andrée ruffo: when chiLdren come first

Transcription

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Volume 8, number 3, 2015
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1
Language development in
preschool children
Andrée Ruffo:
When children
come first
© Lobe Magazine 2015
lobe.ca
brand new baby: time to care
for its hearing!
Hearing children with
deaf parents: impacts on
language development
lobe.ca
2
The bell just rang—
time to go back to school!
As always, summer just flew by. After filling up on fresh
air and sunshine, Quebec students are getting ready
to go back to class. For the new school year, you have
carefully purchased every single item on the looooong
checklist of mandatory school materials, you’ve
bought your kids new clothes and shoes (is there a
choice? They’ve grown a full foot in three months!),
and you have certainly brought them to the eye doctor
to have their vision checked.
But did you think of having their hearing checked too?
No? Don’t worry—you are not alone!
We have yet to get into this habit in Quebec, which is
why the network of Lobe clinics works so hard to raise
people’s awareness through Lobe Magazine. I myself
am the proud mother of a five-year-old girl who just
can’t wait to start kindergarten (you can imagine all
the emotions of Mommy watching her “baby” take her
first steps among the “big kids”). To be perfectly honest, before I began working as Lobe Magazine editor,
I would never have thought of bringing her to see an
audiologist.
out of
lobe.ca But now I know that hearing loss could negatively
impact her learning capabilities and cognitive development, and I have absolutely no doubt about the usefulness of a hearing test. I can only encourage you to
book an appointment for your little student!
This “back-to-school” issue features the indisputable
stars of the season: our kids. The articles all address
topics related to these little treasures. Whether you
are more interested in early hearing screening in
newborns, language development in toddlers, helping
school-age children understand the reality of a hardof-hearing friend, or the best hearing aids for the teen
lifestyle, we are confident that you will find solutions
here, or at least food for thought!
Happy reading, and have a nice back-to-school season!
Isabelle Roy
Editor
[email protected]
This is the number of children
born each year with severe or
profound hearing loss.
3
Table of contents
Readers’ questions ...................................................................................................................... 4
Lobe was there! ............................................................................................................................ 4
My child needs hearing aids. What do I need to know? ...........................................5
Andrée Ruffo: When children come first ........................................................................6
volume 8, number 3, 2015
Hearing impaired classmates: Making your child aware of their reality .......7
Language development in preschool children .............................................................8
Brand new baby: time to care for its hearing! ...........................................................10
Early hearing screening: When studies prove it right ...........................................11
Hearing aids for the young and trendy! ........................................................................12
Hearing children with deaf parents: the impacts on language .........................13
Hearing technology in support of child development ...........................................14
Active aging: People 50 and over are setting the example .................................15
Hearing aids as cool as teenagers! ..................................................................................16
Home wireless listening systems .....................................................................................17
Today’s intergenerational and family relationships ...............................................18
Rare and orphan diseases: Is society listening? ........................................................19
Let’s act together against ageism! ...................................................................................20
The Lobe Cycl-ORL team reaches its goal! .................................................................21
Fondation Sourdine’s 16th “Les saveurs du théâtre” benefit ............................21
Hearing health/comm. professionals / What’s new in the Lobe clinics? ......22
Addresses of the Lobe clinics ............................................................................................. 23
Anecdotes from the
professional’S office
One of my patients had lost a
hearing aid. She just could not
remember where she had put it, so
we started the process of getting
her a new one. Several months later,
she came in for her follow-up and
said, “Guess what? I just found my
hearing aid…in some soup that was
in the freezer!” Her hearing aid had
fallen into the pot of soup while she
was cooking, and she never noticed
it!
Keep in mind: While “culinary
incidents” like this may be hard to
prevent, patients should always put
their hearing aids in their storage
case when they take them off, and
keep the case in the same spot to
avoid misplacing it.
Editor
Isabelle Roy
Graphic designer
Jonathan Mathys
Printing house
Imprimerie Solisco inc.
Rights and responsibilities
Any translation, reproduction or adaptation of texts, illustrations and photos in this
work, for any reason whatsoever, in whole
or in part, is strictly prohibited without
written permission from the editor.
The opinions expressed in articles published by Publications Lobe are the responsibility of the author.
Legal deposit
ISSN 1913-0287
Bibliothèque nationale du Québec, Montréal
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Santé auditive inc./Bulletin produced by
Publications Lobe.
Typographical recommendations for
visually-impaired persons have been taken
into consideration during the production of
this magazine.
lobe.ca
4
Readers’ questions
Lobe is out there!
Hello,
Facebook
Your kids want to swim like dolphins, but you
have to stop them because they have “tubes”?
Have swimming earplugs made just for them!
My seven-year-old daughter became deaf due
to meningitis; both her ears have ossified.
I would like to know if an implant could help?
Best regards,
Mrs. Anonymous
YouTube
Hearing health professionals at the Les Professionnels.tv TV show, presented at TéléMag. All
Lobe vignettes can be viewed at any time on
Lobe.TV.
Dear Mrs. Anonymous,
First of all, please know that we sympathize with
your daughter’s situation. Unfortunately, implants
are outside the expertise of the professionals working in the Lobe clinics.
Twitter
Enroll into BRAMS’s study: modulation of sound
intensity perception in people with tinnitus:
[email protected]
We recommend that you contact Centre québécois
d’expertise en implant cochléaire at 418-691-5420
or visit their website at www.implantcochleaire.ca/
centre.html. The Center staff can help guide you.
LinkedIn
Martin Cousineau, president and CEO of the
Lobe network of clinics, was interviewed by
Advantage magazine. advantagemagazine.ca
Good luck!
Write to us!
Follow us!
Email us at [email protected]
or comment the magazine
articles online at lobe.ca
facebook.com/cliniqueslobe
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linkedin.com/cliniqueslobe
youtube.com/user/votreLobeTV
Mr. Subscribe to the Lobe magazine
Ms.
Read the online version at lobemagazine.ca. This is free!
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5
I just learned that my child needs
hearing aids. What do I need to know?
It is perfectly normal to experience a rush of questions and concerns. Here are answers to the
most frequently asked questions from parents of children that need to be fitted with hearing aids.
• A baby can be fitted with hearing
aids as early as 4 weeks of age.
• Hearing aid batteries and cleaning products are not covered, but
they are inexpensive (approx.
$10/month).
