annual review - The Children`s Hospital at Westmead
Transcription
annual review - The Children`s Hospital at Westmead
2015 ANNUAL REVIEW Over the past 20 years, The Children’s Hospital at Westmead has changed many thousands of lives. We have given a future to countless families. We have given them hope. With your continued support, we can give hope to many more families when they need it most. Thank you for being our partner in care. Front cover: Enzo, age 5 and Eloise, age 5 Back cover: Josephine, age 13 CONTENTS Chief Executive Message 2 2015 Highlights 4 Reflecting on 20 Years 6 Care in focus Neurology Cardiology Cancer Liver Transplants 10 18 26 34 Supporters 2014-2015 How to help 41 52 2 Our 20th Anniversary is an important milestone, not just a reason to celebrate the past two decades of The Children’s Hospital at Westmead, but to imagine the possibilities for the years ahead. Back in 1995, it was wonderful to move into our new Hospital, full of promise of things to come, lives to save. But our Hospital has never just been about our buildings or equipment, our backbone is our people. Our staff and volunteers, the children and families in our care and our valued supporters in the community are at the true heart of what we do. Within this Annual Review, we have chosen four focus areas – neurology, cardiology, cancer and liver transplants – to demonstrate the work of our Hospital, how far we have come since 1995 and our vision for the future. Please know that the impact of your ongoing support is felt throughout the Hospital – in the corridors, in the operating theatres, by the bedsides and behind the scenes in research labs. As donors, you are such a special and integral part of our Hospital. As the years tick by we need your ongoing help and support to ensure our facilities remain at a world-class standard. It is my hope you will share our vision and enthusiasm for the future. We can continue to evolve paediatric health care and use research to unlock some of the greatest medical challenges of our generation. Many more young lives can be saved if we continue to work together. Thank you for your support, your time and your kindness. I wholeheartedly assure you that together we are making a very real and positive difference to sick children and their families.. Dr Michael Brydon Acting Chief Executive Sydney Children’s Hospitals Network 2015 HIGHLIGHTS Transplants Bear Cottage This year a number of milestones were reached within our liver and kidney transplant programs. A record number of life-saving liver transplants were performed and we reached a total of 300 liver transplants and 150 kidney transplants. We launched the ‘Footprints in the Sand’ program at our dedicated children’s hospice, Bear Cottage, at Manly. With a record number of bereaved families to care for, Bear Cottage launched the program to provide ongoing support to families whose child has passed away. Surgeons also transplanted a liver into a tiny six-week old baby, Australia’s youngest ever transplant recipient. This was in response to the needs of families and the strong connection they feel to Bear Cottage, even after the death of their child. World First Hospital in the Home In a world first, doctors and researchers at The Children’s Hospital at Westmead are hoping to find a way to delay or prevent the onset of juvenile diabetes by infusing patients with their own umbilical cord blood. In an Australian first, The Children’s Hospital at Westmead adapted the ‘Hospital in the Home’ model of care to provide home care for a two-year old boy on the waiting list for a heart transplant. It is hoped that the cord blood will help ‘reboot’ the immune system to prevent diabetes, which occurs when the body attacks and kills its own insulin-producing cells. This allowed clinicians to provide care in the comfort of the child’s home to avoid spending over 100 days in hospital. 4 Celebration Bell 3D Printing A celebration bell was recently installed in the Oncology Clinic as a symbol of hope to mark the end of treatment for young cancer patients. The Centre for Children’s Bone and Musculoskeletal Health was established, including a 3D Orthopaedics Laboratory for engineering and prototyping bone implants for children using 3D printing technology. The beautiful ship’s bell is designed to acknowledge and celebrate the journey of cancer patients and their families and was installed after a suggestion from parents of children who had already been through cancer treatment. This innovative treatment approach is expected to dramatically improve outcomes for children with orthopaedic conditions. Graduation Equipment The Children’s Hospital at Westmead’s Diploma of Child Health Program recently celebrated the graduation of the first cohort of doctors and nurses from their International Postgraduate Paediatric Certificate in Zimbabwe. Outcomes for patients have been dramatically improved thanks to the purchase of a range of medical equipment with donated funds. The program has been running for 23 years, educating doctors and nurses in remote and developing countries. Some of the key items donated this year are a $2 million CT scanner, a ventilator and for the Grace Centre for Newborn Care, an additional bed for the Paediatric Intensive Care Unit, temporary pacemakers for cardiac patients and monitors for babies at risk of SIDS disease. Reflecting on 20 Years Friday 6 November 2015 marks 20 years since The Children’s Hospital at Westmead opened its doors to begin a new era of paediatric health care in Sydney’s west. In the past 20 years we have touched the lives of many children and families from NSW and beyond. We had treated 530,000 inpatients, almost one million emergency cases and have performed 280,000 operations on babies and children. Our 20th Anniversary is an important milestone, not just to celebrate the past 20 years, but also to look forward to the next 20 years, continuing to push the boundaries of child health and improve and save the lives of many more children when they need us most. Annalise, age 6 1995 2008 First