Information for people affected by cancer who are planning to travel
Transcription
Information for people affected by cancer who are planning to travel
Information for people affected by cancer who are planning to travel Contents 1 Contents About this booklet 2 How cancer can affect travel 5 Healthcare 17 Planning your trip 29 While you’re away 59 Further information 67 2 Travel and cancer About this booklet This booklet aims to help if you, or someone close to you, has cancer and would like to travel. It also covers issues that may affect you if you’ve had cancer treatment in the past. There are many different reasons why you might want to travel. You may want to go away to relax, see new places, meet friends or family, or perhaps to work. Travelling can be a positive and fulfilling experience. But when you have cancer, there are a few more things you will have to think about when planning a trip. It’s important that you (and any health professionals looking after you) think about any possible health problems and check thoroughly whether you are fit to travel. With careful planning, you’ll be able to look forward to and enjoy your trip. In this booklet, we’ve included comments from people affected by cancer, which you might find useful. Some names have been changed. Some are from the Macmillan online community (visit macmillan.org.uk/community) and the website healthtalkonline.org Others are from a video we have on our website about travel and cancer. You can watch it at macmillan.org.uk/travel About this booklet 3 This booklet is divided into four sections: •• how cancer can affect travel •• healthcare – in the UK and abroad •• planning your trip •• information for while you’re away. It aims to help you avoid or overcome any problems, so you can enjoy your travels and have a stress-free break. At the end of this booklet there are some useful addresses and websites (see pages 72–83). There’s also a page to fill in with any notes or questions (see page 84). If you’d like to discuss this information, call the Macmillan Support Line free on 0808 808 00 00, Monday–Friday, 9am–8pm. If you’re hard of hearing you can use textphone 0808 808 0121, or Text Relay. For non-English speakers, interpreters are available. Alternatively, visit macmillan.org.uk If you find this booklet helpful, you could pass it on to your family and friends. They may also want information to help them support you. ‘When they tell you you have cancer, your mind goes off because you are trying to put all of your affairs in order. I thought, wow, I want to get out there and see places I haven’t been to. I want to travel.’ Alan HOW CAncER CaN AFFeCT trAVEL Cancer treatment 6 Travelling during treatment 8 Cancer and air travel 9 Medical conditions 10 6 Travel and cancer Cancer is not a single disease with a single cause and a single type of treatment. If you, or someone close to you, has only recently been diagnosed with cancer, you may still be learning more about the condition. Cancer and its treatments can have physical effects that may limit your ability to travel. For example: •• Lung cancer can cause a cough or breathlessness. •• A cancer that’s spread into the lymph glands may cause parts of the body to swell up. This happens because the flow of lymph fluid is blocked (this is known as lymphoedema). •• Cancer in a bone may make the bone weak. It can increase the chance of the bone breaking (a fracture). It’s important to speak to your doctor before you make any plans to travel. They can tell you whether your cancer or its treatment could make travelling unsafe. They will tell you how you need to prepare if you do travel. We can send you information about your type of cancer. Call our cancer support specialists on 0808 808 00 00. Cancer treatment Common treatments for cancer include surgery, radiotherapy, chemotherapy, biological therapy and hormonal therapy. The aim of treatment will either be to cure a cancer, to prevent cancer coming back, or to control its symptoms for as long as possible and to improve quality of life. How cancer can affect travel 7 Cancer treatments may cause short-term physical problems, such as sickness or diarrhoea. Some treatments can make your skin more sensitive to the sun. Occasionally, treatments can cause long-term physical problems, such as lymphoedema. Some treatments, such as chemotherapy and radiotherapy, can make you very tired (fatigued) both during and after treatment. Tiredness may limit the travelling you can do or the amount of activity you can manage while you’re away. You may find our booklet Coping with fatigue useful. It has helpful tips on how to plan activities and save energy. How surgery can affect travel Some types of surgery for cancer may cause permanent changes to the body. For example: •• Treatment for colon cancer can include removing part of the bowel and creating an ileostomy or colostomy. This won’t stop you from travelling, but you will have to think carefully about your trip. Most hospitals have specially trained nurses, called stoma care nurses, who can help you after your treatment. They can give you advice about travel insurance (see pages 37–41) and travel certificates (see page 52), supplies and any dietary issues you may have while you’re away. See pages 50–52 for more information on travelling when you have a stoma. 8 Travel and cancer •• Breast cancer treatment may involve removing a breast (mastectomy). You should still be able to travel, but we can help you find organisations that supply bras, swimsuits and holiday clothes for women who’ve had a mastectomy. Contact our cancer support specialists on 0808 808 00 00 or use our online organisation search at macmillan.org.uk/ organisationsearch If you’ve had any type of surgery or have any physical condition that could affect your ability to travel, there are many organisations that can help and support you. See pages 72–77 for some of these. Travelling during treatment You may be able to have a holiday while you’re still in the middle of treatment – for example, between courses of chemotherapy treatment. In this situation, it’s very important to discuss your treatment with your cancer specialist beforehand. They can help you plan the best time for your holiday to make sure it doesn’t interrupt your treatment. You can talk through any possible problems and how you may be able to deal with them. We can send you more information about cancer treatments and their side effects. You may only want to travel within the UK during your treatment and for some time after treatment, because it may be difficult to get insurance for a holiday abroad. See pages 37–41 for more information on getting travel insurance. How cancer can affect travel 9 ‘I had two week-long holidays in between chemo sessions, but only in the UK. My oncologist was quite happy for me to do this, but made sure I had details of the nearest A&E hospital and a local GP, and to continue taking my temperature and being vigilant with avoiding infections.’ Jacqui Cancer and air travel Some people with cancer may, under particular circumstances, be advised not to travel by air. This is because oxygen levels and air pressure change at high altitudes. You may be advised not to fly if you: •• are breathless •• are anaemic (have a low number of red blood cells) •• are at risk of developing increased pressure or swelling in the brain (cerebral oedema) due to a brain tumour •• have recently had surgery to your chest •• have recently had brain surgery •• have problems with your ears or sinuses – pressure changes may make your symptoms worse 10 Travel and cancer •• have recently had surgery or a medical procedure. This is because flying can introduce gas into the body that may expand to cause pain and stretch your wound. Speak to your cancer specialist about how long you should avoid air travel for after surgery. See pages 30–33 for more information about air travel. Medical conditions Low immunity If leukaemia, lymphoma or recent cancer treatment have given you a weak immune system, you may need to take a supply of antibiotics with you. Your GP can give you a prescription but they may want to speak to your cancer specialist before they do this. Blood clots Travelling, especially flying, can increase the risk of developing a blood clot. Some people with cancer have a higher risk of developing a blood clot (deep vein thrombosis or DVT). There are a number of possible reasons for this. People with cancer often have slightly higher numbers of cells in their blood that help it clot (platelets). People with cancer may also have slightly higher amounts of clotting factors. Clotting factors are proteins that are produced naturally in the body and work with the platelets to form blood clots and prevent bleeding. How cancer can affect travel 11 The risk of developing a blood clot is higher in people with particular types of cancer. Some types of lung, stomach or bowel cancers produce a substance called mucin, which can raise the risk of clots. People with acute myeloid leukaemia (AML) or pancreatic, ovarian or womb cancers have a slightly raised risk too. Some cancer treatments can increase the risk of blood clots. This includes some types of hormonal therapy, such as tamoxifen for breast cancer and stilboestrol for prostate cancer. It also includes some types of biological therapy, including thalidomide or lenalidomide for multiple myeloma. If you’re worried you may be at risk of developing a blood clot when you travel, talk to your cancer specialist. They can advise you on whether you need to have treatment to help prevent blood clots. Tips to prevent blood clots •• Ask your cancer specialist whether you should wear special compression socks when travelling. •• Wear loose-fitting, comfortable clothing. •• Drink plenty of water during flights. Don’t drink too many caffeinated or alcoholic drinks, as they can make you dehydrated. •• On any type of journey, it’s helpful to walk around or do regular leg exercises. How cancer can affect travel 13 Lymphoedema People with lymphoedema (swelling of a part of the body) may find that travelling on long flights (more than around four hours) temporarily makes it worse. This is due to low cabin pressure, poorer air quality and keeping still for long periods during the journey. The tips on the following pages may help prevent any problems. You can get a leaflet with more detailed information about travel and lymphoedema from the Lymphoedema Support Network (see page 74). We have a booklet called Understanding lymphoedema, which we can send you. You can also get more information about lymphoedema from the Macmillan Lymphoedema Academy at macmillanlymphoedema-academy.org.uk Tips for before you travel •• Don’t have vaccinations in a limb that’s affected with lymphoedema. If you have had surgery or radiotherapy to your armpit, it may be best to avoid vaccinations in that arm even if you have no signs of lymphoedema. •• Talk to your doctor about taking antibiotics with you in case you get an infection. •• Wear a compression sleeve if the flight is over four hours, even if you haven’t worn one before. 