• The audioprosthetist will choose
the best hearing aids based on
your child’s audiology profile
and ear morphology, as well as
hearing aid durability and ease of
handling. BTE (behind-the-ear)
hearing aids are usually recommended for children because of
their versatility and ruggedness.
• Your child will be able to wear
hearing aids when practicing
any sport, including contact
sports (martial arts), gymnastics
(tumbling and headstands!), and
watersports. That’s right! There
are water-resistant hearing aids*
that allow children to submerge
their head.
© Gear for Ears
• In Quebec, almost all of the
costs will be covered by Régie de
l’assurance maladie du Québec
(RAMQ). Eligibility criteria for
children under 12 are very inclusive: if the hearing impairment
may compromise the child’s
speech and language development, RAMQ will cover consultations with an audioprosthetist
and will pay for hearing aids.
• For sports that require a helmet
(like biking, skiing, or hockey),
simply have your child try on
various models with hearing
aids on so you can find the most
comfortable one.
• No matter the activity, we recommend wearing specially
designed “sport clips,” a sport
band, or spandex sleeves (see
picture above) to hold the
hearing aids tightly in place.
the child’s hearing aids) will aid
understanding in class. Wireless
Bluetooth connectivity modules
can also be connected to a TV
or computer to transmit sound
directly to the hearing aids, just
like earphones would.
• If you have questions about pediatric fitting or would like professional support for your child,
consult an audioprosthetist.
Simon Dufort
Audioprosthetist
Montreal · Saint-Laurent
Lobe Clinic
• The audioprosthetist will adjust
your child’s hearing aids to
maximize speech intelligibility
and foster language and communication skills. Maximum output
will also be set to protect against
intense noise.
• Several assistive listening devices
can be used as a complement. An
FM system (the teacher wears
the emitter around the neck
and the receiver is connected to
*Model not eligible for the RAMQ refund.
To determine which hearing aids are best for you, consult an audioprosthetist.
lobe.ca
Andrée Ruffo:
When children
come first
Ms. Ruffo, during your career, you
have always spoken out on behalf
of disadvantaged children and children in difficulty. Where did your
interest in children’s rights come
from?
Children have always been very
important in my family. My sister
and I attended Université Laval’s
summer preschool education training program for two years, where
we discovered the fragility and
beauty of children, and how to keep
them stimulated, for when we would
become mothers.
Because it was clear to me that I
would get married and have many
children. But life decided otherwise.
I had a son, and then I had a miscarriage at five and a half months, and
it was not possible for me to have
more children after that.
At that moment, I decided to go
back to school. I became a lawyer
and started working at the age of
35. There was no doubt in my mind
that I would work only for children.
I opened the first law practice dedicated to children in the province of
Quebec. I worked only with children,
and it was pure joy! When I went to
court, I only had one child with me
each day, never two. Imagine this:
you are seven years old and your
father beats you. You go to court.
At one point, your lawyer screams,
“Who is this, Sophie?” That’s the way
things are nowadays.
Whereas I would accompany the
child, I would pick him up at home,
I would take him to court and wait
with him. We would go before the
lobe.ca judge together. For me, it was a true
pleasure, because I did it my way
and on my own terms, and it was
really important.
Given your experience, do you
believe that a deaf or hard-of-hearing child is more vulnerable than a
hearing child?
Yes, since he is different. Most bullied kids get bullied because they
are different, whether they are the
rich girl, the boy whose ears stick
out, etc.
What do you think would help
troubled youths?
I think that we have to stop talking
about bullying and instead talk
about how much we admire people
with differences.
Personally, I have boundless admiration for people that are different,
that mingle with people successfully,
that enjoy life... Who do we think
we are if we think we are the centre
of the universe? For me, it is crystal
clear that discrimination arises from
differences.
You have had an impressive career.
What do you feel has been your
greatest achievement?
That I never cheated the kids; that
I gave them honest and hopeful
messages. This truly is my greatest
pride. Today, I can say that I never
made compromises in my judgments
because there were no resources. I
could look my clients in the eye back
then, and I can still look them in the
eye when I run into them today.
© Louise Leblanc
6
Today, you say that you take the
time to live one day at a time.
With the job you had, which was a
mission in some way, how did you
manage to do that?
I did not have a choice. All at the
same time, my brother committed
suicide and I had all these conflicts
with the judiciary. I went into a
massive depression. And I am not
ashamed of saying it. I was treated
by people that I love—extremely
competent people. This depression turned out to be a good thing,
because it allowed me to focus on
who I was, what I wanted, ways to
make myself happy, etc. Still today,
I comment on news related to children.
As a matter of fact, at one point a
journalist called me. I had a visitor
over and could not speak with her.
She begged me to call her back
because they were “trying to find
somebody willing to talk about children in Quebec, because nobody
actually does.” Where are the
judges? Where are the social workers? Where are the psychologists?
I’ve been retired for eight years, and
I still receive calls even when I’m
away in Europe. This is nonsense.
To read the complete interview
with Ms. Ruffo, go to:
lobe.ca/en/nouvelles-en/interview-andree-ruffo
7
Hearing impaired classmates:
Making your child aware
of their reality
Nowadays classrooms are filled with students from all walks of life. When your child heads back
to school, he or she will meet new classmates and may very well come into contact with a hard-ofhearing student.
The challenges hearing impaired children face
Deafness has no physical signs, so it will likely be
“invisible” to your child. Because he might not understand the difficulties facing hard-of-hearing classmates, these students could end up being isolated.
To help prevent this, you can explain that despite
any hearing difficulties, your child’s friend is just as
smart, and there are other ways to communicate to
make sure that his or her friend fully understands and
becomes integrated in the classroom.
Living with hearing loss
There are several types of hearing loss; it is not simply
a matter of “hearing everything” or “not hearing at
all.” Based on the type and level of hearing loss, a child
may hear well one-on-one but have a hard time in a
group (e.g., in the classroom). He or she will most likely
use specialized devices, such as hearing aids and FM
systems. In an FM system, a receptor receives the
sound signal from a transmitter (worn by the teacher
or placed in the centre of a table) and sends it to the
hearing aids. More simply, you can tell your child that
his or her friend needs a special microphone to help
his ears hear sounds.
Interacting in class
While hearing aids may greatly improve a child’s hearing, some situations might still be challenging, and this
is why he or she will usually sit in the front row. The
teacher may repeat instructions directly to the student more often, give him or her a little more time to
take exams, and excuse him or her from activities like
oral presentations. It is important to explain to your
child that this is not because the hearing impaired
classmate is not as smart or is the teacher’s pet, but
rather because some things have to be adapted to his
or her needs.