described case of a patient’s blood type changing to match that of her organ donor Official opening of the ‘New Children’s Hospital’ 1997 1998 Established the first Tumour Bank in the Southern Hemisphere 1999 Clown Doctor Rounds started 2000 Not so ‘new’ anymore, the Hospital is renamed ‘The Children’s Hospital at Westmead’ 2001 Opening of Bear Cottage 2004 1995 - NOW Opening of the Book Bunker 2009 Opening of the Butterfly Wing for patients with eating disorders and their families 2009 Opening of the Kids Research Institute 2011 Opening of the George Gregan Playground Announced as a Nationally-Funded Centre for Hypoplastic Left Heart Syndrome 2012 First labyrinth in an Australian hospital 2013 First cancer gene therapy trial for aggressive brain tumours 2014 Opening of Hall Ward, the dedicated paediatric mental health ward 2006 6 Special visit to Bear Cottage by the Duke and Duchess of Cambridge 2015 Opening of updated Cardiac Catheter Suite Moving to Westmead was the realisation of the Hospital’s vision of creating a ‘total-healing environment’ Collin, age 6 8 Bella, age 6 EEG Monitoring 10 Care in focus Neurology Neurological disorders affect the brain, spinal cord and nerves and can have a significant impact on the quality of life of children and their families. Neurological disorders can be caused by a range of different problems such as genetic disease, infection or trauma. Some neurological conditions are life threatening, severely affect a child’s quality of life and can cause a life-long disability. At The Children’s Hospital at Westmead, the Neurology and Neurosurgery team is skilled in the use of innovative techniques and technology to investigate and treat neurological disorders. The team has pioneered some of these techniques in children in Australia. Surgeons are accomplished in the intricacies of paediatric brain and spinal surgery and rare disorders are diagnosed and treated in conjunction with Genetics Specialists. Diagnosing brain disorders requires the very best equipment and technology, with major funding from community donations. The Epilepsy Monitoring Unit was established in 2011 thanks to donations and has doubled the Hospital’s capacity to provide life-changing surgery to children with epilepsy. This has been a significant boost as 14,000 children in NSW have epilepsy and, for almost 30%, medication poorly controls their disease. THE BRAIN The hu m contain an brain s billion s of nerve c ell and rec s that send e around ive informatio n the b o d y. Children’s Hospital at “ The Westmead has given Eliza a second chance at life. She can now look to her future with hope instead of fear. “ 12 Eliza Watching Eliza paint, her bright eyes concentrating on the colourful detail and a playful smile crossing her face, it’s difficult to imagine her suffering debilitating seizures every few hours. But this was the heartbreaking reality for Eliza and her family when she was diagnosed with severe epilepsy at just five years old. “We felt so scared, anxious and helpless. The fear of the unknown was, at times, overwhelming,” Eliza’s Mum, Julia, said. Doctors at The Children’s Hospital at Westmead knew of a revolutionary new surgery that had never been done on a child before in Australia and decided Eliza was the perfect candidate. It wasn’t a risk-free operation though, with doctors warning Eliza’s family that the risks included stroke and loss of vision. The surgery, called Stereo Electro Encephalography (SEEG), involved drilling small holes into Eliza’s skull and inserting metal rods into her brain to allow surgeons to precisely locate where the seizures originated. Brain surgeons then removed the piece of Eliza’s brain causing the seizures, effectively curing her epilepsy. Eliza is now an inquisitive, fun-loving and positive girl who loves gymnastics and expressing herself through her painting and drawing. She is growing back her beautiful blonde hair after shaving her head for the surgery and hopes to one day become a famous artist. “The Children’s Hospital at Westmead has given Eliza a second chance at life. She can now look to her future with hope instead of fear,” Julia said. “It is truly incredible how far epilepsy treatment and research has come, even in the past few years. We feel so grateful and fortunate.” Vision for Neurology 14 The brain is one of the most complex and mysterious parts of the human body, even with today’s MRI technology which allows us to examine the structures and tissues of the brain in great detail. Twenty years ago, the brain was even more mysterious. Tucked away inside the skull with limited ability to localise brain problems, doctors resorted to observing a patient’s symptoms and taking a trial and error approach with medications and treatments. Our team within the Department of Neurology and Neurosurgery are now able to accurately diagnose neurological conditions and offer patients and families a range of surgical options that would have never been dreamt of when our Hospital first opened in 1995. One of the conditions that responds best to today’s surgical options is epilepsy. As you have seen in Eliza’s story, we were able to pinpoint where her seizures originated within the brain and remove that section, curing her of epilepsy without losing any neurological or physical function. There were no surgical options for patients like Eliza 20 years ago, with patients facing a lifetime of seizures, intellectual disability and risk of sudden death. While this surgical approach is still not suitable for the majority of children with epilepsy, it has been a dramatic addition to our range of options for some of the more severe cases. We are proud of how far we have come but we know there is much more that can be done in the future. We are beginning to scratch the surface of molecular genetics and personalised medicine. This will have a monumental impact on diagnosis and treatment for some of the rarer disorders we see. We are looking towards refining our use of medicines, in some cases adapting medicines developed for other illnesses to be part of