Latest Newsletter - Citizenswhocare.us

Transcription

Latest Newsletter - Citizenswhocare.us
B
rief respite
SPRING 2016
Learning to Live with a Different Me The Hardest Relationship of All
A regular participant in CWC’s Saturday Club, Lauren U,
a Board Certified Psychiatric Nurse, has early onset Lewy
Body Dementia. She was assisted by Rev. Linn Possell in
writing this article on relationships. Below are her thoughts:
W
hen I am asked about relationships I think about
the one that has changed the most as a person
living with Lewy Body dementia; that relationship is the one that I have with myself. I have always been
independent, resourceful, and unafraid of change. I have always trusted myself to know what the next best thing was for
me to do and followed my own path in life. My identity was
closely tied to my vocation as a nurse and I trusted that I was
both competent and dependable in this role.
I was diagnosed with Lewy Body Dementia, and have
subsequently experienced changes to my brain. Because of
these changes, my relationship with myself has changed. Because of my brain changes, there are times when I have difficulty knowing what is real and what is not. Therefore, I can
no longer trust myself and have had to turn to those around
me and try to put my trust in others. I know that I am more
fortunate than a lot of people living with dementia because
my support system includes individuals that understand dementia and therefore understand me.
While this is helpful and comforting, it does not replace
the fact that I have lost my identity of being a nurse, which
was once so important to me, and also that I am now unable to trust myself. It is a very weird place to be; having
to place my trust and perception of reality in the hands of
others. When I think something is real, I have to ask those
around me to tell me if what I see or think matches with
IN THIS ISSUE
With Your Support CWC Supports
Our Elderly and Caregivers Donation Envelope
Enclosed
Davis Beer & Cider Fest Saturday, June 4!
Tickets on Sale Now
page 7
what they see or think. For example, when I eat lunch at the
day program where I go once a week, it is difficult for me to
figure out where the food is. And when I am told that the food
is in the cups provided for me, I usually see the food moving.
There are two people that help me with this. If both people
Lauren U with a CWC volunteer & friend at CWC’s Saturday Club
tell me the same thing independently of one another; that the
food is in the cups and that it is not moving, then I can match
what they say and believe them. This is how weird my life
has become. But that, at least, works for now.
What is hard is when this weirdness, as I call it, has to do
with my most trusted people. Then it is overwhelming and
scary for me. Sometimes it is just too difficult to let go of
the control of reality for me. When this happens, even when
my most trusted friends try and help me, I cannot let go of
what is real to me. I am sure that whoever is reading this has
a trusted person in your life. But what if you had to trust that
person’s reality over yours? Trust aside… it is hard. I feel as
if I am one of the lucky ones to have my most trusted friends
understand dementia. I know that not everyone has that.
When I was first diagnosed, my two closest friends both
left. One even went as far as to tell me that she regretted the
amount of time that we had spent together because she could
have spent that time with someone else. Those lost friendships are still difficult to think about. But I now have two
(Story cont. on pg.6)
When Family Decisions
Get Trapped in Conflict
C
onflict is
natural,
particularly when family members are
involved.
The
need for everyone to cooperate with each other does not
necessarily end when the kids move out of
the house. Families become faced with new
issues and decisions as senior family members age. Common issues include: When
should an elderly person give up driving?
Should the older person move from the
family home? What care-giving duties are
needed, and who should provide them?
Who should get conservatorship or power
of attorney? The physical proximity of different family members, varying caregiving
responsibilities, and roles within the family
can influence the solution that each person
envisions.
When family members aren’t all on the
same page, they typically put off talking
about difficult issues until a crisis requires
the need for an immediate decision. At that
moment a combination of stress about an
uncomfortable decision, a lack of immediate resources, or an unclear understanding
of how to find and understand the relevant
(Story cont. on pg.6)
CAREGIVERS CORNER
by Stephanie Koop,
CWC Assessment Nurse
In the new Caregivers Corner, you will find articles
covering a variety of topics
related to older adults and
caregiving. This information should be informative
and useful whether you are a volunteer, client, or
caregiver. Questions, feedback or recommendations
for future articles can be directed to me at: [email protected].
Two of the most important issues facing caregivers today are lack of caregiver support and inadequate information. Becoming familiar with community
resources and accessing them can help caregivers
solve both of these issues at the same time enabling
them to care for both themselves and others.