Tips and tricks for talking with
your hard-of-hearing friend
• Make sure to face your friend when you’re talking.
• Do not stand in front of a window, because the
light will be too bright and your friend won’t see
you. Seeing your face and your mouth makes it
easier for your friend to understand.
• If you say your friend’s name and he doesn’t turn
around, he is not ignoring you on purpose—he
doesn’t hear you! Get his attention by waving
your hand or gently touching his arm or shoulder.
• Do not cover your mouth with your hand. Your
friend will understand better if she can read your
lips.
• Do not speak too fast or too slowly, and do not
yell.
• If your friend has a hard time understanding and
asks that you repeat, do not get impatient. Say
things another way, using different words, instead
of simply repeating the same thing.
• If you don’t know how to act, you can ask what she
prefers. Good communication goes both ways!
Jessica Tremblay, MPA
Audiologist
Boisbriand, Laval · Chomedey,
and Saint-Jérôme Lobe Clinics
lobe.ca
8
Language development
in preschool children
When it comes to language development in very young children, the key point to remember is
that each child follows his or her own language acquisition pace. This pace varies greatly, and
development is gradual. Do not worry if your child has not shown one of the indicators from
the table opposite.
However, if you have concerns about your child’s language development or if several indicators seem to be missing for his or her age, we recommend that you consult a speech-language
pathologist.
Early treatment can help avoid or reduce possible
consequences such as behaviour or learning problems
when the child reaches school age.
The role of the speech-language pathologist is to
prevent, assess, and treat speech and language disorders. During the consultation, he or she will assess
your child’s communication and language skills. This
will enable him or her to determine whether your child
requires speech-language therapy.
lobe.ca The table opposite outlines language development
steps by age group (0–5 years old).
Camille Baribeau-Portelance
Speech-language Pathologist
Québec · Sainte-Foy Lobe Clinic
9
Language development indicators
2–3 years
18–24 months
12–18
months
0–12 months
Understanding
• Looks at the person
talking, reacts to facial
expressions and tone of
voice
• Reacts to his/her first
name being called
• Understands a few familiar words
• Begins to smile and then
laugh
• Points a finger while
vocalizing
• Uses context and gestures to understand
language
• Coos “aaa/eeee” as early
as 2 months of age
• Waves “bye bye” with a
hand or shakes the head
“no”
• Vocalizes to express
needs
• Understands simple
instructions, with and
without gestures
• Understands simple
questions: “Where?”,
“Who?”
• Says first word at around
12 months
• Understands about
200 words
• Understands action
words such as “Give it!”
and “Show me!”
• Explosion of vocabulary
• Points at about 4 body
parts when asked
• Understands more than
200 words
• Understands short,
simple sentences, even
when said out of context
• Understands 3-element
instructions
3–4 years
EXPRESSION
• Understands the questions “Why?” and “How
many?”
• Verbally imitates sounds
and words
• Uses 50 to 100 words
(24 months)
• Understands in, more,
mine/yours, no/not
• Understands 2-element
instructions: “Give
me the apple and the
banana.”
• Understands questions
like “What is your name/
How old are you?” and
questions with “Who?”
and “What?”
• Can sort objects into
categories (clothing,
veggies, toys)
• Finds the answer to
simple riddles
• Uses words and gestures to make himself
understood or make
requests
• Makes two-word sentences: “More milk”
• Starts verbal communication, asks for help
• Can say 100 to
300 words
• Asks questions and gives
instructions
• Is understood by relatives
• Uses determiners (a, the)
and pronouns (me, you)
• Can create 2- and
3-word sentences
• Conjugates verbs in the
past, present, and future
(3 years) tenses
• Is understood by strangers 75% of the time
• Can report a simple
event
• Uses personal pronouns
(I, you, s/he/it, we, you,
they)
• The sounds ng (talking),
k, g, f, v, ch, and j can be a
challenge until the child
reaches 5-6 years of age
• Vocabulary is more precise, uses fewer all-purpose words (this, there,
thing)
• Creates longer and more
complex sentences
4–5 years
• Babbles with vowels and
consonants “dadada/
mamama”
• The sounds sh and zh
(measure), l, r, s, z, th
(think), and th (that) can
take longer to master
(until age 8)
• Understands more than
1,500 words
• Follows instructions with
several steps
• Is understood by strangers
• Usually uses verbs in the
right tense
• Understands the questions “When?” and
“How?” • Understands many
notions of space and time
• Creates long and complex sentences with the
words: with, because,
who, that, if, why
• Makes fewer pronunciation errors
• Makes simple deductions
• Begins to name categories
• Can tell a story
lobe.ca
10
Congratulations on
your new arrival! Time to
care for your baby’s hearing!
Did you know that deafness is a congenital disorder affecting one to three newborns of
every thousand?
Luckily, newborn hearing screening
can detect hearing impairment just
hours after birth. Hearing screening
ensures that children with hearing
loss are diagnosed and fitted with
hearing aids by their sixth month of
life, for optimal development.
Often invisible, deafness is a
sensory disability with major
consequences on a newborn’s
development. It endangers brain
plasticity (the brain’s capacity
to modify neuronal networks
according to life experiences),
language acquisition, and the ability
to communicate, socialize, and
learn.
Hearing screening in newborns
Hearing screening is done shortly after birth using otoacoustic
emissions (OAEs). It is completely
painless. A probe is inserted into
the infant’s ear, and the cochlea’s
responses to sound stimulation
(OAEs) are recorded.
It is a simple and quick objective
test when the conditions are right.
It must be carried out in a quiet
environment, because background
noise (the infant’s movements,
sucking or crying noises) might
extend the duration of the test
and hinder measurement, or make
testing impossible in some cases.
For these reasons, it is best to carry
out the test when the baby is asleep.
lobe.ca The results:
What they actually tell us
Hearing screening results will indicate if the child has passed or failed,
but not the degree, nature, or origin
of hearing loss. Based on the results
or risk factors for deafness, the
audiologist will recommend further
investigation if necessary.
The scope of the test is limited, as
it does not detect very mild or mild
hearing loss (below 30 to 40 decibel
HL), progressive or late hearing loss,
or auditory neuropathy.