the treatment regime for neurological patients. In the operating theatres of the future, robotic surgery will be an increasingly important technology for use by neurosurgeons. The convergence of new science and technologies may allow incurable diseases such as spinal cord injury to be treated and perhaps even one day cured. I see a promising future ahead where diseases that are untreatable in 2015 become treatable. We have many more lives to change, and indeed save, in the future. Dr Richard Webster Head of Neurology The Hospital has always been a happy and lively place, despite the serious nature of its work Sarah, age 4 16 Ben, age 10 Cardiac Stress Test 18 Care in focus Cardiology Almost one in every 100 babies born in Australia has a heart abnormality, with about one third needing some form of surgery or other intervention. Early diagnosis is crucial, with many major conditions now being detected while the baby is still in the womb. Heart surgery in babies and children is delicate, with the hearts of babies being barely the size of a walnut. Each year more than 3,500 babies, children and adolescents with congenital heart disease are diagnosed and treated by the Heart Centre for Children at The Children’s Hospital at Westmead. Donations have supported and enhanced the work of the cardiac team for many years. Recent community support has contributed towards the upgrade of our cardiac catheter laboratory and cardiac ultrasound machines, and fundraising towards a new heart-lung machine is underway. THE HEART A healt hy beats 1 heart 00 times e ,000 very da y. first birthday “ Jake’s party will be a celebration of his life, “ 20 Jake Jake’s first birthday party will be a celebration of his life, which has been hanging by a thread more than once. Jake was born with congenital heart disease, with a hole in his heart and his main heart valve being too narrow to effectively pump blood around his tiny body. “We were elated to be welcoming another boy into our family but his diagnosis was like a bomb going off in our lives. We could not believe this was happening to our family,” Jake’s Mum, Carli, said. After cuddling her newborn son for less than a minute, he was whisked off to The Children’s Hospital at Westmead for the first of many heart operations at just two days old. The most complex operation so far was when he was six months old and his faulty heart valve was replaced with a donor valve, an 11-hour operation during which his heart and breathing was stopped for five hours by a state-of-the-art heart lung machine. “This was a huge operation for my baby boy to endure. In the days after the operation he had a cardiac arrest, seizures and developed life-threatening pneumonia. He was in the Intensive Care Unit for 23 days. What he went through, what we went through as a family, was almost unbearable. I wouldn’t wish that on anyone,” Carli said. After all he has been through, it’s amazing to see how calm and content Jake is, with a huge smile that lights up the room. “There are simply no words to describe our feelings of elation that Jake is here with us today. When we look at our little miracle boy we are filled with gratitude to his amazing doctors and hope for the future” said Carli. Vision for Cardiology Our cardiac care over the past 20 years has impacted tens of thousands of families with children ranging in age from babies in the womb to adolescents. I can remember sitting in a planning meeting at the old hospital in Camperdown in the early 1990s and thinking about the next generation of paediatric heart disease care. What resources would we need? How would care evolve over the coming years? What challenges would we face? One of the main areas of growth within paediatric cardiac care since we relocated to Westmead in 1995 has been our surgery program. We provide safe, reliable, world-standard surgery outcomes for patients, many of whom are newborn babies with complex heart defects. Our diagnostic capabilities have developed greatly, especially through fetal cardiac imaging. We have pioneered in interventional cardiac catheterisation, to provide minimally invasive diagnosis and treatment of heart conditions. Heart disease is the leading cause of death from congenital abnormalities in infants under one year old and represents one third of all birth defects. This drives us to strive towards refining and expanding our understanding of why these abnormalities occur and how to provide better futures for these children and families. One area of research and development is the genetics of congenital heart disease and how we can use this knowledge to create new opportunities. Stem cell work is now our focus, which will bring new possibilities for treatment opportunities that will have much improved long-term outcomes for patients. This is science at its best – translated from the laboratory and applied at the bedside. We will continue to invest in our DNA Bank for Congenital Heart Disease. To date there is no known cause for the majority of congenital heart diseases. Our research through our DNA Bank aims to establish links between changes in genes known to be involved in heart development and heart disease. This allows worldwide collaboration and increasing capacity to unlock some of the mysteries of heart disease. This and much more is possible through our ongoing commitment to improving care and with continued support from the community. A/Prof Gary Sholler Head of the Heart Centre for Children and Director of Cardiac Services, Sydney Children’s Hospitals Network 22 Care, research and education comes together in one place to create a hub for child health Jack, age 4 24 Emily, age 4 Chemotherapy Treatment 26 Care in focus Cancer There are three types of cancer that can affect children. The most common childhood cancer is within the blood cells, known as leukaemia. There are also cancers of tissues and organs, known as solid tumours or sarcomas, and cancer of the brain and central nervous system. The Cancer Centre for Children at The Children’s Hospital at Westmead is a comprehensive