14 Travel and cancer Tips for during your journey •• If you have to or plan to wear a compression sleeve or stocking, have it checked to make sure it fits properly. Wear it throughout your journey and for a few hours after landing. •• If you have lymphoedema in a leg, wear well-fitting, supportive shoes. Don’t take them off during the journey as this can increase swelling. •• Wear loose clothing that doesn’t restrict the affected limb. •• Don’t wear tight belts. •• Gently exercise the limb and move around as much as possible while you’re travelling. Ask for an aisle seat so you can exercise the arm more easily. •• If you do lymphatic drainage massage, try to do this frequently during the journey. •• Drink plenty of water to prevent dehydration. •• If your luggage is heavy, use a luggage trolley or ask a porter for help. This will avoid strain on your body, including your back and affected arm. How cancer can affect travel 15 Tips for once you have arrived •• Avoid strenuous exercise that you’re not used to. Gentle, repetitive exercise of the affected limb (such as swimming or cycling) can be helpful. •• Avoid sunburn. Don’t forget you can still burn through compression garments, particularly synthetic ones. Your lymphoedema nurse or specialist can advise you which garments offer the most sun protection. •• If you have lymphoedema of the leg, never go barefoot. Always wear some sort of footwear – even in the sea. •• Protect against insect bites during the day and at night by using insect repellent spray or cream that contains a high level of DEET (diethyl-m-toluamide). •• Keep your skin clean and check it reguarly for any sign of infection. •• Treat any cuts, scratches and bites quickly with an antiseptic such as Savlon® or TCP®. ‘If I was travelling somewhere abroad away from major cities or resorts in a country whose language I did not speak, I would take with me a brief summary of my condition and current treatment in the language of that country, just in case of emergency.’ Janet HE ALTHCaRe Healthcare in the UK 18 Healthcare abroad 19 Going abroad for treatment funded by the 25 NHS or Health and Social Care Board 18 Travel and cancer Healthcare in the UK If you’re a UK citizen and you need treatment while travelling in the UK, you can be treated free of charge by the nearest NHS or Health Service hospital. It can help to have a letter from your cancer specialist with you. The letter should describe your condition, including details of any medicines you’re taking and information on how to deal with any potential medical problems. It may be helpful to wear a medical alert badge or pendant with emergency contact numbers attached, especially if you’re travelling on your own. You can get these from some high street jewellers and chemists. They may also be available at your GP surgery. If you’re taking prescription medicines and run out of supplies while on holiday in the UK, you may be able to get emergency supplies of non-chemotherapy drugs without a prescription. A community or supermarket pharmacy may be able to help, but will charge for this service. If you run out of chemotherapy drugs, you will need to contact the place where you were prescribed the drugs for advice. If pharmacies can’t help you and you live in England, you may be able to go to an NHS walk-in centre. They may be able to organise a consultation with a GP. You could also contact a GP practice directly. •• To find where your nearest NHS services are in England, you can use the online ‘service search’ at nhs.uk/ servicedirectories/Pages/ServiceSearch.aspx •• To find local health services in Scotland, visit nhs24.com/ findlocal Healthcare 19 •• For information about local health services in Wales, visit nhsdirect.wales.nhs.uk/localservices/searchlocalservices •• To find where your nearest health and social care providers are in Northern Ireland, visit servicefinder.hscni.net Healthcare abroad Travelling in the European Economic Area (EEA) or Switzerland The European Health Insurance Card (EHIC) entitles UK residents to free or reduced-cost emergency treatment when temporarily visiting the European Union (EU) and certain other European countries (see pages 21–22 for a list of the countries where the EHIC is valid). The EHIC has replaced the E111 form, which can no longer be used. The EHIC: •• allows you to be treated in the same way as a resident of the country you’re visiting – this may not be the same as the care you’d expect to get from the NHS or Health Service •• can be used if you need to have ongoing treatment while you’re abroad, such as regular injections •• covers treatments that are needed during your trip for chronic or pre-existing conditions. The EHIC should allow you to receive emergency medical treatment and, in some cases, the types of ongoing treatment mentioned above. The EHIC can’t be used instead of travel insurance. It will not cover any private medical costs, travelling to a country for health treatment, medical evacuation or help getting back to the UK. 20 Travel and cancer You should also buy travel insurance (see pages 37–41 for more information on getting travel insurance). Some countries expect you to pay your bill when you’re treated and then claim a refund with your EHIC. You should try to apply for a refund before you return to the UK. Each person travelling needs to carry an EHIC, including children. To get cards for children, you should list them as dependents when you apply for your own card. Each country’s healthcare system is different, so your EHIC may not cover everything that would be free on the NHS or Health Service. Applying for an EHIC The EHIC is free and renewals are also free. You should avoid any websites that charge to apply for or renew an EHIC for you. You can apply for the EHIC if you are legally living in, and settled in, the UK. If you usually live in the UK but are not a national of the UK, another EEA country or Switzerland, you will need to apply by post. You will need to include proof that you are ordinarily resident in the UK (see nhs.uk/nhsengland/ healthcareabroad/ehic for more information). You can apply for an EHIC: •• online at nhs.uk/ehic •• by post, using an application form you’ve downloaded from the website •• by phoning 0845 606 2030. Healthcare 21 For each person who needs a card, you will need to give their: •• name •• date of birth •• national insurance or NHS number (England and Wales), CHI number (Scotland) or Health and Care Number (Northern Ireland). Your card will normally arrive within seven days. When it arrives, store it somewhere safe and secure. Keep it with your passport while you’re travelling. The EHIC is valid in the following countries: •• Austria •• France •• Belgium •• Germany •• Bulgaria •• Greece •• Croatia •• Hungary •• Cyprus •• Iceland •• Czech Republic •• Ireland •• Denmark •• Italy •• Estonia •• Latvia •• Finland •• Liechtenstein 22 Travel and cancer •• Lithuania •• Romania •• Luxembourg •• Slovakia •• Malta •• Slovenia •• The Netherlands •• Spain •• Norway •• Sweden •• Poland •• Switzerland. •• Portugal Your EHIC is only valid for five years before it needs to be renewed. It’s a good idea to make sure yours hasn’t expired before you travel. More information about the EHIC and health advice for travellers can be found on the NHS Choices website at nhs.uk/healthcareabroad or on the NI Direct website if you live in Northern Ireland at nidirect.gov.uk/travel-healthand-the-european-health-insurance-card-ehic Countries with mutual healthcare agreements with the UK Some countries outside the EU have mutual healthcare agreements with the UK. These countries will provide free or reduced-cost emergency medical treatment to people from the UK. You’ll be treated in the same way as a resident of that country. This may differ from what you’d expect from the NHS or Health Service. Because the agreements do not cover every situation, you will still need to get travel insurance. For more information visit nhs.uk/healthcareabroad Healthcare 23 The following countries have mutual healthcare agreements with the UK: •• Anguilla •• Kyrgyzstan •• Armenia •• Macedonia •• Australia •• Moldova •• Azerbaijan •• Montserrat •• Barbados •• New Zealand •• Belarus •• Russia •• Bosnia and Herzegovina •• St Helena •• British Virgin Islands •• Serbia and Montenegro •• Falkland Islands •• Tajikistan •• Georgia •• Turkmenistan •• Gibraltar •• Turks and Caicos Islands •• Isle of Man •• Ukraine •• Jersey (not Guernsey) •• Uzbekistan. •• Kazakhstan To claim free or reduced-cost treatment in these countries you‘ll need to prove you are a UK resident. Usually this involves showing a UK passport (see nhs.uk/healthcareabroad for more information). 24 Travel and cancer Countries with no healthcare agreements with the UK In countries that aren’t covered by the EHIC and where there is no mutual agreement with the UK (including Guernsey, the USA, South America, Africa, most of Asia and Turkey), you’ll have to pay the full cost of any healthcare. Taking out comprehensive travel insurance is particularly important if you’re travelling to these countries. The high commission, consulate or embassy of the country you’re visiting should be able to give you information on the healthcare services available. The Foreign and Commonwealth Office website at fco.gov.uk has details of where you can find these and British embassies when you’re abroad. Getting a refund on your treatment You may need to pay for treatment while you’re abroad and then claim this money back. The process for getting a refund will vary depending on your situation. You’re likely to need the original invoices and documents from your treatment to make a claim. If you’re covered by travel insurance (see pages 37–41), your insurance provider will guide you through this process. If you have planned treatment abroad in advance (see pages 25–27), you may need to get reimbursement from your local health commissioner when you return to the UK. If you have an EHIC and are travelling in a country where it’s valid, you should try to claim any refunds before you return home. There’s information about how to do this in different countries at nhs.uk/healthcareabroad This website also has information about reclaiming costs in all countries that have mutual health agreements with the UK. To make a claim on your EHIC once you return to the UK, contact the Overseas Healthcare Team on 0191 218 1999. Healthcare 25 Repatriation The EHIC and some travel insurance policies won’t pay to transport you back home in an emergency (repatriation). A company called Swiss Assist offers a service where it will fly you home in an ambulance jet, if required, for a fortnightly, monthly or annual membership fee. They cover Europe and some other countries. More information can be found on the website at swissassist.ch Going abroad for treatment funded by the NHS or Health and Social Care Board If you’re thinking about going abroad to have medical treatment funded by the NHS or Health and Social Care Board, you’ll need to discuss your plans with your doctor first. Your doctor will refer you to your local health commissioner, who will discuss the options available to you. In England, this will be your local clinical commissioning group (CCG) or NHS England. In Wales, this will be your local health board or Health Commission Wales. In Scotland, it will be your NHS Board. And in Northern Ireland, it will be your Health and Social Service Board. If you’re going to a European Economic Area country or to Switzerland, you can apply for NHS funding in one of two ways. You can either apply by using an S2 form or under Article 56 of the Treaty on the Functioning of the European Union. There are important differences between the two ways of applying. Your health commissioner will advise you about which is the most suitable for you. If you’re paying for treatment privately, you won’t need to apply for funding. 