Screening only gives an overview
of the situation. Parents should
monitor their child’s growth and
development closely, even if the
hearing screening did not detect a
problem.
Systematic hearing screening
For more details on hearing
screening in newborns, or to have
your baby’s hearing checked,
consult an audiologist.
Sarah Assouline, MPA
Audiologist
Longueuil and Saint-Hubert
Lobe Clinics
References:
-- Institut national de santé publique du Québec
(INSPQ), (2007). “Le dépistage de la surdité chez
le nouveau-né : Évaluation des avantages, des
inconvénients et des coûts de son implantation
au Québec.” Online: http://www.inspq.qc.ca/pdf/
publications/722-LeDepistageSurdite.pdf
-- Direction des communications, Ministère
de la Santé et des Services sociaux (2012).
“Programme québécois de dépistage de la
surdité chez les nouveau-nés.” Online: http://
publications.msss.gouv.qc.ca/acrobat/f/
documentation/2012/12-918-07W.pdf
-- PATEL, H. and M. Feldman (2011). “Universal newborn hearing screening.” Canadian
Paediatric Society (2011). Online: http://www.
cps.ca/fr/documents/position/troubles-auditiondepistage-universel-nouveau-nes
In the past 10 years, hearing
screening has become increasingly widespread in North America,
Europe, and most industrialized
countries elsewhere.
In Quebec, only a few hospitals
offer systematic newborn hearing screening (before the baby is
released from the hospital), while
at other hospitals, only babies with
risk factors (e.g., family history
of deafness, prematurity, low
birth rate, or severe jaundice) are
screened.
11
Early hearing screening:
When studies
prove it right
©Oticon
For many years, organizations such as the National Institutes of Health (NIH, 1993) and the
American Speech-Language-Hearing Association (ASHA, 1991) have been recommending early
hearing screening and intervention. Despite this, children diagnosed with hearing loss in the
United States are already between 18 months and two and a half years old on average.
How could these children’s lives have been improved
had hearing loss been detected earlier?
Researchers Yoshinaga-Itano and Apuzzo (1998)
wanted to know the real impacts of late hearing
screening on the development of hard-of-hearing children. To this end they created two groups: Group A,
comprising 15 children whose hearing loss was detected before they were 6 months old, and Group B, comprising 25 children diagnosed with hearing loss after
the age of 18 months. When the children all reached
40 months, the researchers tested and compared their
performance in seven development spheres: overall
development, gross and fine motor skills, expressive
language, conceptual understanding, situational
understanding, and social skills.
This study highlights the negative impact of late hearing loss diagnosis and intervention, as well as the fact
that this impact far exceeds the spheres directly related to hearing.
One thing is for sure: hearing aid fitting is key in the
intervention plan, no matter when it occurs in the
child’s life. Hearing aids must be chosen carefully from
among the numerous types on the market, and must
feature functionalities suited for a child’s evolving
needs.
For more details on the hearing aid models most
appropriate for your child, consult an audiologist.
Josée Guillemette
Audiologist
Representative and Trainer,
Adult and Pediatric Program
The impact of waiting too long
The study highlighted differences related to the age of
the children at the time of diagnosis, including significant differences in expressive language and conceptual understanding, and considerable differences in
overall development.
Oticon Canada
www.oticon.ca
Reference:
-- YOSHINAGA-ITANO, C. and M.-R. Apuzzo (1998). “Identification of hearing
loss after age 18 months is not early enough.” American Annals of the Deaf,
December 1998; 143, 5; Health Module, p. 380.
For instance, children from Group A showed a developmental age of 32 months for expressive language
and 34 months for conceptual understanding, which
represents a delay of 8 and 6 months respectively — a
result that remains within acceptable limits.
As for children from Group B, their developmental age
was estimated at 26 months for expressive language
and 28 months for conceptual understanding, which
represents a delay of 14 and 12 months respectively.
Group A performed better than Group B in six of the
seven spheres tested, even though only three of the
tests were directly related to hearing.
lobe.ca
12
Hearing aids for the
young and trendy!
Does your child suffer from hearing loss? If so, you’re not alone. Many parents are facing the
same challenge and like them, you’ll soon find that there are plenty of solutions. Modern hearing
aids can allow your child to enjoy the gift of sound—and life in general!
One particular line of high-end hearing aids comes
equipped with a binax chip, providing a smart digital
binaural processing system. These hearing aids are
compact, easy to use, and IP67-compliant, meaning
they’re dust-tight and water-resistant. They also feature direct audio input, for an exceptional wireless
connection.
Tune out the noise: Direct audio input
An optional feature,
direct audio input allows
hearing aids to connect
to FM systems, which is
particularly useful when
children are trying to
listen to someone in a
loud environment, such
as their teacher in a
classroom or gym, family
members at home, or
friends at a recreation centre.
Practical accessories
Audio streamers
The easyTek audio streamer works seamlessly with
hearing aids. This modern and elegant accessory
allows users to connect to various devices, such as
Bluetooth-enabled phones, MP3 players, and TVs.
Sound is transmitted from these devices directly to
the hearing aids, effectively turning them into miniature headphones. The easyTek can also be used as
a remote control for discreet program and volume
adjustment.
The easyTek App allows users to control easyTek from
a smartphone. This App is available for download free
of charge on Google Play and the App Store.
VoiceLink microphones connect to easyTek devices
and seamlessly transmit speech to hearing aids—useful when listening to lessons or presentations or when
in a car.
Remote control App
The touchControl App for binax hearing aids allows
users to discreetly and conveniently adjust programs,
volume, and bass and treble levels via their smartphone—no additional devices required!
Choosing hearing aids for your children can seem like
a daunting task, but after learning about the recent
technological developments and consulting with an
audioprosthetist, you’ll come to realize that hearing
aids are now easy to use and maintain.
Manon Larivière, M.Sc.S.
Audiologist
Siemens hearing instruments
Sivantos inc.
www.sivantos.ca
lobe.ca © Lobe Magazine 2015
13
Hearing children
with deaf parents: The impacts
on language development
Did you know that 90% of children born to deaf parents can hear? How do these families communicate at home?
Literature indicates that a threeyear-old child who cannot communicate better than an 18-month-old
toddler will never be able to fully
make up for his speech and language
delay. This raises concerns about
how having deaf parents impacts a
child’s language development.
Deaf parents and their hearing
children have two communication
options: sign communication and
oral communication.