referral cancer facility for children in NSW, providing medical care and support services to over 160 new patients and their families every year. Facilities include an accredited blood and bone marrow transplantation unit, dedicated 30-bed in-patient ward, a day-stay treatment centre and a long-term follow-up clinic to monitor general health and long-term effects of cancer treatment on children. Metropolitan and regional outreach support services are also provided within the community. Over 4,000 children and adolescents with cancer have been treated by the Centre since 1980. Over 75% are alive today because of advances in therapy, supportive care and intense research efforts. Donations to the Cancer Centre for Children not only directly support the clinical care of young patients but also fund pivotal research into developing more effective and less toxic therapies and ultimately understanding how and why cancers develop in children. CANCER Cancer st when s arts ome of th body’s trillions e o cells st art to g f row out of c ontrol. are braver and more “ We optimistic towards life. We have learnt to treasure every day and to give back what we can. “ 28 Neil Neil’s Mum, June, will never forget the moment her son turned from the computer and said, “Mum, I think I have leukaemia.” After Neil felt unwell for days, a doctor at their local medical centre suggested blood tests to find out the underlying cause of his illness. After searching for the symptoms of leukaemia online shortly after the appointment, Neil felt certain he had cancer of the blood, a diagnosis soon confirmed by doctors at The Children’s Hospital at Westmead. “It was a huge shock to us. We were devastated. Our life was turned upside down from the moment Neil was diagnosed,” June said. At just 10 years old, Neil embarked on a two-year journey of the latest drugs and treatment options. It was a harrowing and demanding time for Neil and his family. The chemotherapy took its toll on his young body and at times it seemed he just didn’t have the strength to carry on. Neil completed his program of therapy earlier this year when he was given the all-clear. He is now feeling strong and healthy again and is excelling at high school, much to the delight of doctors and his whole family. “Neil’s older brother decided to study medicine after seeing what he went through. Neil hopes to follow in his big brother’s footsteps and also study medicine at University. Together they hope to make a real difference to the lives of others,” June said. “My family has changed in many ways since Neil’s illness. We are braver and more optimistic towards life. We have learnt to treasure every day and to give back what we can.” Vision for Cancer 30 Cancer impacts almost all of us in some way at some time in our lives. A cancer diagnosis for a child is least expected and usually has the greatest impact on loved ones. Each year at The Cancer Centre for Children, we see many children who are newlydiagnosed with cancer and are about to embark on the demanding treatment journey, usually involving a combination of surgery, chemotherapy and radiotherapy. We support the whole family and directly involve them in their child’s treatment using a multidisciplinary team-based model of care and follow up that continues long after the treatment has finished. This comprehensive approach to care is underpinned by a strong commitment to research. The value of investing heavily in a robust clinical trials research program is fundamental to our quest to improve outcomes for children with cancer. Clinical trials involve rigorous scientific research to refine and improve treatment strategies for children with cancer. We are leading the way in innovations in gene therapy clinical trials, brain tumour research and understanding the biology of cancer. We have a strong commitment to the continued expansion of our Paediatric Tumour Bank, the first of its kind in the Southern Hemisphere. We are uniquely placed in having both the cancer research and clinical care units of the Hospital working closely together under the same roof. This allows us to directly ‘translate’ discoveries in the laboratory and through clinical trials directly to improved treatment at the bedside. Recent enhancements in research technologies have greatly assisted the process of developing treatment approaches that are both disease and patient-specific, known as personalised or precision medicine. We work in close partnership with other hospitals and research institutions to achieve much of this important work. This technology will ultimately enable us to understand why we fail to cure 20% of children with cancer. Researchers will gain the experimental tools to pinpoint weaknesses in cancers, identify new therapies and drugs and to minimise the long term impact of treatment. This will revolutionise the way we treat and care for children with cancer in the future. Our Cancer Centre for Children has the ‘Skill to Heal, the Spirit to Care and the Vision to Cure’. Dr Luciano Dalla-Pozza Head of the Cancer Centre for Children Keziah, age 5 32 The artwork, gardens, cafés and the sound of children all contribute to the special ambience Amaiyah, age 11 months Liver patient 34 Care in focus Liver Transplants A liver transplant is a major surgical procedure for a child with liver failure. Over half the children needing a liver transplant have biliary atresia, an aggressive disease that destroys the bile ducts that drain the liver. This disease has no cure and, if left untreated, results in liver failure. At any one time, six to eight children are on the liver transplant waiting list at The Children’s Hospital at Westmead, their lives hanging in the balance as they await the precious gift of life. The Children’s Hospital at Westmead is the biggest paediatric liver transplant centre in Australia and performs an average of 15 liver transplants each year. Children from South Australia, Western Australia, Australian Capital Territory and the Northern Territory travel to Westmead for this life-saving surgery which is not