHTs. Some people said that they believe some service users hold back their recovery (whether consciously or unconsciously) because they’re afraid of being discharged too soon. There is a lack of trust from some service users in CPNs, as they fear discharge will take 8 Mental Health Project Newsletter Summer 2009 place whether they feel ready or not. With regards to Oakleigh, people felt that it was a bit of a Catch-22 situation with regards to accessing it: to go to Oakleigh you need a CPN; you can only have a CPN if you’re very unwell; Oakleigh won’t take people considered to be in crisis. They feel that the changing criteria for CPN support will inevitably mean that Oakleigh will eventually run out of clients as those eligible because they have CPN will be too unwell to be eligible for Oakleigh! They felt that Oakleigh was an extremely valuable resource for maintaining one’s mental health and so remaining in the ‘moderate’ category – but felt this then excludes people from having a CPN. The response from the Community Care Services Forum (The CCSF is attended by Cornwall Partnership Trust (CPT) community services team leaders and managers, including those who manage the Home Treatment Team. Also in attendance are Mental Health Advocates and, of course, Service User Representatives. This forum is chaired by a Service User Consultant.) The response from CPT staff has been very sympathetic. It was recognized that it can be very difficult for people to access CMHT services again once discharged and work is going on as we speak to improve access so that people can 'dip in and out' more easily, which should help people to remain well. A leaflet about 'episodic care' is to be published shortly. It was also acknowledged that CMHT services have changed over the years and that this can be confusing and anxietyprovoking for those who have been using services for some time. So some of the issues people have are about the expectations they have of services which are not matched by what services can provide. A discussion 9 Mental Health Project Newsletter Summer 2009 10 services can offer so that people are clear as to what help and support they can expect. One person pointed out that being discharged by a CPN does not necessarily mean discharge from other CPT mental health workers, like Occupational Therapists or Support Time and Recovery Workers. Some service users at day centres felt that it would be beneficial to those who no longer have a CPN if occasionally CPNs held a surgery session at a day centre, e.g. one morning a week. The response from the Community Care Services Forum This idea is being considered, as something similar is happening informally in Launceston. All day centres from 1st June will be managed by their relevant CMHT, rather than under a centrally-based manager, and so under this new management structure closer links with the CMHTs might be more possible. Service users are still expressing concern about the Out of Hours service, with service users reporting having to wait up to 4 hours for a call back. The response from the Community Care Services Forum When this happens service users should be encouraged to contact the relevant team manager either directly or via a representative so the matter can be investigated. The office is manned all night. It was suggested that Nightlink or the Samaritans might be a suitable alternative source of support but it was pointed out that service users often prefer to talk to someone who has clinical experience and qualifications. It was explained that the Primary Care Trust has adopted this issue as a work stream for this year and is Mental Health Project Newsletter Summer 2009 11 convening a work group to look at current issues and concerns. Also, the Local Involvement Network - LINk - is also looking at this issue and will report back. Community Independent Visiting Scheme – coming to a Community Mental Health Team base near you? East – Alexandra House, St Austell starting Thursday 30 April 10.00 am – 12.30 pm then fortnightly West – Trengweath, Redruth starting Thurs 7 May 1.30 – 4.30 pm then fortnightly Bolitho House, Penzance starting Tuesday 12 May 1.30 – 4.30 pm then fortnightly Mental Health Project Newsletter Summer 2009 12 Independent Visitor Feedback Bodmin Hospital Harvest Ward • Dimmer switches have now been fitted to the outside of bedrooms in order to minimise the disturbance to patients when checks are being carried out at night. • The cash prize for ‘Team of the Year’ has been spent on buying decorative potted plants and a new table tennis table for the ward. • Two ward staff have qualified in aromatherapy and are now able to provide aromatherapy sessions at weekends. • Music group is now running well and there are a variety of instruments available to play including guitars, tambourines and small drums. Sessions tend to be on an ad hoc basis which works well for the ward. • A new staff photochart, which also has information about ward procedures, has been put on wall in a prominent position. • Ward is applying for AIMS accreditation and Mental Health Project staff and IVS volunteer have been invited to be involved. • Ward is purchasing an electric barbecue. • Perspex around OT room has now been replaced. Garner Ward • Ward enjoyed a home-cooked lunch and Easter cakes, which patients helped to decorate, on Easter Monday. • Cooking sessions, with patient involvement, are still continuing and are very popular. Mental Health Project Newsletter Summer 2009 13 • Garner is also going for AIMS accreditation with the involvement of the IVS volunteer. Fletcher Ward • Ward is looking very restful with comfortable furnishings and good colour schemes. This has been much appreciated by patients who enjoy the pleasant environment. • Male and female areas have been provided and these are accessible with swipe cards. • ‘PAT’ dog Henri, continues to be a popular volunteer visitor and is frequently spoilt by everyone. Fettle House • The buildings extension and the re-decoration and furnishings have greatly improved the environment and the new art room is now in full use. • Internet access is soon to be made available for residents. • There are plans for a women’s group to be stated soon. Bowman Ward • Art produced by residents of the ward have been involved in outside art exhibitions. • Gardening project is popular and new seasons plants are being tended by residents. • One resident is involved in a work scheme at the Eden Project. Mental Health Project Newsletter Summer 2009 14 Independent Visitor Feedback cntd. Longreach Hospital Bay Unit • Welcome packs – as these were felt to be a bit too big and unwieldy by many service users, Longreach staff have put together a new basic information leaflet, in conjunction with service users and independent Visitors, that outlines just the essential information someone might need to know when they first enter hospital. This is in its final stages and should be rolled out shortly. • Computers – they have finally arrived on Bay unit and will live in the pods at the end of each ward. They have yet to be properly installed and running (!) but Longreach are just waiting for CPT's IT department to sort this out. It's expected that they will be usable very shortly. • A 'Productive Ward' scheme is being piloted at Bay. This is a study of a typical staff working day, looking at how much time is being spent on activities that are not directly patient interaction. It is hoped that more efficient ways of working can be identified to free up more time for nursing. • The decorating is still continuing on the ward. There was positive feedback from service users, reporting the decoration makes the ward look more homely, especially in the communal areas and bathrooms. • Named Nurse – their have been fewer instances reported of people not knowing who their named nurse is. It seems that the signs on people's bedroom doors seem to be helping with this issue, although they are not always updated. Independent visitors are monitoring this issue. Mental Health Project Newsletter Summer 2009 15 • Evening/weekend activities – service users are requesting more availability of activities for evenings and weekends. They have increased over recent months and Independent Visitors and Longreach staff are working towards identifying what people would like to do and what can be arranged. Haven Unit is available at weekends and have arranged for art materials to be brought up on to the ward during these periods. A service user had put a poster on the quiet lounge door to set times of when the art materials and use of the room could be used to focus on art work. These set times were similar to Haven week day opening and closing times. Service users commented that by focusing on a particular activity in this room, it made good use of the space; especially because at present the group room on the ward is no longer in use for service users. • Service users reported that they had a good time the weekend of 1st March due to the ward party, which involved pancakes, toasted sandwiches and karaoke, hosted by general service assistants and assisted by nursing staff. Service users felt these types of activities and social events were important to bring people together. Independent Visitors will continue to work with staff to improve access to activities. • Service users have been asking for access to alternative therapies, particularly in the evenings as a means of helping them to sleep better. Independent Visitors have raised this with staff and, although some therapies are offered by Haven during the day, they are looking at whether it would be possible to introduce these in the evenings. Mental Health Project Newsletter Summer 2009 16 Make health and social care work for you. Be a part of LINK [Local Involvement Network] in Cornwall. What is LINk in Cornwall? LINk in Cornwall is an independent group made up of individuals, communities and organisations in Cornwall. LINk has a statutory right to be listened to by the local authority and health services. The job of LINk is to give people in Cornwall the opportunity to influence local health and social care services. By listening to what you think is and isn’t working well for services in Cornwall, LINk is able to build up a picture of what needs to be said to the people who plan and run services about how they can change them for the better. Why should I get involved? As LINk, we want to reach out as widely and as broadly as we can to people and communities in Cornwall. We would like to encourage and support readers of the ‘Cornwall Mental Health Projects Newsletter’ to tell us their views and experiences of health and social care services. Your contribution and involvement is very important. As we build up a picture about what people are saying needs to improve in health and social care services, we need to ensure that this picture includes perspectives from people in Cornwall who have experience of mental health problems. How can I get involved? You can take part in LINk in a way that suits you – by: • Telling LINk your views and experiences. • Coming along to LINk meetings and joining in with LINk activity. • • Keeping informed about our activities. Helping individuals and communities to become part of LINk by telling them about LINk or taking part in LINk on their behalf. On Thursday 2nd July 2009, we are holding our next event for people to come and learn about LINk activities and to help LINk decide what it can be doing to influence health and social care in Cornwall. Our last event was held in Lostwithiel so we are hoping Mental Health Project Newsletter Summer 2009 17 to hold this event in West Cornwall. Let us know if you would like to come along. What activities is LINk working on that I might like to take part in? Here are a few examples of what we are talking about to the people who plan and run services and how you might get involved. Out of hours provision: We are running a group looking at where someone goes if they need support with mental health problems outside of normal working hours. From the contributions made to LINk by people and groups in Cornwall, there is a feeling that this area of service provision is under resourced. The focus of our group is to feed into the Suicide Prevention and Health Promotion (including Crisis Support) Commissioning Plan as a way to influence the provision of out of hours mental health services. If you have anything that you would like to say in relation to this or would like to take part in this group please contact us. Dentistry: We are running a group looking at the provision of dentistry and its availability on the NHS. Is the situation improving? LINk has been invited to take part in a visiting scheme being run by the Primary Care Trust. Our role will be to support visits to NHS dental practices in Cornwall and look at the quality of service in relation to accessibility, cleanliness and friendliness. If you are interested in taking part in this group please contact us. We are also looking at what services are provided by the hospitals in Cornwall, how access to these services reflects the rural geography of Cornwall and how decisions are made to