Sign communication
Most deaf parents will choose to use
sign language to communicate with
their children. In this case, sign language is considered the children’s
mother tongue. They will learn
oral communication through other
means. When children are raised
with both sign and oral communication, they are considered bilingual
learners. Their communication
skills will develop just like those of
any small child learning two spoken
languages at the same time (e.g.,
French and English). Despite the
known benefits of bilingual learning,
there are high risks of such children
developing bad habits, leading to
mistakes such as the following:
• Asks incorrect or incomplete
questions
• Forgets articles (a, the)
• Confuses definite pronouns (s/he)
• Misuses past verb tenses
• Repeates the same word in a
sentence
Such mistakes are part of the learning process and will disappear with
time.
Oral communication
Some parents will choose to communicate orally with their children
in the hope that this will help with
their language development. Unfortunately, various studies show that
deaf parents are not the best teachers, because they usually have weak
articulation and vocabulary, which
affects the clarity of the message
they are trying to deliver.
knowledge and skills required to
correctly express themselves orally.
Deaf parents are advised to communicate with their children in the
mode they are most comfortable
with—the one in which they can
clearly express ideas with every
nuance of thought—for the good
reason that clear communication
will foster natural language acquisition.
Brigitte Sauvageau, MPA
Audiologist
Saint-Augustin-deDesmaures, Pont-Rouge
and Québec · Beauport
Lobe Clinics
This can have the following consequences on their hearing children’s
development:
• Poor articulation, similar to that
of their deaf parents
• Language deficiency (observed in
one of every two such children)
• Limited interaction with their
deaf parents (because they don’t
know sign language, they struggle
to communicate with them)
Exposure to oral language
References:
-- JOHNSON J. M., R. V. Watkins and M. L. Rice
(1992). “Bimodal bilingual language development in a hearing child of deaf parents,” Applied
psycholinguistics, 13(01), pp. 31–52.
-- MURPHY, J. and N. Slorach. (1983). “The Language Development of Pre‐Preschool Hearing
Children of Deaf Parents,” International Journal
of Language & Communication Disorders, 18(2),
pp. 118–127.
-- SINGLETON, J. L. and M. D. Tittle (2000). “Deaf
parents and their hearing children,” Journal
of Deaf Studies and Deaf Education, 5(3), pp.
221–236
It has been proven that children of
deaf parents can develop language
just as well as children of hearing
parents, provided they spend a
minimal amount of time with people
who speak the language fluently,
such as family members or a child
care worker or sport coach. Weekly
exposure of five to ten hours seems
enough for children to acquire the
lobe.ca
14
Hearing technology
in support of
child development
Sound is an important source of information for any hearing
human being, but it is especially vital to children’s auditory and
cognitive development. As a parent, you want your children to
take advantage of all the noise and sounds around them, all of
which are learning opportunities. Hearing-impaired children
need to tap into these information sources as well. Fortunately,
current technology makes this possible.
Hearing is essential to speech and
language development, communication, and learning. Hearing aids can
help children learn to speak clearly
by allowing them to better hear and
imitate the voice of other people,
which is essential to proper speech
development. Hearing aids can
also help children better hear their
own voice, knocking down another
barrier to natural speech development, since children who can’t hear
themselves talking won’t be able to
correct their elocution mistakes on
their own.
Benefits of modern hearing aids
Modern hearing aids feature a
unique technology that enhances
both speech understanding and listening comfort by amplifying sounds
and making them clearly audible.
Advanced hearing aid technology
also supports speech and language
development in children, in various
listening environments. Whether
at school or at home, at a birthday
party or practicing a favourite sport,
children can take advantage of
the powerful features packed into
today’s hearing aids.
Julie Dinon
Audiologist
Bernafon
www.bernafon.ca
15
Active aging:
People 50 and over
are setting the example
Children are the most precious gift to a society. A healthy lifestyle, and physical activity in
particular, are essential to ensure their good health. There is nothing better than parents
and grandparents that set the example by being active—even more so when they invite
young people to move with them!
More and more people 50 and over
are getting back into shape or staying fit. Some of them do it solo or
with their spouse; others take
classes or go to a local gym.
A number of them are members of
Réseau FADOQ, whose 45-year
mission has been to offer a variety
of leisure activities to its members,
who are increasingly “younger”
seniors concerned with maintaining
a good quality of life as they age.
Getting moving with the kids
and grandkids
No matter how they keep active,
these seniors are full of energy
when time comes to take care of
their grandchildren or vacation with
them once they become teenagers,
so why not plan activities that will
get everybody moving?
The possibilities are endless. With
the little ones, an afternoon at the
park or a walk are perfect, while
older kids will gladly hop on their
bike for a ride with Grandpa or
Grandma, even more so if a picnic or
ice cream tops it off!
With teenagers, it is better to schedule something a little edgier: a treetop adventure circuit or via ferrata,
winter camping, or bicycle touring.
People 50 and over will find it very
satisfying to share their passion
with younger generations, showing
them benefits of active aging. For
instance, rather that enrolling little
Nathan in a tennis class, Grandma
or Grandpa can teach him the basics
and spend some quality time with
him.
People 50 and over who play the
piano or a little guitar, sing in a choir,
or cook delicious meals should share
their passion and knowledge to create special memories with the ones
they love the most!
To become a member of
Réseau FADOQ, visit
fadoq.ca or dial
1-800-544-9058.
Some brain-challenging fun
Leisure activities that appeal more
to the brain than the body, like
board games, can also foster intergenerational connection. There
is a Scrabble junior game for kids
age 5 and older that will work out
their brain cells, help them improve
their spelling, and prepare them to
become formidable players one day!
lobe.ca
16
Hearing aids as
cool as teenagers!
There is a range of hearing aids that has been designed to work with the iPhone, iPad, and iPod touch,
in addition to being compatible with the FaceTime app for video calls. Wearing hearing aids can now
be cool for teenagers!
New behind-the-ear (BTE) style
with push button
Listening to music, movie, and
video game audio
Hearing aids from this range boast
a new waterdrop design and a push
button to customize memory and
volume directly on the hearing
aid. These models are an excellent
choice for teenagers that are not
allowed to use their cellphone in
class.
Teenage hearing aid wearers can
listen to music as well as video,
media, and app audio transmitted
directly and instantly to their hearing aids from their iPhone, iPad, or
iPod touch. They will enjoy impressive sound quality and the most
immersive and personalized experience ever!