available closer to home. As the liver is the only organ in the body that can regenerate, transplants can be successful using only part of a liver. Having a child on the waiting list for a liver transplant takes a toll on the whole family, especially as most of the children are under three years old. Over the years, financial donations from the community have helped to create vital support services for these families in their time of greatest need, as their child awaits transplant and along their road to recovery. THE LIVE R The live r largest is the so organ i lid nside th e human body. take one day at “ We a time. We appreciate life and each other so much more after what we have been through. “ 36 Maddie Pretty-as-a-picture Maddie loves having a princess tea party just as much as she loves playing superheroes and villains with her big brother. She is so full of life, thanks to her gift of life. Maddie’s birth was bittersweet for her Mum, Ansi. She was overjoyed to be welcoming her daughter into the world but anxious about what lay ahead. Her precious baby had been diagnosed with heart and other problems during a pregnancy scan and doctors were already planning surgery during her first months of life. “As parents, it’s our job to protect and look after our children. But in this situation we felt utterly useless,” Maddie’s parents Ansi and Jimmy said. Maddie successfully underwent cardiac surgery but it became apparent that she had another unusual congenital condition – the absence of her portal vein, which usually drains blood into her liver. This was causing her liver to be compromised, so doctors made the brave decision to place her on the liver transplant list. This was a nervous time for Maddie’s family and health care team. A transplant for a child with her condition was uncommon, with no guarantee that her oxygen levels would recover even after a successful operation. The donor liver was successfully transplanted into Maddie’s frail body and she began to slowly become healthier and stronger. There is a long road ahead for Maddie with more treatment planned, as well as immunosuppressant medication, for the rest of her life. But for now, she is enjoying being a normal, happy little girl. “We take one day at a time. We appreciate life and each other so much more after what we have been through. There is nothing more important in this world than family. Nothing else matters.” Vision for Liver Transplants This year is a double celebration for our Liver Transplant Team at The Children’s Hospital at Westmead as we not only mark our 20th year since relocating from Camperdown, we also performed our 300th liver transplant. We have doubled our rate of transplants over 20 years and have significantly improved patient survival. Improvements have occurred across the broad range of activities and specialities involved in liver transplantation – organ donation and preservation, transplant surgery and anaesthesia, post-operative care in the Intensive Care Unit, ward nursing, nutritional rehabilitation and development of better anti-rejection drugs. This requires a dedicated team of health care professionals all caring for the child and their family in a holistic fashion. The survival rate for children one year after transplant is now 95%, which represents world-class outcomes, and we are working towards achieving 100%. We have developed the use of ‘split’ liver grafts where one donor liver is used for two recipients – the large part goes to an adult and the smaller part to a child, which is technically more challenging for our surgeons. In 2008 we reported a world first, where a child who had undergone a successful liver transplant experienced spontaneous bone marrow transplantation due to donor cells within the transplanted liver. Earlier this year we successfully performed a liver transplant on one of Australia’s youngest and smallest transplant recipients – just six weeks old and weighing only 2.7 kilograms. By far one of the biggest challenges we face is organ donation rates. Although they have increased by 50% over 20 years, we can still do better. We are as excited about our future as we are proud of how far we have come. Gene therapy and genomic sequencing is an area of exploration, particularly matching appropriate immunosuppression to patient characteristics. We are exploring the suitability of immunosuppression withdrawal to determine which patients can safely come off anti-rejection drugs. I’m excited about the future possibilities for transplants through the combination of world class care and ground-breaking research. Dr Michael Stormon Head of Hepatology 38 The purpose behind the design of the Hospital is simple - to provide a caring atmosphere for families Nemanja, age 5 40 2014 – 2015 Supporters Sir Charles Clubbe KBE Award Sargents Pies Charitable Foundation The Kids’ Cancer Project Woolworths Supermarkets Inaugurated Founders 2014 – 2015 Estate Late Adolina Zanatta Estate Late George & Roberte Lomaz Estate Late John Brisbane Bedwell Estate Late William Francis Chapman Helen M Economus Sydney Trains The Wishaw Family Estate Inaugurated Benefactors 2014 – 2015 Amway’s One by One Foundation B.Braun Australia Pty Ltd BlueScope Steel Limited Bob (Tug) Wilson’s Walk for Kids with Cancer Camp Quality Limited Era Polymers Pty Ltd Estate Late Mary Elizabeth Croxon Estate Late Ronald Frederick Doyle Kapstream Capital Liangrove Foundation Pty Ltd 2UE Radio The Shaw Foundation Thiess John Holland Dragados Tony McCullough Foundation Trust Woodhead Family Benefaction Founders A Bear Affair Committee Bridgestar Pty Ltd Clubs NSW Eastern Zone Bear Cottage Cornucopia Committee Inc Emerald Ball Committee Fight Cancer Foundation Fire and Rescue NSW Grace Gala Committee Humpty Dumpty Foundation James O Fairfax AC Jardine Lloyd Thompson Pty Ltd John & Lois Turk Charitable Gift Kids with Cancer Foundation Robert Albert AO Sir Robert & Lady Mollie Askin Charities Trust Sporting Chance Cancer Foundation Sydney Trains The Australasian Order of Old Bastards Southport Qld RSL The George Gregan