remove services from Cornwall. How do I contact LINk in Cornwall? Here is the information you need if you would like to take part in LINk or to learn more about what we are doing. Address: LINk in Cornwall, C/o Cornwall Rural Community Council, 2 Princes Street, Truro, TR1 2ES, Telephone: 01872 243533 Email: [email protected] Mental Health Project Newsletter Summer 2009 18 Cornwall Respect Festival One Cornwall, One Love The Cornwall Respect Festival is a one day festival to celebrate the multi-cultural aspects of life here in Cornwall. Cornwall Respect wishes to acknowledge the many different cultures in our area. We are committed to using the arts to celebrate diversity, and as a way of raising awareness of, and challenging prejudice. We believe that this annual festival will facilitate ongoing opportunities for community engagement. This year’s festival will be held in Truro on the 29th of August. It will start at 10am in Victoria Park, followed by a carnival procession through the streets to Lemon Quay where there will be entertainment, followed by a ticketed event that closes at 1am. There will be music, stalls, theatre, information, face & henna painting, artwork, and much more at Victoria Park. This part of the event will be alcohol free, and family focused. It is hoped that there will be an international market held in Lemon Quay, along with bands, D J’s, dance, and pleasant surprises. This will be followed by a ticketed event featuring several bands, international food, and a licensed bar. Many of us who are a part of, or work with the many diverse communities here in Cornwall, often witness the emotional distress and consequences of racism, prejudice, and discrimination. This can at times overshadow the vibrant, exciting, and rewarding experiences that come from living in a multi-cultural society. Mental Health Project Newsletter Summer 2009 19 We hope that the annual Cornwall Respect Festival will provide all of us from the youngest to the eldest with an opportunity to celebrate, talk, laugh, dance, and generally have fun together. Cornwall respect believes that throughout the process and organisation of this festival it is vital to engage with young people. As well as offering a chance to showcase local talent, we hope to offer young people a chance to shadow the organisers, media, bands, and so on. We will also be working with schools. We hope to offer workshops in theatre, costume & musical instrument making, and dance. It is of the highest importance to us that the festival is an inclusive event. We would welcome any ideas, and input that you may care to offer. Whether as an individual, community, organisation, institution, agency, school or college, trader, business, club, society, all are welcome. So say no to racism, bigotry, and segregation; And yes to love, understanding, and acceptance by celebrating with us. For further details, or expressions of interest in: Participating, performing, donating, supporting, volunteering, stall- holding, trading, or becoming a friend of Cornwall Respect festival. Please contact: Dean Harvey 07515580002 [email protected] Or visit our website www.cornwallrespect.org.uk/wp/ See inside back cover Mental Health Project Newsletter Summer 2009 20 Council Tax Exemption – The Crucial Application Steps Article reprinted, with slight modification, from Pendulum magazine, with kind permission of MDF the Bi-Polar Organisation (www.mdf.org.uk or telephone 08456 340 540) You can receive thousands of pounds by applying for Council Tax (CT) exemption, if you’re on certain benefits, but you need to follow these crucial steps to be successful. All UK councils operate the CT exemption scheme through the 1992 Local Government Act. This provides that severely mentally impaired people are ‘disregarded’ – not counted – for CT purposes. The Act says ‘a person will be considered to be severely mentally impaired if s/he has a severe impairment of intelligence and social functioning which appears to be permanent’ (Pendulum’s emphasis). This may be caused ‘through mental illness’. If living alone you will receive 100% CT exemption; if living with someone else who is similarly entitled and you both apply, you’ll each receive 50% exemption. If you live with others, you’ll receive 25% reduction. You will be automatically exempted in future and can apply for back refunds. As a lone householder, the writer of this article receives over £1,000 exemption a year and has received over £6,000 in back refunds! And if you pay tax, it’s worth 22% more as it’s equivalent to tax free income. Don’t be put off by the ‘heavy’ definition or by hopes of working again longer term. Exemption will provide Mental Health Project Newsletter Summer 2009 21 significant funds to help you self manage or ‘recover’. The word ‘appears’ in the definition gives you a way out, which your Doctor and Council will be delighted to support. Be assured your driving licence won’t be affected – this follows a separate approval procedure. How to Apply Step 1: Eligibility – if your Council Tax is not fully paid by Council Tax Benefit, it’s likely to be worth you claiming exemption if you receive one of the qualifying benefits. These include: Incapacity Benefit Attendance Allowance Disability Living Allowance (at the middle or care rate) Disability Working Allowance. A full list is available from your Council or Citizens’ Advice Bureau (CAB). Helpfully, other income and savings are ignored, unlike Council Tax benefit applications. Step 2: Phone your Council’s Council Tax Office and ask them to send you a form for Council Tax Exemption for ‘severe mental impairment’ – a very short, simple form. (It’s quickest to get through to this busy office if you phone soon after they open.) The form will tell you what proofs your Council needs. Do not complete the form before you have secured your Doctor’s support. Mental Health Project Newsletter Summer 2009 22 You can do Steps 3 and 4 at the same time: Step 3: The Crucial Step is securing your Doctor’s support – you need a Doctor’s certificate that you meet the definition. The Council’s form will either ask you to supply this, or once you return the form, the Council will write to your Doctor for it. If your Doctor replies to the Council that you don’t meet the definition, you will have an uphill battle to reverse this and secure CT exemption, so make sure you have your Doctor’s support before you apply. Make an appointment to see the Doctor you have the best relationship and most contact with, (usually your GP). Explain you are applying for CT exemption due to severe mental