26 Travel and cancer S2 form The S2 form entitles you to the same state-funded care as a person living in the country you’re visiting. You may need to contribute towards the cost. You may get this money back while you’re abroad, or you may get it back when you return to the UK. The S2 is only available in cases where there’s a need for specific treatment. You can’t get one just in case you might need it. The S2 does not cover private treatment. To get an S2, you need to apply to your local health commissioner. They will need to be sure that: •• an NHS or Health Service consultant has recommended that you are treated abroad •• the treatment is available under the other country’s state health scheme •• the costs of sending you abroad are justified •• you are entitled to NHS or Health Service care. If the health commissioner agrees to fund your treatment, they will give you an S2. It can take a few weeks, sometimes months, until this happens. If your local health commissioner refuses to support your application for an S2, you can appeal. If you choose to appeal, you should seek legal advice first. Healthcare 27 Article 56 Article 56 allows you to apply to get money back for the cost of planned treatment that you’ve already had in a European country. The treatment must be available through the NHS or Health and Social Care Board. The amount you will receive back will only be up to as much as the treatment would have cost on the NHS or Health Service. Unlike the S2, Article 56 claims can be used to get money back for state or private sector treatment. However, you need to pay for the treatment first and claim the cost back after the treatment is finished. Your local health commissioner will need to help you apply. There’s no guarantee that the local health commissioner will refund your treatment. PLANnING YOUR TRIp Travel and transport services 30 Travelling by air 30 Travelling by sea 33 Travelling by car 33 Travel insurance 37 Vaccinations 41 Taking medicines abroad 45 If you have a stoma 50 Bowel or bladder problems 53 Checklist – things to consider before your travel 56 30 Travel and cancer Travel and transport services Most travel companies (including airlines, ferry companies and coach tour operators) have a medical officer. This person can help you decide whether or not it’s safe and practical for you to travel. The medical officer can be contacted before you leave and can help you plan your journey. They can also be contacted during the trip. You can get information from your travel company about: •• arranging early boarding •• preparing special foods (if you have specific dietary needs) •• booking a wheelchair. Travelling by air Help at the airport Disabled facilities vary between different airports and airlines. Find out from your airport or airline if they have the facilities you need, such as a toilet with disabled access. If you have problems with your mobility, you have certain rights when using transport at European airports. These include: •• help at arrival points, such as at terminal entrances, transport interchanges and in car parks •• help getting to the check-in desk •• help with registration at the check-in desk •• help with moving through the airport, including to toilets if needed. Planning your trip 31 You can travel with up to two items of mobility equipment free of charge. This won’t count as part of your baggage allowance. You need to tell your airline at least 48 hours before your flight if you will have specific needs during travel. Airport security Security searches are carried out on all passengers and baggage before they’re allowed to board the aircraft. This includes searches of disabled people and mobility aids. Some people, including people who have an external breast prosthesis or stoma, may be concerned about how body searches and scanners will affect their privacy and dignity when travelling. If you have an external prosthesis or a stoma, you may want to tell the security staff as you enter the security area of the airport. This may mean you are less likely to be searched than if you hadn’t told them. It may be helpful to carry a letter from your GP or cancer specialist that explains your situation. Your stoma care nurse or your equipment supplier should be able to provide you with a travel certificate that explains your situation in different languages. This is also available from ostomy support groups (see pages 72–75). In some cases, people will be randomly chosen to have a body search. If you are asked to have a body search, you can request a security officer of the same sex to do this. Any body search is carried out in a private, lockable room and you won’t be left alone with just one security officer. A friend or family member may come with you. 32 Travel and cancer Body scanning Full body scanners are used at some airports, including some airports in the UK. Travellers are selected at random to have a body scan with security scanning equipment. You will not be able to fly if you refuse to have a body scan during an airport security check. The purpose of a body scanner is to show whether you have hidden weapons or banned items. But your image will also show if you have a stoma, implant or external prosthesis. Security staff have been trained to handle sensitive issues around surgery and treat passengers respectfully. You should expect that: •• You’ll be picked out at random for a scan or if you’ve activated a metal detector. •• You can ask for a security officer of the same sex to be the one who checks your scan on the screen. •• You’ll have the scan in the security area, with a member of airport staff present. It will take just a few seconds. •• After the scan, only you and a security officer will see a mannequin-style diagram on a small screen. No bodily features or skin will be seen. They won’t be able to identify you from the scanned image and you won’t meet the security officer. •• Your scan will be permanently deleted after it’s been assessed by a security officer. The policy on body scanning may vary at airports in different countries outside of the UK. Planning your trip 33 If you are travelling to a country where you don’t speak the language, you may want to contact the embassy for the country you’re visiting to find out their policy on body scanning. You may also want to carry a card with a brief description of your condition, including information about your prosthesis or stoma if you have one. Travelling by sea Disabled people or people with reduced mobility who need help when in a port or onboard a ship have the right to free help. This includes help when you’re getting on and off the ship. You should tell the carrier, travel agent or tour operator when you book, or at least 48 hours before you travel, if you need this help. Travelling by car The following information applies to car travel in the UK. To find out more about driving and travelling by car abroad, visit gov.uk/driving-abroad Motability Scheme Under this scheme, people who receive the higher rate of the mobility component of Disability Living Allowance, the enhanced rate of the mobility component of Personal Independence Payment, or the War Pensioners’ Mobility Supplement can get help to buy or hire a car, scooter or powered wheelchair. Contact the Motability Scheme to apply (see pages 74–75). Our booklet Help with the cost of cancer has more information about welfare benefits. 34 Travel and cancer Road tax exemption (free tax disc) You may be entitled to a free tax disc if you’re disabled. This is available to people who receive the higher rate of the mobility component of Disability Living Allowance, the enhanced rate of the mobility component of Personal Independence Payment, the War Pensioners Mobility Supplement or Armed Forces Independence Payment. If you receive the standard rate of the mobility component of Personal Independence Payment, you may qualify for a 50% discount on the cost of your tax disc. For more information, call 0300 123 4321, textphone 0300 790 6201 or visit gov.uk/vehicle-exempt-from-car-tax If you live in Northern Ireland, visit nidirect.gov.uk/taxing-yourvehicle-in-the-disabled-tax-class You can also get renewal forms from your local Post Office®. Blue Badge scheme If you have a severe mobility problem and can’t use public transport, you may qualify for a permit under the Blue Badge scheme. This lets you park without a time limit or charge in on-street restricted-parking zones, disabled public parking bays or areas restricted by yellow lines. The permit is free to individuals (but not organisations) in Wales. It generally costs £2 in Northern Ireland, £10 in England and up to £20 in Scotland. The scheme doesn’t cover private car parks, although they may provide their own disabled parking spaces. You don’t have to be the driver to qualify for a Blue Badge. Visit gov.uk/blue-badge-scheme-information-council to search for information about the scheme from your local authority. You can apply through your local council or by visiting gov.uk/apply-blue-badge Planning your trip 35 In Northern Ireland, visit nidirect.gov.uk/the-blue-badgeparking-scheme Tunnels, bridges and toll roads Blue Badge holders and other disabled people pay a reduced rate or no fee at some river crossings, bridges and tunnels. In most cases, you have to apply in advance to get a concession. Toll concessions can change, so check before you travel. Contact your local authority for advice. London congestion charge There’s a charge to travel within the congestion charging zone in central London at certain times. If you have a Blue Badge, you can register so you don’t have to pay the charge. However, you will have to make a one-off payment of £10 for this discount. Seat belts If you can’t wear a seat belt for medical reasons, you can get a medical exemption certificate from your doctor. There are also aids and adaptations available that make it easier for people with disabilities to wear a seat belt. For more information, speak to your doctor. Bus, coach and train fares There are special rates for bus, coach and train travel for older people and some people with disabilities. People of state pension age in England, people aged over 60 in Scotland and Wales, and eligible disabled people, can apply for a bus pass. This gives you reduced price or often free travel on local buses. Contact your local council or authority for details. You may be able to save up to a third on rail fares with a Disabled Person’s Railcard or a Senior Railcard (for people over 60). Check at your local train station for details, or visit nationalrail.co.uk 36 Travel and cancer If you live in Northern Ireland and are over 60 or disabled, you may be entitled to concessionary travel on buses and trains. Ask at your local bus or train station or visit nidirect.gov.uk Transport services The British Red Cross can provide personal transport services across the UK. These services include providing a companion for a journey on public transport or a private car with a driver. A contribution towards costs is usually asked for, but no one will be refused a service because they can’t pay. See page 72 for contact details for the British Red Cross. In Wales, St John Wales can provide