A solution to listening challenges and poor sound quality
An application called TruLink is
compatible with these models and
can be downloaded for free from
the App Store. TruLink allows users
to slightly modify the sound quality
of each memory, making it easier to
adapt to the listening environments
and conditions of today’s teens.
Plus, TruLink’s External Microphone
functionality makes it possible to
transmit sounds directly to the hearing aids, as well as record, play, and
even share audio files through email
or social media.
Phone calls and the FaceTime
application
This technology is perfect for
teenagers who have trouble understanding when talking on the phone.
Conversation audio is transmitted
directly to the hearing aids, without any intermediary, and without
wearers having to hold their iPhone.
The hearing aids transmit the voice
of the person on the other end of
the line directly to the wearer’s ears
and send the wearer’s voice signal
directly to the other person.
Plus, their parents will appreciate
the peace of mind provided by the
hearing aids’ direct connection to
Apple products—and their affordability.
Julie-Catherine Ste-Marie, M.Sc.S.
Audiologist
Starkey Canada
www.starkey.com
This range of hearing aids is also
compatible with the FaceTime app
for video calls, which provide visual
cues to hard-of-hearing teenagers.
This makes lip reading easier and
helps prevent misunderstandings
and frustration!
17
Home wireless
listening
systems
Wireless listening systems transmit
amplified sound directly to the child’s
ears, thanks to a stethoscopic headset, or “sthetoset”.
Radiofrequency (RF) listening system
This listening system with
stethoset receiver works on
radiofrequency, like a radio
station on the FM band. With
this system, children can listen
to their favourite music or TV
shows even when they exit
a room to go anywhere else
within the house. The system
transmits sound up to 300 feet! Here are some of its
features:
• Offers three channels that can accommodate three
users in the same space, and multiple people on the
same channel
Infrared (IR) listening system
This listening system with stethoset
receiver works on infrared technology and is perfect for short-range
listening (40 feet) in the living room
or in the child’s bedroom. The signal
will not go through the walls.
• Very easy to use: turns on automatically as soon as the child puts
it on
• The signal remains in the room
• The transmitter features three sound adjustment
levels to adapt to various types of hearing loss
• Volume and frequency balance controls are located
on the receiver
• It transmits amplified sound from the source
directly to the child’s ears
• Can be used for up to 12 hours without having to
recharge the battery
• Sound can be adjusted separately for the right and
left ear
• Offers exceptional sound quality.
• Long operating time (9 hours) without having to
recharge the battery
• Automatic recharge and “off” features
• Design ideal for children wearing glasses
• Lightweight and comfortable
Maxime Bacon
Representative for Eastern Canada
Sennheiser Canada Inc.
www.sennheiser.ca
To learn more about wireless listening systems, consult an audioprosthetist.
lobe.ca
18
Today’s
intergenerational and
family relationships
In traditional society, the role of the family was to ensure resource sharing, value transmission,
and knowledge transfer. In current society, intergenerational links are expressed in a different
manner, but they are just as important.
Contemporary technological and
scientific progress, as well as an increased emphasis on autonomy and
freedom have led to a shift.
The resulting changes have raised
fears that family support will disappear, but nothing of the sort has
come to pass. Instead we see more
sharing of experiences, affection,
and attention.
give a sense of continuity to their existence. As for great-grandparents,
their number is increasing and they
also cherish this intergenerational
relationship.
Nurturing the relationship with your
grandchildren is a great privilege
that perpetuates the sense of being
a family, even as it shifts!
Martine Rodrigue
General Manager
Association québécoise
de défense des droits des
personnes retraitées et
préretraitées Lévis-Rive-Sud
(AQDR)
Modern grandparents are rallying
to help the parents of 2015, who
are often out of breath. Because
these grandparents are active and
in the prime of their lives, their
relationships are different, and they
really enjoy them. Their grandkids—
whether they are toddlers, teen‑
agers, or young adults—are still a
great source of pride and joy, and
our partners
DRE !
À REVEN
RGIE
’ÉNE
DE L
lace des aînés
19
Rare and orphan
diseases: Is society
listening?
Born in March 2012, Simon experienced a difficult first few months
of life. After many respiratory complications, constant screening, and
suspicions of hearing, metabolic, and neurological disorders, he was
finally diagnosed with Sotos syndrome.
Orphan diseases and hearing
No one in the family had ever heard
of it before. Only one in 14,000 is
born with the disease, and fate had
picked him. Simon has a chance of
leading some semblance of a normal
life, but there’ll be many hurdles
along the way.
Patients with rare diseases often
face multiple challenges. First,
practically nothing is known about
their disease and few health professionals have the experience to treat
it. Lengthy periods of misdiagnosis
are not uncommon, and once the
correct diagnosis is in, there’s often
little that can be done. Patients and
their families are left searching for
answers, desperate for information
that simply doesn’t exist.
Diseases are said to be
rare when they affect
fewer than one person
in 2,000. More than
7,000 such diseases are
known.
Many rare diseases affect hearing
health. Patients suffering from one
of these diseases often seek assistance from hearing health professionals. The multidisciplinary teams
of providers that emerge around
these children become a vital source
of hope and help.
Little Simon, born with Sotos syndrome.
Hardly any research has been con‑
ducted on these diseases, largely because the funding just isn’t
there, but also because research
and development of new drugs is
less appealing to pharmaceutical
companies.
Therapeutic options for improving
quality of life or life expectancy are
practically non-existent for people
with rare diseases. As a result, the
disease’s influence is felt in every
facet of their lives, from school,
work, and hobbies to personal life
and more. Affected individuals can
experience isolation, stigmatization,
social exclusion, and discrimination.
To learn more about Simon, his
story, and the role of the zebra, visit
simonlezebre.ca.
Martin Guilbert
Pharmacy owner and father
of Simon le Zèbre
Pharmacie Fleury, Charest,
Guilbert
Reference:
-- www.rqmo.org. Quebec orphan disease organization providing information and support.
www.orpha.net/consor/cgi-bin/OC_Exp.
php?Lng=FR&Expert=821
lobe.ca
20
Let’s act together
against ageism!
Ageism is insidiously persistent in our society, even
in the current context of rapid population ageing and
increasing life expectancy. Ageism is closely related
to racism and sexism, but it is veiled in silence. Still,
the impact of ageism on seniors is significant: their
identity and self-esteem are directly affected. Ageist
behavior can lead seniors to disengage from society,
despite their essential role in linking generations.