impairment and are seeking their support, including for back refunds. If your diagnosis is Bi-Polar disorder, you can explain that the MDF Bi-Polar Organisation’s national office is aware of many people with Bi-polar who have received this exemption – some Doctors believe exemption only applies to people with schizophrenia. Ensure your Doctor agrees to sign the certificate before you proceed – or your application will fail. If necessary explain how you would use the funds to help your self management. Step 4: You will also need written confirmation you receive the qualifying benefit(s). CT exemption is backdated to when you apply. Crucially too, as you will want to apply for back refunds, phone the department for Work and Pensions (DWP) and ask them to send you quickly, a letter confirming the qualifying benefit(s) you receive and when these started. The Council’s form will ask for a copy of your bank statement, DWP order book or DWP letter, as proof of your current benefit receipt. Mental Health Project Newsletter Summer 2009 23 Step 5: Complete the Council’s short, simple form. This will probably ask for your Doctor’s name and contact details and your property and CT Reference Numbers – these are both on your CT bill or the Council can tell you them. Step 6: Apply for back refunds – write a letter to the Council, preferably typed, to return with your form – saying you would like to apply for CT refunds back to when your benefits started, because you were unaware of the scheme and no health or benefits staff made you aware. Some Councils destroy CT records after 6-7 years so you may only be able to get refunds until then. Step 7: Make a copy of your application form, letter and all this supporting evidence. Post this whole application ‘pack’ to your Council, ‘Recorded Delivery’, so that you can phone your post office in a few days to check it’s been safely delivered. Keep your ‘copy pack’ in a safe place. You may have to wait some 6-8 weeks, despite chasing calls to the Council, for a response, due to the CT office’s workload. However, with the Doctor’s certificate and benefit proofs, exemption seems automatic. Look forward to receiving a substantial cheque and automatic exemption in future years. Make sure other people and health professionals in your area know about this scheme. If you need further advice about CT options, consult your local Citizens’ Advice Bureau. It’s uncertain how the new ‘Welfare to Work’ procedures will affect people receiving just Incapacity Benefit. However, receiving CT exemption is likely to give you increased ammunition to fend off any pressure to seek work . Mental Health Project Newsletter Summer 2009 24 Local Self-Help Support Groups Breakaway Support for people who want to reduce or come off Benzodiazepines Thursdays, twice a month, 2-4 pm 2 Princes Street, Truro Camel Club Social group Tuesdays & Fridays 10.00-1.30 pm Delabole Church, Delabole Cornwall Survivors Group Mutual support for male survivors of rape or sexual abuse, Tuesdays, 7.00 pm, St Austell Creative Words Creative writing group Monday mornings, 10.30am—12.30 pm, Falmouth Health Centre, Trevaylor Road Please call Victoria on 01326 319030 to reserve a place Where telephone numbers are not given, call Cornwall Mental Health Project for details on 01872 243532 Hearing Voices Network West Cornwall Tuesdays, 1.30-3.30 pm Healing Star, Causewayhead, Penzance Mid Cornwall Thursdays, 4-5 pm Newquay Mind, 40c East St, Newquay East Cornwall Wednesdays, 2-3.30 pm Bodmin (please call 07807 813996 for details) Manic Depression/Bipolar Groups West Cornwall Every 3rd Weds of the month, 2-4 pm Healing Star, Causewayhead, Penzance Penryn/Falmouth Every 2nd Monday of the month, 1.30-3 pm Jubilee Wharf (upstairs meeting room above café), Penryn (call 08456 340 540 for details) Mental Health Project Newsletter Summer 2009 Manic Depression/ Bipolar Groups Mid Cornwall Once a month, Mondays (please phone for dates) Newquay Centre, 17a St Michael’s Rd, Newquay East Cornwall Every 4th Tues of the month, 10-12 pm Liskerrett Centre, Varley Lane, Liskeard Mind Social Groups— Carrick Truro Coffee Corner Tuesdays, 10 am –12 pm Baptist Church, Chapel Hill, Truro Falmouth Coffee Corner Thursdays, 10.30am-12.30 pm W.I. Rooms, Webber Street, Falmouth Supper Clubs Meet once a month in Wetherspoons in Truro & Falmouth. Please call Carrick Mind for details on 01872 222469 Mind Social Groups— Penwith/ Kerrier Camborne Mondays, 1.30-3.30 pm, Camborne Parish Church Hall, Church Street (opposite Aldis) Helston Tuesdays, 10 am -12pm, St Mary’s Roman Catholic Church Hall, Clodgey Lane (near Tescos roundabout) Penzance Wednesdays, 10am—12pm St Mary’s Church, Chapel Street People can attend a group once for a taster session. After this, a referral is required from a GP, mental health worker, housing support or other support organisations. For info on any of the Mind groups, please call 01209 714 550 Perranporth Coffee Corner Social group Wednesdays 10.30– 1.00 pm Upstairs in the Conservative Club, St Piran’s Road, perraporth Call Brenda 01872 572453 or Betty on 572546 25 Mental Health Project Newsletter Summer 2009 Pink Umbrella LGB Group Gay, lesbian and bi-sexual support Every 3rd Friday of the month, 1-3 pm, 2 Princes Street, Truro Redruth Friendship Club Social Club Wednesdays 12.00-3.00 pm Redruth YMCA, Station Rd, Redruth Rural Community Link Project (RCLP) Welcome groups—all run 10am—12.30 pm Monday—St Blazey Tuesday—Indian Queens Wednesday—St Dennis Friday—Penwithick & Lostwithiel SOBS Suicide bereavement support group Meets monthly in Carrick Call 07948 586264 for further info St Agnes Self Help Group Social Support Group Mondays 10.00-1.00 pm Coffee lounge, At Agnes Methodist Church, British Rd, St Agnes Time Out Social Support Group Thursdays 4-6 pm Liskerrett Centre, Varley Lane, Liskeard Men’s group One Sunday a month for Restormel residents For info on any of the RCLP groups, please call 01726 821858 If you would like your self help group listed here, call Nicki on 01872 243542 26 Mental Health Project Newsletter Summer 2009 27 Mental Health Project Newsletter Summer 2009 28 Obsessive Compulsive Disorder (OCD) Self Help Group to Start Up in Cornwall A number of adults who suffer with OCD have approached Cornwall Rural Community Council's (CRCC) Mental Health Project staff for support in setting up a self help, peer support group for fellow sufferers. It is hoped that the group would offer people an opportunity to come together to share their experiences with others who also have OCD for mutual support in a safe and supportive space. It