transport for people who have difficulty using public transport or their own vehicles. See page 75 for contact details for St John Wales. In Scotland, a ‘Safe Journey Card’ can be downloaded from firstgroup.com/safejourney. This card can be used to let bus drivers know you have mobility problems. In Northern Ireland, anyone receiving the mobility component of Disability Living Allowance can travel at half the usual cost through the Concessionary Fares Scheme organised by Translink (see page 75 for contact details). Costs for extra services may vary from one service provider to another, so it’s best to get several quotations. When you book your trip, it’s important to give clear, detailed information about your health to the travel companies. This way, your condition can be taken into account from an early stage and any necessary adjustments can be made in advance. It’s a good idea to carry a full summary of your medical condition with you. Ideally you should also carry a copy that’s translated into the language of the country you’re travelling to. Planning your trip 37 If you have mobility problems, there are many services available to help you. The Disabled Living Foundation can give you practical advice about equipment for independent living (see page 72 for contact details). Additional costs Travel can be very expensive to arrange if you have mobility problems. Potential costs can include: •• transport to and from the airport or other arrival point •• expenses for a travel companion or helper •• payment for extra seats if a stretcher is needed (or a reclining first class seat if this is cheaper or recommended) •• transporting any equipment that you may need. You may want to contact the travel company in advance so you can plan for any extra costs. Travel insurance Although your doctor may think you’re well enough to travel, you may find it difficult to get travel insurance. This is because some insurance companies think that people with cancer are more likely to need medical treatment abroad. This is not always the case and, ideally, companies should base their decisions on your individual situation. One of the most common problems people affected by cancer have is being charged a higher premium (the amount charged for the insurance policy). Different insurance companies use different factors to decide whether they will give insurance to people with cancer. You may need to phone a few different companies before you find one that will give insurance cover for your particular situation. Planning your trip 39 If you’re affected by cancer, you may wish to get travel insurance from a company that specialises in travel insurance for people with medical problems. Some companies say you must pay a set amount towards the cost of any treatment you need. This is known as an excess. The excess may range from £50 to a few thousand pounds, so it’s worth shopping around. The chances of you getting travel insurance may depend on the type of cancer you have or have had and how it’s likely to affect you in the future. You should be ready to answer questions from the insurance company about your cancer. They may ask about the stage and grade of your cancer, when you were diagnosed and for information about any treatment you’ve received. If you’re unsure about any of this information, your cancer specialist will be able to help you. People who have advanced cancer or are currently having treatment are less likely to get travel insurance. People who’ve had a blood transfusion in the last six months may also have problems getting travel insurance. Companies are often less likely to insure patients for travel to countries where healthcare is expensive, such as the USA and Canada. ‘We opted for a policy that covered everything except the cancer or anything related to it. We had already discussed the holiday with the oncologist and she was ok with the trip and thought the risk was small.’ Debbie 40 Travel and cancer If you become ill, there may be other costs that travel insurance policies may or may not cover. These may include accommodation, living expenses or the cost of bringing people you’ve travelled with back to the UK. Some companies will insist that family and friends who travel with you are insured under the same policy. Our booklet Getting travel insurance when you have been affected by cancer has more information and contains a list of companies that consider offering travel insurance to people with cancer. You can also view this list online at macmillan.org.uk/ travelinsurancecompanies We can’t promise you will be able to get travel insurance from one of the companies we list. People affected by cancer have recommended these companies because they were able to get insurance from them. But where one person has a good experience with a company, another person may have a bad one. We do not endorse insurance companies and brokers or their products, or search for them. We have a travel insurance blog on Macmillan’s online community, which gives updates and tips about getting travel insurance. Visit tinyurl.com/ travelinsuranceblog If you have a stoma People who have an ileostomy or an ileo-anal pouch can get special insurance by contacting IA (The Ileostomy and Internal Pouch Support Group – see page 74 for contact details). People with an ileo-anal pouch can also contact the Red Lion Group for advice on insurance – call 0844 576 3029 quoting reference RL1. Planning your trip 41 Those with a colostomy can contact the Colostomy Association, and those with a urostomy can contact The Urostomy Association. See pages 50–52 for more information about travelling when you have a stoma, including information about travel certificates. Vaccinations Vaccinations can reduce your chance of getting certain infections. If you’ve had a particular type of cancer or cancer treatment, you may not be able to have some of the vaccinations you need to travel to some parts of the world. This may affect your choice of holiday location. Live vaccines Live vaccines use tiny amounts of the live virus or bacteria. The virus or bacteria used in these types of vaccines have been changed so they don’t cause the infection. The vaccines encourage the immune system to develop white blood cells (antibodies) to protect against the infection. If you have a weak immune system, you should not have live vaccines. Your immune system may be weakened if you: •• are currently having or have recently had chemotherapy or radiotherapy •• have had a solid organ transplant or bone marrow transplant •• are having immunosuppressive treatment. Your immune system can also be weakened by high doses of steroids or immunosuppressive drugs that are used to treat certain autoimmune diseases. Live vaccines can be given after completing immunosuppressive treatments, but you will need to speak to your cancer specialist first. You may need to have a letter from your specialist to confirm that you are able to have live vaccinations. 42 Travel and cancer Vaccinations given as live vaccines include: •• BCG (tuberculosis) •• MMR (measles, mumps and rubella) •• oral polio (not currently given in the UK) •• oral typhoid •• yellow fever. Some people may need to avoid live vaccines for the rest of their lives. This includes people who have had lymphoma or leukaemia, or if their cancer is related to the HIV infection. Inactivated vaccines Inactivated vaccines aren’t dangerous and are safe after cancer treatment. But they may be less effective in people who have low immunity. If you are having chemotherapy, you should discuss with your cancer specialist when would be the best time to have the vaccination. Inactivated vaccines include: •• cholera •• diphtheria, tetanus and polio •• haemophilus influenza B (Hib) •• hepatitis A •• hepatitis B Planning your trip 43 •• influenza •• Japanese encephalitis •• meningococcal meningitis •• pertussis (whooping cough) •• pneumococcal •• typhoid injection •• tick-borne encephalitis •• rabies. Re-vaccination If you’ve had high-dose chemotherapy and a stem cell transplant, you may not be immune to diseases you were previously vaccinated against. You may need to be re-vaccinated after your treatment has ended. The vaccinations you may need for your holiday will depend on where you’re going. If you have lymphoedema in an arm, or are at risk of developing it in an arm due to breast cancer surgery or radiotherapy to an armpit, it’s important to make sure you have vaccinations in the other arm. 44 Travel and cancer Splenectomy If you have cancer that affects your spleen, you may have had your spleen removed (this is called a splenectomy). You may be more likely to get some types of infection. Pneumonia and meningitis vaccinations are recommended. Before travelling, your doctor should give you a supply of antibiotics and tell you when to take them. Malaria can be especially severe if you have had your spleen removed. In this case, where possible, you should avoid travelling to areas where malaria is common. Malaria is a risk in many tropical and sub-tropical parts of the world. This includes parts of Sub-Saharan Africa, South America, South Asia and the Pacific region. If travel is essential, you should make every effort to avoid infection, using the ABCD of malaria prevention: •• Awareness of risk •• Bite prevention •• Chemoprophylaxis (anti-malarial tablets) •• prompt Diagnosis and treatment. It is important to use insect repellent (DEET – diethyl-m-toluamide based repellents are recommended), wear suitable clothing and, if appropriate, use mosquito nets to reduce the risk. No anti-malarial tablets provide 100% protection. You can get more information about vaccinations at nhs.uk/ planners/vaccinations or by contacting MASTA (see page 74). Planning your trip 45 Taking medicines abroad If you’re taking regular medicines, make sure you have enough to last for your whole trip. You should make sure you have enough in case your return is delayed by a couple of days. If you’re going for a long time, check whether you can get the medicines you need in the country you’re going to, as your doctor can normally only prescribe a limited amount. If a course of medication you’re taking is due to end when you’ll be abroad, speak to your GP before you travel. They may be able to increase your prescription, if necessary. If you’re already abroad and run out of supplies, you may be able to register with a local doctor, or buy medicines from a pharmacist. The British embassy or high commission in the country you’re visiting will be able to advise you. Medicines tend to have at least two names: the name of the drug (its ‘generic’ name) and the name of the brand. For example, the generic drug anastrozole is sold under the brand Arimidex®. Brand names can vary between countries, so it’s a good idea to keep a record of generic names. ‘Because I carry drugs and I worry someone might steal them, I tend to take a batch in my suitcase or rucksack and some in my hand luggage because I’m frightened I’m going to lose my luggage and that’s going to mess up my holiday.’ Alan 46 Travel and cancer Taking your medicines at the right time If you’re travelling across international time zones, this is likely to affect the time you take your regular medicines. If there is only a couple of hours’ difference in time, you may want to continue taking the medicines at the same times you have been (UK time). If there are several hours’ difference from UK time, you may end up taking your medicines at inconvenient times of the day or night. It may be easier to gradually change the times you take your regular medicines to fit in with the local time. Your doctor or pharmacist can help you plan how to change the times you take your medicines. Restrictions on some drugs Some countries limit the amount of particular drugs that can be taken into the country. It’s important to check with the country’s high commission or embassy about any restrictions they may have on taking certain medicines in or out. If you need to take some types of medicine (such as painkillers like morphine) in or out of the UK, you’ll need a letter from your doctor. This will also be helpful if you have to take syringes, needles or portable medicine pumps with you. The letter should include: •• your name and address •• your date of birth •• your dates of travel in and out of the country •• the country you’re visiting •• the medicines you’re taking, the doses and total amounts you’re taking with you. 48 Travel and cancer If you’re travelling for more than three months, you may need a medicines licence from the Home Office so you can take certain drugs out of the country. If you’re not sure whether you need this for your medicines, check with your doctor. Getting a personal medicines licence To get a personal medicines licence, your doctor has to complete a form and send it to the Home Office Drugs Licensing and Compliance Unit. You can download a form at homeoffice.gov. uk/drugs/licensing or ask for one to be sent to you by phoning 020 7035 6330. The Home Office will usually need at least two weeks to process your application. You can get information about the maximum amounts of controlled drugs that can be taken out of the UK from the Home Office Drugs Licensing and Compliance Unit (see page 74). Travelling with medicines You should carry all medicines, covering letters and licences for controlled drugs in your hand luggage, as customs officers will usually need to see them. Make sure you keep medicines in their original packaging. With medicines that are not controlled drugs, it may help to carry one set in your hand luggage and another in your suitcase, so that if one set goes missing you still have the other. It can also help to keep a list of the medicines you’re taking, along with information about the doses. This will help you get replacements if you lose them. Always use the generic name of the medicine, as brand names can vary from country to country (see page 45). Check medication rules in your destination country Some countries don’t allow certain medication to be brought in. Check any restrictions with the country’s embassy or high commission. Planning your trip 49 Liquid medicines in hand luggage Most non-medicinal liquids in your hand luggage are restricted to a maximum of 100ml. However, liquid medicines and liquid diets that are needed during the flight can be taken on a plane without restriction. You can bring more than 100ml of a liquid medicine, but you’ll need to check this with your airline and departure airport before you travel. You will also need to bring a supporting document from your doctor or another relevant medical professional. This could be a letter or a signed prescription. There’s more information about carrying liquids in your hand luggage at gov.uk/hand-luggage-restrictions Keeping medicines cool The shelf life of some medicines can be reduced if they are not kept at the correct temperature, so ask your pharmacist for advice. If you’re travelling with medicines that need to be kept cool, you can get small cool bags from your chemist for the journey. It will help to check with your hotel whether or not there will be a fridge in your room. If not, ask them if there’s somewhere secure where your medicines can be stored and kept cool. Oxygen Oxygen for travel in the UK is provided by the NHS or Health Service. You just need to let your usual oxygen provider (if you live in England or Wales) or your GP (if you live in Scotland or Northern Ireland) know the details of your holiday. You will need to tell them the dates you are going and returning and where you will be staying, and they will arrange everything for you. If you think you’ll need oxygen during a flight, you’ll need to contact the airline well before your journey to check their policy on taking oxygen while you’re on the plane. There may be a cost for this. 50 Travel and cancer If you need oxygen for use throughout your holiday, you will need to make arrangements for the oxygen to be provided before you travel. Oxygen suppliers in the UK will only provide oxygen for travel and stays within the UK, although they may have details of overseas oxygen providers that you can contact. If you are travelling in Europe, oxygen can be arranged through the European Health Insurance Card scheme (see pages 19–22). You will need to have a valid EHIC and you will have to use the authorised oxygen company for the country you are travelling to. If you are travelling outside Europe, you will need to contact an oxygen company that supplies the country you will be visiting. To find an oxygen provider, you could contact the British consulate in the country you are travelling to or search the internet. For more information, visit the Travel section of the British Lung Foundation website at blf.org.uk/travel Hospice and support services abroad The Hospice Information Service (Help the Hospices – see page 73) can give you information about hospice and palliative care services abroad. If you have a stoma If you have a urostomy, a colostomy, an ileostomy or a tracheostomy, there may be certain things you need to think about before you travel. Planning your trip 51 Getting information Your stoma nurse can give you advice about issues such as: •• your diet while you’re abroad •• activities such as swimming •• the effect of high temperatures on the adhesive used to secure the stoma bags. If you have a urostomy, colostomy, ileostomy or tracheostomy, there are specialist organisations that can give you information specific to your condition. See our list of useful organisations on pages 72–77 and our list of helpful leaflets, booklets, fact sheets and websites on pages 78–83. Stoma supplies Having a stoma shouldn’t stop you from travelling, but you may need to plan your trip more carefully. It’s important to make sure you have stoma supplies. You should divide your stoma supplies between your bags, in case one gets lost. Make sure you take enough stoma supplies with you. It helps to take more than you think you’ll need, in case you need to change your bag more often than usual or in case you’re away for longer than planned. This is especially important if you’re going somewhere with a hot climate. Some suppliers will deliver abroad. It’s helpful to check whether your supplier offers this service. You should store stoma bags in a cool place out of direct sunlight. 52 Travel and cancer Colostomy and ileostomy If you have a colostomy or ileostomy, it’s important to be careful about what you eat the day before you travel. Avoid spicy foods, fizzy drinks, alcohol and foods that cause wind. If you’re flying, the changes in air pressure may cause problems with increased wind in the stoma bag. It may help to add an extra flatus filter, which helps wind to escape, on to the bag. Your GP or stoma nurse can advise you on anti-diarrhoea tablets (such as loperamide) and rehydration powders (such as Dioralyte®) you can take in case you have diarrhoea. These tablets and powders can be bought in a chemist or prescribed by your GP. If the diarrhoea is severe or continues for more than 48 hours, it’s important to see a doctor. Insurance and travel certificates A travel certificate includes details of your condition so you do not have to explain it to travel officials, including airport security staff. The certificate will include your name, address and passport number and will be signed by your doctor. People with ileostomies can get a travel certificate by contacting IA (The Ileostomy and Internal Pouch Support Group). IA’s travel certificate has translations in a variety of languages. See page 74 for contact details. The Colostomy Association (see page 72) and The Urostomy Association (see page 75) can also provide travel certificates in a number of different languages. Alternatively, your stoma care nurse should be able to provide a travel certificate. Travel Certificates should be signed by your GP. All three stoma patient support groups can give you advice on travel insurance to make sure you are properly covered for your condition. You can read more about travel insurance on pages 37–41. Planning your trip 53 Bowel or bladder problems Many people affected by cancer have problems with their bladder or bowels. These may be either temporary or long term and can be due to treatment or the cancer itself. If you have changes in your bowel or bladder that mean you need to pass urine or bowel motions urgently or often, you will need to be close to a toilet and this can affect your travel plans. You may feel worried about going out, especially to somewhere new, if you have problems with bowel or bladder control. Planning ahead so that you are prepared can help you feel more confident. Access to toilets If you’re going somewhere you’re not familiar with, it’s a good idea to find out more about toilet facilities in your accomodation and in the area or country you are travelling to. It may be that they are very different to what you’d expect in the UK. This shouldn’t prevent you from travelling, but will help you plan ahead. If travelling in the UK, many towns and counties keep information about the public toilets in their area as lists or maps. Often these are on local authority websites. There are too many of these websites to list here, but you’ll be able to find them online. Try putting the term ‘public toilets’ and the name of the place you plan to visit in a search engine to find out what’s available. Carrying a Just Can’t Wait toilet card may help you get access to a toilet more quickly when you’re out. The card can be used in places such as shops and pubs, and states that the card-holder has a medical condition that requires urgent access to a toilet. You can get a Just Can’t Wait toilet card from the Bladder and Bowel Foundation or Disability Rights UK. Planning your trip 55 You can use disabled toilets too. These often offer more privacy, have a wash basin and more space if you need to change. National Key Scheme for Toilets This scheme offers people with a disability access to around 9,000 locked public toilets across the UK. You can buy a Radar NKS key for £4.50 (including postage and packaging) from Disability Rights UK. Visit the online shop at disabilityrightsuk. org or call 020 7250 3222. In Northern Ireland, these keys can be purchased at any local council office. Take supplies with you Pack a bag of the things you may need when travelling. This will help you feel more confident. You may want to include: •• wet wipes or baby wipes •• barrier cream such as Cavilon® or Sudocrem® •• pads and pants •• a change of clothing •• a sealable bag. If you have bladder problems, you might find it helpful to take a portable urinal with you. Talk to your cancer nurse or specialist for advice on travelling and ask whether any medications, for example, treatment for diarrhoea, may