Caregiving can be a part or full-time job. Caregivers may live close to, far away from, or in the same
home as the person they are caring for. Additionally,
Two Community Leaders Join CWC Board
T
Smith brings healthcare experience to CWC
oni Smith had a joyous childhood in Reno, Nevada
and had a positive college life at the University of
Nevada at Reno. After graduation, Toni attended
medical technology school at UCDMC. She and
her high school sweetheart, Bob Smith, married and lived
in Los Altos until Bob chose to attend UCD grad school.
They have made the Davis area their home since 1975.
Toni decided to change careers in 1979 and attended nursing school at Sacramento State. As a nurse she liked the
independence of home health nursing. Once her daughter
started school, Toni became a school nurse at the DJUSD retiring in 2010.
Toni has been on the board of the Davis Unit Salvation Army for 35 years. She has
chaired the committee for the past ten years. Toni and Bob have been members of the
Otwetiri Project since its inception ten years ago. The Project has built an elementary
school in the village of Otwetiri, Ghana and continues to support needs in the village
such as computers for the school and a public latrine building project.
Toni is a regular at the fitness club; enjoys cooking, reading, hiking and participating
in University Farm Circle programs. Toni believes in the mission of CWC and will strive
to make a contribution to CWC.
J
McDonald aims to return kindness and compassion
udy McDonald has lived in Yolo County since 1982 when she moved here to attend
UC Davis. She received her BS and her teaching credential at UCD and has since
taught elementary school in Dixon for 30 years. Judy and her husband, Blake, love
living in Davis where they raised their two children. They love the outdoors and
spend their free time hiking, biking, swimming and gardening Judy’s interest in CWC
stems from her own experience watching her father deteriorate from Alzheimer’s disease.
“Without the kindness and loving care of many caregivers, his life would not have been as
full at the end. I feel that Citizens Who Care is a valuable organization and I look forward
to working on the board.”
they can provide help with a few tasks or be almost
entirely responsible for the care of a friend or loved
one.
It’s easy to burn out. Preventing burnout is done
through self care. Caring for yourself is as important
as caring for your friend or loved one. Think of the
safety message that flight attendants give you when
you fly (and are traveling with a dependent)- first, put
on your own oxygen mask, then assist the child with
his/her mask. Caring for yourself combats stress and
short tempers and allows you to provide the best care
possible to others.
Taking care of oneself can look different to
people. Guilt should not prevent you from caring for
yourself. Home care organizations, meal delivery services, friends, Adult Day Care Centers, and Assisted
Living Facilities that provide temporary or permanent
housing are good options to assist you in your caregiving duties. Successful caregivers cobble together
a variety of services to help them get through the
challenges of caregiving. Below are some places
to begin looking for caregiving and other helpful resources:
n Family Caregiver Alliance (caregiver.org, caregiverstress.com or 1-800-445-8106) provides a well
organized website with a thorough explanation about
all aspects of caregiving to people with dementia
n Alzheimer’s Foundation of America (www.alzfdn.org or toll free 866-232-8484) provides an excellent FREE quarterly publication to those caring
for people with dementia; the helpline is manned by
social workers M-F 9a-9p EST
n To find a palliative care provider in your area
(getpalliativecare.org) this website also contains
valuable information describing what palliative care is
n For a thorough dementia evaluation and Alzheimer’s research trials (916-734-5496)
n Davis Senior Resource Guide (www.cityofdavis.
org or 530-757-5696) provides a listing of local services for the older adult
n Alzheimer’s Association care for those with Alzheimer’s & dementia (alz.org or 1-800-272-3900 a
24/7 helpline) For Alzheimer’s & dementia support
(helpforalzheimersfamilies.com or 1-888-734-8645)
n For more information on other resources:
www.CitizensWhoCare.us
2016 Grace Award
presented to
Judy Schumacher
C
WC’s Grace Award was started in
2004 by Evelyn Buddenhagen and
named for a devoted CWC volunteer, Grace Hiddleson, who was
the first recipient of the award. The name
of the award refers both to Ms. Hiddleson
and to the virtues of grace exemplified by
“the Three Graces” of western mythology
that inspired qualities such as; Excellence,
Service to another, Charity, Mercy, Love,
and Gentleness or Friendship. The award is
given annually to a volunteer(s) who have
excelled in their compassionate service to
the elderly and their caregivers.
By action of the CWC Board of Directors the 2016 Grace Award has been
awarded to Judy Schumacher, recognizing
her outstanding service to the community, to
Michael Lewis, CWC President & Judy Schumacher
CWC, and to all the elderly clients she has
helped while displaying the personal qualities for which the award is named. Judy has
donated 756 hours of volunteer service to
CWC.
