Value charitable investment in medical research

Value charitable investment in
medical research
Value charities’ contribution to UK success
in life sciences
Enable charitable research funds to
be spent only on research
Medical research charities contribute
approximately one third of all public
expenditure on medical and health
research in the UK
Challenge for
government
Create a better environment
for research
Build a financial environment that
supports charities
Develop a clear regulatory
framework for research
Encourage engagement, openness
and transparency
In 2008-09, AMRC’s member charities
funded over 150 clinical trials in the
UK at a cost of over £60 million
Ensure the discoveries we fund reach
the patients who need them
Harness the strength of the NHS for
medical research
Work with patients to identify research to
address their needs
Drive innovation of new treatments
to help patients
Medical research charities have
a massive impact on patients’
wellbeing through supporting medical
and health research and innovation
Maintain the UK as a global leader
in science
Engage medical research charities in the development
of clinical guidelines
Champion UK medical research at
home and abroad
Train, develop and support the people who conduct
world-class medical research
The UK generates over 10% of the world’s
clinical science and health research outputs
and has created nearly a quarter of the
world’s top 100 medicines
Involve medical research charities in
developing effective policy across the EU
Fact
The Association of Medical Research Charities (AMRC)
is a membership organisation of the leading medical
and health research charities in the UK.
A recent survey by The Wellcome Trust found
that just under a quarter of adult respondents
or their family members had taken part in
medical research and up to 70% would
be willing to take part in research –
depending on what was involved.
All our 120 members have a clear process for the peer
review and funding of research grants as well as a
published research strategy outlining their objectives
and priorities in funding research and how they
intend to achieve them. They also sign up to position
statements on issues central to medical research.
We work together to support the sector’s effectiveness
and advance medical research by developing
best practice, providing information and guidance,
improving public dialogue about research and science,
and working with government.
Fact
Medical research charities contribute approximately
one third of all public expenditure on medical and
health research in the UK.
Association
of Medical
Research
Charities
£935 million
National
Institute
of Health
Research
£819.2 million
2008/09 Figures
Fact
A 2008 IPSOS MORI survey
commissioned by AMRC
showed that almost half
the British public would
be more likely to donate
to a charity if they knew it
would invest their donation in
medical research.
Medical
Research
Council
£704.2 million
Fact
For charities, their priority is to get the most patient benefit when
choosing how to spend their funds. Currently they spend the majority
of their medical research funding in the UK. The total AMRC member
research expenditure in 2009-10 was £1.2 billion.
Capital
Expenditure
6.5%
Fact
Spend by area
Type of research
Spend by
AMRC members
General research
39.3%
Cancer
33.1%
Cardiovascular
14.3%
Neurology
3.8%
Rheumatic disease
3.4%
Infectious disease
1.9%
Metabolic disease
1.1%
Respiratory
0.9%
GI, liver, kidney, uro-genital
0.6%
Sensory
0.5%
Obs/gynaecological
0.4%
Mental health
0.4%
Skin disease
0.3%
Outside UK
5.7%
England,
Scotland, Wales
and N.Ireland
87.8%
Data from AMRC
research expenditure
and grants databases
Fact
Medical research brings huge
economic benefits - for each pound
invested by the taxpayer or charity
donor in cardiovascular disease and
mental health research, a stream of
benefits is produced equivalent to earning
39 pence and 37 pence respectively each
year ‘in perpetuity’.
Data from AMRC grants database 2007/08
Fact
Approximately 15% of research
income in UK Higher Education
Institutions is from UK-based
charities. Around 50% of this directly
supports individual researchers.