be helpful for you. 56 Travel and cancer Checklist – things to consider before you travel For all travellers: •• Are you fit to travel safely? •• Will you need a travel companion or helper to accompany you? •• Will you need any special equipment? •• Have you let the travel company and your accommodation know about any particular needs? •• Do you need any particular vaccinations for the destination? Remember to take any relevant certificates with you. •• Have you got enough medicines/medical supplies for the whole time you will be away? Remember to take extra supplies in case your return is delayed. •• Do you have your passport and another form of proof of UK residence, such as a driver’s licence? •• Do you have your travel insurance policy and certificate? •• Have you packed all your medical supplies or equipment in your hand luggage? If you’re travelling to a European Economic Area country or to Switzerland: •• Do you have your European Health Insurance Card (see pages 19–22)? Planning your trip 57 If you’re travelling with medicines for more than three months: •• Do you need/have a personal medicines licence? If you’re going abroad for planned treatment: •• Do you have an S2 form (unless you will be claiming under Article 56)? See page 26. If you have severe mobility problems: •• Do you have your Blue Badge, if you think you’ll need it? If you have a stoma: Does your hotel or accommodation have en suite facilities, including facilities to dispose of appliances, if you think this will be necessary? WHILE YOU’Re AWay If you become ill 60 Avoiding health problems while travelling 60 Taking care in the sun 62 Enjoying your trip 64 60 Travel and cancer If you become ill If you become ill while staying in a hotel, ask the receptionist to call a doctor. If you need urgent attention, contact the emergency services or visit the emergency department of the nearest hospital. If you have time, try to seek help and advice from a doctor or nurse who speaks the same language as you – the Foreign and Commonwealth Office may be able to help (visit fco.gov.uk). Contacting relatives Keep the names and addresses of friends and relatives with your passport so that British Consular officials can contact them if their help is needed. It is important to keep these details up to date for each time you travel. If you need to return to the UK quickly, you should also contact British Consular officials (see fco.gov.uk for details). They can usually arrange this for you, but you may need to pay the costs. Avoiding health problems while travelling Eating and drinking Wherever you are in the world, be careful about what you eat and drink. Many infectious diseases are spread by contaminated food and water. This includes water in swimming pools, lakes, rivers and the sea, so try not to swallow water when you’re swimming. Tips for avoiding stomach upsets •• If you’re not sure that the drinking water is clean, you should sterilise it. You can do this by boiling it for one minute, or by using a filtering system or sterilisation tablets. At high altitudes, you may need to boil water for longer than usual to sterilise it properly. While you’re away 61 •• Use bottled water if you are not sure that the water is clean. •• Make sure that seals on bottles of water are not broken before opening. •• Avoid ice unless you’re sure it is made from safe water. •• Only eat freshly cooked food that has been cooked thoroughly and is still hot. •• Avoid uncooked food, unless you can peel or shell it yourself. •• Avoid food that may have been exposed to flies, such as food from street traders. •• Avoid ice cream from unreliable sources, such as kiosks. •• Avoid or boil unpasteurised milk. •• Be careful when eating shellfish – they may contain harmful bacteria. Make sure shellfish is cooked thoroughly, or avoid eating it. Insects In some countries, diseases can be spread by insects and ticks. Always use insect repellent (preferably containing DEET), and cover your arms and legs with appropriate clothing (especially if you’re walking in grassy or wooded areas). Animals Animal bites can lead to dangerous infections. It’s important to be careful, even with animals that seem tame. Animals in many regions, including most of Europe and North America, can carry rabies. If you are bitten, clean the wound carefully with soap and water, apply an antiseptic if you can and see a doctor immediately. 62 Travel and cancer Taking care in the sun During and after treatment, it‘s very important to protect your skin from the sun. Some cancer treatments can make your skin more sensitive to damage from the sun. This can be temporary or permanent. How sensitive your skin is to the sun will also depend on the type and dose of your treatment. If you’ve had chemotherapy Some chemotherapy drugs can make your skin more sensitive. This can sometimes last for several years after treatment. If you’ve had chemotherapy, you can ask your doctor whether you need to take special care to protect your skin. Some people also find that their skin is sensitive to chemicals such as chlorine, and may need to avoid swimming in pools that have been treated with chlorine. If you’ve had radiotherapy The skin in the area that was treated by radiotherapy will stay sensitive for many years and you are at at a higher risk of long-term sun damage, including skin cancers. You should take extra care to protect it from the sun. You don’t need to avoid the sun completely, but it’s good to start with going out into the sun only for very short periods and to use sun cream with a high sun protection factor (SPF). If this causes no problems, you can gradually increase the time you spend in the sun. If you’ve had biological therapies Some cancer treatments, including some biological therapies, can make your skin very sensitive to the sun and your skin may burn more easily than normal. You can still go out in the sun, but you should wear a sun cream with a high SPF, and cover up with clothing and a hat. While you’re away 63 Tips for protecting yourself in the sun Following the advice below will help ensure that your skin doesn’t burn: •• Protect your face and neck with a wide-brimmed hat. •• Always wear sunglasses (with a guaranteed ultraviolet light filter) in strong sunlight. •• Use a suncream with a high sun protection factor (at least SPF 30). Follow the instructions on the bottle and reapply as recommended, particularly after swimming. •• Wear clothing made of cotton or natural fibres, as these have a closer weave and offer more protection from the sun. As the SPF of different fabrics varies, it’s possible you may need to use some of the other types of protection as well as covering up with clothing. •• Stay out of the sun during the hottest part of the day, usually between 11am and 3pm. Try to sit in the shade, even at other times of the day. •• If you have had radiotherapy, keep the treated area completely covered. •• Use fake tanning lotions or sprays to give yourself a tan, instead of sunbathing or using a sun-bed. •• If you have to apply bite/mosquito repellent cream, apply the sunscream first, followed by the repellent cream. 64 Travel and cancer Enjoying your trip Hopefully, once everything is planned you’ll be able to look forward to enjoying your time away. For many people affected by cancer, taking some time to travel can help them feel better. It may help to put the treatment behind them and give them a chance to reflect on all they’ve been through. For other people, it can be a special time with family or friends, to see a place they’ve always wanted to see or visit people they’ve not seen in a while. Whatever the reason for your travels, with careful planning you’ll be able to look forward to and enjoy your trip. We have a video of someone talking about their travel experiences after being diagnosed with cancer on our website. You can watch this at macmillan.org.uk/travel ‘We had ten blissful days away from reality and that in itself was worth it.’ Samira fURTHER INForMATiOn How we can help you 68 Other useful organisations 72 Further resources 78 Your notes and questions 84 68 Travel and cancer How we can help you Cancer is the toughest fight most of us will ever face. But you don’t have to go through it alone. The Macmillan team is with you every step of the way. Get in touch Macmillan Cancer Support 89 Albert Embankment, London SE1 7UQ Questions about cancer? Call free on 0808 808 00 00 (Mon–Fri, 9am–8pm) www.macmillan.org.uk Hard of hearing? Use textphone 0808 808 0121 or Text Relay. Non-English speaker? Interpreters are available. Clear, reliable information about cancer We can help you by phone, email, via our website and publications or in person. And our information is free to everyone affected by cancer. Macmillan Support Line Our free, confidential phone line is open Monday–Friday, 9am–8pm. Our cancer support specialists provide clinical, financial, emotional and practical information and support to anyone affected by cancer. Call us on 0808 808 00 00 or email us via our website, macmillan.org.uk/ talktous Information centres Our information and support centres are based in hospitals, libraries and mobile centres, and offer you the opportunity to speak with someone face to face. Find your nearest one at macmillan.org.uk/ informationcentres How we can help you 69 Publications We provide expert, up-to-date information about different types of cancer, tests and treatments, and information about living with and after cancer. We can send you free booklets, leaflets, and fact sheets. Review our information Help us make our resources even better for people affected by cancer. Being one of our reviewers gives you the chance to comment on a variety of information including booklets, fact sheets, leaflets, videos, illustrations and website text. Other formats We have a small range of information in other languages and formats. Our translations are for people who don’t speak English and our Easy Read booklets are useful for anyone who can’t read our information. We also produce a range of audiobooks. Find out more at macmillan.org.uk/ otherformats If you’d like to hear more about becoming a reviewer, email [email protected] Please email us at cancerinformationteam@ macmillan.org.uk if you’d like us to produce our information for you in Braille or large print. You can find all of our information, along with several videos, online at macmillan. org.uk/cancerinformation Need out-of-hours support? You can find a lot of information on our website, macmillan.org.uk For medical attention out of hours, please contact your GP for their out-of-hours service. 