is not intended as a therapy group but just a non-judgmental place for discussion and information sharing. One sufferer commented, "It’s so important that people like me have a chance to talk to other people with OCD about how it feels, what helps and what doesn't and to know that there are other people out there who have the same problems. You can feel so isolated living with OCD. My worse experiences were when I was pregnant because I just felt so vulnerable. Talking to other people who know what it's like to live with OCD has been a huge help and I want others to have the same support. " An initial gathering for anyone who has OCD and might be interested in attending an OCD self help group is being held at CRCC's offices at 2 Princes Street, Truro on Thursday 18 June from 10.30 – 12.30. For more information, please contact Nicki on 01872 243542. Mental Health Project Newsletter Summer 2009 29 What is OCD? Obsessive-compulsive disorder (OCD) is a characterized by intrusive mental disorder thoughts, or obsessions resulting in compulsive behaviors and mental acts that the person feels driven to perform, according to rules that must be applied rigidly, aimed at reducing anxiety stemming from the intrusive thoughts. Compulsions may include touching or checking things repeatedly until the anxiety diminishes. In severe cases, OCD affects a person's ability to function in everyday activities. Such a person may take several hours a day to carry out the compulsive acts. Also, the psychological selfawareness of the irrationality of the disorder can be painful. OCD is the fourth most common mental disorder … the phrase "obsessive-compulsive" has become part of the English lexicon, and is often used in an informal or caricatured manner to describe someone who is meticulous, perfectionistic, absorbed in a cause, or otherwise fixated on something or someone. Although these signs are often present in OCD, a person who exhibits them does not necessarily have OCD, and may instead have obsessive-compulsive personality disorder (OCPD)or some other condition." (www.wikipedia.org/wiki/OCD). There are a number of national support groups, like OCD-UK and OCD Action but nothing specifically for sufferers in Cornwall so far. Mental Health Project Newsletter Summer 2009 30 The Fellowship of the Unashamed I am a part of the fellowship of the Unashamed. I have the Holy Spirit Power. The die has been cast. I have stepped over the line. The decision has been made. I am a disciple of Jesus Christ. I won't look back, let up, slow down, back away, or be still. My past is redeemed, my present makes sense, and my future is secure. I am finished and done with low living, sight walking, small planning, smooth knees, colorless dreams, tame visions, mundane talking, chintzy giving, and dwarfed goals. I no longer need preeminence, prosperity, position, promotions, plaudits, or popularity. I don't have to be right, first, tops, recognized, praised, regarded, or rewarded. I now live by presence, learn by faith, love by patience, lift by prayer, and labor by power. My pace is set, my gait is fast, my goal is Heaven, my road is narrow, my way is rough, my companions few, my Guide is reliable, my mission is clear. I cannot be bought, compromised, deterred, lured away, turned back, diluted, or delayed. I will not flinch in the face of sacrifice, hesitate in the presence of adversity, negotiate at the table of the enemy, ponder at the pool of popularity, or meander in the maze of mediocrity. I won't give up, back up, let up, or shut up until I've preached up, prayed up, paid up, stored up, and stayed up for the cause of Christ. I am a disciple of Jesus Christ. I must go until He returns, give until I drop, preach until all know, and work until He comes. And when He comes to get His own, He will have no problem recognizing me. My colors will be clear for "I am not ashamed of the Gospel, because it is the power of God for the salvation of everyone who believes.." (Romans 1:16) By Dr. Bob Moorehead Sent to us by Babs Mental Health Project Newsletter Summer 2009 31 Inspirational Booklet Available Now. An inspirational booklet entitled ‘Well - being’ has been launched by Cornwall Partnership NHS Trust. The booklet celebrates the Whole Life principles, which have been adopted by Cornwall Partnership NHS Trust and the positive impact this can have on the individual. Each of the individuals who contributed to the booklet hopes the publication will provide hope and inspiration to others. Copies of the free booklet will be available from the Trust’s premises, GP surgeries, libraries, job centres and other key locations. Alternatively you can request a copy by emailing [email protected] or telephoning 01208 251366. 23 stories are shared in the well-being booklet. It is the third in a series published by the Trust. The first booklet highlighted people's recovery whilst the second looked at how people had used employment and education to improve their well-being. Many Thanks Tim Carthew Mental Health Project Newsletter Summer 2009 32 Celebrating Rethink Service Users On 28th and 29th July, ARC will be showcasing clients’ art work at an exhibition inspired by the Camel Trail. It all started when a group of people who have mental health problems came together to be part of a social inclusive group in the Wadebridge area. They discovered when meeting that they all enjoyed walking and photography. It then evolved into a nature group walking the Camel Trail, and this then lead to documenting the wildlife through photos. The group now feel, that as part of Rethink, they would like to be involved with the Time To Change campaign that is a programme to end the discrimination faced by people with mental health problems, and improve the nation's wellbeing. The Nature Exhibition Celebrating Time To Change, would like to bring in all the aspects of their group and the discriminations that they have experienced and that can happen in the community, whilst also working in partnership with other people within the area on the Camel trail. The exhibition will give people an opportunity to find out more about Wadebridge both new and old, in and around the Camel trail, plus people can find out more about the views, new and old, on mental health issues. Discrimination prevents 9 out of 10 people with mental health problems doing everyday things like going to the pub, going out to the shops or having a normal relationship with friends and family. Mental Health Project Newsletter Summer 2009 33 The group would like to convey to others that it is often hard to tell people