For further information and to find out
how you can work with us please visit:
www.amrc.org.uk
61 Gray’s Inn Road London WC1X 8TL
T: 020 7269 8820 F: 020 7269 8821
Registered charity no. 296772
Action Medical Research Action on Addiction The Alcohol Education & Research Council Alzheimer’s Research Trust Alzheimer’s Society Arthritis Research UK Association for International Cancer Research Association for Spina Bifida and Hydrocephalus Asthma UK Ataxia - Telangiectasia Society Ataxia UK BackCare Bardhan Research a
Education Trust of Rotherham Beit Memorial Fellowships for Medical Research Blackie Foundation Trust Blond McIndoe Research Foundation Brain Research Trust Breakthrough Breast Cancer Breast Cancer Campaign British Council for Prevention of Blindness British Heart Foundation British Liver Trust British Lung Foundation The British Neurologic
Research Trust British Occupational Health Research Foundation The British Orthopaedic Association The British Pain Society British Retinitis Pigmentosa Society British Scoliosis Research Foundation British Sjögren’s Syndrome Association British Skin Foundation BUPA Foundation Cancer Research UK CFS Research Foundation Chest, Heart and Stro
Scotland Children with Leukaemia Children’s Liver Disease Foundation Chronic Disease Research Foundation Chronic Granulomatous Disorder Research Trust Circulation Foundation (British Vascular Foundation) Core (The Digestive Disorders Foundation) Cystic Fibrosis Trust Deafness Research UK DebRA Diabetes Research & Wellness Foundati
Diabetes UK Dunhill Medical Trust EMF Biological Research Trust Epilepsy Research UK Fight for Sight Foundation for Liver Research Foundation for the Study of Infant Deaths Guy’s and St Thomas’ Charity Healing Foundation Heart Research UK Huntington’s Disease Association Hypertension Trust Inspire Foundation International Spinal Research Tr
(Spinal Research) Juvenile Diabetes Research Foundation Kidney Research UK Kids Kidney Research Lister Institute of Preventive Medicine Little Foundation Ludwig Institute for Cancer Research Marie Curie Research Institute Mason Medical Research Foundation Medical Research Scotland (formally Scottish Hospital Endowments Research Tru
SHERT) Meningitis Research Foundation Meningitis Trust Meningitis UK (Registered as Spencer Dayman Meningitis UK) Migraine Trust Motor Neurone Disease Association Multiple Sclerosis Society of Great Britain and Northern Ireland Muscular Dystrophy Campaign Myeloma UK National Association for Colitis & Crohn’s Disease National Eye Resear
Centre National Osteoporosis Society Neuro-Disability Research Trust Neurosciences Research Foundation North West Cancer Research Fund Northern Ireland Chest, Heart and Stroke Association Northern Ireland Leukaemia Research Fund Novo Nordisk UK Research Foundation Nuffield Foundation Ovarian Cancer Action Parkinson’s UK The P
Foundation (UK) Ltd The Pelican Cancer Research Foundation The Pharmacy Practice Research Trust Primary Immunodeficiency Association The Progressive Supranuclear Palsy Association The Prostate Cancer Charity The Prostate Cancer Research Foundation Psoriasis Association RAFT - The Restoration of Appearance and Function Trust Reme
Research into Ageing The Roy Castle Lung Cancer Foundation Royal College of Surgeons of England The Royal National Institute for Deaf People (RNID) Samantha Dickson Brain Tumour Trust Sir Jules Thorn Charitable Trust Society for Endocrinology South West Thames Kidney Fund SPARKS (Sport Aiding Medical Research for Kids) St Peter’s Trust
Kidney, Bladder & Prostate Research The Stroke Association Tenovus Tommy’s The Baby Charity Tuberous Sclerosis Association Ulster Cancer Foundation Wellbeing of Women WellChild (Registered as The WellChild Trust) The Wellcome Trust Wessex Medical Trust William Harvey Research Foundation World Cancer Research Fund Yorkshire Canc
Research Action Medical Research Action on Addiction The Alcohol Education & Research Council Alzheimer’s Research Trust Alzheimer’s Society Arthritis Research UK Association for International Cancer Research Association for Spina Bifida and Hydrocephalus Asthma UK Ataxia - Telangiectasia Society Ataxia UK BackCare Bardhan Resear
and Education Trust of Rotherham Beit Memorial Fellowships for Medical Research Blackie Foundation Trust Blond McIndoe Research Foundation Brain Research Trust Breakthrough Breast Cancer Breast Cancer Campaign British Council for Prevention of Blindness British Heart Foundation British Liver Trust British Lung Foundation The British Neurologic
Research Trust British Occupational Health Research Foundation The British Orthopaedic Association The British Pain Society British Retinitis Pigmentosa Society British Scoliosis Research Foundation British Sjögren’s Syndrome Association British Skin Foundation BUPA Foundation Cancer Research UK CFS Research Foundation Chest, Heart and Stro