70 Travel and cancer Someone to talk to Support for each other When you or someone you know has cancer, it can be difficult to talk about how you’re feeling. You can call our cancer support specialists to talk about how you feel and what’s worrying you. No one knows more about the impact cancer has on a person’s life than those who have been affected by it themselves. That’s why we help to bring people with cancer and carers together in their communities and online. We can also help you find support in your local area, so you can speak face to face with people who understand what you’re going through. Professional help Our Macmillan nurses, doctors and other health and social care professionals offer expert treatment and care. They help individuals and families deal with cancer from diagnosis onwards, until they no longer need this help. You can ask your GP, hospital consultant, district nurse or hospital ward sister if there are any Macmillan professionals available in your area, or call us. Support groups You can find out about support groups in your area by calling us or by visiting macmillan. org.uk/selfhelpandsupport Online community You can also share your experiences, ask questions, get and give support to others in our online community at macmillan.org.uk/ community How we can help you 71 Financial and work-related support Having cancer can bring extra costs such as hospital parking, travel fares and higher heating bills. Some people may have to stop working. If you’ve been affected in this way, we can help. Call the Macmillan Support Line and one of our cancer support specialists will tell you about the benefits and other financial help you may be entitled to. We can also give you information about your rights at work as an employee and help you find further support. Macmillan Grants Money worries are the last thing you need when you have cancer. A Macmillan Grant is a one-off payment for people with cancer, to cover a variety of practical needs including heating bills, extra clothing, or a much-needed break. Find out more about the financial and work-related support we can offer at macmillan.org.uk/ financialsupport Learning about cancer You may find it useful to learn more about cancer and how to manage the impact it can have on your life. You can do this online on our Learn Zone – macmillan.org. uk/learnzone – which offers a variety of e-learning courses and workshops. There’s also a section dedicated to supporting people with cancer – ideal for people who want to learn more about what their relative or friend is going through. 72 Travel and cancer Other useful organisations British Red Cross 44 Moorfields, London EC2Y 9AL Tel 0844 871 1111 Email [email protected] www.redcross.org.uk Offers a number of services to people with disabilities, including a medical equipment loan service and a transport service. See the website for details of local offices. Colostomy Association Enterprise House, 95 London Street, Reading RG1 4QA Tel 0800 328 4257 www.colostomyassociation. org.uk Gives support to everyone living with a colostomy. The organisation has a private Facebook group where members can read and post comments and support, including tips on travelling, from other people with stomas. Disability Rights UK 12 City Forum, 250 City Road, London EC1V 8AF Tel 020 7250 3222 Email enquiries@ disabilityrightsuk.org www.disabilityrightsuk.org Provides information on any aspect of disability. Disabled Living Foundation Ground Floor, Landmark House, Hammersmith Bridge Road, London W6 9EJ Tel 0300 999 0004 Email [email protected] www.dlf.org.uk A national charity that provides free, impartial advice about disability equipment and mobility products through its helpline, website and demonstration centre. Other useful organisations 73 Disabled Motoring UK Ashwellthorpe, Norwich NR16 1EX Tel 01508 489 449 Email [email protected] www.disabledmotoring.org A UK charity that promotes mobility for disabled people. Publishes leaflets, fact sheets and a monthly magazine to help disabled drivers. Family Holiday Association 3 Gainsford Street, London SE1 2NE Tel 020 3117 0650 Email info@familyholiday association.org.uk www.fhaonline.org.uk Helps arrange holidays for disadvantaged families with school-aged children. Foreign and Commonwealth Office King Charles Street, London SW1A 2AH Tel 020 7008 1500 Email traveladvicepublicenquiries@ fco.gov.uk www.fco.gov.uk The government department responsible for supporting British citizens overseas. Can provide details about embassies, high commissions and consulates and offer support to travellers in an emergency. Help the Hospices Hospice House, 33–44 Britannia Street, London WC1X 9JG Tel 020 7520 8200 Email [email protected] www.helpthehospices.org.uk Provides information relevant to living with advanced illness. Compiles a directory of hospice services, as well as practical booklets. These are all available free on the website. 74 Travel and cancer Home Office Drugs Licensing and Compliance Unit 4th Floor Fry Building, 2 Marsham Street, London SW1P 4DF Tel 020 7035 6330 Email DLCUcommsofficer@ homeoffice.gsi.gov.uk www.gov.uk/controlleddrugs-licences-fees- and-returns Provides personal export and import licences for people who are travelling with certain medicines for three months or more. IA (The Ileostomy and Internal Pouch Support Group) Peverill House, 1–5 Mill Road, Ballyclare BT39 9DR Tel 0800 0184 724 Email [email protected] www.iasupport.org Provides information about travelling for people who’ve had stoma surgery, including details of companies that offer travel insurance. Lymphoedema Support Network St Luke’s Crypt, Sydney Street, London SW3 6NH Tel 020 7351 4480 Email adminlsn@ lymphoedema.freeserve.co.uk www.lymphoedema.org Gives information and support to people with lymphoedema and produces a leaflet called Holidays and travel. MASTA Ltd City Exchange, Floor 7, 11 Albion Street, Leeds LS1 5ES Email [email protected] www.masta-travel- health.com Offers travel health consultations, anti-malarial tablets and vaccinations through a network of private clinics. Motability Scheme Motability, Warwick House, Roydon Road, Harlow CM19 5PX Tel 01279 635999 (Mon–Fri, 8.45am–5.30pm) Minicom 01279 632213 www.motability.co.uk Other useful organisations 75 The scheme enables disabled people to exchange either their higher rate mobility component of Disability Living Allowance, their enhanced rate of the mobility component of Personal Independence Payment, or their War Pensioners’ Mobility Supplement for a new car, powered wheelchair or scooter. St John Wales Priory House, Beignon Close, Ocean Way, Cardiff CF24 5PB Tel 0845 644 2546 Email [email protected] www.stjohnwales.co.uk Provides a professional, non-emergency transport service for people who would have difficulties using other forms of transport. Translink Tel 028 9066 6630 Email [email protected] www.translink.co.uk Manages the Concessionary Fares Scheme in Northern Ireland. Tourism For All 7A Pixel Mill, 44 Appleby Road, Kendal LA9 6ES Tel 0845 124 9971 Email [email protected] www.tourismforall.org.uk Provides information to disabled people and their carers about holidays in the UK and abroad, including how their access needs can be met. Has information about transport, accommodation, visitor attractions, activity holidays and respite care establishments. The Urostomy Association 18 Foxglove Avenue, Uttoxeter ST14 8UN Tel 01889 563 191 Email [email protected] www.urostomyassociation. org.uk Provides information and support to people who have a urostomy. 76 Travel and cancer General cancer support organisations Cancer Black Care 79 Acton Lane, London NW10 8UT Tel 020 8961 4151 Email [email protected] www.cancerblackcare. org.uk Offers information and support for people with cancer from ethnic communities, their friends, carers and families. Cancer Focus Northern Ireland 40–44 Eglantine Avenue, Belfast BT9 6DX Tel 0800 783 3339 (Mon–Fri, 9am–1pm) Email [email protected] www.cancerfocusni.org Offers a variety of services to people affected by cancer, including a free helpline, counselling and links to local support groups. Cancer Support Scotland Calman Cancer Support Centre, 75 Shelley Road, Glasgow G12 0ZE Tel 0800 652 4531 Email info@ cancersupportscotland.org www.cancersupport scotland.org Runs cancer support groups throughout Scotland. Also offers free complementary therapies and counselling. Irish Cancer Society 43–45 Northumberland Road, Dublin 4, Ireland Tel 1800 200 700 (Mon–Thu, 9am–7pm, Fri, 9am–5pm) Email [email protected] www.cancer.ie National cancer charity offering information, support and care to people affected by cancer. Has a helpline staffed by specialist cancer nurses. Other useful organisations 77 Maggie’s Centres 1st Floor, One Waterloo Street, Glasgow G2 6AY Tel 0300 123 1801 Email enquiries@ maggiescentres.org www.maggiescentres.org Provide information about cancer, benefits advice, and emotional or psychological support. Penny Brohn Cancer Care Chapel Pill Lane, Pill, Bristol BS20 0HH Helpline 0845 123 2310 (Mon–Fri, 9.30am–5pm) Email [email protected] www.pennybrohn cancercare.org Offers a unique combination of physical, emotional and spiritual support, using complementary therapies and self-help techniques. Tenovus Head Office, Gleider House, Ty Glas Road, Cardiff CF14 5BD Tel 0808 808 1010 (Mon–Sun, 8am–8pm) www.tenovus.org.uk Provides support such as mobile cancer support units, a free helpline, an ‘Ask the nurse’ service on the website and benefits advice. You can search for more organisations on our website at macmillan.org.uk/organisations, or call us on 0808 808 00 00. 78 Travel and cancer Further resources To order any of our resources, visit be.macmillan.org.uk or call 0808 808 00 00. Related Macmillan information All of our information is also available online at macmillan. org.uk/cancerinformation You may want to order some of our other booklets: •• Coping with fatigue •• Getting travel insurance when you have been affected by cancer •• Life after cancer treatment •• Understanding lymphoedema We have information about chemotherapy, surgery and radiotherapy in these languages: Bengali, Gujarati, Hindi, Polish, Portuguese, Punjabi, Russian, Traditional Chinese and Urdu. We also have a range of Easy Read booklets. Visit macmillan.org.uk/ otherformats to find out more. Macmillan audiobooks Our high-quality audiobooks, based on our variety of booklets, include information about cancer types, different treatments and about living with cancer. To order your free CD, visit be.macmillan.org.uk or call 0808 808 00 00. Macmillan videos There’s a video of someone talking about their travel experiences after being diagnosed with cancer on our website. You can watch this at macmillan.org.uk/travel Further resources 79 Helpful publications Air travel with a lung condition British Lung Foundation, 2012 A fact sheet that answers questions that people with lung conditions may have about travelling by air. Available online at blf.org.uk/ publications A laryngectomee’s travel guide to the British Isles Cancer Laryngectomee Trust, 2013 A booklet that lists hospitals in the UK that handle emergencies that laryngectomees may experience. Includes emergency flash cards (in English, French, Spanish, and German) to help a voiceless laryngectomee indicate what the problem is. Available online at cancerlt. org/assets/travelguide 2013.pdf Breast cancer and travel insurance Breast Cancer Care, 2013 A web page with points to bear in mind when looking for travel insurance. Includes a list of companies willing to consider travel insurance for people living with breast cancer. Available online at breastcancercare.org.uk/ breast-cancer-information/ impact-breast-cancer/ finances-practicalities/ travel-insurance Going on holiday with a lung condition British Lung Foundation, 2012 A booklet aimed at helping people with lung conditions plan holidays in the UK and abroad. It includes tips on choosing accommodation, travelling (by coach, train or ferry), driving abroad, flying with a lung condition and getting oxygen away from home. Available online at blf.org.uk/publications 80 Travel and cancer Holiday advice for ostomists Dansac, 2013 A booklet