about mental health problems because of the fear of peoples’ reactions and how they may be treated in their communities. Service Users will be getting involved with planning the event, as well as supporting the exhibition whilst it is open to the public. Clients will be running stalls and selling their wares to exhibition-goers, and there will also be activities placed around the building for children. We will be working with organisations, neighbours and clients to celebrate Rethink’s national campaign ‘Time to Change’ as well as the town of Wadebridge and the River Camel, new and old. If you would like any more information, please contact Rethink Cornwall Services on 01208 815676 CHANGING MINDS Do you have Bipolar/ Manic Depression? Do you live near to Camborne? We have been contacted by someone who wants to set up a Bipolar/ Manic Depression self help group in Camborne. If you are interested in attending a Bipolar group in Camborne, please contact Nicki on 01872 254542 or email: [email protected] Mental Health Project Newsletter Summer 2009 WECAN Keep Active Goes Outdoors! Summer is approaching, and the WECAN Keep Active project is offering people with mental health problems the opportunity to join sports clubs across West Cornwall that meet weekly in the great outdoors. The first eight sessions with a range of clubs will be offered free, including Surfing in Hayle, Sailing in St Ives, Gig rowing in Porthleven, Athletics in Pool, Tennis in Penzance and Redruth, and cycling and walking. The first four sessions will be supported by a volunteer mentor to help people join in and build their confidence. The booking line has now opened and will close on Friday 29th May. The free sessions start in early June and will run until the end of July. The project is open to anyone living in Penwith and Kerrier who experiences difficulties with their mental health, whether they are registered with a mental health team, seeing their GP, or dealing with the problem on their own. To book a place for a service user, call 01209-313419 (by 29th May) or visit: www.wchlc.uk/wecankeepactive.cfm 34 Mental Health Project Newsletter Summer 2009 CARRICK AND WEST CORNWALL MIND BEFRIENDING SCHEMES SEEKING FEMALE OR MALE VOLUNTEERS! Can you spare 2 hours a week to make all the difference to someone who is feeling isolated, anxious or depressed? Our volunteers receive: FREE Training • Scheme Induction Ongoing Support • Travel Expenses For more information call or write to us today! Tel: 01209 714550 or 01872 222469 website. www.westcornwallmind.com Charity Registration Nos. 1119629 1027838 35 Mental Health Project Newsletter Summer 2009 36 My name is Rod Harvey. In 1990, after 23 years service and in the rank of Commander, I was invalided out of the Royal Navy, suffering from severe stress. I was displaying the classic symptoms of severe depression. I considered myself to be worthless and that I had achieved nothing in my life. I was also convinced that I had sold military secrets to the Russians. I was soon to obtain a job as a yacht club secretary and for two years all went well. However under the pressures of helping organise a single-handed transatlantic yacht race, I began to display the classic symptoms of mania. I had no need for sleep; I began to drink heavily and was also reckless in my behaviour. I became exceedingly generous, was full of ideas and began to suffer delusions of grandeur. My illness was not understood by my employers and I found myself sacked for gross misconduct. My wife was soon to divorce me too on the grounds of my unreasonable behaviour. After several admissions to hospital, and on occasions Sectioned, by late 1993 I was admitted again, this time believing I was the Archangel Gabriel. By 14 February 1994, I was suffering such mental torture where time stood still that I contrived to abscond in order to escape this unbearable mental agony. I walked to a dual carriageway and waited for a lorry to come along and walked in front of it. As a result I was to spend 3 months flat on my back in hospital and 2 months in a rehabilitation unit learning to walk again. In 1996 I met my second wife Sally who has been extremely supportive of my condition and moved to Cornwall where she lived. Since then I have had the occasional admission. During a long period of wellness, I decided that I would like to join the Cornwall Mental Health Forums and become an independent visitor to two of the psychiatric wards at Bodmin Hospital. Once a month the other visitors and I would meet in Truro and discuss issues which patients had raised with us. I would then attend a Cornwall Partnership Trust meeting at which some of the most serious concerns would be raised with the professionals. As a visitor I felt that as I had been a patient myself I was Mental Health Project Newsletter Summer 2009 37 able to show empathy towards patients and try to convince them, that despite their believing otherwise, they would get better too. One of the most rewarding areas I have been involved in is helping to interview candidates for positions within the Cornwall Partnership Trust including the current Chief Executive! On one occasion I helped interview a staff nurse who was seeking promotion and he and I had last met when I had been on his ward as a patient. I believe this to be a very healthy state of affairs. After over 5 years as a visitor I have to admit I was beginning to flag as issues would resurface time and time again. However there have been some advances, the most beneficial from my point of view being the introduction of complementary therapies, the Tidal model (where patients are guaranteed daily one to one time during which goals are set for the day and progress reviewed) and Cognitive Behavioural Therapy. The final straw, I have to say was having to submit to a Criminal Record Bureau check at the enhanced level! I am now looking forward to involvement in the creation of a Post Traumatic Stress Disorder (PTSD) group in Bodmin for ex-servicemen and women which is being funded by the Cornwall Partnership Trust. A group has already been established in Penzance. Commonly symptoms include insomnia, recurring nightmares, persistent high anxiety levels, severe mood swings, hyper alertness, flashbacks (sights, sounds and smells), violent and aggressive outbursts, lack of concentration, as well as sexual dysfunction and depression. On top of this the veteran may well suffer from alcohol or drug abuse related problems often caused through an attempt to self-medicate their symptoms away. Of course such problems so often lead to the break up of