Foundation The Macintosh Foundation The Petre Foundation Volunteers – The Children’s Hospital at Westmead Benefactors 4 Tracks 4 Kids 400 in 4 Charity Ride Allergan Australia ANZ Stadium Caring for Kids – Bankstown Group Coca-Cola Amatil (Aust) Pty Ltd ConnecTeD Foundation Incorporated Costco Wholesale Australia Pty Ltd DOOLEYS Lidcombe Catholic Club Dunn Family Trust Fund Ellaleen Bryer Endeavour Energy Australia Fire and Rescue NSW – Katoomba Firefighters Calendar Footwear Leather & Allied Trades Cot Fund Harold Wilson (The Late) ICAP Australia Pty Ltd J & G Bedwell Endowment K & G Gluck Trust Lions Club of Carlingford - Dundas Lowy Foundation Pty Ltd Macquarie Group Foundation Limited Margaret Pemberton Foundation McGrath Mazda Liverpool Medtronic Australasia Pty Ltd Mirvac Homes Pty Ltd NRMA Insurance NSW Rural Fire Service Ottomin Foundation Owen Miller Foundation Parramatta Leagues Club Ltd PKU Association of NSW Inc. 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RCR Tomlinson ResMed Limited Rest Industry Super Roche Products Pty Limited Rotary Club of Balgowlah Rotary Club of Belrose Rotary Club of Bombala Rotary Club of Brookvale Inc Rotary Club of Frenchs Forest Rotary Club of Holroyd Inc Rotary Club of Pennant Hills Inc Rotary Club of The Hills-Kellyville Rouse Hill Renegades Rugby Rydges Hotel Ltd S & L Steel Group Pty Ltd Sauer’s Bakehouse Pty Ltd Scott Electrical Services Pty Ltd Serendipity Craft Group Seven Hills Toongabbie RSL Club Ltd Seven Network Operations Limited Shop Distributive & Allied Employees’ Association Shorrock Partners Pty Limited SIDS Stampede Slater and Gordon Lawyers Smith Charitable Fund Snell’s Vending Pty Ltd – Beverly Hills Steps for C.F. St Johns Park Women’s Bowling Club Stage Artz Starbucks Coffee Company (Australia) Pty Ltd – Westmead Statewide Design & Print Pty Ltd Stephen Richardson Memorial Golf Day Stockland Sydney Mariners Sydneysiders Express Inc. Tabcorp Holdings Ltd Tak Fuk Investments Pty Ltd Tangalooma Resort Team Bianca Team Lochie Telstra Corporation Limited The Australian Reinforcing Company The Blackmore Foundation Pty Ltd The Carrawa Foundation The Cerebral Palsy Alliance The Children’s Help Foundation The Dick and Pip Smith Foundation The Doll Collectors Club of NSW The Good Guys Foundation The Humour Foundation The JB Bedwell Endowment The King’s School The Lansdowne Foundation The Lee Falk Memorial Bengali Explorers Club The Mill House Foundation The Philip Bushell Foundation The Rodney & Judith O’Neil Foundation The Rotary Clubs of District 9690 The Schwinghammer Foundation The Wales Family Foundation Pty Limited Thermomix-Sydney North Branch Tino Vella Design Toplace Pty Ltd TOPS Celebration Concert Trade West Pty Ltd UBS AG Australia Branch Ultimate Sign Installations Pty Ltd Valvoline Australia Pty Ltd Van Dam & Associates Vietnamese Catholic Community Vision Personal Training Vitaflo Australia Pty Ltd Vittoria Coffee Ward Civil & Environmental Engineering Pty Limited Ward Family Trust Westfield Group Westfield Parramatta Westfield Warringah Mall Westmead Medical Research Foundation (WMRF) Westpac Wiggles and Giggles Child Care Centres Woodend Pty Ltd Yuhu Group Zanx Welding Pty Ltd Zipper Tickers Fundraising ZWF Pty Ltd 44 Major Supporters Individuals Eva Abdelmessiah Anthony Aboud David & Elizabeth Adams David Adams Adamsas Family Lenore Adamson Lisa Ainsworth Chris Aldridge Sue Aldridge Fundraising Michael Alexander Constantina Alifakiotis Felicity Jane Allen David & Janine Allman Gloria Amedee Brendan Ames Alistair Anderson Valerie Appleroth Takako Arain Michael Aristides George Armstead Parmy Army Garo Artinian R J Austin & J L McDonnell F & J Au-Yeung Henry Aw Ruth Ayling Lynette Bain Peter & Betty Baines Dhruv Bajaj Jeanette Baker Elizabeth Barber Maria & Nino Barca Peter Barclay E Barker Reginald Barrett Sophie Bartho Ken Basha Terrence Bates Lucinda Batey Corinne Bautista Argeo & Yvonne Beletich Yvonne Beletich Evelyn Bell K Bell Max Benjamin Lana Benson Gwen Beresford Hertha Berger Tracey Berger Alex Berlee Esther Bernie Daniel Betros Ernest Bickford Sarah Bishop Charles Blackburn Stephen Blackler Leslie Blackshaw Aileen Bleus David Blom C Blomfield Joyce Blomley Zelene Bloom David Bloom QC Bruce Bolam Alan Bootes Vincent Bosco Fundraising Therese Boustany Phillip Bowering Daniel & Jessica Boyson Mollyjane Boyson Fundraising Peter Braithwaite Judith Bridges Annie Brown Jenny Brown Fundraising Maxwell & Annie Brown Leo & Anne Browne Norman Brunsdon Mark Bryant Peter Budd Lily & Charlie Bugeja Marius Buitendag Ron Bulla Richard & Susan Bunting Allana Burke E Butler David Cable M Cahill Ian Cairns Ron Callus John Cameron Charles Campbell Peter Campbell Suzanne Capuano Cherri Carol Brian Carpenter Darren Carr Rachel Carroll Jonathan Castley Barry Chambers Justin & Isabel Chan Teddy Chan Wayne & Carolyn Chan Lang Thi Chen William & Lily Chen Ashish Chhabra William Chiu Michael Chrisostomos Tai Chuang Yi Chung Rudolf Cikan Erin Claire Jo Clancy A M Clark Patrick Clark Ross Clark Lisa Clay M Clift Salvatore Coco Bernard Cohen John Cola Joanna Collins David Colmer Patrick Concannon David Conley B Conybeare Jennifer Cook In memory of Patrick Coombes Timothy Cormack Frank Costa Darryl Courtney-O’Connor Samantha Craig S Crofts Trevor Croker Peter Crossing Faye Cruickshank & Friends Mitchell Crump Roderic Cullen Cindy Cunningham David Cunningham Alan & Suzanne Curgenven Tony D’Amore George Daniel Wayne Darcy Eilise D’arcy Marco & Alice Davalos James Davern Chad Davies Craig Davies Kelly Davies L Davis E B Day Kim De Cean Keith de Jong Santiago De Silva Jan Deagan Michelle DeCeglie Ian Delaney Ardavaz Delir X Demosthenous Phil Dempsey James & Mavis Denman Suat & Lauren Dervish Baljinder Kaur Dhariwal Antonio Di Dio Charlotte Di Mascio & Friends Fasissal Diab Thomas & Maria Diep Linda Dimech Nick Dimou Leo Diniotis Harry Dixon Gavin Doak V L & S A Dolfo Bette Dolman Elizabeth Dossetor Elizabeth Dowton Sarkis Draybi Anthony Drew Ansi Drury Yoram Drutman Rebecca Duda Fundraising Tien Dung Dang Mohammed Dunia John A Dunlop