Judy Schumacher became part of
CWC in 2006 as a caregiver receiving respite. She was taking care of her mother,
Catherine, in her home in Woodland. After her mother passed, she became a CWC
volunteer in April of 2009 in our Woodland
In-Home Respite and Friendly Visiting
Program and has had several clients since.
As a retired nurse, she has taken care of
many over the years and continues to do so
with the two clients that she currently visits. One of her assignments hasn’t needed
respite for awhile as she had family visiting, but Judy has maintained communication with the caregiver on the phone giving
a much needed opportunity for the caregiver to talk to someone who is safe and nonjudgmental. Judy has been visiting one of
her clients for over five years and the other
for over three years.
Judy can be seen with one of her clients in the video that is on the CWC website.
What’s in a Name? the language of aging
H
by Kathryn Skrabo, CWC Director of Senior Peer Counseling
ave you ever
given
thought
to what is an acceptable name to call
the older segment of the
population? Ina Jaffe,
National Public Radio
(NPR)
correspondent
filed a story in 2014 on just this issue. NPR
conducted a poll of 2,700 older listeners and
what she found was there is little consensus
on acceptable terminology.
Forty three percent polled liked the term
“older adult.” Almost a third liked “elder.”
And almost a third liked “senior” — but only
12 percent liked “senior citizen.”
And there were terms they hated: “geezer,” “old-timer,” “elderly.” Surprisingly,
even terms thought of as positive like “positive aging” or “successful aging” were not
well liked which speaks to how quickly the
cultural landscape is changing.
In 2014, New America Media journalist Paul
Kleyman surveyed nearly 100 journalists to
identify what language was used in covering
issues of aging to “help journalists represent
midlife and older people in socially neutral
language that represents individuality without preconceived notions”. “Older” was the
top choice of the journalists surveyed.
Terms like positive aging, healthy aging, and successful aging first surfaced in the
1950s, however it was in the 1980s that the
term “successful aging” gained in popularity. Introducing a more positive lens to think
about aging helped characterize aging as a
process, moving the aging focus away from
a single illness or disease emphasis.
In the late 1990’s, the World Health Organization (WHO) adopted the term “active
aging” to convey an even more inclusive
message than what “healthy aging” did. This
new term recognized there were many factors
to consider that affect how individuals and
populations age, not just health. The word
“active” was intended to emphasize continued participation in social, economic, cultural, spiritual and civic affairs, not just the
ability to be physically active or to participate
in the labor force.
As times change and the general population ages, active aging has challenged old
ways of thinking about living, working and
learning in later years. Now we find ourselves wondering, what are the right words to
use that communicate these changes appropriately and in a positive way?
Take for example the word retiree, a frequently used word. What does it mean exactly and how long should it be used? The term
itself was first used in 1945 and according
to Merriam-Webster it means someone who
has permanently stopped working in a job or
profession. But what if after you retire you
pick up a part-time job, are you still a retiree?
Or say you retired at 80, are you still a re-
tiree fifteen years later? When does language
change? Or does it? Or should it?
Think about one of the new phrases "encore career" made popular by Marc Freedman in 2007 with his book Encore: Finding
Work That Matters in the Second Half of Life.
As a concept, it has given a positive social
focus to those who want to work post retirement. Maybe what we need are more active
phrases instead of single nouns to convey aging concepts. Take for example a phrase like
“late life service worker” to identify an older
person choosing to give back thru volunteer
service in their community.
As you can see it can get complicated
at many levels with many factors to take
into account, but regardless of which words
we choose to use, it is important to recognize the critical role language plays in shaping the culture of aging and aging services.
Finding and aligning with positive word(s)
and phrases that include all segments of the
population can only strengthen our collective
understanding of the lifespan experience and
improve quality of life for all.
Volunteer as a
Senior Peer Counselor
Next Training: May 18 & 25,
June 1 & 8, 4-6 pm
Davis Senior Center
Call CWC for info: 758-3704
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IN HONOR OF
JOE ALKIRE
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ALL THE DEDICATED VOLUNTEERS
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THANKS TO YOU
Citizens Who Care’s
24th Annual Concert, Feb 5-7, 2016
Raised
$20,000
for Elderly & Caregiver Support!
BUSINESS SPONSORS
In addition to patronage from our many loyal Annual
Concert goers and individual sponsors, CWC fundraising
was substantially enhanced by our generous 2016
Business Sponsors.