According to some authors (Burchett, 2005; Palmore,
2004; Palmore 2001), ageism is a bias against what
we will become rather than a prejudice against who
we are. This means every single one of us will likely
become a target of ageism over time! We must stay
vigilant and work together to fight ageism and change
people’s mindset with respect to ageing.
Seniors should be a source of pride for our society,
because they are an essential social resource. Association québécoise de gérontologie seeks to highlight
this.
Lorraine Hugon
Master student in public health at EHESP (France)
www.aqg-quebec.org
Reference:
-- Editorial by Martine Lagacé (Associate Professor, Department of Communication, University of Ottawa), Vie et vieillissement, Volume 7, # 2.
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21
The Lobe Cycl-ORL team
reaches its goal!
Once again this year, Lobe Cycl-ORL’s five courageous
team members outdid themselves for the students
of École oraliste de Québec pour enfants malentendants ou sourds. They pedaled relentlessly to cover the
1,000 km route to Montreal.
We are proud to announce that the team raised
$16,500 this year. Over the past three years, this
is more than $45,000 that have been donated to
École oraliste. The school uses this money to improve
the learning environment of its hard-of-hearing and
deaf students, and help them reach their full potential.
Congratulations to the team!
Read the online interview with Christophe Grenier,
captain of the Lobe Cycl-ORL team at: lobe.ca/en/nouvelles-en/christophe-grenier-grand-defi-pierre-lavoie.
Platinum partner:
Gold partners:
Silver partners:
Fondation Sourdine’s 16th
“Les saveurs du théâtre”
benefit had tremendous success
On May 11 before an audience of
more than 300 people gathered at
Théâtre de la Bordée, the students
of École oraliste de Québec pour
enfants malentendants ou sourds
delivered an outstanding spokenlanguage theatrical performance.
This vibrant play was the result of
a tremendous amount of work, and
the children’s determination and ta‑
lent moved everyone in the room.
From left to right: Marie-Josée and Claudette
Taillefer, Louise Cordeau, Esq., Benoît Robert,
Sandra Ferguson, Andrée Boisclair, Farouk Cheïkha
and Marc Hervieux.
Under honorary president Benoît
Robert, president and CEO of
Quebecor’s Sports and Entertainment Group, the evening featured
a number of artists, including the
spokesperson for the organization’s
major fundraising campaign, MarieJosée Taillefer, her mother Clau-
dette Taillefer, and renowned tenor Marc Hervieux. Former student
Virginie Couture, a participant in
the first edition of TV show Vol 920,
delivered an emotional statement.
Thanks to generous contributors,
this event raised a grand total of
$94,520 for Fondation Sourdine.
Hosted by Pierre Jobin, anchorman
for TVA Nouvelles Québec, this important event presented by Quebecor
in partnership with Lobe, Sennheiser,
Groupe Sports-Inter Plus, and TELUS
was held at TRYP by Wyndham
Quebec Hotel Pur, where Mr. Robert announced a major donation of
$100,000 from Quebecor for the “Votre don fera parler!” campaign under
honorary president Louise Cordeau,
Esq., editor and CEO of Journal de
Québec.
lobe.ca
22
Hearing health
professionals
Our mission
The professionals at Lobe multidisciplinary clinics seek to improve the quality of life of those with hearing, language,
and speech disorders by relying on a multidisciplinary approach centered on the patient.
ENT specialist (ear-nose-throat
specialist)
Treats illnesses of the head and neck
(ears, nose and throat). The services
of ENT specialists are reimbursed
by the RAMQ.
Audiologist
Responsible for the full evaluation
of hearing (hearing test) and central
auditory processing disorders
(CAPDs). The audiologist’s services are reimbursed by the CSST,
Veteran Affairs Canada and most
private insurance plans.
Audioprosthetist
Speech-language pathologist
Helps patients select hearing aids
and assistive listening devices and
make adjustments required during
fitting. The audioprosthetist services are reimbursed by the RAMQ,
CSST, Veteran Affairs Canada and
most private insurance plans.
Assesses and treats disorders related to speech, spoken and written
language and swallowing. The
services of the speech-language
pathologist are reimbursed by most
private insurance plans.
Specialized educator
Working with the audioprosthetist,
educates patients on their hearing
aids and offers hearing reeducation.
The services of the specialized
educator are free of charge.
Nurse (hearing health)
Raises awareness of workers to
the importance of hearing health
through seminars and training
sessions. Gives information about
hearing protection (dangers of noise
exposure, protective earplugs, etc.).
Conducts hearing screening in the
workplace.
What’s new in the Lobe clinics?
Hearing health nurse care
Relais Enfant-Santé
The hearing health nurses in the Lobe network of
clinics offer hearing screening in the workplace. They
also provide information about hearing protection
(the danger of exposure to intense noise, protective
earplugs, etc.) and present seminars and training on
hearing health. For more details, call 1-866-411LOBE.
Christophe Grenier, an audioprosthetist at the Thetford Mines Lobe clinic, had the idea for the first edition
of this 12-hour biking relay race that was held on May
30 and raised $5,000 for Enfant-Santé, a non-profit
organization that helps childr en from the Des Appalaches RCM get healthy.
New in 2016! Lévis • Saint-Romuald Lobe Clinic
Christophe rose to the challenge he set himself, which
was to ride during all 12 consecutive hours. Congrats!
The south shore of Québec City will add another
clinic to its count during the first quarter of 2016,
as construction of the building that will house the
Saint-Romuald clinic is well under way. The clinic will
be located in the new Carrefour Saint-Romuald, right
across the Costco Lévis.