AM & Family Georgia Dunn Imraan Ebrahim Michael Egan Sonia Eggins-Allman Ahmed Elarif Steele Ellaway Elizabeth Elliott Hazel Elsley Mark Elworthy K Emery Peter Evans Susan Eves Elizabeth Ewen Stephen Facer Shane Fagan G Falk John Fanning Enid Farrow Gero Farruggio David Farrugia W Farwerck Vincent Fayad Joseph Fayyad Robert Fazzari Darin Ferguson Jeanette Ferguson Stephen Ferguson Ellen Ferrington Michaelis Dallas Finney Angus Firth Diane Fisher Josephine Fisher John Fitzgerald Gary Flanagan Jean Flood Michael Forrest Grant Forster Barry Foster Guy Foster Rick Foster David & Ines Frearson Mr & Mrs Freeman Leone Friend Jonathan Frost Richard Fry Merv & Jenny Fullford Ernest Fung Eugene Gabin David & Gillian Gale Dean Gale Carolyn Galvin Shirley Gardiner 46 Bradley Gavenlock A & R Geracitano Joseph Giandomenico Elizabeth Giannone Richard Giannone Ginsberg Family Toni Gluseki & Romona Roche Elaine Gock-Young Meeta Goel Marjorie Gollop Joseph Gomes Lewis & Jennifer Gomes Alexandra Goodfellow Joseph Goodman B & T Gorman J Goubran Gary Goundrie Geoffrey Goundrie Sanjeev Goyal N Grace Megan Grace James Graham AM Cheryl Grant Louisa Grant John Gravina Michael & Carolyn Gray Robert Gray Warren Gray Joe & Carmen Grech Sebastian & Rach Green Allen Greenhalgh & Julie Sheridan Paul Greethead Anthony Gregory Richard Gremmo Alan Griffiths James Guilfoyle Hasantha Gunasekera Eddy & Valerie Gwendoline De Marco Kenneth Gyde Georgina Gye David & Mai Ha Aju Hadiwijaya L & Vera Hall Roger Hallaran Warren Halloran AM Edward Halmagyi AM & NS Hammond Peter Handel Louis Hanna Alan Harris F & E Harris Justin Harris Nicholas Harris Pepper Harris Richard Harris Stephen Harris J Harrod Jean Hay Jayson & Beverley Haydon Greg Hayes Thomas Hayes Rhonda Haynes Margaret Hayter Simon & Fiona Hellams Val Henning Luke Hepworth Mandy Herring Timothy Hext Michelle Higgins Wendy Hinks Alex Hall Himitsu Gy Ho Thi Ho Tam Xuan Hoang Tom Hobbs Fundraising Roslyn Hodgkins Geoffrey & Tina Hodgkinson James Hodgkinson Cassandra Hogan Cath Hogan Sue Hogan Jessie Holliday Sally Holliday Mary Holt Adam & Louise Hopcroft Jessica Hore Bruce & Patricia Houston Jordan Howarth Kenneth & Isabelle Howells Doug & Beryl Howlett Peter Hsu Peter Hudson Richard Hudson Brendan Hughes Richard Hughes Ryn Hughes Bradley Hunt Patricia Huntley Khanh Huong Do Doug & Hilary Hutchinson Mark Hutchinson Winnie Huynh Wendy Hyett Steven Iannello Biljana Ilkovski Robert Ingham OA Cecil Isaac David Isaacs Cynthia Jackson Julianne Jackson Bruce Jackson Johann Jacobs Veronique Jadoul Matthew James Phil & Lizzie Jamieson Arvin Jamshidi Ian Jedlin Christopher Jessop A Johnson Athol Johnson John Johnston Michael Johnston Catherine Joice Timothy Jones Ann Jooste-Jacobs Avinash Joshi Paul Joyce Lincoln Jurd Jurd D Kaal Andrew Kanatli Ann Karmanchuk Alex Katelanis John Katelanis Elaine Keane Phillip Keen V Kelsey Dallas Kelso Justin Kennedy Nicole Kennedy Keith Kent John Keogh Christopher Kerr Kim Kertesz Megan & Gagan Khannah Darren King Richard Kirby Lorna Klein Ron & Shirley Knight Emanuel Kokas In memory of Alice Kondrajian Damien Koreas Namrata Kotecha Peter Kreljak Kim Kyoung Im Betty Lai Jack Lam Joy Lambert Edward Lance Ada Latham Jill Laurent Penelope Lawler Jeffrey Lay Eunsuk Lee Mee-Mee Lee Patricia Lee Swan Lee Jeffrey Lees Niall Lenahan Mike Lewis Richard Light Thomas Lin Judy Lipman Lina Lo Campbell Lobb Edward Loong Roy Lopresti & Family Erin Low Michael Lowe Steve Loxton Emily & Ben Luke R Lynch Alan Ma Meryll Macarthur Pauline MacDonald Bridget Mackay Gordon Mackay Malcolm Mackay Pamela Mackay Joan Mackisack Michael Madden Dale Maguire Joseph Mai Barbara Maitland Rachel Mangan Natalie Mantakoun Nadine Maraldo V & E Mariani Mariani Bill Marinic Yvonne Marra Gino Martignago Angus Martin Carina Martin Helen Martin Michael Martin Anne Masi Paul & Anne Masi Bruce Mason J Mataere Robert Mather Jennifer Matthews John Mattingley Roy Maxwell Belinda Maynell Patricia McAlary Krystell Mcardle Anne McBeath Edward & Caroline McBride Irene Mccadie Kevin & Deidre McCann Marilyn McDonald Matthew & Jo McEwan Brian McFadyen Blake McGee Fundraising Joshua & Natasha McKean Noel & Lee McKee Anita McKenzie Bruce McLennan Belinda McMahon Christie McMillan Julie-Anne McMillan Michael McNee Rose McNeill Paula McPhail T McPherson Elizabeth Meagher Adam Meally Graham Meany Sam Mehr Anastasia Melopoulos Francesca Menniti Roshan Menon Chris Mentis Tempe Merewether Joseph Mete Natalie Mete Jeff Mexon Mik Micallef RJ & M Miles Betty Miller Kyra Miller George Miltenyi Blake Mitford Nicole Momirovski Michael Monaghan Daniel Mong Stan Monroe Jeanette de Montemas David Moore Gwyneth Morgan Catherine Moroney John Moujalli Mr & Mrs Moulson David & Margaret Mullen Dennis Muller David Munro Hamish Murchison Brian Murphy Carmelo Mustica Robert Neale Arthur Neeson Marc Nemorin Sue Netterfield Lorraine Ng Anil Mudaliar Thi Nguyen Gia Thien An Nguyen John Nguyen Thanh Vuong Nguyen Van Nguyen Cassandra Nicholls Vince & Jennifer Nicita Mario Nicomede Anastasia Nikitina Rowena Nilsson Ralph & Fiona Nixon Alexander Norrie Stephanie Notaras Liliane Novak John O’Brien Anne Marie O’Connell John O’Connor (The Late) Pam O’Donnell Richard O’Flynn Tim Oliver Daniel O’Neill Michael O’Neill Ronald & June Oriel John Duffy Orora Marino Orozco Anthony Osmond Katherine Ostin Carsten Palme Chris & Valasia Papadakis Jamie & Debbie Papagianopoulos Allan Parapuram Prudence Parkhill Richard Parkinson Tim Parmenter Dominic Parsons Terry Parsons Sagar & Rasikbhai Patel Sanjay Patel Brett Paton Scott Paul Julie Peacock Nathan Peats Sarah Percy Dove Karan Perkins Stephen Perks Christine Perrott Mira Perry Heather & Bill Peters Andrew Phillips Elizabeth Phillips Gail Phillpott Robyn Pickworth Geoffrey & Sue Pike Giridharan Pillai Giovanni Pilu M Pitts Justin Playfair Reg Pollock AM Gary Pontifex Armaity Prasad Peta Price Carolyn Priestley H Prodinger Kim Prodinger Noi Pung Mary Puskas Jonathan Pye D & Sonia Quarisa A Quattroville H Quinlan Antonia Quispe Graham Marinne Radforf Margaret Ralston David Ratner Carol