relationships and ultimately homelessness and prison. Private Johnson Beharry, the VC holder has said that whilst help is available for serving personnel this is not the case for veterans. Provision of treatment by the NHS seems woefully inadequate. Indeed Combat Stress, the only charity which provides support for PTSD sufferers states that it takes on Mental Health Project Newsletter Summer 2009 38 average over 12 years for veterans to come to their attention and their resources are sorely stretched I also enjoy giving talks to staff about manic depression as part of their training. I also give occasional talks to third year medical students in the clinical Skills department at Treliske hospital. This I find very useful as I feel doctors often have insufficient knowledge of mental illness despite the fact that 1 in 4 of us will suffer from some form of mental illness in our lives. Mental illness is one of the last taboos and ignorance is responsible for making it so. Until people feel that they can speak more openly about mental illness it will remain so. Stephen Fry had the courage to come forward in a documentary “The Secret Life of the Manic Depressive” which really helped in reducing stigma and I have to say that I was very proud in having been able to take part as one of the less well known sufferers. There were no autographs but it did lead to many a useful discussion in pubs where people for the first time admitted that there were members of their family, if not themselves, who suffered from mental illness. In summary I would say that involving myself in voluntary activities has done much to restore my self-esteem and self-worth. Because the work is voluntary there is always the opportunity to opt out of activities which might lead to undue stress and a recurrence of the illness. Moderation in all things would seem to be the key to keeping well, plenty of sleep (which I do benefit from) and plenty of walking (I always used to find this particularly therapeutic until my accident). I have also decided that the euphoria associated with mania has, at my age, become too much of a liability as I am unable to face the inevitable severe depression which follows. I therefore take my prescribed medication in the hope that it will stabilise my mood swings. Any enquiries/referrals can be addressed to: Debra Fenton, Community Veterans Therapist, Trevillis House, Lodge Hill, Liskeard, Cornwall. PL14 4NE. Tel: 01579 335 226 Fax: 01579 335 245 Email: [email protected] Mental Health Project Newsletter Summer 2009 Please Tell Me Please tell me what to do when in the low hours of the night. I remember years before I would sing a lullaby to a beautiful little boy. "I see the moon, the moon sees me Down through the leaves of the old oak tree. Please let the light that shines on me, Shine on the one I love…" Please tell me what to do when, as it is now, the full moon shines brightly down and I sit and cry and sing a lullaby and grieve for my beautiful golden-haired boy. Jean Haywood 39 Mental Health Project Newsletter Summer 2009 40 Mental Health and Debt I’ve come across some recent research about the links between debt and mental health. I thought this could be of interest to your readers. I’ve briefly summarised the research, and if anyone wants to dig into it more deeply I’ve given the references for the research papers which are mainly articles in the psychiatric journals. The research shows that there is a 2 way interaction between mental health and debt - mental health both as cause of debt, and as a consequence of debt. The research didn’t try to explain whether debt causes mental health problems, or whether mental health problems can lead to debt, but it shows statistically that the two things are closely linked. I found some of the research difficult to understand and interpret, but it shows that it is debt, rather than low income alone, which is the linking factor with mental ill-health. The research gathered and analysed good quality data about a large number of people’s mental health and their financial circumstances. They looked at the circumstances of people with a whole range of mental health issues – psychotic illnesses, depression, phobias, anxiety conditions and, drug or alcohol dependence. Having worked as a researcher some years ago (but not in mental health) I think the research was properly carried out and so the conclusions it reached are likely to be valid. The research found that there was a much higher rate of debt among people with mental health issues when compared to other people in the population. A quarter of people with mental health issues had problem debts. Very importantly much of this debt was priority ( rent, mortgage, council tax etc) debt which can which can have serious consequences for people if it is not dealt with. In an average CPN caseload of 35 people they found that there were likely to be 10 people with serious debt problems. Personally I was a bit surprised that this was not higher. What really interested me were the practical implications. The researchers then found that issues of debt, and the relationship of this to mental health, were not understood well enough by mental health professionals. Two of the research Mental Health Project Newsletter Summer 2009 41 papers looked at the need for changes in the way psychiatrists and mental health nurses work, so as to make debt an issue that is properly recognised and dealt with. These 2 research papers say that the mental health assessment processes need to identify whether there are debt problems, and that mental health professionals should play their part in helping people deal with debt. They say that mental health nurses should play a bigger role in supporting people in dealing with their debts. Finally, one of the researchers has produced a really good and comprehensive practice guide -“FINAL DEMAND – what service users want health workers to know AND DO”. The booklet was produced with the involvement of mental health service users and has been made available to mental health professionals. As it says “The booklet doesn’t expect health workers to become debt experts, but describes the big differences that health workers can make by knowing and doing small things” Interested ? I’ve got copies of all the research papers (listed below in the references). Contact me by email and I’ll send them on to you or ring me on 07858 489 254. You can also obtain copies of the FINAL DEMAND booklet and research papers through Cornwall Mental Health Project by calling 01872 243542. Tony Faragher , Development worker, SECCURE Credit Union, Liskeard. [email protected] References (1) Jenkins R, Bhugra D et al.