with general advice for people with a colostomy, ileostomy or urostomy who would like to go on holiday. It covers health and insurance, food and drink, practical issues, clothing and swimwear, and medical supplies. Order free on 01480 484 300 or email [email protected] Holidays and travel Lymphoedema Support Network, 2012 A leaflet with advice on travelling with lymphoedema. Call 020 7351 4480 or email adminlsn@lymphoedema. freeserve.co.uk Travel information Urostomy Association, 2011 A leaflet about travelling with a urostomy. Available online at urostomyassociation.org.uk/ support/leaflets Travel advice: having a colostomy should not prevent you from travelling at home or abroad Colostomy Association, 2012 A leaflet on travelling with a colostomy. The Colostomy Association also produces a Travel Insurance (2013) fact sheet. Both are available online at colostomyassociation. org.uk Travel and prostate cancer Prostate Cancer UK, 2013 A fact sheet for men with prostate cancer who are planning a holiday or travel abroad. It has tips to help prepare for travel, including guidance on arranging travel insurance. Available online at prostatecanceruk.org Further resources 81 Travel insurance Lymphoma Association, 2013 A fact sheet with advice on obtaining travel insurance. Includes a list of companies that consider providing cover for people with lymphoma. The Lymphoma Association also produces a booklet called Foreign travel precautions – a guide for people with lymphoma (2011), which gives advice and guidance about vaccines for people with lymphoma who wish to travel abroad. Both are available online at lymphomas.org.uk Travel insurance and lung cancer Roy Castle Lung Cancer Foundation, 2013 A fact sheet listing insurance companies that consider providing insurance to people with cancer. Available online at roycastle.org Travel insurance and myeloma Myeloma UK, 2014 A list of companies that may provide travel insurance for people with myeloma, and tips to facilitate obtaining insurance. Myeloma UK also produces a general fact sheet called Travelling (2013), which covers topics such as taking medicines abroad, vaccinations, insurance, flights, diet, sun safety and treatment away from home. Both are available online at myeloma.org.uk Travel tips IA (the Ileostomy and Internal Pouch Support Group) A leaflet with advice on travelling when you have an ileostomy or an internal pouch. Visit iasupport. org/about/publications/ factsheets/travel-tips 82 Travel and cancer Useful websites A lot of information about cancer is available on the internet. Some websites are excellent; others have misleading or out-of-date information. The sites listed here are considered by nurses and doctors to contain accurate information and are regularly updated. Macmillan Cancer Support www.macmillan.org.uk Find out more about living with the practical, emotional and financial effects of cancer. Our website contains expert information about cancer and its treatments, including: •• all the information from our 150+ booklets and 360+ fact sheets •• videos featuring real-life stories from people affected by cancer and information from medical professionals •• how Macmillan can help, the services we offer and where to get support •• how to contact our cancer support specialists, including an email form to send your questions •• local support groups search, links to other cancer organisations and a directory of information materials •• a huge online community of people affected by cancer sharing their experiences, advice and support. British Foreign and Commonwealth Office www.fco.gov.uk Provides government advice, including advice about travel insurance and travel health. Contains contact details of British embassies and high commissions around the world. Cancer Research UK www.cancerhelp.org.uk Contains patient information on all types of cancer and has a clinical trials database. Further resources 83 Citizens Advice www.adviceguide.org.uk Online help from Citizens Advice. Including information about travel, passports, visas and travelling if you have a disability. GOV.UK www.gov.uk Government website with information about public services. Has information about travel and transport. Fit for Travel www.fitfortravel.scot.nhs.uk Website provided by NHS Scotland, which has health information for people travelling abroad. Health and Social Care in Northern Ireland www.hscni.net Information on travel health and the EHIC for people who live in Northern Ireland. NHS Choices www.nhs.uk The country’s biggest health website that gives all the information you need to make decisions about your health. National Cancer Institute – National Institute of Health – USA www.cancer.gov Gives comprehensive information on cancer and its treatments. Patient UK www.patient.co.uk Provides people in the UK with information about health and disease. Includes evidencebased information leaflets on a wide variety of medical and health topics. Also reviews and links to many health- and illness-related websites. Your notes and questions Disclaimer, thanks and sources 85 Disclaimer We make every effort to ensure that the information we provide is accurate and up to date but it should not be relied upon as a substitute for specialist professional advice tailored to your situation. So far as is permitted by law, Macmillan does not accept liability in relation to the use of any information contained in this publication, or third-party information or websites included or referred to in it. Some photographs are of models. Thanks This booklet has been written, revised and edited by Macmillan Cancer Support’s Cancer Information Development team. It has been approved by Dr Tim Iveson, Macmillan Consultant Medical Oncologist. With thanks to: Dermot Ball, Area Cancer Team Pharmacist; Alison Crawshaw, Clinical Nurse Specialist Stoma Care and Bowel Function and Liaison with Stoma Care Nursing for IA (The Ileostomy and Internal Pouch Support Group); Carole Cringle, Macmillan Colorectal/Stoma Care Specialist Nurse; Julie Cunneen, Macmillan Lymphoedema Clinical Lead; Dr Gerry Hanna, Consultant/Honorary Senior Lecturer in Clinical Oncology; Mary Kane, Stoma Care/IBD Nurse Specialist; Margaret Sneddon, Head of Nursing and Health Care, Macmillan Senior University Teacher/ Lymphoedema Specialist; Beverly Sykes, Special Nurse Travel Health (MASTA); Dr Alexandra Taylor, Consultant in Clinical Oncology; Chris Watson, Highly Specialist Oncology Pharmacist; and the people affected by cancer who reviewed this edition. Sources We’ve listed a sample of the sources used in this publication below. If you’d like further information about the sources we use, please contact us at [email protected] Breast cancer care. Body scanners in UK airports. www.breastcancercare.org.uk/ breast-cancer-information/impact-breast-cancer/breast-prostheses/body-scannersuk-airports (accessed February 2014). 86 Travel and cancer British Lung Foundation. Travel. www.blf.org.uk/Page/Travel (accessed February 2014). CancerHelp UK. Having oxygen on holiday. www.cancerresearchuk.org/cancer-help/ about-cancer/cancer-questions/having-oxygen-on-holiday (accessed February 2014). Citizens Advice. Adviceguide – transport options for disabled people. www.adviceguide. org.uk/index/your_world/travel/transport_options_for_disabled_people.htm (accessed February 2014). Colostomy Association. Living with a colostomy: travel home and abroad. www.colostomyassociation.org.uk/index.php?p=144&pp=3&i=7&page=Travel (accessed February 2014). Fitfortravel. www.fitfortravel.nhs.uk (accessed February 2014). GOV.UK. Foreign travel advice. www.gov.uk/foreign-travel-advice (accessed February 2014). The National Travel Health Network and Centre (NaTHNaC). www.nathnac.org (accessed February 2014). NHS Choices. www.nhs.uk (accessed February 2014). NI Direct. Claim health treatment in Europe. www.nidirect.gov.uk/claimhealth-treatment-in-europe-european-health-insurance-card-formerly-e111 (accessed February 2014). NI Direct. Travel information for people with reduced mobilities. www.nidirect.gov.uk/ index/information-and-services/travel-transport-and-roads/travel-information-forpeople-with-reduced-mobilities.htm (accessed February 2014). Transport Scotland. Concessionary Travel. www.transportscotland.gov.uk/publictransport/concessionarytravel (accessed February 2014). Welsh Government. Concessionary bus fares for the elderly and disabled. www.wales.gov.uk/topics/transport/public/concessionary/fares/?lang=en (accessed February 2014). Can you do something to help? We hope this booklet has been useful to you. It’s just one of our many publications that are available free to anyone affected by cancer. They’re produced by our cancer information specialists who, along with our nurses, benefits advisers, campaigners and volunteers, are part of the Macmillan team. When people are facing the toughest fight of their lives, we’re there to support them every step of the way. We want to make sure no one has to go through cancer alone, so we need more people to help us. When the time is right for you, here are some ways in which you can become a part of our team. 5 ways you can someone hElP with cAncer Share your cancer experience Support people living with cancer by telling your story, online, in the media or face to face. Campaign for change We need your help to make sure everyone gets the right support. Take an action, big or small, for better cancer care. Help someone in your community A lift to an appointment. Help with the shopping. Or just a cup of tea and a chat. Could you lend a hand? 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Macmillan Cancer Support and our trading companies would like to hold your details in order to contact you about our fundraising, campaigning and services for people affected by cancer. If you would prefer us not to use your details in this way please tick this box. In order to carry out our work we may need to pass your details to agents or partners who act on our behalf. Signature Date / / If you’d rather donate online go to macmillan.org.uk/donate # Please cut out this form and return it in an envelope (no stamp required) to: Supporter Donations, Macmillan Cancer Support, FREEPOST LON15851, 89 Albert Embankment, London SE1 7UQ 27530 More than one in three of us will get cancer. For most of us it will be the toughest fight we ever face. And the feelings of isolation and loneliness that so many people experience make it even harder. But you don’t have to go through it alone. The Macmillan team is with you every step of the way. We are the nurses and therapists helping you through treatment. The experts on the end of the phone. The advisers telling you which benefits you’re entitled to. The volunteers giving you a hand with the everyday things. The campaigners improving cancer care. The community there for you online, any time. The supporters who make it all possible. Together, we are all Macmillan Cancer Support. For cancer support every step of the way, call Macmillan on 0808 808 00 00 (Mon–Fri, 9am–8pm) or visit macmillan.org.uk Hard of hearing? Use textphone 0808 808 0121, or Text Relay. Non-English speaker? Interpreters available. Braille and large print versions on request. © Macmillan Cancer Support, February 2014. 5th edition. MAC11667. Next planned review 2016. Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Printed using sustainable material. Please recycle.