Re Rodney Reberger Stephen Reed Luke Reeves Melissa Reeves Velma Reibelt A Reifenstein Claus Reiner John Rendle Lesley Riach Jane Rich Matthew Richardson Renee Richmond Steve Riddington Walbert Roach Craig Roberts Grace Roberts 48 Anthony Robertson In memory of Taylor Robins Neil Robinson Sorcha Roche Julie Rogers Yufeng Rong David Rose Shelagh & Victor Ross Pamela Rounce Peter Rowe Gavin Rozario Peter Russell Britta & Ross Ryan Geoff Ryan Gerald Ryan Kevin Ryan Tania Saad Sharmin Saadullah Sayed Sadat Mohammed Saheed Marc Saldanoff Adele Saliba Fundraising Danyela Salmon Weng Sam Ruth Sampson Mario Sande Benjamin Sanderson Fundraising Anna Sansone Daniel Sant Allan Sarkis Danny Sarkis Simona Sartorel Michael Satterthwaite Richard Saxby Stephen Schreiber Joe Schubert Sharyn Schultz Pera Sciberris Bryan Scott Gordon Scott Meredith Scott Paul Scott Salina Scott Gregory Scriven Norman Seckold Maurice Segura Vivian Shalala Shahinda Shamaissem Manish Sharma Ken Sharpe Craig & Danielle Sheehan Connor Sheil David Sheil Mary Sherwood P Shirriff Chris Shore Navkamal Singh Sidhu Hedley Simons Gurvinder Singh Piyush Sinha Mark Sirotti Mary Siu Lalithambal Sivasanthakumar A Siviero Carli Skurnik John Slade Carole Slee Eva Sloukova Cassandra Small John Small Alan Smith Jennifer Smith Paul Smith Robert Smith Ronald Smith Ross Smith Sarah Smith Tony Smith Trevor Snape Ronald So Aravinthan Somasunthara Bharathy Michael Soper Rose Sorial Freerk Speckmann William Jardine & Rachel Spooner Will Spooner Joyce Sproat Jennifer Staley Ian Stanley Mark Stanley Campbell Stannard Jodi Steel Maddison Steffe Mark Steglick Alison Stephen Malcolm Stephens Emma Stevens Jennifer Stevenson Valma Steward Colin Stewart James Stewart Cheryl Stoffberg Murray James Stokan Irene Stone Kylie Streeter Terry & Beverly Stroud Mark Suter Nadia Sutherland Kelly & Richard Sweet Anthony Sweetman Edite & Daisy Tang Diana Tang & The Tang Family Christine Tarabay Kathleen Taubman Paul & Christie Taylor Peter Taylor Nick Taylor & C Jones & Family Joycelyn Teh Brook Thomas Jodie Thompson John Thompson Katherine Thompson Mary Thompson David Thoms Paul Threlfo Hua Tien Hugh & Colleen Tighe Bruno Tisano Stanley Tjhai Robert Tobias Murray Tobias Edward Tomicki Millie Tong Wendy Tonkin Daniel Tran Ngan Tran Dr Trigg Thanh Phong Truong Anh & Hong Tuan Stuart Tucker David Tynan Armin Ulrich James Unger Anthony Valos Anthony Van De Putte Karen Van Kretschmar Warwick Vance & Kerry Cambridge Albert Vandenberg Mitch Vanreydk Jacqui Vanzella Margaret Veitch John & Marianne Vella & Family Amanda Versace Pedro Vicente Maese Tony Virtue Michael Volikas Dru Von Drehnen Milena Vrankovic Van The Vu Juliana Vukas Sam Wadsworth Tony & Gai Wales Philip Walker Mark Walker Barbara Wallace Colin Waller Madeline Wallis M Warburton June Ward Mal Ward Philippa Warner Sudhir Warrier Edna Warsidi John Watkins-Wilson Marjorie Watson Andrew Watt Gregory Watts Peter Watts Ross Webster Caroline Wells Garrie Wells Julia Wells Roseline Welsh Paul Westcott Rob White Simon White Rene White Hamish Whitemead Malcolm Whitten H Whitton Hilary Whitworth Michael Whyte P & J Wilding Lisa Wilkinson R & A Willcocks R Willcocks Glenn Williams Kim Williams Nikki Williams Paul Williams Don Wilson John & Adrienne Wilson Stuart Windybank Bik Ching Wong Gary Wong Michelle Wong Peter Wong Ruwena Wong Norma Woods Julie Woolfenden Helen Wootton R Yabsley Lynn Yager John Yates Carol Yee R & Y Young Alex Zak Jing Zhang Yu Zhou Rosie Zofrea Goodwill Ambassadors Melissa Doyle Steve Jacobs Jessica Rowe Louise Sauvage OAM Your support is what makes us a unique and special place. Thank You 50 Rosalie, age 3 52 How to help Your generous support of The Children’s Hospital at Westmead is greatly appreciated by our patients, families and staff. Our life-saving work would be greatly diminished without your support. Every dollar counts in our quest to save precious young lives. Title: Mr Mrs Miss Ms Leaving a gift in your will, no matter how large or small, is a wonderful legacy to leave for the next generation. Other: ______________________________________ Please send me information about leaving a gift to The Children’s Hospital at Westmead in my will. 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Please contact our privacy officer with any queries via [email protected] You can change the frequency or way that we communicate with you by calling us on (02) 9845 3367. If you do NOT want to receive any future communications from The Children’s Hospital at Westmead please tick this box. Occasionally we allow other like-minded organisations to contact you with information that may be of interest to you, including some organisations located outside Australia. Those organisations allow us to do the same and this helps The Children’s Hospital at Westmead to reach more people with vital information. Please tick here if you do NOT want to receive communications from organisations we trust. Please forward your gift to: Fundraising Department The Children’s Hospital at Westmead Locked Bag 4001 Westmead NSW 2145 Phone: (02) 9845 3367 Fax: (02) 9845 3457 bandagedbear.org.au Your gift of $2 or over is tax deductible. Funds will be used at the discretion of the Chief Executive to improve the health and welfare of children cared for by The Children’s Hospital at Westmead. CODE: ANNUALREVIEW2015 Exp date:____________________________________ Name on card: _______________________________ Signature: __________________________________ Thank you for your valued support. Thank you to the children and families who are featured in this publication. Financial information can be accessed via The Sydney Children’s Hospitals Network Annual Review at schn.health.nsw.gov.au ‘Care in focus’ photography by: Michael Amendolia Anastasia, age 2 THANK YOU Mia-angel, age 4 Fundraising Department The Children's Hospital at Westmead Corner Hawkesbury Road & Hainsworth Street Westmead NSW 2145 Australia Locked Bag 4001 Westmead NSW 2145 Phone: (02) 9845 3367 bandagedbear.org.au PRD2534/1015 © 2015 The Children's Hospital at Westmead