lobe.ca © Magazine Lobe 2015
ADdRESSes of the Lobe clinics
Quebec city area
Centre-du-québec
Pont-Rouge
Above Familiprix drug store
69, rue du Collège, suite 203
Pont-Rouge Qc G3H 0J4
Audiologists: 581-329-8476 Audioprosthetists: 581-329-8401
Drummondville
Facing Sainte-Croix Hospital
110, rue Saint-Jean, suite 300
Drummondville Qc J2B 7T1
ENT specialists: 819-857-4777
Audiologists: 819-857-4666
Audioprosthetists: 819-472-7676
Québec • Beauport
Clinique médicale de Giffard
Les Promenades Beauport, door 3
3333, rue du Carrefour, suite 210
Québec Qc G1C 5R9
Québec • Charlesbourg
La Cité Médicale de Charlesbourg
Carrefour Charlesbourg, door 3
8500, boul. Henri-Bourassa, ste 250
Québec Qc G1G 5X1
Québec • Lebourgneuf
Polyclinique Lebourgneuf
777, boul. Lebourgneuf, suite 120
Québec Qc G2J 1C3
Speech-language pathologists:
418-929-6248
Nurses: 418-780-6270
Électronique D. Bernard (A. S. A.):
418-780-3595
Québec • Neufchâtel
Clinique médicale DuChatel
9465, boul. de l’Ormière, suite 102
Québec Qc G2B 3K7
Québec • La Cité - Limoilou
Complexe La Cité Verte
1200, rue des Soeurs-du-BonPasteur, suite 310
Québec Qc G1S 0B1
Québec • Sainte-Foy
Clinique médicale Saint-Louis
(parking: 75 min. free)
3165, chemin Saint-Louis, suite 420
Québec Qc G1W 4R4
418-781-1734
Québec • Val-Bélair
Polyclinique médicale Val-Bélair
1147, boul. Pie XI Nord, suite 205
Québec Qc G3K 2P8
Saint-Augustin-de-Desmaures
Complexe médical l’Hêtrière
G3A 0B4
Chaudière-appalaches
Lévis
Complexe Lévis 1
1655, boul. Alphonse-Desjardins
Suite 210
Lévis Qc G6V 0B7
Saint-Georges
Above Uniprix drug store
14640, boulevard Lacroix
Saint-Georges Qc G5Y 7G8
NEW ADDRESS (END OF SEPTEMBER)!
Sainte-Marie
340, boulevard Vachon Sud
Sainte-Marie Qc G6E 1X8
Sainte-Marie
Centre médical de
La Nouvelle-Beauce
774, rue Étienne-Raymond, ste 008
Sainte-Marie Qc G6E 0K6
418-386-4426
Thetford Mines
Ameublement Carrier Building
611, boul. Frontenac Est, suite 201
Thetford Mines Qc G6G 6Y7
(Formerly Hélène Trussart)
Estrie
Lac-Mégantic
Carrefour Lac Mégantic
3560, rue Laval, suite 123
Lac-Mégantic Qc G6B 2X4
Laval • Chomedey
Centre professionnel
Cité de l’Avenir
1575, boul. de l’Avenir, suite 120
Laval Qc H7S 2N5
Montréal • Saint-Laurent
Complexe médical Saint-Laurent
1605, boul. Marcel-Laurin, ste 120
Saint-Laurent Qc H4R 0B7
Laval • Sainte-Dorothée
Centre médical Sainte-Dorothée
3, boulevard Samson, suite H
Laval Qc H7X 3S5
Montréal • Saint-Léonard
Les Terrasses Langelier
6383, rue Jean-Talon Est
Saint-Léonard Qc H1S 3E7
Audioprothesists: 514-798-0915
Saint-Jérôme
Polyclinique Saint-Jérôme
200, rue Durand, suite 209
Saint-Jérôme Qc J7Z 7E2
ENT specialists: 450- 565-9898
Pointe-Claire
Corner of Saint-Jean Blvd and
Holiday Av.
18, place de la Triade, suite 210
Pointe-Claire Qc H9R 0A2
Mauricie
OUTAOUAIS
Shawinigan
3222, boulevard des Hêtres
Shawinigan Qc G9N 3B6
Tel.: 819-539-8666
Gatineau
500, boul. de l’Hôpital, suite 205
Gatineau Qc J8V 2P5
Trois-Rivières
4870, boul. des Forges, suite 101
Trois-Rivières Qc G8Y 1W9
Tel.: 819-378-7477
MONTérégie
Châteauguay
Complexe médical Châteauguay
288, boulevard D’Anjou, suite 210
Châteauguay Qc J6K 1C6
Longueuil
1215, ch. Du Tremblay, door 165
Longueuil Qc J4N 1R4
Saint-Hubert 4025, boul. Taschereau, suite 1200
Saint-Hubert Qc J4T 2G6
Sherbrooke
Clinique de santé Jacques-Cartier
1815, rue King Ouest, suite 200
Sherbrooke Qc J1J 2E3
Tel.: 819-348-4334
1-866-348-4334
Saint-Jean-sur-Richelieu 600, boul. du Séminaire Nord
Saint-Jean-sur-Richelieu Qc
J3B 7B4
ENT specialists:450-349-9898
northern quebec
MONTRÉAL
Tel.: 819-378-7477
Montréal • Rosemont-La-Petite
Patrie
Polyclinique Maisonneuve-Rosemont
5345, boulevard de l’Assomption
Suite RC-20
Montréal Qc H1T 4B3
Laurentides and Laval
Boisbriand
Polyclinique 640
2000, cours Le Corbusier, suite 105
Boisbriand Qc J7G 3E8
23
NEW CLINIC!
(Formerly Béliveau & Caron)
Gatineau • Aylmer
Coop Santé Aylmer
67, rue du Couvent, suite 100
Gatineau Qc J9H 6A2
Gatineau • Buckingham
Coop Santé de la Basse-Lièvre
620, avenue de Buckingham
Gatineau Qc J8L 2H5
Saint-André-Avellin
CLSC Petite-Nation
14, rue Saint-André
Saint-André-Avellin Qc J0V 1W0
Audioprosthetists:
1-800-373-5844
head office
Saint-Augustin-de-Desmaures
Complexe médical l’Hêtrière
G3A 0B4
Tel.: 418-877-7222
Toll free: 1-866-302-5623
hearing health Nurses
Tel.: 418-877-7222, ext. 5233
Book an
appointment
now!
1-866-411-5623
lobe.ca
24
Book an appointment with an audiologist
to have your baby’s hearing checked.
Hearing health
and communication clinics
To find the nearest clinic:
1-866-411-5623
lobe.ca lobe.ca
ENT specialists
Audiologists
Audioprosthetists
Specialized educators
Speech-language pathologists
Nurses © Lobe Magazine 2015
The types of professionnals may vary
from clinic to clinic.
Did you know that deafness is one of the most common
congenital conditions? 1 to 3 newborns out of 1,000 are
born each year with hearing loss.*
*References on request.
The baby has yet to be born,
but you already care so much…

andrée ruffo: when chiLdren come first

Transcription

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