Please patronize these businesses!
They support the elderly and their families
in our community.
The Ensemble ($1,000+)
Carlton Senior Living
Davis Sunrise Rotary
Davis Waste Removal
Symphony Financial Planning
learning to live (from page 1)
other close friends who totally get my dementia and me. They get
me and what I am going through because one has MCI and one
has FTD. With these two friends I do not feel as if I have to ever
hide my weirdness. With my other close friends, and even with
my husband, there are still times when I feel as if I have to hide
what is going on for me in my life. I do not know what I would do
without my relationships because as I am living with dementia I
have become very dependent on others. I have to wait for them so
I can do things.
I am no longer independent in my life or make decisions about
my life. I have become dependent, and for me that is the hardest
thing. Living with Lewy Body Dementia has changed my brain,
my relationships, and my life. I am just fortunate that my people
around me are people that I can trust, that understand dementia,
and know that I am always doing the best I can.
First published in 2016 Positive Approach, LLC Online Dementia Journal – February 2016.
(Reprinted by permission of Lauren U.)
family conflict (from page 2)
information can make coming together nearly impossible.
One often untapped resource is elder care mediation. Mediation is a guided discussion process, through which a trained neutral person helps families resolve conflicts and reach agreement.
A mediator meets first with each family member to get a good
understanding of what is important to each one. Afterwards a joint
The Chorus ($500+)
Atria Covell Gardens
First Northern Bank
Hallmark Properties
Swim America – Davis
University Retirement Community
The Accompaniment ($250+)
Brooks Painting
Kim Eichorn – Lyon Real Estate
Jeff Likes Clean Windows
Neighborhood Partners
St. John’s Retirement Village, Inc.
Todd & Barbara Photography
meeting is scheduled, where the mediator helps everyone address
the issues together. The process can include the elder individual(s)
themselves, or it can be between other family members. Topics
typically include issues surrounding the care of a parent or decisions the family is facing once a parent has passed.
Families are often surprised at how successful mediation is in
reaching resolution. They are initially fearful that coming together
will ignite a shouting match, or that the “unreasonable opponent”
will never move from their position. An experienced mediator can
take the heat out of charged conversations, structuring the dialogue
in a balanced and productive way.
For those concerned about airing the family’s dirty laundry,
there are strict rules of confidentiality within any mediation. There
is still the opportunity, however, to create an agreement that can
be taken out of the umbrella of confidentiality, if all participants
prefer.
Another reason mediation is so successful is that it is a voluntary process. Each person comes to the table wanting to move
forward, despite not knowing how to get beyond the fighting. A
mediator trained in conflict resolution can untangle the family
dynamics and help look at decisions in manageable parts, so that
families can focus on moving forward together.
If you would like to learn more about elder care mediation, contact Lora Barrett, a resident of Davis and an elder
care mediator. You may reach her by phone at 530-481-5672,
or by email at [email protected]. You can also find more
information at www.lbmediation.com.
Non-Profit Organization
U.S. Postage PAID
Davis, CA
Permit No. 13
P.O. Box 72650
Davis, CA 95617
Return Service Requested
SPRING 2016
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INSIDE THIS ISSUE
Davis Beer & Cider Festival 2016
New CWC Board Members
2016 CWC Volunteer of the Year
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Citizens Who Care’s Mission:
To improve the quality of life for the elderly
and their caregivers.
CWC STAFF
BOARD OF DIRECTORS
Joanne Bell, Executive Director
Cheri Kerr, Administrative Assistant
Stephanie Koop, Assessment Nurse, Davis
Susan McGibbon, Assessment Nurse, Woodland
Ellie Slaven, Director of Volunteers
Kathryn Skrabo, Senior Peer Counseling Program Director
Hiyasmin Espiritu, Saturday Club Program Director
Keiko Tokida & Kristina Rodriguez, Saturday Club Aides
Michael Lewis, President
Chris Hatfield, Vice President
Jane Millett, Treasurer
Lori Jennings, Secretary
Janet Carrere
Rose Cholewinski
Robert Dowling
Carl Eilers
Karen Eilers
Judy McDonald
Julie Sheehan
Walt Sykes
Toni Smith
Ken Wagstaff
Administrative Office
409 Lincoln Avenue
Woodland, CA 95695
(530) 758-3704
(530) 668-8780
Fax (530) 662-6866
Volunteer Services
(530) 668-8780
[email protected]
www.citizenswhocare.us
A United Way
Agency