(2008) Debt, income and mental disorder in the general population. Psychological Medicine, Cambridge University Press (2) Fitch C, Chaplin R, Trend C, and Collard S. (2007) Debt and mental health; the role of psychiatrists . Advances in Psychiatric Treatment pp 194-202 (3) Fitch C, Simpson A, et al (2007) Mental Health and Debt ; challenges for knowledge , practice and identity . Journal of Psychiatric and Mental Health Nursing, 14, pp 128-133 (4) Final Demand - Debt and Mental Health, First Step Trust / Research and Training Unit, Royal college of Psychiatrists. www.mhdebt.info Mental Health Project Newsletter Summer 2009 42 Mental Health Project Newsletter Summer 2009 43 Reviving the Senses Monday 15th June 2009 – 10am to 4pm at the Zed Shed, Jubilee Wharf, Penryn A networking event to explore how a balanced connection to our senses can benefit our health and wellbeing. We will be focusing on our perceptions of work and health care environments and how to relate these to creative practise. The day will include talks, creative activities, a buffet style lunch and an 'open forum' session where you will have the opportunity to share information about your own projects and seek information from others. Places are limited so please book early to avoid disappointment. Self funded and small organisations £20, employer funded £30. Booking forms should be returned by Friday 5th June. Please email [email protected] or call 01326 377772 to request a form. www.artsforhealthcornwall.org.uk Mental Health Project Newsletter Summer 2009 44 The Childish BPD Adult Written by Kathi Stringer Talk to me as an adult and I will pretend to be exactly that. I pretend to be an adult to win as any child will do. When I pretend to be an adult, I am not in touch with my feelings or my core sense of self. It is like putting on a costume that is not mine but I can play the role. Because like a child, it is only play. It amazes me sometimes how well I can play the roles and fool others. If you try to reach me as an adult, you will have only air in your hands, a façade, a pretend element of what I am not. But if you can see, truly see beyond the adult toy masque, and see the child who operates all the adult mechanisms, then you see that which can be reached. If you talk to the pretend adult, then you will get pretend answers and behaviour. But if you talk to the child, that which is I, then I can respond. This is my secret and for a long time even I didn’t know this secret. It’s hard to be a child in a grown up world. It’s a feeling of being lost. It’s sad sometimes because when I see other children they don’t look lost. They have parents, structure and guidelines. This helped them grow and form into an adult. They went through the maze and arrived at the other end. It was a maze I have never had the opportunity to enter. What is structure? I remember at 6 being on the other side of town in the blackness of the night. No one cared where I was. What are parents? I can’t ever remember being loved, rocked, cuddled or held. I have no memory traces of this. What are guidelines? I had none and made them up as I went along in life. I’m afraid my guidelines are not very stable since I didn’t have a measuring stick that was constant in my life. Is it any wonder that I am still a lost child that is pretending to be an adult? Mental Health Project Newsletter Summer 2009 45 Engulfment of the Void This is an example of how the child was reached. When Peggy and Dr. Witkowski highly recommended that I take medications but the choice was mine, I felt lost without structure. They were talking to what they thought was the adult part of me and since that part doesn’t exist, I was not responding. It was too much of an adult choice and since I hated being anything like an adult I would not take part in that function, which involved making a choice. But when Dr. Witkowski talked to the child, and made the choice for the child – take the medication – the message went through all the ault doors and reached me. It’s hard to explain the warmth and security when I am truly recognized for who I really am. For a moment I felt like I existed, that I was protected and had value. For a moment the abyss inside of me was gone. I felt contained and within some sort of nurturing structure. To those who grew up with parenting, this must seem like a puzzle to them because they yearned for the day they could break free from this binding parental structure. Yet, to never have it left me with undefined boundaries and a sense of being scattered and a loss of identity (Engulfment of the Void). So while making a choice represents freedom for some, for me it represents painful neglect of a child that had too many choices because nobody cared. This article is published in the book: "Psych 101 What you didn't learn in nursing school." by Kathi Stringer Paperback: 320 pages Mental Health Project Newsletter Summer 2009 46 Wellness Recovery and Action Planning Planning for the future Rethink will be running a six week WRAP planning course at Rethink ARC, Wadebridge • Come together to build friendships • Share ways in which we cope with mental distress • Build a plan on how we prepare for the bad times • How we can celebrate the good times Starting Thursday 14th May 2009 for 6 weeks 1pm – 3pm Rethink ARC, Wadebridge To find out more about this informal six week course, please call Natalie at Rethink ARC on 01208 815676 or 07918 727034 Mental Health Project Newsletter Summer 2009 47 Mental Health Project Newsletter Summer 2009 Useful Telephone Numbers General office Tel: 01872 243532 Nicki Sweeney, Project Co-ordinator (West) Tel: 01872 243542 Lesley Ayers, Project Co-ordinator (North & East) Tel: 01872 243557 E: [email protected] * Nightlink: 0808 8000 306 (daily 5-midnight) Samaritans: 01872 277277 Welfare Rights/Benefits advice: 0800 882200 NHS Direct: 0845 4647 Shelter: 01209 314844 Legal Helpline: 0845 650 3122 Cornwall Rape & Sexual Abuse Centre: 01872 262100 SEAP Mental Health Advocacy 0845 2799019 DIAL 01736 759500 Community Mental Health Teams (CMHTs) East Cornwall: 01579 335226 North Cornwall: 01208 251408 Restormel: 01726 291212 Carrick: 01872 356000 Kerrier: 01209 881888 Penwith: 01736 575524 Out Of Hours (Bodmin Hospital switchboard) :01208 25130 Cornwall Rural Community Council (registered as Cornwall Community Development Ltd.) Charity no: 1087550, Company no: 4144745, VAT no: 557448996 Main office: 2 Princes Street, Truro, Cornwall, TR1 2ES Telephone: 01872 273952 Fax: 01872 241511 48